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Polio Oz News Volume 4, Issue 2 Polio Oz News J u n e 2014— Winter Edition Always something new to learn by Nola Buck Sixty people, the majority of poured from him in his whom had contracted polio, writing but he felt strangely were gathered to hear many exposed in revealing so much speakers and engage in of the family’s (and his) various activities. Some were experiences. Following Paul’s ‘Retreat Junkies’, a title they talk, each attendee have given themselves as introduced her/him self and they have attended several spoke about what she/he Retreats, others were at their expected from the Retreat. second retreat and others their first. Each person At the Retreat were John and absorbed the Retreat in a Faye Powell. Faye had written different way, and this article a book, “Matthew Pearce and will describe how I absorbed The Howlong Connection”. the Retreat with information John is a descendant of gleaned from others during Matthew Pearce, a pioneer of the final session. The Hills district and who once owned the land on On Thursday afternoon, after which St Joseph’s had been th getting our bearings (the built. Matthew built Bella On Thursday, 8 May, I set building has many floors, Vista, a beautiful home out for the St Joseph’s passages, small rooms and maintained by Baulkham Hills Centre for Reflective Living. comfortable bedrooms), we Shire Council and also an This Centre is not far from gathered for a meal. Later in oasis in a mixed residential where I live and each time I the evening we were and industrial area. visit it, I think of it as an welcomed by Dr John oasis in the middle of Tierney, President of Polio On Friday the hard work suburbia. Its smooth Australia, Gillian Thomas, began, learning about the expansive lawns, Vice President of Polio Healthy Body. As in each interspersed with trees, its Australia and President of section of the Retreat, there beautiful gardens brightened Polio NSW, and Mary-ann was one Plenary session at by roses and tubs of Spanish Liethof, National Program Jasmine, could not help but Manager, Polio Australia. We lift the spirit, sharpen the then heard from Paul Galy, mind and focus the body whom many of you may away from its deficiencies. It “On Friday the know as the maker of your is an ideal venue for a shoes. Paul spoke about his hard work Retreat concentrating on the book “The 4th of May”. This Body, Mind and Spirit, book was reviewed in began, learning especially the Spirit, as it is a Network News Issue 83, and former Convent of the Sisters about the it is a story of a family’s of St Joseph and reminders survival during a dark age of of their founder, St Mary of Healthy Body.” our history. Paul stated he the Cross MacKillop, felt so relieved after the (Australia’s first saint) are events in his family’s life had everywhere. cont’d p4 National Patron: Dr John Tierney, PhD, OAM Page 2 Polio Oz News Polio Australia Inc From the Editor Representing polio survivors throughout It’s a very attending the Retreats were A u s t r a l i a exciting time to compiled from survey results be me! I’ve just received back from a Suite 119C, 89 High Street completed questionnaire sent to all Kew Victoria 3101 running Polio participants who had attended PO Box 500 Australia’s 5th the previous 4 Retreats. Kew East Victoria 3102 Health and Phone: +61 3 9016 7678 Wellness I will actually be one of several E-mail: [email protected] Retreat which, Australians attending this Website: www.polioaustralia.org.au by all accounts, particular conference, and I am was another looking forward to both Contacts Mary-ann Liethof successful representing Australia’s polio Editor event. More on survivors and to learning about President - John Tierney that throughout this edition, the latest on post-polio [email protected] courtesy of some of the lovely management techniques and people who attended. research. Polio Australia’s Vice President - Gillian Thomas President, John Tierney, will [email protected] And the countdown is on for my also be there (see p3), and trip to St Louis and Amsterdam other Aussies making the Secretary - Jenny Jones for the two post-polio journey to Amsterdam include [email protected] conferences being held in June Robyn and Hans Aulmann 2014. (Victoria), Sue and Graeme Treasurer - Brett Howard Mackenzie (Queensland), Jill First up is Post-Polio Health Pickering (Victoria), and Merle [email protected] International’s 11th Thompson (New South Wales). International Conference: National Program Manager Promoting Healthy Ideas, from I even get to have a couple of Mary-ann Liethof the 31st of May to the 3rd of weeks off in between the 2 [email protected] June. I will be sitting on a panel conferences to visit family in discussing ‘Support Groups: Montreal! What Works’. As the national Inside this issue: peak body representing However, as I never travel too Australia’s polio survivors, Polio far without my computer, I will Always something to learn 1 Australia is not a ‘support be doing my best to keep up group’, nor does it have ‘support with what’s going on back Vale Neil on Schill 3 home . groups’. However, as my topic Polio Retreat highlights 4 focusses on our Health and Why not join me on my USA Polio Retreat feedback 6 Wellness Retreats and how they and European sojourn by have improved the health checking out my daily blogs. Supporting Polio Australia 8 literacy of the participants, I can Click here for St Louis, and here Metro Traveller 9 definitely demonstrate that they for Amsterdam. ‘work’ and ‘support’ those who Travels with a ‘wheelie’ 10 have attended! Enjoy! Relief for ‘spider legs’ 11 Man with probable polio 12 The European Post-Polio Conference: A Condition without Primary health care 13 Boundaries, takes place from the 25th to the 27th of June. Drugs and falls risk 14 Once again, I will be sharing the ABS on disability 15 concept of our Polio Health and “In winter, Cutting stroke risk 16 Wellness Retreats improving the I plot and plan. Cancer and the polio virus 17 health literacy and health outcomes for participants. This In spring, Green tea research 18 will take the form of a ‘poster’ I move.” Tribute to Dorothea Lange 18 which will be on display ~ Henry Rollins Normal Heart movie 19 throughout the conference. Graphs clearly demonstrating Polio vaccine discovered 21 the improvement in health Polio Around the World 22 literacy before and after Polio This Week 25 Unless otherwise stated, the articles in Polio Oz News may be reprinted provided that they are reproduced in full (including any references) and the author, the source and Polio Australia Inc are acknowledged in full. Articles may not be edited or summarised without the prior written approval of Polio Australia. The views expressed in this publication are not necessarily those of Polio Australia, and any products, services or treatments described are not necessarily endorsed or recommended by Polio Australia. Page 3 Polio Oz News From the President The Health and Wellness and self-management services to a much Retreat that we just held in wider range of polio survivors we need to Sydney was of great diversify and intensify our fund raising efforts. benefit to all the polio survivors and their carers Another funding cornerstone is our developing who we're present. Our relationship with Rotary. I would like to thank special thanks to Mary-ann our speakers’ panel and especially Sue who as always did an Mackenzie from Queensland who usually walks outstanding job. If you away with a $1000 dollar cheque from each haven't attended one of Rotary talk. I recently applied Sue's formula these life changing and also received a cheque for $1000 dollars from Singleton Rotary in NSW. experiences, next year’s Dr John Tierney retreat will be in Torquay, In June, a number of people from our post- President Victoria from 30 April to 3 polio community will be at international polio May 2015. conferences in either the USA or Holland. Mary Another Federal Budget has come and gone -ann and I will be presenting in St Louis and without any sign of government funding for Amsterdam respectively. I’m sure it will be an our vital LEoP program's. The closest that we interesting experience for all concerned. came this round was an indication from Health Minister Dutton that we were on his wish list, just before the 2013 election. Unfortunately John this didn't make it through the toughest Dr John Tierney OAM Budget in 20 years. President and National Patron This underscores the point that for Polio Polio Australia Australia to be able to offer our information Vale Neil von Schill On Friday 23rd of May, Gillian Thomas, John Tierney and Mary-ann Liethof from Polio Australia joined with family, friends and fellow polio survivors to farewell Neil von Schill, one of Polio Australia’s founding members. Our Polio Australia 'team' was hit hard after Neil suffered a major stroke in 2011, which completely halted him in his tracks. Since then, we have greatly missed his positive energy and unflagging dedication to the post- polio community. As well as being on the Executive of Polio Australia, Neil was also on Polio NSW’s Committee of Management and supported that states’ numerous metropolitan and regional polio support groups. Neil's was a life cut short but his legacy will live on.
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