49925-APDA-Newsletter.Pdf
August 2014 Volume 28, Issue 3 Newsletter of the American Parkinson Disease Association Greater St. Louis Chapter LNK Serving Missouri and Southern Illinois IN THIS ISSUE Be An Advocate! Bend the Curve— y definition, an advocate is a “supporter, promoter, campaigner, Bbacker,” and that is exactly what we need when you consider that Change the Future ......................... 2 there are 11,238 PD cases among Medicare beneficiaries in Missouri and 23,050 PD cases in Illinois (Willis et al). Of those numbers, 53.5% Beating Caregiver Guilt .................. 4 of PD patients do not see a neurologist in Missouri and 47.4% of PD patients do not see a neurologist in Illinois. This newsletter is distributed Focus on Fashion Debbie Guyer, MA to 6,000 people in the bi-state region and another 2,500 across the and Philanthropy ............................ 5 country outside of our service area. That means we have a lot of work to do to make connections with everyone touched by Parkinson disease, much more than our End of Life Issues with PD ............. 6 staff of two can manage. One of our newest members, Terri, came check-out lane at the grocery store or with And Parkinson’s Makes Three ....... 7 into my office one Friday morning before friends at a party. With the ever-increasing Tai Chi with a request. She wondered if I number of individuals being diagnosed Golf Tournament .........................8-9 might give her information about PD and with Parkinson disease, don’t assume they the APDA to share with her primary care have found the APDA.
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