Event and Press Information
EVENT AND PRESS INFORMATION Life As A Zebra Foundation Why Life as a Zebra? In medical school, students are taught to diagnose patients based on the condition that’s most likely. This idea goes along with the saying: “When you hear hoofbeats, think horses, not zebras.” The horses are the likely explanation, while the zebras are less likely. A medical zebra, then, is a person with a rare medical condition. Life as a Zebra Foundation’s Mission The Life as a Zebra Foundation educates, advocates, and secures funds and charitable contributions for the prevention, treatment, and research of various hard to diagnose invisible illnesses including, but not limited to, Ehlers‐Danlos syndrome, dysautonomia, and vasculitis. What We Do Secure funds for education, prevention, treatment, and research of various invisible illnesses including, but not limited to, Ehlers‐Danlos syndrome, dysautonomia, and vasculitis. Build a community of people who care about eradicating various chronic, invisible illnesses. Inspire and advocate for people who live with chronic, invisible illnesses by sharing personal stories about living with chronic illnesses through print and public speaking engagements. Accomplishments Life as a Zebra Foundation became a domestic, nonprofit foundation on November 8, 2012. The Life as a Zebra Foundation as raised nearly $70,000 for invisible illness awareness, education, and research in the three years since its establishment. The Life as a Zebra Foundation spearheaded the adoption of a resolution for Invisible Illness Awareness Week in the state of Michigan, held May 25-31, 2014. In June of 2014, members of the Life as a Zebra Foundation board traveled to Washington, D.C.
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