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Polio Oz News Volume 3, Issue 2 Polio Oz News J u l y 2 0 1 3 — Winter Edition The 2013 “We’re Still Here!” Pre - Election Campaign by Mary-ann Liethof However, in true polio style, here’ for 65 years and older Editor they soldiered on! polio survivors. Senators Mitch Fifield (Liberal), Rachel Siewert They say that timing is As did 37 Campaign Heroes (Greens), and Claire Moore everything, and Polio Australia made up of 18 polio survivors (Australian Labor Party) certainly picked an historical and 19 family members and proffered a range of opinions, day to visit Parliament House! friends who had made the trek but all recognised that the 65 Alas, on Wednesday the 26th of to Parliament House, Canberra, year cut off for Program June, the corridors were not which is an historical day in its eligibility was unfair for a large abuzz with word that the post- own right. percentage of Australians, but polio campaigners were there - They were made up of 6 ACT- that there was still the rather that the country was based Campaign Heroes, 20 possibility for changes to be about to have a leadership from New South Wales, 3 from made over the next 6 years it change on that very day, of all Queensland, 6 from Victoria, will take for “DisabilityCare days! and 1 who came all the way Australia” to roll out across And if that wasn’t problematic from Western Australia. Australia. enough, our President and The day commenced with a Following the Morning Tea Campaign Leader, Dr John Morning Tea Forum with a bi- Forum, most of the Campaign Tierney, and Vice President, partisan panel of 3 Senators Heroes met with 9 Gillian Thomas, were both discussing the National parliamentarians who offered suffering with symptoms akin to Disability Insurance Scheme - their time to listen to the issues Spanish ‘Flu, so were not feeling now named “DisabilityCare affecting Australia’s polio as ‘bright’ as they could have. Australia” - and ‘where to from survivors. Cont’d P 4 2013 “We’re Still Here!” Campaign Heroes National Patron: Dr John Tierney, PhD, OAM Page 2 Polio Oz News From the President Polio Australia Inc Representing polio survivors Fellow polio survivors, the last few months have throughout Australia been very busy at Polio Australia, culminating in our most effective visit yet to Canberra, judging by Suite 119C, 89 High Street the outcomes of the work of the delegation to date. Kew Victoria 3101 I would particularly like to thank our 37 campaign PO Box 500 heroes who trekked to Canberra in the dead of Kew East Victoria 3102 Phone: +61 3 9016 7678 winter, at their own expense, to join in the lobbying E-mail: [email protected] effort which included their own meetings in the Website: www.polioaustralia.org.au private offices of the members and senators. A special thanks to Mary-ann who displayed her usual Contacts Dr John Tierney dedication and flair in bringing everything together President on the day. President - John Tierney Our delegation was highly visible around the Parliament and in [email protected] Question Time in our "We’re Still Here!” T-shirts. We were there when Vice President - Gillian Thomas the Government changed Prime Ministers, so a very dramatic day all [email protected] round. Mary-ann has put photos and information about the lobbying day elsewhere in the newsletter and Gillian (as Webmaster) has been Secretary - Jenny Jones working on Polio Australia’s “We’re Still Here” website. [email protected] Cont’d P 3 From the Editor Treasurer - Brett Howard Well, I certainly have a Most of us now know [email protected] bumper edition for you that DisabilityCare to browse through this Australia (the National National Program Manager Mary-ann Liethof month. This is largely Disability Insurance [email protected] due to the fact that I Scheme) was launched was unable to get any e in 4 regions on the 1st of -news together last July, and you can read month with so much more about that on P 7. Inside this issue: energy going into organising the On P 8 you can read how “We’re Still Here!” Pre- 1 Mary-ann Liethof campaign, and the our Vice President, Election Campaign Editor Retreat before that . Gillian Thomas, was invited to a special DisabilityCare Australia 7 As the only paid staff Unless otherwise edition of Q&A featuring stated, the articles in member already doing PA Questions Bill Gates 8 Bill Gates. Polio Oz News may be the ‘impossible’, reprinted provided performing miracles just On P 21 you can read Thanks Neil! 9 that they are takes that little bit the next in our series on Supporting Polio Australia 10 reproduced in full longer! (including any state based networks - Health & Wellness Retreat 12 references) and the In this edition of “Polio Polio Network Victoria. author, the source and Touched by Polio 19 Polio Australia Inc are Oz News”, you will see And much, much more! acknowledged in full. that Polio Australia has So just take your time Walk With Me 20 Articles may not be certainly been keeping and enjoy! edited or summarised busy, as have all the Polio Network Victoria 21 without the prior written approval of ‘ R e t r e a t e r s ’ a n d My Story 22 Polio Australia. The ‘Campaign Heroes’. Change will not come views expressed in My Treatment in Hobart 24 We have also included if we wait for some this publication are other person or some not necessarily those the inspiring story of Access All Areas 25 of Polio Australia, and Elizabeth Edmondson (P other time. Reading 26 any products, services 22), a Western We are the ones we've or treatments been waiting for. Fears Over Modern Polio 28 Australian Paralympian described are not We are the change necessarily endorsed who joined in on both Polio Alerts 30 or recommended by that we seek. the aforementioned Polio Australia. Polio This Week 30 activities. ~ Barack Obama ~ Page 3 Polio Oz News From the President ( C o n t ’ d ) On this trip, the Parliament has moved from just Our central message to the MPs was that the listening to what we have had to say, to actually "one size fits all" competitive grant funding doing something. Thanks to the excellent and model does not work for meeting the needs of comprehensive handout that Mary-ann put polio survivors. We need specific purpose together, the penny stated to drop with a funding for programs and publicity that will number of MPs. We asked Members and lead to polio survivors better managing Senators to put a story and photos in their their own condition. While we are all waiting electorate newsletters which go out to their for government funding to arrive, we will have to 80,000 constituents. We also asked them to continue to raise it ourselves. publicise the Australian Polio Register and to add Our next big happening that you can all in the link to the Polio Australia website. Quite a participate in is the "Walk with Me" events, number have promised to do this. details of which can be seen on P 18 of this We now have 65 Parliamentary Friends of Polio newsletter. Last year we joined in as a trial and Survivors. These Members and Senators have found that Fran Henke and I could raise $3,770 either spoken to our delegation, attended one of dollars between us. Imagine what one hundred our functions, or spoken about the needs of polio of us could raise! It only involves a short walk on survivors in the Parliament. Also after this visit, a stick (or in a wheelchair) and we encourage two of our Parliamentary Patrons have had follow participants to bring family and friends with up meetings with the Health Minister and the them. It is not physically onerous and really a lot Shadow Health Minister on the needs of polio of fun. Try and find 10 to 50 of your family and survivors. This is pure gold. friends to sponsor your walk and between us we can help raise a lot of money for our cause. I would like to single out two of our Federal Parliamentary Patrons for special mention. Again, Take care, Mark Coulton MP (NSW), National Party Chief John Whip, was a tower of strength in helping with arrangements on the day. The Hon Greg Hunt MP Dr John Tierney OAM (Lib, Victoria), Shadow Minister for the President and National Patron Environment, helped spread the message in a Polio Australia speech to the Parliament, where he called on MPs to take a bipartisan approach to meeting the needs of polio survivors. John Tierney (left) leading some of the campaigners through Parliament corridors Campaigners pinning their leaves to the “Polio Family Tree” (l-r) David Luck, Alan Tudge MP, and Joan Smith Page 4 Volume 3, Issue 2 “We’re Still Here!” Pre - Election Campaign ( C o n t ’ d ) Everyone was provided with a In 2011, Polio Australia unsuccessfully applied for two of the specific, budgeted, Proposal on Department of Health and Ageing’s (DoHA) Flexible Funding what Polio Australia is asking grants, although no further grants have been released since this from the government. time. Unfortunately, the Late Effects of Polio do not fit into any of DoHA’s programs or initiatives, so there are no other appropriate In a follow-up letter to all the tender submissions available to apply for.” parliamentarians Polio Australia Campaigners meet with in Polio Australia thanks the following parliamentarians and Advisors Canberra, thanking them for for their time in Canberra: their time, the following comments were made: Morning Tea Forum Panel “Polio Australia believes that if bi-partisan support can be agreed upon for the Australian government to commit AU$130 million (see P 8) to fund the very worthy cause of polio eradication, dedicated funding must also be made available to support our own polio survivors – understanding that this support is really only required for a limited time.
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