Steering Committee Meeting Minutes Wednesday, May 28, 2014

Group C: Community Supports Matt Janicki [email protected] Attending Larry Force [email protected] Absent Nancy Jokinen [email protected] Attending Phil McCallion [email protected] Absent

Group S: Screening Lucy Esralew [email protected] Attending Lin Nelson [email protected] Absent Melissa DiSipio [email protected] Attending

Group H: Health Care Ron Lucchino [email protected] Absent Baldev Singh [email protected] Attending Kathy Service [email protected] Attending [email protected] Attending Kathie Bishop [email protected] Attending Seth Keller [email protected] Attending Dawna Mughal [email protected] Attending Nabih Ramadan [email protected] Absent Mike Rafii [email protected] Absent

Group T: Training Kathryn Pears [email protected] Attending Kathie Bishop [email protected] Attending

Group A: Advocacy Mary Hogan [email protected] Regret Leone Murphy [email protected] Attending Kathy Srsic-Stoehr [email protected] Absent Sara Weir [email protected] Absent

Agenda:

1. Group T

The Curriculum information is being loaded on Power Point. The Philadelphia meeting at Jefferson University was excellent. An enormous amount of work was accomplished. The summary document of the meeting will be sent out to the Steering Committee along with the summary document of the reorganization of the Group. The Group had a great call last week with the co-chairs. Sites are being looked at to pilot the various curriculums. Maine and New York are scheduled for the summer with Pennsylvania in the fall (along with a couple of other sites). Kathie noted we need content reviewers more than volunteers in the group. Kathie noted that quite a few people at the Philadelphia meeting noted that NTG has a valuable product and should not sell itself short. The product should be a revenue producer.

2. June Meeting

The meeting is two weeks away. Be sure to visit the website to see the materials posted which will be presented at the meeting. NTG workshops are scheduled for the afternoons. NTG awards will be given at a reception on Monday night, June 16, 2014.

The large panel discussion will be Tuesday, June 17, 2014. Lucy has taken the lead on reaching out to the panelists. Lucy has heard from most of them. Seth will contact Alison Lozano. Lucy will reach out to Deborah Spitalnik. Registration is at about 200 participants. The July, 2015, conference is being planned for Los Angeles with support from AADMD and Special Olympics.

3. Group Updates

Group T - Kathie Bishop received her document back because it needs to be written in APA, 6 th-edition, formatting along with a request to remove NTG references. Matt and Kathie will decide who and how to contact the editor to see if we can be cut some slack.

Group S - Lucy and Melissa received a few interesting responses to using the screening tool and conducting pilot studies. Lucy will each out to Sandy. Nancy will get contact detail to her. Kathie said she is getting a lot of favorable comments in New York. Lucy asked all to suggest commenters contact Lucy so she can get direct feedback.

Group C – Larry and Nancy will present guidelines next Tuesday.

4. NAPA

Matt noted nothing new since last meeting. Matt said there is a meeting July 21, 2014, in Washington. Matt will not attend as he is out of the country. He and Seth will work to see if an NTG colleague can make it.

5. NDSS

Matt and Seth spoke to John Coleman who is Executive Director of NDSS. There is interest in doing a joint venture to develop a caregivers-booklet similar to the one NDSS just did for Down Syndrome and Aging. The booklet will be oriented to families. NTG will submit the text and NDSS will publish it. Kathy Service worked on the previous booklet with Julie Moran. The budget is something unknown but assume not huge. Lucy and Leone volunteered to help. NTG is not mentioned on the NDSS website. Seth will request NTG be noted on the dementia part of the NDSS website.

6. AADMD monthly calls

Seth will be listed as the past president and will not need to be on every AADMD phone call. Seth is concerned that the NTG will not be able to get their word out. Matt and Seth are suggesting that there be in ex officio position to participate in the AADMD calls. This type of position will allow NTG to be on the agenda. Matt Holder will be the new president.

7. Next meeting July 24, 2014 at 8 PM ET

Leone Murphy