CASE of LAMBERT and OTHERS V. FRANCE
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FEBRUARY 2020 Vol
The Journal of the IYNA INS Edition FEBRUARY 2020 Vol. 3 Issue 2 Featured Articles ‘Ethical Implications ‘Neuromarketing in ‘Nico-teen: The for Electrostimulation Politics: The Ethics of Neuroethics of Ado- and Optogenetics’ a New Age’ lescent Electronic - Dyanne Ahn - Aybala Turkarslan Cigarette Use’ - Jaeah Kim International Youth Neuroscience Association 1 Contents INTRODUCTION Letter from the Editors IYNA Editorial Team page 3 ARTICLES Armstrong? More like Brainstrong: Cognition Kyle Sugita page 4-6 Enhancing Drugs in Academia BCIs – Increasing the Wealth Gap Kalie Uberti page 7-9 Brain-Computer Interfaces: Futuristic Prospects Athena Yao page 10-13 and Ethical Dilemmas Ethical Implications for Electrostimulation and Dyanne Ahn page 14-17 Optogenetics Moving On: A Refugee Crisis Lasya Kambhampati page 18-21 Neuromarketing in Politics: The Ethics of a New Aybala Turkarslan page 22-26 Age Nico-teen: The Neuroethics of Adolescent Jaeah Kim page 27-31 Electronic Cigarette Use Stuck in Modern Limbo: How Can We Help the Milena Malcharek page 32-35 (Un)Conscious Patients? The Problem with Propranolol: Implications of Mustakim Muhurto page 36-38 Memory Dampening Technology Rahman The Rising Conflict Between Neuroscience and Nannarelle page 39-42 Who We Are Hundertmark 2 Treating Unconscious Patients When Sonia Seth page 43-46 End-of-Life Preferences Are Not Declared Who Do We Believe?: The Neuroethics Lauren Kayari page 47-49 Surrounding the #MeToo Movement CONTRIBUTORS PAGE page 50 3 Letter From the Editors Sojas Wagle , Anita Singh, and Anushka Sarda Dear Readers, Welcome to the special INS (International Neuroethics Society) issue of the IYNA Journal! We greatly appreciate your readership, continued or new. -
A Beacon of Light
12 life&hope | lifeandhope.com A Life That Matters: The Legacy of Terri Schiavo Paperback, $14.99 on Amazon.com n marking the fourteen–year anniversa- alive in their imaginations in particular.” ry of the release of “A Life That Matters: TheI Legacy of Terri Schiavo,” co-author New, paperback copies can be ordered Bobby Schindler is excited to announce 24/7 on Amazon.com, by searching for the book’s permanent paperback availabil- “A Life That Matters: The Legacy of Terri ity through Amazon.com. S c h i a v o .” “I wrote the story of my sister’s fight along “I’m always interested in hearing reactions — Annual Report of the& Terri Schiavo Life & Hope Network with my family in the weeks and months and especially questions — from readers. life hope following Terri’s death. This book is one I invite anyone to reach out to me anytime 2020 Edition | lifeandhope.com way I hope Terri’s life and witness can by emailing me at bschindler@lifeandhope. continue to positively impact lives. Young com. I’m grateful and hopeful that this people, in particular, didn’t experience my book can be a gift for people, especially family’s fight and my sister’s witness first- within the pro-life community, to under- hand. For so many of the youngest people stand someone whose name has become I speak to, Terri’s story is simply a history an indelible part of American history.” lesson. This book is a way to bring her Fake News: Media Still Paints Judge Who Ordered Terri Schiavo’s Death as the Victim Continued from page 5… A Beacon of Light agenda to the extent that it is now com- been), it was only a matter of time until no longer met the prevailing societal status mon practice to starve and dehydrate the the cognitively disabled were labeled as for personhood, so how dare his parents The Terri Schiavo Life & Hope Network joins Catholic Healthcare International's effort medically vulnerable in all fifty states as incapable of possessing moral equivalency. -
Analyzing the Paradigmatic Cases of Two Persons
Picozzi et al. BMC Med Ethics (2021) 22:88 https://doi.org/10.1186/s12910-021-00656-w RESEARCH ARTICLE Open Access Analyzing the paradigmatic cases of two persons with a disorder of consciousness: refections on the legal and ethical perspectives Mario Picozzi1,2* , Lino Panzeri3, Davide Torri4 and Davide Sattin2,5 Abstract Background: Media have increasingly reported on the difculties associated with end-of-life decision-making in patients with Disorders of Consciousness (DOC), contextualizing such dilemma in detailed accounts of the patient’s life. Two of the frst stories debated in the scientifc community were those related to the cases of two women, one American, the other Italian, who captured attention of millions of people in the frst years of this third millennium. Methods: Much has been written about the challenges of surrogate decision-making for patients in DOC, but less has been written comparing these challenges across legal systems and cultures. In our paper, we propose a sys- tematic analysis of the fnal legal documents written by the American and Italian Courts in relation to the two cases, developing our discussion around three areas: the level of certainty/reliability of diagnosis and prognosis, the recon- struction of self-expression, time of illness and time of care. They are examples of the typical issues discussed by legal authors and allow us to understand the link and the diference between the legal and ethical perspectives. Results: The legal approach to the two cases has some common elements: the need to be certain about the diagno- sis and prognosis and the fact that the clinical criteria are necessary in determining the most appropriate treatments, although these criteria are not sufcient unless they are supplemented by the patient’s will. -
The Case of Vincent Lambert and the Role of 'Dissensus'
Current controversy J Med Ethics: first published as 10.1136/medethics-2019-105622 on 8 August 2019. Downloaded from Current controversies and irresolvable disagreement: the case of Vincent Lambert and the role of ‘dissensus’ Dominic Wilkinson, 1,2,3 Julian Savulescu1,3 1Oxford Uehiro Centre for ABSTRact There are contrasting immediate responses to Practical Ethics, University of Controversial cases in medical ethics are, by their very cases like that of Lambert. Some people read of his Oxford, Oxford, UK 2 case and react with horror at the idea of being kept John Radcliffe Hospital, Oxford, nature, divisive. There are disagreements that revolve UK around questions of fact or of value. Ethical debate alive indefinitely in a state of complete dependence 3Murdoch Children’s Research may help in resolving those disagreements. However, and lack of awareness. Others have the opposite Institute, Melbourne, Australia sometimes in such cases, there are opposing reasonable response. They respond with outrage at the idea of views arising from deep-seated differences in ethical stopping feeding and allowing to die a profoundly i Correspondence to values. It is unclear that agreement and consensus will disabled man, who does not appear to be suffering. Professor Dominic Wilkinson, A survey of the general public, published in 2014, Oxford Uehiro Centre for ever be possible. In this paper, we discuss the recent Practical Ethics, University of controversial case of Vincent Lambert, a French man, indicated that 40% supported withdrawal of treat- Oxford, Oxford OX1 1PT, UK; diagnosed with a vegetative state, for whom there ment from patients in VS, while 40% were unsure dominic. -
European Court of Human Rights (Gc), Case of Lambert and Others V
Comparative Law Review 21 2016 Nicolaus Copernicus University http://dx.doi.org/10.12775/CLR.2016.005 Julia Kapelańska-Pręgowska EUROPEAN COURT OF HUMAN RIGHTS (GC), CASE OF LAMBERT AND OTHERS V. FRANCE, JUDGMENT OF 5 JUNE 2015, APPLICATION NO. 46043/14 Abstract This case commentary provides an analysis of the judgment of 5 June 2015 in Lambert and others v. France, handed down by the Grand Chamber of the European Court of Human Rights. The case at issue concerned the discontinuation of treatment (artificial nutrition and hydration) of a patient who was unconscious and not able to express his wishes. It can undoubtedly be classified as one of the “hard cases” decided by the ECtHR, as it touches upon end-of-life dilemmas and the scope of patient’s autonomy. Legal regulation of these issues proves to be very difficult because it needs to avoid vagueness and has to balance conflicting interests and rights. This comment proceeds as follows. Part I offers introductory remarks and explains the fundamental nature of the underlying dilemmas. Part II describes the basic facts of the case, followed by part III which describes the scope of the claim. Part IV discusses admissibility questions – that is – of locus standi and jurisdiction ratione personae. The next part provides some insight into the French legislation concerning the rights of patients in end-of-life situations (Loi Leonetti). Part VI discusses major questions that have been raised in the judgment. The final part offers some conclusions and points for further discussion. Keywords persistent/obstinate therapy – medical futility – incompetent patients – informed consent – advanced directives – patient’s autonomy – right to life – State’s positive obligations Juris doctor (2010). -
EUTHANASIA-Misra.Pdf
1 REPORTABLE IN THE SUPREME COURT OF INDIA CIVIL ORIGINAL JURISDICTION WRIT PETITION (CIVIL) NO. 215 OF 2005 Common Cause (A Regd. Society) ...Petitioner(s) Versus Union of India and Another …Respondent(s) J U D G M E N T Dipak Misra, CJI [for himself and A.M. Khanwilkar, J.] I N D E X S. No. Heading Page No. A. Prologue 3 B. Contentions in the Writ Petition 10 C. Stand in the counter affidavit and the 14 applications for intervention D. Background of the Writ Petition 18 D.1 P. Rathinam’s case – The question of 19 unconstitutionality of Section 309 of the Indian Penal Code D.2 Gian Kaur’s case – The question of 22 unconstitutionality of Section 306 of 2 the Indian Penal Code D.3 The approach in Aruna Shanbaug qua 30 Passive Euthanasia vis-à-vis India D.4 The Reference 42 E. Our analysis of Gian Kaur 45 F. Our analysis of Aruna Shanbaug qua 51 legislation G. The Distinction between Active and Passive 52 Euthanasia H. Euthanasia : International Position 58 H.1 U.K. Decisions: 58 H.1.1 Airedale Case 58 H.1.2 Later Cases 79 H.2 The Legal position in the United 89 States H.3 Australian Jurisdiction 96 H.4 Legal position in Canada 99 H.5 Other Jurisdictions 104 H.6 International considerations and 107 decisions of the European Court of Human Rights (ECHR) I The 241st Report of The Law Commission of 114 India on Passive Euthanasia J. Right to refuse treatment 120 3 K. -
The Concept of Autonomy in End-Of-Life Decisions: Ethical and Legal Regulation Regarding Advance Directives
Alma Mater Studiorum – Università di Bologna In collaborazione con LAST-JD consortium: Università degli studi di Torino Universitat Autonoma de Barcelona Mykolas Romeris University of Vilnius Università di Lussemburgo Tilburg University DOTTORATO DI RICERCA IN Erasmus Mundus Joint International Doctoral Degree in Law, Science and Technology Ciclo 28 – A.Y. 2012/2013 Settore Concorsuale di afferenza: 12H3 Settore Scientifico disciplinare: IUS20 The Concept of Autonomy in End-of-Life Decisions: Ethical and Legal Regulation regarding Advance Directives Presentata da: Denard Veshi Esame finale anno 2016 Introduction ………………………………………………………………………………………………… p. 5 Chapter 1. End-of-Life Decisions and the Right to Autonomy Abstract ..…………………………………….……………………………………………………………… p. 10 1. The connection between ethics and law in end-of-life decisions ……. p. 12 2. The European legal models analysed …………………………...…………………... p. 18 3. Moving beyond the limits of the individualism model of autonomy: the concept of relational autonomy ……………………………………………....………... p. 26 4. The significance of advance directives ………………………………….………….. p. 33 4.1. The main critiques regarding the recognition of advance directives ……………………………………………………..…………….………….. p. 35 5. The two forms of advance directives ………………………………….…………….. p. 37 5.1. Moral reasons for supporting the role of the legal proxy in end- of-life decisions …………………………………………..…………….………….. p. 42 6. The position of national courts in some of the most important case law …………………………………………..…………….……………………………………………..…….. p. 47 -
European Court of Human Rights (Gc), Case of Lambert and Others V
Comparative Law Review 21 2016 Nicolaus Copernicus University http://dx.doi.org/10.12775/CLR.2016.005 Julia Kapelańska-Pręgowska EUROPEAN COURT OF HUMAN RIGHTS (GC), CASE OF LAMBERT AND OTHERS V. FRANCE, JUDGMENT OF 5 JUNE 2015, APPLICATION NO. 46043/14 Abstract This case commentary provides an analysis of the judgment of 5 June 2015 in Lambert and others v. France, handed down by the Grand Chamber of the European Court of Human Rights. The case at issue concerned the discontinuation of treatment (artificial nutrition and hydration) of a patient who was unconscious and not able to express his wishes. It can undoubtedly be classified as one of the “hard cases” decided by the ECtHR, as it touches upon end-of-life dilemmas and the scope of patient’s autonomy. Legal regulation of these issues proves to be very difficult because it needs to avoid vagueness and has to balance conflicting interests and rights. This comment proceeds as follows. Part I offers introductory remarks and explains the fundamental nature of the underlying dilemmas. Part II describes the basic facts of the case, followed by part III which describes the scope of the claim. Part IV discusses admissibility questions – that is – of locus standi and jurisdiction ratione personae. The next part provides some insight into the French legislation concerning the rights of patients in end-of-life situations (Loi Leonetti). Part VI discusses major questions that have been raised in the judgment. The final part offers some conclusions and points for further discussion. Keywords persistent/obstinate therapy – medical futility – incompetent patients – informed consent – advanced directives – patient’s autonomy – right to life – State’s positive obligations Juris doctor (2010). -
GRAND CHAMBER CASE of LAMBERT and OTHERS V. FRANCE
GRAND CHAMBER CASE OF LAMBERT AND OTHERS v. FRANCE (Application no. 46043/14) JUDGMENT STRASBOURG 5 June 2015 This judgment is final but may be subject to editorial revision. LAMBERT AND OTHERS v. FRANCE JUDGMENT 1 In the case of Lambert and Others v. France, The European Court of Human Rights, sitting as a Grand Chamber composed of: Dean Spielmann, President, Guido Raimondi, Mark Villiger, Isabelle Berro, Khanlar Hajiyev, Ján Šikuta, George Nicolaou, Nona Tsotsoria, Vincent A. De Gaetano, Angelika Nußberger, Linos-Alexandre Sicilianos, Erik Møse, André Potocki, Helena Jäderblom, Aleš Pejchal, Valeriu Griţco, Egidijus Kūris, judges, and Erik Fribergh, Registrar, Having deliberated in private on 7 January and 23 April 2015, Delivers the following judgment, which was adopted on the last-mentioned date: PROCEDURE 1. The case originated in an application (no. 46043/14) against the French Republic lodged with the Court under Article 34 of the Convention for the Protection of Human Rights and Fundamental Freedoms (“the Convention”) by four French nationals, Mr Pierre Lambert and Mrs Viviane Lambert, Mr David Philippon and Mrs Anne Tuarze (“the applicants”), on 23 June 2014. 2. The applicants were represented by Mr J. Paillot, a lawyer practising in Strasbourg, and Mr J. Triomphe, a lawyer practising in Paris. The French Government (“the Government”) were represented by their Agent, Mr F. Alabrune, Director of Legal Affairs at the Ministry of Foreign Affairs. 3. The applicants alleged, in particular, that the withdrawal of Vincent Lambert’s artificial nutrition and hydration would be in breach of the State’s obligations under Article 2 of the Convention, would constitute ill-treatment amounting to torture within the meaning of Article 3 of the Convention and 2 LAMBERT AND OTHERS v. -
GRAND CHAMBER CASE of LAMBERT and OTHERS V. FRANCE
GRAND CHAMBER CASE OF LAMBERT AND OTHERS v. FRANCE (Application no. 46043/14) JUDGMENT This version was rectified on 25 June 2015 under Rule 81 of the Rules of Court. STRASBOURG 5 June 2015 This judgment is final but may be subject to editorial revision. LAMBERT AND OTHERS v. FRANCE JUDGMENT 1 In the case of Lambert and Others v. France, The European Court of Human Rights, sitting as a Grand Chamber composed of: Dean Spielmann, President, Guido Raimondi, Mark Villiger, Isabelle Berro, Khanlar Hajiyev, Ján Šikuta, George Nicolaou, Nona Tsotsoria, Vincent A. De Gaetano, Angelika Nußberger, Linos-Alexandre Sicilianos, Erik Møse, André Potocki, Helena Jäderblom, Aleš Pejchal, Valeriu Griţco, Egidijus Kūris, judges, and Erik Fribergh, Registrar, Having deliberated in private on 7 January and 23 April 2015, Delivers the following judgment, which was adopted on the last-mentioned date: PROCEDURE 1. The case originated in an application (no. 46043/14) against the French Republic lodged with the Court under Article 34 of the Convention for the Protection of Human Rights and Fundamental Freedoms (“the Convention”) by four French nationals, Mr Pierre Lambert and Mrs Viviane Lambert, Mr David Philippon and Mrs Anne Tuarze (“the applicants”), on 23 June 2014. 2. The applicants were represented by Mr J. Paillot, a lawyer practising in Strasbourg, and Mr J. Triomphe, a lawyer practising in Paris. The French Government (“the Government”) were represented by their Agent, Mr F. Alabrune, Director of Legal Affairs at the Ministry of Foreign Affairs. 3. The applicants alleged, in particular, that the withdrawal of Vincent Lambert’s artificial nutrition and hydration would be in breach of the State’s obligations under Article 2 of the Convention, would constitute ill-treatment amounting to torture within the meaning of Article 3 of the Convention and 2 LAMBERT AND OTHERS v. -
Neuroscience and End-Of-Life Decisions. New
CORE Metadata, citation and similar papers at core.ac.uk Provided by AIR Universita degli studi di Milano Neuroscience and end-of-life decisions. New anthropological challenges for constitutional law 111 Call Neuroscience and end-of-life decisions. New anthropological challenges for constitutional law: «Is Human Nature the only science of man»? Giada Ragone, Benedetta Vimercati ABSTRACT: Nowadays, neuroscience permits the unveiling of interior elements of hu- man beings - the perception of pain, the presence of consciousness and even the will - in the absence of external manifestations. Physicians, indeed, seem capable of measuring the true mental state of individuals and their inner world through an elec- troencephalography or a functional magnetic resonance imaging. This new frontier affects the world of law and places heavy demands for lawyers embroiled in end-of- life matters. The present paper focuses on the use of neuroscientific acquisitions within end-of-life decisions, aiming to highlight two risks embedded in this use: the utmost deference towards science and scientific authority and the maximization of self-determination. The paper will provide, at the beginning, a framework of case law and end-of-life regulatory attempts; it will follow the analysis of the main challenges posed to law by advances in neuroscience. In the latter part of this paper, we will of- fer food for thought on the role of neuroscience and - in a broader perspective - of science in law. KEYWORDS: Neuroscience; end-of-life decisions; free will; self-determination; human dignity SUMMARY: 1. Introduction – 2. The end of life rights in case law and legislative attempts – 3.