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THE MAGAZINE OF THE LUCILE PACKARD FOUNDATION FOR CHILDREN’S HEALTH CHILDREN’S FOR FOUNDATION PACKARD LUCILE THE OF MAGAZINE THE PackardChildren

SUMMER 2020

Packard Children’s News

SUMMER 2020 Volume 21, Number 1 IN THIS ISSUE

LUCILE PACKARD FOUNDATION FOR CHILDREN’S HEALTH

BOARD OF DIRECTORS Elizabeth Dunlevie, Chair Mindy Rogers, Vice Chair We’re in this together Kirk Bostrom Cynthia J. Brandt, PhD, President and CEO C. Bryan Cameron In the past few months, our world has become an even more complex Jeff Chambers place. Racism stands directly in contrast to our values and our Kate Dachs Susan Ford Dorsey mission of improving health for all kids and moms. The Foundation is Jane Dunlevie Paul Fisher, MD committed to fighting against racial injustice, discrimination, and the Paul King Nancy Larsson health disparities that they cause for children and families. We will Mary B. Leonard, MD, MSCE do all that we can to listen, learn, and effect change in partnership Esther Levy John Lillie with you. Lloyd Minor, MD Katherine Orr At the same time, we continue to tackle the pressing challenges of Susan P. Orr Michelle Sandberg, MD the COVID-19 pandemic. We are so proud of the Packard Children’s Chris Schaepe (on leave of absence) team that has been on the frontlines, fighting for the health of our Bill C. Sonneborn David K. Stevenson, MD community and now helping us safely reopen. George Tidmarsh, MD, PhD Hilary Valentine While it’s not primarily a kids’ disease, COVID-19 has a huge Charlotte Waxman impact at a hospital like ours. Childhood cancer, congenital heart FOUNDATION LEADERSHIP disease, and other complex illnesses do not take a break. For patients Cynthia J. Brandt, PhD, President and CEO 2 8 12 Brian Perronne, COO and Senior VP, Development like Bronte (see page 8), few treatments are truly “elective.” As Sarah Collins, VP, Principal Gifts Rachel Olinger, Associate VP, Major Gifts we safely resume surgeries and care, we must ensure that all our patients, families, and staff have the support they need. EDITOR Jennifer Yuan We are also proud of Stanford Medicine’s many contributions (see 2 Caring for Our Community 16 2019 Report on Giving ASSOCIATE EDITORS page 3), such as developing one of the first FDA-approved diagnostic See how Packard Children’s quickly ramped up Megan Alpers-Raschefsky 18 Thank You Notes Jodi Mouratis tests, serving as expert voices on the latest news, and advising local frontline efforts in response to the COVID-19 pandemic WEB EDITORS Ali Kagawa and state leaders on the reopening of the economy and schools. 22 In the News 8 Small but Mighty Manya Khan We are especially grateful to donors like you for giving all you EDITORIAL ASSISTANT Newborn becomes one of the smallest to receive an 24 Humans of Packard Children’s Krishna Farol-Schenck can to support children and families—including those of you who implanted heart monitoring device CONTRIBUTING WRITERS participated in our Virtual Summer Scamper from near and far! Lynn Nichols We’re one of the Elizabeth Valente Thanks to you, we can ensure care for all, accelerate discovery, and 12 Stop Sneaky Sugar in Its Tracks nation’s top 10 DESIGN Stanford pediatrician provides tips and recipes for Andrea Hopkins Design make the biggest impact. We’re in this for the long haul and will children’s hospitals! families looking to eat healthier PHOTOGRAPHY continue to do our very best for moms and kids. Read more on page 22. Toni Bird Devine Photography With gratitude, Courtesy of the Doria family ON THE COVER: Steve Fisch Breana Janay Photography Teagan Doria and hundreds of other community Kristen Loken, San Francisco Opera members sent messages of gratitude and support Douglas Peck to the care team members on the frontlines of Courtesy of the Sauer family Erin Scott the pandemic. See page 3 to learn more about our hospital and community’s response to COVID-19. Packard Children’s News is published by the Lucile Cynthia J. Brandt, PhD Packard Foundation for Children’s Health, an independent public charity incorporated in 1996. President and Chief Executive Officer PHOTO COURTESY OF THE DORIA FAMILY For more information or to share comments, Lucile Packard Foundation for Children’s Health please email [email protected]. PACKARD CHILDREN’S NEWS | SUMMER 2020 1 Caring for Our Community Drive-Through Testing For maximum safety, During COVID-19 patients remained in their cars for testing. At the height of the pandemic, Stanford processed 1,000 tests a day, helping families get the answers and care they needed. STEVE FISCH

Moment of Gratitude First responders and law enforcement lined up Researchers Chip In outside Packard Children’s As the need for testing mounted, the supply of to show their appreciation RNA extraction kits required for lab analysis at as medical staff arrived and Stanford dwindled. Michelle Monje, MD, PhD, departed during the was among the researchers who collected 6:15 a.m. shift change. supplies, filling her Honda Odyssey with dozens

DOUGLAS PECK of kits. “There was a really nice spirit of wanting to help as much as we could,” she says.

The outbreak of COVID-19 this spring brought challenges and uncertainty to our world. We are proud to share how Lucile Packard Children’s Hospital Stanford quickly ramped up frontline efforts to care for the physical and mental health of our patients, families, staff, and community, as well as research to solve this global problem. These efforts would not have been possible without donor support. Philanthropy fuels research and drives discoveries. We are deeply grate- ful for friends like you, whose support enables us to have the greatest impact for kids and expectant mothers in our community and around Simple Solution the world. David Camarillo, PhD, associate professor of bioengineering at Stanford, and his lab designed and built simplified ventilators Stanford Leads the Way for patients with severe cases of COVID-19 Stanford pathologist Benjamin Pinsky, MD, PhD, in regions where the machines are scarce. and his colleagues deployed one of the first FDA- The project was made possible by a grant approved diagnostic tests for COVID-19. We provided from the Chan Zuckerberg Biohub. testing not only to Stanford and Packard Children’s

patients but to other Bay Area hospitals as well. STEVE FISCH

2 supportLPCH.org PACKARD CHILDREN’S NEWS | SUMMER 2020 3 Surge in Telehealth Visits Procedures Postponed Stanford Children’s Health While COVID-19 isn’t as performed up to 800 prevalent among children, the virtual visits per day. It impact on Packard Children’s allowed families to shelter patients was real. To prepare in place and reduce the for a potential surge in spread of COVID-19 while patients and minimize the continuing to receive the risk of infection, our hospital care they needed. postponed key procedures. Paizlee Davenport’s kidney transplant was postponed to keep her dad, who was also her organ donor, safe. The hospital resumed these important procedures in May, and Paizlee (bottom left) received her new kidney in June.

Fun and Games Making Masks With our playrooms closed, Child Life and Sophie’s Volunteers from the Auxiliaries’ Chalk Art Brings Cheer Our child life specialists Place Broadcast Studio increased programming that Hearts and Hands affiliate shared positive messages of hope through sidewalk patients and families could enjoy from their rooms. sewed more than 3,000 masks chalk art on our hospital walkways. A show called “Taste Buds” featured pediatric in nine weeks for hospital staff neurosurgeons David Hong, MD, (second from left) and families to use outside the High-Tech Help Donors contributed funds to purchase and Gerald Grant, MD, FACS, (second from right) hospital. two “germ-zapping robots.” The robots prevent harmful competing in a taste test. infections by quickly destroying deadly microorganisms with ultraviolet light.

4 supportLPCH.org PACKARD CHILDREN’S NEWS | SUMMER 2020 5 Discovery of Rare Syndrome in Kids Most kids with COVID-19 had mild, moderate, or asymptomatic cases. In May, physicians in New York, London, and elsewhere noticed that some children with COVID-19 were exhibiting symptoms of a serious multisystem inflammatory condition. Packard Children’s emerged STEVE FISCH as a leader in educating parents and public health officials. Yvonne Maldonado, MD:

Combating Secondary Impacts of Leading the Local and Global Response to the Pandemic COVID-19 on Underserved Communities The Pediatric Advocacy Program worked SPOTTING EMERGING DISEASES , identifying how They are scaling up a study of an antiviral drug, with government agencies to secure they spread, testing therapies and solutions— favipiravir, to see whether it might help to reduce legal help for COVID-19-related housing Yvonne “Bonnie” Maldonado, MD, does all of it at symptoms and viral shedding. issues, improve employment benefits, once, in real time. It’s a rare skill that has touched Another study—a collaboration with the Bill and and increase access to mental health care. the lives of millions of kids around the world. Melinda Gates Foundation—has recently concluded The Department of Family-Centered Early this year, as COVID-19 moved into the Bay that self-administered, home-based COVID-19 tests Care helped patient families unable to Area, it was clear that Maldonado—a pediatrician are just as accurate as the invasive kind given in afford food while in the hospital and and chief of the Division of Infectious Diseases in hospitals. The promise of this work is potentially partnered with food banks to ensure the Department of Pediatrics at Stanford University groundbreaking. Not only do self-administered families had enough to eat when they School of Medicine—was the right person to lead tests minimize exposure for patients and health returned home. Stanford’s response to the epidemic. Her eyes care providers, they also could help solve the urgent were already on China, and she knew what she need to increase testing capacity to slow the spread was seeing. of the virus. Her prior work on mother-to-child transmis- “Through decades of work combating global sion of HIV in sub-Saharan Africa is credited with infectious diseases, Bonnie Maldonado has saved Even during the seven weeks at the Video Goes Viral preventing hundreds of thousands of babies from hundreds of thousands of lives,” says Lloyd Minor, height of the pandemic, Packard Clinical Assistant acquiring HIV. Her efforts have helped set global MD, the Carl and Elizabeth Naumann Dean of the Children’s continued to deliver care: Professor Maya Adam, guidelines for the use of vaccinations for polio, School of Medicine. “That’s not hyperbole. It’s fact. MD, created a short, measles, meningitis, and influenza. Her leadership of Stanford’s response to COVID-19 babies were born 603 wordless animated This deep experience enabled Maldonado to be proves very powerfully what her expertise means video demonstrating a clear and powerful voice helping to slow person- to us here in the Bay Area.” 46 heart surgeries were performed how to prevent to-person spread of COVID-19 and to protect the Beyond Stanford, she is helping to advise Gov. Gavin Newsom on the state’s response to the virus. 7 stem cell transplants and 6 organ transmission of the public. Maldonado co-directs Stanford’s COVID-19 She is consulting on plans for when and how to transplants were deemed essential virus. The video clinical trials research unit, and she is directly spread worldwide, involved in several of the 40 scientific investiga- get kids safely back in school. And her insights are attracting 1.2 million tions underway or proposed. She and her colleagues sought out by local and national media reporting on views within 10 days. are trying to determine how long infected people the disease. shed or transmit the virus to others both while In all of her work, she knows that her greatest they have symptoms and after symptoms subside. successes are quiet ones: children who don’t get sick.

6 supportLPCH.org PACKARD CHILDREN’S NEWS | SUMMER 2020 7 Small but Mighty Newborn becomes one of the tiniest to receive an implanted heart monitoring device

BY LYNN NICHOLS and JODI MOURATIS

When Bronte Benedict was born last October, everything seemed to go as expected. She loved to be held and to go for walks in her stroller with her parents, Marvin and Amanda, near the family’s home in San Francisco.

A WEEK LATER, the Benedicts took Bronte in long. The team did a wonderful job educating us for a routine checkup. They expected to hear and including us in all their decisions. We felt like the usual—how long she was and how much we had a voice the whole time. We called Packard weight she’d gained. Instead, their pediatrician Children’s Hospital home by the time we left.” detected a fast heartbeat and rushed them across “At no point did we feel rushed,” adds Marvin. the street to California Pacific Medical Center, “There were a thousand medical terms, but they which works in partnership with Lucile Packard would patiently sit down and explain them to Children’s Hospital Stanford. A cardiologist did us. One doctoral fellow had a tattoo of the heart an ultrasound-guided electrocardiogram and condition she was most intrigued with. That said Bronte’s heart was beating much too quickly. really struck me. I thought, ‘These people are not Bronte was put in an ambulance and taken to messing around.’” Packard Children’s. “We went straight to the Cardiovascular Intensive Care Unit, and within three minutes, a Getting the Right Rhythm team of 15 to 20 doctors, nurses, and technicians was around her,” Marvin says. Doctors gave Bronte medicines to control her Doctors determined that Bronte’s heart was abnormal heart rhythm, which seemed to work structurally sound, but she had a dangerous type at first. Then, at 3 weeks old, her heart began to of arrhythmia—not just in her upper chamber, beat dangerously fast, despite the medicines. The but also in her lower chamber—which has been safest thing to do, doctors decided, was to place known to cause death in infants. an automated implantable cardioverter defibrilla- Bronte Benedict weighed only “Everyone went above and beyond,” recalls tor (ICD). 6 pounds when she received a heart monitoring device. Her parents say, PHOTOGRAPHY JANAY BREANA Amanda. “One nurse held and rocked her all night “I call an ICD a ‘pacemaker plus.’ It not only “Our motto for Bronte has been ‘small but mighty.’”

8 supportLPCH.org 9 “Because Bronte was so tiny, we didn’t know if we could place an through insurance and emotions. ICD ... She is likely one of the smallest babies in the nation to ever “We joked that it was a spa, not a hospital. There were so many resources that we never knew we receive an ICD. She was definitely my smallest.” KATSUHIDE MAEDA, MD needed but found them so necessary to have,” Amanda says. Now the couple relies on Bronte’s ICD to do the worrying for them. Each night, data on Bronte’s recognizes a slow heart rhythm and resets it, but “It’s rare for hospitals to place ICDs in babies heart is uploaded to the hospital, along with data also recognizes a fast heart rhythm and can give a of this size. It’s simply too challenging,” Maeda from 400 other babies and children with heart shock when someone is having a life-threatening says. “Other hospitals don’t have the luxury of monitoring devices. She has yet to need a shock, Managing arrhythmia,” says Anne Dubin, MD, electrophysi- having a highly knowledgeable and diverse team and her ICD is pacing less than half the time, ologist and director of the Pediatric Arrhythmia of pediatric specialists like electrophysiolo- which is a big improvement from when she left the Heart and Soul Service at Packard Children’s. “Most of the time gists, cardiovascular surgeons, and geneticists, hospital. it does nothing—just sits, watches, and waits. It’s and all under one roof. That’s what makes Packard As self-described techies who both work at BY ELIZABETH VALENTE like an insurance policy.” Children’s special.” Google, Marvin and Amanda are very comfort- But Dubin notes a unique challenge for pediat- ICDs are about the size of an old flip phone, able with the automated device that’s inside their ric patients: “ICDs are made for 200-pound adults, and they have two parts: wires (leads) and the daughter’s body. BRONTE IS STILL A BABY , but Packard not for 6-pound babies.” generator itself. In adults, ICDs are placed below “It allows us to sleep at night,” says Amanda. Children’s is already planning for her family’s Fortunately, Dubin’s colleague, cardiovascular the collarbone, but in small babies, some as young Fortunately, for mom and dad, Bronte is a good long-term needs. For young kids with life- surgeon Katsuhide Maeda, MD, has earned a as 3 or 4 days old, they are put in the abdomen. sleeper. She recently moved into her crib in her threatening heart arrythmias, especially those reputation for being inventive and skilled at plac- The leads are then sewn onto the surface of own room, started eating solid foods (avocado is who have experienced a cardiac event, receiving ing devices in tiny patients. the heart. her favorite), and is reaching her developmental an implantable cardioverter defibrillator “Because Bronte was so tiny, we didn’t know if milestones like rolling and cooing. (ICD) can impact their emotional and we could place an ICD until we opened her chest,” “She is so chatty throughout the day and is mental health. says Maeda. “She is likely one of the smallest hitting lots of different tones and pitches now,” To help kids and their families thrive both babies in the nation to ever receive an ICD. She says Amanda. “We joke that she is our little baby physically and emotionally, Packard Children’s was definitely my smallest.” bird, just squawking the day away.” offers Connecting, an annual event led by Patients like Bronte and their families benefit pediatric cardiologist and electrophysiologist from the life-saving research and clinical care Anne Dubin, MD, and pediatric psychologist at Packard Children’s. Support from donors Family Finds Comfort Lauren Schneider, PsyD. Connecting helps including Gordon and Betty Moore, who gifted patients and their families learn about their Amanda and Marvin appreciated getting updates $50 million to the Heart Center, is essential to heart condition and what it means to live with, while they waited in the cafeteria during the attracting and supporting top researchers who are or parent a child with, an ICD. Families gain approximately five-hour surgery. Throughout working to improve the quality of life for children support from one another and share resources. their entire stay at Packard Children’s, the with heart disease. Their goal is to deliver the best “It allows them to realize they are not alone in Benedicts noticed firsthand the degree to which overall outcome—from the ability for children to their journey, and have fun with their health care doctors and nurses in the Betty Irene Moore perform well in school to exercise and enjoy an team and each other,” says Schneider. Children’s Heart Center collaborate throughout active life into adulthood. This year’s event wouldn’t have been possible a patient’s treatment. The multilayered care The family returned to Packard Children’s in without several kind and generous donors they received went well beyond the team of top March when Bronte had COVID-19. including Alex Vibber Foundation, The Safe + doctors who considered Bronte’s care from every “The cardiologists were shocked and so Fair Food Company, Sheraton Palo Alto, and Bronte recently angle. It also included nurses who would check impressed that she only had a temperature one moved into her Southwest Airlines. “big girl crib,” and in even when Bronte was not their patient, and night,” Amanda says. “We joke that after what she everyone sleeps child life specialists and occupational therapists went through during her first two months, she comfortably knowing who provided knitted caps, socks, and kind will be able to endure anything life throws at her. ABOVE Children with implantable cardioverter her heart is being words—making the Benedicts “feel like we had She’s our little fighter, and we could not be more defibrillators and their families had fun and monitored by a 14 different grandmothers around,” says Marvin. proud of her.” bonded at Connecting 2020. special device. That doesn’t even mention the family rooms with

BREANA JANAY PHOTOGRAPHY JANAY BREANA showers and beds, and a social worker to sort

10 supportLPCH.org PACKARD CHILDREN’S NEWS | SUMMER 2020 11 Stop Sneaky Sugar Stanford pediatrician provides tips and in Its Tracks recipes for families looking to eat healthier

BY JODI MOURATIS

IT SEEMS SIMPLE—just tell fami- Q: What would parents be surprised to learn lies to eat less sugar. But added about sugar? sugar is everywhere, sometimes in PATEL: While most parents know that cakes, cook- foods we think are healthy. These ies, candies, and sugary drinks are high in added “sneaky sugars” are lurking in foods sugar, they are surprised to learn that added sugar where we’d never suspect it. sneaks into seemingly healthy foods like soups, Most families would be surprised salad dressings, sauces, cereals, granolas, nut to learn that their children are each butters, and yogurt. consuming 18 teaspoons a day, or Added sugars are those sugars that are added three times the daily recommended to foods and beverages during cooking or before limit for added sugar. Too much serving. Added sugars include refined sugars, such added sugar can lead to weight gain as granulated sugar, and unrefined sugars, such

ERIN SCOTT and health problems such as diabetes as honey. They do not include naturally occur- and high blood pressure. ring sugars in fruits, vegetables, and dairy. These Anisha Patel, MD, One mom and pediatrician is on a mission to sugars are different, because they are accompanied MSPH, co-wrote Half the Sugar, All make it easier for families to make healthier choices. by fiber and other nutrients. the Love to help ©2019 PUBLISHING WORKMAN families like hers Anisha Patel, MD, MSPH, Arline and Pete cook meals with Harman Endowed Faculty Scholar, and her team of Q: How can families eat less added sugar? less added sugar. Stanford researchers started by working with Bay One clever strategy is to use naturally sweet, fiber- because each person can customize his or her own decades ago, I saw many children from low- Area schools to install lead-free water bottle filling rich fruits and vegetables in place of sugar to add toppings. We usually use brown rice instead of income communities in my clinic who were stations at schools, so that children would have flavor to your favorite foods. Many of the recipes in white rice. If you are trying to cut down on carbo- overweight and had related conditions. When I an appealing source of fresh water and drink less the cookbook use dates or fresh fruit or vegetables hydrates, you can also omit the rice or use riced counseled families to eat more fruits and vegeta- juice and soda. to add sweetness. cauliflower. bles or to be more active, they told me that they More recently, Patel co-authored a cookbook had no grocery store in their community and did titled Half the Sugar, All the Love. The book shows Q: What do you do in your own home? Q: What inspires your research? not feel safe being outside. This ignited my interest families how to prepare low-sugar versions of their We try to eat most of our meals at home. Eating at My research is focused on reducing disparities in in collaborating with communities to ensure that favorite foods at home together. The recipes are home doesn’t mean you have to cook everything chronic diseases among low-income populations. the healthy choice was an easier choice. simple to make and cover a wide range of cuisines, from scratch. Due to our hectic schedules, we This interest stems from my upbringing in North including instant oatmeal, pad thai, horchata, often combine healthier, lower-sugar packaged Carolina. With a median household income of Q: Why is philanthropy important to your work? spaghetti and meatballs, Korean chicken wings, foods with fresh items to cut down on the meal around $33,000 and a poverty rate of 28 percent, I have been fortunate to receive a faculty scholar and chai-spiced rice pudding. prep and cooking times. Once a week, we go out to my hometown has a life expectancy 10 years lower award from the donor-supported Stanford We spoke with Patel about ways that families a family meal at a local restaurant. than cities in Santa Clara County. The dispari- Maternal and Child Health Research Institute. can reduce added sugar while still enjoying the ties in income, education, and health are growing This award has supported my research and career foods they love. Shelter-in-place orders due to Q: Does your family have a favorite recipe across the country, and they continue to shape my development and has allowed me to collaborate COVID-19 brought a resurgence in home-cooked from Half the Sugar, All the Love? research interests. with investigators outside of the School of family meals, and Patel offers many practical tips My daughters, ages 8 and 13, have tested every Medicine. for families to shop for and prepare healthy and recipe in the book. Our favorites are the Chinese Q: When did you become concerned about sugar? delicious food. Chicken Lettuce Cups and the Poke Bowls, As a Stanford pediatrics resident nearly two Sample Dr. Patel’s banana bread recipe.

12 supportLPCH.org PACKARD CHILDREN’S NEWS | SUMMER 2020 13 Excerpted from Half the Sugar, All the Love by Jennifer Tyler Lee and Anisha Patel, MD, MSPH. Photographs by Erin Scott. Workman Publishing ©2019.

Directions

1. Preheat the oven to 350°F. Line an 8 × 4-inch loaf pan with parchment paper, leaving 2 inches of overhang on each side, and coat with cook- Super Moist ing spray. 2. Place the pitted dates in a medium bowl. Cover the dates with 2 cups hot water. Set aside until Banana Bread the dates are softened, about 10 minutes. Drain the dates, reserving 2 tablespoons of the soaking RIPE BANANAS, Medjool dates, and Greek yogurt liquid. give this banana bread its tender, moist crumb and delicious, natural sweetness with zero added sugar. 3. If using, spread the pecans on a rimmed baking Waiting for the bananas to fully ripen is critical to sheet and bake until lightly toasted, about 5 ensure that their natural sugars have time to develop, minutes. Set aside to cool. so don’t rush this step. Your bananas should be dark 4. Combine the dates, reserved soaking liquid, and and speckled. Toasted pecans add an extra layer of yogurt in a food processor. Process until smooth sweetness and texture. and no flecks of date remain, about 2 minutes. Transfer the mixture to a medium bowl and add the mashed bananas, egg, egg yolk, and vanilla. Ingredients Set aside.

Nonstick cooking spray 5. Combine the flour, baking powder, baking soda, 10 ounces Medjool dates, pitted salt, cinnamon, nutmeg, and coconut oil in the (about 12 dates) bowl of a stand mixer fitted with a paddle attach- ment. Beat on low speed until the coconut oil ⅓ cup chopped pecans or walnuts and flour are a mealy powder, about 30 seconds. (optional) Add the date and banana mixture and continue 2 cups hot water beating until just combined and no visible flour remains. ¾ cup whole milk plain Greek yogurt 2 medium very ripe bananas, mashed 6. Transfer the batter to the prepared pan, top (about 1 cup) with the nuts, if using, and bake until the bread is lightly browned and a toothpick inserted into 1 large egg plus 1 large egg yolk, beaten the center comes out clean, 55 to 60 minutes. 1 tablespoon pure vanilla extract Let cool in the pan for 15 minutes, then use the parchment overhang to remove the bread from 1½ cups all-purpose flour the pan. Cut into 10 slices and serve. 1½ teaspoons baking powder 1 teaspoon baking soda Make Ahead The banana bread will keep, tightly wrapped in 1 teaspoon salt plastic wrap, in the refrigerator for up to 3 days or 1 teaspoon ground cinnamon in the freezer for up to 1 month.

½ teaspoon ground nutmeg Nutrition Information (1 slice): ⅓ cup coconut oil or unsalted butter, Calories: 264 | Added sugar: 0 teaspoons or 0g | at room temperature Carbohydrates: 42g | Sodium: 314mg | Saturated fat: 24% of calories or 7g | Fiber: 3g | Protein: 5g Serves 10

14 supportLPCH.org PACKARD CHILDREN’S NEWS | SUMMER 2020 15 2019 In 2019, you and 15,427 other donors gave $190 million to Lucile Packard Children’s Hospital Stanford and the child and maternal health programs at Stanford Report on University School of Medicine. Your generous support made all this and much more Giving possible for patients and families in our care. Thank you! Veranna and nearly 4,000 Summer 739 Scamper-ers raised more than patients received heart surgery. $580,000.

grants for research were 110 community members, awarded across the university 384 including Aeshaan, hosted fundraisers from the Stanford Maternal and raising more than $850,000. Child Health Research Institute.

Guests at The Dinner made

$3.2 million in commitments for compassionate and innovative care needed for our tiniest patients like Jase.

43% Auxiliaries celebrated of our patients benefited from 941 students financial attended our assistance. Hospital School. 100 years of service.

We provided care for Packard Paws patients from virtual reality sessions were facility dogs 2,588 launched, with games such as Space Pups and states & like Donnie Fruity Feet, to provide comfort, pain relief, 50 made 884 visits and distraction to patients. 47 countries. to provide comfort to Music therapists patients, families, provided and staff. 1,087stem cell transplants 2,678 were performed at the Bass Center for Childhood Cancer and Blood Diseases.

TONI BIRD TONI sessions.

Gifts made between September 1, 2018 and August 31, 2019. 16 supportLPCH.org PACKARD CHILDREN’S NEWS | SUMMER 2020 17 Thank You NOTES

Tad and Dianne Taube Drive transplantation and inspire others Groundbreaking Cancer in the community to join them in Research supporting this work. Currently, patients who need a stem cell WE ARE GRATEFUL to Tad and transplant must first undergo Every day, donors like you make gifts of Dianne Taube for their ongo- chemotherapy or radiation. But ing support of childhood cancer they need to be healthy enough to all sizes to build a healthier future for children research at Packard Children’s. withstand the harsh side effects. They recently donated $2 million Their gift will support Agnieszka and expectant mothers. Your support makes to support sarcoma research. Czechowicz, MD, PhD, whose our hospital a special place for our patients and Sarcomas make up roughly 15 research aims to eliminate the need percent of pediatric cancer cases. for chemotherapy and radiation, families, and we are tremendously grateful. Survival rates, which hover around enabling more children to experi- 70 percent, haven’t increased ence the benefits of a stem cell Community Donates Germ- dramatically in the last 30 years. transplant. ©KRISTEN LOKEN/SAN FRANCISCO OPERA Zapping Robots to Fight The Taubes’ gift will help David These gifts build on a $6 million COVID-19 G. Mohler, MD, chief of our hospi- cancer centers can collaborate and donation the couple made to Committee Dedicated to WHEN THE CORONAVIRUS FIRST tal’s Musculoskeletal Tumor Clinic, develop new approaches to treating pediatric cancer research in 2019. Helping PANS Families hit California, a team from UBS to drive research that will improve sarcomas. Thank you, Tad and Dianne, for Financial Services rallied more survival rates. Mohler will use the The Taubes also made a your commitment to finding better THANK YOU to Ramesh Allen, than 100 friends and family to raise funds to create a data hub where $500,000 matching gift to treatments and cures for children Monika Cheney, and Jessie $140,000 for Packard Children’s. researchers from the nation’s top support research in stem-cell with cancer. Socks for co-chairing the Amazingly, they exceeded their Stanford Pediatric Acute- $115,000 goal in one week! Their onset Neuropsychiatric donation supported the purchase Syndrome (PANS) Volunteer of an environmental cleaning robot Making Hospital Stays Action Committee. These and other COVID-19 efforts. The chairwomen lead a group Applebaum Foundation of New York More Fun of more than 20 community joined the effort, covering half the SPIRIT HALLOWEEN has partnered members devoted to meeting cost of the robot. with us for 14 years to help make its goal of raising $3 million Another dedicated group of hospital stays more comfortable to fuel groundbreaking PANS Ramesh Allen, Monika Cheney, and fundraisers—volunteers from the for our patients. Their Spirit of research spearheaded by pedi- Jessie Socks (not shown) co-chair Auxiliaries—showed their support Children campaign raises money atric rheumatologist Jennifer the Stanford PANS Volunteer Action during this time of need. The in-store and online to support Frankovich, MD, MS. Committee. Association of Auxiliaries Board child life departments at hospi- Frankovich and child psychiatrist Margo Thienemann, MD, lead quickly came together—calling an tals across the United States and the Stanford PANS Clinic & Research Program, which conducts inter- emergency virtual meeting—and Canada. In 2019, Spirit Halloween disciplinary research and cares for more than 350 patients who have voted unanimously to donate stores in Northern California debilitating inflammation of the body and brain. The Stanford PANS $115,000 from the 2020 Auxiliaries raised more than $135,000 in Clinic & Research Program was founded in 2012 as the first comprehen- Endowment payout to fund a support of the Child Life and sive, multidisciplinary PANS program in the world. second robot. Creative Arts Department at The program’s goals include identifying biological markers of PANS, These LightStrike Germ-Zapping our hospital. Their gift will help improving treatment protocols, and, ultimately, finding a cure for this Robots work quickly to prevent purchase sensory toys and support devasting condition. Last September, the committee hosted a dinner at harmful infections in our hospital by special events throughout the year. the Menlo Circus Club, raising money for critical research projects and destroying deadly microorganisms Thank you, Spirit Halloween, enabling Stanford physician-scientists to join in this exciting, interdisci- with ultraviolet light. for bringing the fun and joy of plinary team. Thank you for your collective play to every patient and family at Thank you, Jessie, Monika, and Ramesh for your tireless efforts to efforts and swift action to keep our Packard Children’s. help children with PANS! patients safe!

18 supportLPCH.org PACKARD CHILDREN’S NEWS | SUMMER 2020 19 Thank You NOTES

Katie Stivers Finds Time to Packard Children’s. She started as a Generosity Soars at Give Back and Volunteer volunteer in our hospital’s market- Southwest Airlines ing department. In December, KATIE STIVERS of Menlo Park is she became a baby cuddler in the SINCE 2010, Southwest Airlines has living life to the fullest in retire- neonatal intensive care unit. She generously given 1,000 complimen- ment. She enjoys traveling to also volunteers at Ronald McDonald tary roundtrip tickets to Packard distant places such as Tanzania and House fundraisers and events. Children’s patients and families who Antarctica while dedicating her Katie generously supports our might not otherwise be able to afford extra time to volunteering closer to hospital and care for all as an annual the cost of travel to our hospital. home at Packard Children’s. donor to the Children’s Fund. Last This ensures that families can focus Before retirement, Katie over- year, she included a legacy gift to on getting the care they need. In saw Apple’s corporate sponsorship Packard Children’s in her trust. 2020, given the COVID-19 pandemic of our hospital as the company’s “I don’t have any children of my and travel restrictions for patients, head of global benefits. “I really own,” she says. “I consider that this Southwest extended these flights to appreciated the mission of the is the way to give back to children of medical personnel as well. hospital—that it is a nonprofit and the future.” In 2019, we were thrilled to that it serves everyone, regardless of Thank you, Katie, for giving be selected as a beneficiary of Corporate Relations at the Lucile $100,000 gift on behalf of Packard their ability to pay,” Katie says. your time and investing in a healthy Southwest Airlines’ 34th Annual Packard Foundation for Children’s Children’s. We are grateful to Katie retired in 2017 and looked future for children! LUV Classic golf tournament and Health, met Southwest Airlines’ Southwest Airlines for taking chil- for ways to continue to support party. Amy Wong, director of CEO Gary Kelly and accepted a dren’s health to new heights.

Innovative Approach to Spur Heart Research Eight Marathons in Eight Days Around the World

ADDITIONAL VENTURES gave BRENDAN WATKINS took on an incredible challenge: running $1 million to the Betty Irene Moore eight marathons in eight days on seven continents plus New Children’s Heart Center at Packard Zealand while raising funds for Packard Children’s. In January, Children’s in January. The grant will he succeeded by running 209.6 miles total in marathons launch high-impact research with located in Auckland, New Zealand; Perth, Australia; Singapore; the goal of finding cures for children Cairo, Egypt; Amsterdam, the Netherlands; New York City; with single ventricle heart defects Punta Arenas, Chile; and King George Island, Antarctica. (SVDs). These types of heart defects Watkins raised more than $7,000 for the Children’s Fund are among the most challenging and with the help of his friends, family, and colleagues at Stanford costliest to treat. Children’s Health, where he works in the Information Systems The funds will be awarded as division as administrative director of enterprise analytics. seed grants to investigators at The generous gift from Additional Ventures will launch high-impact research The Children’s Fund supports our hospital’s highest priorities at Packard Children’s, with the goal of finding cures for children, like Tyler, with Stanford for novel, out-of-the-box in pediatric and obstetric research, family and community single ventricle heart defects. thinking and studies relevant programs, and undercompensated care. to SVDs. In addition, Packard at Stanford University School of to fund the Comprehensive Single “I was so happy that I was able to raise money for the Children’s and Stanford University Medicine,” says Frank Hanley, Ventricle Program at Packard Children’s Fund through this adventure,” Brendan says. “My School of Medicine will work MD, the Lawrence Crowley, MD, Children’s. Launched in 2017, the friends and colleagues knew they were giving to a great cause together and share knowledge Endowed Professor in Child Health at program aims to improve survival, and helping kids and families while giving me a boost of support. with four other institutions that the School of Medicine and chief of optimize outcomes, and help chil- The positive energy from my supporters was a motivating and received grants. pediatric cardiothoracic surgery at dren and young adults live life to the thrilling experience.” “We are grateful to Additional Packard Children’s. fullest. We are grateful to Brendan for running his Triple 8 Quest Ventures for this gift to fund inno- The gift complements an earlier Thank you, Additional Ventures, to benefit children at our hospital, and to the many donors who vative, multidisciplinary research gift that Additional Ventures made for your visionary gift! showed their support!

20 supportLPCH.org PACKARD CHILDREN’S NEWS | SUMMER 2020 21 In the NEWS

Nicotine Pods Need Clearer Remembering Richard affairs at LPFCH, providing over- In case you missed it … Labels, Study Reveals “Dick” Behrman, MD sight to the Children’s Health Initiative, a groundbreaking YOUNG ADULTS DON’T KNOW what’s THE LUCILE PACKARD FOUNDATION $500 million philanthropic invest- in the products they vape and often for Children’s Health (LPFCH) fondly ment to transform care, training, and don’t know what brand of vaping remembers Richard “Dick” Elliot research in children’s health. products they use, according to a Behrman, MD, who passed away at “This resulted in the transforma- new study by researchers at Stanford age 88 on May 17. He was a champion tion of Lucile Packard Children’s University School of Medicine. for children’s health and a pivotal Hospital from a very good community “Teens are not using these pod- figure at LPFCH, Packard Children’s, hospital to one of the leading innova- based products more than other and the David and Lucile Packard journal The Future of Children. tive children’s hospitals in the world,” e-cigarettes because of health or Foundation (Packard Foundation). Behrman was instrumental in says longtime friend and colleague the flavors offered,” says the study’s Recruited by David Packard to the the early days of growth for Packard Harvey Cohen, MD, PhD, professor senior author, Bonnie Halpern- Bay Area in 1989, Behrman helped Children’s. He served as board chair of pediatrics at Stanford University Felsher, PhD, professor of pediatrics. plan Packard Children’s, which of the hospital and LPFCH, and School of Medicine, who was formerly “They tell us, ‘It’s because we can hide opened in 1991, and directed the was clinical professor of pediatrics chair of pediatrics and chief-of-staff these, and the smell produced is less Packard Foundation’s new Center for at Stanford University School of at Packard Children’s. “The implica- obvious.’ This ability to ‘stealth use’ is the Future of Children, an inter- Medicine and the University of tions for the health of children, both concerning.” disciplinary team that conducted California, San Francisco. From locally and internationally, has been The study also found that young research and grantmaking on 2000 to 2002, Behrman served as profound, and continues to this day people didn’t know how much nico- children’s issues, and launched the senior vice president for medical and into the future.” U.S. News & World Report Names tine was in the products they were Packard Children’s a Top 10 Children’s using. In addition, more than half of Hospital in the Nation the participants were not sure how Leonard Elected to Lead American Pediatric Society long it usually takes them to finish PACKARD CHILDREN’S has been named among a pod or cartridge. Halpern-Felsher MARY LEONARD, MD, MSCE , elected to lead the American Pediatric Society. She will the top 10 children’s hospitals in the nation, says this may demonstrate how youth Adalyn Jay Physician-in-Chief serve as vice president from May 2020 to 2021 and presi- according to the U.S. News & World Report share and use these products without at Packard Children’s, Arline dent from May 2021 to 2022. Leonard is a distinguished 2020–2021 Best Children’s Hospitals survey published online in June. regard to dosage, nicotine amount, or and Pete Harman Professor researcher, an expert clinician, and a respected mentor. The rankings show Packard Children’s as the top children’s hospital in addiction potential. and chair of the Department Currently a council member for the International Northern California and on the Best Children’s Hospitals Honor Roll, a At present, e-cigarette manufac- of Pediatrics, and director of Pediatric Nephrology Association, she has also held a designation awarded to pediatric centers that deliver exceptionally high- turers are not required to provide a the Maternal and Child Health council position for the American Society of Pediatric quality care across multiple specialties. complete list of ingredients on the Research Institute, has been Nephrology. Congratulations, Dr. Leonard! “The Honor Roll distinction is a direct result of the enduring pursuit of package. Halpern-Felsher adds, “I excellence and commitment to children’s health by our health care work- really hope these findings will be ers, staff, and providers, who make this level of care achievable,” says Paul used to further regulate e-cigarettes.” FDA Approves New Drug for The drug is a therapy mitigating King, president and CEO of Packard Children’s and Stanford Children’s Children’s Peanut Allergies the effects of allergic reactions and Health. “Thanks to them, our patients—children, expectant mothers, and could still produce side effects, says their families—can have the confidence that they and their loved ones are RESEARCHERS RECENTLY GAVE Kari Nadeau, MD, PhD, one of the receiving the finest care available anywhere.” parents of children with peanut aller- drug’s researchers and the director of The annual Best Children’s Hospitals survey rankings recognize the top gies a new reason for hope. Palforzia the Sean N. Parker Center for Allergy 50 pediatric facilities across the United States in 10 pediatric specialties. is the first drug approved by the and Asthma Research at Stanford Packard Children’s was one of two hospitals in California that achieved Food and Drug Administration to University. Honor Roll status. For the fifth consecutive year, our hospital achieved treat accidental exposure to peanuts “What’s novel is that the FDA has rankings in all 10 specialties. This year’s survey ranked five of the hospi- for children with food allergies. It is never approved a drug for food allergy,” tal’s specialties in the top 10 and two in the top five nationwide. These meant to be taken daily by children Nadeau adds. “Most likely, there will included neonatology (No. 3), nephrology (No. 4), pulmonology and lung ages 4 to 17, gradually building up the be some symptoms along the way, but surgery (No. 7), neurology and neurosurgery (No. 8), and diabetes and drug’s effect in the child’s system to they are manageable. You have to do it endocrinology (No. 9). fight peanut allergies. daily and with trained supervision.”

22 supportLPCH.org PACKARD CHILDREN’S NEWS | SUMMER 2020 23

Humans of Packard Children’s

Facebook.com/ HumansOfPackardChildrens

“Because of the caring staff at Packard Children’s, I knew—even as a 6-year-old—that I wanted to do the same for other families. When I enter the medical field, I hope to create the same atmosphere for the next generation of children.”

KAITLIN, 16, figure skater, aspiring physician, and Packard Children’s craniofacial patient

KAITLIN WAS BORN with a rare case of Amniotic Band Syndrome. A fibrous band came loose in the amniotic sack and attached to her face in utero, leaving her with a lateral cleft and facial paralysis. Packard Children’s Craniofacial Anomalies team performed Kaitlin’s first surgery when she was just 12 weeks old, and she has undergone 15 more since. Today, Kaitlin is a high school junior and an accomplished figure skater. She hopes to attend Stanford University School of Medicine. DEVINE PHOTOGRAPHY DEVINE

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THE CARES ACT Now Is the Time to Donate!

If you do not itemize on your taxes, you can take an additional above-the-line deduction of up to $300 for Questions? cash gifts to qualified public Please contact us at charities in 2020. (650) 724-5778 or [email protected]. If you itemize on your taxes, you can deduct up to 100 percent of your adjusted gross income for cash gifts to qualified public charities in 2020.