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Programme and Abstract Book Palliative Care and Universal Health Coverage 6th International African Palliative Care Conference 17-20 SEPTEMBER 2019 Kigali, RWANDA HOSTED BY African Palliative Care Association and the R e g l i in e r Ministry of Health of the Republic of Rwanda vi fe ng uf Pain and S Palliative Care and Universal Health Coverage Contents Welcome and message from the Conference Hosts 04 Welcome and Message from the Minister of Health of the Republic of Rwanda 04 Welcome and Message from the Executive Director of the African Palliative Care Association 05 Acknowledgements 06 Sponsors 06 Abstract reviewers 07 Conference organising committees 08 Conference programme 09 Pre-conference activities 09 Pre-conference sessions 09 Main Conference Programme 10 Wednesday 18th September 2019 10 Thursday 19th September 2019 15 Friday 20th September 2019 24 Snapshot sessions programme 28 Wednesday 18th September 2019 28 Thursday 19th September 2019 31 Social Programme 32 Map of Kigali Convention Centre 34 Plenary Speakers: Biographical Sketches 36 Oral Presentations 52 Workshops 100 3 6th International African Palliative Care Conference Hosted by African Palliative Care Association and the Ministry of Health of the Republic of Rwanda Welcome and Message from the Minister of Health of the Republic of Rwanda Dr Diane Gashumba Minister of Health Republic of Rwanda Dear Delegates, I warmly welcome you to Rwanda on behalf of the Government of Rwanda. As we gather for the 3rd African Ministers of Health Session on Palliative Care and the 6th International African Palliative Care Conference, the Ministry of Health of Rwanda and the African Palliative Care Association (APCA) warmly welcome you to Kigali Convention Centre and Rwanda, the country. The conference theme Palliative Care and Universal Health Coverage (UHC) comes at an opportune moment as countries across Africa are working on national UHC plans, policies and programmes. This conference will remind us of our shared obligation of ensuring that all people, especially the marginalised and most vulnerable members of our society have access to all essential health services, without being impoverished. It is at this conference that we will reflect on fulfilling the UHC principles of ‘leaving no one behind’, including those facing the adversity that comes with serious life-limiting and life-threatening illnesses. Our deliberations at this conference and the research evidence to be shared will enable most of the delegates to engage meaningfully with governments to include palliative care and all other essential health services – promotive, preventive, treatment and rehabilitation in national UHC plans and national health programmes. We therefore look forward to a very productive time at the conference and we hope every delegate will be empowered to play their rightful roles in the respective countries to make palliative care in UHC a reality, along with other essential health services. Murakoze cyane. Asanteni sana. Merci beaucoup. Thank you very much. 4 Palliative Care and Universal Health Coverage Welcome and Message from the Executive Director of the African Palliative Care Association Dr Emmanuel Luyirika Executive Director African Palliative Care Association Our dear Delegates, I warmly welcome you to the 3rd African Minister’s of Health Session on Palliative Care and the 6th International African Palliative Care Conference here in Kigali, Rwanda. I would like to thank the Government of the Republic of Rwanda for the collaboration and hosting these important events for Africa. The focus of this conference on “Palliative care and Universal Health Coverage” is very timely in Africa. Palliative care addresses the pain and suffering associated with serious chronic illnesses, throughout the disease trajectory from the point of diagnosis through end of life care, for those who succumb to these conditions. Each year, an estimated 40 million people are in need of palliative care and only about 14% currently receive it. Majority of those who need this service (78%) live in low- and middle-income countries. Although it is a key component and one of the essential health services defined in UHC, majority of adults and children who need this care do not access it in Africa. The lack of access to palliative care has significant impact on families, the health systems and economy. It affects population health and therefore productivity, resulting from disabilities and the care giving burden at the family and community level. This conference is organised to enable us share research evidence, best practices, challenges, solutions and innovations through which access to palliative care, and other essential health services can be improved. The management of serious chronic illnesses is very costly. Therefore, UHC is best placed to ensure that all those who need palliative care in Africa are able to access it without experiencing financial hardship. I hope that we will all leave this conference with renewed inspiration and better equipped to ensure that those with serious chronic illnesses are not left behind in country UHC policies, strategies and schemes. I wish you all a fruitful week of the conference. 5 6th International African Palliative Care Conference Hosted by African Palliative Care Association and the Ministry of Health of the Republic of Rwanda Acknowledgements We sincerely thank the many institutions and individuals whose support in the various forms has made this conference a reality. 6 Palliative Care and Universal Health Coverage Abstract reviewers Mr Andre Wagner, Board Chair, African Palliative Care Association Dr Christian Ntizimira, City Manager, City Cancer Challenge Foundation, Rwanda Ms Claire Morris, Worldwide Hospice and Palliative Care Alliance Ms Colette Cunningham, University College Cork, Ireland Ms Cyndy Searfoss, Global Partners in Care, USA Dr Joseph Oneill, Independent Consultant, USA Dr Egide Mpanumusingo, Partners in Health, Rwanda Mr Emmanuel Kamonyo, Health Rights Advocate, Canada Dr Emmanuel Luyirika, African Palliative Care Association Mrs Eunice Garanganga, Hospice and Palliative Care Association of Zimbabwe Ms Eve Namisango, African Palliative Care Association Dr Faraja Kiwanga, Ocean Road Cancer Institute, Tanzania Dr Francois Alinon, Ministry of Health and Social Protection, Togo Dr Hellen N. Kariuki, University of Nairobi, Kenya Mrs Immaculate Kambiya, Ministry of Health, Malawi Mrs Joan Marston, PALCHASE, South Africa Mr John Mastrojohn, Global Partners in Care Advisory Council, USA Mrs Josephine Kampi Tatyabala, African Palliative Care Association Prof Julia Downing, International Children’s Palliative Care Network Mrs Lacey Ahern, Global Partners in Care, USA Mr Lameck Thambo, Palliative Care Association of Malawi Dr Elizabeth Namukwaya, Makarere Palliative Care Unit, Uganda Ms Mackuline Atieno, African Palliative Care Association Ms Mary Callaway, Public Health Policy Consultant, USA Dr Mawuli Gyakobo, Ghana College of Physicians & Surgeons Dr Mhoira Leng, Makerere Palliative Care Unit, Uganda Mwihaki Loise Ng’ang’a, Partners in Health, Rwanda Prof Olaitan Soyannwo, Consultant Anaesthetist, Pain and Palliative Care/Centre for PC Nigeria Dr Paul Mmbando, Evangelical Lutheran Church of Tanzania, Arusha Dr Peter May, University of Dublin, School of Medicine, Ireland Placide Habinshuti, Rwanda Partners in Health, Rwanda Mr Richard Anthony Powell, APCRN/MWAPO, Kenya Ms Rose Gahire, Palliative Care Association of Rwanda Dr Zipporah Ali, Kenya Hospices and Palliative Care Association Ms Zodwa Sithole, Hospice Palliative Care Association of South Africa *Abstract reviewers and conference organising committees are hereby listed alphabetically, according to first name 7 6th International African Palliative Care Conference Hosted by African Palliative Care Association and the Ministry of Health of the Republic of Rwanda Conference organising committees SCIENTIFIC COMMITTEE Ms Fatia Kiyange, African Palliative Care Association (Committee Chair) Prof Liz Gwyther, Hospice Palliative Care Association of South Africa and Worldwide Hospice Palliative Care Alliance (Committee Co-chair) Dr Zipporah Ali, Kenya Hospices and Palliative Care Association Claire Morris, Worldwide Hospice Palliative Care Alliance Ms Mackuline Atieno, African Palliative Care Association Prof Julia Downing, International Children’s Palliative Care Network Dr Jose Pereira, Board Member, African Palliative Care Association Prof Olaitan Soyannwo, Nigeria Mrs Lacey Ahern, Global Partners in Care, USA Ms Mwihaki Loise Ng’ang’a, Partners in Health, Rwanda Ms Plaside Habinshuti, Rwanda Partners in Health, Rwanda Mrs Diane Mukasahaha, Rwanda Biomedical Center, Rwanda FUNDRAISING COMMITTEE Dr Emmanuel Luyirika, African Palliative Care Association (Committee Chair) Dr Stephen Connor, Worldwide Hospice Palliative Care Alliance Fr Richard Bauer, Maryknoll Fathers and Brothers Mr James Wells, EMMS International, Scotland Dr Joseph F O’Neil, Independent Consultant, USA Dr Jose Pereira, Board Member, African Palliative Care Association COMMUNICATIONS & PUBLICITY COMMITTEE Ms Wedzerai Chiyoka, African Palliative Care Association (Committee Chair) Mr Francis Kayondo, African Palliative Care Association Mr Gaspard Habarurema, Ministry of Health Rwanda Ms Irene Namwase, African Palliative Care Association Ms Shelley Enarson, African Palliative Care Association Ms Cyndy Searfoss, Global Partners in Care, USA FINANCE AND LOGISTICS COMMITTEE Ms Josephine Kampi, African Palliative Care Association (Committee
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