PCFA Stands for Partnerships Annual Report 2016/17 pcfa.org.au PCFA Stands for Partnerships Contents Our Vision & Mission 2 Our Values 3 Highlights 5 Chairman’s Report 7 CEO’s Report 9 Research 11 Awareness & Advocacy 19 Support 25 Corporate Partners 35 Community Events & Fundraising 40 Individual Giving 46 Thank You 50 Boards & Patrons 54 Committees & Staff 55 Financial Highlights 2016/17 57 PCFA Annual Report 2016/17 1 Our Vision & Mission Prostate Cancer Foundation of Australia (PCFA) is a broad-based community organisation and the peak national body for prostate cancer in Australia. We are dedicated to reducing the impact of prostate cancer on Australian men, their partners and families, recognising the diversity of the Australian community. We do this by: Promoting and funding world-leading, innovative PCFA relies on the generosity of individuals, the community research into prostate cancer. and partnerships to carry out our essential work. Implementing awareness and advocacy campaigns and education programs for the Australian community, health professionals and Government. Supporting men and their families affected by prostate cancer through evidence-based information and resources, support groups and Prostate Cancer Specialist Nurses. Our Values Compassion Integrity Optimism Respect Commitment NEW PCFA WEBSITE VISITORSTITLE PER MONTH 21,320 319,232 VISITING THE WEBSITE PER YEAR 167,645 61,000 PCFA’s AVERAGE SOCIAL MEDIA REACH PER MONTH RESOURCES DISTRIBUTED WITHIN THE COMMUNITY 23,000+ NUMBER OF SUBSCRIBERS TO PCFA’s NEWSLETTER NHMRC CENTRE OF RESEARCH EXCELLENCE IN PROSTATE CANCER SURVIVORSHIP LAUNCHED Prostate Cancer Comics – A new way to inform men 170TOTAL NUMBER 43TOTAL NUMBER 160TOTAL NUMBER OF SUPPORT GROUPS OF PROSTATE CANCER OF AMBASSADOR AFFILIATED WITH PCFA SPECIALIST NURSES TALKS TOTAL INCOME FOR THE YEAR $12 MILLION+ CLINICAL TRIAL FOR ADVANCED PROSTATE CANCER LAUNCHED Chairman’s Report As a broad-based community organisation and the peak national body for prostate cancer in Australia, we are dedicated to reducing the impact of prostate cancer on Australian men, their partners and families, recognising the diversity of the Australian community. Our work in undertaking research, raising awareness I would also like to take this opportunity to thank the and providing support is only possible through close many men and women who give so generously of their partnerships with organisations and individuals time to help us achieve our mission. From cricketing nationally. This year’s Annual Report outlines the great Matthew Hayden AM and former Australian partnerships that have assisted us in achieving ground- rules footballer and coach David Parkin OAM to our breaking initiatives in 2016/17. ambassadors, support group leaders and fundraisers, every single contribution has made a huge difference Our partnerships with leading Australian universities, to our ability to reach out with information and support medical colleges, collaborative clinical trials groups to men with prostate cancer and their families. and individual clinicians have enabled us to conduct world-leading laboratory-based research; research A partnership is about mutual benefit – it is about both into the better application of existing treatments and partners being able to contribute vision and energy knowledge; and research focused on improving to achieve an outcome that is greater than we could quality of life. Our goal is to improve outcomes for the have achieved individually. It is due to our partners that 200,000 Australian men and their families currently we enjoy such wide reach and influence, and we are living with prostate cancer, and ultimately, finding committed to delivering reciprocal value back to you. a cure for this insidious disease. Looking forward, we will continue to work diligently Through partnerships with community groups, to support men and their families affected by prostate medical research facilities, individual ambassadors cancer and try to reduce the impact of this disease and members of support groups, we have been able to through early detection and support of people in reach out to the community with vital messages about difficult circumstances. the importance of early detection and diagnosis, and I would like to thank our National Deputy Chairman information on modern treatment options and latest Steve Callister and our National and State Boards and research developments. many volunteers for their invaluable contribution to our This year also saw the expansion of the Prostate mission. Thank you also to our Chief Executive Officer, Cancer Specialist Nursing Service to 43 nurses right Associate Professor Anthony Lowe, and PCFA’s staff across Australia. The program is made possible by its who have worked so conscientiously again this year. community/Government partnership funding model. For those men affected by prostate cancer – you are Of course, we recognise that more nurses are needed not alone. PCFA has free information, resources and so that every man who has been diagnosed with support to assist you on your journey. I am deeply prostate cancer and his family have access to this grateful to all our partners and supporters for making vital source of support. We are working hard to develop that possible. new partnerships to achieve that outcome. All of this would not be possible without financial support from corporate partners such as BMW, Commonwealth Bank, Drummond Golf, New Holland Agriculture, Subway, Tyrepower and UBET and community partners such as Distinguished Jim Hughes AM Gentleman’s Ride, It’s a Bloke Thing and Movember. NATIONAL CHAIRMAN PCFA Annual Report 2016/17 7 CEO’s Report I am pleased to report that 2016/17 saw further progress in research, awareness and support. Research Support In partnership with ANZUP Cancer Trials Group, Our online community continues to go from strength we officially launched a major study into the diagnosis to strength. In just over one year it has grown to over and treatment of advanced prostate cancer using 1,600 members who are able to access information and PSMA-PET/CT scanning. One radioactive atom, support through a community forum, research blogs, Gallium 68, is used to detect how far the cancer has video gallery and community news and views. spread and another, Lutetium 177, is used to kill the 2016/17 saw a significant expansion of PCFA’s cancer. The trial will start recruiting patients at Peter specialist nursing service, made possible by generous MacCallum Cancer Centre in Melbourne, Royal Commonwealth Government and community funding. Brisbane and Women's Hospital and St Vincent’s Hospital in Sydney later this year. In April, Minister for Health, the Hon. Greg Hunt MP, announced a three-year extension of the funding In November 2016, in partnership with Griffith and Edith for 15 existing nurses, followed by a month later Cowan Universities, we were awarded funding from by a Federal Budget announcement of funding to the National Health and Medical Research Council for expand the service by a further 14 nurses. This will a Centre of Research Excellence in Prostate Cancer take the total number of prostate cancer specialist Survivorship. The Centre of Research Excellence will nurses nationally to 43. We are pleased that the research what works in helping men and their families Government has recognised the real difference with prostate cancer, focusing on equity and areas having access to a nurse makes to patients and their of high need, and support evidence-based policy families and has provided $11.8 million of funding and practice in prostate cancer survivorship care. over three years to support and expand the service. In February 2017, we entered into a strategic I am also delighted to report on a number of recent partnership with University of Southern Queensland community initiatives to fund nurses, including the to eliminate the disparities in prostate cancer outcomes Echuca Biggest Ever Blokes’ Lunch, ProState Active between rural/regional and metropolitan Australia. and The Profield Foundation. These generous gifts Through the partnership we will conduct research into will enable us to fund nurses at Echuca Regional these disparities and develop and test community- Hospital, Shenton House Joondalup and regional NSW based change interventions. The partnership will also respectively. act as a platform for evidence-based advocacy for health system change. The partnership aims to make Thank you to our supporters a positive difference to prostate cancer outcomes for Our work would not be possible without our many men in rural and regional Australia within five years. wonderful, generous supporters and volunteers who contribute their time and money to the cause – many Awareness of whom are featured in this report. I would especially Over the course of the year, over 100 volunteer like to give my heartfelt thanks to the thousands of Ambassador speakers delivered talks to community support group members and Ambassador speakers and business groups right across Australia. In around Australia who generously contribute their time May 2017, following extensive consultation with to support men and their families affected by prostate Ambassadors and other stakeholders, we released cancer and to raise awareness of the disease. a modern and fresh design for the Ambassador presentation materials. Together we can be justifiably proud of our work in research, awareness and support. In May 2017, we hosted the second annual Community Conversations on prostate cancer. This