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Fiscal Year 2019 Report to Congress Program Highlights

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Fiscal Year 2019 Report to Congress Program Highlights Fiscal Year 2019 Report to Congress (July 2018–June 2019) The CDC Foundation enjoyed a successful year of significant program accomplishments during the period of July 2018–June 2019. The CDC Foundation is an independent nonprofit and the sole entity created by Congress to mobilize philanthropic and private-sector resources to support the critical health protection work of the Centers for Disease Control and Prevention (CDC). The CDC Foundation is focused on one priority‒helping CDC improve the health and lives of people on a population basis. Since 1995, the CDC Foundation has launched more than 1,000 programs and raised over $888 million. The CDC Foundation managed more than 200 CDC-led programs in the United States and in 142 countries last year. The CDC Foundation had a successful year during the period of July 1, 2018–June 30, 2019 (FY 2019) in its efforts to extend the life-saving work of CDC. Below are program highlights, financial highlights and a listing of contributors. Additional detailed financial information, including the Foundation’s audited financial statements and its annual tax information returns (Form 990) as well as more information on the Foundation’s programs and partners, is available on the Foundation’s website at www.cdcfoundation.org. The CDC Foundation is pleased to report that, for the twelfth year in a row, the Foundation received a 4-star rating from Charity Navigator, the nation’s largest and most utilized evaluator of charities. Only one percent of charities rated have received 12 consecutive 4-star evaluations. ____________________________________________________________________________________________ Program Highlights Healthy Homes, Healthy People on Navajo Nation: This program aims to reduce the incidence of rodent- borne disease hantavirus among residents of Navajo Nation by preventing exposure to the virus through empowering residents to repair and reinforce their homes against rodents, notably deer mice, the vector species for hantavirus. The historical context behind this project is significant. In 1993, an outbreak of severe pulmonary disease in humans was reported on Navajo Nation. An investigation and laboratory testing confirmed the deer mouse, abundant in many parts of North America, was the rodent host for a newly recognized virus. The Centers for Disease Control and Prevention (CDC) continues to see human cases of hantavirus infection in the United States, including the severe form, called hantavirus pulmonary syndrome. Of the 728 cases reported in 36 states as of January 2017, 45 percent were reported in the “Four Corners” area shared by Arizona, New Mexico, Colorado and Utah—each part of, or adjacent to, Navajo Nation. Mortality rates for cases on Navajo Nation are approximately 44 percent. The program brings together the Littlewater Chapter of Navajo Nation, Navajo Epidemiology Center/Navajo Department of Health and CDC’s Division of High-Consequence Pathogens and Pathology. Through funding and product donations from Reckitt Benckiser (RB), the CDC Foundation was able to purchase and procure project supplies, facilitate partnership building and provide program coordination. The Littlewater Chapter was selected as the pilot site for the 3HP project, with the goal of implementing the intervention in 100 homes. The project began with a pre-program survey to assess community acceptance of the project and better understand awareness of hantavirus and rodent prevention; a post-program survey will be completed in spring 2020, at project’s end. Evelyn and Thomas McKnight Family Fund for Patient Safety: Dr. Evelyn McKnight is a nationally recognized patient safety advocate and survivor of one of the largest viral outbreaks in American health care history. An audiologist and mother of three, Dr. McKnight was battling a recurrence of breast cancer in 2002 when she learned she had been infected with hepatitis C during her treatment. Dr. McKnight, her husband Thomas McKnight and Travis Bennington formed Hepatitis Outbreaks’ National Organization for Reform, or 1 HONOReform Foundation, in 2007 to protect patients through safeguarding the medical injection process, and to encourage health care providers to follow fundamental injection safety practices. HONOReform was involved in the CDC Foundation’s Safe Injection Practices Coalition (SIPC), which was formed to raise awareness and provide resources and tools to help prevent unsafe injection practices. The HONOReform Foundation dissolved at the end of 2018, and the board of directors worked with the CDC Foundation to establish the Evelyn and Thomas McKnight Family Fund for Patient Safety in order to continue making an impact in this area. The purpose of the Fund is to honor and recognize important work promoting safe injection practices and patient safety, and to produce educational materials that raise awareness and highlight the work of Safe Injection Practices Coalition’s One & Only Campaign. The Fund also supports The McKnight Prize for Healthcare Outbreak Heroes, an annual award that honors and recognizes people who are doing important work on behalf of safe injection practices or patient safety. Opioid Crisis Preparedness and Response: Between 1999 and 2017, more than 400,000 people have died from an opioid drug overdose in the United States. To help combat the opioid epidemic, the CDC Foundation received support from CDC through a cooperative agreement to work with 13 states to rapidly provide surge staffing for a number of key positions in support of opioid response efforts. These staff include highly specialized positions, such as medical death investigators, forensic investigators and forensic toxicologists, as well as pharmacists, data analysts, evaluators, morgue and autopsy technicians, epidemiologists, communications specialists and more. In total, more than 90 surge staff were hired to support vital efforts in Arizona, California, Illinois, Maryland, Mississippi, Missouri, North Carolina, Ohio, Oklahoma, Rhode Island, Washington, West Virginia and Wisconsin. Overall, staff are supporting a variety key of functions, including strengthening death investigation teams and increasing the coverage of these teams; implementing critical communications campaigns related to harm reduction, benefits of Naloxone and more; data reporting, analysis and interpretation related to the opioid epidemic in the areas of ambulatory care, hospital, post-natal care and linking multiple sources of opioid-related data. Digital Bridge Information Exchange between Healthcare Sector and Public Health: Eighty-five percent of all health data is now electronic. The need for fast access to patient healthcare data is essential for timely, accurate and accessible disease surveillance. Digital Bridge is a public-private partnership of healthcare providers, health information technology developers and public health organizations working together to advance clinical care by developing data systems to exchange information between healthcare and public health. This innovative collaborative brings together key decision makers to solve information exchange challenges. The partnership is working to improve public health surveillance and action through more efficient data sharing. The CDC Foundation is a partner in this work, creating solutions for a nationally consistent and sustainable approach to using electronic health data and improving systems of collaboration. To expand this work, the CDC Foundation is working to bring together more public and private partners and investments to build capacity and infrastructure to the existing processes of data exchange. This will provide more complete information and data that can inform clinical care, public health and emergency response. The Sergey Brin Family Foundation is the lead CDC Foundation donor supporting this initiative. Mosquito Cryopreservation and Female Mosquito Elimination: While methods to control mosquitoes that carry malaria and the associated parasite have been demonstrated effective in laboratory experiments, such demonstrations are far from actual interventions in public health. Also, in addition to regulatory and engagement activities, basic technology must be paired with methods and tools to enable routine implementation in practice, such as developing methods to selectively produce males, identify the mosquitoes, ensure quality and avoid genetic changes as well as test their performance in cage simulations. Supported in part with generous funding from Open Philanthropy, the current CDC Foundation project focuses on two components to develop important supporting technology for the implementation of genetic control technologies for the control of mosquitoes. One component of this work, which involves female elimination through RNA interference is led by CDC and University del Valle de Guatemala. Cryopreservation, which is the second component, is led by the U.S. Department of Agriculture Agricultural Research Service and Massachusetts General Hospital. Work to date on the project has been promising, and considerable progress has been made. Additional work to support both components is required in order to fully realize the project’s potential. 2 Strengthening Global Event-Based Surveillance: Disease outbreaks of international public health importance continue to occur regularly, which makes it extremely important for timely detecting and tracking of significant public health threats. The timely detection and access to information about unusual or unexpected health events allows public health officials
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