Systemic-Wholistic in BASE: 6-Year Longitudinal Analyses

Supplemental Materials

The Role of Morbidity for Proxy-Reported Well-Being in the Last Year of Life

by K. Gerlach et al., 2017, Developmental Psychology

http://dx.doi.org/10.1037/dev0000368 Appendix Examples of studies examining decline trajectories in the last year of life Wave/s N Approach Reporter

Measurement G Outcome Findings interval r o Va ria u ble p

d e f i n i n g

d o m a i n Studies without multiple observations in the last 6 months of life Con 1 1,pr ca 4re al st * 2 i nc tr l with relative stability to 1 8 Inf 5 a 1pr to Wco w urn2 2* n1 6oxhp- (s ncr m 0 * 2 e in e o 1 * a a g t r 4 n 1, l bo le r e 2 d 0 st tto lIt o t 0 y f r 1 m u a 3 p n j t c e 2 a 1 obo t co c a * n 4 mtto i nc t l 1 – 3, di to 5re h 2. * 6 se p- tr me 0 o 0 n 1 t Studies with multiple h observations in the last 6 months C 4 e 747 to c7onde h * v p- c m e * e dise do Au e n r ase w Dr n y cate n Lr t e gor s e i Co 8* ev 9 co fr 3 co c vina * er 1 gn ai nc om l io om Di 10 w 8ag t co hn eh2r * eeb 3e o (s ncc ili (0 i in o wv er gi Dis 52 w 1 ag t co ho eh2r * ee 1 e o (s ncc iy (0 in o ao sp Qs Doa M w 1 pri t G co co wn2 d eeb 2 m o (ls nc aa 0 i in gs Gi 3* w 8 c Qco tl esia ee 5 a f o nc ep l u h symptom cognitive functioning, burden and global QoL Ha 1 b 8, di to f co C rri2s + i o 6 agl p- sunc aw 0 mn he at ei o o dx pe da He 1 e 8 lu pco ne ma2 - v 0 n o p hnc oQ 0 n s o 1 l ys L Lu 6- m 4, di to pi7co P nn2 101 ob 1 se p- Ancc et 0 * i o pa da r fluctuating pattern for 8* monthly 74 – renal Functional organ failure patients Murtagh et al., 1–23* disease status concurrent* functional status stable 2011 only (physical across the last year with function, steep decline in the last dependency) month Rabkin et al., 2–21* monthly 53 – cancer only PA, NA, concurrent* Positive emotional balance 2009 depressive at all waves, no decline symptoms in affect Semionov et 2* biweekly 45 – cancer only Symptom concurrent* Worsening of symptoms al., 2012 prevalence with impending death , and severity though in part not sign. Stabenau et 12* monthly 213 number of bottom-up 4 ADLs, concurrent* five distinct trajectories in al., 2015 disabilities the year before hospice Tang et al., 7± 6* biweekly 313 – cancer only 9 IQDAoLLs concurrent* symptom distress, anxiety, 2014 (a) depression, perceived burden for others each associated with poor QOL as death approaches

,social, of well-being and spiritual WB, overall QOL. Declines QoL steepest for physical dimension. Note. CNS = Central Nervous System. PA = Positive Affect. NA = Negative Affect. QoL = Quality of Life. WB = well-being, life satisfaction. I/ADL = Instrumental/Activities of Daily Living. Top- down = predefined grouping method applied (e.g., by disease category) Bottom- up = grouping by patterns emerging from the data. * self-reports. ** proxy-reports.