Haemoglobinopathy Co-ordinating Centre Contacts (Sickle Cell)

East Midlands

Dr Amy Webster [email protected] HCC Clinical Lead

Dr Ryan Mullally [email protected] HCC Clinical Lead

Jodie Liversage [email protected] HCC Manager

Ismail Gangat [email protected] Data Manager

Specialist Haemoglobinopathy Teams: University of Leicester NHS Trust, Nottingham University Hospitals NHS Trust West Midlands

Dr Shivan Pancham [email protected] HCC Clinical Lead

Dr Mark Velangi [email protected] HCC Clinical Lead

Dr Christine Wright [email protected] HCC Clinical Lead

Elizabeth Green [email protected] HCC Lead Nurse

Shak Dussaye [email protected] HCC Network Coordinator (Paediatrics)

Leah Denver [email protected] HCC Network Coordinator (Paediatrics)

Specialist Haemoglobinopathy Teams: Birmingham Women and Children’s NHS Foundation Trust, Sandwell and West Birmingham Hospitals NHS Trust Local Haemoglobinopathy Teams: University Hospitals Birmingham, Dudley Group NHS Foundation Trust (Russells Hall ), Worcestershire Acute Hospitals NHS Trust, University Hospitals Coventry and Warwickshire NHS Trust, University Hospitals of North Midlands NHS Trust, Shrewsbury and Telford Hospitals NHS Trust, Walsall Healthcare NHS Trust, The Royal Wolverhampton NHS Trust East and

Dr Paul Telfer [email protected] HCC Clinical Lead

Dr Banu Kaya [email protected] HCC Clinical Lead

Kim Newell [email protected] HCC Lead Nurse

David Kafuko [email protected] HCC Manager

Specialist Haemoglobinopathy Teams (Sickle Cell Disease): Barts Health NHS Trust, Homerton University Hospital NHS Foundation Trust Specialist Haemoglobinopathy Teams (Thalassaemia): King’s College Hospital NHS Foundation Trust, Guy’s and St. Thomas’s NHS Foundation Trust, Lewisham and Greenwich NHS Trust, Croydon Health Services NHS Trust, Medway NHS Foundation Trust Local Haemoglobinopathy Teams: Newham Hospital, Whipps Cross Hospital, Basildon Hospital, Southend Hospital, Hospital, Hospital, Princess Alexandra Hospital, Queen’s Hospital South London and South East

Professor Jo Howard [email protected] HCC Clinical Lead Professor David Rees [email protected] HCC Clinical Lead Dr Moji Awogbade [email protected] HCC Clinical Lead Professor Baba Inusa [email protected] HCC Clinical Lead

Sarah Kemp [email protected] HCC Manager

Marta Gruszka [email protected] Data Coordinator

Specialist Haemoglobinopathy Teams: Guy’s and St Thomas’s NHS Foundation Trust, King’s College Hospital NHS Foundation Trust, Croydon University Hospital NHS Trust, Lewisham and Greenwich NHS Trust Local Haemoglobinopathy Teams: Darent Valley Hospital, Kent and Canterbury Hospital, Maidstone Hospital, Medway Hospital, Royal Sussex County Hospital, Princess Royal Hospital, Eastbourne District General Hospital, Worthing Hospital, St. Richard’s Hospital West London

Professor Mark Layton [email protected] HCC Clinical Lead

Dr Kofi Anie [email protected] HCC Clinical Lead

Professor Josu de la Fuente [email protected] HCC Clinical Lead Ralph Brown [email protected] HCC Manager

Specialist Haemoglobinopathy Teams: Imperial College Healthcare NHS Foundation Trust (Hammersmith Hospital [Adults] and St. Mary’s Hospital [Paeds]), St. George’s University Hospitals NHS Foundation Trust, London North West University Healthcare NHS Trust (Central Middlesex Hospital and Northwick Park Hospital) Local Haemoglobinopathy Teams: Chelsea and Westminster Hospital, Hillingdon Hospital, Ealing Hospital, West Middlesex Hospital, Watford General Hospital (Paeds), Luton and Dunstable Hospital (Paeds), Kingston Hospital, St. Peter’s Hospital, Royal County Hospital, Park Hospital, Epsom General Hospital, St. Helier Hospital, Crawley Hospital, East Surrey Hospital North Central London and East Anglia

Dr Emma Drasar [email protected] HCC Clinical Lead

Professor John Porter [email protected] HCC Clinical Lead

Joanne Arenas [email protected] HCC Manager

Bernadette Hylton [email protected] HCC Education Matron

Specialist Haemoglobinopathy Teams: University College London Hospitals NHS Foundation Trust, Whittington Health NHS Trust, North Middlesex University Hospital NHS Trust Local Haemoglobinopathy Teams: Bedford Hospital, Addenbrooke’s Hospital, Lister Hospital, Luton and Dunstable Hospital, Great Ormond Street Hospital for Children, Hinchingbrooke Hospital, James Paget Hospital, Norfolk and Norwich University Hospital, Princess Alexandra Hospital, The Queen Elizabeth Hospital, Ipswich Hospital, Royal Free London, West Suffolk Hospital North East and Yorkshire

Dr Josh Wright [email protected] HCC Clinical Lead

Dr Emma Astwood [email protected] HCC Clinical Lead

Gillian Dinsey [email protected] HCC Manager

Emma Pullia [email protected] HCC Administrator and MDT Coordinator Specialist Haemoglobinopathy Teams: Sheffield Teaching Hospitals NHS Foundation Trust Sheffield Children’s NHS Foundation Trust, Leeds Teaching Hospitals NHS Trust, Newcastle upon Tyne Hospitals NHS Foundation Trust Local Haemoglobinopathy Teams: Bradford Teaching Hospitals, Airedale Hospital, Calderdale and Huddersfield Hospitals, York Teaching Hospitals, Northern Lincolnshire and Goole Hospitals, Mid Yorkshire Hospitals, Harrogate and District Hospital, Hull University Teaching Hospitals, Barnsley Hospital, Doncaster and Bassetlaw Hospitals, The Rotherham Hospital, South Tees Hospitals, North Tees and Hartlepool Hospitals, South Tyneside Hospital, Gateshead Health, County Durham and Darlington Hospitals, Northumbria Healthcare North West Dr Kate Ryan [email protected] HCC Clinical Lead

Nandini Sadasivam [email protected] HCC Clinical Lead John Grainger [email protected] HCC Clinical Lead

Maryam Aziz [email protected] HCC Manager

Andrew Richards [email protected] HCC Administrator and Audit Facilitator

Katy Stevenson [email protected] CNS Nurse Educator

Specialist Haemoglobinopathy Teams: Manchester University NHS Foundation Trust, Alder Hey Children’s NHS Foundation Trust, Royal Liverpool and Broadgreen University Hospitals NHS Trust Wessex and Thames Valley

Dr Wale Ayotebi [email protected] HCC Clinical Lead

Sandy Hayes [email protected] HCC Clinical Lead and acting HCC manager

Dr Amrana Qureshi [email protected] HCC Clinical Lead

Specialist Haemoglobinopathy Teams: Oxford University Hospitals NHS Foundation Trust and Southampton University Hospitals NHS Trust Local Haemoglobinopathy Teams: Frimley Health (Wexham Park and Frimley Hospital), Milton Keynes University Hospital, Buckingham Healthcare Trust (Stoke Mandeville, Wycombe General), Great Western (Swindon), Royal Berkshire (Reading), John Radcliffe Hospital, Oxford Children's Hospital, Nuffield Orthopaedic Centre, Churchill Hospital (adults), Banbury General, Southampton, Hampshire Hospitals (Winchester, Basingstoke), Royal Bournemouth, Poole, Salisbury District, Princess Margaret (Portsmouth), Dorset County (Dorchester) Western Sussex (Chichester) South West

Dr Sanne Lugthart [email protected] HCC Clincal Lead

Dr Michelle Cummins

[email protected] HCC Clinical Lead

Nicole Paterson [email protected] HCC Clinical Lead

Specialist Haemoglobinopathy Teams: University Hospitals of Bristol NHS FT Haemoglobinopathy Co-ordinating Centre Contacts (Thalassaemia)

North of

Dr Kate Ryan [email protected] HCC Clinical Lead Dr John Grainger [email protected] HCC Clinical Lead Dr Nandini Sadasivam [email protected] HCC Clinical Lead Maryam Aziz [email protected] HCC Network Manager HCC Administrator and Audit Andrew Richards [email protected] Facilitator

Katy Stevenson [email protected] CNS Nurse Educator

Specialist Haemoglobinopathy Teams: Manchester University NHS Foundation Trust, Alder Hey Children’s NHS Foundation Trust, Royal Liverpool and Broadgreen University Hospitals NHS Trust, Newcastle upon Tyne Hospitals NHS Foundation Trust, Sheffield Teaching Hospitals NHS Foundation Trust, Sheffield Children’s Hospital NHS Foundation Trust, Leeds Teaching Hospitals NHS Trust London, South Central, and South West

Dr Emma Drasar [email protected] HCC Clinical Lead

Professor Josu de la Fuente [email protected] HCC Clinical Lead

Dr Mark Layton [email protected] HCC Clinical Lead

Joanne Arenas [email protected] HCC Network Manager Specialist Haemoglobinopathy Teams: University College London Hospitals NHS Foundation Trust, St. George’s University Hospitals NHS Foundation Trust, Imperial College Healthcare NHS Trust, Oxford University Hospitals NHS Trust, University Hospital Southampton NHS Foundation Trust, University Hospitals Bristol NHS Foundation Trust Local Haemoglobinopathy Teams: St. Peter’s Hospital, , , Kingston Hospital, Royal Surrey County Hospital, West Middlesex University Hospital, Chelsea and Westminster Hospital, Churchill Hospital, Horton General Hospital, Stoke Mandeville Hospital, , Milton Keynes Hospital, , Basingstoke and North Hampshire Hospital, Royal Hampshire County Hospital, St. Mary’s Hospital, , Royal Bournemouth Hospital, Queen Victoria Hospital, Bristol Children’s Hospital, Cheltenham General Hospital, Gloucestershire Royal Hospital, Great Western Hospital, North Devon Hospital, Derriford Hospital, Royal Cornwall Hospital, Royal United Hospital Bath, Torbay District Hospital, Musgrove Park Hospital London and South East

Dr Paul Telfer [email protected] HCC Clinical Lead

Dr Banu Kaya [email protected] HCC Clinical Lead

Kim Newell [email protected] HCC Lead Nurse

Roger McGee [email protected] HCC Manager

Specialist Haemoglobinopathy Teams (Thalassaemia): King’s College Hospital NHS Foundation Trust, Guy’s and St. Thomas’s NHS Foundation Trust, Lewisham and Greenwich NHS Trust, Croydon Health Services NHS Trust, Medway NHS Foundation Trust Local Haemoglobinopathy Teams: Newham Hospital, Whipps Cross Hospital, Basildon Hospital, Southend Hospital, Colchester Hospital, Chelmsford Hospital, Princess Alexandra Hospital Midlands

Dr Shivan Pancham [email protected] HCC Clinical Lead

Dr Christine Wright [email protected] HCC Clinical Lead

Elizabeth Green [email protected] HCC Lead Nurse

Shak Dussaye [email protected] HCC Network Coordinator (Adults)

Leah Denver [email protected] HCC Network Coordinator (Paediatrics)

Specialist Haemoglobinopathy Teams: Birmingham Women and Children’s NHS Foundation Trust, Sandwell and West Birmingham Hospitals NHS Trust, University Hospitals of Leicester NHS Trust, Nottingham University Hospitals NHS Trust Local Haemoglobinopathy Teams: University Hospitals Birmingham, Dudley Group NHS Foundation Trust (Russells Hall Hospital), Worcestershire Acute Hospitals NHS Trust, University Hospitals Coventry and Warwickshire NHS Trust, University Hospitals of North Midlands NHS Trust, Shrewsbury and Telford Hospitals NHS Trust, Walsall Healthcare NHS Trust, The Royal Wolverhampton NHS Trust, Northampton General Hospital NHS Trust, Kettering General Hospital NHS Foundation Trust, University Hospitals of Derby and Burton NHS Foundation Trust North West (Sickle Cell) North (Thalassaemia) North East and Yorkshire

Haemoglobinopathy Co-ordinating Centres

East Midlands West Midlands (Sickle Cell) Midlands (Thalassaemia)

North Central London and East Anglia (Sickle Cell) London, South Central and South West (Thalassaemia)

East London and Essex (Sickle Wessex and Thames Valley Cell) West London London and South East (Thalassaemia) South West South London and South East Sickle Cell Haemoglobinopathy Co-ordinating Newcastle upon Tyne NHS Foundation Trust (North East and Yorkshire Centres and Specialist Haemoglobinopathy Teams HCC) RED = HCCs, BLUE = SHTs https://www.newcastle-hospitals.org.uk/services/haematology.html

Leeds Teaching Hospitals NHS Trust (North East and Yorkshire HCC) https://www.leedsth.nhs.uk/a-z-of-services/clinical-haematology/

Alder Hey Children’s NHS Foundation Trust North West HCC (North West HCC) (Manchester University NHS Foundation Trust) https://alderhey.nhs.uk/services/oncology

North East and Yorkshire HCC (Sheffield Teaching Hospitals NHS Foundation Trust and Sheffield Nottingham University Hospitals NHS Children’s NHS Foundation Trust) Trust (East Midlands HCC) https://www.nuh.nhs.uk/clinical- East Midlands HCC haematology/ (University Hospitals of Leicester NHS Trust)

Royal Liverpool and Broadgreen Hospitals NHS Trust (North West HCC) West Midlands HCC (Birmingham Women’s and Children’s NHS https://www.rlbuht.nhs.uk/departments/ Foundation Trust and Sandwell and West Birmingham Hospitals NHS medical-specialisms/blood- Trust) haematology/blood- sciences/haematology/ Wessex and Thames Valley HCC (Oxford University Hospitals NHS Foundation Trust)

South West HCC (University Hospitals of Bristol NHS Foundation Trust) University Hospital Southampton NHS Foundation Trust (Wessex and Thames Valley HCC) https://www.uhs.nhs.uk/OurServices/Bloodandcirculation/Haematolog y.aspx Sickle Cell Haemoglobinopathy Coordinating Centres and Specialist Haemoglobinopathy Teams (Greater London) RED = HCCs, BLUE = SHTs (NCL HCC) https://www.whittington.nhs.uk/default. North Middlesex University Hospital asp?c=1215 NHS Foundation Trust (NCL HCC) https://www.nhs.uk/services/hospita Homerton Hospital (NCL HCC) ls/services/service/defaultview.aspx? https://www.homerton.nhs.uk/haemat id=93527 ology/

Northwick Park Hospital (West North Central London and East Anglia London HCC) (NCL) HCC https://www.lnwh.nhs.uk/servi ce-finder/service/sickle-cell- East London and Essex (ELE) HCC and-thalassaemia-72/ Hammersmith Hospital (West London HCC) St. Bartholomew’s Hospital (ELE HCC) https://www.imperial.nhs.uk/o https://www.bartshealth.nhs.uk/clinical- ur-services/haematology haematology St. Mary’s Hospital (West London HCC https://www.imperial.nhs.uk/ South London and South East (SLSE) HCC our-services/haematology King’s College Hospital NHS Foundation Trust and Guy’s and St. Thomas’s NHS Foundation Trust West London HCC www.ststn.co.uk Lewisham and Greenwich NHS Trust St George’s University Hospitals (SLSE HCC) NHS Foundation Trust (West https://www.lewishamandgreenwich.nh London HCC) s.uk/haematology-in-lewisham/ https://www.stgeorges.nhs.uk/ser vice/diagnostic- Croydon University Hospitals NHS Trust services/haematology/ (SLSE HCC) https://www.croydonhealthservices.nhs. uk/a-to-z-of- services/service/haematology-114/