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BAYLOR COLLEGE OF MEDICINE CHILDREN’S FOUNDATION-UGANDA 2017-2018 ANNUAL REPORT BAYLOR COLLEGE OF MEDICINE CHILDREN’S FOUNDATION- UGANDA 1 Memorable: US Congress Delegation during their visit to Baylor-Uganda Centre of Excellence in Mulago on 16thAugust, 2017. Seated third right is the US Ambassador in Uganda, Deborah Malac and f fth right (seated) is the Minister of Health, Dr. Jane Ruth Aceng. 2 BAYLOR COLLEGE OF MEDICINE CHILDREN’S FOUNDATION- UGANDA CONTENTS 12-COE 34 - Leadership and Governance 13- HIV Prevention 36 - Operations 17- Care and Treatment 38 - Clinical Research 21- ELMA 40 - Pediatric Hematology and Oncology 25- Food and Nutrition 42 - Communication and Advocacy 26- OVC and Community Strengthening 43 - Finance 28- Maternal and Newborn Care 4 - Internal AuditBAYLOR COLLEGE OF MEDICINE CHILDREN’S FOUNDATION- UGANDA 3 31 - Health Systems Strengthening Our Mission, Vision and Core Values Editors: Dr. Andrew Katawera (Chairman), Dr. Leticia Namale, Albert Maganda, Our Vision: Dr. Denise Birungi, Dr.Jacqueline Balungi,Dr. Grace Kisitu,Dr. Emma Mugisa A healthy and fulfi lled life for David Damba,Charles Opolot. Photography: Charles Opolot, Esther K. Sammy every HIV infected and affected Print: New Vision Printing and Publishing Co. Ltd child and their family in Africa. Our Mission: To provide high-quality, family- centred pediatric and adolescent health care, education and clinical research worldwide. About Us: Baylor-Uganda is an indigenous not-for-profi t child health and development organization affi liated with the Baylor International Pediatric AIDS Initiative (BIPAI), a network of pediatric HIV care and treatment Children’s Clinical Centers of Excellence and international program offi ces in 11 countries in Africa, Eastern Europe, and North America. Since its establishment in 2003, Baylor-Uganda has provided integrated, high quality and high impact HIV/AIDS care and treatment in more than 400 health facilities across Uganda. Our Scope of Work: These operations are carried out at the Centre of Excellence (COE) and the Post Natal Clinic both located at Mulago Hospital Complex. We also support 141 Health Facilities in the eight districts of Rwenzori region, especially those government funded facilities where access to pediatric and family centred HIV/AIDS services are largely constrained. Our Values Care Accountability Excellence Innovation Teamwork Loyalty 4 BAYLOR COLLEGE OF MEDICINE CHILDREN’S FOUNDATION- UGANDA BAYLOR-UGANDA Board Members June 2018 Mr. Michael Mizwa Dr. Philippa Musoke Board Chairman Vice Chair Dr. Adeodata Kekitiinwa Executive Director Dr. Noerine Kaleeba Mr. Alex Twesigye Mr. Mackay Aomu Dr. Diane Nguyen Member Member Member Member Mr. David Nuwamanya Ms. Edna Rugumayo Mr. Peter Kimbowa Dr. Joshua Musinguzi Mr. Thomson Odoki Member Member Member Member Member BAYLOR COLLEGE OF MEDICINE CHILDREN’S FOUNDATION- UGANDA 5 List of Acronyms ANC Antenatal Care APN Assisted Partner Notif cation ART Anti-Retroviral Therapy BIPAI Baylor International Paediatric AIDS Initiative CAP College of American Pathologists CBO Community Based Organisation CCLAD Community Client Led ART Delivery CDC Centres for Diseases Control CHAI Clinton Health Access Initiative CHBC Community Home Based Care COE Centre of Excellence CSO Civil Society Organisation DTU District Technical Unit EID Early Infant Diagnosis eMTCT Elimination of Mother to Child Transmission FPRRH Fort Portal Regional Referral Hospital GBV Gender Based Violence HF Health Facility HCT HIV Counselling and Testing HPTN The HIV Prevention Trials Network HTS HIV Testing Services IBC Inter-Bureau Coalition IMAM Integrated Management of Accute Malnutrition KMC Kangaroo Mother Care KP Key Populations MARPS Most at Risk Populations MOH Ministry of Health NACS Nutrition Assessment Counselling and Support NICU Neonatal Intensive Care Unit OVC Orphans and other Vulnerable Children PITC Provider Initiated Testing and Counselling PLHIV People Living with HIV and AIDS PMTCT Prevention of Mother to Child Transmission PP Priority Populations QI Quality Improvement RCT Routine Counselling and Testing SMGL Saving Mothers Giving Life STI Sexually Transmitted Infections UNICEF United Nations Children’s Emergency Fund VHT Village Health Team VMMC Voluntary Medical Male Circumcision WHO World Health Organisation WONETHA Women’s Organisation for Network for Human Rights Advocacy 6 BAYLOR COLLEGE OF MEDICINE CHILDREN’S FOUNDATION- UGANDA Acknowledgments: We are deeply indebted to many partners and stakeholders who in one way or the other have made it possible fi rst for us to achieve and most importantly for the successful production of this Annual Report. We acknowledge the generous support from the Government of Uganda, the American people through Centres for Diseases Control and Prevention (CDC), UNICEF, National Institute of Health (NIH), ELMA Foundation, Comic Relief, Abbot Fund, Every Mother Counts, Swedish Research Council and Karolinska Institute, Drugs for Neglected Diseases Initiative (DNDi), Clinton Health Access Initiative (CHAI),PEPAL, Medical Research Council (UK), BIPAI, Baylor College of Medicine, Texas Children’s Hospital, Bristol Myers Squibb and American Foundation for Children with AIDS. US Ambassador in Uganda, Deborah Malac with Bundibugyo youth choir BAYLOR COLLEGE OF MEDICINE CHILDREN’S FOUNDATION- UGANDA 7 Chairman’s Message I applaud management for the achievement registered in the Saving Mothers Giving Life project. The fi nal results released mid-year was another landmark that showed that partnerships can help to achieve some of the sustainable development goals in Uganda. We commit to promote the best practices to improve maternal and neonatal health outcomes. Regarding HIV/AIDS, we are more than convinced that we are on the right track to epidemic control through of our mission; “To provide high quality family centred paediatric and adolescent healthcare, education and clinical research worldwide. Thi s Mission inspires us daily to stretch our energy to the breaking limits until Uganda pronounces zero new HIV infections. I recommend this Annual Report to all our stakeholders. It is a scorecard that we are happy to share with you. We welcome your comments because through feedback, we shall truly refl ect on our strengths and weaknesses. As a Board, we are greatly indebted to all our partners, notable among them the Uganda Government, through the Ministry of Health, for giving us the opportunity to support the health sector, especially on HIV/TB Prevention, Care and Treatment and maternal, new-born health. We are deeply grateful to the American people through PEPFAR/CDC, BIPAI, he existence of Baylor-Uganda for the Texas Children’s Hospital and many more. We could last 10 years has not only strengthened not have registered these glorious milestones without our collaboration, but continues to provide your support. We still require your support as we are strategic direction to the partnership. in the fi nal bend of defeating the AIDS scourge on the As a Board, we have continuously face of the earth and yet to achieve the sustainable witnessed the evolution of pediatric HIV care and T development goals as a country. Every effort must be treatment including commitment to its elimination. galvanised for the fi nal dash to the fi nish line. Our research portfolio is continuing to grow and infl uence the quality of care we provide to our clients On behalf of the Baylor-Uganda Board of Directors, I nationally and internationally. would like to reiterate our commitment to support the Baylor-Uganda senior management and staff to fulfi l We have strategically engaged, supported and our Vision and Mission. challenged each other to deliver quality comprehensive family centred services to the communities. During the last fi nancial year, we witnessed the growth of our new service line, haematology and oncology services for children, at the Uganda Cancer Institute. We Michael B. Mizwa applaud all those that have effected this collaboration Chairman, Board of Directors, that has changed the face of pediatric cancer and Baylor College of Medicine Children’s Foundation-Uganda blood diseases in Uganda. We are hopeful that Senior Vice President, Chief Operating Of cer, through the training of more specialists many more Baylor International Pediatric AIDS Initiative children will be served. 8 BAYLOR COLLEGE OF MEDICINE CHILDREN’S FOUNDATION- UGANDA Executive Director’s Message sortium members: the Inter Bureau Coalition (IBC), representing all faith based organizations, Women’s Organisation Network for Human Rights Advocacy (WONETHA that add their unique perspectives to ending the HIV epidemic. This Annual Report also marks another Landmark transition, the end of the strategic plan 2013-2018. Our 2018-2023 strategic plan is an ambitious plan that will see us roll out a business approach to pro- gramming to ensure sustainability within the frame- work of a non-governmental organization. This calls for change in our management style both at individ- ual and institutional levels. Our commitment to our clients remains supreme and we shall go out of our way to look for that child, adolescent, mother or cou- ple who need to be brought to care for us to be able to achieve our mission. This year our research unit realized a threefold in- crease in the number of research programmes with concurrent staff development opportunities to match n behalf of the Board, Senior the growth. We welcome more collaborations and Management and on my own behalf, partnerships to widen our research