MC COVID-19 Governmental response to the COVID-19 pandemic in Long-Term Care residences for older people: preparedness, responses and challenges for the future

Finland Tyyne Ylinen, Vera Ylinen, Laura Kalliomaa-Puha, Satu Ylinen University

MC COVID-19 WORKING PAPER 04/2021 Contents

1. DESCRIPTION AND ANALYSIS OF THE ROLE OF THE RESIDENTIAL CARE SECTOR FOR THE OLDER-AGE POPULATION (PRE-COVID-19) 3 1.1. Trajectory of LTC until the most recent model 3 1.2. Current arrangements in LTC 4 1.3. Debates around the development of a LTC system 6 1.4. LTC governance 7 1.5. General functioning of the residential care system 10 2. DESCRIPTION OF THE EVOLUTION OF THE PANDEMIC IN SOCIETY AT LARGE, AND IN THE RESIDENTIAL CARE AND SECTORS MORE SPECIFICALLY 14 2.1. General description of the epidemic: Detection, scope and some data 14 2.2. The effects of the epidemic on the health care system 17 2.3. The epidemic in the public and political debate 20 3. DESCRIPTION AND ANALYSIS OF THE MEASURES ADOPTED TO ADDRESS THE IMPACT OF THE PANDEMIC ON THE RESIDENTIAL CARE SECTOR FOR THE OLDER-AGE POPULATION 22 3.1. Background of preparedness for the crisis 22 3.2. General impact of the epidemic on the residential care sector and policy responses 25 3.3. Case analysis 30 3.4. Examples of developments in specific care homes 32 REFERENCES 34 Media 40

MC-COVID19 text of institutionalized older-age care (age Project Coordinators: Coordination mechanisms in Corona- group that appears particularly vulnerable Eloisa del Pino Matute virus management between different in this epidemic context), in Spain as well Francisco Javier Moreno-Fuentes levels of government and public policy as in the rest of the EU-15. This study fo- sectors in 15 European countries cuses on the articulation of resources be- Research Team: tween health and social policies, and aim Gibrán Cruz-Martínez The political and administrative manage- to contribute to improve the effectiveness Jorge Hernández-Moreno ment of the healthcare crisis provoked by of the decision-making process and cru- Luis Moreno the COVID 19 is a key issue in preventing cial aspects in the fight against the pan- Manuel Pereira-Puga the spread of the disease. The Mc-COVID demic. Findings also aim to be useful to Roberta Perna 19 project is set to analyse the socio-san- inform other public policy sectors involved itary co-ordination procedures in the con- in crisis-related situations. https://www.mc-covid.csic.es/

How to cite this publication: Ylinen, T., Ylinen, V., Kalliomaa-Puha, L. Ylinen, S. (2021), ‘Governmental response to the COVID-19 pandemic in Long-Term Care residences for older people: preparedness, responses and challenges for the future: ’, MC COVID-19 working paper 04/2021. http://dx.doi.org/10.20350/digitalCSIC/13692 Tyyne Ylinen 1. DESCRIPTION AND ANALYSIS OF THE ROLE OF THE RESIDENTIAL Tampere University CARE SECTOR FOR THE OLDER-AGE POPULATION (PRE-COVID-19)1 [email protected]

Vera Ylinen 1.1. Trajectory of LTC until the most recent model Tampere University [email protected] Brief historical overview of the evolution of Finnish LTC

Laura Kalliomaa-Puha Finnish elderly care has evolved from family care to a public responsibility Tampere University and individual right. Until recently, public care has specifically been offered [email protected] in the form of institutional care. Satu Ylinen Tampere University During the nineteenth century, the focus was on subsistence: providing [email protected] food and shelter. In particular, the conditions of the elderly of the rural poor population were marked by misery and social decline. Protection for old age came in the form of poor relief; the aim of the elderly services was to help; and the form of helping was institutional care (poorhouses) (Ylinen, 2008).

From the beginning of the next century up to the 1940s and 1950s, phe- nomena such as the elderly living in cities and the older-age working class came into discussion. The number of elderly increased. Old age became a social problem, and the elderly began to be seen as a burden. For the first time, the need for care, not only for subsistence, was recognised. The form of helping was institutional care together with care offered by the families, younger generations taking care of their elderly relatives. (Ylinen, 2008).

The first home health care centre was established in in 1951, and by 1973 there were 85 home health care centres in Finland. These centres were early Finnish examples of integrated health and social care services for elderly people (Tepponen, 2009). From the 1950s to the 1970s, the economic problems of the elderly population began to gain larger political relevance, and the misery of old age was related to the social status of the elderly population. Reforms of the pension policy and services of the wel- fare state under construction catered to many of the needs of the elderly population. When moving towards to the 1970s the emphasis was started 1 to being placed more on services provided by the welfare state under con- This series of reports is one of the struction. The aim of the elderly services was to support personal initiative. research results of the Mc-COVID-19 project, “MC-COVID19: Coordination The form of helping was institutional care, but the emphasis started to be mechanisms in Coronavirus in bringing services to home. (Ylinen, 2008). management between different levels of government and public policy sectors in 15 European countries”, From 1971 to 1990, the concept of the elderly population started to be funded by the Spanish National quite heterogeneous, and new concepts such as seniority, competence Research Council (CSIC) within the and the elderly as a defined social group became part of the conversa- CSIC-COVID-19 programme, as well as tion. Protection for old age was formed through the pension policy along of the GoWPER project, “Restructuring the Governance of the Welfare State: with the health and social services system. The aim of elderly services Political Determinants and Implications was rehabilitation and activation. The form of helping was home care and for the (De)Commodification of Risks”, institutional care. From 1991 to today, the elderly population has been CSO2017-85598-R Plan Estatal de seen as a heterogeneous group and as active actors. Features important Investigación Científica y Técnica y de Innovación. to the social status of the elderly population were and are still seen to

3 4 ℅ MC COVID-19 be empowerment and access to the resources necessary in old age. The form of helping is mainly community care (see chapter 1.2.), however, institutional care is still part of elderly care in Finland (Ylinen, 2008; THL 2020f).

1.2. Current arrangements in LTC

The main characteristics of the current institutional arrangements of the LTC regime in Finland

The Finnish care regime is a mixed one, combining public, private and indi- vidual provisions. However, heavy care needs are most often taken care of by public provision, either as a whole or in part.

Social protection for older people consists of income security and services in kind, arranged as a part of social and health care. LTC services in Finland are part of the universal health and social care system, which provides services to all citizens in need of care. LTC services are provided by a net- work of actors including public and private providers, but the responsibility for organising the services rests with the municipalities (MSAH [Ministry of Social Affairs and Health], 2013).

The state government and municipalities are the two most important fund- ing sources for LTC care. Even though most of the costs are covered by tax- es, there are client fees. In fact, pay relatively high fees out of pocket for public services. In 2014, clients paid 18.5% of the costs of elderly peo- ple’s services (Seppälä & Pekurinen, 2014). However, LTC fees are defined by the client’s payment ability. The payment is determined by the client’s net income. The property is not considered. The monthly fee may not ex- ceed 85 percent of client’s net income. In addition, the client must have 110 euros per month for personal use. Since there is a national pension (kansaneläke), all residents are covered. There is also a care allowance for pensioners, a cash benefit paid out by the Social Insurance Institution () reimbursing pension recipients for the extra costs caused by illness or disability. Kela also pays a care allowance to persons in institutional care (Kalliomaa-Puha & Kangas, 2018.)

The service needs of the person applying for LTC is assessed by mu- nicipal health and social care professionals by reviewing the functional abilities and health state of the applicant as well as the other factors related to the need for round-the-clock-service. The assessment and de- cision regarding LTC is carried out as multidisciplinary cooperation in accordance with the IAS operational model (investigation, assessment, service guidance). After the assessment, the municipality is responsible for drawing up a service plan that defines the services required to sup- port the well-being, health, functional capacity and independent living for the aged. The views of the individual in need of care should be record- ed in the service plan. The final decision about the provision of services is made by the municipality (see Linnosmaa & Sääksvuori, 2017). Ac- cording to the Social Welfare Act, the municipality has not more than 3

◂ back to table of contents FINLAND ℅ 5 months to provide for the services after learning of the need for services of an individual person. So, on paper the system seems good. However, research shows that in practice there are not always enough services for the elderly or the services are not the ones the elderly would wish for (THL, 2019a).

Municipalities can produce services themselves via public facilities, in cooperation with other municipalities, or they can purchase the services from the state or other municipalities or from private providers. Munici- palities may also grant a voucher to a service user. The voucher can be used to purchase the service from a private provider. LTC can also be organised by informal care support, which is a combination of a benefit in kind and a cash benefit. Informal care support is paid to a relative who provides care at home for an elderly person or a person with a disability or chronic disease. Municipal informal care support requires a contract between the municipality and the caregiver. The amount of the support is linked to the intensity of the care needed (see Linnosmaa & Sääksvuori, 2017).

Formal services can be classified into community care and institutional care. During recent decades, the national ageing policy has aimed at ensuring for elderly people the living conditions that enable them to receive community care. Community care includes home care, support services and care provided at day centres, service centres and sheltered housing facilities with and without 24-hour assistance. Institutional care consists of LTC provision in older people’s homes and in primary health care. Sheltered housing with 24-hour assistance is often like institution- al care with regard to patients’ needs (see Linnosmaa & Sääksvuori, 2017).

Most of the elderly needing round-the-clock-service live today in inten- sive sheltered housing units. The institutional care of the elderly has been decreasing for many years, and in round-the-clock service there has been a move towards intensive sheltered housing units. At the end of 2018 there were 5,339 clients in old-age homes. Compared to the previous years, the decrease was 13%. In addition, the number of LTC clients in health care centres’ bed wards decreased. However, the num- ber of clients in institutional and sheltered housing did not change (THL, 2019b).

The purpose of Finnish institutional care for the aged is to secure as well as possible functional abilities for the client. Institutional care includes help with everyday routines, rehabilitation, support and guidance, recreational activities and health care or treatments. Institutional care is divided into short-term and long-term care. Short-term care is a preventative opera- tion, which maintains and promotes functional abilities in a target-oriented manner. It supports the well-being and health of the elderly living at home. Short-term care also supports the resources of a family member giving care and is arranged through either sheltered housing or institutional care (MSAH, 2013).

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1.3. Debates around the development of a LTC system

Evolution of the debate between institutionalisation vs. care in the community in Finland and the role of families within the LTC regime existing in Finland

Living at home for as long as possible

The reform of Finnish national ageing policy and service structures aiming to enable older people to continue living at home for as long as possible has continually been the subject of strong debate (e.g., THL, 2020a; van Aerschot, 2014; Ylinen, 2008; Ylinen et al., 2019).

It is clear that institutionalised care will also be needed – probably on a larger scale than is now available − to secure the safety and well-being of the growing number of fragile people. In many situations, home care is simply not possible, and the workload for the workers concerned becomes too heavy. Also, families may choose to take care of their elderly mem- bers themselves if the quality of institutional care is considered inadequate (THL, 2020b). This will have consequences on the rate of employment or tax revenue, for example.

As a recent report suggests, the concerns about adequate home care have not been unfounded. The Status of Older People Services follow-up survey of 2018 revealed that the previously observed improvement in home-care services for older people had not continued, and many indicators had even declined. For instance, intensive home care (four visits per day) was avail- able in 55% of municipalities in 2018, whereas two years earlier the figure was 63% (THL, 2018a).

Growing need for family care

The participation of family members, loved ones and volunteers in provid- ing assistance in everyday life is important. As Sointu (2016) states, even though Finland assigns the legal responsibility for care to public authorities, families still play a major role in providing informal care. Furthermore, the restructuring of elder care services over the past 30 years has increasingly placed the responsibility for care back on families. When the general aim is that elderly people live in their own homes for as long as possible, but the amount of municipal home care (communal care) has not been relatively added, it is clear that the relatives are expected to take more responsibility for the care of their loved ones. (Ylinen, 2008).

Family care is supported by different forms of cash-for-care schemes, such as informal care support or care allowances. However, these allowances are relatively low. Giving informal care also has bearings on the livelihood of those giving care as well as the relationships in families and between spouses. If care policy continues to increase the volume of informal care provided at home, more extensive, comprehensive and financially affordable care servic- es are needed in order for this pursuit to be ethical (Kalliomaa-Puha, 2018).

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The focus has been on those providing heavy care, but even more individ- uals are providing important care on a more sporadic basis. These people are often of working age, and therefore their ability to combine work and care should be improved. The provisions for this in the current labour legis- lation are not sufficiently clear, and they could be developed further (Kalli- omaa-Puha, 2018).

Gender division is clear

Caring is a gender issue, whether formal or informal. Cash-for-care has been criticised on the basis that it would lock women into their traditional homemaker roles (Hiilamo & Kangas, 2009, pp. 457–475). Even though the gendered roles of caring have changed – especially in informal care (25% of recipients of informal care support are men; Ahola et al., 2014) – women still carry a larger care burden than men: 60% of all working women and 40% of working men provide care on a weekly or daily basis, while 20% of working women and 30% of working men provide care two to three times per month. On average, 45-year-olds have the heaviest care burden (Silfver-Kuhalampi & Kauppinen, 2015, See also Sihto 2019). If the plans to increase families’ responsibility for LTC are carried out, it will probably mean an increase in the responsibility of middle-aged women. If they de- cide to cut their working hours or to stay home to offer care, they might have great difficulties getting back to work when their caring duties come to an end. The strategy of informal care is double-edged. Having more infor- mal home care will reduce public spending, but the flip side is that female labour force participation rates may diminish, which in turn would be detri- mental to the long-term sustainability of the welfare state (Kalliomaa-Puha & Kangas, 2020).

1.4. LTC governance

Division of powers between levels of government for the regulation, funding and provision of LTC in Finland

The MSAH is responsible for providing services for older people. It oversees legislative drafting and planning, steering and implementation of social and health policy. The ministry also monitors service standards through the National Supervisory Authority for Welfare (Valvira) and six Regional State Administrative Agencies (AVIs). Valvira is in charge of the national super- vising programmes in social and health care. It grants national licences to private social and health care providers and handles severe patient injury reports nationally. It guides the work of AVIs to ensure that the supervision and associated guidance is standardised throughout the country. AVIs are in charge of the regional supervision and guidance of welfare and health care, and they handle patient complaints (Valvira, 2020).

Municipalities are responsible for arranging the social and health services, and they also supervise the social services in their own area. Municipalities represent the local-level administration. They act as self-governing admin- istrative units and form the majority of public administration in Finland.

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Figure 1. Supervision of health and social services in Finland

Ministry of Social Affairs and Health

• oversees legislative drafting and planning, steering and implementation of social and health policy

National Supervisory Authority for Welfare and Health (Valvira) The National Institute for Health and welfare (THL)

• provides guidance to the Regional State Administrative Agencies to make sure • studies, monitors and develops measures to promote the wellbeing that licensing, guidance and supervisory practices are standardized and the health of the people in Finland throughout Finland • is the statutory statistical authority for health and welfare • is in charge of the national supervision programmes • grants national licenses for private social and health care providers and handles severe patient complaints

Six independent Regional State Administrative Agencies

• oversees regional guidance and supervision of welfare and health care, as well as regional licenses for private social and health care providers handles complaints

Municipalities

• supervise social services in their own area

Private social and health care providers

• self-monitoring

Municipalities have relatively vast discretionary powers. However, legisla- tion outlines the provision and quality of LTC services. The requirements are the same for public and private provision (The online service EU-health- care.fi, 2020).

Role of public and private sectors in the residential care sector

The economic setback of the early 1990s brought significant reforms fa- vouring the outsourcing of care in Finnish municipalities. Outsourcing refers to the practice of municipalities employing private organisations through different means (e.g., open tendering) to deliver public care servic- es (Puthenparambil, 2017). Especially the outsourcing of home-help and service housing for older people has increased, and the care needs of older people seem to be the most influential factor for outsourcing, particularly for service housing. The municipalities have not been able – or willing – to provide for the growing needs of LTC (Lith, 2018; Puthenparambil, 2017). As is shown in the report by THL (2019), private-care provision in Finnish social care continues to grow. Fifty percent of the intensive care provision was private at the end of 2018.

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Table 1. Proportion of 75-year-old and older population in older people’s services

Service type/75+ year-old population (%) 2011 2013 2015 2016 2017 2018 Target

Living in their own home 89.5 90.3 90.6 90.9 91.1 91.3 92.0

Regular home care 12.2 11.9 11.8 11.3 11.3 11.0 13.0

Compensated informal care 4.4 4.6 4.7 4.7 4.8 4.9 5.5

Service housing with 24-hour 5.9 6.5 7.1 7.3 7.5 7.6 7.0 care and support

Institutional care 4.4 3.1 2.1 1.7 1.5 1.3 2.0

Existence of territorial differences

Even though the legislation is the same all over the country, there are dif- ferences in the LTC provisions of different municipalities. Demographics of the over 300 municipalities vary substantially. Typically, the smallest mu- nicipalities have the oldest population in relation to the working-age popula- tion, and this trend is bound to accelerate. The need of LTC will grow fastest in the small municipalities, which are the weakest in providing services (Kauppi et al., 2015).

This is one of the drivers to finally finish the reform of social welfare and health care, which have already been on the agenda of four successive governments. The idea is to transfer the responsibility for social and health care from the municipalities to the newly created counties, which as bigger entities could better carry the expenses. This is also hoped to increase the equality of services, LTC included. (See more at https://soteuudistus. fi/-/1271139/hallitus-linjasi-sote-uudistuksen-valmistelun-lahtokohdat?- languageId=en_US.)

Existing types of residential care in Finland

LTC for older people in Finland is provided in four major settings: home care, sheltered housing with and without 24-hour assistance, residential homes and older people’s homes. By definition, institutional care consists of LTC provision in older people’s homes and in primary health care. ‘Assist- ed living’ or ‘sheltered housing’ services represent a large variety of accom- modation models for persons who wish to move to houses or apartments where they can receive help and services according to their needs, and where it is possible to stay for the rest of their lives. The residents in these houses vary from recently retired and well-off to quite severely disabled persons. Some of them receive temporary or regular home care services

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Figure 2. Elderly people in institutional care and sheltered housing at the end of 2018. Legend: terveyskeskusten pitkäaikaishoito = long-term care in health centres; vanhainkoti = older people’s home; tehostettu palveluasuminen = intensive sheltered homes; tavallinen palveluasuminen = sheltered homes. Source: THL, 2019b.

from the community, while other houses have permanent staffing. However, sheltered housing with 24-hour assistance is often like institutional care with regard to patients’ needs (Klavus & Meriläinen-Porras, 2011).

Most of the elderly needing round-the-clock-service live today in intensive sheltered housing units. The institutional care of the elderly has been de- creasing for many years, and in round-the-clock service there has been a move towards intensive sheltered housing units. At the end of 2018, the number of clients in old-age homes had decreased by 13% compared to previous years Compared to the previous years, the decrease was 13%. Also, the number of LTC clients in health care centres’ bed wards decreased. However, the number of clients in institutional and sheltered housing did not change, as shown in Table 1 (THL, 2020c).

At the end of 2018, about 20% of the elderly aged 75 years and above were receiving home help as well as institutional care and sheltered housing. Those receiving round-the-clock care comprised 9% of the elderly aged 75 years and above. As shown in Figure 2, the trend has been from institution- al care to community care (THL, 2019b).

1.5. General functioning of the residential care system

Assessments of the living conditions of elderly residents in care homes

The living conditions of elderly residents in care homes are relatively good. The general guidelines are secured in legislation as well as in guidelines provided by the MSAH (Vanhustenhuollon laatusuositukset). However, in practice the guidelines may not always be followed, as is shown below.

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Home care

• Home services, Home nursing services • Municipal home care is granted after the comprehensive assessment of an elderly person's service needs • Clients can buy support services • The 24-hour assistance available when needed

 Sheltered housing

• Clients live in their own apartments; and buy the services they need • The night patrol available when needed

 Intensive sheltered housing

• Clients has their own rental agreements including apartment, support services and round-a-clock-care and treatment

 Long-term-care

• Wards, Nursing homes • Includes housing, medicines, treatment and care

Figure 3. The system of residential care in Finland

A personal care and service plan will be prepared together with the client living in a care home. The service plan defines the services the individual client needs. The services available include meals, clothing care, cleaning, security, recreational activities, assistance with running errands, basic care and health care or treatment of illnesses. The ideas of greater community and self-determination are important in developing living conditions for the Finnish elderly. It means different models for those suffering from demen- tia and other aged needing care. The models vary from one’s own room in a sheltered house to one’s own apartment with, usually, two rooms. Rent, a basic fee, a meal fee and a service charge for the individually agreed-upon services will be charged to clients of long-term sheltered housing. The fees are defined based on the client’s services, taking into account the client’s ability to pay, so that the client will have 20%, or at least EUR 254, of their own net income at their disposal (Jolanki et al., 2017).

Main problems identified in the residential care system before the pandemic began

Even though care services are available, access to them might be difficult. Partly, this is due to the complexity of the LTC system. The person in need of care needs help in accessing the services, and legislation presupposes

◂ back to table of contents 12 ℅ MC COVID-19 there are family members willing to help, despite the older person’s individ- ual right to the service (Kalliomaa-Puha, 2017).

The right to self-determination is a starting point in LTC services, and this is reflected in the legislation. However, it does not always materialise in prac- tice. Plans to increase individuals’ freedom of choice through vouchers and personal budgets could potentially guarantee self-determination. In previ- ous voucher experiments, there were problems with overlapping services and the flow of information between the different actors.[6] Allocating el- derly people their ‘own’ social worker – as the Social Welfare Act, as well as the Act on Supporting the Functional Capacity of the Older Population and on Social and Health Services for Older Persons, provide – to help them find and coordinate services and to deal with the various authorities involved would better serve their right to self-determination. However, there may be difficult ethical problems when the principle of self-determination and the quality of care are in conflict (Kalliomaa-Puha & Kangas, 2020).

The worst fears about the quality of care and the inadequate number of personnel came true in some of the privately run institutions in 2019. In the winter and spring of 2019, severe shortcomings were detected in el- derly care: some of the privately run institutions providing sheltered care were found to have been mistreating elderly people and were subsequently closed down by the National Supervisory Authority for Welfare and Health. Elderly care became one of the topics of the parliamentary elections in spring 2019 (Kangas & Kalliomaa-Puha, 2019). This scandal accelerated the idea of setting a nurse–client ratio and a consistent and uniform as- sessment system in the legislation to cater for equal treatment throughout the country. According to a recent bill, the ratio should be 0.5, or five nurses per 10 clients. From 1 April 2023, the ratio should be at least 0.7, and the interRAI system (interRAI is an international collaborative project to improve the quality of life of vulnerable people through a seamless and comprehen- sive assessment system) will be obligatory for all LTC institutions (Govern- mental Bill 4/2020).

Recent scandals concerning the maltreatment of older people in residen- tial care have cast a shadow on the idea of self-monitoring. In addition to this centralised supervision, the idea of solving problems locally has recent- ly gained ground. Each institution must analyse any possible risks and draft a supervisory plan to prevent any problems from arising. The plan must be public and available to the clients. This ‘self-supervision’ (omavalvonta) may not, however, work very well with clients in poor health, not to mention those suffering from dementia (Kalliomaa-Puha, 2018). Still, it is in line with the general idea of involving clients in the monitoring of the quality of the services that the Social Welfare Act provides (Kalliomaa-Puha & Kan- gas, 2020).

As Finland has one of the oldest populations in Europe, and the population is rapidly ageing, there is a growing concern about financial resources. The share of over-65-year-olds of the population will increase from the current 20% to 26% by 2030 and to 29% by 2060. As the population ages, the

◂ back to table of contents FINLAND ℅ 13 share of working-age people is reduced in relation to the rest of the popu- lation. As a result, there is a threat that the number of employees in older people’s services will be insufficient, especially the availability of expertise on, for example, gerontological social work and preventive mental health work (THL, 2020c). The number of LTC workers per 100 people aged 65 and over was 7.6 in 2016. The number was higher than the OECD average (4.9) but much lower than in the neighbouring Nordic countries (Norway 12.7 and Sweden 12.4) (OECD, 2019). Those employed in LTC in Finland are usually professionals, and there are steady jobs, career opportunities and education available even though the wage level is not very high. The majority of the employees in LTC are licensed practical nurses. For exam- ple, in 2018 in 24-hour social welfare units’ 74 percent of all employees were practical nurses, 8.4 percent were nurses and 2.6 percent care assis- tants. Finland had 147 630 professionally active practical nurses in 2014, of which 72.6 percent were working in social services and most of them worked in elderly care. Of all the licensed practical nurses, 3.8 percent were with an immigrant background. Most of them came from Estonia, Rus- sia, Sweden and some Asian countries. Lower paid care assistants have no official education (training lasts for a short time and includes only parts of the three years of training for practical nurses) and may therefore not use the official occupational title. Some of the workers with an immigra- tion background work as care assistants despite holding academic nurs- ing qualifications from their home countries. The statistics are from 2014 and since the number of employees with immigrant background has grown throughout the 21st century, it is probable that the percentage is today higher than in 2014. (THL 2018b; STM 2020b; YLE 2019.)

Even those working in home care are trained personnel: one tenth of them are nurses and another tenth are trained home-helpers. The well-being of the employees in LTC is good on average. However, employees are worried about the quality of care, do not sleep well and wonder whether they can carry on until their own retirement (Vehko et al., 2017).

Legislators intend to address the financial sustainability and equality is- sues at least partially through the ongoing reform of social welfare and health care. Instead of over 300 municipalities, the reform aims to give the responsibility of LTC to 21 counties. The counties would be responsi- ble for their statutory duties with regard to social and health services and the equal availability of services, and they would define the need, quantity and quality of services and determine the way services are provided. They would be responsible for exercising the powers assigned to them as public authorities (exercise of public authority) and supervising the provision of services. (See more at https://soteuudistus.fi/-/1271139/hallitus-linja- si-sote-uudistuksen-valmistelun-lahtokohdat?languageId=en_US.)

However, the Status of Older People Services follow-up survey of 2018 (THL, 2018a) illustrates unsettling developments, since the progress seen in the previous study from 2016 has not continued. Less effort is being made to improve the well-being and health of the elderly; the employees seem less satisfied with the sufficiency of home help offered to the elderly;

◂ back to table of contents 14 ℅ MC COVID-19 there seems to be less expertise of employees available in the sector of elder care; many elderly groups requiring special assistance and support are being given fewer services than before; and the budget for supporting elderly people’s ability to function was less in 2018 than in 2016 (THL, 2018a).

2. DESCRIPTION OF THE EVOLUTION OF THE PANDEMIC IN SOCIETY AT LARGE, AND IN THE RESIDENTIAL CARE AND HEALTH CARE SECTORS MORE SPECIFICALLY

2.1. General description of the epidemic: Detection, scope and some data

The beginning of COVID-19 in Finland

The first case of COVID-19 in Finland was confirmed on 29 January, when a Chinese tourist visiting from Wuhan tested positive at Lapland Central Hospital. As of 30 January, up to 24 people had been exposed to the virus. On 26 February, the second case, a Finnish woman who had made a trip to Milan, tested positive at the Helsinki university hospital. The third case, a Finnish working-age woman also back from a trip to Milan, tested positive on 28 February in Helsinki. On 1 March, three new cases were confirmed in Helsinki. All the new cases were associated with the woman who had been diagnosed with the novel coronavirus on 28 February. Later that day, 130 people, including a junior football team and students at one school in Helsinki, were placed in quarantine after having been in close contact with one of the diagnosed. In March, many chains of were traced back to the Austrian Tyrol (HS 2020a; 2020b; 2020c; YLE 2020a; 2020b; HUS 2020a; THL 2020d).

On 5 March, five new cases were confirmed: three in Uusimaa and two in other . Four of the new cases were traced back to Ita- ly. On 6 March, the National Institute for Health and Welfare announced that four new cases were detected. On 7 March, THL confirmed four new cases of COVID-19, which brought the total number of to 19. On March 11 the total number of cases increased to 65. Most of the cas- es were found in the Uusimaa region. On 12 March, an employee of the Helsinki-Uusimaa Hospital district tested positive for COVID-19, and on the same day the total number of infections was confirmed at 87. On 13 March, Finland became close to the epidemic threshold when the total confirmed cases increased to 156. On 15 March, the government decid- ed to ban all public events of more than 500 (THL 2020e; YLE 2020d; 2020h).

COVID-19 becomes a pandemic

The World Health Organization (WHO) announced on 11 March that COV- ID-19 could be characterised as a pandemic. Only five days later, on 16 March, a state of emergency was announced by the to protect the population and safeguard the functions of the society and

◂ back to table of contents FINLAND ℅ 15 the economy. At the same time, the government introduced the Emergen- cy Powers Act. Until then, measures to control the spread of the Covid-19 in Finland were handled under the provisions of the Communicable Dis- eases Act. Introducing the Emergency Act gave authorities greater direct powers, for example to order restaurants and shopping centres to close or to put airports and ports on lockdown. The state of emergency was in force in Finland for three months. On 16 March, the government ordered several measures to prevent the spread of the virus. They banned public meetings of over 10 people and recommended that people aged 70 years or older live in quarantine-like conditions, except for members of parlia- ment, the state leadership and elected officials in local government. The government ordered the country’s borders to be closed, although freight and goods traffic continued as usual. All schools, universities, education- al institutions, and universities of applied sciences as well as civic educa- tion and other liberal education institutes were closed, apart from early childhood education. National and municipal culture and leisure services were closed, including libraries and day care for the elderly. Visits to hous- ing services for the elderly and other at-risk groups were prohibited (YLE 2O20h; Valtioneuvosto 2020a).

On 20 March, the first death in Finland was reported. The deceased was an elderly person residing in southern Finland. On 27 March, aiming to slow the epidemic in the rest of the country, the parliament restricted movement in and out of the Uusimaa region, which had the most confirmed cases. The capital city of Helsinki is in Uusimaa, and a total of 1.7 million people live in the area. On 3 April, the first confirmed novel coronavirus cases and deaths were detected in Finnish nursing homes. The first deaths were detected at a nursing home in the hospital district of Northern Savo. On 4 April, the total number of cases was 1,882 and the total number of deaths 25. On 9 April, the MSAH issued guidance to LTC units about the use of protective equip- ment. On 15 April, the ban on travel in and out of Uusimaa was lifted. In mid-April there emerged more news reports about Covid-19-related deaths in nursing homes (THL 2020e; YLE 2020g; HS 2020d; YLE 2020e; 2020f; Savon Sanomat 2020).

On 16 April, the total number of the deaths increased to 75, and two-thirds of all deaths were reported to have occurred in nursing homes. On 18 April, the total number of cases increased to 3,681, with 199 patients hospital- ised and 70 in intensive care. The total number of deaths increased to 90, from which 60 had occurred in Helsinki (HS 2020e).

Significant variation in the incidence of cases between the municipalities

There was a great deal of variation in the incidence of cases between the municipalities. The epidemic was centred in the region of Uusimaa, and there were municipalities with only a few cases in other parts of the coun- try. According to the chief physician of THL, the peak of the disease was in April, and the majority of the cases and deaths occurred in Uusimaa. On 4 May, the government announced a plan to move to a hybrid strategy: ‘test, trace, isolate and treat’. One of the main aims was still to protect the elderly

◂ back to table of contents 16 ℅ MC COVID-19

Figure 4. Percentage of cases by age group: 0–19 8.69%, 20–49 52.13%, 50–69 27.23%, 70–79 4.88%, 80+ 7.06%

Figure 5. Percentage of deaths by age group: 0–19 0%, 20–49 3.05%, 50–69 11.01%, 70–79 19.88%, 80+ 66.06%

◂ back to table of contents FINLAND ℅ 17 and other people belonging to risk groups. On 13 May, the MSAH issued an order for LTC units about the use of protective equipment. On 14 May, schools reopened for two weeks (Valtioneuvosto 2020b; 2020c; Karjalain- en 2020; HS 2020g).

COVID-19: Fatal for the elderly

Throughout the time period considered the total cumulative incidence of COVID-19 per 100,000 population in Finland was 124.4 and cumulative deaths 5.7. Total number of tests made by 31 May 2020, was 3,459 per 100 000 population. Most of the infected were working-age people; how- ever, deaths among the working-aged have been very rare. Compared with the other age groups, for the elderly COVID-19 has been fatal, since mor- bidity has been rather low but the mortality rate quite high. The median age of the deceased was 84. There have been no COVID-19-related deaths of children or young people in Finland. Of those deceased for whom more detailed health information is available, over 90% had one or more long- term illnesses. Of the deceased, 19% were in specialised medical care, 34% in primary health care units, 45% in 24-hour social welfare units and 2% at home or elsewhere. The COVID-19 epidemic has not increased total mortality in Finland. There seems to be no difference in the distribution by gender. Of the infected, 50.4% have been women and 49.6% men, and of the deceased, 52% have been women and 48% men (THL 2020f). Finland’s statistics are different in that a higher percentage of sufferers and the deceased have been women. It is estimated that women seek for tests more often than men, but for men the test is more often positive. The slightly higher mortality of women is explained by the fact that most diseased are older, over 70 and 80 years old, and in Finland, most of the elderly are women. (Tilastokeskus 2020; THL 2020g.)

2.2. The effects of the epidemic on the health care system

Hospital districts playing the central role

Finland had 1022.8 professionally active nursing professionals and 361.2 reported hospital beds per 100 000 inhabitants in 2018. In the number of hospital beds Finland is ranked at the lower end of the EU average. The number of nursing professionals is substantially higher than the EU aver- age. The total number of the ICU beds was 305 in 2015, which was one of the lowest levels in the EU. During the pandemic the number of the ICU beds was increased to 400. (Eurostat 2020; Yle 2020y.) The adequacy of the hospital beds, including ICU beds was at a good level throughout the time period considered.

One of the top priorities of the Finnish Covid-19 strategy has been to limit the burden on the health care system. One of the first concerns raised con- cerned the adequacy of beds in intensive care units. Before the epidemic began to accelerate, hospital districts began working to increase the num- ber of hospital beds. This was made by shutting down non-urgent operations and reorganising hospital facilities. Elective surgeries were postponed, and

◂ back to table of contents 18 ℅ MC COVID-19 some of the operating and recovery rooms were converted into intensive care units. Operating room staff, especially nurses, were trained to intensive care. Operating rooms at temporarily closed health stations were prepared to fit intensive care, and recovery rooms as well as operating rooms were seen as suitable for use as intensive care units due to the similar equipment.

Initially, there were also concerns about the adequacy of health personnel. Preparations for possible future staff shortages began quite quickly, and a sur- vey for a reserve of health professionals, including retired workers and students, began in early spring (HS 2020h; Kuntalehti 2020). Under the Emergency Pow- ers Act, the notice period for medical staff was four months instead of the usual one month. At the beginning of the epidemic, requests for annual leave were not granted, and no leave of absence or study-leave applications were processed. It is probable that patient shortages and financial losses caused by COVID-19 led to the lay-offs of workers in hospital districts (HS 2020f).2

Non-urgent care postponed

Hospital districts postponed non-urgent care to increase COVID-19 health care capacity. Most elective surgeries, medical rehabilitations, therapies and counselling services were suspended nationwide. During normal circum- stances, in Finnish health care, patients suffering basic medical conditions are monitored in annual health checks, as part of municipal . During the epidemic, annual health checks were cancelled, and at the begin- ning of the epidemic patients were advised not to come to the health centres.

The worst scenarios did not come true. Nationwide, the number of hospital- ised COVID-19 patients has been moderate throughout the epidemic. Only in the Helsinki University hospital district have there been more patients. Many seriously ill COVID-19 patients have been saved by intensive care, but the treatment has often lasted for several weeks. On average, the intensive care period has lasted 13.7 days, and 13.6% of intensive care unit treatment pe- riods ended with the patient passing away. By the end of May, COVID-19 in- fection had been confirmed for a total of 286 intensive care periods, of which 209 were in the Helsinki University hospital district (KYS 2020).

In the early stages of the epidemic, telephone services in health care be- came overcrowded, and people’s need for information increased. This led to a surge in demand for digital services. Many health services, including annual health checks, physiotherapy and neuropsychological rehabilitation, began to be conducted remotely (YLE 2020i; 2020j). The user numbers for digital health advice increased during the epidemic. In addition to public services, private health care providers launched their own digital services.

Delays in the treatment of non-COVID-19-related diseases 2 It is estimated that people have avoided health care centres and hospitals Three professionals working in due to the fear of contagion and because they were advised not to come, different medical districts have been interviewed for this section. They work but also partly because of not wanting to burden the health care system. in various positions and have been on People have also avoided antenatal clinics and dentists (YLE 2020k). The the duty during COVID-19.

◂ back to table of contents FINLAND ℅ 19 statutory care guarantee has not materialised during the epidemic, and the queues for treatment have grown.

Even though health checks and some services could be done and were done remotely, this has led to constantly accumulating delays in the treatment of non-COVID-19 related diseases. These delays will not be fixed rapidly, and they have a wide range of cumulative effects. The necessary resources are mostly taken from the normal functions of the health care system, which means a shortage of services.

The measures taken and the people avoiding hospitals are likely to have wors- ened the therapeutic equilibriums in many long-term illnesses, and non-COV- ID-19-related, originally non-urgent cases are turning into urgent cases. Due to the abolition of elective functions, some cancers may also have gone un- diagnosed. This is later reflected as growing care debt (YLE 2020l). Declining antenatal clinic visits have led to a drop in the vaccination coverage rate. In hospitals, patients have cancelled their reception times, which will increase future queues of care and can worsen the prognosis of diseases and their treatment. In hospitals, the number of patients and periods of treatment for non-urgent bed ward care fell by 37% between March and April. The number of patients on reception visits fell by more than 40%. Some of the physical visits were able to be handled as remote visits. Due to the epidemic, replace- ment arthroplasties, endoscopies of the musculoskeletal and digestive or- gans and coronary angioplasties have been left in the queue. In the public sector, dental admissions have declined sharply since mid-March, with about a third of visits compared to the normal situation. Visits to the private sector were estimated to be reduced to less than half of the usual number. As the economic situation deteriorates, it is likely that more will turn to municipal dental care rather than private dentists. This could increase congestion fol- lowing the epidemic even further. All these measures have had effects not only on health but also on the economies of the hospital districts. The com- bined deficit is estimated at 620 million euros (HS 2020; YLE 2020m).

Problems with the availability, adequacy and quality of protective equipment

Preparations had been made in Finland for a possible pandemic and pro- tective equipment had been acquired in the warehouse of the National Emergency Supply Agency (NESA). The situation seemed very good about that. It soon emerged that the warehouse contained protective equipment, that had been acquired for the H1N1 pandemic in 2009, and which then went unused. They had not been eradicated but instead stored in the or- thodox way. Concerns arose about their expiry date, that had gone several years ago. Their manufacturer does not recommend using outdated equip- ment’s. However, the equipment’s had been tested by the technical Re- search Centre of Finland and found to be in line with WHO standards. Still, some problems arose in their use. Part of the equipment’s were invalid and damaged. Also, some allergic responses were reported. In addition to these problems, it was soon understood that these stocks would not be enough, and the National Emergency Supply Agency began ordering new ones.

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Globally, availability was poor. The National Emergency Supply Agency or- dered masks through a subcontractor, who was later stated as untrustwor- thy and the equipment’s ordered were found to be invalid. The centre had paid upfront for the equipment to a subcontractor who subsequently had to repay the money. The National Emergency Supply Agency has explained orders gone wrong with the fact that in a hurry the protocols of the procure- ment process were not properly followed. As can be concluded from above, international problems with the availability of protective equipment have been evident in Finland as well. After the difficulties stated above, overall adequacy has been at a good level, but the adequacy in hospital districts has varied extensively and there have been problems in distribution pro- cesses. Some regions and places needed to wait equipment’s for relatively too long. Health care units in these regions have had to be quite innovative: protective clothing has been replaced, for example, by disposable rain jack- ets (YLE 2020z). However, there are also opposite experiences of places where protective equipment has been adequately available all the time.

2.3. The epidemic in the public and political debate

Examining two Finnish newspapers

In addition to the reporting about the advancement of the pandemic, the main concerns regarding the consequences have been family and educa- tion policy issues, the degree of self-sufficiency and economic prospects as well as a possible economic collapse. Two of the most-read newspapers were selected for a closer review. Helsingin Sanomat (HS) is published daily and is the most widely circulated newspaper in Finland. Maaseudun Tule- vaisuus (MT) is published three times a week and online daily. It focuses on news about agriculture and forestry management, rural businesses and rural areas. Both newspapers are politically uncommitted.

The low visibility of the elderly in the media

Articles about the elderly population appeared in both newspapers and in oth- er media as well. However, considering how high the mortality rate has been for the elderly population, their visibility has been rather low in the media. The format of the articles focused on stating and reporting, and comparatively few analytical articles on the elderly were published. Certainly, there were some exceptions, and more was written about some themes. Concerns arose especially when the epidemic reached nursing homes and many deaths were reported. Even before the epidemic peaked there had been some reflection in the media about how it could be prevented from entering nursing homes. The ban on visits also caused debate, and in particular, the views and feel- ings of relatives were told. (e.g., HS 2020i; 2020j; 2020k; 2020l).

Main concerns: Child and family policy issues, education and self-sufficiency

There were several articles about families and children and COVID-19’s effects on them. Concern arose about families, particularly single-parent

◂ back to table of contents FINLAND ℅ 21 families, managing in a situation where schools and day nurseries were closed. Other concerns were about situations involving shared child custo- dy’, particularly how children living in more than one home were affected by the COVID-19 measures. In addition to these, concern arose about fam- ilies coping economically and related to this, the potential for increased inequality. With the advent of remote school, free school meals came to an end, which impacted the finances of many families. Later, school meals were offered for families to pick up at distribution centres and bring home. Concerns about worsening family issues, such as alcohol abuse, domes- tic violence and mental health problems, also emerged. Positive effects were also mentioned, like increased family time (e.g., HS 2020m; 2020n; 2020o; 2020p; 2020q; 2020r; MT 2020a).

Education was one of the common subjects during the period of review in Helsingin Sanomat. There were worries about teachers’ and pupils’ well-be- ing in these unusual times. One concern was about increasing inequality among pupils, because not all families have had equal capacity to sup- port children in their studies, nor do they have all the technical equipment needed. (e.g., (HS 2020s; 2020t; 2020u; 2020v; 2020w; 2020x.) Maas- eudun Tulevaisuus (e.g., 2020b; 2020c; 2020d; 2020g; 2020h) focused quite considerably on self-sufficiency regarding food and an emphasis on its relevance. There were a significant number of concerns related to farm- ing and economics. One of the concerns considered migrant workers and their opportunities to travel conventionally. An inability to employ seasonal workers would hamper companies’ ability to operate and domestic primary production (e.g., MT 2020i; 2020j; 2020k).

Political debate

The Finnish government declared the preservation of human lives as its priority during the epidemic. The government indicated that it would consult experts in all decision-making. All the political and security measures were very clearly justified by scientific knowledge, especially from the National Institute of Health and Welfare. The government also consulted the full par- liament, and some decisions were based on parliamentary consensus. The general dialogue has emphasised a sense of community and a shared po- litical state of will.

Initially, the opposition accused the government of being too slow in re- sponding to the epidemic. The government relatively long believed, or at least stated, that an epidemic in Finland would be unlikely. Rapidly after the WHO classified COVID-19 as a pandemic, the Finnish government, together with the president, announced the State of Emergency and the Emergen- cy Powers Act. These decisions had been expected and had the support of the full parliament (e.g., YLE 2020n; 2020o; 2020p; Uusisuomi 2020; Eduskunta, 2020). Later, the opposition also offered their own proposals on managing the epidemic (YLE 2020q; 2020r).

Finnish political culture is often described as having an emphasis on com- promise and consensus, and during COVID-19 the conversation has been

◂ back to table of contents 22 ℅ MC COVID-19 quite consensus seeking. Opposition parties have, for example, withdrawn the interpellation, or omitted it altogether, because they have not, according to them, wanted to undermine the government’s position during the pandem- ic (e.g., 2020s; HS 2020y). Certainly, there have been a few exceptions and, inter alia, the opposition has criticised the government’s economic policy alignments and incurring of debt. The opposition has also accused the gov- ernment of a lack of transparency over the background of some decisions. The government communications have received both reproaches and plau- dits. Many of the government’s recommendations have been interpretable as orders, which have caused ambiguity (e.g., HS 2020z; 2020aa).

Regional differences in COVID-19 incidence have been extensive through- out the epidemic (THL, 2020f). In some regions there have been only a few cases throughout the period considered. However, restriction measures have been in place in all regions. This gave rise to some strong criticism from the municipalities. Many regional leaders hoped that regional differ- ences in the incidence of the disease would be considered when deciding on the restrictions (YLE 2020t).

The government has had the public’s trust during COVID-19

The government has had the public’s trust during COVID-19. When Maaseu- dun Tulevaisuus (2020l; 2020m) inquired about citizens’ opinion in March, 66% of respondents indicated they were satisfied with the government’s ac- tions. In April the percentage was 73%. In its study of values and attitudes, the Finnish business and policy forum EVA discovered how COVID-19 has affected the confidence of Finns in 30 different entities or actors in society. Trust changes were considered relative to the previous measurement, which was taken in 2018. In particular, the government was trusted more than in the previous survey. Now 60% said they have confidence in the government, and a majority (52%) also trust parliament. For the government, the read- ings had increased by more than 30 percentage points, and parliament had increased its confidence by almost 20 percentage points. Distrust in govern- ment and parliament has diminished even more than confidence has grown (Haavisto 2020).

3. DESCRIPTION AND ANALYSIS OF THE MEASURES ADOPTED TO ADDRESS THE IMPACT OF THE PANDEMIC ON THE RESIDENTIAL CARE SECTOR FOR THE OLDER-AGE POPULATION

3.1. Background of preparedness for the crisis

Previous plans to respond to public health emergencies in Finland

Finland has a national emergency preparedness plan, local preparedness plans and industry-specific preparedness plans in place. The MSAH directs, controls and is responsible for emergency and pandemic preparedness in Finland. For the purposes of preparedness in social and health care, the ministry has a contingency unit, which is a separate performance group

◂ back to table of contents FINLAND ℅ 23 under the permanent secretary. This unit provides expert guidance and de- velopment for the ministry and the administration. (Sosiaalitoimen varau- tumisopas 2008, p. 16).

The main provisions for the prevention of infectious diseases are contained in the Communicable Diseases Act (Tartuntatautilaki, 1227/2016). If the pathogen is not known, the Health Protection Act (Terveydensuojelulaki 763/1994) Sosiaalitoimen varautumisopas, 2008, p. 14). In Finland there is also an Emergency Powers Act (Valmiuslaki 1552/2011), which is meant to provide adequate powers for national and regional authorities during war or other exceptional situations. During the pandemic it was tested for the first time and proved to be decisive in providing the possibility of quick ma- noeuvres for the government.

Emergency preparedness is a statutory obligation for the local authorities, municipalities and social services. The Emergency Powers Act obliges mu- nicipalities and joint municipal authorities to ensure the best possible per- formance of their duties, even in exceptional circumstances. This will be carried out through contingency plans and prior preparations for operations in exceptional circumstances. This contingency obligation applies to nor- mal times, and readiness must be maintained continuously as part of the activities of the municipality. The MSAH has provided a framework to the municipal social services about how they should be prepared for emergen- cy situations and for drawing up the emergency plan for unanticipated and abnormal situations. In the framework, the ministry guides social services, for special attention is required to guarantee the safety of the elderly and other relatively fragile groups (STM 2008, p. 14).

National preparedness for a pandemic is guided by the Communicable Diseases Act (1227/2016, Tartuntatautilaki), the newest version of which came into effect on 1 March 2017. The act lays out the obligations of the authorities and the principles of cooperation between the authorities to prevent communicable diseases. It is supplemented by the Government Decree on Communicable Diseases (STM 2020a). The National Prepared- ness Plan was last updated in 2012, when the WHO instructed its member countries to update their pandemic preparedness plans after the H1N1 pandemic. The latest upgrade work on the pandemic plan started in the spring of 2020, when the Preparedness Unit, working under the MSAH, started work on updating the plan (STM 2020a).

The National Preparedness Plan aims to limit the harm caused by a pan- demic to human health, to ensure the continuity of society’s activities as well as possible, to set up the guidelines for influenza pandemic prepared- ness at all administrative levels of health care and to support preparations in other administrative branches (STM 2012, pp. 24–25).

In social and health care, the preparedness obligation is based on the , the Emergency Powers Act and industry-specif- ic legislation. Self-monitoring plans are obliged by law. Each social and health organisation must plan for preparedness from two perspectives.

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The organisation must ensure the continuity of its own services and tasks in all situations as well as possible (continuity management). Second, the organisation must be prepared for the different threat models identified together, as well as exceptional events and disruptions, the management of which require greater and closer cooperation and communication be- tween authorities and other actors (e.g., a major accident and pandemic) (Kuntaliitto, 2019). In health care, a key responsibility lies with municipali- ties or joint municipal authorities within a regional organisation, where the regional state administrative agency and the local government groups in medical districts collaboratively guide the planning of public primary care, social care and private health care equipment and enforcement. The role of the regional organisation is to create an arrangement, management proce- dure and plan for the region that consider regional and local specifics (STM 2012, p. 24).

Social welfare units in preparedness plans

Social welfare units, including care homes, are briefly mentioned in the Na- tional Preparedness Plan for a pandemic. The plan points out that if the po- tential epidemic reaches the housing service for the elderly, it will become more difficult to care for the residents. The plan also remarks that in case of a pandemic, sending residents to hospital is problematic if the hospitals are full of infection patients (STM 2012, p. 35).

Social welfare units must have their own preparedness plans in place. In situations of disruption and exceptional circumstances, there is a growing need for social care and health care. Social care should be prepared for the establishment and management of evacuation centres, as well as the provision of accommodation, clothing and food supply (Kuntaliitto 2019). In the social and health service preparedness plans, special attention is required to the safety and care of children, the elderly and people with dis- abilities (STM 2008, p. 20).

Expert interviews revealed that the units’ preparedness plans had not spe- cifically prepared for a pandemic like COVID-19. The plans had considered more common seasonal epidemics such as influenza or norovirus. During COVID-19, pandemic guidance from the medical districts, the MSAH, the National Institute for Health and Welfare and the municipalities was fol- lowed in the social welfare units.

Assessment of the plans

In spite of all the planning, none of the plans catered to COVID-19 com- pletely. However, it can be said that the existence of the plans and the emergency legislation provided some tools for the authorities.

The stage of the social services’ preparedness planning had already been assessed in 2014, though naturally not from the viewpoint of the current situation. Merja Rapeli and Venla Ritola (2014) found that the planning was carried out quite adequately by the municipalities and joint municipal

◂ back to table of contents FINLAND ℅ 25 authorities. However, they discovered statistically significant differences in the quality of the preparedness plans between small and large service are- as and how they considered the elderly. Overall, the elderly and other fragile groups were not noted in the plans as well as they should have been.

This applies especially to the COVID-19 situation. No one was prepared for the protection of the elderly in such a situation, and decisions had to be made on the run. The plans essentially encouraged preparation only for normal conditions, since the frameworks provided for the plans by the ministry considered only such conditions. Our interviewees stated that pre- paredness plans were not comprehensive enough and that they had not been adequately prepared for a pandemic situation. On the other hand, regulations that can materially change the functions, responsibilities and powers of the authorities are used in emergency situations such as this. Perhaps it is simply impossible to prepare for all possible situations, and the possibility in the legislation to act and severely limit the rights of people if needed is enough. However, it must be clear whose responsibility it is to act and what the powers are. Such powers can also be misused, and there- fore rights to appeal and assess the limitations of the rights of people must also be provided for.

As of now, it seems that the chain of command is unclear. Interviewees stated that there was uncertainty as to which authority’s instructions to fol- low in situations where new instructions came daily. This is something that future preparedness plans should clarify.

It also arose in the interviews that preparedness should not be the re- sponsibility of the units themselves. It was recommended that there be a comprehensive common preparedness plan in place. At the moment, the practices are varied, which was seen as problematic in the interviews. In some situations, they had to make decisions about the measures on their own because the authorities did not respond to their inquiries. This is somewhat of a double-edged question. Common rules are needed to ensure equal treatment of people, but on the other hand, local situations vary and cannot be considered nationally. As has also been shown during the pandemic, the situations have been very different in different parts of Finland. Perhaps there was too much national guidance: was it, for exam- ple, necessary to cut the treatment of all non-COVID-19-releated diseases in areas where there were no COVID-19 patients?

3.2. General impact of the epidemic on the residential care sector and policy responses

Timeframe of guidance for protecting the elderly

During the COVID-19 pandemic, the general aim was to protect the elderly. Multiple measures were adopted to prevent the virus from reaching the so- cial welfare units. Despite the effort, COVID-19 has been relatively fatal to the elderly living in the social welfare units. The measures have been both criticised and praised.

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On 4 March, the MSAH issued guidance to the municipalities on COVID-19 preparations. Municipalities needed to have a preparedness plan in place even before COVID-19, but now the plan needed to be updated. The minis- try instructed municipalities to pay special attention to the elderly because they are at greater risk of becoming seriously ill. Municipalities should also plan for how care homes are instructed in situations where residents, or some of the residents, are quarantined (STM 2020a). However, in general, plans were not comprehensive enough. This came up in the interviews and in the media.

On 16 March the government announced that day activities for elderly were cancelled. Day activities are, for many lonely elderly people, the only chance to get away from home and see other people. The consequences of the sus- pension can appear not only as depression but also as physical degenera- tion (Akava 2020). One of the interviewees said that in their municipality, day activity visitors were contacted by phone weekly on their normal visiting day, and the availability of psychosocial services was increased. Still, in general, only critical patients were treated in mental health care. Particu- larly for informal care, a relative’s visit to the day centre had provided an important break from caring and an opportunity to deal with the caregiver’s own errands (Talentia 2020). The interviewees stated that the staff (nurs- ing professionals) of day centres shifted to other municipal services, for example to housing services.

On 20 March, the MSAH instructed municipalities to guide care units in their region to prohibit visitors to housing services for the elderly. Only crit- ically ill individuals were permitted to be visited, judged on a case-by-case basis. Before this almost total ban on visitors, the authorities were only guiding municipalities and other service providers, along with relatives, to protect elderly citizens and to avoid non-obligatory visits to them (STM 2020a). Some units started to organise new ways, such as video calls, for their residents to stay in touch with their relatives. Many units also began to organise meetings in new ways, such as outdoors. Later, in May, some care homes developed special containers placed in courtyards of the care home: the residents and relatives could safely meet through glass walls without the risk of contamination. (YLE 2020u; 2020v.) However, in spite of these efforts, many of the elderly in quarantine did not have these pos- sibilities. In particular, elderly individuals with memory illnesses were in a difficult situation since it was impossible to explain why their loved ones did not come to visit. When the Helsingin Sanomat (8.5.2020) asked elderly people to write a diary for a week in April, meeting restrictions and lack of intimacy stood out in all the diaries. One of the writers described the period of COVID-19 as being even worse than the wartime she had experienced when she was a child, attributing this to the lack of physical human contact.

Complaints and problems

There have been many complaints made to the ombudsman of the parlia- ment (eduskunnan oikeusasiamies) about limiting the rights of the elderly during the pandemic, especially the right of the elderly to meet with their

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relatives. The ombudsman has considered the execution of the ministry’s guidance as a violation of the law in many service units. No law provides for a total ban on visits; there should always be individual assessment. How- ever, the restriction on meetings is likely to have saved lives, and in many cases the measures were well-timed, according to the ombudsman.

On 23 March, the MSAH obligated the National Emergency Supply Agen- cy (NESA)3 to open their stockpiles of materials and distribute protective equipment to the university hospital districts of Finland. The districts were ordered to share the equipment with the municipalities or the joint munic- ipal authorities, who were expected to further distribute the equipment to the local social and health care units. It soon became evident that there was not enough protective equipment for care homes and that the min- istry’s guidance about the use of the protection equipment had not been followed for those homes (YLE 2020x; STM 2020a). The MSAH made a survey of the municipalities, which revealed that the concern was justified. In the survey, 67% of respondents reported that it was impossible to fol- low the instructions provided, mainly because of a lack of protective equip- ment. For that reason, on 13 May the ministry gave an obliging order to the municipalities and service providers about the usage of the protective equipment. The use of protective equipment was mandatory from 13 May. On 20 May, NESA reported that the adequacy of the equipment was now at a good level compared with the previous levels (STM 2020a). In principle, preparations such as the purchase of protective equipment belong to the service providers themselves (AVI 2020). In the spring, the purchase of protective equipment was difficult globally, and therefore self-production was also launched in Finland (YLE 2020x). According to the interviewees, some service providers for the elderly even began to manufacture protec- tive equipment themselves.

COVID-19 arrives at the LTC units

On 3 April the first COVID-19 cases and deaths in nursing homes were re- ported. The worst situation was in a private provider care home in north- ern Savo, where almost half of the residents eventually died, 12 in total. On 3 April, the regional administrative agency began the supervision of the care home due to shortcomings found in the operation. On 9 April, the nurs- 3 The National Emergency Supply Agency ing home passed from a private service provider to the responsibility of a (NESA) is an organisation working joint municipal authority. A municipal or joint municipal authority responsi- under the Ministry of economic affairs ble for organising health care and social welfare is eventually responsible to and employment. It is tasked with ensure the continuity of operations and the safety of residents. planning and measures related to developing and maintaining security of supply. The state holds stockpiles The virus came to the nursing home via new resident who was at first of materials necessary to ensure asymptomatic. When the new resident showed symptoms, he was tested, the population’s welfare and the functioning of the economy in the but by the time the test came back positive other residents were already event of major crises. The state-owned infected. The police are currently investigating whether the coronavirus was stockpiles are used to maintain viable able to spread in the care home because of neglect. They are also looking production of energy, food, and health- whether the possible neglect was due to pursuit of financial benefit – that care services or for military purposes. NESA is tasked with maintaining these is whether the private institution had reserved too little resources to provide stockpiles. for good quality care. Investigation is still in process. (YLE 2020w.)

◂ back to table of contents 28 ℅ MC COVID-19

During the COVID-19 pandemic, many medical districts, recommended that when a new resident enters a social welfare unit or returns from home hol- iday, they should be treated for the first two weeks under quarantine condi- tions, closely monitored for the onset of symptoms of a respiratory infection. The goal of the action was to prevent the spread of COVID-19 infection even before a person not known to have been exposed to the infection starts to show any symptoms (TAYS 2020; STM 2020a). This recommendation was not universally followed, and the non-compliance was certainly due in part to the lack of a formal recommendation or guidance on the matter. Restrict- ing the movement of a memory-ill resident is challenging because memory disease prevents the implementation of self-sufficient quarantine. And in a situation where there is no evidence of actual exposure, limitations are diffi- cult to justify. One of the interviewees, a head of a nursing home, stated that she had to argue with the senior physician to get permission to isolate a new resident. It can be difficult for an individual doctor to decide about isolating a new resident, in a situation where there is no official recommendation or command for it. Part of the problem is also the legislation – or actually the lack of it. There are no rules on restrictions in elderly care even though re- stricting especially people with memory illnesses is necessary for their pro- tection even in normal situation. Restricting one´s right to free movement is in breach of human rights unless there is justification for it in the legislation. Such legislation exists on restricting the rights of mentally disabled, mentally ill, children in need of protection, people with substance abuse problem or people with infectious disease. Since the strict rules on restricting the rights on the grounds of infectious disease (positive test results) did not exist, the doctors did not have legal grounds to order any quarantine. As mentioned, there has been several complaints to the Parliamentary Ombudsman on the restrictions on elderly and at least one court case pending to our knowledge. The Ombudsman and the Administrative Court of Eastern Finland as well as the Non-Discrimination Ombudsman have uniformly stated that the visiting bans, restrictions on movement and quarantines have not been legal. On the other hand there has been understanding of the extraordinary circumstanc- es and good will to protect the elderly (see for example the Case 3479/2020 of the Parliamentary Ombudsman).

COVID-19 has been relatively fatal in other care homes, too, since of all Finland’s COVID-19 deaths, 45 percent have occurred in 24-hour social welfare units (THL 2020; AVI 2020). Any statistics on how many nursing homes have been affected by the COVID-19 is not available. There is also no information on the number of staff infected. What we know is that, by 31 May less than one percent of all residents in housing services have died to COVID-19 during the pandemic. In some cases, infected residents were hospitalised, but in most they were not. Sending the resident to hospital was always decided by a doctor. The decision has been based not only on an advance decision but also on a medical assessment of whether the patient would benefit from the treatment. Older age itself should not be an obstacle to referral to hospital or administering intensive care.

In their COVID-19 instructions, the MSAH presented that 24-hour social welfare units, with support from home nursing and emergency medical

◂ back to table of contents FINLAND ℅ 29 service units, should be able to give symptomatic treatment in their units. This instruction included housing services where medical services are normally not available. The 24-hour social welfare units needed to make sure that they have a 24-hour doctor service available in case of a need for medical consultation. The units had to prepare to provide palliative treatment for COVID-19 by training their staff and obtaining the medicines necessary (STM 2020a). They would offer only palliative treatment in care homes and any resident needing hospital level treatment, like intensive care, were transferred to hospital. The intensive care decision is made by a physician and there is a guideline to follow. The decision is always based on the doctor’s assessment and is made on medical grounds. For every patient, including elderly, an individual assessment is made, and it is eval- uated whether the treatment is more benefit than harm. (Kari, Reinikainen & Valtonen 2020.) These guidelines were followed last spring and since the adequacy of the intensive care beds was at good levels throughout the spring, no societal ethical debate, about whom to be treated, needed to take place. As mentioned before, the older age itself should not be an ob- stacle to administering intensive care, and as seen from the intensive care statistics, also older patients have been treated throughout the epidemic (KYS 2020).

During the pandemic, the elderly has been treated in hospital if the situation required it. Decisions have been made on the same principles as before the pandemic. The national goal is for older people to be able to live at home or in home-like conditions and receive the services and the care they need at home for the rest of their lives. Despite this goal, in normal times palliative and terminal care in 24-hour welfare services relies significantly on ser- vices provided by emergency services and hospitals. The national quality criteria for palliative care in elderly services were reformed in 2019, and more attention has begun to be paid to the issue (STM 2019, pp. 87–134). During COVID-19, effort was made to care for residents within the housing services for as long as possible, and relatives were to be given the opportu- nity to attend to terminal care. However, it has come to our knowledge that in all care homes this opportunity, at least all times, has not been available.

Different guidance from different levels of authority

The 24-hour social welfare units have received guidance from different levels of authorities. Instructions have been given by the government, the MSAH, municipalities, private providers, hospital districts and the Finnish Institute for Health and Welfare. New instructions were given frequently and sometimes were conflicting. For the 24-hour units, the MSAH is the highest authority, but the hospital districts can give guidance on health care mat- ters. It is also the hospital district’s duty to guide 24-hour social welfare units in situations where instructions are obscure (AVI 2020). New instruc- tions came frequently, and previous instructions quickly expired.

The Finnish Government did not actually give hardly any obliging orders, but the recommendations were communicated to the public in a way that was interpretable as an order. It has mostly been about word choices when

◂ back to table of contents 30 ℅ MC COVID-19 the government has deliberately used terms such as “must” in contexts of a recommendation. For example, when the Government recommended banning visits to care homes, the recommendation was interpreted as a command which might have caused the violation of the human rights as considered by the Parliamentary Ombudsman as explained above.

Frequently given, overlapping instructions and their contradictions have been perceived as problematic. It has been laborious to follow constantly changing guidance from several different sources. Instructions have also come in various forms, with some being recommendations and some com- mands.

3.3. Case analysis

The future of the residential care sector in Finland

Even though the residential care sector in Finland was hit by COVID-19, the hit was relatively modest compared to that in many other countries. As a result, the sector has probably not changed significantly because of the pandemic. However, there are several lessons to be learned, as explained below. Even though we do not anticipate great changes in administration or in the system of elderly care, this spring has surely affected the image of LTC, and those changes might affect the choices people make in the future.

Lessons learned

Preparation

The Finnish government seemed to understand from the beginning that elderly people belong to a risk group with regard to COVID-19. As Saloni- us-Pasternak (2020) points out, Finland’s political decision makers had the luxury of seeing how COVID-19 was developing in other countries. However, there has been a great deal of discussion concerning the level of national preparedness for crisis situations like COVID-19 as well as whether the gov- ernment’s response began early enough.

It is clear that Finnish LTC units were not prepared for pandemic like this, despite all self-monitoring or national preparedness plans. The level of na- tional preparedness for crisis situations concerning citizens’ health seemed not to be as high as it should have been at the beginning of COVID-19. As we have reported in this paper, although there were plans for future crisis situations (e.g., the National Preparedness Plan for an influenza pandemic and the social services’ preparedness and contingency plans), many diffi- culties occurred.

The elderly population is growing fast in Finland. In situations like COVID-19, the elderly comprises a massive risk group that needs to be protected. The roles and responsibilities of different actors (state, social and health care sector, municipalities, and public and private sector, as well as the whole LTC sector) must be clarified and sharpened.

◂ back to table of contents FINLAND ℅ 31

At the state level, there must be clearer definitions for organisations (gov- ernment, THL, MSAH) taking responsibility for the implementations during different stages of a crisis. At the level of actors at the municipal level, there must be more concrete instructions for acting (as seen in interviews, there were many difficulties because of unclear or even opposite instructions). At the level of LTC units, there must be better know-how about who is in charge in different types of situations as well as whose orders to follow. Chains of command must be clarified. It must be ensured that all needed protective equipment is available from the very beginning of the next crisis. It also must be ensured that people working under stress caused by a situ- ation like COVID-19 will be protected against burnout.

Overprotection of the elderly?

When thinking about the elderly themselves, we must consider the prin- ciple of self-determination. How did this principle work in the situation of COVID-19? Until now we have little research concerning the experiences of the elderly isolated in quarantine-like conditions in their own homes or in LTC units. We need to give serious attention to how to protect the elderly and still respect their self-determination. Did the elderly in LTC units have enough chances to communicate what they themselves wanted? Being iso- lated from loved ones at the end of life may be a very difficult experience. Did the families of the elderly living in LTC units have enough possibilities to meet them? (See, e.g., Rissanen et al., 2020.) Did the units do enough to promote the possibilities of remote access, or did the units have too strict of a ban on visits? There are many ethical questions to be considered in combining the security and dignity of elderly individuals undergoing crisis situations. There will also be legal aftermath, as there are ongoing com- plaints by the parliamentary ombudsman.

Towards better preparations

In many ways Finland has survived well under the crisis of COVID-19. Howev- er, there is much to do before the next crisis. As Salonius-Pasternak (2020) states, Finland’s plan for how to protect its citizens and vital functions of society has withstood its initial confrontation with the COVID-19 reality. No plan or preparation can anticipate everything that the future holds, and ultimately resources are finite, but in Finland’s case the general response system is firmly in place. In addition, the Wise project (2020) (see https:// wiseproject.fi/wise-hankkeen-politiikkasuositus/) has provided some rec- ommendations for future crisis situations. It points out, for example, the importance of proactive expert processes as well as excessive resources. The authorisations as well as requirements of different experts need to be clarified, and the ability to identify strategic mistakes must be developed.

Regional differences in the incidence of COVID-19 have been significant. However, the restriction measures have mainly been in place nationally, de- spite the differences in incidence. In the future, regional differences should be considered when deciding on the restriction measures. The forthcom- ing social welfare and health care reform will probably make it easier to

◂ back to table of contents 32 ℅ MC COVID-19 consider regional differences and to make local-level decisions and restric- tions.

In a possible future crisis, advising and guidance for the residential care sector should be more centralised. The current crisis has shown that the responsibilities are too divided. Residential care sector managers would benefit from a model in which they would receive the instructions, support and (urgent) answers they need from one source of informed experts.

The COVID-19 pandemic has shown the importance of advanced prepar- edness and planning. The crisis has offered valuable information for the handling possible future pandemics in the residential care sector. For ex- ample, the risk caused by relocating residents is more identifiable now, and in the future, it would be easier to decide how to follow the possible recom- mendations for isolating. It is now also possible to prepare for exceptional situations where protective equipment is not available. Useful information and examples of self-production have been accumulated from the time of the crisis.

3.4. Examples of developments in specific care homes

The interviews

For this section we have interviewed two managers from social welfare units from different parts of Finland. One interviewee works as a manager in a medium-sized municipal 24-hour social welfare unit, and the other works as a manager of a private housing service unit in a large city. In addition to these interviews, we have also interviewed the leader of elderly services from a small municipality.

At first the pandemic seemed like a remote threat, and it was difficult to imagine an epidemic in Finland. From late January to February, the sever- ity of the situation began to actualise, and the possibility of an epidemic reaching Finland no longer felt as distant. Constant media coverage of the approaching epidemic prompted an understanding of the seriousness of the situation.

Officially, the interviewees were informed at the local level, such as the mu- nicipality and regional administrative authority, as well as at the nation- al level, like the MSAH and the National Institute for Health and Welfare. During the epidemic, the interviewees contacted several authorities them- selves trying to get more specific instructions. When seeking answers to dif- ferent kinds of responsibility issues and legal questions, the interviewees were in contact with the regional administrative authorities, the hospital districts and municipalities as well as the MSAH.

The interviewees stated that they needed clearer guidance and support from authorities, particularly from local authorities. There were plenty of difficulties in communications with authorities. Too many overlapping in- structions were given too frequently, some of which were even conflicting,

◂ back to table of contents FINLAND ℅ 33 and in these situations, it was not clear whose instructions to follow. Thus, the chain of command was unclear. The interviewees reported that it was also hard to get answers to their inquiries, and it even seemed that some authorities were avoiding their responsibilities. This led to situations where managers were forced to make decisions without any backup from the au- thorities. Since there was a lack of guidance and support, the role of the work community and employees’ own networks became more important. The support of colleagues became very important in situations where de- cisions had to be made quickly by intuition and without official guidance.

None of the social welfare units from which managers were interviewed suffered from COVID-19. Several measures to prevent the epidemic were adopted. Residents were tested, although there was no official order to do so. One of the interviewees said that, she had to advocate strongly for per- mission to test the residents in her unit before the physician responsible for infectious diseases granted her request, the tests were scarcely available nationally.

Staff were also tested as instructed by the occupational health care author- ities, municipal authorities and hospital districts. Frequent guidance on hy- giene as well as general guidance about COVID-19 was given to both staff and residents. The staff were encouraged to offer open and straightforward communication, and the role of immediate supervisors was strengthened. Organisations started to follow their previous preparedness plans, which meant that the chain of command was reorganised. Staff were encouraged to express their worries concerning COVID-19 (e.g., getting sick themselves) and also to report if they had a family member belonging to a risk group.

The interviews revealed that there were numerous difficulties with the sup- ply of protective equipment during COVID-19. In the beginning of the pan- demic there were not enough supplies and a great deal of uncertainty about whose responsibility it was to supply protective equipment. In particular, there seemed to be confusion about the role of the National Emergency Supply Agency. Since the availability of supplies was unsatisfactory, one of the interviewees stated that they started to manufacture masks them- selves. It took about three months (until the end of May) to get the amount of equipment needed in all the social welfare units in question.

The lives of residents were restricted in many ways. Before the restrictions came into effect, staff were to notify the residents and their families about the upcoming restrictions because some of the decisions had to be made very quickly. One of the first restrictions was to set up the visitation ban. This was done in March. Also, the units had to prepare for situations where some of the residents would have been infected. In a situation like this, the infected resident(s) would be isolated from other residents. One of our in- terviewees mentioned that they had decided to isolate all new residents as a precautionary measure. The staff were reinforced by care professionals from suspended services, such as day nurseries and day activity centres. Also, more ward domestics were hired. Organisations were increasingly in contact with doctors and medical districts.

◂ back to table of contents 34 ℅ MC COVID-19

The interviews revealed that some of the measures adopted by the units were criticised by some residents and their relatives. The violation of the self-determination of the elderly living in the residential care units was the main cause of criticism. However, there is still very good consensus that these severe restrictions might have helped save many lives among the elderly living in elder-care units. It remains to be seen whether the adopted measures will cause any legal consequences, such as complaints to the parliamentary ombudsman or the regional administrative authority, in the future.

According to the interviewees, the units started to organise new ways for residents to meet and to stay in contact with their families and loved ones. The units organised safe meeting places, such as outdoor spaces. In ad- dition, various technological devices were acquired to aid communication between residents and their families, such as mobile phones and tablets, and assistance in using these devices was also organised.

Preparedness plans existed, but they were not very helpful in this particu- lar situation. Still, the plans were useful when emphasising communica- tions and rearranging organisations’ chains of command. Regarding the measures adopted, authorities’ guidelines were followed. However, in some cases instructions came after such a long delay that managers had to make some of the decisions by themselves. Models and measures were also designed in their own organisations and in conjunction with the senior physician responsible for infectious diseases. The interviewees would have benefited from consistent instructions coming from one reliable source.

If an elderly person was infected with COVID-19, they would be treated in their own unit for as long as possible. This is the aim in normal situations as well: residents are transferred to hospitals only when a situation really requires it. If the resident was in palliative care because of COVID-19, rel- atives and other loved ones were allowed to attend to care as usual. The staff offered guidance on hygiene issues.

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z. 20.5. Hallituksen koronarajoituksissa­ sotkeentuivat suosituk- set ja velvoitukset – hallituksen viestintä ei saa oikeusoppineilta­ puhtaita papereita. Availabe at https://www.hs.fi/politiikka/art- 2000006513386.html aa. 23.5. Moni iäkäs uskoi, että koronaviruksen takia kotoa ei saa pois- tua – ”Viestiä on nyt korjattu”, sanoo oikeusministeri Henriksson. Available at https://www.hs.fi/politiikka/art-2000006516399.html

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