<<

ASPEN, COLORADO JULY 22–24, 2012

5

5 INTRODUCTION

THE ASPEN CHILDREN’S FORUM is a partnership of the Aspen Institute and The Woodmark Group

Introduction 2 Welcome 3 Forum Overview 4 Scenario Thinking

The Aspen Institute mission is twofold: to foster values-based leadership, encouraging individuals to reflect on the ideals and ideas that define a good society, and to Program 6 Agenda Details provide a neutral and balanced venue for discussing and acting on critical issues. The 15 Children's Hospital Photo Exhibit Aspen Institute does this primarily in four ways: seminars, young-leader fellowships around the globe, policy programs, and public conferences and events. The Institute is based in Washington, DC, Aspen, CO, and on the Wye River on Maryland’s Eastern Speakers 17 Forum Speakers Shore and has an international network of partners. For more information, visit 20 Speaker Biographies www.aspeninstitute.org.

General Information 34 Honorary Co-chairs and Volunteer Hosts 35 Planning Group 36 The Woodmark Group Board of Directors Leading the advancement of to improve health for children everywhere 37 The Woodmark Group Participating Hospitals 38 Aspen Map The Woodmark Group is a not-for-profit organization whose members are 25 prominent 40 Sponsors children’s hospitals or independent foundations that support children’s hospitals in the United States and Canada. The hospitals and foundations created The Woodmark Group so that their development staff members could work collaboratively to lead the development of philanthropy to improve the health of children everywhere. Woodmark’s strategies to achieve these goals focus on improving practice in the art and science of development. Its members work to discover, share and implement best practices in fund-raising. Collaborative efforts are focused on two areas: fostering the culture of philanthropy in each hospital community by building major-gifts programs and maximizing the exchange of best practices among Woodmark members in all facets of the development practice.

2 THE ASPEN CHILDREN'S FORUM July 22–24, 2012 Aspen, Colorado Aspen, Colorado July 22–24, 2012 THE ASPEN CHILDREN'S FORUM 1 INTRODUCTION

Welcome Aspen Children’s Forum Overview

Welcome to the Aspen Children’s Forum. We are delighted that you are participating in this Over the course of two and a half days, Aspen Children’s Forum participants will be asked

INTRODUCTION important event. to imagine ways in which healthcare delivery, research, technology, public policy and popular culture can be harnessed to achieve the goal of advancing the health and well-being Recent decades have seen great progress in children’s health. This progress has been made of children. possible in large measure by the support of philanthropists, who have helped to provide the risk capital for pediatric research, participated in public-private partnerships to improve The plenary panels and smaller breakout sessions will be led by philanthropists, scientists, delivery of care and advocated for a healthcare system that takes into account the whole child. policy makers and healthcare practitioners, who will help map out a strategy for ensuring the well-being of infants, children and youth. Moderators will help to ground the conversations in Whether the advances made are sustained and built upon will depend on choices made— the day-to-day decision-making of those who would implement a “children-first” agenda. by societies, institutions and individuals. There are four program tracks with plenary and breakout sessions within each: Over the next two and a half days, we will hear from some of the most outstanding leaders in the many fields that affect children’s health and well-being. Participants will explore a TRACK 1 A CHILDREN-FIRST APPROACH TO DIAGNOSTICS AND THE DELIVERY OF CARE will variety of questions, including: What would the world look like if we were to put children examine breakthroughs in diagnostics and clinical care in a world in which we put children first. first? What are the social, economic and moral imperatives for doing so? How would we train the professionals who provide their healthcare and contribute to their well-being? TRACK 2 DISCOVERY: A CHILDREN-FIRST RESEARCH AGENDA will explore promising research What would our research priorities be? How would we prepare educators and caretakers and discoveries within reach. and support families of the chronically ill? What would our philanthropic, public and private sector investments look like? And, how would we collaborate across sectors toward this TRACK 3 POPULAR CULTURE AND HEALTHY LIVING: LEARNING, PLAY, SPORTS AND HEALTH common goal? OUTCOMES will speak to society’s approach to nutrition, sports, education and the habits of healthy living. This track will tweak the imagination and remind the audience of the impact of In addition to hearing panel presentations by cutting-edge thinkers in the various fields daily choices (or of having those choices limited). affecting children’s health, during our time together, we invite you to take part in a scenario planning exercise that imagines a world in which we put the health and well-being of children TRACK 4 FILLING THE GAPS IN POLICY AND PRACTICE will identify existing holes within the first—whether it be in setting research and development priorities, devising public policies healthcare system and highlight philanthropy’s role in advancing cross-sector partnerships to or adopting new approaches to the delivery of care. fill those gaps.

Now more than ever, we have a profound opportunity to come together and make child Within the first three tracks, scenario planning sessions will allow audience members to health a priority, and by doing so, advance the health and well-being of future generations. engage at a deeper level, helping to design and identify the choices necessary for a children-first world. We look forward to hearing from each of you. Together we can create a vision and strategy for putting children first.

Sincerely yours,

LESTER CROWN SUSAN PACKARD ORR Chairman, Henry Crown and Company Founder and CEO, Telosa Software Director, Ann & Robert H. Lurie Trustee, Lucile Packard Children’s Hospital Children’s Hospital of Chicago

2 THE ASPEN CHILDREN'S FORUM July 22–24, 2012 Aspen, Colorado Aspen, Colorado July 22–24, 2012 THE ASPEN CHILDREN'S FORUM 3 INTRODUCTION

Scenario Thinking at the Aspen Children's Forum

What if each of us holds the power to transform the future of children’s health and well-being GRASSROOTS RENEWAL is a world in which only basic, rudimentary federal healthcare

INTRODUCTION in North America? What if by thinking more imaginatively, expansively and collectively about coverage is in place for everyone, compelling local communities to design innovative grassroots how this future might play out, we could generate the very insights that will better position approaches and solutions to address the broader healthcare needs of the population. our society, our healthcare systems and, most importantly, our children to thrive in the decades to come? And what if we do this right here, right now, in Aspen? DOWNWARD SPIRAL is a world in which the economy continually struggles, forcing the federal government to make deep slashes to vital social supports—including basic healthcare During the Aspen Children’s Forum, you will have the opportunity to learn about and coverage. Safety net services start to disappear, the middle class shrinks and more and more use scenario thinking, a novel approach to strategic planning that enables organizations families are left without help in supporting their children. and individuals to imagine, influence and plan for a better future under varying societal circumstances. Scenario thinking motivates people to challenge the status quo by exploring The insights from these Forum conversations will be made available to a broader audience plausible yet divergent ways in which the future might play out. The process yields critical through a white paper that will be published later this year. Each of us, in our own way, then can new insights into how the world may evolve—particularly in regard to the issues that matter use these insights to inspire our work toward creating a better future for children. most. It helps organizations and engaged groups, such as philanthropists, identify new insights, strategies and opportunities to fund actions to help shape societal changes.

The scenario thinking process is designed to make explicit deeply held assumptions and beliefs, and to test those assumptions and beliefs against a set of possible future environments. It is important to note that scenarios are not predictions, nor do they offer solutions. Rather, they are creative platforms through which to discuss and imagine alternative future environments we might face.

One of the strengths of scenario thinking is that it enables exploration of pressing societal issues, such as children’s health, from the perspectives of multiple stakeholders. Given the complexity of children’s health issues, it is difficult for any one stakeholder group to find a positive way forward alone. Hence, the power here is in bringing about a collective conversation that holds all views as valid and valuable in discerning solutions.

With the support of the Lucile Packard for Children’s Health, a set of four compelling scenarios on the future of children’s health and well-being was created for this Children are the world's most valuable resource Aspen event: and its best hope for the future. COMPETING FOR THE FUTURE is a world in which the health status of many children improves —JOHN FITZGERALD KENNEDY dramatically as a result of a new era of innovation and economic growth that improves employment opportunities, quality of life and healthcare opportunities for an increasing number of families.

ONE VILLAGE is a world in which continued declines in key health indicators jolt governments and citizens into taking broader, collective responsibility for the health and well-being of all kids, and universal healthcare access is provided for every child.

4 THE ASPEN CHILDREN'S FORUM July 22–24, 2012 Aspen, Colorado Aspen, Colorado July 22–24, 2012 THE ASPEN CHILDREN'S FORUM 5 PROGRAM PROGRAM

Sunday, July 22 Monday, July 23 PROGRAM PROGRAM 5:00-6:00 PM OPENING PLENARY SESSION 7:00-8:00 AM BREAKFAST Paepcke Auditorium, Paepcke Memorial Building Barksdale Lobby, Doerr-Hosier Center

Co-chair Welcome 8:00 AM WELCOME AND INTRODUCTION TO AGENDA LESTER CROWN Chairman, Henry Crown and Company; McNulty Room, Doerr-Hosier Center Director, Ann & Robert H. Lurie Children’s Hospital of Chicago CLAUDIA A. LOONEY, FAHP, CFRE Senior Vice President, SUSAN PACKARD ORR Founder and CEO, Telosa Software; Development, Children’s Hospital ; Trustee, Lucile Packard Children’s Hospital Chair, The Woodmark Group Board of Directors Introduction to Scenario Thinking: 8:15-9:30 AM PLENARY SESSION Putting Children First—A Shared Commitment Scenario thinking is a powerful approach to helping organizations McNulty Room, Doerr-Hosier Center and individuals embrace, influence and plan for a better future. The Delivery of Care When Putting Children First Participants will be asked to imagine the four very different futures The evolution of the healthcare delivery system has profound for children’s health specifically created for this event. Over the implications for the health and well-being of children. Panelists will course of the Forum, attendees may choose to participate in highly highlight the various sources of change in the delivery of pediatric interactive breakout sessions designed to explore these scenarios care—from the opportunities offered by personalized medicine further—and to identify actionable philanthropic strategies that lead to the transition from the treatment of acute infections to the to a better future for children. management of chronic disease. What are the positive and negative PETER SCHWARTZ Co-founder, Global Business Network; effects of these changes? How would we organize the overall delivery Senior Vice President of Global Government Relations and system in a world in which we put children first? Strategic Planning, Salesforce PATRICK H. CONWAY, MD, MSc Chief Medical Officer and Director, 6:15-7:00 PM RECEPTION Office of Clinical Standards and Quality, Centers for Medicare and Medicaid Services, U.S. Department of Health and Human Services Barksdale Lobby, Doerr-Hosier Center NEAL HALFON, MD, MPH Director, UCLA Center for Healthier Children, 7:00 PM DINNER Families and Communities; Professor, Departments of Pediatrics, Health Sciences, and Policy Studies, UCLA McNulty Room, Doerr-Hosier Center JAMES MANDELL, MD CEO, Boston Children’s Hospital 8:00 PM SPECIAL KEYNOTE ADDRESS MODERATOR IRA FLATOW President, Host, Science Friday, NPR McNulty Room, Doerr-Hosier Center 9:30 AM BREAK The Voices of Those Putting Children First In a world of knowledge, innovation, technology and policy, award- 10:00-11:30 AM PLENARY SESSION winning playwright and actress Anna Deavere Smith will bring the conversation to the people involved. This one-woman show will McNulty Room, Doerr-Hosier Center feature the experiences of four real life characters—a child battling A Children-First Discovery Agenda: Predictive, Preventive cancer, a parent, a physician and an ethicist. Each vignette is the product of an interview the playwright conducted with the and Personalized Care person involved. Remarkable progress in pediatric research and discovery has led to major advances in children’s health, but there is still much work to ANNA DEAVERE SMITH Actress and Playwright be done. By highlighting past achievements and future discoveries INTRODUCTION JANE WALES Vice President, The Aspen Institute within reach, we can begin to see the immense impact that pediatric research can have on children and adults, both locally and globally. What would our overall research and development priorities be if we were to put children first?

SPECIAL ADDRESS ALAN E. GUTTMACHER, MD Director, National Institute of Child Health and Human Development

ALAN BERNSTEIN, OC, PhD, FRSC President and CEO, Canadian Institute for Advanced Research ALAN E. GUTTMACHER, MD JENNIFER L. HOWSE, PhD President, March of Dimes MODERATOR MARY HART Former Host, ; Trustee, Children’s Hospital Los Angeles

6 THEJuly ASPEN22–24, CHILDREN'S2011 FORUM THE ASPENJuly CHILDREN'S22–24, 2012 FORUMAspen, Aspen, Colorado Colorado Aspen, Colorado July 22–24, 2012 THE ASPEN CHILDREN'S FORUM 7 PROGRAMPROGRAM 45 AM-1:00 PM AM-1:00 45 11: 1 1:30 AM 8

THE ASPEN CHILDREN'S FORUM CHILDREN'S ASPEN THE Washington Co-founder, University; ReveraGen Biopharma George Biology, Systems Integrative of Department Chairman, Medicine, Children’s National Medical Center; Professor and Academic Affairs, Stanford University School of Medicine Medicine of School University Stanford Affairs, Academic for Dean Associate Senior and Dean Vice and Services, Newborn and Pregnancy for Center Johnson L. Ann B. and Charles the of Director and Health Sciences and Technology, Harvard Medical School Pediatrics of Professor J. Henderson Lawrence Hospital; Children’s SHOO K. LEE, MBBS, P MBBS, LEE, K. SHOO Booz Allen Hamilton Room, Koch Seminar Building and Treatment Prevention for Opportunities Birth—New Preterm AGENDA RESEARCH DISCOVERY: ACHILDREN-FIRST MODERATOR MD, P KOHANE, S. ISAAC P.P ERIC HOFFMAN, Hines Seminar Room, Building Kresge Delivered Is Way Care the Genomics—Changing DIAGNOSTICS AND THE DELIVERY OF CARE MODERATOR MD STEVENSON, DAVID K. MD, P RUBENS, E. CRAIG Seattle Children’sSeattle Stillbirth, and Prematurity Prevent to Alliance Global Health Research Health of Institutes Canadian Youth Health, and Child Development, Director, Clackamas County Community Health Community County Clackamas Director, Shriver B B prevention and treatment? and prevention for horizon the on opportunities new the are What births. preterm of treatment and prevention the in go to way along have still we earlier, much is viability of age the and babies, premature to care of delivery the in years 50 past the over breakthroughs numerous been have there While children. and infants of morbidity and mortality the on impact immense an has 37 weeks) (before birth Preterm advances? these with associated costs and benefits the are What adolescents? and children infants, to care of delivery the changing genome the of mapping the is How genetics. using response patient alter potentially and diseases to anticipate ability the of aresult as medicine pediatric in arevolution seeing We are OUT S N O I S S E S T U KO A E R REAK National Institute of Child Health and Human Development Human and Health Child of Institute National

BERTHA ALICIA MOSESON, MD, MPH MOSESON, ALICIA BERTHA MD GUTTMACHER, E. ALAN h D h Director, Research Center for Genetic Genetic for Center Research Director, D, FRCPC h h D D Harold K. Faber Professor of Pediatrics, Pediatrics, of Professor Faber K. Harold Co-founder and Executive Director, Chair, Informatics Program, Boston

Scientific Director, Institute of Human of Institute Director, Scientific July 22–24, 2012 22–24, July Director, Former Medical Eunice Kennedy

A spen, Colorado Colorado spen,

Aspen, Colorado Aspen,

J uly 22–24, 2012 22–24, uly President and CEO, The Hospital for Sick Children Sick for Hospital CEO, The and President International Studies at University Stanford Studies International for Institute Spogli Freeman the at Fellow Senior and Medicine, of School University Stanford at Pediatrics of Professor Society, and for children. for care of delivery and diagnostics improved with assist to actions possible and insights key identify to scenarios future alternative the explore will session this participants, with approach interactive an Using children? for care future to approaches grassroots local, possible or leadership federal more see we Will approach? a“children-first” achieving in philanthropists of role the is what And scenario? each in like look care of delivery the and diagnostics to approach a“children-first” would What Room,Kaufman Doerr-Hosier Center Care of Delivery the and Diagnostics to Approach A Children-First SCENARIO PLANNING MODERATOR MD, MPH PAUL WISE, H. STERLING K. SPEIRN DAVID RUBIN, MD, MSCE SeminarLauder Room, Koch Seminar Building Take? It Will Care—What Pediatric Quality to Access Equal Achieving PRACTICE AND POLICY IN GAPS THE FILLING MODERATOR DAVID ROCKWELL A. GIOIAGERARD FOSTER-SIMEON ED Stranahan Seminar Room, Koch Seminar Building Risks the and Benefits Play—The and Sports CULTURE HEALTHY AND LIVING POPULAR Program; Writer and Reporter, ESPN Reporter, and Writer Program; Program, Children’s National Medical Center Education and Recovery Outcome, Concussion Safe Director, and Hospital of Philadelphia Hospital all children receive the same access to high-quality care? high-quality to access same the receive children all that guarantees that system delivery ahealthcare create we can How America. North throughout children by received care of type and level the determine can that factors the among are ethnicity and race language, status, financial Geography, system. healthcare current our in care quality to access in disparities significant are There injury? of risk the reducing while children, among play informal and formal both encourage we can How shift? this of effects the are play. What child’s of formalization a witnessed have we years, the Over adults. and children among health enhanced and lifestyle active an between link aclear is There

MARY JO HADDAD, CM, LLD, MHS LLD, CM, HADDAD, JO MARY TOM FARREY , P Founder and CEO, Group Rockwell President and CEO, W.K. Kellogg Foundation CEO, W.K. and Kellogg President h President and CEO, U.S. Soccer Foundation Foundation CEO, U.S. and Soccer President D THE ASPEN CHILDREN'S FORUM CHILDREN'S THE ASPEN Chief, Division of Pediatric Neuropsychology, Neuropsychology, Pediatric of Division Chief, Richard E. Behrman Professor of Child Health Health Child of Professor Behrman E. Richard Senior Co-director, PolicyLab, The Children’s Children’s The PolicyLab, Co-director, Senior Director, Aspen Institute Sports and Society Society and Sports Institute Aspen Director,

c , BS

c

N

9

PROGRAM PROGRAM PROGRAM PROGRAM

1:00 PM LUNCH leading to better outcomes. How can we ensure that the evolving approaches to learning and education support children’s health PROGRAM PROGRAM McNulty Room, Doerr-Hosier Center and well-being? 2:00-2:45 PM PLENARY SESSION CARRIE MORGRIDGE Vice President, Morgridge Family Foundation McNulty Room, Doerr-Hosier Center DAVID A. WOLFE, PhD, ABPP RBC Chair in Children’s Mental Health, Centre for Addiction and Mental Health; Professor of Psychiatry Nutrition and Healthy Weight—Countering the and Psychology, University of Toronto Obesity Epidemic JULIE YOUNG President and CEO, Florida Virtual School Maintaining a healthy weight is an essential component of overall MODERATOR JEN HOLLERAN, MEd, MBA Executive Director, health and well-being during childhood, with beneficial long-term Startup:Education health effects. What are the underlying societal influences that have led to a dramatic increase in obesity rates in North America and much of the developed world, and what are the solutions? How FILLING THE GAPS IN POLICY AND PRACTICE can we instill healthy lifestyle habits, including healthy eating and physical activity, in children? The Danger All Around—Injuries and Environmental Hazards SHELLIE Y. PFOHL, MS Executive Director, President’s Council on Lauder Seminar Room, Koch Seminar Building Fitness, Sports and Nutrition Accidental injury and environmental hazards both have adverse STANLEY ZLOTKIN, CM, MD, PhD, FRCPC Vice President of Medical and effects on children’s health outcomes, and largely are preventable Academic Affairs, and Senior Scientist, Research Institute, Hospital through changes in policy and practice. What progress has been for Sick Children made in the prevention and treatment of injuries and in the control of environmental conditions that affect children’s health? What steps MODERATOR DWAYNE C. PROCTOR, PhD Director, Childhood need to be taken to increase child safety and to ensure that children Obesity Program, and Senior Program Officer, Robert Wood are not needlessly exposed to such hazards as air pollution and Johnson Foundation second-hand smoke, among many others? 2:45 PM BREAK MARTIN R. EICHELBERGER, MD Founder, Safe Kids Worldwide; Professor of Surgery and Pediatrics, George Washington University School of Medicine; Attending Surgeon, Children’s National 3:00-4:30 PM BREAKOUT SESSIONS Medical Center DIAGNOSTICS AND THE DELIVERY OF CARE FREDERICA P. PERERA, DrPH Director, Columbia Center for Children’s Environmental Health Improving Diagnostics and Delivery through MODERATOR CHRISTINA CHAMBERS, PhD, MPH Professor, Pediatrics and Technological Advances Family and Preventive Medicine, University of California San Diego Hines Seminar Room, Kresge Building Technological advances have a major impact on the quality and SCENARIO PLANNING flexibility of the delivery of healthcare—from the application of wireless technology in the diagnosis and monitoring of health A Children-First Research Agenda conditions to the benefits of digital records. What are some of Kaufman Room, Doerr-Hosier Center the latest technology breakthroughs, and how are they helping to advance the way in which care is delivered? What would a “children-first” research agenda look like in each scenario? And what is the role of philanthropists in achieving THOMAS G. MORRISON Senior Advisor, Leverage Health Solutions; a “children-first” approach? What are the key challenges and Co-founder, NaviNet opportunities for children’s research? How might additional WILLIAM NEW, MD, PhD Chairman and CEO, The Novent Group funding—and to which groups—assist a future research agenda? JAY PARKINSON, MD, MPH Co-founder, Sherpaa, The Future Well and Hello Health 4:30 PM TIME OFF MODERATOR IRA FLATOW President, Host, Science Friday, NPR 7:00 PM HOSPITAL-HOSTED DINNERS POPULAR CULTURE AND HEALTHY LIVING Innovative Education Models—How Will They Affect Children’s Health and Well-being? Booz Allen Hamilton Room, Koch Seminar Building There has been a profound increase in the ways in which infants and children learn in the home, in the playyard, online and in the classroom. New models are being tested, and many of them are

10 THEJuly ASPEN22–24, CHILDREN'S2011 FORUM THE ASPENJuly CHILDREN'S22–24, 2012 FORUMAspen, Aspen, Colorado Colorado Aspen, Colorado July 22–24, 2012 THE ASPEN CHILDREN'S FORUM 11 PROGRAMPROGRAM Tuesday, July24 :30-10:45 AM :00-9:15 AM AM :00-8:00 9 7 8 9 12 :15 AM

THE ASPEN CHILDREN'S FORUM CHILDREN'S ASPEN THE P Fellowships in Public Leadership, The Aspen Institute Aspen The Leadership, Public in Fellowships of Medicine and Health Sciences School University Washington George The Affairs, Academic for Dean Medical Center; Professor, Chair, of Department Pediatrics/Associate Booz Allen Hamilton Room, Koch Seminar Building The Promise of Genomics New Frontiers in Investigation— Scientific AGENDA RESEARCH DISCOVERY: ACHILDREN-FIRST MODERATOR P P.TIMOTHY SHRIVER, BATSHAW, MD L. MARK SeminarLauder Room, Koch Seminar Building Illness and Mental Delay Needs—Developmental Meeting Community DIAGNOSTICS AND THE DELIVERY OF CARE MODERATOR STERLING K. SPEIRN P P.TIMOTHY SHRIVER, and Health Outcomes Policy Determinants of a Child’s Well-being Room,McNulty Doerr-Hosier Center Barksdale Lobby, Doerr-Hosier Center MICKEY EDWARDSMICKEY Hospital of Philadelphia Hospital University of New Hampshire B B B learning disabilities and behavioral changed over disorders time? illness, mental of understanding our has How responsibility? this with associated opportunities and challenges the are what and healthcare, developmental and mental in hospitals children’s of role the is What communities. and families children, on impact a major have which of delay—both developmental and illness mental from suffering children help to schools, and clinics hospitals, as such children, serve that institutions various the on demand increasing an is There well-being. and health children’s of behalf on leverage of both to collaboration the underscore importance andin an effort partnerships cross-sector of models examine will session This need? health public unmet an meet to actors sector public and private with partnerships forging in play philanthropy can role What outcomes? health child and inputs policy between relationship the is What LENARY SESSION LENARY REAKOUT SESSIONS REAKOUT REAK REAKFAST

MADELINE BELL, JAN A. NISBET A. JAN , Vice President, Director, Institute-Rodel Aspen President and CEO, W.K. Kellogg Foundation CEO, W.K. and Kellogg President h h Chief Academic Officer, Children’s Officer, National Academic Chief D D Chairman and CEO, Special Olympics Olympics CEO, Special and Chairman Olympics CEO, Special and Chairman ,

P

h MS D Senior Vice Provost for Research, Research, for Provost Vice Senior President and COO, Children’s and President July 22–24, 2012 22–24, July

A spen, Colorado Colorado spen, Aspen, Colorado Aspen,

J uly 22–24, 2012 22–24, uly American Board of Pediatrics George Adkins Professor of Pediatrics, University of Washington of University Pediatrics, of Professor Adkins George Institute; Research Children’s Seattle Development, and Behavior Ganz Cooney Center at Sesame at Center Cooney Ganz Pennsylvania School of Medicine of University The Pediatrics, of Professor Associate Philadelphia; of Hospital Children’s Institute, Research CHOP The Genomics, MODERATOR MD PIZZO, A. PHILIP BENJAMIN DANIELSON, MD Hines Seminar Room, Building Kresge Training the Next Generation of Pediatric Health Professionals PRACTICE AND POLICY IN GAPS THE FILLING MODERATOR VICTORIA RIDEOUT, MD, MPH CHRISTAKIS, A. DIMITRI Stranahan Seminar Room, Koch Seminar Building Development? and Health Children’s Hinder or Advance They Media—Do and Games CULTURE HEALTHY AND LIVING POPULAR Research Advanced for Institute Canadian MODERATOR STEPHEN W. SCHERER, HAKON HAKONARSON, MD, P Children’s Clinic, Seattle Children’sChildren’s Clinic, Seattle Centre for Molecular Medicine, University of Toronto of University Medicine, Molecular for Centre McLaughlin Director, Children; Sick for Hospital The Genomics, specialists? pediatric of shortages to solutions potential and of causes the are What education? medical pediatric of transformation the in schools medical and institutions pediatric between partnerships and collaborations cross-sector philanthropy, of role the is What practice? medical with pace keeps education medical pediatric that ensure we can How care. pediatric in shifts major account into take to adapt must professionals healthcare of training and education The others? with interact and play learn, children way the enhance to used be can technologies latest the which in ways constructive the are What health? children’s on media electronic of effects negative and positive the are What essential. is development and health achild’s on trend this of impact the Understanding media. other and games electronic with interaction and to exposure increasing having are Children genetics in pediatric health and disease? and health pediatric in genetics of role the of understanding our further will that investigation scientific for opportunities the are What imagine. to beginning just only are we ways in medicine pediatric advance to potential the has that knowledge unlocked has already genomics of study The

JAMES STOCKMAN A. III, MD MICHAEL H. LEVINE,P P OC, BERNSTEIN, ALAN

Dean, Stanford University School of Medicine of School University Stanford Dean, MA THE ASPEN CHILDREN'S FORUM CHILDREN'S THE ASPEN

P President, VJR Consulting h D, DS D, Medical Director, Odessa Brown Director,Medical Odessa h D c , FRSC Director, Center for Applied Director, Center for Child Health, Health, Child for Center Director, h D h Executive Director, The Joan The Director, Executive Director, The Centre for Applied Applied for Centre The Director, D, FRSC D, President and CEO, and President President and CEO, and President

13

PROGRAM PROGRAM PROGRAM PROGRAM

SCENARIO PLANNING PROGRAM PROGRAM Healthy Living for Children Kaufman Room, Doerr-Hosier Center What happens to popular culture—and how is “healthy living for children” defined—in these very different futures we may inhabit? And what is the role of philanthropists in achieving a “children-first” approach? As more social media and interactive devices clamor for children’s attention, are new forms of healthy living actually being defined today? Are there new insights and types of philanthropic support that could influence our popular culture for children and lead to healthier living and well-being?

10:45 AM BREAK Children's Hospital Photo Exhibit

Since 1993, the Children’s Hospital Photo Exhibit has served as 11:00 AM-12:00 PM CLOSING PLENARY SESSION a powerful reminder to viewers that all children need children’s McNulty Room, Doerr-Hosier Center hospitals. Part of what makes children’s hospitals indispensable is The Promise of Positive Change Great progress in pediatric research, discovery and innovation has their dedication to ensuring every child has access to the highest- been achieved through the support of philanthropists, private- quality health care possible. sector leaders, and policy makers who have made children’s health and well-being a priority. We can anticipate similar breakthroughs, opportunities and advances in the future. Whether we seize those In the selected 50 photos, the 2011 Children’s Hospital Photo Exhibit opportunities and offer wide access to their benefits will be a function of individual and societal choice. Throughout the Aspen represents the endless ways children’s hospitals achieve their mission Children’s Forum, philanthropists, scientists, physicians, educators to care for all children. The exhibit displays children’s hospitals' and other experts have taken part in a scenario thinking exercise in which they imagined various futures and identified the smart highest-quality photos that captivate viewers, bring them into the choices to be made along each path. The role for philanthropy will continue to grow as will its benefits. This session will explore the moment and exemplify superlative care. In July 2011, this exhibit was findings of those who took part. Panelists will share their approach displayed on Capitol Hill. These stories in pictures serve as a powerful to philanthropy, highlight the results they seek to achieve or have achieved already, and discuss the lasting impact of putting children’s reminder to Congress to consider how legislative decisions impact health and well-being at the center of their giving. children’s hospitals and the children they serve. CINDY HENSLEY MCCAIN Business Owner, Philanthropist and Humanitarian ALAN E. GUTTMACHER, MD Director, Eunice Kennedy Shriver National Institute of Child Health and Human Development SUSAN PACKARD ORR Founder and CEO, Telosa Software; Trustee, Lucile Packard Children’s Hospital PHILIP A. PIZZO, MD Dean, Stanford University School of Medicine MODERATOR WALTER ISAACSON President and CEO, The Aspen Institute

12:00 PM CONFERENCE ADJOURNS

12:30 PM BOXED LUNCH

14 THEJuly ASPEN22–24, CHILDREN'S2011 FORUM THE ASPENJuly CHILDREN'S22–24, 2012 FORUMAspen, Aspen, Colorado Colorado Aspen, Colorado July 22–24, 2012 THE ASPEN CHILDREN'S FORUM 15 15 SPEAKERS

17

National Institute of Child Child Institute of National , NPR

Science Friday Science Entertainment Tonight; Eunice Kennedy Shriver THE ASPEN CHILDREN'S FORUM riter and Reporter, ESPN irector, Safe Concussion Outcome, Recovery and Education Education and Recovery Concussion Outcome, Safe irector, ssociate Professor of Pediatrics, The University of P P C Dir D D F C P HospitalChildren’s Philadelphia of P P D C C M Seattle Children’s V F D P and Communities; Professor, Departments of Pediatrics, Departments Pediatrics, of Professor, Communities; and Health Sciences, and Policy Studies, UCLA D A W Director, Ann & Robert H. Lurie Children’s Hospital Chicagoof Program, Children’s National Medical Center Medical National Children’s Program, Institute, Children’s Hospital of Philadelphia; Medicine of School Pennsylvania for Advanced Research University of California San Diego Seattle Children’s Research Institute; George Adkins Professor of Pediatrics, University of Washington Medicaid and Medicare for Centers Quality, and Standards Services, Department U.S. of Health and Human Services Public Leadership, The Aspen Institute Attending Surgeon, Children’s National Medical Center; Medical National Children’s Surgeon, Attending Professor of Surgery and Pediatrics, George Washington Medicine of University School Health and Human Development Human and Health Professor and Department Chair, of Pediatrics/Associate Dean for Academic Affairs, The George Washington Sciences Health and Medicine of University School Trustee, Children’s Hospital Los Angeles rofessor, Pediatrics and Family and Preventive Medicine, irector, Center for Child Health, Behavior and Development, hief Medical Officer and Director of the Office of Clinical resident and The CEO, Hospital for Sick Children resident, Host, resident andSoccer U.S. CEO, Foundation hief, Division of Pediatric Neuropsychology; ector, irector, Center for Applied Genomics, The CHOP Research irector, UCLA Center for Healthier Children, Families ormer Host, Center; Medical National Children’s Officer, Academic hief Officer, Operating Chief and resident resident and Canadian CEO, Institute hairman, Henry Crown and Company; Clinic, Odessaedical Director, Children’s Brown Aspen President,ice Director, Institute-Rodel Fellowships in ounder, Safe Kids Worldwide; irector, Aspen Institute Sports and Society Program;

ary Hartary m Farrey ra Flatow I M ster Crown ster To Le uly 22–24, 2012 J adeline Bell, MS Bell, adeline Mickey Edwards Mickey d Foster-Simeon E M ark L.Batshaw, MD erard A. Gioia, PhD

eal Halfon, MPH MD, G M N lan E. Guttmacher, MD enjamin Danielson, MD Danielson, enjamin A B artin R. Eichelberger, MD Eichelberger, R. artin M P H D A Ch Aspen, Colorado Mary Jo Haddad, CM, LLD, MHSc, BScN PhD MD, Hakonarson, akon lan Bernstein, OC, PhD, FRSC MPH Chambers, PhD, ristina imitri A. Christakis, MPH MD, atrick H. Conway, MSc MD, Aspen Children's Forum Speakers Forum Children's Aspen spen, Colorado A

July 22–24, 2012

THE ASPEN CHILDREN'S FORUM 16 —KOFI ANNAN ANNAN —KOFI There is no trust more sacred trust no sacred is There more holds world the one the than duty no is There children. with more important than ensuring respected, rights are their that that their welfare is protected, from free are lives their that they that and want and fear can grow up in peace. peace. in up can grow 16 SPEAKERS FAHP, Looney, A. CFRE laudia FRCPC PhD, MBBS, Lee, K. hoo Bertha Alicia Moseson, MD, MPH Moseson, Alicia Bertha S C C Isaac S. Kohane, MD, PhD Kohane, S. Isaac F D raig E. Rubens, MD, PhD Rubens, E. raig J J rederica P. Perera, DrPH D en Holleran, MEd, MBA MEd, Holleran, en J ay Parkinson, MD, MPH Parkinson, ay M W wayne C. Proctor, PhD Proctor, C. wayne Cindy Hensley McCain avid Rubin, MD, MSCE Rubin, avid ennifer L. Howse, PhD Howse, L. ennifer ichael H. Levine, PhD Levine, H. ichael 18 V E illiam New, MD, New, PhD illiam T J ictoria Rideout, MA Rideout, ictoria ric P. Hoffman, PhD P.ric Hoffman, S homas G. Morrison P J ames Mandell, MD S hellie Y. Pfohl, MS Y. Pfohl, hellie an A. Nisbet, PhD Nisbet, A. an hilip A. Pizzo, MD Pizzo, A. hilip C usan Packard Orr Packard usan arrie Morgridge arrie W D alter Isaacson alter avid Rockwell avid THE ASPEN CHILDREN'S FORUM CHILDREN'S ASPEN THE

enior Co-director of PolicyLab, The Children’s Hospital of Hospital Children’s The PolicyLab, of Co-director enior Alliance Global Director, Executive and o-founder andounder CEO, Group Rockwell resident, VJR Consulting Program Senior and Program, Obesity Childhood irector, of Professor Naumann Elizabeth and Carl The and ean Fitness, on Council President’s Director, xecutive Health Environmental Children’s for Center Columbia irector, o-founder, Sherpaa, The Future Well and Hello Health CEO, Telosa and Software; ounder Hampshire New of University Research, for Provost Vice enior Group Novent CEO, The and hairman ormer Medical Director, Clackamas County nior Advisor, Leverage Health Solutions; Foundation Family Morgridge President, ice Owner,usiness Philanthropist and Humanitarian Children’s Hospital Development, President, Vice enior Center Cooney Ganz Joan The Director, xecutive Child Development, Human of Institute Director, chientific Hospital; Children’s Boston Program, hair, Informatics Institute Aspen CEO, The and resident Dimes of March resident, xecutive Director, Startup:Education irector, Research Center for Genetic Medicine,

Children’s National Medical Center; of Directors Board Group Woodmark Chair, The Angeles; Los Systems Biology, George Washington University; Washington George Biology, Systems at SesameWorkshop to Prevent Prematurity and Stillbirth, Seattle Children’s Seattle Stillbirth, and Prematurity Prevent to School of Medicine at the University of Pennsylvania of University the at Medicine of School Perelman Pediatrics, of Professor Associate Philadelphia; Officer, Wood Robert Johnson Foundation SchoolUniversity of Medicine Pediatrics and Microbiology and Immunology, Stanford CEO, Boston Children’s Hospital Research Health of Institutes Canadian Youth Health, and Sciences and Technology, Harvard Medical School T L C P Community Health Community D E D C F S C F Se V B S E S C P P E D S C F P D Co-founder, NaviNet Co-founder, Sports and Nutrition Sports rustee, Lucile Packard Children’s Hospital Children’s Packard Lucile rustee, awrence J. Henderson Professor of Pediatrics and Health Health and Pediatrics of Professor J. Henderson awrence rofessor and Chairman, Department of Integrative Integrative of Department Chairman, and rofessor o-founder, ReveraGen Biopharma

July 22–24, 2012 22–24, July

A spen, Colorado Colorado spen,

MD, FRCPC PhD, CM, Zlotkin, tanley FRSC DSc, PhD, W. Scherer, Stephen S Aspen, Colorado Aspen, D J ames A. Stockman III, MD III, Stockman A. ames avid A. Wolfe, PhD, ABPP ABPP PhD, Wolfe, A. avid D T P avid K. Stevenson, MD Stevenson, K. avid imothy P. Shriver, PhD aul H. Wise, MD, MPH Wise, H. aul A

nna Deavere Smith Deavere nna S terling K. Speirn J P uly 22–24, 2012 22–24, uly eter Schwartz eter J J ulie Young ane Wales

resident and CEO, Florida Virtual School Virtual CEO, Florida and resident Society, and Health Child of Professor Behrman E. ichard Institute Aspen The President, ice Pediatrics of Board CEO, American and resident the of Director Pediatrics, of Professor Faber K. arold Foundation CEO, W.K. and Kellogg resident Playwright and ctress Olympics CEO, Special and hairman o-founder, Network; Global Business

BC Chair in Children’s Mental Health, Centre for Addiction Addiction for Centre Health, Mental Children’s in Chair BC

University of Toronto of University and Children Sick for Hospital The Health, Public and Sciences Nutritional Children;for Professor, Sick Paediatrics, Hospital The Affairs, Academic and Medical President, Vice Toronto of University Psychology, and Psychiatry of Professor Health; Mental and Stanford University Freeman Spogli for Institute International Studies, the at Fellow Senior and Prevention, and Outcomes Policy, for Center the of Director Pediatrics, of Professor Salesforce Planning, Strategic and Relations Government Global of President Vice Senior Medicine, of University Toronto Molecular for Centre McLaughlin Director, Children; Sick for Hospital The Genomics, Applied for Centre The Director, Stanford School University of Medicine Affairs, Academic for Dean Associate Senior and Dean Vice and Services, Newborn and Pregnancy for Center Johnson L. Ann B. and Charles P R R V P H P A C C THE ASPEN CHILDREN'S FORUM CHILDREN'S THE ASPEN

19

SPEAKERS SPEAKERS of Pennsylvania. University the and Hopkins John of faculty the on served previously He Institute. Krieger Kennedy ship in Neurodevelopmental Pediatrics at the fellow aclinical and Children Sick for Hospital The at Pediatrics in aresidency completed Research Clinical Diseases Rare funded Chicago, of University the from MD his received Dr. Batshaw Disorders. Cycle Urea on Center Health principal investigator of a National of Institutes currently is he and synthesis, urea of errors inborn on focused has research Dr. Batshaw’s the of editor senior is he and reviews, and articles 200 than more published has He abilities. dis developmental with children of care the Public Policy Council. She also serves as an an as serves also She Council. Policy Public Association Hospital Children’s the of chair the is she and Corporation; Development River Schuylkill and District City University Council, Healthcare Valley Delaware the for member aboard as serves She activities. raising fund in par and budget and plan operating the develop roadmap, strategic hospital’s the ing implement for responsible is Bell Ms. addition, textbook, classic Batshaw has spent his entire career focusing on on focusing career entire his spent has Batshaw ­- 20 Children with Disabilities the CHOP care network. In network. care CHOP the including the and hospital operations of CHOP the for leadership executive provides Bell Ms. role, this In (CHOP). Philadelphia of Hospital Children’s The for and chief operating officer and Health Sciences. Dr. Sciences. Health and University School of Medicine Washington George The at Affairs, Academic for dean chair of Pediatrics/associate and professor and Center Children’s Medical National at officer academic chief Madeline Bell Mark Batshaw L. THE ASPEN CHILDREN'S FORUM CHILDREN'S ASPEN THE is president ­t is is icipating icipating .

­

­i ­ ng ­ of Toronto. University the from PhD his received Bernstein Dr. 2002. in Canada of Order the into inducted was and College Massey of fellow research asenior is He Award. Wightman Gairdner 2008 numerous awards and including honors, the received has He internationally. and Canada in boards review and advisory several of member a is or chairs He cancer. and hematopoiesis cells, stem of study the to contributions extensive Dr. made has publications, Bernstein scientific 225 than more of Author Canada. in research health of transformation the led he where 2007), (2000– Research Health of Institutes Canadian the of president founding the as served he that, to Prior vaccine. HIV an for searching funders Chambers leads the San Diego County site for for site County Diego San the leads Chambers Dr. drugs. other and alcohol medications, new to outcomepregnancy following prenatal exposure of studies international of and national number a on investigator lead the is and Program Information and Clinical Service Research program of director the California Teratogen Teratology Information She Specialists. is the of Organization the of president past and Society U.S. Teratology the of president past the is She Sciences. Pharmaceutical and Pharmacy of School Skaggs the in as well as Division, Health and Global Division Medicine–Epidemiology from the University of Pennsylvania. Pennsylvania. of University the from Dynamics Organization in MS an and University Villanova from Nursing aBS in received Bell Ms. organizations. policy public and advocacy children’s to as well as organizations, advisor to numerous community-based

July 22–24, 2012 22–24, July alliance of researchers and and researchers of alliance Enterprise, an international Global HIV Vaccine the of director executive the Previously, Dr. Bernstein was Advanced Research (CIFAR). for Institute Canadian the of CEO and president Family and Preventive Preventive and Family in jointholds appointments she and Teratology, and division is Dysmorphology home Her Diego. San California, of University the at Pediatrics of a professor perinatal epidemiologist, is Alan Bernstein Christina Chambers Christina

A spen, Colorado Colorado spen, is is , a ,

Aspen, Colorado Aspen, pregnancy andpregnancy lactation. in drugs on book reference used widely most the co-authored and Study, Children’s National the of Medicine. College Baylor from honors high with graduated and Boston, Hospital Children’s School’s Medical completed pediatrics residency at Harvard hospitalist, pediatric apracticing is Dr. Conway U.S. health the and CHIP Medicaid, Medicare, across transformation and quality for force amajor is and $1.5 annually billion exceeds treatments and The officebudget services. and all Medicare coverage decisions for nation, the across providers healthcare Medicaid and Medicare of certification and survey and standards clinical states, 50 all in programs ment improve quality programs, purchasing based in many national newspapers. newspapers. national many in Today Show been featured on has and development and health child on media of effects the on focuses research His media. and children on expert international an is Christakis Dr. Rodale). 2006, (September Your for Kids Work Television Make Room: Living the in Elephant of author the is also He pediatrics. of atextbook and articles research original 100 than more of author the is Dr. Christakis Children's. ; ABC, NBC and CBS news; as well as as well as news; CBS and NBC ; ABC,

Anderson Cooper 360 Cooper Anderson measures for CMS, for value- measures quality all for responsible is office This Quality. Clinical Standards and of Office the of director and Medicaid (CMS) Services Centers for Medicare and medical officerfor the and a pediatrician at Seattle Seattle at apediatrician and Washington, of University the at Pediatrics of Professor Adkins George the is also He Institute. Research Children’s Development at the Seattle and Behavior Health, Child for Center the of director Patrick H. Conway H. Patrick Christakis A. Dimitri J uly 22–24, 2012 22–24, uly ­c are system. system. are The The

; the ; the ischief is is ­ THE ASPEN CHILDREN'S FORUM CHILDREN'S THE ASPEN Chicago, and a member of the International International the of amember and Chicago, of Opera Lyric of Committee Executive the of chairman and adirector Telof University, Aviv Governors of Board International the of member Science, of Institute Weizmann the of director Foundation, Jerusalem The of director Seminary, Theological Jewish the of director Chicago, of Hospital Children’s Lurie H. &Robert Ann a of Corporation. subsidiary General Dynamics former chairman of Material Corporation, Service as served he and Services; TW and Airlines, Communications Company,360˚ TransWorld Committee), Executive the of chairman as served also he (where Corporation Dynamics General Esmark, Company, Trust and Bank Continental ofdirector Chicago Pacific Corporation, a as served previously has He Sciences. and Arts of Academy American the of amember and Institute Aspen The of Crown Fellowship Program Henry the of Overseers of Board the of a member Institute, Aspen The and University Northwestern of trustee alife is he addition, In Studies. national Inter and Strategic for Center the of Councillors Chicago, a director of the the of adirector Chicago, of Club Commercial The of Committee Civic the of chair past Global Affairs, The Chicago Council on on Council Chicago The of chairman is he Chicagoan, Company. A native and Crown Henry of Lester Crown

21 is chairman is chairman ­m ­ an

SPEAKERS SPEAKERS completed his residency at Seattle Children’s. Seattle at residency his completed then and Medicine of School Washington’s of University the attended Dr. Danielson Harvard, at degree undergraduate his earning healthcare and systemdiversity mentoring. After collaborations, healthcare advocacy, promoting community development, clinic care, clinical Dr. Danielson divides his time direct between community. in children an inner-city low-income serves primarily Clinic Children’s Brown Odessa good education. Under Children’s, Seattle the a and inquiry intellectual for regard ahigh kids Angeles Times Angeles the for columnist political aregular was Edwards Congressman Powell. Colin Secretary under Department State the to advisor an as served since has He Affairs. International and Public of School Wilson Woodrow University’s Schooland Law Government, Princeton Harvard of School Kennedy Harvard’s at taught he congress, leaving After Foundation. Heritage the of trustee afounding and campaign presidential Reagan the for forces task policy of director was also Edwards Congressman Operations. Foreign on Sub-committee House the of member ranking the and committees budget and appropriations the of amember leadership, and and 22 Chicago Tribune Chicago Institute where he directs directs he where Institute Aspen the of president mother who instilled in her her in instilled who mother asingle by raised was He . rural in then DC, Washington, inner-city in poverty—first in up grew He Clinic at Children’s. Seattle Brown Children’sOdessa medical director of the of the House Republican Republican House the of asserving a senior member 16 for years, Congress of amember was He Leadership. Public in ships Fellow Rodel Aspen the Mickey Edwards Danielson Benjamin THE ASPEN CHILDREN'S FORUM CHILDREN'S ASPEN THE in addition is a vice avice is Los Los is is ­ Everett Koop, MD. Koop, Everett C. with Philadelphia of Hospital Children’s the and Hospital University Reserve Western completing his surgical at education the Case Hahnemann Medical University School, and University Princeton from graduated He States. United the and Asia East, Middle the Europe, America, Latin in professorships visiting National Resource Center. Dr. Eichelberger holds Emergency for Medical Services Children’s the of development the led also He Medicine. of School University Washington George The at Pediatrics of and Surgery of aprofessor as serves he and DC, Washington, in Center Medical National Children’s at Services Burn Trauma and pediatric surgeon and founder of Emergency Constitution Project. Constitution the of board the on serves and books several Atlantic Things Considered. NPR’s to commentary weekly contributing to medical groups. and sport academic, with insights his share to asked been has he aspeaker, As Oregon. to Florida from courses university in text arequired as serves and sports youth contemporary on work leading Children Our of Champions to Make Race All-American On: The Game book, His Emmys. two awards, national other among won, has who reporter ESPN an is also Mr. Farrey communities.

and and July 22–24, 2012 22–24, July Politico The The for writes currently He , is the author or co-author of co-author or author the , is Eichelberger also is a 14 Dr. under. and aged children of killer a leading injury, childhood accidental prevent to is mission work of organizations whose Worldwide, a net global the founder of Safe Kids Kids Safe of founder the healthy children and and children healthy developing on afocus with interest, public the serve solutions that help sport inspire and leaders convene to is mission whose Program, Society and Sports Institute’s Aspen the Tom Farrey Tom R.Martin Eichelberger

A is director of spen, Colorado Colorado spen, , is a , is ­ All All is is Aspen, Colorado Aspen, Asimov Science Award (2012). Award Science Asimov Isaac the and (2005) Award Service Public Board Recent honorsinclude the National Science with the Centers for Disease Control and and Control Disease for Centers the with working concussion, sports youth in expertise and interest particular with advocate health public and teacher/trainer researcher, a clinician, is He Medicine. of School University Washington George the at Psychiatry and Pediatrics of professor associate an is He program. (SCORE) Oprah Today Show the on science talked Mr. has career, Flatow 40-year his In CNBC. and CBS for reported award-winning Emmy the for writer and host was He Ideas. Big PBS series the on stories science cutting-edge University College. University Maryland of University the from in aBS holds Mr. Foster-Simeon veteran, U.S. Navy A . and Iraq in wars the for logistics and coverage newspaper’s the executing and bureau, Beijing newspaper’s the opening including operations, news Foreign and Political Washington, for responsible was he where at editor managing deputy as served U.S. Soccer Foundation, Mr. Foster-Simeon Present at the Future the at Present is book latest . His , Charlie Rose Charlie Newton’s Apple Apple Newton’s

ussion Outcome, Recovery and Education Safe Con Flatow has discussed Mr. television, On news. science and technology highlights that online news/talk-show on NPR and Science Friday of host the is journalist, TV and NPR winning United States. Prior to the the to Prior States. United the in soccer of levels national and state local, the ofdecades experience at two than more after 2008 May in role the assumed U.S. Soccer Foundation. He the of CEO and president where he also directs the the directs also he where National Medical Center, Children’s at psychology of Pediatric Neuro- Division the of chief is gist, pediatric neuropsycholo- Gerard Gioia A. Ed Foster-Simeon Ira Flatow J uly 22–24, 2012 22–24, uly , Merv ­c on PBS and has has PBS and on , an award award , an , a weekly , aweekly USA TODAY

and and , a , is is . THE ASPEN CHILDREN'S FORUM CHILDREN'S THE ASPEN

Hospital of Boston. Medical Genetics at Harvard and Children’s in afellowship and Pediatrics in residency and internship an completed Dr. Guttmacher Harvard College and Harvard Medical School, of Agraduate Pediatrics. of Academy American the of afellow and Medicine of Institute the of treating and preventing disease. He is a member diagnosing, of ways better into genomics translating for approaches new of development the is expertise of areas Guttmacher’s Dr. Among roles. other among director, acting and director deputy as served he where Institute, Research Genome Human National the at work to 1999 in NIH the joined Dr. Guttmacher medicine. A pediatrician and medical geneticist, rehabilitation and disabilities, developmental and intellectual health, reproductive health, pediatric health and development, maternal Prevention and many other national many and other Prevention and treatment of concussion. concussion. of treatment and ment for methods of evaluation more effective develop the and children in recovery cussion organizations. His research on focuses con Health (NIH) for research in research for (NIH) Health at the National of Institutes point focal the as activities institute’s the oversees Human Development. He and Health Child of Institute Kennedy Shriver Eunice the of director Alan E. Guttmacher E. Alan

23 National ­

is is

­ SPEAKERS SPEAKERS June 2010. in Canada of Order the of amember appointed for Achievement. Outstanding She was Award Premier’s the of arecipient is and Windsor of University the from degree laws of doctor honorary an holds Haddad Ms. success. team and individual enable and capacity professional enable health systemimprovement, build to partnerships and collaboration fostering to committed is She health. child improve to teaching and research care, of integration Nature Genetics Nature in scientific medical journals, including grants, and he has published numerous papers several National of Institutes Health-sponsored on investigator and co-principal principal the been has Dr. Hakonarson addition, In industry. biopharmaceutical the in posts senior several in served previously Dr. Hakonarson Medicine. of School Pennsylvania of University The at Pediatrics of professor associate an is also He therapies. new developing of objective the with cancer, and autism as such children, in disorders breakthroughs of that year. that of breakthroughs Nature Hakonarson’s autism gene in discovery reported Medicine of Journal (2009) among the top 10 medical 10 medical top the among (2009) 24 and and magazine listed Dr. listed magazine . Time Center for Applied Philadelphia’s of Hospital Children’s The of director physician-scientist, is leadership; and the the and leadership; strong focus on innovation; a maintained has Haddad November Ms. 2004, her appointment in in Toronto.(SickKids) Since Children Sick for Hospital The of CEO and president of complex medical causes genetic the identify to founded facility typing (CAG), ageno Genomics Mary JoMary Haddad Hakon Hakonarson The New England England New The THE ASPEN CHILDREN'S FORUM CHILDREN'S ASPEN THE is is

,

a ­

dystrophy, where he identified the missing missing the identified he where dystrophy, muscular on research his for known best is Cancer Center. Breast Sanford Edith the for spokesperson is and Association Heart American the with awareness Childhood Cancer Foundation board. She raises National the on years many for served and USA Childhelp for ambassador acelebrity is She 2001. in Award Achievement Miracle Children’s inaugural its received and , annual its co-hosted Hospitals, Network Miracle Children’s with volunteered She Trustees. of Board the on serves she and Campaign, Pavilion Anderson E. John and Marion the co-chaired she Angeles, research. pediatric of field the in achievement lifetime his of recognition in Award Research annual its Dr. Halfon awarded Association Pediatric Academic the 2006, report, the produced that Health Child on Committee IOM/NRC the on served also He 2006. to 2001 from (IOM) Medicine of Institute and (NRC) Council Research National the of Families Youth and Children, on Board the of member a was Dr. Halfon Affairs. Public of School Luskin UCLA the in policy public and Health,

Children’s Health the Nation’s the Children’s Health Wealth July 22–24, 2012 22–24, July Center and professor and and professor and Center Children’s Medical National Genetic Medicine at for Center Research the of Washington University. He Biology at George Systems Integrative of ment Depart the of chairman Children’s Hospital Los organizations. With involvement with many exemplified through her commitment to children is 2011. enduring Her Tonight ment Public of School Fielding UCLA the in services health UCLA, at Medicine of School Geffen David the in pediatrics of professor a is He Communities. and Families Children, Healthier for Center UCLA the television show show television Neal Halfon Eric P.Eric Hoffman Mary Hart

hosted the hosted A from 1981 to from is director of spen, Colorado Colorado spen, is director Entertain ­ . In In . ­ Aspen, Colorado Aspen, rehabilitation approaches. and drugs novel of development the tolaboratory improved patient care, including the in advances translating in involved is he Increasingly, backgrounds. research and clinical diverse from faculty 50 numbers DC, Washington, in group His children. in engineers solving health difficult problems science, with physicians, and scientists focus is orchestrating interdisciplinary team disorders, among others. Currently, his major brain and syndromes paralysis loss, pregnancy has identified genes responsible for recurrent Dr. Hoffman geneticist,” A“human dystrophy). muscular (Duchenne muscle patient in protein organization. Dr. Howse has held high-level high-level held has Dr. Howse organization. the for growth fund-raising sustained achieved and programs, advocacy and research Dimes of March globalized has Dr. Howse birth. preterm promote folic acid and education prevent Exeter Academy. Exeter Phillips at atrustee is and fellow Institute Aspen an is She Harvard. from MEd and BA Yale, her from and MBA her holds Holleran Ms. principal. and teacher school ahigh as career her started she and schools; urban in leadership forindependently foundations focusedon then and &Company, McKinsey for consultant a was she District; School Unified Oakland in superintendent the with reform school led she Area; Bay Francisco San the in Schools New for Leaders New of director executive founding as served She education: in decades two spent has Holleran Ms. broadly. more strategy andschools, on developing the foundation’s

expand newborn screening, screening, newborn expand to campaigns national launching decades, two than more for Dimes of March the of president as served has she science, and health in leader Anational Dimes. of March the of president to reform the Newark public public Newark the reform to million $100 of commitment Startup’s first supporting presently focusedon is Holleran Ms. foundation. Zuckerberg’s education Education, Mark Startup: of director Jennifer Howse L. Jen Holleran J uly 22–24, 2012 22–24, uly is executive

is is

THE ASPEN CHILDREN'S FORUM CHILDREN'S THE ASPEN

of Medicine. Institute Sciences of Academy National the achievements, she was recently to elected many her of recognition In Studies. Biological for Institute Salk the including boards, many on for the developmentally disabled. She serves public appointments overseeing service services where he was a Rhodes Scholar. aRhodes was he where University, Oxford of College Pembroke of and College Harvard of agraduate 2012. is He until held he aposition Governors, of Board casting Broad the of chairman the as serve to Senate President Barack Obama and confirmed by the the by confirmed and Obama Barack President by appointed was He University. Harvard of Overseers the and Tulane University, Airlines, United of boards the on is he and Beginning, aNew for Partners of vice-chair America, Teach of for board the of (1986). chairman is He Made They World the and Friends Six Men: of co-author (1992), and A Biography Franklin: An American Life American An Franklin: (2007), (2007), Universe Einstein: His Life and Jobs Steve of author TIME of editor the and CNN of CEO and chairman was he Institute.Aspen Previously, the of CEO and president Walter Isaacson

magazine. He is the the is He magazine. (2003), and and (2003), 25 Benjamin The Wise Wise The Kissinger: is is (2011), (2011),

­

SPEAKERS SPEAKERS the University of Singapore and his PhD in Health Health in PhD his and Singapore of University the Centre. Dr. Lee received his medical degree from Paediatrics at Sunnybrook Health Sciences of and Developmental Newborn Department the of chief and Hospital; Sinai Mt. at Centre Research (MICare) Care Maternal-Infant paediatrician-in-chief and director of the Children; Sick for Hospital The Toronto and of University the at Neonatology of Division the of head and Health, Public and Gynaecology Institute of Medicine. the and Informatics Medical of College American the Investigation, Clinical for Society American the including societies, honor multiple to elected Genomics Integrative an for book, the co-authored and papers 200 than more MIT. published has Dr. Kohane and Harvard at Technology and Sciences Health of Division the at bio-informatics and genomics in program adoctoral leads Dr. Kohane to being a practicingpediatric endocrinologist, computer science to diseases. study In addition and genomics of use the in affiliates hospital its and School Medical Harvard at collaborations multiple leads Dr. Kohane Medicine. of Library Countway HMS the of director and Informatics ofco-director the HMS Center for Biomedical 26 of Paediatrics, Obstetrics & professor Research; Health of Institutes Canadian the at (IHDCYH) Youth Health and Human Development, Child of Institute the of director economist. He is scientific health and natologist is also He (HMS). School nology at Harvard Medical Tech and Sciences Health Professor of Pediatrics and and Pediatrics of Professor the Lawrence J. Henderson Informatics Program and is Children’s Hospital Boston the of chair Shoo K. Lee K. Shoo Isaac (Zak) Kohane THE ASPEN CHILDREN'S FORUM CHILDREN'S ASPEN THE . He has been been has . He is aneo is Microarrays is is ­ ­ Professionals (AFP) Foundation and a member of Association the of chair past is she and Board, Group Woodmark the of chair the as serves currently $1.03 She than billion. Neonatal Network Canadian the of director and founder the is He University. Harvard from (Economics) Policy Preparatory School. Preparatory Foundation and the Léman Manhattan Family We Are Teach America, For Investment, Youth for Forum the including councils, advisory and boards nonprofit numerous on serves oriented and audiences. media industry He policy- for frequently writes he and entities, asserved an adviser to several government has Dr. Levine Chancellor. Schools York City New the to advisor asenior was he and development, childhood early in work groundbreaking oversaw of Corporation Carnegie ’s Previously, Dr. initiatives. Levine educational Society, managing interactive media and Asia the for Education of director executive and Media New of president vice as served Levine Dr. center, the joining to Prior development. and Paediatric Society, and the Premier Member of Canadian the from Award Neonatologist Distinguished the Award, Research Pasteur Aventis the Award, Translation Knowledge CIHR the of arecipient is He Collaboration. Neonatal americana de Neonatologia. Honour Award from the Sociedad Ibero

July 22–24, 2012 22–24, July TM TM and the International International the and campaign that raised more more raised that campaign acapital overseen has Hospital Los Angeles, she Children’s At 2000. January since held has she position a Angeles, Los Hospital Development at Children’s president, vice senior of the Joan Ganz Cooney Cooney Ganz Joan the of founding executive director young children’s learning learning children’s young of digital media to advance potential the harnessing to and innovation hub devoted research action an shop, Work Sesame at Center Claudia A. Looney A. Claudia Levine H. Michael

A spen, Colorado Colorado spen, ­ is the the is is is ­ Aspen, Colorado Aspen, Union College, New York. New College, Union from Management Systems Health in a Master’s holds Dr. Mandell Medicine, of College Florida of University the from degree amedical to addition In Hospitals. Teaching Boston of Council the of chair former the is he and Inc., Care, and Dana-Farber/Children’s Hospital Cancer Hospitals, Teaching of College Colleges’ Medical Foundation/CRICO, for Association American Management Risk including organizations, other several of boards the on serves and (CHA) Association Hospital Children’s of board the of chairman is Dr. Mandell years. nine for Hospital member of at the medical Children’s staff a was he Previously, Hospital. Center Medical Center, and executive medical director of Albany Medical Albany at Affairs Health for president vice executive and Urology of chief as served also He Pediatrics. and Surgery of professor and College Medical Albany of dean as served he Children’s, joining to Prior Sciences. and Arts of Outstanding Fundraising Professional. Fundraising Outstanding for 2012 Award AFP’s of CCS recipient the is She Philanthropy. Healthcare for Association the of chair-elect as served she and member, board apast is Looney of International its Committee. Ms. Ethics region extensively. She also served on the board board the on served also She extensively. region the to travelled has and Initiative Congo Eastern the for directors of board the on serves McCain Ms. countries. war-torn in destruction weapons

Harvard University Faculty Smith Professorship at Dana and Robert the holds Harvard Medical School and at Surgery of professor a is also He Center. and Children’s Medical Boston Children’s Hospital landmine removal and organization dedicated to anonprofit Trust, HALO the for Trustees of Board She is a member of the others. than fortunate less those of lives the improving to life her dedicated has Cindy Hensley McCain James Mandell J uly 22–24, 2012 22–24, uly

is CEO of CEO is

THE ASPEN CHILDREN'S FORUM CHILDREN'S THE ASPEN Educating Medically Fragile Children at John McCain. Together, they have four children. four have Together, they McCain. John Senator husband, her with Phoenix in resides She Councilors. of Board Education of School Rossier USC the of amember is she and USC, from Education Special in aMaster’s and Education in adegree holds She Company. Beverage Hensley business, family’s her of chairman the is McCain Ms. Smile. Operation for directors of Design and Technology. of Academy International the from graduated Morgridge Ms. Science. and Nature of Museum Denver the at and Denver of University the at trustees of boards the on Way. serves She United High Mile the from Year the award of Women Weis-Jacobs Francis the received she 2010, In Group. Tavistock The to advisor education an is also she and philanthropists, school Foundation toSupport cultivate young high Student the founded Morgridge Ms. Denver. of University the at Education of College Morgridge the developing in role instrumental an played Science. and Nature of Museum Denver the at project capital amajor supported and Colorado Hospital Children’s Morgridge Family Fund for for Fund Family Morgridge foundation created the (STEM) education. The engineering and math on science, technology, focuses which Foundation, Family Morgridge the of president vice as Carrie Morgridge Carrie

27

Ms. Morgridge Morgridge Ms.

has recently recently has serves serves

SPEAKERS SPEAKERS Oregon. She retired from this position in March March in position this from retired She Oregon. medicine. Her MPH thesis, titled "Intimate Partner Partner "Intimate titled thesis, MPH Her medicine. preventive and health public in and OB-GYN an as certified board is Dr. Moseson women. pregnant uninsured serve to hospital local the by sponsored aclinic Washington, Kelso, in Clinic Steps First the of director medical the was she that, to Prior years. four for team pregnancy high-risk the of amember as serving 15 years, for Permanente Northwest with GYN physician OB astaff was Dr. Moseson 2012. Previously, University. State Arizona from degree law and degree a Bachelor's holds He List. 100 Health Future HealthSpottr’s on 23rd named was Mr. Morrison Committee. Foundation for Connecting Health Steering Markle the of amember is he and sortium, Con Health Collaborative the of boards the Charles J. Singer & Co. Mr. Morrison serves on serves Mr. &Co. Morrison J. Singer Charles at apartner was he and Systems, Health and McDonnell Douglaspositions at Spectrum Mr.opportunities. held Morrison senior IT healthcare on focused that group consulting and capital aventure Partners, Firepond at partner general and aco-founder was Morrison Mr. NaviNet, co-founding to Prior policy. 28 former medical director of in Clackamas County, County, Clackamas in families uninsured and poor serving clinics community five of agroup of consists qualified health center that afederally Health, munity Com County Clackamas participant in healthcare participant active an and expert information technology He is a healthcarenetwork. healthcare communications a of NaviNet, founder co- and Solutions Health of Leverage advisor senior Bertha Alicia Moseson Bertha Thomas G. Morrison THE ASPEN CHILDREN'S FORUM CHILDREN'S ASPEN THE is is ­- ­ ­ is is University of Wisconsin. University Pettee Medal. She received her PhD at the the and Service, Public in Excellence for Award Association’s Alumni the and Award Research in Excellence Hampshire’s New of University of recipient the is She disabilities. with adults and relatedto children projects funded nationally and state many on investigator principal been has internationally. and She nationally presents numerous editorial boards and and advisory on serves disabilities, of field the in extensively published has Dr. Nisbet Hampshire. New of University the at Education of Department academic research programs. from spinout technology facilitating University, Fraser Simon at faculty bioengineering the on serves He limited. is care primary conventional to access where locations, remote or rural in often children, at-risk in activity and health assess to monitors wireless low-cost developing on focuses research Dr. current New’s schools. K-12 independent several to consultant and childhood development, as serving trusteefor and education in interest lifelong Dr. has New conference in 2004. Maternal and Child Health Epidemiology Epidemiology Health Child and Maternal the at presented was Pregnancy," in Violence

July 22–24, 2012 22–24, July tenured professor in the the in professor tenured a and Disability on Institute the of director founding the was she that, to Prior 2009. sinceserved September has she where Hampshire, New of University the at Research for provost vice David and Lucile Packard Packard Lucile and David The of chairman currently is She sector. nonprofit the to services support and software fundraising provides which Software, Telosa of CEO and founder as a physician, engineer, acareer enjoys He Group. Novent The of CEO and advancing pediatric care. companies tronics medicalsuccessful elec trepreneur, founding two en Valley Silicon and Susan Packard Orr Nisbet A. Jan NewWilliam

A spen, Colorado Colorado spen, is chairman is chairman is the senior senior the is ­

is the the is ­ Aspen, Colorado Aspen, Lynn, reside on the Stanford University campus. campus. University Stanford the on reside Lynn, husband, her and She science. computer in MS an and MBA an holds also she and economics, in aBA with University Stanford from graduated Orr Ms. Aquarium. Bay Monterey the and Institute Humanities Packard the Health, Children’s for Foundation Packard Lucile Hospital, Children’s Packard Lucile the of directors of boards the on serves she and Foundation, epidemiology, cancer prevention, environment- environmental to risks children, molecular of prevention include specialization of areas Her children. their and women pregnant of studies cohort longitudinal within techniques molecular applying now is she cancer; of studies with beginning epidemiology, molecular of field the him contact to patients his enabled he approach, and has received numerous honors. publications 200 than more of author the is She mental damage, asthma and risk assessment. develop cancer, in interactions susceptibility 2012. February in launched that York City New in service ahealth is Sherpaa, company, current Future.” Dr. the of Parkinson’s “Doctor Company chat. video and message instant e-mail, via online and office an in both connect to patients medical record that and enables doctors electronic and network social secure of a mixture Health, Hello became concept This person. in or chat video e-mail, by up followed and calls house made Dr. Parkinson response, in and, time ment appoint an choose symptoms, their input online, magazine called Dr. Parkinson a Dr. Parkinson called magazine

recognized for pioneering Dr. Perera is internationally ren’s Health. Environmental Child for Center Columbia Using an innovative York. New Brooklyn, in hood for hispractice neighbor serves as director of the the of director as serves she where Health, Public of Mailman School University's professor at Columbia Dr. Parkinson began a began Dr. Parkinson Hopkins, Johns at residency his completing After Health. Future Well, and Hello founder of Sherpaa, The Frederica P. Perera Frederica Jay Parkinson J uly 22–24, 2012 22–24, uly is co- co- is

is a is Fast Fast ­ ­ ­ THE ASPEN CHILDREN'S FORUM CHILDREN'S THE ASPEN ­ Health Centers. Academic of Association and Colleges Medicine, Association of American Medical organizations, including the of Institute of anumber of amember is he and publications, scientific 500 than more of author the is He associated withcomplications cancer and AIDS. childhood and cancers the infectious management, prevention and treatment of diagnosis, the to career his of much devoted has Dr. Pizzo Sciences. Clinical of Division NCI’s for director scientific acting as and branch pediatric NCI’s the of chief section, disease infectious (NCI) Institute’s Cancer National the of head as Pediatrics at Harvard Medical School; he served of Department the of chair and Boston in Fitness and Health. Fitness Physical on Council Governor’s Carolina North the of director executive as served and America Active Be of director founding the was also she and Carolina, North Active Be of director executive as served and co-founded Pfohl Previously, Ms. a generation. within epidemic obesity childhood the solve to aims which Lady Michelle Obama’s Obama’s Michelle Lady First support to efforts council’s the leads also directing the Council’s daily operations. She and strategy, and vision PCFSN’s developing for responsible is Pfohl Ms. lifestyle. healthy active, an live to Americans all empowering and gaging en educating, with charged are who citizens committee of volunteercommittee advisory an is PCFSN (PCFSN). Nutrition and Sports Council on Fitness, President’s the of director executive as serve 2010 to February in Obama Barack appointed by President chief of Children’s Hospital Hospital Children’s of chief physician-in- the was he and Immunology. Previously Microbiology and Pediatrics of Professor Naumann Elizabeth and Carl the School of Medicine and is University Stanford the Philip A. Pizzo Pizzo A. Philip Y. Pfohl Shellie

Let’s Move! Let’s 29 initiative, is dean of dean is was was

­ SPEAKERS SPEAKERS was a Fulbright fellow in Senegal, West Africa. West Senegal, in fellow aFulbright was he and , of University the at degrees received his graduate and undergraduate Dr. Network. Foundation Proctor Advisory Youth Falcons Atlanta the of amember is and Center for Health Communication and Marketing Connecticut of University the for Board Advisory External the of member NAACP,the astanding for trustee as serves currently He Medicine. of School Connecticut of University the at professor assistant was Dr. Proctor 2002, in foundation the joining to 2015. by Prior America in obesity childhood of trend rising the priority—reversing MA from Syracuse. from MA Rideout received her BA from Harvard and her Ms. campaigns. information health create to BET and MTV with partnerships media Emmy-winning covered in the news media. She established Association the in published entertainment television. Her research has been in content health-related of influence the and teenagers, online food advertising to children among use media new as such topics on studies and and 30 Pediatrics, Journal of the American Medical Medical American the of Journal to 2010 she was director of director was 2010she to 1997 From firm. marketing social and research a media president of VJR Consulting, foundation’s health highest strategies toward the national programs and Foundation. He directs WoodRobert Johnson the at officer program senior and Program Obesity director of the Childhood She has directed numerous Health. and Media of Study dation’s Program for the Foun Family Kaiser the Victoria Rideout Victoria Proctor C. Dwayne and has been widely widely been has and THE ASPEN CHILDREN'S FORUM CHILDREN'S ASPEN THE is is is i ­ focused his academic pursuits on health policy policy health on pursuits academic his focused has Dr. Rubin pediatrician, Ageneral university. the at Program Scholars Clinical Johnson Wood Robert the of director program associate an and Economics Health of Institute Davis Leonard the Medical of University South Carolina. and Microbiology,Basic and Immunology Clinical of Department the from PhD his received he and Medicine, of School Washington, of University the of agraduate is He specialist. disease infectious apediatric and Microbiology of professor adjunct an Medicine, of School Washington ofDepartment Pediatrics, of University the in Pediatrics of aprofessor is also Rubens Dr. still-birth. and birth preterm surrounding ( sets Broadway terminal), Blue (JFK’s Jet terminals airport Playground), (Nobu worldwide), restaurants (Imagination playgrounds Angeles), Los in Theatre Kodak and Center Lincoln at Center Film and theaters (Elinorinstitutions Bunin Munroe YOTEL) cultural to and (W hotels from projects of array adiverse to sensibility that brings he Now training. architecture his to spectacle and color for eye and theater for passion productions. Mr.repertory Rockwell brought his in him cast and dancer avaudeville as worked

July 22–24, 2012 22–24, July Hairspray director of Global the director founder and executive He also is a senior fellow at at fellow asenior is also He ofUniversity Pennsylvania. the at Medicine of School pediatrics at the Perelman associate professor of Philadelphia, and an of Hospital Children’s The at PolicyLab of co-director ed to unravel the mysteries mysteries the unravel to ed Children’sSeattle establish of initiative disciplinary inter anew (GAPPS), maturity and Stillbirth Pre Prevent to Alliance the theater—his mother of achild was Mr. Rockwell to architecture, attention his turning before Long firm. design and itecture arch cross-disciplinary Group, an award winning, Rockwell the of CEO and David Rubin David Rubens E. Craig David Rockwell ) and more. ) and

A is senior issenior spen, Colorado Colorado spen, is founder is co- is ­ ­ ­ ­ Aspen, Colorado Aspen, Dependent Care. forCommittee Early Education, Adoption and its and Care Foster on Task Force Pediatrics’ past member of the American Academy of a is He populations. vulnerable for practice and Monitor Group, a family of professional services services professional of afamily Group, Monitor of the a partner Network, Global Business of chairman and co-founder was he Salesforce, Companies in London. of Group Dutch/Shell Royal the for planning scenario headed Mr. 1982 1986, to From Schwartz world. uncertain and achanging for strategies robust develop to and future the of perspectives alternative create to institutions and governments scenario planning, working with corporations, in specializes Mr. Schwartz strategist, business and futurist renowned internationally An ness. competitive client enhancing to devoted firms Canada. of Society Royal the Association for the Advancement of Science and American the Research, Advanced for Institute Canadian the of fellow adistinguished is He Research. Medical for Award Summit Premier’s the and Scholarship, Institute Medical Hughes Howard International an Prize, Steacie 2004 the Dr. Scherer has won numerous including honors, worldwide. medicine in scientists cited top the of one as him ranking times, 20,000 than more cited been have patents his and publications 300 than more in 7. documented is work His chromosome human of studies gene disease and sequencing mapping including genetics, medical to tions contribu numerous made has He Genomics. McLaughlin Centre and The Centre for Applied Applied for Centre The and Centre McLaughlin

versation. Prior to Prior joining versation. ongoing strategic con manages the organization’s the manages and politics and policy Salesforce, where he directs Strategic Planning for and Relations Government for Global president vice of the University of Toronto of University the of director is Toronto, he and of University and Children Sick for Hospital The at Chair in Genome Sciences Endowed Research Health of Institutes Canadian holdsGlaxoSmithKline- the Peter Schwartz Stephen W. Scherer J uly 22–24, 2012 22–24, uly

is senior issenior ­

­ ­ THE ASPEN CHILDREN'S FORUM CHILDREN'S THE ASPEN

Easy most recent show, one-person five children. five their and Linda wife his with DC, Washington, in lives He Connecticut. of University the from Education in aDoctorate and University, Catholic from degree aMaster’s University, Yale from degree undergraduate his earned director of Neogenix Oncology. Dr. Shriver on Foreign Relations, and a non-executive Council the of amember is He learning. emotional and social of field the in organization research leading the (CASEL), Learning Emotional and Social, Academic, for Collaborative the chairs currently and co-founded He learning. in factors emotional and social the on focusing educator aleading remains and was Dr.1995, Shriver in Olympics Special joining Before sports. of joy the through unity and education health, promote to working all countries, 180 in athletes Olympics whose supports which Works, Smith Deavere Anna director, founding and York University New at Professor University a is She Medal. Radcliffe the and College Williams College, Spelman Pennsylvania, of University Juilliard, from them among degrees, others. She has received several honorary Philadelphia President, American The Wing, in appeared has she Great on Performances. cast , toured the United States and was broad was and States United the , toured work addresses issues of social justice. justice. social of issues addresses work artists from around the world world the around from artists Nurse Ja Nurse play play her for Prize Pulitzer the for Sheothers. was runner-up Tony nominations and fellowship, two MacArthur a include Prizes form. theater anew created have to said is actress/playwright, four million Special nearly serves he Olympics, Special of CEO and entrepreneur. chairman As film producer and business leader, educator, activist, asocial is Olympics, Special of CEO and Anna Deavere Smith Timothy Shriver

Fires in the Mirror In popular culture culture popular In ckie, ckie, Let Me Down Down Let Me 31 The West West The , chairman , chairman . Her Her . and and

­ , SPEAKERS SPEAKERS serves as director of a National Institutes of Institutes aNational of director as serves He Medicine. of School University Stanford equality and community and civic engagement. engagement. civic and community and equality along with a commitment to promoting racial and well-being; and family economic security health food, learning; and education emphasizes that approach acomprehensive through success to children vulnerable propelling on focusing and refinednew framework strategic mission a to organization the led has 2006, in CEO and president as foundation the joined who Speirn, reducing the preterm birth rate. birth preterm the reducing of objective the with effort research disciplinary atrans Research, Prematurity for Center Dimes of March the of investigator principal as serves also He Health). Child (Spectrum Health Child of leader and (Spectrum) CTSA Stanford’s of co-director Biology, Neonatal and mental TrainingHealth-funded in Program Develop 32 Academic Affairs at Affairs Academic for dean associate senior and dean vice and Services, andPregnancy Newborn for Center Johnson L. Ann B. and Charles Pediatrics, director of the of Professor Faber K. Harold Foundation Trust. Mr. W.K. Kellogg the of chair as serves also and trustees Foundation board of Kellogg the of amember is He Michigan. Creek, Battle in Foundation W.K. Kellogg the of CEO and president David K. Stevenson K. David Sterling K. Speirn THE ASPEN CHILDREN'S FORUM CHILDREN'S ASPEN THE ­ is is is the the is ­ Jefferson MedicalJefferson College. from degree medical his and College Joseph’s received his undergraduate degree from St. American Board of Medical Specialties. He the of Committee Executive the to appointed been has he and Institutions, Related and the National of Association Children’s Hospitals Doctor Child’s The of editor chief of of chief Pediatrics of Year the Book of editor and co-editor the as pediatricians of education the on impact adirect had has Stockman Dr. publications, 200 than more of author Medical University School.Northwestern The Pediatrics at the McGaw Medical Center of of chief as well as Hospital, Memorial Children’s Women’s Board Centennial Chair in Pediatrics, and Medicine of chair as serving include positions previous Dr. Stockman’s University. Duke at Pediatrics of professor clinical and Hill Carnegie Corporation of Corporation Carnegie New York. the at program security international the of chair Science and Technology Policy. She is former of Office House White the of director associate and Council Security National the of director senior President, the to assistant special as Administration Clinton the in served Wales Ms. Alleviation Track for the Clinton Global Initiative. Poverty the chaired she 2008, in and Elders, The of CEO acting as served she 2008, to 2007 From

Current Problems in Pediatrics in Problems Current July 22–24, 2012 22–24, July of North Carolina at Chapel Chapel at Carolina North of University the at Pediatrics of professor clinical a is also He Foundation. Pediatrics of Board Pediatrics and the American of Board American the of CEO and president Global Philanthropy Forum. Forum. Philanthropy Global and Council Affairs World the of CEO and president Institute.Aspen She is also and Social Innovation at the Philanthropy on Program the of director and Society, and Philanthropy president, James A. Stockman III Stockman A. James Jane Wales Jane . He is a trustee of atrustee is . He

A is vice spen, Colorado Colorado spen, , as editor-in- , and as as , and is is Aspen, Colorado Aspen, abuse and sexual assault. sexual and abuse substance violence, relationship bullying, as such problems youth societal prevent to approaches is recognized as a pioneer in school-based & Adolescents Children for Strategies &Prevention Intervention with Domestic Violence: Assessment, and 2006), Press, University (Yale Safe Them to Keep Strategies and Experiment Teens Why Behaviors: Risk Adolescent &Neglect Abuse school employs a team of more than 2,000 2,000 than more of ateam employs school engaging and student-centered. Today, the be must instruction that belief afirm had she concerned with child health. child with concerned of committees variety national advisory a on and General U.S. Surgeon the to assistant special as served has He world. developing the in and States United the in both health in child on innovation inequalities technical of impact the on focuses research Wise’s Dr. University. Stanford Studies, International for Institute Spogli Freeman the in fellow (Hogrefe & Huber, 2011). &Huber, (Hogrefe Dr. Wolfe

. His recent books include chief of the journal journal the of chief Toronto,of editor-in- and University the at Psychology and Psychiatry of professor is He (CAMH). Health Addiction and Mental for Centre the at Health Chair in Children’s Mental ground rules to follow, but but follow, to rules ground 1997, in few were there launch of the online school Ms. Young directed the education. Whentransform to avision with began she which School, Virtual Florida the of CEO and Prevention, and seniorPrevention, and and Outcomes Policy, for Center the of director School of Medicine. He is University Stanford at Pediatrics of professor and Society and Health Child of Professor Behrman E. Julie Young Wolfe A. David Wise H. Paul J uly 22–24, 2012 22–24, uly Growing Up Up Growing is president is the Richard Richard the is

is the RBC the is Child

THE ASPEN CHILDREN'S FORUM CHILDREN'S THE ASPEN Sprinkles Global Health Initiative, have focused on on focused have Initiative, Health Global Sprinkles the program, his and Toronto.of Dr. Zlotkin improving the lives of children globally. globally. children of lives the improving to contributions his for Canada, in honor civilian highest the Canada, of Order the awarded was he recently, and, globally children for work advocacy international his for 2001 in Award Humanitarian Heinz HJ the awarded was He children. mal control to advocacy and research twenty-first century. twenty-first the for education transforming about extensively written has she and boards numerous on serves presenter at distance learning conferences, Young afrequent is Ms. Gates. Bill and Jobs Tech & Learning’s by technology educational in influencer top as chosen was she and Fame, of Hall Association’s Learning U.S. Distance the into inducted was Young Ms. 2002, In abroad. and States United throughoutmultiple the educational services representatives—providingcustomer service teachers, courseware and developers, IT experts Top 30@100, alongside Steve Steve alongside Top 30@100, Sick Children and University University and Children Sick for Hospital The at Sciences Nutritional and Sciences Paediatrics, Public Health of aprofessor is also He Children. Sick for Hospital The at Affairs Academic president of Medical and Stanley Zlotkin

33

­n

utrition in in utrition is vice is SPEAKERS GENERAL INFORMATIONGENERAL GENERAL INFORMATION ASPEN HONORARY CO-CHAIRS AND VOLUNTEER HOSTS PLANNING GROUP

HONORARY CO-CHAIRS Pam King Sams CHAIR Executive Vice President for Development Lester Crown Ann & Robert H. Lurie Children’s Hospital of Chicago Children’s National Medical Center, Washington, DC Susan Packard Orr Lucile Packard Children’s Hospital, Palo Alto, California David Alexander VICE CHAIR President and CEO HOST COMMITTEE Lucile Packard Foundation for Children’s Health Palo Alto, California Stephanie V. Blank Children’s Healthcare of Atlanta Ted Garrard President and CEO Jane Weitzman Boston Children’s Hospital SickKids Foundation, Toronto Anne and Chris Reyes Ann & Robert H. Lurie Children’s Hospital of Chicago Stuart Sullivan Executive Vice President and Chief Development Officer Cherie Lucks Nationwide Children’s Hospital, Columbus, Ohio The Children’s Hospital of Philadelphia Benjamin S. Walton Children’s Hospital Colorado Tom Sullivan President Children’s Hospital of Chicago Foundation Nancy Gordon Texas Children’s Hospital, Houston Ann & Robert H. Lurie Children’s Hospital of Chicago Lisenne Rockefeller Arkansas Children’s Hospital, Little Rock Jane Wales Vice President Mary Hart Children’s Hospital Los Angeles The Aspen Institute Patty and John Noel Children’s Hospital of Wisconsin, Milwaukee Steve Winesett President and CEO Susan Packard Orr Lucile Packard Children’s Hospital, Palo Alto, California Children’s Hospital Colorado Foundation, Colorado Lynne Garbose The Children’s Hospital of Philadelphia Marion Woyvodich Executive Director Joan and Peter Stephans Children’s Hospital of Pittsburgh of UPMC The Woodmark Group, Seattle, Washington Ernest Rady Rady Children’s Hospital-San Diego, California Laurie Oki Seattle Children’s Bo and Kevin Maher St. Louis Children’s Hospital Janice O’Born The Hospital for Sick Children, Toronto Don Lindsay and Kevin Bent BC Children’s Hospital, Vancouver Cindy and Evan Jones Children’s National Medical Center, Washington, DC

34 THE ASPEN CHILDREN'S FORUM July 22–24, 2012 Aspen, Colorado Aspen, Colorado July 22–24, 2012 THE ASPEN CHILDREN'S FORUM 35 GENERAL INFORMATIONGENERAL

Leading the advancement of philanthropy to improve health for children everywhere Leading the advancement of philanthropy to improve health for children everywhere GENERAL INFORMATION 2011–2012 BOARD OF DIRECTORS PARTICIPATING HOSPITALS

Claudia A. Looney CHAIR Children's Healthcare of Atlanta * Atlanta, Georgia Children’s Hospital Los Angeles Boston Children's Hospital * Boston, Massachusetts Los Angeles, California Ann & Robert H. Lurie Children’s Hospital of Chicago * Chicago, Illinois Eugene Hayes VICE CHAIR Cincinnati Children's Hospital Medical Center Cincinnati, Ohio Children’s Healthcare of Atlanta Foundation Atlanta, Georgia Nationwide Children's Hospital Columbus, Ohio Pam King Sams SECRETARY Children's Medical Center Dallas, Texas Children’s National Medical Center Children’s Hospital Colorado * Colorado Washington, DC Texas Children's Hospital * Houston, Texas John Bel TREASURER Children’s Mercy Hospitals and Clinics Kansas City, Missouri Arkansas Children’s Hospital Foundation Arkansas Children's Hospital Little Rock, Arkansas Little Rock, Arkansas Children’s Hospital Los Angeles * Los Angeles, California Steve Winesett PAST CHAIR Children’s Hospital Colorado Foundation C hildren's Hospital and Health System of Wisconsin Milwaukee, Wisconsin Colorado The Montréal Children's Hospital Montréal, Québec David Alexander Lucile Packard Foundation for Children’s Health Children's Hospital & Research Center Oakland * Oakland, California Palo Alto, California Lucile Packard Children's Hospital at Stanford * Palo Alto, California Ted Garrard SickKids Foundation The Children's Hospital of Philadelphia * Philadelphia, Pennsylvania Toronto, Ontario Phoenix Children’s Hospital Phoenix, Arizona Jim Miller Children’s Hospital and Health System Foundation of Wisconsin Children's Hospital of Pittsburgh of UPMC * Pittsburgh, Pennsylvania Milwaukee, Wisconsin Rady Children's Hospital * San Diego, California Tom Sullivan Children’s Hospital of Chicago Foundation Ann & Robert H. Lurie Children’s Hospital of Chicago Seattle Children's * Seattle, Washington Chicago, Illinois St. Louis Children's Hospital St. Louis, Missouri All Children's Hospital * St. Petersburg, Florida The Hospital for Sick Children * Toronto, Ontario ADMINISTRATION BC Children's Hospital Vancouver, British Columbia

Marion Woyvodich EXECUTIVE DIRECTOR Children's National Medical Center * Washington, DC Seattle, Washington

*Aspen Children's Forum sponsor

36 THE ASPEN CHILDREN'S FORUM July 22–24, 2012 Aspen, Colorado Aspen, Colorado July 22–24, 2012 THE ASPEN CHILDREN'S FORUM 37 GENERAL INFORMATIONGENERAL

ASPEN CLUB & SPA

GENERAL INFORMATION B Aspen Meadows Reception Center 1

A DURANT DEAN ST. Doerr-Hosier Center 2 DURANT Paepcke Auditorium 3 COOPER D Aspen Children’s Forum Shuttle

HYMAN FIRST Running on a continuous loop MONARCH SECOND to the Aspen Institute campus HOPKINS ORIGINAL The Little Nell each morning from The Little Nell, ASPEN A MAIN 675 E Durant Ave St. Regis, and the Hotel Jerome. SPRING GARMISCH THIRD St. Regis From the Aspen Institute Campus C BLEEKER GALENA 315 E Dean St B each afternoon/evening returning HUNTER HALLAM HWY 82 to hotels and Rubey Park. See I Hotel Jerome FIFTH FOURTH transportation flyer for more 330 E Main St C MILL FRANCIS SIXTH detailed information. SEVENTH EIGHTH SMUGGLER Rubey Park Bus Terminal Durant Ave between Galena & Mill D FREE Cross-Town Shuttle NORTH 7:54 AM – 9:06 PM daily Every 30 minutes, the RFTA Cross-Town Shuttle provides FREE transportation NORTH to and from downtown Aspen to the Aspen Institute campus and Music Tent. GILLESPIE The bus stop is in the main Music Tent parking lot.

OUTBOUND 1 From Rubey Park (downtown Aspen) to the Music Tent at the Aspen Institute campus at 3 :06 and :36 past each hour. 2

INBOUND From the Music Tent at the Aspen Institute campus to Rubey Park at :15 and :45 past each hour. Call 970 925 8484 for more information.

38 THE ASPEN CHILDREN'S FORUM July 22–24, 2012 Aspen, Colorado Aspen, Colorado July 22–24, 2012 THE ASPEN CHILDREN'S FORUM 39 SPONSORS

GENERAL INFORMATION THE ASPEN CHILDREN’S FORUM is a partnership of the Aspen Institute and The Woodmark Group

The Aspen Institute mission is twofold: to foster values-based leadership, encouraging individuals to reflect on the ideals and ideas that define a good society, and to provide a neutral and balanced venue for discussing and acting on critical issues. The Aspen Institute does this primarily in four ways: seminars, young-leader fellowships around the globe, policy programs, and public conferences and events. The Institute is based in Washington, DC, Aspen, CO, and on the Wye River on Maryland’s Eastern Shore and has an international network of partners. For more information, visit www.aspeninstitute.org.

Leading the advancement of philanthropy to improve health for children everywhere

The Woodmark Group is a not-for-profit organization whose members are 25 prominent children’s hospitals or independent foundations that support children’s hospitals in the United States and Canada. The hospitals and foundations created The Woodmark Group so that their development staff members could work collaboratively to lead the development of philanthropy to improve the health of children everywhere. Woodmark’s strategies to achieve these goals focus on improving practice in the art and science of development. Its members work to discover, share and implement best practices in fund-raising. Collaborative efforts are focused on two areas: fostering the culture of philanthropy in each hospital community by building major-gifts programs and maximizing the exchange of best practices among Woodmark members in all facets of the development practice.

40 THE ASPEN CHILDREN'S FORUM July 22–24, 2012 Aspen, Colorado ASPEN, COLORADO JULY 22–24, 2012

5

5