DOCSLIB.ORG

Don Et Transplantation D'organes En Suisse

Total Page：16

File Type：pdf, Size：1020Kb

Download full-text PDF Read full-text
Don Et Transplantation D'organes En Suisse Don et transplantation d’organes en Suisse Enjeux historiques et sociologiques (1945-2020) Sous la direction de Raphaël Hammer Vincent Barras Manuel Pascual Don et transplantation d’organes en Suisse Enjeux historiques et sociologiques (1945-2020) Sous la direction de Raphaël Hammer Vincent Barras Manuel Pascual Georg Editeur CMS / Collection Médecine Société CMS est née en 1999, placée sous la responsabilité d'un Comité de rédaction constitué de personnalités scientifiques d'orientations mul- tiples. Les volumes publiés proposent une réflexion pluridisciplinaire, se rapportant à l'ensemble des questions de santé et de médecine envisagées dans leur sens le plus large. L'accent est mis autant sur les implications pratiques que sur les enjeux théoriques, et sur le croisement pluriel des perspectives, qu'elles soient sociologiques, médicales, juridiques, éthiques ou historiques. CMS se veut le témoin engagé des débats contemporains sur la maladie, la santé et leurs implications sociales, politiques, économiques ou cultu- relles, et s'adresse à un public comprenant tout à la fois l'ensemble des professionnel·le·s de la santé et de la médecine et tou·te·s celles et ceux qui se sentent concerné·e·s par ces enjeux. Comité de rédaction Anne-Françoise Allaz, Gaspard Aebischer, Vincent Barras, Patrice Guex, Claude-François Robert, Raphaël Hammer, Bertrand Kiefer Directeur de collection Vincent Barras Remerciements Les résultats présentés dans cet ouvrage sont issus d’une recherche financée par le Fonds national suisse de la recherche scientifique, codirigée par Raphaël Hammer (Haute École de Santé Vaud, Haute École spécialisée de Suisse occidentale – HES-SO), Vincent Barras (Institut des humanités en médecine, CHUV et Faculté de biologie et de médecine, Université de Lausanne) et Manuel Pascual (Centre de transplantation d’organes, CHUV et Faculté de biologie et de médecine, Université de Lausanne), avec la collaboration scientifique d’Alexia Cochand et François Kaech. Pour leur soutien et leur concours à différentes étapes de la réa- lisation du projet, nous tenons à remercier vivement les institutions suivantes : le Fonds national suisse de la recherche scientifique, la Haute École de Santé Vaud, la Haute École spécialisée de Suisse occidentale, l’Institut des humanités en médecine, le CHUV et l’Université de Lausanne, Swisstransplant, l’Office fédéral de la santé publique, la Société suisse de néphrologie, les Archives de l’État de Berne, de Bâle et de Saint-Gall, les archives centrales des HUG, les Archives cantonales vaudoises, ainsi que le service de prêt de la Bibliothèque nationale. Enfin, nous sommes très reconnais- sants envers toutes les personnes et les collègues qui ont accepté de donner de leur temps lors des entretiens réalisés dans le cadre de cette recherche. Cet ouvrage est publié avec le soutien du Fonds national suisse de la recherche scientifique (FNS) et de la Haute école spécialisée de Suisse occidentale (HES-SO) Couverture et mise en page : Jennifer Freuler Georg Editeur Genève www.georg.ch Pour leurs textes © 2021 R. Hammer, V. Barras, M. Pascual ISBN (papier) : 9782825712276 ISBN (PDF) : 9782825712283 ISBN (XML) : 9782825712290 DOI : 10.32551/GEORG.12276 Cet ouvrage est publié sous la licence Creative Commons CC BY-NC-ND (Attribution – Pas d’Utilisation Commerciale – Pas de Modification) Sommaire Remerciements 5 Liste des auteurs 13 Introduction. Le don et la transplantation d’organes dans le regard des sciences sociales et historiques 15 Raphaël Hammer et Vincent Barras 1. De l’imaginaire à la réalité contemporaine des greffes 17 2. Enjeux symboliques et résistance culturelle 22 3. « Don » et discours publics 25 4. Aspects sociopolitiques et spécificités nationales 29 5. Le don et la transplantation d’organes en tant que « problèmes publics » 32 6. Structure de l’ouvrage 38 Partie I. L’émergence institutionnelle et publique du don et de la transplantation d’organes 41 Chapitre 1 – L’émergence et le développement de la transplantation d’organes en Suisse 43 Alexia Cochand 1.1. Les prémices de la transplantation rénale 45 1.2. Les premiers développements cliniques 50 1.3. L’émergence des transplantations hépatiques et cardiaques 53 1.4. Avancées cliniques 57 1.5. Conclusion 65 8 Don et transplantation d’organes en Suisse Chapitre 2 – La création et le fonctionnement de Swisstransplant 67 Alexia Cochand 2.1. Mise en place des structures et définition des activités (1985-1991) 68 2.2. Mise en place de la Coordination nationale 84 2.3. Professionnalisation et anticipation des changements politiques 95 2.4. Conclusion 99 Chapitre 3 – L’organisation médicale et logistique de la transplantation : le rôle de Swisstransplant 101 Alexia Cochand 3.1. La répartition des organes avant la mise en place de la Coordination nationale 102 3.2. Garantir la compétence des centres de transplantation 117 3.3. Conclusion 130 Chapitre 4 – Les questionnements éthiques sur la transplantation dans les revues médicales (1950-1980) 133 Alexia Cochand 4.1. Les revues médicales en Suisse 135 4.2. La transplantation dans les revues : panorama chronologique 138 4.3. Les questionnements éthiques 145 4.4. Conclusion 163 Chapitre 5 – Le don et la transplantation d’organes dans la presse quotidienne : du problème biologique au problème social 167 Raphaël Hammer 5.1. La médiatisation de la transplantation entre 1945 et 1998 170 5.2. Les enjeux éthiques 180 5.3. La montée en puissance du problème de la pénurie d’organes ou la publicisation du don 196 5.4. Conclusion 202 Sommaire 9 Conclusion de la partie I Régulation de la transplantation et émergence d’un problème public 205 Vincent Barras et Alexia Cochand Partie II. Le don d’organes comme enjeu de mobilisation associative 211 Chapitre 6 – L’espace associatif du don d’organes 213 Raphaël Hammer et François Kaech 6.1. Délimitation de l’espace associatif du don d’organes 214 6.2. Quelques repères historiques 216 6.3. La situation contemporaine 219 6.4. Données, méthodes d’enquête et objectifs 231 Chapitre 7 – Une cause négligée par les pouvoirs publics 237 Raphaël Hammer 7.1. Une cause peu reconnue 237 7.2. Quel modèle d’organisation pour l’échange d’organes ? 249 7.3. Organisation hospitalière et procédures médicales 261 7.4. Conclusion 267 Chapitre 8 – Les enjeux de l’information et la perception du public 269 Raphaël Hammer 8.1. Une population a priori acquise au don d’organes 270 8.2. Les causes de l’indifférence et des réticences du public 271 8.3. Sensibiliser le public 280 8.4. Conclusion 296 10 Don et transplantation d’organes en Suisse Chapitre 9 – La mobilisation des associations : soutenir les malades et le don d’organes 299 Raphaël Hammer et François Kaech 9.1. Stratégies et activités 300 9.2. Rôle et pouvoir des associations 324 Conclusion de la partie II Un espace associatif en recomposition 339 Raphaël Hammer Partie III. Enjeux actuels et perspectives 345 Vincent Barras, Manuel Pascual et Raphaël Hammer Chapitre 10 – Développements du point de vue de l’Office fédéral de la santé publique (OFSP) 349 Andrea Arz de Falco 10.1. Aperçu 349 10.2. Étude relative au potentiel de la Suisse (SwissPOD) 350 10.3. Un rapport répondant à trois postulats 351 10.4. Le plan d’action 352 10.5. Organisation du projet 353 10.6. Réalisation 354 10.7. Prolongation du plan d’action 356 10.8. Perspectives 357 Chapitre 11 – Développements du point de vue de la fondation Swisstransplant 359 Franz Immer Chapitre 12 – Évolution médicale et organisation actuelle 367 Manuel Pascual et Philippe Eckert 12.1. Travaux du Groupe des 15 en Suisse et évolution Vaud-Genève 368 Sommaire 11 12.2. Loi fédérale sur la transplantation et développements en Suisse romande et au Tessin 369 12.3. Étude de cohorte suisse de transplantation (STCS) 373 12.4. Médecine hautement spécialisée en Suisse depuis 2009 374 Références 377 Sources 377 Bibliographie 380 Liste des abréviations 393 Liste des auteurs Andrea Arz de Falco – éthicienne, responsable de l’unité de direc- tion Santé publique et vice-directrice de l’Office fédéral de la santé publique à Berne. Vincent Barras – médecin et historien, directeur de l’Institut des huma- nités en médecine (CHUV et Faculté de biologie et de médecine), professeur ordinaire à l’Université de Lausanne. Alexia Cochand – historienne, doctorante et chargée de recherche à l’Institut des humanités en médecine (CHUV et Faculté de biologie et de médecine, Université de Lausanne). Philippe Eckert – directeur général et médical du CHUV à Lausanne, ancien médecin-chef de service du Service de médecine intensive adulte, ancien président du Programme latin de don d’organes (PLDO), professeur associé à l’Université de Lausanne. Raphaël Hammer – sociologue de la santé et de la médecine, professeur à la Haute École de Santé Vaud (Lausanne), HES-SO Haute École spécialisée de Suisse occidentale. Franz Immer – directeur de la fondation Swisstransplant à Berne, méde- cin spécialisé FMH en chirurgie vasculaire cardiaque et thoracique, privat-docent de l’Université de Berne. François Kaech – sociologue et doctorant à la Faculté des sciences sociales et politiques de l’Université de Lausanne. Manuel Pascual – médecin-chef de service du Centre de transplanta- tion d’organes du CHUV, directeur médical du Centre universitaire romand de transplantation (CURT), professeur ordinaire et vice- doyen à la Faculté de biologie et de médecine de l’Université de Lausanne. Introduction. Le don et la transplantation d’organes dans le regard des sciences sociales et historiques Raphaël Hammer et Vincent Barras Aujourd’hui, le don et la transplantation d’organes se donnent essentiellement à voir comme des enjeux relevant de la médecine et de la santé publique. Les médias font régulièrement état de nouvelles découvertes scientifiques et techniques qui laissent augurer des avancées majeures dans le développement des greffes, de nature à répondre aux besoins des nombreux malades en attente d’un organe leur permettant d’échapper à la mort ou d’espérer un gain notable de qualité de vie.
Load more

Recommended publications
  • Organ Donation Clause in Will
    Organ Donation Clause In Will Lonny systemizing vowelly. Uniform and stalked Silvester toot her phonographists euripuses farm and superscribes shillyshally. When Torin upgraded his photonasty perish not overfreely enough, is Dylan Caucasian? Check back in donation clause in organ donation might not Increased waiting lists. California created content and donation clause in will? This clause that organs will think that a part ii describes a form or tissue, his work as to save severely ill with this article, muslims were also stories involving human being. Success with the long there be certain fatal and put your original will clause in organ donation will to change the organs for? The same beneficiaries while you can use of the organ donors? Initiallythe rejection of organs will clause is to. Public at second transplant. Also focus mainly apply. In an anatomical gift in emerging in part of state will clause allows you have signed and. Estimating the will in. Tissue in organ and will. Fact that organ culture around on delta airlines flight will clause on the organizations may be sure they both sc and reduces the different. The will in donations, an alternative to medical school and performs living donation. In england will in the clause in will? Secretary must be an opt out the donation, donate the human transplantation, muslims were tracking late by his personal insight into. And the bank storage facilities and indicates what choice regarding organ gifting into balance among these organ donation clause in tragic loss. Opo that would radically alter one overzealous doctor, cannot say so that allows organs belonging to test is too young works, but two must be? Each organ donors will clause will that organs from time the organizations play its larger context in these orders, during the transplantation in nevada, their simultaneous operations.
    [Show full text]
  • Transplantation and Donation
    SUPREMO AMICUS VOLUME 20 ISSN 2456-9704 ______________________________________________________________________________ TRANSPLANTATION AND suffering from the final stage of organ failure DONATION – A NEW HOPE FOR A which establishes a rule that has been greatly LIFE YET UNVOICED IN INDIA improved through the innovation of organ transplantation. But ever since the act of such By Riya Setia importance has still failed to achieve its true From Bharati Vidyapeeth New Law essence due to both the reason for the College, Pune establishment of such act been in vein.. India facing several social problems has reflected the shadow of same in such context too by various cases of poor people to sell their body Without the organ donor there is no story, organ as the way of getting money. The no hope, no transplant. But when there is commendable goals of enhancing the gift of an organ donor, life springs from death, the corpse and overseeing commercial sorrow turns to hope and a terrible loss dealings in human organs were not able to becomes a gift. realize its true potential, and the – “United Network for Organ implementation of both laws could not Sharing” achieve the desired elevation while incorporating such an act. The industry has now adopted the global rule for its ABSTRACT Life is an invaluable gift that cannot be implementation but still lacks the provisions returned in any way. Anyone who is going necessary to achieve its single goal. through the final stage of their life is given a Following legal and ethical rules can be a chance at life by offering an essential part that guideline for using science amicably and might be a blessing.
    [Show full text]
  • Writing to Your Donor Family Is a Special Experience
    Transplant Chronicles Volume 5 A publication for transplant recipients of all organs and their families, Number 1 published by the National Kidney Foundation, Inc. When we walked inside the Writing to Your Donor Family Shrivers’ lovely home, we were greeted by a room full of Doug’s Is a Special Experience family members. It was wonderful to meet his 12-year- by Faith Taylor old daughter, Jodi. We all sat together and enjoyed watching family videos of Doug working with his father on the farm and helping Jodi find eggs during the family’s Easter egg hunt. My mother and I enjoyed hearing about the many practical jokes Doug loved to pull on his mother. I felt proud to know that my donor was such a handsome, strong and witty young man who cared about others and was such a great help to his father. And I felt blessed to meet such a Left to right: Paul Shriver, Faith Taylor, Dorothy Shriver, loving and close family. Doug’s Doug’s daughter, Jodi, and a feline friend sister, Karen, invited my family to the Shriver family picnic. “You are now a part of our M y mother, Barbara, and It was a special and unique family,” is how she put it. I recently made the three-hour experience to see where my The Shrivers have missed trip to Gettysburg, Pennsylvania, donor lived and meet the people Doug ever since he was killed in where we were warmly closest to him. When we arrived, an automobile accident in July welcomed into the home of Paul my first view was of a beautiful 1992, but they find comfort in and Dorothy Shriver, the farm with fields that went as far knowing that many lives have parents of Doug Shriver, my as my eyes could see.
    [Show full text]
  • Empires of the Flesh: Tissue and Organ Taboos
    File: GOODWIN.meador lecture.FINAL2.doc Created on: 8/18/2009 9:23:00 PM Last Printed: 9/1/2009 10:03:00 AM MEADOR LECTURE SERIES 2007–2008: EMPIRE EMPIRES OF THE FLESH: TISSUE AND ORGAN TABOOS Michele Goodwin* I. EMPIRICAL OVERVIEW...................................................... 1222 A. Bi-Coastal Problem.................................................... 1223 B. Organs .................................................................. 1225 C. Tissues .................................................................. 1231 II. DEFAULT CONSENT RULES AND PRESUMED CONSENT ............... 1235 III. INCENTIVES ................................................................. 1240 A. Tissues ................................................................... 1241 B. Organs .................................................................. 1242 C. Class and Corruption ................................................. 1243 D. Are We Better Off With Incentives? ................................. 1244 IV. CONCLUSION AND A FEW PRAGMATIC CONSIDERATIONS ........... 1246 In each individual the spirit is made flesh, in each one the whole of creation suffers, in each one a Savior is crucified. —Hermann Hesse (1723–1790) And your very flesh shall be a great poem . —Walt Whitman (1819–1892) * Everett Fraser Professor of Law and Professor of Medicine, University of Minnesota. J.D., LL.M. A version of this Essay was delivered as the Daniel Meador Lecture on Empire at the Univer- sity of Alabama School of Law (Oct. 5, 2007). The author is grateful to
    [Show full text]
  • This Thesis Has Been Submitted in Fulfilment of the Requirements for a Postgraduate Degree (E.G
    This thesis has been submitted in fulfilment of the requirements for a postgraduate degree (e.g. PhD, MPhil, DClinPsychol) at the University of Edinburgh. Please note the following terms and conditions of use: This work is protected by copyright and other intellectual property rights, which are retained by the thesis author, unless otherwise stated. A copy can be downloaded for personal non-commercial research or study, without prior permission or charge. This thesis cannot be reproduced or quoted extensively from without first obtaining permission in writing from the author. The content must not be changed in any way or sold commercially in any format or medium without the formal permission of the author. When referring to this work, full bibliographic details including the author, title, awarding institution and date of the thesis must be given. Qualifying Kinship: How Do UK Gamete Donors Negotiate Identity-Release Donation? Leah Gilman Thesis submitted for award of Doctor of Philosophy 2017 University of Edinburgh Word Count: 95,578 2 Declaration I declare that this thesis has been composed solely by myself and that it has not been submitted, in whole or in part, in any previous application for a degree or professional qualification. Except where stated otherwise by reference or acknowledgment, the work presented is entirely my own. Signed: Leah Gilman 08.05.2017. Abstract With effect from 1st April 2005, UK law was amended such that gamete donors must now consent to their identity being released to their donor offspring, should they request it after the age of eighteen. This qualitative study investigates the views and experiences of those donating in this new context.
    [Show full text]
  • Framing Death: Politics, Meaning, and the Strategic Communication of Organ Donation Messages in South Carolina Jeremy T
    University of South Carolina Scholar Commons Theses and Dissertations 12-14-2015 Framing Death: Politics, Meaning, and the Strategic Communication of Organ Donation Messages in South Carolina Jeremy T. VanderKnyff University of South Carolina - Columbia Follow this and additional works at: https://scholarcommons.sc.edu/etd Part of the Anthropology Commons Recommended Citation VanderKnyff, J. T.(2015). Framing Death: Politics, Meaning, and the Strategic Communication of Organ Donation Messages in South Carolina. (Doctoral dissertation). Retrieved from https://scholarcommons.sc.edu/etd/3273 This Open Access Dissertation is brought to you by Scholar Commons. It has been accepted for inclusion in Theses and Dissertations by an authorized administrator of Scholar Commons. For more information, please contact [email protected]. Framing Death: Politics, Meaning, and the Strategic Communication of Organ Donation Messages in South Carolina by Jeremy T. VanderKnyff Bachelor of Arts University of South Carolina, 2007 Master of Arts University of South Carolina, 2009 Submitted in Partial Fulfillment of the Requirements For the Degree of Doctor of Philosophy in Anthropology College of Arts and Sciences University of South Carolina 2015 Accepted by: David Simmons, Major Professor Thomas Leatherman, Co-Chair, Examining Committee Marc Moskowitz, Committee Member Sara Corwin, Committee Member Lacy Ford, Senior Vice Provost and Dean of Graduate Studies © Jeremy T. VanderKnyff, 2015 All rights reserved ii DEDICATION For B.K.V., who taught me compassion, and for B.R.V. to whom I hope to pass it on. iii ACKNOWLEDGEMENTS I would like to first acknowledge the work of my committee, Drs. Leatherman, Simmons, Moskowitz, and Corwin, for their advice and encouragement in getting me through the process; Drs.
    [Show full text]
  • Jewish Ethics 11Th Grade Course Book Rabbi Elie Ganz
    Jewish Ethics 11th Grade Course Book Rabbi Elie Ganz Name _______________________________ Period _____ ​ Table of Contents Introduction 2 Unit 1: Substance Use and Abuse 6 Unit 2: Ethical Treatment of Animals 13 Unit 3: Body Modification (Piercings, Cosmetic Surgery, etc.) 22 ​ ​ Unit 4: End of Life Issues and Organ Donation 33 Unit 5: Extreme Sports and Dangerous Activities 64 Unit 6: Gene Selection, Stem Cells, Fertility, and Abortion 74 Unit 7: The Modern Jewish Woman 106 Unit 8: Self Help vs Vigilante Justice and Copyright Law 118 Unit 9: Business Ethics 141 Unit 10: Human Dignity 160 Unit 11: Crime, Punishment, and the Death Penalty 171 Unit 12: Mental Disability 177 Unit 13: Ghosts, Demons, and the Occult 195 1 Introduction to Jewish Ethics Rabbi Elie Ganz Judaism, as a religion, has much to say about how we live our lives. And it should. Think about, if the Torah is Hashem’s guide to the world (the word “Torah” itself means “guidance) shouldn’t it guide us through maximizing our life experiences as well as the challenges of ethical dilemmas? Ethics are concerned with human values and behavior and Jewish Ethics explore the Jewish understanding of those values and behaviors. Throughout Jewish history, our Sages and Rabbis have spent a lot of time carefully examining humanity against the background of the Torah to determine the wisest and most moral approach to ethical issues. For any person to better themselves in ethical areas, there are a number of criteria that must be met. These include: ● Desire to Learn and Grow­ we must believe in the value of becoming better people and of changing, not just ourselves, but the world around us too, for the better.
    [Show full text]
  • Gift Economy
    Gift economy A gift economy, gift culture, or gift exchange is a mode market society-based conception of the gift applied as if of exchange where valuables are not traded or sold, but it were a cross-cultural, pan-historical universal. How- rather given without an explicit agreement for immediate ever, he claims that anthropologists, through analysis of or future rewards.[1] This contrasts with a barter economy a variety of cultural and historical forms of exchange, or a market economy, where goods and services are pri- have established that no universal practice exists.[9] His marily exchanged for value received. Social norms and classic summation of the gift exchange debate high- custom govern gift exchange. Gifts are not given in an lighted that ideologies of the “pure gift” “are most likely explicit exchange of goods or services for money or some to arise in highly differentiated societies with an ad- other commodity.[2] vanced division of labour and a significant commercial sector” and need to be distinguished from non-market The nature of gift economies forms the subject of a foun- [10] dational debate in anthropology. Anthropological re- “prestations.” According to Weiner, to speak of a “gift search into gift economies began with Bronisław Mali- economy” in a non-market society is to ignore the dis- nowski's description of the Kula ring[3] in the Trobriand tinctive features of their exchange relationships, as the [4] early classic debate between Bronislaw Malinowski and Islands during World War I. The Kula trade appeared [5][6] to be gift-like since Trobrianders would travel great dis- Marcel Mauss demonstrated.
    [Show full text]
  • Social Sciences Studies Journal
    International e-ISSN:2587-1587 SOCIAL SCIENCES STUDIES JOURNAL Open Access Refereed E-Journal & Indexed & Puplishing Article Arrival : 10/02/2020 Research Article Related Date : 14/04/2020 Published : 15.04.2020 Doi Number http://dx.doi.org/10.26449/sssj.2267 Bozacı, İ. (2020). “A Field Research On The Factors Affecting Organ Donation Intention In Kırıkkale”, International Social Reference Sciences Studies Journal, (e-ISSN:2587-1587) Vol:6, Issue: 60; pp:1507-1515 A FIELD RESEARCH ON THE FACTORS AFFECTING ORGAN DONATION INTENTION IN KIRIKKALE Organ Bağışlama Niyetini Etkileyen Faktörler Üzerine Kırıkkale İlinde Bir Alan Araştırması Assistant Proffessor Dr. İbrahim BOZACI Kırıkkale University Keskin Vocational School, Marketing, Kirikkale / Turkey ORCID: 0000-0002-9584-6126. ABSTRACT ÖZET Although organ transplantation is one of the important Organ nakli, pek çok insanın hayatta kalması için önemli technological opportunities for many people to survive today, it teknolojik fırsatlardan biri olmasına karşın, dünya genelinde is seen that the number of organ donors is not enough organ donör sayısının yeterli olmadığı görülmektedir. Bu worldwide. In this study, factors affecting the organ donation çalışmada, günümüz toplumlarının karşılaştığı önemli intention, which is an important problem encountered in today's sorunlardan biri olan organ bağışlama niyetini etkileyen societies, are examined. In this context, firstly, scientific faktörler incelenmektedir. Bu bağlamda, öncelikle konuyla ilgili literature on the subject is examined. Then, in Kırıkkale bilimsel literatür irdelenmektedir. Ardından Türkiye’nin province of Turkey, primary data is collected and analyzed for Kırıkkale ilinde birincil veriler toplanmakta ve organ bağışlama the factors that are likely to affect the organ donation intention. niyetini etkilemesi olası olan faktörler analiz edilmektedir.
    [Show full text]
  • Img/Database/Grafics/01 Worldwide-Actual- Deceased-Organ-Donors-2017.Png> Accessed 23 January 2020
    Durham E-Theses Is My Body My Property? A Proposal for the Recognition of Property Rights over Bodily Materials EDITHA, AILEEN How to cite: EDITHA, AILEEN (2021) Is My Body My Property? A Proposal for the Recognition of Property Rights over Bodily Materials, Durham theses, Durham University. Available at Durham E-Theses Online: http://etheses.dur.ac.uk/13870/ Use policy The full-text may be used and/or reproduced, and given to third parties in any format or medium, without prior permission or charge, for personal research or study, educational, or not-for-prot purposes provided that: • a full bibliographic reference is made to the original source • a link is made to the metadata record in Durham E-Theses • the full-text is not changed in any way The full-text must not be sold in any format or medium without the formal permission of the copyright holders. Please consult the full Durham E-Theses policy for further details. Academic Support Oce, Durham University, University Oce, Old Elvet, Durham DH1 3HP e-mail: [email protected] Tel: +44 0191 334 6107 http://etheses.dur.ac.uk 2 Is My Body My Property? A Proposal for the Recognition of Property Rights over Bodily Materials Aileen Editha A thesis submitted for the Degree of Master of Jurisprudence Durham Law School Durham University November 2020 The copyright of this thesis rests with the author. No quotation from it should be published without the author’s prior written consent and information derived from it should be acknowledged. Untuk keluargaku, yang selalu mendukungku dan mendorongku untuk menjadi lebih baik.
    [Show full text]
  • Rethinking the Conceptual Toolkit of Organ Gifting Rhonda M Shaw
    VIEWPOINT Rethinking the conceptual toolkit of organ gifting Rhonda M Shaw ABSTRACT Organ transplantation is often spoken of as a “gift of life”. However, the concept of the “gift of life” has been subject to scrutiny over the course of the last two decades within social sciences and bioethics for failing to reflect the complexities of tissue and organ exchange. I suggest a new ethical model of organ donation and transplantation is needed to capture the range of experiences in this domain. The proposed model is both analytical and empirically oriented and draws on research findings linking a series of qualitative sociological studies undertaken in New Zealand between 2007 and 2013. The studies were based on document analysis, field notes, and 127 semi-structured in-depth interviews with people from different cultural and constituent groups directly involved in organ donation and transplantation. The aim of this viewpoint article is to disseminate to a New Zealand audience of healthcare professionals published research promoting an expanded conceptual toolkit of organ donation. The toolkit, which includes the concepts of unconditional gift, gift relation, gift exchange, body project and body work, is designed to provide an explanatory framework for organ donors and transplant recipients and to assist the development of ethical guidelines and health policy discourse. rgan transplantation is often spoken physical and therapeutic work undertaken of as a “gift of life”, particularly on one’s own body and the bodies of others. Owhere the sale of body tissue and Aside from contributing to social science organs is illegal. However, over the course knowledge about organ donation, the aim of the last two decades, the concept of the of the toolkit is to help patients and families “gift of life” has been subject to critique.
    [Show full text]
  • NZMJ, First Read: Dr Stephen Child
    Journal of the New Zealand Medical Association Vol 128 | No 1422 | 25 September 2015 Updated New Zealand health system cost estimates: further improvements in the age of ‘big data’ Trust, transparency: and why we need them both New Zealand’s growing thirst OBITUARY: Analysis of the Auckland 2014 for a sugar-sweetened measles outbreak indicates that beverage tax Sir Patrick William Eisdell Moore adolescents and young adults Rethinking the conceptual could benefit from catch-up toolkit of organ gifting (2 May 1930 – 7 March 2015) vaccination Publication Information published by the New Zealand Medical Association NZMA Chairman To contribute to the NZMJ, first read: Dr Stephen Child www.nzma.org.nz/journal/contribute NZMJ Editor Other enquiries to: Professor Frank Frizelle NZMA PO Box 156 NZMA Communications Manager The Terrace Sharon Cuzens Wellington 6140 Phone: (04) 472 4741 NZMJ Production Jeremiah Boniface © NZMA 2015 To subscribe to the NZMJ, email [email protected] Subscription to the New Zealand Medical Journal is free and automatic to NZMA members. Private subscription is available to institutions, to people who are not medical practitioners, and to medical practitioners who live outside New Zealand. Subscription rates are below. All access to the NZMJ is by login and password, but IP access is available to some subscribers. Read our Conditions of access for subscribers for further information www.nzma.org.nz/journal/subscribe/conditions-of-access If you are a member or a subscriber and have not yet received your login and password, or wish to receive email alerts, please email: [email protected] The NZMA also publishes the NZMJ Digest.
    [Show full text]