SURVIVOR Irish Polio News

Spring 2020 Vol 17 Issue 1

THE SURVIVOR Irish Polio News

Eileen O’Mahony, Dan Ahern and Evelyn Wainwright at the presentation of €1,000 winnings from the Winter Survivor Sweepstakes Draw to Dan! Photo: Jim O’Donovan Contents Fun Crossword 3

From the Chair – Chairperson’s Address 4

Keeping Well – Tips from the HSE 5 Useful Services – contact details for support 6 Justice for Polio Survivors – Update 7 Important information – various updates 8 Member Info – Disability Toll Exemption 10 Area Meetings – events & Polio Register update 11 Bequests – leaving a legacy 13 Cocooning Poster – pull out poster 15 Past Times – A Physiotherapist Remembers 17 Services Article – Role of the GP 19 Polio History – Walt Disney Premiere Dublin 20 Social Support – Christmas parties 21 Fundraising News 24 New Poetry Corner 27

General Data Protection Regulation (GDPR) To facilitate your membership with us, Polio Survivors Ireland will process personal and, if applicable, especially if you use any of our services, possibly sensitive information relating to you both digitally and in manual format for the duration of your membership. You have the right to access this information at any time by calling 01 889 8920 or emailing info@ppsg. ie. This information will be destroyed if, or when, your membership of the organisation ceases.

Spring 2020 2 Fun Crossword 1 From the Chair to help you do simple exercises while cocooning. Only attempt the exercises that are suitable for your 2 e originally started ability. If you find this leaflet useful, preparing this Survivor let us know and we will pass on your feedback. 3 4 Win February but had to suspend it over the Covid-19 crisis. Unfortunately, our annual 5 Since early March we are either conference has to be cancelled but 6 cocooned or in self imposed isolation we are compelled by legislation to to protect us from the virus. Home hold our AGM. The AGM will be 7 working is now the norm for many a very restricted event this year to 8 9 people - including ourselves. 10 11 comply with public health and will We must remember, at this time, be held in June. Our objective is to 12 13 14 that our priority is to implement give as many members as possible an 15 and comply with the Government’s opportunity to participate. We will restrictions on movement and the be sending you more information 16 HSE’s public health protocols on in the coming weeks on the AGM. 17 hygiene. Towards the end of March, I would ask members, at the AGM, the CEO and the office produced to put themselves forward for the Guide to Covid-19 specifically election to the Board. It is important Across 3. Food retailer owned by Musgrave’s geared towards polio survivors. to have strong representation from 6. Show presented by Sharon Ní Bheoláin This is an excellent publication that the membership on our Board. If 11. US President who had polio emphasises the supports that the you wish to go forward contact the 14. Which Dubliner had a hit record with the song Grace ANSWERS: office provides during this time of CEO and he will advise you of the Bottom of 15. The main ingredient of guacamole crises. A number of our services are necessary process to follow as soon 16. Creator of Mickey Mouse page 27 interrupted to comply with the health as possible. 17. County with the most lakes in Ireland restrictions (specifically all meetings There are many ongoing issues at Down 1. Famous for cheese and site of last year’s Polio conference – social support, areas, committees, the moment such as funding, but 2. Mean Cousin of fictional wizard Harry Potter etc.) but our staff continue to provide these have taken a secondary role to 4. Best picture winner in the 2020 Oscars services as best they can. Staff are our present health crisis and will be 5. Famous stone that bestows the gift of the gab working from home but calls to 01 covered in future editions. 7. Winner of Dancing with the Stars 2020 889 89 20 will be answered as usual. 8. A highly seasoned Hungarian soup or stew of meat and Please remain safe vegetables, flavoured with paprika Staying at home can pose a problem and keep in touch. 9. Surname of our Chief Medical Officer for polio survivors, who might risk 10. Surname of writer of Booker Prize winner The Testaments losing vital muscle tone. We are Go néirigh an tadh 12. Famed Dublin dish featuring boiled sausages and rashers enclosing a leaflet created by the HSE libh go léir. 13. Invented the Polio vaccine Cork Community Physiotherapists, Pat McGillion - Chairman

3 The SURVIVOR Spring 2020 4 PANTONE Hexachrome Cyan U Keeping Well - tips from the HSE Useful Services PANTONE 1375 U It is very easy to become anxious and lonely when you must isolate yourself ALONE – call 0818 222 024 if you have concerns about your own wellbeing, or the from others. This combined with worry about your health and the health of PANTONEwellbeing 259 U of an older person you know. family members can make this a challenging time. SeniorLine – this is a helpline for older callers, who can call free between 10am Here are some simple tips to help you through: and 10pm every day of the year on 1800 804 591. 3 try spending time with the 3 it is so important to stay Threshold – this charity provides a wide range of information and advice on windows open to let in the fresh connected with others. Pick up renting, housing and problems with landlords. If you need to talk directly to an air, arranging space to sit and the phone and call a friend. Try advisor call the national free phone helpline 1800 454 454 Monday to Friday 9am see a nice view (if possible) and and keep in touch with your to 9pm. get some natural sunlight normal social groups, using Polio Survivors Ireland – for general concerns or if you cannot access important 3 if you have a garden or alternative methods such as medical or social services, you can call us on 01 889 89 20. backyard, go out and get some video calls or social media. Go fresh air but please keep away online and find groups with Samaritans – call 116 123 if you’re worried about your mental health during the coronavirus outbreak, or the mental health of someone else, you can contact the from other people including similar interests to you through Samaritans for free. Face to face services have been stopped for the moment, neighbours. Keeping a distance online forums and get chatting however they are still answering the phone, should you need someone to talk to. of at least 1 metre but where 3 stay informed. As this is an possible 2 metres (or 6.5 feet) from other people is ever-changing situation, it is recommended good to keep yourself up to date Protect yourself and others with the latest messages. 3 from getting sick spend time doing things you However make sure to get your enjoy – this might include information from reliable Wash your hands reading, cooking, other indoor sources only hobbies or listening to favourite • after coughing or sneezing radio programmes or 3 make sure to take the time • when caring for the sick watching TV to switch off. There is so much • before and after you information out there, that prepare food 3 take care of your general health • before eating by eating healthy well-balanced it is easy to feel overwhelmed. It is good to take a breather and • after toilet use meals, drinking enough water, • when hands are visibly dirty exercising regularly, and think about something else. • after touching cuts, blisters or avoiding smoking and excess Being creative is a great way to any open sores alcohol do this • you can use alcohol hand rub, if hands are not visibly dirty For more information on minding your mental health during the COVID-19 outbreak go to HSE.ie. www.hse.ie/handhygiene

5 The SURVIVOR Spring 2020 6 We have since met again with Minister for People with Disabilities JUSTICE FOR McGrath to encourage him to pressurise National Advocacy Service POLIO SURVIVORS Rehab Group to reconsider the proposal The National Advocacy Service for People with Disabilities (NAS) provides an CAMPAIGN for an independent investigator by independent, free and issue-based advocacy service for people with disabilities in withholding funding to them. The Ireland. They particularly work with people who have communication differences, Since our last update we have established Minister agreed to discuss this with the are isolated from their communities, have limited natural supports, live in through further research that Rehab HSE but in the meantime the Covid 19 inappropriate accommodation, live in residential services or attend day-services. Group have taken an estimated €12 - €14 pandemic has led to this, and everything All of their services are currently operating via phone on 0761 07 3000 from million that was raised and intended for else, being put on hold. 10am to 4pm Monday to Friday and by email at [email protected]. Enquiry people with polio and spent it on other What may be significant is that on 13th information and forms are available on their website - www.advocacy.ie. things. I’m sure you will agree that this is February, Mo Flynn, the CEO of Rehab The NAS continues to be available to support those they are already working with scandalous. It is unjust and means that Group, resigned from her position and via phone and email, but also welcome new enquiries. While it is not possible people with disabilities arising from polio an Interim CEO was appointed. It may to meet directly with the person, there are other ways that NAS can provide are being denied the supports they need. be that a change of personnel at the independent advocacy support to people with disabilities. Following our representations to very highest level in Rehab Group will Telephone consultations Minister for Disabilities, Finian McGrath, result in a different approach and better Beaumont Hospital Clinic the Minister contacted Rehab Group and engagement from them in relation to our As members may be aware all upcoming/scheduled clinics in Beaumont Hospital are suggested that an independent person issue. cancelled, until the HSE feel it is safe to reinstate them. However, Professor Hardiman be appointed to investigate the facts of We will however continue to pursue our and her team are going to now hold telephone consultations instead of all scheduled the situation and make a determination campaign and we will keep you informed appointments. As it is a large clinic, the team will be starting calls over the next that both sides would abide by. in future issues of the Survivor. week, so those who had appointments will be invited to discuss issues with them over the phone, leading up to the 7th May. If you have any queries please contact Unfortunately Rehab Group rejected this Susan Dowling, Justice for proposal. Polio Survivors Campaign Mairead Byrne, Secretary, on 01 809 2174 or email [email protected]. Scams & Fake News Eircom.net Eir had announced plans to start charging a monthly There are a lot of scams and fake news going around on social media, including fee of €5.99 for its eircom.net email addresses from April. whatsapp and text. Please be wary if you are asked for your bank details and never give out any personal or financial information to an unverified source by email or However this charge has now been postponed indefinitely over the phone. due to Covid-19. At some time in the future they may impose this charge, so we would recommend Be careful where you get your info on #Covid19 – use only trusted mainstream that now is the time to look at switching to a new email provider and changing any media, like RTE News, Irish Times, Irish Independent etc., or thejournal.ie. Always account details that use the eircom.net address. look at the source of ‘news’ – is it from someone you know, or is there a proper source, like the HSE? If something makes you feel panicky or upset, it’s important There is a good article in the Irish Times, (you can access it on our website), to know if it really is true. Often times fake stories are sent around to manipulate which explains step by step how to bring over your contacts and old email people’s feelings and make you more likely to send it to other people. If in doubt, to a new service, once you’ve set that up. google it. Often this helps to show if something is true or fake. Gmail is probably one of the easiest and most popular options.

7 The SURVIVOR Spring 2020 8 Once your vehicle has been Wheelchair and Assistive Technology DISABILITY TOLL registered and approved you will be Precautions during Covid-19 issued with a disc which needs to be EXEMPTION affixed to the vehicle’s windscreen. Many polio survivors use wheelchairs, joysticks) or rollators, walking aids, This will allow your disability scooters or other forms of assistive grab rails etc., with anti-bacterial wipes Up until now, qualifying people modified vehicle to drive hassle free technology and these are things that or a cloth with disinfectant spray. Try with disabilities have been exempt through all Irish Toll Plazas. should not be overlooked in the fight to include wheels, wheel locks, frame from fees at some of Ireland’s tolls. against Covid-19. and arm supports, push handles or foot However, the system was very In order to apply you will need the Covid-19 can survive on surfaces, so it supports. confusing as different companies following information: is essential to clean down any surfaces own different toll plazas and had Around the house regularly clean you touch frequently, or which could be different ways of providing this • Individual Contact Details grab rails or other supports you touch touched by others. facility. Transport Infrastructure • Your Vehicle Registration frequently. Wash your hands before Ireland has now standardised the If you push your tyres, you are basically and after doing this, and before and Number (Licence Plate Number) touching every surface they touch. If system and you can apply for a disc after you eat. Be aware of your eating • Your Vehicle Registration you wear gloves, think about where which is fixed to the car windscreen habits when using your wheelchair you put them down. Do these need to and is evidence of your entitlement Certificate or Motor Tax Disc or scooter. Don’t forget your mobile be cleaned? Did you wash your hands to exemption from the fees at ALL which provides validation that before and after wearing them? Use phone and remote control! toll plazas. your vehicle qualifies for the anti-bacterial wipes to clean your hands Wheelchair users may be more at Disability Toll Exemption Scheme This new scheme, the Disability Toll after being out if you touch push rims risk of droplets in the air, for example under the Revenue Scheme Rules. Exemption scheme (DTES) for Irish on a wheelchair. from talking to people taller than you. You can fill out an online registration Toll Roads opened for applications Wipe down your wheelchair or scooter Increase your social distance to at least form available at www.dtes.ie or call in February 2020, for drivers of (especially push rims, tyres, and 6 feet. the local number 1800 11 55 00 disability modified vehicles. and an operator will assist you. The scheme allows disability R.I.P. Upon issue, the disc will be valid Polio Survivors Ireland was saddened to hear of the passing modified vehicles that qualify for for a period of 2 years and a new of these members recently: exemption under the Revenue disc can be applied for using the Commissioners Drivers and procedures outlined. Alison Hunter, John Van Bevan, Ronan Lynch, Passengers with Disabilities Tax Alan Clinton Roberts, Bryan Kelly, Kay McShane, Relief Scheme (VRT7), to be exempt Please note, this scheme only applies Patsy McNamara, Thomas Patrick Murray, Maura Connor, from charges on Irish toll roads. to those drivers with disability Belinda Redmond, Maura Bracken, Dick Kiernan, modified vehicles. The National Scheme will replace It does not apply Jacqueline Govin, Vera De Valera the cards that were previously to those with We acknowledge the contribution these members have made to the work of issued by Dublin Tunnel and other disability parking Polio Survivors Ireland – our thoughts are with their family and friends. Toll Plazas. permits only.

9 The SURVIVOR Spring 2020 10 Our National Networks are a hugely PANTONE Hexachrome Cyan U Area Meetings important aspect of our Publicity, Polio Register Update Fundraising and Recruitment work PANTONE 1375 U Our fifth Area Meeting took place and members ‘on the ground’ are Our campaign to reach polio Louth, Cavan and Monaghan so recently in the Cahir House Hotel, essential to make this work. survivors who are not currently watch local papers and listen out to PANTONE 259 U Cahir, Co. Tipperary on Thursday If you would like to attend a meeting, engaged with the organisation radio for our adverts. If you know a 20th February. whether it’s in your area or not, continues as we build numbers and polio survivor who is not a member, please do contact the office. We will create a stronger voice for those who please encourage them to sign the Once again we were delighted to notify members in each area by text had polio. So far, 373 new people register. They can do so over the have 25 members and non-members and details will be included in our have signed the Polio Register. phone, on the website or by sending come along to hear more about Polio e-newsletter to members who have in one of the forms – some of these Survivors Ireland’s work. given us an email address. This year we plan to roll out the may still be in GP and hospital So far we have covered Enniscorthy, register in the North East, Midlands waiting rooms. Dungarvan, Newbridge, Carlow and and South West, budget and If you think you could help time allowing. We will shortly be For more, see: www.polio.ie/ Cahir. Area Meetings will resume national-polio-register/ when it’s safe to do so. Polio Survivors Ireland by highlighting the campaign in Meath, joining a network and doing We are keen to meet people, particularly new members or people ‘Just 3 Things’ to help – please on the Polio Register, who might contact Emma on 01 889 8920, Do you have an URGENT NEED? perhaps like to become members. or email [email protected]. Questions and discussions have been wide ranging during the meetings, from medical cards, to funding, to sourcing hospital records. There is a ADVICE light lunch to break up proceedings which gives people an opportunity INFORMATION to chat more socially about different SUPPORT Talk to us. issues they have experienced. We are here to help Our Active Members have been ADVOCACY very supportive of these meetings, A LISTENING EAR Contact Kerrie in the office at especially those involved with either 01 889 89 20 Social Support, Telephone Support Or by email [email protected] or our National Networks. We are always keen to meet people who Contact Ciara in the office at might give some time to help provide Confidentiality Assured 01 889 89 20 some of our peer services. Polio survivors at the Area Meeting Or by email [email protected] in Cahir recently

11 The SURVIVOR Spring 2020 12 LEAVING A mattered. Deciding what you want In the case of Polio Survivors across the board. your legacy to be can give your life Ireland, you could designate it for We are very fortunate to have BEQUEST meaning and purpose. No matter spending on aids and appliances, or how great, or small the gift you can winter heating grant, for example, Holohan Lane Solicitors available ome unusual things have been leave is, it matters to someone. which gives much more scope for to advise any members who wish to Sleft to charities over the years. It was reported in the Irish us to help different polio survivors make a will, free of charge. See ad. According to an Irish Times’ article Independent that many people a few years ago, Oxfam UK has feel they have nothing to leave. But received gold teeth, a dentist’s given that if you pass away without chair, greyhounds and shares in the a will, your spouse is entitled to two original Woolwich Arsenal Football thirds of all you leave while any Club. children get the other third divided Are you Please consider leaving a Legacy to More traditionally, and fantastically, between them, on a practical level Polio Survivors Ireland in your will. the €6m left to charity by Elizabeth you should make your wishes making a will? O’Kelly in 2017 made headlines, known. Contact Alan Raftery at Leaving a gift to the charity in your Will being an enormous sum of money A good solicitor will advise you 01 872 7120 or email can help us greatly to continue which would do great good. how best to direct what you own, [email protected] providing support to polio survivors. Most people don’t have €6m but that requires a will. After you and Alan will explain floating around our bank accounts look after those who are nearest everything you need to You can alternatively request donations know to draft your will. or down the back of the couch. and dearest to you, leaving as to the charity in lieu of flowers. However, at some point, most of much tax-free as possible, there us will need to think about making may be room to leave something a will. Whether it’s to ensure that to a charity of your choosing. there is no ambiguity about who While you should be specific about Over 70 Driving Licences gets your grandmother’s wedding the charity, it is advised not to UPDATE ring, or if it’s to ensure a family over-direct what the money is used home is fairly divided, at some for. For example, deciding to leave point, it’s important to put down The requirement for those over in the normal way through the NDLS it for research if a specific charity 70 (under certain circumstance) public office without the need to on paper what happens when doesn’t do research may not be a inevitably we pass on. to provide a medical report when submit a medical report. However, good idea. Equally, directing that applying for a driving licence is being this is only if they do not have a Leaving money to charity is it is spent only in a particular area removed at this time due to the specified illness. something that anyone can do. can be problematic for the charity coronavirus crisis. As well as potentially making if there are very few members in In making this announcement, a contribution to others, most that area. You could instead decide From now until 31 July 2020, persons Minister for Transport, Tourism and people leave a legacy because to leave it for general purposes or of 70 years of age or over can apply Sport, also asked ALL motorists to they want to feel that their life unrestricted. for, and renew, their driving licence take the utmost care while driving.

13 The SURVIVOR Spring 2020 14

Sadly, there were some mortalities, did muscle tests and between us Past Times – a new feature in Survivor but gradually most patients agreed on the splints required and PAST TIMES where we will publish recollections, improved, and as they did we historical articles and personal stories Ms Morris made them then and increased their activities. there on the premises. Equipment was basic, and Hundreds of patients were In the months and years following physiotherapy consisted of A Physiotherapist admitted, many requiring the epidemic the same orthopaedic passive movements, stretching team from Musgrave Park Hospital treatment in an iron lung. These the non-affected muscles (to Remembers travelled all over Northern Ireland machines helped patients whose prevent contractions) and sensory to the major towns where the By Marie O’Donohue, M.C.S.P. respiratory system was affected stimulation of the paralysed patients were brought in to be seen ome time ago I heard someone and initially they were in the iron muscles, and then gradually Son RTE TV say that all the lungs at all times. As they improved increasing the activity for the – this ensured continuity of care and treatment. doctor and physiotherapists who we stopped the lungs for a short affected muscles by balance treated polio patients in the pre time, a few times during the day, exercises and walking. We were looked after very well by Salk vaccine days were now dead. gradually increasing their time When the epidemic was over, and the Purdysburn staff and hospital. Well, I am still very much here, and out, so weaning them off total there were no new admissions, The food was good and much I thought I should share with you dependency wherever possible. we moved out of the hospital to a appreciated by someone living in my experiences before I join the few wooden huts at the Back Gate. digs as I did then. To get to work I category referred to above. These iron lung machines were Here things were more relaxed and and the other two physiotherapists donated to every hospital in In 1951, I was a newly qualified we had good fun with the children. took a country bus out from the the United Kingdom by the Physiotherapist working in the city every day, and the bus driver industrialist and philanthropist, Rehabilitation was well organised; Royal Victoria hospital in Belfast. would wait for us if we were late in In June of that year there was Lord Nuffield. He was the man who an orthopaedic team came once arriving! a serious outbreak of Polio all made his money in the first place by a fortnight from Musgrave Park hospital. The team consisted of an over the North of Ireland. All the designing and building Morris cars It is all a very, very long time ago orthopaedic surgeon, Mr. Wilson, patients were brought to the Fever - remember the Morris Minor? and despite everything I look back and two orthopaedic nurses. One Hospital called Purdysburn, about with fond memories, and wonder There was a large map of the of the nurses, Miss Morris, was 5 miles outside Belfast. what happened to all those children province in the doctor’s residence, a marvellous woman – she was They had no physios, so they we cared for, as well as wondering and a small flag was pinned on it both an orthopaedic nurse and a asked the Royal for help – three whether I am the last of that care marking where each patient came Physiotherapist (later in her life of us agreed to go and we worked she was given an OBE from the team. Perhaps I will never know, from. This was an effort to see if there from the June of ’51 until British Crown, in recognition of but then again – perhaps you the there was any connection between the February of the following year. all her work over the years). We reader will know otherwise. Remember this was pre-Salk days cases, but the patients came so our only protection was a gown, from all over the province and no This article first appeared in The Survivor, Autumn 2010. Marie was a member mask and plenty of hand washing! connections were ever established. who passed away a while ago and her nephew gave us permission to reprint it.

17 The SURVIVOR Spring 2020 18 ROLE OF THE GP

We often hear of difficulties experienced by members who do not feel that their GP or local If you feel your GP isn’t health practitioner ‘understands understanding and you don’t have their polio’. However, the role of the option of changing GPs, our the GP is still a crucial resource latest leaflet ‘Late Effects of Polio’ that can have a much bigger role in might help to educate them in brief. long term health. A polio survivor’s health may not be solely dictated There is also the ‘Blue Book’ but the by their history of polio. Polio leaflet is a starting point for a busy survivors are unfortunately just GP and we would encourage you as susceptible to the same medical to seek a copy to provide to them conditions as others. Often given (available from the office). their mobility issues, this will It can be difficult to deal with the make them more susceptible to healthcare system, particularly Did you meet Walt Disney in Dublin in 1959? certain conditions, such as High with the current crisis, however Blood Pressure, High Cholesterol, we would always encourage you to Pictured is Walt Disney at the world premiere of Darby O’Gill and the Little Diabetes, Cancer, Mental health telephone your GP with any health People, in the Theatre Royal, Dublin, June 24th 1959. The premiere, at Dublin’s issues, Back Problems, and further concerns that arise. Polio is one Theatre Royal, was a charity event for disadvantaged children and you will no conditions that arise as we age. GPs difficulty that cannot be changed, doubt spy the tell-tale callipers and crutches that suggest that the children should be the initial point of care however there are illnesses that photographed are in fact those who had polio in the 1950s in Ireland. for most of these conditions, but proper and timely treatment can Darby O’Gill was the first Disney wits with leprechauns. Walt Disney sometimes the importance of their help manage or even prevent. film to get its first showing outside himself and Sean Connery both role is ignored by polio survivors Polio survivors may not wish the US, due to Walt Disney’s love for attended the world premiere which who have potentially had a bad to spend any further time in a his ancestral country. The film, which took place in Dublin’s long lost experience. healthcare setting than they has for many years been a firm family Theatre Royal. It is understood that many already have, particularly favourite, featured performances One of our members found this photo GPs have never seen a polio important right now with the from Albert Sharpe, Janet Munro, online which we reproduce here with survivor. As a result knowledge coronavirus. However, the Covid- Sean Connery and Jimmy O’Dea. Disney’s approval - if you recognise and understanding of Post Polio 19 cases in hospitals are contained, Directed by Robert Stevenson, its yourself and have memories of this Syndrome and Late Effects of Polio numbers on trolleys are currently screenplay was written by Lawrence occasion, do get in touch, or simply is low, unless they happen to have next to none, so if you need medical Edward Watkin adapted from the enjoy a trip down memory lane. one or more patients who have attention, do not put off going to books of Herminie Templeton worked to inform them of their the hospital, or contacting your GP Kavanagh. The film is a tale about Credit: Used by permission from needs. with any concerns. a wily Irishman and his battle of Disney Enterprises, Inc.

19 The SURVIVOR Spring 2020 20 Social Support CORK CHRISTMAS PARTY SLIGO CHRISTMAS LUNCH Groups We had 15 members from as far Cork Polio Survivors had their There were thirty-two happy people away as Sligo, Donegal, Leitrim & Christmas Party in Vienna Woods Hotel, in attendance. Great thanks and Roscommon attend our Christmas lunch in the Sligo City Hotel in on Sunday 29th November 2019. The acknowledgement to Miss Eileen O’Mahony, Social Support Convenor November. While there was a tinge of hotel provided a beautifully decorated and her excellent team. A most sorrow because two of our members room, high quality meals and staff who enjoyable evening was had by all had died since we’d last met, it was were most efficient and very pleasant. and we are looking forward with good to have a social occasion, and Music was provided by Mr. Jim Ahern, enthusiasm to meeting once again the support of Polio Survivors Ireland Some of our Sligo Members enjoying the Christmas Lunch which greatly added to the occasion. when it’s safe to do so. for the event was noted. Our dinner was followed by a talk on mental well-being from Dermot Lahiff who is counselling coordinator with NW STOP Suicide. This was a light-hearted talk on how to look after your mental health and how to keep positive in times of stress.

Some of our Cork Members enjoying the Christmas Celebration BRAY SOCIAL DUBLIN SOUTH WEST GET TOGETHER

Our Dublin South West Social Support Group met in December for their Christmas get-together. They say it turned out to be a A wonderful photo of some of our As the year drew to a close, many of great day with everyone members at the Carriage Driving End our groups enjoyed 2019 Christmas having something of Season Awards. Presented by Val, get-togethers. Here are some photos different to eat, as Chairperson of the Carriage Driving of our Bray Social Support Group, the choice was brilliant, group to Marie, Joyce and Josephine. enjoying their Christmas lunch in Dolores, Jimmy, Sadie and Anthony (top left) on way to Bray and well presented. Well done ladies! December.

21 The SURVIVOR Spring 2020 22 CLEW BAY TRIP FUNDRAISING NEWS Dublin North City SSG Our annual pilgrimage to the Clew Bay Mansion House Live Crib Collecting Hotel, Westport, took place in mid- February 2020. A group of 39 people from different Polio Survivors Ireland groups joined us. The weather was dreadful, plenty of rain and strong winds that lasted throughout, however, Camera caught our good friend Johnny us brave soldiers decided not to let the chatting up the women again! weather ruin the trip and we enjoyed fresh when you arrive each morning. every moment of it. Dinner was equally good. The hotel Some travelled by car, while a number organised a band on two nights and on of people got the train. A mini coach the third night we had our own Marty was waiting at the station to bring us from the Kildare Social Support Group. to the hotel. The staff at the Clew Bay We are blessed with the amount of very were very pleased to see us and gave good singers in our group. The locals us a warm welcome. The hotel has are amazed by us and we use the words Members of Polio Survivors letter to Santa, while children won many awards for their food, in ‘Post Polio Group’ which is a good way Ireland once again volunteered at the Crib could take away particular, their breakfast; they cook it of letting people know we exist. for a day at the annual Mansion a lovely Christmas card to House Live Crib Fuel Fund colour in. Added to all this collection, on Friday 13th were Christmas Carols and December. SEPTEMBER 2020 TRIP other seasonal music wafting Our Annual Trip to the Connaught Hotel will now With weather dry and through the air! take place over three days in September: 6th, 7th typically crisp, the setting Polio Survivors Ireland has and 8th September 2020 at the Mansion House was Double/Twin Room: €234 per person, wonderfully atmospheric for been very fortunate to receive includes 3 breakfasts and 3 dinners. the public to enjoy. Visitors (of a donation in previous years, Single Room: €368 - includes 3 breakfasts and 3 dinners. all ages) sat on Santa’s throne from this, the oldest charity in The Connaught is a 4 Star Hotel and has a swimming pool. to make a wish. A letter box Dublin, so it is a pleasure to To book, please contact the Connaught Hotel on 091 381200. Remember to was also provided to post a support it. tell them you are with the Post Polio /Polio Survivors Ireland Group as the We wish to thank everyone who replied to our appeal for volunteers - we had a above rates are special to us. fantastic response and do appreciate the efforts of members to try to fit some time into this busy period. Our volunteers on the day were Pat, Joan, Frances, Ann, Frank, All are welcome to join us on this trip. Georgina, James, Pat, Dolores, Roisin, Nigel, Madeleine, Terry and Anne. Dublin North City Social Support Group

23 The SURVIVOR Spring 2020 24 FUNDRAISING NEWS FUNDRAISING NEWS Survivor Sweepstakes Winter Winner 2019 Thank you to everyone who entered the Winter Survivor Sweepstakes. We truly appreciate the support, especially at this time of year. The draw took place on December 18th, in Capel Building, witnessed We are delighted and very of the Church of Ireland by by Alan Raftery, Holohan Lane Solicitors. The numbers drawn were grateful to the congregation visiting their website www. 1,3,9,13. There was no match 4 winner. and community of St. Patrick’s stpatrickscathedral.ie. The As promised in our Winter draw €1,000 must be won. We held a Cathedral as we have been building is a busy place that second draw using random numbers for each entry and the €1,000 kindly supported by Saint serves as a place of worship, a winner is Dan Ahern! Congratulations Dan! Patrick’s Cathedral Community visitor attraction and as a host Winners of the three €50 spot prizes are Joe McLoughlin, Brigid Fund, with a small grant to us for many events. A dedicated Fee and Libby Hendricks. Congratulations to all. to fund aids and appliances for team of staff, volunteers and The winning numbers can be checked using this ticket: polio survivors. members of the Cathedral https://www.randomresult.com/ticket.php?t=1504022TLLFZ Polio survivors require a community are responsible for Our next draw is coming soon. variety of Aids and Appliances ensuring this building’s ongoing to assist them in remaining life and ministry is maintained Mansion House independent, staying mobile for future generations to enjoy. and avoiding falls. These include As the largest cathedral and Reception Orthotics such as callipers, one of the most important crutches, special footwear and pilgrimage sites in Ireland, Saint braces, and Mobility Aids, such Patrick’s has been at the heart as rollators, wheelchairs and of Dublin and Ireland’s history motorised scooters. This grant and culture for over 800 years. will help us to fund orthotic The website has a fascinating inserts or rollators for those timeline where you can learn who need them to maintain more about the development their independence and keep of the Cathedral and the them from falling. fascinating characters who You can find out more about make the story of the Cathedral this beautiful building which and its place in history what it Members at the cheque presentation with the Lord Mayor is the National Cathedral is today.

25 The SURVIVOR Spring 2020 26 Poetry Corner BOARD MEMBERS Pat McGillion Joyce Henderson Macrina Clancy Never Forget CHAIR DEPUTY CHAIR TREASURER COMPANY SECRETARY Fintan Foy Magie Din Beag, aged four in 1865, was lifted on to her father’s shoulders OTHER DIRECTORS Robert Alcorn, James Doorley, Marie Hyland, Miriam Kavanagh, Frank Mitchell, Elaine Twomey. Board members can be contacted via the office on at Abraham Lincoln’s funeral. 01 8898920, or [email protected] Her father said to her: ‘Never forget that you were at Abraham Lincoln’s funeral!’ OFFICE STAFF He said it at the time, she told me, and again at intervals throughout the rest of his life. ADDRESS Unit 319, Capel Building, Mary’s Abbey, Dublin 7 Tel: 01 889 8920. She told it to me in 1956 Email: [email protected] Web: www.polio.ie when I was ten, and said: ‘Never forget CEO Fran Brennan - Email: [email protected] that you once knew an old woman SERVICES TO POLIO SURVIVORS who had been at Abraham Lincoln’s funeral Kerrie Donegan, Email: [email protected] Ciara Hudson, Email:[email protected] when she was four’. Fifty years ago now; ADMINISTRATION Paul Turner, Email: [email protected] so what I say to you is: never forget MEMBERSHIP & VOLUNTEER RECRUITMENT OFFICER that you once read something by someone Contact office vacancy being recruited. who said they had known when they were young DEVELOPMENT OFFICER someone who said their father told them Emma Clarke Conway. Tel: 01 889 8920, Email: [email protected] they had been to Abraham Lincoln’s funeral.

Taken from Ennismore News February 2020 – attributed to Bernard O’Donoghue, COMMITTEE MEMBERSHIP 2019 - 2020 a contemporary Irish poet and academic, born in Cork. Submitted by Jackie Minnock BOARD SUB-COMMITTEES 2019 – 2020 GOVERNANCE & COMPLIANCE YOUR FEEDBACK- Your opinion counts! Polio Survivors Ireland is your charity, your Fintan Foy (Chair), Pat McGillion, Ankita Ahluwalia, Fran Brennan (CEO) support organisation, your service and we are always eager to hear your ideas on how we can improve our services and supports and our organisation! You don’t SERVICE, QUALITY AND SAFETY have to wait until a conference or meeting to feedback information, opinion, or tell Joyce Henderson (Chair), Elaine Twomey, Roisin Nolan, Susan Dowling us about your experiences that might help us to help you. Feel free to contact Fran FINANCE & AUDIT Brennan at [email protected] or on 01 889 89 20. Macrina Clancy (Chair), Miriam Kavanagh, Pat McGillion, Marie Hyland If you have any suggestions or contributions to make to the Survivor Magazine, please contact Emma on [email protected] or call the office. It is your magazine and we BOARD NOMINATIONS want to hear from you. Pat McGillion (Chair), Fintan Foy, Marie Hyland, Joan Bradley SURVIVOR EDITORIAL COMMITTEE CROSSWORD ANSWERS: Across: 3 SuperValu. 6 Crimecall. 11 Roosevelt. 14 Jim McCann. MEMBERS Una Lyons, Jackie Minnock - Contact via Emma [email protected] 15 Avocado. 16 Disney. 17 Cavan. Down: 1 Charleville. 2 Dudley. 4 Parasite. 5 Blarney. 7 Lottie Ryan. 8 Goulash. 9 Holohan. 10 Atwood. 12 Coddle. 13 Salk.

27 The SURVIVOR Spring 2020 28 CONTACT DETAILS FOR THE SOCIAL SUPPORT GROUP IN YOUR AREA CONTACT DETAILS FOR THE SOCIAL SUPPORT GROUP IN YOUR AREA BRAY GROUP LOCATION Glenview Hotel AREA South East Dublin, North Wicklow CONTACT LAOIS-OFFALY GROUP LOCATION Maldron Hotel, Portlaoise. AREA Offaly, Laois CONTACT Josephine O’Reilly Tel: 087 2351243 Email: [email protected] MEETINGS If you Bernie O’Sullivan Tel: 057 934 3760 or 086 064 7227 Email: [email protected] MEETINGS If live in this area and would like to attend these social meetings, please give Josephine you live in this area and would like to attend these social meetings, please give Bernie a call. a call.

CARLOW GROUP LOCATION Dolmen Hotel, Carlow AREA Carlow CONTACT Betty O’Regan LIMERICK GROUP LOCATION Strand Hotel, Limerick AREA Limerick, East Clare, North Tel: 086 081 6816 Email: [email protected] MEETINGS If you live in this area and Tipperary. CONTACT Office MEETINGS If you live in this area and would like to attend these would like to attend these social meetings, please give Betty a call. meetings, please give the office a call.

CLARE GROUP LOCATION The Templegate Hotel, Ennis AREA Clare CONTACT Edwin Bailey MAYO GROUP LOCATION Travellers Friend Hotel, Westport. AREA Mayo CONTACT Mary Ryan Tel: 061 368 373 Email: [email protected] MEETINGS If you live in this area and Tel: 087 9534130 Email: [email protected] MEETINGS If you live in this area and would like to attend these social meetings, please give Edwin a call. would like to attend these social meetings, please give Mary a call.

CORK GROUP LOCATION Vienna Woods Hotel, Cork AREA Cork CONTACT Eileen O’Mahony NAVAN GROUP LOCATION Ardboyne Hotel, Navan, Co. Meath AREA Meath, Westmeath Tel: 087 648 8916 Email: [email protected] MEETINGS If you live in this area and and South Louth CONTACT Teresa Brennan Tel: 086 1679431 MEETINGS If you live in this would like to attend these social meetings, please give Eileen a call. area and would like to attend social meetings, please give Teresa a call.

DUBLIN NORTH CITY GROUP LOCATION Currently Parnell GAA Club, Coolock AREA North SLIGO GROUP LOCATION City Hotel, Sligo AREA Sligo, South Donegal, North Leitrim CONTACT West Dublin CONTACT Paul Sinclair Tel: 087 6821017 Email: [email protected] Monica McGowan Tel: 087 242 0700 Email: [email protected] MEETINGS If MEETINGS If you live in this area and would like to attend these meetings, please give you live in this area and would like to attend these meetings, please give Monica a call. Paul a call. WEXFORD GROUP LOCATION Riverside Hotel, Enniscorthy AREA South Wicklow; Wexford; DUBLIN SOUTH WEST GROUP LOCATION Maldron Hotel, Tallaght AREA South West Dublin Waterford CONTACT Contact Sharon Sinnott Tel; 086 085 3040 Email: sinnott.sharon@ CONTACT Pat McCabe Tel: 086 8158232 Email: [email protected] MEETINGS If you gmail.com MEETINGS If you live in this area and would like to attend these meetings, live in this area and would like to attend these social meetings, please give Pat a call. please give Sharon a call.

DUBLIN SWORDS GROUP LOCATION Kettles Country House Hotel, Swords AREA North County Dublin CONTACT Office Tel: 01 889 8920 Email: [email protected] If you live in this area and would like to attend these meetings, please give the office a call. ORGANISATIONAL COMPLAINTS POLICY- As a member organisation, polio survivors are at the heart of our work. While we GALWAY GROUP LOCATION Menlo Park Hotel, Galway AREA Galway; South Mayo CONTACT endeavour to ensure that our services are of the best possible quality, we Office MEETINGS If you live in this area and would like to attend these social meetings, please give the office a call. do recognise that from time to time a polio survivor or someone on their behalf, may wish to express a dissatisfaction or to complain about the GROUP Monaghan’s Harbour Hotel, Naas Kildare Martin KILDARE LOCATION AREA CONTACT services and supports provided to them. Our Complaints Policy outlines the Brennan Tel: 085 766 2885 Email:[email protected] If you live in MEETINGS procedure for making a complaint – this is available on our website www. this area and would like to attend these meetings, please give Martin a call. polio.ie/policies or you can request a copy from the office. Our complaints KILKENNY GROUP LOCATION Aspect Hotel, Kilkenny AREA Kilkenny, Waterford, South officer is Joyce Henderson and you can submit your complaint to Joyce by Tipperary CONTACT Pat Skehan Tel: 085 2443588 Email: [email protected] sending a letter addressed to Joyce at the office address, marked ‘Private If you live in this area and would like to attend these social meetings, please MEETINGS & Confidential’. give Pat a call.

29 The SURVIVOR Spring 2020 30 WILLS Please remember Polio Survivors Ireland in your Will, or request donations to Polio Survivors Ireland in lieu of flowers. Be assured all bequests and donations will be put to good use. Thank You

MISSION STATEMENT To create awareness and to provide information regarding the late effects of polio among polio survivors, statutory agencies and the wider medical profession, and to ensure that the needs of polio survivors relating to their condition are met to enable them to live with dignity.

DISCLAIMER: While every care is taken to ensure accuracy, neither the Editor nor the Board can accept liability. The views expressed in this magazine are not neccessarily their views or the views of the charity. Neither the charity, nor the Editor, endorses any product or service mentioned in ‘THE SURVIVOR’.

Published April 2020 by Polio Survivors Ireland, Unit 319, Capel Building, Mary’s Abbey, Dublin 7. Tel: 01 889 8920 Fax: 01 889 8924 Email: [email protected] Web: www.polio.ie Registered Charity No. CHY 11356 CRA No. 20030926 Company limited by guarantee and not having share captal. Registered in Ireland No: 354283

UNSUBSCRIBE: If you no longer wish to receive this magazine from Polio Survivors Ireland please email [email protected] or call 01 889 8920.