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Nonprofit

Impact

Report 2020

A global initiative to stop Congenital Diaphragmatic Hernia Dawn Ireland, President

A Note From Dawn Ireland, President

Dear CDH International Members and Supporters,

We spent our first 24 years blazing the path for CDH charities and creating a global community for the benefit of our kids. And then came Covid and things could’ve grinded to screeching halt. Many charities folded in 2020… CDH International did not.

We held our 2020 CDH Telethon as our President, Dawn Ireland, herself was battling Covid while on camera for 12 hours. This fall, Tracy Meats, head of our Support Department, had a heart attack and still continued to try to work just a week later. Our big 25th Anniversary CDH Conference in Toronto was cancelled. Research conferences held virtually. Volunteers and Board Members quit because they couldn’t handle the pressures of 2020 and charity work too. Donations fell to 50% of the previous year but with the help of our amazing, Fundraising Team, lead by Nicolle Colvin, fundraisers increased by 74% during a global pandemic!

We made it. And we grew.

In July, CDH International became a registered research non-profit organization in the UK after 25 years of volunteers and support. In December, CDH International became a registered non-profit organization in Hong Kong, Singapore, the Netherlands and Switzerland.

CDH International was first envisioned sitting beside a baby boy’s hospital bed in 1993. It became a reality in the form of CHERUBS in 1995. Now, we are the world’s oldest, largest and leader in the fight against Congenital Diaphragmatic Hernia.

And we’ve done it all on our own, while lifting others up, learning along the way and always, always putting the children first. What an incredible first 25 years it's been.

Dawn Ireland President CDH International By The Numbers 2020

CDH International created 5 NGO's in the United Kingdom, Switzerland, Hong Kong, the Number of new NGOs Netherlands and Singapore in 2020

CDH International became a 25 registered nonprofit in 1995 and is the world's oldest charity for Years Serving the CDH Congenital Diaphragmatic Community Hernia.

Families served and

6850 researchers who are official members of CDH International Members and who participate in the CDH Patient Registry.

We have made an even bigger

74 impact globally in the fight to help more families affected by Countries CDH. Our Mission CDH International is dedicated to finding the cause, prevention, and best treatments for Congenital Diaphragmatic Hernia while also supporting affected patients and families.

Congenital Diaphragmatic Hernia CDH occurs when the diaphragm fails to fully form during pregnancy, allowing organs to migrate from the abdominal cavity into the chest cavity and thereby inhibiting lung growth. CDH strikes 1 in every 2500 babies, which equals 1600 babies every year in the . Every ten minutes, a baby is born with CDH. Fifty percent of babies diagnosed with Congenital Diaphragmatic Hernia do not survive. The cause is unknown. CDH International was known as "CHERUBS" until 2017

2020 Executive Board of Directors 2020 Patient Advisory Board Dawn Ireland, President Hope Clyde Katherine Haney, Vice-President Nicolle Colvin M. Shane Perry, Esq., Secretary Josh Hensley Tara Henderson Laura Henderson Tracy Meats Shelly Moore Warren Sumner Amanda Plakholm James Kornegay Darlene Silverman Rhonda Montague Mary Kate Brenner

2020 Medical Advisory Board Paul Losty, MD FRCSI FRCS(Eng) FRCS(Ed) FRCS(Paed) – Liverpool University, UK N. Scott Adzick, MD, MMM, FACS, FAAP– Children’s Steadman McPeters, CPNP – Huntsville Alabama, Hospital of Philadelphia Pediatric Surgery Nurse Clinician Kristin Aigner, RN, BSN - OSF St. Francis Medical Center Doug Miniati, MD – University of , San Francisco Priscilla Chiu, MD – Sick Kids University of Toronto Steadman McPeters, CPNP – Pediatric Surgery Nurse Wendy Chung, MD, PhD - Columbia Presbyterian / Clinician / Huntsville Alabama DHREAMS Giovanna Riccipetitoni, MD - Ospedaledei Bambini Buzzi, Jan Deprest, MD, PhD - University Hospital Gasthuisberg, Milan Leuven, Belgium Henry Rice, MD - Duke University Medical Center Patricia Donahoe, MD – Massachusetts General Hospita Dick Tibboel, MD, PhD – Erasmus University MC – Sophia Mahmoud El Fiky, MD - Cairo University Children’s Hospital NL Gabrielle Kardon, PhD – University of Utah Jay Wilson MD – University of Texas Richard Keijzer, MD, PhD, MSc - University of Manitoba Naomi, Wright, MD – Global Initiative in Pediatric Surgery, and Children's Hospital Research Institute of Manitoba London, UK Matthew T. Harting, MD - University of Texas Medical August Zani, MD - Toronto Sick Kids Hospital School at Houston, “A kind gesture can reach a wound that only compassion can heal.” Steve Maraboli

USA / Internationally United Kingdom Switzerland

3650 Rogers Rd #290 77 Victoria Street, Box 135 c/o Chapel & York Switzerland Association, 4 Rue Charles- Wake Forest, NC 27587 London SW1H 0HW Bonnet, P.O. Box 399,1211, Geneva 12, Switzerland USA United Kingdom www.cdhintl.ch www.cdhi.org www.cdhi.uk [email protected] [email protected] [email protected] Phone - +41 22 57 54 171 +1 919-610-0129 +44 20 3966 5346 CDH International c/o Chapel & York Switzerland Association US 501(c)III #56-1916661 Registered UK Charity no. 1189819 is a tax-exempt not-for-profit association governed by Articles @cdhintl @cdhiuk 60 et seq. of the Swiss Civil Code. @cdhiuk @cherubs http://www.facebook.com/cdhiuk @cdhiswitzerland @cdhinternational @cdhiswitzerland http://www.facebook.com/cdhintl http://www.facebook.com/cdhiswitzerland http://www.facebook.com/cdhsupport

Netherlands Hong Kong Singapore

c/o Stichting Chapel & York Foundation CDH International, c/o Hong Kong Foundation for Charities c/o Chapel York SG Foundation, 138 Robinson Road, 18- Netherlands Markerkant 13 10 1314 AN Limited, Unit B, 19/F, Queen’s Centre, 03 Oxley Towers, Singapore 068906 Almere Noord Holland The Netherlands 58-64 Queen’s Road East, Wanchai, Hong Kong cdhi.org/singapore www.cdhi.nl cdhi.org/hongkong [email protected] [email protected] [email protected] +65 9223 7069 +44 20 3966 5346 CDH International, c/o Hong Kong Foundation for Charities CDH International, c/o Singapore Foundation for Registered UK Charity no. 1189819 Limited Registration Number 65159428-000 Charities Ltd | Registration Number 65159428-000 @cdhinl @cdhinl @cdhihongkong http://www.facebook.com/cdhintl @cdhihongkong @cdhisingapore http://www.facebook.com/cdhhongkong @cdhisingapore http://www.facebook.com/cdhsingapore Finances 2020 Totals Annual Financial Report for CDH International Income - $249,798 2020 Income Expenses - $220,840 Gifts In Kind: 1.2 % Awareness Fund: 0.6 % Family Assistance Fund: 2.6 % Research Fund: 20.4 % Scholarship Fund: 0.0 %

Fundraisers: 14.7 %

General / Support Fund: 60.4 % 9% Overhead

8% operational 1% fundraising 2020 Expenses

Operating Costs: 8.4 %

Lobbying: 0.0 % Research Fund: 29.6 %

Awareness Fund: 21.8 %

Fundraising: 0.6 % No government funding. Family Assistance Fund: 8.4 %

Scholarship Fund: 0.0 % Support Fund: 31.1 % No grants over $5000.

No sponsorships over $5000.

Fiscal year January 1, 2020 - December 31, 2020 CDH families powered. All tax returns and financials can be found at www.cdhi.org CDHi 2020 Year In Review

Major Milestones

CDH International becomes NGO in the United Kingdom CDH International becomes NGO in Hong Kong CDH International becomes NGO in Switzerland CDH International becomes NGO in the Netherlands CDH International becomes NGO in Singapore CDH International presents research at the CDH Study Group meeting CDH Phone App Created CDH Medical Center Map added to the App National CBS Interview 25th Anniversary Yearbook 2020 CDH Telethon CDH International Wins 2020 Transparency Award from Guidestar CDH International Joins Canadian Organization for Rare Disorders CDH International Joins EURORDIS CDH International Joins Global Genes RARE Foundation Alliance CDHi Welcomes Co-Founder, Rhonda Montague, to the Executive Board CDHi Welcomes James Kornegay to the Executive Board CDH International Awards Scholarship to Serena Rush CDHi hires new Office Manager The 2020 CDH International UnGala 2020 National Children’s Memorial Day Virtual Memorial 2020 Virtual CDH Ribbons CDH Awareness Spirit Week #snowangelchallenge for CDH CDHi Works With Arianna’s CDH Foundation for CDH HOPE Totebags Storytime with Heidi-Marie Aja Evans Helps Celebrate CDHi’s 25th Anniversary Charles Lawson Helps Celebrate CDHi’s 25th Anniversary Dean Cain Helps Celebrate CDHi’s 25th Anniversary Ernie Hudson Helps Celebrate CDHi’s 25th Anniversary Jesse Metcalfe Helps Celebrate CDHi’s 25th Anniversary Kristin Bauer Helps Celebrate CDHi’s 25th Anniversary Lolo Jones Helps Celebrate CDHi’s 25th Anniversary Melissa Gilbert Helps Celebrate CDHi’s 25th Anniversary Oscar Nuñez Helps Celebrate CDHi’s 25th Anniversary Paula Deen Helps Celebrate CDHi’s 25th Anniversary Sean Astin Helps Celebrate CDHi’s 25th Anniversary CDH Research

CDH International presents research at the CDH Study Group meeting CDH International collaborates with Fondazione IRCCS Ca’ Granda, Ospedale Maggiore Policlinico Milan (Italy) and Associazione Fa.B.E.D. Famiglie di Bambini con Ernia Diaframmatica on research project into the effects of COVID-19 on Congenital Diaphragmatic Hernia patients. CDH International and the University of Toronto do a joint study on older CDH survivors Online CDH and COVID-19: An Expert Session Dr. Mahmoud El Fiky Joins CDHi Medical Advisory Board CDH International speaks at the Global Initiative for Children’s Surgery in South Africa CDHi partners with Fetal.ist CDHi joins the Global Anomalies Group CDH International Speaks At Bio Data World Congress 2020 CDH International Speaks at the 2020 World Pharma Pricing, Evidence and Market Congress CDH International Participates in the 2020 AAP Conference CDH International Attends the WFPICCS20 Virtual World Congress CDH International at the 2020 ECRD Conference CDH International Attends the 2020 World Orphan Drug Congress CDHi Attends the Rare Drug Development Symposium CDH International Attends the 2020 World Orphan Drug Congress Europe CDH International Attends the 2020 NORD Summit CDHi Attends the 2020 International Conference on Clinical Neonatology Conference CDH International Attends the 2020 ELSO Conference CDH International Attends the American Pediatric Surgical Association Conference CDHi Attends the 2020 Bio Patient and Health Advocacy Summit CDHi Participates in “Rare On the Road” CDH International Attends 2020 Rare Fair CDH International Attends the 2020 Global Genes Conference CDH International Attends the 2020 PAPSA Conference CDH International Attends the 2020 Real World Evidence Conference Over 150 CDH Research Articles Shared CDH Awareness

April 19th – Congenital Diaphragmatic Hernia Awareness Day 2020 CDH Telethon Featured 30 Patient Stories 52 Issues of the “CDH News” 30 Days of CDH Trivia Over 100 new CDH Awareness shirts 100’s of new graphics Over 50 new videos 5 Editorials 2 Press Releases New CDH International UK Shop CDH Awareness Shop Black Friday Sale CDH Awareness Shop Cyber Money Sale CDH International creates Washable CDH Awareness Face Masks Special Edition 25th Anniversary Holiday Ornaments and Shirts Over 100 new items added to the CDH Awareness Shops CDHi Lip Sync Contest CDHi Photo Challenge Bobbie Watson Shares Her Family’s CDH Journey on 2020 CDH Telethon Danae Perkins Shares Her Family’s CDH Journey on 2020 CDH Telethon Danielle Hallinan Shares Her Family’s CDH Journey on 2020 CDH Telethon Emma Conlon Shares Her Family’s CDH Journey on 2020 CDH Telethon Jackie Doell Shares Her Family’s CDH Journey on 2020 CDH Telethon Jacob Howell’s Shares His Family’s CDH Journey on 2020 CDH Telethon Kerri Blair Shares Her Family’s CDH Journey on 2020 CDH Telethon Lauren Richardson Shares Her Family’s CDH Journey on 2020 CDH Telethon Mary Kate Brenner Shares Her Family’s CDH Journey on 2020 CDH Telethon Mellissa Reaves Shares Her Family’s CDH Journey on 2020 CDH Telethon Nicolle Colvin Shares Her Family’s CDH Journey and Speaks on Fundraising on 2020 CDH Telethon Sara Orth Shares Her Family’s CDH Journey on 2020 CDH Telethon Sarah Allen and John Gibbon Share Their Family’s CDH Journey on 2020 CDH Telethon Shelly Moore Shares Her Family’s CDH Journey on 2020 CDH Telethon Tracy Meats Shares Update on CHERUBS Support Division During 2020 CDH Telethon 2020 Light Ups

2010 Winter Olympics Cauldron Lights Up For CDH Awareness Legislative Building Lights Up For CDH Awareness Athenry Heritage Center in Galway Lights Up For CDH Awareness BC Parliament Building Lights Up For CDH Awareness BC Place Lights Up For CDH Awareness Bell Tower Lights Up For CDH Awareness Blarney Castle Lights Up For CDH Awareness Burlington Beacon on The Pier Lights Up For CDH Awareness Tower Lights Up For CDH Awareness City Hall of London Lights Up For CDH Awareness CN Tower Lights Up For CDH Awareness Corfe Castle Lights Up For CDH Awareness Dundalk Town Hall in Lights Up For CDH Awareness Emirates Spinnaker Tower Lights Up For CDH Awareness Enterprise Center Lights Up For CDH Awareness Evergreen Point Floating Bridge Lights Up For CDH Awareness Flint Hills Discovery Center Lights Up For CDH Awareness FMC Tower Lights Up For CDH Awareness Halifax City Hall Lights Up For CDH Awareness High Level Bridge Lights Up For CDH Awareness ICON Orlando Lights Up For CDH Awareness Kilkenny Castle Lights Up For CDH Awareness Lied Center of Kansas Lights Up For CDH Awareness Mansion House in Dublin Lights Up For CDH Awareness Martin Luther King, Jr. Memorial Bridge Lights Up For CDH Awareness Melbourne Star Observation Wheel Lights Up For CDH Awareness Nascar Hall of Fame Lights Up For CDH Awareness Niagara Falls Lights Up For CDH Awareness Norwich Castle Museum Lights Up For CDH Awareness in Calgary Lights Up For CDH Awareness Port Credit Light House Lights Up For CDH Awareness Power and Light Building KC Lights Up For CDH Awareness Reconciliation Bridge Lights Up For CDH Awareness Rock & Roll Hall of Fame Lights Up For CDH Awareness Rose Kennedy Greenway Light Blades Lights Up For CDH Awareness Saint Louis Science Center’s James S. McDonnell Planetarium Lights Up For CDH Awareness Science World Lights Up For CDH Awareness Skydance Bridge Lights Up For CDH Awareness Skylon Tower Lights Up For CDH Awareness Southern Alberta Jubilee Auditorium Lights Up For CDH Awareness St. Anthony Falls Bridge Lights Up For CDH Awareness 2020 Light Ups Continued

Telus Spark Lights Up For CDH Awareness The Block Lights Up For CDH Awareness The Eiffel Tower Lights Up For CDH Awareness The Leonard P. Zakim Bunker Hill Memorial Bridge Lights Up For CDH Awareness The Lowry Avenue Bridge Lights Up For CDH Awareness The Margaret McMillan Tower Lights Up For CDH Awareness The Mercedes-Benz Superdome Lights Up For CDH Awareness The Retirement System of Alabama Lights Up For CDH Awareness The Rock Of Cashel Lights Up For CDH Awareness Toowoomba Town Hall Lights Up For CDH Awareness Torch Doha Hotel Lights Up For CDH Awareness Toronto City Hall Lights Up For CDH Awareness Virginia Aquarium & Marine Science Center Lights Up For CDH Awareness Wells Fargo Building Lights Up For CDH Awareness WoodmenLife Center Lights Up For CDH Awareness

2020 Proclamations: Arizona Proclaims April CDH Awareness Month South Carolina Proclaims April CDH Awareness Month Arkansas Proclaims April CDH Awareness Month Tennessee Proclaims April CDH Awareness Month Cabot, Arkansas Proclaims April CDH Awareness Month Virginia Proclaims April CDH Awareness Month Colorado Proclaims April CDH Awareness Month Washington Proclaims April CDH Awareness Month Connecticut Proclaims April CDH Awareness Month West Virginia Proclaims April CDH Awareness Month Hawaii Proclaims April CDH Awareness Month Wisconsin Proclaims April CDH Awareness Month Iowa Proclaims April CDH Awareness Month Wyoming Proclaims April CDH Awareness Month Louisiana Proclaims April CDH Awareness Month Missouri Proclaims April CDH Awareness Month Nebraska Proclaims April CDH Awareness Month New Hampshire Proclaims April CDH Awareness Month North Carolina Proclaims April CDH Awareness Month Oklahoma Proclaims April CDH Awareness Month Olathe, Kansas Proclaims April CDH Awareness Month Pennsylvania Proclaims April CDH Awareness Month CDH Awareness (Continued)

Celebrity Help: Kristen Ledlow on the CDH Telethon Kristin Bauer on the CDH Telethon Aaron Watson on the CDH Telethon Kristy Swanson on the CDH Telethon Action Jaxon on the CDH Telethon Kyle Lowder on the CDH Telethon Aja Evans on the CDH Telethon Lance Bass on the CDH Telethon Billy Gilman on the CDH Telethon Lance Moore on the CDH Telethon Brant Daugherty on the CDH Telethon Larry Holmes on the CDH Telethon Bret “The Hitman” Hart on the CDH Telethon Larry Wilcox on the CDH Telethon Brett Favre on the CDH Telethon Lee Montgomery on the CDH Telethon Brian Austin Green on the CDH Telethon Lil Scrappy on the CDH Telethon Charlie Lawson on the CDH Telethon Lisa Lampanelli on the CDH Telethon Chase d’Arnaud on the CDH Telethon Luann de Lesseps on the CDH Telethon Chris Daughtry on the CDH Telethon Mandy Moore on the CDH Telethon Chris Rankin on the CDH Telethon Marla Maples on the CDH Telethon Chris Weidman on the CDH Telethon Matt Roloff on the CDH Telethon Chumlee on the CDH Telethon Matty Mullins on the CDH Telethon Colin Egglesfield on the CDH Telethon Melissa Gilbert on the CDH Telethon Craig Robert Young on the CDH Telethon Melissa Joan Hart on the CDH Telethon Danica McKellar on the CDH Telethon Michael Campion on the CDH Telethon David DeLuise on the CDH Telethon Micky Morandini on the CDH Telethon David Koechner on the CDH Telethon Mike Bushell on the CDH Telethon Dean Cain on the 2020 CDH Telethon Milena Roucka on the CDH Telethon Debbie Gibson on the CDH Telethon Oscar Nunez on the CDH Telethon Doc Antle on the CDH Telethon Paul Amos on the CDH Telethon Downtown Julie Brown on the CDH Telethon Paula Deen on the CDH Telethon Dr. Drew on the CDH Telethon Pete Alonso on the CDH Telethon Drew Seeley on the CDH Telethon Peter Facinelli on the CDH Telethon Eric Roberts on the CDH Telethon Randy Couture on the CDH Telethon Ernie Hudson on the CDH Telethon Ryan Lochte on the CDH Telethon Graham Mctavish on the CDH Telethon Sean Astin on the CDH Telethon Gregg Olson on the CDH Telethon Sean Kingston on the CDH Telethon Hilary Shepard on the CDH Telethon Sonja Morgan on the CDH Telethon Ian McElhinney on the CDH Telethon Tawny Kitain on the CDH Telethon Jacob Young on the CDH Telethon Taye Diggs on the CDH Telethon Jared Goldberg on the CDH Telethon Thaddeus Lewis on the CDH Telethon Jaron Brown on the CDH Telethon Tim Murphy on the CDH Telethon Jeff Foxworthy on the CDH Telethon Tommy Lee on the CDH Telethon Jeff Lowe on the CDH Telethon Tony Ricca on the CDH Telethon Jesse Metcalf on the CDH Telethon Tori Spelling on the CDH Telethon Joey Lawrence on the CDH Telethon Vic Mignogna on the CDH Telethon John Finlay on the CDH Telethon Vince Neil on the CDH Telethon John Schneider on the CDH Telethon William Wisher on the CDH Telethon Jose Conseco on the CDH Telethon Joshua Dial on the CDH Telethon on the CDH Telethon Justin Coleman on the CDH Telethon Kate Linder on the CDH Telethon Kathy Najimy on the CDH Telethon Kevin Sorbo on the CDH Telethon Kim Alexis on the CDH Telethon 2020 Fundraisers

Raised over $30,000 in one day during the third annual CDH Brianna’s Birthday Fundraiser Telethon Brian’s Birthday Fundraiser Raised over $20,000 on #GivingTuesday Brittany’s Birthday Fundraiser Virtual Candles & Snowflakes Fundraiser Britt’s Birthday Fundraiser Virtual CDH Ribbons Fundraiser Bryce’s Birthday Fundraiser Black Friday Sale Caitlin’s Birthday Fundraiser Cyber Monday Sale Candice’s Birthday Fundraiser 4th Annual Trekking for CDH Candy’s Giving Tuesday Fundraiser Abraham Wachter’s Annual Birthday Fundraiser Cara’s Birthday Fundraiser Aimee’s Birthday Fundraiser In Memory of Isaiah Caren’s Birthday Fundraiser Alana’s Giving Tuesday and Colin’s 11th Birthday Fundraiser Carly’s Birthday Fundraiser Alexaundra’s Birthday Fundraiser Carole’s Birthday Fundraiser Alicia’s Birthday Fundraiser Carrie’s Birthday Fundraiser Allan’s Birthday Fundraiser Cat’s Birthday Fundraiser Alondra’s Birthday Fundraiser CDH Awareness Month Fundraiser in Memory of Shane Torrence Alyssa’s Birthday Fundraiser CDH Awareness Walk In Memory of Lincoln and in Honor of Liz Amanda’s Birthday Fundraiser in Memory of Amelia Cecilia’s Birthday Fundraiser in memory of Sophia Amanda’s Fundraiser in honor of Lizzy Charlene’s Birthday Fundraiser Amanda’s Birthday Fundraiser Chessie’s Birthday Fundraiser Amber’s Birthday Fundraiser Christina’s Birthday Fundraiser in Memory of Jaxon Dale Ana’s Birthday Fundraiser Stephens Andrea’s Birthday Fundraiser in Honor of Claire Christina’s Birthday Fundraiser Andy’s Giving Tuesday Fundraiser for CDH International Christina’s Birthday Fundraiser Angelica’s Birthday Fundraiser Christine’s Birthday Fundraiser Angel’s Birthday Fundraiser Cindy D’s Giving Tuesday Fundraiser for CDH International Anisah’s Birthday Fundraiser CJ’s Birthday Fundraiser Arianei’s Birthday Fundraiser Clarissa’s Birthday Fundraiser Arleth’s Birthday Fundraiser Clau’s Fundraiser Ashley’s Birthday Fundraiser For CDH International in Honor of Cody’s Birthday Fundraiser Jaxson Cole’s Birthday Fundraiser Ashley’s Birthday Fundraiser In Memory of Madison Colleen’s Birthday fundraiser in honor of Colin Aubrey’s Birthday Fundraiser in memory of Adian Coralees Giving Tuesday Fundraiser for CDH International Barb and Andrew Carr Share Their Family’s CDH Journey on Corinne’s Giving Tuesday Fundraiser for CDH International 2020 CDH Telethon Courtney’s Birthday Fundraiser Beatrice’s Birthday Fundraiser Crystal’s Fundraiser in memory of Jasmyne Beth’s Birthday Fundraiser in Honor of Trinity Cynthia’s Birthday Fundraiser Beth’s Fundraiser in memory of Christian Sloans Davis Danea’s Fundraiser for CDH International Beth’s Birthday Fundraiser Daniel’s Fundraiser in Memory of Jayden Billy’s Birthday Fundraiser Danielle’s Birthday Fundraiser for Pan-Mass Challenge Billy’s Birthday Fundraiser Danielle’s Birthday Fundraiser Billy’s Giving Tuesday Fundraiser Darin’s Birthday Fundraiser Bonnie’s Birthday Fundraiser David’s Birthday Fundraiser Bonnie’s Birthday Fundraiser Dawn’s Birthday Fundraiser in memory of Shane Bonnie’s Birthday Fundraiser Dawn’s Giving Tuesday Fundraiser Brandon’s Birthday Fundraiser Deborah’s Birthday Fundraiser in Memory of Celeste Brandon’s Giving Tuesday Fundraiser Dejah’s Birthday Fundraiser Brandon’s Giving Tuesday Fundraiser Dena’s Birthday Fundraiser Breanna’s birthday fundraiser in memory of Mallory Denise Cox’s Birthday Fundraiser for CDHi in Honor of Breanna’s Birthday Fundraiser Granddaughter Teagan Breann’s Giving Tuesday Fundraiser Diane’s Birthday Fundraiser 2020 Fundraisers (Continued)

Donna’s Birthday Fundraiser Jennifer’s Birthday Fundraiser Don’s Birthday Fundraiser Jennifer’s Giving Tuesday Fundraiser Elinas födelsedagsinsamling in Honor of Zoe Jennifer’s Giving Tuesday Fundraiser for CDH International Elise’s Birthday Fundraiser Jerad’s Birthday Fundraiser Elizabeth’s Giving Tuesday Fundraiser Jeremy’s Birthday Fundraiser Emily’s Birthday Fundraiser Jerry’s Giving Tuesday Fundraiser Emily’s Birthday Fundraiser Jessica’s Birthday fundraiser in memory of Stefan Erica’s Fundraiser in memory of Maddie Jessica’s Birthday Fundraiser Ericka’s Giving Tuesday Fundraiser Jessica’s Giving Tuesday Fundraiser Erinn’s Birthday Fundraiser Jessi’s Birthday Fundraiser Erin’s Fundraiser for CDH International Jhonna Marie’s Birthday Fundraiser In Memory of Julio Evi’s Birthday Fundraiser Jill’s Birthday Fundraiser Fitim’s Birthday Fundraiser Jimmy’s Birthday Fundraiser Fundraiser In honor of Alex’s 10th Birthday Johnathan’s Giving Tuesday Fundraiser Fundraiser in memory of Christian Casey Copley John’s Fundraiser for CDH International Gary’s Birthday Fundraiser Jordan’s Giving Tuesday Fundraiser Gatlin & Jessica’s Birthday Fundraiser Joseph’s Birthday Fundraiser Get Your Shine On Golf Tournament in Memory of Rae Ann Josiah’s Birthday Fundraiser Ginny’s Birthday Fundraiser Judy’s Birthday fundraiser in memory of Julius Gloria’s Fundraiser for CDH International in Honor of Reid Julie Gast’s Fundraiser in memory of Carter Greg’s Birthday Fundraiser in Memory of Brandon Julie’s Birthday Fundraiser in Memory of Landon Gwendolyn’s Birthday Fundraiser Justin’s Birthday Fundraiser Hannah’s Birthday Fundraiser Kaitlin’s Birthday Fundraiser Heather’s Birthday Fundraiser in memory of Hunter Kali’s Birthday Fundraiser In Honor of Jax Heather’s Giving Tuesday Fundraiser Karen’s Birthday Fundraiser In Honor of Granddaughter Eliana Heather’s Giving Tuesday Fundraiser Karen’s Birthday Fundraiser Heidi’s Giving Tuesday Fundraiser Karren’s Giving Tuesday Fundraiser Helene’s Birthday Fundraiser in Memory of Brielle Karyll’s Birthday Fundraiser In Memory of Prince Carl Henry’s 1st Birthday – CDH Fundraiser Katelynn’s Birthday Fundraiser In Honor of Connor Oldiges’s 4th Heavenly Birthday Kathy’s Birthday Fundraiser India’s Birthday Fundraiser Kathy’s Giving Tuesday Fundraiser Isabella’s Birthday Fundraiser in Memory of Bryson Kaytee Sunnie’s Birthday Fundraiser Isaiah’s Birthday Fundraiser Keith’s Birthday Fundraiser in memory of Elijah Ishita’s Birthday fundraiser in honor of Vihaan Keith’s Giving Tuesday Fundraiser It’s #GivingTuesday! Fundraiser Kelly’s Birthday Fundraiser Jacey’s Birthday Fundraiser Kelsie’s Birthday Fundraiser Jacoby’s Birthday Fundraiser Mellissa’s Birthday Fundraiser Kenya’s Birthday Fundraiser in Memory of Laila Noelle Jacquelyn’s Giving Tuesday Fundraiser Kimberly’s Birthday Fundraiser in honor of Brady Jacque’s Giving Tuesday Fundraiser Kirsten’s Birthday Fundraiser in Honor of Trinity Jade’s Birthday Fundraiser Kirstyn’s Giving Tuesday Fundraiser James’s Birthday Fundraiser Kristena’s Birthday Fundraiser Jamie’s Birthday Fundraiser Kristen’s Birthday Fundraiser Janina’s Giving Tuesday Fundraiser Krysta’s Fundraiser For CDH International in Memory of Evander Jay’s Birthday Fundraiser in honor of Scarlett Maximus Jay’s Birthday Fundraiser Krystle’s Birthday Fundraiser Jeff’s fundraiser in memory of Joshua Kyle’s Birthday Fundraiser Jeff’s Giving Tuesday Fundraiser Lacey’s Giving Tuesday Fundraiser Jennifer Birthday Fundraiser Lakyn’s Birthday Fundraiser Jennifer Birthday Fundraiser Laquicia’s Giving Tuesday Fundraiser Jennifer’s Birthday Fundraiser in Honor of KJ Laura’s Birthday Fundraiser 2020 Fundraisers (Continued)

Laura’s Giving Tuesday Fundraiser Mellissa’s Giving Tuesday Fundraiser Laurelin’s Birthday Fundraiser Meredith’s Birthday Fundraiser Laurelin’s Giving Tuesday Fundraiser Michelle’s Birthday Fundraiser Laurie and Chaia’s Birthday Fundraiser Mickie’s Birthday Fundraiser Laurie’s Birthday Fundraiser Mikala’s Birthday Fundraiser Lee’s Birthday Fundraiser in Memory of ZAREK Ryan “zoom” Mindy’s Birthday Fundraiser for CDH International in Memory of Halterman Matthew Leota’s Giving Tuesday Fundraiser Mindy’s Giving Tuesday Fundraiser Lesley’s Birthday Fundraiser Missie’s Birthday Fundraiser Lexi’s Birthday Fundraiser in honor of Ryder Misty’s Birthday Fundraiser Lexxus’s Birthday Fundraiser MK’s CDH Awareness Month Fundraiser in Memory of Payton Libbie’s Giving Tuesday Fundraiser Brenner Lillian’s Birthday Fundraiser Mogan’s Birthday Fundraiser Lisa’s Birthday Fundraiser in Honor of Benjamin Monica’s Birthday Fundraiser for CDH International in Honor of Lisah’s Birthday Fundraiser Abigail Lisa’s Birthday Fundraiser Monica’s Birthday Fundraiser Lisa’s Fundraiser for CDH International Monyque’s Birthday Fundraiser in Memory of Kensington Lori’s Birthday Fundraiser Morgan’s Birthday Fundraiser Lozo’s Birthday Fundraiser MsAngel’s Birthday Fundraiser Lynn’s Birthday Fundraiser, Harper’s Harvest My Giving Circle Contest Lynne’s Birthday Fundraiser Nadhia’s Birthday Fundraiser Madison’s Fundraiser for CDH International Nahtahsha’s Birthday Fundraiser Marcus’s Birthday Fundraiser Natalie’s Birthday Fundraiser Margarita’s Birthday Fundraiser Nichole’s Birthday Fundraiser Mariah’s Birthday Fundraiser In Memory of Eli Jr. Nick’s Birthday Fundrasier In Honor of Oona Mariah’s Birthday Fundraiser Nicki’s Giving Tuesday Fundraiser for CDH International Maribel’s Birthday Fundraiser in honor of Eoghan Nicole’s Birthday Fundraiser Marion’s Birthday Fundraiser in Memory of Duncan Nicolle’s GivingTuesday Fundraiser in memory of Kasey Marissa’s Birthday Fundraiser Nicusor’s Birthday Fundraiser Marlene’s Birthday Fundraiser Nikki’s Giving Tuesday Fundraiser for CDH International Marrah’s Birthday Fundraiser for CDH International in Honor of Oona’s Birthday Fundraiser Remmington Pamela’s Giving Tuesday Fundraiser Mary Beth’s Birthday Fundraiser Panagiotis’s Birthday Fundraiser Mary Kate’s Fundraiser in memory of Payton Patricia’s Birthday Fundraiser In Memory of Amber Mary Kate’s GivingTuesday Fundraiser in memory of Payton Patrick’s Birthday Fundraiser Mary’s Birthday Fundraiser Pau’s Birthday Fundraiser Matthew’s Birthday Fundraiser in Honor of Avery Pay the Piper Fundraiser McKayla’s Birthday Fundraiser Peggy’s Giving Tuesday Fundraiser Mee Mee’s Birthday Fundraiser Petunia’s Birthday Fundraiser Megan’s birthday fundraiser in honor of Natalie Phylli’s Birthday Fundraiser Meganne’s Birthday Fundraiser Phyllis’s Birthday Fundraiser Megan’s Birthday Fundraiser Pierre’s Birthday Fundraiser Meg’s Birthday Fundraiser Poppynmimi’s Birthday Fundraiser Fundaiser Melanee’s Birthday Fundraiser In Memory of Makenzee Princess Harper Fundraiser for CDH Awareness Month Melinda’s GivingTuesday Fundraiser to Honor Jude’s 4th Princess Harper’s Giving Tuesday Fundraiser Birthday Raccolta fondi per il compleanno di Martina Melinda’s Birthday Fundraiser Rachael’s Giving Tuesday Fundraiser for CDH International Melissa’s Birthday Fundraiser Rachel’s Birthday Fundraiser Melissa’s Fundraiser in honor of Kieran 2020 Fundraisers (Continued)

Rachel’s Birthday Fundraiser Shani’s Birthday Fundraiser Ragan’s Birthday Fundraiser Shannon’s Birthday Fundraiser in Memory of Liam Raising Money For A Cause I Care About Shannon’s Birthday Fundraiser Raising Money For A Cause I Care About (Christie Miller) Shannon’s Giving Tuesday Fundraiser Raising Money For A Cause I Care About by Lisa Miller Sharon’s Giving Tuesday Fundraiser Raising Money For A Cause I Care About by Sara Solorzano Shawn’s Birthday Fundraiser Raising Money For a Cause I Care About in Honor of Aiden Sheila’s Birthday Fundraiser Raising Money For A Cause I Care About in Memory Of Owen Sheila’s Birthday Fundraiser Densmore Shelly’s Birthday Fundraiser in Honor of Logan Raising Money For a Cause I Care About in Memory of River Shelly’s Fundraiser in memory of Jayden Raising Money For A Cause I Care About in Memory of Samuel Sherrie’s Birthday Fundraiser Raising Money For CDH Awareness Month in Honor of Ian Meats Sherry’s Birthday Fundraiser in Honor of Jacob Raising Money For CDH International, In Honor of My Amazing Siyakuzukisa’s Birthday Fundraiser Son Sean Sonia’s Birthday Fundraiser Raising Money in Memory of our sweet Kaleigh! Steve’s Birthday Fundraiser in Honor of Sofia Ray’s Birthday Fundraiser Strângerea de fonduri pentru ziua de naştere a Anei Recaudación de fondos de cumpleaños de Toni J Strângerea de fonduri pentru ziua de naştere a Byancăi – Recaudación de fondos del GivingTuesday de Judith Fundraiser by Byanca Sileș Regenea’s Birthday Fundraiser Strângerea de fonduri pentru ziua de naştere a Cristinei Regina’s Birthday Fundraiser Strângerea de fonduri pentru ziua de naştere a lui Bender Renato’s Birthday Fundraiser Supporting CDH International for Ryden’s Third Birthday Retta’s Birthday Fundraiser Sweet Isabel’s Birthday Fundraiser For CDH International Reynaldo’s Birthday Fundraiser in memory of AJ Tabitha’s Birthday Fundraiser Riley William’s Birthday Fundraiser Tamara’s Giving Tuesday Fundraiser Robbie’s Birthday Fundraiser in memory of Camden Ali’s 3rd Tammy’s Birthday Fundraiser Birthday Tanya’s Birthday Fundraiser for CDH International in Memory of Robert’s Birthday Fundraiser Ollie Rob’s Birthday Fundraiser Tara’s Birthday Fundraiser In Honor of Brandon Rob’s Birthday Fundraiser Terri’s GivingTuesday fundraiser in honor of Abigail Rob’s Birthday Fundraiser Tiffany’s Birthday Fundraiser in Honor of Holden Robyn’s Birthday Fundraiser Timothy’s Birthday Fundraiser Rose’s Giving Tuesday Fundraiser Tina’s Birthday Fundraiser Ruben’s Birthday Fundraiser Tina’s Birthday Fundraiser Ryan’s Birthday Fundraiser in Memory of Alannah Tracy’s Giving Tuesday Fundraiser Sabrina’s Birthday Fundraiser Travis’s Birthday Fundraiser Sam and Margaret’s 10th Trishia’s Birthday Fundraiser Samantha’s Fundraiser in honor of Samar Ursachi’s Birthday Fundraiser Samantha’s Birthday Fundraiser Vanessa’s Birthday Fundraiser Sarah’s Birthday Fundraiser for CDH International in Honor of Verjaardagsinzamelingsactie van Sabrina Austin Violeta’s Birthday Fundraiser Sarah’s Birthday Fundraiser for CDH International in memory of Wendy’s Birthday Fundraiser Lucas William’s Birthday Fundraiser Sarah’s Birthday Fundraiser in Honor of Cody Yuri’s Birthday Fundraiser Sarah’s Birthday Fundraiser Sarah’s Birthday Fundraiser Sarah’s Birthday Fundraiser Sara’s Birthday Fundraiser Savannah’s Birthday fundraiser in honor of JJ Shana’s Birthday Fundraiser Shaniera’s Giving Tuesday Fundraiser Patient Support - [email protected] Contact Us General Questions - [email protected] Donations - [email protected] Corporate Giving - [email protected] www.cdhi.org Fundraising - [email protected] www.cdhboards.org (Patient Support) https://www.linkedin.com/company/cdhi/ www.cdhresearch.org @cdhawareness https://www.pinterest.com/cdhawareness/

In 2021, we will continue our work in research and awareness, but also push a new momentum in helping CDH patients and families directly on a global level.

We hope to add at least 2 more NGO's, build new alliances with other nonprofits to further help for all of our children and to begin some of our most important research work.

Through grant opportunities and new avenues of fundraising, we hope to increase income to be able to hire 3 more employees and offer more financial assistance to patient families, despite the ensuing pandemic and global economic instability. CDH doesn't take excuses and neither do we.

It is continually an honor to work with all of you, to serve all the families who need us, to help save these children. We look forward to all the incredible progress that 2021 will bring and thank you for allowing us to a part of your families and your journeys in fighting CDH.

Happy New Year from everyone at CDHi and CHERUBS! "The smallest act of kindness is worth more than the grandest intention" - Oscar Wilde