& South Cumbria Palliative and End of Life Care Programme Delivery & Oversight Group Terms of Reference

Overview

The Lancashire & South Cumbria Palliative and End of Life Care Network (PEOLCN) sits within the North West Coast Strategic Clinical Network (SCN) as part of NHS , and the Healthier Lancashire & South Cumbria Integrated Care System (ICS) The PEOLCN reports to the National End of Life Care programme Board through the Clinical Lead, and to the ICS through the Out of Hospital Programme Lead.

Purpose of the L&SC Palliative and End of Life Care Programme The programme aims to empower the people of Lancashire & South Cumbria, and those who care for them, to live well before dying with peace and dignity supported by care which is personalised, high quality and equally accessible to all.

The PEOLCN is the delivery arm for the Healthier Lancashire & South Cumbria Integrated Care System (ICS) Palliative and End of Life Care Programme

Purpose of and Terms of Reference for the Palliative and End of Life Care Delivery & Oversight Group

The Delivery & Oversight Group will: 1. Have oversight of the PEOLCN work programme and associated projects ensuring successful delivery, escalating as appropriate issues and risks to delivery to the Out Of Hospital Programme Lead 2. Influence and support the commissioning and provision of end of life care across L&SC, which delivers against the PEOLCN strategic objectives to:

• awareness of and enable conversations around death and dying with the public and professionals both in health and social care. • Support the identification of patients who are at end of life and offering care which is coordinated. • Enable patients within Lancashire & South Cumbria, and those who care for them, to identify their preferences and wishes at end of life and for those wishes to be met regardless of disease condition or place of care. • Promote and enable equitable access to care guided by national guidance and best practice. • Ensure patients within Lancashire & South Cumbria at end of life, and the people who care for them, to be supported by a competent, confident capable workforce. • Commission and provide high quality, cost effective integrated pathways for palliative and end of life care across Lancashire & South Cumbria. 3. Support active involvement through the locality areas they represent in the delivery of the PEOLCN work programme and associated projects.

1 September 2018 Final version Responsibility of the programme group representative The representative, or a named deputy, has the designated responsibility to make decisions on behalf of the locality and will

• Attend the delivery and oversight group • Steer and influence the development and delivery of the PEOLCN work plan. • Reflect PEOLCN strategic objectives in local organisational plans. • Raise issues on behalf of the locality

Attendance and Quorate Representatives should attend 75% of meetings (3 out of 4). The D&O group will be quorate when the chair or nominated deputy is present, 3 of the 5 locality areas are represented with at least 4 additional members.

Meeting frequency The Delivery and Oversight Group will meet quarterly.

Reporting

Membership

Representative Name Role/Organisation Clinical Lead (Chair) Jayne Denney SCN GP lead Dr Chrissie Hunt SCN Network support team Kathy Collins SCN Senior Network Manager Network support team Kath Davies Quality Improvement Project Manager SCN 2 September 2018 Final version ICP: Bay Health and Care Partners Hospital SPC Advisory team Dr Carolyn Watt SPC Consultant Hospice Sue McGraw Chief Executive Maddy Bass Head of Nursing & Quality St Johns Hospice Education Improvement Community team Patricia Atkinson Facilitator St Marys Hospice GP EoLC lead TBC CCG EoL Commissioning TBC lead TBC ICP: Fylde Coast Hospital SPC Advisory team Dr Harriet Preston SPC Consultant BVH Jackie Brunton Lead Nurse/Cancer& EOL BVH Hospice Stephanie Hodgson Clinical Educator Trinity Hospice Dr Susan Salt SPC Consultant Trinity Hospice EOL Lead Community Community team , Fylde & Wyre

GP EoLC lead TBC CCG EoL Commissioning Jeannie Harrop Commissioning Manager lead(s) Blackpool CCG Amanda Long Commissioning Manager Fylde & Wyre CCG ICP: Hospital SPC Advisory team Dr Clare Finnegan SPC Consultant S&O Hospice Dr Karen Groves SPC Consultant Community team Helen Birch Director of Nursing GP EoLC lead TBC CCG EoL Commissioning TBC Lead ICP: Central Lancashire Hospital SPC Advisory team Dr Valerie O’Donnell SPC Consultant LTHTR Dr Claire Capewell SPC Consultant LTHTR Dr Maria Debattista SPC Consultant LTHTR Hospice Dr Andrew Fletcher Medical Director St Catherine’s Hospice Community team Kathryn Woods Lead Nurse Lancs Care FT GP EoLC lead TBC CCG EoL Commissioning Karen Swift Locality Manager Chorley & lead CCG/Greater Preston CCG ICP: Pennine Lancashire Hospital SPC Advisory team Dr Anna MacPherson SPC Consultant, ELTH Dr Marion Leith SPC Consultant, Royal Blackburn Hospital Dr Alison Thorpe SPC Consultant, ELTH Claire Langton Palliative Care Lead Nurse Hospice Helen McVey CEO, Pendleside Hospice Anne Huntley Clinical Services Manager, Pendleside Hospice Nicola Whittaker Clinical Services Manager, 3 September 2018 Final version Rossendale Hospice Community team TBC GP EoLC lead CCG EoL Commissioning Jayne Lowthian East Lancs CCG lead Peoples Voice Group TBC SCN Education Strategy Group Lynne Kelly SCN Chair Charitable sector Macmillan Nancy Whittaker Macmillan Strategic Marie Curie Manager North TBC (?Karen Tourley) North Regional Manager Bereavement Care Services Wendy Lewis-Cordwell Director EoLC Facilitators TBC Representative

4 September 2018 Final version