Disease Clusters Spotlight the Need to Protect People From

Stop disease clusters. Health Alert: Disease Clusters Protect people. Control toxic Spotlight the Need to Protect chemicals. People from Toxic Chemicals Authors Kathleen Navarro, Natural Resources Defense Council Sarah Janssen, M.D., Ph.D., M.P.H., Natural Resources Defense Council Terry Nordbrock, M.L.S., M.P.H., Executive Director, National Disease Clusters Alliance Gina Solomon, M.D., M.P.H., Natural Resources Defense Council www.nrdc.org www.clusteralliance.org Acknowledgments This report has been generously supported by Bauman Family Foundation, The Beldon Fund, Jewish Community Foundation of Los Angeles, The John Merck Fund, and The Passport Foundation. About NRDC The Natural Resources Defense Council (NRDC) is an international nonprofit environmental organization with more than 1.3 million members and online activists. Since 1970, our lawyers, scientists, and other environmental specialists have worked to protect the world’s natural resources, public health, and the environment. NRDC has offices in New York City, Washington D.C., Los Angeles, San Francisco, Chicago, Livingston, Montana, and Beijing. Visit us at www.nrdc.org. NRDC Director of Communications: Phil Gutis NRDC Deputy Director of Communications: Lisa Goffredi NRDC Publications Director: Anthony Clark NRDC Publications Editor: Carlita Salazar Stop disease clusters. Health Alert: Cancer Clusters, Protect people. Control toxic Disease, and the need to Protect chemicals. People from Toxic Chemicals An unusually large number of people sickened by a disease in a certain place and time is known as a ‘disease cluster’. Clusters of cancer, birth defects, and other chronic illnesses have sometimes been linked to chemicals or other toxic pollutants in local communities, although these links can be controversial. There is a need for better documentation and investigation of disease clusters to identify and address possible causes. Meanwhile, toxic chemicals should be identified and controlled through reform of the Toxic Substances Control Act, so these chemicals don’t pollute communities and sicken people. Due to a lack of resources, the limited statistical In the United States, the Toxic Substances power in doing investigations of small communities Control Act (TSCA) is the primary law that or rare diseases, and a lack of knowledge about ensures the safety of industrial chemicals used in exposures, it has been difficult for state and commercial and consumer products by regulating federal agencies to shed light on most disease their use, from manufacturing to eventual disposal. clusters and their causes. There is a need for Unfortunately, because of major flaws in the law better documentation and investigation of disease the regulation of toxic chemicals in the United clusters and their causes. Senators Barbara Boxer States has been a failure. As a result, dangerous (D-CA) and Michael Crapo (R-ID), have introduced chemicals, including those known to cause cancer, legislation that would address at least some of birth defects, and learning and developmental these problems, by ensuring that the Environmental disabilities are still used widely with few, if any, Protection Agency and other federal agencies restrictions. These include many of the chemicals can, and will, provide the resources necessary for which have been linked to some disease clusters, investigations and other support, where state-level including TCE, dioxins, and asbestos. Better testing expertise or resources are not available. and regulation of the thousands of toxic chemicals that can come into our homes, our workplaces and Methods our schools is critical for reducing the cancer and Thirteen states, Texas, California, Michigan, North other chronic illnesses and disease that affect our Carolina, Pennsylvania, Florida, Ohio, Delaware, communities. Louisiana, Montana, Tennessee, Missouri, and An issue paper about disease clusters in Arkansas, were chosen for analysis based on particular states was developed by the Natural the occurrence of known clusters in the state, Resources Defense Council and the National geographic diversity, or community concerns about Disease Cluster Alliance to inform people about a disease cluster in their area. From May 2010 to disease clusters affecting communities across the July 2010, clusters in each state were identified by country. All of these disease clusters have been searching the websites Google, Proquest, Pubmed, confirmed or are currently undergoing an official and Web of Science using the name of the state investigation, though in most cases the cause of and the words “cluster”, “cancer cluster”, or “birth the cluster is unknown. defects cluster” as search terms. The disease clusters spotlighted in the factsheet series illustrate the need for: The criteria for inclusion in the search were: 1. Directing and funding federal agencies to swiftly 1. The clusters occurred after 1976, when TSCA assist state and local officials, and investigate legislation was initially passed and was intended to community concerns about potential disease regulate toxic chemicals. clusters and their causes; 2. The cluster was confirmed or is currently being 2. Reducing or eliminating toxic releases into air, investigated by a federal, state or local government water, soil and food through stronger environmental agency. Clusters were also included if they were controls and tough enforcement of those identified by academic researchers and published requirements; and in a peer-reviewed journal. Sources for each of the described clusters are available on NRDC’s 3. Requiring chemical manufacturers to ensure the website. safety of their products. When possible, contaminants discussed in investigations and news reports are identified, though in most cases no definitive cause for the cluster has been identified. In addition, industries, hazardous waste sites, or other locations which were identified by community members as being of concern are also referenced in the cluster description. All the fact sheets were externally peer-reviewed by scientists and community members in the National Disease Clusters Alliance. Stop disease clusters. Disease Clusters in Arkansas Protect people. Control toxic An unusually large number of people sickened by a disease in a certain place and chemicals. time is known as a ‘disease cluster’. Clusters of cancer, birth defects, and other chronic illnesses have sometimes been linked to chemicals or other toxic pollutants in local communities, although these links can be controversial. There is a need for better documentation and investigation of disease clusters to identify and address possible causes. Meanwhile, toxic chemicals should be identified and controlled through reform of the Toxic Substances Control Act, so these chemicals don’t pollute communities and sicken people. Investigations of disease clusters are complex, Arkansas has suffered from at least one expensive, and often inconclusive, partly due confirmed disease cluster. Although environmental to limitations in scientific tools for investigating contaminants are implicated, experts have been cause-and-effect in small populations. Preventing unable to pinpoint an exact cause. Regardless pollution is the best way to avoid creating additional of the cause, disease clusters can devastate disease clusters. Strategies for prevention communities with anxiety and emotional and include: (1) Directing and funding federal agencies financial difficulties including high medical costs to swiftly assist state and local officials, and and lowered property values, as well as the investigate community concerns about potential tremendous burden of the disease itself. disease clusters and their causes; (2) Reducing or eliminating toxic releases into air, water, soil and food through stronger environmental controls and tough enforcement of those requirements; and (3) Requiring chemical manufacturers to ensure the safety of their products. LOCATION: Prairie Grove, Washington County DISEASE: Testicular cancer In 2001, the Arkansas Department of Health identified a cluster of testicular cancer from 1997 to 2001; three of the cases were in 14-year-old boys. Though no cause was identified, the town of 2,500 people lies near a now-closed nuclear reactor, a low-level radioactive landfill, a poultry plant, and a manufacturer of poultry feed containing arsenic. Local residents were concerned TDCPthat the poultry factories were contributing to the high rates of cancer and other health problems because arsenic-contaminated Location: chicken manure was used as fertilizer Prairie Grove, and spread on fields beside schools and WashinGton County homes in Prairie Grove. In 2004, residents Disease: sued one of the poultry farms and the testicular cancer poultry feed manufacturer for spreading the contaminated manure throughout Prairie Grove. However, the court did not rule in favor of the residents and the true cause of the cluster has never been determined. Stop disease clusters. Disease Clusters in California Protect people. Control toxic An unusually large number of people sickened by a disease in a certain place and chemicals. time is known as a ‘disease cluster’. Clusters of cancer, birth defects, and other chronic illnesses have sometimes been linked to chemicals or other toxic pollutants in local communities, although these links can be controversial. There is a need for better documentation and investigation of disease clusters to identify and address possible causes. Meanwhile, toxic chemicals should be identified and controlled

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