and Community Acquired Brain Injury Service (CABIS) Patient information leaflet

Shining a light on the future Sunderland and Gateshead Community Acquired Brain Injury Service [CABIS] CABIS offer a range of rehabilitation for people who are experiencing difficulties in their day to day life following an injury or infection involving the brain. Injuries may be caused by a trauma to the head or an infection, for example encephalitis or meningitis. People can also have concussion symptoms that impact on the day to day life following a mild head injury.

We provide a service for residents of Sunderland and Gateshead who are 16 years and above.

How do I access the service? You can refer yourself or be referred by a family member, your doctor, a therapist or other agencies. Contact us by telephone, email, or in writing, using the details below:

Sunderland and Gateshead Community Acquired Brain Injury Service (CABIS) Hospital Newcastle Road Sunderland SR5 1NB

Telephone: 0191 566 5650 Fax: 0191 566 5651 Email: [email protected]

Please note that information sent to the Trust via email is sent at your own risk.

This leaflet contains the following information about the service and what to expect.

• The Service • The Team • About assessments • How to get to Sunderland CABIS office • How to get to Gateshead CABIS office • How to give comments, compliment or complaints

If you have any questions or comments about the services we offer, please ask a member of the CABIS team or contact us on 0191 566 5650.

2 The Team The following personnel work in the team. All or just one of them may work with you. We also work with many other services in order to help you and your family with your recovery and rehabilitation.

Specialist Occupational Therapists Focus on helping to manage day to day activities more independently. This can be with personal care routines like getting washed and dressed, or doing things in the community, such as using public transport, going shopping and leisure activities. Help can involve advice and guidance for the individual and their family or staff.

Returning to work or finding a new job is important for many people.This includes paid work, volunteering and education. If there are barriers preventing a return to work, the occupational therapist can assist with this, alongside other organisations and employers.

Clinical Support Workers (AHP) Can assist you with rehabilitation activities and help you practice things in your daily life that you want to work on for example: • Getting to the gym or going for a run in the park. • Learning new ways to do activities such as washing, dressing and eating.

The rehabilitation plans are designed by you and the team.

Specialist Nurse Has significant experience around the management of early and ongoing symptoms of an acquired brain injury. Your health care needs can be discussed with the Nurse who can treat you directly or put you in contact with relevant services if you need additional treatment.

Neuropsychologists Work with the person with an acquired brain injury and their families. They can assist you with things such as: • Adapting to changes caused by the injury. • Understanding and dealing with the impact of an acquired brain injury on your emotions and your thinking. • Helping you devise a rehabilitation programme to achieve your goals.

If members of your family are struggling with the effects of the injury or circumstances around this, they also have access to neuropsychology for advice and treatment.

Headway Coordinators Headway is a national brain injury association. Headway coordinators are part of the CABIS Team and offer patients, family members and carers support or information in a number of areas such as: • Accessing support groups • Help your understanding of some of the aspects of having an acquired brain injury • Helping you to access other services you may not be aware of • Welfare benefits • Work and volunteering

3 Speech and Language Therapist Speech and language therapists can assess, treat and help you work through difficulties with swallowing and communication. We have dedicated time from a speech and language therapist from the local hospital to ensure that you can access this key service and work with the team to devise a rehabilitation programme.

Physiotherapist We have dedicated time from a speech and language therapist from the local hospital to ensure that you can access this key service and work with the team to devise a rehabilitation programme.

Your initial assessment The first appointment is usually about getting to know you and discussing how we can help you. A family member or close friend is welcome to attend if you feel this would help us understand more about how the injury is affecting you (and them).

This will be at a venue that is suitable to your needs and those of your family. Suitable venues could include your own home, our offices in Monkwearmouth Hospital or Gateshead Health Centre, a GP Practice, a hospital ward, at the probation service or at a suitable community venue.

This first meeting can last up to one hour (sometimes more if this is needed), but if this is difficult we can always reduce the time of the appointment.

There may be questions that you wish to ask, therefore we advise you to write them down before the appointment and we will do our best to answer them.

Bring reading glasses/hearing aids if you need to use them.

Following your initial assessment you may be offered other types of assessment or screening. These will help us to identify the type of support and rehabilitation you will need and how long this is likely to take.

Typical areas assessed: • Cognition (thinking skills including memory, attention, reasoning). These involve pen and paper tests and practical tasks to help us understand the difficulties caused by the brain injury. • Day to day function (what you can and can’t do at present) including barriers to work or meaningful activity. • Changes you have noticed and what your priorities are for treatment. • Your general health and how to improve upon this. • Mood assessments to help us understand how you are feeling and what difficulties you are experiencing.

You may also be offered referral to other departments, services or organisations depending upon your needs. The team members involved will help make sure you are accessing the correct services.

4 Sunderland and Gateshead Community Acquired Brain Injury Service (CABIS) Monkwearmouth Hospital, Newcastle Road, Sunderland, SR5 1NB Tel: 0191 566 5650

From Sunderland From From Head over Wearmouth Bridge following signs for ‘A1018 South Shields’. Keep following these A19 Whitburn signs and Monkwearmouth Hospital is one mile along on the right hand side. A184 A184 A1018 A19 from the North (The Tyne Tunnel) West East Exit the A19 at signs for ‘Sunderland North Boldon Boldon WE ARE A184’. Continue for 3.5 miles to roundabout HERE joining to the A1018. Take the second exit, signed A194(M) ‘City Centre’. A1231 Monkwearmouth Hospital is then one mile along on the left hand side. A19 from the South (Peterlee) A19 Sunderland N Exit the A19 at signs for ‘Sunderland North Washington A1231’. At the roundabout follow the Sunderland Hendon WE signs. S A690 After 3 miles pass the Stadium of Light Football A1018 Ground then turn left at sign for ‘South Shields A1018’. Monkwearmouth Hospital is then half a mile Moorside along on the right hand side. By Public Transport A690 A19 We are about a 10 minute walk from the Stadium (M) of Light Metro Station & Metro Station. Houghton le Spring Buses 9, 20, 20A, E2, X20 stop in front of the 3 miles hospital. Seaham From A19 From Car Parking (if travelling from the Tyne Tunnel) A184 South Shields RD There is a pay and NDS LA W YKE D I display car park at T

H

Seaburn B Monkwearmouth

U American Metro R Hospital. Charges are Golf Centre Station N

B1291 R

D from 8am to 6pm, M RD Monday to Friday. STATION A183 The Grange Fulwell Wheelchair Access A1018 Wheelchair access is Monkwearmouth to the side of the WE ARE Hospital main entrance of the From Washington N building. E W

& A19 (if travelling from the south) HERE C A S T Toyota L A1231 Southwick E Roker Our Location WE R SS D INGTO within the N WAY A1290 KIE Stadium of Light R H M AR Metro Station Hospital DIE WA Y Tesco Once through the A183 main hospital entrance we are the ROKER AVA1018 second door on the A1018 left. Queen Stadium of ST Alexander Bridge Light DAME DOROTHY A1231 Wearmouth Bridge N

WE S Sunderland A1018 1/2 Mile University of Location map by Active Maps Limited www.activemaps.co.uk. 5 Map contains Ordnance Survey data © Crown copyright and database right 2016 Sunderland and Gateshead Community Acquired Brain Injury Service (CABIS) The Health Centre, Prince Consort Road, Gateshead NE8 1NB. Tel: 0191 566 5650

From the A167 Southbound A696 (via Tyne Bridge) Exit the A167 at signs for Felling then at roundabout take the B1426 exit. A1 A1058 A69 A167 Continue to traffic lights and turn left, signed Bensham. At the next lights turn left, signed NEWCASTLE WE ARE Leisure Centre, and we are a hundred metres UPON TYNE HERE along on the right. From the A167 Northbound Exit at signs for Shipcote onto Prince Consort A184 A184 Road. Follow this road for half a mile and GATESHEAD Wardley Metro Felling we are on the left. A694 Centre A167 By Public Transport Low Fell We are located just to the south of A692 A1 A194(M) Gateshead Town Centre and are about a 10 Sunniside minute walk from N Metro and Bus Stations. WE Angel of Buses 29, Q2 and TB29 stop on Prince S the North 65 Consort Road next to the Health Centre. Birtley Washington 2 miles A1(M)

From Tyne Newcastle Bridge A167

RIVER TYNE GATESHEAD Gateshead Redheugh Gateshead Bridge Interchange A184 P A R A184 Metro & K International M Bus Stations Stadium R O A D A184 A184 A167 A189 HIGH WEST ST

Civic Y B1426 Centre A

W

H

G B1426 I

D H P R B1426 R St D S I U A N N Jospeh’s D E ER M C L School H A A E N H S D S E R BEWICK T O N ELY ST C RD A E O A D

G V B WE ARE N ILLAS S

O A184 HERE R T Felling A D R O R Bensham Central O L A L Library D H A T E N H I From W S Shipcote WE A L A1 Jct 69 T W Art St Georges S E B1426 L Gallery L Church

R O 400 metres A DURHAM RD D From A167 A1 Jct 66 Location map by Active Maps Limited www.activemaps.co.uk. 6 Map contains Ordnance Survey data © Crown copyright and database right 2016 What if I have a comment, suggestion, compliment or complaint about the service? If you want to make a comment, suggestion, compliment or complaint you can: • Talk to a member of the CABIS staff involved in your rehabilitation and request a Feedback Form. • Complete the form on the NTW Trust website at www.ntw.nhs.uk (click on the “contact us tab”). • Telephone the Complaints Department Tel: 0191 245 6672. • You can also e-mail us on [email protected] (please note that information sent to the Trust via email is sent at your own risk). • We are always looking at ways to improve services. Your feedback allows us to monitor the quality of our services and act upon issues that you bring to our attention. – Points of You - available from staff. – Friends and Family Test - available from staff or online at www.ntw.nhs.uk/fft

What some people have told us about our service

Thanks for everything. I have really enjoyed Your help, support the time I’ve spent and hard work has with the team. been invaluable.

Many thanks for all your help, support and encouragement during this difficult time, which I am sure Thanks for all your has made my recovery help and support quicker. over the past 2 years.

7 Further information about the content, reference sources or production of this leaflet can be obtained from the Patient Information Centre.

This information can be made available in a range of formats on request (eg Braille, audio, larger print, easy read, BSL or other languages). Please contact the Patient Information Centre Tel: 0191 246 7288

Published by the Patient Information Centre 2016 Copyright, Northumberland, NHS Foundation Trust Ref, PIC/765/0916 September V3 www.ntw.nhs.uk/pic Tel: 0191 246 7288 Review date 2019

Follow us www.facebook.com/NTWNHS @ntwnhs

8