At the forefront of change From Katie

easier to live with burns and scars, to me to know that The Katie Piper and providing burns rehabilitation in Foundation has proved worthy of the particular, remains at the heart of faith that so many people – supporters , everything we do – and it always will. advisers, healthcare professionals, By the same token, our bigger vision and, above all, burn survivors – have has also remained firm over the past shown in it. Their generosity, in the five years: we want to see a world broadest sense, remains crucial to our where scars do not limit a person’s future and to the future of burns function, social inclusion or sense rehabilitation in this country. of well-being.

That sounds ambitious, but the Foundation’s determination has been matched by its consistency. Each year,

P we have made steady and measurable h

o progress. Through a compassionate, t o

g considered and practical focus on the r a

p needs of people with burns and scars, h

: we have achieved positive results for

R

a them. By learning through everything y

B we do, and by working with experts to u

r build our base of knowledge and m

i evidence, we have gained in both s t

o confidence and authority. n

The Katie Piper Foundation can Though it sometimes seems hard to now undertake to set and apply a Having

believe, The Katie Piper Foundation gold standard in every aspect of its ‘‘ has arrived at its fifth annual review. work. By carefully developing our scar Since the Foundation came into ideas, and by nurturing and a means being, so much has changed for us, strengthening our relationships with ‘‘ but the commitments we make to the healthcare community – not least NEVER having burn survivors are the same as they with the NHS – we are now coming were in 2009. closer to realising one of our dreams: to establish a dedicated burns a day off Those commitments are the source of rehabilitation centre unlike anything the successes we have achieved and that currently exists in the UK. the progress we have made. Making it I cannot express how much it means KATIE

02 Our strategy and objectives

The Katie Piper Foundation is the selected third-party specialists. intensive basis, and UK charity working to establish a Through enabling access to ii. innovative rehabilitation therapies gold standard in the physical, treatments and services, and with the that are not yet part of standard psychological and social workshops and social activities that it practice in the UK. rehabilitation of adult survivors of organises, the Foundation represents a burn injuries. Increasingly setting the growing resource for burn survivors in In both cases, the aim would be to agenda in its field, the Foundation is the UK. The current range of charity achieve both immediate and long- leading the way towards a world in services includes peer support, scar term benefits and to build a base of which scars do not limit a person’s advice, medical tattooing, evidence for specific therapies and for function, social inclusion or sense restoration, and camouflage and intensive rehabilitation as a whole. of well-being. make-up. We hope to add vocational support to this list in the near future. The aims and objectives of the Through understanding each burn Foundation remain: survivor as an individual, and by Training and education enabling access to gold-standard The Foundation also seeks to provide i. to improve outcomes for rehabilitation (in the form of or facilitate education and training on burn survivors innovative and proven treatments, scar treatments and burn and of support from experts and from rehabilitation for UK professionals ii. to deliver, directly or indirectly, other burn survivors), The Katie Piper who work in burn care. The event that intensive comprehensive Foundation aims to achieve the best firmly established the Foundation’s burns rehabilitation in the possible physical, psychological and credentials in this area was the first UK (following the burn social outcomes. Scar Academy UK, staged in early survivor’s discharge from 2013 and the result of collaboration acute hospital care) There are three pillars to our strategy: with Antwerp-based Oscare, an • Charity services independent research centre for burns iii. to support burn survivors • Training and education and scars. throughout their journey • Burn rehabilitation and of recovery scar management. Burn rehabilitation and scar management iv. to advance a deep Charity services A key aim for the Foundation is to understanding of the context The people who can draw on establish a residential facility for burn in which the Foundation acts The Katie Piper Foundation’s charity survivors; this would constitute an (the burn care world) and of services – our beneficiaries – are unprecedented resource in the UK, key stakeholders people with scarring from burns and dedicated to the carefully controlled other traumatic injuries who are and monitored practice of: v. to develop key relationships, eligible for the specific services and i. orthodox rehabilitation therapies collaborations, associations treatments that the Foundation that are already available through and partnerships. supplies, either directly or through the NHS, but currently not on an

03 From Kayvan

who gravitated towards it, the the Foundation strives to create Foundation established a range of momentum by providing an arena services; its aim was to manage gaps in which to generate an evidence in UK provision of burns rehabilitation base, while also doing our utmost and scar management. Over the past to protect vulnerable patients from five years, the list of services has any harm that could be caused by grown substantially. They are provided unproven treatments. either directly or through partners, carefully selected for their national When it comes to burn rehabilitation, and international expertise. This the numbers of patients are relatively approach underscores the low. Moreover, their injuries are very Foundation’s philosophy and its diverse and individualised, so the commitment to being a trusted source array of variables affecting their for ‘gold standard’ advice and recovery and rehabilitation is highly treatment. Having followed these complex. This makes it very principles, the Foundation is now able challenging to define and collect the to do more than supplement the body of data that is needed to provide standard care that is currently vital evidence: it can take years, even available to burn survivors: it is also decades, and the costs could prove driving the national agenda for prohibitive. The Katie Piper innovation and change in the field Foundation has decided to tackle the of rehabilitation. challenge of gathering evidence in a constructive and resourceful way, Five years ago, The Katie Piper In all this, an important motivator for amplifying its voice by establishing a Foundation was born. The tentative change is the availability of a base of partnership with one of the world’s buds of a blossoming future emerged robust scientific evidence to support top scientific and academic through initial adversity – reflecting the efficacy of treatment options for publishing groups, SAGE. In July Katie’s own journey, but opening the patients. Quite justifiably, this kind of 2015 this partnership launched door to new possibilities for burn evidence is demanded not only by Scars, Burns and Healing , the only survivors in the UK. patients, but also by potential funders peer-reviewed scientific journal to of healthcare services; if persuasive target scar research whilst also In its early stages, the Foundation evidence of effectiveness is not covering the related fields of burns sought to understand the landscape it available – which is often the case and wound-healing. occupied and how to fulfil its goal of with newer treatments – access to enabling people with scars or burns to these interventions can remain The Foundation is contributing flourish and thrive. Drawing on Katie’s restricted or unavailable for many financially to the project so that own experience, and looking to meet years. For those treatments which articles can appear in the journal on the needs of the many burn survivors show the greatest potential benefit, an open-access , which ensures

04 that the scientific content is freely ancillary medical services. In both After receiving superb hospital accessible beyond a limited subscriber 2014 and 2015 the Foundation made treatment in Britain, Katie was base. To help further the cause of presentations at the meeting, on fortunate enough to benefit from the Foundation, we have also topics including an audit of its own intensive multi-disciplinary appointed an international clinical services and its own research projects. residential rehabilitation at Centre and scientific advisory committee to In 2015, burn survivor Beth Hughes, a Ster in France – as, more recently, did the journal’s editorial board; we are research professional with Catrin Pugh, who had survived 96% very grateful to the members of the government experience, presented burns in a coach crash (see p10). board for giving us the benefit of their preliminary research work with such A facility on the lines of Centre Ster knowledge and experience in all its success that the majority of burn does not currently exist in the UK, but, breadth and depth. services in the UK have expressed a thanks to The Katie Piper Foundation, desire to become involved in the the situation looks set to change: we In addition to providing articles of the project. This was a landmark moment: are closer than ever to reaching our highest scientific merit, all authors a burn survivor confidently taking the goal of establishing the UK’s first will provide a brief summary of their podium at the BBA meeting to present independent residential centre scientific paper, written in a style that significant new research to an expert providing comprehensive burns and is readily comprehensible to members audience. At the same meeting, our scar rehabilitation. With its state-of- of the general public who do not have Charity Services lead, Ezinna the-art facilities and treatments it will background knowledge of science or Rospigliosi, delivered an exceptional serve as the nexus for a number of medicine. The journal will also presentation that further important endeavours: firstly, a institute a ‘traffic light’ system, so that demonstrated the Foundation’s research programme for burns and readers can exercise a suitable level of authority, credibility and expertise; scar rehabilitation; secondly, the caution when interpreting research she not only summarised the state-of- provision to burn survivors of the and to avoid raising false hopes with the-art non-surgical hair restoration latest interventions and technologies, reports on interventions that are options that are offered through the and thirdly the creation of a hub to not yet sufficiently tested for safety Foundation, but also took the integrate key services such as back-to- or efficacy. opportunity to launch our surgical hair work programmes and peer support. restoration service. Supplied in Once this model is established we The journal will also enable the partnership with the Farjo Hair hope to disseminate it throughout the Foundation to extend its educational Institute, an international leader in UK and beyond. and teaching activities and to make a the field, the service enables burns more global impact, both through its survivors to gain access to gold- The Katie Piper Foundation has come international editorial board and standard hair transplantation, a a long way since it was established in through potential future partnerships specialist treatment that would 2009. Though the Foundation is still in with congresses and learned societies. normally cost the patient thousands its youth, perhaps its most profound of pounds. With this initiative, the contribution to date lies in its formula The knowledge that the Foundation Foundation has further extended its for putting patients at the heart of has gained over the last five years is exceptional range of services, which driving and developing services that reflected in the profile it has built complement the clinical services recognise and meet their needs. among the community of generally available in the UK. professionals who work in burn care. Professor Kayvan Shokrollahi Not least, the Foundation has My initial engagement with the Consultant Burns, Plastic & Laser established itself as a credible Foundation a few years ago came Surgeon, Mersey Regional Burns and organisation at the national annual about through the mutual aspiration Unit, Whiston British Burn Association (BBA) to develop a centre devoted to burns Hospital, Prescot, Merseyside meeting, which has a core and scar rehabilitation, an area that in membership of physicians, surgeons, some respects still remains Chairman of the Board of Trustees scientists, nurses and members of underdeveloped in the UK. The Katie Piper Foundation

05 Beth Hughes

the follow-up questionnaires best out of the available resources. completed by the delegates, all This is very important in the world of healthcare professionals, at healthcare: it’s fine having a great that groundbreaking event. idea, but it also has to be shown to make a positive difference. Beth’s presentation at the 2015 meeting of the British Burn “With my professional background in Association brought the audience up research, I can provide some of the to date on another project: the support work that helps the Foundation’s work on a patient Foundation in its evidence-gathering: concerns inventory (PCI). Developed questionnaire design, post-analysis, in collaboration with burn survivors, and comparison analysis. It’s all Edge Hill University and burns units, intended to aid decision-making and it is designed to facilitate vital practical application. communication on both routine and sensitive issues between the patient and burn care professionals. When Beth Hughes spoke to an audience of healthcare professionals As the Foundation’s Chairman at the meeting of the British Burn explained on pages 4-5, the research Association in May 2015, it was a big that Beth discussed at the meeting It’s good moment for her and for The Katie prompted the majority of UK burns Piper Foundation. services to become involved with ‘‘ the project. to know that Five years ago Beth suffered burns to

nearly 60% of her body, including her “The feedback on the checklist has face, and went on to become a been extremely positive,” affirms Beth. the foundation

beneficiary of the Foundation’s “The credibility that the Foundation services, such as medical tattooing, has achieved means that it can now hair restoration and camouflage and ease the way to new collaboration plans to be make-up. She spoke about her between different healthcare ‘‘ experiences in the Foundation’s 2012 institutions. One of the things that Annual Review, where she also makes The Katie Piper Foundation around for a explained that she had hosted stand out is its evidence-based delegates at the first Scar Academy approach. This is built around trialling LONG TIME UK, going on to apply her professional ideas and procedures and skills – gained as a Government demonstrating that they provide value researcher and analyst – to evaluate for money – that they are getting the beth 06 Beth with KPF Friends (top, left to right) Tulsi and Costa, (bottom, left to right) Remmy, Lin and Tanja

“From a personal point of view, this Foundation, about how I’ve understanding and make clear that work is great for me because it keeps applied my skills, and about how they value my contribution. They’ve me busy. All my hospital treatment much I’ve learned about the way also encouraged me to branch out in has meant that I’ve had to take a things work for patients and for new ways – but nothing is ever forced. break from employment, and I’m still healthcare professionals.” not ready to commit to full-time work “The Foundation provides a safe, again, but getting involved in this way As it happens, shortly after leaving supportive environment, and has been very encouraging and university, Beth spent some time relationships and networks grow confidence-boosting. working for the NHS in a Primary Care naturally. The team has already Trust, and she is now considering the achieved so much and there is so “Burns can make you feel like you’ve possibility of doing a PhD in an area much enthusiasm and engagement lost your identity. My work has always related to healthcare. from all the beneficiaries. And I’m been very much part of who I am, so really pleased that the Foundation is this activity for the Foundation has all “The idea was suggested to me by taking a long-term approach in its been part of finding myself again – someone I met through The Katie plans for developing rehabilitation for in a sense it’s been vocational Piper Foundation and I’m mulling it burn survivors in the UK. It’s good to rehabilitation. Next time I have a job over at the moment. I really enjoy know that the Foundation plans to be interview, I will be able to talk about working with the team at the around for a long time.” everything that I’ve done with the Foundation – they’re welcoming and

07 Burns rehabilitation

The motivating force behind The Foundation has now been able to fund Katie Piper Foundation is a a stay at Centre Ster for a further commitment to advancing UK burn survivor from the UK. She provision of intensive burns described her four-week stay as The

rehabilitation and specialist “the hardest but most rewarding ‘‘ scar management. opportunity ever”; amongst the many hardest but benefits she identified, she was

We firmly believe that burn survivors especially delighted with the changes in this country should have access to she experienced in her scars, most REWARDING the most effective model for intensive including increased flexibility and a burns rehabilitation that is available reduction in redness and thickness. ‘‘ anywhere in the world, and, opportunity specifically, to methods of scar In addition, a third burn survivor management that are supported by an spent three weeks at Centre Ster after acceptable base of evidence. Keeping the Foundation worked closely with EVER our focus on what is best for the his burns service to enable him to gain patient, we want burn survivors in the access to intensive rehabilitation in UK to benefit from gold-standard France. When he arrived at the centre, aftercare and rehabilitation once they he set himself the goal of being able to rehabilitation, such as peer support, leave acute hospital care. close his eyes fully; by the end of three will also be available. The aim at all weeks he had achieved that, and times will be to achieve both The Foundation is already at the much more. immediate and long-term benefits and forefront of change as the only charity to build a base of evidence for specific aiming to establish the UK’s first As yet, no comparable facility therapies and for intensive centre for intensive burns for intensive rehabilitation for rehabilitation as a whole. rehabilitation and scar management. burn survivors exists in the UK. This ambition has its roots in Katie’s We envisage a UK centre that will The Katie Piper Foundation is an own experience of Centre Ster in provide a comprehensive range of independent, enterprising and France, where she spent many weeks rehabilitation services under one roof. increasingly knowledgeable in 2008; more recently, Catrin Pugh Its main focus will be on burn organisation, but we have always found that the intensive rehabilitation survivors whose scars have not yet known that we cannot achieve the treatments she received at Centre Ster matured, in other words whose burns best results for burn survivors if we made a crucial difference to her injuries are less than two years old, do not co-operate closely, and in a recovery (see p10). and it will be dedicated to the complementary fashion, with other carefully controlled and monitored organisations, notably other charities Since Catrin’s visit to Centre Ster, and practice of both orthodox and and the NHS: their expertise and thanks to a restricted donation innovative rehabilitation therapies. resources are vital to achieving the generously made in early 2015, the Services to aid psychosocial best results for burn survivors.

08 Our plans for a state-of-the-art survivor who spent time at Centre taxpayer, obviating or reducing the rehabilitation facility took a leap Ster, experiencing intensive need for universal credit benefits, forward with the proposal, made in rehabilitation and specialised scar further healthcare and social care. October 2014, for the Foundation to management – returned to the UK We estimate that intensive partner with an established medical reporting marked improvements in rehabilitation for a 30-year-old patient facility in creating a residential functionality, scars that were flatter, with burns covering more than 80% of treatment centre. Initial discussions more flexible and less red, and a his or her total body surface will cost proved fruitful and the Foundation greater sense of independence. These in the region of £70,000. By contrast, if commissioned an expert report to benefits are very much in keeping that same patient were to remain help us develop a compelling case for with the Foundation’s vision of a debilitated and receive £350-£500 in the validity, economic viability and world in which scars do not limit a universal credit per week until sustainability of a specialist facility person’s function, social inclusion or retirement, over the years he or she for burns rehabilitation and scar sense of well-being. would cost the UK economy between management. As of July 2015, the £670,000 and £1 million. Board of Trustees is formally Beyond the evident human benefits, reviewing and considering the there is a powerful argument in terms The Katie Piper Foundation is partnership opportunity. of health economics for investment in currently preparing to announce its burns rehabilitation. If, following the plans for establishing a UK residential These highly positive developments acute phase of their treatment, burn facility for burn survivors, and hopes have affirmed the Foundation’s survivors benefit from comprehensive to do so at its annual Key Supporters belief that there is a need for an rehabilitative care in the early stages Lunch, to be held in Autumn 2015 at intensive rehabilitation centre of this of their recovery, the result could be a the House of Lords. kind. Catrin – like another burn lifetime’s worth of savings for the UK

According to the 2001 National Burn Care Review, every year in the UK

250,000 people suffer a burn injury

175,000 present to A&E

13,000 are admitted to hospital

09 Catrin Pugh

When The Katie Piper Foundation which takes a very, very long time. heard about Catrin, we made a Your hands are the last part of your suggestion to her NHS burn care body that the regrowth reaches, and team: the Foundation would fund a on top of that there was burn damage four-week stay in Autumn 2014 at and skin contraction, and the Centre Ster, the specialist intensive fingertips of my left hand had rehabilitation centre in France that been amputated. made such a difference to Katie’s recovery in 2008. “Before going out to Centre Ster, I couldn't do simple things such as The Foundation’s usual focus is on the handle coins, tie my shoelaces or current and future delivery of wash my own hair ... But now I can. Of rehabilitation in the UK, but here we course, I still take a little longer than if made use of a generous gift, made in I had a healthy pair of hands, but the 2011 and specifically designated by the point is that I can now do it. My donor for intensive rehabilitation at doctors and physios at home had Centre Ster. identified my hand function as an area for improvement, and I get excellent Since leaving the Mersey Burns hand therapy twice a week in the UK, Catrin, whose optimism is matched Service, Catrin has benefited not only but at Centre Ster it was every single by her determination, is an from NHS expertise in rehabilitation, day, a couple of times a day. The team extraordinary success story. In April but also intensive residential pushed and pushed to make things 2013, when she was 18, she was in rehabilitation at a specialist centre in happen. I was taught techniques I a coach accident in the Alps and France that has aided her recovery. could do at home and I’ve been able to suffered burns over 96% of her body. maintain and improve the level of There is no record of any other adult As yet, a dedicated burns rehabilitation hand function since then. surviving such an extensive burn centre of this kind does not exist in the injury – and Catrin was in a coma UK, but the Foundation remains set on “Those intense hand therapy sessions for three months – but she received changing this state of affairs. were a turning point for me. They got superb acute NHS treatment at the me doing things I never thought I Mersey Burns Service and pulled “Of all the treatments I received at would do again. It was extremely through. Two years on she is well on Centre Ster, perhaps the most painful to begin with, but the gains the way to regaining her beneficial was the treatment for my were extraordinary. independence. “I was struggling hand function,” explains Catrin. when I came out of hospital,” says “Having been in a coma for three “After three-and-a-half weeks of Catrin. “Now I’m working on months, I had suffered from critical intensive therapy, the measurable endurance and stamina, going to the care neuropathy. This basically means improvement was huge – especially in gym and learning to run again.” that my nerves needed to regrow my left hand. Seeing the results in a

10 small space of time motivated me to work even harder. I came home a lot Katie Piper Foundation more independent because of the The things I was able to do again – like put my socks on. My family saw the ‘‘ ME improvement too. And, having spent helps people like to ‘‘ several weeks away, I had really started to try to be independent again. achieve the life they “At home I’d got into a routine of accepting help. After such a huge ordeal, I had become dependent on want to lead catrin everyone around me. But away from home at Centre Ster I had the opportunity to regain some independence while still having Patron Simon the reassurance of a safe and Cowell with controlled environment. Catrin at our third fundraising “It was still a challenge, but for the dinner, My first time in 18 months, I felt the Beautiful Ball confidence to take a walk with 2014. no-one else at hand ‘just in case’. I learned how to regain my balance if I stumbled, so I was able to enjoy going for strolls in the park and sitting in a coffee shop with a book. These are things I took for granted before the accident, but I hadn't been able to do alone since waking up from my coma in a hospital bed. I could finally feel more like a 20-year-old woman again. However small or big a burn, it can completely change things for you. The Katie Piper Foundation helps people like me to achieve the life they want to lead.”

Catrin surrounded by her multi- disciplinary team from the Mersey Regional Burns Centre.

11 Training and education

With the aim of improving outcomes treatments that are less commonly and disseminated through a for burn survivors, the Foundation used. In June 2014 the Foundation presentation at the 2014 British Burn provides and facilitates education staged a Scar Outcomes and Association Conference in Chelmsford. and training in scar treatment Assessment workshop – once again in and burns rehabilitation for UK partnership with OSCARE (the The working party concluded that: professionals in the field of burn care. Organisation for burns, scar after-care • there are discrepancies across the Key projects undertaken are and research), a Belgian based not-for- UK in access to and provision of described below. profit research and treatment centre rigid transparent facial masks for run by a multi-disciplinary team based the treatment of facial scarring; Scar outcomes and in Antwerp. Some 46 delegates from • greater standardisation of process assessment workshop around the UK attended the workshop, and equipment could result in more Following the success of the first Scar which took place at Queen Elizabeth equitable outcomes; Academy UK, which the Foundation Hospital and covered all • barriers to delivering best practice was instrumental in delivering in 2013, aspects of scar outcome measures will need to be addressed by it became clear that there was a need (clinical, objective, patient-reported individual burns services; to extend professional learning and and ‘quality of life’). • effective communication between training through a series of hands-on members of multi-disciplinary workshops, covering topics in depth The treatment of facial scarring teams is vital in the timely and emphasising practical application. In 2013 the Foundation was provision of rigid face masks – When it comes to assessing the instrumental in forming an especially when the prosthetics effectiveness of burn treatments and international working party to discuss experts and burns unit are in building a base of evidence, it is vital the delivery of a UK training course on different locations. to establish the use of outcome all aspects of splinting, pressure, measures – especially in the case of taping and inserts to treat facial Guidelines were produced by the scarring. This working party, working party with the aim of Number of professionals who comprising a small group of experts standardising best practice; these attended Scar Academy 2014 – 46 from the UK and USA, met to define were made available to all burns the national need, to gain a more services across the UK but further detailed understanding of current work will be required. There is also provision in the UK, and to devise an a need for additional investigation effective strategy. into alternative, more effective techniques for capturing 3D images In the first instance, an online survey of scars, and for sharing of technology was distributed to burn therapists and across services. prosthetists, with questions on the management of facial scarring. The The Foundation intends to develop survey results were then discussed and organise a national workshop on and analysed by the working party splinting and pressure management

12

for facial burns, expected to be run in scars and our intention is not only to The British Burn Association’s annual partnership with experts from the provide rapid peer review* and, as meeting is attended by physicians, US-based Shriners Burn Centres. appropriate, publication, but also to surgeons, scientists, nurses and provide a personalised service to members of ancillary medical Journal of Scars, Burns and Healing authors of articles by engaging with services, so it is significant that the After negotiations and planning in the them to generate awareness of Foundation participated in both 2014 course of 2014 with SAGE, the world’s their work. and 2015. In 2014, the Foundation leading independent academic and made a poster presentation on the professional publisher, the Foundation Scars, Burns and Healing is run on an service evaluation of its work for launched Scars, Burns and Healing at ‘open access’** model – meaning beneficiaries, as well as an analysis of the annual meeting of the British Burn that there is no subscription, so email requests received by the Association in Birmingham in May anyone can read the published Foundation for help with burns and 2015. Submissions were being articles. The Foundation is also scars and an examination of the accepted from early summer 2015. providing financial support to authors implications for NHS services. Also in by subsidising article processing 2014, one of our KPF Friends, Tulsi This, the official journal of The Katie charges, and will implement public (who featured in our 2012 Annual Piper Foundation, offers many benefits relations programmes to ensure the Review), was invited to speak from the to authors of research, reviews, short widest possible dissemination of patient’s perspective. In 2015, the reports and case reports who are authors’ content – all with the Foundation’s two presentations seeking to advance this area of science ultimate aim of improving outcomes covered the evaluation of our hair and medicine. We believe it to be the for burn survivors. replacement services and a blueprint only journal with a niche focus on for the creation of an inventory of Looking forward, the Foundation will patient concerns; the inventory pursue affiliations for the journal with proposals were welcomed by relevant societies and conferences, representatives of burns services, placing it at the heart of an a number of which undertook to pilot international family of scar and burns the project. experts, and making it a mouthpiece for patients and researchers alike. Presentations to burns nurses The Foundation continues to receive Conferences invitations to visit burns units and The Foundation recently strengthened universities, where our work is its presence at both UK and discussed with post-graduate students international burns conferences, with taking courses in burns and plastic presentations at the British Burn surgery. In 2014, a representative of Association’s annual meeting the Foundation spoke at the (Chelmsford) and a presence at the University of and the Welsh meeting of the International Society Centre for Burns in . of Burn Injuries (Vienna).

* The system of peer review is used by scientists ** ‘Open access’ means the provision of free and to decide which research results should be unrestricted access to peer-reviewed content; this published in a scientific journal. The process access is provided to professional and academic subjects a scientific research paper to researchers, to potential users in other independent scrutiny by other qualified scientific professional and public sectors, and to the general experts (peers) before the paper is published. public, specifically, in the case of Scars, Burns and Healing , people who have burns and scars.

13 Charity services

The people who can draw on so to speak, remain on our books. from burns or from other types of The Katie Piper Foundation’s charity Consequently, the number of traumatic injury, have the opportunity services – our beneficiaries – are beneficiaries with whom we have to meet each other and to share people with burns and scars who are contact will continue to grow, experiences, to learn about different eligible for specific services and year by year. treatment options and coping treatments supplied by the strategies and, of course, simply to Foundation, either directly or through In all this, we intend to continue to enjoy each other’s company and selected third-party specialists. undertake research on issues that are make new friends. People often feel of particular interest to people with isolated following a burn injury, as do The charity services we provide burns and scars, to build evidence that their families and partners; we currently include peer support, scar validates the work the Foundation is therefore often involve family advice and treatments such as hair doing and to gather ideas for members and partners in events. restoration, medical tattooing, and developing our services in the future. make-up and camouflage. The Foundation encourages people Peer support with burns and scars to take the The Foundation makes a long-term As part of our peer support service we initiative in suggesting and commitment to the individuals hold workshops and social events at organising these gatherings and to who take up our services; they will, which people with scars, whether lead the events. Following the success of the Foundation’s first ‘Weekender’, which took place in Craft classes Reading in June 2015 and was and many other attended by 28 people, we plan to workshops and stage similar two-day programmes in social activities different regions of the UK in the have been future. We also plan to hold more organised. tailored events in partnership with other organisations whose client groups are eligible for our services.

Sometimes a group event is not suitable, or perhaps an individual simply needs to meet a peer before he or she would feel confident to attend a social event; in these instances we can offer a supervised one-to-one meeting or chat with one of our trained peer support volunteers.

14 We also plan to launch our online peer support service for people with burns and scars, initially with an online forum and soon with video conferencing sessions to provide one- on-one support or group peer support. We expect the online peer support service to provide a good indication of demand for face-to-face social activities of the kind described on p14. We also hope that online interactions will act as an introduction and follow- up to these events, making individuals feel more confident about attending a face-to-face event and giving them a safe way to stay in contact with each other until the next time they have an opportunity to meet.

Number of beneficiaries who KPF Friends Jamie and Tulsi, with Katie and Grant Cornwell MBE, Chief attended one or more event Executive of Tottenham Hotspur Foundation. Guests and volunteers were (workshop or social activity) – hosted at White Hart Lane and participated in a number of football and over 150 fitness activities.

Number of workshops and social Number of peer supporters events organised – 40 trained – 15

15 P h o t o s

For an online Telegraph T e

l feature, KPF Friend e g

r Beth worked with Rae a p

h Denman-Tanner, professional make-up artist and skin camouflage practitioner, to demonstrate the impact of skin camouflage and make-up for people with facial burns and scars.

We hope to expand this interactive Scar advice Hair restoration online service to include other We currently provide general scar Permanent hair loss can occur interventions, such as clinical scar advice to people contacting the following a burn injury to the scalp. advice, consultations for the different Foundation via telephone and email. This can have a devastating effect on aesthetic treatments we offer (such as We have access to clinical advisors someone’s confidence and sense of camouflage/make-up and medical from different professions in the field identity. The Foundation’s hair tattooing), patient information and of burn care, and we can thus provide restoration service now includes both any potential future services such as beneficiaries with authoritative non-surgical and surgical options and vocational support. information on potential treatment we plan to make these available to options, offer them reassurance and, more people with burn injuries across We will continue to work closely with as needed, help to guide them the UK. In so doing, we also hope to other organisations which provide through, or back into, the NHS system. build on the evaluation already support to burn survivors, thus As mentioned on p15, we hope to undertaken regarding the advantages avoiding duplication of effort and extend our provision for scar advice of hair replacement systems over ensuring that all resources are put to through an interactive online service conventional wigs, and to develop and best use. in the near future. compile further evidence so that a

17 people continue to be Number of beneficiaries who Number of beneficiaries who supported with hair received a medical tattooing received one or more camouflage replacement systems consultation – over 30 and make-up consultations – over 50

16 case can be built for provision of these hair replacement systems on a At the Christmas standard basis by the NHS. Craft Workshop, KPF Friend Kirby Jane Medical tattooing talked about the ways Medical tattooing can be used for the in which craft had restoration of facial features, for helped her in her example to correct symmetry around recovery and showed the lips and eyes, and can also restore participants how the nipple/areola following a burn to make beautiful injury. As for hair restoration, we hope Christmas rag that our model of provision for wreaths. medical tattooing – selecting highly skilled beauty professionals who are experienced in working with people with burns and scars – can be integrated into NHS burns services and offered as standard across the UK. camouflage and have knowledge and service partly through selected Camouflage and make-up experience of working with people partner organisations and partly by People with facial scars often struggle with burns and scars. We will also KPF staff and volunteers, particularly to find the right camouflage and organise regular ‘top up’ training peer support volunteers; however, a make-up products. We currently sessions for these expert key requirement would be the provide one-to-one consultations on practitioners, so that they can learn provision of intensive support to make-up and skin camouflage for about relevant new products and beneficiaries throughout the process. people with facial burns and hone their specialist skills, with The service would be likely to cover: traumatic scarring, teaching them volunteers with facial burns and scars intensive advice and guidance both how to camouflage scars and acting as models for the sessions. around careers/training/education; how to enhance their features. We work placements; assistance with plan further developments to this Vocational support applications; interview coaching; service, continuing to build a We are currently scoping a vocational and styling and wardrobe advice specialist outsourced team of highly support service tailored to the specific for interviews. experienced professional make-up needs of people with burns and scars. artists who are qualified in skin We would envisage delivery of this

“Having my lips restored has made such a difference to my confidence.” KPF beneficiary

17 Fundraising

The first five years of The Katie Piper that achieves the best outcomes for Got Talent finalists Collabro Foundation have been quite a burn survivors. entertained over 250 guests. A group journey, bringing challenges, of the Foundation’s beneficiaries successes and achievements, and The Foundation currently receives no provided a warm welcome and helped even some setbacks; but we have funding from the Government or the to ensure the success of the evening. stuck to a firm path and our NHS, and the support we have been beneficiaries – people with burns able to provide to burn survivors is In conjunction with the Foundation’s and scars – have reaped a variety reliant on the generosity of a very activities around Katie’s TV series, of benefits. special group of private individuals, Bodyshockers , the publication of her commercial organisations, and books and other high-profile events, The team at the Foundation never charitable trusts. We are therefore we have strengthened our ceases to be motivated by the incredibly grateful for the donations relationship with eBay for Charity, difference we can make to someone’s we receive from across the UK. with substantial funds raised via life. As we continue to work at ‘Give at Checkout’ on the eBay for enhancing UK provision of intensive Key fundraising successes in 2014 Charity website. burns rehabilitation and specialist included our third and most scar management, our focus for the successful My Beautiful Ball event, Our fundraisers’ contribution over the next five years will be on the co-hosted by Katie and the year was no less significant, soliciting generation of substantial additional Foundation’s Patron, Simon Cowell. At both online and offline sponsorship income. Our aim, as ever, will be to the stunning Lindley Hall in , and donations with a myriad ensure access to treatment and care TV presenter Alex Jones and Britain’s marathons, triathlons and half-

Some of our fantastic fundraisers: Louise and Stuart (Virgin London Marathon); volunteers from M&S helping at the Ideal Home Show 2015; Alex (Virgin London Marathon).

18 KPF Friend Tracy on Mount Snowdon, Elvis impersonator and Lauren (Royal Parks Foundation Half Marathon).

marathons, challenges, supermarket this tax benefit on retrospective relationship with the Foundation in bag packs and collections, skydives donations at the beginning of 2014. previous years, while others were and pub quizzes. One of our becoming involved for the first time. fundraisers even organised a summer Our annual Key Supporters Lunch was Valuable gifts in kind – in the form of ball on behalf of the Foundation. In held in October 2014 at the House of products, services and expertise – addition, the Foundation continues to Lords, hosted by Baroness Dean of were forthcoming throughout the year. inspire students from schools and Thornton-le-Fylde. Co-hosting each colleges across the UK to engage in table was a KPF beneficiary and our Over the five years of its existence fundraising activities. special thanks also go to the sponsors (2009-2014) the Foundation has who ensured the event’s success – achieved a steady growth in income, Individual donations – and specifically Avita Medical, Cynosure, Interglobal which has given us the stability to our regular income from direct Surgical and Moor Instruments. make increasing investments in our debits – help to maximise our stability charitable activity. With our amazing and a key challenge in the coming Other corporate support this year fundraisers, donors and supporters, years is to increase the number of included a donation from cake we look forward to the next five years people providing the Foundation with manufacturer Almondy, prompted by a and anticipate continued growth as support in this form. Twitter retweet campaign – there has we continue to make it easier for been another such campaign in 2015. people to live with burns and scars. Happily, we are now claiming Gift Aid A number of businesses provided on a regular basis, having only generous support for My Beautiful Ball; launched our programme to claim some of them had established a

Students from Queen Anne School, Caversham with Katie before their Fashion Show in aid of The Katie Piper Foundation, and Kasia and Charlotte crossing the finishing line of the Tunnel 2 Towers 5k Run.

19 Financial Statement

With a total of £649,750 in incoming The economies we achieved were also Importantly, over the course of 2014 resources over the year, the a consequence of staffing changes at we were in a position to expend Foundation achieved a positive the Foundation and, on a general £19,245 of our restricted funds across increase of 8%. Income generated basis, more efficient management of our three strategic areas: charity during the year – minus corporate funds. We made certain that at services (treatments and clinics); gifts in kind – totalled £397,300, a no point in the year was there any education and training, and burns 10% increase year on year. The detrimental impact upon the services rehabilitation. The balance of a Foundation’s strategies for the future and support provided to our restricted donation received in 2012 will rely on substantial growth in beneficiaries – indeed, these was finally used to benefit burn financial support, and plans are in continued to expand and improve. survivors requiring hair replacement place for the requisite development of fundraising, drawing on both existing and new sources.

Current fundraising activity for the Foundation is becoming ever more varied and draws on a wide and growing base of supporters, with many new individuals and organisations joining the ranks of existing donors and fundraisers over 2014 Income £ 2014 Expenditure £ the course of 2014. G Corporate 12,150 G Charitable activity including support costs G Fundraising 231,850 The number of burn survivors we Workshops, social G Individual 35,050 now reach with our charity services activity and peer support 60,650 continues to grow – even though G Major donors 6,000 Treatments and clinics 68,950 our charitable expenditure in fact G Trusts 95,250 decreased by 20% in 2014. This Education and training 55,150 G Gift Aid 10,050 reduction in expenditure reflected Scar management and careful controls as we prepare for G Miscellaneous 6,950 burns rehabilitation 47,050 substantial investment in an intensive G Fundraising 188,550 rehabilitation facility. We also succeeded in making optimum use G Governance 12,750 of funds by applying our learning Total 397,300 Total 433,100 from previous years and focusing G G on the services that make the most Gift in kind support 252,450 Gift in kind support 252,450 appreciable difference to people Total Income 649,750 Total Expenditure 685,550 living with burns and scars.

20 The Foundation raised over £1.5m, The Foundation received over £1m The Foundation’s expenditure in 2010-2014 of pro bono support, 2010-2014 charitable activities was £1.1m, 2010-2014

£ £ £ £ £ £ £ £ £ £ n£ n£ n£ n£ n£ n£ n£ n£ n£ n£ LLLLLLLLLL £ £ £ £ £ £ £ £ £ £ n£ n£ n£ n£ n£ n£ n£ n£ n£ n£ £ £ £ £ £ £ £ £ £ £ n£ n£ n£ n£ n£ n£ n£ n£ n£ n£ LLLLLLLLLL £ £ £ £ £ £ £ £ £ £ n£ n£ n£ n£ n£ n£ n£ n£ n£ n£ LLLLLLLLLL £ £ £ £ £ £ £ £ £ £ n£ n£ n£ n£ n£ n£ n£ n£ n£ n£ LLLLLLLLLL £ £ £ £ £ £ £ £ £ £ n£ n£ n£ n£ n£ n£ n£ n£ n£ n£ £ £ £ £ £ £ £ £ £ £ n£ n£ n£ n£ n£ n£ n£ n£ n£ n£ LLLLLLLLLL

£ £ £ £ £ £ £ £ £ £ n£ n£ n£ n£ n£ n£ n£ n£ n£ n£ LLLLLLLLLL £ £ £ £ £ £ £ £ £ £ n£ n£ n£ n£ n£ n£ n£ n£ n£ n£ £ £ £ £ £ £ £ £ £ £ n£ n£ n£ n£ n£ n£ n£ n£ n£ n£ LLLLLLLLLL £ £ £ £ £ £ £ £ £ £ LLLLLLLLLL £ £ £ £ £ £ £ £ £ £ LLLLLLLLLL £ £ £ £ £ £ £ £ £ £ £ £ £ £ £ £ £ £ £ £ LLLLLLLLLL £ £ £ £ £ £ £ £ £ £ LLLLLLLLLL £ £ £ £ £ £ £ £ £ £

systems, and the Foundation was able fundraising dinner in 2014 – will be marketing support, venues and to use a restricted donation received dedicated to the establishment of an materials for workshops. in 2011 to fund a period of treatment intensive burns rehabilitation facility for Catrin Pugh (see p10) at Centre here in the UK, thus standing the We must make special mention of our Ster in France, which provides Foundation in good stead as it moves volunteers – expert practitioners, burn intensive burns rehabilitation and purposefully towards achieving this survivors, supporters – who provide specialist scar management. Finally, key objective. services, offer experience, and monies received from delegates dedicate time to the Foundation. attending the second Scar Academy Charitable expenditure in 2014 They represent an invaluable asset for UK – a scar outcomes and assessment totalled £281,150; this included us, as does the ever-growing number workshop – were used to deliver the £49,350 in pro bono support from of people who make donations and training course. the clinics and expert practitioners fundraise on the Foundation’s behalf, who provide services to our helping us to achieve so much over A substantial portion of restricted beneficiaries. The Foundation also the past five years and to plan income, £48,000 – raised via a charity benefited from free or substantially confidently for the future. appeal at the My Beautiful Ball discounted samples and products,

21 Over the last five years, The Katie Piper Foundation has received donations, support and gift in kind from hundreds of businesses and organisations and our grateful thanks go to every single one. Here are just a few…

The Foundation wishes to express Our team, as The Board of Trustees: Andrew Foxcroft its grateful thanks to all Trustees, of July 2015, Trustee since January 2015 Affiliates and Patrons – past and comprises: Vice Chair since July 2015 present. The Foundation would Professor Kayvan Shokrollahi not be in the position it is today BSc MB ChB MSc LLM Simon Oakes without their tireless support MRCS(Eng) FRCS(Plast) Treasurer and Trustee and commitment. Chairman since October 2013 since August 2010

22 !

innovation in microvascular assessment

Katie Piper Nina Morris Kim Newman-Wood Our Affiliates and Patrons: Founding Trustee Trustee since Trustee since since December 2009 January 2015 March 2014 Simon Cowell Ros Ponder Patron Affiliate Andrew Birks Nicki Murphy Dr Tim Woodman Trustee since Trustee since Trustee since Simon McCabe November 2011 July 2014 January 2015 Patron

23 How we help…

How we help How we help How you help people with burns and scars healthcare professionals

Charity services G Training and education G Donate G Peer support G Professional training courses G Fundraise G Scar advice G Scars, Burns and Healing – G Volunteer G Hair restoration academic journal G Medical tattooing G Camouflage and make-up consultations G Vocational support G Signposting

Burns rehabilitation and scar management G Support in accessing intensive residential rehabilitation at Centre Ster G UK rehabilitation and recovery centre (in planning)

If you wish to support www.katiepiperfoundation.org.uk Katie Piper Foundation The Katie Piper Foundation Building 3 Chiswick Park 566 Chiswick High Road please contact London W4 5YA www.twitter.com/KPFoundation Carol Borwick, Director of Fundraising & Operations, [email protected]. www.facebook.com/ TheKatiePiperFoundation

With thanks to the following for their support in producing this Annual Review

Editorial Design Prepress Printing Yehuda Shapiro Ideology Zebra Prepress The River Group www.yehuda.co.uk www.ideology.uk.com www.zebraprepress.co.uk www.therivergroup.co.uk