COMBINED COMMUNITY AND ACUTE CARE GROUP Annual Research Report 2017 - 18 1 CONSOLIDATING RESEARCH AMBITION TABLE OF CONTENT Consolidating Research In March 2018, the Combined Community and Acute (CCA) Care Group was once again awarded Academic Status, following a Ambition …………………………2 significant year of clinical academic activity that represented all four Directorates building on previous experience and increasing capacity to undertake research. Research Programmes in Patient and Public Involvement (PPI) remained at the heart of our effort, continuing to generate feedback and advice on research CCA Care Group ………………3 questions with, in some cases, PPI panel members actively collaborating on projects and programmes. The Community Elders PPI Patient & Public Panel is now well established and includes members who have experience to share in terms of hospital, community and Involvement in Research….4 intermediate care. The publication of the evaluation activity within the Therapeutics and Palliative Care PPI Panel was an Technology in Health Events important output, reflecting the rigor and ambition of our PPI activity. Following a review of activity, the Stroke PPI Panel has been with SHU….………................5 re-formed and will soon become a formal, regular, face-to-face event. Clinical Academic Research A significant success was the achievement of more than 450 patient recruits into research studies, in particular studies where the Impact …………………………….6 Care Group were invited to open as clinical sites in community services. The 100% increase in patient recruitment represented a focus on bigger studies and trials rather than increased site opening. The opportunities for study site opening and commercial Clinical Research Objectives, studies is actively shared with services and continues to be an important objective. In particular, the portfolio studies represent a Performance Summary ……8 career development opportunity for new researchers and junior staff. Active engagement and an emphasis on developing research careers across all professions and services has been increasingly challenging in 2017, as service pressures and operational management pressures increased. Service leads on the Research Implementation Group (RIG) have continued to support the Research Forums that in 2017/18 were strongly attended and offered important networking, learning and grant application opportunities. Two new forums have come together: the city-wide Sheffield Palliative Care Research Net work and the Geriatric and Stroke Research Forum. Both groups have been brought together by research leaders across the CCA Care Group and represent the ability of STH staff to generate collaborative discussions to generate original, clinically oriented research questions. GSM has generated two new proposals, and in keeping with all forums will generate new bids and proposals for fellowship applications and individual grants. Significant development activity for individual staff and services has been generated through a range of secondment and exchange activity that, for those concerned, has built skills, knowledge and awareness of the wider opportunity for research to drive service improvement and clinical effectiveness. Congratulations to all staff who have delivered a project, written up a research project or submitted an application for funding or a fellowship. Continuing resilience and the quality of applications will be the hallmark of the CCA Care Group research offer. We continue to communicate the benefits and opportunities that research offers to individuals and services. The goal is to increase partnerships with academic colleagues who will collaborate with us on new and diverse opportunities that bring back benefits in terms of research outcomes and learning. The following report outlines some of the particular highlights from 2017/18. 2 RESEARCH PROGRAMMES IN CCA CARE GROUP These studies were externally funded research or portfolio adopted sites opened in 2017/18 led by CCA clinical academics. The CCA are Group prides itself on collaboration and co- delivery of studies. A full list and detail of all research studies is provided in the Appendix. Funder Title of Study Acronym Principal Key Academic Collaborator Investigator in STH Medical Research Using Virtual Reality as a distraction technique to reduce pain VR Pain reduction for Orla Fehily Ivan Phelan, Sheffield Hallam Council during burn treatments. burn treatments University NIHR WoundTec HTC Investigating the benefits of a 3D camera for recording healing 3D camera study for Kevin Doyle Dr Karen Kilner, Dr Sally wound dimensions wound monitoring Fowler-Davis, Sheffield Hallam University Stroke Association How does variation in assessment and clinical management of Sabrina Eltringham Prof Karen Sage, Sheffield dysphagia in acute stroke affect development of stroke-associated Hallam University pneumonia (SAP)? Nutricia An evaluation of the tolerance, compliance and acceptability of a HEHP16 Sean White ready to use, liquid, high energy, high protein, peptide-based feed for adults in need of nutrition support – a pilot study The Stroke Aphasia Therapeutic Alliance Measure (ATAM): Development and ATAM Caroline Haw Michel Lawton, University of Association Junior preliminary psychometric evaluation Manchester, Prof Karen Sage, Fellowship Sheffield Hallam University 3 PATIENT AND PUBLIC INVOLVEMENT IN CCA CARE GROUP RESEARCH The CCA Care Group has continued to grow its Patient and Public Involvement (PPI) over 2017/18. This has been particularly seen in the iGSM PPI network which has been utilised considerably over the past 12 months, with researchers and the public engaged through our remote-access Stroke PPI Database, awareness events and consultation with local voluntary sector and charitable groups such as ‘Different Strokes’, and most recently the formation of a Stroke-specific Research Advisory Focus Group. The STH-run Stroke and Aphasia Research Advisory Group is in the process of being set up, with the initial meeting to take place in October 2018 and hoping to meet in a community setting 3 or 4 times per year. The current group membership are keen to promote aphasia friendly research across the Trust, provide input on Stroke specific projects and carry out activities around research prioritisation and co-production in the future. The Therapeutics and Palliative Care Patient Public Involvement Panel has continued to meet 4 times a year. It continues to attract new members and has provided in- depth feedback on a number of studies. The panel also encourages researchers to report back on the findings of their studies and has ensured that every meeting includes feedback on studies that have been completed. A highlight for the panel has been the publication of an article in Research Involvement and Engagement. This article shared the findings of the impact the panel is making to research and was written by the panel members themselves. The Community Elders Panel (CEP) consists of members of the public aged over 75, resident in Sheffield and with limited mobility. Currently eight members are involved, representing a range of socioeconomic backgrounds, genders and health conditions, including one BME member. Unlike other PPI panels, members are visited in their own homes to negate travel and fatigue. Five studies have been presented to the CEP for consultation with researchers stating they received useful and insightful feedback, some being successful in gaining funding/approval, and all stating they would use the panel again. The impact on panel members has also been positive, with satisfaction being expressed at being able to contribute to improved healthcare and “feeling useful”. Members of the PPI panels have gone on to be involved in wider PPI activity throughout the Trust and academic settings, such as sitting on steering groups for research studies, representing PPI at consultation events such as the opening of the new Biomedical Research Centre (BRC) in Sheffield, and becoming involved in local PPI initiatives around communication and the new INVOLVE guidance. The sustainability of the panels is also important. With this in mind future plans include income generation via a small charge to consult the panels from researchers outside the care group, and to support all researchers to appropriately cost PPI in their proposals. 4 QUOTE FROM JIM GORDON – CHAIR OF THERAPEUTICS AND PALLIATIVE CARE PPI PANEL “I am sure our panel's contribution within this strategy will continue to reflect the step change that is already underway in our Patient and Public Involvement (PPI) in the Group's comprehensive research program .This is because involvement for us is increasingly progressing to more active participation in research studies, and working collectively with hospital staff in meaningful co-production such as designing methods to evaluate our own effectiveness. This has resulted in us sharing out findings on our impact as a panel by writing a paper on PPI from the patient perspective which has been published in Research Involvement and Engagement and can be read through open access on line. We have also had an abstract published by Research Involvement and Engagement on how our work in support of researchers has benefited from patient/staff co-production following a poster presentation we made on this at the national NHS "Involve" Conference on research. Through all of this, and our continuing membership at strategic level of the Directorate's Academic Board, I am confident in saying a strong patient