Annual Report Te Pūrongo ā-Tau CCS Disability Action Manawatu/Horowhenua Inc 2018/19 In an ever-changing world, the focus of CCS Disability Action continues to be one of positive social change. This can be from actions as straightforward as getting our language right to recognising and sponsoring disabled leadership, advocating for physical community change or supporting positive action that showcases the value of all New Zealand citizens. Contents

Local Advisory Committee report 3

Local Executive Committee report 4

Regional Representative’s report 5

General Manager’s report 6

Our services 7

Our stories 9

Financial summary 12

Our people 15

Our supporters 16

Discover the difference we make in people’s lives across the region.

Get in touch Manawatu/Horowhenua (06) 357 2119 or 0800 227 2255 @ [email protected] 248 Broadway Avenue, 4414 PO Box 143, Palmerston North 4440 www.Facebook.com/ccsDisabilityAction www.Twitter.com/ccsDisabilityA http://nz.linkedin.com/company/ccs-disability-action www.ccsDisabilityAction.org.nz/ Registered Charity Number: CC31190

2 CCS DISABILITY ACTION Local Advisory Committee report Busy and challenging year

Kia Ora Koutou, the disabled community on issues that may hinder their accessibility. IT’S MY PLEASURE writing this report on behalf of the Local Advisory Committee We are also hoping we can continue (LAC) of CCS Disability Action Manawatu encourage new members to join the LAC Horowhenua Inc. This past year has been and create a stronger network within extremely busy with the Disability our region. Support Services (DSS) System Transformation pilot up and running I would like acknowledge and thank: in the Mid-Central area since October 2018. I would like to acknowledge the • Janine Hoete-Thornton, General changes and challenges the Manawatu Manager Central Region and Jude Horowhenua branch has undertaken over Stephenson, Service Manager for their this past year, their dedication and hard dedication towards the branch. • Pru McLaren, Regional Representative, work does not go unnoticed. for her endless support. Some of the highlights from 2018/2019 for • May Ioane, our dedicated Executive the LAC have included learning about the Assistant, for her tireless work in keeping new DSS System and how it may affect everyone informed of the information us, participating in National Governance and events in our region. meetings and celebrating the International • My fellow LAC members for their Day of Persons with Disabilities. time, commitment and dedication to supporting the disabled community For the upcoming year, we want to be within our region. working towards a more accessible Palmerston North City for disabled people now and into the future. We are still working alongside Palmerston North City Council to look at kerbing in the Central Greg O’Donnell Business District and seek feedback from Local Advisory Committee Chair

Highlights for the LAC include learning about the DSS System.

INCLUDING ALL PEOPLE 3 ANNUAL REPORT 2018/19

Local Executive Committee report

THE BRANCH HAS not been able to form The transformation prototype in the an LEC, so the Board has continued to mid-central region is still in its infancy use the Finance, Audit, and Risk (FAR) stages and its implementation has not sub-committee to act as the Branch taken place without significant issues LEC, chaired by A’asa Sanerivi. As A’asa and challenges. We have observed resigned from the Board recently, I am new players in the “market,” different writing this report on his behalf. pricing arrangements, changes in referral patterns and individual decisions made The accounting function for the Branch by Connectors having a direct impact has transitioned from being outsourced to on our work. Kiistone to being provided internally by the This coming year the Branch is again Regional Business Support team led by budgeting for a surplus which is a Mike Keyworth. positive but challenging target given Despite all the challenges of the the uncertainty in the region. Craig’s Mid-central prototype for Sector Investments have continued to perform well increasing by 8.25% over Transformation, the Branch has performed the last year. well financially and this is a credit to the leadership of the Service Manager, Jude Pru McLaren Regional Representative, Stephenson and the work of the staff. An Janine Hoete-Thornton General Manager, operational budget surplus is a significant Jude Stephenson Service Manager, and achievement in these very difficult times. the staff are thanked for the delivery of services and the way they have worked in During the year, the Branch has taken a challenging environment. I wish them all responsibility for the service operation well for the year ahead. of the Branch. Staff are employed in Whanganui but their operation is managed and coordinated by the Manawatu Horowhenua Branch. This has assisted the organisation to retain its presence in Whanganui and the commitment of the Manawatu Horowhenua team to assist this, is Dairne Kirton appreciated by the National Board. National President

4 CCS DISABILITY ACTION Regional Representative’s report

Tēnā koutou katoa. world, I wish David all the very best for the next part of his life’s journey. 2018/2019 HAS BEEN a year of significant national projects, including I would like to thank Janine Hoete- refreshing Te Puāwaitanga, reviewing our Thornton our Central Region General Strategic Priorities, our Maori Disability Manager, for her leadership and Framework, Disability Leadership acknowledge every one of our amazing Framework and all business systems to staff, who do our wonderful work. Huge achieve national consistency. thanks to Jude Stephenson, Branch Service Manager and her team for Representatives of our branch all the work they are doing within the membership and committees have Transformation sector. attended finance, business and governance forums, being updated with Thank you to all past and present the business of the organisation, the members of the Local Advisory sector trends and provide that all important Committee, the Local Executive membership voice and local feedback. Committee and the Finance, Audit and Risk Committee. Your dedication, Our membership voice is critical to ensure expertise and time commitment to the CCS Disability Action continues to be Manawatu Horowhenua Branch is truly politically active, provide quality, relevant appreciated. Thank you to our many support and information to the people supporters, ambassadors and donors we serve, their families, whānau and whose generous grants and donations the community. make our work possible.

David Matthews will step down from Whakawhetai ki a koe. his role as Chief Executive on June 30, Thank you with appreciation and gratitude. 2020. He will be greatly missed. David has worked tirelessly for CCS Disability Action for nearly 20 years, being our Chief Executive for the last seven. David has led our organisation through enormous change as we approach the full implementation of the transformation of the disability sector, Pru McLaren he leaves on the front foot for a brave new Regional Representative

INCLUDING ALL PEOPLE 5 ANNUAL REPORT 2018/19

General Manager’s report Celebrating our achievements

BUSY AS WE all are, it’s important to take with this year including Mana Whaikaha, time to celebrate what’s been achieved. our local providers in the Mid-Central Our annual report preparation time gives area, and other important local us a moment to reflect on how we’ve been organisations such as, Food Together, able to support disabled people, their Salvation Army, SPCA, St Johns families and our local community in a way Opportunity Shop and ZILCH Free Food that is meaningful. Outlet, just to name a few.

The Disability Sector as we know it is in We continue to build on our presence the midst of change with being nearly a and valued reputation in the Manawatu year into the System Transformation. Our Horowhenua area and I would like to branch is fully involved and embracing thank all those who have supported us: this change that ensures disabled people have full choice and control, and are in the • People we support and their families. driver’s seat directing us on how they want • Our Local Advisory and Local to be supported. Executive Committees for their guidance and support. Over the past year our staff have been • Our staff who have continued to working with an increasing number of work tirelessly alongside our Service people with intensive support needs, Manager, Jude Stephenson, who has including providing bespoke services shown amazing leadership. for some of the young people. We have • Volunteers’, funders and sponsors. developed a number of collaborative • Our branch members. arrangements and partnerships with other • Our Regional Representative, Pru agencies in the community and, have also McLaren who continues to keep us been able to provide a unique connector connected both locally and nationally. service that ensures people have choice over who works alongside them.

We continue to support Karanga Maha (Many Voices) Kaupapa and constantly look for ways to grow and develop.

I’d like to take a moment to pay tribute to Janine Hoete-Thornton the many organisations we have worked General Manager Central Region

6 CCS DISABILITY ACTION Our services CCS Disability Action is New Zealand’s largest pan disability support and advocacy organisation. We work in partnership with disabled people, their families and whānau to have choice and control in their lives. Below are the range of services and supports we offer our local community.

THE MANAWATU HOROWHENUA small communities along both the East branch has again provided services and West Coasts. throughout the Mid-Central Region. The branch continues to pride itself on Our team supported 202 people this year supporting isolated rural communities to through the provision of 26,694 hours of ensure no one misses out, we don’t ask support. This included 47 young people and people to come to us, we take the service their families. This year we also entered to the people. We have been in action into new contract arrangements with ACC throughout the Tararua District and to provide a range of support needs. The branch has strengthened its work and relationships in the Foster Care space. We are proud to be able to offer stability and care for young people that require high levels of support to remain safe and active in their community. We are extremely grateful to have the support of local Landlords to make this piece of work achievable.

Support and advocacy was provided for a wide range of needs including accessing government and community services,

Our team supported 202 people this year through 26,694 hours of support. This included 47 young people and their families.

INCLUDING ALL PEOPLE 7 ANNUAL REPORT 2018/19

inclusive recreation, leisure activities and The lack of housing available in the plans to support individual’s specific needs Palmerston North area has reached to live a good life of choice. Our work has levels never experienced before. needed to respond to the growing trend of Supporting people to find appropriate and more complex situations for families that affordable housing is now an everyday require high levels of support. activity for staff.

System Transformation With much anticipation we welcomed We have actively engaged with and and joined the launch of the Mid-Central supported Mana Whaikaha on a prototype for the transformed disability number of levels and continue to support system, Mana Whaikaha, on hold roles on both a National and Monday 1st October 2018. Regional level to support the ongoing development of the prototype. This cabinet response to Disabled people and whānau calling for change The past 8 months has not been is based on the Enabling Good Lives without its challenges as Mana (EGL) vision and principles. The Whaikaha finds its way with developing prototype with a ‘Try, Learn and Adjust’ new systems and meeting the approach is now 8 months into its 2 demands of a constant wait list. We year development. Findings and advice have been privileged to support a will be provided to Cabinet on the final number of people to plan and engage model later in 2020 when decisions will with Mana Whaikaha to access their be reached in terms of expanding the funding and purchase their supports as transformed system beyond the they choose. Mid-Central DHB region.

We were delighted to gain a Flexible remain the decision makers throughout Disability Support (FDS) Contract with the relationship. This has meant that the Ministry of Health (MOH) that has people can identify what support makes a removed constraints that previous MOH difference to them without needing to ‘fit’ a contracts placed on providers to work in traditionally funded box. ways that reflected EGL principals. The FDS Contract provides a pathway that Please contact us if you wish to explore people can engage with us to purchase how your supports and funding could look their supports and other services as differently, or for further information on they choose, the person and or family how to access the new system.

Support and advocacy was provided for a wide range of needs including accessing government and community services, inclusive recreation and leisure activities.

8 CCS DISABILITY ACTION Our stories We are privileged to share the stories of the people who we work alongside. Each person shapes our role in their lives, which is to support them to achieve their goals, vision and ambitions.

A dream was born

THE TIME HAD come for Jayden to live his own life as a young adult. His parents, with support of family and friends always endeavoured to give Jayden the best possible life growing up.

In February 2014, several families met to discuss the future of their then, teenage children – Where would they live in future years? What would their lives look like? – And a Dream was born; “To live in the Community as other young people do in a flatting situation”. Jayden and his friend Nikki.

In 2016, Jayden’s parents and a friend’s Jayden now has his own personal budget parents approached CCS Disability through Mana Whaikaha. The Enabling Action and shared “the Dream” and the Good Lives (EGL) approach and his enthusiasm of all seated around the table, personal budget enables Jayden and his got the momentum of this dream going parents to be more flexible in providing again. However, there have been many support that’s needed to ensure flatting will challenges and barriers to work through, be successful. some of these take the form of finding the right house, negotiating a funding package A team of amazing people were employed and employing staff. and have been trained and now not only provide support but have created a “family In 2018, CCS Disability Action sourced style” environment within the flat. a house for Jayden and his friend Nikki to flat in. Modifications were made Three major milestones are happening to the house to suit their needs which within Jayden’s life this year. Going became another challenge they had to flatting, turning 21 and finishing College. overcome.Jayden moved into his flat He is currently in the process of with his friend Nikki in June 2019 and is transitioning from school and experiencing living the dream. life out in the community.

INCLUDING ALL PEOPLE 9 10 CCS DISABILITY ACTION Healthy living Moving cities and hardly has anybackpain.Leah is 12kgs, stoppedsome of hermedications as aresultshehaslost approximately Leah isveryproudofher efforts and as eatinghealthiermeals. and goesswimmingonceaweekaswell food choices.Leahwalks4kmeachday her goalsincludingexerciseandbetter supported Leahidentifywaystoachieve become healthier. CCSDisability Action unmotivated, Leahdecidedshewantedto Leah washavingbackpainandfeeling with herbirdandcat. lady wholivesindependentlyinPahiatua, IS ALEAH new community. in Manawatuandenjoyingtheir Evander andRachelhavesettled funding throughManaWhaikaha. to accessDisabilitySupportServices also actedasaConnectorforEvander his community. CCSDisability Action equipment supportingEvanderaccessto Fairey Family Trust providedfundingfor for entitlementsandassistance.HE to ParentandengagingwithWINZ connecting toagenciessuchasParent Disability Action providedsupportwith Through theUnder19Contract,CCS such ascot,strollerandhighchair. largeritemsofequipment any ofEvander’s be closer to family and were unable to bring mother RachelmovedfromChristchurchto EVANDER, NOW21monthsold,andhis ANNUAL REPORT 2018/19 bubbly enthusiastic51yearold

Evander and Rachel. and Evander and isseeing thebenefits. committed tocontinuing hernewlifestyle Leah enjoysswimming once aweek.

CCSDA PHOTOGRAPHY BY SCOTT BOARDMAN COLLECTIVE. CCSDA PHOTOGRAPHY BY SCOTT BOARDMAN COLLECTIVE. Building inclusive communities for “FootpathsFeet”andpedestrian Government and Agencies of 13organisationstolobbyNational CCS Disability Action joinedacoalition Accessible Streets to in2027. National rolloutfromWellington in2019 services acrossNewZealandwitha is plannedtocoverbus,trainandferry ticketing systemforpublictransport.It This isaprojectworkingonNational Project Next and challenges. continue toproducemanyopportunities both theDisabilitySectorand Access CONSULTATIONCHANGE AND in

District HealthBoardshavealsojoined. this year. CapitalCoastandWairarapa and PalmerstonNorthreadytoon-board have joinedwithPorirua,NewPlymouth , LowerHuttandUpper have beenopentopartneringwithus. Councils withintheCentralRegion AwareAccess about independently, isheard. hinder, disabledperson’s abilitytoget the UNCRDP statementtoprovide,not important tohaveavoiceensurethat legislative packageproposeditis devices. Withan“AccessibleStreets” e-scooters andothermicro-mobility component aroundlegislationfor safety. Conversationshadastrong INCLUDING ALL PEOPLE 11 ANNUAL REPORT 2018/19

Financial summary For the year ended 30 June 2019

Revenue: Our revenue was received from

Government contracts 81% Other revenue 1% Investments 10% Other contracts and grants 3% Funds raised by CCS DA 5%

Graph rounded to nearest percentage point

Summarised statement of comprehensive revenue and expense 2019 $000’s 2018 $000’s Our operating revenue was 1,673 1,170 Our expenditure was 1,577 1,156 Operating surplus/(deficit) before bequests, gains 96 14 on investments and gains on sale of assets

Bequests received - 210 Less social innovation fund contribution - (11) Realised and unrealised gain/(loss) on investments 103 27 TOTAL COMPREHENSIVE REVENUE AND EXPENSE 199 240

Summarised statement of changes in equity Opening Society Funds as at 1 July 3,100 2,860 Total comprehensive revenue and expense 199 240 CLOSING SOCIETY FUNDS AS AT 30 JUNE 3,299 3,100

12 CCS DISABILITY ACTION Expenditure: Our funds were spent on

Staff costs inc training & development 61% IT 3% Property inc furniture, fittings & equipment 4% Travel and accommodation 4% Programme costs 15% Other costs 12% Depreciation 1%

Graph rounded to nearest percentage point

Summarised statement of financial position 2019 $000’s 2018 $000’s Current assets 648 495 Non-current assets 2,894 2,733 Total assets 3,542 3,228

Current liabilities 243 128 Total liabilities 243 128

NET ASSETS 3,299 3,100

REPRESENTED BY: Society Funds 3,299 3,100

Summarised statement of cash flows Cashflows from operating activities 35 261 Cashflows from investing activities (80) (767) Opening cash and bank balances 403 909 TOTAL CASH AND BANK BALANCES 358 403

INCLUDING ALL PEOPLE 13 ANNUAL REPORT 2018/19

Notes to the financial summary of CCS Disability Action Manawatu/Horowhenua Inc

A SUMMARY OF the CCS Disability Action Manawatu/Horowhenua Incorporated (“the Some financial terms Society”) audited financial statements for the year ended 30 June 2019 is shown Current Assets are assets that are cash in the Financial Summary section of this or expected to be converted into cash annual report. The summary financial within 12 months. statements have been prepared in Non-Current Assets include assets accordance with PBE FRS-43 Summary where the cost is allocated over a Financial Statements. number of years, as well as investments. “The full financial statements have been Current Liabilities are bills that are due prepared in accordance with Tier 2 PBE to creditors, suppliers and employees. Accounting Standards as issued by the New Zealand External Reporting Board. Equity (Society Funds) is the The summary financial statements are residual interest in the assets of the presented in New Zealand dollars. organisation after deducting all the liabilities. It balances to the Net Assets. The amounts stated in these summary Net Cash Flows refers to the financial statements have been extracted difference between money going in from the full financial statements of the or out of the organisation. Society dated 14 October 2019, of which Cash Flow from Investing Activities an unqualified opinion was given by our is the change in cash position auditors, Crowe Horwath New Zealand resulting from the sale or purchase Audit Partnership. of assets and any gains (or losses) from investments. Copies of these are available from the Society. This summary has been Cash Flow from Operating Activities authorised by Janine Hoete-Thornton, are core business activities which General Manager on 14 October 2019 and provide the majority of an has not been audited. organisation’s cash flow. Operating Revenue is the money The summary financial statements do brought into an organisation. not include all disclosures provided in Operating Expenses is the ongoing the full financial statements and cannot cost for running the Society. be expected to provide as complete an Realised Gain is a gain resulting from understanding as provided by the full selling an asset at a price higher than financial statements of the Society. the original purchase price. The summarised financial statements Unrealised Gain is a profit position, should be read in conjunction with the resulting from any type of investment, statement of accounting policies and notes which has yet to be cashed in. to the full audited financial statements. Total Comprehensive Revenue and Expense is the result of all operations of the Society during the year.

14 CCS DISABILITY ACTION Our people CCS Disability Action is a membership-based organisation led by a National Board. Local governance committees, staff groups and local communities also guide our work. Here are just some of the key people who supported our work this financial year.

Local Advisory Committee Regional Finance Team • Greg O’Donnell • Gabriel Grigor • Peter Barker • Sophia He • Aaron Hillman • Kiistone Business Infrastructure Ltd • Bryan Skinner • Mark Fuller Regional HR • Maree Russell • Margaret Phillips • Rose Boddy Our Branch Staff Local Executive Committee • Jude Stephenson, Service Manager • A’asa Sanerivi • Sam Stephenson • Dairne Kirton • Ali Sigley • Simon Templeton • Sarah Scandle • Phillip Blundell • Katherine Denby • Scott Richards Regional Representative • Micaela O’Sullivan • Robyn Galbraith • Pru McLaren • Ebony Low • Tahnee Hoete-Thornton General Manager • Janine Hoete-Thornton Regional Management Team The year in numbers • Janine Hoete-Thornton ‘likes’ for our • Jude Stephenson 4,274 CCS Disability Action • Alison Goldby Facebook page. • Tilomai Solia • Raewyn Hailes visitors to our • Helen Cronin 26,770 ‘including all • Ange Field people’ blog site. • Mike Keyworth • Ross Livingstone people visited • May Ioane 100,908 our website www.ccsDisabilityAction.org.nz. • Rik Dixon • Rachael Burt

INCLUDING ALL PEOPLE 15 Our supporters CCS Disability Action is grateful for the support received from government and other agencies, individuals, life members, trusts and foundations during this year.

Trusts and Foundations Legacies • COGS Manawatu Horowhenua • Baker Estate ($1,500.00 operating costs) • Johnston Estate • Eastern & Central Community Trust • The Lion Foundation Life Members • NZ Lottery Grants Board ($18,000.00 • Leon Prenter operating costs) • Bryan Skinner • Mainland Foundation Ltd • Pub Charity Ltd • The Kingdom Foundation • Thomas George Macarthy Trust