L.S. Lorenz, November 2010, Page 1

A Sampling of Resources on Photovoice and Photo-elicitation in Health, Illness, and Medicine

Some Internet Photovoice/Photo-elicitation Resources Lorenz, Laura S. and Jon A. Chilingerian. (1899). Using visual and narrative methods to achieve fair process in clinical care. Journal of Visualized Experiments (JoVE). http://www.jove.com/index/Details.stp?ID=2342. Lorenz, Laura S. (2010 July). Talking with pictures: Fostering dialogue and hope in health and community." Webinar, Clinical and Translational Science, University of Nebraska Medical Center. (fyi, Skip the first 4:15 minutes!! They started recording before we actually started the webinar!) http://192.198.54.173:8080/ess/echo/presentation/7fc92752-df3e-489e-b58c- 762047f64d1b. Lorenz, Laura S. and Barbara Webster. (2009). Doing your own photovoice project: a simple guide for support groups. http://www.brainline.org/multimedia/presentations/photovoice/Photovoice_Facilitator s_Guide.pdf . “Brain Injury X-Posed: The Survivor’s View.” An exhibit of 50 photographs and captions by brain injury survivors. Available for viewing on the Brainline.org website at: http://www.brainline.org/multimedia/photovoice.html and on the Brain Injury Association of Massachusetts (BIA-MA) website at http://www.biama.org/whatdoes/photovoiceindex.html. www.lslorenz.com. Dr. Lorenz’s personal website, with photos and captions from photovoice projects with brain injury survivors in Framingham, Massachusetts; youth living in Mdantsane Township, South Africa; and girls in Lowell, Massachusetts at http://www.lslorenz.com/currentprojects.htm; and links to brain injury-related sites at http://www.lslorenz.com/links.htm.

Photovoice Review Articles Catalani, C., & Minkler, M. (2010). Photovoice: A Review of the Literature in Health and Public Health. Health Education & Behavior, 37(3), 424-451. Hergenrather, K. C., Rhodes, S. D., Cowan, C. A., Bardoshi, G. and S. Pula. (2009). Photovoice as community-based participatory research: A qualitative review. American Journal of Health Behavior, 33(6), 686-98.

Using Participatory Visual Methods (Photovoice and Photo-elicitation) with Patients and Communities: A Sampling Baker, T. A., & Wang, C. C. (2006). Photovoice: Use of a participatory action research method to explore the chronic pain experience in older adults. Qualitative Health Research, 16(10): 1405-1413. Berland, G. (2007). The view from the other side—Patients, doctors, and the power of a camera. The New England Journal of Medicine, 357(25): 2533-2536. Castleden, H., Garvin, T., & Nation, H. (2008). Modifying Photovoice for community- based participatory Indigenous research. Social Science & Medicine, 66(6), 1393- 1405. L.S. Lorenz, November 2010, Page 2

Cooper, C. M., & Yarbrough, S. P. (2010). Tell Me-Show Me: Using Combined Focus Group and Photovoice Methods to Gain Understanding of Health Issues in Rural Guatemala. Qualitative Health Research, 20(5), 644-653. Dyches, T. T., Cichella, E., Olsen, S. F., and Mandleco, B. (2004). Snapshots of life: Perspectives of school-aged individuals with developmental disabilities. Research and Practice for Persons with Severe Disabilities, 29(3), 172-82. Frith, H., & Harcourt, D. (2007). Using photographs to capture women's experiences of chemotherapy: Reflecting on the method. Qualitative Health Research, 17(10), 1340-1350. Guillemin, M. 2004. Understanding illness: Using drawings as a research method. Qualitative Health Research 14: 272-289. Hagedorn, M. I. (1996). Photography: An aesthetic technique for nursing inquiry. Issues in Mental Health Nursing, 17(6), 517-527. Halifax, N. V., Yurichuk, F. Meeks, J. And E. Khandor. (2008). Photovoice in a Toronto community partnership: Exploring the social determinants of health with homeless people. Progress in Community Health Partnerships, 2(2), 129-36. Hodgetts, D., Radley, A., Chamberlain, K., and A. Hodgetts. (2007). Health inequalities and homelessness: Considering material, spatial and relational dimensions. Journal of Health Psychology, 12(5), 709-25. Lorenz, Laura S. (2011 forthcoming). A way into empathy: A ‘case’ of photo-elicitation in illness research. Health: An Interdisciplinary Journal for the Social Study of Health, Illness and Medicine 12(2). Special Issue ‘Another way of knowing: Art, disease, and illness experience’ Guest Editors Alan Radley and Susan Bell (March). Lorenz, Laura S. (2010 April). Brain injury survivors: Narratives of rehabilitation and healing. Boulder, CO: Lynne Rienner Publishers, Inc. Lorenz, Laura S. and Bettina Kolb. (2009). Involving the public through participatory visual methods. Health Expectations 12: 262-274. Ornelas, I. J., Amell, J., Tran, A. N., Royster, M., Armstrong-Brown, J., & Eng, E. (2009). Understanding African American Men's Perceptions of Racism, Male Gender Socialization, and Social Capital Through Photovoice. Qualitative Health Research, 19(4), 552-565. Radley, A., & Bell, S. (2007). Artworks, collective experience and claims for social justice: the case of women living with breast cancer. Sociology of Health & Illness, 29(3): 366-390. Radley, A., & Taylor, D. (2003). Remembering one’s stay in hospital: a study in photography, recovery and forgetting. Health: An Interdisciplinary Journal for the Social Study of Health, Illness and Medicine, 7(2): 129-159. Rhodes, S. D., Hergenrather, K. C., Wilkin, A.M. and C. Jolly. (2007). Visions and Voices: Indigent persons living with HIV in the southern United States use photovoice to create knowledge, develop partnerships, and take action. Health Promotion Practice, 9(2), 159-169. Rich, Michael, Steven Lamola, Jason Gordon, and Richard Chalfen. 2000. Video intervention/prevention assessment: A patient-centered methodology for understanding the adolescent illness experience. Journal of Adolescent Health 27: 155-165. L.S. Lorenz, November 2010, Page 3

Rich, Michael, S. A. Taylor, and Richard Chalfen. (2000). Illness as a social construct: Understanding what asthma means to the patient to better treat the disease. Journal of Quality Improvement, 26(5): Strack, Robert W., Cathleen Magill, and Kara McDonagh. 2004. Engaging youth through photovoice. Health Promotion Practice 5(1): 49-58. Thompson, N. C., Hunter, E. E., Murray, L., Ninci, L., Rolfs, E. M., & Pallikathayil, L. (2008). The experience of living with chronic mental illness: A photovoice study. Perspectives in Psychiatric Care, 44(1), 14-24. Wang, Caroline C. and Mary Ann Burris. 1997. Photovoice: Concept, methodology, and use for participatory needs assessment. Health Education & Behavior 24(3): 369- 387. Wang, Caroline C., Mary Ann Burris, and X.Y. Ping. (1996). Chinese village women as visual anthropologists: A participatory approach to reaching policymakers. Social Science & Medicine, 42(10): 1391-1400.

Ethical Considerations of Using Photovoice with Patients and Communities Lorenz, Laura S. and Bettina Kolb. (2009). Involving the public through participatory visual methods. Health Expectations 12: 262-274. Wang, C. C. and Y. A. Redwood-Jones (2001). Photovoice ethics: Perspectives from Flint photovoice. Health Education & Behavior 28(5): 560-572.

Approaches to Analysis of Photographs Becker, Howard S. (1986). Doing things together: Selected papers. Evanston, Illinois: Northwestern University Press. Fleming, J., Mahoney, J., Carlson, E., & Engebretson, J. (2009). An Ethnographic Approach to Interpreting a Mental Illness Photovoice Exhibit. Archives of Psychiatric Nursing, 23(1), 16-24. Knoblauch H, Baer A, Laurier E, Petschke S, Schnettler B. Visual analysis: New developments in the interpretative analysis of video and photography. Forum Qualitative Sozialforschung/Forum: Qualitative Social Research; 2008. Lorenz, Laura S. (2010 September). Discovering a new identity. Sociology of Health and Illness, 32(6): 862-879. Lorenz, Laura S. (2010 December). Visual metaphors of living with brain injury: Exploring and communicating lived experience with an invisible injury. Visual Studies, 25(3), 210-23. Newbury, J., & Hoskins, M. L. (2010). Making Meaning in Context: The Puzzling Relationship Between Image and Metaphor. Journal of Constructivist Psychology, 23(3), 167-194. Riessman, Catherine Kohler. (2007). Narrative methods for the human sciences. Los Angeles: Sage Publications. Rose, Gillian. (2007). Visual methodologies: An introduction to the interpretation of visual materials (Second ed.). London: Sage Publications.