To Donors 2018

AMERICAN FAMILY CHILDREN’S HOSPITAL Report to Donors 2018 Philanthropy at Work 6,786 Number of surgical procedures 41 111 13,319 Number of Number of Number of emergency pediatric licensed beds 3,932 room visits specialties Number of patient stays 8 Number of years in a row named Top 50 Children’s Hospital by US News and World Report What Is Your Legacy? At some point in our lives, we all think about our legacy – what we pass on to our children and to our community. The gifts to American Family Children’s Hospital recognized in this annual report reflect the legacy of many people for whom caring for sick children and their families is a core value. Each story in this book demonstrates how philanthropy has benefitted patients and their families in so many ways, including: patient and family support, care innovation LEADERSHIP TEAM (L to R) initiatives, child life, child health advocacy, UW kids cancer and pediatric research. BARBARA BYRNE, DNP, RN, PPCNP-BC Vice President, Clinical Operations These stories show how faculty and staff at American Family Children’s Hospital American Family Children’s Hospital provide remarkable care – care that blends science and state-of-the-art technology ELLEN WALD, MD with thoughtful attention to the emotional wellbeing and quality of life for all children and their families. Pediatrician-in-Chief American Family Children’s Hospital As we approach our centennial anniversary in 2020, we honor and recognize the legacy we’ve built. And we Chair, Department of Pediatrics are pleased to introduce the 1920 Society, which provides the opportunity to create an endowed, named UW School of Medicine and Public Health fund with the support of matching funds. With thoughtful stewardship of your gifts, we will ensure our legacy PETROS ANAGNOSTOPOULOS, MD, MBA of caring for children for another 100 years. Surgeon-in-Chief American Family Children’s Hospital On behalf of the Development Partners Advisory Board, thank you very much for your support. Professor and Chief, Division of Pediatric Cardiac Surgery Sincerely, Department of Surgery UW School of Medicine and Public Health DIANE HEATLEY, MD Chief Medical Officer American Family Children’s Hospital Jim Buchheim Professor, Pediatric Otolaryngology Chair, American Family Children’s Hospital, Development Partners Advisory Board UW School of Medicine and Public Health Vice President, Communications, American Family Insurance PHILANTHROPY TEAM NANCY FRANCISCO-WELKE DANIELLE KAMPS Vice President, Development UW Foundation Medical Advancement Group Development Partners Advisory Board Membership UW Foundation DANIEL ROSEN UW Foundation Jim Buchheim (Chair) John Flad (Emeritus Chair) Barry Richter (Vice Chair) Mark Tauscher COLLEEN FRASER Deb Archer Brad Fulton Victor Rodriguez Sarah Tauscher American Family LORI SCHULTZ Christine Bohnsak Justin Hart Jack Salzwedel Theran Welsh Children’s Hospital American Family Children’s Hospital Teri Bruns Jim Hegenbarth Jay Sekelsky JIM GILMORE Anna Burish Rich Lynch (Emeritus Chair) Rich Steffen American Family TOM YOUNG Shawn Carlin Gary Mecklenburg Tara Swalve Children’s Hospital American Family Children’s Hospital 1 Philanthropy at Work Dining In as a Family 292 Having a child in the hospital can instantly turn Providing meals means there’s one less thing for days a family’s world upside down. Not only are the parents to worry about that day. Family meals The longest familiar routines of life temporarily upended, but in also help make the hospital feel like home for kids inpatient stay* cases of lengthier hospitalizations, one parent may like Gio and his mom, Veronica, who travel from choose to stop working and the children’s hospital Rockford, Illinois for care. becomes a “home away from home.” Gio, who is 8, was born with short gut syndrome The emotional and financial burden of a long-term and has been in and out of the hospital since stay can be especially devastating, and family the day he was born. His hospitalizations are meals are just one of the ways American Family unpredictable and frequent. Veronica says, “We’re 5.7 Children’s Hospital makes sure each family’s an hour and a half away from family and friends so essential needs are met while their child is in it means a lot to have a meal like we would have days our care. made at home.” Gio adds with great enthusiasm, The average “I like carrots!” length of stay* Three evenings per week and one Sunday a 8,500 family meals are month, all inpatient families are invited to the served to parents and Children’s Hospital lobby to enjoy a home style siblings each year. meal. Volunteers serve 8,500 family meals to *FY2018 parents and siblings each year. Patient and Family Support American Family Children’s Hospital depends on charitable giving to create the most positive experience possible for children and families. Our Patient and Family Support Program, funded entirely by donations, helps ease stress by providing families with free catered evening meals and bagged lunches. Qualifying families may also receive gas cards to help with transportation costs or financial support to cover bills. 2 Philanthropy at Work *FY2018 Gio and his mom, Veronica, enjoy a family meal. 3 The Meinke Family - Ashlin, Vanessa, Jesse and Khalela - take Kellan’s favorite red dinosaur with them to keep him close to their hearts. 4 Philanthropy at Work Sweet Memories for Kellan’s Family From the time he was born on February 11, 2011, Kellan Meinke’s life was filled with many unknowns, including how long he would live. The Pediatric Palliative Care Program focuses Kellan’s family – parents Jesse and Vanessa, on children with serious and sisters Khalela and Ashlin – were devoted illnesses – curable or to making the most of their time with him, and incurable – with the goal the first five years of Kellan’s life were focused on of creating a care plan treatment. But when Vanessa noticed a change in that ensures optimal Kellan, the family looked to the Palliative Care Team quality of life. for guidance. “After his fifth birthday, he cried for the first time because he didn’t want to go to the hospital,” says Vanessa. “It was more important for him to be home with his sisters and his toys. It was subtle, The Comprehensive but he started to make his voice heard. He just Pediatric Pain Program didn’t want to do it anymore.” supports patients in With the help of the Palliative Care Team, Vanessa Kellan Meinke passed away at age 6 in August 2018. the hospital and in our and Jesse set new goals for Kellan’s care, focusing outpatient clinics who on his comfort and the family’s quality of life. to explain the changes in Kellan to his sisters, who are coping with severe were ages 8 and 9 at the time. chronic pain. “Palliative Care staff sat with us during the hardest times,” says Vanessa. “They had the difficult Despite feeling enormous grief and loss after losing conversations and helped us to think about our Kellan at just 6 years old, Vanessa says, “The goals as a family and to hear our child’s wishes. Palliative Care Team took this incredibly difficult Care Innovation time with Kellan’s illness progressing and made it Last year, the goal was to ask, ‘What is Kellan American Family Children’s Hospital magical and wonderful.” telling us?’ and let that guide us.” depends on charitable giving to Rather than focusing on Kellan’s limitations, the The Meinke Family is profoundly grateful to the create the most positive experience Palliative Care Team helped the Meinkes determine entire hospital care team. “The hospital staff cared possible for children and families. Our what was possible. That meant a week at Disney so well for us for so long, it’s not possible to talk Care Innovation Initiatives program, World and Universal Studios, a new puppy and about what a warrior and champion Kellan was supported entirely by donations, learning how to do blood draws and labs at home without talking about American Family Children’s ensures that patients’ desires for so there would be fewer trips to the hospital. It Hospital,” says Vanessa. “All of his wonderful days maximum comfort and quality of life and his beautiful story are because of the hospital.” also meant coaching Vanessa and Jesse on how are fulfilled. 5 Philanthropy at Work Tanner works with Physical Therapist Joe Collins as part of his recovery. 6 Philanthropy at Work Tanner’s Family Loves Child Life Tanner Kleist arrived at American Family Children’s Tanner would live, and the Child Life team also Hospital by Med Flight on April 19, 2018. The became an important part of his recovery. Child 9-year-old had been trampled by cattle. Physicians Life Specialists, including Callie and Amanda, in Dodgeville resuscitated him, but his liver had checked on him daily, providing distraction and been split in two. comfort during his 40 days in the hospital. His parents, Becki and Brian, arrived separately, Callie was there when Tanner got his stiches out; frightened and uncertain if their son would live. Amanda supported Tanner when his staples were removed. They kept Tanner busy, making “dirt” Child Life Specialist Courtney Beatty met the out of shaving cream and sand so that he could Kleists at the Emergency Room, making sure they play with his favorite farm toys. They worked with had a private place to wait and a glass of water. Becki and Brian to determine the most appropriate She was a comforting presence, providing updates way to explain to Tanner and his siblings what was and support to Becki and Brian, while the care going on. team worked to save their son.

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