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Traumatic Brain Injury Resources Offered by the MSKTC to Support Individuals Living with Traumatic Brain Injury Edition 1 November 2013 www.MSKTC.org/TBI Traumatic Brain Injury Edition 1 November 2013 This document may be reproduced and distributed freely. This document was developed under a grant from the U.S. Department of Education, the National Institute on Disability and Rehabilitation Research (NIDRR), grant number H133A110004. However, this does not necessarily represent the policy of the U.S. Department of Education, and you should not assume endorsement by the Federal Government. Model Systems Knowledge Translation Center American Institutes for Research 1000 Thomas Jefferson Street, NW Washington, DC 20007 www.MSKTC.org [email protected] Phone: 202-403-5600 TTY: 877-334-3499 Connect with us on Facebook: Traumatic Brain Injury Model Systems Twitter: TBI_MS About the Model Systems Knowledge Translation Center The Model Systems Knowledge Translation Center (MSKTC) summarizes research, identifies health information needs, and develops information resources to support the Model Systems programs in meeting the needs of individuals with spinal cord injury (SCI), traumatic brain injury (TBI), and burn injury (Burn). The health information offered through the MSKTC is not meant to replace the advice from a medical professional. Users should consult their health care provider regarding specific medical concerns or treatment. The current MSKTC cycle is operated by American Institutes for Research® (AIR®) in collaboration with the Center for Chronic Illness and Disability at George Mason University and BrainLine at WETA. The Center is funded by the U.S. Department of Education, National Institute on Disability and Rehabilitation Research (NIDRR) under grant number H133A110004. http://www.msktc.org About the Model Systems Program Model Systems are specialized programs of care in spinal cord injury (SCI), traumatic brain injury (TBI), and burn injury (Burn). Model Systems conduct innovative and high-quality research, provide patient care, and offer other services to improve the health and overall quality of life for individuals with SCI, TBI, and burn injury. Model Systems are funded by the National Institute on Disability and Rehabilitation Research (NIDRR). Traumatic Brain Injury Model Systems 2012–2017 Funding Cycle Mayo Clinic Traumatic Brain Injury Model System Rusk Rehabilitation Traumatic Brain Injury Model Mayo Clinic, Rochester, MN System Rusk Institute of Rehabilitation Medicine, The Moss Traumatic Brain Injury Model System New York, NY Albert Einstein Healthcare Network, Philadelphia, PA Spaulding-Harvard Traumatic Brain Injury New York Traumatic Brain Injury Model System Model System Mount Sinai School of Medicine, New York, NY Spaulding Rehabilitation Hospital, Boston, MA North Texas Traumatic Brain Injury Model System The Texas TBI Model System of TIRR Baylor Institute for Rehabilitation, Dallas, TX, and TIRR Memorial Hermann, Houston, TX The University of Texas, Southwestern Medical Center, Dallas, TX UAB Traumatic Brain Injury Model System University of Alabama at Birmingham, Northern New Jersey Traumatic Brain Injury System Birmingham, AL Kessler Institute for Rehabilitation, West Orange, NJ University of Pittsburgh Traumatic Brain Injury Ohio Regional Traumatic Brain Injury Model Model System System Ohio Valley Center for Brain Injury University of Pittsburgh School of Medicine, Prevention and Rehabilitation, Columbus, OH Pittsburgh, PA South Florida Traumatic Brain Injury Model System University of Washington Traumatic Brain Injury University of Miami, Miller School of Medicine, Model System Miami, FL University of Washington, Seattle, WA Rehabilitation Hospital of Indiana Traumatic Brain Virginia Commonwealth Traumatic Brain Injury Injury Model System Model System Indiana University School of Medicine, Indianapolis, IN Virginia Commonwealth University, Richmond, VA The Rocky Mountain Regional Brain Injury System Craig Hospital, Englewood, CO 1 About the Traumatic Brain Injury National Data and Statistical Center The Traumatic Brain Injury Model Systems National Data and Statistical Center (TBINDSC) advances medical rehabilitation by increasing the rigor and efficiency of scientific efforts to longitudinally assess the experience of individuals with traumatic brain injury (TBI). The TBINDSC provides technical assistance, training, and methodological consultation to 16 TBIMS centers as they collect and analyze longitudinal data from people with TBI in their communities, and they conduct research toward evidence-based TBI rehabilitation interventions. The TBINDSC is operated by Craig Hospital Research Department and is funded by the National Institute on Disability and Rehabilitation Research. https://www.tbindsc.org/ 2 Contents Overview of Traumatic Brain Injury Products Offered Through the MSKTC .......................................................... 4 Listing of Traumatic Brain Injury Products Offered Through the MSKTC……….……… .............................................. 5 Opportunities To Participate in MSKTC Activities .................................................................................................. 6 Collection of Traumatic Brain Injury Factsheets Offered by the MSKTC ................................................................ 6 Traumatic Brain Injury and Acute Inpatient Rehabilitation ......................................................................... 9 Alcohol Use After Traumatic Brain Injury................................................................................................... 13 Balance Problems After Traumatic Brain Injury ......................................................................................... 17 Cognitive Problems After Traumatic Brain Injury ...................................................................................... 20 Couples’ Relationships After Traumatic Brain Injury ................................................................................. 24 Depression After Traumatic Brain Injury.................................................................................................... 28 Driving After Traumatic Brain Injury .......................................................................................................... 31 Emotional Problems After Traumatic Brain Injury ..................................................................................... 34 Fatigue and Traumatic Brain Injury ............................................................................................................ 38 Headaches After Traumatic Brain Injury .................................................................................................... 40 Returning to School After Traumatic Brain Injury ...................................................................................... 43 Seizures After Traumatic Brain Injury ........................................................................................................ 47 Sexuality After Traumatic Brain Injury ....................................................................................................... 50 Sleep and Traumatic Brain Injury ............................................................................................................... 53 Understanding TBI—Part 1: What happens to the brain during injury and in the early stages of recovery from TBI? ............................................................................................................ 57 Understanding TBI—Part 2: Brain injury impact on individuals’ functioning ............................................ 61 Understanding TBI—Part 3: The Recovery Process ................................................................................... 65 Understanding TBI—Part 4: The impact of a recent TBI on family members and what they can do to help with recovery .................................................................................................... 68 Facts About the Vegetative and Minimally Conscious States After Severe Brain Injury ............................ 72 3 Overview of Traumatic Brain Injury Products Offered Through the MSKTC The Model Systems Knowledge Translation Center (MSKTC) offers a variety of free resources on traumatic brain injury (TBI) to support people with disabilities and their caregivers, researchers, practitioners and clinicians, and policy makers. The following resources are available at www.MSKTC.org/TBI. TBI Factsheets The MSKTC collaborates with TBI Model Systems to produce evidence-based and consumer-friendly factsheets. TBI Slideshows The MSKTC develops traditional and narrated slideshows based on information from select factsheets. These resources are developed for users who prefer a format with more images, less text, or an audio option. TBI Hot Topic Module The MSTKC developed a Hot Topic Module, which is a collection of resources such as videos, factsheets, and slideshows to support individuals who live with TBI. TBI Quick-Turnaround Reviews The MSKTC provides quick reviews of Model Systems research studies funded by the National Institute on Disability and Rehabilitation Research (NIDRR). Those reviews offer timely summaries of newly released Model System research studies using lay language for easy access. TBI Systematic Reviews The MSKTC collaborates with Model System programs to conduct systematic reviews on high-priority health topics to inform clinical practice. Results of a systematic review provide the best information for making decisions about treatment,
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