W A R W I C K RESEARCH IN

Warwick Research in Nursing Newsletter D i r e c t o r : Professor Kate VOLUME 10, ISSUE 2 M A R C H 2 0 1 8 - S E P 2 0 1 8 S e e r s

OUR RESEARCH Education e-book THEMES: Professor Kate Seers has been involved with find it useful. http://ebooks.iasp-pain.org/ Patient & Public colleagues in developing a e-book as part of pain_education Involvement the International Association for the Study of Experience of Health Care Pain’s Global Year of Excellence in Pain Kate and Dr Fran Toye also led a webinar Education. describing the resource and discuss how it Person Reported Outcomes could be used. https://www.youtube.com/

Translating Knowledge into The aim is to help educators include watch?v=SKlK0zi-tJw Practice qualitative research in pain education. The e- book is free to download. We hope you will Contact: Kate Seers

This newsletter presents selected highlights of our research. For details of the full programme British Pain Society Honours please see our website.

INSIDE THIS ISSUE:

Nursing Scholarship 2

European Nursing 2

World Congress on 2 Pain

Publications 3

UK WOLLF Patient 3 Experience

Cochrane Colloquium 4

Kirstie Haywood 4

Professor Kate Seers had a double honour at through her work for the Society.” Dr Gill the British Pain Society’s Annual Scientific Chumbley and Dr Emma Briggs read her Website address: Meeting in May this year. She delivered an citation. http:// invited plenary lecture on “Chronic Pain, www2.warwick.ac.uk/ What’s it like? Patient and professional Picture: Left to Right, Dr Emma Briggs, fac/med/research/ perspectives.” Professor Kate Seers, Dr Gill Chumbley hscience/wrn (photo by William Campbell) She was also awarded Honorary Membership of the British Pain Society “in recognition of Contact: Kate Seers her outstanding contribution to the alleviation of pain through personal endeavour and @TheWRinN P A G E 2

Nursing Scholarship

The Barbers’ Company Clinical from the Barbers’ Company. The Nursing Scholarship attracted a large interviewees did a fantastic job of number of high quality applications. showing the difference they could make Shortlisted candidates were to clinical nursing, and awards were interviewed in at the made to cover training in addiction, beginning of June. The interview panel cancer care, research skills, spirituality, consisted of Professor Kate Seers and dementia care. Thank you to the

from Warwick Research in Nursing, Barbers’ Company for their continued University of Warwick; Emeritus support of clinical nursing. Professor at the University of Leeds Claire Hale and Dr Jeremy Bolton Contact: Kate Seers

European Nursing

Kate attended the European Nursing Research Foundation’s Board of Directors meeting in Brussels in April 2018. They discussed, amongst other things, how to get nursing research into European Policy. More details on ENRF can be found at this website. http://www.ens4care.eu/enrf/

Picture, left to right – Paul De Raeve, ENRF Secretary General; Karen Bjoro, Norwegian Nurses Association; Dorota Kilanska, Medical University of Lodz, Poland; Kate Seers, Warwick Research in Nursing.

Contact: Kate Seers

World Congress on Pain “delivers dynamic sessions on the latest innovations in pain research.”

They are presenting their innovations in the 2018 Global Year for Excellence in Pain Education. This is a resource about using qualitative Kate Seers, Fran Toye and Karen research in pain education to Barker (both from Nuffield stimulate thinking about what it is like Orthopaedic Centre, Oxford to live with pain. This is a patient University Hospital NHS Trust) have engagement initiative where congress been invited to present at the attendees engage with patient International Association for the advocates. Study of Pain’s World Congress Kate Seers in Boston US “Innovation Lab” in Boston US in Contact: Kate Seers September. This innovation lab

WARWICK RESEARCH IN NURSING VOLUME 10, ISSUE 2 P A G E 3

Selected Publications

Toye F, Seers K, Barker K. (2018) A meta-ethnography of health-care professionals’ experience of treating adults with chronic non-malignant pain to improve the experience and quality of health care. Health Serv Deliv Res 6(17)

Seers T, Derry S, Seers K, Moore RA. (2018) Professionals underestimate patients' pain: comprehensive review. 159(5):811-818. doi: 10.1097/j.pain.0000000000001165 http://doi.org/10.1097/j.pain.0000000000001165

Costa ML, Achten J, Bruce J, Tutton E, Petrou S, Lamb, S. E. (Sallie E.), Parsons NR. UK WOLLF Collaboration. Effect of negative pressure wound therapy vs standard wound management on 12-month disability among adults with severe open fracture of the lower limb: the WOLLF randomised clinical trial. JAMA. 2018 319 (22):2280-2288. doi:10.1001/jama.2018.6452. http://doi.org/10.1001/jama.2018.6452

Haywood KL, Mars TS, Potter R, Patel S, Matharu M, Underwood M. (2018) Assessing the impact of headaches and the outcomes of treatment: a systematic review of patient-reported outcome measures (PROMs). Cephalalgia, 38 (7). pp. 1374-1386. doi:10.1177/0333102417731348

Wilson PM, Mathie E, Poland F, Keenan J, Howe A, Munday D, Kendall S, Cowe M, Staniszewska S. Goodman C. (2018) How embedded is public involvement in mainstream health research in England a decade after policy implementation? A realist evaluation. Journal of Health Services Research and Policy, 23 (2). pp. 98- 106.doi:10.1177/1355819617750688 UK WOLLF Patient Experience

The UK WOLLF trial was a talk about their injury and Patients identified that in general randomised control trial of treatment in order to make sense they did not mind taking part in standard wound management of it. this trial as it was a minor part of versus negative pressure (vacuum) their overall care. Altruism or wound therapy for the treatment The participants were shocked by giving something back was of adult patients with an open the extent of their injury and important to them and the study fracture of the lower limb. wounds. Many needed help to look was not demanding of their time. at their wounds and worried about The clinical team were important The findings show that there was the long term impact on their life. and participants invested hope in no difference between the two Covering the wound up during their knowledge and skill. It was groups in relation to the Disability hospitalisation was important for hard to separate the research Rating Index (a measure of some. Participants also talked from daily clinical care. It was also function), or infection rates or about their experience of pain in difficult for them to make sense of health related quality of life at 12 vivid and varied ways. When ready the interventions without having months (see Costa et al. 2018 in they wished to talk through how had prior experience of them. selected references). they would manage at home but Those that had the vacuum were sad about the things they dressing liked it and felt it Two papers from the UK WOLLF would not be able to achieve. study have focused on patient supported their recovery. experience. The first identified Tutton E, Achten J, Lamb SE, Tutton E, Achten J, Lamb, patients’ experience of what it is Willett K, Costa M. on behalf of SE, Willett K, Costa M. on like to be injured. This paper the UK WOLLF research behalf of the UK WOLLF research highlights the strong emotions felt collaborators. A qualitative study collaborators. A qualitative study by patients as they relive the event of the experience of an open of the experience of an open and struggle to process the impact fracture of the lower limb in acute fracture of the lower limb in acute of injury. They had a heightened care, Bone Joint J 2018;100-B:522- care, Bone Joint J 2018;100-B:522- awareness of the affect on their 6 6 family and their future life. They were very grateful for being saved The second paper focused on by the team and often needed to patient experience of the trial. Contact: Liz Tutton

WARWICK RESEARCH IN NURSING P A G E 4 Cochrane Colloquium

Sophie Staniszewska attended the 2018 (healthcare consumers) in Cochrane’s jointly between Research Involvement Cochrane Colloquium in Edinburgh at work. and Engagement, Cochrane and the the International Conference Centre in British Medical Journal. Finally Sophie Scotland in September. The Sophie led a workshop focused on was part of a workshop which Colloquium focused on key goals for what patients want to be reported explored the key activities for our new Cochrane’s Strategy up to 2020, from about their involvement in research, International Patient and Public the viewpoint of healthcare consumers following on from our publication of Involvement Networks. https:// The theme was ‘Cochrane for all – GRIPP2, guidance for reporting community.cochrane.org/news/moving- better evidence for better health patient and public involvement in forward-global-patient-and-public- decisions’ and reflected an important research. Patients attended from all involvement-research step in increasing the involvement of over the world. Sophie was also a patients, carers and family members presenter in a workshop that Contact: Sophie Staniszewska discussed patient peer review, run Kirstie Haywood

Cardiac Arrest Survivorship survivors and their families as they seek representative from EUPATI to re-integrate back into society. Switzerland, the Swiss branch of the Kirstie Haywood was invited to deliver European Patient’s Academy on a plenary presentation during Patient Involvement Therapeutic Innovation, and Charisse September’s European Resuscitation International Society for Quality of Life Sparks who provided a perspective from Congress (ERC) held in Bologna, Italy. industry. Kirstie is a member of the American (ISOQOL) UK conference held at Heart Association’s writing group, co- Birmingham University. Kirstie chaired by Doctors Kelly Sawyer and provided a plenary paper identifying the Michael Kurz, which has produced an future development of patient evidence-based statement of involvement in patient reported survivorship for cardiac arrest survival. outcome measures both in the context Historically, the experience of of trials and clinical practice. survivors and their families has been In August, Kirstie was invited to poorly explored and communicated, contribute to a day’s workshop, hosted with assessment dominated by the by the AO Foundation in Switzerland, Hansruedi Voelkle, perspective of health professionals at promoting the involvement of patients Chairsse Sparks, hospital discharge. The event raised in trauma research. She was joined by Kirstie Haywood, awareness of the many unmet needs Hansruedi Voelkle, a patient Alexander Joerlis and rehabilitation challenges for Warwick Research in Nursing

Email Contacts: Division of Health Sciences Warwick Medical School Lee Gunn [email protected] University of Warwick Dr Kirstie Haywood [email protected] COVENTRY Vivien Nichols [email protected] CV4 7AL

Prof Kate Seers [email protected]

Dr Sophie Staniszewska [email protected]

Dr Liz Tutton [email protected]