Philanthropic Support to Address HIV/AIDS
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PHILANTHROPIC SUPPORT TO ADDRESS HIV/AIDS IN 2019 Funders Concerned About AIDS (FCAA) FCAA BOARD Amelia Korangy Mission informs, connects and supports philanthropy OF DIRECTORS ViiV Healthcare to mobilize resources to end the global HIV J. Channing Wickham Kali Lindsey Washington AIDS Elton John AIDS pandemic and build the social, political and Partnership Foundation economic commitments necessary to attain Chair Florence Thune health, human rights and justice for all. Kate Harrison Sidaction Avert VISION Vice Chair Mark Vermeulen FCAA envisions a world without AIDS, Dr. Stellah Bosire Aidsfonds facilitated by philanthropy for: UHAI EASHRI Stanley Wong Secretary Levi Strauss Foundation § Empowerment, equity and justice for Jesse Milan, Jr. Korab Zuka marginalized and neglected communities; AIDS United Gilead Sciences, Inc. § Innovation in health services and other Treasurer programming to promote health, Julia Greenberg human rights and social and economic Open Society Foundations STAFF Officer at Large opportunity; and John L. Barnes Taryn Barker § Government responsiveness and Executive Director Children’s Investment accountability to people’s needs. Fund Foundation Sarah Hamilton Director of Operations Crystal Crawford VALUES Southern Blacks Caterina Gironda As a global network of funders, FCAA in Philanthropy Research and welcomes diverse perspectives, facilitates Kiyomi Fujikawa Program Manager Third Wave Fund open communication and debate, and Aimé Césaire Atchom promotes racial and gender equity Tam Ho Research and and all human rights. M•A•C VIVA GLAM Fund Administrative Assistant ACRONYMS FCAA wishes to thank Broadway Cares/Equity Fights AIDS, the Ford BIPOC Black, Indigenous and people of color Foundation, Levi Strauss Foundation and Open Society Foundations for their generous funding of this publication. The data, findings and COMPASS COMmitment to Partnership in Addressing HIV in Southern States conclusions presented in this report are those of FCAA alone and do not necessarily reflect the perspectives or the opinions of any of our COVID-19 Coronavirus disease 2019 funding partners. FCAA Funders Concerned About AIDS Global Fund The Global Fund to Fight AIDS, Lead Author and Researcher: FCAA is grateful for the efforts Tuberculosis and Malaria Caterina Gironda of the following people in ensuring Co-author: the quality and comprehensiveness LGBTQ Lesbian, gay, bisexual, transgender, Sarah Hamilton of this report: and queer/questioning § Co-researcher: FCAA Resource Tracking LMIC Low- and middle-income countries Aimé Césaire Atchom Outside Readers: • Mutisya Leonard, Health GAP PLWHA People living with HIV/AIDS • Ryan Schlegel, National Committee for Responsive PrEP Pre-exposure prophylaxis Philanthropy § UNAIDS Joint United Nations Program on HIV/AIDS Kaiser Family Foundation and Funders for LGBTQ Issues U.K. United Kingdom for their ongoing guidance and collaboration U.S. United States § Design: Brevity & Wit Note: All figures marked $ are U.S. dollar amounts. FCAA thanks all the philanthropic entities that shared their 2019 grants lists, which provided the bulk of information for this publication. Contact Funders Concerned About AIDS at: © April 2021, Funders Concerned About AIDS 1100 Connecticut Avenue, NW Suite 1100 Permission is granted to reproduce this document in part or in its entirety, Washington, D.C. 20036 provided that Funders Concerned About AIDS (FCAA) is cited as the source (202) 796 - 2211 for all reproduced material. This document is posted and distributed www.fcaaids.org primarily as an electronic condensed PDF file. Contents 06 Overview 14 Foreword 18 Top Grantmakers in 2019 26 Funding Context 30 Geographic Focus 42 Intended Use 48 Populations of Focus 54 Appendices & Endnotes 56 Appendix 1: List of all Philanthropic Funders of HIV/AIDS in 2019 68 Appendix 2: Methodology 72 Endnotes Please visit the FCAA website at www.fcaaids. org/inform/philanthropic-support-to-address- hiv-aids/ for an online version of the report and additional resources. OVERVIEW 8 PHILANTHROPIC SUPPORT TO ADDRESS HIV/AIDS IN 2019 OVERVIEW 9 2018-2019 • Same Set of Funders Comparison (dollars in millions) 8 1 6 7 4 6 7 3 7 $100M $200M $300M $400M $500M $600M $ 7 0 5, 6 3 5, 6 2 6 2018 $627 6 9 4 5 2 4 5 1 5 2019 $698 TOTAL PHILANTHROPIC GIVING TO HIV/AIDS IN 2019 2018 (w/o Ragon) $625 264 5,692 3,023 2019 (w/o Ragon) $598 Funders Grants Grantees This year marks the 18th annual resource grants databases, annual reports, Internal HIV/AIDS-related giving among private philanthropic tracking publication from Funders Concerned Revenue Service Form 990 returns and Candid’s organizations totaled nearly $706 million in 2019, About AIDS (FCAA) on philanthropic support Foundation Maps grants database. This report for HIV/AIDS. The report relies on grants specifically captures HIV-related funding from representing a $49 million or 7% increase from 2018. This is lists submitted directly by nearly 80 funders philanthropic organizations around the globe; the highest level of giving to date since FCAA began tracking (representing 98% of the total funding), as well it excludes any public funding for HIV/AIDS, as grants information from funder websites, including government or multilateral support. HIV-related philanthropy almost 20 years ago. This increase was almost entirely driven by a Ragon Foundation that we tracked in smaller single $100 million payment from one funder, disbursements over the past 10 years, the 1 2007-2019 • HIV/AIDS Private Philanthropic Disbursements (dollars in millions) and belies what would otherwise be recorded as Ragon Foundation made a new investment of $706 an overall decrease in HIV-related philanthropy. $100 million for HIV research, disbursed in its $671 $667 $679 $641 $657 entirety in 2019. $632 $620 $618 +7% $600M $611 $609 LOOKING BEYOND THE 7% $580 $570 HIV-related philanthropy has hovered roughly To understand this investment’s impact on between $600 million and $700 million for overall funding, we examined the funding more than a decade. Within that relatively flat levels of the same set of grantmakers that resource flow, the majority of apexes have been we collected data on in both 2018 and $400M tied to a rise in funding from a single large 2019. Of this subset, we observed an 11% initiative or donor in the field. Increases are ($71 million) increase over the two years. always something to be celebrated; however, Acknowledging the significance of the it is troubling that these new funding streams Ragon Foundation’s $100 million gift, we result in continued crests and troughs that leave next looked at funding levels from the same $200M the overall total relatively unchanged, rather subset, but withheld the Ragon Foundation’s than contributing to an upward trend. investment. Rather than an increase, we found a 4% ($27 million) decrease among those After the conclusion of a 10-year, $100 funders, underscoring the driving influence 2007 2008 2009 2010 2011 2012 2013 2014 2015 2016 2017 2018 2019 million grant from the Phillip T. and Susan M. of the Ragon Foundation’s contribution. 10 PHILANTHROPIC SUPPORT TO ADDRESS HIV/AIDS IN 2019 OVERVIEW 11 This is not a new insight; each edition of this noted a dramatic but anomalous increase report has noted the significance of funding in the number of funders we were able to levels by the top 20 funders, which accounted share data from, nearly 700, due in large part for 92% of total funding in 2019. This number to the breadth of data available via Candid’s topped 80% in 2014 and has been steadily Foundation Maps database in that year. For climbing since then, with this year marking 2019 funding, however, the available data on the highest concentration to date from the HIV-related grants dropped significantly, even top 20 funders. The top two funders, the Bill & lower than in previous years. As a result, our Melinda Gates Foundation and Gilead Sciences, total number of funders in this year’s report Inc., collectively make up over 50% of total is just over 250. While 78 of those funders grantmaking consistently each year. An increase submitted data directly to us, the data gathered or decrease from one of these funders can from Candid was from 173 funders (or 66% of often drive the overall total in either direction. all funders), down from the 564 funders from This outsized influence of a small group of Candid in 2018. With this drop in available data funders leaves the field in a precarious place, from Candid, we tracked just under $10 million especially as we have seen many of the top 20 in total funding from this data set for 2019, foundations or corporate funders decreasing down from almost $20 million in 2018. Whether funding or moving away entirely from the field this was an actual decrease in HIV-related of HIV philanthropy over the years. philanthropic funding disbursed in 2019 or an impact of COVID-19 on funders’ ability to collect Further yet, throughout this report, the data and submit data for Candid, we cannot say. reflects decreases in support to a majority of geographies, strategies and populations. This is In addition, we faced some data collection additional evidence that beyond the parameters challenges from funders who typically submit of the Ragon Foundation’s investment — which directly to FCAA for the report. We were unable specifically impacted the category of research to collect data from at least 10 funders who intended for a general population — overall had been included in previous years — three funding to the field in 2019 was down. On of which reported no longer making HIV- page 12 please see a list of some of the most related grants for various reasons, and seven concerning decreases we are highlighting in this of which we were unable to make contact with year’s report. or reported being too busy to submit. These funders accounted for over $12 million in DATA COLLECTION missing funding.