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Sir Michael Parkinson Prostate cancer InsightsIssue 8 | Summer 2016 Improving diagnosis The new tools to catch it earlier Prostate cancer and me SIR MICHAEL PARKINSON Teaching old drugs new tricks Making existing treatments work harder Insights | Summer 2016 1 Inbox Prostate cancer and me: Get in touch and Sir Michael Parkinson Editor’s 3 have your say 14 The former chat-show legend talks frankly about his brush with note Prostate cancer news prostate cancer Just six months after Latest research announcing our 10-year 4 developments strategy, we’re already The Manual making exciting progress Our tips for coping with on our pledges for better Three ways we’re 16 the fatigue of prostatep19 diagnosis and treatment improving diagnosis now cancer treatment of prostate cancer. ONTENTS 6 The new PSA guidelines, risk tool and mpMRI After the PROMIS trial C roll out that’s changing Do your own announcement (p6), prostate cancer detection challenge walk we’re busily preparing 18 Ann Fraser reveals the to roll out mpMRI scans secrets of her successful before a first biopsy Speaking out for Isle of Wight walk across the UK, as well as Father’s Day developing our risk tool 8 Five stories of fatherly for GPs and encouraging conversations and advice Running across health professionals to from our supporters the Sahara make better use of the 19 Plus Top Dad and PSA test (p6). We’re also fundraising thank yous heavily involved in funding Prostate Cancer UK research that’s finding update all sorts of new uses for 9 All the latest from us Get involved drugs that are already Events for the rest of 2016 clinically approved, which 20 and five fundraising ideas means they could be Teaching old drugs swiftly given to men with new tricks prostate cancer if they are 10 How researchers are Our support effective (p10). finding new uses for and services old treatments 22 How we can help you Enjoy reading about that, as well as the remarkable stories of Sir Michael Parkinson (p14), Kevin Webber and Bob Wilson (p19). Then check out our new DIY walking kit (p18), which joins our other fundraising guides p14 for cycling and golf. Who knows, next time it could be you featuring in the pages of this magazine. Editorial team Sophie Lutter Sarah Lines Nick Wright p10 Sonia Barbate Dominic Bates (Editor) 2 Insights | Summer 2016 Your praise INBOX for the Men Tell us what you think about the magazine. United March All feedback is welcome: we want to hear what you’ve got to say. Our Facebook page Dear Terry was full of tributes to Jeff Stelling, Russ Green and We’re glad that seeing his band of fellow marchers our pin-badge helps you after their 262-mile walk Dear Insights feel supported by others. Excellent research from Hartlepool to London, As a recent sufferer, I We know that you’re results [from the that’s now raised more would like to pass on not alone in finding the than £400k. Here are just a my sincere thanks to all badge reassuring and Stockholm-3 trial]. few of your responses: the football managers personally significant, and Let’s hope this and pundits who wear we’ll soon be releasing the Prostate Cancer UK a film that tells some of test can be rolled the amazing stories from pin-badge. It makes me Well done Jeff Stelling instantly humble and our supporters about out worldwide and what the badge means and everybody who took proud that these busy save unnecessary part in this epic walk. The people take time to to them. You may also like to know that you can biopsies and support of Jeff and others wear one. I completed at Sky Sports is admirable. my radiotherapy and I soon buy the pin-badge treatment, whilst from our online shop at We need more people am now on stomach in the public eye to raise injections to reduce my prostatecanceruk.org/ saving lives. Well shop, so hopefully you’ll awareness of this awful testosterone. So when I done Prostate disease. We’re still miles see a badge, it certainly be seeing many more of them on people’s lapels Cancer UK for behind breast cancer in helps me get through terms of awareness. it, knowing people are in future. funding the next thinking of us Steve E unlucky ones. stage of research. Terry Greenwood, Keep up the Thornton, Lancs good work Well done Jeff and Co. We had the pleasure of joining a cookbook ourselves, and its own cookbook. the march from Derby to but the Prostate Cancer We’d also recommend Burton. Fabulous day with Research Foundation Macmillan Cancer a great bunch of people part-funded Healthy Support’s range of online raising lots of money and Dear Insights Eating: The Prostate Care recipes tailored for people awareness for a really It would be a good Cookbook, by Margaret with cancer (search for good cause. move to get one of the Rayman, back in 2009, ‘recipes’ on their website), well-known chefs to put which is still available and there’s a more general Viki Myatt together a cookbook for on Amazon. Some of selection of equally healthy men with prostate cancer. the science behind the meal ideas on the NHS This would also raise ingredients it recommends Choices website awareness of the disease, may well have dated, but (nhs.uk/livewell). What fantastic memories and encourage discussion it is full of good healthy Bon appetit! we will all have. Would we of the subject. meal ideas. Nowadays, do it again? Yes we would! we often signpost people Jeff Willmot, via email Thank you Russ and Jeff to Penny Brohn UK’s for making day six a real Dear Jeff website (pennybrohn.org. treat for me. It’s an interesting idea! uk/nutrition), which has We’ve never produced well thought-out recipes Brian Harrison Like us on Facebook: Follow us on Twitter: Email the Insights team: Prostate Cancer UK @ProstateUK [email protected] Insights | Summer 2016 3 PROSTATE CANCER NEWS Race is on to get new MRI diagnosis adopted in the UK after PROMIS of scans before biopsy revealed Preliminary results from the without having to take a cancers detected by itself. everything set up to do long-anticipated PROMIS tissue sample and risk But if urologists could use mpMRI right, then there’s trial – announced at the serious infection. the results of the MRI scan a chance that it could American Society of Clinical to help them accurately actually do more harm Oncology conference in The results still need to target where in the prostate than good. That’s why June – found that using a be confirmed in a peer- to aim the biopsy needles, we’ve been working with multiparametric magnetic reviewed publication, this might result in more radiologists, commissioners resonance imaging but this first glimpse aggressive cancers being and NHS England to (mpMRI) scan before a first certainly looks exciting. diagnosed straight away. make sure the training, biopsy could allow many The research team, led by equipment and expertise men to avoid having the Professor Mark Emberton We want men to benefit are in place before invasive and often painful and Hashim Ahmed from from these findings and nationwide roll-out is done procedure. The researchers UCL, also found that having be spared unnecessary as speedily as possible. concluded that mpMRI was an mpMRI scan before a biopsies as soon as the You can read more about sufficient to safely rule out standard, random biopsy results have been peer- what we’ve been doing at the possibility of clinically- didn’t improve the number reviewed. But we know prostatecanceruk.org/ significant prostate cancer of aggressive prostate that unless hospitals have mpmri An innovator and unifier: in memory of our former trustee, Christopher Adams To say Christopher Adams the UK would be a gross treatments and innovative Action and The Prostate – who was diagnosed understatement. Chairman drug therapies. As Chair Cancer Charity to form with prostate cancer in of the Prostate Cancer of Prostate Action, he was Prostate Cancer UK 2003 and died on 13 Research Foundation from instrumental in the success in 2012, becoming a February 2016 – had an 2007, he was the obvious of a number of fundraising trustee of the UK’s largest impact on prostate cancer choice to steer the ship events and was the first to men’s health charity. research and treatment in following the merger in jump in and get involved. 2010 with Prostate UK to He was also an innovator form Prostate Action. Research was his passion and not afraid to take a risk and he was a massive for the cause. Sitting down His positive attitude to advocate of the Research with his friend, Kenney facing up to his own Forum – the biennial Jones – drummer with disease was evident in his meeting that brought the Small Faces and The efforts to help extend the the world’s top prostate Who – they pulled together lives of other men dealing cancer researchers and a plan to create a music with prostate cancer, clinicians under one roof to festival to raise money for focussing funding on compare notes and build prostate cancer. Those of groundbreaking collaborations. Genuinely you who have attended research into committed to bringing Rock ‘n’ Horsepower (now advances in all the prostate cancer in its third year) can attest charities together – to avoid to its success, and this duplication of effort and successful event is a fitting share experience and ideas tribute to a man who gave – he was instrumental in his all to help stop prostate the merger of Prostate cancer being a killer.
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