i Index of Contents About Ward 1C Cardiac Unit ...... 1 Ace Club ...... 11 Alder Play App ...... 12 Breastfeeding ...... 8 Car Parking ...... 19 Cash Machine ...... 13 Cash Office ...... 13 Cleaning ...... 8 Contact Numbers ...... 19 Discharge ...... 10 High Dependency Beds ...... 1 ID Bracelet ...... 7 Infection Prevention ...... 2 Introduction ...... 1 Meals ...... 7 Medical Records & Medicines ...... 3 Mobile Phones & Electrical Equipment . . . . 11 Nursing Handovers ...... 8 Parent/Carer Accommodation ...... 6 Patient’s Charter ...... 20-22 Personal Belongings ...... 8 Play Room & Play Specialists ...... 11 Ronald McDonald House ...... 6 Share Your Experiences ...... 18 Shops & Restaurants ...... 13 Additional Information ...... 25 Spiritual Care ...... 14 Staff Uniforms ...... 4-5 Televisions ...... 11 The Forum @ Alder Hey ...... 15 Visiting ...... 9 Volunteers ...... 23-24 Ward Rounds ...... 3 Ward Team ...... 6 Waste Disposal ...... 16-17 Wi-Fi ...... 10

ii Introduction

Ward 1C Cardiac Unit has 23 beds and is the dedicated ward for children with cardiac conditions. Our patients range in age from birth to 18 years, each with their own specific needs and challenges.

About Ward 1C Cardiac Unit

Our Unit is divided into three coloured zones; Orange, Green and Blue. The Yellow zone on the ward is a separate Neonatal unit.

Rooms in the Green and Blue zones are single rooms with en suite facilities. The Orange zone is made up of two 4-bedded bays each with shared bathroom facilities and folding beds for Parent/Carers; please refer to the instructions for their use attached to the beds.

Patients may be moved from one zone to another during their stay.

Our staff are here to help answer any questions you may have. We will do our best to show you and your child around the ward soon after you arrive. A member of staff will explain how to use the call bell by the bedside, and in the bathrooms and toilets, if you or your child needs assistance.

High Dependency Beds

Children with higher dependency needs are nursed in beds 13-16 and 26-31 in the blue and green zones. They are nursed on a ratio of one nurse to two patients. For their safety it is important that they are visible at all times and their cubicle blinds remain open.

Frequent observations, pump readings and reviews are necessary throughout the day and night. A light will be kept on in the room overnight to enable good assessment of your child. The monitors in the cubicle are linked to a monitor on the nurse’s station for additional observation and to alert staff of any changes.

1 Infection Prevention

Keeping children free from infection is of utmost importance, and we value your cooperation in achieving this. Washing and gelling hands is vital in preventing the spread of infection in hospital.

• Wash or gel your hands:

• On entering the ward and before you leave. • Before and after attending to your child’s care, e.g., toileting, nappy changing, changing bed linen, feeding or washing.

• Wear protective gowns and gloves when asked to do so.

• Patient anti-bacterial handwipes are available for children to use before and after eating.

• Keep the bed space tidy and free from clutter to allow domestic staff access for cleaning.

• Do not enter the cubicle or bed space of another patient, even if the family has given you permission to do so.

• Inform staff straight away if you, your child or any visitors have been in contact with any infectious diseases, e.g., chicken pox, flu, or measles, within the last 14 days.

• Do not visit the ward if you are unwell with diarrhoea and/ or vomiting. Please inform staff and stay away from the ward until you have had no symptoms for 48 hours.

• You are part of your child’s health team; do not be afraid to remind doctors and nurses about washing their hands before working with your child. Do not open windows, as air-born spores may cause infection.

2 Medical Records

Please speak to a member of staff if you would like to see, or have copies of, your medical records.

We want to involve you in all the decisions about your child’s care and will discuss all treatment options with you.

For surgery or invasive treatment we will ask you to sign a consent form. This confirms that you agree to have the treatment and you understand what it involves.

Medicines

Please bring all your child’s medicines with you and give them immediately to your child’s nurse, who will tell you where and how they will be stored. It is important that you tell the doctor and ward pharmacist about any medicines that you and your child are taking, including prescription and over-the-counter medicines. This includes any alternative medicines such as herbal remedies. Please let us know if your child is allergic to any medicines.

Ward Rounds

Ward rounds take place each day after 9.00am. These are to review each patient’s diagnosis and progress, make decisions about treatment options and investigations, and confirm discharge arrangements. Ward rounds are an opportunity for Parent/Carers to discuss their child’s progress and plan of care with the doctors and ward staff.

Other teams of Doctors, Specialist Nurses, Dieticians, Physiotherapists, etc., will review the patients throughout the day. Please discuss any concerns or requests about your child’s care with your allocated nurse.

3

Ward Manager. The Ward Manager is responsible for supporting all staff on the ward, ensuring a high standard of care is maintained at all times. The Ward Manager wears a navy blue scrub top with red writing and navy blue trousers. Shift Coordinators/Ward Sister. They are responsible for the running of the shift, overseeing the care of a group of patients in a pod or looking after the child as a bedside nurse. They can answer queries in the absence of the Ward Manager. They wear a navy blue scrub top and navy blue trousers. Staff Nurses. They act as the bedside nurse, planning and delivering care to the patients. They wear a royal blue scrub top and navy blue trousers. Advanced Paediatric Nurse Practitioners. They are nurses specially trained to assist the medical team with patient’s clinical examinations and diagnosis. They work closely with the medical and nursing team delivering evidence based care to the patient. They wear a pale blue scrub top and navy blue trousers. Health Care Assistants (HCA). HCAs support the nursing team in the clinical areas. They assist with patient care, doing administrative duties and fetching equipment. They wear a purple scrub top and navy blue trousers.

Clinical Educator. They are a senior nurse who takes the lead in maintaining and developing the knowledge and skills of the nursing team to promote high levels of safe and effective care. They wear an aubergine scrub top and trousers.

4 Housekeepers. Housekeepers support the nursing team by arranging patient food, stocking up resources,

ordering supplies and some cleaning duties. Housekeepers wear a black scrub top and trousers.

Domestic staff. 1C has a team of Domestics who are responsible for cleaning the ward each day. 1C has domestic cover in the morning, afternoons

and evening. There is also a smaller team during other times. There is a mix of domestic uniforms: dark trousers with either a green/ white striped top or a blue T-shirt.

Senior Play Specialists and Play Assistants.

They facilitate therapeutic developmental and structured play activity programmes specific to the needs of the patient. They offer support and distraction therapy to children and young

people undergoing painful and invasive procedures during their admission. Senior Play Specialists wear lilac and white striped tunics and navy blue trousers. Play Assistants wear purple tunics and blue trousers.

Ward Clerk.

The Ward Clerk meets and greets inpatients and visitors, provides the first point of contact for all enquiries, and supports all other ward staff.

The medical teams and receptionists do not usually wear uniforms.

5 Ward Team

There are a number of different people who will look after your child during their stay. All staff should introduce themselves to you and wear name badges, but do not be afraid to ask staff who they are. Don’t be shy. Ask questions about your child’s care, raise safety concerns you have or ask the caregiver to check your child’s chart before they act. Write down your questions.

Parent/Carers Accommodation

Facilities are available for one Parent/Carer to sleep at your child’s bedside, if you wish to do so.

Rooms are available at Ronald McDonald House for families who are not local to the hospital and whose expected stay is more than 2 nights. This is a charity independent of Alder Hey. Nursing staff are happy to request rooms for families but the decision to allocate rooms remains solely with the staff at Ronald McDonald House. If you wish to request a room in Ronald McDonald House, you should advise staff when your child is admitted. How to find Ronald McDonald House To get to Ronald McDonald House, go out of the doors by WH Smith leading to Eaton Road, follow the path to the left, past A&E, turn right through the car park and across the road. Building 5 (a grey and orange structure) is opposite, follow the path around to the left of building towards the old hospital. Enter the security doors for old building by pressing the call button for Security to let you through, go straight ahead and though the doors opposite. Walk straight ahead towards the road and you will see Ronald McDonald House opposite.

6 Identity Bracelet

We will give your child two hospital identity bracelets with their name on. These are for their safety, so please ensure they wear them at all times. If they have an allergy they will be given an additional ‘Red’ allergy wristband.

Meals

The ward kitchen is staffed by a Ward Chef who works each day from 10.30am to 6.30pm providing a freshly cooked light lunch and full evening meal dishes from a menu. Meal times are approximately 12 noon to 4.30pm.

The menu has been developed in conjunction with Dieticians and the Patient’s Forum. The Chefs are assisted by the Housekeeper who will take orders, serve food and clear up.

Parent/Carers and visitors are not allowed in the ward kitchen. Specialist diets are catered for by the central hospital kitchen. Ward Staff (nursing/HCA) are responsible for providing breakfasts for patients from the pantry.

All breastfeeding mothers with children under the age of 6 months are provided with vouchers for the Treetops Restaurant whilst their child is an inpatient on Ward 1C. They are entitled to free breakfast, lunch and Dinner.

A small Parent/Carers kitchen with a fridge and facilities to make hot drinks is available next to the play room in the Yellow zone. Hot drinks bought onto the ward must have a lid on.

The Parent/Carers kitchen is not for the preparation of hot food by Parent/Carers. Parent/Carers are requested to keep the areas tidy and to wash their dishes after use.

7 Personal Belongings

There is a cupboard beside the bed where patients can store their personal belongings, but we ask that you leave valuables at home wherever possible. Valuable items are brought into the hospital at your own risk. To allow daily cleaning, personal belongings should be kept to a minimum and never placed on the floor. Cleaning

All wards receive a full daytime clean. If there is a need for further cleaning during the day, please contact the nurse in charge.

Nursing Handovers

Nursing handover takes place between 7.00am to 7.30am, and 7.00pm to 7.30pm. The ward coordinators have an overview of all patients and are always on shift.

Breastfeeding

The Midwife visits the Trust every Monday and Thursday from 1.30pm to 2.30pm in the breastfeeding room outside Ward 4C and is coordinated via the volunteer service.

For further information or for advice please contact the Sycamore Midwifery Team on 0151 702 4175 or 0151 702 4177, leave a message, and the team will return your call. For all out of hours emergencies, please ring Women's Hospital on 0151 708 9988 and ask to speak to a midwife. The midwife will only see post- natal mums up until your baby is 28 days old. Do not take your baby to the visit.

If you are a nursing mother, please speak to the Ward Manager to see if you are eligible for meal vouchers.

8 Visiting

Parent/Carers and visitors can gain access to the Unit by using the intercom system at the entrance to Ward 1C (opposite EDU) on the left-hand side of the wall as you approach the double entrance doors. These doors will open towards you. Please state the name of the patient you are coming to visit. Parent/Carers are welcome to visit their child at any time. Brothers and sisters under 16 years old must be accompanied by a Parent/Carer at all times. Family, friends and other visitors are welcome to visit between 10.00am and 7.30pm. A maximum of four visitors are permitted at the bedside at any one time (not including brothers and sisters).

Visitors may be asked to leave during procedures and handover times.

To minimise the risk of infection, please wash your hands or use alcohol gel when you enter and leave the ward and before and after contact with your baby. Any Parent/Carers, brothers and sisters and other visitors who feel unwell must inform the Nurse in Charge before visiting, who will advise whether it is appropriate to visit. All visitors must press the entrance buzzer to gain access to Ward 1C. For Health and Safety for all our patients, DO NOT allow any other individual to follow you onto the ward. Parent/Carers only are permitted in the Hospital after 8.00pm.

9 Discharge

As part of the admission process, an estimated discharge date is determined by the clinicians wherever possible. This should be discussed with you at the earliest opportunity to enable you to be fully informed and to begin planning getting your child back home.

• Ask when your child is expected to be discharged so you can plan ahead and make arrangements for going home.

• Ask for a discharge patient information leaflet.

• Make sure you receive any medication your child needs to go home with. If further medication is required, staff will advise where to get it from.

• Do tell our staff if you need any further information or have concerns.

• Ask when your child will need to follow up with a consultant appointment.

• Make sure you have received your child’s discharge letter.

Wi-Fi

Access to the internet is available to all patients, visitors and Carers. To connect to our wireless network: 1) Go to your Wi-Fi settings and select ‘Alder Free Wi-Fi’. 2) Connect. Please note that some internet content may be blocked, and Wi-Fi should not be used for viewing TV programmes or making phone calls as this may restrict the connection for other users.

10 Mobile Phones and Electrical Equipment. Ward staff will tell you if, and where, you can use your phone. We ask that phones are kept on silent, so that you do not disturb patients and other Parent/Carers.

Please do not use your phones during rest and sleep times or at night (9.00pm to 7.00am). It is prohibited to take photographs of children other than your own on the ward. Electrical equipment, other than phones and tablets/computers, must not be brought onto the Ward. Play Room and Play Specialist

A play room is situated at the far end of the ward (Yellow zone). Siblings are welcome to use it between 09.00am and 7.00pm providing they are supervised by an adult. Crafts and games are provided for the patients during the week by our Play Specialists and Play Assistants. They can also offer your child preparation and distraction for an invasive procedure.

The Play Specialist will facilitate preparation sessions using therapeutic play for any child/young person with anxieties or fears surrounding their hospital admission. To avoid the spreading of infection, patients and visitors who have tested positive for a virus/ infection are not to visit the play room. The Play Specialist will organise play activities on the play decks. Children should not be left unsupervised on the play decks.

Ace Club Ace Club is held every Saturday from 10.00am to 12 noon. The group is held in the canteen space of the Atrium. If you would like any more information, please feel free to contact the Concierge/ Reception desk on ext 2394. The Club offers a wide range of activities such as arts and craft, board games, dressing up and much more. All patients and siblings are welcome to attend the group as long as they are accompanied by a Parent/Carer.

11 Alder Play App The Alder Play App is designed to make your child feel more comfortable at Alder Hey and reward them through fun and play experiences during their visit. The Alder Play App is designed to help and support you and your child. The App allows you to:

• Pick a buddy so you can take a look around Alder Hey. • Collect stickers from staff to unlock playful rewards. • Learn about routine procedures, like having a blood test and what it’s like to have an X-ray. • Play some games with Alder Hey friends, the ‘Hardleeys’. • ‘Ask Oli’, who can answer questions you might have about coming to the hospital.

To download your free Alder Play App please search for ‘Alder Play’ on the App stores.

Cash machine

A cash machine is situated opposite the Baguette Co. in the Atrium, by the entrance to the multi-storey car park.

Cash Office

If you are entitled to claim your travel expenses, you can reclaim the money by taking your form to the cash office situated in the Atrium, by the entrance to the multi-storey car park. The Cash Office is open Monday to Friday 9.00am to 4.30pm.

12 Shops and Restaurants

Hot food is served in the restaurant at the following times: Mon to Fri: 7.30 to 10.30am; 11.45am to 2.00pm; 3.45 to 7.00pm Sat & Sun: 7.30 to 10.30am; 11.45am to 2.00pm; 3.45 to 6.45pm Teas and coffees and a range of fresh snacks, salads and sandwiches are served throughout the day. There are coin- operated vending machines available 24 hours a day.

The Atrium also has the following outlets: Baguette Co: 7.30am to 4.30pm Costa Coffee: Mon to Fri: 7.30am to 8.30 pm Weekends: 9.00am to 5.00pm WH Smith: 8.00am to 7.30pm M&S Food to Go in WH Smith: 8.00am to 7.30pm

In the immediate neighbourhood there are supermarkets, shops, cafes etc. is a busy shopping area with a wide variety of shops and is approximately a 15-minute walk from the hospital. Turn right outside the East Prescot Road entrance (by Costa), towards Queens Drive passing a Sainsbury’s Superstore on the left and Old Swan is straight ahead.

13 Spiritual Care

The experience of coming to hospital can cause many different emotions in patients, Parent/Carers and relatives. It may be that you feel that you might like to talk in confidence to a member of our Spiritual Care team.

We understand that many people will have given little thought to a need for God in their lives, and that can sometimes make it difficult to speak to a person whom they see as being ‘religious’. Please don’t be worried about that.

The support we offer is not just for people who are religious or who go to . We are here for anybody and everybody, regardless of whether you profess a faith or not.

Be assured that we will not preach at you, and we will not try to push religion on you. But we will listen to you; we will pray with you if that’s what you would like, and we will walk with you to try to help you along what may be a difficult and long road, so that you don’t feel that you are on your own.

We are contactable during weekdays in the Spiritual Care office or by asking a staff member to page the switchboard. Out of hours and at weekends, we offer 24-hour emergency cover, which is accessed by asking a staff member to page the switchboard.

The Spiritual Care office is located in the Sanctuary on the lower floor of the Treehouse in the Atrium; take the purple lift to floor 2. The Sanctuary is accessible 24/7, and for those who require them, prayer mats and holy books from other major faiths are available. There is also an ablution facility.

14 The Forum @ Alder Hey The Forum is a platform for children, young people and their families to share their experiences, raise any issues and share ideas to enable a positive experience. The forum provides opportunities to meet other children, young people and Parent/Carers to share ideas and work as partners in care to make Alder Hey a world-renowned service which is truly child-centred and where the voices of children and young people and their Parent/Carers are valued participants in decision-making and innovation for the future. Would you like to give up some of your spare time to get involved at Alder Hey? If you are aged 5-19 and have been to the hospital recently then we want to hear from you. We are looking for current and former patients and their siblings plus those who have not experienced direct care or any involvement at Alder Hey to join our children and young person’s Forum. We want to find out what you think about the hospital and how we can make it better for other young people. The Forum meets for a day every half-term between 10.00am and 3.00pm. What do I get from joining the Forum?

• Build your self-confidence. • Meet new people. • Develop new skills. • Improve your communication skills. • Knowledge that you’re trying to make things better. • Be involved in projects. • Engage with a variety of professional and influential people from different organisations. • HAVE SOME FUN.

If you would like any future information please email to [email protected] or contact Concierge/Reception Staff in the Atrium for details.

15 Waste Disposal on the Ward

Waste costs in the hospital are very high due to the way it has to be treated before it leaves site and after it arrives at a disposal location. We would ask that you help us as much as you can and, as you would do at home, please sort your waste as follows:

Infectious Waste:

If your room has orange waste bags then this means that your child may have an infection that could be contagious. Therefore all the waste from the room including magazines, plastic bottles and nappies etc must go in this bag.

Offensive Waste:

If your room has a tiger stripe waste bag then we ask that you place the above items in this bag. Please do not put any coke cans or general waste in these bags as it is very expensive to treat.

Domestic Waste (NO Nappies or Sanitary towels please):

Please place all domestic waste in the black bin bags.

16 Recycling (No infectious waste please):

The above items can be placed for recycling; they must be clean and contain no liquids or solids. They can be placed in a blue plastic bag.

Batteries:

We have a battery collection bin on each ward. Please ask a member of staff for its location.

Sharpsmart Containers:

You may see some Sharpsmart containers on wards. These are not to be used or accessed by patients.

Waste Queries:

Should you have any queries about waste, please do not hesitate to contact a member of staff.

17 Share your Experiences

We would like to hear about your experience at Alder Hey. We use your feedback to develop our services and make visiting Alder Hey a positive experience for everybody.

Please ask Ward Staff for a copy of the ‘Friends and Family Test’. Results from these tests will be available on the NHS Choices website (search for Alder Hey).

You can also tell us about your experience in a number of ways:

• On the Alder Play App. • Through the Patient Advice Liaison Service (PALS). • The ‘Friends and Family Test’ or ‘Inpatient Survey’ at: www.alderhey.nhs.uk.

PALS is here to help sort out questions and concerns you may have. PALS will also advise you about making a complaint and refer you to the Complaints Service.

Please speak to our PALS team about any concern you want to discuss. You can visit them in the Atrium near the Treehouse from 9.00am to 4.00pm, Monday to Friday.

Or you can:

• Email [email protected] • Call 0151 252 5374 or 0151 252 5161. • Write to: PALS, Alder Hey Children’s NHS Foundation Trust, Eaton Road, Liverpool L12 2AP.

If the team are helping other families you may need to leave a voicemail. They will return your call as soon as they are able.

18 Contact Numbers:

Main Hospital telephone number: 0151 228 4811

Ward 1C Cardiac Unit Zone Extension numbers:

• Orange Zone: ext 4203/2418

• Green Zone: ext 4155/4204

• Blue Zone: ext 2740/4156

Car Parking

On entry to the car park, you will pick up a yellow token from the machine. At the end of your visit you will find car parking pay machines in the Atrium next to the entrance/exit to the car park.

The first 30 mins is free, after which there is a charge. A 30-day pass is available for £30, which enables visitors to park as many times as they need within a month. A 10-day pass for £10 is also available for 10 consecutive days. Please note that both the 30- day and 10-day passes are non-refundable.

These passes can be purchased from the Cash Office, located in the Atrium of the hospital. There is no free disabled parking.

If you are eligible to claim travel expenses, please contact the Ward Manager or Ward Clerk for a claim form.

19 Patient’s Charter Here are some things that you can do for us, together with our commitment to you.

Respect the needs of other patients and families.

• We will ensure that our treatment of patients does not impact on others as far as possible.

Treat NHS Staff and other patients and visitors with dignity and respect.

• We will treat all individuals with dignity and respect.

Recognise that violence and aggression towards staff, patients and families is not tolerated and may lead to our Violence and Aggression at Work Policy being invoked and prosecution.

• We will seek to understand people’s priorities, needs, abilities and limits. We will take your concerns seriously and ensure that the treatment of others does not impact on you as far as possible.

Tell us if you wish some of your information not to be shared with other individuals/organisations as stated in “Looking after your Records”.

• Where you ask for some information not to be shared with individuals/organisations we will discuss the consequences of not sharing the information with you. We will record your request in the patient’s notes and the outcome of the discussion.

Respect the privacy of other patients, visitors and also our staff. You must consider others present and your environment before taking photographs or making recordings. If you wish others to be included, ask if they are happy with this and respect their decision.

• Confidential information about service users or patients will be treated confidentially and respectfully. All staff are required to attend training on protecting the privacy of individuals on an annual basis.

20 Ask staff for their permission before recording or photographing any medical practices, consultations or anything that could be part of a medical consultation. Do not go ahead unless permission is given. Anything in relation to how we work is a public record and may be accessible if requested in writing.

• We will try to accommodate your request where practical to do so, and where staff don’t want to be recorded we will provide a copy of a patient’s clinical records to those who have parental responsibility or the patient themselves. This can be done by contacting our Access to Health records team.

Please give feedback to us – both positive and negative. If your experience could have been better, please tell us.

• We will act on the information you give us to constantly improve the services and care we offer children and their families.

Tell us if any patient details change, such as address, contact number, GP or if you feel some of the information we hold about you is inaccurate.

• We will keep the records that we hold up to date and record any changes you notify to us where appropriate.

Give us accurate information to support the care of you or your relative so that we can choose the most appropriate treatment for them.

• We will listen to you and work with you to achieve an excellent experience. We will make sure the individual or any special needs are considered when planning and providing care.

Recognise that the information we collect will be shared with those who have a direct involvement in the care of the patient.

• Members of our care teams will share confidential information when it is needed for the safe and effective care of an individual; we have a leaflet called ‘Looking after your records’ which tells you how we use the information we collect and who we may share it with.

21 Keep your hospital appointments, or if you have to cancel, do so in good time so we can offer that appointment to another patient.

• We will keep any changes to your scheduled sessions to a minimum and accommodate you where we can. We will always give as much notice as we can to changes in your appointments.

Recognise that we are a teaching hospital and understand that we may ask you if you are happy for students to be present.

• We will always ask if you are happy for students to be present and will respect your decision.

When on our premises do not access or view, either on the Trust internet, or the internet via other means, anything which could be considered offensive, inappropriate, or indecent.

• We will block access, by means of filtering systems on our network, as far as is practicably possible, to any material considered offensive, inappropriate, or indecent.

Please tell us information about your family. • Language. • Ethnicity. • Religion and belief. • If you have a long term health condition. • How you would prefer to be communicated with.

• We will keep this information confidential and use it to help us improve your experience when visiting us

22 Volunteers

You may have come into contact with some of the Volunteers when you arrived in the Atrium, where they meet and greet families, helping them to check in and find their way to appointments. Volunteers complement the roles of paid staff; they do not replace them.

Volunteers provide support that adds value to the patient experience. Concierge Staff on the Reception Desk in the main Atrium and the Volunteer Support Desk at the Eaton Road entrance are your initial points of contact.

Everton in the Community volunteers visit the hospital on a daily basis, rotating between wards, engaging children in sport and fun activities. Information on their visits can be obtained from the Concierge/Reception desk in the Atrium.

23 Volunteers can be made available to support you and your child while in hospital, whether it be a long or a short stay by, for example:

• Accompanying your child onto the ward play decks. • Assisting children at meal times. • Cuddling/bottle feeding small babies where the Parent/ Carers are not able to visit. • Reading stories and assisting with play and craft activities on the wards. • Befriending a child where the Parent/Carers are unable to visit regularly. • Helping distract siblings when the Parent/Carers are talking to medical staff. • The wards are also visited regularly by Holly (the Alder Hey therapy dog), a magician, music therapists, a barber and a beauty therapist.

If you would like to arrange a special visit for your child, please contact [email protected] or call 0151 228 4811 and ask for the Concierge desk.

24 Additional Information • visit our website: http://www.alderhey.nhs.uk/

• find us on Facebook: https://www.facebook.com/alderheyhospital

• Child and Adolescent Mental Health Services : https://alderhey.nhs.uk/parents-and-patients/services/ camhs Telephone: 0151 293 3577 • follow us on Twitter: https://twitter.com/alderhey https://twitter.com/team1c

• email the Volunteers: [email protected]

Cardiac Charities and Organisations

• Children’s Heart Association: http://www.heartchild.info • Children’s Heart Foundation: http://www.chfed.org.uk • Little Hearts Matter: http://www.lhm.org.uk

Alder Hey Children’s NHS Foundation Trust Eaton Road Liverpool, L12 2AP (use L14 5AB on satnavs for East Prescot Road car park) Switchboard: 0151 228 4811

Version: 1.00 Mar 2019 Review date: Mar 2020

25 This leaflet only gives general information. You must always discuss the individual treatment of your child with the appropriate member of staff. Do not rely on this leaflet alone for information about your child’s treatment.

PLEASE DO NOT REMOVE THIS BOOKLET FROM THE WARD

26