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Neurological Disorders Survey Pakistan 2017- 2019

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Neurological Disorders Survey Pakistan 2017- 2019 Neurological Disorders Survey Pakistan 2017- 2019 ___________________________________________________________________________ Neurological Disorders Survey 2017-19 1 Collaborating Organizations ______________________________________________________________________________ Collaborating Organizations Pakistan Health Research Council Islamabad – Pakistan Aga Khan University, Karachi – Pakistan Neurological Disorders Survey Pakistan 2017-2019 Published: 2020 This report describes the findings of the Neurological Disorders Survey Pakistan conducted in collaboration between Pakistan Health Research Council, Islamabad and Aga Khan University, Karachi. The document may be freely reviewed, abstracted, reproduced and translated, in part or in whole, but is not for sale or use in conjunction with commercial purposes. Suggested citation as follow: Neurological Disorders Survey Pakistan 2017-2019, Page (……). ___________________________________________________________________________ Neurological Disorders Survey 2017-19 2 Contributors ______________________________________________________________________________ Authors Prof. Muhammad Wasay Aga Khan University, Karachi – Pakistan Dr. Muhammad Arif Nadeem Saqib, Pakistan Health Research Council, Islamabad – Pakistan Mr. Ibrar Rafique, Pakistan Health Research Council, Islamabad – Pakistan ___________________________________________________________________________ Neurological Disorders Survey 2017-19 3 Acknowledgement ______________________________________________________________________________ Acknowledgements The Neurological Disorders Survey was successfully completed due to the efforts and involvement of numerous organizations and individuals at different stages of the survey. We would like to thank everyone who participated and make this survey a success. We wish to express our special thanks to Neurology Association of Pakistan for their support and facilitation in this survey. We sincerely appreciate the efforts of all the collaborators and neurologists for collection of data for this survey voluntarily. We also pay special thanks to Mr. Obaidullah for developing software application. In addition the untiring efforts of survey Coordinators and supervisors are highly acknowledged. Last but not the least we would like to express our sincere thanks and gratitude to the Survey Coordinators, survey teams, and above all the patients who participated in the survey. Dr. Muhammad Wasay Professor Department of Neurology, Aga Khan University, Karachi ___________________________________________________________________________ Neurological Disorders Survey 2017-19 4 Contents ______________________________________________________________________________ Contents EXECUTIVE SUMMARY ............................................................................................................................. 7 1. INTRODUCTION ............................................................................................................................... 8 Objectives ............................................................................................................................................. 10 2. MATERIALS AND METHODS ........................................................................................................... 11 2.1 Ethical approval ........................................................................................................................... 11 2.1 Study area and population ........................................................................................................... 11 2.3 Inclusion and Exclusion criteria: ................................................................................................... 11 2.4 Sample Size .................................................................................................................................. 11 2.4.2 Sampling technique ............................................................................................................... 12 Convenient sampling technique was used to collect the data ......................................................... 12 2.4.3-Sample size distribution ........................................................................................................ 12 2.6 Data collection method ................................................................................................................ 12 2.7 Study Instrument ......................................................................................................................... 13 2.10 Data Analysis ............................................................................................................................. 13 RESULTS ................................................................................................................................................ 14 3.1 Demographic characteristics: ....................................................................................................... 14 3.1.1: Disability Scale: .................................................................................................................... 14 3.1.2 Neurological Disorders among Adults: ................................................................................... 15 In adults, most common neurological disorders are vascular disease (20%), headache disorders (18.6%), Epilepsies (12.5%), Nerve and root lesions (12.4%) and psychiatric disorders (10%). (Table 4) ................................................................................................................................................... 15 3.1.4 Neurological Disorders among children (pediatrics):.............................................................. 15 3.1.5 Diagnosis profile of adults in neurological disorders: ............................................................. 17 5. CONCLUSION ................................................................................................................................. 23 6. REFERENCES .................................................................................................................................. 24 7. APPENDIXES .................................................................................................................................. 25 Appendix I ......................................................................................................................................... 25 NDS Team Members ........................................................................... Error! Bookmark not defined. Appendix II ........................................................................................................................................ 28 Urdu Version of Consent Form ....................................................................................................... 29 Appendix III ....................................................................................................................................... 32 Questionnaire .................................................................................................................................... 32 ___________________________________________________________________________ Neurological Disorders Survey 2017-19 5 Contents ______________________________________________________________________________ Appendix IV ............................................................................................ Error! Bookmark not defined. Appendix VI ....................................................................................................................................... 35 Ethical Clearance ........................................................................................................................... 35 ___________________________________________________________________________ Neurological Disorders Survey 2017-19 6 Executive Summary ______________________________________________________________________________ EXECUTIVE SUMMARY The Neurological Disorders commonly cause severe public health challenges, disability and creating heavy burdens. As these NDs are not associated with higher mortality, therefore they are hardly studied in low-income contexts countries including Pakistan. Consequently very little is known about frequency, patterns and related contributing factors and experience of living with these disorders. Neurological disorders are one of greatest challenge to public health. There are several gaps in understanding many issues related to Neurological disorders but a little data at national level was available about burden of various NDs. The objective of the survey was to determine the frequency of main eleven Neurological Disorders NDs and their association with contributing factors. The WHO protocol for the detection of major neurological disorders will be used as the questionnaire. A face to face interview will be administered by trained neurologist by using pretested questionnaire. Nationally representative sample of approximately 36,994 patients was calculated. The survey was administered in 46 collaborative centers/clinics/hospitals in four provinces. Males and females of all ages was interviewed and examined. Information on neurological disorders was collected on software application installed in mobile phones of the neurologists. There were total of 46021 patients were enrolled in the survey. In adults, most common neurological disorders are vascular disease (20%), headache disorders (18.6%), Epilepsies
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