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Newsletter for Parents and Carers of Children and Young People with Disabilities And/Or Special Educational Needs in Sheffield

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Newsletter for Parents and Carers of Children and Young People with Disabilities And/Or Special Educational Needs in Sheffield Newsletter For parents and carers of children and young people with disabilities and/or special educational needs in Sheffield Published by the Sheffield Parent Carer Forum Spring 2014 Issue 9 FREE! Services hit by New specialist budget cuts nurses at Ryegate Around £1.5m to be Supporting children saved from disabled with autism and learning children’s services disabilities Page 9 Page 14 Travel insurance Are you ready for Don’t take your child the SEN reforms? on holiday until you’ve Find out how the system is read this! changing from September Page 21 Page 18 www.sheffieldparentcarerforum.org.uk 1 About us The Sheffield Parent Carer Welcome to our Spring Newsletter! Forum is an independent group of parents and carers of children with disabilities and/or special educational needs. Our aim is to make sure the needs of our children are met. We understand the challenges you face on a day-to-day basis, because we are parents and carers too. We organise regular events where parents can meet each other. We can tell you about the most up-to-date sources of information for your children. We are here to give parent carers a voice. A very warm welcome to our spring travel passes; the importance of travel By joining the Parent Carer Forum, we Proudly sponsored by Irwin Mitchell Solicitors. newsletter! As we go to print, we are insurance if your child falls ill on holiday; and can work together to improve services for Legal experts in services for you and your family our children. including challenging health and social care organising our “Countdown to the SEN “Ask The Lawyer” features the legal position Membership is free, packages, special educational needs, court of Reforms” information day at St Mary’s on regarding post-16 specialist provision. the 14th March. This event is to provide join us today! protection issues and personal injury claims. If you have a child or young person aged information to parent carers about the 0-25 with a disability or additional needs, Fill in the membership form at the back www.irwinmitchell.com biggest overhaul in 30 years of the special we need to hear from you! We know that of this newsletter to join. educational needs system, taking place having a child or young adult with additional Get in touch from September 2014. There is still a great Your advert here? needs can be difficult, but we want to ‘take By Post: deal about the reforms to be confirmed; the pulse’ of parent carers in the City in our the pathfinders in other local authority St Mary’s Community Centre Would you like to advertise your State of Sheffield survey. This will be our areas are reporting many challenges, not Bramall Lane products or services in our next most comprehensive survey yet. Details on least the timescales within which all these Sheffield newsletter? For a small fee, you could how to take part are on page 5, and we will changes are supposed to be happening. S2 4QZ reach around 4,000 families in Sheffield. use the results to lobby for better services By phone: 0300 321 4721 •Our Full rates page are: £100 But the reforms will happen and parent and to protect existing ones. Whilst we try By e-mail: • ½ page £50 carers need to be aware of the changes to establish the scale and impact of the which will affect ALL youngsters with new budget cuts on our local services, your [email protected] • ¼ page £25 Website: additional needs. The “local offer” should opinions are needed more than ever! 0300 321 4721 provide clear information about what Although we may not be able to predict the www.sheffieldparentcarerforum.org.uk Please call us on services are available in the area and how Drop-in: future for our children and we know there to discuss your requirements. to access them. Certainly that should be are many challenges ahead, what we do Currently by appointment only; very beneficial to parent carers and there know for sure is that as parent carers we please contact us to arrange a time. is a great deal of work going on with the are all stronger together - we support, learn reforms – co-production is a key theme - Printed by Brightstar Creative Ltd. Views expressed in this from and guide each other. We will shortly Find us on newsletter do not necessarily refl ect the views of Sheffi eld and we will continue to work on behalf of Facebook! be welcoming our 1,000th member to the Parent Carer Forum. Sheffi eld Parent Carer Forum does our members and children, and provide Forum - and this is very much something to not endorse any organisations, products or services updates as the position becomes clearer! mentioned in this newsletter. Please contact us before celebrate! reproducing any material contained in this newsletter. Read more about what will happen from Follow us on Twitter! We welcome articles from parents, professionals and ‘Side of the Hill’ page 18. Best wishes @ShefParentForum practitioners. Please contact us to discuss possible contributions. Sheffi eld Parent Carer Forum is a registered Also inside this edition: an update on the Jayne Woodward, Co-Chair charity and a company limited by guarantee. campaign against restrictions to disability Design by Company number: 7226540. Charity number: 1145913 2 www.sheffieldparentcarerforum.org.uk www.sheffieldparentcarerforum.org.uk 3 FORUM NEWS Take part in our survey and protect vital services! If you live in Sheffield and care for a child or young person (aged 0-25) Christmas with a disability or additional needs, we need your views. We want to know if you are getting film is a hit enough support; whether you are Please take part! managing to combine paid work and with kids caring; and how happy you are with www.surveymonkey. your child’s education, childcare, respite, com/s/StateofSheffield2014Go to: health care and therapy services. The questions we are asking are based No internet access? Taking your disabled child to the movies can The film was shown with reduced sound on hundred of conversations we have 0300 321 4721 be fraught with difficulty – especially if they levels, dimmed lights and without trailers, to had with other parents over the years. like to dance in the aisle, provide a running accommodate those with sensory issues. Call us on Your answers will help us gather data on commentary, or leave half way through the film. “Really good to have no trailers to request a hardcopy “My son was happy, which made me a range of issues, and enable us to speak Closing date so no waiting, and to know others with a strong voice on your behalf. happy as well. Everything was nice.” understand and didn’t have to worry As Sheffield City Council is gearing up to 30 April 2014 about my child’s behaviour.” implement yet another round of budget At our recent private screening at the cuts (see page 9), it is vital that we can Prize draw for Showroom Cinema, all of these things The feedback was so overwhelmingly positive show which services are a real lifeline happened, and none of them were a problem. completed surveys... that we will make it a priority to organise for families – and which ones are so Despite the rather early start (9.30am on a another screening this year. overstretched that nobody should even Win £50, £30 or £20! Saturday morning!), over 200 parents and “We really hope you do it again next think about cutting their budgets! children joined us for mince pies and biscuits year... It was our first successful trip to in the Showroom Café, before settling down to the cinema... Thank you!!” enjoy a relaxed screening of The Polar Express. Forum membership extended to parents of young adults The Sheffield Showroom, At our Annual General Meeting (AGM) in carers of children and teenagers, so we’re Showroom: 0114 275 7727 November 2013, the trustees voted to on a steep learning curve when it comes to Cineworld and Vue all run extend membership of the Forum to parents understanding adult services! However, this monthly autism-friendly Cineworld: 0114 242 1238 of young adults with disabilities up to the is something we’ll all have to face sooner or screenings, which usually age of 25. This brings us in line with new later. We’re pleased that we already have Vue Cinema: 0871 224 0240 legislation intended to establish a 0-25 good links with other organisations who take place on Sunday (ignore voice, press 0) special needs system (see pages 18 and 19). represent carers of disabled adults, such as mornings. Carers in Sheffield and the FLASh group at Jayne Woodward, Co-chair of the Parent Mencap, and we hope to work even more Carer Forum, said: “Most of our trustees are closely with them in the future.” 4 www.sheffieldparentcarerforum.org.uk www.sheffieldparentcarerforum.org.uk 5 FORUM NEWS New! Coffee mornings at St Mary’s Forum membership Do you tweet? approaches 1,000 Whenever we ask parents to rate our events We didn’t, until recently. Maybe it’s a and meetings, they invariably tell us how much Membership applications have been generation thing, but many of us don’t they enjoyed talking to other parents going coming in thick and fast recently, with really “get” Twitter. Luckily, our media-savy through similar things. So we thought we’d around five new families joining every week. trustee Deborah Woodhouse has taken run a few coffee mornings to see whether any We now have over 930 members, which pity on our dormant Twitter account and of you fancied getting together just to chat - makes us one of the biggest parent carer started tweeting on our behalf – gaining without the constraints of minutes, speakers forums in the country.
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