the family hospice for young lives. cwtch
Newsletter: Spring/Summer 2013 Inside... • X Factor visit • Cwtch Corner • Superheroes wanted! welcome...
To the spring / summer “When the Palliative Care Consultant told mum and dad and of course me edition of Cwtch. that I was being referred to a hospice we knew it wasn’t good. I was a pretty We are continually overwhelmed by the poorly young person. support and generosity of the people of Wales. We simply couldn’t continue It’s had many names this disease of without you. mine. ACD syndrome is one of them – they are my initials by the way. But in Did you know it costs around reality, I have no diagnosis. £10,000 to open our doors each day? We were invited to go to Tyˆ Hafan for lunch one day in December some four years ago. I thought it would just This figure is likely to rise because we be another hospital with different are seeing more and more life-limited coloured walls. Oh my, how wrong I children, young people and their was. families in need of our services.
We know times are hard, which makes From the moment we set foot us even more grateful to everyone who in there we all felt a sense of has played a part in supporting our calm. Not a sad calm, but a vital work across Wales. nice calm that makes you feel We thought we would let Amy-Claire safe even when you have the explain how Tyˆ Hafan makes a butterflies in your tummy. I get difference to her: those sometimes when I think about what’s happening to me and my family. I get scared and
2 providing care, being there welcome...
wonder what my future may So my journey with Tyˆ Hafan bring or not as the case may be. isn’t a sad one like people It’s not easy sometimes. assume when they think of a hospice. No, it’s a journey that It’s a bit like a secret club that you has given me an abundance of don’t want to be in unless you have no happy memories. choice, and then if you have no choice it’s the only club you want to be in. It’s truly amazing! With Tyˆ Hafan by my family's and my side, my life has become a life worth They let me be me with all the fighting for. baggage - the terrible spasms, the screaming back pain, the abundance I hope that everyone continues to of medication that takes hours to support Tyˆ Hafan. It really does make administer, the feed pump, the catheter such a difference.“ and so forth. Amy-Claire Davies See the thing is I am sick. I am a young Aged 18 person with very unpredictable health, but underneath it all I am still me - the teenager wanting to go night-clubbing, watch bands and I am still waiting for the love of my life to whisk me off my feet. Tyˆ Hafan recognises that in me.
www.tyhafan.org 3 x-tra special surprise!
Youngsters at Tyˆ Hafan were treated Lewis Gasson, a huge James to an extra special surprise when stars Arthur fan at Tyˆ Hafan, said from the X Factor turned up to bring a little sparkle into their lives. it was “amazing” to meet the stars. The 12-year-old from Singers from the show including Cardiff, who suffers from winner James Arthur, Rylan Clark, Ella Duchenne Muscular Dystrophy, Henderson, Jahmene Douglas and groups Union J and District3, were all said: “We had such a good on hand to provide an entertaining time. I’m so pleased that I met afternoon for the children and their them all." families at the Hayes Road hospice. Rylan Clark clearly enjoyed the There were plenty of smiles all round afternoon. Shortly after leaving he as the singers spent time with babies, tweeted: “What an inspirational bunch toddlers and young people. of people at Tyˆ Hafan children’s hospice. Thanks for a great visit. See you all soon. ”
Ella Henderson also tweeted: “What incredibly strong families at Tyˆ Hafan hospice x x pleasure meeting u all!! ... & thank u for my drawing!”
4 providing care, being there x-tra special surprise!
The visit was organised through Together for Short Lives, the UK charity for all children with life-threatening and life-limiting conditions and all those who love, support and care for them.
All the proceeds from James Arthur’s winning single, "Impossible", will be donated to Together for Short Lives to support children’s hospices like Tyˆ Hafan and other voluntary organisations to sustain their vital work.
www.tyhafan.org 5 casey’s story
Casey was born with extensive brain The Newport family have visited the damage following complications at hospice for short-breaks several times birth. He has since been diagnosed in the last six months, making sure that with severe epilepsy, spasms, cortical mum and dad have time to rest and visual impairment and evolving unwind with nine-year-old daughter cerebral palsy. Reagan.
His condition means he needs 24-hour Mum Nahella said the referral care and it’s unlikely he will ever be couldn’t have come at a better able to walk or talk, placing a huge strain on the whole family. time. “I really don’t know what we would have done without Tyˆ Hafan’s support is needed now Tyˆ Hafan,“ she said. “They have more than ever because his dad become an extended part of Anthony is battling a brain tumour for the family and have completely the second time. The whole family have been devastated by the news but are changed our lives.” comforted by the knowledge that they don’t have to face One-year-old Casey enjoys spending their journey time at the hospice and is always alone. smiling when he’s there. “You can see he becomes instantly comfortable when he arrives and he sleeps so much better as well,” said Nahella.
6 providing care, being there casey’s story
“He loves the sensory area It also means she can still have fun and the arts and crafts room. and enjoy her childhood, despite the amount of time that her mum and dad He can’t see very well so need to devote to looking after Casey. the sensory elements are so beneficial for him.” “The hospice has had such a positive impact on us; not only And the care doesn’t stop at the hospice. Shirley Valentino is Casey’s do they care for all Casey’s Family Support Practitioner and visits needs, but they also support the family regularly at home. the whole family as well, “ said Nahella. Shirley said: “It’s hard to imagine what Nahella and Anthony must be going “It’s a really homely through, but I give them the chance to talk, to share their fears with each environment and I know it’s other and help them have the energy where we’ll want to be for end- to give Casey and Reagan the care and of-life care. It is a truly amazing support they need.” place and I can’t thank them
Reagan has joined Tyˆ Hafan’s enough.” Super Sibs group, which gives her the chance to make friends with other children who understand what having a life- limited brother or sister is like.
www.tyhafan.org 7 the big screen comes to tyˆ hafan
For some youngsters at Tyˆ Hafan, even Preparations are already underway for making a simple trip to the cinema is cinema club nights, gaming sessions physically impossible. and ‘sing along’ evenings.
The life-limiting conditions facing The installation has been completed children and young people supported as part of the Together for Short by the hospice can cause significant Lives campaign, organised by Ian mobility problems which prevent their Morrish, sales manager at ISE. Mr enjoyment of normal activities like Morrish said: "This has been another going to see the latest film. wonderful result and one that simply would not have taken place without the But now, thanks to a donation from assistance of RGB Communications, RGB Communications, the cinema and of course, the continued experience has come to them! The generosity of several manufacturers." hospice is now the proud owner of a home cinema which boasts five wall Thanks to the large range of speakers, a Blue-ray DVD player and a products and all the time and hard projector. work provided free of charge, the installation has saved Tyˆ Hafan more than £10,000. These savings will help support children and young people with life-limiting conditions and their families across Wales.
8 providing care, being there tyˆ hafan is new charity for st david's Wales’ leading shopping destination, St David’s Dewi Sant, has chosen Tyˆ Hafan as its new Charity of the Year.
Throughout the year, staff and shoppers at St David’s will be encouraged to take part in a wide range of fundraising activities to support the charity’s work.
Tyˆ Hafan will be visiting the shopping centre to promote fundraising events, hold bucket collections and highlight the charity's work through a variety of promotional activities.
A number of retailers located in St David's will also be donating the proceeds of their 5p carrier bag levy to T yˆ H a f a n .
Frank Ady, Head of Business and Community at Tyˆ Hafan, said: “We are delighted to have been selected as Charity of the Year for St David’s and look forward to working in partnership with them over the next 12 months.”
www.tyhafan.org 9 A family’s journey
Archie Watson has been receiving It became apparent that Archie was end of life care at the hospice and his on shut down and there were obvious parents, Brad and Lauren, have been signs that he was giving up. That sharing their journey with others by night was strange, the nurses here writing a blog. recommended we all get in to bed together, cwtch and have our sleep. 08/03/2013 Both Lauren and I, through tears, said When Archie's breathing increased goodbye as we held him and there rapidly, we made the easy decision were also a few laughs as we used our to call an ambulance and get him usual brand of humour to reminisce a to hospital where it was confirmed few funny memories. following an X-ray that there were infections present in his lungs. A We didn't expect Archie to wake with common fear for people suffering from us, nor did we expect he would still Tay-Sachs. be here now seven days since going to hospital. Each day we say goodbye 24 hours later in line with to our poorly son. Each day he is showered with more love than the day Archie's end of life care plan, before. Each day we accept as the which we had only recently day and although it's hard, we know changed to "non intrusive care and comfort", we were taken to our local hospice Tyˆ Hafan.
10 providing care, being there Archie will be free of this disease and family, friends and the fantastic people will meet his mates in heaven and do with their Facebook messages which everything he has never done before. have kept us all going.
Despite this fight which has surprised I joked with Lauren that they should many and left us confused about when have a Tyˆ Hafan for old people; I'd love the day will be, we suspect as we have this to be a place to go when you're in done that it is definitely close. It could your last days of old age. be tomorrow, a few days, a week, maybe a little longer but we know this I love them both dearly and whatever fight is using a lot of his energy and happens over the next few days (only only Archie holds the answer to when Archie knows), I know that my boys are his reserves run out. going to be alright.
We are now living in the hospice Brad Watson waiting for that moment. I can't Read the family's blog at http://www.caringbridge.org/visit/ imagine being anywhere else. archiematthewwatson/journal We agreed as part of Archie's care plan that we would like Tay-Sachs disease is him to pass here and it's the a rare and usually fatal genetic best decision we have made. disorder that causes progressive damage to the nervous system. The staff at Tyˆ Hafan have been wonderful and made everyday In the most common form of the condition, amazing for us whilst providing the symptoms usually begin at around five best comfort Archie can get. They truly months of age, when a previously normal are amazing people along with all our child’s development begins to slow and they gradually lose their ability to move.
www.tyhafan.www.tyhafan.orgorg 11 cleverly and tyˆ hafan family open new shop
Welsh boxer Nathan Cleverly joined excited! Tyˆ Hafan’s support 11-year-old Tyler Lane to open a new means everything to us and Tyˆ Hafan charity shop in Barry. Tyler really loves it there."
Tyler, who was born prematurely with Cleverly, who has supported the charity severe cerebral palsy, quadriplegia for many years, said it was an honour and limited sight, first visited the to open the charity’s 22nd shop in hospice in Sully in 2003. Holton Road.
His mum Lisa said he really He said: "Tyˆ Hafan is a charity that’s enjoyed cutting the ribbon really close to my heart and I’m always alongside the world light- happy to help out in any way I can. I heavyweight champion. “He have visited the hospice many times and I’m always inspired by the children was up at 4am as he was so who are facing such battles in their lives."
Our shops are always looking for donations of good quality clothing, bric-a-brac, toys and DVDs to sell, as well as volunteers willing to lend a hand.
For more details visit tyhafan.org or call 029 2053 2199
12 providing care, being there cleverly and tyˆ hafan family cricketer mark wallace becomes open new shop tyˆ hafan ambassador
Welsh cricketer Mark Wallace has hospice and signed a cricket kit which been inspired to help Tyˆ Hafan, after was kindly donated by Cardiff-based witnessing the charity’s positive impact entrepreneur Jacquie Williams. on his wife’s goddaughter. Wallace, originally from Abergavenny, added: “As it’s a cause that’s so close As a way of showing his support, the to my heart I feel a great sense of Glamorgan cricket captain has joined pride to be joining as an Ambassador.” Tyˆ Hafan as an Ambassador. John Barrowman and Lucy Owen are He said: “My wife’s amongst the many celebrities who goddaughter was cared for regularly support the charity. by Tyˆ Hafan before she sadly passed away. I have a real connection with the charity and I think they do a fantastic job in supporting not only the children, but the whole family as well.”
Wallace, who even has a Tyˆ Hafan sticker on the back of his cricket bat, said he will help the charity in any way he can. In February he visited the
www.tyhafan.www.tyhafan.orgorg 13 cwtch corner
14 providing care, being there cwtch corner
A massive thank you to the amazing people at Ty Hafan. It was this Sunday last year that our precious little boy Noah had an emergency transfer from the Heath over to Ty Hafan. We thought he only had a matter of days to live, but Noah fought A huge 'Thank you' to everyone at Ty hard and lived for another nine weeks. The Hafan for all the care you've given Nathan care and support that the amazing family during the past year and for your support of Ty Hafan showed to us got us through to us as a family. You've been there to help the hardest time of our lives. Ty Hafan us during difficult times and have allowed us to just be Noah's parents for the remained such a big part of our lives. precious time we had left with him, and for Nathan continues to gain strength, that, we will always be thankful. Ty Hafan determination, smiles and his wicked sense is such a special place. Thank you xxx of humour again and we've been grateful Hywel Tyler that you have shared such a positive year with us. Thank you to those who have now become our friends and extended family. Karen Davies
www.tyhafan.www.tyhafan.orgorg 15 1 You can count on my support. (Please use BLOCK CAPITALS) Title ...... Forename ...... Surname ...... Full Address...... Post Code ...... Tel ...... Mobile ......
Help Tyˆ Hafan save money on postage – join our email list! Email ......
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2 Here’s my regular gift of: n £5 monthly n £10 monthly n Other Please state amount £ monthly
Instruction to your Bank or Building Society to pay by Direct Debit
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Please pay Tyˆ Hafan Direct Debits from the account detailed in this instruction subject to the safeguards assured by the Direct Debit Guarantee. Bank/Building Society account number I understand that this instruction may remain with Tyˆ Hafan and if so, details will be passed electronically to my Bank/Building Society. Branch Sort Code
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Banks and Building Societies may not accept Direct Debit Instructions for some type of accounts 3 Increase your donation with the Gift Aid Scheme n I am a UK taxpayer and I would like Tyˆ Hafan to reclaim the tax on my donation through the Gift Aid Scheme (an extra 25p for every £1 donated). This declaration also relates to all donations I have made to Tyˆ Hafan in the past four years and all donations I make hereafter until I notify you otherwise. For donations to qualify for Gift Aid you must pay income tax or capital gains tax equal to the amount claimed in the tax year.
4 I can’t commit to a regular gift, but would like to make a donation:
Please accept a cheque / CAF voucher for £ …………………… payable to Tyˆ Hafan Please accept my credit / debit card donation - Debit my Mastercard / Visa / Debit
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5 Please send me further information on: Tyˆ Hafan events Crackerjackpot, the Tyˆ Hafan lottery Leaving a gift in my will How my company can support Tyˆ Hafan Fundraising Becoming a volunteer Other – please specify......
6 Please return this form to: Tyˆ Hafan, Head Office, Hayes Road, Sully, CF64 5XX
Tyˆ Hafan values your support and promises to respect your privacy. The data we gather and hold is managed in accordance with the Data Protection Act (1998). We will not disclose or share personal information supplied by you with any third party organisation without your consent. By providing your details, you will be indicating your consent for Tyˆ Hafan to contact you by email, letter or by phone to inform you about future fundraising activities and appeals, unless you have indicated an objection to receiving such messages by ticking a box below.
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For office use only ...... (CWTA12) play worker, paul, answers questions
Play and activity provision is used to holding arts and crafts sessions, great effect at Tyˆ Hafan. The charity taking and compiling photos, the list is was one of the first in the UK to endless! establish a Toy Library which includes specialist equipment to stimulate I also run a fathers’ group which and encourage children to express means organising football training, themselves through play. challenge events, pool tournaments, golf days and so on. I also lead a We have spoken to Play Worker Paul group specifically for the teenage lads Fisher about his role at Tyˆ Hafan. so they can meet up for food and a film; it gives them a chance to socialise 1) How long have you worked and be themselves without parents at Tˆy Hafan? being around. It also allows the parents to go for a coffee and enjoy a Ten years. good catch-up themselves. 2) Describe an average day 3) What are the biggest at Tˆy Hafan? Each day can be completely different. misconceptions about Tˆy It all depends on who is staying and Hafan? what big events we have planned. My I can say that when I first started at Tyˆ job generally entails decorating and Hafan I thought that it would be sad, personalising the children’s bedrooms, quiet and have that hospital ‘clinical’ organising trips out, reading stories, feel to it. Well I was wrong. Tyˆ Hafan is playing games, driving the mini bus, a bright, colourful and happy place, full of smiles and fun! Yes, there are times
18 providing care, being there play worker, paul, answers questions when Tyˆ Hafan can be a sad place 6) What has been your but we focus on the memories that the biggest achievement? children and families will be able to Being part of the adolescent and cherish. fathers group and watching the groups get bigger, stronger and better over 5) What is your favourite the last few years. memory of Tˆy Hafan? I have so many great memories that it’s 7) Finally, describe Tˆy Hafan hard to narrow it down to one, but I can in three words list a few to give you an idea: Family, Fun and Memories!
• Going to Download Rock Festival with some of our young people
• Every single sibling fun day – water fights!
• Being involved with the Three Peaks challenge and the team of dads’ who take part each year
• Being welcomed into a family’s home and then realising how important we are to them!
www.tyhafan.org 19 thank you...
We’d like to say a huge thank you Aaron is 13 but he was referred to T yˆ to everyone that donated to our Hafan when he was just nine months Christmas Appeal. Thanks to your old. At first we were terrified of taking generous support, a fantastic £24,000 Aaron to a hospice, especially as I was raised which will help families like thought a hospice was a place where Aaron’s get their new beginning this people go to die. Christmas. Tyˆ Hafan has supported us in Since December, Aaron and his so many ways – helping us to family have visited the hospice for short break care and are continuing play with Aaron, allowing me to to benefit from the emotional and have some much-needed rest practical support offered at T yˆ Hafan. when Aaron isn’t sleeping and making Tyˆ Hafan the best place “I offered to tell my story for T yˆ Hafan’s Christmas Appeal because I want that Aaron has ever been. everyone to understand the difference We are incredibly grateful to everyone they can make by supporting T yˆ who has made a donation to the Hafan. Christmas Appeal. I can honestly say that your contribution will make a McCune Albright Syndrome means huge difference.” Aaron can’t walk or talk and worst of all, he isn’t expected to live past Julie the age of 19. In fact we’ve been told several times that Aaron has just days to live.
20 providing care, being there the difference you can make
Aaron’s£23 couldMum pay for an hour of emotional support from a £23 family support practitioner.
£57 could pay for two hours of physiotherapy to ease the pain children and young people experience as a result of their conditions. £57
£90 could pay for three hours of outreach play therapy to encourage children like Aaron to reach their full potential, and £90 giving mums like Julie the chance to interact with their children.
£184 could pay for a highly trained nurse to care for a child throughout the night, allowing Mum and Dad to get some much-needed rest. £184 thank you! To make an online donation, please visit www.tyhafan.org www.tyhafan.org 21 chefs cook up a storm for tyˆ hafan Top chefs from some of the most The event’s organiser, Welsh exclusive restaurants in Wales, London businessman David Loosemore, has and beyond impressed some of the a very personal reason for wanting to most discerning foodies in the country support Tyˆ Hafan as his six-year-old at a fundraising event in aid of Tyˆ daughter Isabella has been having Hafan. short-break stays at the hospice.
The third annual Chefs’ Night Out took David said: “Knowing that place at the Thistle's Parc Hotel in Bella is being looked after by a Cardiff and raised more than £100,000 remarkable team is extremely for the charity. important to us. She really loves Chefs who have worked alongside it there and has made some the likes of Marco Pierre White and lovely friends. To see the way Keith Floyd produced exquisite food the care team look after her is for 140 guests including rugby pundit Jonathan Davies. amazing. Holding this fantastic event is a way to show my appreciation. I really can’t thank Tyˆ Hafan enough for what they do.”
All of the chefs donated their time, food and wine for free in order to help support Tyˆ Hafan in providing specialist palliative care services for children, young people and their families.
22 providing care, being there chefs cook up a storm jagger and woody raise £200 for tyˆ hafan from broken stapler It’s hard to imagine someone wanting Woody said: “Jagger pulled the stapler to pay £200 for a broken stapler, but apart when he was bored and we that’s exactly what happened during a thought we would try and sell it on live radio show on Real Radio. eBay as a joke. Once we mentioned donating the money to Tyˆ Hafan Breakfast show presenters Jagger and the bids came flooding in and we Woody placed the item on eBay as a managed to raise £200.” joke initially. To their surprise, the bids started to slowly creep up to £30.
After announcing to their listeners that they would donate the winning bid to Tyˆ Hafan, interest from the public escalated.
The support from Jagger and Woody didn’t stop there. When they visited T yˆ Hafan to drop off the cheque they started talking to Jordan. He happened to mention his dream of owning his own toy car which then inspired the presenters to mention his wish on their breakfast show the following morning.
To their delight,a south Wales businessman offered to donate a golf cart to Jordan which he could customise to look just like his very own car!
www.tyhafan.www.tyhafan.orgorg 23 for rhys, t yˆ h a f a n is a place where he can enjoy being a regular 11-year-old.
From spending time with his mates to Rhys uses a wheelchair but that playing video games or going bowling, doesn’t stop him having fun. He outgoing Rhys loves nothing more than is often seen whizzing around the staying at the hospice. hospice, charming everyone he meets with his cheeky smile and wicked Rhys suffers from Duchenne Muscular sense of humour. Dystrophy and he and his family were referred to Tyˆ Hafan in 2005. Being able to talk to other boys with the same condition is a huge benefit His mum and dad, Sharon and Mark, for him. His best friend Lewis also felt reassured that there was an has DMD and the pair have formed a organisation like Tyˆ Hafan to call upon strong friendship since meeting at the when life became more difficult. hospice.
Mark said: “We were overwhelmed by “It’s cool chatting to someone who how welcoming everyone was when knows what you’re going through,” we first arrived. The care team are said Rhys. fantastic and we can’t think of a better place for Rhys to visit. He loves it and “I really like hanging out with him and has made so many good friends as a we both love the den!” result.” When asked what he enjoys most about Tyˆ Hafan, he said: “Everything. I love everything.”
24 providing care, being there page 25
Wordsearch expert Lewis has been busy again . After enjoying a walk around the grounds of the hospice he felt inspired to create a nature-themed puzzle for Cwtch readers to enjoy! M L E R R I U Q S B U S P L L L L J V E D R I B K C A L B E D Y G S P I D E R T B P E Z F F A C O L Y Q O E B R X T B E V P N E A O O R I O S Z N P O O H G N S
Blackbird Robin Spider
Squirrel Pigeon
Frog Beetle
www.tyhafan.org 25 reaching out
We are engaging with more people happy little boy. through social media than ever before. Popped into @tyhafan today to Our online community continues to thrive with over 2,000 people liking see @Amazing__Archie. Great our Facebook page and almost 6,000 to see him still fighting. people following us on Twitter. 140 characters is not anywhere You can instantly become part of the Tyˆ enough space to explore how Hafan Facebook community and see what everyone, including families who great a place @tyhafan is. visit Tyˆ Hafan, have to say. And at the click of a button you can follow us on Paper free! Twitter and keep a watchful eye on our You could make a real difference to the famous friends and see how they are life-limited children, young people and showing their support. families who rely on Tyˆ Hafan and it won’t cost you anything. Top of the tweets All you need to do is join our email list. Over 400 superheroes have By visiting www.tyhafan/join you can now registered for Tyˆ Hafan’s become part of our email group. Emails #midnightsleepwalk get registered are a much cheaper way for us to keep before you miss out! http://www. in touch with our supporters and we promise not to overload your inbox. midnightsleepwalk.co.uk We’ll just send you all the best news, latest events and inspiring videos. This is me and Woody delivering a car to Jordan at Tyˆ Hafan All we need is your email address. Please make a difference by signing up today. yesterday. One very
26 providing care, being there in support of a chance to win, a chance to care
By spending just £1 a week you can And by joining the T yˆ Hafan support T yˆ Hafan whilst being in with Crackerjackpot Lottery you are almost a chance of winning a life-changing 30,000 times more likely to win a prize sum of money. than with the National Lottery.
By becoming a member of Crackerjackpot provides a consistent Crackerjackpot you could have the source of income to T yˆ Hafan, ensuring chance to book a dream holiday, buy it can continue offering its vital services a new car and perhaps make some to life-limited children, young people improvements to the home. and their families from across Wales.
Back in 1998 the hospice began its own lottery and since that time it has Elaine Davies, of paid out more than £1.5 million to Newport, was delighted to lucky winners from all over Wales who receive a telephone call telling her have chosen to support T yˆ Hafan in she had won £3,000 in the Christmas this way. raffle. “I’m really happy,” she said. “It’s a really lovely late Christmas present.” T yˆ Hafan, which operates the largest 64-year-old Elaine, a regular Crackerjackpot hospice lottery in the UK, offers 81 lottery player, said: “I was so surprised guaranteed weekly prizes, a £2,000 when I found out I’d won! I am so glad I’ve top prize and the potential been able to support such a marvellous rollover jackpot of up to charity. I know somebody whose £12,000. daughter has been there for short– break care so I know from them how brilliant it is.”
www.tyhafan.org 27 1 child in 5 is cared for by a gift in the Will… Tyˆ Hafan will be running Why do you need an up to its ‘Write a Will’ campaign date Will? between 13– 24 May. A Will is the only way to ensure your wishes will be honoured as you intend. The charity has teamed up with solicitors across south Wales to offer people the Even if you already have a Will, a change chance to have a simple Will written in your circumstances may mean you for just £50, giving supporters the need to update it, to ensure your loved opportunity to help make a real difference ones are provided for. to life-limited children, young people and their families throughout Wales by leaving Having spent a lifetime working to build a a gift in their Will. life for you and your loved ones, allowing your estate to be in dispute once you’ve An even greater incentive to finally getting gone is an unnecessary risk to take. around to making your Will is that during the period of the campaign a simple Why support Tyˆ Hafan with a Will can be written by any one of the gift in your Will? participating solicitors for a suggested It costs £3.5 million to fund Tyˆ Hafan’s minimum donation of £50 for a single care every year, and over the next four Will and £75 for Mirror Wills suitable for years we expect these costs to rise by couples, much less than the usual cost. another 28%.
28 providing care, being there 1 child in 5 is cared for by a gift in the Will…
Gifts in Wills fund the care provided to 1 in 5 of the children we support. Without May 13-24 them, we simply couldn’t support as many families. book now! Currently, 96% of the income received write a from gifts in Wills is used to fund the care we provide to the families in Wales that Will for only desperately need it. * We appreciate all gifts – large and small – and every pound received will make the lives of those who need our service a little £50with Tyˆ Hafan and selected solicitors for two weeks only.
* Suggested donation for a Simple Will only. bit brighter. A donation of £75 is suggested for Mirror Wills.
visit www.tyhafan.org/writeawill Visit our website www.tyhafan.org/ or call 029 2053 2270 to book. tyˆ hafan - the family hospice for young lives writeawill or call our office on Registered head office: Hayes Road, Sully, CF64 5XX / Tel: 029 2053 2199 Registered in Wales: No: 3077406 Registered Charity No: 1047912 029 2053 2270 to make your donation and receive your voucher.
Alternatively, you can email us on [email protected] with your questions.
www.tyhafan.org 29 a mum's story
Kat Bancroft from Maesteg can’t sleep as such. My eyes are closed but midnight sleep walk remember what it’s like to go to bed it’s more of a rest than a sleep,” said Kat. and look forward to a full night’s sleep. friday 10 may 2013 And when she gets up she doesn’t just millennium stadium, cardiff That is because her 23 month old care for Riley’s needs but looks after son Riley suffers from Interstitial Lung her other young sons as well. Disease and needs round the clock care Tyˆ Hafan Mums are superheroes, be a superhero too! to make sure his oxygen levels don’t “I’ll get the other three ready for school Help mums of life-limited children get some much needed drop below 95%. His condition means whilst constantly checking Riley is ok,” sleep by giving up one night of your own. that he has a short life-expectancy. said Kat.
His breathing is aided by a ventilator The pressure on the family can be at night and an alarm on his monitor intense at times but they have found will sound if his oxygen levels drop some much-needed support at Tyˆ Hafan. too low. Kat said, “Throughout the night I’m making sure his ventilator They have visited the hospice several is connected, checking his oxygen times for short-break care and have levels and rocking him to sleep if his been “blown away” by the charity. ventilator has fallen off.” Kat said: “We were quite anxious Riley sleeps in the same room as his before we arrived but we shouldn’t parents as it’s easier for them to keep have been because everyone is so an eye on him. friendly and kind. The team are so
“If it’s a really good night I’ll get three supportive and we feel completely hours sleep. I don’t think I get a full relaxed when we’re there.” Register now... www.midnightsleepwalk.co.uk
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30 providing care, being there www.tyhafan.org Water kindly Registered Charity Number: 1047912. exclusive spa prize donated by... midnight sleep walk friday 10 may 2013 millennium stadium, cardiff
Tyˆ Hafan Mums are superheroes, be a superhero too! Help mums of life-limited children get some much needed sleep by giving up one night of your own.
Register now... www.midnightsleepwalk.co.uk
Kindly sponsored by... for top fundraiser! Supplied by...
www.tyhafan.org Water kindly Registered Charity Number: 1047912. exclusive spa prize donated by... GE Aviation Wales welsh3peaks challenge saturday 15 june 2013 snowdon . cadair idris . pen-y-fan
Help raise the £3million needed every year to support hundreds of families in Wales. www.welsh3peaks.co.uk
#welsh3peaks www.tyhafan.org Water kindly Registered Charity Number: 1047912. donated by...