REFRESHING THE Patient, Public and CANADIAN STRATEGY Stakeholder Engagement FOR CANCER CONTROL Summary Report TABLE OF CONTENTS

3 Overview

4 Approach to Pan-Canadian Engagement

7 Engagement Findings by Group

1. The Public

2. Health System Stakeholders

3. , Inuit and Métis

15 Developing the Refreshed Strategy

16 Our Journey. Together.

17 Appendix A: List of Contributors and Participants

25 Appendix B: First Nations, Inuit and Métis Meeting Details and Principles of Engagement

26 Appendix C: Public Engagement Event Details Overview

The Canadian Partnership Against Cancer (the Partnership) led an ambitious renewal process in its role as steward of the Strategy to address challenges and to leverage new opportunities for the benefi t of all Canadians. The focus was to identify areas where a pan-Canadian approach has the potential to improve cancer outcomes over the next decade.

To inform our efforts, the Partnership went across An External Advisory Committee was assembled to the country to hear from Canadians about how cancer guide engagement and development of the refreshed affects their daily lives and what they want from their Strategy. This group was comprised of clinical experts, cancer strategy. A large and diverse group of more than patient and family advisors and representatives from 7,500 Canadians provided input. First Nations, Inuit and other health sectors, including public policy, primary care, Métis governments, organizations and individuals were research and technology. There was representation from also engaged to ensure Peoples-specifi c priorities are provincial ministries of health, provincial cancer agencies refl ected in the Strategy. and programs, and from the Canadian Association of Provincial Cancer Agencies. A robust analytic approach guided how engagement input and fi ndings were synthesized and considered, as well as fi ndings from the review of provincial and territorial cancer plans, best practices and learnings from the past 10 years of implementing the Strategy.

Presented by the Canadian Partnership Against Cancer 3 Approach to Pan-Canadian Engagement

The engagement process invited input from a large and First Nations, Inuit and Métis governments, organizations diverse group of Canadians, including health system and communities were engaged using a parallel process stakeholders, from across the country. Participants to ensure separate and Peoples-specific priorities and provided input through an online survey, in-person challenges were understood and reflected in the Strategy. sessions and written submissions.

HEALTH SYSTEM FIRST NATIONS, PUBLIC STAKEHOLDERS INUIT AND MÉTIS

Document review of previous In-person and virtual events engagement with First Nations, Choicebook™ Online Survey with cancer experts, research Inuit and Métis governments, and health-care leaders organizations and communities

In-person discussions Dialogue sessions Written submissions with First Nations, Inuit with underserviced from organizations and Métis governments, communities organizations and communities

Provincial and Dialogue with First Nations, General public territorial ministries Inuit and Métis Advisors pop-up sessions of health roundtables and Elders

4 Strategy Engagement Summary Report Approach to Pan-Canadian Engagement

THE PUBLIC Dialogue sessions: In partnership with community organizations, 15 dialogue sessions took place Participants in the public engagement process across to connect with individuals who are included patients and caregivers, the general public, underserviced by the health system. (see Appendix C health and cancer community leaders, and people for list of engagement events). who are underserviced by the health system, such Public “pop-up” events: People were invited to public as recent immigrants, people who identify as LGBTQ2,a events to learn more about the Strategy and share ideas minority language communities and rural, remote about how to improve cancer care. A total of 640 people and northern residents. participated in one of a dozen events held in accessible They were able to participate in numerous ways: civic spaces across Canada. (see Appendix C for a list of pop-up locations and dates). Choicebook™ Online Survey is a deliberative online engagement tool in which participants learned about the HEALTH SYSTEM STAKEHOLDERS central issues in cancer control before providing their input on a refreshed Strategy. Participants were asked A broad range of health system stakeholders, including to make choices about where scarce resources should health system leaders and administrators, researchers, be invested to have the biggest impact on cancer control patient and family advisors, clinical experts and policy – the same difficult choices that face health system specialists were engaged. The goal was to identify managers and decision-makers. In total, 6,494 people opportunities and challenges and to gather input to provided input through Choicebook™. shape the Strategy’s priorities.

In-person and virtual events with system leaders SNAPSHOT OF CHOICEBOOK™ RESPONDENTS and representatives: In total 26 events were conducted across the country with system stakeholders and experts The majority (75%) were female, 22% were male and the remainder were either non-binary or did in many cancer-related domains, including prevention, not respond. The response pattern is typical of screening, research, and palliative and end-of-life care. national public consultations on health or social policy issues. There was a focused effort to engage health-care organizations and experts beyond cancer to identify Half were aged 55 and over (26% aged 55-64, solutions to existing and emerging challenges. Events 24% aged 65+), 15% were 35-44 years old and took place with primary care providers, chronic disease 16 % under 35. organizations, private extended health benefit insurers, employee assistance programs, and the pharmaceutical Participants came from across Canada: majority and technology sectors. from (37%), then (18%), (14%) and (11%). This aligns with population distribution across Canada. #30MinutesThatMatter

Participants were asked to identify their Canadians were invited to participate in Choicebook™ perspective on cancer control. Most (51%) through the #30MinutesThatMatter media and identified as a family member of someone social media campaign. affected by cancer. Others identified as a cancer survivor (18%), a caregiver (15%), a patient with cancer (14%). Nearly 20% indicated no first- hand experience of cancer.

a LGBTQ2 refers to people who identify as lesbian, gay, bisexual, transgender, queer or two-spirited.

Presented by the Canadian Partnership Against Cancer 5 Approach to Pan-Canadian Engagement

Written submissions: Organizations were invited to FIRST NATIONS, INUIT AND MÉTIS provide a formal written submission responding to a series of questions from the discussion paper developed The Partnership engaged with First Nations, Inuit and to support the engagement and consultation process. Métis governments, organizations and communities to Twenty-four submissions were received from national, document Peoples-specific priorities and challenges. provincial and local health organizations. (See Appendix Gatherings were held to seek input into how the A for details. The discussion paper is available at Partnership should continue to engage with First Nations, cancerstrategy.ca.) Inuit and Métis for the refresh of the Strategy, as well Provincial and territorial roundtables: Representatives as to seek input into the refreshed Strategy itself. from provincial and territorial ministries of health A document review of reports from previous engagement convened to support the development of the refreshed efforts and jurisdictional Indigenous cancer strategies Strategy and ensure jurisdictional health priorities were was also conducted. reflected. Engagement sessions with each province and territory were conducted, as well as a series of Engagement was guided by a set of principles developed pan-Canadian discussions. in collaboration with First Nations, Inuit and Métis Elders, advisors and partners (see Appendix B for details).

6 Strategy Engagement Summary Report “The earlier screening can take Engagement place, the better the outcome if cancer can be caught in the Findings early stages.” by Group CHOICEBOOK™ RESPONDENT

Findings gathered across all engagements are presented scarce health-care resources on cancer prevention. in one of three groups: Treatment and diagnosis were also ranked as high priorities for action, while palliative care, end-of-life • The public: cancer patients, people living with cancer, care and survivorship ranked as lower priorities. family members, caregivers, underserviced Canadians and members of the general public. Importance of focusing on the patient experience: Over 90% of all Choicebook™ respondents, even those • Health system stakeholders: cancer control experts without a connection to cancer, said it was important including provincial and territorial cancer agencies, to focus on improving the patient experience as part clinicians, policy specialists, patient and family of a refreshed Strategy. When asked about patient advisors, researchers, cancer and broader health experiences at the time of a cancer diagnosis, participants system stakeholder organizations. said it was most important to provide faster test • First Nations, Inuit and Métis governments, results to patients and their families, followed by better organizations and individuals across Canada. communication between health workers and patients.

During cancer treatment, participants said it was most 1. FINDINGS: THE PUBLIC important for doctors to spend time with patients to explain all treatment options, so patients could make the Support for a pan-Canadian cancer control strategy: best, most informed choices. Nearly 95% of Choicebook™ respondents said they support the existence of a pan-Canadian cancer strategy. Participants identifi ed other ways to improve the When asked to explain why, the most frequent reason patient experience, such as helping patients navigate cited was to “improve effi ciency when we pool our the health system, and better support for patients and efforts.” This was followed by “to help decide what is more caregivers who need to take time off work, which results important in cancer care and needs more effort” and “to in loss of income. Better scheduling of appointments to make sure we have common and publicly accountable accommodate patients’ personal lives was also identifi ed, goals across the country.” and ensuring patients receive information about their cancer and available resources. Priorities in cancer care: Participants were asked to identify their priorities for investment across the cancer care continuum of prevention, screening and early “In my personal experience [clinical] patient care detection, diagnosis and treatment, survivorship, was wonderful. What I didn’t see was a lot of end-of-life and palliative care. emotional support or reassurance for patient or caregiver.” Prevention and screening were identifi ed as high priorities. There was a clear desire to prevent people CHOICEBOOK™ RESPONDENT from developing cancer, or at least to catch it early enough to improve the outcome. Some participants also suggested it would be better value-for-money to spend

Presented by the Canadian Partnership Against Cancer 7 Engagement Findings by Group

The Public (continued)

Measuring success: When it comes to understanding 2. FINDINGS: HEALTH SYSTEM STAKEHOLDERS the impact of the Strategy and measuring success, most participants said governments should look at a reduction Benefi ts of a pan-Canadian cancer control strategy: in mortality rates and the rate of diagnosis. Rather Participants identifi ed a number of benefi ts of the than expecting breakthrough “cures” for cancer, they Strategy. For some, the principal benefi t is that it provides recognized that longer-term impact will be the result of focus and is a rallying point for the cancer control gradual improvements, such as better prevention, earlier community. For others, it fosters and creates synergy so diagnoses, newer more effective treatments and reduced that jurisdictions can make greater and faster progress by wait times. working in partnership (e.g., sharing best practices and developing economies of scale). Learning from underserviced people experiencing barriers to care: Participants in the dialogue sessions Another benefi t cited frequently was that the Strategy reported experiencing barriers to accessing care and promotes and facilitates greater standardization, suggested that all Canadians pay when the system fails to integration and consistency in care. An example meet the needs of everyone. Many noted that the result raised was the creation of shared datasets for use in of a lack of outreach and barriers to accessing prevention evaluation and decision-making. A perspective shared support is that more people develop cancer and often by participants across all groups was that the Strategy have it diagnosed at a later stage. should encourage the reduction of inequities in cancer care by focusing on collective efforts to address Financial barriers to accessing care, such as paying barriers to access. for expensive medications or the need to travel to appointments, were also mentioned as having an impact There was broad agreement that the Strategy should on people accessing care. Reducing these and other focus activity on a small number of priorities, carefully barriers to care was seen as a fundamental issue of selected to offer the greatest chance of system fairness and a key priority area. improvement.

However, participants were optimistic and hopeful about the Strategy’s potential to have a positive impact. They felt “The challenges ahead of us are so formidable, strongly that it needs to specifi cally “call out” inequities working nationally is essential.” in the cancer system and raise awareness about their PROVINCIAL CANCER AGENCY LEADER impact and importance. Participants advocated for pan- Canadian standards around access, learning from best practices and greater use of telemedicine to provide more accessible care in rural and remote locations, such as Canada’s North.

“In the North the high rates of smoking and tobacco [use] has to do with trauma and it is so prevalent in our communities. We need to do more.” “…in my experience when there is a

COMMUNITY DIALOGUE PARTICIPANT possibility of cancer, not being able to get answers is frightening and challenging.”

CHOICEBOOK™ RESPONDENT “We are paying a price for inequities.”

COMMUNITY DIALOGUE PARTICIPANT

8 Strategy Engagement Summary Report Engagement Findings by Group

Health System Stakeholders (continued)

Measuring impact: There was widespread recognition Focus on the patient experience: Participants called among participants that the potential impact of the for greater focus on improving the quality of patients’ Strategy may only be realized over the long term, given experience. One opportunity for system change was the complexity of system level change and its connection through better integration of cancer care and primary to changes in health outcomes. care. An example is chemotherapy being administered by a family physician or nurse practitioner in or close to There were several measurable objectives identifi ed that a patient’s community. Others suggested that the system would be markers of the impact of the Strategy. These needs to develop a more holistic approach to care; one include: lower incidence of cancer; increased cancer that is focused on the patient, not provider, and provides survivorship; improved quality of life; reductions in health wrap-around services, including mental health supports. outcome gaps between Indigenous Canadians, other underserviced populations and the general public; and It was also suggested that as more people live with cancer greater effi ciency and quality in care, with reduced costs. we need greater integration in the health system. Instead of a patient’s follow-up being provided at a cancer centre, But, some participants questioned whether it would be it should be provided by their family doctor or primary possible to make signifi cant progress on these or other care provider. Delivering follow-up care closer to home longer-term outcomes within the Strategy’s 10-year also needs to be considered, using technologies like timeframe. It was recommended to identify specifi c ways telemedicine and promoting new models of care that in which impact can be measured over the medium-term better integrate primary care with specialists in holistic (within 10 years) including: care partnerships. • Higher levels of engagement, cohesion and integration across the cancer system and community (e.g. provinces, “Who is going to pay for this? Sexy, emerging territories, partners) and less duplication of services; technology and the latest drugs may take • Improved treatment and patient experience, with the focus away from the patient-centred a more seamless and integrated journey for patients; perspective.”

• More effective strategies to support key prevention PATIENT ADVOCACY GROUP PARTICIPANT indicators (e.g. healthier eating/lowering of obesity rates, reduction in smoking rates and alcohol consumption, higher levels of exercise, etc.).

• Improved access and more effective use of data and evidence, including better linkages between multiple health data sources, surveillance systems, administrative data, partnerships and socio-economic data.

“How do we ensure provincial cancer care systems are ready to address increasing health needs and demands - including timely access to treatments - given the growing and aging Canadian population, increased cancer incidence and the availability of new treatments?”

MERCK CANADA

Presented by the Canadian Partnership Against Cancer 9 Engagement Findings by Group

Health System Stakeholders (continued)

Work together to manage system costs and both the patient experience and address staff shortages sustainability: Participants noted that as people age, in cancer control. Some participants also suggested that more will be diagnosed with cancer, and with treatment greater use of telehealth or virtual care is another way to advances more patients are surviving cancer over the cope with health human resourcing pressures, especially medium and long-term. Both place greater pressures on in rural and remote areas. This would also help address the cancer system and other parts of the health and social barriers to patients accessing care across provincial and systems. Some suggested that health-care spending is too territorial boundaries. Many expressed concern about high, and new and expensive technologies will continue to shortages of health-care workers now and in the future drive costs. Instead of individual, jurisdiction-specific leading to burnout, and the ongoing impact to wait times approaches related to how and when new treatments will and accessing to care. be used, a pan-Canadian strategy can drive a more efficient approach to ensuring new treatments deliver “There’s a need to find new and more efficient high-value to patients and the system. Participants also ways of delivering care; it’s not about just adding called for low-value tests and treatments to be reduced more doctors and nurses.” or discontinued. PROVINCIAL CANCER AGENCY LEADER Cancer system targets and benchmarks: Participants suggested it would be helpful for the Strategy to provide a common, pan-Canadian set of targets and indicators for Address inequities in the cancer system: Many system performance and recommended these be tracked said the Strategy needs to call for better service to by provincial and territorial governments, with progress sparsely populated areas in rural and remote locations, reported publicly. But some participants suggested that and needs to address barriers faced by populations targets would be most useful if they could reflect the who continue to have poorer access to health-care realities of different jurisdictions. services and experience worse outcomes. Provincial and territorial leaders emphasized the impact this has across Focus on prevention and screening: Participants all jurisdictions. Numerous participants called for the expressed differing views about the role of prevention in a Strategy to prioritize underserviced populations, including cancer control strategy. Some felt strongly that prevention Indigenous peoples. should be an area of focus for pan-Canadian action. They suggested that there is still a lot of work to be done in to reduce cancer rates, including addressing “Equitable [cancer] care starts with equitable smoking, alcohol consumption and obesity. Others advised access to primary care.” going even further, taking a social determinants of health PRIMARY CARE PROJECT PARTNER approach and addressing the underlying causes of cancer including environmental health and poverty. On the other Participants suggested that hand, some questioned whether upstream causes and Fostering innovation: the refreshed Strategy needs to prioritize innovation broader social issues were within the Strategy’s scope and in cancer control at all levels. Several participants saw its ability to effect change over the next 10 years. opportunities for both “breakthrough” and “frugal” innovation to contribute to better health outcomes and “The biggest cancer control challenges Canada system sustainability. They suggested that the Strategy will face over the next 10 years include increased could facilitate collaboration to “pick the low hanging cancer diagnoses and comorbidities due to an fruit” of frugal innovation, by sharing and implementing aging population.” relatively low-cost and proven innovations from across the cancer control and broader health-care systems. ONTARIO INSTITUTE FOR CANCER RESEARCH Participants also felt that the Strategy should enable wise choices about which “breakthrough” innovations Improve health human resources planning: are pursued. There was also a call for the Strategy to do Participants suggested that there is a need to think more to encourage experimentation, going beyond pilot differently about health human resource planning. They projects to disruptive, new approaches that could be called for making more effective use of other health-care easily adopted more broadly without getting weighed professionals, such as nurse practitioners, to improve down by bureaucracy.

10 Strategy Engagement Summary Report Engagement Findings by Group

“How do we keep ourselves on the front 3. FINDINGS: FIRST NATIONS, INUIT AND MÉTIS wave of innovation?” First Nations, Inuit and Métis who participated in Strategy TECHNOLOGY LEADER refresh engagement sessions identifi ed a number of opportunities and challenges. While common themes Facilitating better data sharing and evidence- emerged, it is important to note that there are also based decision-making: Improved sharing and signifi cant differences among and between First Nations use of data on health system performance will allow communities, Inuit communities and Métis communities. decision-makers to identify higher and lower-value There are also signifi cant differences in the needs and activities and focus efforts on those that yield the wishes of First Nations, Inuit and Métis individuals. most cost-effective results. This is vital to system sustainability. Provincial and territorial leaders First Nations highlighted the need to identify cross-jurisdictional • Participants shared the importance of receiving collaboration to improve data sharing. wholistic,b culturally appropriate cancer care throughout their journey, including supports that “Many existing data sources that could be recognize the impact of trauma on health. They applied in prevention efforts are underused identifi ed this would require improved access to for various reasons. Data collection should traditional supports and traditional practitioners. be prioritized and protected, and decisions • Participants recognized that eliminating racism requires regarding data collection should be informed system-wide efforts. They recommended training by a robust, national surveillance plan.” health-care providers in cross-cultural understanding, OCCUPATIONAL CANCER RESEARCH CENTRE cultural safety and to improve understanding of traditional supports.

• Many cited geographic barriers facing First Nations people who live in rural or remote areas of Canada, which results in signifi cant inequities in the availability of and access to cancer care services.

• Participants reinforced the need for more services closer to home and the need to improve the journey for those who do have to travel to care.

• Participants highlighted that many First Nations communities do not have access to basic health “More and better care is needed supports such as healthy food, clean water, up-to-date for people who are underserved medical equipment and infrastructure. by the health system. It also needs • Timely diagnosis was identifi ed as a key issue, with to be culturally appropriate.” many participants sharing stories of patients who waited months or even years to receive a cancer PATIENT AND FAMILY ADVISOR diagnosis. Also identifi ed was improved access for interpretation services, traditional supports, primary care, screening, pain management, palliative care and survivorship.

• Lack of understanding of cancer and the cancer journey was identifi ed as a barrier to accessing care for many First Nations. Education was recommended regarding the entire cancer continuum with a focus on prevention and healthy living, the cancer journey and available services.

b This spelling of wholistic is preferred by many First Nations, Inuit and Métis. It better represents the idea of the whole person. Presented by the Canadian Partnership Against Cancer 11 Engagement Findings by Group

• Participants stated that programs and services should Inuit be First Nations-determined, designed and delivered; • Participants discussed signifi cant inequities with doing this requires investment in communities and in respect to access to care for many Inuit, emphasizing First Nations health-care providers. the need for improved access to primary care, pain • Participants recommended that investments be made management, palliative care and more services closer in building culturally appropriate, quality care through to home. improved communication, navigation and coordination • Telehealth was discussed as a mechanism for reducing across the system, and for efforts to reduce the need for patients to travel, which would require jurisdictional barriers. improved bandwidth to allow for the transmission of • It was recommended that more First Nations-specifi c health-related data. data be collected to improve understanding of trends • For those who must travel to access care and services, and disparities in accessing cancer care and poorer participants recommended that travel policies be cancer outcomes. It was emphasized that it is essential improved to broaden eligibility for escorts, provide that this be done in partnership with First Nations wholistic supports to patients and escorts throughout through First Nations research principles, protocols the journey and reduce the economic burden of travel and ethical processes. on patients and families.

• It was noted that there is a particular need for improved policies to support children who must travel to access care, including lodging for children and their families, support and accommodation for childcare for siblings and access to schooling while away.

• Participants stated that there are inequities between individuals, communities and regions with respect to access to various Non-Insured Health Benefi ts (NIHB) programs and services.

• Also discussed are inequities in access to health-care providers, particularly primary care providers with many Inuit communities only having access to locum primary care providers. This has a signifi cant negative impact on wait times for diagnosis.

Wholistic understandings of health and wellness vary among and between First Nations communities, but often include access to traditional foods and ceremonies, connection to the land and protection of the environment. These are important supports to health and wellness.

12 Strategy Engagement Summary Report Engagement Findings by Group

Métis

• Participants prioritized the need for Métis patients and families to have equitable access to funding and resources, improved access to timely diagnosis, reduced fi nancial burden throughout the cancer Almost 75% of Inuit live in Inuit journey and improved travel policies. Nunangat, the Inuit homeland, and • Many Métis communities require improved access must travel for several days to access to basic health supports including healthy food, cancer services. clean water, transportation, medication housing and health education.

• Participants shared the importance of receiving Métis- defi ned wholistic supports throughout the cancer journey, including psychosocial supports, traditional supports and care that is responsive to the impact of trauma on health. • Many Inuit communities lack access to basic health supports including affordable healthy food, adequate • Education programs are also needed to improve housing and health education. Education programs for understanding of the cancer journey, including prevention. patients regarding how to decrease personal cancer • Training was recommended for health-care providers in risk, cancer as a disease and available cancer services Métis-defi ned cultural safety, about Métis history and are needed. context and about how to work alongside traditional • For participants, the provision of wholistic, culturally practitioners as part of efforts to eliminate racism appropriate care was also a priority. This included within the cancer care system. recognition that language and traditional foods are • Participants shared that Métis patients are often important components of health and wellness for offered pan-Indigenous or First Nations services, many Inuit. and rarely Métis-designed services. Suffi cient and • Many participants discussed the impact of trauma sustainable funding to Métis governments and on health, and they recommended recognition of this communities was recommended in order to support within the cancer system. implementation of Métis-designed and delivered programs and services throughout the entire cancer • Training for health-care providers about Inuit journey, including Métis-specifi c navigation services. community realities, as well as culturally appropriate communication, language and terminology was • To reduce system navigation challenges faced by recommended as an important step towards the many Métis, particularly when accessing care across elimination of racism. jurisdictional boundaries, participants recommended implementing fl exible, person-centred policies, • Participants recommended investments in Inuit clarifying jurisdiction and responsibility, and improving communities and Inuit health-care providers to support and facilitating intergovernmental dialogue and delivery of Inuit-designed and driven cancer programs relationships with Métis governments. and services. They shared that family and community members deliver most of the care in communities, • Also recommended are supports to engagement and including interpretation and navigation services, and stronger relationships between the cancer care system need improved training and support, and recognition of and Métis governments and communities to facilitate the costs associated with community-provided care. the design and delivery of Métis-determined programs and services. • Participants also recommended collection and reporting of Inuit-specifi c data to better understand • Participants identifi ed the need to collect Métis- access to cancer care and cancer outcomes as well specifi c data to understand cancer trends, disparities as research regarding the impact of environmental in access to care and lived experiences and for the contamination on Inuit health. creation of safe spaces for self-identifi cation.

Presented by the Canadian Partnership Against Cancer 13 Engagement Findings by Group

• The development of Métis-determined indicators and outcomes was also recommended, to allow for meaningful measurement of results and improved Unlike Status First Nations accountability. and eligible Inuit, Métis • Participants recommended the need for investments are not eligible for NIHB to support Métis research capacity, including funding programs. opportunities that are accessible and responsive to Métis organizations. Potential causes of cancer among Métis communities was identifi ed as an important area requiring research.

THREE PRIORITIES

Through the engagement process, three priorities were identifi ed by First Nations, Inuit and Métis:

1. Culturally appropriate care closer to home

2. Peoples-specifi c, self-determined cancer care

3. First Nations-, Inuit- or Métis-governed research and data systems

For each of these priorities, Peoples-specifi c actions were identifi ed that will help drive needed changes in outcome and experience for all First Nations, Inuit and Métis. These are outlined in the Canadian Strategy for Cancer Control 2019 to 2029.

14 Strategy Engagement Summary Report Developing the Refreshed Strategy

The Partnership made a commitment to participants This process identified five priority areas for 2019 to 2029: that their feedback was an important input to developing 1. Decrease the risk of people getting cancer. a refreshed Strategy. All input has been considered, along with clinical evidence, information on best practices 2. Diagnose cancer faster, accurately and in Canada and internationally, and the insights of at an earlier stage. experts with vast experience working in cancer control 3. Deliver high-quality care in a sustainable, across Canada. world class system. Analysis of these streams of input helped to identify 4. Eliminate barriers to people getting the care they need. gaps and opportunities for improvement in the cancer system that should be considered in the refreshed 5. Deliver information and supports for people living Strategy. The following criteria were used to identify with cancer, families and caregivers. key priorities for 2019 to 2029. Priorities need to: For each priority, specific evidence-based and • Address a significant need of people in Canada, measurable actions were identified. Proposed priorities across jurisdictions. and actions were then rigorously reviewed, validated and refined in an iterative process that included input • Require a coordinated, pan-Canadian collaboration from provincial and territorial ministry of health leaders to achieve impact. and representatives, provincial cancer agencies and • Align to the input received through the programs, First Nations, Inuit and Métis advisors and engagement process. guidance of an External Advisory Committee.

• Leverage existing areas of Canadian excellence, As noted, Peoples-specific plans were developed research and evidence. with First Nations, Inuit and Métis and represent a core part of the refreshed Strategy. • Have potential to show measurable results within a 10-year timeframe.

Presented by the Canadian Partnership Against Cancer 15 Our Journey. Together.

The Partnership wishes to thank each of the 7,500 Canadians who contributed to the refresh of the Canadian Strategy for Cancer Control. Your stories, perspectives and ideas about how cancer care and cancer control can be improved to create better outcomes and experiences for Canadians form the foundation of the Strategy.

We look forward to continuing to engage Canadians as the Strategy moves into implementation.

Thank you for joining the Partnership on this journey.

16 Strategy Engagement Summary Report Appendix A

LIST OF CONTRIBUTORS AND PARTICIPANTS

The Partnership went across the country to hear from Canadians about how cancer affects their daily lives and what they want from the Strategy. More than 7,500 people provided input. The following list reflects those who consented to be named in the Strategy refresh effort.

Melissa Aalhus Angelica Aranda Patricia Barrett-Robillard Donna Bentley Marie Blodgett Mohamed Abdi Kavitha Ariyathram Minka Bartels Josie Bento Joe Blomeley Ruth Ackerman Cassandra Armishaw K H Barton Bev Berg Arlene Boily Susan Ackroyd Daphne Armstrong Doris Barwich Anne Bergen Denise Boisvert Marti Acton David Armstrong Nathalie Baudais Johanna Bergen Rhoda Bolton Cheryl Adams Angel Arnaout Kimberly Bauer Kristin Bergen Camille Bond Paul Adams Usman Aslam Elisabeth Baugh Judy Berger Elise Bonder Robert Ah Yong Kelly Asselin Andrea Baumgartner Al Bering Tamara Booker Jasmine Ahmedbentley Laura Atkins Sharon Baxter Hillegond (Connie) Bering Andrea Booth Betty Anne Ahrens Robert Atkins Ginette Bazin Frances Bernard Stephen Borcsok Fran Aitkens Kris Atterbury Susan Bazylewski Bob Bernhardt Barb Borland Abiola Akindele Laura Atwood Maura Beaton Jill Bernhart Lynda Bouchard Khadija Al-Alawi Gail Aubé Sue Beattie Serenna Besserer Serge Bouchard Joan Albert Kris Aubrey-Bassler Suzanne Beaty Drew Bethune Jacques Boucher Michelle Alexander Lida Austin Amanda Beaubien Melody Bezaire Roger Boucher Leeyann Allan Nancy Austin Lucille Beaudet Aamir Bharmal Diane Boudreau Ducharme Pauline Allard Roberta Auston Claire Beaulieu Rashaad Bhyat Gwen Bourgette Debora Allatt Salome Avva Hilda Beauregard Debbie Bianco Lisa Bourne Keri Alletson Philip Awadalla Nicole Beben Lea Bill Cristina Bowen Costanza Allevato Leslie Ayre-Jaschke Julia Beck Marcel Billard Alison Bowery Attila Almos K B Carolann Beeby Julien Billot Andrew Bowles Rose-Moraine Alphonse Marina Bailey Christine Beevis Trickett Michael Binder Barry Bowman Roy Alvarez Nicolette Baines Debra Begin Keith Binette Georgina Bown Riaz Alvi Eveline Baker Bibiane Bélanger Dr. Patricia Biondo Susan Boyko Nina Ambros Gary Baksi Brett Belchetz Louise Bird Anne Boyle Kris Andersen Kezia Bales Lindsay Belford Murray Bird Lenora Brace Carolann Anderson Brooke Ballance Cindy Bell Judy Birdsell Kelsey Bradburn Georgina Anderson Emma Bardon Jennifer Bell Jennifer Black Andi Brandsma-Kennedy Leanne Anderson Florence Barnaby Karin Bell Lesley Black Judy Bray Peggy Anderson Karen Barnstable Rosalind Bell Maureen Blacker Joanne Brazeau Enara Anselmo Sharon Barraclough Wendy Bell Bill Blackwater Brianne Bremner Scott Antle Marilyn Barrett Wendy Bennett Sebastien Blais Beverley Brennan Marianne Arab Jennifer Barrette Jean Claude Benoit Dayna Bland Carleen Brenneis

Presented by the Canadian Partnership Against Cancer 17 Appendix A: List of Contributors and Participants

Beverley Brewer Luciana Camplese Alain Choquette Roxanne Coutu Teresa Defrenza Jeanne Brewster (Giannascoli) Louise Choquette Esabelle Cox Cindy Degenhardt Jodi Bridge Émilie Caouette Linda Chouinard Keri Craig Donna Del Sesto James Bright Chanah Aviva Caplan Ina Christensen Pamela Crane Marla Delaney Clint Brisbois Mel Cappe Janet Christianson-Watt Lori Crews Julie Deleemans Jeanne Brisebois Kim Capson Dorothy Chung Connie Crick Shelly Delmaire Judith Britten Donna Carbell Margaret Churcher Doug Crofts Nicole Delory Kerri Brock Sylvie Cardinal Isabelle Chvatal Sonja Crosby Chris Delvecchio Kathy Brodeur-Robb Jennifer Carey Bruce Clark Heather Cumming Angela Demit Jil Brody Beverley Carle Ewan Clark Carla Cummings Sharon Dennis Laurine Bromley Katharine Carr Weiss Gail Clark Robert Cummings Barb Derick Kathy Brooks Leo Carrier Leanne Clarke Rob Cunningham Louise Deschenes Jim Brophy Marie-Soleil Carrier Warren Clarmont Jim Cupples Sonia Deschênes Sandra Broughton Louise Carriere Pierre Claveri Jane Curren Karine Desgroseilliers Roxane Brouzes Diane Carroll Patricia Claxton Heather Curtis Aliesha Desjarlais Alison Brown Irene Carroll Jeff Claydon Judith Curtis Emilie Desmarais Debbie Brown Genie Carson Cathy Clelland Lena Cuthbertson Meg Desmond Erika Brown Kimberly Carson Lorna Clement Rita Cutknife Johanne Desrchers Hendrika Brown Darlene Carter Nancy Clifford Geoff Cuvelier Valerie Deveaux Ingrid Brown Barbara Cassidy Gillian Clinton Nancy Cymbalisty Paula Devison Virginia Brown Tammy Cawse Michel Cloutier Annette Cyr Michael Dew Janice Brulotte Santrina Cerquozzi Adrienne Co-Dyre Stacey Cyr Linda Diamond Michael Brundage Jen Chalklin Carolyn Coey Judy Dallin Maru Diaz Heather Bryant Jennifer Chamberlin Trish Coggan Corinne Daly Darren Dick Vikram Bubber Victoria Chambers Audrey Cogswell Cynthia Dangelo Naomi Diestelkamp Annie Buchan Philip Champion Elana Cohen Pat D’Angelo Wendy Digout Jordana Buchan Gertrude Chan Margaret Colbourne Jeannette Danks Danielle Dionne Maureen Buchanan Heather Chappell Andrew (Andy) Coldman Michele Darling Catherine Dixon Robert Buchanan Genevieve Chaput Jake Cole Marie-Thérèse Darveau Bojana Djordjevic Tina Buckle Helene Charette Shelley Colebourne Geetanjali (Toby) Datta Janice Dobson Don Buie Jill Charlie Andrew Combes Line David Roslyn Doctorow Sonia Buksa Angelika Charpontier Annette Comeau Harold Davidson Beth Doerksen Deborah Bulych Danick Chartrand Susan Connolly Kathleen Davidson Joanne Donahoe Maigen Bundy Claudette Chase Tricia Conroy Sarah Davidson Judy Donovan Whitty Chantal Burnett Heather Chatterton David Cook Darlene Davies Sylvia Doody Bonnie Butler Munaza Chaudhry Sherry Cook Tanya Davoren Laurel Dougherty Rachel Byers Cheryl Chay Jill Corbeil Maryse Davreux Jenny Doull Margaret Byrne Anne Cherneff Karen Cormier Prithwish De Jeff Dowden Jessica C Maisie Cheung Paul Cornish Marilyn De Blaere Elspeth Dowell Catalina C. Melissa Cheung Andrea Coronado Claire De Oliveira Gregory Doyle Charlene Cahill Winson Cheung George Cossey Patrice De Peiza Ryan Doyle Diana Calder Therese Chevalier Aj Cote Francois De Wet Suzanne Drodge Richard Camacho Derek Chewka Barbara Cote Diane Deagle Steven Drover Sara Camano Bonnie Chiang Mary Coulas Elaine Debock Rochelle D’Souza Nancy Cameron Elena Chiappetta Carolyn Coulombe Kristen Decaria Catherine Dubé Cameron Campbell Shawn Chirrey Tina Coulson Kathleen Decker Deb Dudgeon Sue Campeau Nadya Chisholm Laura Coulter Lisa Dedrick Sandra Dudych

18 Strategy Engagement Summary Report Appendix A: List of Contributors and Participants

Gayle Duffield Elaine Etmanski Simone Catherine Francois Corinne Gillespie Ralph Hand Danielle Dufour Maryann Etzel Carol Franson Anneke Gillis Brigitte Hänert-Van Der Carren Dujela Deanne Evans Cate Franz Alexandra Ginty Zee Ann Dullien Raymond Fackelmann Brent Fraser Neena Girn Brendan Hanley Trevor Dummer Dr. Robin Fainsinger Ieva Fraser Carola Giudicelli Viola Hanna Élodie Dumont-Rousseau Lee Fairclough Leslie Fraser Sharon Godlewski Bruce Hansom Nadine Dunk Lyse Falardeau Mariette Fregeau Philiz Goh George R. Harding Cynthia Dunlap Victoria Faric Rejeanne Frenette Pamela Gole Lisa Hargreaves Kristi Dupuis Alaine Faris Christine Fretwell Claudia Gómez Jennifer Harmen Leslie Dupuis Maureen Farmer Lesley Frey Mary Lou Goodacre Cindy Harper Maryse Dupuis Dr. Konrad Fassbender Brent Friesen Francine Gooderham Dr. Roger Harrington Mélanie Dupuis Barbara Faucher Isaak Friesen E. Grant Goodwin Andy Harris Natalie Dupuis Erin Faught Marg Friesen Carol Gordon Karen Harris D’arcy Duquette Susan Fawcett Aubrey Frost Valerie Gosselin Lynn Harris Lind Durand Jorge Feldman Michel-Gilles Fugère Antoine Goudreault Robin Harry Patricia Durand Raven Feraru Jeanette Fulton Marilou Gougeon Mary Hart Michelle Durant Emalin Fernando Judy Fung Stephen Gould Audrey Harvey Lynn Dwernychuk William Ferris Sharon Fung Jane Graham David Harvey Kristy Dykshoorn Peggy Filet Michael Fung-Kee-Fung Laura Graham Carole Ann Hattle Linda Eagen Faye Finlayson Grace Gabe Louise Grandy Anne Hayes Karen Eagleson Christian Finley Slilma Gabriel Diana Gray Brigitte Hayes Craig Earl Ian Fish Amy Gabriele Warren Gray Adam Haynes Julie Easley Lindsy Fish Gogs Gagnon Faye Greenbank Bonnie Healy Jane Easton Anne Fitzgerald Verna Gallen Carolyn Greenberg Damien Healy Megan Easton Natalie Fitzgerald Dr. Lyle Galloway Christine Greene Penelope Hedges Geoff Eaton Roz Fitzpatrick Richard Gamache Justine Grenier Donna Heinrichs Kim Eberts Louise Fitzsimons Joy Gandell Gary Groot David Henderson Spencer Edelman Bill Flanagan Ruby Garand Paul Grundy Derrick Henderson Stuart Edmonds Tanya Flanagan Bronwen Garand-Sheridan Eva Grunfeld Amy Henderson Doreen Edward Dorothy Fletcher Perrine Garde Granger Chantal Guay Liz Henry Annemarie Edwards Elvin Flett Jessica Gardipy Nancy Guebert Sandra Hensman Corinne Eiriksson Trudy Fleuren John Garratt Alexandre Gueudry Corey Hepditch Jida El Hajjar Brenda Flight Rejeanne Gaudet Suzanne Guilbeault Karen Herd June Eldridge Susan Flynn Denis Gauthier Grant Gunn Matt Herman Faye Elias Rhonda Forbes Florence Gauthier Sal Habib Claudia Hernandez Jonathan Elias Alba Forgetta Marie-Ève Gauthier Tom Hack Velvet Heron Tanya Ellis Sylvain Foucart Lynn Geary Janice Hagel Amanda Hey Zeinab El-Masri Denis Fournier Bernice Gemmell Shannon Haggerty Michelle Hickey Laurence Eloy Sarah Fournier Laura Gentile Ron Halcro Bill Hicks Ibrahim Elsohaby Dawn Fovargue Jason George Diane Halfpenny Jason Hicks Adam Elwi Elisabeth “Lis” Fowler Elaine Gergolas Shelley Halladay Sarah Hicks Sheila Engele Kelly Fowler Marianne Germain Michelle Halligan Ely-Anna Hidalgo Renata Erme Janet Fox Prafull Ghatage Ashley Hamilton Adam Hidalgo-Simpson Diana Ermel Linda Fox Connie Gianopoulos John Delbert Hamilton Leslie Hill Beverley Essue Gary Francis Margot Gibb-Clark Nelson Hamilton Lynette Hillier Paul Estabrooks Lauren Francis Spencer Gibson Tracy Hammer Jane Hillson Mark Esterhuizen Myrna Francis Ron Gilkie Chad Hammond Patricia Hladun

Presented by the Canadian Partnership Against Cancer 19 Appendix A: List of Contributors and Participants

Catharine Hoare Nada Jabado Dr. Marc Kerba Julie Lachance Lydia Lee Michelle Hodgson Jason Jackson Kari Kerr Suzanne Lacroix Rose Lee Kari Hoellwartg Sebastien Jacquement Pamela Kesselring Catherine Ladhani Victoria Lee Abby Hoffman Bev Jacques Charlotte Kessler Gerry Lafferty Eva Leisti Heather Hogan Cynthia James Ryan Kessler Mary Lafleur Stephanie Lelond Helmut Hollenhorst Ashton James Deana Ketcheson Françoise Lagacé Lyne Lemieux Elizabeth Holmes Louise Jamieson Karen Kettles Martin Lagarde Hélène Lemire Jennifer Holmes Weier Gabriel Jan John Kettley Kathryn Laloge Jim Lennox Susan Holohan Pamela Janes Phillip Khaiat Cynthia Lam Angeline Letendre Margaret Holt Alexia Jaouich Farooq Khan Diane Lamothe Jason Letto Ann Holtz Jennifer Jelley Lakshmi Kharb Hélène Landry Lidia Leung Brenda Honish Julie Jewett Shiva Khayami Deborah Lanese Louisette Levasseur Sandra Hooge Stacie Jimioff Mary Kilcline Frank Laneuville Helene Levesque Ethel Hook Khairun Jivani John Kildea Michael Lang Rose Levesque Susie Hooper Nina Joamie Eileen Kilfoil Lise Lanteigne Julie Lévesque Gerard Hoppe Sonia Joannette Greg Kinch Nathalie Lapensee Lynn Levis Stephanie Horgan Beverley Johnson Maureen Kinch Bernard Lapointe Francine Levitt Jill Horth Carmen Johnson Ketu Kingston Susan Lappage Adrian Levy Suzanne Horvath Ron Johnson Tara Kiran Agata Larha Richard Lewanczuk Marilyn Houff Jean Johnston John Kirk Joshua Lata Collette Lewis Jen Howie Nadja Johnston Christine Kirkman Jean Latreille Mary Catherine Lindberg Les Howie Douglas Joiner Jennifer Kirkpatrick Mary Ann Laughlin Victor Ling Susana Huang Annette Jonah Katie Kirkpatrick Bette Laughy Kevin Linn Diane Huband Carolyn Jones Traci Klassen Janet Laursen Darlene Littlebear Joanne Hubick Dale Jones Siv Klausen Sonia Lauzon Jane Liu Sarah Hubt Margot Jones Ken Klein Gail Lavery Patricia Living Lynne Hudson Peter Jones Tim Klingbile Anne-Marie Lavoie Nicholas Locke Lynn Hughes Pamela Joy Shane Knysh Princess Lady Carolyn Law Dave Loder Rick Hughes Lynn Kachuik Shirley Koch Christina Lawand Trish Loeb Catherine Hull Danusia Kanachowski Julie Konzuk Venetia Lawless Ruth Loewen Caroline Humphreys Punitha Kandasamy Alison Kormendy Therese Lawton Faye Logan Cindy Humphries Dr. Kami Kandola Jean Korozs Kimberley Lay Art Loggie Catherine Hunter Ramona Kaptyn Nicole Koschik Jilda Lazer Andrew Loughead Lisa Hunter Samuel Karichu Corrina Kosmenko Pierre Le Blanc Mary Louise Dalyce Huot Dr. Safiya Karim Eugene Kostyra Colin Le Fevre Cheryl Louzado Ihor Hupaliwskyj Erin Kavaliunas Serena Kozie Teresa Leadley Ellie Love Casey Hurrell Sarah Keays Murray Krahn Estelle Leblanc Joan Low Cecilia Hurtubise Maggie Keech Alexandra Kram Gaylene Leblanc Shelley Lowes Gretta Hutton Donna Keenan Lakshmi Krishnan Nadine Leblanc Cherysh Loyal Sue Hutton Holly Keith Daniel Krogstad Paul R. Leblanc Brandy Lucas Brent Immurs Andrea Kelemen Monkia Krzyzanowska Laura Leckie Glen Lucas Sherry Ingersoll Susan Kellock Dave Kuchurean Patty Leclair Suzanne Luciano Rosemary Invik Brooke Kelly Eshwar Kumar Josee Lecuyer Brian Luhoway Anne Marie Ireland Pat Kelly Karen Kunkel Derek Leduc Ljiljana Lukic Elaine Ireland Cindy Kendall Debbie Kwan Bonnie Lee Robert Lutes Rosemary Irish Dianne Kendall Jacques La Haye Ivan Lee Sandra Lutz Cheryl Iwanowsky Bernard Kénol Claude Labbé Joyce Lee Shirly Lutz

20 Strategy Engagement Summary Report Appendix A: List of Contributors and Participants

Kathleen Lye Pierre Mantville Michael Mcisaac Fiona Mitchell Richard Musto David Lynch Lori Manuel C. Mckay Helen Mitchell Lynn Myers Shasta Lysohirka Chelsea Manzel Marlien Mckay Sheila Mitchell Marissa Myers Rob M Colin Mar Margaret Mckee Jeffrey Moat Renelle Myers Ann MacDonald Biserka Maradin Ann Mckeen Whitney Modersohn Brandi Myles Margaret MacIsaac Fawzia Marei Janet Mckend Lynda Moffat Murray Myles Donald MacLeod Loraine Marrett Greg Mckinnon Pamela Mollica Chantal Nadeau Melissa Macauley Erica Marsden Rose Mckinnon Guy Monast Claude Nadeau Margaret Macdiarmid Doug Marshall Shane Mckinnon Anna Monbourquette Fern Nagel Lorry Macdonald Veronica Marsman-Murphy John Mclaughlan Bernier Monia Stephanie Nash Suzanne Macduff Amanda Martin Lynn Mclaughlin Amy Montgomery Laura Nauta Charlotte Macgregor Barbara Martin Lois Mcnally Laurie Montour Sri Navaratnam Donald Macintosh France Martin Morgan Mcneely Patricia Moody Nnamdi Ndubuka Julie Macintosh Robin Martin Martin Mcneil Malcolm Moore Nicola Neicke Dawn Macisaac Fernanda Martins Roseanne Mcquaid Sheila Moormann Michelle Neilsen Llyod Mack Pashta Marymoon L Mcrorie Angela Morck Kelly-Deene Nelson Bryan Mackay Connie Matarazzo Rosemary Mctavish Maria Moreau Crystal Nett Frances Mackenzie John Mathers Ceporah Mearns Barb Morgan Katrina Neumann Marc Mackenzie Beena Mathew Meeka Mearns Kim Morgan Esther Newcombe Marilyn Mackenzie Rob Matic Rebecca Mearns Steve Morgan Anne Newman Patricia Mackenzie Vakerie Matteau Lesya Medvid Jean-Marc Morin Stanley Newman Diane Maclean Bennett Matthews Kavita Mehta Linda Morin Marnier Ngo Sue Maclean Annette Maurice Darrel Melvin Barbara Morrison Patrice Ngouandi Shari Maclellan Caity Maxwell Deborah Menchions Julian Morrison Andrea Nguyen Linda Macmillan Christine Maxwell John Mercer Angela Morrone Rebbeca Nicholl Patricia Macmillan Carole Mayer Anne-Marie Mes-Masson Nigel Mortimer Anja Nied-Kutterer Cora Macneil Kathy Mcandrew Trena Metcalfe Cindy Morton Michelle Nielsen Sharon Macneill Katharina Mcarthur Melanie Metherall Nadene Morton Melody Nieman Geraldine Macphee Angie Mcauley Jeannie Meyer Peter Morton Fred Nixon Marie Macphee Maureen Mccall Julie Michaud Betty Motton Sylvie Nobert Lindsay Macphee-Currie Lois Mccallum Stephanie Michaud Barbara Moysey Tracey Norris Sandra Macsorley Lynnette Mccarthy Joan Mieyette Chris Mpofu Marilee Nowgesic Teresa Macumber Michelle Mccartney Jeannie Miklos Gail Muir Connie Nugent Beverley Madill Ida Mcconnell Molly Miles Mel Mulder Rosemary Nugent Karen Madsen Caroline Mccormick Betina Millar Mary-Sue Muldoon Tammy Oakes Tanya Maffey Pat Mccormick Christiane Millard Debbie Mummery Patricia O’brien Dave Maharaj Margaret Mcculloch Anthony (Tony) Miller Beverly Mundie Nikki Obrigewitch Karen Maki Bronwen Mccurdy Kathleen Miller Garry Munro Darren Okemaysim Helen Mallovy Hicks Kelly Mcdonald Matthew Miller Amy Munroe Melissa O’leary Elaine Maloney Sandy Mcdonald Ryck Miller Derek Muradali Sara Olivier Jacinthe Maltais Ted Mcdonald Vicki Miller Karen Murkovic Robert Olson Donna Manca Colleen Mcgahan Linda Mills Darlene Murphy Sharon Olson Stefan Is Mancini Megan Mcgillicuddy Michael Milosevic Ellen Murphy Jo-Ann O’neill Dixie Manhas Douglas Mcgregor William Mintram Geneva Murphy Mary O’neill Sandra Mann Zachary Mcinnes- Armand Miousse Lori Murphy Olajumoke Oni Leandra Manning Greenberg Ali Mir Susan Murphy Irish Orion Akky Mansikka Emily Mcintosh Claudia Misera Judy Murray Judy Osborne

Presented by the Canadian Partnership Against Cancer 21 Appendix A: List of Contributors and Participants

Denise Ott Lynn Philp Tania Racine Joan Roberts Paul Savoie Mark Ottenbrite David J. Phipps Rami Rahal Melody Roberts Ambreen Sayani Lynn Ouellette Hendrika Piccardt Fatuma Raissa Alex Robertson Gloria Scaife Diane Oystreck Carol Pierre Ala Rajabi Amanda Robertson Carol Scaini Lucie P.Lafrenière Terese Pierre Maggie Ralph Sue Robins Wendy Schaffer Lee Page Melissa Pike Vinesha Ramasamy Wanda Robinson Edwin Schaffner Susan Page Minerva Pina Gerard Rancourt Paula Robson Lizette Schellevis Chantal Pagé Andrew Pipe Selena Randall Sophie Rochon Jennifer Schmidt Antonia Palmer Lorraine Pirrie Andrea Ransom Thomas Roddick Laura Schoof Larry Pan Paula Pittman Girish Rao Jamie Rodgers Christine Schpuniar Adel Panahi Fanny Pivin Santhi Rao Marg Rohmann Claude Scott Nicole Pans Susan Plomer Truffa Dorothy Rapp Trudy Romero Judy Scoville Norma Park Michelle Podmore Azadeh Rashvand Rebecca Roome Cathy Scrimshaw Gabriella Parker Diane Poitras Flemming Rasmussen Barbara Rose Susan Searle Michelle Parker Diane Poland Iresha Ratnayake Bonnie Ross Debbie Sebastian Jacqueline Parrish Chris Politis Vaughan Rawes Bruce Ross Scott Secord Joanne Parson Lola Poncelet Karen Rawlings Connie Ross Linda Seely Dennis Pasquali Jannie Poncilius Denis Raymond Jill Ross Heather Seguin Mary Pasquali Elena Popadic Pauline Raymond Trudy Ross Peter Selby Marianna Pasquino Catherine Popadiuk Christiane Raynal Arlene Rowell John Senycz Caroline Paton Fred Popowich Kelley Rayner Audrey Roy Hsien Seow Michelle Patterson Catherine Porter Graham Read Raymonde Roy Peter Serra Annette Paul Mina Postigo Susan Ready Roxanne Roy Candice Servais Mike Paulden Angie Potts Renee Reddick Zoée Roy Patricia Sevean Stuart Peacock Marielle Poulin Susan Redpath Vera Rozenbojm Lilith Sfar Laurie Pearce Angela Powell Andrea Reed Giselle Russell Lorraine Shack Joanne Peddle Melanie Preece Dean Regier Garry Ryan Jeff Shamie Eric Pelletier Nadine Prevost Angie Rehal Gennifer Ryan Darlene Share Amanda Peloquin Shawn Price Allison Reid Laura Ryan Shelley Sharpe Jean Peloquin Marion Primozic Amanda Reid Leslie Ryan Jennifer Shea Alexandra Penaloza Cathy Priolo Rebecca Reid Christine Ryckman Nancy Sheaves Susan Penney Daphne Privett Teresa Reid David Sabapathy Jerry Sheers Fabian Pernet Aaron Prosper Wayne Reimer Elissa Sakariassen Nancy Shelford Marko Perovic Dominique Proulx Patricia Reindertsen Louisa Salemi Jacob Shelley Annamae Perry Natalie Pryszlak Dora Replanski Christine Sam Gene Shematek Namra Pervaiz Anna Pujadas Botey Candida Rice Janette Sam Amanda Sheppard Dennis Peter Domenica Pulcini Brian Richards Diane Sampsonmacneil Linda Sheppard Joshua Peters Judith Purcell Laurel Richards Steph Sanborn Graham Sher Keteh Peters Judy Purcell Mardel Richards Jane Sanders Michael Sherar Mary Peters Tom Purdie Dvorah Richler Cynthia Sanderson Anissa Sheriff Roger Peters Margaret Pye Juanita Rickard Fred Sandeski Marie Sherlock Catherine Peterson May-Lynn Quan Nic Riess Kathleen Sandusky Chelsea Shields Jill Petrella Debra Quigley Edgardo B. Rimando Jan Sansom Eric Shiu Joan Petrie Jo Quinlan Barbara Rivers Olivia Saqui Debra Siegel Lauri Petz Kimberley Raadi Katherine Rizzi Paul Saucier P Gayle Sillito Hayley Phillips Brigette Rabel Stephen Robbins Carol Saunders Vivian Sim Torri Phillips Colin Race Eve Roberts Jill Saunders Jonathan Simkin

22 Strategy Engagement Summary Report Appendix A: List of Contributors and Participants

Dr. Jessica Simon Vicki Steel Marvin Tesch Nicholas Van Der Valerie Ward Cheryl-Anne Simoneau Kyla Stein Denise Thibault Westhuizen Elaine Warren Sandra Simper Marsha Stephens Cathy Thistle Jacob Van Dyk Kim Warwick Jennifer Simpson Shayne Sterling Wayne Thomas Maike Van Niekerk Richard Wassersug Mary Lee Simpson Archie Stewart Gina Thompson Ann Van Oeveren Dr. Sharon Watanabe Donald Sinclair Jane Stewart Linda Thompson Robert Van Oeveren George Watier Dr. Aynharan Sinnarajah Kerry Stewart Ruth Thompson Roxanne Van Velzen Kristy Watson Carole Sinnott Pam Stewart Julia Thomson Barbara Van Wely Noah Wayne Vernon Sinnott Tom Stewart Laurie Thomson Louise Vandelac Peggy Weaver Jeff Sisler Valerie Stocek Chantale Thurston Harry Vanderhoek Yvette Webb Beth Sissons Nancy Stoiber Ellen Tieman Pat Vanderkooy Linda Weber Teresa Skarlicki Evelyn Storr Martin Tigchelaar Janet Vanderveen Ashley Wedd Kimberly Skead Michelle St-Pierre Caitlyn Timmings Geoffrey Varley Joan Weir Julia Slanina Susan Strader Rob Timmings Gloria Varley Linda Weir Cheryle Slattery Sharon Straus Jennette Toews Francia Vazquez Warren Welling Sandra Slobodian Erin Strumpf Wendy Toews Joy Veinot Siegert Wenning April Smith Editha Suarez Dawne Tokaryk Paula Veinotte-Nickerson Louise Werner Barbara Smith Linda Sullivan Olivia Tong Christina Velasco Carol Wesbroom-Krainyk Cheryl Smith Mike Sullivan Jon Tonita Jennifer Vena Ben West Christine Smith Patrick Sullivan Melissa Touw Janice Veniot Wendy West Clark Smith Tresha Sumlak Susannah Travers Gilles Venne Denise White Kathleen Smith Pamela Sumner Andrea Traynor Marc Venturi Liam White Kerry Smith Kathleen Sun Susan Truong Gregoire Vermette Sherree White Leah Smith Anila Sunnak Rebecca Truscott Marie Vermette Biserka Whitfield Sharon Smith Peggy Suppa Cheryl Tschupruk Eduardo Vides Cheryl Whiting Jennifer Snodgrass Candace Sutherland Jasmine Tung Eva Villalba Kristin Whitworth Phyllis Snow Kim Sutherland Angela Turgeon Susanna Vincze Kimberley Widger Marlena Sokolowska Donna Sweeney Ashley Turner Roy Vinke Holly Wilcox Nadena Sokolowski Lynne Sylvestre Gail Turner Liz Visentin Harry Wildhagen Théa Sommerstorfer Alison Symington Jill Turner Darlene Vold Patricia Wilhelm Helena Sonea Eddy Szczerbinski Stephen Tweed Barbara Von Tigerstrom Denise Wilker Wilhelmina Sonser Marta Szybowska Jamie Tycholiz Kim Vriends Anna Wilkinson Marie Soprovich Joy Taber Garth Tyler-Neher Nancy Wadden Linda Willey Adam Sortini Janice Tait Dawn Tymianski Lynn Wade Brenda Williams Donna Spence Ruth Talson Ashley Tysdal Glenn Wagner Christine Williams Linda Spence Rebecca Tamarchak Beth Udby Dave Walker Debbie Williams John Spinelli Dr. Amy Tan Carol Udey Janet Walker Femke Williams Josephine Squires Dr. Patricia Tang Avril Ullett Miranda Walker Louise Williams Bojana St. Onge Theresa Tarrabain Jane Ulrich Edna Wallhead Sharon Williams Diane Stadnyk Zeba Tayabee Ashley Umali Cindy Walsh Vaughn Williams Christopher Stamp Carolyn Tayler Theresa Marie Underhill Gordon Walsh Nick Williams Lisa Stanley Dani Taylor Sandra Unteriner Kathie Walsh Evelyn Wilson Paul Stanley Ruby Taylor Dawn Upham Lorna Walsh Gloria Wilson Cathy Stannard Gail Tayyem Sara Urowitz Pauline Walsh Lianne Wilson Richard Stanwick Karen Teasdale Robin Urquhart Angela Waltenbury Helen Wirrell Lyssa Statham Pierre-Paul Tellier Toni Valmonte Linda Walter Taylor Wirth Kristy Ste Marie Janet Templeton John Van Der Laan Wendy Walton Liz Wiseman

Presented by the Canadian Partnership Against Cancer 23 Appendix A: List of Contributors and Participants

Jennifer Wolfenden The following organizations provided Michael Wolfson input via written submissions: Clarence Wong Brain Tumour Foundation of Canada Elizabeth Wong Mary Wong Canadian Association of Medical Tracy Wong Radiation Technologist Eugenia Wong Canadian Association of Nurses in Oncology Catherine Wood Canadian Association of Psychosocial Oncology Debby Wood Martina Wood Canadian Association of Radiation Oncology Patrick Wood Canadian Organization of Medical Physicists Sheri Wood Karen Woodworth CAREX Canada Frances Clare Woolgar Colorectal Cancer Canada Jan Wotton Dense Breasts Canada Huiming Yang Nancy Yarmel HealthCare Can Janice Yeats Hoffmann-La Roche Limited Catherine Young Colleen Young Innovative Medicines Canada Wiliam (Bill) Young Janssen Pharmaceutical Companies Katherine Young of Johnson & Johnson Tallal Younis Merck Canada Inc. Bourassa Yves Sophie Zafiridis-Savruk Health Authority’s Nova Scotia Patricia Zakaib Cancer Care Program Jacqueline Zareski Occupational Cancer Research Centre Nicole Zavagnin Ontario Institute for Cancer Research Connie Zettel Kjin Zhang Ontario Sun Safety Working Group Karen Zillman Ottawa Regional Cancer Foundation Al Zimmer Vula Zingaro Prostate Cancer Canada Carla Zosel Save Your Skin Foundation including: Jeff Zweig • CML (Chronic Myelogenous Leukemia) Society

• Carcinoid - NeuroEndocrine Tumours of Canada

• Myeloma Canada

• BioCanRX

• Leukemia and Lymphoma of Canada

• CONECTed

The Ottawa Hospital Cancer Centre

The Children’s Hospital of Eastern Ontario

24 Strategy Engagement Summary Report Appendix B

FIRST NATIONS, INUIT AND MÉTIS MEETING DETAILS AND PRINCIPLES OF ENGAGEMENT

At the request of First Nations, Inuit and Métis partners, The following principles of engagement were Elders and advisors, gatherings were held to seek input co-developed with First Nations, Inuit and Métis into how the Partnership should continue to engage Elders, advisors and partners and guided all with First Nations, Inuit and Métis for the refresh of engagement with First Nations, Inuit and Métis. the Strategy, as well as to seek input into the refreshed Strategy itself. Engagement must:

The following gatherings and meetings took place with: • Lead to implementation/action resulting in system change • Representatives from First Nations, Inuit and Métis partner organizations, , Ontario (June 13 2018) • Capture diversity of experiences and stories at the national and regional levels • First Nations, Inuit and Métis Advisors and the Partnership’s Indigenous Board Member, Ottawa, • Represent First Nations, Inuit and Métis-specifically Ontario (September 18 2018) and equally

• First Nations, Inuit and Métis Elders, Ottawa, Ontario • Value and embed culture (September 19 2018) • Respect local engagement protocols and principles • At the First Nations Health Managers Association • Ground partnerships in the spirit of reconciliation Conference, one-on-one engagements with conference participants, Banff, Alberta (November 5 to 7 2018) • Use a variety of engagement methods including oral systems • National Inuit Committee on Health, Ottawa, Ontario (November 23 2018)

• Representatives from Canadian Indigenous Nurses Association and Indigenous Social Workers, Ottawa, Ontario (December 7 2018)

• Representatives from each of the 25 First Nations, Inuit and Métis Partnership-funded Initiatives, Happy Valley– Goose Bay, Labrador (December 11 2018)

• Telephone interview or written submission from senior health representatives from Métis Nations (throughout January 2019)

• Health Directors representing the 14 First Nations, Whitehorse, Yukon (January 15 2019)

• Inuit cancer survivors, Iqaluit, (January 21 to 23, 2019)

• Refresh engagement participants to validate priorities, Toronto, Ontario (February 27 2019)

Presented by the Canadian Partnership Against Cancer 25 Appendix C

PUBLIC ENGAGEMENT EVENT DETAILS a. “Pop-up” events: b. Community dialogue events

Members of the public were invited to learn more about Dialogue sessions took place to connect with individuals the Strategy and share ideas about how to improve who are underserviced by the health system. This cancer care at one of a dozen public events that took includes recent immigrants, people who identify as place across Canada. A total of 640 people participated LGBTQ2, minority language communities and rural, at one of the following locations: remote and northern residents.

• Scarborough Civic Library, Scarborough, Ontario • Egale, Toronto, Ontario (November 4 2018) (November 5, 2018) • Robert Lee YMCA, Vancouver, British Columbia • Surrey Central Library, Surrey, British Columbia (November 14 2018) (November 13 2018) • Seniors’ Society, Yellowknife, NWT • CORE Shopping Centre, Calgary, Alberta (November 15 2018) (November 22 2018) • Toronto Community Housing, Toronto, Ontario • Algonquin College Student Common, Ottawa, Ontario (November 19 2018) (November 22 2018) • Lakehead University Student Union, Thunder Bay, • Brodie Fireside Reading Room, Thunder Bay, Ontario Ontario (November 21 2018) (November 21 2018) • Réseau Des Services De Santé En Français, Ottawa, • Cosmo Civic Library, Saskatoon, Ontario (November 21 2018) (November 24 2018) • Maison d’Haiti, , Quebec (November 23 2018) • Crossman Community Centre, Moncton, New • The Kerby Centre, Calgary, Alberta Brunswick (November 28 2018) (November 23 2018) • Millennium Library, Winnipeg, • STR8-UP, Saskatoon, Saskatchewan (November 28 2018) (November 26 2018) • Grant Harvey Centre, Fredericton, • Herman Prior 55+ Centre, Portage la Prairie, Manitoba (December 3 2018) (November 27 2018) • Bell Aliant Centre, Charlottetown, PEI • Université de troisième âge, Moncton, New Brunswick (December 5 2018) (November 28 2018) • Bibliothèque et Archives nationales du Québec, • Immigrant and Multicultural Services Society, Montreal, Quebec (December 6 2018) Prince George, British Columbia, November 29 2018) • Halifax Central Library, Halifax, Nova Scotia • YMCA Centre for Immigrant Programs, Halifax, (December 7 2018) Nova Scotia (December 6 2018)

• Black Health Alliance, Toronto, Ontario (December 12 2018)

26 Strategy Engagement Summary Report cancerstrategy.ca