2017-2018 Bill 632: Cystic Fibrosis Awareness Month - South Carolina Legislature Online

1 South Carolina General Assembly 2 122nd Session, 2017-2018 3 4 S. 632 5 6 STATUS INFORMATION 7 8 Senate Resolution 9 Sponsors: Senator Shealy 10 Document Path: l:\s-res\ks\033cyst.kmm.ks.docx 11 12 Introduced in the Senate on April 18, 2017 13 Adopted by the Senate on April 18, 2017 14 15 Summary: Cystic Fibrosis Awareness Month 16 17 18 HISTORY OF LEGISLATIVE ACTIONS 19 20 Date Body Action Description with journal page number 21 4/18/2017 Senate Introduced and adopted ( Senate Journalpage 6) 22 23 View the latest legislative information at the website 24 25 26 VERSIONS OF THIS BILL 27 28 4/18/2017 29 1 2 3 4 5 6 7 8 9 A SENATE RESOLUTION 10 11 TO RECOGNIZE MAY 2017 AS “CYSTIC FIBROSIS 12 AWARENESS MONTH” IN SOUTH CAROLINA. 13 14 Whereas, cystic fibrosis, commonly referred to as CF, is a genetic 15 disease affecting approximately thirty thousand children and adults 16 in the United States and nearly seventy thousand children and 17 adults worldwide, over four hundred of whom live in South 18 Carolina; and 19 20 Whereas, a defective gene causes the body to produce an 21 abnormally thick, sticky mucus that clogs the lungs, and these 22 secretions produce life-threatening lung infections and obstruct the 23 pancreas, preventing digestive enzymes from reaching the 24 intestines to help break down and absorb food; and 25 26 Whereas, more than ten million Americans are symptomless 27 carriers of the defective cystic fibrosis gene, and cystic fibrosis 28 occurs in approximately one of every three thousand five hundred 29 live births in the United States; and 30 31 Whereas, the median age of survival for a person with cystic 32 fibrosis is forty-one years; and 33 34 Whereas, with advances in the treatment of cystic fibrosis, the 35 number of adults with cystic fibrosis has steadily grown, and 36 approximately nine hundred new cases of cystic fibrosis are 37 diagnosed each year; and 38 39 Whereas, fifty-one percent of the cystic fibrosis population is 40 eighteen years of age and older, and people with cystic fibrosis 41 have a variety of symptoms attributed to the more than one 42 thousand eight hundred mutations of the cystic fibrosis gene; and

[632] 2 1 2 Whereas, infant blood screening to detect genetic defects is the 3 most reliable and least costly method to identify persons likely to 4 have cystic fibrosis; and 5 6 Whereas, early diagnosis of cystic fibrosis permits early treatment 7 and enhances quality of life and longevity, and the treatment of 8 cystic fibrosis depends on the stage of the disease and the organs 9 involved; and 10 11 Whereas, clearing mucus from the lungs is an important part of the 12 daily cystic fibrosis treatment regimen, and other types of 13 treatments include inhaled antibiotics and pancreatic enzymes, 14 among others; and 15 16 Whereas, there are four world-class treatment centers in South 17 Carolina that specialize in the diagnosis of cystic fibrosis and the 18 care of persons with cystic fibrosis; and 19 20 Whereas, a critical component of treating patients with cystic 21 fibrosis includes access to innovative treatments, which can play a 22 crucial role in the lives of patients with cystic fibrosis; and 23 24 Whereas, improving the length and quality of life for people with 25 cystic fibrosis starts with awareness. Now, therefore, 26 27 Be it resolved by the Senate: 28 29 That the members of the South Carolina Senate, by this resolution, 30 recognize May 2017 as “Cystic Fibrosis Awareness Month” in 31 South Carolina. 32 XX 33

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