Children with Disabilities and/or Special Educational Needs A Needs Assessment for Nottinghamshire September 2012 “I am very grateful for the respite and play services my son receives and would feel far less anxious if I could be assured that planners were assessing needs for the growing population……..coming through the system and that provision, recruitment and training of staff should be happening now to meet their needs once they reach adulthood.” Local parent Developed by the Nottinghamshire Joint Commissioning Group for Children with Disabilities and/or Special Educational Needs 1 2 Contributors Ann Berry Public Health, NHS Nottinghamshire County David Pearce Public Health, NHS Nottinghamshire County Denis McCarthy Nottinghamshire Futures Edwina Cosgrove Parent Partnership Fran Arnold Children’s Social Care, Nottinghamshire County Council Geoff Hamilton Policy & Planning, Nottinghamshire County Council Helen Crowder SEND Service, Nottinghamshire County Council Irene Kakoullis Health Partnerships, Nottinghamshire County Council Kirti Shah Policy & Planning, Nottinghamshire County Council Liz Marshall Early Years & Early Intervention, Nottinghamshire County Council Louise Benson Nottinghamshire Futures Michelle Crunkhorn Business & Administration, Nottinghamshire County Council Richard Fisher SEND Service, Nottinghamshire County Council Sally Moorcroft NAVO Sarah Everest Public Health, NHS Nottinghamshire County Scott Smith SEND Service, Nottinghamshire County Council Simon Bernacki Disability Nottinghamshire Sue Bold Data Management, Nottinghamshire County Council Sue Gill NHS Bassetlaw Tom Moffat 14-19 Strategy, Nottinghamshire County Council Tracie Dodd Early Years & Early Intervention, Nottinghamshire County Council William Hurst Statistical Review, Nottinghamshire County Council 3 Glossary of Terms ACT Association For Children’s Palliative Care ADHD Attention Deficit & Hyperactivity Disorder AfA Achievement for All AHDC Aiming High for Disabled Children APTCOO A Place to Call Our Own ASD Autistic Spectrum Disorders BESD Behaviour, Emotional and Social Difficulties BME Black & Minority Ethnic BWH Bluebell Wood Hospice C/C Continuing Care C4F C.A.R.I.N 4 Families CAF Common Assessment Framework CAMHS Child and Adolescent Mental Health Service CC Children Centre CCA Continuing Care Assessment CCN Children’s Community Nursing CCNu Continuing Care Nurse CDC Children’s Development Centre CDR Children’s Development Review ChiMat Child & Maternal Health Observatory CHN Complex Healthcare Needs CHP County Health Partnership CWDC Children’s Workforce Development Council CYP Children and Young People DBH Doncaster and Bassetlaw Hospital Trust DCATCH Disabled Children’s Access to Childcare DCSF Department for Children, Schools and Families DDA Disability Discrimination Act DEA Disability Employment Advisors DfE Department for Education DfES Department for Education and Skills DH Department of Health DLA Disability Living Allowance ECM Every Child Matters EDCM Every Disabled Child Matters EET Education, Training, Employment EMPHO East Midlands Public Health Observatory EoL End of Life FE Further Education FIS Family Information Service FL Foundation Learning FSM Free School Meals GCSE General Certificate of Education HE Higher Education HfH Home from Home HV Health Visitor IAG Information Advice and Guidance ICES Integrated Community Equipment Store ISC Independent Specialist College ISP Independent Specialist Provider JAT Joint Access Team LA Local Authority LAC Looked After Children 4 LC Leisure Centre LDD Learning Difficulties and/or Disabilities LLDD Learners with learning difficulties and or disabilities LLTI Long Term Limiting Illness LOS Life Opportunity Survey MH Mental Health NCC Nottinghamshire County Council NEET Not in Education, Training or Employment NHS National Health Service NHS B NHS Bassetlaw NHS NC NHS Nottinghamshire County NICE National Institute for Health & Clinical Excellence NLC Nottinghamshire Learning Centre NSF National Service Framework NUH Nottingham University Hospital OT Occupational Therapy PA Personal Advisor PC Palliative Care PCT Primary Care Trust PPS Parent Partnership Service PT Part time QOF Quality and Outcomes Framework RCN Royal College of Nursing SB Short Breaks SBAPs School Behaviour and Attendance Partnerships SCIE Social Care Institute for Excellence SEN Special Educational Needs SENCO Special Educational Needs Coordinator SFHT Sherwood Forest Hospital Trust TTS Transport & Travel Services TYS Targeted Youth Support UCAS Universities and Colleges Admissions Service WTE Whole Time Equivalent YPLA Young People’s Learning Agency 5 Contents Pages 1. Introduction 8 2. How many children and young people in Nottinghamshire 11 have a disability or SEN? 3. What are the outcomes and life chances for children and 28 young people with disabilities or SEN in Nottinghamshire? 3.1 Causes of childhood disability 29 3.2 Child poverty 31 3.3 Children subject to a child protection plan and looked after 32 children 3.4 Emotional health and wellbeing 36 3.5 Health outcomes 37 3.6 Bullying 38 3.7 Hate crime 40 3.8 Educational attainment 41 3.9 School attendance 43 3.10 School exclusions 44 3.11 Education, training and employment 46 3.12 Further and higher education 47 3.13 Transition 48 3.14 Transport 49 3.15 Housing and homelessness 50 3.16 Caring responsibilities 52 3.17 Participation in positive activities 55 3.18 Links to Offending behaviour 56 4. Understanding Current Service Provision for Children and 60 Families in Nottinghamshire 4.1 An overview of local services 60 4.2 Education services 60 4.3 Education otherwise than at school 63 4.4 Nottinghamshire Learning Centre 63 4.5 Elective home education 63 4.6 Autism education programmes 64 4.7 Post-16 education 65 4.8 Early years and childcare 69 4.9 DCATCH 71 4.10 Short breaks provision 73 4.11 Play for disabled children 82 4.12 Disability youth support services 83 4.13 Special school nursing 83 4.14 Paediatric speech and language therapy 83 4.15 Paediatric physiotherapy 84 4.16 Paediatric Occupational Therapy Service 87 4.17 Continuing Care Needs 90 4.18 Integrated equipment stores 91 4.19 Community paediatric services 94 4.20 Co-ordinated Training Service 96 6 4.21 Children’s palliative care 96 4.22 Children’s Social Care Disabled Children’s Team 97 4.23 Children’s social care 101 4.24 Early intervention 101 4.25 Transport 107 4.26 Transition support 110 4.27 Personalised budgets and direct payments 115 4.28 Nottinghamshire’s SEND Green Paper Pathfinder 117 4.29 Information, advice and guidance 121 4.30 How integrated are local services? 124 5. What do children, young people and families tell us? 126 6. Evidence-based practice 132 7. Headlines 136 8. Conclusions 141 9. Key recommendations for planners and commissioners 142 Appendices 1. National drivers 151 2. Health needs mapping in special schools 156 3. Special school catchment area and school pupil residence 175 4. Services in Nottinghamshire by tier of service and age 183 group 7 1. Introduction The Nottinghamshire Children’s Trust has developed this needs assessment to identify the needs of children, and young people with disabilities and/or Special Educational Needs (SEN) and their families within the county. Findings from this needs assessment will be used to influence a local joint commissioning strategy, which will make sure that the partner agencies work together, align resources to deliver their services effectively, provide good value for money and improve the experience and outcomes for people who use these services. Establishing joint commissioning arrangements and processes around key target groups such as disabled children and young people will help to improve co-ordinated packages of support, streamline processes, reduce duplication and costs, as well as improve outcomes. The SEN and Disability Green Paper 2011 also promotes the need to jointly commission: “By developing stronger local strategic planning and commissioning arrangements, local authorities and local health services will play a pivotal role in ensuring that children and young people with SEN or who are disabled receive high quality support, and that parents are able to make informed choices about what is right for their family1”. We are working to achieve the following ambition: We want Nottinghamshire to be a place for everyone to enjoy a good quality of life and realise their potential; and for our children to be safe and happy. In particular we want children with a disability and/or special needs to have the same access of opportunity as other children, to aspire, and be empowered to do so. To achieve this ambition we are working with partners to identify the needs of children, young people and families with disabilities in Nottinghamshire, we will identify gaps in service provision, review what children and families tell us and ensure our interventions and services are based on evidence based practice to improve outcomes. Every child deserves a fair start in life, with the very best opportunity to succeed. Currently, life chances for the approximately two million children and young people in England who are identified as having a special educational need, or who are disabled, are disproportionately poor2. “The assessment of children and families’ needs and the development of services to meet those needs are vital steps towards well being. Having a complete picture of the numbers and circumstances of disabled children is part of this process, yet there is no current complete information in the UK to guide