PHILANTHROPIC SUPPORT TO ADDRESS HIV/AIDS IN 2019 Funders Concerned About AIDS (FCAA) FCAA BOARD Amelia Korangy Mission informs, connects and supports philanthropy OF DIRECTORS ViiV Healthcare to mobilize resources to end the global HIV J. Channing Wickham Kali Lindsey Washington AIDS Elton John AIDS pandemic and build the social, political and Partnership Foundation economic commitments necessary to attain Chair Florence Thune health, human rights and justice for all. Kate Harrison Sidaction Avert VISION Vice Chair Mark Vermeulen FCAA envisions a world without AIDS, Dr. Stellah Bosire Aidsfonds facilitated by philanthropy for: UHAI EASHRI Stanley Wong Secretary § Empowerment, equity and justice for Levi Strauss Foundation Jesse Milan, Jr. Korab Zuka marginalized and neglected communities; AIDS United Gilead Sciences, Inc. § Innovation in health services and other Treasurer programming to promote health, Julia Greenberg human rights and social and economic Open Society Foundations STAFF Officer at Large opportunity; and John L. Barnes Taryn Barker § Government responsiveness and Executive Director Children’s Investment accountability to people’s needs. Fund Foundation Sarah Hamilton Director of Operations Crystal Crawford VALUES Southern Blacks Caterina Gironda As a global network of funders, FCAA in Philanthropy Research and welcomes diverse perspectives, facilitates Kiyomi Fujikawa Program Manager Third Wave Fund open communication and debate, and Aimé Césaire Atchom promotes racial and gender equity Tam Ho Research and and all human rights. M•A•C VIVA GLAM Fund Administrative Assistant ACRONYMS FCAA wishes to thank Broadway Cares/Equity Fights AIDS, the Ford BIPOC Black, Indigenous and people of color Foundation, Levi Strauss Foundation and Open Society Foundations for their generous funding of this publication. The data, findings and COMPASS COMmitment to Partnership in Addressing HIV in Southern States conclusions presented in this report are those of FCAA alone and do not necessarily reflect the perspectives or the opinions of any of our COVID-19 Coronavirus disease 2019 funding partners. FCAA Funders Concerned About AIDS
Global Fund The Global Fund to Fight AIDS, Lead Author and Researcher: FCAA is grateful for the efforts Tuberculosis and Malaria Caterina Gironda of the following people in ensuring Co-author: the quality and comprehensiveness LGBTQ Lesbian, gay, bisexual, transgender, Sarah Hamilton of this report: and queer/questioning § Co-researcher: FCAA Resource Tracking LMIC Low- and middle-income countries Aimé Césaire Atchom Outside Readers: • Mutisya Leonard, Health GAP PLWHA People living with HIV/AIDS • Ryan Schlegel, National Committee for Responsive PrEP Pre-exposure prophylaxis Philanthropy § UNAIDS Joint United Nations Program on HIV/AIDS Kaiser Family Foundation and Funders for LGBTQ Issues U.K. United Kingdom for their ongoing guidance and collaboration U.S. United States § Design: Brevity & Wit
Note: All figures marked $ are U.S. dollar amounts. FCAA thanks all the philanthropic entities that shared their 2019 grants lists, which provided the bulk of information for this publication.
Contact Funders Concerned About AIDS at: © April 2021, Funders Concerned About AIDS 1100 Connecticut Avenue, NW Suite 1100 Permission is granted to reproduce this document in part or in its entirety, Washington, D.C. 20036 provided that Funders Concerned About AIDS (FCAA) is cited as the source (202) 796 - 2211 for all reproduced material. This document is posted and distributed www.fcaaids.org primarily as an electronic condensed PDF file. Contents
06 Overview 14 Foreword 18 Top Grantmakers in 2019 26 Funding Context 30 Geographic Focus 42 Intended Use 48 Populations of Focus 54 Appendices & Endnotes
56 Appendix 1: List of all Philanthropic Funders of HIV/AIDS in 2019 68 Appendix 2: Methodology 72 Endnotes
Please visit the FCAA website at www.fcaaids. org/inform/philanthropic-support-to-address- hiv-aids/ for an online version of the report and additional resources. OVERVIEW 8 PHILANTHROPIC SUPPORT TO ADDRESS HIV/AIDS IN 2019 OVERVIEW 9
2018-2019 • Same Set of Funders Comparison (dollars in millions) 8 1 6 7 4 6 7 3 7 $100M $200M $300M $400M $500M $600M $ 7 0 5, 6 3 5, 6 2 6 2018 $627 6 9 4 5 2 4 5 1 5 2019 $698 TOTAL PHILANTHROPIC GIVING TO HIV/AIDS IN 2019 2018 (w/o Ragon) $625
264 5,692 3,023 2019 (w/o Ragon) $598 Funders Grants Grantees
This year marks the 18th annual resource grants databases, annual reports, Internal HIV/AIDS-related giving among private philanthropic tracking publication from Funders Concerned Revenue Service Form 990 returns and Candid’s organizations totaled nearly $706 million in 2019, About AIDS (FCAA) on philanthropic support Foundation Maps grants database. This report for HIV/AIDS. The report relies on grants specifically captures HIV-related funding from representing a $49 million or 7% increase from 2018. This is lists submitted directly by nearly 80 funders philanthropic organizations around the globe; the highest level of giving to date since FCAA began tracking (representing 98% of the total funding), as well it excludes any public funding for HIV/AIDS, as grants information from funder websites, including government or multilateral support. HIV-related philanthropy almost 20 years ago. This increase was almost entirely driven by a Ragon Foundation that we tracked in smaller single $100 million payment from one funder, disbursements over the past 10 years, the 1 2007-2019 • HIV/AIDS Private Philanthropic Disbursements (dollars in millions) and belies what would otherwise be recorded as Ragon Foundation made a new investment of $706 an overall decrease in HIV-related philanthropy. $100 million for HIV research, disbursed in its $671 $667 $679 $641 $657 entirety in 2019. $632 $620 $618 +7% $600M $611 $609 LOOKING BEYOND THE 7% $580 $570 HIV-related philanthropy has hovered roughly To understand this investment’s impact on between $600 million and $700 million for overall funding, we examined the funding more than a decade. Within that relatively flat levels of the same set of grantmakers that resource flow, the majority of apexes have been we collected data on in both 2018 and $400M tied to a rise in funding from a single large 2019. Of this subset, we observed an 11% initiative or donor in the field. Increases are ($71 million) increase over the two years. always something to be celebrated; however, Acknowledging the significance of the it is troubling that these new funding streams Ragon Foundation’s $100 million gift, we result in continued crests and troughs that leave next looked at funding levels from the same $200M the overall total relatively unchanged, rather subset, but withheld the Ragon Foundation’s than contributing to an upward trend. investment. Rather than an increase, we found a 4% ($27 million) decrease among those After the conclusion of a 10-year, $100 funders, underscoring the driving influence 2007 2008 2009 2010 2011 2012 2013 2014 2015 2016 2017 2018 2019 million grant from the Phillip T. and Susan M. of the Ragon Foundation’s contribution. 10 PHILANTHROPIC SUPPORT TO ADDRESS HIV/AIDS IN 2019 OVERVIEW 11
This is not a new insight; each edition of this noted a dramatic but anomalous increase report has noted the significance of funding in the number of funders we were able to levels by the top 20 funders, which accounted share data from, nearly 700, due in large part for 92% of total funding in 2019. This number to the breadth of data available via Candid’s topped 80% in 2014 and has been steadily Foundation Maps database in that year. For climbing since then, with this year marking 2019 funding, however, the available data on the highest concentration to date from the HIV-related grants dropped significantly, even top 20 funders. The top two funders, the Bill & lower than in previous years. As a result, our Melinda Gates Foundation and Gilead Sciences, total number of funders in this year’s report Inc., collectively make up over 50% of total is just over 250. While 78 of those funders grantmaking consistently each year. An increase submitted data directly to us, the data gathered or decrease from one of these funders can from Candid was from 173 funders (or 66% of often drive the overall total in either direction. all funders), down from the 564 funders from This outsized influence of a small group of Candid in 2018. With this drop in available data funders leaves the field in a precarious place, from Candid, we tracked just under $10 million especially as we have seen many of the top 20 in total funding from this data set for 2019, foundations or corporate funders decreasing down from almost $20 million in 2018. Whether funding or moving away entirely from the field this was an actual decrease in HIV-related of HIV philanthropy over the years. philanthropic funding disbursed in 2019 or an impact of COVID-19 on funders’ ability to collect Further yet, throughout this report, the data and submit data for Candid, we cannot say. reflects decreases in support to a majority of geographies, strategies and populations. This is In addition, we faced some data collection additional evidence that beyond the parameters challenges from funders who typically submit of the Ragon Foundation’s investment — which directly to FCAA for the report. We were unable specifically impacted the category of research to collect data from at least 10 funders who intended for a general population — overall had been included in previous years — three funding to the field in 2019 was down. On of which reported no longer making HIV- page 12 please see a list of some of the most related grants for various reasons, and seven concerning decreases we are highlighting in this of which we were unable to make contact with year’s report. or reported being too busy to submit. These funders accounted for over $12 million in DATA COLLECTION missing funding. Two of these funders were on DURING A PANDEMIC the top 20 list last year. While the 2019 funding data we examined in this year’s report was not impacted by the COVID-19 pandemic of 2020, we did feel the impacts of the pandemic on funders’ time and capacity to respond and submit data for this report. Last year’s report, for example, 12 PHILANTHROPIC SUPPORT TO ADDRESS HIV/AIDS IN 2019 OVERVIEW 13
Key populations Local funding Pre-COVID-19 Benchmarks FCAA analyzes grants by the location of intended Overall, philanthropic funding for key populations* benefit, which may not necessarily be the location of The challenges that COVID-19 has presented compounding effects of COVID-19. was almost $107 million in 2019, marking a 12% the recipient grantee-partner. As such, understanding are not new to people living with or at risk ($14 million) decrease from 2018. It is important the flow of resources at the national, regional, of HIV, especially lesbian, gay, bisexual, FCAA has called for increased attention and to note that almost every population tracked within country and/or state level — and how that compares transgender and queer/questioning (LGBTQ) funding for many of these areas in previous key populations experienced substantial declines in to COVID-19 responses, testing and vaccine and Black, Indigenous and people of color reports, but they have yet to be adequately funding in 2019. More on this on page 53. availability — will be critical to monitoring. (BIPOC) communities in the United States and resourced, and certainly not to the extent that *Includes grants marked for the population categories gay men/ key populations globally. the current context of COVID-19 calls for. In fact, men who have sex with men, people who inject drugs, transgender U.S. NATIONAL the data to follow shows decreases to people, sex workers, general LGBTQ and key affected populations not broken down. In 2019, the U.S. saw a 35% increase in non-region- We do not yet know the full extent of the most of these issues, even prior to the onset specific national grants, reaching almost $140 COVID-19 pandemic’s impact on the levels of COVID-19. million or 66% of all funding to the U.S. In contrast and types of HIV-related philanthropic funding to previous trends, regional- and state-level funding we will see in next year’s report (on calendar When we return next year to analyze 2020 decreased across the board, with regional funding year 2020 grantmaking) and beyond; however, funding levels for these areas, we hope to BIPOC communities (U.S.) accounting for 4% of all U.S. grants and state-level in the section that follows we highlight pre- see they have only risen dramatically during funding accounting for 30%. More on this on page 37. COVID funding levels for certain strategies and the pandemic — and hope to continue to see Funding specifically targeting BIPOC communities in populations that demand additional attention, funders prioritize these strategies long after the the U.S. totaled just over $30 million in 2019, which LOW- AND MIDDLE- was a 6% increase from the 2018 benchmark level. support and flexibility to help combat the pandemic has come and gone. INCOME COUNTRIES More on this on page 52. The vast majority of country-level funding in 2019 “Recovery from this crisis will extend over a number of years, and nonprofits went to high-income countries ($237 million), a 5% will need the support of funders to respond to changing events and increase from the previous year, while low-income countries saw a 47% drop in funding of more than circumstances. This pandemic will have long-term impacts and cannot be Social services $33 million. Lower-middle-income countries saw a solved by pre-2020 contribution amounts.” 4% decrease of $2 million and upper-middle-income The social service intended use category includes countries saw a 43% decrease in funding in 2019 – Center for Disaster Philanthropy & CANDID. support for food, nutrition, housing and mental health ($26 million). Overall, country-specific funding for Philanthropy and COVID-19 — Measuring one year of giving2 services, among many other strategies. Critical gaps low- and middle-income countries (LMIC) decreased in funding for, and access to, such services — which by 32% in 2019. More on this on page 41. are essential for basic survival — have been widely Capacity building/ identified among both U.S. and global communities General operating support impacted by HIV/AIDS during the COVID-19 leadership development pandemic. In 2019, funding for social services totaled $71 million, a 29% drop from 2018 levels. In 2019, general operating funding — In 2019, HIV-related philanthropy for these also referred to as core support — totaled $43 strategies totaled $49 million, a 23% decrease million, a 13% ($6 million) decrease from 2018. from 2018. This decrease came after two years of significant increases since we began tracking in 2016. Advocacy On we spotlight the top five Funding for advocacy — which included human pages 46-47, rights-related strategies — totaled $119 million funders for some of these key issues. in 2019, a 4% decrease from 2018 but remaining relatively flat since 2015. FOREWORD 16 PHILANTHROPIC SUPPORT TO ADDRESS HIV/AIDS IN 2019 FOREWORD 17
A GLASS HALF FULL AND THEN CAME COVID-19 advocate for increased transparency in racial “COVID-19 has confirmed for us that While there is cause to celebrate this The data in this report occurred in a pre-COVID justice, COVID-19 and HIV-related grantmaking. all funders are disaster funders.” year’s headline that HIV/AIDS philanthropic world, but we now know what was about to disbursements reached a new high in 2019 — befall the HIV response and the world. As of the On page 12, we highlight several issues to – Center for Disaster Philanthropy & totaling nearly $706 million, a 7% increase from writing of this report, more than three million consider in this new world order. Understanding CANDID. Philanthropy and COVID-19 — 2018 — it is critical to note that the increase people have died from COVID-19, and its impact where funding around these issues was in pre- Measuring one year of giving2 was almost entirely driven by a single funder, on marginalized communities — that were COVID-19 times will help to measure and guide masking what otherwise would have been an already insufficiently resourced — is unyielding. the response moving forward. Importantly, overall decrease in HIV-related philanthropy. reinforcing the message that these challenges We cannot eliminate an epidemic — whether These most recent numbers continue a now Soon after the onset of the pandemic, we are not new to the communities we have long HIV or COVID-19 — if we do not address the years long trend of a relatively flat pool of realized that HIV-informed grantmaking would focused on, these strategies will seem familiar social drivers that fuel it. resources being provided by a shrinking be more important than ever. To respond to and remain focused on providing flexible, long- number of funders. This growing lack of COVID-19 and sustain progress against HIV term support that centers and strengthens the Thank you for all you do. We hope you find diversification of funding sources makes and AIDS, grantmakers would need to apply capacity of communities. the data in this report valuable to your work the response increasingly vulnerable to the the experience and approaches learned from and advocacy. vicissitudes and priorities of an ever-smaller the HIV response in funding effective research, THE VALUE OF HIV- number of investors. community education, advocacy for rights INFORMED GRANTMAKING and justice and scaled-up testing, treatment In tracking HIV resources, it is important for Further, if we concentrate on the overall and prevention. us to also remember that while it sometimes increase, we also risk missing some of the feels as if resources are being “taken” from the more alarming trends in this report. Just to In early 2020, we convened a COVID-19 learning HIV response, they are often simply moving name two: the vast majority of people living group to share data, resources and learnings “upstream” to address broader systemic issues John L. Barnes with HIV/AIDS live in low- and middle-income and to coordinate funding responses and that impact people living with and affected Executive Director countries (LMIC), yet HIV-related philanthropy advocacy for the marginalized communities by HIV. Similarly, the funders “moving away” Funders Concerned About AIDS to LMIC decreased by 32% from 2018 to 2019. and underserved geographies that are most from the HIV response continue to leverage Similarly, while key populations and their sexual impacted by the pandemic. As noted in the knowledge, systems and resources built on partners account for the majority of new global a resulting report: “the challenges of this decades of cutting-edge HIV work to improve HIV infections, our data found a 12% decrease pandemic are not new to people living with or services, access and justice in broader arenas. in HIV-related philanthropy for key populations at risk of HIV — especially, LGBTQ and Black, As funders concerned about AIDS, we recognize overall in 2019, as well as substantial declines Indigenous and People of Color (BIPOC) the value of “HIV-informed grantmaking” in J. Channing Wickham for nearly every population tracked within the communities in the U.S. and key populations addressing the deeply ingrained injustices that Executive Director “key populations” category. globally. The pandemic has only deepened the epidemic is symptomatic of. Washington AIDS Partnership existing inequalities and vulnerabilities but did Chair of the Board of Directors not create them.” 3 This is also what drove FCAA’s new strategic Funders Concerned About AIDS “COVID-19 has laid bare the consequences plan (2021-2025), launched on December 1, of siloed philanthropy, and the imperative Further yet, the COVID-19 crisis, in parallel 2020. Whereas our last strategy contemplated to accelerate intersectional, multi-level with the Black Lives Matter protests of state- the intersections at which we needed to work, in work, with particular attention to sanctioned violence against African Americans, this new plan, the intersections are the focus of spurred FCAA to explore the question of our work. integrating the HIV and COVID response whether HIV-related philanthropy is adequately with racial justice efforts in the US.” supporting BIPOC communities and, if so, Our new strategic direction is not meant to how. In the fall of 2020, we released our first signal a lack of prioritization of, or focus on, – FCAA. Converging Epidemics: COVID-19, analysis of HIV-related philanthropy for BIPOC HIV. It is instead the recognition that we must HIV and Inequality — Community-led Lessons communities, which has been updated within work at those critical intersections while also for Funders3 this year’s report. We also launched a new racial maintaining our commitment to ending the justice working group to help coordinate and epidemic once and for all. TOP GRANTMAKERS 20 PHILANTHROPIC SUPPORT TO ADDRESS HIV/AIDS IN 2019 TOP GRANTMAKERS 21
2019 • Top 20 Philanthropic Funders of HIV/AIDS4 Top Grantmakers in 2019 2019 Change Number Percent of Total Disbursements from 2018 of Grants Grantmaking* 1 Bill & Melinda Gates Foundation $224,278,377 - 2% 237 4% HIV/AIDS philanthropic disbursements in previous years. Moreover, the overall increase in funding in 2019 was almost 2 Gilead Sciences, Inc.n 167,278,791 + 7% 987 44% totaled approximately $706 million in entirely driven by a significant investment 2019, a 7% increase from 2018. from the number three funder, the Phillip T. 3 Phillip T. & Susan M. Ragon Foundation 100,000,000 + 4900% n/a n/a
and Susan M. Ragon Foundation. n In 2019, the top 20 HIV/AIDS funders, out 4 ViiV Healthcare 44,018,775 + 38% 760 100% of the 264 total funders tracked, awarded The total funding that came from the top 20 5 Elton John AIDS Foundationn 25,262,215 + 47% 116 100% nearly $675 million in grants for HIV/AIDS funders increased by 13% ($76 million) from responses. This accounted for 92% of the total 2018 to 2019. However, when we excluded the 6 M·A·C VIVA GLAM Fundn 13,519,785 - 49% 293 92% HIV/AIDS philanthropic support for that year. Ragon Foundation’s grant from this analysis, we n This concentration of funding at the top was saw a 4% decrease in total funding coming from 7 Conrad N. Hilton Foundation 11,200,000 - 1% 24 10% further elucidated by the top three funders: the top 20 funders. A closer look showed that 8 Broadway Cares/Equity Fights AIDSn 10,014,301 + 3% 526 68%** the top two funders alone accounted for only eight funders on this list increased giving, 53% of all HIV funding in 2019, as they have while 12 funders reported decreases in 2019. 9 Children’s Investment Fund Foundationn 9,558,729 - 9% 13 4% n MSD 7,792,047 + 341% 92 10% 10 (known as Merck & Co., Inc in the U.S. & Canada) 11 amfAR, The Foundation for AIDS Researchn 7,715,770 - 35% 80 100%
12 Sidactionn 7,454,977 - 9% 366 100%
13 Ford Foundationn 7,234,090 - 8% 16 1%
14 Aidsfondsn 6,879,214 - 43% 85 100%***
15 Open Society Foundationsn 6,565,844 - 27% n/a 1%
16 AIDS Unitedn 5,974,061 + 28% 217 100%***
Nationale Postcode Loterij 5,780,080 + 113% 3 1% 17 (Dutch National Postcode Lottery) FUNDERS CONCERNED 18 Wellcome Trust 5,625,422 - 85% 38 <1% ABOUT AIDS: THE POWER OF MEMBERSHIP 19 Stephen Lewis Foundationn 4,870,017 - 6% 238 100%
While only 13% of the funding organizations 20 Sentebale 4,052,362 - 4% 5 100% tracked in this year’s report are FCAA member organizations — including 15 of the top 20 — their combined grantmaking * FCAA approximated the total philanthropic giving for each top 20 funding organization available via public sources of information (annual reports, 990 forms, etc.). Due to FCAA's data collection methodology, some of the funding totals reported here may differ from the organizations' financial statements. accounted for roughly 50% of total HIV- For most HIV-specific funders, we have indicated 100% despite these small discrepancies. related philanthropy in 2019. ** The majority of giving from Broadway Cares/Equity Fights AIDS is focused on the response to HIV/AIDS; however, they do leverage their philanthropy to support health needs and emergencies — including but not limited to HIV/AIDS — experienced by individuals in the entertainment industry. n Denotes FCAA member organization *** We have noted that HIV-related giving totals for AIDS United and Aidsfonds represent 100% of their total grantmaking in 2019. However, it is important to note that we are strictly referring to their private philanthropic disbursements; both organizations have larger giving portfolios that include public sources of income and partnerships that are not tracked within FCAA’s resource tracking report. 22 PHILANTHROPIC SUPPORT TO ADDRESS HIV/AIDS IN 2019 TOP GRANTMAKERS 23
2019 • Distribution of Philanthropic HIV/AIDS Funding by The majority 2019 • Distribution of Number of Grants Given by Funders 6% of foundations Funder Rank (by percentage of total disbursements) Funders 21-50 that supported Funders with 500-999 grants HIV responses awarded only a 3 FUNDERS small number of grants, with Funders with 100-499 grants 56% of all funders 7 FUNDERS tracked giving only 31% 23% 39% one grant each Funders with 50-99 grants Bill & Melinda Gates Gilead Funders 3-20 and almost 90% Foundation of funders giving 7 FUNDERS fewer than 25 grants each. Funders with 25-49 grants
13 FUNDERS
2% Funders with 2-24 grants Funders 51-264
1 1 18 30 214 NUMBER OF FUNDERS
2019 • Top 10 Funders by Number of Grants 87 FUNDERS
1 Gilead Sciences, Inc. 987 total grants Funders with only 1 grant 2 ViiV Healthcare 760
3 Broadway Cares/Equity Fights AIDS 526
4 Sidaction 366
5 M·A·C VIVA GLAM Fund 293
6 Stephen Lewis Foundation 238
7 Bill & Melinda Gates Foundation 237
8 AIDS United 217
9 American Jewish World Service 121
10 Elton John AIDS Foundation 116 147 FUNDERS 24 PHILANTHROPIC SUPPORT TO ADDRESS HIV/AIDS IN 2019 TOP GRANTMAKERS 25
CORPORATE FUNDERS HIV-SPECIFIC FUNDERS EDITOR’S NOTE: There were 46 corporate foundations and giving funding overall. Nearly 10% of corporate This analysis included a review of organizational mission programs that supported HIV/AIDS work in funding was designated to continuing medical statements and publicly stated priorities to identify a clear and Why do we do this analysis? 2019, four of which were in the top 20 funder education courses for medical professionals, predominant focus on HIV. Results showed that 10% of funders The earliest recorded HIV- list. Their collective funding represented 33% and 35% was for organizations that assist (27 of the total 264 funders) in 2019 were HIV-specific funding focused philanthropy — five (or $241 million) of total HIV/AIDS philanthropy patients to obtain medication copayments. organizations, yet their grants totaled $141 million or 19% of private foundation grants in 2019. Of the 46 philanthropic corporate While FCAA acknowledges the value of in-kind the total in that year. Ten of these 27 HIV-specific funders were totaling $216,000 in the United HIV funders, only six were pharmaceutical donation support, we do not include these among the top 20 funders in 2019. States in 1983 — funded companies, yet they represented 92% of contributions in our report, only cash grants to pioneering sexual health and corporate funding and 30% of HIV-related external organizations. 2019 • Funders that Focus on HIV/AIDS harm reduction programs, (2019 disbursements) innovative peer support and home-based care services, and ViiV Healthcare $44,018,775 policy and advocacy work that 2019 • Corporate Philanthropic HIV/AIDS Funders Elton John AIDS Foundation 25,262,215 mobilized unprecedented (2019 disbursements) global campaigns against HIV M·A·C VIVA GLAM Fund 13,519,785 and other leading diseases. Gilead Sciences, Inc. $167,278,791 Deloitte Support Services India Private Ltd. 34,269 Broadway Cares/Equity Fights AIDS 10,014,301 Now, nearly four decades ViiV Healthcare 44,018,775 Flextronics Technologies (India) Private Ltd. 25,702 amfAR, The Foundation for AIDS Research 7,715,770 later, we understand better M·A·C VIVA GLAM Fund 13,519,785 LIC Housing Finance Ltd. 22,846 Sidaction 7,454,977 that we cannot eliminate an epidemic if we do not address MSD 7,792,047 Odisha Power Generation Corporation Ltd. 22,048 Aidsfonds 6,879,214 the social drivers that fuel it. AbbVie Foundation and AbbVie 2,585,000 Kirloskar Oil Engines Ltd. 19,991 AIDS United 5,974,061 It is important to acknowledge Levi Strauss Foundation 1,935,000 Mazagon Dock Shipbuilders Ltd. 14,807 Stephen Lewis Foundation 4,870,017 as well that the other 81% of all HIV-related philanthropy EIT Services India Private Ltd. 1,040,968 Piramal Enterprises Ltd. 14,279 Sentebale 4,052,362 came from funders who do GlaxoSmithKline 587,539 Walmart Foundation 9,000 Egmont Trust 2,116,426 not identify as HIV-specific Wells Fargo Foundation 526,800 Infinera India Private Ltd. 8,024 Keep A Child Alive 1,920,787 funders. This context offers The Elizabeth Taylor AIDS Foundation 1,467,000 a fertile ground to discuss, Century Plyboards (India) Ltd. 292,205 Macleods Pharmaceuticals Ltd. 7,140 explore and partner on Charlize Theron Africa Outreach Project 1,226,000 Jindal Power Limited 229,892 SJS Enterprises Private Ltd. 7,140 intersectional approaches to WeSeeHope 814,546 Signet Chemical Corporation Private Ltd. 146,117 Rane (Madras) Ltd. 5,712 address HIV/AIDS. Verein AIDS LIFE 802,526 Deutsche Equities India Private Ltd. 84,246 JSW Jaigarh Port Ltd. 5,098 Washington AIDS Partnership 736,300 MTV Staying Alive Foundation 78,000 VULKAN Technologies Pvt. Ltd. 4,998 Design Industries Foundation Fighting AIDS (DIFFA) 614,548 Power Grid Corporation of India Ltd. 75,636 Ventura ( India ) Private Ltd. 3,598 AIDS Funding Collaborative 441,397 GKN Sinter Metals Private Ltd. 66,397 Syngenta Services Private Ltd. 2,299 AIDS Foundation Chicago 355,618 EMpower — Emerging Markets Foundation 66,000 RMSI Private Ltd. 1,913 Canadian Foundation for AIDS Research (CANFAR) 251,703 Bharat Petroleum Corporation Ltd. 59,972 Chandukaka Saraf & Sons Pvt. Ltd. 1,799 Barry & Martin’s Trust 189,575 JK Tyre & Industries Ltd. 58,544 Northern Coalfields Ltd. 1,771 San Francisco AIDS Foundation 110,000 Deloitte Consulting India Private Ltd. 54,260 Pee Vee Textiles Ltd. 1,428 MTV Staying Alive Foundation 78,000 Mahindra Vehicle Manufacturers Ltd. 52,832 CarMax Foundation 1,000 Avert 76,011 Kirloskar Pneumatic Company Ltd. 51,404 Price Chopper’s Golub Foundation 500 Kent Richard Hofmann Foundation 32,474 SWELECT Energy Systems Ltd. 35,698 Campbell Soup Foundation 26 Campbell Foundation 25,000 FUNDING CONTEXT 28 PHILANTHROPIC SUPPORT TO ADDRESS HIV/AIDS IN 2019 FUNDING CONTEXT 29
EDITOR’S NOTE: 2019 • Total Resources for HIV/AIDS in LMIC
Funding Context This particular analysis yields Private philanthropy Other international the same result each year: 2% 1% Philanthropy accounts for The Joint United Nations Programme roughly 2% of global resources for HIV/AIDS in low- and on HIV/AIDS (UNAIDS) estimates that middle-income countries approximately $19.8 billion was invested (LMIC). While unchanging, annually in the AIDS response in LMIC this data remains core to the mission of Funders 11% 5 in 2019. Concerned About AIDS Donor governments to (FCAA) and to the change Global Fund/Unitaid FCAA estimates that private philanthropy we want to see in the world: contributed $465 million6 of that total funding government responsiveness to LMIC (or 2% of global resources available and accountability to people’s for HIV/AIDS in LMIC) in that year. See the needs. By understanding funding by country income chart on page 41 where HIV/AIDS-related for more information on philanthropic funding philanthropy stands in by income level. the larger development landscape, we can inform and An estimated support philanthropy to hold governments and multilateral $19.8 billion institutions accountable. was invested in the AIDS 29% response in LMIC in 2019 57% Bilateral funding from Domestic government donor governments responses
Note: This chart examines funding for responses to the HIV/AIDS epidemic in LMIC for 2019, as per available data from UNAIDS and The Henry J. Kaiser Family Foundation. UNAIDS’ analyses focus on LMIC specifically, as those countries are where the vast majority of people with HIV live. For this chart, FCAA has excluded private philanthropic funding for high income countries for an analogous comparison.7,8 GEOGRAPHIC FOCUS 32 PHILANTHROPIC SUPPORT TO ADDRESS HIV/AIDS IN 2019 GEOGRAPHIC FOCUS 33
Where Funding Where Funding is Coming From is Going A total of 264 philanthropic funders in 15 countries made more than 5,500 HIV/AIDS-related grants to approximately Most private HIV/AIDS philanthropy was Funding that came from the U.S. increased 3,000 grantees, totaling $706 million, in 2019. Below is a sourced from foundations and corporations by 15% in 2019. "top 3" snapshot of total funding, funders, intended use and that have United States-based headquarters. populations of focus of overall funding in 2019. The map on the following pages provides the same data per global region. 2019 • Philanthropic HIV/AIDS Funding by Donor Location (2019 disbursements) OVERALL: $706 MILLION Top 3 • Funders Bill & Melinda Gates Foundation UNITED STATES SWITZERLAND KENYA Gilead Sciences, Inc. $613,017,806 $3,872,553 $175,706 Phillip T. & Susan M. Ragon Foundation Top 3 • Intended Use $305m Research $159m Prevention $155m Treatment UNITED KINGDOM INDIA GHANA $61 , 57 7, 380 $2,453,033 $121,000 Top 3 • Populations of Focus $300m General population (including research for a general population) $183m PLWHA (general) $76m Women and girls NETHERLANDS BELGIUM AUSTRALIA $8,934,754 $1,244,551 $53,001
FRANCE SOUTH AFRICA PANAMA $8,209,375 $452,986 $24,000
CANADA AUSTRIA SENEGAL $5,383,069 $184,780 $9,632 34 PHILANTHROPIC SUPPORT TO ADDRESS HIV/AIDS IN 2019 GEOGRAPHIC FOCUS 35
2019 • Philanthropic Support to Address HIV/AIDS in 20199,10 WESTERN & EASTERN EUROPE EAST & SOUTHEAST ASIA CENTRAL EUROPE & CENTRAL ASIA Top 3 • Funders Top 3 • Funders Top 3 • Funders Gilead Sciences, Inc. GLOBAL: $295 MILLION Gilead Sciences, Inc. Elton John AIDS Foundation Bill & Melinda Gates Foundation M•A•C VIVA GLAM Fund Nationale Postcode Loterij FXB International — Association Top 3 • Funders Top 3 • Intended Use Top 3 • Populations of Focus ViiV Healthcare (Dutch National Postcode Lottery) François-Xavier Bagnoud Bill & Melinda Gates Foundation $263m Research $249m General population Gilead Sciences, Inc. Philip T. & Susan M. Ragon Foundation $33m Prevention $31m PLWHA (general) Top 3 • Intended Use Top 3 • Intended Use amfAR, The Foundation for AIDS Research $16m Advocacy $21m Women and girls $9m Prevention Top 3 • Intended Use $3m Advocacy $8m Social services $5m Prevention $2m Prevention $7m Advocacy $3m Treatment $2m Treatment $3m Advocacy Top 3 • Populations of Focus Top 3 • Populations of Focus $8m PLWHA (general) Top 3 • Populations of Focus $2m PLWHA (general) $3m Migrants/refugees $3m People who inject drugs $1m General population $295M $3m Gay men/men who $2m Gay men/men who $1m Youth (ages 15-24) have sex with men have sex with men $2m Sex workers CANADA <$1M Top 3 • Funders NORTH AFRICA & $24M Gilead Sciences, Inc. $9M THE MIDDLE EAST M•A•C VIVA GLAM Fund Top 3 • Funders Canadian Foundation for $7.5M MSD AIDS Research (CANFAR) $212M Bill & Melinda Gates Foundation Gilead Sciences, Inc. Top 3 • Intended Use $3M <$500k Social services Top 3 • Intended Use <$500k Prevention <$2M $2m Advocacy <$500k Advocacy $43M <$1m Administration $8M <$1m Prevention Top 3 • Populations of Focus <$500k PLWHA (general) Top 3 • Populations of Focus <$500k People who inject drugs $2m General population <$500k Gay men/men who $135M <$500k General LGBTQ have sex with men $3.5M <$500k Gay men/men who have sex with men
UNITED STATES CARIBBEAN LATIN AMERICA WEST & CENTRAL AFRICA EAST & SOUTHERN AFRICA SOUTH ASIA & THE PACIFIC Top 3 • Funders Top 3 • Funders Top 3 • Funders Top 3 • Funders Top 3 • Funders Top 3 • Funders Gilead Sciences, Inc. Elton John AIDS Foundation M•A•C VIVA GLAM Fund Bill & Melinda Gates Foundation Bill & Melinda Gates Foundation EIT Services India Private Limited ViiV Healthcare M•A•C VIVA GLAM Fund Gilead Sciences, Inc. ViiV Healthcare Elton John AIDS Foundation ViiV Healthcare Broadway Cares/Equity Fights AIDS Tides Foundation Levi Strauss Foundation Sidaction Conrad N. Hilton Foundation Gilead Sciences, Inc. Top 3 • Intended Use Top 3 • Intended Use Top 3 • Intended Use Top 3 • Intended Use Top 3 • Intended Use Top 3 • Intended Use $97m Treatment <$1m Administration $2m Advocacy $20m Prevention $65m Prevention $3m Advocacy $47m Advocacy <$1m Advocacy $2m Prevention $17m Research $35m Treatment $3m Treatment $37m Prevention <$500k Treatment <$1m Treatment $11m Treatment $30m Advocacy $3m Prevention Top 3 • Populations of Focus Top 3 • Populations of Focus Top 3 • Populations of Focus Top 3 • Populations of Focus Top 3 • Populations of Focus Top 3 • Populations of Focus $122m PLWHA (general) <$1m Transgender $1m Youth (ages 15-24) $17m Women and girls $37m Youth (ages 15-24) $2m PLWHA (general) $26m Healthcare workers <$1m Gay men/men who $1m Women and girls $10m General population $31m Women and girls $2m Youth (ages 15-24) $26m African Americans have sex with men <$1m Sex workers $7m PLWHA (general) $29m General population $1m Gay men/men who <$1m Women and girls have sex with men 36 PHILANTHROPIC SUPPORT TO ADDRESS HIV/AIDS IN 2019 GEOGRAPHIC FOCUS 37
Funding for the U.S. Epidemic 2019 • Philanthropic HIV/AIDS Funding by U.S. Region
U.S. National: Midwest: Northeast: 4% U.S. Regional 66% Private HIV/AIDS philanthropic funding $139,414,656 $7,835,784 $14,520,636 to the U.S. rose for the sixth year in a row, totaling nearly $212 million in 2019, a 6% ($12 million) increase from 2018.
The majority of all funding to the U.S. in 2019 30% 7% went to non-region-specific grants that would U.S. 4% State-level have an impact at the national level; this U.S. Funding accounted for 66% of U.S. funding. This left Locality regional funding at only 4% of all U.S. grants and 66% 6% state-level funding at 30%. U.S. National In 2019, the U.S. saw a 35% increase in non- region-specific national grants, reaching almost 17% $140 million or 66% of all funding to the U.S. The regions, in contrast to previous trends, saw decreases in funding in 2019: The West saw West: a decrease of 42%; the Northeast, 28%; the (PLWHA) per region. While the trajectory of Midwest, 37%; and U.S. territories, 36%. $13,707,712 funding followed the trend of prevalence, we still South: <1% To better understand if funding aligned with see clear gaps in the response, for example, to $36,360,044 U.S. Territories: need within the United States, we looked at the the U.S. South, where 45% of PLWHA in the U.S. percentage of funding by U.S. region alongside are located, but only 17% of U.S. philanthropic $787,811 the percentage of people living with HIV/AIDS funding for HIV was directed. Proportion of 2018 HIV Prevalence* vs. 2019 Philanthropy per U.S. Region
2019 • Top 5 Philanthropic Funders of U.S. HIV/AIDS Epidemic 40% 45% (2019 disbursements) Percent of PLWHA 30% 1 Gilead Sciences, Inc. $143,618,438
2 ViiV Healthcare 27,318,813 20% 23% 20% Broadway Cares/Equity Fights AIDS 9,252,432 3 10% 17% Funding 12% 4 Elton John AIDS Foundation 8,273,271 7% 6% 2% 4% <1% AIDS United 5,974,061 5 South Northeast West Midwest U.S. Territories
*Chart references 2018 U.S. HIV Prevalence from AIDSvu.org as this is the most current and complete picture of the U.S. epidemic.11 Striped • Percent of PLWHA Solid • Funding 38 PHILANTHROPIC SUPPORT TO ADDRESS HIV/AIDS IN 2019 GEOGRAPHIC FOCUS 39
2013-2019 • Funding to the U.S. South (disbursements) International/ $50M 48 $40M 40 36 Global Funding 31 $30M 30 29 27 $20M 2019 • Proportion of HIV Prevalence vs. Philanthropy per Global Region
2013 2014 2015 2016 2017 2018 2019 50% 55%
While funding to the U.S. South dropped by funding decreasing across the board. Funding $4 million (10%), funding for that region still to the top 10 states in 2019 totaled over $45 40% topped funding for other U.S. regions by more million, a $22 million drop from the 2018 top 10 than double, totaling over $36 million, in 2019. total. Seven out of the top 10 states are located Despite the decrease, funding to the U.S. South 30% 34% in the U.S. South, the top funded region. Funding was still higher than the pre-2017 totals, when Gilead’s COMPASS (COMmitment to Partnership All of the top 10 states include jurisdictions 20% in Addressing HIV in Southern States) Initiative, prioritized within the Ending the HIV Epidemic the Southern HIV Impact Fund and other efforts 19% initiative. First announced in 2019, the Ending mobilized a significant increase in resources to 10% 15% the HIV Epidemic initiative aims to end the HIV 13% the U.S. South. 6% epidemic in the United States by focusing on 4% 6% 6% 1% 1% 1% 1% With a huge increase to national-level grants 57 geographic areas (a mix of jurisdictions and PLWHA 2% <1% <1% in the U.S. in 2019, we saw state and regional states) with the highest HIV burden.12 Western & Eastern & Western Asia & the Eastern Latin Middle East Caribbean Central Southern & Central Pacific Europe & America & North 2019 • Philanthropic HIV/AIDS Funding by Top 10 Recipient U.S. States Europe Africa Africa Central Asia Africa (2019 disbursements) and North America 1 $10,518,106 NEW YORK Percent of adults and children living with HIV Percent of HIV philanthropic funding 2 $10,331,340 CALIFORNIA 3 $4,494,151 FLORIDA
4 $3,523,170 TEXAS EDITOR’S NOTE:
ILLINOIS 5 $3,219,533 The “UNAIDS Data 2020” report shares the number of adults and 6 $3,108,177 DISTRICT OF COLUMBIA children who were living with HIV in 2019 by region. To better elucidate the discrepancies in funding for certain regions, we 7 $2,880,501 GEORGIA converted this UNAIDS data to determine the percentages of people living with HIV/AIDS by global region, then compared this data to the 8 $2,623,275 TENNESSEE percentages of 2019 HIV Philanthropy for comparable regions. This visual shows that funding mostly follows the trajectory of HIV cases 9 $2,220,632 ALABAMA across global regions, except for the contrast of the breadth of funding to the Global North as well as the gap between funding and need for LOUISIANA 10 $2,187,905 Eastern and Southern Africa, and regions in Asia and the Pacific.13 40 PHILANTHROPIC SUPPORT TO ADDRESS HIV/AIDS IN 2019 GEOGRAPHIC FOCUS 41
2019 • Top 10 Philanthropic Funders of International/Global HIV/AIDS Grants (2019 disbursements) Funding by Country 1 Bill & Melinda Gates Foundation $224,183,377
2 Philip T. & Susan M. Ragon Foundation 100,000,000 Income Level
3 Gilead Sciences, Inc. 23,660,353 The vast majority of country- In contrast, low-income countries saw a 47% 4 Elton John AIDS Foundation 16,712,049 drop in funding of more than $33 million. Lower- level funding in 2019 — $237 middle-income countries saw a 4% decrease 5 ViiV Healthcare 16,027,591 million, a 5% increase from the and upper-middle-income countries saw a 43% decrease in funding in 2019 ($26 million). Conrad N. Hilton Foundation 11,200,000 6 previous year — went to high- Overall, country-specific funding for LMIC 7 Children’s Investment Fund Foundation 9,558,729 income countries. decreased by 32% in 2019.
8 M·A·C VIVA GLAM Fund 8,639,109
14,15 9 amfAR, The Foundation for AIDS Research 7,710,770 2019 • Philanthropic HIV/AIDS Funding by Country Income Level (2019 disbursements) 10 Nationale Postcode Loterij (Dutch National Postcode Lottery) 5,780,080 $50M $100M $150M $200M
High-income countries 2019 • Top 20 Recipient Countries of Philanthropic HIV/AIDS Funding $237M
UNITED STATES TANZANIA RUSSIA Upper-middle-income countries $35M $211,922,642 $6,495,808 $3,798,573 Lower-middle-income countries $59M KENYA INDIA NETHERLANDS $23,068,791 $6,135,852 $3,101,839 Low-income countries $37M SOUTH AFRICA UNITED KINGDOM SPAIN $17,856,722 $5,605,427 $2,47 7,713
MALAWI MOZAMBIQUE CHINA $13,044,395 $4,953,466 $1,914,467
ZIMBABWE FRANCE RWANDA $11,661,755 $4,931,673 $1,550,379
ZAMBIA BOTSWANA ITALY $9,262,788 $4,410,999 $1,350,852
UGANDA LESOTHO $7,956,430 $4,262,910 INTENDED USE 44 PHILANTHROPIC SUPPORT TO ADDRESS HIV/AIDS IN 2019 INTENDED USE 45
FCAA uses 10 different categories to classify the EDITOR’S NOTE: INTENDED USE CATEGORIES 16 intended use — or strategy — of HIV/AIDS grants. This significant drop in funding to social Research: Administration: Research has traditionally garnered the highest level of funding services is a critical Medical, prevention and social Monitoring and evaluation, facilities among all intended use categories each year. Funding for this one to highlight, as science research. investment, management of AIDS programs, category totaled over $305 million in 2019, a 29% increase from coded within is support planning, patient tracking, information 2018. This dramatic rise in funding was due to a large research for food and nutrition, Treatment: technology, strengthening logistics and drug grant from the Ragon Foundation, as mentioned earlier in the housing and mental supply systems. All medical care (clinic-, community- report. The other top intended use categories stayed nearly flat, health services, among and home-based care) and drug except for a 38% decrease to human resources and a 29% drop many others. Critical treatment (antiretroviral and opportunistic Human resources: to the social services category. For the past four years, FCAA has gaps in funding for infection treatment), end-of-life/palliative monitored funding for pre-exposure prophylaxis (PrEP), which is and access to such Training, recruitment and retention of care, lab services and provider/patient included within the prevention category. In 2019, we found over services — which are healthcare workers; direct payments to treatment information. $41 million in HIV-related philanthropic support for PrEP, a 14% essential for basic healthcare workers; and continuing education ($4.8 million) increase from 2018. survival — have been for healthcare workers. widely identified among Prevention: 2019 • Intended Use of Philanthropic Funding for HIV/AIDS both U.S. and global HIV testing, voluntary counseling and testing, Prevention of communities impacted harm reduction, male circumcision, PrEP, (2019 disbursements) pediatric HIV infection: by HIV/AIDS during the sexually transmitted infection prevention $100M $200M $300M COVID-19 pandemic. and health-related awareness/education/ Counseling, testing, and treatment of mothers and their newborns towards elimination Research $305M It’s also important to social and behavior change programs. note that funding for of perinatal HIV transmission (that is the advocacy has remained elimination of HIV transmission during Prevention $159M Advocacy: relatively flat over the pregnancy, labor, and/or breastfeeding), years, with even a slight Activities to reduce stigma and early infant diagnosis and ARV treatment, Treatment $155M 4% decrease in 2019. discrimination, as well as to develop a strong safe infant feeding practices and delivery, FCAA has made regular HIV constituency and enhance responses and other services that prevent and treat Advocacy to HIV; provision of legal services/other $119M recantations that this pediatric HIV. activities to promote access and rights; is a pivotal place for monitoring and accountability for HIV Social services $71M philanthropy to have funding; advocacy to support access to Orphans and an outsized impact on HIV treatment; AIDS-specific institutional Administration $54M the overall field. Only vulnerable children: development/strengthening; work to reduce 17% of all funding went Holistic provision of education, basic Human gender-based violence; and production of $29M healthcare, family/home/community support, resources to advocacy-related films and other communications to increase social services and institutional care for work, while more than general awareness of HIV/AIDS. Other $25M double that (43%) went children orphaned or made vulnerable by to Research. HIV/AIDS, in lieu of parental support. Prevention of pediatric Social services: HIV infection* $9M HIV/AIDS-related housing, employment, Other: Orphans & $4M food and transportation assistance; cash vulnerable children transfers/grants to individuals; day care; Funding that was unspecified and for projects income generation and microfinance that did not fall under the predetermined *In an effort to root out any stigmatizing or dehumanizing language used in programs; psychological/spiritual support categories, such as support for health our report we have changed the category previously listed as elimination of and peer support groups; case management systems strengthening, fundraising events mother-to-child transmission to prevention of pediatric HIV infection, which involves all efforts surrounding the elimination of HIV transmission during services; and access-to-care case and activities, conference support, sector pregnancy, labor, and/or breastfeeding management services. transformation and AIDS walks. 46 PHILANTHROPIC SUPPORT TO AADDRESS HIV/AIDS IN 2019 INTENDED USE 47
Focus on General TOP 5 SNAPSHOTS Operating Support In this section, FCAA offers quick lists of top funders for several of the strategies and populations of focus called out in this 1 Gilead Sciences, Inc. year’s report. For more information on the importance of some In 2018 we began tracking 1 Gilead Sciences, Inc. of these issues, please see page 12. 2 Elton John AIDS Foundation general operating funding 2 Bill & Melinda Gates Foundation — also referred to as core 3 Conrad N. Hilton Foundation support — as a separate 3 Elton John AIDS Foundation category, in order to isolate 4 Sentebale this type of funding from other 4 ViiV Healthcare administration-related grants 5 Ford Foundation that were not unrestricted. 5 Ford Foundation In 2019, general operating Bill & Melinda Gates Foundation funding totaled $43 million, a 1 13% ($6 million) decrease from 2 Gilead Sciences, Inc. 2018. This has long been a strategy that we have identified 3 Children’s Investment Fund Foundation as vital to an organization’s 2019 • Top 5 HIV-related Philanthropic M·A·C VIVA GLAM Fund ability to survive during 4 Funders of Capacity Building 2019 • Top 5 HIV-related challenging times. As we have Elton John AIDS Foundation and Leadership Development seen the impacts of COVID-19 5 Philanthropic Funders of Advocacy ravage community-based organizations, we continue to emphasize the critical need of general operating funding 1 Gilead Sciences, Inc. to keep the infrastructure that best serves the needs of the 2 Elton John AIDS Foundation community alive. • Top 5 HIV-related 2019 3 M·A·C VIVA GLAM Fund Gilead Sciences, Inc. Philanthropic Funders of PrEP 1 4 ViiV Healthcare 2 Elton John AIDS Foundation 5 Sidaction 3 ViiV Healthcare 4 AIDS United
5 The California Wellness Foundation
2019 • Top 5 HIV-related Philanthropic Funders of Key Populations
2019 • Top 5 HIV-related Philanthropic Funders of BIPOC Communities (U.S.) POPULATIONS OF FOCUS 50 PHILANTHROPIC SUPPORT TO ADDRESS HIV/AIDS IN 2019 POPULATIONS OF FOCUS 51
This year, the most significant change EDITOR’S NOTE: 2019 • Philanthropic Funding for HIV/AIDS: Populations of Focus17,18 (2019 disbursements) in this category was a 25% increase in For this year’s report, FCAA is general population funding to a new high changing the title of this section Age Health level of $300 million. from Target Populations to Populations of Focus. This n Youth (ages 15-24) $57,876,922 n People living with HIV (general) $183,192,074 category offers insight into Children (ages 0-14) $36,072,488 People who inject drugs $14,779,217 This was directly connected to the dramatic “who” was funded, meaning increase in funding for research — due to the who the grant was explicitly Older adults (over age 50 ) $5,972,524 People coinfected with HIV/hepatitis C $3,277,942 large Ragon Foundation gift — which most often designated to support or the benefits the general population. A closer look at communities that were broadly Gender Identity People with disabilities $1,902,189 funding for general populations revealed that over served by the recipient grantee- partner. By changing the name People coinfected with HIV/tuberculosis $694,098 three-quarters of it ($233 million) came in the form n Women and girls $75,545,328 of research-related grants that would impact a of this category, we hope to People coinfected with HIV/hepatitis B $11,965 general population, as in vaccine-related research. move away from language that Men and boys $22,955,177 Another 19% ($58 million) of the funding was for is metrics driven and to reframe general populations targeted by prevention grants, and prioritize the recipient Transgender people $20,871,994 Social and economic status often HIV testing services, PrEP education or communities as essential Economically disadvantaged/homeless $22,960,585 prevention awareness campaigns. The remaining partners in the philanthropic Ethnicity/race response to HIV and AIDS. 7% ($21 million) was advocacy-related funding for Rural populations $9,015,204 a general population, often large-scale advocacy The following table presents African Americans (U.S.) $26,507,833 initiatives or stigma-fighting campaigns. population of focus data Incarcerated/formerly incarcerated $8,813,403 grouped by category — based Latinx (U.S.) $18,627,623 on the report taxonomy — to Migrants/refugees $8,708,155 Indigenous people $1,606,896 better offer direct comparisons. Ethnic minority (outside U.S.) $888,486 Occupation The top five overall recipient populations are denoted by a Asian/Pacific Islander $253,750 n Healthcare workers $37,713,118 black square n Sexual Identity Sex workers $13,465,471 Community-based organizations and staff $11,433,201 General LGBTQ $26,658,638
Gay men/men who have sex with men $23,133,664 Uncategorized/Additional
n General population $299,849,580 Family Relationship (including research for a general population)
Pregnant women/mothers and babies $12,312,552 Not specified $9,169,617
Families $11,583,731 Other* $9,073,646
Orphans and vulnerable children $5,939,730 Key affected populations not broken down $8,054,438
Grandmothers and other caregivers $4,997,526 No target population $64,800
*The “Other“ category includes funding that did not fall under the predetermined categories, such as survivors of violence, faith communities, serodiscordant couples, truck drivers and more. 52 PHILANTHROPIC SUPPORT TO ADDRESS HIV/AIDS IN 2019 POPULATIONS OF FOCUS 53
FOCUS ON BIPOC COMMUNITIES FOCUS ON KEY POPULATIONS Funding that focused specifically on Black, Indigenous $30M FCAA often highlights funding for key populations to $30.5M and people of color (BIPOC) communities in the emphasize the disproportionate impact that HIV/AIDS $29M United States totaled just over $30 million in 2019; has on these communities, as well as the limited amount this was a 6% increase from 2018 — the first year of funding reaching them. According to a recent report that FCAA analyzed support for these communities $20M The term key populations from Aidsfonds, key populations and their partners collectively. This accounted for just 14% of total HIV- throughout this report account for the majority of new HIV infections worldwide related philanthropy in the U.S. in 2019. refers to the following yet receive only 2% of available global resources in LMIC.19 population groups: gay Now, the systemic and structural issues that put these The total general operating support that reached men/men who have sex communities at risk for HIV are further magnified by the BIPOC communities was $4.8 million, which was $10M with men, people who COVID-19 pandemic. only 16% of total BIPOC funding in 2019. Capacity inject drugs, transgender building and leadership development funding for these people, sex workers, Overall, philanthropic funding for key communities totaled almost $13 million in 2019, or general LGBTQ, and key 41% of BIPOC funding, tracking significantly higher affected populations not populations was almost $107 million than the percentage for all populations in the U.S., 2018 funding 2019 funding broken down. Grants to key in 2019, marking a 12% ($14 million) which was only 11%. populations are those that were coded as directly or decrease from 2018. broadly benefitting these population groups. This total marks only about one third of the funding that For the purposes of this report, BIPOC reached general populations in the same year. Almost every includes the following U.S. populations: population tracked within the key populations category African American, Latinx, Asian/Pacific experienced substantial declines in funding in 2019, Islander and Indigenous populations. including people who inject drugs (-31%), gay men/men Recommended who have sex with men (-20%), transgender people (-4%) Resources and sex workers (-11%). Only the general lesbian, gay, bisexual, transgender and queer/questioning (LGBTQ) Learn more about foundation population saw a slight increase (6%) from 2018 to 2019. giving for key populations from the following stakeholders:
Funders for LGBTQ Issues EDITOR’S NOTE: lgbtfunders.org EDITOR’S NOTE: Global Philanthropy Project Due to the disproportionate impact of COVID-19 globalphilanthropyproject.org As noted on page 12, it is important to understand on BIPOC communities in the U.S., it is critical the pre-COVID-19 funding levels for these impacted Red Umbrella Fund to understand pre-COVID-19 funding levels. communities to understand how and if HIV-related redumbrellafund.org Additionally, intentionally strengthening philanthropy has responded to the dual crises of HIV the capacity, leadership and sustainability Harm Reduction International and COVID-19 in 2020 and beyond. The decreases — including through providing general hri.global/sustainable-financing highlighted earlier are even more concerning, given operating support — of BIPOC-led community that prior to the onset of COVID-19, UNAIDS already organizations has been identified as a key need estimated a roughly 80% shortfall in available resources for philanthropic leadership. for HIV programming for key populations in LMIC.19 APPENDICES & ENDNOTES 56 PHILANTHROPIC SUPPORT TO ADDRESS HIV/AIDS IN 2019 APPENDICES & ENDNOTES 57
2019 Number Rank Funder Location Disbursements ($) of Grants
Appendix 1: List of All 20 Sentebale U.K. 4,052,362 5
FXB International — 21 Switzerland 3,409,182 42 Philanthropic Funders of Association François-Xavier Bagnoud HIV/AIDS in 2019 22 American Jewish World Service U.S. 2,709,687 121 23 AbbVie Foundation and AbbVie U.S. 2,585,000 30
24 Comic Relief U.K. 2,393,097 24 2019 Number Rank Funder Location Disbursements ($) of Grants 25 Egmont Trust U.K. 2,116,426 54
1 Bill & Melinda Gates Foundation U.S. 224,278,377 237 26 Levi Strauss Foundation U.S. 1,935,000 20
2 Gilead Sciences, Inc. U.S. 167,278,791 987 27 Keep A Child Alive U.S. 1,920,787 9
3 Phillip T. & Susan M. Ragon Foundation U.S. 100,000,000 n/a 28 United Way of Middle Tennessee, Inc. U.S. 1,871,629 3
4 ViiV Healthcare U.S., U.K. 44,018,775 760 29 H. van Ameringen Foundation U.S. 1,792,000 24
5 Elton John AIDS Foundation U.S., U.K. 25,262,215 116 30 Firelight Foundation U.S. 1,578,170 59
6 M·A·C VIVA GLAM Fund U.S., U.K., Canada 13,519,785 293 31 The California Wellness Foundation U.S. 1,557,000 4
7 Conrad N. Hilton Foundation U.S. 11,200,000 24 32 The Elizabeth Taylor AIDS Foundation U.S. 1,467,000 49
8 Broadway Cares/Equity Fights AIDS U.S. 10,014,301 526 33 Tides Foundation U.S. 1,390,000 23
9 Children’s Investment Fund Foundation U.K. 9,558,729 13 34 King Baudouin Foundation Belgium 1,250,153 15
10 MSD U.S. 7,792,047 92 (known as Merck & Co., Inc in the U.S. & Canada) 35 Charlize Theron Africa Outreach Project U.S. 1,226,000 13
11 amfAR, The Foundation for AIDS Research U.S. 7,715,770 80 36 James B. Pendleton Charitable Trust U.S. 1,200,000 5
12 Sidaction France 7,454,977 366 37 EIT Services India Private Limited India 1,040,968 2
13 Ford Foundation U.S. 7,234,090 16 38 Red Umbrella Fund Netherlands 1,005,493 30
14 Aidsfonds Netherlands 6,879,214 85 39 Groundswell Fund U.S. 992,350 21
15 Open Society Foundations* U.S. 6,565,844 n/a 40 Alphawood Foundation U.S. 980,000 11
16 AIDS United U.S. 5,974,061 217 41 VriendenLoterij (Dutch Friends Lottery) Netherlands 960,593 1
17 Nationale Postcode Loterij Netherlands 5,780,080 3 (Dutch National Postcode Lottery) 42 One to One Children’s Fund U.K. 904,063 2
18 Wellcome Trust U.K. 5,625,422 38 43 National Lottery Community Fund U.K. 862,303 16
19 Stephen Lewis Foundation Canada 4,870,017 238 44 Doris Duke Charitable Foundation U.S. 862,089 7 58 PHILANTHROPIC SUPPORT TO ADDRESS HIV/AIDS IN 2019 APPENDICES & ENDNOTES 59
2019 Number 2019 Number Rank Funder Location Disbursements ($) of Grants Rank Funder Location Disbursements ($) of Grants
45 WeSeeHope U.K. 814,546 27 70 Sigrid Rausing Trust U.K. 263,051 2
46 Verein AIDS Life Austria 802,526 7 71 Canadian Foundation for AIDS Research (CANFAR) Canada 251,703 5
47 Fondation de France France 754,398 47 72 Black Tie Dinner U.S. 248,887 5
48 Comer Family Foundation U.S. 743,651 71 73 Jindal Power Limited India 229,892 1
49 Washington AIDS Partnership U.S. 736,300 23 74 New York Women’s Foundation U.S. 215,000 4
50 Health Foundation of Greater Indianapolis U.S. 661,946 38 75 Nina Mason Pulliam Charitable Trust U.S. 215,000 1
51 Design Industries Foundation Fighting AIDS (DIFFA) U.S. 614,548 33 76 Silicon Valley Community Foundation U.S. 211,647 21
52 GlaxoSmithKline U.K. 587,539 55 77 William and Flora Hewlett Foundation U.S. 195,000 1
53 Cone Health Foundation U.S. 580,696 6 78 Community Foundation for Southern Arizona U.S. 191,507 10
54 Global Fund for Women U.S. 555,333 28 79 Barry & Martin’s Trust U.K. 189,575 18
55 Third Wave Fund U.S. 534,000 29 80 King Baudouin Foundation United States U.S. 184,716 3
56 Wells Fargo Foundation U.S. 526,800 21 81 Omomuki Foundation U.S. 183,037 12
57 Robert Wood Johnson Foundation U.S. 525,000 2 82 UHAI EASHRI Kenya 175,706 17
58 The New York Community Trust U.S. 500,000 26 83 Northwest Area Foundation U.S. 175,000 1
59 South Africa Development Fund U.S. 485,600 5 84 Weingart Foundation U.S. 175,000 2
60 Oak Foundation Switzerland 463,371 7 85 Astraea Lesbian Foundation for Justice U.S. 165,440 32
61 Mama Cash Netherlands 447,956 10 86 District of Columbia Bar Foundation U.S. 155,000 1
62 AIDS Funding Collaborative U.S. 441,397 15 87 Pride Foundation U.S. 152,563 19
63 David and Lucile Packard Foundation U.S. 400,000 1 88 United Way of Southeastern Connecticut U.S. 152,388 2
64 AIDS Foundation Chicago U.S. 355,618 23 89 Signet Chemical Corporation Private Limited India 146,117 1
65 Wellspring Philanthropic Fund, Inc. U.S. 350,000 2 90 United Way of Greater Milwaukee & Waukesha County U.S. 144,000 2
66 SRHR Africa Trust South Africa 346,748 24 91 Healthcare Foundation of New Jersey U.S. 131,111 3
67 Morris and Gwendolyn Cafritz Foundation U.S. 327,000 4 92 Robin Hood Foundation U.S. 125,000 1
68 Century Plyboards (India) Ltd. India 292,205 1 93 African Women’s Development Fund Ghana 121,000 13
69 J.B. & M.K. Pritzker Family Foundation U.S. 265,069 2 94 San Francisco AIDS Foundation U.S. 110,000 2 60 PHILANTHROPIC SUPPORT TO ADDRESS HIV/AIDS IN 2019 APPENDICES & ENDNOTES 61
2019 Number 2019 Number Rank Funder Location Disbursements ($) of Grants Rank Funder Location Disbursements ($) of Grants
95 Iqraa Trust South Africa 106,238 13 120 New Hampshire Charitable Foundation U.S. 52,000 3
96 AIDSNET U.S. 105,711 1 121 Kirloskar Pneumatic Company Limited India 51,404 1
97 Seattle Foundation U.S. 102,750 12 122 The Brown Foundation, Inc. U.S. 50,000 1
98 De Miranda Foundation, Inc. U.S. 98,400 1 123 Community Foundation for Monterey County U.S. 50,000 1
99 United Way of Central New York U.S. 97,850 1 124 The Fund for New Jersey U.S. 50,000 1
100 Cleveland Foundation U.S. 94,000 13 125 Hartford Foundation for Public Giving U.S. 50,000 1
101 United Way of Central Indiana, Inc. U.S. 89,478 2 126 Medica Foundation U.S. 50,000 1
102 Deutsche Equities India Private Limited India 84,246 1 127 Jack Brockhoff Foundation Australia 48,817 1
103 World Bank Community Connections Fund U.S. 84,026 3 128 Walter & Elise Haas Fund U.S. 46,000 2
104 Henri and Flore Lesieur Foundation U.S. 83,485 1 129 The Collins Foundation U.S. 45,000 1
105 Annenberg Foundation U.S. 80,000 3 130 United Way of the Valley & Greater Utica Area, Inc. U.S. 43,440 1
106 MTV Staying Alive Foundation U.S., U.K. 78,000 7 131 Stonewall Community Foundation U.S. 42,900 19
107 Avert U.K. 76,011 3 132 Metro United Way U.S. 41,714 1
108 Power Grid Corporation of India Limited India 75,636 1 133 Edna Wardlaw Charitable Trust U.S. 40,000 2
109 Michael Reese Health Trust U.S. 75,000 1 134 South Florida Behavioral Health Network U.S. 37,649 1
110 United States Fund for UNICEF U.S. 75,000 1 135 Jack and Dorothy Byrne Foundation U.S. 37,000 3
111 Indiana Recovery Alliance U.S. 70,510 1 136 Carsten E. Jantzen Charitable Trust U.S. 36,000 1
112 GKN Sinter Metals Private Limited India 66,397 1 137 SWELECT Energy Systems Limited India 35,698 1
113 EMpower — Emerging Markets Foundation U.S. 66,000 1 138 Homeless Assistance Fund, Inc. U.S. 35,000 1
114 The Healing Trust U.S. 63,000 1 139 Gamma Mu Foundation U.S. 34,900 4
115 Bharat Petroleum Corporation Limited India 59,972 2 140 Deloitte Support Services India Private Limited India 34,269 2
116 JK Tyre & Industries Ltd. India 58,544 1 141 Kent Richard Hofmann Foundation U.S. 32,474 11
117 Trans Justice Funding Project U.S. 55,000 8 142 Richard M. Schulze Family Foundation U.S. 30,000 2
118 Deloitte Consulting India Private Limited India 54,260 3 143 Marin Community Foundation U.S. 28,550 12
119 Mahindra Vehicle Manufacturers Limited India 52,832 1 144 Herman Goldman Foundation U.S. 28,000 1 62 PHILANTHROPIC SUPPORT TO ADDRESS HIV/AIDS IN 2019 APPENDICES & ENDNOTES 63
2019 Number 2019 Number Rank Funder Location Disbursements ($) of Grants Rank Funder Location Disbursements ($) of Grants
145 Presbyterian World Service & Development Canada 27,530 2 170 Community Foundation of Greater Birmingham U.S. 15,000 1
146 Lillian Fields/Evelyn Caplan Charitable Trust U.S. 26,000 1 171 Isora Wells Foundation U.S. 15,000 1
147 Flextronics Technologies (India) Private Limited India 25,702 1 172 Ittleson Foundation U.S. 15,000 1
Community Foundation of 148 U.S. 25,250 2 173 Robert E. Fraser Foundation U.S. 15,000 1 Western North Carolina, Inc.
149 Campbell Foundation U.S. 25,000 11 174 Women’s Foundation of California U.S. 15,000 1
150 Connecticut Health Foundation, Inc. U.S. 25,000 1 175 Mazagon Dock Shipbuilders Limited India 14,807 1
151 Hillcrest Foundation U.S. 25,000 1 176 United Way of Asheville and Buncombe County U.S. 14,657 1
Visiting Nurse Association of 152 U.S. 25,000 1 177 Piramal Enterprises Limited India 14,279 1 Chicago (AKA) VNA Foundation
153 Western Health Advantage U.S. 25,000 1 178 Eugene & Marilyn Glick Foundation Corporation U.S. 13,700 1
154 FRIDA | The Young Feminist Fund Panama 24,000 3 179 Joseph H. Wender Foundation U.S. 12,000 1
155 LIC Housing Finance Ltd India 22,846 1 180 Amon G. Carter Star-Telegram Employees Fund U.S. 10,000 1
156 Odisha Power Generation Corporation Limited India 22,048 1 181 Community Foundation of the Napa Valley U.S. 10,000 1
157 Greater Washington Community Foundation U.S. 22,000 4 182 Esmond Harmsworth 1997 Charitable Foundation U.S. 10,000 1
158 Primate’s World Relief and Development Fund Canada 20,103 3 183 Fund for Southern Communities, Inc. U.S. 10,000 1
159 Human Rights Campaign Foundation U.S. 20,000 2 184 Helen V. Brach Foundation U.S. 10,000 1
160 Parker Foundation U.S. 20,000 1 185 Lostritto Family Foundation U.S. 10,000 1
161 Rochester Area Community Foundation U.S. 20,000 1 186 North Star Fund U.S. 10,000 1
162 Unitarian Universalist Service Committee, Inc. U.S. 20,000 1 187 Oregon Community Foundation U.S. 10,000 1
163 Kirloskar Oil Engines Limited India 19,991 1 188 The Staten Island Foundation U.S. 10,000 1
164 David Bohnett Foundation U.S. 19,572 8 189 Wild Geese Foundation, Inc. U.S. 10,000 1
165 Academy of Friends U.S. 19,534 2 190 TrustAfrica Senegal 9,632 1
166 Junior League of Houston, Inc. U.S. 18,595 1 191 Danford Foundation U.S. 9,500 2
167 Minneapolis Foundation U.S. 18,233 13 192 Walmart Foundation U.S. 9,000 1
168 Temple Hoyne Buell Foundation U.S. 16,000 1 193 Community Foundation of Sarasota County, Inc. U.S. 8,850 1
169 United Way of Anchorage U.S. 15,218 1 194 Jennifer Friedman Hillis Family Foundation, Inc. U.S. 8,306 1 64 PHILANTHROPIC SUPPORT TO ADDRESS HIV/AIDS IN 2019 APPENDICES & ENDNOTES 65
2019 Number 2019 Number Rank Funder Location Disbursements ($) of Grants Rank Funder Location Disbursements ($) of Grants
195 Infinera India Private Limited India 8,024 1 220 William J. Brace Charitable Trust U.S. 5,000 1
196 Abe & Irene Levine Trust U.S. 8,000 1 221 VULKAN Technologies Pvt. Ltd. India 4,998 1
197 The Chicago Community Trust U.S. 8,000 1 222 Ian Potter Foundation Australia 4,184 1
198 Equality Fund Canada 7,600 1 223 Catholic Community Foundation of Minnesota U.S. 4,000 1
199 Community Food Bank Inc. U.S. 7,500 1 224 Community Foundation of Western Massachusetts U.S. 4,000 2
200 La Crosse Community Foundation U.S. 7,500 1 225 Ventura ( India ) Private Limited India 3,598 1
201 United Way of Champaign County U.S. 7,357 1 226 Herbert I. and Elsa B. Michael Foundation U.S. 3,500 1
202 Macleods Pharmaceuticals Ltd. India 7,140 1 227 Fred B. Sieber Foundation U.S. 3,250 1
203 SJS Enterprises Private Limited India 7,140 1 228 Boston Foundation, Inc. U.S. 3,070 3
204 North Carolina Community Foundation U.S. 6,700 1 229 Henry W. & Leslie M. Eskuche Foundation U.S. 3,000 1
205 United Way of the National Capital Area U.S. 6,391 1 230 Warren Foundation U.S. 3,000 1
206 Rane (Madras) Limited India 5,712 1 231 Clark R. Green Charitable Foundation U.S. 2,500 1
207 Paul G. Arpin Charitable Trust U.S. 5,450 1 232 John F. Long Foundation, Inc. U.S. 2,500 1
208 JSW Jaigarh Port Limited India 5,098 1 233 Rose E. Tucker Charitable Trust U.S. 2,500 1
209 C. Edward & Edith Strobel Trust U.S. 5,000 1 234 Virginia G. Piper Charitable Trust U.S. 2,500 1
210 Cooper-Siegel Family Foundation U.S. 5,000 1 235 Syngenta Services Private Limited India 2,299 1
211 Cu Provident Benevolent Foundation-Wach U.S. 5,000 1 236 Arthur S. Karp Family Foundation Inc. U.S. 2,000 1
212 Helios Foundation U.S. 5,000 1 237 Greenspan Foundation U.S. 2,000 1
213 Investors Foundation U.S. 5,000 1 238 RMSI Private Limited India 1,913 1
214 Jerome J. and Dorothy H. Holz Family Foundation U.S. 5,000 1 239 Chandukaka Saraf & Sons Pvt. Ltd India 1,799 2
215 John Ben Snow Foundation, Inc. U.S. 5,000 1 240 Northern Coalfields Limited India 1,771 1
Jonas Fields, Charles Hannagan and 216 U.S. 5,000 1 241 Charitable Foundation of the Burns Family, Inc. U.S. 1,500 1 David Walters Charitable Foundation
217 Missouri Foundation for Health U.S. 5,000 1 242 J M Smith Foundation U.S. 1,500 1
218 Nora Roberts Foundation U.S. 5,000 1 243 Pee Vee Textiles Limited India 1,428 1
219 Walter E. Lipe Trust U.S. 5,000 1 244 CarMax Foundation U.S. 1,000 1 66 PHILANTHROPIC SUPPORT TO ADDRESS HIV/AIDS IN 2019 APPENDICES & ENDNOTES 67
2019 Number NOTE ON MISSING DATA: Rank Funder Location Disbursements ($) of Grants The majority of private philanthropic funding for § Fundo Positivo (Brazil) 245 Henry G. and Dorothy M. Kleemeier Fund U.S. 1,000 1 HIV/AIDS in 2019 was captured in the available § Johnson & Johnson (U.S.) data. Funders Concerned About AIDS was § Kaiser Permanente (U.S.) 246 Joseph Henry Edmondson Foundation U.S. 1,000 1 unable to obtain data from some funders; their § Magic Johnson Foundation (U.S.) disbursements are therefore not included in 247 Loyola Foundation, Inc. U.S. 1,000 1 the report. Disbursements are not included for § National Lottery Distribution Trust Fund (South Africa) 248 Mary Jane Wahl Gearns Foundation U.S. 1,000 1 the following: § OraSure Technologies (U.S.) 249 Nabholz Charitable Foundation U.S. 1,000 1 § Aga Khan Foundation (Switzerland) § Rio Tinto (Australia) § Anglo American (U.K.) § RUSH Foundation (U.K.) 250 Nicholas J. Pisaris Foundation Inc. U.S. 1,000 1 § Chevron Corporation (U.S.) § San Diego Human Dignity Foundation (U.S.) 251 Robert M. and Joyce A. Johnson Foundation U.S. 1,000 1 § Community Foundation for § Segal Family Foundation (U.S.) Greater Atlanta (U.S.) 252 Thomas & Elizabeth Brodhead Foundation U.S. 1,000 1 § Solidarité Sida (France) § Deutsche AIDS-Stiftung (Germany) § Swedish Postcode Foundation (Sweden) 253 Berks County Community Foundation U.S. 950 1 § ELMA Philanthropies (U.S.) § Until There’s a Cure (U.S.) 254 Darla Dee Turlington Charitable Foundation U.S. 750 1 § Fondation Mérieux (France) § Walgreens (U.S.) § “la Caixa” Foundation (Spain) § Walmart Foundation (U.S.) 255 Darrell R. Windle Charitable U.S. 500 1
256 Evo and Ora Deconcini and Thu Family Foundation U.S. 500 1
257 Ira M. Resnick Foundation, Inc. U.S. 500 1 SEVERAL OTHER HIV/AIDS FUNDERS WERE NOT INCLUDED IN THIS REPORT FOR THE FOLLOWING REASONS: 258 Margules Foundation Inc. U.S. 500 1 § Deutsche Stiftung Weltbevolkerung’s (German § The Mennonite Central Committee has Foundation for World Development’s) moved away from their prior focus on HIV in 259 Price Chopper’s Golub Foundation U.S. 500 1 HIV/AIDS funding is integrated with broader health work and no longer has substantial 260 Pantano Family Foundation Inc. U.S. 350 1 sexual and reproductive health funding, and programming in the field of HIV. the HIV/AIDS part cannot be disaggregated. § Bristol Myers Squibb Foundation and Bristol 261 Wilde Charitable Foundation U.S. 300 1 § The Elizabeth Glaser Pediatric AIDS Myers Squibb Company ceased submitting Foundation increasingly has been funded by data for this report as HIV is no longer their 262 David Schwartz Foundation, Inc. U.S. 250 1 the U.S. government. focus. 263 Lake Charles American Press Foundation U.S. 250 1 § The Henry J. Kaiser Family Foundation is § The John D. and Catherine T. MacArthur an operating foundation that develops Foundation no longer does any grantmaking 264 Campbell Soup Foundation U.S. 26 1 and runs its own policy research and that addresses HIV/AIDS. communications programs, which are § HIV Young Leaders Fund is no difficult to value financially. longer operating. § International Treatment Preparedness Additionally, see the Methodology section Coalition (U.S.), run their own programs and for a discussion of contributions from other do not give grants to external grantees. sources of HIV/AIDS funding, such as operating *Please note that the 2019 disbursements for the Open Society Foundations only reflect grants that directly address HIV/AIDS and were § Monument Trust closed after its foundations, non-governmental organizations funded by the Open Society Foundations Network’s Public Health Program. These numbers do not include other HIV/AIDS funding from 2017 grantmaking. and individuals. national or regional foundations within the Open Society Foundations Network, though it is possible that those foundations may also have provided HIV/AIDS-related funding in 2019. 68 PHILANTHROPIC SUPPORT TO ADDRESS HIV/AIDS IN 2019 APPENDICES & ENDNOTES 69
was adjusted downward by $29,123,113 to which resulted in less accuracy than the new account for regranting. In the past, FCAA methodology of funders sharing full grants lists. Appendix 2: Methodology relied on funders to report regranted funds,
SOURCES OF HIV/AIDS and broad, in acknowledgment of the fact that Geographical Definitions GRANTMAKING DATA such efforts often overlap with many other For international- and regional-focused HIV/AIDS grantmaking, FCAA requested data about where This resource tracking report covers HIV/ issue areas of philanthropy. Therefore, for some the grantee was located and used the following regions, as defined by the Joint United Nations AIDS grant disbursements from all sectors respondents, we included or excluded grants Programme on HIV/AIDS (UNAIDS): of philanthropy, including private, family and and projects that were not wholly focused on community foundations; public charities; HIV/AIDS efforts. In some cases, we included Caribbean: Anguilla, Antigua Eastern Europe and North Africa and the Middle East: only a percentage of the total grant to account corporate grantmaking programs (corporate and Barbuda, Aruba, Bahamas, Central Asia: Armenia, Albania, Afghanistan, Algeria, Bahrain, for programs that had a partial impact on foundations and direct-giving programs); Barbados, Bermuda, British Virgin Azerbaijan, Belarus, Bosnia and Egypt, Iran, Iraq, Israel, Jordan, philanthropies supported by lotteries; and the HIV community. HIV/AIDS grants from Islands, Cayman Islands, Cuba, Herzegovina, Bulgaria, Croatia, Kuwait, Lebanon, Libya, Morocco, fundraising charities. Data is included for 264 foreign offices of foundations that operate Dominica, Dominican Republic, Cyprus, Czech Republic, Estonia, Oman, Palestinian Territories, grantmaking entities, which Funders Concerned internationally were counted as coming from Grenada, Guadeloupe, Guyana, Georgia, Hungary, Kazakhstan, Qatar, Saudi Arabia, Sudan, Syria, About AIDS (FCAA) gathered from a variety of the country where their main headquarters are Haiti, Jamaica, Martinique, Kosovo, Kyrgyzstan, Latvia, Tunisia, United Arab Emirates, sources: 1) grants lists sent from funders and located. Montserrat, Netherland Antilles, Lithuania, Macedonia, Malta, Yemen direct communications with funders; 2) funder St. Kitts and Nevis, St. Lucia, Moldova, Poland, Romania, websites, grants databases, annual reports and Private vs. Public Income St. Vincent and the Grenadines, Russian Federation, Serbia and South Asia and the Pacific: Internal Revenue Service Form 990 returns; 3) Some of the funders in this report receive Suriname, Trinidad and Tobago, Montenegro, Slovakia, Slovenia, Australia, Bangladesh, Bhutan, the grant database maintained by Candid; and income from various governments to support Turks and Caicos Islands Tajikistan, Turkey, Turkmenistan, Fiji, India, Maldives, Nepal, New 4) grants received by the Funders for LGBTQ HIV/AIDS projects and grants. While such Ukraine, Uzbekistan Zealand, Pakistan, Papua New Issues that were flagged as HIV/AIDS-related. partnerships and projects are extremely Latin America: Argentina, Belize, Guinea, Samoa, Sri Lanka, FCAA believes that this multifaceted approach valuable in allocating resources effectively, Bolivia, Brazil, Chile, Colombia, West and Central Africa: Timor-Leste arrives at a more comprehensive dataset of income received from governments has been Costa Rica, Ecuador, El Salvador, Benin, Burkina Faso, Burundi, HIV/AIDS funders than could be accomplished excluded from total funding amounts noted in French Guiana, Guatemala, Cameroon, Cape Verde, Central East Asia and Southeast Asia: using any single data source or any single this publication because this report attempts to Honduras, Mexico, Nicaragua, African Republic, Chad, Congo Brunei Darussalam, Cambodia, method of calculation. focus exclusively on private-sector philanthropy. Panama, Paraguay, Peru, Uruguay, (Brazzaville), Democratic Republic China, Indonesia, Japan, Laos, Venezuela of the Congo, Côte d’Ivoire, Democratic People’s Republic of ANALYSIS Currencies Equatorial Guinea, Gabon, Korea (North), Korea, Malaysia, FCAA asked for information about calendar The baseline currency for this report is the U.S. Western and Central Europe: Gambia, Ghana, Guinea-Bissau, Mongolia, Myanmar, Philippines, year disbursements related to HIV/AIDS in dollar. However, funders reported expenditures Austria, Belgium, Denmark, Guinea (Conakry), Liberia, Mali, Singapore, Taiwan, Thailand, 2019. Disbursements are the amount of funding in various currencies. This necessitated the use Finland, France, Germany, Mauritania, Niger, Nigeria, Sao Vietnam expended on grants/projects in a given year of exchange rates; the rates used consistently Greece, Iceland, Ireland, Italy, Tome, Senegal, Sierra Leone, Togo and may include funding from commitments throughout this report were from xe.com as of Liechtenstein, Luxembourg, made in prior years as well as in the current February 17, 2021. Netherlands, Norway, Portugal, East and Southern Africa: Angola, year. A grants list template was sent to funders Spain, Sweden, Switzerland, Botswana, Comoros, Djibouti, if the grants information was not publicly Calculations of Regranting United Kingdom, Vatican City Eritrea, Ethiopia, Kenya, Lesotho, accessible. The template asked for the grantee, To avoid counting the same funds twice, the Madagascar, Malawi, Mauritius, amount of their grant in 2019, geographical FCAA data is adjusted to account for regranting. Mozambique, Namibia, Reunion, area of benefit and a grant description. FCAA Regranting refers to funds given by one FCAA- Rwanda, Seychelles, Somalia, staff determined the intended use and target tracked grantmaker to another for the purposes South Africa, South Sudan, populations of each grant from the grant of making HIV/AIDS-related grants. The 2019 Swaziland, Uganda, Tanzania, description. FCAA was intentionally inclusive aggregate total grantmaking for all funders Zambia, Zimbabwe 70 PHILANTHROPIC SUPPORT TO ADDRESS HIV/AIDS IN 2019 APPENDICES & ENDNOTES 71
For domestic U.S. grantmaking, FCAA requested regional data based on five U.S. subregions, as defined by funding, because its HIV-related activities the U.S. Census Bureau and used by the U.S. Centers for Disease Control and Prevention and other federal are increasingly integrated throughout its agencies. These subregions were as follows: foundation-wide programs.
Northeast: Connecticut, North Carolina, Oklahoma, West: Alaska, Arizona, California, Corporate Programs Massachusetts, Maine, New South Carolina, Tennessee, Texas, Colorado, Hawaii, Idaho, Montana, Several corporations that operate HIV/AIDS Hampshire, New Jersey, New Virginia, West Virginia Nevada, New Mexico, Oregon, programs are not willing or able to report York, Pennsylvania, Rhode Island, Utah, Washington, Wyoming on the financial aspects those programs. In Vermont Midwest: Iowa, Illinois, Indiana, some cases, corporations do not centrally Kansas, Michigan, Minnesota, U.S. Territories: Puerto Rico, U.S. or specifically track HIV/AIDS expenditures; South: Alabama, Arkansas, Missouri, Nebraska, North Dakota, Virgin Islands therefore, reporting is not feasible. Also, many District of Columbia, Delaware, Ohio, South Dakota, Wisconsin corporations with branch facilities in areas Florida, Georgia, Kentucky, U.S. National: Not to a specific highly affected by HIV (such as sub-Saharan Louisiana, Maryland, Mississippi, state or region Africa) support workplace programs that provide HIV/AIDS services to employees, sometimes extending those services to employees’ families or all community members. Intended Use and Target Populations the Global Fund from total disbursements Those HIV/AIDS-specific services are usually FCAA has changed the way that we track both in the report for this year and previous years offered with other health services at a corporate target populations and intended use. In the past, because it was difficult for funders to accurately facility’s on-site clinic. As such, quantifying the we attributed grants to only one population and determine actual disbursements to the Global monetary value of specific HIV/AIDS services intended use category. However, with our new Fund each year. Funders tracked in this report, for a corporation with facilities in several capacity to code grants directly, we are able to including The Bill & Melinda Gates Foundation, countries is very difficult and is usually not identify every population or strategy included the Children’s Investment Fund Foundation, and possible. In addition, it is not always possible to within a grant focus. In those incidences, we Comic Relief are some foundations that made value monetarily or track as such other forms of counted the total amount of the grant in each contributions to The Global Fund in 2019. The support, such as volunteer efforts by corporate intended use category. For example, the whole Global Fund accepts donations as cash and employees, matching donations programs, amount of a grant for retention in care would promissory notes. In the case of the promissory in-kind donations, cause-related marketing be counted toward both treatment (medical notes, the funding is not necessarily withdrawn and donations of technical assistance. They care) and social services (nonmedical case for use by the Global Fund the year the grant is are nonetheless valuable resources offered by management). disbursed by a funder; instead, it is subject to corporations, especially those that can leverage the Global Fund’s decision-making on timing of other investments or strengthen the capacity of Funding to the Global Fund to Fight AIDS, usage. communities to operate their own programs Tuberculosis and Malaria and services. Private philanthropic funders have long played Private Operating Foundations an important role for the Global Fund to Fight Private operating foundations are those that Other Sources of Support In-kind donations, technical assistance, private AIDS, Tuberculosis and Malaria, not only in use the bulk of their resources to run their individual donations and direct services financial contributions but also in governance, own charitable programs and make few, if any, provided by hospitals, clinics, churches and support for advocacy and pro bono services grants to outside organizations. In some cases, community health programs all represent and partnerships. The Global Fund reported the HIV/AIDS philanthropy reported to FCAA other sources of HIV/AIDS funding, goods contributions of approximately $243 million includes the value of programmatic efforts and and services that are difficult to identify from philanthropic and corporate funders, as operational grantmaking, but not operational and/or quantify. Even so, their contributions well as Product (RED) and International not-for- (internal) staff or other costs. The Henry J. are highly valuable. profit organizations in 2019.20 Kaiser Family Foundation is one example of a U.S.-based private operating foundation that is We removed funding for HIV/AIDS through not able to identify and report HIV/AIDS-specific 72 PHILANTHROPIC SUPPORT TO ADDRESS HIV/AIDS IN 2019
Endnotes
1 The chart shows aggregate funding disbursements per year for all 12 For more information on the Ending the HIV Epidemic initiative, see: funders. Data for funders based outside of the United States and https://www.hiv.gov/federal-response/ending-the-hiv-epidemic/ European Union is not available for 2007-2011, as FCAA only began overview tracking them as of 2013 with data from 2012. Additionally, totals for 2007-2017 were recalculated using the same exchange rates that were 13 Joint United Nations Programme on HIV/AIDS (UNAIDS). UNAIDS Data used throughout this report. 2020. Geneva: UNAIDS, 2020. https://www.unaids.org/sites/default/ files/media_asset/2020_aids-data-book_en.pdf 2 Center for Disaster Philanthropy, Candid. Philanthropy and COVID-19: Measuring one year of giving. 2021. https://www.issuelab.org/ 14 Only country-level data is included in this chart. Some regional funding resources/38039/38039.pdf could not be disaggregated by country, as many regions are a mix of low-, middle- and high-income countries. Country income classification 3 Funders Concerned About AIDS and the Elton John AIDS Foundation. as per World Bank, accessed January 2020, available at: https:// Converging Epidemics: COVID-19, HIV and Inequality - Community-led datahelpdesk.worldbank.org/knowledgebase/articles/906519. Lessons for Funders. April 2021. https://www.fcaaids.org/converging- epidemics-covid-19-hiv-inequality-2/ 15 Funding for most research is designated for a global audience and thus is not included in this chart. 4 Regranting between funders tracked by FCAA was not removed for this table. 16 The overall amounts here add up to more than the $706 million that funders reported giving for HIV/AIDS work in 2019, because many 5 The Henry J. Kaiser Family Foundation (KFF), Joint United Nations individual grants target multiple categories. In that case, the total Programme on HIV/AIDS (UNAIDS). Donor Government Funding for amount of the grant was counted in each intended use category. For HIV in Low- and Middle-Income Countries in 2019. San Francisco: example, the ’whole amount of a grant for retention in care would be KFF, July 2019. https://www.kff.org/global-health-policy/report/ counted toward both treatment (medical care) and social services donorgovernment- funding-for-hiv-in-low-and-middle-income- (nonmedical case management). countriesin-2019/. 17 The population category “general population” was used for grants 6 Funding directed toward a global audience is also included in FCAA’s such as research and prevention/awareness grants that target all private philanthropy total for LMIC, as much of that funding includes populations. The population category “people living with HIV/AIDS” international campaigns that focus heavily on the Global South was used for grants targeted toward people living with HIV/AIDS and global key population networks that do advocacy work with where a specific subpopulation was not applicable. The population populations around the world, especially in LMIC. FCAA’s private “LGBTQ (general)” was used for grants where only a general LGBTQ philanthropy total for LMIC also includes HIV vaccine/cure/prevention population was targeted. For grants that targeted specific groups research, which will ultimately impact LMIC. within this category (gay men, transgender people), please see those specific categories. “Orphans & vulnerable children” are included as 7 The World Bank country-level classifications were referenced from the a population group separately from “children (ages 0-14)” as certain World Bank Country and Lending Groups webpage as of June 2019: grants target orphans and vulnerable children specifically, while others https://datahelpdesk.worldbank.org/knowledgebase/articles/906519. target children in general. The category of “key populations not broken down” refers to those most likely to be exposed to HIV or transmit it 8 UNAIDS’ estimate of $19.8 billion is presented in 2019 U.S. dollars — with their engagement being critical to a successful HIV response. and includes funding provided by donor governments as well as other In all countries, key populations include people living with HIV. In most multilateral institutions, United Nations agencies and foundations. settings, men who have sex with men, transgender people, people who FCAA has presented our total for 2019 philanthropic funding for HIV/ inject drugs, sex workers and their clients, and people in prisons are at AIDS in LMIC as a subset of UNAIDS total estimate in order to calculate higher risk of HIV exposure than other people. these percentages. Source: The Henry J. Kaiser Family Foundation (KFF), Joint United Nations Programme on HIV/AIDS (UNAIDS). Donor 18 The overall amounts presented here add up to more than the $706 Government Funding for HIV in Low- and Middle-Income Countries in million that funders reported giving for HIV/AIDS work in 2019. This is 2019. San Francisco: KFF, July 2019. https://www.kff.org/global-health- because many individual grants target multiple populations, and such policy/report/donor-government-funding-for-hiv-in-low-and-middle- funding could not be disaggregated to the different populations. In that income-countries-in-2019/. case, the total amount of the grant was counted in each population.
9 For a list of countries included in each region category, please see the 19 Aidsfonds, Bridging the Gaps, Partnership to Inspire, Transform and methodology in Appendix 2. Connect the HIV response (PITCH). Fast Track or Off Track: How Insufficient Funding for Key Populations Jeopardizes Ending AIDS by 10 Some intended use and target population amounts add up to more 2030. Amsterdam: Aidsfonds, 2020. https://aidsfonds.org/assets/ than the regional total because one grant may target several categories resource/file/Fast-Track%20or%20Off%20Track%20report-final.pdf and populations. In that case, the whole amount of the grant is applied to each. 20 The Global Fund: 2019 Annual Financial Report. Geneva: The Global Fund to Fight AIDS, Tuberculosis and Malaria, 2020. https://www. 11 AIDSVu.org. https://map.aidsvu.org/map theglobalfund.org/media/9603/corporate_2019annualfinancial_report_ en.pdf?u=637239176250000000 Supporting HIV-Informed Grantmaking for Health, Rights, and Justice for All
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