Umass Dartmouth Center

UMass Dartmouth Center For Rehabilitation Engineering

~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~ ~~~~~~~~~~~~~~~~~~~ 2016 ANNUAL REPORT ~~~~~~~~~~~~~~~~~~ ~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~

SHARE FOUNDATION, INC.

Society For Human Advancement Through Rehabilitation Engineering Foundation, Inc. Highlights of 2016 Introduction

Client Services ------The University of Massachusetts Dartmouth In FY16, the Center provided 836 service transactions for people Center for Rehabilitation Engineering is one of many centers of with disabilities. The number of different clients served totaled 216. We the University of Massachusetts Dartmouth. The day-to-day operation of were able to place 51 new systems with clients and 73 new clients were the Center is under the direction of the Director of the Center for added to the list of people we have served. The number of system Rehabilitation Engineering who reports administratively to the Dean of modifications, equipment repairs, equipment loans, services provided the College of Engineering. The Chancellor of UMass Dartmouth and client evaluations totaled 785. Since 1981, we have provided appoints the Director upon recommendation of the Board of Directors of services to 3,679 clients in 39 different states and eight countries. the Center. The Center derives its financial support primarily through contracts for services and through the SHARE Foundation. The primary Special Events ------purpose of the Center is to provide direct support in the form of SHARE held its annual walkathon in October starting and equipment and services to individuals with disabilities, particularly those finishing at the Carousel in Fall River, MA. This year’s event was who are physically unable to communicate independently. A second sponsored by BayCoast Bank, Mechanics Cooperative Bank, the Carney purpose is to involve UMass Dartmouth faculty and students in applied Family Charitable Foundation, and Colonial Air. Participants enjoyed research and development of procedures and products intended to riding the carousel and snacked on pizza and pastry. The walk was along improve the quality of life of children and adults with disabilities. The the waterfront to the Iwo Jima Memorial. Walkers and workers were Center, established by an act of the University Board of Trustees in 1987, offered their choice of SHARE tee shirts, coffee mugs or caps. The maintains a research and development lab in the engineering building. event raised more than $20,000. The Ben Boyle/Ron Kostyla Golf The Center’s administrative offices and client evaluation/training facility Classic this past summer drew 80 golfers and brought in about $8,300. are located in Modular Building 3 on the UMass Dartmouth campus. This year, the Classic Car Show and Flea market attracted 35 vendors, 200 classic cars and more than 800 visitors. Proceeds exceeded $6,300. The Society for Human Advancement through Rehabilitation SHARE is grateful to all the volunteers who worked so hard to make these events so enjoyable and beneficial to our clients. SHARE would Engineering (SHARE) Foundation, Inc. is a nonprofit like to partner with similar minded organizations in raising funds. Massachusetts corporation with headquarters at 14 Autumn Court, North Dartmouth, Massachusetts. It was incorporated in 1982 by Professors Foundation/Endowment Support------Lester W. Cory, Philip H. Viall and Richard Walder for the primary purpose of ensuring access to appropriate technology for children and SHARE was the recipient of a number of grants this year adults with severe disabilities, particularly those who are physically including $5,000 from the Rodgers Family Foundation, $12,500 from the unable to independently communicate. An elected, 12-person Board of Grimshaw-Gudewicz Foundation, $1,000 from the Fall River Directors whose members serve three-year, renewable terms governs the Commission on Disabilities and $1,000 from the Ayres Foundation. SHARE Foundation. SHARE is the primary financial supporting agency SHARE continues to experience financial challenges and of the UMass Dartmouth Center for Rehabilitation Engineering and continues to pursue both old and new sources of funding. Going devotes essentially all of its income to the support of the Center’s forward, we will continue to explore ways of conducting business as activities. efficiently and economically as possible. SHARE is categorized by the IRS as a 501 (c) (3) Public Charity. Donations to Public Charities can be tax deductible up to 50% of a donor’s income. WHERE OUR CLIENTS ARE SHARE Foundation Board of Directors 2016

Dr. Richard J. Warren, Chair Gerald McCarthy, Vice Chair Verena I. Lisinski, Clerk Prof. Philip H. Viall, Treasurer

Dr. Claire Carney Edward Kurtz Jeanne F. Carrier Sidney Martin Prof. Lester W. Cory Atty. Joseph B. McIntyre Gen. James D’Agostino Linda Texceira Other : Alabama, Arizona, Arkansas, California, Colorado, Delaware, Georgia, Illinois, Indiana, Iowa, Kansas, Kentucky, Louisiana, Maryland, Michigan, Missouri, North Carolina, North Dakota, Ohio, Oklahoma, Oregon, Pennsylvania, South Carolina, Texas, Utah, Virginia, Washington, Washington, D.C., West Virginia, Wisconsin, Azores, Canada, Colombia, England, Nigeria, Panama, Poland and Sri Lanka. Directors Emeritus ABOUT OUR CLIENTS

Elizabeth Alcock Jean Limoges Dr. Thomas Curry Sen. Mark Montigny Nicholas Iannuzzi Prof. Walter Mierzejewski

Center for Rehabilitation Engineering Board of Directors

Dr. Claire Carney Prof. Philip Viall Prof. Lester W. Cory Dr. Richard Warren Paige Gibbs Other: Amputee, Accident, Cerebral Ataxia, COPD, Deaf, Ehlers- Danlos Syndrome, Epilepsy, Friedreich’s Ataxia, Joseph Machado’s Disease, Neuropathy, Paraplegic, Seizures, Spina Bifida & Others. 2016 Client Count 2016 2015 STATES

New Systems 51 52 MA 810 Systems Modified 15 22 RI 22 Equipment Repair 276 331 IN 2 Services Provided 373 513 PA 1 Eval./Consultations 86 95 ME 1 Equipment Loaned 35 2 CT 1 Speaking Engagements 9 5

2016 Client Profile Conditions

Cerebral Palsy 92 Tourette’s Syndrome 2 Multiple Sclerosis 77 Posttraumatic Stress Disorder 3 Stroke 59 Cervical Myelopathy 2 Amyotrophic Lateral Sc 42 Joseph Machado’s Disease 1 13 Quadraplegia 81 Learning Disability 6 Spinal Cord Injury 67 Amputee 1 16 Traumatic Brain Injury 107 Spino Cerebella Ataxia 7 Post-Polio Syndrome 12 Dementia 2 Blind 27 Huntington’s Chorea Disease 1 Cancer 14 Spina Bifida 9 Arthrogryposis 10 Progresssive Supranclear Palsy 1 10 Arthritis 55 26 Autism 3 COPD 8 ADD 4 Deaf 13 Ehler’s Danlos Syndrome 4 Myasthenia Gravis 3 Esophageal Cancer 2 Muscular Dystrophy 13 Cortico Basal Degeneration 4 Severe Expressive Aphasia 3 Developmental Delay 2 Parkinson’s Disease 36 21 Hard of Hearing 3 4 Seizures 16 Rheumatoid Arthritis 6 Neuropathy 3 PKAN Neurological Disorder 2 Brain Injury 9 Spinal Muscular Atrophy 4 Friedreich’s Ataxia 12 Guillain-Barre Syndrome 2 Essential Tremor 2 Misc 11 7 5

TOTAL SERVICE TRANSACTIONS 836 NUMBER OF DIFFERENT CLIENTS SERVED 216 NUMBER OF NEW CLIENTS SERVED 73 Budget For Fiscal Year 2017 Key Personnel SHARE FOUNDATION INCOME UMass Dartmouth Center for Rehabilitation Engineering Prof. Lester W. Cory, Director Car Show/Flea Market 5,500.00 Prof. Philip Viall, Associate Director Other Donations 25,000.00 Scott McGarty, Rehabilitation Technician Thomas Meggison, Computer Technologist Interest/Stocks/Bonds 1,000.00 Beverly Thorn, Client Services Coordinator Golf Tournament 8,000.00 Mark Whittaker, Rehabilitation Engineer Grants 10,000.00 Stan Bielusiak, Rehabilitation Technician Christine Botelho, Independent Contractor Mid Year Appeal 15,000.00 Linda Einis, Independent Contractor United Ways and COMEC 2,000.00 Marion Hamilton, Independent Contractor Walk-A-Thon 22,000.00 Lisa Yauch-Cadden, Independent Contractor End of Year Appeal 23,000 .00 Eric Grossman, Independent Contractor SHARE Foundation, Inc. TOTAL INCOME 111,500.00 Linda J. Vandal, Administrative Assistant SHARE FOUNDATION EXPENSES Honorary Advisory Board Accountant Services 1,500.00 Richard Arthur Aaron Mittleman Administrative Help 12,000.00 John R. Brazil Mark Montigny Student Help 1,700.00 Michael Dukakis John D. Moore Robert Dole Mary Sullivan Insurance and Fees 2,600.00 John F. Kerry Office Supplies 1,200.00 Postage and Printing 2,000.00 Public Information 4,100.00 Non-discrimination Policy Statement Walk-A-Thon/Car Show/Golf 4,500.00 It is the policy of the University of Massachusetts Dartmouth Consultants (Writer/Fund Raiser) 2,000.00 Center for Rehabilitation Engineering and the Society for Human Advancement through Rehabilitation Engineering Foundation, Inc. Transfer to Rehabilitation Center 65,100.00 not to discriminate against any volunteer or applicant for Equipment & Misc 2,000.00 employment, or employee, applicant for membership, or member, Mileage 6,000 .00 or applicant for services, or client on the basis of race, color, creed religion, national origin, age, gender, sexual preference, or TOTAL EXPENSES 106,500.00 disability. It is our policy to comply with all requirements of law Transfer to SHARE Savings $5,000.00 and regulations, including the Americans with Disabilities Act, Total dollar income required from all sources: $323,900.00 with respect to our clients, officers, staff, employees and volunteers. Budget For Fiscal Year 2017

REHABILITATION CENTER INCOME Grants and Contracts 207,000.00 One time MRC supplement 2,000.00 Donations 400.00 Endowment Income 8,000.00 In Kind Contribution from UMD 11,000.00 Overhead Contribution from UMD 2,000.00 Transfer From SHARE 65,100 .00

TOTAL INCOME 295,500.00

REHABILITATION CENTER EXPENSES UMD MRC Contract Admin Fee 18,800.00 UMD share of MRC supplement 200.00 Administrative Help 15,000.00 Client Services Help 95,000.00 Client Service Consultants 6,000.00 Technical Help 101,000.00 Student Help 1,000.00 Equipment Purchases 30,000.00 Components 2,000.00 Supplies 2,000.00 Mileage 11,500.00 Occupancy 13,000 .00 TOTAL EXPENSES 295,500.00