List of Measures Under Consideration for December 1, 2015
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National Advocacy Update Why Clinical Algorithms Fall Short on Race
Oct. 16, 2020: National Advocacy Update Why clinical algorithms fall short on race Recent publications detail how the clinical algorithms used to guide treatments may mistakenly substitute and equate racial data for genetic and other information and their use may lead to less-than- optimal care. "Race is not a reliable proxy for genetic difference" is the phrase used by researchers in "Hidden in Plain Sight—Reconsidering the Use of Race Correction in Clinical Algorithms," an article published in the New England Journal of Medicine (NEJM). The article prompted Rep. Richard E. Neal, D-Mass., chair of the House Ways and Means Committee, to ask the AMA and other medical societies what they were doing to address health inequities, in general, and to end misuse of race and ethnicity in clinical algorithms in particular. The AMA responded with a nine-page letter that outlines the multitude of ongoing or previously completed AMA work to address health equity issues, and includes recommendations for federal research that reviews clinical algorithms. "The AMA has long recognized that racial and ethnic health inequities are an unjust and major public health reality in the United States," AMA Executive Vice President and CEO James L. Madara, MD, wrote in the response. "Understanding that race is a social and political construct and not a risk factor for disease and death, the AMA has publicly acknowledged that racism impacts public health and is a barrier to effective medical diagnosis and treatment." The NEJM article looked at how the use of race and ethnicity data in diagnostic algorithms and practice guidelines to adjust outputs altered risk assessment and clinical decision-making in cardiology, nephrology, obstetrics and urology. -
Toward the Abolition of Biological Race in Medicine 1 Lives, Are Inherently Political—A “Theory in the Flesh.”2 Text and Harm of Their Practices
Biological Race inMedicine Race Biological Transforming Clinical Education, Research, and Practice Research, Education, Clinical Transforming Toward the Abolition of the Abolition of Toward Noor Chadha, Bernadette Lim, Madeleine Kane, and Brenly Rowland and Brenly Kane, Madeleine Lim, Noor Bernadette Chadha, MAY 2020 BELONGING.BERKELEY.EDU | INSTITUTEFORHEALINGANDJUSTICE.ORG POLICY BRIEF This report is published by the Institute for Healing and Justice in Medicine, and the Othering & Belonging Institute. The Institute for Healing and Justice in Medicine is an interdisciplinary hub - a community, a research epicenter, and a dialogue space related to healing, social justice, and community activism in Western medicine and public health. The Othering & Belonging Institute brings together researchers, community stakeholders, and policy-makers to identify and challenge the barriers to an inclusive, just, and sustainable society in order to create transformative change. The use of biological race in med- world where the social construct Nicole Carvajal icine is an unchallenged, outdated of race is not conflated with biol- Willow Frye norm throughout clinical educa- ogy and the health consequences Nazineen Kandahari tion, research, and practice. of racism are acknowledged, Inderpreet "Preet" Kaur addressed, and cared for in all Aminta Kouyate Medicine largely frames racial their forms. Sharada Narayan health disparities in terms of Luke Silverman-Lloyd biological difference and individ- Scott Swartz ual behavior, despite evidence Coauthored By Nathan Swetlitz that social and structural factors Noor Chadha Shreya Thatai generate and perpetuate most Bernadette Lim Kay Walker health issues. Madeleine Kane Brenly Rowland As a result, medicine fails to Copy Editor address racism and its health Stacey Atkinson Interdisciplinary Faculty Editors consequences. -
October 16, 2020
October 16, 2020 The Honorable Richard E. Neal The Honorable Kevin Brady Chairman Ranking Member House Ways and Means Committee House Ways and Means Committee 1102 Longworth House Office Building 1139 Longworth House Office Building Washington, D.C. 20515 Washington, DC 20515 Dear Chairman Neal and Ranking Member Brady: On behalf of the American Psychiatric Association (APA), the national medical specialty association representing over 38,500 psychiatric physicians, I want to thank you for conducting the hearing on May 27 on ‘The Disproportionate Impact of COVID-19 on Communities of Color.’ The APA appreciates the Committee’s continued work on this critically important matter. We also would like to thank you for the opportunity to provide feedback on the misuse and misapplication of race and ethnicity in clinical algorithms and research, an important issue that impacts the delivery of health care including care for patients with mental illness and substance use disorders. Please find the APA’s answers (in italic text) to your request for information questions (in bold text) below. 1.To what extent is it necessary that health and health related organizations address the misuse of race and ethnicity in clinical algorithms and research? What role should patients and communities play? Clinical algorithms and research are becoming more common in health care since they have the potential to improve care by providing the right care, to the right person at the right time. However, concerns are growing regarding how these algorithms are created and how they are used to determine who receives care. As we leverage the advances in science and medicine, we must be careful and cognizant that we do not inadvertently exacerbate inequities in care, particularly for vulnerable populations. -
May 4, 2021 David Meyers, M.D. Acting Director Agency For
May 4, 2021 David Meyers, M.D. Acting Director Agency for Healthcare Research and Quality 5600 Fishers Lane Rockville, MD 20857 Re: Use of Clinical Algorithms That Have the Potential to Introduce Racial/Ethnic Bias into Healthcare Delivery Dear Dr. Meyers: The American Osteopathic Association (AOA) and American College of Osteopathic Internists (ACOI), on behalf of the more than 151,000 osteopathic physicians (DOs) and medical students we represent, appreciate the opportunity to support the Agency for Healthcare Research and Quality ‘s (AHRQ) review of evidence on the use of race/ethnicity in clinical algorithms and the potential for algorithms to contribute to disparities in healthcare. Our organizations recognize that all healthcare stakeholders share responsibility for reducing disparities in healthcare and ensuring that all Americans have access to high-quality, equitable care. DOs are especially connected to this belief and have a unique and important perspective on the delivery of healthcare in our nation, as many osteopathic medical schools are located in proximity to health professional shortage areas and help increase the physician workforce in rural and underserved communities. Additionally, nearly 40 percent of physicians practicing in medically underserved areas are DOs. While digital, analytic, and clinical decision-making tools are intended to help advance health care, point of care tools and other algorithms also have the potential to introduce biases. Often, these tools take into account racial, ethnic, and socioeconomic factors and can introduce bias unbeknownst to the user. The primary way to ensure that clinical tools are designed and utilized in an unbiased and equitable manner is to engage in extensive review of the evidence available, identify research gaps, and evaluate these tools in a real-world setting.