6 – 9 JUNE 2012 , IRELAND

35th EUROPEAN CYSTIC FIBROSIS CONFERENCE

SECOND ANNOUNCEMENT

WWW.ECFS.EU/DUBLIN2012 President, ECFS Elborn Stuart Kris De Boeck, BE Jian-Min Chen, FR Teresa Casals, ES Judy Bradley, UK Scott Bell, AU Janice Abbott, UK COMMITTEE SCIENTIFIC David Sheppard, UK Su Madge, UK Manfred Ballmann, DE Barry Plant, IE Ed McKone, IE Gerry McElvaney, IE Stuart Elborn, UK STEERING GROUP COMMITTEES Fibrosis Conference! Fibrosis Cystic European 35th the to welcome warm very a Weextend visit. to city exciting and enjoyable an Dublin makes hospitality world friendly and the charm Irish with famous combined This bars. and clubs centres, restaurants, shopping new have with areas restored, and historical rejuvenated many been past, recent the In do. and see cosmopolitancity, steeped inhistory and tradition, with plenty to Dublin is one of Europe’s most popular destinations. It is a vibrant, field. the in colleagues with contacts renewing or great making for a opportunity and platform social a provide also will We lectures. present to invited fibrosis cystic in workshops, experts and international with symposia sessions, quality plenary high a of programme expect can You teams. clinical and scientific together andbring priorities these reflect will The programme practice. clinical daily into knowledge latest the of translation facilitate and science, applied and basic best the of discussion the for forum a provide to is for conference this of objective The facilities all with Dublin of city nearby. the attractions tourist and networking of heart the in located is CCD The venue. event and conference international purpose-built class world new Ireland‘s (CCD), Dublin Centre Convention the at place take will which Conference, Fibrosis Cystic European 35th the to you invite to pleasure great a is It Colleagues, and Friends Dear CONFERENCE ECFS 35TH THE TO INVITATION Conference Vice-President Ed McKone WELCOME MESSAGE/ORGANISATION WELCOME

Stuart Elborn Vincent Gulmans, NL Lutz Goldbeck, DE Sabina Gallati, CH Charles Gallagher, IE Luis Galietta, IT Juliet Foweraker, UK Michael Fayon, FR Isabelle Fajac, FR Gerd Döring, DE Lieven Dupont, BE Marie des Georges, FR Karl Kunzelmann, DE Helle Krogh Johansen,DK Ellen Julie Hunstad, NO Martin Hug, DE Lena Hjelte, SE Helge Hebestreit, DE Valerie Hall, UK Conference Vice-President Plant Barry Conference President McElvaney Gerry Michael Wilschanski, IL Helen Watson, UK Henkjan Verkade, NL Burkhard Tümmler, DE Clifford Taggart, UK Giovanni Taccetti, IT Manfred Stuhrmann, DE Alan Smyth, UK Ursula Seidler, DE Jean-Marc Rolain, FR Concepción Prados, ES Helen Parrott, UK Hanne Olesen, DK Philip Murphy, IE Michael Mahony, IE Irene Maguire, IE Anders Lindblad, SE Gary Latchford, UK Gerry McElvaney The ECFS has played an invaluable role in guiding progress in CF services in Ireland in in Ireland in services CF in progress guiding in role invaluable an played has ECFS The developments. related and crucial these a on plays Association our advising in clinicians, role CF leading includes which CFAI Medical the The of Council collaboration. Scientific and international through particular in CF, in on Ireland in research clinicians clinical of participation increasing the is development exciting further A progress. this of example an also is 2011 CF in for screening newborn of introduction The care. CF for vital teams the in CF multidisciplinary investment concomitant specialised and of Ireland in centres development population the major been around has centres progress this of indicator important An been services. improve to government have the working with and issues there highlight to together years coming clinicians and recent CF with people of In result parents, a as about come time. has This Ireland. in exciting services CF an improve to strides at significant place takes conference The Dublin. of centre cultural and historic the near Liffey, river the of quays north the on situated perfectly is It Ireland. in facility conference large best the as recognised widely is Dublin, in Centre Convention the venue, The Ireland. Dublin, in ECFSConference 2012 the hosting in involved be to (CFAI) honoured is Ireland of Association Fibrosis Cystic The DUBLIN TO WELCOME Chairperson oftheCFAI John Coleman look much very We Dublin. in welcome. Irish traditional a held providing and 2012 was June in Dublin in you greeting to conference forward the time last the of anniversary CFAI20th the the of and anniversary 50th the with coincides ECFS conference 2012 The Ireland. for important particularly are developments scientific and medical short, In gene. CF modified the carry 19 in 1 and people 4.7m under just of population a with Ireland in CF with people 1200 are There Europe. of rest the or States United the of particular of is support of has Ireland the CF incidence highest in the world, with three times the around incidence Such reports. Ireland. in CF of incidence high consensus very the given its importance through standards service on guidance and publications its conferences, annual its through particularly years, recent web: www.cfireland.ie E-mail: [email protected] Fax: +35314962201 Tel: +35314962433 Dublin 6,Ireland Road 24 Lower Rathmines CF House Association ofIreland The Cystic Fibrosis COMMITTEE LIAISON LOCAL

Ed McKone E-mail: [email protected] Fax: +4586676290 Tel.: +4586676260 Denmark DK-7470 Karup J. Kastanieparken 7 Fibrosis Society European Cystic ORGANISER CONFERENCE Chair oftheMedicalandScientificCouncil Plant Barry

Barry Plant 242 603 24 30 +49 Exhibition: Sponsoring/ Phone 336 603 24 30 +49 Phone Hotel: 338 603 24 30 +49 Registration: Phone Fax: [email protected] E-mail: D-10709 Berlin Kurfürstendamm 71 c/o K.I.T. GroupGmbH Secretariat Conference ECFS2012 SECRETARIAT CONFERENCE +49 30 24 603 200 603 24 30 +49

John Coleman CONFERENCE PROGRAMME

PRE-CONFERENCE PROGRAMME AND MEETINGS

TUESDAY 5 JUNE 2012 THURSDAY 7 JUNE 2012 ECFS Board Meeting* CF Pharmacists Meeting Physiotherapy Short Course: Advanced Airway Clearance Techniques** CFW Meetings with Interests Groups* ECFS CTN Standardisation Committee Meeting* WEDNESDAY 6 JUNE 2012 ECFS Patient Registry Steering Group Meeting* CF Ageing Group Meeting ECFS Patient Registry Contributors Meeting CFE/CFAI Symposium: Title to be announced ECFS Annual General Meeting FRIDAY 8 JUNE 2012 ECFS CTN Steering Committee Meeting* ECFS Diagnostic Network Working Group Meeting ECFS CTN Training and Development: Title to be announced* ECORN-CF Quality Round Table Meeting ECFS Exercise Working Group Meeting* European Gene Modifier Group Meeting ECFS Neonatal Screening Working Group Journal of CF Editorial Board Meeting* ECFS Patient Registry Executive Committee Meeting* European Cystic Fibrosis Nutrition Group SATURDAY 9 JUNE 2012 European Psychosocial Special Interest Group (EPSIG) Meeting** ECFS Scientific Committee Meeting - Lisbon 2013* International Nurse Specialist Group/CF Meeting** ECFS Lung Microbiome Working Group Meeting* International Physiotherapy Group for Cystic Fibrosis (IPG/CF) Annual General Meeting* Physiotherapy Case Presentations Physiotherapy Short Course: Advanced Airway Clearance Techniques** * closed meeting ** extra registration required The Meetings are subject to change.

CONFERENCE PROGRAMME OVERVIEW

WEDNESDAY 6 JUNE 2012 15:00 – 16:30 Workshops 15:00 – 16:30 Industry Satellite Symposium Psychosocial | Basic Science | Gastroenterology/Liver 17:00 – 18:00 ECFS Annual General Meeting Disease/Endocrinology/Nutrition | Epidemiology | 18:30 – 20:00 Keynote Lecture/Opening Ceremony Clinical Trials/New Therapies 20:00 – 21:30 Welcome Reception 16:30 – 17:00 Coffee Break 17:00 – 18:30 Workshops Genetics/Screening/Diagnosis | Microbiology/Antibiotics | THURSDAY 7 JUNE 2012 Physiotherapy | Pulmonology | Nursing 07:15 – 08:15 Round Tables 08:30 – 10:00 Symposia New Genetic Diagnostic and Prognostic Tools | Where to FRIDAY 8 JUNE 2012 next with the EU Registry? | New Insights into the 07:15 – 08:15 Round Tables Microbiology of the CF Lung | Exercise from Testing to 07:15 – 08:15 Industry Satellite Symposium Lifestyle | Emotional Well-Being | Reactive Airways 08:30 – 10:00 Symposia Disease in CF Novel Approaches to P. Aeruginosa Target Identification, 09:00 – 18:00 Exhibition Validation and Inhibition | Basic Ion Transport Defects in CF | 10:00 – 10:30 Coffee Break Clinical Implications of Inflammation Remodelling | Allied 10:30 – 12:00 Symposia Health Professionals Symposium | Lipid Signaling-Bioactive Managing Complex Infections in Advanced Lung Disease | Lipids | Grand Rounds in Pulmonary Disease Difficult Nutritional Dilemmas | Mechanisms of 09:00 – 18:00 Exhibition Inflammation | Outcome Measures for Clinical Trials | 10:00 – 10:30 Coffee Break Long Term Consequences of Improved CF Care | 10:30 – 12:00 Symposia Hot Topics in Neonatal Screening Assisted Reproductive Medicine for CF Patients: Partner 12:00 – 15:00 Lunch Testing and Preimplantation Diagnostics | Rescue Strategies | 12:30 – 14:00 Industry Satellite Symposia Taking Care of the CF Patient after Lung Transplantation | 14:00 – 15:00 Guided Poster Tours and Posters for Discussion The Clinical Microbiology Laboratory and CF Care | E-Health | Enhancing CFTR Functions-What‘s in the Pipeline? CONFERENCE PROGRAMME PARTICIPATION

CALL FOR ABSTRACTS REGISTRATION FEES Abstract submissions for oral or poster presentation are encouraged particularly The last day for pre-registrations is June 3rd, 2012. with relevance to the Programme Workshops. Abstracts can only be submitted via After this date, registrations can only be made on-site. the Conference website where further instructions and details are included. The closing date for receipt of Abstracts is the 20th of January 2012. Details for the Early Standard Late submission of Case Presentations are also available on the Conference website. ≤ March 22 ≤ May 16 ≥ May 17 Medical/Scientific/ Other CME CREDITS An application is being made for Continuing Medical Educational (CME) credits. ECFS Member € 495 € 555 € 605 The number of approved credits being offered will appear on the website and in Non-ECFS Member € 615 € 675 € 725 the Final Programme. ECFS 2012 Registration & Membership Package for new members only € 600 € 660 € 710 REGISTRATION AND HOTEL ACCOMMODATION Allied Health Professional All registrations and accommodation bookings must be submitted online through ECFS Member € 270 € 330 € 380 the Conference website at www.ecfs.eu/dublin2012. These services are availa- Non-ECFS Member € 390 € 450 € 500 ble online from now on. All registration and hotel details, such as deadlines, terms and conditions, are also posted on the website. ECFS 2012 Registration & Membership Package for new members only € 375 € 435 € 485 Students Doctoral and PhD Students € 100 € 100 € 150 ECFS 2012 Registration & Membership Package for new members only € 205 € 205 € 255 Round Tables* - All (except Students) € 45 € 45 - Students € 20 € 20 Physiotherapy Short Course* 5 - 6 June € 270 € 270 12:00 – 15:00 Lunch Pre-Conference Meetings - 6 June 12:30 – 14:30 Industry Satellite Symposium European Psychosocial Interest Group Meeting € 25 € 25 € 25 14:00 – 15:00 Guided Poster Tours and Posters for Discussion International Nurse Specialist Group/CF Meeting € 25 € 25 € 25 15:00 – 16:30 Workshops Pulmonology | Gastroenterology/Liver Disease/ * Registration Deadline: 16 May 2012 Endocrinology/Nutrition | Basic Science | Microbiology/Antibiotics | Physiotherapy Delegates’ registration includes: admission to the Scientific Programme 16:30 – 17:00 Coffee Break (including the Opening & Closing Ceremony), admission to the Exhibition 17:00 – 18:30 Workshops and Poster Areas, public transportation ticket (Luas 4 days pass) and Late Breaking Science | Pulmonology | Genetics/Newborn Conference Bag containing Programme and Abstract Book. Screening/Diagnosis | Nursing/Psychosocial Issues

SATURDAY 9 JUNE 2012 ROUND TABLES 09:00 – 10:30 Symposia There will be a choice of Round Table Discussions on 7th and 8th June Liver Disease and CF | Exacerbations in CF: Optimising 2012. More details can be found on the Conference website: Outcomes | Treating Fungal Disease in CF | Genetic http://www.ecfs.eu/dublin2012/roundtables. Epidemiology of CF Lung Disease | Practical Issues in End of Life Care | Use of Technological Adjuncts for → This year a reduced fee of € 20 is offered to Doctoral and PhD students. Airway Clearance 09:00 – 13:00 Exhibition TRADE EXHIBITION 11:00 – 12:30 Plenary The Conference will accommodate and welcome commercial exhibitions. 12:30 – 13:00 Closing Ceremony The exhibition area will be located adjacent to the meeting facilities, and will include stations for coffee and other refreshments. For companies interested in sponsorship and exhibition opportunities, please contact [email protected]

A Number of Oral Poster Presentations sessions might be added after the Abstract review.

The Conference Programme is subject to change. INFORMATION AROUND THE CONFERENCE

NEW THIS YEAR!!! ECFS PARTY AT THE GUINNESS STOREHOUSE! CONFERENCE LANGUAGE The Conference language will be English. This year, to give an even larger audience the chance to meet in a very informal atmosphere, the traditional ECFS Dinner is replaced by an ECFS Conference Party. CONFERENCE VENUE The Convention Centre Dublin (CCD) sits at the heart of Dublin’s transport hub with excellent air, road, rail and sea connections, meaning the CCD is only minutes from the airport, motorway network, Port Tunnel, rail stations and ferry terminals. Designed by Pritzker award-winning Irish-born architect Kevin Roche, the CCD has quickly become a landmark building. Its stunning design includes a unique glass- fronted atrium running the full height of the building, which gives visitors panora- mic views of the , Dublin city centre and the Wicklow mountains.

It is the world’s first carbon neutral convention centre, committed to long-term environmental sustainability.

THE CONVENTION CENTRE DUBLIN North Wall Quay NEW CONCEPT, NEW PRICE! Dublin 1 The ECFS Conference Party will take place in the world famous Guinness Ireland Storehouse, one of the most iconic venues of Dublin. Experience the sunset over www.theccd.ie the Irish capital from the 30m high Gravity Bar while enjoying the house beer! WiFi access for the delegates has been arranged in the Conference Venue. Chill out with your friends and colleagues in a genuine Irish Pub environment - visit the dance floor and enjoy a lovely evening with traditional Irish “craic”.

GUINNESS STOREHOUSE St James‘s Gate, Dublin 8

The nearest tram Station, James’ s, is 750m from the venue. A return shuttle service will run at 20 minute intervals between the Guinness Storehouse, Trinity College, and the CCD from 23:00.

Date: Friday 8 June 2012 Begin: 21:00 End: 01:30

Please note that some snacks will be offered but this is not replacing a dinner. Price: € 35 regular / € 25 student price

PLEASE MARK IN YOUR CALENDAR

CONFERENCE DATES: 6 – 9 JUNE 2012 ABSTRACT SUBMISSION DEADLINE: 20 JANUARY 2012 ECFS TRAVEL GRANTS / YOUNG INVESTIGATOR AWARDS As part of the Registration process, there is the possibility of applying for travel NOTIFICATION OF ABSTRACT ACCEPTANCE: 14 MARCH 2012 grants and/or young investigator awards for young European researchers under DEADLINE FOR EARLY REGISTRATION: 22 MARCH 2012 the age of 35 as of 20 January 2012. Applicants must submit an abstract to the conference to be considered eligible, and must be registered for a PhD or Post- DEADLINE FOR STANDARD REGISTRATION: 16 MAY 2012 Graduate Degree, or graduated within 12 months from the application date. Applications must be sent by February, 10th. TRANSPORTATION

ACCESS FACILITIES

SAVE UP TO 20% OR $50 ON AER LINGUS FLIGHTS TO IRELAND Aer Lingus is delighted to be appointed as Official Carrier of the 35th European Cystic Fibrosis Conference. Aer Lingus slogan is ‘’Great Fare, Great Care’’ and we look forward to welcoming delegates onboard our flights to Ireland next June.

NEW! EARLY BIRD DISCOUNT: 20% OR $50 OFF FROM 22 FEBRUARY TILL 22 MARCH 2012

Delegates who book their flights between 22 February & 22 March 2012 will be able to avail of 20% discount off their airfare on short haul routes or $50 (return) off their long haul flights. These discounts apply to all seats and all routes during the early bird booking period.

To take advantage of this exclusive offer: Step 1: Log onto http://www.aerlingus.com/ecfs Step 2: Select your route to Dublin Step 3: Ensure Promo Code box is ticked, with promo code ECFSEUR23 – for Europe and UK shorthaul routes UKECFSUSA23 – for transatlantic longhaul routes Step 4: Enjoy your flight The airport is conveniently located 10km north of Dublin city centre, with excellent roads links to The CCD, only 20 minutes away via the Port Tunnel, which brings visitors directly into the Spencer Dock area. Aer Lingus operates direct flights to Dublin from 22 countries: • Delegates from the UK can choose from up to 38 daily services The CCD is easily accessible by road, given its city centre location and operating from 10 airports across the UK. proximity to Ireland’s motorway network. It is only minutes from the • European Delegates can avail of Aer Lingus services from 20 countries Dublin Port Tunnel with connections to the upgraded M50 motorway including Austria, Belgium, Bulgaria, Croatia, Czech Republic, Finland, and Dublin Airport. It is also next to the new Samuel Beckett Bridge France, Germany, Greece, Hungary, Italy, Lithuania, Morocco, which spans the River Liffey, aiding access between the North and Netherlands, Poland, Portugal, Romania, Spain, Switzerland & Turkey. South of the city. • Delegates from North America can fly direct to Ireland with Aer Lingus The CCD has its own underground car park, and there are 1,600 spaces from Boston, Chicago, New York & Orlando or connect at those nearby in local car parks, as well as considerable on street ‘pay and gateways from over 50 cities across the US and Canada. display’ parking on North Wall Quay and adjoining roads. If you are using a satellite navigation system, please enter the coordinates Group Travel: Book a group of up to 25 persons online in an instant • The advantage of booking a group online at aerlingus.com is that the N 53 20 51.5 W 6 14 24.6 best available fares can be secured far in advance, and names do not need to be confirmed until 10 days pre-departure. The CCD is less than ten minutes from Dublin’s two mainline railway • The online booking tool on aerlingus.com can be accessed by stations (Connolly and Heuston) which serve all the major towns and selecting ‘Groups’ in the main booking engine or by clicking on the cities in Ireland. groups icon along the bottom of the homepage. • For larger groups quotations & queries please contact our Specialist Tram Network: the Luas runs directly behind The CCD, Group Reservations Teams located in 18 cities around the world or conveniently linking to downtown Dublin and to Connolly and Heuston email [email protected] rail stations. Stop: Spencer Dock

This Second Announcement has been printed on recycled paper. The Second Announcement is supported by: