DEBRA Golf Society St George’s Hill - 12 May 2021 Welcome

It is with great pleasure that I welcome you all today to our second DEBRA Golf Society event of 2021.

To say it’s been a strange and difficult year is quite an understatement. I am indebted to all of you for supporting us through these tough times and proud of our community coming together throughout the year to make golf days and fundraising for DEBRA possible, even if we did have some unusual conditions to cope with.

Because of your support and generosity, we still managed to raise over £120,000 from our golf events whilst most other activities were either severely curtailed or cancelled altogether. I thank you all.

Unfortunately COVID continues to affect us all and, as a consequence, we once again had to delay the start of our season and endure limitations on our activities. Hopefully this year the vaccination program will allow us to regain more normality by the month and by Summer’s end we might be running a full day’s schedule without restrictions- here’s hoping.

Our events calendar this year is still impressive. Once again, thanks to you, we are pretty well booked throughout the year. Many fundraising activities are suspended for the time being so we need to look at more ways to raise money - the charity has lost over £2.5 million these last 12 months but we are determined to claw it back.

I am particularly grateful to this year’s Captain Simon Pollard for continuing the initiative set up by Jon Isaacs last year in launching a golf giving page - we raised over £15,000 last year and I’m sure with your help can do so again at www. justgiving.com/fundraising/simon-pollard-debra

I would also like to thank Steve Rider who has taken over as President of the Golf Society from the much missed .

Throughout the year we will keep you up to date with our activities and progress and maybe a few surprise dates!

I wish you all the very best for your families and friends and hope that we can brighten up a few days with some great golf courses and for some of you a sparkling game to match.

Please keep supporting DEBRA, help us fight EB, and enjoy your golf.

Gary Johnson DEBRA Golf Society Chairman Schedule

08.15 onwards - Arrive a maximum of 15 minutes prior to your team’s allocated tee time. The changing rooms will be closed so please change your shoes at your car. Toilet facilities at the Clubhouse will be signposted. Upon arrival, make your way around the clubhouse building to the patio to register with a member of the DEBRA team and proceed to the practice putting green or net. 08.30 onwards - Tee times pre-allocated 10 minutes apart at Tees 1 and 10. Please wait at the putting green until called to the tee by the starter. Collect take-away coffee/tea/orange juice and bacon roll from the half-way hut adjacent to the tees. 12.30 onwards - Following your round of golf you should return your clubs to your car and remain in your golf attire and just change shoes. A two-course lunch will be served in a covered outdoor area adjacent to the Clubhouse. You will have 1 hour from leaving the course to enjoy your lunch and drinks before departing. Format Four-ball bowmaker, best two stableford scores to count on each hole, 85% Course . Men play from yellow tees, ladies from red tees, both scoring to their own stroke index and . Ladies receive one adjustment shot.

To reduce the need for handling scorecards, we ask that an allocated team member keep the score for the team, with a second by way of a check. We will rely on your accuracy to determine your team total and will ask you to submit this to us verbally when completing your round or via text to 07880 382876.

Please putt leaving the flagstick in the hole and smooth bunkers with your feet or personal rake. Balls may be lifted and replaced within six inches in bunkers (local rule). Join team DEBRA for the London Marathon 2021 Sunday 3 October 2021 Sign up here: www.debra.org.uk/vlm2021

A charity registered in England and Wales (1084958) and Scotland (SC039654). Company limited by guarantee registered in England and Wales (4118259). What is EB? • Epidermolysis Bullosa (EB) is a group of painful genetic skin conditions that cause the skin to tear and blister at the slightest touch. • People with EB have a faulty gene, meaning the skin cannot bind together, so any trauma or friction can cause painful blisters, open wounds and scarring. It can also affect internal linings and organs. • The name comes from ‘epiderm’ - the outer layer of skin, ‘lysis’ - the breakdown of cells and ‘bullosa’ - blisters. • There are many different types of EB, ranging from the mildest, in which only the big toes are affected, to the most severe, which can have a devastating effect on any part of the body, causing lifelong disability and pain, and in some cases can sadly be fatal.

EB key facts How we #FightEB We have a vision where no one suffers from the painful genetic skin blistering condition EB. Thanks to your support we are able to fund:

Specialist Community healthcare support We deliver an enhanced EB We aim to connect people living healthcare service in partnership with EB and their families with with the NHS through EB clinical the services they need. We offer and multi-disciplinary teams and information, financial help, provide training and funding for emotional support, respite breaks, medical professionals. events and more to the EB Community.

Pioneering International research collaboration We strive to find effective International collaboration and treatments and cures for the EB coordination is vital for sharing Community to improve their quality expertise and developing effective of life. From discovering the first treatments and potential cures EB genes to funding the first for EB. It allows us to coordinate clinical trial in gene therapy, we research grants, fund international have made significant progress in training and share expertise and advancing diagnosis, treatment best practice. and daily management of EB.

DEBRA UK has been my rock. Not only do they help fund EB nurses who make my condition manageable, they have made me realise I am not alone. DEBRA UK organises events where I can meet and share experiences with other people living with EB. The EB Community is a family. DEBRA UK is like the glue that keeps us together. DEBRA UK Member If the time is ever right to remember a charity in your Will, please remember DEBRA It could be your gift that unlocks a cure for Freddie

Our promise to you: We recognise that your loved ones come first in your Will We will never ask you about the size or type of bequest because every gift makes a difference We understand that you may need to update your Will if your circumstances change We promise to use your gift wisely, in line with your wishes

www.debra.org.uk/leaveagift for people whose skin doesn’t work we do Today’s Golf Challenge Hole 1 – Nearest the Pin in Two Win a voucher from GolfWine for nearest to the pin in two on this hole.

Hole 8 – Birdie for a Birdie Anyone achieving a birdie 2 on this hole will win a voucher for a bottle of Birdie wine from GolfWine.

Hole 14 – Nearest the Pin Win a voucher from GolfWine for nearest to the pin on this hole.

Hole 18 – Nearest the Pin in Two Win a voucher from GolfWine for nearest to the pin in two on this hole.

Eagle for an Eagle Win a voucher for a bottle of Eagle wine from GolfWine for an eagle on any hole today. Please let the DEBRA team know about birdies and eagles following your round or by text to 07880 382876.

Enter today’s challenge for £25 per golfer. Mulligans and Prize Draw Mulligans can be purchased, £10 for two (maximum allowed per person). These can be used to replay any shot excluding bunker shots and putts. Once declared the mulligan ball is the sole ball in play.

Enter our prize draw for £10 per person to win a voucher for two magnums of Birdie wine from GolfWine. Each person entering will be allocated a number. The winner will be drawn using a random number generator during the day. 2021 Season £10,000 Diamond Draw

DEBRA supporter Laurence Blunt of CJ UK, formerly at Hatton Garden and well known to many of you for his generosity in donating items of diamond jewellery for our auctions, has created four unique pieces specially for DEBRA. The total value of these items is £10,000. One could be yours!

We will allocate a unique number to all who enter our season-long draw - £20 per entry. Four lucky winners will each receive one piece of diamond jewellery following the draw at our final event of the year at The Berkshire on 26 October. Further details about these fantastic items will be available soon.

Enter the Diamond Draw as many times as you like throughout the season for £20 each time. Support DEBRA with every purchase Enjoy the very best Rioja produced in the premier “Alta” region by the award winning Bodega “Marques de Teran”. The wine is highly rated by the renowned “Master of Wines” Tim Atkin.

ALBATROS Selection Especial Vintage 2015

EAGLE Reserva Vintage 2012

19th HOLE Rioja Blanco 2018 Exclusive DEBRA Golfer Offer Buy 2 bottles of each wine in a case of 6 for £90 (retail value £110) and GolfWine will donate £10 to DEBRA.

Buy 12 bottles or 2 cases and GolfWine will donate £25 to DEBRA.

Delivery is free of charge within the UK.

Visit www.golfwine.co.uk and select the DEBRA client offer and complete the purchase using the code: Donate Contact details: Kevin Jones 07711 421823 [email protected] Silent auction Lot 1 - A Round of Golf for four at Little Aston

The highest ranked Parkland Course and number 34 overall in the 2019 Top 100 England Courses by Golf World, Little Aston, is a popular regular fixture in the DEBRA schedule. Situated in the heart of England close to all major transport networks, Little Aston is easily accessible from all corners of the UK and is a great challenge to all levels of golfer. In recent years the course has been lengthened and certain holes have been modified partly to offset the march of modern technology. An array of new tees has boosted the yardage and in a number of cases the angles into the greens have altered too, adding more strategy to an already strategic test. From the men’s back tees the course now measures 6,813 yards with a challenging par of 72.

Valid midweek except Thursdays, subject to availability, to 31 December 2021. Kindly donated by Little Aston Golf Club Please text your best bid to 07880 382876 Lot 2: Round of Golf for Four at Craighead Links, Fife, Scotland

This challenging, cliff-top course was designed by world-renowned, architect Gil Hanse to provide golfing aficionados with a true test of their shotmaking skills in a links environment.

Built in the style of a traditional links course - with no trees protecting golf shots from the wind - Craighead provides panoramic views of up to 100 miles, legally protected Sites of Special Scientific Interest flanking the 13th and 14th holes, and a World War I pill box behind the 7th green, all in addition to serious golf.

Valid until 30th September 2021 (excluding July 2021) Available Monday to Friday

Kindly donated by Crail Golfing Society. Please text your bid to 07880 382876

Lot 3: Round of Golf for Four at Stock Brook Country Club, Essex This 27 hole course, set in the delightful Essex countryside near Billericay, is a real treat for golfers of all standards and handicaps. Whatever your level, the Martin Gillet designed courses will provide you with a fine test of golf that is a pleasure to play. Stock Brook’s renowned undulating greens, rolling landscape and beautiful scenery create the setting for a great day’s golf all year round.

Valid until 26 October 2021, subject to availability.

Kindly donated by Stock Brook Country Club.

Please text your bid to 07880 382876 Lot 4 - Round of Golf for Four at New Zealand

Always a popular venue on the DEBRA Golf schedule, this is a fantastic opportunity to play at this exclusive Surrey club. Founded in 1895 and designed by Samuel ‘Mare’ Fergusson, New Zealand Golf Club is a top-class course located within the famous Surrey Heath belt.

Not a long course by today’s standards, a little over 6,000 yards, but with a lowly par of 68 it represents a challenge; six of the par fours are more than 400 yards long. Needless to say, accuracy rather than distance is important from the tee. The course plays through avenues of trees and there is plenty of heather to catch the wayward ball. Most of the holes are isolated from each other by the trees; it’s an intimate feeling and great place to play golf with friends.

Valid until 31 May 2022, Monday to Friday only, excluding Bank Holidays, subject to availability (two balls only permitted on Fridays).

Kindly donated by New Zealand Golf Club.

Please text your bid to 07880 382876 Thank you to our Golf Society 100 Club members

Dorset Horns

Short Horns

Brennan Pearson & Co, Chartered ® Est 1901 Accountants

CJ UK

LMA

Dorset Horns

Short Horns

® Est 1901

Brennan Pearson & Co, Chartered CJ UK Accountants

Dorset LMA Horns

Short Horns

® Est 1901

Brennan Pearson & Co, Chartered Accountants

Together we #FightEB for people whose skin doesn’t work we do @CharityDEBRA /DEBRACharity @CharityDEBRA

DEBRA is the national charity supporting people suffering from Epidermolysis Bullosa (EB) – a potentially fatal skin condition that causes constant pain due to unstoppable internal and external blistering. A registered charity in England and Wales (1084958) and Scotland (SC039654). Company limited by guarantee registered in England and Wales (4118259). Thank you A big thank you to all our auction donors and to everyone who has contributed to making this a great day, and for all your invaluable support for DEBRA. A particular thank you to:

• Kevin Jones of GolfWine for prizes and sponsoring the Golf Challenge.

• Laurence Blunt for donating the diamond jewellery for our Season Diamond Draw.

• All the staff at St George’s Hill for looking after us so well.

A registered charity in England and Wales (1084958) and Scotland (SC039654). Company limited by guarantee registered in England and Wales (4118259). Tel: 01344 771961 · Email: [email protected] · Website: debra.org.uk