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TABLE OF CONTENTS

PWS Community Response Letter to FDA ...... 3 References ...... 8 Impact of COVID on PWS Families – A survey in the Global PWS Registry ...... 9 Sign-On Background ...... 10 Sign-On Survey ...... 11 Comments from the PWS Community ...... 12 DESTINY-PWS Principal Investigators ...... 12 Parents and Caregivers of Individuals who identified as DESTINY-PWS Trial Participants ...... 13 Parents and Caregivers of Individuals in the US ...... 16 Parents and Caregivers of Individuals Outside the US ...... 56 Signatures ...... 70 Parents and Caregivers of Individuals with PWS in the US ...... 70 Parents and Caregivers of People with PWS Outside the US ...... 76 Individuals with PWS in the US ...... 81 Individuals with PWS Outside the US...... 81 Researchers and Scientists ...... 82 Healthcare Providers ...... 82 Other Supporters ...... 85

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PWS Community Response Letter to FDA

April 7, 2021

Re: Request for Regulatory Flexibility & Review of NDA for DCCR, a Potential Treatment for Prader-Willi Syndrome; Unique Impact of COVID-19 on Prader-Willi Syndrome Clinical Trials

Dear FDA Leadership,

We represent the Foundation for Prader-Willi Research (FPWR) and the Prader-Willi Syndrome Association | USA (PWSA|USA), two patient advocacy groups that support thousands of individuals with Prader-Willi syndrome (PWS) and their families. We are writing on behalf of the patient community to bring to your attention a recent decision by FDA regarding a potential new therapy for PWS, and to request further dialogue and consideration. Specifically, the decision by the FDA advising Soleno Therapeutics that additional efficacy trial(s) for DCCR (diazoxide choline extended release) are needed prior to an NDA submission has raised concern that access to this promising therapeutic will be unnecessarily delayed. We are asking the FDA to reconsider in light of the unprecedented circumstances of the past year. More broadly, we appreciate that the FDA has a long-standing policy to exercise regulatory flexibility, and a history of doing so in rare disease; however, we propose that the full potential of regulatory flexibility to efficiently advance orphan product development in PWS has not been realized. We are asking for additional dialogue to convey the unique challenges of PWS clinical trials and to collaboratively work with the Agency to find solutions for Soleno’s product as well as other clinical packages before the Agency.

PWS is a rare neurodevelopmental and metabolic disorder caused by loss/inactivation of a contiguous set of imprinted genes on chromosome 15. Clinically, PWS is characterized as a constellation of symptoms including multiple endocrine deficiencies, a challenging behavioral phenotype, hyperphagia, and, in environments where food is not strictly controlled, morbid obesity. PWS is associated with increased mortality compared to the typical population, with a median age of death of 29 in the largest study to date (1). Common causes of death include complications of obesity (respiratory failure, cardiac issues), hyperphagia-related accidents (e.g., getting hit by a vehicle when running away to get food, choking while rushing to eat food), gastric rupture and pulmonary embolism. To keep children and adults with PWS safe and restrict food access, families must create a completely locked down environment, establishing an institution-like environment within the home, leading to a poor quality of life for the person with PWS and the entire family. Currently, there are no FDA approved treatments for PWS-associated hyperphagia.

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Our community has worked diligently to build resources that address the FDA’s call for patient experience data, demonstrating high disease burden and the need for effective therapies addressing hyperphagia. We have demonstrated through family stories (2), surveys (3), and a more formal, best-worst scaling study (4) that hyperphagia is “the” aspect of PWS that families want addressed through new therapies, followed by other critical behavioral issues such as anxiety and aggression. We have demonstrated the tremendous unmet medical needs of individuals with PWS (2, 3), and the considerable burden of disease, showing that caregiver burden in PWS exceeds that of caregivers for traumatic brain injury and Alzheimer disease (5) and that higher levels of hyperphagia are associated with increased caregiver burden (6). We have also demonstrated that caregivers are willing to accept considerable risk in exchange for modest improvements in hyperphagia (7, 8). In the absence of a ‘cure’, families would welcome treatments that alleviate PWS symptoms. Finally, as suggested by the Agency during a Critical Path Innovation Meeting, we have also solicited input from individuals with PWS, speaking on their own behalf. Although this was challenging (not all individuals are capable of expressing their views), Dr. Elizabeth Dykens and her team elicited opinions from young adults with PWS on treatment preferences and disease burden, which nicely align with that of caregivers (9). This patient experience data is complemented by natural history studies that provide critical information to support clinical trials, including an NIH study funded 2006-2014 (10) as well as an ongoing registry-based prospective study of behavioral changes over time and serious medical events (11).

COVID-19 had a profound impact on the conduct and outcome of ongoing PWS clinical trials. Two large Phase 3 clinical trials evaluating new drugs for PWS were underway at height of the first COVID-19 wave of infections and related public health measures (e.g., stay at home orders). Beyond the cross-cutting issues that the clinical trial enterprise faced as a result of the pandemic (e.g., missed/delayed clinic visits), there were unique impacts on the PWS community that, we believe, could have led to confounding of clinical trial data upon the onset of the pandemic in the US (March 2020). PWS is defined by an extremely complex behavioral phenotype, with hyperphagia, anxiety, temper outbursts, rigidity and obsessive-compulsive behaviors interacting in the setting of social cognition and intellectual deficits (12). The primary outcome measure for most PWS clinical trials is the Hyperphagia Questionnaire for Clinical Trials (HQ-CT), a caregiver- reported outcome measure assessing observable hyperphagia behaviors. While we believe this measure is appropriate for the PWS population and it has generally performed well in previous clinical trials, a limitation of the measure is its potential to be impacted by environmental changes. We believe this limitation became insurmountable in the face of the pandemic. Indeed, we have collected data on the impact of the COVID-19 pandemic on the US PWS patient community, with a survey administered through the Global PWS Registry. This survey documented increased caregiver stress, increased anxiety for individuals with PWS, as well as overall changes in food-related behaviors and activity due to COVID, with behaviors changing in sometimes unpredictable ways (13). These findings are corroborated by a similar study of PWS families in Europe (14). While the uncertainty and unexpected changes to routine that were experienced across the US had a profound impact on everyone, the particular sensitivity and inability of individuals with PWS to cope with unexpected change is well documented and would be expected to negatively impact the consistency and reliability of a measure such as HQ-CT.

In a Phase 3 trial by Soleno Therapeutics, pre-COVID data showed significant improvements in HQ-CT scores; families reported positive outcomes with continued improvement in the open label extension. Publicly released data from Soleno Therapeutics demonstrated that PWS participants receiving DCCR showed a drop in HQ-CT scores. While the reduction in HQ-CT scores did not reach statistical significance for the

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overall study, a significant improvement was detected for the prespecified, severe hyperphagia group [LS Mean Difference DCCR:Placebo -5.41 (2.09), p=0.0124]. In addition, significant improvement in hyperphagia was detected in the entire cohort when data from the pre-March 1, 2020 cut off (e.g., the start of the pandemic lockdown period) was considered [LS Mean Difference DCCR:Placebo -3.13 (1.48), p=0.037]. While we understand that prespecification of analyses protects against bias and improves reliability of findings, we believe that the robust pre-pandemic findings should not be dismissed, particularly given the unique circumstances of a global pandemic, paired with our community’s significant unmet medical need, which makes us accepting of less certainty of treatment benefit.

Importantly, objective secondary endpoints (DEXA scans, biochemical markers) showed significant improvements (e.g., p= 0.001 for change in body composition as assessed by lean body mass : fat mass ratio vs placebo), which continued to improve in the open label extension, while subjective measures trended consistently in the right direction. This is consistent with what we hear anecdotally from participants in the trial and their families. To this end, more than 26,000 comments from PWS families and supporters in the community were submitted to our organizations in a recent call for input regarding DCCR’s potential for treatment in PWS. Notably, site Principal Investigators and more than 80 family members of those enrolled in the trial provided their perspective (see appended comments for full quotes). Among these:

“As a PI, I have noticed considerable improvements in body composition, energy intake, hyperphagia, and quality of life for my patients participating in the DCCR trial…. Both patients and caretakers expressed a sense of relief from having less conflict and rigidity around food routines. They expressed gratitude that they could now do things that families not living with PWS take for granted, such as go out to eat, travel, participate in after school activities, and socialize outside the home without the constant fear and anxiety surrounding unwanted food access….” P. Salehi, MD

“The effects of DCCR on the patients in the trial were multifactorial. While it definitively decreased the hyperphagia drive, it also significantly improved body composition and metabolism. Other changes that were noted by parents and patients, included decreased anxiety, both around food and overall, decreased compulsive behaviors, and improvements in socialization…. It was abundantly clear to patients and PIs that the impact of COVID-19 directly negatively impacted the results of the study with regard to the questionnaire data. Therefore, I ask that the FDA reconsider the request for an additional study with this life-changing medication, given the negative impact of the COVID-19 pandemic on the results of this study and, perhaps more importantly, the fact that there is currently no available treatment for the horrific symptoms of this syndrome….” J. Miller, MD

“… Our son no longer pushes, fights, argues, runs away or gets angry because he no longer experiences hyperphagia. DCCR has given him the chance to graduate from high school and seriously consider college in his future. DCCR has allowed him freedom to no longer need supervision 24/7. He now has a chance to live a more healthy and productive life. Taking DCCR away will only cost him our family and society much more in the future…. (age 17)

“Our son's entire physique has changed while taking DCCR. His endurance for physical activity has escalated and he's able to ride his bike for 5+ miles, take hour long walks, complete workout videos. It's night and day difference.” (age 8)

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“We have noticed a remarkable difference with DCCR. Our daughter's anxiety has decreased tremendously. We have been able to stop locking up food because she has a better control over her hunger and her food seeking. She has stopped having outbursts and temper tantrums that disrupt our home and cause stress on our entire family. … The difference this medicine has made for our child is night and day in her behavior and her ability to have a more normal life.” (age 15)

While we appreciate that these stories are anecdotal, they deviate remarkably from the documented natural history of PWS. Based on the publicly available data and feedback from our community, we are encouraged that DCCR is having a positive impact in PWS and propose that FDA review and analysis is warranted to speed access to this potentially impactful treatment.

This drug has a well characterized safety profile and no unexpected serious adverse events were reported. DCCR is an extended release version of diazoxide, which has been used clinically for more than 40 years in infants, children and adults. Importantly, diazoxide is well tolerated with a well characterized safety profile. The risks associated with this drug appear to be relatively low and can be readily monitored in the clinical setting. Given the serious consequences of PWS and the clear and significant unmet medical need, we believe our community’s risk tolerance is much higher than the risks presented by DCCR.

Additional large clinical trials for this drug in the PWS may not be feasible. While the FDA advised Soleno Therapeutics that additional DCCR clinical trial(s) are needed prior to NDA submission, as shared publicly in a March 8, 2021 press release, we are concerned that conducting an additional large efficacy study is not feasible in our population for the foreseeable future. COVID-19 disruptions continue and it is unclear how long it will take for our vulnerable population to be comfortable traveling to clinical trial sites. Further, the behavioral issues associated with the disruptions of routine will continue and are likely to be triggered again as vaccines become more widely available and daily routines change again, making the initiation of a new study in PWS susceptible to risk.

In addition, there has been widespread discussion about DCCR in the PWS community, further challenging placebo effect issues that can be difficult in any setting, but are particularly challenging in a close, rare disease community. Finally, our community is acutely aware that only a small number of clinical sites can effectively manage the challenging and sometimes extreme behaviors that characterize PWS. Potential trial participants are limited by the ability of their caregivers to manage these extreme behaviors during travel and at clinical trial sites.

We request additional flexibility, consideration and dialogue, given this unprecedented situation. Given the unanticipated impact of the COVID-19 pandemic, the life-threatening nature of PWS, the tremendous unmet medical need of this rare disease, and the extreme difficulties of performing traditional clinical trials in the PWS population, we are imploring the FDA to utilize its long-standing policy of applying reasonable, science-based regulatory flexibility in its evaluation of results from PWS clinical trials. We believe it is reasonable to expect that critical review of the DCCR data will establish that there are real and meaningful benefits with limited risk, and a degree of uncertainty that is appropriate for our community. Also, given that initiating a new trial during the ongoing COVID-19 pandemic is not advisable, there is no path forward for the foreseeable future. Therefore, we ask that you consider the full totality of the DCCR clinical trial results by conducting a fulsome and careful review of an NDA for this product.

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Finally, we would welcome a robust dialogue between the FDA and the PWS community to convey the nuances and perspective of PWS families as it relates to unmet medical need, risk tolerance, acceptance of uncertainty of benefit, and challenges in the conduct of clinical trials, for DCCR as well as other products before the Agency for the treatment of PWS. We believe that such a discussion would advance the critical solutions needed for our community.

Sincerely,

John Walter, CEO Paige Rivard, CEO Foundation for Prader-Willi Research Prader-Willi Syndrome Association | USA

Theresa Strong, PhD Director of Research Programs Foundation for Prader-Willi Research

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PWS COMMUNITY RESPONSE LETTER TO FDA

References

1. Butler et al., Causes of death in Prader-Willi syndrome: Prader-Willi Syndrome Association (USA) 40-year mortality study. Genet Med, 2016 doi:10.1038/gim.2016.178 2. PWS across the Lifespan – video overview of PWS symptoms, impact and needs: https://vimeo.com/242017102 3. Impact of PWS on Individuals and Their Families and Views on Treatments: Results of an International Online Survey. Survey of >750 families re: impact of PWS and unmet medical needs, with open text comments: https://www.fpwr.org/pws-patient-voices 4. Tsai et al Caregiver priorities for endpoints to evaluate treatments for Prader-Willi syndrome: a best- worst scaling. https://www.tandfonline.com/doi/full/10.1080/13696998.2018.1528980 5. Kayadjanian et al High levels of caregiver burden in Prader-Willi syndrome https://journals.plos.org/plosone/article?id=10.1371/journal.pone.0194655 6. Kayadjanian et al., Characteristics and relationship between hyperphagia, anxiety, behavioral challenges and caregiver burden in Prader-Willi syndrome. PLoS ONE 16(3): e0248739, 2021. https://doi.org/10.1371/journal.pone.0248739 7. Bridges, J. PWS Caregiver Risk Tolerance: Academic perspective on patient preference research. https://pharm.ucsf.edu/sites/pharm.ucsf.edu/files/cersi/media-browser/John%20Bridges.pdf; 8. Tsai S, et al. Measuring Meaningful Benefit-Risk Tradeoffs to Promote Patient-Focused Drug Development in Prader-Willi Syndrome: A Discrete Choice Experiment (submitted) 9. Dykens et al, “The cure for us is a lot of things”: How young people with Prader-Willi syndrome view themselves and future clinical trials (in preparation) 10. Butler MG, et al. Prader-Willi syndrome and early-onset morbid obesity NIH rare disease consortium: A review of natural history study. Am J Med Genet A.;176:368-375, 2018 11. https://clinicaltrials.gov/ct2/show/NCT03718416 Natural History Study of Serious Medical Events in PWS (PATH for PWS) 12. Schwarz L et al. Behavioral Features in Prader-Willi Syndrome (PWS): Consensus paper from the International PWS Clinical Trial Consortium (submitted/in revision) 13. Impact of COVID on the PWS community – blog of survey results: https://www.fpwr.org/blog/pws- registry-data-impact-of-covid-19-on-pws-families-infographic (data attached) 14. Wieting et al., Behavioral change in Prader-Willi syndrome during COVID-19 pandemic. JIDR 2021, doi: 10.1111/jir.12831

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IMPACT OF COVID ON PWS FAMILIES

Impact of COVID on PWS Families – A survey in the Global PWS Registry (US/UK parents of children & adults, ages 4+ May-August 2020, n=322 responses) See also: : https://www.fpwr.org/blog/pws-registry-data-impact-of-covid-19-on-pws-families-infographic

85% of caregivers report higher levels of Overall, behavior has been more stress. difficult to manage.

Don’t know Harder Easier

Same

Change in behaviors for the person with PWS.

,

100% Higher 80% 60% 40% No 20% change 0% Lower Sleep Amt Sleep Weight Physical Social Disruption Activity Activity

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PETITION SIGN-ON Please apply regulatory flexibility and review an NDA for DCCR.

Sign-On Background

Over a period of 7 days, from March 12-19,2021, members of the PWS Community were invited to lend their voice and experience through an online sign-on in support of a request that the FDA apply regulatory flexibility and to review the DNA for DCCR, a potential treatment for Prader-Willi syndrome. 26,640 individuals from around the world completed the sign-on with 79% of signatures representing US residents. Parents and caregivers represented people with PWS ages 0 to 62 years old.

97% of parents, caregivers, healthcare providers and people with PWS would like the option to give DCCR to their loved one with PWS if approved by the FDA.

Over 80 DESTINY-PWS trial participants provided insight into their experience with DCCR. The majority of these trial participants continue to take DCCR. Comments from these trial participants, along with feedback from the PWS community on what a treatment for their loved one with PWS could mean for them and their family, are provided on the pages to follow.

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PETITION SIGN-ON Please apply regulatory flexibility and review an NDA for DCCR.

Sign-On Survey

What is your relationship to PWS? • Parent • Caregiver (non-parent) • Healthcare provider • Scientist • Person with PWS • Other (please specify)

What is the current age of the person with PWS you are advocating for? ______

Based on the data that has been presented, would you want the option to give DCCR to your loved one? • Yes • No

What would an approval of DCCR mean for your loved one with PWS and your family? ______

Did your loved one participate in the DCCR trial? • Yes • No

If your loved one participated in the DCCR study, are they still taking DCCR? • Yes • No

If your loved one participate in the trial, please feel free to share your experience and observations.

______

Name Country E-mail Phone

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COMMENTS FROM STUDY PI’S WHAT BENEFITS DID YOU OBSERVE DURING THE DESTINY-PWS TRIAL?

Comments from the PWS Community DESTINY-PWS Principal Investigators

As a PI, I have noticed considerable improvements in body composition, energy intake, hyperphagia, and quality of life for my patients participating in the DCCR trial. In terms of positive health outcomes, patients who started with an obese BMI significantly improved their BMI with minimal change in food intake or daily activity. Lean patients in the trial who already had a normal BMI due to extremely supervised calorie intake and food access restriction also saw considerable physical benefits. Anecdotally, they were able to increase their daily amount of calories to maintain a normal BMI, have more flexibility in their food routines, and less conflict with their families regarding food. These latter effects were not properly captured in the outcomes of the trial but were consistent and significant. In addition, the impact of this medication extends beyond the patient to include their caretakers and families as decreased hyperphagia and anxiety surrounding food has improved quality of life for all. Both patients and caretakers expressed a sense of relief from having less conflict and rigidity around food routines. They expressed gratitude that they could now do things that families not living with PWS take for granted, such as go out to eat, travel, participate in after school activities, and socialize outside the home without the constant fear and anxiety surrounding unwanted food access. There is no other medication currently available for this population that has these beneficial outcomes. Access to such a medication would significantly improve the lives of individuals with PWS and their families. Seeing both physical and psychosocial benefits for participants in this trial, I support this current request for flexibility around the decision of making DCCR more widely available to the PWS community.

Parisa Salehi, MD Associate Professor of Pediatrics, University of WA, Department of Pediatrics, Division of Endocrinology Clinical director SCH Prader-Willi Syndrome Clinic

The effects of DCCR on the patients in the trial were multifactorial. While it definitively decreased the hyperphagia drive, it also significantly improved body composition and metabolism. Other changes that were noted by parents and patients, included decreased anxiety, both around food and overall, decreased compulsive behaviors, and improvements in socialization. These patients were able to do things they had never been able to do prior to starting DCCR: they attended school dances with their peers, they had sleepovers at friends’ homes, two were able to start drivers education, and they went out to dinner with their siblings. All of these things were unimaginable prior to DCCR. So many parents commented that this medication gave the child back to them who had been there prior to the development of the hyperphagia that is part of this extremely difficult syndrome. Parents told us that for the first time ever, they were not anxious about what would happen when their child was at school, the children were able to learn better in school and grades improved. These positive effects were likely due to the decreased interest and anxiety about food, and I was stunned to see just how far-reaching the changes in hyperphagia could be. It was abundantly clear to patients and PIs that the impact of COVID-19 directly negatively impacted the results of the study with regard to the questionnaire data. Therefore, I ask that the FDA reconsider the request for an additional study with this life-changing medication, given the negative impact of the COVID-19 pandemic on the results of this study and, perhaps more importantly, the fact that there is currently no available treatment for the horrific symptoms of this syndrome. DCCR offers unique hope to this patient population.

Jennifer Miller, MD, MSCI Professor, University of Florida, Pediatric Endocrinology Director, Prader-Willi Syndrome Center of Excellence

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COMMENTS FROM PARENTS & CAREGIVERS OF INDIVIDUALS WITH PWS WHO IDENTIFIED AS DESTINY-PWS TRIAL PARTICIPANTS

Parents and Caregivers of Individuals who identified as DESTINY-PWS Trial Participants If your loved one participated in the trial, please feel free to share your experience and observations.

It has helped my daughter reduce need to She is less focused on food, she is no longer where her hyperphagia would be without food seeking and behavior outbursts. They sneaking food, she often leaves food on her DCCR. are still there but not at the same frequency. plate, and is ok with skipping snacks. None of this was typical behavior before she was It has made a huge difference in food Showing positive results. started on DCCR. behaviors; we have also seen a jump in reading and writing at school. It has also Helps with hyperphagia. Allows my daughter Our son has been taking DCCR for over a reduced the amount of nonstop talking from to skip snacks and I can be late with meals. I year now and we have noticed a a kiddo with pws. don’t have to lock up the kitchen. Allows her tremendous difference in his loss of to focus on fun things. appetite. He's no longer obsessing about The impact on her quality of life has been meals like he used, he can wait to eat and he immense. As a direct result of the drug, my also rarely puts up a fight anymore when we We have seen ZERO harmful side effects daughter had a significant reduction in limit his food intake. We need to keep from DCCR. We’ve seen helpful benefits, but anxiety, significant improvement focusing, taking this drug for him to keep his hunger the questions about notifying any changes significant increase in the ability to accept and anxiety at a low level! since she started the drug have been schedule changes, the ability to skip snacks difficult to answer because she started the and be late for meals with no issue at all, extension in mid-March 2020, when pretty We did not notice any differences in our just to name a few. Especially during the much the world turned upside down and daughter during the trial, but we know many pandemic, I can’t imagine how life would everything changed. So it’s been hard to who have had amazing experiences. We have been for her or our family without her distinguish what is DCCR-related and what is want this drug on the market because it has being on this drug. Virtual learning has been COVID-related. But H has remained a happy, the possibility of helping the majority of a million times better than we could have otherwise healthy child while on DCCR. individuals with PWS. ever imagined, again that is due solely to the positive impacts of the drug. For the first time in my daughter’s school career, this Our son's entire physique has changed while Our daughter’s body composition has past Monday (first day of in-person learning taking DCCR. His endurance for physical improved and after asking her directly how a in over a year) I put her on the bus and activity has escalated and he's able to ride DCCR has helped her, she said without wasn’t in tears with overwhelming worry, his bike for 5+ miles, take hour long walks, hesitation, ‘it helps me feel full.’ That’s ALL I fear and anxiety. Fearful of my phone complete workout videos. It's night and day need to hear in order for me to know this ringing because she snuck food or whatever difference. medication works and is a game changer for our community. other PWS related issue reared it’s ugly head. Again, that is due solely to the This medication has helped her a lot. It has positive impacts of this drug. After seeing Our daughter had majorly reduced anxiety, a helped her to not food seek, it has helped the changes in my daughter over the past reduction in food seeking and a rise in with her behavior, it has helped to behavior year, I know that DCCR was the answer to energy and endurance. It has been life to better understand why or why not my prayers. Not only my daughter, but the changing for her. regarding food. whole family. Although it’s only one individual with the diagnosis, the whole Weight loss and less hunger. There was a clear difference when she family lives everyday with the unique and started taking DCCR. She wasn’t asking for overwhelming stress of PWS. To think of my food as much. She seemed much more We have seen a significant improvement in daughter not being on DCCR is focused on the task at hand. She was able to our son’s behavior regarding his behavior unimaginable. participate in activities that other children with food. He tolerates being told no when her age did without much of an issue. asking for food much better now. We feel it has been helpful and are worried Whenever we miss a day of taking it, we can about losing this medication option. see her slip back into her old self We have noticed a big difference in our son behavior. His anxiety around food has He is no longer consumed by food and DCCR has given my child a better quality of changed for the better. He doesn’t seem as picking his skin as he was before the trial. His life such that her every waking thought does obsessed as he was. I have hope he may be anxiety around food has dissipated not revolve around food. It has made her able to live independently and peaceful tremendously and we attribute this to DCCR. life’s challenges much more manageable, without this hunger burden and obsession with no adverse side effects. We with food someday. desperately would like to continue the The changes in her behaviors, compulsions, medication!!! socialization, and overall attitude has been It is a life changing treatment that allows our astonishing. She is more easy going, less daughter not to have to constantly worry anxiety, and less obsessed with food. Her We moved during covid and I don’t know about eating. It allows her to focus on being picking has decreased significantly. She is how my daughter would have handled all a 3rd grader, have peace, experience life like able to learn so much better in school the change without being on DCCR. Also, most 9-year-old kids. because her head is free of all those

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COMMENTS FROM PARENTS & CAREGIVERS OF INDIVIDUALS WITH PWS WHO IDENTIFIED AS DESTINY-PWS TRIAL PARTICIPANTS

distractions. She is more flexible in her DCCR is a game changer in every way Our son seems to have more control, thinking and when plans change. She can possible. We are living a very close to normal understanding and reasoning on many enjoy family gatherings and parties even life and it brings me to tears thinking there is aspects of life. when there is food available. She has started a chance DCCR will be taken away. I have a to decrease the amount of food she eats and new child because of this medicine. When We have noticed a remarkable difference if engaged in an activity she will even delay my son was 8 years old he tried to commit with DCCR. Our daughter's anxiety has meals to finish the activity. I have observed suicide. He is 13 now, and before DCCR he decreased tremendously. We have been my daughter during being stuck at home would talk about killing himself or dying able to stop locking up food because she has during the lock downs for Covid deal with because living with Prader Willi Syndrome is a better control over her hunger and her the situation so much better than if she was so hard. Since he started taking DCCR those food seeking. She has stopped having not taking the medication. This medication thoughts have diminished 95%. Can you outbursts and temper tantrums that disrupt over all has been such a positive aspect and imagine having a child that went from our home and cause stress on our entire gives us hope that she can enjoy life and wanting to die everyday to wanting to live? family. Our daughter has been able to have a future that is happy and & wanting to live happy. To wanting a concentrate on her schoolwork and not get functionable. future with a job & life goals? DCCR is the so much anxiety when she has a test or a breakthrough drug our community needs. difficult assignment. The difference this It has been life changing for my son, his Please don’t take that away from us. medicine has made for our child is night and ability to retains muscle mass has increased day in her behavior and her ability to have a and his fat mass has decreased, a extremely It is a very slow process to see results- but more normal life. important and life changing situation for and then you sit there and realize all things him. His relationship with food has definitely that there has been no meltdown over. I Our daughter has improved by leaps and changed, he has more control over his need would over anything to be able to see the bounds while on DCCR. She is able to for food and has a lowered obsession with it. results of DCCR during normal times with maintain her emotions. We have less His food seeking habits have drastically normal routines! outbursts, less fighting, less anger, less decreased to the point of almost never problems with behavior, and are able to happening now. His chance to lead a The results were slow at first but we have a more normal family environment somewhat normal day to day life without gradually saw an improvement in her body because of DCCR. having the constant need for food has mass. She leaned out. More importantly she changed his life. He looks better than he has feels satisfied. She has missed snacks and Before taking DCCR my son could not stop in years and not approving this drug would even leaves food at meals. She can be left eating. Gaining weight and having extreme erase all of that. Please reevaluate! Do not alone with food and it not be a distraction. temper tantrums. He was lethargic and had take this life changing opportunity away Her emotions and outbursts have lessened little energy to do much. After being on from him. and there is less emotion over food. Life DCCR for over a year, the results are changing in our experience dramatic. He doesn’t ask for food like Less food related anxiety. Less general before. He eats less and is losing weight. The anxiety. Incredible decrease in negative We have seen the results and are hopeful tantrums are so minimal now. He has energy behaviors, both related and unrelated to this gets approved. and enjoys life so much more. He needs this food. Improved body composition. drug as all do who has PWS. Improved quality of life. He is happy. He is It has help him a lot with his body structure, thriving. He is living. hunger and behavior. Please don’t take it The medication has changed my child and away!! our family’s life. It’s truly been a blessing and Less food related anxiety. Less general miracle. anxiety. Incredible decrease in negative Our experience has been noted in question 4 behaviors, both related and unrelated to of this survey. DCCR has been life changing Less craving, weight loss. food. Improved body composition. for my daughter and our family. We would Improved quality of life. be devastated if this safe and effective We have noticed improvements in all treatment was not approved. aspects of behavior, with most notable in She has lost close to 20 lbs. She has stated self-regulation. on more than one occasion that she was full Our daughter (PWS) has shown impressive from eating. We’ve had less instances of her gains in improving her quality of life, most stealing food or trying to get food outside of specifically a decrease in anxiety and food- the allotted times. She seems to be more seeking behaviors. confident in who she is. There’s so much All I can say is that it is absolutely life more. Please see response to previous changing. No locks on anything anymore. question as well. The medicine has been an amazing lifesaver No more anxiety about food. We can have for our son and has positively and materially food sitting out on the counter. Our PWS changed his anxiety levels and allows him to Major changes in satiety, food seeking child now cooks, when he couldn't even go participate normally in school and with his behaviors, emotional regulation, into the kitchen before. Our whole family is friend socially. concentration, body mass. It has been a less stressed, and we had hope for the game changer in an otherwise bleak future until we received the news that DCCR situation. was not approved. We are absolutely devastated. There is no way that our child

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COMMENTS FROM PARENTS & CAREGIVERS OF INDIVIDUALS WITH PWS WHO IDENTIFIED AS DESTINY-PWS TRIAL PARTICIPANTS

will be able to handle going back to the way when the data is there and available for more flexibility around meals, willing to wait things were before DCCR. We are review. for meals, not so rigid about what she eats devastated. and when. also if she is having a social get My child has been able to increase the together she can have snack at another time Because of DCCR we have been able to amount of food she is eating without gaining so it doesn't cause stress. Also she has lost remove locks from 2 refrigerators, 1 freezer, any weight. In addition, her stamina has weight and her body shape has changed, 2 pantries and numerous cupboards. Our increased, and she is able to go on very long less abdominal fat. she can eat more than son no longer pushes, fights, argues, runs walks without tiring easily, she does not before and not gain weight. It is pretty away or gets angry because he no longer need to nap during the day because she is amazing! experiences hyperphagia. DCCR has given tired and she is able to say she is full and him the chance to graduate from high school also wait long periods of time between Our son had a slight reprieve from his and seriously consider college in his future. meals feelings of hunger. No ill side effects at all. DCCR has allowed him freedom to no longer He was on a very low dose and I truly believe need supervision 24/7. He now has a chance Her anxiety is lowered. Her weight is stable. an appropriate dose would be a game to live a more healthy and productive life. She is better at accepting NO when it comes changer. Taking DCCR away will only cost him our to seconds and she can be around food with family and society much more in the future. much less anxiety. This drug has given my child confidence, This decision by the FDA cannot, must not better behavior, and he has fun with his and will not be allowed. The effects have been remarkable! She has siblings, for our family we have gone from gone from needing to eat breakfast every high stress all the time to more relaxed and It’s been a miracle drug for us. My morning exactly at 7 AM to often being able having friends over and not having to stress daughter’s sense of hunger and major to sleep in and wait until 10:30, 11:00 or over having people come and go my kids can behavioral issues has been decreased by later for her first meal of the day. There is no have friends over and not worry about more than 50%! Her body composition has longer the same urgency and intensity for Matthew embarrassing them or me being so improved, and she’s excited to exercise. Our eating meals on a perfect schedule and no stressed out I don’t allow them into the family life has improved, since her urgency longer any tantrums if meals are delayed. house. Seeing his muscle grow and his to eat and forage food has decreased. We We are fairly certain we were on the placebo confidence and mental state get to a point can actually have a life now not driven by for the first portion of the trial when we saw where he is almost normal makes me food every second of the day. Amazing! no effects for six months. But in the past wonder how we ever lived life before he is year, since definitely being on the drug, our caring and sweet and now, he understands This medication has CHANGED OUR LIVES!! daughter has lost 12.5 pounds and her BMI his self-worth in life My daughter has gone through over 2 years has gone from 24 to 22.1 -- a reduction of of traveling 12 hours one way, 25 times for 8%. She has had no negative effects from Christina's life-threatening drive for food has this trial. It has had a positive effect on her the drug -- just wonderful improvements decreased significantly. She will tell you she health, her relationship with food and her that we attribute to DCCR. feels better and more in control of her overall body composition. She has had impulses. She is more independent, more nothing but positive outcomes from this My loved one experienced no side effects, dependable, more relaxed, calmer. She has drug. I feel that the risks far out way the decreased food drive and weight loss and lost ten pounds. She no longer requires an benefits when looking at the lifelong impact then healthy weight management. afternoon snack to make it through the day. for her, her health and our family. Please She is happy, vibrant, and energetic. This consider making this medication available to medication has greatly improved her quality It has been a life-changing improvement for her for her life. She has already put in so of life. her and for our family. This is a vital many hours towards this trial, please do not medication. make us do it again. It is too much to ask, Appears to be helping to manage her hyperphagia.

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COMMENTS FROM PARENTS & CAREGIVERS What would an approval of DCCR mean for your loved one and your family?

Parents and Caregivers of Individuals in the US What would an approval of DCCR mean for your loved one and your family?

It would help improve his eating habits which function in a world that moves at light speed It would change my sons life. Hunger would would avoid any health problems that he may around her. The primary issue that holds her may longer consume his mind. have in the future. back and makes those that love her worry about her safety when alone is FOOD. The drive My grandson would not suffer from the Quality of life and independence to obtain food is strong. The belief she is deviation of overeating!! hungry is strong. But she is strong and determined. Give her and the rest of our The chance to reduce hunger, OCD about food, community a chance. It’s an opportunity to The Federal Government is on our side to improve behaviors, and improve body reduce one more barrier to an independent life. assure a better and brighter future for whose composition. who have PWS. .

Hope Right now we have no medical treatments for Another step forward hyperphagia other than diet. We hope to have An approval of this drug would mean that my a safe effective treatment like DCCR approved Save my son’s life. to allow our daughter to live a full and daughter could continue to have success with complete live. her health. That the success my daughter has had would not have been a waste of her time. Better quality of life for my son One of the scariest aspects of a PWS diagnosis is that there is no cure. DCCR was the glimmer More quality of life! Relief of hunger, anxiety, behavior issues of hope that our child would not suffer from the most devastating symptom, hyperphagia. It’s would mean a miracle! Change lives, help It would make a world of difference to her daily Please give our child a chance at a more our children pleased please approve it. life activities. The challenges faced by a independent life. caregiver/grandparent of a PW granddaughter The possibility of becoming a family not are difficult and painful. When you absolutely Hope, Motivation, Optimism that she could one suffering from the 24/7 disruptions associated feel that you would rather take the place of her day live a fully independent life as an adult. with PWS behavior. and not have her suffer at no fault of her own. This medication would make daily activities more manageable and have her focus on the For our loved one: Improved developmental A chance at normalcy. regular activities all other children look forward outcomes (socially, academically, physically, to without the focus on her physical needs. She psychologically, and emotionally) when not Could be life-changing for the better. PWS has has begun taking a few hours of in person plagued by symptoms such as hyperphagia and so many horrible symptoms and DCCR could be school, so this would also ease the worry of her obsessive compulsive disorder. Social a cure to some of the worst. having her focus on food rather than her acceptance from peers, a sense of belonging, a learning and also the worry of not being there chance at a normal life and independence. For Life-changing opportunity to consistently monitor her. We ask that you our family: Reduced emotional and financial make a difference to all who deal with this stress, fears about health problems, morbidity, difficult medical necessity. behavioral issues, and long-term care in our Cure to him eventual passing. More time to enjoy family A chance for a better and happier life. outings, gatherings with friends and family, and Everything celebrating typical life milestones. Hope for my child to have at least some control It could be absolutely life changing for my over her hunger and development. We are devastated to hear that the FDA does struggling daughter!! not want to approve this drug. When our son was diagnosed with PWS we promised we A sense of normalcy for her The drug could potentially save the life of our would do everything we could to give him the loved one with PWS. This drug will treat a quality of life he deserves. This drug has been major component of her disorder. A completely different life for her and our proven safe and had given so many children family! with PWS hope. This drug is safe and effective in the treatment of hyperphagia and no other The chance of a normal life for my baby. Help her lose weight drug on the market can do that. Our community needs this drug now and it is Everything, satiety, decreased compulsions imperative that we approve it for those This would allow for our adoptive child with children who are suffering from this rare and PWS to never have to face hyperphagia and be We don't have medication options. complex disorder. able to live an independent life.

The chance for our son and other living with Improved quality of live. My son is completely It would mean the world. This is the only PWS to live a more independent life! homebound. medication that can improve the most critical symptoms of PWS. It has the power to save A chance to have a substantial impact on the lives and make an amazing difference for This drug is potentially life changing. My 12 quality of life by lessening a debilitating and life patients, caregivers and families. It is crucial year old daughter does her best each day to threatening symptom of Prader Willi Syndrome.

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COMMENTS FROM PARENTS & CAREGIVERS What would an approval of DCCR mean for your loved one and your family?

that this medication becomes available as soon needed as an option for treatment for a rare It would me that we could live our lives with as possible. disease that significantly impacts quality of life. more freedom and not have to live life revolving around food. This would help ease A chance a better quality of life. Freedom for the PWS person to work, travel anxiety and allow for a more successful and and be with the family. free life for my daughter Relief from some of the worst and scariest characteristics of Prader-Willi Syndrome. Steps towards helping my loved one with PWS. My daughter has many issues related to her There is currently no cure and we would give behaviors. She is hungry all the time. Anything anything to help our son. that could address her hunger and the Significant change associated behaviors would improve her quality of life and ours. Please reconsider. It is difficult He would not be constantly hungry and his DCCR could be an answer to the LIFE- to imagine our lives but we need empathy and behavioral issues would be diminished. THREATENING aspects of Prader Willi's help. hyperphagia which is the leading CAUSE OF DEATH in PWS. If DCCR is approved, it would Chance for a more normal less stressed life pave a pathway to our child's independence, Less anxiety and better interaction with the contribution to the community with her outside world A chance for a normal life for my daughter. gifts/talents, and remove the most dangerous factor in this syndrome. It would mean peace of mind. It would mean an A healthier life with having treatment for an easier life It would mean the world to my hyperphagia. That our son, and all people who are living with loved one and my entire family. PWS, would have a strong chance at a normal, Give my child a chance to not suffer on a day to full life. My daughter is still at an age where day basis over food. For him to be able to hyperphagia doesn't control her life. I want it control his hunger and live a normal as life as Independence for my child, him never feeling to stay that way! DCCR offers her that ability. possible is all I want for him. hunger. You have the ability with this decision to change my daughter's future! My daughter WILL go to college, she WILL have a boyfriend, Life. This drug could mean an independent, full DCCR would mean a future for our daughter. heck even a husband, she WILL drive a car, she life free of the effects of the most debilitating Independence. The chance to be a regular WILL have a job, she WILL live independently, symptoms of this disorder person. she WILL have the ability to be whoever she wants to be and do whatever she wants to do! Our community needs this NOW, lives are Potential independence in the future, the She WILL not be defined by PWS! depending on it. ability for him to live a full life Life changing!! Actually, life GIVING!!! It would Approval of DCCR means that my daughter Everything!!! mean a completely different outcome for her, would be able to live a more full, fulfilling and one with unlimited possibilities!! safe life. It means that there would be A chance! to live a healthy life. SOMETHING, FINALLY, that addresses many of Better quality of life for sure and possibly life the major obstacles a great life that PWS saving depending on the extent of symptoms presents such as hyperphagia and behavior It would mean we would have another she will face. This is the only drug that has any challenges. It means that her friends with PWS treatment option to consider. promise to treat this life threatening symptom would have this same home. It would mean and it is disgusting that regardless of how that I could tell new parents that I mentor that My daughter would be able to live a normal life. promising it is, there is a price tag on the health it really will be ok. That there is hope and that it The constant hunger is very difficult to live with and well-being-being of those who suffer from is called DCCR. as for her and all those around her. Please this syndrome. please approve for approval. My child would have a life. A better life! A longer, more independent, and full life for my Life changing. Our life is so hard with PWS. My daughter! And a more independent life for our Continued progress in fighting the insatiable daughter talks all the time about wishing there family. It could mean life or death if hunger that comes along with Prader Willis was something she could have to help change hyperphagia starts. syndrome. her food drive A means to a cure Please keep in mind the emotional mental toll it A normal life otherwise, he will not be able to takes on a family worrying and wondering work abs be independent. It would mean my daughter would not have to about this stage in their child‚Äôs diagnosis. suffer and could grow up to live independently The amount of worry for the parents, friends, even after I’m gone. Relief from feeling starving all the time. family, of the individual, wondering if this will be the day that life as you know it will change. It could make a significant difference in our A miracle. A chance for no more never-ending Knowing that this drug would be available gives daughter's food related behaviors body hunger. everyone a sense of peace and restores a composition and calorie intake. Any treatment, quality of life even before that stage in PWS even if it is a modest improvement or does not Better quality of life and long life. begins. Approval of this medication would be work for all people with PWS is absolutely life changing. Try to imagine for one moment if your child was hungry 24/7. YOU try skipping

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COMMENTS FROM PARENTS & CAREGIVERS What would an approval of DCCR mean for your loved one and your family?

meals for a whole day and then at the end of would allow her to focus on so much more! It Would help with unbelievable behaviors the day imagine that feeling in yourself, or the would be cruel to disallow this prognosis person you love most, every minute of every altering drug to not just my daughter but Happiness! day. You would at least have the option to go thousands of other children suffering with this eat if you wanted to. These kids and adults do diagnosis. This approval would mean so much not have that option. Please reconsider. to my family and loved one words cannot Peace express enough. Please join our cause in Freedom. Freedom to be able to live a more fighting for a better life for those with pws and I would a change for them to get some relief of normalized life free of cabinet locks, family and approve this! the symptoms of this horrible disease so they friend gatherings without stressing over the can live a somewhat normal life buffet spread of food she can’t have, and free DCCR approval would mean that our kids will of ER visits praying the non-food item she have a chance to be ‘normal’. To wake up with It has relieved levels of anxiety and behaviors ingested won’t cost us her life. a clearer mind, less anxiety, less hunger, and that make day to day life much more tolerable better behaviors. It would mean some It would be life saving treatment for my normalcy to our family. DCCR has given us a We have been on DCCR since November 2019 daughter!!! life, a life we never had as a family. We can go and would not have gotten through this out to eat, run errands, attend social functions pandemic without it. I cannot imagine not without a meltdown. I am fearful of what will It would let my daughter live a life of more having DCCR for my daughter moving forward. happen if this is not approved. OUR KIDS NEED This medication has given us a life as a family independence. It would give her an opportunity THIS, THEY DESERVE IT. to be a regular kid!! during these trying times.

it would give our daughter the potential for a One less struggle to feel helpless and hopeless It would be life saving for my daughter, there is healthier, more independent life. We have no other treatment like it available right now. for my son! One less battle we have to fight been in several trials, one for liveliotide that alone. was stopped due to ineffectiveness. The PWS Harry would be better able to cope and live in community needs this drug. Not sure what else Hope that a potential and possibly effective the world. His regulating his emotions is a the FDA is waiting for. significant challenge. He can't live the life he treatment could be available for my son before my passing. Giving him an opportunity to live a wants with this level of disability. His food Life quality improvement challenges aren't as serve as others with PWS. more normal life that doesn’t revolve around But this could open doors to independence for food his safety 24 hours a day. him as well. It would mean finally a potential treatment of some of the symptoms of his PWS Could potentially save lives for people with Hyperphagia is not imaginable to the average PWS. person, but it is real and it interferes with the Everything. It would mean a better quality of person's ability to participate in the world of life for all of us and a full life for Sienna. To better manage my son’s appetite. work, school, family, relationships. Soleno is a something that could help bring some normalcy The possibility of helping others w/ PWS More normalcy for our son into our loved ones lives. It would mean an easier life for my son and I Everything, life changing, less of a daily struggle Change of life a full life We would get to have Nora at our home more This treatment can save lives and it is critical often. There is often concern of her sneaking DCCR would give my daughter at chance at that it is on the market now please do not off to find food or overeating. She is kind and independence. At 3, Catherine is showing a high discontinue this drug and program living and wonderful. She needs added help to level of intelligence, indomitable enable her more freedom to connect with determination, and joy of life. At this point, the A better life. other children. only thing standing in her way would be the debilitating hunger associated with PWS. I urge Dramatic quality of life difference for the The possibility of my daughter's condition you to consider her future when you review better. Constant stress everyday, hour, and improving and helping her quality of life this data. minute, would be reduced or eliminated. It would mean giving my child hope! A chance Approval for DCCR would enable our daughter Hope for a better future for her and all those to live a full and meaningful life! That’s what all to live free from the tyranny of food seeking. It suffering from this disorder parents want for there children is imperative that DCCR be approved by the FDA for treatment of Prader-Willi Syndrome.

An opportunity for my child to live in a better HOPE and normal life It could mean life or death. Improved quality of life for him and our entire A better and safer life family. Improved quality of life. Increased strength and stamina would allow her to participate in activities alongside her peers. May allow The drug therapy could open the door to an My son Albert could have an independent life and achieve every dream that he has. increased calorie consumption that may reduce entire different prognosis than before! Imaging some food anxiety. my little girl growing up not having to constantly battle the various symptoms of pws An independent life. Please.

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COMMENTS FROM PARENTS & CAREGIVERS What would an approval of DCCR mean for your loved one and your family?

improved quality of life can achieve her goals instead of thinking about My family and I would have our lives back. how to attain her next meal. Every breathing moment is spent worrying Amazing things about the behavioral manifestations of Chance for my child to beat this hyperphagia that my daughter displays. She is so anxious, scared she won’t be fed, hungry all Grace hasn’t hit the hyperphagia stage of PWS day long. It’s sad, nothing we do is without yet but the idea of her future being consumed I cry almost everyday about my sons future I stress. Hyperphagia holds us hostage. by it leaves us utterly terrified. worry about if I'm seeing the hyperphagia yet in Everything and everyone suffers! regular things every toddler does. Having this Everything medicine approved would ease my mind if even just a little and help my son achieve the best Hope possible future! For our PWS family member to live a better life Life saving Everything! Better management of hyperphagia and My daughter has goals and dreams and has metabolism would be life changing, giving my New treatments could have saved her life. conquered every obstacle put in front of her. child better health and more independence. She’s 7 but talks about college and moving out and being a doctor. I would love for these A change in the quality of life for our child and a It would free us up to live life not do locked things to be possible but without a medication chance to change her life trajectory. As we are down and unable to go on vacations. It would or treatment for hyperphagia/behaviors her faced with considering options as she moves make family gathering so much less stressful future is limited when it comes to toward adulthood in the next few years, independence and the ability to provide availability of this treatment will have direct It is what he needs to lead a fairly normal life. financially for herself. effect on those choices and outcomes. A chance at a better life It would mean that our daughter can live a full My daughter could have a life with less hunger life without feeling the excruciating effects of and an improved behavioral state. DCCR has For him to live life (full). Chance to have a PWS been amazing for her quality of life and all with better life PWS deserve this possibility! The approval of DCCR would mean less My son is beginning to show signs of aggressive behaviors and more peace for my The approval of DCCR is SO important to our hyperphagia. This treatment could mean the son and the family. family. This would be not only life changing for difference for not only his physical health about our daughter, but for our entire family and so overeating but also the psychological impacts being able to focus on something other than many others. Having a treatment for some of to the family of fighting against his uncontrolled food the most severe PWS symptoms will save lives. insatiability. This is the #1 issue with PWS. We need this! Approval and hope It would change our lives. The struggle is a daily A way to help control hyperphagia in PWS issue and it puts a huge strain on our family and Hope our relationships. My husband and I can not Absolutely life changing a possibility of convey more strongly how our worried we are independent living and the reality that my child about our son's future if this major piece of his Provide some degree of normalcy for my child won't feel like she is starving for the rest of her disability can not be curbed. We urge you to and the family life. spend a day with a family with a child with PWS and then with a clear conscience try to deny It would be life changing! lower anxiety, frustration, aggression and this treatment to the individual. hunger. Improved quality of life Hope for long term independence! Everything Lessen symptoms An end to the constant feeling of being hungry It would allow us relief and freedom from an It would be life changing. Amazing unfair life for someone we love. Life changing and life saving!! opportunities for my nephew and limit risks.

Less perseveration about food Hope More normal living

Life changing potential. Without the constant The help we have been waiting for now for 25 If my daughter was taking DCCR, I would not fear of the ‘Monster of hunger’, my daughter years worry that she was torturing herself with may live a life of purpose and difference making thoughts of food. I would not wake up in the This could save her life and others with PWS. It middle of the trying to remember if I had It would allow our daughter to live a near helps with most of major symptoms. They locked the food pantry. I would trust her more normal life. need to get this on market as soon as possible. and not feel guilty for not trusting her.

We would have our life back. Our daughter can It would mean a lot if it helps. It gives me hope. Any help to the PW person or community is finally have a life where she is not always great appreciated! Let’s get this done. hungry, where she has friends and where she It could save her life! We need it approved.

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COMMENTS FROM PARENTS & CAREGIVERS What would an approval of DCCR mean for your loved one and your family?

The difference between being given an actual can not wait years, we need these options point of her stomach potentially bursting and life or not. available now. ending up in the hospital. This drug would change her quality of life without a shadow of a It could save a child's life The approval of DCCR would take an enormous doubt. weight off our shoulders, the weight of know It would mean my child might have a chance a that one day our sweet, silly, determined and Put simply, a chance at a more normal life. more normal life. loving little girl will never feel full again. We Constant hunger, an insatiable appetite and have been carrying this weight for over 2 years uncontrollable obesity is a cruel future, and many other families much longer. We can especially if there is a drug that might help. Freedom from food seeking because of lack of not wait another 5 years for another trial. We feeling full. have fought so hard - attended hundreds of Ability to lose weight hours of medical and therapy visits - all to allow Hope for a higher quality future. our daughter to live her best life. We will not stop fighting now. We need this treatment It would give us hope. We’ve endured many years with no hint of anything close to Currently the only available treatment for available now. We have been following the clinical trail very closely. It has been something that could be this effective. Let us be hyperphagia, one of the most debilitating part of the effort bringing us one step closer to symptoms of PWS determined to be safe. We need this as an available treatment option for our daughter. a cure.

A start to relieving their struggle with hunger Relief, freedom and more independence. and several other characteristics of PWS Hope. DCCR would give our child a chance at living independently once he’s an adult. His Everything. options for a healthy, full life are limited Better life! without DCCR Tremendous hope for an otherwise very scary and untreatable symptom. Nic is a smart, kind, and loving little boy. He is It would be extremely crucial for him to be able in the 4th grade and struggles to keep up with to live life full and independently and thrive. Hope his "typical" peers. He has may struggles that We would like for all kids battling to have as he is trying very hard to overcome such as: His many tools in their tool box to battle the side constant hunger for food/ food seeking, he has It would mean quality of life for my son. Some effects of Prader Willi syndrome and we believe some outbursts that can cause damage to normalcy for the other members of our family. this medication is that tool! things and people around him, etc. His family It would be a dream come true. Really, there and doctors believe that DCCR is one key that are no words to express what it is like to be could unlock his future. Please reconsider their A new medication for our daughter would help affected by PWS. application and give PWS kids and their families relieve the constant stress we have worrying this much needed medication. for her food security. We would know for It would free my daughter to live a more certain that this medication can help in our independent life with less dependence on many constant hunger battle. It would reduce daily Better control of PWS symptoms other medications. behavior episodes about food. It would truly be life changing for us. It would mean making her life easier for her. HELP...the answer Everything would be better for her. Her quality It is a game changer for our family. of life would improve 10 fold improved quality of life for whole family

This drug will be life changing for my Hope for a better future for our son and a lot A world where he would be able to hold a job granddaughter, for our family and for many like less stress on our entire family and thrive rather than a burden to my other us. Please read the research. Do the right children or society. thing. A brighter future for my son, one In which hyperphagia doesn’t consume our family’s lives Could possibly help prevent food seeking that Finally a proven treatment to curb the causes obesity as well as heart issues due to voracious appetite as well as behavioral issues. obesity Lots of help This would change their lives for the better.

Help with severe symptoms of Prader Willi As a parent of a child with a rare disease, you Peace of mind are willing to do anything to allow your child to Syndrome live their best life.. We can not wait for another Everything. It would give us hope, faith in his trial, we need this treatment available now. We Peace of mind that we can assist our son to future and strength to continue fighting to give are willing to assume the risks of DCCR to give reach full potential. him everything he wants and needs in life! our child an opportunity to live life FULL. We urge you to reconsider the recent decision as it LIFE relates to DCCR for people living with PWS. Is life changing for those with PWS It would be a great help managing my son’s Quite literally, it would change everything. A The approval of DCCR will help our daughter Prader-Willi behaviors. live her very best life. When we first heard fuller life without the insatiable hunger that will the words Prader-Willi Syndrome we were haunt my daughter every minute of every day. devastated. We need options available to treat A more normal social life where she can go to Hope for a life without debilitating hunger for our children and DCCR is proven to be safe. We birthday parties, lunch at school and family my son. picnics without wanting to gorge herself to the

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COMMENTS FROM PARENTS & CAREGIVERS What would an approval of DCCR mean for your loved one and your family?

Allowing my daughter to enjoy being a child, More options, chance for better quality of life, improved quality of life; improved health; instead of riddled with pain and anxiety from health improved mental health feeling hungry all the time. I would be a choice for help for our son who is Hope for life without the day to day challenges It would change all of our lives for the better! having real problems now. of the symptoms of PWS. This will make his life so much better! Less hunger and anxiety for a person and and This would save the life of my loved one with This treatment could potentially save the life of just something to help him and his family to be PWS ! my daughter and many others with PWS. It will less stressed when Zaidi and hunger happens help with the major symptoms she experiences and just knowing that he is being helped Hopefully it will help prevent dangerous and with pws. This is a critical drug that needs to conflicting outburst of uncontrolled anger. get on the market. It would help reassure me of my daughters well Very hard to deal with and control in front of being ! I want the best for her and I‚Äôd give the younger children. It scares to them. Independence. My son will have limited access and do everything I can for her. to the basic joys of adulthood because of his It would mean the world to us hyperphagia It would save my son’s life. Would possibly open up opportunities to live a Being able to Live Life Full. My little friend and A chance to live a better life more normal life. those who share in this affliction, their families and those who love them would greatly benefit from this. This could provide a better life...a A life of hope, happiness and less stress. People That there was a treatment available to help fuller life, both, literally and figuratively. have nooooo idea what stress the patient and my children with PWS deal with one of the caretakers endure. It really takes a toll on most dangerous aspects of this disorder. There mental and physical health. would be hope for the security of a healthier Some chance at life for our whole family. PWS life. has profoundly diminished the lives of all of our family members. safety and a reduction in suffering He is currently in a facility where he Cannot get to food. I would love for him to come back The best alternative to improve health It could literally save my daughters life. There are currently no treatment options available for home. hyperphagia. This could give us hope. It would DCCR It would make a huge difference in the be a shame for the FDA to unnecessarily kill this My daughter doesn’t have hyperphagia, but self lives of so many individuals. trial that could potentially save lives injurious behaviors are serious concern. Having a drug to control that behavior would be a life This would help with Prader Willi! A chance at stability, safety, and increased changer for her and for us. normalcy. This drug would allow my son to live a more It would give our son a chance at a typical life. independent , less stressful and ultimately a To better their life SAFER life ! He will be able to play with his It would mean hope for life change for my child friends and not constantly worry about when and our whole family. he will eat next . It will give him a chance at a the opportunity for reduced anxiety which normal life. would bring peace to the family Approval of DCCR would mean everything! This A fresh start treatment could potentially be life saving for Early intervention and medicine is key for my our girl and others living with Prader-Willi nephew with PWS to have a chance at a more Syndrome. normal life. It would mean the difference It could potentially drastically improve our between a balanced life and no life at all. son‚Äôs and entire family‚Äôs daily experience by helping manage some of the most difficult Better quality of life It would mean everything from intangible hope and lifestyle-impacting symptoms of PWS. and normalcy to tangible medical benefits! A chance at a somewhat typical and successful Hope for the possibility my nephew will be able An opportunity to have a good quality of life vs life to live an independent life. In a society where a constant painful hunger and 24 hour care. the discourse is so focused on creating progress Hope for a more fulfilling lifetime and longer for the vulnerable, independence and A greater likelihood of living an independent lasting life for my daughter equalizing the field, could we have a greater life. responsibility to the PWS community to Life changing. approve trials that could create such Our daughter is fortunate to be currently outcomes?) the tangible benefits I will leave to participating in the DCCR trial. This has been an It would potentially save my sisters life. She has our talented medical community but I have amazing treatment for our daughter. It is always struggled with this and I would love for seen the research and am so optimistic about helping her live as close to a typical life as her to finally be happy and healthy. This has my nephew - George(!!) - if we could get him possible. We feel it would be extremely been an issue for her since we found her on the medicine. The ability to control this detrimental to her health if this treatment diagnosis at the age of 4. aspect of his disease can ameliorate bullying, option was taken away. expand his options to remain in his household with his family as a young child but later on Safety and independence could pave the way for a more ‘normal’ life.

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COMMENTS FROM PARENTS & CAREGIVERS What would an approval of DCCR mean for your loved one and your family?

Life changing drug for my child with PWS and emotionally and it is amazing and gives us so My Daughter would have a opportunity to live a family for safety and health. It would reduce much hope! normal life unafraid of the affects of PWS.. life and death risk and provide live family in the same house hold instead of institution or Controlling weight helps alleviate potential for Normalcy group home, it would make possible vocational other related issues. Extra help with emotional training, work opportunity, meaningful life, control helps with social interaction. The list Hope for a cure, much freedom, relieve more mobility as fulfill potential basic daily goes on! living. It also allowed family member's physical and mental health. psychological Hope The approval of DCCR would be life changing to our family. This news has brought us all to A better future for my son heartbreak and tears. We had so much hope in It would mean everything. Until you have and this approval. Today I carried my one year old live with PWS you have no idea on how No longer being controlled by always feeling and cried because that hope I once had for this stressful and how it is so hard on everyone who hungry and searching for food. Social life would to help her is now gone. Having a sick child is is involved. I feel it is very irresponsible to improve. the hardest thing a human will ever have to ignore so many who need this. My daughter face and knowing there is something that can doesn't so much have a food issue. She does help them live a better life can‚Äôt be used have the weight issue PWS causes. I, her father Norah is a happy girl who loves her family and worry everyday and will till the day I die. friends fiercely. She likes to Dance. Her biggest because of approval is the second hardest thing we have faced. Please reconsider your decision Everyone deserves the best if available. Don't obstacle is her hunger. Her parents are take this away from the PWS community. We constantly having to monitor her food seeking because one day it may be you or your loved one. all hope for a CURE or at least a great behaviors. The medicine would help ease her alternative. constant hunger improving her and her parents lives. It would save her life. Help or eliminate hyperphagia that is life threatening The approval of DCCR would give us hope for our daughter to live life FULL. DCCR being Taylor is a smart and sassy 1st grader who loves available on the market would completely to read, loves skiing and has so many goals and It will provide an opportunity to help our son change the life of our daughter as well as ours dreams. She wants to be a doctor when she Logan with this complex disorder. He goes (her parents) and our PWS family, for the grows up. This drug can help eliminate some of through challenges daily and it will help provide better. the obstacles in her way of that dream. Her some relief! We are willing to take on risk as family and her doctors believe that DCCR is one there are few to none treatment options for key that could unlock her future. Please kids and adults with PWS to help with Relief reconsider their application and give PWS kids treatment. and their families this medication. We do not want our child or our family to be Our son is in the DCCR trials and is literally a prisoners in their own home because our son is A better life for everyone new child with this medicine one. In the past he always hungry. Can you imagine if you were needed an aide at school and constantly starving 24/7? PWS is such a cruel disease and these children deserve a life! This treatment is Safety and mental health interrupted his class and had significant challenges at home and in school. On DCCR he safe and effective and our children should not can participate and socially engage as a normal have to wait years (if a new trial is even funded) Approval would me a better quality of life for 15 year old, does not need an aide, and his for a chance to live without hunger. This means my son. Worries about hyperphagia, anxiety levels have dramatically dropped. EVERYTHING. aggression, and other characteristics would Please support this medicine and allow our decline and provide my son with a more normal children to have as normal life as possible. A much less stressful and more "normal" family life and less stress for our family. life. It would hopefully allow our daughter to DCCR enables age-appropriate independence participate in more social and employment It would give my child a better quality of life and interaction with peers without being opportunities which would make her much and potential for a more independent future. subject to complete and direct control of the happier. food environment. Relief from food anxiety A chance at normalcy provided by DCCR would continue to free her to The availability of a safe option to help offset focus on growth and maturity and learning and the symptoms of PWS is invaluable. Potentially save her life from the post interpersonal interaction. debilitating part of this awful syndrome! Please Everything! It could change the lives and save don’t add this stress to our loved ones and This would mean a chance at living an the lives of anyone with PWS! community!!! independent life. Without it, we have no chance. This is first first medication that will help my It would mean EVERYTHING! It would mean child with this rare syndrome and save her life! that Lindsay would be able to continue to thrive Hope for an improved quality of life for our son We need this medication approved now please. socially, academically, and emotionally. She has It gives children with PWS hope been thriving due to being on this medication. A better life for him and us The changes that have occurred have been a A possibility of an independent higher quality of total game changer for her and our family. The life. The safety of being able to be alone. An growth and overcoming challenge she faced It would get us one step closer to a cure for the hallmark symptom of PWS--not feeling full. ability to possibly save my sons life. There is no has been enormous. I have seen along with her treatment and hunger is on his mind 24/7. He is teachers and camp counselors and therapists obese which I worry will create a storm of the positive changes both academically and

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COMMENTS FROM PARENTS & CAREGIVERS What would an approval of DCCR mean for your loved one and your family?

medical problems cardiac, diabetes and stroke Freedom from chronic hunger proved effective in curbing excessive hunger to name a few. and easing behavioral symptoms in PWS Relief from some of the daily struggles that my patients. If our daughter has the ability to It would mean a lot. daughter suffers from as well as helping her benefit from DCCR, it could be life changing for function more like her typical peers. her and other PWS patients. Hyperphagia can begin to set in as early as 8 years old with Hope to change a life of my niece to be metabolism beginning to slow down as early as independent, with less lifelong challenges. DCCR would give the sweet girl I babysit a 2 years old. Our daughter is 13 months old. better chance for a healthier life! While she has some time, it is not a lot of time A better quality of life. for trials and advancements. Every day matters The possibility that my child have a future with for her. There are older PWS children, some of Our daughter has been involved in the trial for less worry and stress of his diagnosis. Also the whom are seeing success from DCCR already DCCR. It has been life changing. It will be possibility that this would help to be able to live and others who are at the point where DCCR is devastating to her livelihood if we have to more independently as he gets older. a must have for them. The FDA’s requirement remove her from the drug. for another trial and more participant is The difference between controlled and creating a glass ceiling for these kids. It could amount to a death sentence. Patients who are It means Samantha has access to another uncontrolled behavior. part of the trial will need to stop taking the treatment option in the future when she medication. Children who need the drug will reaches the next stage of PWS. Hyper is Not battling with ginger all day every day have to wait. With the small patient population, debilitating and life threatening. She deserves there may never be enough trials and enough every opportunity to reduce that burden. My granddaughter would have a better data to move forward. There will certainly QUALITY of life or at least a chance of one. PWS never be enough time for these kids. The By taking DCCR, my daughter is allowed to be is so devastating in so many ways. This drug can safety profile of diazoxide is well known, with as close to a normal 10 year old as possible. ease some of that for so many love ones. more than 100,000 patient years of use. DCCR That means so much to her has been tested in 8 clinical trials involving Life saving nearly 300 randomized patients including more Better luck at a future for my child than 210 treated with DCCR. The tremendous positive results of the DESTINY PWS Phase 3 Life normalcy trial - reduction in hyperphagia, reduced Oh you have no idea how much this would help anxiety, repetitive questioning, compulsive my daughter. We don’t socialize very much due A chance to help with hunger behaviors, and skin picking - brought so much to the insatiable appetite my daughter as! hope in our life. This drug presents a life- It would mean everything for our kids that changing opportunity for our children with Hope. And for my son to live a regular life. struggle from everyday basis with the effects of PWS, for their siblings, us as parents and for our PWS extended families and communities. We ask It might be life changing! Might help with the that the FDA reconsiders its decision, which effectively condemns thousands of children all extreme hunger, and the anger associated! Hope for a productive, happy future! around the world to a life of excessive hunger, behavioral problems and a range of other There are currently no pharmaceutical It would be a game changer. This drug would issues, which will diminish their quality of life. treatments that specifically address PWS or its significantly improve our financial situation by hallmark issue of hyperphagia. DCCR has shown PWS children already suffer from a rare genetic reducing lost data from work due to behaviors condition which is hard to treat. This decision incredibly promising results in clinical trials for or medical reasons (from eating). It work from the FDA creates another setback for them people with PWS, including reduced reduce stress & anxiety place on siblings. It hyperphagia, better bone density, and based on the rareness and small patient would improve the quality of life fir the entire population which is unjustified. stronger/leaner body composition. We need family. DCCR for the PWS community--this drug could allow my friend to live a more normal, It would be life changing for us. Hyperphagia is independent life by directly addressing the On March 2, 2020 we received a diagnosis for our biggest concern for our son with PWS and primary symptom of PWS. We need it now, not our then six week old daughter of Prader- we were really hoping that DCCR can make the in 4-5 years, so younger children with PWS can William Syndrome (PWS). We were told she most significant difference. get the benefits before the onset of severe had a rare genetic condition which affects 1 in 15,000 live births in the U.S. We were hyperphagia. Please give Selby a chance at It would mean a lot if it helps improve our leading a more normal life." understandably devastated for our little girl and our family. Since then, we have started daily daughters life growth hormone shots and a controlled diet. To allow my child to feel full, to help avoid Out little girl is thriving. She is rolling, sitting, My daughter may not have to deal with obesity and its related health issues, to reduce creeping and babbling. She smiles and blows hyperphagia for the rest of her life if this drug is the stress and anxiety around food in general kisses. She has mastered the straw cup. She approved! loves on our dog and her big sister. She can A chance at life have a very bright future. But we know that It would give us a new hope for a better future for her and other PWS patients there is the for our PWS children whom we love so very It would allow my child to be free of the looming possibility of hyperphagia in her much. The thought of a cure would be a constant feeling of being hungry AAAALL the future. We are disappointed with FDA's miracle from GOD. time. To be able to walk into the kitchen decision to require another clinical trial for Diazoxide Choline Controlled-Release (DCCR), a without locks and safety guards so she can't My daughter is about to go into the next phase drug conceived by Soleno Therapeutics and access food. of PWS. Hyperphagia, she NEEDS the DCCR to

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COMMENTS FROM PARENTS & CAREGIVERS What would an approval of DCCR mean for your loved one and your family?

try and have the most normal life possible. IT IS It would stop the constant hunger my son deals They are our brothers, sisters, daughters, sons SO EXTREMELY IMPORTANT FOR THESE with daily. It would also help with his severe and our future. CHILDREN TO HAVE A FIGHTING CHANCE outbursts that are triggered by food related issues. It would help him to participate safely in This would mean our daughter could potentially A more stable life for our little one! events that his peers do as he would not be live a longer life. seeking food, distracted by severe hunger, or meltdowns. To control the hunger Peace of mind and less worry about Hyperphagia Really important. Means a lot This is a life changing/ saving needed treatment. It can help with several factors that It would potentially save her life. affect these children let's give them the best The world! chances possible to have a happy, healthy life! A future closer to that of a normal child. Help It would mean a chance at education and reduce hunger and slow the onset of possible Would very likely mean that our daughter will emotion managing strategies; it would mean a obesity. not need to go to a group home as we are real chance at a promising future! getting older and she is getting harder to This could potentially save the lives of people handle. Hope living with PWS. It has proven to be safe and effective and is the only kind of treatment that Our daughter would be able to better keep up It would give my daughter a better quality of could make a difference in so many lives. It is while playing with friends which has so many life. critical to get this on the market ASAP!!! social benefits. Also, it would decrease the increased hunger drive. My daughter's food-seeking has lead to many It means a better possibility of weight loss for police interactions, some where I have feared my son. PWS is a very difficult disorder to live with on a for her safety, as well as ours. We've had to daily basis. DCCR would help us address difficult have her institutionalized twice. A treatment PWS is a devastating, dangerous disease. DCCR aggressive and rigid behaviors that are for her would allow her to have a life, as well as could mean the difference between life and currently our biggest challenge. It would also letting me, her mother, also have a life. I am death for people with PWS can literally eat help manage my child's hyperphagia. Our only limited to working part time from home so as themselves to death and they cannot learn to solution at this time is to lock ALL FOOD ALL to monitor her and keep her safe. Think of the control their food urges. THE TIME outside of meal times. resources that could be better spent if we could just control her hunger and behavior It will mean a lot. The chance to live. surrounding that. Improved life outcomes Everything It would give her and our family a chance at a more normal life It would change his life!! Hope, options, relief, An opportunity to be free from daily suffering The change to live life normally, like my other It would tremendously help out so many. It is children. That means the chance to live alone, SAFE! It WORKS! We need to help Less risk of or child developing obesity-related conditions not in a group home, not with kitchen cabinets locked. Hyperphagia is a death sentence to my Save the life of pws children and let her live a daughter’s life and independence. Please help normal life. It would mean a better future for my daughter us beat this. There is no other drug available to and to live life to the FULLest! help her or others with PWS. A better life. It could potentially save the life of my loved Health and life one. To have a normal life! It would mean although we are currently in an It would me that Charlotte would have the Could give our daughter a much better life excruciating struggle, battling behavior with ability to take a treatment that would help her little help, would change. Nobody can with her dysphagia which controls her life understand how hard it is living with a child Peace of mind currently. with PWS except those living with it. Please help us. The daily struggle of always feeling as if you’re Hope for the future!! starving is real. It affects not only the physical, This drug would likely remove, or at least mental and emotional status of the person with Hope, a future, independence, everything. This reduce, the LARGEST roadblock to my son living PWS, but also the entire family and anyone that could save lives. a happy and independent life. It would be life- comes in contact with that person. All day, changing for our family. everyday every decision revolves around food resulting in behaviors that are often times Stability and life! a chance at a better future. A challenging to say the very least. What a chance at a future in general. This is a no- Eliminate the most significant challenges of this blessing it would be to the person suffering brainer. Our kids need help, there is no excuse disorder. Improve quality of life for my with the struggles of PWS to feel relief. at all not to do the the best we can for them. daughter and family as a whole.

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COMMENTS FROM PARENTS & CAREGIVERS What would an approval of DCCR mean for your loved one and your family?

It would mean a better quality of life, a peace mood. Today is a new day, it could be a good DCCR is the best hope for my beloved daughter. of mind, and feeling of hope. day. With lifted spirits you go and prepare for It is critical to keep her alive. Please get this this new day. You’ve been silently rewarded approved A chance at a treatment/more normal life. A again. You will eat your breakfast, clean up, chance at embracing every day with optimism finish at home, and depart. You head out into It would give my son a chance to live a normal instead of fear and worry. the potential of the morning. Mornings. You life. Not having to worry about food, when and just love mornings. That crisp fresh feeling. That where is his next meal. The behavior issues new feeling. That’s a good feeling. You wish you The potential for health and happiness. would be under control. I would not have to could always feel this way. That’s what it is to worry about hitting, screaming, and sneaking be satisfied. Now understand this. You will food. It would mean he could live a better life with never have that again. Never. No matter what less problems you do. No matter where you go. No matter what you eat. No matter what you drink. It would save the life of my 4 year old grandson. Nothing. Nothing will ever bring you that It would allow him to live a fuller life without Everything! We would be able to live a happier the burden of the constant insatiable hunger life! feeling again. You will cry. You will scream. You will rage. You will beat yourself into the associated with PWS. Being able to help control fever oblivion of fatigued and neuro- his hunger would change our families entire opportunity transmitter-depleted sleep. Only, to wake world. again, to gut-wrenching gnawing emptiness. Life You will lie. You will steal. You will gorge I am a father of a UPD PWS child. It would yourself on whatever you can get your shaking completely changed how we live. We are My daughter is three and already showing signs panic infested hands on. You will collapse in RULED by PWS and hunger every day, nearly all on hyperphagia; this affects behavior, your misery with a moment’s respite. You are day. Going out anywhere is not just difficult relationships and her education. By having already feeling anxiety begin to mount as you with a child with PWS, the hunger makes it DCCR as an option for my child she could have sense it, muted but still there. It is already nearly impossible to function as a family in a the potential to live a happy FULL life. starting again. You weep, shuddering, on the normal context. We routinely choose to avoid floor. You see yourself. What you have done joining friends and family at special occasions cannot be hidden and you are discovered. You due to the context of dealing with outbursts. Results that can occur when using this medicine are disgusting. And this will happen again and We deal with PTSD associated with our could include being in a normal education again and again and again and again. You will daughters birth, and this can manifest itself at setting, not requiring one-on-one supervision hate. You will hate your mother. You will hate these times. This all sounds dramatic, but I from childhood to adulthood, and the ability to your father. You will hate them. Because they assure you I was just like anyone else. I love my live independently and support oneself through stop you. Why? They keep it away from you. Do daughter dearly, and I would not choose to an education and career. they not understand I need it? They lock it up. replace her or lose her. A drug like DCCR could You will hate yourself. You will hate life itself. make our ability to cope with living with June's I believe this would save my son's life and also You will want to die, and that same instinct for PWS in a much improved context and possibly give him opportunities to enjoy more activities survival, run amok, which creates this hell, will allow June some context of normalcy in her that he is currently restricted from due to his stubbornly keep you in it, forever. It's a developing life. If we could get a prescription size. terrible fate isn't it? Yes, but the FDA can do for DCCR tomorrow based on my research to something to remedy it.. I urge the FDA to date of the trials, we would. Please allow us this Happy, healthy future for our son reconsider their decision regarding DCCR and to option as soon as possible if this drug had not do what is right and help to mitigate this been shown to be negative in the context of suffering. Now. patient health outcomes associated with it's Insatiable. Hunger. I want you to take a use. moment and make sure you understand what those words mean. You wake up in the A chance at a better quality of life for my son, morning and experience a dull ache, a non- but also our entire family. An approval would mean the world to us. The specific emptiness, a feeling, in the middle of drug is our only hope right now that our son your body, directly beneath the bottom of your DCCR would provide better muscle tone and won't have to live always hungry. rib cage. The feeling is located precisely in the function for those with PWS center of your solar plexus, just a few inches The chance for a more normal life. above your belly button. It is deep inside of It would mean living life full. It could mean you. It originates from the very core of your giving relief from the constant hunger, the A better quality of life for our child. being. It is ancient. You get up and you begin to worries about eating so much she dies. It walk. Where are you going? We all know where would mean greater independence for her. It is you are going. You are not thinking about it. Help make my 4yr daughter live a more normal a life saving medication. You just do it. You ambulate to your kitchen life without all of these complications she cant and stuff something in your mouth. You are control herself and for every person living with thinking about the day ahead. Maybe a bite of That my daughter might not feel hungry all the PWS. They deserve a chance at a great life as Danish, a strawberry, a doughnut, a cookie, time-this would help so much with her weight any normal able body. something to tide you over while you start your challenges coffee. You’ve been unconsciously motivated to They would have their life back. Their child engage in these behaviors and have been A chance for my son to have a brighter future, could be a little girl again. rewarded with the silent unnoticeable removal which is everything to me. of the feeling. Coffee in hand, you have already Freedom forgotten about it. You are deciding what you are going to wear today. You continue your routine with a barely noticeable uptick in your

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COMMENTS FROM PARENTS & CAREGIVERS What would an approval of DCCR mean for your loved one and your family?

The chance for my daughter to reach her Everything! This is the only drug that has shown A little relief to a stressful life of my sister who potential without having to experience the a real promise in being safe and effective as a we‚Äôve had a tough time taking care of her as debilitating and life-threatening symptom of treatment for the most debilitating, and we‚Äôve always had to watch her and what she hyperphagia. And a chance at an independent potentially deadly, symptom of Prader-Willi eats as she‚Äôs never been able to be alone life. Syndrome. We simply cannot wait. We need around food everything we have is locked up approval on this drug ASAP. With DCCR my daughter would have a real and Treatment options are severely limited. DCCR meaningful opportunity to reach her full A better quality of life could save the life of son and others and potential without ever having to experience the increase their quality of life. We can‚Äôt wait debilitating symptom of hyperphagia. An Catherine is a vivacious & loving smart girl. This years for DCCR. We need it now. approval of this drug would mean an improved medication would help give her the life she quality of life and a chance at independence. deserves & would help her tremendously. It would mean an independent future for my Please reconsider the application & approve son could be a reality. A treatment that can help with the biggest this drug for her & so many others. She needs Issue with PWS and help our kids have a higher this medication. Please approve! A better life quality of life Life changing fir those living with PWS Help and a better life quality The world. It would mean the chance of life to more than Hope So much, just to give Maddy a chance of a life one child I know! that we l take for granted. Having control over the hunger would allow my Potential lifesaving treatment child to engage with many more activities. Some relief from the near constant hunger pains and the anxiety over food because she Freedom from locking ALL food sources feels hungry all the time. It would mean a better life for a person with PWS. I have heard so many times from PWS Ability to meet some of the most challenging individuals they just want to feel normal Although my Adult PWS Son is not on DCCR, medical needs of my son and to advocate more this Investigation might-well help our Younger effectively for his care. (rare)PWS Population, so the Study should be Health Completed.... The potential to live a more fulfilling life. It could mean saving lives at a minimum. At a Everything maximum, it could be giving child a more More chance for independent living independent life that we all enjoy. Imagine a life without independence in some form. DCCR would literally save his life. It would Approval will help to limit that outcome. ensure an independent future for him, which Increased employment opportunities and he and all children deserve. His future would community integration. Possibly the ability to amount to more than uncontrollable hunger. live independently!!!! Some relief from the hyperphagia, and This drug is absolutely essential for his well subsequently his anxiety and temper, would be being. It would mean less worries and more time to a blessing for both my son and the rest of our love my daughter family. Everything, a chance at life. Even though my daughter is only 3, she has A chance for a "normal" life She gets to live a more normalized life ... like such an increased interest in food. It is a we all would like for any of our children. constant source of stress not just for her and A piece of the puzzle to help with a Specifically, when it comes to body mass & the me, but our entire family. complicated, devastating syndrome. effects it will have on her for the rest of her life. It would mean a less restrictive lifestyle A chance for my son to live as normal of a life Independent and healthy life for the future. as possible. Greater freedom and flexibility. Less tantrums There is a way to provide an early approval around food. It would allow us so much freedom! You have before a trial is even complete but this one is no idea how difficult it is to attend ANY complete and has shown great success for this It would mean a chance at a typical life without function...almost all involve food of some type disease. It needs to be approved so those with constant hunger and constant stress. It would and this drug would help Silas be able to enjoy this disease can be treated! It’s not about mean potentially a future without having to the things that most others don’t even think money but about lives always have someone else present to make about. sure good decisions were being made. Not having to ever know what hyperphagia Everything would change, I'd feel more secure feels like and endure the suffering and turmoil We have been waiting for the opportunity to about food, I would worry less about the health of it give DCCR to our daughter, in hopes of the and safety of my son. many ways it will support her in realizing her A better future for my child full potential. We wanted to participate in a Our daughter could focus on things other than trial, and are also hoping for the opportunity to food more successfully and would be at less risk do so.

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COMMENTS FROM PARENTS & CAREGIVERS What would an approval of DCCR mean for your loved one and your family?

of dying from a food related incident such as would feel more at ease knowing she was able a more manageable life. stomach rupture, etc. to manage her eating and weight. She also struggles with outbursts frequently and being It would mean everything it would help see a Everything able to have more self-regulation would help us light at the end of the tunnel and hope for a enjoy our day to day activities and perhaps better tomorrow enjoy more activities out in the community. A life of independence for our daughter! Truly, there is nothing more important to us than the Treatment like this for Prader-Willi Syndrome is chance to give her a full and independent life. Self regulation of behavior a veritable life saver! Life without viable treatment options for individuals with the lifesaving to the family as it provides relief to all A more normal life with less pressure from syndrome are as bad or worse than the world in mentally and physically. being different. a COVID pandemic has felt, but it goes on year by year without the hope or support that the vaccine's bring. Please review and allow Life changing! It would mean a treatment plan that has already been approved that can be accessible in reasonable treatments for Prader-Willi a timely manner because it is crucial to those Syndrome. Better health for my child with PWS. Improved quality of life DCCR will help with the major effects of PWS Life saving and help our daughter as well as many others Relief. Our son struggles sooooo much with live a better life. A chance at a dramatically better future, in constant feelings of hunger - every waking which my son could hold a job, live alone, and moment of his life. PLEASE do not require yet Improved quality of life for my son and a have friends, with no drawbacks if it turned out another trial. brighter future. For my family, peace of mind not to help with hyperphagia. Please review and allow DCCR for treatment. All advances made provide a life changing We are terrified of the disease that our new An option like this is a real life saver for our kids option for those with PWS and their families. born was born with, and even more yet, what with Prader-Willi Syndrome and for us as the hyperphagia symptoms will do to our son in parents and caregivers. We desperately need If given the option, this could help my loved the future. If we have any chance at all, to head options! one function better on a daily basis. it off, or treat it; we have to take it. Please don’t take this chance from us! This Would significantly improve the quality of Everything. Giving our children a chance to live her life, if not potentially save her life, as well as full of a life as possible Initially, to aid in research opportunities, and as improve the quality of live of our family. ultimately, to create a better life for our PWS It would mean that my son would have the child. As a mom of TWO children with PWS, I beg that opportunity to live a more "normal" life the FDA re-review the results of Soleno's Phase A greater chance at our best life possible! 3 study of DCCR for the treatment of PWS. There is currently NO treatments the most A healthier life with less risk of life threatening challenging aspects of PWS and requesting an issues as he grows older. It would allow him to My daughter would finally feel full and we additional study would cost cost our mainstream into the world and develop the would not spend hours a day with meltdowns community years, or worse, the loss of a skills that would result in a productive life. and aggressive behaviors over food. She would potential treatment for our loved one. We need be able to live a happier life that isn't controlled this drug available now! It was super safe in Hope, freedom, opportunity by food the trial and has been the only effective drug for this large unmet medical need and it should The opportunity to live an improved quality of Change their life dramatically! be available for our kids who have no other life, perhaps independently of adult care. It options for possible treatments for hyperphagia would impact our entire family. It would mean A life not ruled by pws right now! our loved one would not experience the devastating impacts of Hyperphagia. This would Hope, progress As a dad of TWO children with PWS, I beg that be life-changing for his entire family. the FDA re-review the results of Soleno's Phase 3 study of DCCR for the treatment of PWS. Independence, not having to rely on someone There is currently NO treatments the most else to keep them safe, feeling joy that they are challenging aspects of PWS and requesting an not perceived as different anymore additional study would cost our community The World. My Nephew deserves every chance years, or worse, the loss of a potential at an improved life and we believe DCCR will Life changing relief from catastrophic treatment for our loved one. We need this drug have a great impact to all PWS kids. symptoms available now! It was super safe in the trial and has been the only effective drug for this large A more productive life. It would mean the world! This is life changing. It unmet medical need and it should be available could help with so many aspects of Jayde’s day for our kids who have no other options for Our two adopted daughters have PWS. Our to day life and gives us hope for our future. possible treatments for hyperphagia right now! oldest, Chloe, has reached the hyperphagia phase and is food seeking. If we were to have The relief that my son can live a safer, more medicine to help her manage that, it would normal life. It would mean everything!!!! ease so make of her anxiety and I as a caregiver

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COMMENTS FROM PARENTS & CAREGIVERS What would an approval of DCCR mean for your loved one and your family?

Any drug that gives our children with PWS a HELP and HOPE you are taking that chance away from us not chance at a better and more fulfilled life would having that opportunity. be so welcome. An independent and fulfilling life for my child that may not otherwise happen For people with this disease to live a better life Having some sense of Normalcy. Not having to worry wherever we go what to do about The possibility of an option to choose to It could save my daughters life hyperphagia, help control weight and some of potentially better my son utilizing the most behavioral issues that come with hyperphagia. recent technology and research. It would mean an improved quality of life for our daughter. Reduction in anxiety, behavioral Possibility of making our life a little more A more normal life for both him and the rest of challenges related to food. Improved social normal. the family relationships. Better ability to learn in school. For our family a much less stressful lifestyle This drug has been such an improvement in our As a father of a child with PWS, it is essential with more relaxed rules and feeling about food daughter and we consider it a life saver. She that I see everything that can be done is done. I and food control. can be left alone and around food. She feels full see this as one if not the only viable treatment and even misses snacks and leaves food at for the most major symptom of her disorder. Life saving treatment for PWS! meals! In addition her body mass has greatly Please bring this drug to market. improved. Going off this drug will be a great disservice to her health and independence. It would greatly help our son Having alternative pharmaceutical options would be a game changer. Hope for a more manageable and fulfilling To change his life and give him a longer life future Knowing that my child won’t suffer from It would bring her closer to having a drug that uncontrollable hunger and the mental strain of Lifechanging might work for her as she still suffers from not understanding why she can’t have it. Along hyperplasia at 41 years old and it’s impact on with the mental pain watching your kid suffer. her life and well being My son would not have outrageous because he is starving. Until you live with a child with pws The chance for my daughter to not suffer from you will never understand. Maybe the people Reduced weight gain, some independence, and the pains of hunger 24/7, the anxiety that life saving therapy. making these decisions should spend a week in comes with not being able to control her our shoes then you will pass this. hunger, the chance to not suffer from obesity due to uncontrolled hunger, and the health When I was given the diagnosis of my son I was Approving DCCR would mean that my daughter consequences from obesity, including the devastated, faced with so many unknown for may never struggle with the most debilitating possibility of death, and premature death, the his future. DCCR would mean hope for us! It has aspect of her syndrome; hyperphagia. This opportunity to live a happy and fulfilling life the potential to eliminate obstacles that could would give her the opportunity to use her free of this pain. For her family, the chance to prevent my son from living a full capable life. energy, mental capacity, and emotions on not have to sit by and watch her suffer, not He is a warrior and deserves every opportunity things like learning, playing, physical activities, being able to help her. This takes a huge toll on to fulfill his dreams and I believe DCCR will help and building relationships instead of focusing the whole family, especially when we know make that happen! on when she gets food next. There isn't any there is a safe and effective treatment. We other drug out there that provides this type of NEED this safe and effective drug. If this was Everything! The possibility of a normalized life!! treatment and it would mean that our family your child, loved one, grandchild, niece, would have the opportunity to have some nephew, friend, and you had a chance to help A treatment / mitigation for the most semblance of normalcy in our lives. This drug is them not suffer from a debilitating hunger, restrictive and life-threatening component of the ONE THING that could allow my daughter to wouldn't you help them? Or could you sit by PWS makes his mother and I very optimistic LIVE LIFE FULL! and watch them suffer, and possibly die? It's that we can provide the quality of life and heartbreaking, and we want our daughter to be potential future that all parents want for their Hope for the future able to live a full and happy life, without children. My son is a happy and determined hunger, anxiety, obesity, the struggle to just boy. We know that he can accomplish whatever live day to day peacefully. Kimber is a smart, caring, and full-of-life toddler he puts his focus toward - especially if the who unfortunately, has some barriers of PWS are lessened or removed. incomprehensible obstacles in her future. This Better health and quality of life for my drug could provide her the support to tackle daughter, and peace of mind for us parents. A chance at more normalcy. those obstacles head on. It would give her the opportunity to use her energy on things like We got diagnosed at 5 months. Shortly after I A life of less stress, fear and anxiety for Jolie. A learning, building relationships, doing physical learned about the trial being done. I was life where she doesn't have to spend her days activities, and overall just being a kid instead of relieved because hyperphagia is the most nerve dealing with the trauma of hyperplagia. Peace constantly and overwhelmingly worrying about wracking part of this diagnosis. As a new of mind and a life regained for this sweet little when her next meal is coming. Please mother I was so thankful that when/if we reach girl. reconsider your new restrictions on this life- that stage that there would be something to changing drug and help Kimber and her friends help her. This is the only department I cant No hunger tantrums leading to a less restrictive LIVE LIFE FULL! control and help with in the PWS world. Us life. mother’s do everything in our power to ensure Better medical treatments and options. the best life for our children. We would move mountains if we could! Without this approval

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COMMENTS FROM PARENTS & CAREGIVERS What would an approval of DCCR mean for your loved one and your family?

My 14 year old daughter is over 200 lbs. All she their uncontrollable need to satiate their It could potentially be the deciding factor in thinks about is eating. I'm wondering if this NEVERENDING HUNGER. It would mean whether or not my son could live independently could help relieve the obsessive compulsion actually living, not consumed by thoughts of in the future. It could help my son live a near behaviors. food and hunger. It would mean freedom. The normal life. constant fear of having your loved one with Could mean treatment and relief from effects PWS dying from eating themselves to death. Less diet restrictions, more social activities.... of prader-willi The emotional, mental and physical toll taken less stress on those with PWS and their family, caregivers and medical community. A chance to thrive. The treatment they need and a normal life for Personal health safety.... them. This is the only drug available that can Hope allow a normal quality of life. A chance for our daughter to live an independent life, to fulfill dreams that were A life full of joy!!! Improved quality of life for my son and our once thought impossible. whole family. Better quality of life for my daughter. Ex. Not a healthier and more full-filling life for my child having constant hunger Life saving and improved quality of lufe. It would be a blessing enhanced quality of life More manageable symptoms A chance at a life more like others, and not The opportunity to reduce or eliminate our Life saving having to fight a constant battle within herself. daughter’s hyperphagia. This will slow more independence for both her and the family. A better life. A more fulfilled life. No more She can get the help she needs, my niece is my hunting for food or excessive eating. world. It's vital for the quality of life and life-saving components it entails for individuals with PWS. Would help with this treatment n save life's of The approval of DCCR would provide my PWS daughter the first legitimate chance to avoid We need all the help we could receive to help the painful, constant and never lessening with understanding of our love one, able a Less anxiety in the entire family and more feelings of starvation caused by hyperphagia. normal life journey. opportunities for our daughter with PWS. Not just feelings of hunger. Starvation. The approval of DCCR would mean that there is a Having more freedom as a family to be and do A significant point of hope in managing this possibility my daughter could lead a life free things in our community very difficult genetic syndrome and potential from 24 hour a day supervision. The kind of life relief in some of the symptoms. that is available to most other people. The approval of DCCR would mean that my This treatment can potentially save the life of remaining children can live their own lives free my daughter and many others with PWS! It is This medication is the difference between from the worry that they may be called to care the only viable treatment for the most major freedom and a life imprisoned by the not only for their future families, but also for symptom of her disorder. It can save her life limitations and triggers of PWS. Please their sister. The approval of DCCR would mean and many others! It is critical to get this drug reconsider. These medications could lead to that my husband and I could conceive of a time out in the market now! Please! greater freedom for individuals living with PWS, when we can live out our retirement years and ultimately lower costs for states in medical without the incredible emotional and mental Hope that the symptoms could be lessened, care. burden of having to be " on guard" every and she could live a life more like her sister and second of every minute of every day in an brother. There are so few treatments for children with attempt to keep my daughter safe from herself. PWS and NONE to deal with hyperphagia - one To put it simply, the approval of DCCR means Hopefully this would help with behaviors of the scariest symptoms of PWS. The insatiable everything to my family. surrounding food. hunger is not only heartbreaking for our child and it hard on our family trying to remember to This is a potentially lifesaving treatment and keep all food locked down. A simple mistake of Quality of life improvement would allow for our family and child to have leaving a cabinet unlocked could lead to a life- some peace and normalcy. This is the only drug threatening situation. PLEASE for the sake of shown as an effective treatment for this A full life! our beautiful daughter and the entire PWS disorder. family, review DCCR. Do not take this hope for It would mean the world to have a treatment some relief for our daughter from her struggle A treatment for the most horrible part of this that would stabilize the conditions of a PWS with hunger away from us. disease. It means hope for an independent patient future for Eden. A total life changer!! Our entire life is spent A better life protecting our son from over eating. This is our #1 stressor in life and if a medication could Freedom, normal life mitigate this challenge, we would be overjoyed. Having met approval with the FDA would open A life style we are unaware of, how it could be; a new life for people with Prader-Willi for him and his siblings and parents Syndrome. Hyperphagia consumes most of Independence for our son their thoughts, day and life. It would mean they will finally be able to live outside the prison of

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COMMENTS FROM PARENTS & CAREGIVERS What would an approval of DCCR mean for your loved one and your family?

We have been praying for DCCR as we know it Life changing and would greatly improve My daughter's life expectancy has the potential to be life changing for our lifestyle and health of daughter. son‚ to slow for more independence and a Hopefully a better life! Could potentially be higher quality of life. It would provide my family an option with groundbreaking for the PWS community not treating my daughter who has PWS. We need only my son but many others. This could save Our nephew and his family's lives could be options to treat the major side effects of PWS lives. PWS is so scary we need all the treatment greatly improved with this medicine. such as hyperphagia. we can get!!

It would change my daughters life substantially! Our community needs this NOW, lives are This approval would give us hope in a situation The suffering of feeling hungry every second depending on it. that can at times feel hopeless. The safety would mean she can focus on other areas of profile of this drug is very well understood and life. She wouldn’t be so angry and her It would mean that the individual with this the risk of our loved ones trying the drug and behaviors would improve condition could have better quality of life over having adverse reactions is so low. I don't all. I believe a child should be able to live their understand the logic in denying it with the The chance to prevent a lifetime of pain. life fully and without this drug it will be very known safety profile of the drug. If the drug hard for her to function in everyday scenarios. doesn't work then we as parents won't continue the use of the drug. Parents of It would change all of my children’s lives (child loved ones with PWS face so many challenges with PWS + her siblings. And I don’t think it is It would give him the opportunity to live a and struggles and if one part of it can be eased over-reaching to say it would change my future productive & healthy life. It has shown to be then that is a huge win in our community. grandchildren’s lives as well. If my daughter’s safe and effective. Something we have had very little of in the hyperphagia remains stable or continues to be past, the ONLY approved treatment for PWS is manageable with DCCR, that will substantially It would mean my son is one step closer to growth hormone. To require another trial on ease the burden for her future caregivers. living life full!!! It means hope! this drug and delay it to our community is unacceptable. If you do this, you will be Everything! It would help my grandchild in suffering with contributing to the mental health struggles of insatiable hunger allowing him to focus on the parents and siblings of family members It would be life-changing, truly. Hyperphagia is being a child and functioning normally in his with PWS. This drug is the only hope currently the most significant and life-altering symptom life. for reducing hyperphagia and it can't be of PWS and the symptom that all of us as understated that delaying a drug with this safety profile would be a failure of the FDA in parents fear the most. Since the day my son Help needed was diagnosed I have been looking forward my opinion. We can't push this out any further with great hope for when DCCR becomes our children need this NOW !!! Please available for treatment. To have a drug that can Some hope that we can overcome the worst reconsider your decision, our family can't wait treat the symptom of 24/7 hunger for my son part of this disease PWS. any longer for this. You will never would change everything for his future. understand what it's like to have a child better quality of life for my son and of his addicted to something that we can't deprive them of because food is something they need Everything. Absolutely everything. It can save extended family & friend who otherwise need to live. My fear is that the cost of the trial will lives. to be hyper aware of his activities, diet and behaviors be so expensive that the company will not continue to pursue the drug. Please review This would mean my daughter could live life this drug without another trial, you could be Our endocrinologist needs as many tools in her full. saving the life of a sibling who ends up with an tool belt as feasible to treat our daughter. This eating disorder because of the damaging food may mean INDEPENDENT living and/or habits, the marriage that could be destroyed Some help and hope improved behavior which impacts not only her because of PWS and the life of a child with life daily, but everyone she interacts with as PWS. PWS reaches so far beyond just the child A more normal and happy life. well. it affects, it every aspect of our lives and our other children's lives. It means my sweet little boy would not have to Hope deal with the horrible hyperphagia that is Such a more positive and controlled life style. lingering around the corner for him. It means A chance for a life filled with less anxiety for all he could live a full life not feeling like he is of us. starving. Imagine your loved one always feeling Approval of DCCR would give our family and hungry. It’s horrible our loved one with PWS a safe and potentially It could potentially save her life. Delaying the powerful tool in combatting the hyperphagia release of this medication by requiring further that most people with PWS experience. There Hunger and food seeking is one of the most trials is a real disservice to so many who could are so few options available for dealing with limiting aspects of PWS. In fact, people with benefit from this medication. this life-threatening aspect of PWS. PWS MUST live and work in a food secure environment, in order for them to be safe. It truly is an issue of life or death A medication Peace It would give us the first medicine that which curbs the food seeking would enable our addresses the issue of hyperphagia - a constant PWS loved ones to live far more independently. reduction in weight and intractable issue for persons with PWS. The need to control our son's access to food has impacted our whole family's way of life. Making the PW children's life and lifestyle Life better.

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COMMENTS FROM PARENTS & CAREGIVERSCAREGIVERS What would an approvalapproval of DCCR mean for your loved one and your family?

DCCR has the ability to put my daughter on a back on. We Need the opportunity to continue Hope for my grandson to have a more normal different life path. Currently without a drug like on this drug so our daughter can continue to future with reduced risks from the effects of DCCR, my daughter faces a future that will be live her best, healthiest life PWS curtailed by hyperphagia, anxiety and other traits of Prader Willi Syndrome and prevent her Everything!! It means everything! This is a life It would mean another tool in our arsenal to living an independent life. DCCR will give my changing drug for my son and our entire possible help our son in his life-long battle with daughter the opportunity to live independently, family!! PWS. and fulfill her potential without the shadow of hyperphagia hanging over her 24/7. Hope and normalcy! If effective in controlling hunger and hyperphagia it could result in a dramatic life The opportunity to live her life free of constant It would mean the world. Our community change for my son and the entire family and hunger, obsession with food, and anxiety social network. It would be hard to driven behaviors. needs this drug. It’s proven to be safe and effective. It’s a chance for my child to live an overestimate the impact. independent life. Possibly independence for our daughter. Help so much with food seeking. This drug would be life changing as it helps with Hope one of the worst affects of PWS. Everything

It would help reduce the tremendous hunger It would potentially be life changing due to the Hope drive and some of the behavior issues. It would behaviors surrounding food seeking behaviors potentially allow our son more freedom and my son's life is very limited reduce the stress on the family. It would help my daughter can better control over life and would make her a healthier adult It will be an extraordinary it approval. Hope. Hope for our daughter's health and future. Hope for a more inclusive, fulfilling life A chance to minimize certain "symptoms" with possibilities. Today, we only strive for that It would mean the world to us as it would help related to our child's diagnosis. hope. Soleno's DCCR can provide that manage one of the most debilitating symptoms incremental hope that is so needed. of pws: insatiable hunger. This approval means so much to my daughter and her future, and for us as her parents. This would mean hope for some "normal" in my Opportunity for longevity Prader Willi Syndrome has so many symptoms little ones life. Normal is hard for our loved the worst being hyperphagia, and if this drug ones. Not only helping with hunger issues but Any reduction in hyperphagia and behavioral can help my daughter to never have to feel that also helps avoiding the other health conditions difficulties would make life significantly easier constant hunger, so that she can focus on that come along with it. for my daughter and her caregivers learning, and growing. You cant focus on those things if you are always hungry. Jessa has 3 siblings that want her to grow up and do big A chance at an independent life. This is the only life saving drug out there to help things and affect lives and she needs this drug my loved one live a better and healthier life. It to do that. Please don't take that chance at a A chance at living life to its fullest. would mean the world to us and our child better life away from her.

Hope for an effective treatment It could potentially save a life a better life

Hope, better health, not feeling hungry. No on It would change his life and free us to enjoy life Hope! understands PWS as well as a parent. The toll more. this syndrome takes in on the entire family. We Our community needs this NOW, lives are live in constant lock down of food, temper Maybe some hope. depending on it. tantrums, doctors visits, constant supervision so she won’t go steal food or take out if a Hope for our children to live a life of not being That we could live life without the daily fear of garbage can. Yelling and screaming because hungry! And to not have this life threatening she’s hungry. Pain of clothes shopping to find losing our child to overeating which she cannot situation for our families our children would control. clothes if tweens but she’s overweight and have a normal life and be happy! can’t wear those types of clothes. People don’t want to be around her because she has no Hope and less anxiety This could potentially save lives!!! social skills and we don’t as a family have friends nor do our family understand why she Combat some of the most prolific health talks in a yelling tone. The list goes on and in. Possibly being able to not lock our cabinets, concerns for our son now and in the future. Please there is nothing out there to help people fridge, and pantry. Living a life as close to a with PWS. This is the closest we have come to typical person as possible at least when it We could combat some of the most prolific hope. coming to food abs eating habits health concerns that face our son now and in his future. We have been participating in the trial and saw It would greatly help her mental and physical marked improvements in behavior and weight well being A chance at a happier life for my son. loss and reduced fat prior to Covid 19. Once all structure was taken away her hyperphagia went crazy. All the weight she had lost she put

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COMMENTS FROM PARENTS & CAREGIVERSCAREGIVERS What would an approvalapproval of DCCR mean for your loved one and your family?

It would be life changing. My son would be able college classes in person with peers and only Change, COVID vaccine provided in less than a to live life without the constant hunger that studying at home online so that mom and dad year get this one done... plagues children with PWS. My son would be can always keep an eye on him. When it is time able to enjoy life. for him to enter the workforce, an effective My son Markus is limited from living his full medication could the difference between being potential in life by hyperphagia. He is so blessed At last there would be a drug to curb my son's able to hold a job independently and only being to have not been affected by any other life insatiable appetite. able to work when closely supervised. When threatening symptoms or co-occurring you also consider how many work programs for disorders of PWS however just this one requires adults with disabilities focus on the food him to live in a group home, in order to keep It would mean the world. We want our industry, the future work options for my son granddaughter to have a normal life. him alive. My son has participated in two other look really bleak without help from a FDA studies, we're trying SO hard to do all we medication like DCCR to help him manage his can to help ourselves and others. This It would give my lived one the ability to control symptoms. treatment could potentially save the life of all her destructive behavior. of our loved ones with PWS. It is critical to so Life changing many families to get this drug on the market as A chance for him to grow up and live a soon as possible! relatively healthy life. A chance to function as a family. Treatment for hunger pains and ability to Hope Less stress better health better control weight and wellbeing for people with PWS To help to curb my daughters appetite would Freedom bring so much peace into our home! She Living a better life deserves a chance to be more 'normal' and enjoy life, even if just a little. It is unbelievably Maybe a chance for a more normal life for my daughter and my entire family. Life changing medication for those living with difficult managing a PWS patient, and her PWS. limited understanding of the situation makes it even more challenging. PLEASE help make this drug available to our PWS family members, as It would help my daughter deal with the struggle PWS is going to have on her soon as possible. We are willing to take the A more normal life! risk, so that our children may live a better, happier, and healthier life! This treatment could potentially save the life of A future without fear of starvation our loved one with pws. A step in the right direction to live a normalized lifestyle. Everything! Hope for a normal life

Freedom for our girl around food and typical Could be lifesaving and definitely comfort A chance of normal human life! anxieties that are bound to develop. providing for those who cannot quench the sensation of hunger due to PWS. A quality of life worth living. Much needed help If it controls his hunger EVERYTHING It will be very helpful in the future. Our son does not experience severe HOPE for a more normal future hyperphagia, so at this time, this treatment is A sigh of relief for my baby not needed for him. But for those who do struggle with severe hunger/appetite, there The only form of medication that can help test have been good results, and those individuals and control what he has. Freedom. deserve the opportunity to be free from constant gnawing hunger. QUALITY OF LIFE Help with behavior and eating disorder.

Much needed help Approval would mean a chance at treating the It gives our family hope that our daughter could most life-altering symptom of prader willi have a normal life. That she would not have to Potential relief from debilitating symptoms syndrome and giving my daughter her biggest struggle as much. caused by PWS chance at tackling her biggest future obstacle in life. This drug would give our daughter a hope for a Improve his life quality normal life. We are so hopeful that DCCR treatment would Less stress that my child will suffer. revolutionize therapy and medication options Potential lifesaving and quality of life for my for PWS. My son's quality of life would greatly daughter. increase if he never had to struggle with My son is in high school so he is on the insatiable hunger. doorsteps of adulthood. He is a smart boy who This is the only viable treatment for the most has a ton of potential to be a productive life threatening symptom of our daughter's very member of society. Having a medication that Approval of DCCR means our son will have a complicated disorder. It could add years to her helped him manage his PWS symptoms could chance. A chance at an undeterred education. A life. be the difference between being able to take chance to live independently. A chance at a successful career. A chance to live life FULL!!

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COMMENTS FROM PARENTS & CAREGIVERS What would an approval of DCCR mean for your loved one and your family?

Approval for the first treatment to for the most slavery of being obsessed with food. Hope that independent good quality of life challenging symptoms of PWS would be life finally something could ease his daily struggle changing for my child and our whole Independent life and better quality of life community as we currently have no It would be a life saving treatment for our loved treatments. one. The ability to keep our child safe. Keep him at home instead of a group home and some Life changing Hopefully improved quality of life for my child stability in our family. and the family. Hope It could change the quality of life for many PWS A healthy life individuals. It can save my kids life. The chance at a normal life! The chance to live Greater opportunity, better life A better life and love like the rest of us. The world is hard enough without having PWS, why would we It could potentially save the life of my son who Greatly improve his quality of life continue to knowingly make it harder when has PWS. It is the only treatment for the major there is a treatment like this available? symptoms of this disorder. It could save his life Better care for my child. so please get this drug in the market ASAP. I A better and fuller life without the damaging WOULD LOVE FOR HIM TO BE ABLE TO TAKE affects of pws THE MED AT THE POSSIBILITY OF NOT HAVING A light forward for children that struggle to CONSTNST FEELINGS .OF HUNGER move through simple daily tasks, and time spent with loved ones, without the soul- This would help him live a fuller life physically crushing desire to eat. Why wait on "safe" and and his overall behavior. It would mean a chance at some sense of "effective" drugs if we can give even some of normalcy. these children a chance to focus on things we It would give Paxton a chance at more typical take for granted. childhood and life. There are no drugs available After 22 years of constantly battling feelings of today to treat what we know is coming. As hunger and spending her waking moments A treatment for PWS would be life changing for parents we want and need to at least have a obsessing over food, our daughter could live a my son. Currently, he tries to eat himself into a drug available that we can choose to give him. fuller, richer life. She could enjoy everyday coma. With treatment, he could potentially live Without the fda reconsidering their denial of activities without worrying about her next an actual life not revolving around food! the NDA, it takes from parents the opportunity mealtime. She could stop feeling isolated as she to made that decision. does now, when she can’t even do something as simple as eating out with friends. It would give a treatment for their constant hunger. There is currently nothing else on the We would him to take it to help control his market that does this. appetite as well as social development. Better Quality of life

It would be life changing. Our PWS kids and HOPE. Right now as a parent I have nothing to Improvement in quality of life. Possible adults could live a fulfilling life. It's so very offer him. We have no choice but to wait to additional independence. important for all. watch him struggle. Knowing this was working it's way down the pipeline is what offered us It would, quite literally, change the course of hope these past couple years. This treatment could potentially save the life of my daughter’s entire hunger-driven life.

This could be life changing for a person with My little guy could Live Life FULL. It is my goal That I could leave him with others for periods PWS. This is the only drug addressing such a of time. that he will never have to feel like he’s horrible part of the disease. Please approve starving. With DCCR, that would be possible. this. It would be equity in access. My sister has PWS, The possibility of living life independently, as and it is a challenging syndrome to live with, An approval of DCCR would give us the both for herself and those around her. Any well as not having a permanent feeling of "security" to know that our son could live a hunger opportunities to improve her wellbeing should decent life, full...This would include living a life be accessible. as normal as possible when at home, attending It might have helped her from becoming school, going to family functions, etc. Without morbidly obese and eventually dying from the DCCR, we have nothing other than locks on Improved quality of life syndrome. cabinets and the unknowns of a rare disease that could kill our son. Supports getting a drug to a patient with unmet It would be life changing for our Milo medical need and supporting a foundation for A complete change of life style that would additional research be supported to get better drugs to patients with PWS Living every day easier prevent premature death, allow for participation in society AND reduce the cost of care by hundreds of thousands. After reading the study data I am confident this A greater sense if normalcy drug will significantly reduce his anxiety and Immense pain and suffering would be alleviated compulsive aggressive behavior. It would A better future for my child and family. The and quality of life would improve improve the quality of life for him and our possibility of my child being freed from the family

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COMMENTS FROM PARENTS & CAREGIVERS What would an approval of DCCR mean for your loved one and your family?

Better care and health the cabinets and fridge would be helpful for the We would be happy. PWS community! It would mean my daughter can have a I believe this treatment could help improve the "normal" life!! It would allow her to eventually life changing possibly lives of those with PWS. DCCR has been shown live independently, manage her own health and to be safe, effective, and is currently the only keep her safe. A more healthy child and less anxiety about his viable treatment for the most debilitating future. symptom of PWS. It is not an overstatement to Hyperphagia is a devastating disorder that say that DCCR can save lives! It is critical to this affects families and caregivers of PWS children. community to gain access to this drug as soon It would ease the fear of my child may sneaking as possible! food and eating until her stomach ruptures. It It would mean a fuller and safer life for my would allow her a more peaceful day instead of daughter worrying when her next snack is or her next Our daughter could potentially live life full! Our meal. It would allow her more restful nights family wouldn’t have to go through the struggles of her always being hungry and the A control of my daughter's anxiety. An ability instead of wandering the halls, checking the fridge, the locks on the trash cans or the garage guilt of having to tell her no when she doesn’t for her to have more control over her actions. understand why her body is different than ours. An opportunity for our family to come closer to in search of food. It would allow her to function in a more normal capacity because the desire She could be healthy, happy and not experience being "normal". My other children not being some of the pains her disorder is known for! embarrassed because my daughter with PWS for food wouldn’t be there. It would allow gets upset or ruins a meal or an event or has an family peace to function as a more typical outburst in front of others. A chance for my family instead of having to plan outings around Hope. Hope for a better quality of life for daughter with PWS to not always feel like she snacks and meals because we have to prevent Logan. has no control, but that she can control what is the tantrums and melt downs. happening to her. An ability for my husband I strictly monitor my daughters food in take. and I to have some semblance of sanity in our Freedom, hope, life changing opportunity to Having a drug that will help with the daily struggle with PWS. not have a child with anxiety and continued hyperphagia is a god send. It would mean that I health complications. will still have to worry but not as much.. It Everything! Our daughter has much better gives my child more freedom. It allows me to behavior, much less anxiety, and the ability to Improved quality of life ease up a little. It means that I am not the do school because she is not consumed by mean one. It means that I am not "that parent" at the school who the teachers and admin anxiety and wanting food. We NEED this Freedom in ALL ways medication! despise because i hold all of them accountable every minute of every day that she is on Help with the most significant issue our campus. It means peace of mind for me to not Our 33 year old son has lived every day with grandson deals with, insatiable hunger. Having have to be "that parent" and "that mean mom" unrelenting hunger. Behavioral issues have treatment options available to deal with this who makes the rules and makes sure that they disrupted his and our lives. DCCR presents the will improve the likelihood of being able to exist are always followed. PWS parents need a break first chance ever to help these issues, and with on his own some day. We need options like too. a medicine that will not ham him. Please this for PWS patients! approve A new med which can be given to my "child" to Healthier longer life improve his life! Life changing. Our son has PWS, and has the constant hunger of PWS along with behavioral issues, at times becoming destructive, lashing It could potentially save the life of my daughter. Freedom from constant hunger and anxiety out verbally or physically. There is no There is no other medication out there like it. treatment. His mom has stage 4 breast cancer, It needs to be approved. It would be life-changing and potentially life- and DCCR would give a chance for some peace saving. for her and our family. Total game change to have a child who wasn’t hungry Peace of mind, having my child present and not Possible independent future. FULLness, stuck with her perseveration, anxiety, etc. healthier future, feeling of content. Control A full life. Ability to life with out others to over self, it would mean so much and is our support him Everything. Quality of life improvement for my biggest hope for him and others like him child and an opportunity for one day to him to Future options for treatment of the main be independent. It would mean a better path for my daughter, symptom of PWS. To date, there is no approved hope that she'll be able lead whichever life she treatment for the hyperphagia that is present It would mean the chance for a normal life. In chooses. Our PWS community needs it and the and quality of life altering for those with PWS. many cases, patients on DCCR are finishing sooner our kids can begin treatment the school, working, driving, and enjoying social greater the chances we have of getting ahead Hope events for the first time in their lives. The idea of hyperphagia. that the FDA may take away any chance of my Greater freedom in life, navigating around son receiving this life-changing drug is A life less restricted. food, and a decrease in unwanted behaviors infuriating to me. triggered by food or a lack thereof. DCCR addresses symptoms that no other Safety, piece of mind, and overall health. This is medication covers. A medication that helps Freedom!! Freedom to live!! priceless. with hungry suppression vs having locks on all

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COMMENTS FROM PARENTS & CAREGIVERS What would an approval of DCCR mean for your loved one and your family?

Our daughter works very diligently to maintain the lives of our loved ones. Along with the A treatment option a good weight. All the extra work studying she added benefit of peace within our family. must do, leaves little time for rigorous exercise. Everything we do revolves around our child John is a sweet little guy who loves to learn. By She wants peers to feel she looks good and is with PWS because they can not control their having access to DCCR, we believe it would like them. hunger. All comes down to the hypothalamus. significantly improve his quality of life and for the ones who he interacts with on daily basis. It It could change our daily stress and anxiety A chance for a normal life. Independence will be difference between day and night. It will over behavior. It could help us travel and instead of lifelong dependence for my son. also help him to pursue his dreams by taking actually leave our house. It could change how Freedom. Less anxiety, less aggression, less away some of the obstacles out of the way. we participate in our community, fear. A NORMAL LIFE. neighborhood, and our other adult children. Potentially avoiding the unrelenting hunger and It would be life changing!! The approval of this emotional trauma associated with hyperphagia- Everything in the world. This drug is the next drug would mean that our son would not feel -never feeling full. step closer to allowing to live a full independent as if he were always starving! It would also help life. This drug is needed for thousands of relieve anxiety around food and other social A chance at a normal life people right now. We do not have time for situations. In full, this medication could mean another trail. the difference between a life of food seeking, obesity, anxiety and depression or not. Life saving to this child This medication could be the future for us. It could potentially save my Child’s and others This drug has the potential to save my child's Good option with PWS lives. We want what’s best for our life from this cruel disease. children and if its a medication, then that’s Behaviors would decrease and being able to what we need! Please reconsider this drug! Another tool to help us deal with the many live a more fuller life would increase. many affects on my son caused by this genetic Improve quality of life condition. An approval would give us great hope for our daughter. Hope that she can live a long, happy a chance More options for treatment for my son, life. She was dealt a hand we cannot take away. treatment that could change our lives for the However, with a treatment to lessen the better. symptoms of PWS, she wouldn't have as many Life changing for our son obstacles to face each an every day. This approval would mean the world to us! Hope Nic is a smart kind and loving little boy. He is in the 4th grand and struggles to keep up with his "typical" peers. He has many struggles that he A longer healthier lifespan. More time to enjoy DCCR is a life saving medication! is trying very hard to overcome such as: His precious moments making memories constant hunger for food/ and food seeking, he After suffering with Prader-Willi Syndrome for has some outbursts that can cause damage to life changing. 41 years, this medication has the potential to things and people around him, ect. His family greatly improve the health and quality of life and doctors believe that DCCR is one key that It would mean I don’t have to worry about how for our daughter. could unlock his future. Please reconsider their much pain he’s in and restraint he needs to application and give PWS kids and their families have at such a young age. Improved body composition, reduced hunger this much needed medication. and improved behavior It would mean help with the worst effects of Hope, peace, love, less worry Prader-Willi Syndrome including aggressive and Not struggling with being hungry at all times destructive behaviors. All children deserve a and maybe being able to manage weight better Our son will continue to live life feeling full and chance at a more normal future. no more hunger with the ongoing treatment of Everything to us DCCR. Hopefully would help in their behavior & reduce egocentric reactions constantly. It would mean the absolute world to my family My son has PWS, and over the last year we if DCCR was approved. I don't want my child have been seeing an increase in food seeking, Peace of mind of managing hyperphagia with PWS to have to experience hyperphagia. and behaviors related to food. Because of this, our son is only able to think about food in Just imagine having to live hungry for the rest It would mean that he might never feel the instances where a typical child could focus on of your life.... Now, imagine being 8 years old affects of hyperphagia. and having a long life ahead of you. But you play, school, and social relationships. The never feel full. A drug like this could help approval of DCCR would mean that we could immensely! have a treatment for the food related behaviors Since our son is not quite 3 years old, he does so that our son could live free of the burden of not experience hyperphagia yet. But he is hyperphagia and enjoy just being a child. already showing an increased interest in food To save her life! And to surpass this painful compared to his neuro-typical peers, and it is experience only a couple of years until his appetite will It could relieve some of the day to day suffering become insatiable. We are terrified of this they experience of insatiable hunger Peace. Right now the seeking of food constantly prospect and the challenges it will bring to him comes with anxiety. That anxiety is turned into and our family. We are hopeful that DCCR will uncontrollable meltdowns. This drug could save Everything! be available for use in PWS before our son

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COMMENTS FROM PARENTS & CAREGIVERS What would an approval of DCCR mean for your loved one and your family?

reaches the stage of hyperphagia - that he will families. It just Makes me so frustrated and sad The possibility our son can live a more never have to endure the unrelenting hunger or knowing it’s not enough PWS awareness. independent life. the extreme food-related anxiety that Numerous times I had to explain to Medical accompanies it. With DCCR, our son will have physicians (Dr. Nurses. Specialist .etc. what is A potential cure to a life long struggle with PWS the ability to reach his full potential in life and PWS. We need HELP and it’s needed. I want my for my son. won't be held back cognitively and socially by daughter to live a full and healthy life . Please.. hyperphagia. Aide my son in future struggles with excessive This could potentially save his life and others hunger. Complete and utter detriment to the life and like him. It’s imperative that this drug get success of one of my students and her family. approved and on the market ASAP. Less mood swings, her life wouldn’t be in danger from over eating, her quality of life DCCR would give hope for my child with PWS as A better life for my daughter. Can you imagine would change the hunger aspect of the disorder is the most our poor children feeling hungry 24hours a day. challenging. We need DCCR for the best life for Put yourself in there shoes. How do you feel the PWS kids. when you super hungry and simply don't have We want to make sure that all of our PWS time to eat, hangry, frustrating, pain. Now think Warriors live a full and independent life! Some hope for an unknown future of when you finally get that stratified feeling of being full. Think of our PWS kiddos that do not It would potentially mean better sleep and less get to know what that satisfaction feels like. anxiety, less stomach pain for my 9yo son. We a more normal life...locked fridge, pantry and Please reconsider. also lost a 6yo son with PWS last year. We had all edibles are locked opening and closing each HIGH hopes for DCCR to help his anxiety and every time in AND OUT OF ANY FOOD pervasiveness around food and in other areas SUBSTANCE location is critical. This will mean a better life for my baby girl. Anything that will help with the hunger feeling of his life. We know MANY of his PWS peers will be amazing. Can you imagine going 24hrs have similar struggles. They deserve this An answer to our prayers. Our girl is the light 365 feeling hungry. chance now, not years from now. of our loves and this therapy could give her an unprecedented chance at a real and free life. Treatment option for a disease which has none Possible more normal life Life without limits Extremely important A great deal It would be life changing of my daughter. It is a hope for my child. To live normal w/o judgement from others that Provide her the opportunity to do as other kids don't understand this condition. her age do both now and when she gets older. Better quality of life. A safe and independent future for our only son. A better quality of life for our son, Brock. Healthier, happier... Live life o the fullest Hope! Imagine your child never feeling full!

This treatment could potentially save the life of For our loved one: Improved developmental outcomes (socially, academically, physically, It would be life changing not only for my son but for all you care for him. A treatment, finally psychologically, and emotionally) when not plagued by symptoms such as hyperphagia and obsessive compulsive disorder. Social My son was just diagnosed yesterday. This Better future and quality of life for my son, acceptance from peers, a sense of belonging, a would mean the world for his future. treating the hunger and other effect of PWS chance at a normal life and independence. For would mean the world to us our family: Reduced emotional and financial Could be life changing. My child is constantly stress, fears about health problems, morbidity, hungry and therefore forages uncontrollably. Control of appetite and behavior behavioral issues, and long-term care in our This makes it very difficult to keep her in our eventual passing. More time to enjoy family home. Can you imagine living your life in Piece of mind and healthier life outings, gatherings with friends and family, and constant hunger? celebrating typical life milestones. A life of independence for our child and the joy It would greatly improve quality of life for our of seeing her living a normal life It would mean that my loved one can live an daughter. To always feel hungry is a real independent, successful and comfortable life challenge in every moment of the day and night like any other child/adult. It would mean that An improved quality of life for her and her loved ones. my loved one can live a life that is not overshadowed by additional anxiety, behavioral So many life changing solutions This would mean so much to me and my family issues, stress and hunger. This would allow my . It’s has been a difficult Journey for us . My loved one to live a better life and enjoy life daughter was diagnosed at the age of 5 yrs old. experiences like any other kid/adult. The approval of DCCR would mean HOPE for my She just started growth hormone treatment a daughter’s future. It would mean my daughter yr ago April 2021 would be a full yr. she is 9 could avoid challenges and give her a shot at a My daughter died at 20 from gastric rupture now and so full of life. That’s just two- three normal life. while in a hospital. Had she lived, and had pieces to our puzzle. So just imagine my access to this drug to treat the hyperphagia, daughter’s Heath condition. To have approval she may still be alive. would help not just my daughter but to many

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COMMENTS FROM PARENTS & CAREGIVERS What would an approval of DCCR mean for your lovedloved one and your family?

The world! Our individuals need to this to lead Could save lives! A longer quality of life for the younger ones and happier and healthy lives. As well as potentially their families cute them PEACE OF MIND...KNOWING THAT WE ARE A GROUP IN NEED OF GOVERNMENT SUPPORTIN Quality of life Less stress and anxiety ALL SHAPES AND FORMS "MONEY INCLUDED" a possibility for a more normal life in a This drug can help eliminate some of the This would be life changing! Our girl would have community and a chance to spend more time obstacles in her way of that dream. Her family relief from everyday agony of feeling like she's with family. and her doctors believe that DCCR is one key starving and many other negative issues. that could unlock her future. Please reconsider It would mean freedom from obsessing about their application and give PWS kids and their This could be a life-saving treatment for my son food all the time and freedom to relax and families this medication. and for all individuals with Prader-Willi enjoy life Instead of feeling hungry alway Syndrome! Help her decrease her eating habits, help her Hope improve her behavior skills, and make her Hope for my child to live with a significant overall - have a happier more productive life!!!! increase in quality of life and one day living The approval of DCCR would mean that there is independently. a possibility that my daughter with P.W.S. could DCCR is the only viable treatment for the most go to school and be able to focus on school major symptoms of PWS. It can save lives and is A chance to live a normalized life without the hyperphagia. At home it could critical to get this drug on the market as soon as mean a relief of stress for her that the possible. This drug could significantly improve hyperphagia can cause. the wellbeing of my friend with PWS as well as The possibility of help in my child’s never their family. Please reconsider all of the ending hunger. This kid never stops thinking benefits that DCCR can result in. about and asking about when his next food is more freedom in experiences outside of home whether it’s a snack or meal or a piece of gum it where we currently manage food consumes his life and therefore for ours. If this The hunger. The food seeking. The constant works it could be absolutely life-changing in a supervision and anxiety around food. Huge It would mean potentially saving the life of my super positive way for my amazing wonderful son! strives for weight loss instead of being focused kid. around every meal. Better quality of life. Hope for an independent life and a more typical It means a lot to control the symptoms of PWS childhood with friends and activities without patients. We truly need it to proceed and all the constant supervision of a parent. DCCR It would mean a somewhat normal life for my PWS patients can benefit from it after gives hope that my child will be more similar to son commercialized. Thank you so much! his peers and that he can be safe while outside of the watchful eye of a parent. DCCR provides A chance at a normal life. This diagnosis has Help people with Prader Willi Syndrome hope that my son will not have so many crushed every dream we had for our new baby additional symptoms/issues because of the fact and this would give us this dream back. He Quality of life for our son! he has PWS deserves a chance at a life that he was sent here to live.

A better life! Less stress, more hope and opportunity The approval would mean that when my daughter starts food seeking or has meltdowns Hope for a better and more independent living HOPE and a quality of life that everyone should be entitled to. over food restrictions I would have options to conditions. make her life and my family's life a little easier.

A healthy future This could save her life and so many others. DCCR is the only medication with potential to be available to those that need it soon. Not A chance to help our son live a more normal Please take a moment to google the outcome having any option to potentially help treat and safer life of PWS when not controlled by family. Morbid hyperphagia is unthinkable, even if it only helps obesity. Death. Give our child a chance. some or has some side effects which are less The PWS community has been "hungry for a devastating than hyperphagia. cure" since Prader-Willi syndrome was first Her future might be easier for her then we discovered. Our daughter has a BMI of 43, yes, think it will be at the moment Our child and our family's life would be 43! She has completed 3 Clinical Trials,, walks 4- transformed for the better. The data coming 5 miles a day, is on a strict diet, and the FDA That families have options in treatment out has give us out first real hope for our doesn't want to review data on a Stage 3 daughter since the diagnosis. Clinical Trial that has been proven effective? The ability to live a life with higher quality and We are asking you to PLEASE review the Stage 3 independence. It would be life changing for him. He'd have data, just as you would ANY OTHER DRUG's struggles but this could help in so many. We'd performance, and PLEASE approve it. We do It could save the life of my loved one with have more hope and he'd be able to have a NOT want our daughter to die from a syndrome more normal life. that the FDA can help prevent with your PWS!!! approval.

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COMMENTS FROM PARENTS & CAREGIVERS What would an approval of DCCR mean for your loved one and your family?

Possibly saving the life of my loved one or What a tremendous difference it will be to help Life changing meds for our daughter with PWS. another child/person dealing with pad. him feel better. We have several friends of ours who are in the trial and doing so well. One Of them is 22 and This drug would help improve my son's It would help to reduce stress for everyone, she can now go to the mall with friends without behavior and the possibility that he could live anxiety, and frustration. It would also improve the risks of eating herself to death. Please independently when he graduates high school. the health of our daughter reconsider. PWS is one of the cruelest Without it, we have no hope of him living syndromes out there. Please help us. independently. A major change we can have a normal life again Over 14 years ago, we received a diagnosis for Life saving! It has been tested to be safe and our son of rare syndrome unknown to us. It effective!! It would mean my daughter Grace would was clear from the start that we would need to potentially live free from hunger pains. be vigilant in learning the complexities of this Many blessings syndrome in great detail to ensure his safety The approval of DCCR would give us the ONLY and development. What was also striking was option of helping our daughter with the the lack of treatment options which left us little It would help relieve Brody from the constant debilitating and life threatening symptom of hope for his future. Never to be ones to stand hunger which leads to behavior issues. It would hunger. There is nothing available to treat our idly by, we committed to being a part of the bring more joy and less stress to our family! loved ones most devastating symptom. Please solution to advocate, fundraise for research help us. and most importantly, participate in clinical Possibly help in keeping a healthy weight trials for solutions to the hallmark symptom of PWS that is so limiting, hyperphagia. To date, The ability to reduce the insatiable appetite in Life changing our son had participated in 2 natural history my son would reduce his suffering and thus the studies, 3 behavioral studies, 1 eye tracking suffering that I go through as his mother. study, 1 weight study, 1 dental pulp study, 1 a better daily life and furture PATH for PWS study, and 2 drug trials. We are Improved functioning in general. Less committed to our doing our part in providing It would be essential to my loved one for a fair distraction / outbursts over food. Fewer researchers a willing study subject knowing that way of life discussions about when/what food will be everything we learn about PWS is a step available. towards the future of independence in his life This medication has the potential to and an unshackling from the chains that tie him significantly improve the life our son and our A better quality of life to a life of constant hyperphagia and entire family. surveillance by adults who monitor his every That he is not taking about food all the time move every hour of the day to ensure he and for him to feel full doesn’t consume a quantity of food that would With this drug our sweet Quinn would never kill him. To say we are tired would be a pathetic have to experience the most debilitating side attempt to describe how one feels after effects of PWS. The PWS community had been Removing the stress of our child binging to running a marathon. To say we would like loud and clear, we WANT this. We want our death. solutions is a paltry vision of the overriding loved ones to live their lives comfortably and desire to have even just one solution that happy. It would mean that my sister wouldn’t be makes life simpler and freer for our son and for starving anymore. It would also take a huge our family. The solution may not be perfect, but Jocelyn is an amazing 8 year old girl with many weight off of our family’s shoulders so we meaningful improvements can allow us to let hopes and dreams. She wants to be a doctor wouldn’t have to worry about her relationship up off the gas just a bit and breathe a bit easier when she grows up. This medication could with food every time it’s in the room. knowing the danger has lessened. A review of make that possible. this drug is what we ask. Those that have been The chance to not worry that with one slip up participating in the trial can attest to their The world! on my part as caregiver, she could overeat and staunch belief that this drug has made die. A chance for my daughter to live a more meaningful differences in their lives. We want independent life. the same chance to have this change in the life Happiness of our son. I urge you to consider review of the medication for him, for us, and for every single Hope, extended life expectancy, options A chance at a more normal, less stressed life! person touched by PWS. It is time and we need help. Less anxiety and mental health issues; To be able to live independently without staff significantly improved quality of life for all of around the clock. My daughter has pws. It will be hard for her as our family. she gets older to always feel hungry. This Help for the hunger and behavior aspects of medication has the potential to help her to not This would be transformative and life saving for PWS have to feel hungry all of the time or to eat so our daughter! much that it could end her life. What if it were Everything you? EVERYTHING. Freedom for her and the parents/caregivers Better quality of life for all family members, reduced suffering with hunger and behaviors less OCD for our loved one with PWS. More normal life Significant improvement in daily living

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COMMENTS FROM PARENTS & CAREGIVERSCAREGIVERS What would an approvalapproval of DCCR mean for your loved one and your family?

They would be able to live more of a normal desperately needed treatment. Could also cost DCCR when the time comes would be life. lives period. There is currently NO treatment invaluable. It was proven safe and effective for for the debilitating effects of hyperphagia for some - having this drug available will save lives. Perhaps save his life individuals with PWS Many are suffering, unable to lead filling lives due to the constant It would save her life hunger they feel. They need help NOW, we A life changer can’t wait. Their lives are worth it This should be an easy decision and will literally save lives. She would be able, for the first time in her life, It would be life changing. The hyperphagia that to go outside and play with her 5 siblings. She has not been clinically cleared to go out in this drug addresses is a debilitating aspect of EVERYTHING!!! This treatment can save the life Prader Willi Syndrome. public because of PWS, and this has caused a of my nephew. It is extremely important hardship on the entire family of not being able to do things most families take for granted. Any reduction in the unrelenting hunger and Better quality of life for my son. drive for food, would ease a huge burden on us both. It would also allow for weight loss, which Freedom from the type 2 diabetes she already is a never ending struggle. Treatment options, currently not available has due to her hyperphagia. She can focus on things she wants to do instead of her hunger. A better control of the syndrome and anxiety Maybe we could start to try and live a more and behavior issues related to it and an normal life and our child could enjoy life and It could save the life of our little one. LIFE optimum quality of life for loved ones. thrive instead of so much focus and outbursts SAVED about food The options for her future change dramatically. Life saving Having a one year old it's impossible to not be in awe each day of the infinite potential of the DCCR would be potentially life-saving for our It would be life-changing as it would give our human spirit. My daughter is amazing and daughter a chance at having a more normal life. daughter Ella as it is a safe treatment for resilient and I want her to have every dangerous symptoms such as hyperphagia and opportunity to create the life she wants to lead. dangerous behaviors. It Would it be awesome for the family and my Any chance at supporting her to face less son. challenges, especially as unfathomable as constant hunger, is an opportunity she Improved health and overall quality of life My son receiving help for the severe day-to-day deserves. struggles he faces due to PWS These individuals currently live in a structured Peace .... group home together. This would dramatically change their daily living. Happiness She would not be on a constant hunt for food. A better, more productive, happier life. A normal lifestyle and longevity of life. She could build normal and healthier relations with people. Verses building a relationship with someone because of their lack of knowledge of It could possibly save her life. She could It is so incredibly disappointing to hear the her PWS in order to get food from them. possibly be able to live a normal life that she so denial of approval of DCCR for individuals with desires. PWS. This decision could not only cost time, that many do not have but potentially create My child would be able to go throughout the the loss of treatment if a further trial can’t be day without the constant feeling of hunger. It would mean that my daughter could live a funded. There is NO current treatment for this She would be able to focus in school, have closer to normal life. It would improve her debilitating aspect of hyperphagia in individuals some independence, feel less anxious. Our quality of life as well as our family. with pws. So many are suffering NOW, unable family will feel less stress and heartache. We to live full lives. They need help now, THEY ARE will be able to live a "normal" life. Would mean everything WORTH IT! My son is a beautiful, happy 3 year old... I never want to see the day where he is Hope This medication would provide hope for a continuously hungry and unable to have the better quality of life for my daughter and our same independence as his peers. He deserves A Independence for our child and the chance for family. VERY FULL LIFE free from the shackles on him to feel full and less anxious continuous hunger!!! This is a life changing drug that would have a A chance to reduce life threatening symptoms huge impact on my child’s QUALITY OF LIFE! Our child is three years old and we don’t ever of PWS. This is as important as it gets for want to see the day where he has to go every helping this community. hour of the day feeling hungry and unable to A brighter future without the difficulties live his life to the fullest. This approval would hyperphagia brings be life changing for both our son Owen as well While we are not currently experiencing the as all others with PWS. Incredibly debilitating effects of hyperphagia we know We had such hope knowing DCCR might have disappointed at the news that the FDA is not this is a scary reality of our future that could been approved before we got to the going to approve DCCR for individuals with PWS change at any time. We need treatment hyperphagia phase. But, we are getting closer now No. approval could cost these individuals options desperately yo allow our child the to it becoming our reality, and not having this years (that they don’t have) or even worse ability to live and independent and full life. This medication means our daughter will know what could lead to not having the funding to conduct is only one aspect of PWS and unfortunately it feels like to be constantly hungry. Our non another trial and completely miss out on this can be deadly for some. Having the ability to try verbal daughter will possible be screaming and

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COMMENTS FROM PARENTS & CAREGIVERSCAREGIVERS What would an approvalapproval of DCCR mean for your loved one and your family?

crying from this feeling. But, DCCR was our life irrespective of any disease. We cannot wait certainly required to live in a group home or at hope we needed, and we need it. Hyperphagia another long wait for more trials we need cure home indefinitely. is life threatening. We need this medication and we need the drugs to treat rare diseases. now. PWS affects 1 in 15000 births in USA and our Hope!! kids deserve treatment. This treatment could change the life’s of dose Happiness, improved family life with improved with PWS.DCCR has been shown to be safe , It would help him live a more normal and relationships, decreased supervision of child effective and is the only treatment for PWS. fulfilling life with PWS leading to increased independence and self-esteem. This may save his life!!! Our son is only 8 and is More independence. less stress, the possibility just starting with some hunger issues. This for an independent life Better chance of a longer life for our son scared me so much. He is already somewhat overweight, please help him. We need help with hyperphagia so that our A better quality of life. Thomas, and others, can live life to their fullest It would give my daughter independence. and remain as healthy as possible. PWS was first diagnosed over 60 yrs ago. To date there is not a single treatment to help with Treatment for the biggest concern for our Freedom the Hyperphagia that these poor children and daughter that would help the entire family. Me, adults deal with every day! It is absolutely my husband, and our 3 other children are To give any chance possible to alleviate any appalling that there is a potential treatment always on watch for our daughter trying to pain by using dccr that the FDA is halting for more testing when protect her from acting on a basic instinct, the testing has been done. If you had a child hunger. It’s heartbreaking to tell her she can’t Improved quality of life for him and for us that was STARVING each and every day...... you eat when she feels like she’s starving. This would take the meds!! We have waited over 60 could save her life. It could bring some years! Don’t make us wait any longer! Just normalcy to her in every aspect from home to Independence. Less worry about PWS person because it’s a rare syndrome these kids are school and give her a better quality of life. This dying or ending up in prison worth receiving treatment! Please let them is the treatment we’ve fundraisers for, prayed receive the help!!!!! Don’t make them wait any for, never knew was possible. This is a hope This potentially lifesaving medication would longer. that we have and makes all the worried become an integral component in the thoughts, sleepless nights, locked cabinets and treatment and care of our son. One that could A future refrigerators worth it. We’ve protected her the immeasurably change his quality of life by best we can but having this treatment to help allowing him to thrive free of constant hunger. her body react normally with food would be a Better quality of life dream come true for our entire family. Weight loss DCCR needs to be FDA approved NOW. We It could save my sons life and many others with do not need more trials, the research for DCCR Everything This can save and help my little love pws. has shown to be safe and effective treatment one and all the people with PWS for debilitating symptoms of PWS. There are Relief no ill effects for DCCR and it has shown to When behavior management is impossible, we reduced Body fat and mass as well as reduce need pharmaceutical options for treating the the uncontrollable hunger for PWS. This A possible decrease in dangerous food seeking very challenging symptoms of PWS. Approval uncontrollable hunger can cause those with behaviors and aggressive behaviors. Increasing would mean one more option that might help PWS to eat themselves to death. Cade (my 6 the quality of life for my special needs child and improve the life of our son, and by extension year old son with PWS) is currently not having her siblings. our lives also. any of these signs or symptoms, but it could happen at any day. It is not fair for him and That my son would be able to lead a more DCCR would help control the constant drive for others with PWS to live in fear of their hunger normal life and be out in the community for a food my loved one experiences every day, all- when it can be reduced and/or eliminated with more normal job. day. DCCR. This is why it needs to be approved now with no other trials. Much less stress in eating situations. Better quality of life DCCR needs to be FDA approved NOW. We do not need more trials, the research for DCCR has It has been shown to be safe and effective. It It would mean a better quality of life and long shown to be safe and effective treatment for can save many lives so it should not be put off. life expectancy. It would mean potential debilitating symptoms of PWS. There are no ill independence for my son with PWS as he effects for DCCR and it has shown to reduced transitions into adulthood. It would give him A lot less constant stress and worry about the Body fat and mass as well as reduce the the opportunity to pursue his dreams without food control. For my daughter personally a uncontrollable hunger for PWS. This the disruptions associated with his diagnosis. much better quality of life without constant uncontrollable hunger can cause those with 24/7 anxiety. PWS to eat themselves to death. Cade (my 6 The possibility of living a more independent and year old son with PWS) is currently not having My son is diagnosed with a rare disease, that typical life--DCCR is the most promising chance any of these signs or symptoms, but it could should not mean people with rare disease to date to allow children with PWS to transition happen at any day. It is not fair for him and cannot aim to lead a normal life. Every human to a possibly independent life as they reach others with PWS to live in fear of their hunger on the face of earth deserves a good healthy adulthood. Without it, they are undoubtedly when it can be reduced and/or eliminated with

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COMMENTS FROM PARENTS & CAREGIVERSCAREGIVERS What would an approvalapproval of DCCR mean for your loved one and your family?

DCCR. This is why it needs to be approved now The world for her and us and hope for a safer Less suffering for my son. Improved mental with no other trials. happy life for her health for who family due to reduction in daily stress. Approval of a treatment for hyperphagia would Peace. Positivity. Being able to sleep at night, provide our son not only with relief from KNOWING how hard our community has fought Our child has avoided the debilitating symptom overwhelming anxiety associated with for this, and continues to trailblaze for PWS & A of excessive hunger in PWS. While this has been unrelenting hunger, but also relief from the Cure, not a proverbial band-aid! delayed with diligent control of food in our son tormenting impact his hunger-related we have seen 1st hand the devastating impact behaviors have on his self-esteem and Better quality of life for the whole family, no to families and individuals with PWS when they relationships with his parents and others. nore locks on the fridge. can no longer control their food intake. It impacts their ability to function, always hungry, A chance at improving his daily life it becomes a fight to survive, a most basic need absolutely life changing, without exaggeration. they are trying to fulfill. We are hopeful that a Hyperphagia is likely to be the ONLY thing that treatment is approved to address this most It would literally be life changing and life saving stops my daughter from living an independent critical item for the PWS community. Our son by addressing the two issues that threaten his life as an adult! is progressing well academically. Once this health and emotional well-being. phase of hunger hits he will take a turn and It would mean my daughter's future of struggle to continue eclectically through It would mean a life without fear of my son’s independence and health possible. education as he will be obsessed with food. We overeating. It would mean a possible future of want to avoid this debilitating issue within our independence. It would mean she can feel something that all child. of us take for granted. It would mean she can The approval of this treatment would mean focus on life rather than hunger. It would mean Relief and peace of mind as a single parent. everything to our family and community. This I can stop wondering what she could be capable treatment will give our daughter a chance at an of if she weren't crippled with hunger. Better quality of life independent life one day and could potentially save the life of our little girl with PWS. The treatment could potentially save the life of Freedom of having constant hunger. my daughter with Prader Willi Syndrome. It is This treatment is potentially lifesaving for our the only vial treatment for the most major loved one with PWS! symptom of her disorder. It can save her life With proper medication for increased appetite and others lives and is critical to get this drug my daughter will be able to go to school on the market as soon as possible. without anxiety over food. She will be able to Possibly EVERYTHING participate with her peers without the preoccupation of seeking food and will be able Norah is a kind and caring girl. She loves dance DCCR would give Kimber the chance to live an to lead a more independent life as she ages. If and gymnastics. She asks why is she hungry all independent life free of hunger and able to hyperplasia is under control, she has the chance the time and why it’s so hard. This drug can accomplish the things she dreams of! of leading an independent life without constant help eliminate some of her biggest obstacles. supervision due to food seeking. The stress this Her family and doctors believe that DCCR is one Everything. It's our only hope. brings on a family is exhausting. Medication is key that could unlock her future. Please, needed for the overall outcome of our entire reconsider the application and give PWS kids Hope for an independent, fulfilling future family. Please allow dccr to be approved not and their families this medication. just for my daughter but for her siblings and parents. DCCR is the only treatment of its kind to This treatment could potentially save the life of provide PWS families hope surrounding the our son with PWS! Approval of this drug means combatting of hyperphagia. Approval for Happiness. My child is anxious and has trouble that Hudson and those in his PWS community continued testing and distribution would be not focusing bc of food related thoughts. will be able to lead a more normal life, without only extremely beneficial, but even life the most debilitating aspect of PWS-- altering/saving for those with PWS. It was be dramatically life changing for us and hyperphagia. It is the most promising treatment the most important thing is it would give us the for the major symptom of his rare genetic much needed hope we seek and need during disorder. This is a life-changing medication for As close to a cure as we will probably ever get this trying time. those living with PWS and their families! It will give them the chance to live comfortably and I don't have any information on DCCR. increase their chances of living independently. He may lose more weight and feel better. Everything A changed life for our family and reducing An opportunity to live a normal life. suffering for Hudson (6 years old). This might allow a more independent lifestyle for my son- one that has the potential to be Everything Relief more fulfilling.. One he very much deserves if he were able to control his hunger. The ability to live a more normal life. He could It would mean the world learn and play without always being disrupted potential for a better quality of life by the never ending hunger. His focus and concentration are severely limited due to It would give us hope that our son could hyperplasia. experience more independence and a full life as A better chance for a healthy and longer life he grows into adolescence and adulthood.

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COMMENTS FROM PARENTS & CAREGIVERS What would an approval of DCCR mean for your loved one and your family?

A better life. Alleviation of a LARGE number of symptoms treatment option. Please reconsider approval that make life a daily living hell. of moving forward with this treatment option. Taylor is a smart and sassy 1st grader who loves There are risks with every aspect of our lives for to read, loves skiing and has so many goals and Everything. the past 19 years due to PWS so risks are part dreams. She wants to be a doctor when she of our lives. Taking a chance to help her in any way has never stopped us from trying - we are grows up. This drug can help eliminate some of A miracle. the obstacles in her way of that dream. Her asking you to do the same. family and her doctors believe that DCCR is one key that could unlock her future. Please It be would mean a complete improvement in Possibly helping her live a better life. reconsider their application and give PWS kids the quality of life and future of my daughter. and their families this medication. For her to live a life similar to other kids her age and be able to grow up with them at the same Loved one level. My daughter's life would be radically changed Tremendous change in our lives. It will be a day for the better. If she were free from the and night shift in behaviors. Life Saver. constant hunger she would be able to live a Have better control on what she eats and the fairly independent life. And I would not have to effects it causes on her future development. live in constant vigilance about her being in A decrease in traumatic stress for us all!! danger near food It would mean having help with the daily struggle of my son‚Äôs uncontrollable Ability to have a better quality of life It would mean the chance at a normal life. obsession of food. A return to some semblance of ‚Äúnormal life. A new lease on a longer more productive life, Simply put, any helping in reducing my free from hunger daughter's hunger is enthusiastically welcome Increased quality of life and immensely life changing. It is life changing for both my son and as a A chance to have a life that’s a little bit easier parent. The results are huge. This drug has It would be a miracle for him. on a daily basis positively affected many of the problems associated with PWS. This needs to be approved. Everything! I want my son to live life full and be DCCR would remove or at least reduce the able to have a productive meaningful life. This largest roadblock for Evan and kids like him medication would make that possible! being able to live happy independent lives. It A miracle would be life changing for him, our family and all PWS families. Please reconsider Soleno's DCCR would allow my child to have a better A better future and way of living for my application and give PWS kids a chance at a life daughter quality of life, both physically and socially. with the brightest future possible. Addressing the hallmark symptom of PWS, reducing it, even by a small margin results in Better life huge gains of normalcy, lessened anxiety and a A healthier relationship to food and future sense of independence. This would mean the The potential chance he can have a healthier world to my daughter and our entire tribe of After watching her struggle for 19 years with no happier childhood family and friends. treatment, having a tool to help her would be tremendous beyond words, not only for her but It would mean there is Hope Everything! It would greatly improve her quality for us as family and caregivers. The amount of of life. strain to all of us continues to mount with each passing day and the recent COVID restraints A life much closer to normal, a life without daily have further added to that strain. There are so fear, a hope for my child to one day be A huge difference in his future many issues with this syndrome and we as independent. caregivers have to be constantly attuned in The ability to live a happier, healthier and more order to pick up on subtle changes that can This treatment could potentially save the life of productive life. turn into devastating complications. We all want and have lofty goals for our children. It would change our world. Provide a glimmer With this tool, we have something to help her This would be life altering for my child! We of hope that my daughter would have at least at least have hope that she can have a future currently do not have any treatments for the the possibility of reduction in the hunger and a reasonable life span. Having any insatiable hunger for our children. I know feeling she has daily personally, families that have been able to get treatment option that may help her is better their kids into this trial, and ALL of them have than nothing, which is what we have now. It could save his life!! had positive outcomes that have completely Imagine being told at your child's birth that changed the lives of their child, thus the family "their are many group homes available for her". as well. It would change the future for our As a mom, that's what I was told when she was Help them to live a typical life of no diabetes children, with hope for independence! Please 2 weeks old as she was diagnosed with this unforgiving syndrome. Since that time, I've reconsider! The average age for life span for someone with devoted my life to fighting for her future - every PWS is 29.5. My son is 27. As you can imagine, day is a struggle - 24 hours a day, 7 days a time and important treatment is of the essence. It would change their life to be independent week. Although I will continue to constantly My son deserves at least a fighting chance to and not be hungry for food. This is currently the fight to better her quality of life, I am reaching live a longer and healthier life. He deserves to only drug helping with our children's hunger retirement age and it frightens me to know have a better mental health perspective and proven to be safe. what will happen to her without some sort of without anxiety about food and he deserves to

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COMMENTS FROM PARENTS & CAREGIVERS What would an approval of DCCR mean for your loved one and your family?

live life full. Not only full and free from seeking I’m desperate for my child to lose weight. She is This approval could be life changing for my food that is ever present in his mind all day trying so hard but the hyperphagia takes over. daughter and ultimately our family. Please give every day. But free from it’s handcuffs that It is heartbreaking watching her try so hard but my innocent child a chance at a less challenging hinder his life and has cut many of his friends the scale doesn’t move. future. lives short. Ability to enjoy life Hope A better future for her and for children with PWS. Less suffering, and an easier life. It would help so much and provide a future for Give my child the opportunity to have a happy my child and a normal life as possible. With less anxiety It would have a life changing effect on my son. for food and the possibility to share with other A step towards normalcy, if you will. An approval means a future that does not children with less restrictions. THAT WOULD revolve 24-7 around the management of MEAN A LOT ! to her development. It means another option for them to reduce the hunger and food-seeking behaviors. It means urge to eat. my son being able to grow up without He will be able to live a better independent life! experiencing the hallmark symptom of PWS We hope that it would be as effective in which means he can have a more independent It would change his world. To not always be treating our beautiful daughter’s hyperphagia future. It means our family can still live a fairly starving, to not constantly have food on his and anxiety as we have heard it has been for normal life when it comes to the foods we eat mind and be able to live a carefree life. others. PWS children need accessibility to this and have in the house. It means we don't have to live in fear of our son choking to death. It medication! This is and will be life changing for Could change the future of my child‚Äôs life. many. If Paisley did not have insatiable hunger, means he is less likely to have life-threatening obesity. It means ONE of his many challenges She could actually feel full for the first time in it would change the entire outlook of her her life. Her future may not be limited to a future. It means independence and freedom. could be improved or erased. I pray you reconsider the approval of DCCR for the group home as she ages, reducing costs. treatment of Prader-Willi Syndrome. A near normal life with no more insatiable the best that can do for her hunger. My son wouldn’t have to feel extreme hunger. We will have peace of mind that he won’t ever The ability to be free from the burden of always It would mean we have some hope that our have to experience that. being hungry. The ability to concentrate on daughter’s future won’t be driven by hunger. other things other then food. The ability of not A chance for our beautiful son to live a quality having anxiety related to food. The ability to be A better life with her family and cousins and life. live. Everyday I wake up and ask myself is this sisters that love her so much! the day she will get the unbeatable urge to eat. Is this the day she will pick on her skin until it An approval of DCCR would provide our son the bleeds uncontrollably. Is this the day I will loss A dramatically different and easier life. The ability to live a quality life. We all work to help medication helped my daughter so much my sweet loving child to the unbearable our children overcome this condition. anxiety, anger and mental health issues. Is this Approving DCCR will provide allot of hope to the day I loss my baby? fewer food-related restrictions and more PWS families. inclusion in the community! The opportunity to live a full life. It would take A huge relief and help with never ending away challenges that prevent individuals with Peace of mind for our son's future, hunger! Also stabilize weight and behavior PWS from reaching their full potential. Parents independence and more freedom potential in issues. should be allowed to advocate for and pursue his future. any viable option for treatment. This should be My daughter's hyperphagia rules her life. She is considered a humanitarian exemption to give Approval of DCCR would mean that my son obsessed with food and can concentrate at relief to individuals with serious mental and would have an independent future without the times on nothing else. Controlling this so that physical challenges. As long as potential risks fear of the PWS symptoms. He could be a she can focus on learning would be life are understood by parent and patients, there typical person, not someone that is just a changing for her. should be no reason to deny. disabled person. Please reconsider this decision. It really harms my son's chance at a One less thing to worry about and hopefully a The first real and viable treatment option for typical life if we have to wait longer for this better quality of life hyperphagia, the hallmark and most difficult drug to be prescribed to my son. I have seen aspect of PWS, and its related effects. the benefits this has provided for other people with PWS and I know it will benefit my son. My son could live more independently without Please reconsider. We need DCCR so badly. all the food/drink in the house being behind It would mean an independent, normal life for lock and key and without a caregiver having to our daughter. She is exceeding all of our be with him in order to lock up and unlock the expectations in every area and would no doubt It would mean peace of mind, it would mean refrigerator and pantry. There would be be able to lead a successful and fulfilling life but hope for the future, and most importantly, it decreased cost to the state and federal hyperphagia will stand in her way. With this would mean my child would have more of a government for his in-home care. He would be drug we would hope she could still live a full chance for an independent life. more self-sufficient. and independent life.

Further advancement is help treating my child. Everything It would be a life changer for not only my 6 year old child with PWS, but our whole family! Many behavior issues could be lessened with

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COMMENTS FROM PARENTS & CAREGIVERS What would an approval of DCCR mean for your loved one and your family?

this medicine and it would take stress off of the A better and healthier quality of life. My 6 year A more normal life around food, less anxiety for whole family! old’s life revolves around food and eating my son, a better quality of life. times. Every minute of every day is a battle to Possible relief from the hunger keep food away from her. PWS also causes Life changing hope and independence for my metabolic issues so she is also overweight baby Nothing else is helping my daughter. She continues to gain weight and without a A possibility of living a life with out the cruel Life changing treatment, early death is likely. consequence of PWS, living in hunger. Life saving for all PWS community Progress Help with independence, mood and food seeking tendencies. To help with appetite - to suppress the hunger It would mean possibly a cure for this horrible these kids have. To control behavior and weight syndrome, it would mean Tommy would have a A healthy more independent life gain. little bit of normalcy in his life and not be hungry all the time. It would mean more than Help my son not be hungry and help his It would mean more to our family then I can words could possibly describe. behavior when he doesn’t get the food. explain.

A treatment when we don't have any. A treatment offering opportunity for a healthier It would mean the world!! More freedom, future. independence, self esteem, less depression, This treatment not only has the ability to less anxiety improve the lives of people living with PWS but Hope helping with debilitating hyperphagia but to This would be a life changer for my family. It actually save their lives by reducing destructive It would be incredibly liberating to alleviate the would mean my child could live a free life from behaviors and lowering fat mass. People with relentless hunger. having struggles around food. She would be PWS live through exhausting circumstances of able to live independently when she came of which they have no control and they, like all It would mean everything. PWS people deserve age and be self sufficient. This would mean the people, deserve the opportunity to live a life world to us to have to not constantly worry free from as much suffering as possible. to be able to help themselves with one of their greatest struggles. about the safety of our child.

It would give my daughter the opportunity to It could potentially save the life of my child . It DCCR has been proven to take away the hunger try a potentially life changing drug that could in PWS persons. It would turn our world around improve the quality of her life. is imperative that DCCR be placed on market now! EVERYTHING!!!!! We won’t have to live in fear, It could mean an improved quality of life for Hope for future our child and family will have a better quality of both my son and by extension, myself. life, food won’t be the enemy It would possibly help her live life as a regular Life changing ability for a more normal life. Life Relief, hope affirming hope for better health and quality of person without having to worry about having fife. Reduced stress on me, on my son and the life long threats rest of the family. Approval would mean that my child with PWS It would mean EVERYTHING!!! I would love for would be able to live a life that could be my child to be able to have a better life. somewhat normal, with the opportunity to not Give the girls an opportunity to live within the be in a life threatening situation with food, the norm we all take for granted. As the Mom to possibility of not being at risk of being obese, it two girls with PWS I would need an afternoon This treatment would give my child relief and would be the opportunity to not have food be a to sit and share what benefits this would bring. the confidence to continue to fight for a life or death situation. healthy weight and independent life.

Hope for living a healthier and happier life. A hope for even a drop of normalcy for persons It would change her life dramatically. with PWS. These people struggle with To live Behavioral issues and often times severe A chance at life. We are desperate for obesity. Right now there is no cure for PWS, but It would possibly allow my daughter to function something to help ease the daily struggle for we hold out hope for treatment to help in society without constant food cravings. our daughter. We want to believe she can live minimize the deadly symptoms. Life changing is an independent life without constant what treatment would be. starvation, destructive anxiety, life threatening Stress relief side effects of hyperphagia. PLEASE HELP US! Greater independence, open up many doors for the future My son is in the DCCR clinical trial. He has It would relieve my daughter of the severe experienced weight loss and a reduction in anxiety that she’s carried her entire life. She hunger since being on DCCR. DCCR has given my daughter her life back. Not has to take several medications for it. only have we seen a significant decrease in her hyperphagia and over all food anxiety. We have It would possibly make a huge difference in my The drug has the potential to decrease food also witnessed a significant decrease in over all daughter's quality of life. seeking and behavioral outbursts. Also the BMI behaviors and anxiety. We no longer have to improvements are promising lock our pantry and refrigerator. My daughter

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COMMENTS FROM PARENTS & CAREGIVERS What would an approval of DCCR mean for your loved one and your family?

can now attend holidays and birthday parties alleviate compulsive behaviors and stress Life changing for her and our family! Everyone without the overwhelming anxiety about food deserves a chance to live a long life that is that was present prior to DCCR. She is able to Ability to live an independent and full life. healthy, happy and full! make it through her school days without emotional and aggressive behaviors. Which This could forever change the trajectory of her prior to DCCR was not possible. DCCR has She would have the opportunity to live somewhat independently and hold a job. life, our family and that of so many others with shown to be safe and effective. There should be PWS! no reason for DCCR not to be approved for our PWS community! Hope, safety It would mean a chance at a more normal life. It's a complete game-changer that can alleviate It would mean my son could live a full life with Possibility of a life without so many restrictions some of the most severe effects of PWS on my happiness and great potential! No more and risks. Reduced anxiety due to food control daughter's quality of life. starvation! and behavioral issues. That it would treat the most challenging part of This medication would provide a treatment for An approval of DCCR would transform the lives PWS which would give our child a chance for a when my daughters hyperphagia hits. It’s of our daughter (PWS) and the rest of our normal life. imperative there are treatments available for family. She is currently in the DCCR study and our pws community to help with these the progress directly related to her anxiety and devastating symptoms. food-seeking has been impressive and A more normal life for our son and us, his rewarding. Please reconsider. parents. Much less worry for his future. A more full lifestyle that isn’t driven by PWS behavioral concerns and issues. Everything an incredible improvement in all areas of life for the child as well as his caretakers

It would change her life. Don't hold back I would mean room for more testing and medications that could help a genetic disorder potentially a cure for the most challenging and Hope to address something that I think about with so many complications. prominent issue for my child and those with every day. This could mean greater freedom PWS and a better life for my son and thousands like him. Because DCCR affects more than just hyperphagia, it would mean relief for my son Less anxiety, food safety, peace of mind, from some of the most severe parts of his comfort. It would be hope, it would be life changing. It disorder, and would ease the burden from all would allow us to grow our son through childhood knowing the worst and most his caregivers knowing he would not feel as Hope. affected. It would open up his future to even hallmark symptom of this awful syndrome greater avenues, possibly needing less could be met with an effective treatment. This treatment could save live of those with assistance, or even the opportunity to live Maybe it will allow him to live independently. PWS. without an aid. It might mean fewer mental Simple put: It would be possibility. health struggles. Both these beautiful girls I have the pleasure of Life changing knowing are loving caring children but when I May change her entire life fir the better care for them their desire to eat is non-stop. Help to live a normal life their other physical disabilities are heart Approval of DCCR would improve my daughters breaking. Lack of speech adds to their quality of life. Having your child constantly frustration and impedes learning. This Our son would be safe. Grow up healthy. feeling hungry is not only heartbreaking but treatment would save the lives of my beautiful consumes their every waking moment. This adoptive girls I believe it is critical to get third Decrease unrelentless hunger. My daughter medication could give my daughter the rug on the Market was soon as possible. thinks about food constantly, which is heart opportunity to go to college and be a breaking. Persons without experience with PWS contributing member to society and allow her Better quality of life have no idea how this impacts every moment to Pursue her dreams. of everyday and how a person with PWS can never be left unsupervised. A chance to give him a better quality of life!!! Freedom and the ability to live a more normal life Any treatment that could potentially make life Hopefully help save her life! for my son better is a no-brainer! Living in a A New opportunity to have a better health world that is saturated with food and food condition and a better lifestyle. My son is obese. This could help him return to a images is torture for our kids. Holidays are a normal weight. He is currently type 2 diabetic. nightmare! Many times they must live in This medication could save his life. it would help them with the needs that they isolating and controlled environments to lessen have to have exposure to food. If it can improve lives then Currently, our sons behavior issues are our please, please reconsider your decision and biggest concern. Due to aggressive behavior, he approve this treatment. Higher quality of life for my daughter. is a danger to himself and others. There has been no medication that has been helpful to Comfort, happiness, satisfaction Potentially save their life. Hyperphagia is a help alleviate this most disturbing symptom of great health risk for individuals with Prader PWS. Willi syndrome Treatment option for hyperplasia first the PWS population

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COMMENTS FROM PARENTS & CAREGIVERS What would an approval of DCCR mean for your loved one and your family?

For all the residents I work with, it would give It would mean a future with not so much pain inevitable harm danger and costly future them more freedom and suffering for my child. medical issues, and it has allowed our family to remain intact-we will be lost, hopeless and It might have saved the life of my son. My daughter (21 years old) is currently helpless without this medication! participating in the drug trial for DCCR. It has Safety, more job options, more freedom for been life changing for her and for our family. Everything involved. She suffers from intrusive thoughts of food which are distressing and severely limit her I would like to share the story of our nearly four ability to participate in regular life activities. Improved quality of life year old daughter. She is a sassy and adorable Before she started on DCCR she did no cooking little girl who loves her big sisters, baby dolls, because being in the kitchen where there is her school, family and friends. She also happens Freedom from the constant anxiety and fear food was too stressful for her to manage. She to have Prader-Willi Syndrome. This has that our loved ones run the risk of dying as a could not tolerate gardening at all because she affected her life from before birth and it will result of their hyperphagia. knows that some plants are food, and that follow her until she takes her last breath. We made gardening increase her intrusive thoughts can not take away her syndrome but there is a Everything of food. Going for walks in the neighborhood drug out there that is so promising at giving her or a park was not cognitively engaging enough a chance at a more normal life. That drug is to distract her from the intrusive thoughts of Everything. We’ve been praying and waiting for DCCR. The hallmark symptom of PWS is food, so going for a walk intensified her an effective treatment. hyperphagia. I had never heard of that word thoughts of food and hunger. (She is on a before her diagnosis. It is now the word that restricted calorie diet, so there's a tight limit on haunts my soul and makes me wake up in the Everything how much she can eat.) She needed to be morning with tears. It could start tomorrow or engaged in activities that were sufficiently it could start in five years but one day my little Hope for an independent future, free of pain cognitively engaging that they distracted her girl will have a hunger so unrelentless, painful and suffering from relentless hunger from the intrusive thoughts through all waking and all consuming that she may do hours. The intrusive thoughts made it difficult unmentionable things to try to quiet it. She for her to think of activities that would be Never being worried about my dear son may even eat herself to death from stomach engaging enough, so that work fell to the rest hunting for food and preoccupying himself with rupture, from choking, or obesity. The results of the family all day long, every day. Now food. from the recent DCCR trial gave promise of a that she is taking DCCR, the intrusive thoughts much different future for Domi than the bleak of food are more muted and more manageable. one we were given along with her diagnosis. Hope and life She is learning to cook. She can plan a meal. That is a future that no parent should have to She enjoys gardening. She can think of watch unfold for their child. Especially when This treatment could potentially save the live of activities to distract herself from the intrusive there help in the form of a safe and effective our loved ones thoughts of food. Books are more reliably drug. DCCR is that drug and it is not being distracting (before, they were often not allowed to be used to help those most in need. More control with the disease and life distracting enough to keep out the thoughts). My hope would be that the FDA will see that expectancy This has dramatically decreased her stress and this safe and effective drug to treat Prader-Willi the stress of everyone in the household! Syndrome be immediately put to market to help those affected from hyperphagia have a Peace of mind and body to focus to a happy We need some sort of treatment for fighting chance at a full life. It is critical that it and healthy life hyperphagia. not be a requirement to redo the clinical trial because there are children, adults and families Freedom of fears around food in any setting. This would make my house run much who need this drug now. There are NO other We’ve had to ensure our son is not left with treatments available for hyperphagia. Waiting free access to food for 13 years. A free times smoother, less debates between my daughter and everyone. for another trial would be impossible and we’ve slipped up and he ate everything unjust. Rare disease does not get the attention, available. This is severely dangerous. Think funding or advancements needed to help our about the last time you felt hungry for a long chance to have drug to treat hyperphagia and loved ones. Please do not take this promise of time... how did you function? No think about behavioral issues hope from us. having that feeling every minute of every day... now think about your child feeling that... you A chance to treat hyperphagia and behavioral It would be a game changer. We would have can help our kids free from that prison by issues. No alternative on the market. Due to allowing this drug to be used for PWS hope if our daughter being able to live a life rare nature of disease, the chance to have without feeling hungry and h e the anxiety that immediately. another trial is complicated and diminish comes along with it. chances to have a treatment for our son Hope. A better future. Availability of effective treatments for PWS Treatment for hyperphagia, behavioral issues would be a game-changer for my daughter, It would not be an understatement to say we allowing her to live a more fulfilling life with the are desperate for any new treatments that will LIFE CHANGING! It is the one thing that can absence of the constant and disturbing hunger help our son have a better quality of life. alleviate the pain and suffering that all of our Please, reconsider your decision, so my son can children and their families have suffered for so It would be a life changing event for both our be helped now, not years from now when he long. has less time left to live a normal life. PWS effected child and our family, giving the chance to live a much more normal life Having had our son on DCCR for the past year has transformed his life, saved him from

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COMMENTS FROM PARENTS & CAREGIVERSCAREGIVERS What would an approvalapproval of DCCR mean for your loved one and your family?

Could be life changing for our son in the future. (she can wait for snacks and meals - it is not an would be life changing and life saving for my explosion if we eat at a different time, and she family. Hope can even skip snacks some days). Meal time used to be a constant stress in our house with Better life for my son high anxiety, crying and sometimes tantrums. Hope for their future Now it is much more relaxed and she is cooperative. It’s pretty amazing. Having a I love my grandson and I pretty sure he So much! No need of public school person to medication would be a huge deal! deserved full and normal Human life watch him every minute when he is at school, we can address issues that we can't even begin Controlling her hyperphagia--and thereby her The rapid approval of DCCR is critical for my to with constant starvation at the forefront. weight--could contribute hugely to the mental daughter and our family. There is no current and physical well-being of my daughter. treatments to help with the hallmark Life changing characteristic of PWS- hyperphagia. This drug has been proven safe and effective and is truly This medicine could help my daughter and so life saving. When I heard that the FDA was Life as most of the world knows it..... but many others feel full again. Help fight obesity in requiring an additional trial, I felt defeated. My because of the effects of Prader Willi Syndrome many PWS patients and maintain a healthy life greatest fear is that when my daughter needs we don't and more importantly our son does that they all deserve. DCCR, it won't be available for her. My biggest not either. fear is that trials cost a lot of money and take Our daughter has participated in the Phase3 time to do them. Who knows how long it could Treatment for when he can no longer control trial for the past 17 months and DCCR has been take to gather the funds? Who knows how long his appetite. LIFE CHANGING for her and our entire family. it could take to run a successful trial? What if Thanks to this drug, our daughter has had a another trial can’t be run? Our community For my child to have a happy, healthy life. To SIGNIFICANT improvement in weight, BMI and could lose out on a treatment that addresses be be able to enjoy life, instead of only being a reduction in hunger and food seeking. We one of the biggest challenges our loved ones focused on food. To be able to be a well- DESPERATELY want other children and adults face with PWS. The data presented has shown rounded successful adult. with PWS to benefit the same way our DCCR to be safe and effective and there isn’t a daughter has benefited from DCCR. We cannot drug like this on the market at this time. I want imagine having to take our daughter off this to make sure this gets to the market as fast as The constant hunger my grand daughter lives amazing medication because the FDA will not possible so that my daughter has access to it with us heart breaking. Approval and use would approve a drug that has proven both safe and when she will need it and that those who need hopefully help curb the desire to eat while also effective while drastically improving our it now have access to it now! When my affecting moods. How angry, grouchy are you daughter's life. Thanks to DCCR, we are leaps daughter was diagnosed, I promised her I when you are hungry? Imagine a kid feeling and bounds closer to our daughter having would do everything possible for her to have a starving all the time? Heart breaking. independence and the ability to break the future where she could LIVE LIFE FULL. Helping restrictive bonds of Prader-Willi Syndrome. to get DCCR to the market as fast as possible is An easier life. PLEASE reconsider the Phase 3 trial of DCCR one way I can fulfill that promise to her. I don’t and approve this drug for use in the PWS want to wait for the possibility of another trial. An opportunity to love a normal life. community. They are expensive and take time. We need DCCR now! We don’t have time for another trial. My daughter has friends living with It would mean she may be able to live Help for my son!!!! hyperphagia now and I want to make sure we independently. do all we can to help them now and help my My son has been a food seeker from the time daughter in the future! Hope he could walk. There are times his weight has ballooned to over 250 pounds as an adolescent and young adult. We struggle with food It could save my kids life. Possibly freedom challenges EVERY SINGLE DAY! if this drug shows any Hope ANY!!‚Äô Of WORKING and no Save her life It would be more independence and more adverse effects have been noted it is only fair options for my young adult with PWS. Currently to let us use it at least on a trial basis. My sons My daughter is on this drug now. We have my daughter lives at home but she is so entire life is balanced on the availability of any noticed significant positive changes with this restricted, even before COVID, it‚Äôs almost drug to help as there are NONE at present! I drug. like she is in an institution because of the fear implore you to revisit your decision. of access to food outside of our supervision. The unrelenting hunger of PWS limits every better life Better future for her and ourselves. Without activity for our loved ones with PWS. My help and a way to mitigate the hyperphagia; daughter has food worries and overeating at she will have extreme troubles in life which Everything!!! Mostly a chance for life! work and social events. Having a medication to could lead to death. It seems this medicine it curb hunger would mean she could better work helping in this area which would be such a relief My daughter will have cure for suppressing and participate in social activities without to have. hunger and will help with emotional/behavior constant worry about food security and gaining issues. weight if she does go off her diet as it seems the medication also helps with metabolism. I DCCR would allow my daughter a chance at a have seen with my daughter who has been in future. It will give her opportunities to live a A chance to bring him home from his the trial, that she can eat more food without normal, independent life. It will reduce the risk residential school if his hyperphagia and having the weight gain, actually she has lost that she will die as a direct result of PWS. This behaviors could be controlled. weight and she has more flexibility with meals

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COMMENTSCOMM ENTS FROM PARENTS & CAREGIVERS What would an approval of DCCR mean for your loved one and your family?

It would change our entire lives. It would mean A real hyperphagia treatment option could The ability to go to a restaurant (post-COVID!) a chance for a somewhat "normal" life for my change our son's & our lives. without having to monitor my son’s every son. move. Hope for a normal future, our only hope! It would enable us to live without worry of To not suffer as much some of the more challenging symptoms of This would be life changing for my family and PWS. the future of all people living with PWS Independence

Life changing for my son. An incredibly hopeful future for my child, one Potentially life saving benefits in the area of that could literally change our lives. physical health and reduction in weight and The brightest future possible for my nephew. BMI. Potentially life saving benefits to my sons He has exceeds odds left and right but this Stability mental health. would make more possible in the future. #caydenstrong Even half an opportunity to know the freedom Improved overall functionality and life fir both from hunger would be a measurable gain in the parents and child with PWS Tremendous decrease in food related lives of those with Prader Willi Syndrome. tantrums/issues This treatment is the future of PWS and can maybe a more independent normal life save the lives of our loved ones younger. Everything! This could potentially save the life of the beautiful loved one with PWS. Hope for better quality of life Ability to work and not be in SSI Independence. His condition would not be life It could potentially mean a more normal life. It threatening anymore it could save his life could mean possible independence, friendship, A better life and hope. Our son suffers from violent outbursts due to Quality of life his hyperplasia. This drug could help him Give my boy a chance at a full life. reduce these behaviors. He would love to have Independence. Opportunities. And SO MUCH He would be able to live a normal life. Wont a job to earn his own money but his extreme MORE have to worry about hyperphagia. We won't behaviors prevent him from doing so. This drug have to lock up our fridge. He would be is critical for him to having and obtaining the Everything. Hope in life. healthier and would not have to worry about dreams we all have. obesity in the future and all tjat goes along with it. It would mean there is a medication available We are hoping it would help our son with his that could help my son when hyperphagia hits. extreme behaviors and allow him to experience Our biggest dream is for him to be able to live a many things will change for the better I hope it a more normal life. full and independent life, especially as an adult. will be approved soon If there is not a medication to combat It would mean everything to us!!! This would hyperphagia, we fear he will not have the Hope for an independent life one day. help her lead a more normal life. ability to live independently as a young adult (going off to college, etc) and then as as an a change of his whole life for good help in the care for my daughter. adult. We have friends with PWS children who have been in the trial for DCCR and tell us how Hope. I would like to see my son better and we amazing the medication has been for their An approval of this drug would help prevent my need to try everything. This is very important children and their overall family's quality of life. child from suffering from hyperphagia. It would for us. Thank you for considering!! improve my child’s overall quality of life as well. Being allowed access to this drug would An approval of DCCR for our child would give minimize chances of medical conditions such as Increased control toward normality for life. The her a better quality of life (as we have been obesity and diabetes caused from overeating. changes would offer an opportunity to align experiencing through the clinical trial study). more closely with those of his peers and is one On the DCCR, she can actually get through the less obstactle that is in front of him. Hope and confidence for our daughter’s adult day without talking about food 90% of the time life. as prior. We need it !!!! This medication has been life-changing for us and has given us our son back. He was A Better quality of life for all involved Hope of a better life for my son and so many consumed by hyperphagia, skin-picking, and others with PWS. No one understands the anxiety and was miserable. The stress level of Overall behavior management for constant magnitude of PWS unless you have PWS, are a our entire house was so elevated. DCCR has need for food - be it the driving need, overall parent, sibling or loved one spending countless changed him and really, all of us. Please let us desire and ultimately food seeking. This will hours with him or all of the wonderful people continue this medication for our son. reduce anxiety on child and also the stresses working / helping PWS people such as the PWS this creates for the entire family incl siblings. foundation. DCCR could make a big difference It would mean everything. This is an amazingly in the quality of life for PWS. Just what promising drug that is giving our community everyone has been waiting for. A different life for all of us for Lily. tremendous hope for the future. That my little one doesn’t feel starved

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COMMENTS FROM PARENTS & CAREGIVERS What would an approval of DCCR mean for your loved one and your family?

Hope for a better life. There are so few recently...how does DCCR help you? And she like they were literally starving 24 hours a day 7 treatments for PWS that any new option said without hesitation, ‘It helps me feel full.’ days a week? important. THIS is all we as a PWS community need to hear in order to know something is working and Saving my son's life! Hope for her future. We need therapy to helping our kids. She said it plain and simple. address the many challenges of PWS. This is our And that’s EVERY PWS parent’s longing, desire, prayer, hope for their child...to feel FULL. This Increased quality of life for our son and our best way to give them a shot at living an whole family! independent life and living up to their fullest needs to be approved soon to help eliminate potential. the challenges of PWS. This treatment will save not only my babies life I would mean peace of mind for the future. Less but so many peoples. This is a breakthrough Independence for my child. The ability to be treatment that will be available for pws. It will around food without getting anxiety. Attend worry about how hyperphagia will affect his quality of life and less worry about how our make patients with pws independent and so school and family gatherings without the worry much more. of overeating and sneaking food. family will adapt.

An independent future. my sister has pws and has severe mood It would mean everything. Our child to have a imbalances and behavioral disturbances that life without having to live in constant hungry. have made living with her and caring for her my daughter is two and has accomplished challenging. We are constantly being bullied by My grandson is just beginning to seek food. This things our doctors told us weren’t possible. she her mood swings and behaviors. If there was drug approval would mean he might not have is full of life love and spirit. she works hard for more research into medications that can help in to endure the agony of hyperphagia. everything she does. we would be crushed if these areas for individuals with pws would be the worst of this syndrome ends up taking one of the biggest benefits to those who suffer control of her life, of her freedom...the hunger from these disorders It could end the never ending feeling of has the potential to create an undying anxiety starvation for my daughter. that could undo all she’s worked toward. this drug is the hope we have all been searching for It is very hard to live with someone that wants Everywhere we go as a family we are since hearing about this sick and cruel disease. to eat constantly. Has given me major anxiety confronted with stressful situations regarding it’s so complex. imagine this was your child. the last couple years just trying to keep her food. I cannot imagine the positive impact not what would you say then. from overeating. having to worry about where and when we are going to have would have on times spent with Please help us save our kids from such cruel Our entire family (mom, dad, younger sister, our family. There is contestant stress when our symptoms of this syndrome. and older brother) is bound by the chains of her son is with us and constant guilt when we don’t constant hunger. If there was treatment for include him. I also cannot imagine how having a PWS, we could have experiences like a typical more normal appetite might improve my son’s Maybe she could have a good quality of life family! quality of life. Can you imagine what it would feel like to not be starving for the first time in Christina has been in the trial and DCCR has This treatment could potentially save the life of your entire life? been life-changing for her. I am devastated to Hudson who lives with PWS! Approval of this think of losing it! The benefits have been drug means that Hudson and those in his PWS A chance to hold a job and be out in society incredible - Christina is more vibrant, alive, community will be able to lead a more normal without constant supervision. compliant with food guidelines, less frustrated, life, without the most debilitating aspect of and more engaged in life. DCCR has given her PWS--hyperphagia. It is the most promising the opportunity to thrive. A chance! Able to navigate in society and have treatment for the major symptom of his rare access to work & social life. genetic disorder. This is a life-changing It would mean that our daughter could live medication for those living with PWS and their normally without fear of her overeating due to families! It will give them the chance to live Options the disease and all of the issues that come comfortably and increase their chances of living along with over eating. independently. It would mean that my daughter didn’t have to suffer from things beyond her control. It would a better quality of life Could help so much! mean that she could potentially be able to be helped instead of have difficulties. this would mean one of the scariest parts of Improved health; greater opportunity to this diagnosis would be under control manage behavioral problems arising from PWS. The possibility to live safely independent without the need for a constant caregiver. It could relieve a lot of stress for our child and Less hunger our family. It could allow her to have a more Approval of DCCR would provide treatment, independent life. hope and another much-needed standard of Could mean a better quality of life care for people with PWS. It is imperative it be approved because our family is experiencing A chance to live a full and independent life Anything than can help with my daughter's first hand the benefits of this medication in hyperphagia would be a Godsend. PWS. Our daughter’s body composition has It is the only treatment to help with hunger as improved so much after being on DCCR, which well as other issues. It needs to be available great news is incredible for anyone living with PWS. I asap. Would you want your loved one to feel asked her this only and direct question

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COMMENTS FROM PARENTS & CAREGIVERSCAREGIVERS What would an approvalapproval of DCCR mean for your loved one and your family?

An opportunity to improve some of the Avery is a hilarious, loving, joyful little girl. She So much hope and life quality symptoms that are associated with PWS. adores her 5 brothers and sisters and anyone Considering there are currently no treatments else with a heartbeat. PWS has confined Avery's It would mean a better quality of live for a child for PWS, it would be nice to have the option to life like one can't begin to imagine. This with pws or an adult. We have seen major help my child if I can, rather than feeling medication is something we have hoped and changes for the better being apart of DCCR helpless. prayed for ... for years now. Please reconsider trial. your decision and help these kids get the life A blessing. We have severe outbursts at times. nearly ALL of us already have as our birth right. The life of feeling full and actually living life. It would mean that our son would have many more options for living a meaningful life. It Most importantly having this drug would pave a would open the door to a more normal life for better way of living for everyone with pws. Freedom to live their life. him and for us. They suffer enough with so many obstacles in life that having a drug to help this large part of Hope foremost. Improvement in daughter’s It would give the family hope on a terrible the struggle would be life altering. As a mom health, decrease in her daily struggles with situation and would give my niece a chance at a knowing there’s a drug that could significantly food. semi normal life change our loved ones lives but could get denied is excruciating to hear. Most of us moms A potentially better future and better quality of Another option that may contribute to helping hang on by a thread most days and having this life. part of the syndrome being helped would make my son have a safe and productive life. We all the difference for us and more importantly have so few medication options for PWS. them. To have him not sneaking or melting down around/because of food. To curb the obsession It would mean an additional option to help my of food. A happier and healthier life for my daughter son. Medication and interventions for PWS are so limited. A chance at a longer healthier life. A decrease of fear, a hope that my perfect little boy won't have to go through life constantly He could focus on friends and relationships and feeling like he is starving. A new life without the torture of unrelenting not food!! hunger

Substantially better quality of life and more Guardians of the individuals I work with and the independence. It means a possibility of an independent life. It individuals themselves should have choices on will increase her and our families quality of life. their medications they could try if preliminary Although she will not need it for a while, there trials have been done and successful. My son would never feel the overwhelming are so many children that need it now! And feeling of starvation that accompanies his although our community is small and PWS is It would mean a less stressful days. diagnosis rare, these kids deserve to have something to help. It would offer us the option to provide our son A chance at living an independent life in college with employment and earning potential. with an potentially effective answer to his healthier life constant hunger. Can treat a daughter who suffers from Prader- Life changing for their future It would mean everything to the PWS Willy's disease community. Our Megs was on another trial until pulled by FDA. Give our families choices Possibility of a better, longer life for our child The opportunity to live a more normal life. for medical treatments even if experimental! with PWS Give our families fighting chances and hope of This is the only drug available to help curve longer life spans! Save pws life hyperphagia. This symptom is the biggest problem for PWS patients and leads to other Our daughter is a beautiful, hilarious, and A difference between life & death issues. This will entirely change my child’s life loving 8 year old girl. She loves anyone and and offer him a better future. Why would we everyone ... and she sees beauty in all life This could make a life/death difference in my deny a drug to help with this when it can save throws her way. She is the epitome of a pws family member. It is critical to get this drug lives and benefit those who need it? My son warrior!! She - and all her friends - DESERVE on the market as soon as possible so that lives needs this drug to live a full independent life. what most of us gain from the moment we're may be saved. born ... the ability to live life FULLY. All humans It would mean a longer, healthier life for our already have so many things to stress over in This is the only drug out there that has the loved one that he is not guaranteed to have. life ... the last things these incredible PWS potential to address the debilitating symptom humans need is the NONSTOP, NEVER ENDING, of uncontrollable hunger. It is so very important My daughter is a participant in the DCCR trial. CONSTANT stress over food. PLEASE reconsider for it to get to these patients as soon as The impact on her quality of life has been your decision here. So many lives ... the PWS possible. It would be life-changing to them. immense. As a direct result of the drug, my individual AND their family ... are at stake here. daughter had a significant reduction in anxiety, And we believe y'all will truly make the BEST significant improvement focusing, significant decision for these families. Thank you so much Less aggressive behavior better weight control increase in the ability to accept schedule for your time. better health and hopefully more independence changes, the ability to skip snacks and be late for meals with no issue at all, just to name a few. Especially during the pandemic, I can’t

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COMMENTS FROM PARENTS & CAREGIVERS What would an approval of DCCR mean for your loved one and your family?

imagine how life would have been for her or A chance for an independent life living with the same prospects of his peers. DCCR would our family without her being on this drug. PWS allow him to pursue so many of his goals Virtual learning has been a million times better without the restrictions placed on him due to than we could have ever imagined, again that is A better life for my daughter! the hyperphagia. due solely to the positive impacts of the drug. For the first time in my daughters school hope Less restrictive measures and more freedom for career, this past Monday (first day of in-person Grace to be herself instead of being dominated learning in over a year) I put her on the bus and by her obsession with food. DCCR is the first wasn’t in tears with overwhelming worry, fear It would give our son the ability to not be afraid option to treat these behaviors and we need and anxiety. Fearful of my phone ringing to go to social events or church where there my this to help her be herself because she snuck food or whatever other PWS be food. It would allow our family to have a related issue reared it’s ugly head. Again, that typical family gathering around birthdays or is due solely to the positive impacts of this holidays or just because we like to get together. As we plan for transition services we are drug. Every day since my daughter was It would mean no trips to the emergency room confronted with the many challenges facing our diagnosed, I prayed for a drug that would give to prevent a gastric rupture due to over daughter in adulthood. Managing the specific her the best possible life. After seeing the consumption of food. symptoms of PWS increases the difficulty changes in my daughter over the past year, I exponentially. Effective medical management know that DCCR was the answer to my prayers. of PWS would greatly improve our daughter's It could potentially save the life of a person ability to manage life as a more independent Not only my daughter, but the whole family. with Prader-Willi syndrome Although it‚Äôs only one individual with the adult. diagnosis, the whole family lives everyday with I am president of the Utah Prader-Willi the unique and overwhelming stress of PWS. Life changing Syndrome Association and helped start a To think of my daughter not being on DCCR is medical clinic where we run studies like the one unimaginable. for DCCR. Many of our families in Utah It would help us with daily struggles and allow participated in the DCCR study and reported my son to live a full life. Critical help for the PWS symptoms he suffers life-changing results. A few years ago, my Kate with every day was a student body officer, was in the school It could be life changing for the family and her musical, and lived a full life. DCCR will help her quality of life. We were hoping it got approved Its like providing life for my child. We need to get back to this spot of having joy in her life this year so she could start on it. treatment and cant wait for any more trails as many symptoms of her syndrome would be every second is crucial. alleviated by DCCR. She wants to be a dance Not having the feeling of endless hunger. Can teacher but it is very hard for her to make it 15 you imagine how heartbreaking that is going to My son is currently enrolled in the trial and the minutes in the class where she is an assistant be as a parent of a pws child. changes we have seen have truly been life teacher now. This drug would help eliminate changing. some of the obstacles in her way of that dream. We and her doctors believe that DCCR is one She would not have the feeling of being hungry key that could unlock her future. Please all of the time. Help provide her with some It would allow my son to not be hindered by reconsider their application and give PWS kids normalcy. the feeling of always being hungry. It will and their families this medication. We will do continue him to live as normal a life as possible anything to help make this happen. A second chance at living a productive life and to be able to go to friends houses. If he is without barriers unable to take this medication, no one will allow him to their house because Of the fear of increased quality of life with an opportunity to Better quality of life food seeking. In addition the anxiety that live life as an adult at home with family controls his, regarding food has drastically disappeared on DCCR. Its potential to help my son live independently. Less risk of morbid obesity better quality of life

This is a treatment that would save the life of Hopefully controlling excessive hunger Change the quality of life and so many my son who has PWS. We need to get this symptoms symptoms that the symptoms causes treatment on the market as soon as possible to help save everyone’s lives with PWS. Life changer Anderson is a lovable, smiley little boy. With the approval of DCCR we think Anderson would A normal life for my grandchild. A life of not A chance at a normal life! be able to live life to his fullest potential and focusing on food and focusing on being a child not have the effects of hyperphagia interfere with his life. A piece of my mind that he can live a normal A better way of life life without the scare of him continue to seek for food and potentially causing declining Less worry of tough to deal with behaviors related to hyperphagia and potentially other It would improve the quality of life of my health issues and even death. long term benefits such as building better stepson and our family eating habits and reduced risk of things like It would mean the reduction of suffering for my obesity or diabetes among other medical issues Independence, health, and possible save her daughter. She is tormented by the hunger of which could occur with trends of overeating. life. PWS. Hope for the future. No more anxiety and panic Relief from difficulties endured by my son Nathan is a bright, ambitious young man who attacks. so wants to lead a normal life with a job and

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COMMENTS FROM PARENTS & CAREGIVERS What would an approval of DCCR mean for your loved one and your family?

She may never have to experience hyperphagia don't live your life under the curse of this Significantly reducing excessive appetite due to having PWS. diagnosis. Having a treatment option that (hyperphagia), which is the hallmark symptom might help is better than having nothing at all, of PWS A more normalized existence. which is what we have right now. Eliminating risk is a luxury we don't have. PWS took that My daughter could live a more full life, with away from us long ago. I support the approval It would change his life plain and simple...it decreased hunger drive and more self-control by the FDA of DCCR as a tool for the possible around food. would be a game changer for him to be able to alleviation of the symptoms of PWS with no function better in society and life in general. I further delay. could go into a long list but it would be a life Relief! And hope, for a happier future for my changer for him and help him lead a much son. better life. best possible life Keep my son loving with me vs in residential Less hyperphagia and a healthier happier life Absolutely everything!!!! It would mean a living. His behaviors make it dangerous to stay better, longer, healthier life! We need this for home. I was hopeful he would out grow the our children! A better life. aggressive behavior but it keeps escalating.

Cora is a loving, intelligent, fun-loving, and Everything! Patients wouldn’t have to suffer determined 2 year old who deserves the best chance at a full life. This drug can help Hope for a more productive and fulfilling life. eliminate some of the major obstacles in her This would give our family hope for a better way. Her family and doctors believe that DCCR future for my young child with PWS. Give her a chance for happier and healthier life is one key that could unlock her future. Please reconsider their application and give PWS kids Independence! and their families this medication. DCCR has been life changing for our PWS child. She lives at a level of independence that I’m not A functional life sure she would be living at if not on DCCR. A happy and independent life DCCR would change the quality of life we have It is a basic quality of life issue. Without it out it brings hope to our family, that there is some as a family. It would give my daughter a chance child faces life threatening symptoms of PWS. kind of a medical help for our son to lead a somewhat normal life without some of the most challenging behaviors that PWS The hunger and constantly seeking food!! brings. It would also bring some much needed Having had 25 years in the PWS world, and peace to her siblings and some rest for father seeing absolutely nothing be developed to help and I. ease the symptoms of PWS, we are desperate A much more normal life for our entire family! to have any possible tool at our disposal to help It would provide treatment for a major our daughter create a healthy future. She has Improve quality of life. struggled with so many serious issues through symptom of pws that in all cases leads to other the years and the thought that there is major medical issues. The access to this drug something so close to being available to us to It will alleviate our PWS loved one from the would prevent this and allow greater help her is thrilling. You have to understand constant feeling of hunger which will also allow opportunity to a normal life. that thousands of families in the US and more a more independent lifestyle. worldwide live in a constant state of crisis. Ensuring a better life for my child with this Repeat. We live in a constant state of crisis. Relief. Hope. Independence. Freedom. Friends. disorder One mistake on our part could cost us our children's lives. In our family, we are seniors For a valid and effective treatment for Life expectancy, quality of life, happiness, and are the primary caregivers. Our stockpiles hyperphagia mental health for me and my family. This is a of adrenaline dried up long ago and we are great drug that could bring so much to the running on empty with health issues of our own My daughter could be relieved of this unending challenges that my daughter is living. No one which have been accelerated due to 25 years of doesn't need to go living feeling hungry all time caregiving. The biggest task left for us, and one focus on and desire for food. And she would not have to be monitored 24 hours each day for all their life. My daughter needs this. She that we will devote the rest of our lives to, is deserve all the options. doing everything we can to help our daughter (yes, even in the middle of the night) to be sure have the future she deserves. Most parents she doesn't crave, seek and consume food at all have lofty goals for their children. Our goal is hours of the day and night. Caring for a child with PWS means constantly to keep her alive long enough for science to living in a highly stressful environment that develop tools to support her continued health The opportunity to live life normally. Without affects the emotional, social, and physical well and happiness. Now, with DCCR, we have a worry. People with Prader Willi syndrome being of the entire family. As a parent of tool that could help with that and it's being already have so many issues this would identical twins, both diagnosed with PWS, DCCR sidelined. There has been sufficient testing. illuminate one of the scariest issues would be game changer. The hope alone it Further testing is next to impossible because of provides would improve the well-being of our entire family. CoVid restrictions. If the FDA is basing its It would help her lead a much more normal life. decision on looking at a scenario where there is no risk of side effects, then they are not seeing Break through to possibly have a more normal It could save the life of our daughter who our reality. A diagnosis of PWS brings more lifestyle and lessen the risk of health suffers from PWS. She has an extreme case side effects than is even described in the complications. literature. You would not know that if you

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COMMENTS FROM PARENTS & CAREGIVERS What would an approval of DCCR mean for your lovedloved one and your family?

Hope for a better future and life As a parent I want my child to love the best life We know you have the responsibility of making as he can. With this drug it will improve his sure that all drugs you give approval to are both Hope. There is anything else that will help her quality of life dramatically. . effective and safe. We feel that DCCR has to avoid hyperphagia at this time. proven it's effectiveness. Based on the results maybe some improvement in her for the Soleno Phase 3 clinical trials, we also feel that it has proven to be safe. We would It would mean that they have the chance to live feel comfortable giving it to our son based on a normal life free hunger control issues. It could mean independence and longevity for those results. And we do not make that my son. decision lightly. Would mean the world to me knowing that there’s something that can help. better quality of life Charlie would not have to face the challenges caused by hyperphagia, likely enabling him to The chance for her to live a life without feeling Some sort of normalcy avoid having an emotional behavioral disorder constant hunger, obsession with food and out that would devastate his home and school life, of control anxiety. Allow for a treatment option to manage the and save our family from a tremendous amount most significant symptom of hyperphagia for of stress in caring for him by turning our kitchen It would give my daughter the opportunity to the PWS population. into a prison environment. live a more independent life. She will not ever be able to live independently without a drug to it saves life of Prader-Willi syndrome patients. A chance for a fuller healthier life help her control her hunger. We need it to be on market as soon as possible. Mackenna is 7 and loves life but not without I support the FDA's decision that more data is Better quality of life struggle. Every year we are noticing little needed. The FDA is doing its job of protecting changes in our already complex lives. Things us, ensuring that approved drugs are effective that should be easy become difficult. We are We need approval and not waste time. PWS is and safe. I reviewed the data from the initial stuck to a schedule for eating. And moving debilitating not only to the person with PWS release and was not impressed by the from the schedule is often difficult. Having but to the whole family. Hyperphagia reduces effectiveness. I want the FDA, not the study more treatment available is so important to concentration in school and activities, causes investigators or the drug company, to tell me help our little girl live the best life possible. By family and relational issues. that this drug's efficacy outweighs potential stalling this treatment, it puts a giant roadblock adverse effects before I want physicians into her reaching that life. prescribing this drug to my child. That my child and others with PWS would have a viable option to help mitigate the constant The possibility of leading a normal life for our hunger as well as increase their metabolism Allow a more normal childhood and existence. loved one. and be able to have more calories in a day- commensurate with other young adults rather A chance at an independent life. than significantly lower, without the constant It could potentially save the life of the patient. worrying that she will gain weight. This is the only treatment that has seemed to A chance for a more normal life. work for her. This needs to be on the market ASAP to potentially save the lives of people When we got our son's diagnosis, we were told with PWS Hope for this possible treatment and continued hyperphagia was both inevitable and research for future treatments uncontrollable. We were told that because of that, our son would have behavioral outbursts It could save the life of my niece and many others affected by pws. PWS is a rare disease and doesn't have any that would likely mean we'd need to find ways treatment for symptoms. Dccr drug trial has to protect our older daughter (his sibling) and shown positive results and gives hope to ourselves, up to and including placing him in a It would change a little girl‚Äôs world. How thousands of pws families. We can not wait residential home. We were told it would would you feel if you were hungry all the time. more years for further trials. impede his ability to function at school, church, This is torture! and social events without constant one-on-one supervision. We were told to purchase locks everything Extremely improved quality of life. for cabinets and the fridge now, before hyperphagia set in. And we were told he'd Everything likely never be able to hold down a job due to Independence. Better life. Safety!!!! the uncontrollable, debilitating hunger of It has the potential to give her a safe life hyperphagia. It was a VERY bleak picture...and Life altering behaviors without the debilitating and life-threatening it was capped by being told that there was no insatiable hunger that comes with a Prader Willi treatment or cure...nothing we could do but Hyperphagia is the scariest, saddest, hardest Syndrome! Our families are desperate for DCCR hope. DCCR is the hope, not just of our family, ongoing impact of this condition. To have an as a treatment to help our children. but of all the PWS community. It has shown alternative that could lessen the impact on our promise and proven itself to be both safe and daughter could literally change her life. effective in the Phase 3 clinical trials. With it, A better life for my baby boy we have hope for a better future for our son. Without it, we are right back where we started It would save the life of our daughter and allow Everything on that awful day we got the Prader Willi her to live out her dreams just like any other Syndrome diagnosis: no treatment for one of child to live independently, get married and the most debilitating, life-altering, and have a family. Without the medicine her hopes devastating symptoms of a rare syndrome. and wishes would be snuffed out.

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COMMENTS FROM PARENTS & CAREGIVERS What would an approval of DCCR mean for your loved one andand youryour family?family?

It could give him the ability to function more A sense of relief...at this time our child has to The approval of DCCR would mean the world! normally in the real world. Without the be monitored 24 hours a day or he will sneak Charlotte doesn’t have hunger issues right now, constant drive to eat. To have a healthier life. something. My son suffers from anxiety that but she definitely will in the future. Her anxiety interferes with his day to day activities. is so high while she is around food. Having a A chance to make my loved one’s life better. treatment like this on the market would give There currently are no good options for A chance for my child to have a life, a chance our family a piece of mind while we are waiting treatment & we are asking for a chance. for my shield with PWS his siblings to know him for her hyperphagia switch to flip. Please and have memories and interact with him, he reconsider. Our children need to feel some kind of normalcy. I‚Äôve seen what this drug has A better life and more control over PWS. needs the self esteem that comes from taking this drug. This drug has been life changing. My done for some. This could be life saving. child has gone from meltdowns and suspension So much more independence in his life. at school to straight As and principals list this It would mean that our 3 year old son, Hayden, drug is worth it for my family and child might not ever have to experience the horrible Hope for her future. effects of hyperphagia. It would mean everything. To be able help my Our daughter has PWS. This medication would daughter live a life without the constant It would give me a little more peace of mind mean treatment for one of the scariest, most suffering of hunger would be amazing. not constantly worrying that my daughter life threatening aspects of this syndrome. It has might get into food and hurt herself by over the potential to save her life as well as many It would provide our family and daughter an eating. others that suffer from this devastating opportunity to see her have a fulfilled life syndrome. without fear and anxiety over food, The approval of DCCR would be life altering. Every day I wake up with a pit in my stomach People with PWS suffer greatly, constantly. DCCR would give us a critical tool to help our wondering if hyperphagia was going to effect DCCR has a good chance to significantly reduce daughter live a normal life, free from the us. Everyday I wonder and worry about every the pain that my daughter faces. behavioral, emotional and physical challenges single encounter with food. My life is of with which she struggles every day. PWS is a constant panic. DCCR has the ability to ease This is the treatment we have been waiting for. cruel disease. Please grant approval to DCCR some of that worry. DCCR gives my son the This drug gives our son the chance at having the and help give all PWS kids the chance for a life chance to live his best life. DCCR has the chance childhood experience and the education that with less suffering. to change the course of history for our families. would allow for his independence as an adult, without it we are facing a much different Hope that my kid doesn’t feel hungry all the Hope, freedom, a future, a chance for our outcome. time favorite little guy.

Improvement in quality of life for individuals A chance for a better life. A better life. living with Prader-Willi Syndrome.

Independence It is the only treatment available for An approval of DCCR would give us hope in the hyperplasia. For us it is miracle drug that we possibility of improving the quality of life of my have been waiting for child who is affected by this devastating A possibility of independence and living a life of disease. giving back to our community with greater impact. Our precious granddaughter would not have to suffer from always being hungry and over Hope eating, leading to obesity and other health It will give my child to have a better quality of issues in top of what she already has. life and help her family enjoy her. This could save the lives of so many people with pws and help make their lives healthier This treatment could potentially save the life of More independence for our son and to be able my loved one with PWS. As far as I know, it's to have breaks from constant supervision The opportunity to meet her potential and to the only viable treatment for the major regarding food. It would be easier for him to symptom associated with this rare disorder. It pursue aspects of life that have been manage his health and less frustrating. unavailable to her. could save his life, and the lives of others! Please, let's get this drug on the market! There is no cure for PWS but we would have It could help her lead a happy healthy life, my the chance to try and mitigate some of its It would give me hope that my daughter will child wouldn’t have to struggle everyday consequences. feeling like she’s starving and possibly eat not suffer, live as normal a life as possible, and herself to death in the future be independent. Improved quality of life For my loved one to have a chance to thrive at It is the most viable treatment for insatiable life and not experience hyperphagia and all the it would mean a lifetime of not feeling like they hunger that our loved ones with PWS must live complications it leads to causing a negative are starving 24 hours a day for our son. with. This drug must be made available to help impact in her quality of life. Improve lives! Hard to say at this point given the vagaries of a My child could live a longer happier life. trial, but hope for a challenging disease on Our son's employment and community many levels. opportunities would greatly expand and no longer be restricted because f access to food. Game changer

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COMMENTSCOMMEN TS FROM PARENTS & CAREGIVERS What would an approval of DCCR mean for your loved one and your family?

This could help somebody I care about with unable to lead filling lives due to the constant It will great increase chance to solve PWS Prader Willi’s! hunger they feel. They need help NOW, we can’t wait. Their lives are worth it The relief of knowing that some of the life- I am so disappointed at the news that the FDA altering challenges my child faces will have is not going to approve DCCR for individuals Life changing treatment‚ that we are not alone in this with PWS now . This non approval could cost struggle but have tools that can effectively these individuals years (that they don’t have) or A longer, healthier life. treat him and enable him to live a more typical even worse could lead to not having the life funding to conduct another trial and completely miss out on this desperately needed treatment. We need more treatment options than growth hormones It would change the life of a loved one who has Could also cost lives period . As you know, PW there is currently NO treatment for the debilitating effects of hyperphagia for It is our hope for my loved one individuals with PWS . So many are suffering,

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COMMENTS FROM PARENTS & CAREGIVERS What would an approval of DCCR mean for your loved one and your family?

Parents and Caregivers of Individuals Outside the US

As there is no treatment for pws having DCCR Life Very important and critical to save lives approved would be life changing. Chance to have quality of life It would offer better outcomes for my nephew There is no treatment for hyperphagia in prader including less suffering. This treatment to willi syndrome, to have a safe treatment for A hope for a life with autonomy and dignity. reduce pain and suffering is life changing. this debilitating syndrome would be life changing Hope for a good life Improvement in all areas of our little one’s life!

It would be an absolute life changing not just A better and easier lifestyle for her but for everyone It's very important. Saving their life Everything! there is no treatment for this Opportunity to have a better life debilitating condition and this is a very safe drug that has showed very positive results The world Save the lives of our Zakai and Kaleo

Another option for the treatment of symptoms everything This treatment could save not only his life but of PWS many others as well. It is critical that this be made available Live Another option in the treatment of PWS symptoms Extremely helpful to correct for symptoms like Important to him hunger

Better life Very good Better quality of life

No treatment currently exists for this Quality of life debilitating condition and this trial has showed No hunger very positive results Very important for quality of life PWS is a rare disease and doesn't have any It would mean so much to approve DCCR to treatment for symptoms. Dccr drug trial has Means his life help with this debilitating condition and has shown positive results and gives hope to very promising results thousands of pws families. We cannot wait Possibility of a better life. Increase oir quality of more years for further trials. life. Would change their life Give them chance for a chance of better life Improvement of life quality and unnecessary procedures The ability to have a somewhat normal life and stay alive Safe care A life full It could save a life and it's so necessary liberty Save the lives of our children It would be incredibly life changing and provide a glimmer of hope for this horrible disease the right treatment An opportunity to live healthy

It would be totally life changing. Anxiety control Better quality of life, and more food choices so he doesn’t get frustrated or feel different than any other child The approval of DCCR would for the first time Everything, hope... give our family hope for a better and A lot in terms of being able to be seen and independent future for Alexander. He is a better quality of life bright, happy boys whose potential will be treated as any normal person and have the severely limited by the impact of hyperphagia if medical treatments available. Health and peace no treatment is available. Better quality of life Health quality of life Freedom from suffering, support our family, a Quality of life Better Life quality chance at a better outcome in life

Save lives the ones that ele loved Hope for better life for our little baby

Future and happiness 56

COMMENTS FROM PARENTS & CAREGIVERS What would an approval of DCCR mean for your loved one and your family?

It would make life for our twins easier and close Potential of a greater life for our loved ones Hope of a better future and a independent life to normal for my kid A greater chance to participate fully in Cure and a big help. schooling, social relationships, support and The chance to reduce hunger, OCD about food, physical activities and have a better quality of improve behaviors, and improve body Hope life generally composition.

Opportunities for a better life , for the family Will improve quality of life measurably. maintain weight. and the persons with pws Survival and quality of life hope Save lives This treatment could save the life of people It would change our and so many families lives Hope! with PWS for the future tremendously for the better. It is the only option available to treat the most The chance to a normal life horrible, devastating and debilitating symptom PWS is a difficult disorder to live with on a daily of PWS. It is absolutely critical that the drug is basis. DCCR would help manage aggressive and on the market now as so many people need it. rigid behaviors for my son, currently our biggest Everything There is no time to wait. challenge. It would also help manage his hyperphagia. Just to give us a common an quiet An option to live a full life. life all together and a future for this little boy Hope for improvement.

It would help enormously to mitigate the Life saving! A better life for my nephew because this effects of the Prader-Wilii syndrome treatment can help him manage his behaviour issues. Hence a better life for his parents and A treatment option where none exists two brothers and extended family (ex : me). An option of keep moving forward and get things done. If it eases the challenges associated with The problem of food to be easier for children as hyperphagia and behavior - it would be life well as for parents who care for children Could potentially save lives. changing and we are desperate for this to occur

Hope that a medication is available for our child It could potentially save the life of a loved one For her to live a fulfilled life without out before hyperphagia kicks in - this drug can help with PWS. constant supervision, it would mean she could eliminate many obstacles and battles for many be independent as everyone deserves too. people with PWS. Doctors believe that DCCR Help with his future giving him the best can help in many ways, and I believe that, too. possible future anything is everything. Quality of life. So, please reconsider their application and give PWS kids and their families this medication. Everything. It could save lives and I think it is A longer healthier life for her. Being able to be critical to get this drug on the market ASAP to around food without the fear of her eating until I hope that she will not experience the those who are living with PWS. she dies. More freedom when she older as she hyperphagia in the future other children/adults won’t need constant supervision due to food do experience at the moment, or at least to a Quality of life seeking. smaller degree. Without hyperphagia or with less hyperphagia I hope that she and my family That we at least have one treatment that will also will not experience such behavioral The chance for a normal life for my PWS child work. That the stress around locking up problems other families do experience at the but also my 2 non PWS children. Hyperphagia food/hiding food and the affect it has on moment. I want her to be happy and I think changes all our lives. siblings is removed. DCCR can contribute to that and make the life of my family a bit more normal. Managing hyperphagia in a completely An easier progression through life controlled environment might not seem that I hope that my loved one will suffer less from difficult but the reality of managing this in constant hunger in the future and the effects, Everything for everyone involved. daycare, school yards, birthday parties etc is a which come with it like anxiety, etc. This would constant struggle and one of the most difficult parts of PWS. An effective means to treat this make the life of my family easier and more Absolutely everything! enjoyable in the future. through DCCR would alleviate much of this burden and make a huge difference to the day- It means they can eat normally like any other to-day lives of people with PWS and those in A normal life child. charge of their care.

It would mean a lot A better future Life changing for my daughter and our whole family. Hyperphagia is a debilitating and life Life changing Hope threatening disease and there are zero treatments currently available. DCCR has Improvement in quality of life proven to be effective and safe. By requiring 57

COMMENTS FROM PARENTS & CAREGIVERS What would an approval of DCCR mean for your loved one and your family?

another trials this will mean many years before It will help them enjoy life without being A reduction in restrictive practices, more choice a treatment option is available. hungry all the time. It will also reduce their risks and freedom for my son, increased inclusion in of diabetes. the community. This should then reduce it would change our future and take away the behaviours of concern around food as well as anxiety surrounding pws. the symptom of My child will never have to go hungry the constantly heightened anxiety. hyperphagia is by far the scariest and we are relying on this treatment for our son in the Life changing! My child will never have to go A life without worries, a normal life for my son. future. please don’t deny us something that will hungry which means she won’t have to suffer help him immensely My son can live a quality life after approval of A chance of independence for Thomas. this medicine. It's a relief for my family. It would change our future. We are so scared about what is to come and this would give us so Improved options for treatment and continuing much relief to know this is available. It would It would mean a normal and bright future for our babies. Life would not feel like we were data and research to find effective measures change our baby’s life he wouldn’t have to deal for a rare syndrome, and corresponding with the most debilitating symptom of pws living in a lottery system for years and years before we would know the true effects of PWS information for wider use. in our family. It would give jacks siblings a Live a normal life normal life. Not a life controlled by PWS. It The possibility of living a normal life (as much would help our mental health and anxieties. It as possible). Not only would it change the life of Everything! Without any hope of treatment for would take the unbearable discomfort away my son Nicholas, but the lives of many other hyperphagia we cannot even contemplate a from our Jack. children with PWS, and the lives of their semi-independent life for our son, which is families. devastating as parents. Knowing the It would mean happiness peace and potential path that lies ahead of him in the independence for my child It would be life changing for my son and our absence of any treatment causes immense family to have Hyperphagia under control distress and psychological trauma for us as parents and shapes the trajectory of not only Everything and hope for the future. our son’s life but also of our entire family. To assist in saving my sons life, to take away the The availability of any treatment would for the An absolute game changer. Less anxiety, a the cruelest part of PWS which is his insatiable first time provide us with justifiable hope for a more normal household. A step closer to a appetite and to enable him to potentially lead better future for our son. better life. an independent life.

Approval of DCCR would mean that my son Further Help with Medical Needs. The benefits will be literally life changing. would have the one and only therapeutic option available to him when he begins to show A chance to live happily Life changing signs of hyperphagia which is so debilitating and as a parent to watch your loved one having It would give my daughter a better chance in Health & life to suffer the constant feeling of hunger is life. utterly heartbreaking. . Less restriction Reducing the pain of continuous hunger for my Health and life daughter and our pain in a result. Making life another important treatment option easier for my loved one with PWS and my Being tormented her whole life by food and whole family as food restrictions will be less. A chance at a full life without the debilitating being hungry is not a life I want for my Reducing anxiety that my daughter will live impact that the desire to eat brings on. daughter. because of the excessive hunger. Having a medicine that helps with the most annoying This treatment could potentially save the life of There are no words to describe the possibility aspect of this syndrome means a lot to us. our loved one with PWS of her to live a life without feeling hungry. I still can't imagine what this must feel like, day in It will help them enjoy food as normal people day out to never be satisfied, to have to live in a and stop eating when they have enough food. It This treatment could potentially save the life of world where food and the temptation of food will have a great effect on their life style our loved one with PWS. surrounds you. To give her a chance to learn without her brain being consumed by the Everything. It would completely change her life, Our girl Will been funnier thought of food or when her next meal may be. our life and give her the opportunity to live an For her behavior not to be impacted negatively independent and meaningful existence with Finally have an option to live life full. all because her body thinks it needs more food freedom from the most debilitating threat of and she will do anything to get it. the syndrome. A chance for a life without excessive hunger. Better quality of life for him, his brother, us, the Hopefully a chance at an independent lifestyle It would change her whole life. She could live a parents, our extended family and community. for my daughter rich, happy independent life and fulfill her potential. This is truly a life altering drug that Improvement of life every person with PWS will benefit from Treatment and help 58

COMMENTS FROM PARENTS & CAREGIVERS What would an approval of DCCR mean for your loved one and your family?

A good health Everything! This treatment could potentially well as several other symptoms such as save the life of our loved one with PWS. aggressive/destructive behaviors, fat mass and independence abnormal lipid profiles. With this medicine, we Improvement in the quality of life of the loved will be able to have hope that our beloved ones will have a better quality of life. Tudo, qualidade de vida, oportunidades. one and his family

this treatment can give a lot of life. Everything! This treatment could potentially It could save the life of my grandson save the life of our loved one with PWS. Hope an opportunity for a new quality life Everything! This treatment could potentially save the life of our loved one with PWS. Quality of life Decreasing the risk of the child to become obese and having related health issues, besides it would help to live a fully independent life. Everything Better quality of life A life of a child

hope for a better quality of life!!! Quality of life, health, well-being. Hope and quality of life

Allow to relieve the intensity of the symptoms, A relief and a way of a better future with It means the hope of my daughter having a long to allow to live more and better. increased quality of life. and healthy life.

Better life Hope to thrive Everything! This treatment could potentially save the life of our loved one with PWS Everything! This treatment could potentially LIFE QUALITY save the life of our loved one with PWS. Life

This treatment could potentially save the live More quality of life the my daughter. Important to him

A chance to avoid the hyperphagia Everything! This treatment cloud potentially Behavioral, hyperphagic and metabolic patterns improvement that would make all the Better quality of life Very important difference for both social, psychological and mental development. Hope and quality of life. The possibility to have an independent life! health Everything! This treatment could potentially Hope for a better quality of life. A possible salvation. saved the life of our loved one with PWS Hope, the most important word in the whole Important Everything! This treatment cloud potentially World nowadays save the liga of our loved one with PWS Believe Everything! For a very dear and loved child with it means a great victory and a great advance for PWS my loved one! A life change New life for him. This treatment could be the difference in his life. Everything! Save the lives!!! Everything. Better quality of line Life quality and new ways to live Family He could enjoy life in a more normal and less stressful way Everything. This treatment could potentially The improvement of my son's general condition save the life of our loved one with PWS. It would change everything. My son is very This treatment can save his life. anxious, binge eating h√°s increased. This Everything. This treatment could potentially medication would mean more than hope is our save the life of our loved one with SPW respect, strength to try harder and a better life chance to change our lives.

Save the life This treatment could save the life of my parent Mean a lot! Mean health and life

For your curate Qualidade de vida A better life.

Survive hope for a better future. it would mean the possibility of a better evolution in all areas of his life, as well as a Hope and cure This medicine is proved to controls the possible independence of both him and his hyperphagia, the hallmark symptom of PWS, as family 59

COMMENTS FROM PARENTS & CAREGIVERS What would an approval of DCCR mean for your loved one and your family?

Hope to thrive. Everything!! This could give them a better life!! A huge quality of life improvement for our whole family. An oral medication the combats It world increase some years of her Life, healthy quality of life so many of the debilitating symptoms of PWS life! would vastly improve the lives of our entire family. Most of all our son would be one step It will help a lot in controlling the disease. closer to a normal childhood. Hope in the gain of quality of life for my children. It would Change everything, his anxiety, Devastated is not a strong enough word to hyperphagia, satiety, behavior and his cognitive describe how I feel about the thought of my Live, love, health skills son growing up to live every hour of his life feeling constant insatiable hunger. It is a cruel We would certainly provide a better quality of Would mean a chance for him to have a better and terrible way to live. Insatiable hunger is just life, not only for my daughter, but for us, the life. one of many medical issues my son will face as parents. It is a disease of daily struggles! he grows - others include extreme behavioral hope for the most normal quality of life issues and mental health issues. Unfortunately Independence, life! possible. there is currently no approved treatment for these extremely challenging aspects of Prader Willi Syndrome. DCCR is the hope that the Her treatment and a good interaction with the Everything. Better quality of life Prader Willi community has been waiting for. It family is proven to be a safe and effective treatment Probably a life saver for the worst symptoms of Prader Willi It would be excellent for the health of our Syndrome. It gives me hope that my son can relative and also for the joy of the whole family. Better Life quality, better development live a life of fulfilment and quality. The thought chances, best treatment of a treatment existing that he cannot have is Everything! This treatment could potentially upsetting to say the very least. Our family is feeling pretty defeated right now to be honest. save the life of our loved one with PWS It will change everything in her life, provide Having access to DCCR would be life changing quality and prolong life to her for my son and my family. I am begging, not Important to him asking, the FDA to please reconsider their It would mean the possibility of choices in his decision to ask for an additional study and to Hope life. In terms of where he can go to school, approve DCCR as a treatment for Prader Willi whether he can work and function Syndrome as quickly as possible. In a rare drug on the market as soon as possible! independently. disease population, getting enough participants who have not already participated in a study is Relief Better quality of life for our daughter. Less difficult as well as raising enough funds for the anxiety for all parties involved study. Further, it would be incredibly upsetting to see the people who are currently receiving Very important It would mean life saving opportunities and my DCCR from the trials and THRIVING need to stop taking what to them is life saving daughter will actually have a full life. Provide a better quality of life for the patient medication. Although Prader Willi Syndrome only affects 1 in 15,000 births, the lives of those Its life. Its giving my child a life to to be Improve quality of life who are affected and their families are often independent and live normally without feeling devastated by the symptoms of the condition. hunger every time. Give my child the strength Please Please reconsider your decision and This treatment could save his life physically and mentally to be stable and face make DCCR available for the treatment of the worldly challenges that we face in our daily Prader Willi Syndrome as soon as possible. Everything! this treatment would save my life. Our kids challenges are additional to what Thank you. daughter's life. Obesity is serious. we are able to normally. Save the life of this baby and that in it self is Would be the chance for my daughter have Help my daughter focus on other aspects of life, worth it. evolution in Pws and my family have hoped to not only food see this moment. It is in my child’s best interest to have a drug to miracle battle hyperphagia A better quality of life A chance at normal life. A better quality of life Potential of hope to love a full life. Improvement of behavioral, hyperphagic and my daughter. metabolic patterns that would make all the Hope for more quality of life difference for social, psychological and mental A much improved quality of life, a healthier development. outcome and improved life expectancy. If this treatment helps the hyperphagia even by a It would mean the world to us. It can save lives modest margin it will be a vast improvement for our child It would mean hope for a very uncertain and at times scary future. It would mean providing our Everything! This treatment could potentially child a chance of independence and our family save the life of our loved one with PWS A potential treatment 60

COMMENTS FROM PARENTS & CAREGIVERS What would an approval of DCCR mean for your loved one and your family?

a chance of normalcy. It would be helping a This drug would be life-changing for my son and life changing for our daughter and for our population that so desperately needs options all PWS patients. family. for treatments. It would be life changing! This would mean that Bennett had the He would mean everything. The possibility to This treatment could save lives opportunity to live life full without the constant live and thrive without the constant anxiety feeling of hunger. associated with hyperphagia Approval of this drugs means Ludovic will live a better life and address one of the most Hope Life changing treatment to have a better debilitating effect of PWS - hyperphagia. This outcome for my son. will give him a chance to live comfortably and This treatment will change the life of my increase his chance of living independently. daughter. She is a high functioning charismatic It would mean the world. Imagine a diabetic little girl who could do amazing things in life, if not being able to get insulting to help control It would ultimately mean the world. A better it weren't for her constant struggle with food their blood sugar. Hyperphagia is THE most life for them and a piece of mind for me as his and the anxiety and obsessions it causes her. debilitating symptom of this complex genetic mom. We need this drug. diagnosis my twin daughters are to face in the future. To be able to offer them this lifesaving It would means that my loved one would stop A better life, possibly means life or death for drug would mean so much. Food is such a huge to eat lots. my child or others. We NEED this medication. part of our society, as much as we can teach We cannot wait years them coping strategies; this drug is another option we as parents would have to help deal A chance for our child to live independently with the every day challenges Progressive steps towards a better life and more options Better quality of life. Save the life of my pws A safer life, more control and peace of mind. daughter. A full life with possibilities The possibility to upgrade the quality life. It would save my child from suffering from years of feeling starving from hyperphagia and My daughter is 20 months old and has PWS. the associated behavioral effects it may cause, This drug cod be a game changer in helping her That we get to support our daughter and and increase not only his but our whole family’s lead a normal and healthy life. potential help her with one of her biggest quality of life. challenge It would mean a lot. More chance for my child Currently, there are no treatments for to get a normal life Improved quality of life. hyperphagia. With the potential for this drug to address that life-threatening ailment, my A life. My son won't get the chance to try this drug, daughter may be able to become independent but there are so many families that will benefit one day. from it. This drug will be life changing for so A much better life, the potential for more many. independence like those of her peers. Hope for twin babies living with PWS improved quality of life Better relationship with our daughter, less It could mean a future with normalcy and disruption at every family occasion, and BETTER opportunities for peace and enjoyment instead HEALTH FOR HER! Everything. it would make a tremendous of constant upset. It would mean better health different to Rebecca's quality of life and health for our entire family. Less temper tantrum’s, more active, possibility of weight control, getting him off anxiety Hopeful help her to feel full. So we can live a A future for our child and those like her. medication, perhaps getting a small job in more normal life. She's always hungry. She has Hyperphagia is one of the most debilitating future. been caught eating food in the garbage at aspects of this syndrome and prevents so many school. Now she's working, she's been caught from living normal lives. Not only the person stealing other people's lunches. All our food is with PWS but those living around them. Yes locked at home. She's been struggling with this for years. This has been affecting everyone in It would mean hope to having a closer to A treatment option that doesn’t currently exist. our family. I wish this drug would be available normal life for the future and now. Not only for It means hope for our family. in Canada too. our daughter with PWS, but her sister who’s day to day life is constantly impacted by her An approve of DCCR would mean that our Everything!!! This could save my daughter's life. younger sister’s needs and for us- as a peace of family could live without being on a constant mind knowing that with that insatiable hunger and heightened guard to ensure food security A treatment to live independently controlled, our daughter can live her life to her around our child. We could relax a little and fullest: hold a job, perhaps meet the love of her give our child some independence. Our anxiety life and possibly even live on her own with and hers would be reduced and we wouldn’t It would mean a more peaceful life for my loved minimal help. Her hunger is her one limiting have to fear her gorging on food and potentially one and my family. The effect of this drug is so factor, her big closed door to life... this drug is rupturing her stomach if she gained access to significant on managing PWS symptoms and it the key to open the door to her future. food. In short, a medication, this medication, would cause a tremendous positive impact on that would reduce her hunger-drive, would be the life of so many patients and families. Let's 61

COMMENTS FROM PARENTS & CAREGIVERS What would an approval of DCCR mean for your loved one and your family?

reconsider this decision and act fast for the It would mean the world to us - my daughter It would mean the world to us. Every day is a well-being of so many patients. can have the hope of a healthy life struggle and we need help.

It would mean hope for her to live a fulfilling An independent life with opportunities to live A chance at an independent life. Health and life without the devastating hunger associated like any other human. happiness with PWS. Life changing A chance at a happy healthy life A better future and possibility of living independently Better life and independence Everything

A huge relief to help with the most debilitating Hope for a new future for my son Life effect, hyperphagia. A change at a life where an everyday thing like to have control on her eating and allow a It would be life saving food isn’t a constant threat. healthy weight

An approval of DCCR would mean our beautiful The opportunity to live a life without fear, It would be too important to control your food daughter could have a future free of the torture without crazy restrictions, without a helicopter cravings of hyperphagia. A life of independence and joy. parent. Just the opportunity to live. The thought that she can be robbed of this chance is heartbreaking to our family. We NEED A better quality of life this drug for our community. Avoiding life‚Äôs difficult due to hyperphagia Security and independence Better quality of life ...improved mental health A treatment for a serious condition for pws youth and everyone in the family that Save their lives or at least minimize deals daily with struggles of family member. The end of hypervigilance regarding food hyperphagia, main symptom of SPW safety, and the fear of a premature death for Better future my child Basically, it could make a huge difference in his day-to-day quality of life. Hyperphagia is one of For my daughter to live fully This is the only hopeful drug to manage the the great problems that you must face symptoms of PWS that limit my son‚Äôs life. associated with anxiety, which makes him. dependent on that rare and bad condition. Hope This drug is a treatment for hyperphagia a because it generates other behaviors due to potentially life-threatening disorder for my anxiety such as uncontrolled impulse due to An approval of DCCR would mean a new daughter. It also addresses other difficult anxiety if this is approved and positive it treatment for my daughter's constant symptoms of PWS such a as aggression. means that God has answered our prayers. hyperphagia and some of the other behavioral challenges she faces due to her diagnosis of change our lives for good Prader Willi syndrome. In short, it would mean A better life. And some weight loss . an step forward for her in being able to live a life free of some of the challenges of Prader There are currently no other drugs available to Improve his life and health. Willi syndrome and having independence in her address hyperphagia in the PWS population. It adulthood. is often the main reason that prevents improve her intelligence and decline her independence. This drug could be a key player appetite for food Hope that she won’t be hungry, constantly to offer my son the opportunity to live more distracted by hunger independently. A potential improvement in symptoms that no other alternative can do at this moment. This would make a huge impact on her life, her I can't begin to say what a life altering future and the people surrounded by her. This opportunity this would be.. life expectancy for my son drug was such an exciting thing for her and our family. Approval of DCCR would mean that our son health, chances for a better life would have access to a drug that could help Less stress about some of the issues with PWS him manage the hyperphagia that plagues his life with the effects of never-ending hunger It could potentially be a lifesaver, and would that could ultimately lead to his death. This improve quality of life for my son and my family A more hopeful outlook for a normal life for my would provide him the ability to live a better son. Less stress and worry and an opportunity quality of life. A better quality of life for my daughter with for him to be a normal child. PWS and our family. It would mean a better life for my son and out Everything family. The treatment could really help a lot of families. All members in a household is affected Reduction of symptoms/effects or inevitable A chance at a better life - so it would mean the by the symptoms of PWS. hyperphagia. world to us. 62

COMMENTS FROM PARENTS & CAREGIVERS What would an approval of DCCR mean for your loved one and your family?

A safeguard eliminate many obstacles and battles for many Hope that the medication is available before people with PWS. Doctors believe that DCCR hyperphagia kicks in Long life no anxiety for any of those involved can help in many ways, and I believe that, too. hope emotional stability So, please reconsider their application and give There is nothing on the market to help people PWS kids and their families this medication. with PWS with their hyperphagia and related Its great symptoms like anxiety, behavioral problems, Hope that a medication is available for our child etc. DCCR has shown positive results and it before hyperphagia kicks in - this drug can help would give me an option of treatment once my To have better life quality eliminate many obstacles and battles for many daughter starts developing hyperphagia. I am people with PWS. Doctors believe that DCCR very scared of the future, especially because I A great change in life can help in many ways, and I believe that, too. know that there will be very little to help her, if So, please reconsider their application and give DCCR is not approved. I have the hope that Lifesaver PWS kids and their families this medication. DCCR can reduce the physiological hunger and can prevent the development of the strong psychological desire to eat as a consequence. I I think it will give my son a normal life A better life with less anger, fear and more quality believe that once this desire is established it becomes more and more difficult to treat in Mean healthy and normal life any way. Therefore, the time-scale of approval A big hope that a medication is available for our is very important. son before hyperphagia starts. DCCR can help Everything! I want my son to have life without eliminate many obstacles and battles for many hunger. people with PWS! Doctors believe that DCCR As parents, there is nothing in this world that can help in many ways, and I believe that as would make us happier at the moment that Hopefully it would become approved in world- well, as our son does not have yet the hunger - seeing DCCR being approved. The level of wide use. and for a prevention, DCCR seems to work! suffering due to hyperphagia and psychological Please, please, please reconsider the challenges that are daughter will soon have to endure and the level of stress this will pose to It would Mean that we can atleast ease application and give PWS kids and families this us is unimaginable and there are no options on everything that our loved one and us strugle for medication. the market. In the area of rare diseases, we do every day in life. not have 10 other companies waiting to fill the Hope is given to reduce their suffering void and we do not have dozens of clinical trials Hope for the future! A chance to make my in the pipeline. DCCR might well be the only daughters life easier with PWS Finally an option against one of the major PWS shot at realistically changing the course of this problems condition for our children in this decade. We do Possibly living an independent life as an adult not need perfect, we are desperate for options as well as other positives too long to mention Participation and normal life right now. DCCR is safe and has been proven effective, especially in severe hyperphagia. The results have been unprecedented in PWS, as More Harmonie in Family, less Crisis Hope and safety hyperphagia seems extremely resistant to tackle. This drug is a game changer for us and It means much for our family De-facto curation and switching-off this one can give our daughter and other children with main impact, the eternal appetite. Ir is like PWS the much needed quality of life to the better live Insulin for Diabetis, yes you have to take it extent never seen before in PWS. Therefore, Evers day, but you can live a quality life in please reconsider your decision! society. More quality in life Living a normal life Life changing quality of life and a possibility to Future perspective without fear and severe live a more independent life. psychosocial distress it would change theirs and so many families lives for the future. It is the only option Freedom Health available to treat the most horrible, devastating and debilitating symptom of PWS. It is Hope for a better life, no hyperphagia, a better absolutely critical that the drug is on the Better live health state instead high fat mass with the market now as so many people need it. There is consequence of morbidity of a just young no time to wait! Independence for her life, to live her own life person. Everything. We need help. My son need this More independence for her life, own control, Life changing!! For my son to not be a danger help. His hunger and his behavior getting more relief in everyday life for himself. A life threatening danger! worse with the time

It would have the potential to our kids and our Life quality. Less mental stress. Self-sufficiency Better life life much easier. Participation normal life A chance to freedom Hope that a medication is available for our child Stop hyperphagia before hyperphagia kicks in - this drug can help Stop the suffering. 63

COMMENTS FROM PARENTS & CAREGIVERS What would an approval of DCCR mean for your loved one and your family?

An independent and more fully life Life saving for family member with pws and life It could mean the difference between aiming changing for rest of family. for a life of independent living and the Better quality of life possibility of living without constant A better quality of life for us all supervision. Compared to the current expectation of living in a care home under Very helpful constant supervision due to the consequences It would mean less outbursts of anger, less of life with hyperphagia. This drug could give It will be very helpful to control hyperphagia aggression and not as much food seeking Cora a chance at life. and behavioral issues. With this drug will get behaviour, it would save my sons siblings some relief for my kid and family to lead A better healthier quality of life, not just for our normal life. A treatment option for the most challenging child but the whole family. It will also improve part of PWS mental health as stress levels around food will A new and independent life decrease. some degree of peace of mind that the anguish Life changing of hyperphagia might be reduced by the time Hope my daughter is at risk

It would mean freedom from behaviour This is vital, this drug works and my child problems It would give improved quality of life. Help cannot be without it. Please approve DCCR as avoid obesity which will cause her an early this is life changing for my family and my child.. death if this drug is not approved. It's is very much essential and will be life changing to our kids A chance at a more typical life, which would be Hope. The opportunity for my daughter not to life changing face excruciating hunger pains and seek food Immediately every single second of the day. This in turn will decrease anxiety, temper outbursts and it could mean the help my son needs to have a Dignity life depression. It would mean everything to us as normal life, hyperphagia is one of the worst it would be the only available drug to help prader willi symptoms, which prevents both them and their families from enjoying life. It means a lot .My child will be able to lead a people with PWS. Prader willi does not harm only those who life like other children. suffer from it but also those around them. we This could potentially save my child’s life need this urgently It will mean a new life not only for my child but for my entire family Blessing Hyperphagia is our single biggest concern as parents. With no treatments for PWS Children Access to the solution for life threatening issues New life! Freedom! surely they deserve a chance ?? in PWS children. It would change the life of our son and our It would mean hope after an absolutely Improved life for my son. whole family in profound ways and enable him devastating diagnosis- that threw our family to life a life free from the terrible effects of into complete turmoil. And to think the only This can change the life of our PWS and lot of hyperphagia stand of care was growth hormone and nothing hope behind this study. much else in the 20 years. I think if the people Quality of life. in the FDA would take another look and review trial 3 it would give all the carers of people with It will be life saving drug for my child and I PWS a lift that they need to continue caring and request you please clear this as soon as The world a glimmer of hope that we are not being possible forgotten. Please don‚Äôt leave people with It would mean the world to my family and most PWS behind. It would be wonderful if a drug for hyperphagia of all it would change my daughter's life it this gets developed before the onset of that phase drug was available to her.my daughter nos now Improved quality of life 10 years old and she is realizing she is "different It would be really helpful ..if u can expedite the " to her peers and aswel it would improve the Life entire process of releasing this drug to the quality of her life if this drug cuts out her daily Market. this would be great help to us and hunger and get rid of the urge to want to eat all many families like us. the time. The possibility of living a more normal life without hyperphagia. A big change in my daughter's life and our life Everything like a family Help to better her condition It could save our loved ones A big change in my daughter's life and my It will give my loved one a chance for a better family Hope and less pain & anguish for our daughter . independent life Pws is cruel in so many ways and this would be Everything life changing. improves your life, advances!

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COMMENTS FROM PARENTS & CAREGIVERS What would an approval of DCCR mean for your loved one and your family?

hope that my daughter can have a life. and don't have to check his every move. It A new life. More independence. Better focus on could also secure our future from aggressive school, friends, hobbies. DCCR could provide the opportunity to behaviour. decrease the intensity and/or frequency of the The are all for us, new hope. aggressive behavior, emotional outbreaks and Better future for living. Less worries. That my food compulsion that dominates in our kid will be able to enjoy his life like others. Hope for a better quality of life household. This would result in decreased stress and anxiety for the entire family, better A much happier life results in school and work for the entire family It can change our lives, my dougter live (which would lead also to a more stable quality can improve with this. financial situation). In short - a higher quality of No words enough to express the feeling and life for all. happiness will bring to our lives. this can cater normal life for all of us

It means a lot Hope for our little girl to live a fuller life where Great help she can participate more independently without her family and loved ones constantly It would be a huge help and motivation that our worrying about her eating too much. It will Our child could life like a normal child and in little girl someday will have an independent life. reduce stress not only for her but for everyone the future he could go to job and have family Now we have a fear that she and our family will around her. It might even make it possible for not be able to live life full. Gabija is an amazing, her to live independently one day, rather than Change of life, freedom for my child , positive, always smiling kid and we want that stay with us (parents) her whole life or being independence. she would be always happy and able to reach forced into an institution to be monitored 24 her dreams. hrs a day. Just a chance for more happiness in Easier Life of whole family, friends, school etc. life This would mean that our family could live a Peaceful life for my Child normal life without hyperphagia Everything. Releasing her from some of the anxiety and challenges associate with Changing the quality of life. Possibility of More hope for a devastated family. hyperphagia would be such a life changing normality situation It can save their life! Normal life More options for treatment the better for all To improve the quality of life for my daughter, families helping young and old people with a better life and a better future my child could giving her a better future and potentially saving PWS be independent her life Remove/ reduce the negative effects of a The approval of the DCRR drug for people with It would be life changing. It would address one significant obstacle (symptom) that could alter PWS is a great and the only chance for my of the most difficult aspects of the condition. quality of life for our daughter and those around her. We fear the effects of one major family to at least eliminate hyperphagia in our symptom our daughter may get as she gets child, which is the most difficult in PWS. The Better living older and the implications this will have on her parent molecule, diazoxide, has been used for future and ours. If this drug can reduce the decades in thousands of patients (infants, this drug on the market as soon as possible effects of this symptom, we very much want it children and adults) but has not been approved to be available. For her freedom, well being and for use in PWS. In a phase 3 PWS trial, DCCR Hope and a better life quality. health. This has wider effects improving the showed promise in the treatment of quality of life of not only the patient but those hyperphagia as well as several other symptoms who interact and care for them. such as aggressive / destructive behavior, in Any medicament which can help alleviate the reducing fat mass and improving metabolic issues for PWS is a welcome move considering parameters. If the drug was approved, it would This would reduce our fears for a future life of that as of now there is nothing which can be mean a chance for a better tomorrow for our misery and deprivation for our beloved son, effectively help these kids. family. that he will join the sad ranks of people with PWS who suffer from the wretched hardship of This treatment will help our girl and many forever feeling hungry, the terrible risks of The approval of the DCRR drug for people with others with PWS to have a better life and eating dangerous and toxic non-food items, and PWS is a great and the only chance for my without life threating problems. the social hardship of being unable to focus on family to at least eliminate hyperphagia in our social skills because of his unmanageable focus child, which is the most difficult in PWS. The Controling the eating is a game changer for a on food, as well as the health risks and social parent molecule, diazoxide, has been used for person with PWS. It will help us to focus on unkindness that come with obesity. decades in thousands of patients (infants, other aspects and improve the overall health. children and adults) but has not been approved for use in PWS. In a phase 3 PWS trial, DCCR Everything! Health for my daughter. Freedom in everything showed promise in the treatment of in our family. hyperphagia as well as several other symptoms Hope restored such as aggressive / destructive behavior, in reducing fat mass and improving metabolic That he could live without the constant hunger, parameters. If the drug was approved, it would and that we as family could breath a little more 65

COMMENTS FROM PARENTS & CAREGIVERS What would an approval of DCCR mean for your loved one and your family?

mean a chance for a better tomorrow for our Making place for new opportunities This is a chance for my child to live a normal life family. Hope for future It is the only one cure to save life of our child Our life would be easier. and other people with PWS. It would mean better, more stable life. I It would make our life much easier, especially wouldn't worry so much about the future Hope for the future for my son. He would be able to be more consequences of obesity, behavioural independent and do better in the future. problems. The medicine will save my child from the constant search for food, tantrums and will I believe that DCCR will help my daughter to freeing yourself from this damn disease and allow him to develop intellectually, and not get live the normal life- go to the school without having a healthy baby hung up on food only. The family will be able supporting teacher, give her an Opportunity to to live in peace and not hide food. stay at home alone in the future, to live alone Even small reduction of hyperphagia would as an adult, to work as a normal, healthy change the quality of my family's life. It breaks calm state, person... and that all will make her happy and my heart when I see my small daughter make her life longer.. suffering from hunger. It's so difficult with small It's very important for my family children, because it's not possible to explain A chance for a dignified life for the sick and the why they can't eat. They just don't understand whole family the restrictions. It will mean the world to me step to the normal life and my family if our daughter with PWS could I am a single mother of 3 children, I have been have even small chance for independent, This is the only chance to help my son in the struggling with my daughter's disease since I slightly cos to normal life. I believe in safety of fight against the main problem of Prader Willi started. It would be very helpful not only to my DCCR, but even with risk of some small side syndrome daughter from PWS but also to our whole effects I would give it to my daughter. FDA I beg family you to approve DCCR.. My daughter get a chance to live fulfilling life

It would change the whole life, it means a Would give us hope to for a normal happy life Hope chance to live "normally" for the whole family. Better life for my daughter It would mean a great chance for better live for Its Chance to our child whole Life for better our baby and whole family. It would give my son at least option for brighter This would mean a return to normal life for Alex future. He is funny, happy, loving little guy,but That would mean a great chance for better life and his siblings, and a chance for some bad days for him are about to come and DCCR for our baby and whole family, greater independence in his life. could change that! independence for our child in the future and lack of fear for the rest of our lives In the end, we would experience normality, The world forget about the child's illness. The doughter would be calmer, happier. In turn, the younger, My Child has a chance for normal living Less stress around food and a better chance for healthy daughter would experience sisterhood, a good life for my son which she dreams of. Better functioning of The son

Quality of live. Survival. Chance for a better life for us and our daughter Improved quality of whole family. A much better life Our life would change for the better. We wouldn't have to hide with food. There would To live "normal" be peace. The ability of having a life with quality not only for my baby but also for our Family and her brothers! there is a chance my daughter may live a semi The drug would change a lot of things. Among normal life. She is currently obese through very other things, I would not hide food at home, low metabolism and other pws conditions. giving a life without torment to innocent souls the child would not only talk about food all the Without it she is faces life threatening time. Corka would have a chance for a normal conditions in the future life. You can still list so much ... Health and place for my family. I would mean the world to me not to worry so more healthy life Comfortable life and confidence in future much as what the future holds for my little girl. I cant even imagine what it must be feeling like Hope for a better life This medicine will mean a lot to my child. My to actually feel like you are starving for the rest child will be able to live like a normal child and of your life. Currently, I am battling to get her Change life for my child and my whole family not always go on diets. to feed, and in a few months time, I would probably battle to get her to stop feeding, although I know that in her mind she would feel Almost normal life :) Eliminating eternal hunger 66

COMMENTS FROM PARENTS & CAREGIVERS What would an approval of DCCR mean for your loved one and your family?

like she hasn't eaten in days.... I cant even can find a cure through novel techniques in the Means a lot imagine what it must be like future, but it will be in 10 years, and 10 years is a lot of time for so many people, you cannot Everything! It would significantly improve the Life quality of decide this for the families and their kids, please, please take into account the impact you my child with PWS and our whole family, and Hope for the future we could have hope for a happy future are having in so many lifes The medicine is safe and it works, if it can make a dent on the worst-case scenario (amazing), I can tell you, it So that my daughter does not have to live with The possibility for my son to have a full and works. You cannot take this decision to us while hyperphagia. independent life using warp-speed vaccines, please leave us the choice to use it It will offer a brighter future for my son and A better life offer hope to everyone who loves him An independent future... Hope, independence. A chance of a normal life where our daughter Hope and us can look at food as a positive thing and The possibility for her to live life fully not a trigger for obesity, breakdowns and more. Live changing, hope Because all the people with this PWS , will be It would mean that my child would be able to happy, and independent person. It Would be a game changer for my sons life! live more normal life than without dccr. It His future to be able to live independently, to would mean that he will be able to have It would be a dream. My loved one could be not suffer, to live his life like any other person. friends, to have his own job even maybe his live better, and his family same. own home and family. He will be able to Live Life Full. It would help alleviate stressors A better life involved in managing PWS on a 24 hours basis. It is the only option we have.

We need medication now for our children. We you will save a child from torment, who can Calidad de vida can’t wait no longer. That will give our children think of nothing but hunger a hell. Everyone needs a healthy life. This will help our children. This treatment will change the future of my son Extra support in her life! and all other children and adults affected by PWS. It will contribute to mitigate the most A life, that is the most important! Being under terrible effect of the disease, which is the craving and the threat of death is not what I New hope hyperphagia. Overcoming this challenge will wish for my daughter definitively change the course of his life, and The chance for my child to live independently, our family's. If there is a possibility of helping all It would mean a lot. So he could live a more for us not to worry about what would happen if the people affected by PWS, all the family and normal life when he grow up we weren't around any longer and for our other caregivers, please help us, think of what is right, child to not have the pressure to have carer and do not condemn them due to other role as opposed to a standard sibling one. interests. There is more than enough evidence To live a more independent life as a family and that demonstrates the treatment is effective. to give our son a happy life without the severe hunger issue. Everything. It would be wonderful if I could take We are real people, living real lives. away the burden of hunger from my sons future It necessary for the actually families Everything Everything excellent, hopeful, great for counteracting the It will mean a great different for all off us. PW's symptoms A change in life and hope It will mean a new life for my kid and my family Peace of mind, tons of tranquility, my kid can A life changing outcome and a better quality of do many things, puts lot of effort and can keep DCCR could give my son the opportunity to a life with less drain on NHS recourses the pace with their peers, having a little help more comfortable life in the everyday struggle from a pill (not another injection!!) will have a he is fighting and this would increase his quality great impact on his life as he will be able to live of life tremendously. This medicine would not If it worked for my little boy it could make a a normal independent life going forward (with only create a better life for my son but also for dramatic impact on his life and our family’s life. lot of effort and goodwill compared to others my older daughter if we don’t have to put all It brings hope to me as a parent if there is an but hey I take that chance!). DCCR will also our energy as parents to keep our son from option because it’s worth the try if it means it have a great impact on the family, just imagine eating. The medicine could give us all a more could really help PWS. Christmas, friends or any other social event stable way of living. We wish nothing more focused on food (almost ALL social events of then the best for our children and this drug Peace and happiness adult life are focused on or surrounded by cane really make a change for the better. food) Currently there is no option, WE HAVE Would help him live a happy and healthy life ZERO OPTIONS and the rest of the projects in It would mean the ability for our daughter to along with all the other pws families the pipeline are maybe 10 years from being live a fuller life. And it would mean everything commercially available worldwide. Perhaps we for us as parents. 67

COMMENTS FROM PARENTS & CAREGIVERS What would an approval of DCCR mean for your loved one and your family?

A means to trying to enable our children to live A normal life. My daughter lives in residential It would give Sami a better chance at an happy, fulfilling lives and reach their full school as I can't look after her. independent and fulfilling life and minimize the potentials. challenges he will face in later years Robyn can have the opportunity to lead a full Hope that she can live a happy, healthy and and independent life free from the agony of It would potentially transform her future and independent life. hyperphagia. give her the chance for longer, healthier and more independent life. It would help with with the biggest symptom of It could be life changing. It would represent the syndrome and prolong my daughters life hope that our daughters future won't be Mean a lot blighted by constant hunger. Potentially, a route to increased independence Hope for the future of my son and others like for our loved one which would improve their Freedom him who are staring at a future full of life quality of life, reduce the impact on family, and threatening hunger. save government agencies money in the long It will significantly improve my daughter's life run and potentially save her life Everything

It would be life changing for my little girl and A chance of a brighter future Hope give her the best chance at a normal life A happier and more relaxed child It'd mean absolutely everything. It'd mean my To know there is a drug out there that will help boy wouldnt be as hungry 24/7 - can they just my daughter and others with PWS and stop imagine what that must be like??? their suffering would change everything Better life for my son. It could prevent premature death The world Changes to weight which would help to encourage exercise and have less of an impact on health ie breathing sleep apnea It would be a life line A hope and bright future osteoporosis. Influence destructive challenging behaviour for the better. It would mean everything to my child and our Potentially life changing whole family. We would have a chance at living Quality of life a normal family life and my child may even be With very limited options open to those with able to live an independent life one day. PWS the approval of DCCR by the FDA would Everything! It's been proven to be safe and has represent a glimmer of hope of a more the potential to improve the quality of life for DCCR is the only approved drug that independent life for our loved ones. Personally people with pws; a drug worth having! contributes affectively to symptoms of PWS. for me having a baby son with PWS hearing We need this drug to be available ASAP. that this application has been declined feels like a real kick in the teeth, as a family we worry for It would stop my baby being tortured everyday our baby boy as we know it will only be a Independence and longer life expectancy matter of a couple of years until his A real childhood and a chance at a normal adult hyperphagia begins and knowing that there is life with her own career and family It would mean everything to us and could save nothing currently available to help with this will lives and be such a huge help for people with be a growing anxiety as our son grows older. It could give my child the chance of a relatively PWS. With growth hormones being the only available normal life style, independence, health benefits treatment for PWS sufferers in the last 20 years and potentially save their life. The pain and It coupd potentially be life changing the approval of DCCR could potentially be a suffering for the whole family would be huge milestone for all of those affected and will massively reduced. A chance to improve quality of life be a source of comfort for their families.

Chance to live an independent life. At 5, my boy already showing signs of Everything hyperphagia. If food is around (at home and Longer life pretty much everywhere we go) he can’t She can live a free life without addicted by food focus on anything else. He frequently gets which means she won't need 24 hours It could have a huge influence on the quality of upset and aggressive. We avoid so many places supervision on food. life our daughter is air to have. Ultimately it and situations. This is no future. If there is a could be a matter of life or death chance of him not feeling like this then we have DCCR will help my child's behavioural hope for a future and future for an improvement, food seeking to lessen and body independent life for him. Please don’t put a It will give my son a better quality of life and fat to lessen. This will have a massive impact on stop to this hopefully extend it her quality of life for which striving for as close to normality should be a goal for any caring Life changing please go a head I beg you parent or medical organization. Help and support So much suffering and anxiety would be eased Control food behaviour and emotional for our daughter. compulsive aggressive behaviour 68

COMMENTS FROM PARENTS & CAREGIVERS What would an approval of DCCR mean for your loved one and your family?

This treatment is the only option for our loved This treatment is the only option for our This will save her life potentially and give us ones with PWS. It has been proven as safe and children with PWS. It has been proven safe and some hope for the future. Hyperphagia is will increase quality of life for many. It is the will increase quality of life my child and for so miserable and life limitin. We need this ASAP only way to help reduce the societal pressures many others. It is the only way to help reduce which face our PWS community. Please don't the societal pressures which face our PWS It will change the lives of our warriors with pws, delay this drug our children need it!!!! community. Please don't delay this drug!!! My it will improve our living and this treatment child/our children need it could potential safe the life of a loved one with Everything! Increased normality, quality of life, pws reduction of societal pressures which are A lifetime of less worry about our baby’s devastating to someone with PWS. It is shown future Hope for the future to be safe. Get it out there! Life Potentially save my daughters life from Hope for a different future and potential aggressive food seeking. Alone with all the independence for my child as she grows, the It would give us hope for a more independent other people with pws ability to be able to achieve things we never future for our wee boy without the challenges thought possible for her, happiness! and pain of hyperphagia

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COMMUNITY SIGNATURES Parents and Caregivers of Individuals with PWS in the US

Signatures Parents and Caregivers of Individuals with PWS in the US

Andrea A Maggie Andrews Jeremy Ball Ponder Bishop Rose Marie Brown Basem A Suzan Andreww Chelsea Balumas Delray Blanchard Sean Brown Renee Aalund Thomas Ankney Bruce Banks James Blastos Tina Brown Rachel Aazzerah Jen Ankney Nikita Banks Jana Blastos Amanda Browning Aaron Aazzerah Zayd Anwarzai Brook Barker Lacie Blattner Katie Brundige Lina Abayineh Aaron Appelbaum Elizabeth Barnes Julie Bleecker Dianne Bryden Bliss Abrantes Sasha Appelbaum Yvette Barnett Jessica Blom Brett Bryner Jonathan Abshire Kellie Aragon Linsey Barone John Bloom Leigh Bryner Jennifer Abshire Jason Archuleta Mike Barone Sheila Blythe Kyra Buch Priscilla Acevedo Christina Archuleta- Paul Barrett Darlene Bohannon Jenny Buchanan Stephane Adam Tancik Ashley Barthold Consuelo Bohorquez Ann Buckley Amie Adams Christina Argo Christopher Barthold Julie Bollig Diana Buckner Kelly Adams Julie Arias Stephanie bartlett Sherie Bombardier Nancy Burch Lisa Adams Chris Arias Laurie Baskin Paul Bombardier Christina Burgstaler Tina Adams Yafa Arkin C. J. Bastian Traci Bonali Meghan Burke Danielle Adamson Wendy Armelin-Barron Dana Bastien Victor Bone-Allende Amy Burke Nichole Adamson Stephanie Arnold Chris Batcheller Jesusa Bonner Valerie Burningham Mary Adkins Allison Arnold Katie Batcheller Abigail Book JAMIE BURNS Sheila Afzali shifra aronoff Amanda Bauet Rebecca Borgen Jamie Burns David Agarwal Tanya Arrellin Kathryn Baughmsn Elizabeth Borzecki Julie Burns Janice Agarwal Gary Arstein-Kerslake Chelsea Baumann Crystal Boser Michael Burns Chris Agnew Aracely Asencio Taylor Baze Jill & John Boughton Jo Burnside Tracey Agnew Roxanne Ashby Melanie Baze Kilma Bournigal Clayton Burton Neha Agrawal Tammy Ashley Anna Beasley Kilma Bournigal Doreen Busfield Hugo Aguilar Arielle Askins Bailey Beasley Marinus Bouwman Laci Bush Jessica Aguilar Joan Asma Houston Beasley Carolyn Bowden Paul Bushong Eric Ahlgren Esther Atempa Lynn Becker Laura Bower Angelo Bustamante Arsine Akarakian Jodie Atkinson Shandra Beer Marnie Boyd Valeria Bustillos Malka Akerman Alycia Atriano Jay Behnken Matthew Boyd Danielle Butler Elsa Alago Carrie Austin Nancy Behringer Stuart Boyd Steven Buttie Mary Alberg Ed Austin Emily Beitel Theodore Boyer Adelheid Buzzzerio Shea Alexander Jessica Austin Carrie Bell Joseph Bozzelli Denise Byers Kaitlin Algeri Amy Avart Lynne Bell Mary Bracht Erica Byram Lynn Algeri Christopher Avart Molly Bellacosa Anissa Bradley Sara C de Baca Dean Allen Lori Avart Sherri Bellacosa Randy Bradshaw Jennifer Cabell Alisha Allour Lori Avery Cari Benn Laurie Bragg Rosa Calderon Sabah Alsamman T Avery Greg Benn Gigi Brainard Celika Caldwell Daniel Alsnauer Doreen B Janine Bennett Chanah Brandt Tina Caligiuri Judy Alsnauer Shana Bachus Jen Bensaid Peyton Branham Amber Callaway Celina Alvarez Brittany Bacon Morgan Benson Carol Braunschweiger David Campbell Dernitza Alverio Amy Badillo Shantel Bergantinos Blake Brenneman Yurith Cancino Linda Aman Amy Badillo Kathy Bergen Natalie Brenneman Erica Canlas Celia Ambriz Trenton Badillo Sarah Bernas Beverly Briggs Ashley Canty Amillia Amick Franny Baehr Alicia Bernstein Nikki Briggs Laura Capone Aimee Anderson Jen Baffi Megan Best Emily Brimhall Marc Capone Erin Anderson Carrie Bagg Brittany Betrus Neal Brock Pam Capouch Graham Anderson Riad Baghdadi Christie Bevacqua Jennifer Brock Brooke Carillo Jessica Anderson Rita Baghdasarian Katie Bey Rena Broderick Reagin Carney Kori Anderson Kristin Joy Baguio Sarah Beyer Steve Broderick Christine Carpenter Lisa Anderson Eric Bahr Samir Bham CYNTHIA BROOKS Deborah Carpenter Mervyn Anderson Traci Bair Urvi Bham Melissa Brooks Axel Carranza Susan Anderson Ashley Baker JOSEPH Biagianti Melissa Brooks Maria Carrillo Daniel Anderson Rusty Baker Sara Biggs Shawn Brooks Roberto Carrillo Grant Andrews Becca Baldwin Amanda Bill Allison Brown VIVIAN CARRILLO Hannah Andrews Gabrielle Baldwin Jason Billingsley Ashley Brown becky carroll Jade Andrews Erin Bale Deborah Bingham Bridget Brown Dan Carter Jennifer Andrews Cinda Ball Charlotte Binkley Dawn Brown Daniel Carter Jennifer Andrews Curt Ball John Bird Lee Ann Brown Erin Carter 70

COMMUNITY SIGNATURES Parents and Caregivers of Individuals with PWS in the US

Maelinda Case Johanna Costello Charlene Devine Candace Edwards Julie Foge Julie Casey Jessica Cote Monique Dewarrat Renee Edwards Carol Foley Sharon CASTER Carolyn Counihan Imelda Dewi Erin Edwards Peggy Forbes Sydney Castile Jason Counihan Terrie Diaz Nicole Egbert SARA FORMSLAG Megan Catalfamo Tonya Coupaud Emily Dicicco Kirsten Ehresmann Donna Forster Arianne Catano Jennifer Court Paula Dickey Phillip Ehresmann Janice Forthman Jimmie Catano Joan Couture Sandra Dickey Rachel Elder Nickie Fotopoulos Jason Caul Joan Couture Duane DiCola Bianca Eleazar Andrew fox Megan Caul Carleen Covington Lori DiCola Jesse Elizalde Chris Fox Suzanne Ceppos Masani Covington Charles DiCosimo Cassie Elliott Renaee Fox Katy Chambers Jamke Cox Geraldine DiCosimo Liam Elliott Shea Francis Sydney Chambers Michelle Cox Joseph Dighton Olivia Elliott Megan Francy Betty Chamness Ryan Cox Samantha Dighton Larry Emark Travis Francy Debasis Chanda Sara Cox Elena Dillard Jordana Emerson Tabitha Frantl Judy Chapmam Angella Coyle Amber Dillon Angela Enderby Brian Franz Vida Chapman Stephanie Craig Lucille DiMarco Svetlana Epshteyn Kim Frederick Jeannette Chapnick Jane Cramer Felicia DiMuccio Steven Epstein Chelsea Fredrick Stacy Chapnick Ben Craner John DiMuccio Austin Escobar Charles French Ramona Chappell Marsha Cresmen Christina Ding-Diep Jennifer Escudero Emily French Carol Charles Nichole Crespa Amanda DiPascale Sosen Eshetu Halley French Adam Chase Paul Crespo Sam Dirani Morganna Espinoza John French Sharon Chen Sandra Crews Josie Dixon Cassandra Estrada Tom French Jennifer Cheney Ashley Crist Chris Doerr David Estrada Julie Frey Rachel Cherry Cory Crist Michelle Doherty Kelly Estrada Alicia Frick John Cheshier Colin Croshaw Emily Dohlman Melissa Estrada David Frick Rochelle Chilcote Lori Croshaw Aimee Dollar 海莹 朱 Jill Frick Veronica Child Ashleigh Cross Lindsay Donahoe Crystal Evans Alli Friss Joseph Childress Kayla Cross Jenny Donaldson Wendy Everhart Samantha Fritcher Tatyana Childress Shannon Crothers Michelle Donaldson Taylor Everson Renee Frontiera Amanda Childs Dan Crowell Helen Donnelly Erin F Corey Fuller Samantha Childs Nicholle Crowther Pamela Donor Debbie Fabio Elisabeth Fuller Samantha CHIPETZ Stephanie Cude Kim Dooher Steven Faivre Leslie Fuller Cera Choi Lisa Culp Barb Dorn Carina Falk McKenzie Fuller Magnus Chow Laura Currey Pia Dorson John Falk Kristen Furtado Barbara Christensen Terri Cwgle Kelsey Dossa XINYANG FAN Greta G. Taryn Christensen Sierra Cypert Katie Dotie Paulette Farmer Marie Gabert Kami Christianson Aimee D'Onofrio Teri Douglas Barb Farmer Anarosa Galaviz Betsy Churas Helene Dahan RaeAnne Dove LaShanna Farnum Diana Galey Kara Chymbor Henry Daly Amanda Drewry Saheed Farnum MaryBeth Galey Valerie Cirino Nithya Das Jaclyn Drinkwater Mary Faughnan Letisia Gallegos Glory Clark Rachel David Kevin Drinkwater Janet Favorite Mariella Galvan Rachel Cleary Ivan Davila Olive DuBose Becky Fehrman Sandra Gannon Matthew Clough Terry Davis Daniela Dudas heather feig Adileny Garcia Erin Cogan Jeanne Davito Charles Dudley Sarah Fellers Duff Gardner Franki Cohen Kayla Day Kelly Dueitt Emily Felt Joan and James SYBIL COHEN Emanuely De Oliveira Destiny Dueitt Aj Fernandez Gardner Fran Collins Barbara Dedona Jessica Duff Alain Fernandez Kerry Gardner Sujeiri Colon Lara DeForge Emily Dufner Jillian Fernandez YuneJa Gardner Debbie Colozzi William DeForge Lilia Duhart Rebecca Fernandez Christy Gardner Elizabeth Combs Lisa Dehner Dana Dunfee Eulalia Ferrer Liz Garoutte Patrick Condon Robert Deines David Dunfee Lisa Ferrer Taylor Garoutte Jennifer Connelly Jeannine Del Monte Cherise Dunham Stephen Fetsko Suzette Garrett Katherine Connolly Dominique Deleage Anna Dunigan Beth Fields Lynn Garrick Will Connolly Beverly DeLemos Patrick Dunigan Joanne Fields Vicki Gartin Tobey Connor Elena Delemos Amanda Dunn JACQUELINE FINCHER Michelle Garvin Debra Constanza Laura Della Porta William Dunn Cameron findlay Arpine Gasparyan David Conway Andrew Demand Sarah Dunton Lelia Finkel Rosa Gastelum She Coo Melissa Demand Rebecca Duquesnoy June Finnerty Silvia Gastelum Calvin Cooper Jillian Demaray Tina Duran-Hall Elaine Fisher Denise Gatz Rachel Cooper Marilynn Demaray Destany Durazo Maureen Fiske Ashley Gearhart Franca Copeland Malea DeNatale-Bonk Tyler Duscha Terry Fistner Mike Gearhart Larry Copeland Patricia Dennette Olsen Cheyanna Dyson Rhonda Flagler Patrick Gearhart Richard Cornnell Susie DePianto Rochelle Dyson Kenny Fleming Ben Gebo Valeria Corral William Derby John Ebling Kerri Fleming Sydney Gebo Nicole Cory Katie Deshotel Julie Echevarria Erin Flintoff Brittany Geglein ginger coss Elizabeth DeSimone Nina Eduardo Madaline Fluhr Zachary Geglein Christine Costa Brieann Desjardin Allen Edwards Kathleen Flynn Celine George

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COMMUNITY SIGNATURES Parents and Caregivers of Individuals with PWS in the US

Sally George Kelly Guillou Elizabeth Hernandez ROBIN ISBELL Linda Kaugher Andrew Geraci Ann Gurney Joanne Hernandez David Ishimaru Diane Kavrells Christine Geraci Sabrina Hadro Luis Hernandez Matthew Ivan Jenay Kayode Bryan Gerdes Judi Hager Luis Hernandez Stephanie Ivan Avgustina Kazikhanova Susan Gerdes Amber Haggard Adriana Hernandez T J Shaun Keefe Marivett Gerena Gabriel and Sarah Hahn Mercedes Hernandez Sonja Jack Erin Keen Nanci Gerhard Elaine Hamilton John Hernandez-Storr Amanda Jackson Lauren Keenan Susan Gershenhorn Tamie Hamilton Laurie Herne Imani Jackson Megan Kefauver Roseann Giafaglione Megan Hammer Barb Herrig Sherry Jackson Elizabeth Keffer Lucas Gibson Kristen Hammill charlotte herrmann Richard Jacobson Barbara Kehoe Tigfany Gibson Myko Hammond nancy herzog Amber Jacomine Charlotte Kellar Cherisse Gilchrist Jada Hampel Pamela Hesch Betsy James Melanie Keller Brian Gill Jennifer Hancock Carrie Hess George Jandl Robin Kellerman Karen Gill Liz Handy Cathryn Hester Harold Jandola Alina Kelley Sandra Ginn Stephanie Hane Clark Hester Michelle Jandola Ian Kelly Beverly Ginyard Butt Hannon Darrell Hester Adrienn Janosi Jack Kelly Amy Girling Heather Hanson Zach Hester Allyson Jeans Michael Kelly Kevin Girling Pamela Hanson John Heybach Brittany Jencik Sean Kelly Trevor Girling Norman Harding S it e Heybach Jennifer Jenkins Susan Kelly Jackie Glascock Gina Hargis Jen Hid Megan Jenkins Susan Kelly Sara Glashagel Nahla Harik-Williams Francisco Hidalgo Brandon Jenkins Donna Kelso Andrea Glass Nancy Harkcom Diane Higginbotham Carol Jenkins-Gaye Amanda Kemp Charles Glazier Courtney Harless Chris Higgins Kathryn Jensen Laura Kemp Melanie Glazier Robert Harless Drew Higgins Mark Jensen Chloe Kemp Meghan Goeglein Will Harmon Trish Higgins Mark Jensen Jessica Kempa Jessica Gomez Teresa Harnden WENDY HIGGINS Ronda Jensen April Kercheville Wanda Gonzalez Annie Harner Brian Hill Jennifer Jergens Brent Kercheville Madeline Gonzalez Adelaide Harp Jennifer Hill Maddie Jewell Barbara Kerrigan Kellie Goode bobbi harrigan Amy Hillanbrand MARK JIMENEZ Bill Kerrigan Donald Goranson Denise Harrington Margaret Hinojosa Joyse John Amanda Kersey David Gordon Amy Harris Kay Hiott Cindy Johns Cat Kershaw Jonathan Gordon Felecia Harris Denise Hipes Cindy Johns Michael Kershaw Sarah Gordon Tate Harris John Hipes Marie Johns Lindi Kessinger Somys Gore Jess Harris Michael Hirabayashi Matthew Johnson Jennifer Ketcham Diana Gough Robert Harrison Kathryn Hirabayashi Rachel Johnson Atif Khan Abby Gould Genevieve Hart Mary Hirzel Samantha Johnson Martha Khanna Michael Gould Jennifer Hart Kathy Hitchinson Susan Johnson Heather Kimmel Susan Grace Linda Hartigan La Donna Hodges Heather Johnson Ashley King Russ Graff Kerry Hartzell Jill Hoffman Susan Johnson Carolyn King Caitlin Graham Lynn Harvey Jeff Hoggins Miranda Johnzon Dayna King Chasity Grandberry Ian Hassan Laura Hollatz Alicia Jones Doug King Penni Grant Tarek Hassanein Elizabeth Holley Ashley Jones Earlie King Kathy Grant Amy Hathcox David Holmes Bonnie Jones Tammi King Estelle Graves Samantha Hauk Ginny Holmes Brittany Jones Teresa King Stephanie Gray Tanya Hauptman Frederick Holstein Deborah Jones Renee King Torres William Gray Jeff Hauth Tammy Hopkins Derek Jones JENNIFER Kinn Lisa Graziano Carol Hearn Vickie Hopson Marina Jones Cathy Kirk TJ Graziano Timothy Hearn Nathan Hort Jennifer Jones-Miller Mary Kisaka Agnes Evette Green Claire Heasman Yang Hou Kelly Joniec Kim Kleinstuber Lisa Greer Linda Hebert Elizabeth Howard Anna Jovanovic Danielle Knoper Angeka Gregg Matthew Heckler Jessica Howard Mary Julian Ken Knox Bets Gregsen Toni Heckler Mary Howard Katie K Sharon Koay Elizabeth Greskovics Esther Hedrick Robin Howard Justin Kabe Melissa Koe Robin Grey Susan Hedstrom Neil Hubberth Angie Kalasek Rebecca Koren Kimberly Griffin Daniel Hedstrom agnes hughes Brian Kalasek Jacquelyn Kotar Monique Griffin Janalee Heinemann Thomas Hughes Patrick Kalasek Chris Kowalczyk Stefan Griffin Bruce Henderson Reva Hulzebos Samantha Kalasek Lori Koyama Amanda Griffith Atkins Jill Henderson Caryn Hunt Grace Kalt Sheri Kraemer Chris Grimmer Kathryn Henderson Jane Hunt Tanya Kaminski Bonnie Kraft Ellie Grimmer Cathy Hennig Shannon Hunt Steve Kaminski Angela Krambeer Joan Groce Amiee Hennigan Sheri Hunter poojitha kammari Cheryl Kramell Stephen Groot Susan Henoch Nancy Hupperich James Kane Stacy Kramer Sarah Grover Stacy Henrichs Aida Huseinbasic Jane Karras Jon Krasnoff Janice Grygla Tim Henrichs Catherine Hussey Sarah Kasaby Lisa Krasnoff Michelle Guidry Jessica Henson Colby Huth Sarah Kasaby Beth Krause Alexis Guillory Ryan Henson Ramona Huth pamela katsiris Jill Kreacic Kellen Guillory Loraine Hern√°ndez Sara Irvine David Kaugher Megan Kroff

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COMMUNITY SIGNATURES Parents and Caregivers of Individuals with PWS in the US

Juliette Krovi Theresa Leutik Charlotte Maher Aris McMahon John Mole Waylon Krumvieda Sarah Levendoski John Maher Elizabeth McMahon Lorianne Moline Steph Krumvieda David Levin Nikol Maher Gibson McMahon Lorin Moncrief Rebecca Krylow Sasha Levine Peter Maher Richard McManus Gabriel Montano Jennifer Kryzak Joshua Levy Dorothy Maillet Joanne McMaster Nancy Montecinos Karen Kubes Melinda Lewis Kaylea Main Elisabeth McMillan Ryan Montililyahno Jean Kuklewski Lissette Leyba Jackie Mallow Carolyn McNamara Jp Montillier Lori Kuna Anna Leyva susanne malmstrom Christa McNamara Sara Montillier Carrie LaBarge Yves Leyva Julie Malwitz Patricia McRae Kirk Moore Patricia LaBella Janet Li Megan Manfredonia Karry McWhorter Merijo Moore Maria Ladelfa Jennifer Li Concetta Maniaci Rebecca McWilliams Maureen Morales Samantha Lakey Peiwen Liao Mary Mankowski Ray Mears Eva Moresco Lisa Lamb Rhonda Lier Anne Manning Lori Medeiros James Moresco Sara Lamica Ashley Liford Theodosia Mantas Marco Mederos-Deppe Kimberlee Morgan Sarah Lander Pawel Lijewski Dominic Marci Melbs Medina Bridget Morris Kelly Lane Jacob Lile Clint Marcy Randall Meek Kim Morris Stacy Lange kelli lile JennaLee Marcy Randeep Mehroke Yosef Morris Candice Lankhaar Yarong Lin Lindy Marich Minesh Mehta Cathleen Morrison Dorothea Lantz Sandra Linden-Juncosa Marissa Marinan Nisha Mehta Diane Morse Jaelle Laplante Casey Lindine Gary Markham Juan Mendez Francis Morton Michael Laplante Carol Lininger Trisha Martin Colleen Mendoza Terri Morton Sarah Larkin Abigail Littrell Andres Martinez Raquel Menjivar Kristine Mosca Elizabeth Larsen Amber Livingston Brial Martinez Danielle Menne Cindy Moscoso ERIC LARSEN Jennifer Lloyd Hernan Martinez Erin Mercadante Fran Moss Greg Larsen Thomas Lloyd Patricia Martinez Gary Mercadante Katie Moureau Julia Larsen Tricia Lobaugh Chris Martiniak Cara Mercadante Paul Moureau Tina Larsen David Locklair Larisa Martiniak Maria Merk Sierra Muck Katie Larson Kallie Locklair Mikayla Martins Colleen Merkel Judy Mulder Lindsey Larson Jack Lockwood Megan Mason Melinda Merren Marissa Muller-Reaves Michael Larson Mike Loconte Melissa Matejek Lindsay Mesa Danny Murphy Stephanie Lasher Janina Locraft Elisabeth Mates Sandy Metcalfe Lori Murphy Danielle Lassen Judy Loewen Lisa Matesevac Kim Mewhirter Pamela Murphy Tucker Angela Latchney AnnaMaria Lognion Holly Mathie H Meyer Amanda Murray John D Latchney Carolyn Loker Wendy Mathre Jim Miesle Rosie Muth Nicolette Lathan Tracey Lombardi Lindsay Mattingly Laura Miesle Becky Myers Hartman Laupati Nicole Lomeli Dalia Matus David Mihalik Rebekah Nafziger Melanie Laur William Longworth Shelly Maxwell Heidi Mihalik Tim Nafziger Heather Lawless Bonnie Longworth Al May Charles Millard Ronda Nagel Erica Lawrence Amethyst Lopez Julie Mayberry Abby Miller Jonathan Nash james lazarus Jessica Lopez Nicole Mayer Casey Miller Drew Navolio Lauren Leak Chelsee Loucks Jennifer Maynard Cheryl Miller Margaret Navolio Jennifer Leamer Rebecca Loupe Jonathan Maynard Denise Miller Janae Nebel Sharon LeBlanc Renee Lovern Kourtney Mays Gary Miller Ashley Neely Ariana Lecaj Renee Lovern Michael McAndrew Lindy Miller Rahel Negeri Erika lecodet Molly Lowery Jeremy Mccabe Lisa Miller Chelsea Negrón Allyson Lee Neyra Lozano Marsha McCabe Reann Miller Lyle Negron Amanda Lee Yingying Lu James Mccart Susan Miller Billie Nelson Janet Lee Angela Lucero Matt McCleery Tina Miller Sara Nelson Jarrod Lee Kathryn Lucero Rachel McClellan Tyler Miller Francis Newell Jennifer Lee Alison Luis ReBecca McClelland Christopher Millner Maggi Newell Margaret Lee Carlos Luis Katie Mccollun Jolleen Millner Johnna Newton Matt Lee Heather Luna Brittanie McCown Jeremy Mills Yinna Ng Matthew Lee Steve Lundh Daylon Mccoy Sheri Mills Madelon Nichols Natalya Lee ABIONA LUNSFORD Carol McDaniel Danijel Milovanovic Alyssa Nielsen Tymna Lee Edan Luschei Laura McDonald Jay Minnifield Hector Nieves Jamie LeFebvre Ben Lye Melanie McDonald Lisa Minor Janeth Nieves Darla Legan BARNEY LYKINS Nicole McElfresh Malanka Misilo Spencer Noble Kati Leigh Marla Lynch Jade McGaff Gina Mitchell Shannon Noe Craig Leis Cherie Lyons John McGhee Jessica Mitchell Alcinere Nogueira Lori Leis Kelly Ma Kathryn McGhee Joanna Mitchell Renee Nohelty June Leitheim Keely MacIntyre thomas mcgrady Kyle Mitchell Paricia Noland Sheila Lemcke Nathaniel Mack Adam McInerney Tiffany Mitchell Suzanne Norfleet Amy Lemmons Andrew Macleod Courtney McInerney TERRY MLECZEWSKI Lanette Norgan Jennifer Lennon Cathryn Maczko Deborah McKissick Debra Mleczewski Kathleen Novotny Jamie Lentz Christine Maddock Beth McLean Brandy Modrow Holly Noy Phil Lentz Lorraine Magarian Martin McLean Cory Moffat Lisa O'Leary Katherine Leon Ray Magliano Ann McLellan Sameem Mohammed Charles O’Neil

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COMMUNITY SIGNATURES Parents and Caregivers of Individuals with PWS in the US

Cristina Ocampo Charlotte Peterson Christina Ramsey Deborah Romoser Joanne Schulze Michelle Ochoa Mark Peterson Christina Ramsey Stephanie Root mary schumacher Olivia Oetjens Nicole Peterson Brandy Randall Eisa Rosas Lauren Schwartz Abigail Ogilbee Benjamin Petrie Justin Rattner Eisa Rosas Robin Sedgwick Abby Ogurcak Rachael Petterson Sarah Rau Brad Rosen Kelli Seely Myranda OHara Sheena Pettus Pamela Rauch Jane Rosen Rick Segall Susan Ojeda Amy Pfeiffer Gordon Ray Jan Rosenfield Sandra Seiden JENNYLEE OLAVARRIA Adam Phan Mary Raymond Jamie Rosenthal-Boyer Lon Seidlitz cynthia olivacz Brooke Phillips Miriam Rea Jamie Rosenthal-Boyer Josh Self Joe Olivacz Brooke Phillips Allye Reasor Jessica Ross MICHAEL SELINGER Theresa Olivo Jon Phillips Amber Rector Thomas Ross Valerie Selinger Amber Olson Tara Picarde Lori Reddinger Karole Roth Dodi Selken Patricia Omoqui Nick Picarde Crystal Redner Kim Rovitelli Igor Semenenko Huma Onorato Stacey Pierce HELEN Reece Emily Rowland maggie senese Jaref Onorato Willie Piercy Jamie Reed Belinda Rowles Nilka Sepúlveda Joyce Opp Jennifer Pierotti Jordan Reed Jean Rowse Laurie Serpas Samantha Orand Deborah Pierson Kathy Reed Tonya Rozell Denise Servais Kristi Orleski Karen Pierson Kelsey Reed Olivia Ruble Glenda Settle Julissa Ortiz Robin Pifer Jamk Rees Madelin Ruiz Linda Sevigny Thania Ortiz PATTY PILTZ Sarah Reichert Eileen Rullo Darshana Shah Wendy Osborne Cherippe Pimentel Kerry Reis Lauren Rupnow Amy Shahinllari Heather Osterman Walter Pinochet Margaret Renner Cynthia Russie Aesha Shapiro Steven Osterman Maria Pizano Cynthia Reynoso Ruth Rutherford Alice Shapley Jennifer Ostermiller Shera Plum Stephanie Rhoads Julia Rutledge Irina Shaulov Melissa Ostrom Bobbi Pogrant Jordan Rhodes Linda Ryan Madeline Shaw Khaled Ouedraogo dalia polanco JEFFERY RICARDO Sara Saarela Linda Shawl José E. Pérez Livia Polanco Michele Ricci Bell Terry Saarela Daniel Shea Susan Packard Ben Poliachij Breanna Rice suzanne sabin Kimberly Shearn Jennifer Paige Amanda Poliachik Daniel Richard Alayne Safir Robin Sheehan Roselynn Palaita Julie Polzer Maegan Richard Allen Safir Jessica Sheldon Brandy Pallares Dana Portnoy Julia Richards Malika Saidy Rory Sheldon Victor Pallares Marissa Porto Scott Richards Paola SalazR Allison Shelton Danielle Panico Kalynn Pospisil Hannah Richardson Kathy Sall Brandon Shelton Tiffany Parente Evan Postal Jaymeson Richardson Annmarie Salvatore Danny Shelton Brenda Parker Kathleen Potter Rebekah Richgels Bill Sammons Allison Shenk lawanda Parker Carol Potts Betty Richmond Maria Lisa Sammons Robert Shenk Melody Parks Sara Powell Kristi Rickenbach Lidia Sanchez Jasun Sherman Andrea Paronish Betty Powers Carol Ricotta katrina sanders Kim Sherman Prashanti Paruchuri Kaylee Prestien Eileen Riley Maria Sanders Maureen Sherman Venkat Paruchuru Kristin Price Paige Rivard Ellen Santarelli Maureen Sherman Jessica Patay Teresa Price Jashira Rivas Ryan Satrom Stacy Sherry Thuy Paulo Marguerite Priest Edwayne Rivera Terry Savage Kimball Shields Laura Pawulak Marguerite Priest Jennifer Rivera Iryna Saviankova Debbie Shoemaker Ken Payne Kara Prince Kiara Rivera Iryna Saviankova Dara Shumard Milan Payne Mary Pringle Leticia Rivera Iryna Saviankova Angelo Sibille Charity Peaker Jennifer Ptak Maria Rivera Hedy Sberna Pamela Siefert Phyllis Pearson Kellie Puckett Rosanne Roark Scott Sberna Emily Siegfriedt Dorothy Peck Sean Pudney Ann Robbins Ash Scalzo Michele Siegfriedt Sarah Peden Andrew Puel Kelly Robbins Noelle Scalzo Angel Silva Phil Peden Romelia Puel Nina Roberto Nicholas Scalzo Angie Silva Ahnie Peeples Kristy Pulkrabek Maria Robles Lisa Schactman Gustavo Silva Cheryl Pelchat Linda Pullen Charlotte Roche JOEL SCHAEFER Katrina Silva Jillian Pelliccio Adrienne Puryear Kim Rodman Lynne Schaefer Cándido Silverio Erin Penater Johana Quinn Yanira Rodríguez Andrew Schafer Kelly Silvestre de Joseph Pence Kevin Quinn Ana Carolina Rodriguez Lynn Schafer Almeida Katie Penn Sabra Quinn Carlos Rodriguez Diane Schantin Dana Simon Christy Pennington Kristalyn Quintana Diego Rodriguez Nicolette Scheffler Teresa Simon Tammie Penta Robin Rabens Alesha Rodriguez Ellen Schenker Mari Simpson Haleigh Penton Kimberly Rahm Ruby Rodriguez Leo Schertz Christy Sincavage Isabel Pereira Mary Rainwater Yanira Rodriguez Laura Schlabach Maria Sinclair Danielle Peretz Robert Rajeczky Nanette Roenigk Sharon Schlask Martin Sinclair Yamille Perez Michelle Raleigh Virginia Rogers Jen Schmoyer Marilou Singson Lindsay Peroutka Alexa Ramirez Kayli Roller Jamie Schoenberger Jaylea Siroky Kathleen Perrier Monica Ramirez Rochelle Roman SUSAN Schofield Melissa Sirovina Meghan Personke Christine Ramirez Heidi Romero Esther Schonfeld Staci Sklar Nicole Peters Maria Ramos Dawn Romine Paul Schreiber April Smith Brittnee Peterson Rhozcio Ramos Thomas Romine Rose Schreier April Smith

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COMMUNITY SIGNATURES Parents and Caregivers of Individuals with PWS in the US

Cathy Smith Theresa Strong Lilit Tonoyan Juliana VERA Erick Widjojo Jane Smith Jim Strong Colleen Topping Juliana Vera PATRICIA WIGET Janet Smith Amanda St Romain Michelle Torbert Mariela Verdin Charlean Wiggins Megan Smith Amy Stuckey Brooke Torgerson Jared Victory Cheyenne Wilcox Nicole Smith Lacy Stuehler Jeff Torgerson Dane Villanueva Ray Wilkes Shelbie Smith Sherry Sturgis Linda Torgerson Jessica Vincent Deborah Wilkinson Tanya Smith Savanna Suazo Ivonne Torres Alice Viroslav Sarah Wilkosz Angela Smith Dina Sullivan Sergio Torres Karen Vogt Delorrianne Williams Emily Smith Whitney Sum Elaine Towle Gerry Vossler Shannon Williams Whitney Snelson Zachry Sum Tammy Townsend Stephen Vossler Janis Williams Neal Snider Lily Sun Amy Traczek Curly Wachter Jean Willoughby Barb Snyder Brenda Sundquist Paul Traczek Carrie Wade Hess Clint Wills Brent Snyder Betty Sundqvist Tommy Tran Karen Wagers Kelly Wilson Kelsi Snyder Nicole Sus Kristen Tregay Abdul Wahab Mary Wilson Matt Snyder Jennifer Swan Carol Trimble christine waldrop Deahl Wilson Gena Sommer Karin Sweeney Cindy Trompeter Franklin Walker Melissa Winitzer Nancy Sommer Kevin Sweeney Jennifer Troop Teresa Walker Peter Winitzer Amy Soncarty Kathleen Swindell Michael Troop Shamekia Walker Jasmine Winston Kathy Sood Shehla Syed Kali Troxell Tasha Walker Ashley Winter Paula Soteropoulos Amber Syrovatka Allison Trujillo Michelle Wallace Jesse Winter Melissa Soto Cindy Szapacs Morgan Tsistinas Janet Wallis Lisa Wipmes Sherry Speaks Cynthia Szapacs Colin Tucker Amy Waln Jen Wiren Gwyn Spearman Nick T Myisha Tucker gerard walsh Zachary Wiseman Katelin Spears Jennifer Tabet Shea Rachel Tugon Mary Walsh William Wissman Mary Speiser Rosemary Tack Kim Tula Ava Wang Paul Wissmann daniel spellman Monica Tackitt Shanna Tumis Tony Wang Jeffrey Wolfer Angela Spier Grace Tai Amy Tummonds Wei Wang Roxanne Wolfet lisa spires Georgia Tait Amy Tummonds Eammie Ward Anastasia Wong Angela Spradlin Krista Tanaka Seini Tupola Marci Warden Carolyn Wong Michael Spring Larissa Tarver Cassie Turner Danielle Warmuth Julie Wong Sally St. John Suzanne Tate Lisa Underwood Jessica Warpenburg YEANNA WOO Laurel St. Romain Christina Tatum Lauren Unger Amy Wasser Cheri Wood Cheri Stakely Jack Tatum Karen Untereker Amy Watson Earle Wood J Tracy Stakely Anne Taylor Tara Urbanovich Charles Watson Brian Woods Pamela Stanley Deneen Taylor Laura Urquhart Tamsen Watson Hank Woods Carly Stanonis Safia Tehmeen Terese Vail Margaret Waugh Jamie Woods Patricia Stanton Amy Tenbrunsel Sharon Valentin Carolyn Weakly rebecca woods Amy Starkweather Matt Tenbrunsel Jennifer Valentine Peggy Webb Zach Woods Matthew Starr Joseph Terranova Ray Valles Donna Webber Kate Worrall Ashley Stauthammer Lori terry Deron Van Boxtel Amanda Webster Samantha Worrall Vickie Stauthammer Teagan Theriot Julie Van Boxtel Melanie Weigle Kathleen Wyka Shannon Stearns Heather Thieken Audrey Van Dyke Beth Weinrich Amanda Yanik April Steffan Darren Thomas Madeleine Van Engel gretchen weismann Daniel Yanik Teresa Stegall Leisa Thomas Kristen Van Lieshout Allison Weiss John Yanik Sophie Stein Linda Thomas Rebecca Van Allison Weiss Robin Yates Peter Steinhart Mike Thomas Valkenburgh David Wellings Cynthia Yeabower Amanda Stevens Christina Thomas Laurie VanderBroek Megan Wellings Jeane Yoo Monica Stevenson Tiffany Thompson Rebecca VanderBroek Cynthia Wells Jeannette Young Edward Steves Mary Ann Thorner Jean Vanderpool June Wentz Maryanne Young Gladys Steves Dena Thornhill Theresa Vangee Donna Werner Rachael Young Kira Stewart Lisa Thornton Allie VanGee Jessica Werst John Youngkin Laura Stewart Sidney Thornton Jason Vanston Katina West Morgan Youst Niccael Stewart Randall Thrashe Sandra Varela Denise Westenfield Debra Yurick Linda Stiff Misty Thrasher Lisa Varndell Jann Whalen Samiha Zaheer Michael Stitcher Danielle Thweatg Phyllis Vasaturo Lynsie Wheat Renee Zeitzer Kimberly Storr Jacualyn Tice Gina Vasiloff Alexander White Richard Zhang Megan Stose Chrissy Timko Heather (Mandy) Francis White chuanqi zhao Stewart Stout Chi Hung Ting Vasquez Kristin White Hong Zhou Kelly Stovall Kwai Kiu Ting Edwin Vasquez Patsy White Dmitriy Zhukov Lisa Stover Aida Ting-Chow Kija Vaughn Ping White Veronika Ziegler Victoria Stover Julie Tippett Arleen Vazquez Winnie White Christina Zim James Straub Pamela Tobler Joetchefica Vazquez Ken White Lauren Straub Joy Todd Gabriela Vega Katie Whittaker Sandra Strazzulla Susan Tomlinson- Shaye Vega Bebe Whyte Katharine Stringer Dykens Laurie Velasco Seana Wichert

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COMMUNITY SIGNATURES Parents and Caregivers of Individuals with PWS Outside the US

Parents and Caregivers of People with PWS Outside the US

Flavia Mantovani Renata Araújo Carly Beck Debora Brasil valeria cristina Castro María Dolores Jéssica Araujo Leticia Becker Alma Brassfield Fanny Castro Álvarez Camacho Danilo Arboleda Marta Bednarska Samo Bricelj Helia Castro Samuel campaz Simina Ardeleanu Bruna Begalli Mislene Brito Pedro Castro Ángela chaverra Karen Armstrong Maria Benedekova Karla Bromilow CONSTAN CASTRO Celina Świdniak Catherine Arnold Araci Benedicto Miranda Brouwer Guiomara Castro Khadija abboud Hayley Arnott Luke Bennett Ashleigh Bucknall Carla Cavalari zurab Abjandadze johanne Arseneault Mercedes Bennett Suhaila Bughooma Johan david Ceballos Gustavo Abrantes Mariana Ascenso Fabian Bennett Victoria Bugueño capera Catarina Abreu Brian Ashley David Berdock Felipe Bulle Andrea Cesar Brittney Ackerman Cathy Ashley Ariel Berdock Craig Burgess Irena Cetin SANDRA ACOSTA Matthew Ashley Luciana Bergamim Diane Burgess Carla Chacon Lydia Acosta Susan Ashton-Smith Ana Maria Bergamim Daina Burns Felipe Chagas Shaun Adendorff Jean Assmann Ferro Sinara Bergamim Rebecca Burrows Delphine Chaigne 王雪琪 王 Rebecca Atkinson Augusto Bergamim Brittany Bushfield Francene Chan 嘉伟 王 Caroline Attal Gabriela Bernardi Ron Buunk May Chao Darlene Affleck Sarah Auckland Adriano Bernardi Jane Buunk Celina Chaparro Juliana Aguiar Audrey Audit Mark Beveridge Janice Buyo Leanne Charlesworth Daniela Aguiar luiz Augusto Leonardo Bianco Débora Bwnlolo MARIANA CHEADE creudemi aguiar Elaine Auld Heather Bickell Joanne Bywater YA TING CHEN Thayna Aguiar Jessica Averiss Magdalena Biga Karmen C Iris Chen lv ai qing ARMANDO AYALA Vasiliki Biliou Liliana Cárdenas Chung Chen Somaya Akhtar ZAPATA Zhang Bing Karin Cabanillas Stanchi Shuang Chen Jairo Alberto Afrooz Azamifar Alexandre Biolcati Patricia Cabette shuang chen Jannaina Albuquerque Cassio Azevedo Cary Bird Angela Cabral Rachel Chen Silvia Alcântara Fernanda Azevedo Kealy Bird Mariana Cabral Ching Yang Cheng Håvard Aldergren Marcela Azevedo Sarah Birrell SUSANA CALZADA huawen cheng Tvedten M B Dina Biryukova Ana Camacho Doris Chibo Lisa Aldergren Tvedten Arshad bahgat Letícia Bispo Natasha Campbell Hung Chienhui Tamires Alencar Guilherme Bahia Joana Bitencourt Henrique Campos Hung Chienting Yasmin Ali Vilma Bahia Wolfgang Bittlmayer Mirella Campos NaiChieh Chin Sophie Allemand Mia Baikie Cecilia Bjärgö Myriam Campos Nathalie Chiquito Erica Almén Laura Bailey Susan Blair Helbert Campos Dias Manika Choubey Erica Almén Diana Baird ISABEL BLANCO Gabriela Canassa Anil Choubey Camila Alvarez Nelsi de Lurdes Bairro Esteban Blanco Zieglee Guilherme Candido Ilona Christen Maria de Fátima Alves Jaimi Baker Helen Bleidiesel Sarah Canova Sidra Chutani Hayanne Alves Amalia Balart Mariana Bloomfield Fabiana Capilla Caitlin Ciprietti Ludmylla Alves Cruz Billy Bambao Adrian Boczar Liliane Caramel Nicola Claffey Thais Alves dos santos Anna Banaś Amelia Boczar Veronica Carballo Gill CLARK Jozelia Alves Palma Sujaya Bangaloreraju Gabriela Bokhaut Ana Cardillo Jovani Claudino Nathalia Alvim Rachel Bankes Catarina Bombaça Debora Cardoso Fabiane Claudino Aline Amorim Marcelle Banner Ana Mara Bonatti Letitia Carey Isabel Coelho Guo Amy Diane Barber Nogueira Marie France Carliez Sabrina Colasuonno Ana Clara da Costa Bruna Barbosa Fabio Bonfim Fernando Carneiro Gloria Cole Pereira Ana C José Barbosa Fabio Bonfim Carolina Carolina Jessa Mae Colona Sara Andersson Amanda Barbosa Julia Bonnelly Joao Carpinteiro Adria Comellas Elin Andersson Igor Barbosa Patricia Borges Freitas Anthony Carr Rodrigo Conceição Dilma Andrade Luana Barillari Azevedo Sarah Carr Alessandra Conde Tatiane Andrade Costa Nadine Barnard Kerry Borland Estela Carrijo Flávia conde Gonzalez Gabriella Barnsley Celso Boscatto Aline Carvalho Natália Fernanda Munike Andrade Fernanda Barradas Svetlana Bosmanova Éder Luís Carvalho Coneglian Dadalto Silva Cunha Talita Barrera Susi Bostock Lawanne Carvalho Roberta Congentino Roshan Andrews Vanessa Barros Fernando Bradil Marco Castilho Karina Conrado PETROVA Anna Dina Barros Silvia Braga Ana Paula castilho de Anthony Cook insharah Ansari Sidnei Barros Ticiane Braga souza Liberty Cook Irene Antoniw Renata Ângela Renata Braga Ada Nelly Castillo Carla Copeland Kétule Aparecida Bassalobre Agnaldo Braga Castro FERNANDA CORDEIRO Matos silva Carolina Bastos Arnaldo Braga Irene Patricia Castillo Marina Correa Sergio Aparecido Kelen Batista paz Michaela Braiden Zuñiga Jenny Corrigan Medeiros Junior Anna Baturina Mateusz Brandys Bruna Castro Maria Isabel Cortés Miranda Apesland Pavan Kumar Baya Anna Brandys Celso Castro Herrador Mike Aquino Heather Beach Jean Brasil Jussara Castro Raimundo Costa 76

COMMUNITY SIGNATURES Parents and Caregivers of Individuals with PWS Outside the US

Ricardo Costa Shelley De Lisle João Espiríto Santo Zélia Gamito Sergio Guijarro Joana Costa Edilson De Oliveira Clara Jane Esteban Carmen García Eliana Guimarães Jane cleia Costa Santos Faria Jessica Ezra Pilar García-Puertas Milani Fernando Costa Sousa Cristina de Paula Beata Fałek Taboada Diane Guimont Sabrina Coughlan Valdirene de Siqueira Fredrik Fagerström Daiane Garcia Monica Gutiérrez Michele Coutinho Paulo de Siqueira Louie Falco Brenda Garcia Verena Gutmann Elaine Crawford ROGERIO DE SOUZA Alana Farias Alisha Garcia Laura Hänninen Stephanie Cristina Adriano De Souza Celestina Faustino Maria Garcia Feng Haiyan Leticia Cristina dos Pereira Esther Fdez Sergio Garcia Susan Hallmark Santos Soares Silva Daniel Decker David Feffer Carmen Garcia Paul Hamilton-Brown Jessyka Cristyna Alves Simone Decker Miriam Fehrenbach JOSEANE Garcia Doris Hamilton-Brown Morais Anderson Degrecci Johannes Fehrenbach Luz angela Garcia MAHMOUD Hammad Sally Crockett joya del vecchio MAYARA FEITOSA Ronderos Ivana Hanáková Paula Croft Marta Delgado Kelly Feitosa Katherine Garvey Samantha Hanvey Lawrie Croft Maria Júlia Demarchi Suzanne Feldman Pedro Gaspar Jonathan Hanvey Steven Croft debbie demasi Marta Fernández Joseph Gatenio Samuel Harding Sarah Croft Debbie Demasi Katheryne Fernández Bernadean Gaucher Jenny Hardy Sarah Crombez Veronique Ospino Renata Gebran Paul Harsch Shannan Crow Denhaerinck Carolina Fernandes Sudeshna Ghosh Anna Harsch Laura Cubillo Agnieszka Derezinska Saulo Fernandes Pamila Giacopini Sally Hart Paula Cunha Adam Derezinski Sandra Fernandes Silvana Giacopini Antoinette Hartnett Yanira Cunha Jayesh Detroja Miriam Fernandez Augusta Gil Mandy Hayward Marcus Cunha Manan Dhar Vanesa Fernandez Sandra Gil Kinga Haziak Shanlee Cunningham Marco Di Pace Aline Ferreira Santi Gil de Avalle Nicola Healey Luan Cutrim Lillian Dias Viviane Ferreira Elias Gil de Avalle Mette Hebel Adriana Cybulska-Bos Gilberto Dias Fernando Ferreira Esteban Gil de Avalle Florence Hennerick Marc Cyrill Lucimeire Dias da Loueine Ferreira Muñoz Marcio Henrique Victor D'Avila Rocha Oliveira JOCIMARA FERREIRA Evelyn Gil Garcia Frances Herbert María Del Carmen Cassandra Dickie Gustavo Ferreira Bárbara Gil garcia Maria Herdicka Díaz García Denitsa Dimitrova Maria Ferreira Carmen Gil-Ruiz Svorad Herdicky Eluana da Rocha ISABELA DINIZ Manuel Ferreira José Luis Gil-Ruiz Tanya Hernandez Daniele da Rocha Paulo Diniz Erica Ferreira Maite Gil-Ruiz Antonia Hernandez Schneider Jose Eduardo Diniz Maria Ferreira Flavio Augusto Gimenes Laura Herrera Fernando Diego Miguel Augusto Diniz Verónica Ferreira gomes Brittany Herygers da Silva Da Silva Camila Diniz de Oliveira Aparecida Ferreira Larissa Gimenez Thomas Hettman Vanessa Da silva Barros Amanda Diniz de Alves Kate Giza Jessica Hettman Miriam Da Silva Pereira Oliveira Miquel Ferrer Eric Gjertsen Javier Higuera Geovana Da Silveira Fernanda Diogo Mandy Ferris Mary Gjertsen Javier Higuera Lorraynne Christina Da Mathias Ditzen Kate Fields Lucy Gleghorn Christoffer Hillbom Silvs Araujo Eunice Dona Daniel Fields Dr. Parul Goel Jessica Hillbom Nadine Dahl Colin Dong Adriana Figueredo Christian Gomes Laura Hinojosa Daiana gallardo Daiana Allison Dos Santos Bennett Fitzgibbon Dayane Gomes Rachael Hodge Giovanna Damasceno Angela Draper Adolfo Flores Rita Gomes Stephanie Hodge Pinheiro da Silva Patricia Duarte Enache Florina Rachel Gomes Ian Holmes Botezatu Daniela Johana Duarte Christopher Flynn Cristina Gomez LUCAS HONORIO Ramírez Gómez Andre Duarte Maria Ines Fonseca EKATERINA Andrew Hoover Daniela Anna Duczmal Guilherme Fontanetti GONCHAROVA Ana Laura Hopper Nancy palacios Danna Sarah Duff gavin forkan Juan González Garcia Chesnokova Daria Marie Dufresne Laura Fox Ieda Gonzalez Diogo Hora Margit Dasch Ítalo Dutra Eduardo Francisco Carolina Gonzalez Lisa Hoszko Wendy Davey Lais Dutra diana franco Guilherme Gonzalez Sarah Howard-Jones Isabelle Davies 辉 马 Ivanir Freire Marcelli Gonzalez Terry Hsu Sophie Davies 肖 肖 Tania Freire Nathan Good Junius Hsu Luiz Davila Dana Ecos Darcy French Michelle Good Leo Hsu Dayana Rodrigues Verónica Edith daniel froese Florian Goosmann hu hu Dayana Rodrigues William Edwards Pearl Fung Greta Gotlieb yunke huang Santana Timmy Ehmsen Kristina Fursova Angela Goucher chih chung huang Thies de Boer Yennifer Ehmsen Hannah Futter Jemma Grant David Hume Jackeline De Boer Costas Eleftheriou Xavier Gálvez Keighley Greening Trista Humfries Natalia De Carli Carole Elkhal Susana Gómez Elena Grigore Natalie Hummel SHIRLEY DE JESUS Rasha Elmasry Veronica Gabriela Mira Gruber Ching-Chung Hung NUNES BELCHIOR Sally Elsadr Marieta Gacheva Wendy Gu Yifen Hung Veronica De Lima ROSELINE EMEANUO Aishling Gaffney Katya Gualter Mel Hunt Vanderleia De Lima Luiz Engel Maria P R Galan Fang Guan James Hynes Nito Gabriela Erazo Vanesa Galego Carrillo Rui Guan Conor Hynes Rita de Cássia De Lima Renata Erberelli Rafaela Galeno Patrícia Guerra Mohamed Ibrahim Silva Rosalva Espino Tiago Galeno Jan Gui Marilene Iensen

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COMMUNITY SIGNATURES Parents and Caregivers of Individuals with PWS Outside the US

Juan Iglesias Martyna Kleban James Lloyd Deurivan Martins Mariela miranda Sonia Iglesias Nina Kluchnik Margarida Lobo Yuri Martins Barboza Karen Miranda ANNA ILINA Olga Klyueva Lohana Lobo de Sá Assumpta Mas Neringa Miseviciene Deepak Ingle Łukasz Kochanek Martins Larisa Mashkina Gail Mkller Elisa Ispizua Agnieszka Kochanek Pamela Lois Vinicius Massarelo Thadeu Modesto Diana Italiani Sabrina Kondro Andrea Loizou Susan Massarelo Natalia Modesto Muresan Iulia Jacek Konradowski João Vitor Lopes Paula Masuda Asimuddin Mohammed Liana Ivanova Dilan Korkmaz Ferreira Anna klaudya da silva Abdul Mohammed xiao Iyan Alejandro Korth Tara Loseth Matias Shital Mohile Rae Jack Amalija Kovacevic Mayra Lovatto Ellen Matos Walaa Mohmed Katy Jack Maksim Kovalev Jillian Lovell Raissa Matoso Alina Mokrzycka David Jack Patrycja Kowalska Lucy Lowe Ana Carolina Matoso RODRIGO MOLARDI Stuart Jackson Oliwier Kozioł Mariana Lucas Natalia Mattos Jean molinet Cheryl Jackson Rita Kramerova Margarita Ludlow Ferracioli Guillermo Montanez Mark Jacob Tina Kusaian Sanja Lukić Daria Matutis Priscila Monteiro Gevaerd Jacqueline Lorena Vanesa López Ella Lukjanovic Bernard May Dulce Monteiro Denis Jalsovec Martine Laberge Fikrete Luma Natasha May Adriana Monteiro Anja Janezic Clarice Ladario Alessandra Luna Edimara Mayer Nubia Bibiana Giovana Jardim Chia Wen Lai Anastasiya Luppova Louisette Mbanga Montenegro Matthieu Jeannin Julie Lamac Oleg Lykov Mary Mc Entee Chris Moon Sandra Jeannin Kasia Lampa Natalya Lykova Leigh McCabe Andrea Moore Olivier Jerry Lyne Landry Sarah Lynch Christopher McConville Catherine Moore Elizabeth Jezard Emer Lane Marcilei Machi Jessica McEvoy Beatriz Morán michael jiang Nikki Langeveld Natália Maciel Taragh McGovern Diego Mora Shen Jie Rus Larisa Ionela Rory Mackin Lorraine Mcgovern Simone Moraes Claudia Jirousek Hanna Larsson Michelle Mackin Casey Mcgrath David Morales Eva Johansson Daniela Lasso Medeiros hugh mackinnon Sarah Mcgrath Paulo Henrique Amy Johnson Fortino Sueli Madeira Jackie McHugh Moreira Libby Johnson Erin Lauer Agnes Magalhaes Daryl McLaren Patrícia Moreira Libby Johnson Acevedo Laura Ela Magdalińska MJ McLaren Jaqueline Moreira Elaine Johnson Heather Laurin Eduardo Magnani Kate Mclay Edson Moreira de Patricia Johnson Mary Lazarus (Shahab) BEATRIZ MAIA Rachel McLean Sousa Júnior Susan Johnson Thanh Le hoang Isadora Maleval Sarah McNie Carla Morelia Anne Jones Adriana Leal Diane Maliki- salima Michelle Meadows Thaissa Moreno Asj Jones Ana Cristina Leal de Amanda Maliza Rousseau Natalia Moreno Mark Joseph Oliveira Cathy Mallove Danielle Meanwell Suhayla Moreno Flores Jennifer Joseph Torsten Lechelt Esra Mama Vânia Medeiros Lima Breno Moretti Ivan Jovanovac Nicole Lechner Tatiana Mamonova Joanna Medyńska Marcio Moretti Jasna Jovanovac Obi Lee Edgar Manjarres Bartłomiej Chris Morris Aneeshjoy Joy nick lee Leonardo Manrique Medyński Maria Victória Motta Zamae Jr Jenniffer Leguizamo Kelly Mansbridge Tian mei da Costa wang juan Oran Leiba Matthias Mantel Constanza Mejia Eunice Moura João Justo Pires Edvaldo Leite Carolina Manzione Aline Mello Hongjuan Mu Mervi Köninki Patrícia Leite Wanessa Marçal Juliane Mello Julia Muñoz Christian Kürten Sabrina Leite Lampros Maraletos nicholas melnyk Sara Muñoz Karine Kabundi Celine Lepage Hely Marcela Helen Amanda Paiva de Fatima Mujanovic Karine Kaefer Aya Lev zukerman Rayssa Marialva Sene de Melo Cecilia Muller Lolo Kais Zach Levy Oscar Mariano Poliana Melo Mariana Mungioli samanta kajic Esther Levy Isabella Mariano Juliana Melo Kathleen Munk Samanta Kajic xi an Li Sanjković Marina Anny Mena Marcello Munoz Andrew Kaminsky Jie Li ADRIANA MARINO Paulo Mendes Destiny Munoz Rafael Kamkhagi FAng Liao Nicole Marino shuhui meng Alberto Munoz Sarah Kanther António Libo Angelika Marquardt Andy Message Dan Murphy Adriana Kasama THEREZA Lima Tatiana Marques Jasmine Message Nicole Murphy Rabi Katoua Genalice Lima Claudomiro Marques Steve Meston Shamus Murphy Liudmila KAVALEVA Lídia Lima Suzanne Marques Shikha Metharamani Jo Musk Lindsey Keen Ana Lima Alexandra Marques de John Michael camila mussi Sevgi Kelbaş Monica LIMA Souza Alessandra Milani Manish Mutha Erica Keogan Cynthia Lima dos Gean Sócrates Christiane Milani Sonia N Pauline Kerley Santos Marques Flores Lucas Milani Barbara Nadeau Syeda Khadijah Mei LIN Sonia Martín Justine Miles Rohit Nagrath TATIANA Khairullina M Victoria Linati Sara Martin Savanah Miller Lavina Nama Danish Khan XU lingling Carlos Martin Maria Mina Magda Narczewska Sarahat Khan Marianna Liso Pilar Martin Aveen Miney Luiza Nascente Dagmar Kiderlen zhenghai liu Francisca Martins Darasteanu Mioara NataliA Nascimento Ross Kirby Melissa Llewellyn Selma Martins Lis Mirabal Natalia Nascimento Mariana Kitagawa Francesca Lloyd Marllon Martins Maria Miranda Marwa Nashar

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COMMUNITY SIGNATURES Parents and Caregivers of Individuals with PWS Outside the US

Rhys Nasir Ericka Pachón Dannielle Prado Yvonne Rochford Giovanna Santos Maria Regina Nassif Iliana Pacheco Jaime Prado Luis Rodríguez Vinícius SANTOS Barbosa Harry Paiva GIOVANE PRATES Liliana Rodríguez Clarissa Santos Ariel Navarrete-Pérez Carolino Paiva Neto Oli Batista Prates Panesso Jônatas Santos Cássia NAVAS-CASTRO Caroline Palander Ana Prates Lisiane Rodrigues Rebeca Santos Bernadette Neiland Mariana Pantano Tainá Prates Daiane Rodrigues Alice Queiroz Dos LARISSA NEIVA COSTA Dominika Parafiniuk Tainá Prates Daiana Rodrigues Santos Santos Greetje Nentjes Sun Ah Park Violeta Luciana Prieto Jaqueline Rodrigues Hélio Teruo Gabrielli Neponuceno Pamela Parkinson Granada Elyana Rodrigues Hashziume Santos Kátia Nery Patricia Parrouty Jalene Primmer Fernanda Rodrigues Sandra Santos FILOMENA Nery Tamara Parzinger Carolina Proenca Rafael Rodrigues Thâmela Thaís Flávia Nery Emma Passi Anna Pugh Franer Rodrigues Santos Santos Felipe Nery Nídia Pastura Yael Putney Jéssica Rodrigues Geovana santos Natalie Neto JOSE UBIRATA Hadeel Qais Fernanda Rodrigues altamir santos filho Silvana Neuls PASTURA Michelle Queiroz Silvanete Rodrigues Nicole Sassaki Daniele Nicolucci Shelly Patel Pedro Queiroz Andrea Rodrigues Zoe Saunders Medeiros Kirk Paterson Mohamad Rabeia Ramos Padoim Inez Saurin Martin Niegl Helen Patience Bertrando Rabelo Aimara Rodriguez Ivana Savevski Joabe Nito Sanchez Patricia Inga Raic Ricardo Rodriguez Savita Saxena Sirlei Nito Thaise Paula Furkan Raine Kajsa Rohdin Victoria Saywry Greg Niven Veronica Paulsson Farha Raine Francisca Rojas Merino Larysa Schenk Nicola Noble Penny Pavlou Deepashwini edison alberto romero Ines Schipperges Ana Maria Nogueira Landysh Pavlova Rajenahalli chirinos Andressa Schmidt Diniz Manwar Payal Jayadevappa Garcia Ronderos Elke Schmidt Vergínia Nonato Gina Pearce Rajenahalli Aracelis Rosario Lara Leandro Schneider Luís Nonato Per-Olof Pehrson Jayadevappa Bernardo Guimarães Melanie Schneider Dawid Nowak Fernanda Peixoto Neil Ramage Milani Rosimere Karen Schwenken Lydia Ntagara Patricia Peixoto Helen Ramage oliveira santos Christian Schwenken RAPHAEL NUNES Alexandra Penachione Ian Ramage Sumit Roy Conrad Schwenken BELCHIOR Alexandra Penachione Dayana Ramirez Maria Rozmus Marianna Schwenken Erika O Ashlee Penhaligon Valeria Ramirez Estrada Celina Ruelas Ney Paulo Sene Sandra O'Brien Rodrigo Pereira Carolina Rangel Jeison Ruge Jose Sepulveda LYNDA O'CONNELL Lucelia Pereira GABRIELA Ratke Cristina Ruiz Marina Shah Aisling O'Donovan Daniela Pereira Maiara Rebeschini Agnes Rup su shan Margie O’Connell Alessandra Pereira Tracey Rees Eric Ruschin Jennifer Sharman Sinead O’Reilly Marta Pereira Cibele Claudia Reis Tracey Ruschin Maria Sharman Shamiran Odesho Eduarda Pereira Juliana Reis Lenka Ruston Kim Shaw Ευφροσύ Dorothóveo Peres Giovanna Reis Ponce Michelle Ryan Catherine Shaw νη Filho Angie Remuska Akhil S MIRJI mi she Σπανέα Paulina Perez Debbie Renac Jennifer Sánchez Julia Shevcheek Sera Oh Ana Perez Walter Renato Eman Said yosif Sharon Shiao Elina Oksa Jeronimo Perez rojas Anil Renghe Ivanna Salehudin Emma Shiels victor olate Silena Perozo Simone Resende Maritonia Sales Deepti Shrivastava Gavrilova Olesya Maciej Petela Laura Retsos Flávia Sales Miguel Sahar Sikandar Ольга OLGA Lisa Peters Laura Retsos Gonçalves Sahar Sikandar Natalia Oliveira Noura Petrocco Anna-Marie Reuter Zejna Salihbegovic Gabriella Silva Warlley Oliveira Crystian Phili Carla Reyes Danielle Sallatt Alana Silva Bruna Oliveira Linda Phothisomphane Cheri Rhys-Jones Amanda Sampaio Jenifer Silva Karina Oliveira Iulia Piescu Ana Claudia Ribas Eirini Samtanidou Adriele Silva Raquel Oliveira Ellen Pigatto Pedro Ribas Jaclyn San Antonio Mariana Silva Henrique Oliveira Thaís Pilon Adriana Ribeiro Thelma San Antonio kerolay silva Viviane Oliveira Gabriel Pimenta Mariana Ribeiro Ramon San Antonio Joana Silva Renata Oliveira Henrique Pinheiro Manoelito Ribeiro Thelma San Antonio Cibele Silva Daiana Oliveira Luciana Pinheiro Claudia Ribeiro Jeanne San Antonio Rosana Silva Solange Oliveira Rosana Pinheiro Thiago Ribeiro jose mauricio sanchez Lucelena SILVA Ana Oliveira Maria Inês Pinheiro Bruna Ribeiro paez ERICA CRISTINA SILVA Cleonice Oliveira Cruz Martins de Siqueira Joana Ribeiro Sueli Sandre Marcus Silva Sandra Oliveira Schulz Fabio Pinto Cláudia Ribeiro Luis Sandrini Renato Silva Anna Olsson Paula Pinto Vanessa Ribeiro Juan Sanin Thiago Silva Gabrielle Opolenski Lucimeire Pio Silvia Rinaldi Brenda Santana Fernanda Silva Marina Orban Lorena Poletto Bárbara Rizzo Gisselle Santana Adriana Silva Beatriz Oreja Anna Ponichtera João Angelo Rizzo Santi Santi RONIVALDO SANTOS Judith Orozco Cheryl Pope Anna Robak Licia Santiago SILVA Yesica Ortiz Anna Postawa Giovanna Roberti Savio Santimano de Roseane Silva Lukasz Orwiec Louise Potts Michelle Robinson Souza Henrique Silva Mari Ota Sandra Powell jose manuel Rocha Luciana Santos Laila Silva Marta Pacanis Cherek Maisa Prado medina Fabio Santos Jorge Silva

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COMMUNITY SIGNATURES Parents and Caregivers of Individuals with PWS Outside the US

NATHALIE SILVA Catalina Soto Therese Tembituze Luisa Fernanda Valle Deirdre Whyte ALVAREZ Catalina Soto Susanna ten Wolde Ruiz Janice Williams Patricia Aparecida Silva Cassemira sousa MERIELE TERUEL Joakim Valsinger Thomas peter Cortez Andrea Souza Helen Thirlby Louise Valsinger Williamson Vinícius Silva de vera spinelli Richard Thomas Pamela van Meeteren Sally Williamson Araujo Maja Sreckovic Stephanie Thomas Shawn Vanneer Sally Williamson Claudete Silva leite dos Harsha Sri Dianne Thompson Lucia Helena Vaz Lisa Wixon santos Rebecca Standley Cindy Thomson Ray Velestuk Nina Wojciechowska Brasil Silvania só. Traz Agnė Stankevičienė Madelaine Thurston MIRELLE VELOSO Gloria Woloshyn Machado Alda Staprans-Mednis Rory Tierney Marina Verbivskaya TS Wong Maria de Fátima Jasmin Steffek Emma Tierney Helma Verkerk Nat Wooldridge Silveira Ines Steinert Kash Tobjian Juliana Verona Lisa Wooldridge Antonio Carlos Silveira Ksenia Stepanyants Karen Todd Cristina Vicente David Woon junior Michael Sterbal Rômulo Toledo Bruno Vieira nannan wu Leda Agnes Simões de Sarah Stevens Diego Tomillo Morate Bruna Vieira bao Wu Melo Janice Stevenson Ana paula Toniolo de Elsa Vinha Aleksandra Debra Sinclair Yael Striet souza Cacilda Vinha Wysoczańska Christie Sinden David Studley Camila Torbey Capiau Violette Rachel Wyszynski Sadhia Sindhu KATIE STUDLEY Valeria Torres Tung Viwa Giovanna Xavier Khushboo Singh Ana lucia Suárez Eliana Torres Torres Shekar VN ZuLin Xiao Prabhjot Singh sanchez Lydia Toson Chere Volk Vanessa Yamamoto ROMIRA SINISTERRA Miguel Suarez Ben Towell Aswathi Vs Jougi Yamashita ROSANA Siqueira Angélica Suarez Armando Travaglia Louise Wallace Mônica Yang Wilson Siqueira Zaki Suhaimi Natalia Travain dos Cindy Walter Julia Yastremskaya Paulo Siqueira smita Sukale Santos Rebecca Walton Annie Yellin Joao Vitor Sisueira Jenny Sundqvist Natacha Tremarin rose wang chen yiyi Simon Skogh Maha Surani Camila Treuenfels li wang Hui-Shan Yu Sinead Sloane Joy Suttle LO Trista xiuxia Wang cong yu Tania Smith Daniel Svedberg Lucie Trojanova juan wang Recai Yuksel Sam Smith Jenny Svedberg Wendy Tshishimbi Malaika Watanabe Gidiyatova Madina Jodie Smith Thiago Sversuti Irene Tsimeri Morgan Waters Yusuf Marcia Soares Garcia Susan Swayne Pedro Tura Darren Watson Bruno Zabeu Aparecida Soares Gabriel Swerts Lee Turner Lori Watson Tatiane Zago Lourenço Susanne Szabo- James Tyree Laura Weavis Tatiane Zago Guilherme Soares Silva macdonald Michelle Tyree Heidi Webb FELIPE ZANUZZO Cosma Sobral Marzena Szczawinska Mankevich Udodova Daniela Weber Angelica Zarichny Federico Soledad Andrzej Szczawinski Andrés Usán Analu Weiss Medeiros taotao Zhang Mauricio Solis Leandro Taminato Rhea Utley Maciej Wąsowicz Joy Zhang Fernanda Solorzano Andrea Tassi Xiomara Valencia Imogen Wheeler FLavie Zhou Catherine Somerville ileana taus Fabiane Da Silva Amber White amy zhu Katharina Sonnen Diana Tavares Valente Jennifer White Sirlei Zonta Antonette Soriano Gemma Taylor Fabiane Valente Todd Whitley Tamara Zvereff Andrea Sotelo Gleyson Telis Maria Valiño Elliott Whyte

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COMMUNITY SIGNATURES Individuals with Prader-Willi Syndrome

Individuals with PWS in the US To maintain the privacy of our loved ones with PWS, they are represented by their first name and last initial.

Myrna A. John E. Debra J. Diane P. Lauren S. Raquel A. Colette E. Abby J. Jean P. Michele S. Bonnie A. Sarah E. Debbie K. Kim P. Brenna S. Caesar A. Courtney E. Karen K. Archit P. Steffanie S. Avery B. Mona E. Joey L. Jaden P. Jadyn S. Daniel B. Mike E. Chris L. Denise P. Adam S. Felicia B. Karen E. James L. Roxanne P. Andrea S. Trina B. Katie F. Braygan L. Kelly P. Betsy S. Pete B. Emily F. Andrea L. I. P. Dennis S. Regan B. Mark F. Dominic L. James P. John S. Sarah B. Mike F. Angelo L. Sheila P. Billie S. Linda B. Emily F. Kasey L. Jason P. Roberson S. Don B. Emma Rose F. Hugh L. Eric R. Judy S. Sharon B. Beth F. Christine M. Randy R. Savannah S. Connie B. Jean F. Deb M. Diana R. Amy S. Keneshia B. Patricia G. James M. Mary R. Barb S. Haley B. David G. Margaret M. Ann R. Misty T. Tom B. Stephanie G. Patty M. Kelly R. Ana T. Mesha C. Thelma G. Denise M. Kristina R. Jennifer T. Jane C. Mary G. Kimberly M. Karen R. Amber T. Kelly C. Taylor G. Jeff M. Melissa R. Kaci T. Teresa C. Emily G. Karen M. Doug R. Andrea T. Avery C. Sheila H. Katie M. Julie R. Tyanna T. Gina C. Ave H. Sarah M. John R. Joseph T. Sandra C. Chantelle H. Derek M. Helen R. Lindsay U. Danielle C. Conor H. Lincoln M. Cindy R. Patricia V. Adriana C. Courtney H. Kettie M. Jeffrey R. Adriane W. Bridget C. Susan H. Abbey M. Alex R. Barbara W. Natalie C. Jayden H. AnnMarie M. Hope R. Alicia W. Yadira D. Erin H. Elizabeth M. Jolee R. Karen W. Whitney D. Paula H. Amanda N. Jenny S. Carol W. Ashley D. Claire H. Dorothy N. Jamie S. Nicole W. Pam D. Bonnie H. Cindy N. Donna S. Sadie Kay W. Marion D. Melissa H. Bonnie N. Karr8e S. Gavin W. Dante D. Jennifer I. Ann N. Stacie S. Christina W. Lynn D. Roxanne I. Catherine N. Tina S. T W. Cerridwyn D. Kathleen J. Emma N. Tracy S. Antoinette W. Peggy D. Tracy J. Carson O. Kimberly S. Aaron W. Daniel D. Julia J. Jana 0. Arabia S. Cheryl W. Brenda D. Amanda J. Maggie O. Nikki S. Amanda Y. Lorrie D. Kristin J. Melanir O. Krystil S. Julie Y.

Individuals with PWS Outside the US

Allira S. Chad L. Lucy B. Áine M. Lisa A. Edith S. Alvin L. Sonja O. Caitlin O. Debbie B. Anna S. Grace M. Charandeep B. Roisin S. Amand B. Josephine B. Guilene N. Yvonne 0. Laura T. Imogen H. Cristina B. Ashley P. Colíosa B. Eddy P. Luke H. Maria Elizabeth M. Shannon P. Carmel C. Jessica C. Shauna H. Francielli R. Nordia T. Lorna H. Rocio B. Morven R. Tassiani V. Josiane U. Ruth H. María B. Neil S. Fab C. Tina E. Paula H. Marta C. Sophie S. Melinda F. Zhang H. Anne K. Diana I. Ace S. Aline G. Jairo A. Sharon K. Ismael L. Eva W. Wendy G. Thomas T. Tara M. Miguel L.

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COMMUNITY SIGNATURES Researchers, Scientists, and Healthcare Providers Inside and Outside the US

Researchers and Scientists

Telma Almeida Tatiana Collese Caroline Matlock Jessica Ammon Steven Coonradt Virginia Mattis Adriana Arezes Anastasia Dimitropoulos John Means Betsy Barton Ana Diniz Robert Nicholls JENNIFER BERTEN Sudharsan Dwaraknath Ellen Niemeier Jocelyn Bischof Ruth Franco Holli Palmer Sarah Bischoff Whitney Franklin Laren Reynolds Nathalie Bonafe Karin Frazier Ana Sofía Ribeiro Allan Brownlie M L Hinojosa Maria Roallos Elaine Cafferty Karen Israel Sady Rodríguez Pérez Olga Cain Julia Khrisanfova Daniela Rubin Carolina Cardenas tina LaFonte Ann Salm Sandra Castille Amanda Leskovar Patricia Scott Daniel Chan Christopher Madden Suzanne Simba Melissa Cobb Des Madden Sarah Zastrow

Healthcare Providers

Daniela Bittar Michele Beach Anita Bullock-Morley Michelle D Sónia Fernandes Micheal Aaron Bethany Beals Elizabeth Burchard Stefanie Dahm Morgan Figurelle Sandra Abril Ali Bean Ashley Burchell Annette David Beth Finke Jessica Adams Lynn Beck Tif Burg Jazma Davis Rachel Fiorentino Jonell Adams Tina Beck Kandi Burlingame Marcy Davis Bonnie Fiske Jeanne Ahmed Nancy Becker Julie Bye Zach Davis Brittany Fitzgerald MG ALBANO Josie Belle Asia Byrd Nicole Davis N Fitzpatrick Felicia Alberto Amber Benson Myra Cain Laura Dean Joann Fleckenstein Hailey Allen Hillary Benson Katelyn Cappotelli Patricia Dennette Eric Fleming Katie Allen Ingrid Bentley Gómez Carmen Olsen Janessa Fletcher Elina Almén Adriana Berardi Kristin Caronna Beth DeSimone Kaley Flip Amy Altizer Zoie Berman Casey Carrier Jane Diamond Emily Fontaine Josephine Amato Brittany Bernard Cambridge Carruth Shanna DiCarlo Delilah Forbes Stephanie Andersen Keri Bernardin Joana Carvalho Dana Dignard Lauren Fortier Irina Anderson Andrew Bernstein Beth Case Rachel Dillon Sandra Fournier Jessica Anderson Johanna Bishop Marissa Case Dorothy DiMeglio Cate Fox Jonas Andersson Paula black Jeri Casley Stacey Dirksen Krista Foxworth Denise Ann Terri Blackwell Crystal Casmirri Lynsey Divilley Michele Franzella Lem Antoniou Santana Blanca Mindy Catalano Sandra Dobbs Carah Frazier David Arena Regina Blanchette Stephanie Cater Ash Dodson Sarah Fredriksen Ttisha Armstrong Beth Boone Carrie Cerise Andra Dolton Karoline Freire Ana Assuncao Laura Boose Mirna Chagas Annie Donaway Joni Freitas Mary Ater Teagan Booth Penny Chavez Nicholette Donoghue Jessica Frenzen Jeb Atkins Victor Borges Madeline Chiardio Catherine Donohoe Janece Fretwell Jennifer Austin MaryAnn Bourgeois Colleen Clark Jen Dressler Sara Fulton Sherry Austin Casey Bowen Jess Clifford Bridget Duffy Kate Funke Kristie Averill Michele Brams Toni Coffee Paula Duignan Ashley Fyfe Emily B Jessica Branham Stephanie Cohen Terro Dupper knoper lisa g Brittney Bacon Stephanie Braud Meagan Compton Twrri Dupper lnoper Liz Galetz Kaila Baer Ryan Breaud Ashley Conley Meagan Dyer Danielle Gallagher Amber Bailey Shelly Breech Cindy Connellan Wands Eaton Lorraine Galligan Jessica Bainter Stella Breil Katie Connolly Barbara Edgar Chloe Galvin Jaya Baker meghan brindley Margaret Conroy Kelly Ehrnschwender Shari Galway Susan Baldwin Katelyn Bronder Danielle Constantine Linda Elli Laura Gann Arielle Ball Yvette Brooks TOBEY Coody Lindsey Ellis Andre Garcia Rodriguez Margaret Ball Olivia Brown Janice Copeland Brittany Elrod Amanda Gardner Karalee Barch Selma Brown Danielle Corff Ann Eskew Emily Garrissw Hannah Bargman Milynn Bruneau Alvaro Coronado Haweya Farah Yaritza Gautier Sarah Barrick Sarah Bruntrager V Craig Megan Fardon Dylan Gawinski Stern Jenica Barringer Robert Buch Ryane Criswell Jennifer Farnham Priscilla Gennari Emily Bartha Valerie Bucior August Culp Melissa Fenger Joanna Georgakas Amber Bartling Maria Bueno Rios Laura Czerwinski Taylor Fennessey Jaclyn Giafaglione 82

COMMUNITY SIGNATURES Researchers, Scientists, and Healthcare Providers Inside and Outside the US

Emily Gifford Akasha Jackson- Carly Love Kyley Ogard Michelle Rochman Perri Gilbert Williams Sara lovelette Dawn Olivier Jennifer Rodgers Bonnie Gilbertson Tammy Janssen Amanda Lovercheck Elizabeth Ortiz Alissa Roe Danielle Gillam Amy Jansuk Monique Lowery Janet Osei Angela Rorick Dianne Giordano Elisabeth Jelleryd Nicole Lynch Brittany P Meg Rose Melanie Giroux Erica Jester Edy Lynn Kaylea P Christine Rosenthal Karen Good Angus Jones Cristina Méndez Rachel P Jennifer Rowzee Marcia Gowdak Deanna Jones Brittany Madison Julia Packer Kristen Ruby Gracie Grant Erin Jones Cierra Maloney Sarah Palay Molly Rusin Heike Gray Christina Jones Laurie Marcosa Analyn Pancho Lauren Saeger Katie Grayson Emily Jordan Amy Marrapese Jacqueline Pape Megan Sales Sarah Greear Brittany Joyce Amanda Martin Robin Parrish Amanda Salter Mary Griffin Erika Juarez Lisa Martin Kimberly Parrish Marie Sanchez Betty Grover Kolby Kail Megan Martin Elizabeth Parry Tammy Sandillo Rachel Gugel Karolina Kaluza Priscilla Martinez Jessica Parsons Renata Santos Katie Gullquist Bridget Kaminski Katie Masterson Samuel Paschall Melanie Sanvi Robyn Gurney Tabourne Ashley Mathias Norah Paschen Samantha Savio Valerie Gutierrez Nikki Katz Melissa Mathiowetz Tara Paulauskas Nikki Schank Shannon Gyles Kristin Kelley Kateri McBride Alexis Pavey Kelly Schiller Cara H Janelle Kendrick Amanda Mccaul Michelle Pawelski Leslie Schreiber Kim H Audra Kent Erica McCoy Amy Payne Keelin Schultheis Adam Hadro Ruby Kershaw Andrea McCusker Michele Pelley Haley Scism Tresses Haffner Christy Kessler Nanette McDevitt Julianna Peplinski Cheryl Scott kika hajistathi Kristin Kim Kelsey McDonald Alexis Perrier Jill Scott Ginger Hall Abby King Terri McFall Janine Peters Tami Scotto Lauren Hall Emma Kingham Jen McHatton Kayla Petrie Michelle Seright Kathleen Harder Sophia Kirchhoff Bridget McIlwee Liz Petropoulos Holly Shadden Rachel Hare Marta Klein Nicole Mckee Lawrence Pierce Elaine Shanaghy Lydia Harms Kathy Klein Cynthia Mckeehan Jessyca Pierre Ashley Shapero Laura Harris Heather Koenig Kathryn McKissick Amy Pike Rebecca Sharoian Alejandra Hartle Keri Koraleski, MOT, OTR/L Angela McMillan Patricia Plata West Catherine Sharp Zachery Hawes Michelle Koval Lindsey Medhurst Plata West Jessica Sheldon Robyn Haynes Roger Kruse Ashish Mehta Jennifer Pope Ashley Shields Ashton Hedger Sarah Krzemien Marierose Mendiola Sheila Poteshman Heather Shipley Mia Heidecker Ana Landaverde Valerie Mettz- Dan Powell Kris Sietins Angela Heinzelman Jennifer Langley Bommarito Devi Power Melissa Sikoscow Tania Hernandez Eunice Larcena Jennifer Metz Lori Powers Elaine Simon Angela Herring Amanda Laslie Nazeeha Micciche Meeta Prakasb Llewellyn Simon Valerie Hibbert Michelle Lastovka Cindy Miller Roxie Pratt Mikala Simon Heidi Hicks bruna laub Shayna Miller Suzanne Pratt Erica Singleton Penny Hicks Megan Laurent Payton Miller Lindsay Prebish MaryBeth Sisco Jennifer Highbarger Tammy Lauzier Susan Millner Amy Preble Stacey Sjoberg Leigh Hileman-Steele Derek Le Maria Mitchell Jennifer Price Allyson Smith Kate Hill Vicky Ledet Sarah Mitchell Elizabeth Pritchard Emi Smith Michelle Hill Kay Lee Megan Monier Jessica Punzon Jen Smith Shayli Hill Angelina Lee Kellee Moore Christine Rabenort Jennifer Smith Linda Hoban James Lentini Lorraine Moore Stephanie Ramos Molly Smith Darby Hoffman Geraldine Leonard Autumn Morales Jenna Reeder Orla Smith Jennifer Holland Erin Leone Jaclyn Morris Erin Reese Emily Snyder Colleen Holt Lauren Lerew Brittany Morrison Andrea Rego Cristina Souza Jillian Honeycutt Mary Lou Lescarbeau Ariel Morrow Jessica Rehmann Débora Souza Megan Hopkins Carrie Lewis Catherine Murray Mackenzie Reimer Emily Spain Jess Horan Allie Ley Katie Na Brittany Reineck Daphne Spohn Julie Horton Anita Lilja-Stenholm Beverly Navarrette Amy Repko Megan Spradley Denise Houriet Brigit Lim Andrew Nevett Jaclyn Replogle Joni Stalder Cindy Howard Jennifer Lin-Nguyen KellyRose Nichols RL Restrivera Lauren Stalte Kaitlyn Huber Kristin Little Krystn Nickolaus Celeste Reynolds Dori Stanley Miranda Huffman Kay LoBello Tiffany Nicoll Courtney Rice Kasey Stansberry Marjorie Hunt Liz Locke Amanda Nolan Patricia Richey Karen Stapleton Megan Hursman Michelle Logsdon Megan Notdheim Kim Ricketts Diana Starace Stephanie Husk Linda Long Lara Nothwehr Laura Ridgeway Thomas Staton Darcie Ikeler Jan Loper Patrice Nottingham Rebecca Ritter Shannon Stemler Eleanor Ingram Shawna Lord Shannon O'Brien Courtney Roberts Nicole Stepneski Aiesha Insingo Moira Loring Emma O'Connor Kelsey Roberts Kim Steuber Jenn Jackson Erin Losh Lindsay O’Keefe Alexandra Robin Alicia Stevens Marie Jackson Sarah Loupe Amy O’Malley Barbara Robinson Melissa Stiles 83

COMMUNITY SIGNATURES Researchers, Scientists, and Healthcare Providers Inside and Outside the US

Amber Stribling Lily Thomas Katie Uhl Leigh Walls Cherish Wilson Ileana Sugawara Connie Thome Marie Ulrich Miranda Wang Donna Wilson Karen Summers Dawn Thompson Betty Ulsas Megan Ward Katy Wingard Erika Summers Katherine Thompson Chris Uty Jennifer Warren Lisa Winschel Thea T Annemarie Tomczak Nolan V Madison Watkins Tish Withers Aileen Tai Susan Tomko Harold van Bosse Leslie Weaver Ryan Wolok Chris Tak sydney topfer Kali Vasalofsky Cindy Webb Mandy Woods Nicolas Tan Ileana Toro Viviana Velez astudillo Jessica Weeks Molly Wright Aeryn Tau Emily Tracey Brooke Vesico Michelle Weingarten Aimee Wunsch Loretta Taylor Carley Trina Lucas Villalta Santos Mara Welch Miller Becky Yates Fernanda Teixeira Tjarda Tromp Amanda Vinson Megan Weller Elisa Yeung Marcus Tellez Jackolyn Troncoso Asia Virella Melissa Wells Karen Young Leigh Terry Candace Tucker Craig Volcovici Taylor Wengerski Katie Youngman Mary Tershak Jean Tully Cecilia Wagnon Jayne Werner Elizabeth Zeller Jacqui Tessena Deirdre Tully Brenda Wake Brenna Westover Ying Zhang Jennifer Thomas andrea turnipseed Alicia Wales, PT, DPT Kari Willett Christine Zoucha Maureen Thomas Ali Tyra Allison Walker Amy Wilmes Jacobi Thomas Janel Uelk Carol Waller Kristin Wilson

84

COMMUNITY SIGNATURES Friends, Family and Other Supporters of Individuals with PWS

Other Supporters

Mariano Álvarez Alesia Adams candie aguilar Bambi Alexander Nicole Alley Karen Angel Ben Adams Madelyn Aguilar Barb Alexander Tamara Alleyne Akos A Bryan Adams Marcela Aguilar Fiona Alexander Marie Allgood Catherine A Carol Adams Maryann Aguinaldo Jeanne Alexander Lauren Allingham Justin A Cassandra Adams Brittany Aguirre Lisa Alexander Ayse Allison Lynn A Debbie Adams Camilla Aguirre Scott Alexander Madeleine Allison Maria A Elizabeth Adams Kerri Ahern Alisha Alexander Ann Allman Sabrina A Emily Adams Ann Marie Ahern Anetka Alexander Ashley Allman Stephanie A Jeanne Adams Kris Ahl Brit Alexander Sally Allpress Anna A evedo Jennifer Adams Pete Ahlquist Donna Alexander Sydnee Allred Dina A-Hameed Jennifer Adams Emma Ahmed Enda Alexander Haleigh Alm Kesh A. Katie Adams Syed Ahmed Michelle Alexander Rosalie Alm√©n Kate Aanestad Kurt Adams Stacie Aho Sarah Alexander Melanie Almanza Susan Aarhus laurie adams Stephanie Aholt Sherrie Alexander Ana Mar√≠a Almeida Melissa Aaron Laurie Adams Lori Ahrens »òireag Alexandra Claudia Almeida Madeline Aaronson Lorna Adams Mary Aiello-Jones Haley Alexis Juliana Almeida Susana Abad Mary Adams Shawna Aipia Cynthia Alfama Marcia Almeida Carlota Abad Casas Megan Adams Leah Aiwohi Michelle Alfano Patr√≠cia Almeida Rowena Abadiotakis Mikayla Adams Debra Aker Jessica Alfasi Jo√£o Vitor Almeida Zhanna Abaeva Patricia Adams Elisabeth Akers Pam Alfieri Ferreira Mandi Abate Rebecca Adams Stacey Akey Jenny Alfonso Sven Almen Mary Abbatiello Sarah Adams Lanta Akiewa Maria Alfonzo Jennifer Almodovar Tamunoipirinye Sharon Adams Kaye Akins Kelly Alford Helen Almond Abbey Tammy Adams Tamara Akiona Maggie Alford Sunni Almond Allison bbott Tanja Adams Taylor Akridge Ray Alford N Almonte Catherine Abbott Tara Adams Melinda Akridge Wyley Alford Brandy Alonso Colton Abel Tom Adams Erin Al-Nakeeb Brooke Alfred Taylor Alonso Dana Abel Antonia Adams Jody Al-Saigh Shiela Alger Angela Alonso Amy Abell Cheryl Adams Alaina Alaina Omar Alghamdi Gomez Lydia Abell Stacey Adams Cristiana Alaniz Marina Algien Jessica Alphonse Maria Abernathy Brenda Adams-Turk Beatris Alba Rebecca Aling Karem Alsaman Stevie Abila Sam Adamson Sandra Alba Shannon Alivado Ahmad Alsamman Angele Abington Jessica Adamson Kim Albanese Debbie Allan Kayla Altendorf Kristen bles Emily Adaway Trinity Albarado Kimberly Allan Heather Altenhofen Miranda Ableson Janelle Aday Mary Albaugh Elyse Allard Kathrin Altenhoff Brooke Abola Serena Addington Brandi Albea Jessie Alleman Ann Altherr Nada Aboshawish Lindsey Addis Jesdica Alber Alaina Allen Sue Althiser Paulette Abourjaily Danielle Addison Elizabeth Albers Anne Allen Rebecca Altier Erik G. Abrahamson Lorie Addison Katie Albers Cassie Allen Lara Altieri Flaquer Rogerio Abrantes Sophia Addison jan albert Dean Allen Alex Altimas Kim Abreu Stefanie Adjami Maria Albert Jason Allen Sarah Altman Andrea Abshire Carol Adkins Courtney Albertelli Jen Allen Eliud Alvarez Diane Abshire Dawn Adkins Blayne Albertson Jill Allen Garcia Alvarez Thomas Abshire Loretta Adkins Kristy Alblas Julie Allen Joanna Alvarez Ingrid Abu Ata Megan Adkison Linda Albrecht Karen Allen Robin Alvarez Joy Abuhl Patricia Adler Karen Albright Katie Allen Shyanne Alvarez Pamela Acasuso Andrea Adolph Mike Albright Kelly Allen Anna Alvarez Laurelin Accardo Silkia Adrovet Anton Alcantara Laura Allen Jeanette Alvau Gina Acee Fernanda Afonso de Jennifer Alcorn Linda Allen Giovani Alves Lucy Acerno Almeida Kathy Alcos Liz Allen Maryellen Alves Gustavo Acevedo Aakriti Ag Leyani Alcos Marge Allen Vivianne Alves Amanda Achacon Jennifer Agamenon Meredith Alden Melaina Allen Alex Alves Gomes da Caresse Acheuler Samantha Agan Annette Aldergren Nikki Allen Silva Michele Acker Catherine Aganon Alyssa Alderman Pamela Allen Ashley Alwert Marnie Ackerman Natasha Carolin Aldinger Pearl Allen Diane Alwxao Kendall Ackner Agathangelou Leslie Aldrich Peggy Allen Fatima Alzarbi Erika Acosta Sarah Aggarwala Sara Aldrich Rhian Allen Maggie Amadeo Ingrid Acosta Margaret Agley Pam Aldridge Shela Allen CRAIG AMAN Michelle Acosta Shelly Agnes Irene Ale Stephany Allen Lynn Aman Hannah Acton Taylor Agnes Gabriel Aledo-Rentas Susan Allen Pompolin Amanda Linda Acton Tiffany Agnese Thomas Aleksiewicz Angela Allen Cristina connie acuna Dana Agrest Joan Aleman Debra Allen Amy Amanti Erick Acuna Diego Agudelo Stephanie Jessica Allen Carlos Amaral Jane Acuta Dejaik Aguiar Alepoudakis Leslie Allen Giselda Amarante Sandy Adamietz Marlom Aguiar Aleiza Alerta Pamela Allen Larissa Amato Colleen Adamo Nicole Aguiar Becky Alessi Virginia Allen Marie Amato 85

COMMUNITY SIGNATURES Friends, Family and Other Supporters of Individuals with PWS

Rosa Amaya Sheena Anderson Drew Angotti Margie Ardelean Deena Artey Elisabeth Amedee Sydna Anderson Laura Angotti Oana Ardeleanu Angela Arthur Stephanie Amedee Tara Anderson Megan Angotti Melissa Arden Rachel Arthur Guilherme Amelio Tina Anderson Stephani Angulo Sophie Ardern Shawn Arthur Jamke Amelio Kathleen Anderson Juliana Anhelli Natallia Ardynskaya Tabytha Arthur Mary Ameln Kaye Anderson Leandro Anhelli Inca Arechiga Caitlin Arthur Jennifer Amento Korinne Anderson Ana Anjos Ashley Arellano Kirsty Artus Thomas Ameringer Sara Anderson Jennifer Ankerberg Michelle Arends Thea Arvisu Connie Amerson Lars-Olof Andersson Megan Anonick Stephanie Arenholz Nicole Arzola Ashley Ames Lena Andersson Someone Steven Arenholz Abby Asaad Alessandra Ameztoy Pia Andersson Anonymous Gilbert Arevalo Jennifer Asare Jaina Amin Gunilla Andersson Claula Mariko Anraku Gillian Arganetto Steve Asbury Lisa Amlung Mikaela Andersson Clelia Anraku Debbie Argentina Jeanette Ascher Bethany Ammons Nancy Anderton Lilian Ansari Alexa Argentina Alexis Ashby Caroline Amonson Susan Andetson Erin Ansell Carmen Argeo Jenna Ashcraft Kara Amore Diane Anding Raquel Antón Jenna Argo Chris Ashkie-Belknap Jennifer Amos Carrie Andrade Harvey Antczak Julianna Arita Dana Ashley Roxzanne Amos Flávia Andrade Sarah Anteliz Marly Arita Laura Ashley Theresa Amos Macey Andrade Kris Anth neli tie Arita grom Val Ashley Angela Amundsen Rafael Andrade Becky Antholz Neth Arkanoff Andrew Ashley Lonnie Amundson Scott Andrade Allison Anthony Catherine Arki Karen Ashmont Jessica Anaya Flávia Andraus Jaqui Anthony Michele Armand Christopher Ashness Stef Anderko Troyano Patricia Anthony Tracy Armbrust Mollie Ashness Deanna Anders Kassia Andre Leo Anthony Yolanda Armelin Paul Ashness Rachel Anders July Andrea Amy Anticoli G Armer Aishling Ashton Alaina Andersen Dominick Kati Antill Sharon Armiger Juanita Ashton Alicia Andersen Andreacchio Kaye Antoni Tina Armijo Jennifer Ashton Ashleigh Andersen Lori Andreen Angela Antonio Jay Armitage Nancy Askar Heather Andersen Javier Andres Antria Antoniou Debbie Armstrong Rachel Askar Julie Andersen Shannon Andresen Chryso Antoniou Jeanne Armstrong Jayla Askvig Amanda Anderson karla andrew Maria Antoniou Lisa Armstrong Tahir Aslan Amie Anderson Deann Andrewlevich Ernie Antoniw Sara Armstrong Jessica Asmis Angela Anderson Beth Andrews Julia Antoniw April Armstrong Brooke Asnis Angie Anderson Elaine Andrews Peter Antoniw Brett Armstrong Hanna Asrat Ashley Anderson Evelyn Andrews Elizabeth Anttonen Carrie Armstrong Janis Asrat Bayle Anderson George Andrews Alma Anzaldua Christopher Samra Asrat Bengt Anderson Janell Andrews Tash Aol Armstrong Julie Assenmacher Bobbi Anderson Kathleen Andrews Ineide Aparecida Elizabeth Armstrong Noel Ata Bria Anderson Lisa Andrews Ferreira Souza Julie Armstrong margaret atchison Carlye Anderson Mardi Andrews KALI APESLAND Niyani Armstrong Christine Atella Darylene(Dee) Mary Andrews Leigh Anne Apke Pamela Armstrong Deborah Atella Anderson 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Paula Aungst Debra Babin Stephen Bailey Colleen Ball Andrea Barbknecht Kim Auricchio Amanda Babin Tammy Bailey Lyndsay Ball Rubens Barbosa Michelle Austin Jessica Babler Ashley Bailey Meredith Ball Dawn Barbosa Sarah Austria Amanda Baca Diane Bailey Stacy Ball Austin Barbour Larry Autar Bernadette Baca Jessica Bailey Summer Ball Chasity Barbour Gina Autry Joshua Baca Lynda Bailey Melissa Ballance Courtney Barbour Andrew Avara Tarren Baca Tracey Bailey Gemma Ballantyne Taylor Barbour Arthur Avart Bob Bachar Laura Bailleul Wanda Ballard Katherine Barbrey Naomi Avart Melissa Bachler Brittany Bain Cyndi Ballard Lauren Barclay Taylor Avazpour Juan Bacigalupi Ann Baird Suzanne Ballas Chris Barcom Alex Averiss Sara Backhus Dillon Baird Lori Ballester Erika Bardal Clare Averiss Jennifer Backie Kelsey Baird Gustavo Ballesteros Jacki Barden Charles Avery Ruben Backof MaKayla Baird Rey Ballesteros Kathy Bardwell Donna Avery Ro Backues Brooke Bairos Tammi Ballew Kate Bareham Jody Avery Shelly Baclesse Michelene Bajakian Brittany Ballweg Susan Barfield Larissa Avery Jacquelyn Bacon AnneMarie Baker Benjamina Balmer Toufiq Bargach Jessica Avery Boom Bacosa Bonnie Baker Tess Balster Kenza Bargach Kali Avgerinos Katie Badalucco Briana Baker Aldwin Baltazar Sarah Bargas Heloisa Avila Connie Badayos Brittany Baker Sarah Baltz Diane Barghi Matthee Avila Cimbria Christie Baker Vanessa Balzano Neely Barham Maritzabel Aviles Badenhausen Danielle Baker Kathleen Balzer Debra Barhight Niki Avina Marci Badgerow Darbi Baker Carolyn Bambao amy barient Diane Avsec Cindy Badtidas Darla Baker Joyce Bambao Adriana Barillari Katie awwad Wendy Badua Heather Baker Barbara Bamford Alan Barker Patricia Axelsen Amanda Baehren Holly Baker Geoffrey Bamford Brooke Barker Therese Axelsson Catherine Baer Jamie Baker Mônica Bammann Candler Barker Jan Aya-ay Christina Baessler Jane Baker Elodie Bamukuze Danielle Barker Amanda Ayers Larissa Baeta Jason Baker David Banach Debera Barker Trish Ayers FEDERICO BAEZA Jennifer Baker Andrea Banas Janet Barker Johnathan Ayotte Michelle Baeza Jennifer Baker Rita Banatshini Kelli Barker Deborah Ayres Margaret Baffige Jody Baker Yvonne Banchon Kristi Barker Madelyn Ayres Rebecca Bagdy Karen Baker Lindsay Bandini Paul Barker elisabeth Ayuso Sarah Baggaley Kathleen Baker BRIDGET BANDY Angela Barker Beatriz Azevedo RACHEL Baglin Katie Baker Sarah Bangala Laura Barkett Mirian Azevedo Wendi Bagshaw Leslie Baker Leslie Bangamba Ellie Barko Pam Azevedo Margaret Bagshaw Linda Baker Darlene Banich Kathy Barko Maria Azevedo Editha Baguio Marie Baker Amber Banister Deborah Barkworth Ricardo Azevedo Francis Baguio Paula Baker Donna Banker Ian Barkworth Franca Azzato Brandy Baham Rita Baker Chavala Banks Sarah Barkworth Alison B Jessica Baham Sara Baker Dionne Banks Kayla Barman Brandy B Scott Bahl Sara Baker Emily Banks Kelly Barnaby Christine B Colleen Bahle Shannon Baker Erin Banks Leslie Barned Colleen B Barbara Bahm Sylvia Baker Jessica Banks Anne Barnes Denise B Nancy Bahr Tina Baker Vikki Banks Chad Barnes Donna B Courtney Bahrou Valerie Baker Breanne Bankston Deanna Barnes Heather B Heidi Baikie Holly Baker Michelle Bannio Erin Barnes Jen B Michael Baikie Monica Baker Amy Bannon Hannah Barnes Jeremy B Maureen Baikie Jabby Bakhit Cathy Bannon Henrietta Barnes Justin B Angela Bailes Amy Bakies Clare Bannon Janet Barnes Katherine B Jennifer Bailet Brooke Bakke Helen Bannon Jennifer Barnes Katie B Allison Bailey Tabea Bakke John Bannowsky Kelly Ann Barnes Lance B Andrea Bailey Judith Bakos Arnold Baptista Tessa Barnes Lisa B Jack bailey Hyatt Bakri Ellie Baquiran Ashley Barnes Lisa B Jamie Bailey Ree Baksh Arlene Bar-Yosef Jordan Barnes Mackenzi B Jan Bailey Danelle Balbach Mari Barajas Taylor Barnes Marguerite B Jennifer Bailey Melody Balcet Gustavo Barandas Amanda Barnett Mark B JENNIFER BAILEY Kenzie Balch Erika Barash Kelly Barnett Nick B Karen Bailey Winston Baldeo Vanessa Barbam Barbara Barnett Sarah B Kelly Bailey Pauline Baldock Jackson Barbee Steven Barnett Shawna B Laura Bailey Kristina Baldridge Ann Barber Brie Barnhart Tanya B Laurie Bailey Tovah Balducci Beth Barber Brittany Barnhart Tina B Lisa Bailey Ashley Baldwin Jane Barber Carrie Barnish Virginia B Mandy Bailey Hailey Baldwin Juliane Barber Vicki Baron Christine Ba log Melissa Bailey Liz Baley Julie Barber Tiffany Barone Leilani Baba Michael Bailey Leonila Balite Kara Barber Allison Barr Anita Babani Minta Bailey Monette Balite-Lacap Sandra Barber April Barr Pamela Babbs Rebecca Bailey Amalie Ball Julie Barber- Brier Barr Lindsey Babcock Rosalyn Bailey Ann Marie Ball Greenleaf Fallon Barr Ronda Babcock Sara Bailey Ashley Ball Mary Barbier Rena Barraclough Susan Babcock Staci Bailey Barbara Ball Bridget Barbieri Daniela Barragan 87

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Brittany Barrett Selma Bauab Rachel Beattie Sabrina Bell Dawn Benson Janet Barrett Tufik bauab jr Heather Beatty Tiffany Bell Nicole Benson Kris Barrett Deborah Baucom Jim Beatty Ashley Bell Tara Benson Miranda Barrett Ella Baudouin Sarah Beatty Shannon Bell-Carney Lisa Benson Shawn Barrette Jade Baued Sarah Beatty Sarene Bellamy Morgan Benson Kristen Barrick Amy Bauer Kelly Beaty Kathy Belland Maria Bentin Carol Barrick Ortega Andrew Bauer Brenda Beauchamp Lauren Bellao Kate Bentley Jessica Barrier Beth Bauer Maegan Beaudet Brittney Bellar Leslee Bentley Nancy Barringer Erika Bauer Trevor Bechtel Julia Bellard Jamie Bentley Shelley Barrington Kelsey Bauer Anne Beck Cheryl Bellew Jenn Benton Suni Barrios Laura Bauer Carolyn Beck Maria Belli Josh Benton Leah Barron Liz Bauer Courtney Beck Julie Bellina Kristina Benton Carla Barros Nicole Bauet Deanna Beck Susan Bellis Joclynn Benton Lucas Barros Moura Nancy Baugher Dustie Beck Lisa Bello Windy Benton Kari Barrows Carli Baughman Holly Beck Minnie Bellomo Louise Benwell Cortney Barry Chelsea Baughman Leah Beck Kris Bellows Todd Berardicurti Kristi Barry Michelle Baum Margie Beck Doris Beltre Christine Berardicurti Patrick Barry Caryn Baum Mary Beck Alyssa Belush Barbara Berdock Lori Bartee Jennifer Bauman Mary Beck Aline Belzile Laura Berdock Candice Bartel Sandra Bauman Shannon Beck Emilie Belzile Michelle Berena Sarah Barth Tom Bauman Michelle Beck- Doris Bemis Kayleigh Berenzy Misty Barthel Christine Bauman Weidner Mindy Bemis Robert Bererick Lauren Barthelmes Lilly Bauman Carrie Becker Maria José Pedro Bergamim April Barthold Jenifer Baumann Chris Becker Benítez Annette Bergendahl Patricia Barthold Susan Baumann Jackie Becker Jen Benalt Samantha Cynthia Bartholomee Christine Baumgart Katie Becker Alex Benavidez Bergendahl John Bartholomee Dawn Baumgartner Lisa Becker Jenny Bender Alexa Berger Rick Bartholomee Jennifer Baumgartner Peggy Becker Kathryn Bender Amanda Berger Angela Bartie Julie Baunach Randy Becker Courtney Bender Anne Berger Allison Bartkoski Sandra Baustert Jenna Becker Amanda Bendis Emilie Berger Carl Bartlett To And Lor Baxa Wendy Becker Abby Benedetti Kristen Berger Kimberly Bartlett Caitlin Baxter Karen Beckley Derek Benedict Leslie Berger Kristine Bartlett Cheryl Baxter Alese Beckman Daniele Benedito Matt Berger Molly Bartlett Jen Baxter Jessica Beckner Courtney Benedum Melissa Bergeron Jessica Bartley Jennifer Baxter Rachel Beckwith Kristin Benefield Taylor Bergiel Sheena Bartolome Lels Baxter Janecka Beckwtt Angela Bengtson Courtney Bergman Scott Bartow Timi Baxter Leg Becor Dsle Bengtson Matt Bergoon Kelli Bartruff Jillian Baxter Cheryl Bedard Karen Bengtson Barb Bergstrom Suzanne Barulich Robert Bay Leanne Beddow Erika Benhardt Lauren Berkebile Barbie Basa Caitlin Bayer Kristy Beebe Macarena Benitez Nicole Berman Sheryl Basa Jennifer Bayer Stacey Beebe José David Benito Susana Bermejo Gali Basel Kyle Bayer Elizabeth Beech Mata Dane Bermudez Jessica Bashlor Leslie Bayer Sally Beecroft AUBRI BENJAMIN Kasey Bernard Claudia Basiala Victoria Bayer Jenny Beedie Kayla Benjamin Pamela Bernard Stella Basque Robin Bayless Chris Beggs Nadina Bennazar Katie Bernato Cait Basquill Keli Bayrouty Morgan Beggs Christine Benne Sara Berndt Byron Bass Jennifer Baysden Adriana Begley Christopher Benner Brandon Berning Tawney Bass Shallyn Bayuk Leah Behlmann Ashley Bennett David Berninger Joan Bassett Leatha Bazillikn Emily Behr Bailey Bennett mara bernstein Amanda Bat Elisangela Bazzi Ethan Beier Bridget Bennett Mara Bernstein Janelle Bata Sarah Bea Amy Beith Brooke Bennett April Berry Kathleen Batchelder Joy Beach Tiffany Beitler Heather Bennett Elizabeth Berry Robyn Bate Miranda Beach Carol Belanger Jane Bennett Helen Berry Lauren Bateman Heather Beach Krissy Belanger Kay Bennett L Berry Gail Bates Jen Beachem Nancy Belanger Kris Bennett Michelle Berry Kate Bates Karen Beakley Emma Belfer Lesley Bennett Molly Berry Lisa Bates Kathy Bean Joseph Belger Maddie Bennett Nichola Berry Marilyn Bates Patricia Beard Rachel Belkov Martin Bennett Dianne Berry Melanie Bates Stephanie Beardsley Art Bell michelle bennett John Paul Bersabe Nicole Bates Sue Beardwood Barbara Bell Natasha Bennett Jane Bersan Taylor Bates Cindy Beasley Elizabeth Bell Patricia Bennett Ashley Bersano Kayla Bates Hailey Beasley James Bell Brooke Benoit Lisa Bertolani-Olson Virginia Bator Heather Beasley Jill Bell Hunter Benoit Sara Bertonassi Anna Batschauer Leigh Beasley Karen Bell Karissa Benoit Sebastian Bertsche Jessica Batt susan Beasley Katie Bell Megan Benoit Tricia Bertucci Lynn Batten Megan Beasley L Bell Brian Benschoter Olivia Bess Luciano Battistini Oona Beat Malinda Bell Amber Benson Yajaira Bess Kelli Batts-Jaczynski Ginger Beattie Michaela Bell Amy Benson Carlos Bessa Kekai Batungbacal Joanna Beattie Regan Bell Carrie Benson Susan Bessette Kathy (me) Baty Laura Beattie Ruth Bell Danielle Benson Kayla Besson 88

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Barb Best Jennifer Binkley Melissa Blaikie Valéria Boabaid Amanda Bonanni Ellen Best-Laimit Stephani Binschus Abby Blair Melissa Boastick Erin Bond Kristi Bestwick Amuna Biondi Jeffrey Blair Kenneth Boatman Lotte Bond Jackeline Betancourt Emily Biondo Karla Blair Heather Bob nora bond Stacey Betger D Bior Kristen Blair Stacey Bobbitt Irena Bondarenko Candace Bethke Claire Birch Sara Blair M Bobby Joshua Bonds Lisa Bettany Micaelia Birch Linzi Blair Carla Bobell Shannon Bondurant Lindsay Betterton Emma Bircher Dennis Blake Arielle Bobian Victoria Bondurant Jessica Bettmann Maureen Bircher Erin Blake Cristal Bobonis Rhonda Bone Amy Betty Hannah Birchman Linda Blake Claudia Bocardi Georgia Bonfá Patrick Betu Amanda Bird Meg Blake Jenny Boche Victoria Bonfante Michelle Betz Amy Bird RICHARD BLAKE Misty Bock Jade Bongers Sherri Betz Jessica Bird Terry Blake Pat Boden Carol Bonham Heather Beurket Laura Bird Kelly Blake Erin Bodine Cindy Boning Allie Beutel Jennifer Birdsong-Ng Jenny Blaker Jana Bodine Camila Bonini Jenny Beutel Hope Birdwell Jana Blalock Linda Bodzin Tricia Bonlander Marilyn Beutel Chryssi Birely Bobbi Blanchard Briana Boeggeman Emily Bonnell Thea Beuze Kristina Birge Cagney Blanchard Brenda Boehm Lindsay Bonnett Tiffany Bevan Mary Birkel Casey Blanchard Katie Boehm Ally Bonniville Amy Beveridge Senka Birmingham Denray Blanchard Liz Boehnke Holly Bonomo Kana Beverly Moira Birss Erica Blanchard Sarah Boerma Desorae Bonov Beadley Beychok Erin Birza Holly Blanchard Taylor Bogan Brandon Bons Aileen Beyer Lori Bischof Kayla Blanchard Heidi Bogetveit Alicia Boock Nancy Beyersdorf Juliette Bischoff Lori Blanchette Jenni Boggess Jane Boog Catherine Beynon- Beth Bishop Donna Blanco Eleni Boggis Janelle Booher Pindar Brian Bishop Frank Blanco Jr. Mitchell Bogust Lisa Book Sian Beynon-Pindar Josh Bishop Nancy Bland Katherine Bohannon Carrie Booker Amanda Bezanson Kathy Bishop Ann Blandford Lenore Bohn Jennifer Booker Thiago Bezerra Kimberly Bishop Kristen Blando Cyndy Bohn Joel Booker Gargi Laura Bishop Lei Blando Leidy Bohorquez Meredith Booker BHATTACHARYA Noah Bishop Elaine Blaney Judith Boiar Stephen Booker Sherilyn Biagini Patt Bishop Lisa Blank Patricia Boise Stacy Bookland Staci Bianchetta Lisa Bisig Marydae Blank Marvin Boiser Bryan Boone Kristy Bianchi Kristen Bisnette No Blank Elizabeth Bokermann Jackie Boone Emilia Biavaschi Haru Bitonti Tracy Blank Emily Bokhart Laura Boone Sara Bibb ANNA LUISA Clare Blankemeyer Elaine Boland Lindsay Boone Therese Bibby FERNANDES Linda Blanker Tammy Boland Loren Boone WOLKER BICALHO BITTENCOURT Joshua Blanks Sophie Bolas Bernadette Boone Jess Bickham Jessica Bitting Jessica Blanton Emily Bolbach Brenda Booth Lynda Bidwell Christine Bittler McKenzie Blanton Andrea Bolda Colleen Booth Elaine Bieber jerri bittner Chelsea Blatchford Morgan Boldt Danielle Booth Elisabeth Biebl Kristen Biv Jordan Blatnick Amber Bolduan Effi Booth Corinne christine Bivins Jen Blatz Richard Bolen Margaret Booth Biedenbender Michele Bizon Melanie Blazek Mariana Bolfarine Susan Booth America Biedermann Lisa Bizzozero Tamar Blazer Olivia Bolin Cari Boozel Candi Bielman Kathy Bjerke CRISTINA Lori Bolinger Crystal Bopp Sunni Biernstein Marie Bjerke BLAZQUEZ Jessica Boller Kathy Bopp harmony biga Joy Bjork Carol Bleich Laura Bolling Nakia Bopp Brittany Bigelow Sheri Bjork Angela Blevins Rachel Bolognino Nathen Bopp Anne Biggins Becky Bjorkman Kathy Blevins Thiago Bolotta Christine Borato Sherrie Biggs Kristine Bjorum Joyce Bliss Machado Kristin Borbely Carole Biglands Nina Bjurving Carrie Blohowiak Samantha Boltax Rachel Borchardt Adam Bihn Michelle Black Liz Blomer Carla Bolter Abby Borchardt Ddnnis Bihn Chelsea Black Robin Blomquist Heather Bolton Layne Bordelon Sandy Bihn Kara Black Pernilla Blomqvist Etha Bolton Carla Borecky Mariel Bilbao Krista Black Jody Blood Janet Bolton Julma Borelli Liz Bilek Laura Black Joan Bloodgood Aaron Boltz Teri Borge Yvette Bilello Shimrit Black Erin Bloomquist Rebecca Bomasuit Dora Borgen Evelyn Bilicki Amy Black Carrie Blount Regan Bombardier Nancy Borger Catriona Billet Carrie Black Vicky Blowers Shannon Bombardier Gustavo Borges Laura Billings Stacy Blackbourn Amy Blueiyt Bobbie Jo Bomkamp Brasil Kate Billings Eleanor Blackburn Hillary Blum Emily Bona Brittani Borgmann Matt Billingsley Gary Blackford Kristi Blum Megan Bonafede Emma Borgmann Beth Billington Dee Blackmon Stephanie Blum Adriana Bonalumi Liliana Borja Sandra Billington Jenna Blackmon Danielle Blumenthal Alberto Bonalumi Dana Borland Lisa Bills Laura Blackmore McKenzie Blumhagen Emiliana Bonalumi Ellen Borland August Binder Angie Blackwell Julia Blunt Fabio Bonalumi Oksana Bormotova Megan Binger Annise Blackwell Lisa Blunt Lucia Helena Julie Borne Debbie Bingham Ashley Blackwell Kate Blythe Bonalumi Sharon Bornhofft Angela Binkley Sherry Blackwell Lisa Blythe McKenzie Bonam Catherine Borovian 89

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Kelly Borowiak Judy Bowman Lian Bradley Rebekka Brattston Karen Brigham Denise Borrelli Teri Bowman Maureen Bradley Beverley Brattston Lindsay Brigham Lori Bortmas Valerie Bowman Pilar Bradley Caitlin Brauer Ashley Brigham Molly Bortnem Melissa Bows Maria Bradshaw Joann Braun Diane Bright Andrea Bortscheller Allison Bowser Brenda Bradshaw Sandra Bravo MICHELE BRIGHT Rita Boryszak Bethany Bowser Stephani Bradshaw Gavin Bray Kathie Brigmon Robert Borzillo Peggy Bowser David Bradt Sophia Bray Carmen Brigulio Melissa Borzouye Kim Bowyer C Brady Stephanie Breault Tiffany Briley Kris Bosak Mackenzie Box Caroline Brady Amalia Breed Elaine Briley Laura Bosak Perpetualist Boxie Ciaran Brady Lauren Breeden Aaron Brill Angel Bosarge Ashley Boyd Deirdre Brady Brendan Breen Gail Brill Jeanie Bosen DR james BOYD Fergal Brady Diana Breen Amanda Brillante Robin Boss Jada Boyd Hazel Brady Jeeni Breen Katie Brin Amber Boston Jenn Boyd Jasna Brady Patrick Breen Betty Brindza Stacy Boston Kelcie Boyd Jenn Brady Cindy Breese Eliza Brink Daniela Botelho Linda Boyd Margaret Brady Matt Brehn Sarah Jo Brinson Bittencourt GUEDES lisa boyd Mary & Gerry Brady Hanna Brehner Maeve Briody Krista Bothman Lorraine Boyd Melissa Brady Harry Breiner Kirsten Brioned Sabrina Bothwell Maggie Boyd Pauline Brady Christina Breithoff Maria Briones Jenny Bott William Boyd Philip Brady Amber Bremer Bonnie Brirron Kristie Botta Lacey Boyd Rosemary Brady Ryan Bremkamp Alex Brisendine Marian Bottorff Norma Boyden Shelly Brady Margaret Bremner Gary Brisendine Jennifer Bottos Alissa Boyer Siobhan Brady Christine Brendel Linda Brison Phoebe Bottrell Anthony BOYER Siobhan Brady Jennifer Brendel Deanne Britt Natalie Botzang Jolan Boyer Una Brady sam breneiser Jennifer Britt Jess Bouchard Kathy Boyer Laura Brady Aimee Brennan Sarah Britt Claudia Boucher Matthew Boyer Ruth Brady Bryce Brennan Samantha Britt Cletus Boucher Natalie Boyer Sinead Brady Michael Brennan Kevin Brittingham Gerald Boucher Olivia Boyer Teresa Brady Shawn Brennan Amy Britton Glenna Boucher Sherrie Boyer Paulo Braga Kathleen Brennan Amanda Britton Jasmine Boucher Kathy Boyer Faye Bragg Ann Brennan-Zelenka Kathie Britton Robert Boucher Laura Boyer Lauren Brahimsha Brice Brenneman Meghan Broadhurst Simone Boucher Sarah Boyer Tina Braid Leon Brenneman Christine Broadus Tracy Bouchillon Joanna Boyes Andrew Brake Steve Brenneman Mike Broadus Mary Lou Boughton Emily Boyett Carina Brake Amelia Bresani Lacey Broadus Stephanie Boulay Adam Boyette Laura Brakefield Jane Bresani Karen Brochu Troy Boulding Elizabeth Boyette Eva Braman Nick Bresani Kassi Brochu Michelle Boule Nicole Boyette Alejandra Bran Jeri Breshears Breanna Brock Makensie Boulger Aoife Boylan Joni Bran Caroline Breslin Carli Brock Heather Boulger Anne Boyle Paula Branca-Santos Christopher Breslin Diane Brock Caitlin Boulier Jess Boyle Cassie Branch Nadine Breslin Kaya Brock Alice Boulton Louise Boyle Brandi Branch Kyla Bresnahan Samantha Brock BREANNA BOUNDS Monica Boyle Vicki branchini Luana Bressam Debbie Brock Irene Boundy Susie Boyle Earllet Branco Jean Brett Dustin Brockman Caitlynn Bourff Gina Boyle Stephanie Brand Betsy Bretwisch Stephanie Brockman BRYAN BOURGEOIS Sara Boyles Andre Brandao Alexandra Breuer Tabea Brockman Adrienne Bourgeois Kim Br Karen Brandao Ruth Breunig Christine Brockway Patricia Bourne Connie Brabham Sabra Brandon Alisha Brewer Lisa Broderick Bruce Bourque Joyce Brace Heather Brandsma Brittany Brewer Melissa Brodeur Agnieszka Bourret Kimberly Braceros Lynn Brandt Brook Brewer Robin Brodeur Celina Bouse Kathleen Brach Talia Brandt Casey Brewer Rhoda Brodie Holly Bowden Jessica Bracken Roseann Brandtjen Casey Brewer Sharon Brodkey Jeremy Bowden Kathleen Brackman CJ Branen Erika Brewer Laura Brodsky Jill Bowden Joanne Brackmann Heather Branham Julie Brewer Lacey Broedel Laura Bowden Betty Bradbury Megan Branigan Dorothy Brewster Jack Brogan Rebecca Bowen Samantha Bradbury Anna Brannen Tina Brice John Brogan Sarah Bower Vanessa Bradby Anna Brannon Jeff Brickler Leah Brogan jill bowers Lisa Brade Tina Brant Chris Brickweg Paige Broghammer Jen Bowers Sharon Braden Billie Brantley Carol Bridger Ron Bromilow Dana Bowie Amanda Braden Estelle Brantley Graham Bridger Maria Brondel Tabetha Bowing Ashley Bradley Jodi Brantley Rebecca Bridger Jennifer Brontsema Lauren Bowler Elaine Bradley Karolyne Brasil Jacqui Bridger Aim broo Natasha Bowler Kathleen Bradley Marcos Brasil Danny Briggs Alison Brook Katelyn Bowlin Laura Bradley Valci Brasil Donna Briggs Rebecca Brookes Lindsey Bowlin Lindsey Bradley Victor Brasil Janice Briggs Lizz Brookes Susan Bowling Liz Bradley Victor Brasil Kim Briggs Bridget Brooks Amber Bowman Michelle Bradley Holly Bratcher Kristen Briggs Britine Brooks Beth Bowman Molly Bradley Arielle Brath Nadine Briggs Cresside Brooks Jan Bowman Sarah Bradley catherine brattin Tammy Briggs Darin Brooks Josslin Bowman Tonda Bradley Libby Bratton Tonya Briggs Gidget Brooks 90

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Justin Brooks Lynn Brown Vanessa Bruna C Buenaventura Meghan Burnett Kerri Brooks Marcella Brown Moreira Santos Silva Marilyn Buenconsejo- Ruth Burnett Lisa Brooks Margaret Brown Joanne Brundage Myers Constance Burns Matalyn Brooks Margaret Brown Elizabeth Brunner Cayla Buentemeier Ellie Burns Michele Brooks Mary Brown Rachael Brunner Diane Buesing Jazzmyn Burns 61 Brookshire Mary Jo Brown Sara Brunner Cristina Bueti Jennifer Burns Diane Brophy Maya Brown Judi Bruno Angela Bufano Laura Burns Mary Brophy Molly Brown Lene Bruno Brenda Buhl Steven Burns Donna Bros Nancy Brown Megan Bruno Patti Buhler Tammy Burns Laia Brossa Norman Brown Helene Brunström Mara Buie Theresa Burns Brylee Brost Paige Brown Lynnell Brunswig Kurt Buker Michelle Burns Steph Brot Pamela Brown Michelle Brunton Shelby Bukhenik Vanessa Burns Wanda Brothers Pat Brown Colin Bruody Rebecca Bukofzer Andrea Burrell Amanda Brouhard Patrick Brown Lorenzo Brusa Kate Bullard Elli Burris Kayla Brouillette Payton Brown Megan Brusca Lorry Bullard Heather Burris Davantae Broussard Penny Brown Kayla Bruss Vickie Bullington Juli Burris Yvonne Broussard Phil Brown John Bruton Lorainne Bullock Kelly Burris Kim Brouwer Rachel Brown Lisa Bruton Windsong Bullock Leigh Burris Alicia Brown Reagan Brown Cristen Brutzkus Carla Bumbaco Shawna Burris Amanda Brown Robin Brown Sandi Brutzkus Amy Bumstead Natalie Burrows Amanda Brown Robyn Brown Courtney Bryan Danica Bunch Brody Burson Amie Brown Russ Brown Rachel Bryan Courtney Bundga Alanna Burtch Anna Brown Sara Brown Aimee Bryant Celine Bundschuh Denola Burton Arthur Brown Sarah Brown Chris Bryant Renea Bunner Erica Burton Betsy Brown Seth Brown Kailey Bryant Crystal Bunting Lisa Burton Bonner Brown Sheila Brown Kristen Bryant Kristine Meggan Burton Brandy Brown Stacy Brown Nadine Bryant Buonantuono Paula Burton Brittney Brown Stella Brown Shelley Bryant Nicole Bur Lily Burton Bryn Brown Suznane Brown Lindsey Bryant Shirley Burchfield Morgan Burton BS Brown Tami Brown Miranda Bryant Cyndi Burchfield Annette Burtschy Carol Brown Tamra Brown Sueanna Bryant Isairis Burchfield Kelley Busbee Charity Brown Tiff Brown Selena Bryany Amands Burden Elizabeth Busby Chenelle Brown Wendy Brown Nancy Bryce Carlie Burden Joseph Busby Chris Brown Anne Brown Blair Brys John Burdette Karlie Busby Christy Brown Atticus Brown Monique Bucci Kathleen Burdette Corey Busch Daisy Brown Chezwynn Brown Steven Bucci Ron Burdi Heather Busch Danielle Brown Grayson Brown Elena Buccino Michael Burdine Melinda Busch Debbie Brown Hannah Brown Rima Buch Brooke Buretta Becky Buseman Diana Brown Mary Brown Brenda Buchanan Noelle Burg Deena Bush Elizabeth Brown Megan Brown Dianne Buchanan Roger Burg Jennifer Bush Erica Brown Nicole Brown Ear Buchanan Sharon Burg Kathy Bush Erin Brown Sarah Brown Eric Buchanan Charlotte Burgess Louise Bush Heather Brown Shelby Brown Janet Buchanan Chris Burgess Meredith Bush Holly Brown Tammy Brown Luke Buchanan Jodi Burgess Nathan Bush Hutton Brown Debi Brown-Landrum Malisa buchanan Lauren Burgess Kim Bushell Irene Brown Ann Browne Michelle Buchanan Kimberly Burgess Sue Bushmaker Jackie Brown Barbara Browne Mary Buchanan Emily Burgner Luella Buske Jane Brown Laura Browne Stephanie Buchanan Yola Burgo Jennifer Busse Janice Brown Anna Browning Elizabeth Buchheit Jennifer Burja Nancy Bussey Jeana Brown Sarah Brownlee Nikki Buchko Shay Burk Stefanie Buswell Jeb Brown Ju Bru Aubree Buck Ashley Burke Chrissy busz Jenna Brown Anna Brualdi Betty Buck Betsy Burke Nancy Butchart Jessica Brown Karen Brualdi Debbie Buck Colin Burke Jen Butcher Jessica Brown Erin Brubacher Jeanmarie Buck Elizabeth Burke Stefannie Buthorn Jill Brown Laura Brubaker Mallory Buck Ginna Burke Eniky Butks Jo Ellen Brown Christina Bruce Suzanne Buck Katie Burke Alexis Butler JoAnn Brown Jane Bruce Connie Buckingham Madison Burke Brad Butler Joe Brown Jill Bruce Ronda Buckingham Paula Burke Destiny Butler Justin Brown Lindsey Bruce Ribin Buckler Shelby Burke Gaye Butler Kaityn Brown Nina Bruce Kelsey Buckles Wanda Burke Janet Butler Karen Brown Abby Bruch Kathryn Buckley Cheryl Burke Jenny Butler Kathy Brown Allison Brucklier Melissa Buckley Amy Burkey Katherine Butler katie Brown Molly Bruckner Tom Buckley Kaitlyn Burkey Kimberly Butler Katrina Brown Caitlyn Bruey Johann Buckner Stephanie Burkhalter Rob Butler Kevin Brown Karin Brugger Mindy Buda Anne Burks Susan Butler Lacey Brown Laura Brugger Christine Buda Jennifer Burkstrand Susan Butler Laura Brown Lena Brugger Colleen Budniewski Nancy Burlingame Gary Butler Lee Ann Brown Kelsey Brumett Beverly Buechel- Erik Burmeister Susan Butler Leslie Brown Sherri Brumley Moureau Marian Burmeister Heather Butrum Lucy Brown Kate Brummett Nicole Buehner Kristen Burnett Laura Butt 91

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Dana Buttaro Tony Cadena Lauren Callihan Natalie Cannon Pompolin Carlos Jen Buttercase Ramon Cadenas Keesha Calloway Tiffany Cannon Alberto Lindsay Buttles Kathryn Cadey Taylor Callsen Vanessa Cannon Ann Carlson Tracy Butzin Breyonna Cadina Karen Calnan Donna Cannon Barbara Carlson Kristen Buxton Jama Cadle Ross Caltabiano Carmen Cano Kathryn Carlson Kari Buynack Joanne Cadwallader D Calvert Natalia Canova Kelly Carlson Joanne Buys Melanie Cafaro Joey Calvin Lilly Canton Kelly Carlson Lindsey Byard Marie Caffrey Elsa Calvo Robert Cantrell Lauren Carlson Diana Bye Christina Cahalane Jonathan Calzini Tania Cantrell Megan Carlson Stephanie Byelick Anne Cahill Michelle Camacho Jaska Cantrell Pam Carlson Katie Byers Brian Cahill Michael Camara Jennifer Cantrell Rachel Carlson Remmy Byiringiro Charlene Cahill Diva Camargo Jennifer Cantwell Sharyn Carlson Amanda Bynum Maria Cahill Laura Camastro Angela Canty Ana Carlson Valerie Bynum Stacy Cahill Megan Cambron Linda Canty Gretchen Carlson 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Andrew Crosby Marie-Anne Culnane Janessa Cushman Amy Dale Kayla Darron Debby Croshaw Margaret Culotta - Tina Cusimano Cassie Dale Prodyut Das Barbara Cross Norton Julie Cusokito Kristina Dale Mary Dator Crystal Cross Robert Culpepper III Elizabeth Cutler Olga Dale Georgina Daubney Leo Cross Christine Culter Emily Cutler Ashton Dale Carmen Daubs Michael Cross Kadi Culwell Marlene Cutler Elizabeth Daleandro Meri Daugherty Christen Crossett Peggy Cumberland Cher Cutterham Kilrigh DAlessio Kim Daugherty Karen Crossley Emma Cummings Rachel Cuzzo Amanda Daley Laura Daulton Amber Crothers Lisa Cummings Jenny Cygan Kim Daley Andi Daunais Nancy Crothers Nancy Cummings Patrick Czakaj margaret daley Samantha Dauphin Sara Crothers Nicole Cummings Brittany Czako Sharon Daley Lindsay Dauphinee Emma Crotty Shannon Cummings Kaylee Czarnik Lori Daley Lauren Daurizio Loretta Crotty Tammy Cummings Aga Czechura Sharlene Daley Tanya Davey Seamus Crotty Elizabeth Cummings Chris Czislowski Anila Dalipi Chandra David Aina Crouch Christine Cummins Bridgette Czuba Resul Dalipi Edward David Jessica Crouch Ellen Cummins Jillian Czuczuk Marjorie Dalisay Joleen David Sarah Crouch Lesley Cummins Carol D Brynn Dall Lisa David john crouse Laura Cummins Emily D Ana Paula Dalla Sandra David shanassa Croutch C Cummiskey Erin D Stella Ferreira Zachary David Tammy Crouthamel Inés Cunanan Jen D Aline Dallaire Frances Davidson Nadine Crowe Ângela Cunha Jennifer D Tamara Dallmann Sarah Davidson Aisling Crowley PAULO CUNHA Joy D Holeton Corinne Davies Meredith Crowley Eamonn Cunnane Kristin D Melissa Dally Katy Davies Claire Crowley Dan Cunning linda d Jennifer Dalrymple Ashy Davies Debora Crowley Angie Cunningham Meg D Kristin Dalsner Fernanda Davila Joan Crowley Arlie Cunningham Patrick D Kyndra Dalton Alexandra Davis Heather Crudder Cynthia Cunningham Rosie D Siobhan Dalton Alyce Davis Daphne Crum Dylane Cunningham John D'Antoni Rose Dalton Amanda Davis Erin Crum Keri Cunningham Melissa D'Antuono Kristin Daly Andrew Davis Tamar Crum Lisa Cunningham Carla D'ARBO Orla Daly Angie Davis Brenda Crumbley Sarah Cunningham Aaron D'Arcy Tobi Daman BIANCA Davis Denise Crump Carrie Cunningham Jodie D'Costa Carolina Damião Brian Davis Jami Crumpton Chris Cunningham Danielle D'Sena Ferreira Chris Davis Kristan Cruse Judy Cunningham Irene D’Ambrosio Allison Damico Connie Davis Alvin Cruz Karen Cunningham Kelly D’Emilia Andrea Damico Cynthia Davis Awilda Cruz Lynne Cunningham Thomas and Kathy Chris Damico Elizabeth Davis Miranda Cruz Tori Cunningham D’Onofrio Jennifer Dammann Elizabeth Davis Patricia Cruz Pam Cupp Candy Da Piedade Robyn DAmora Emily Davis Sebastián Cruz Colleen Curasi Andre Da Silva Skip Dampier Erica Davis Yesenia Cruz Ording Delmo Da silva Andria Damrell Heidi Davis Kellie Cruz Enza Curatolo Patricia da Silva Jeff Dan Holli Davis Ernestine Cruzado Jennifer Curcio Belem Christina Danco Holly Davis Emese Csoma Ebony Cure Juliane Da Silva Tracy Danco J Davis Linda Cteager Anja Curiskis valente Melissa Danese Jean Davis Natasha Cu8 Shannon Curley Katie Dabba Angela Danford Jen Davis Ana Cuaron Alluson Curran Jen Dabisch Arielle Dang Jennifer Davis Lauren Cubbage Andrew Curran Lynsey Dacey Phuoc Dang Jennifer Davis Carlo Cubillejo Brian Curran Emman Dacles Tia Dang Judy Davis Caitlin Cudd Brooke Curran Luciana Dadalto Truc Dang Kaitlin Davis Mary Cuddihy Gina Curran Jennifer Daddabbo Holly Daniel Katelyn Davis Doheny Peg Curran Andrea Daft Kathy Daniel Katie Davis Theresa Cuddington Kailey Currao Ingrid Dagagny Susan Daniel Lance Davis Diana Cuello Christine Currie Efhriam Dagdag Meg Daniele Laurie Davis Kristi Cueman George Currie John Daguanno Brandi Daniels Lisa Davis Michael Cueman Neil Currie Katelyn Daguanno Joseph Daniels Lisa Davis Emma Cullagh Shawn Currie Marcia Dahan Josie Daniels Lori Davis Alison Cullen Kim Currier-Bloom Kerry Dahlberg Kristina Daniels Lynn Davis Catherine Cullen April Curry Elizabeth Dahler Brianna Dankert Martin Davis Joanne Cullen kelly curry Lindsay Dahlheime Abbie Dann Michelle Davis Kay Cullen tessa curry Susan Dahmer Dawn Dann Monica Davis Lisa Cullen Stephanie Curtin Christine Daigle Judy Danna Patricia Davis MAUREEN CULLEN Laura Curtis Kimberly Daigle Scott Danuser Paula Davis Paul Cullen Mary Curtis Steve Daigle Jenna Dapello Peggy Davis Sarah Cullen Diane Curtiss Crystal Daigneau Andrea Darbee Samantha Davis Seamus anthony Lori Curtsinger Brenda Dailey Sarah Darby Sandra Davis Cullen Alexa Cusack Danielle Dailey Kelly Darezzo Sarah Davis Mary Joan Cullinan Daniele Cusentino Lindsey Dailey AnneMarie Darichuk Shantain Davis Megan Cullum Laurie Cushing Terri Dailey Tabatha Darlak Shelia Davis Coleen Culmer Pattie Cushing Bobbi Dailey Estrellita Darlucio Sheree Davis Kierra Culmer Jessica Cushing Sharvari Dalal Janet Darnell Steve Davis 96

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Heather Hodge Adrienne Holland Jon Hook Jessica Houldsworth Sasha Hudon Kolodny Christina Holland Jon Hooker Ray Hourican Gwen Hudson Erin Hodges Hayley Holland Sheila Hoolan Carole House Karen Hudson Jessica Hodges Sarah Holland Joel Hoop Elizabeth House Theresa Hudson Marissa Hodges Shirley Holle Kay Hooper Emma House Jenny Hudson Rochelle Hodges Melissa Hollett Natalie Hooper Georgina House John Hudson Sarah Hodgins Emily Holley Sally Hoos Sue House Sarah Hudson Kathleen Hodgkins Chris Holliday Rachel Hooser Erika House-Walker Lindsay Hudson- Chantal Hodgson Ginger Hollien Andrea Hoover Helene Houston Hubbs Tracy Hodgson Kelly Hollinger Jessica Hoover Kelly Houston Randy Hudspeth Kristie Hoelter Crystal Hollingsworth Kristi Hoover Corinna Hoverd Lauren Hue Edward Hoelzer Katie Hollingsworth Peggy Hoover Laura Hovey Beth Huels Rae Hoelzer Malia Hollingsworth Simone Hoover Andrea Howard Laura Huey Evan Hoelzer Amy Hollingsworth Tina Hoover Becky Howard Lori Huey Karen Hoem Carrie Hollister Alexis Hope Bob Howard Ben Huff Katherine Hoenig Rachel Hollister Rebecca Hope Brooke Howard Dawn Huff Jen Hoernig Peter j Hollohan Amy Hopkins Cathleen Howard Jayn Huff Faith Hoff Lois Hollopeter gloria hopkins Christina Howard Mindy Huff Jason Hoff Cecelia Holloway Johanna Hopkins Diana Howard Pat Huffer Anna Hoffacker Emily Holloway Sue Hopkins Evelyn Howard Ann Huffman Ben Hoffarth John Holloway Natalie Hopkins Katelyb Howard Jeanne Huffman CORY Hoffarth Sadie Holloway Paul Hopkinson Marissa Howard Kristina Huffman Barbara Hoffman Serina Holloway Debbie Hopper Melissa Howard Patty Huffman Carol Hoffman Justine Hollows Delia Horan Janna Howard Cameron Huffman Caryn Hoffman Daniel Holly Natalie Horan Kelly Howard Anna Hughes Dana Hoffman Tim Holly Renee Horan Shannon Howard Bruce Hughes Judy Hoffman Sharon Holm Tim Horan Bannah Howe Damien Hughes Julie Hoffman Natasha Holman Aldria Horn Layla Howe Jasmin Hughes Marsha Hoffman Emma Holmes Amanda Horn Bonnie Howell Julie Hughes Nancy Hoffman Janice Holmes Ann Horn Kim Howell Kathy Hughes Paula Hoffman Kim Holmes Danielle Horn Pamela Howell Leona Hughes Samantha Hoffman Laurie Holmes Jody Horn Rachel Howell Lisa Hughes Amanda Hoffmann Meg Holmes Kristi Horn Samantha Howell Oliver Hughes Matthew Hoffmann Ribin Holmes Marnie Horn Tara Howell Rachel Hughes Jan Hofheinz Tommy Holmes Sharon Horn Mary Howes Stefanie Hughes Ashley Hogan WIll Holmes John Hornberger Sandi Howland Victoria Hughes Barbara Hogan Catherin Holmes Rebecca Horne Sandy Howland Virginia Hughes Carolyn Hogan David Holmes Victoria Horner Brittany Howlett Amy Hughes Colleen Hogan Lindsay Holmes Jessica Hornstra Nedla Howton Anne Hughes Dorothy Hogan Tina Holmkvist Aaron Hornstra Lynette Hoy Camilla Hughes Janelle Hogan Elizabeth Holody Mallpry Horowitz Tara Hoy Christopher Hughes Jessica Hogan Elena Holsman S Horsley Shannon Hoyland Pat Hughes Maggie hogan Marie Holst Caroline Horsner Abigail Hoyos Janis Hughes Moyer Peter Hogan Barbara Holt KATHY HORT Andrea Hoyos Holliston Huhn Tammy Hogan Danelle Holt Courtney Horton Eddie Hoyos Michelle Huisinga Tiffany Hogan Lauren Holt Tammy Horton Laura Hoyt Brandy Hulcher Victoria Hogan Megan Holt Todd Horton Brennan Hozaki Becca Hull Kristin Hogan Pat Holt Cheryl Horvath Race Hozaki Dylan Hull Pam Hogarth Paula Holt Penny Horvath Carolyn Hrenko Sarah Hullah Amber Hogg Stefanie Holt Jasmine Hosein Melinda Hryb Mills Hullender Heather Hogle Therese Holton Visham Hosein Sandra Hrynick Chris Hulsey Beverly Hogy Amber Holtz Cara Hosie Esther Hsieh Justin Hulsizer Amanda Hohman Angi Holubar Jennifer Hoskins Anne Hsnsen Mika Hult Kara Hohn Jessie Holwege Chara Hosom Gina Hsu Martha Hultgren Beth Hoke Kathy Homan Winnie Host Ali Hu Rebekah Hultgren Margarer Holahan Pegg Homesberger Darra Hotopp Mirian Giovanna Jessica Hultquist Molly Holahan Judith Hominy Martin Hotowitz Huamanga Mikaela Hultstrand Susan Holahan Laura Honea Susan Hotte Jodie Huang Jennifer Humitz Pam Holbrook Kim Honeycutt Brian Hottel Stacy Huang Anita Humm doug holck Rebekah Honeycutt Karen Hottel Aya Huang dalton humm Missy Holcombe Lyndall Honeycutt Ruth Hottel Eleni Hub Montana Humm Heather Holdaway Torrie Honeyman SHIRLEY HOU Jasmine Hubbard Sally Humm Alora Holdeman J. Traci Hong Nick Houce Toula Hubbard Mark Humm Maryellen Holden Lolohea Hong Christine Shelley Hubbs Hilary Humpherys Helen Holdsworth Nana Hong Houghtaling Dakota Huber BRITTANY Kim Holdtrom Pilar Honoridez Jen Houghton Jean Hubinger HUMPHREY Lori Holgate Brittany Hood Kay Houghton Jody Hubschman Amanda Humphrey Marifor Holicek Susan Hood Season Houghton Julie Huckabee Marie Humphrey Dave Holiday C Hook Amy Houk Liz Hudar Lindsay Humphreys Marissa Holiday Frances Hook Patricia Houk Susan Hudgins Ellen Humphreys 108

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lisa Humphries Elisabeth Hutchinson Corey Ingram Alice Jackson Danielle James - Mistee Humphries Jacqueline Hutchison Holly Ingram Amber Jackson Bennett Wendy Humphries Sam Huth Kendelle Ingram Andrea Jackson Jennifer Jamieson Preet Hundal Kathi Hutton Panchita ingram Chelsea Jackson Anne Jamison Patricia Hundley Rita Huughes Sara Inman Courtney Jackson Kim Jamison Shannon Hungle Amanda Huynh Katie Innes Gage Jackson Joseph Jamora Karen Hunhoff Amy Huynh Kirsty Innes Glenda Jackson John Jandl Barbara Hunsaker ROSALIE HYATT Lindsey Ins Grace Jackson Elizabeth Jandl Holly Hunsaker Sarah Hyatt Brittany Insani Hannah Jackson Joyce Jandola Chris Hunsberger Billi Hyde Kimberly Interrante Kelly Jackson Naida Janes Jenna Hunsberger Jessie Hyde Sue Intromasso Kimberly Jackson Molly Janitz Kathy Hunsberger Shannon Hyer Tiffany Iorns Lisa Jackson Kodee Jankowski Matthew Hunsberger Veronique Hyer Linda Iozzo Liz Jackson Arthur Janones Tim Hunsberger David Hylamd Megan Irby Moira Jackson Emily Janoski Brenda Hunsberger Claire Hyland Michelle ireland Pamela Jackson Regina Janowitz- Helen Hunsberger Maeve Hyland Pam Irvin Ally Jackson Doyle Megan Hunsberger Molly Hyland Angela Irvine Bryant Jackson Malgorzata Janowski Amy Hunt Cathriona Hyland Amy Irving C Jackson Lacey Janson Charles Hunt Michelle Hyland Taylor Irving Chelsea Jackson Lucy Janson Cynthia Hunt Rebecca Hyland- Brenda Irwin Chelsea Jackson Michael Janson Heather Hunt McCourt Courtney Irwin Erin Jackson Jill Jansons Holly Hunt Jennifer Hyman Kathleen Irwin Ethan Jackson Karyna Jansons Julia Hunt Louise Hynes Kevin Irwin Kellie Jackson Kayla Janssen Krista Hunt Lucy Hynes Megan Irwin Kimberly Jackson Kimberly Janton Leslie Hunt Paula Hynes Becky Isaac Leigh Jackson Amy Janzen Natalie Hunt James Iacavini Dima Isaac Amy Jacob Kimberly Janzen Rebecca Hunt Amanda Iacavino April Isaman Kim Jacob Marion Janzen Roxanne Hunt Gina Iacono Bradley Iselin Susan Jacob Rachel Janzen Shannon Hunt Chad Ian Zarda Ishak Shalin Jacob Vanessa Jaramillo Sharlene Hunt Kathleen Iannelli Flavia Isidorio Cruz Amy Jacobi Chris Jardin Valerie Hunt Nicole Iannotta Bráulio Alison Jacobs Jordan Jarmon Whitney Hunt Katie Ibarra Aubrey Ismaili Colleen Jacobs Pauline Jaros Heather Hunt Francisco Javier Bonnie Israel Julie Jacobs Lindsey Jarrett Carla Hunter Ibarrola Gallego Julia Istomina Stacy Jacobs Conor Jarvis Deidra Hunter Sara Ibernia Alexandra Itacarambi Tonya Jacobs Naomi Jarvis Denise Hunter Ifrah Ibrahim Kristen Iuppenlatz Suzanne Jacobs Dominique Jarvis Gillian Hunter Laura Ibsen Julie Ivan Andrea Jacobson Stephanie Jarvis J Hunter Malinda Ice Peggy Ivan Jo Jacobson Robin Jasinski Julia Hunter Jenna Ichiba Rhonda Ivan Sierra Jacobson Laura Jasko Kim Hunter Pamela Ide Theresa Ivan Jessica Jacobson Katy Jasmin Luz Hunter Tracy Ide Tim Ivan Jennifer Jacoby Natalie Jasmin Sara Hunter Caitlyn Iden Colleen Ivan Kayla Jacoby Kelly Jason Steven Hunter Pamela Ieen Callie Ivanov Nicole Jacoby Lisa Jaspersen Tamara Huntley Carolina Ieronimou Alison Ivany Jessica Jacovini Debby Jass Melissa Huntzinger Paul Ignacio Tasmin Ivers Maria Jacques da Janelle Jastillana Nicole Hupke Grace Ignatowski Greg Ives Silva Ronald Javier Bernadette Hupp Joann Igoe Jamell Ivester Nadia Jadore Melissa Javorsky Jenna Hurbanek Jenna Ihlenburg Rebecca Ivey Kimberly Jaeger Wesley Javorsky Shannon Hurd Tracy Ihu Kelly Ivie Amy Jaekle Abby Javurek Meredith Huret Marilyn Ilandag Ashley Ivy Jaclyn Jaffe Cathy Jay Daniel Hurlburt Debbie Iles Elizabeth J R Jaffe Lela Jaynes Adam Hurley Pantelitsa Ilia Jill J Sandy Jahn Bev Jean David Hurley Tammy Illian Rachele J Kim Jaime Jennifer Jean Jennifer Hurley Denise Illsley Sonia J Tiffani Jakovac Mathieu Jean Linda Hurley Emily Ilowit Tiffany J Kristen Jakubowski Shirley Jeanes Sara Hurley Stacy Imbasciani Isabell Jäckle Lisa Jakubowski Paula Jeansonne Teresa Hurson Jennifer Imbraguglio Raquel Jáñez Monika Jalšovec Scarlett JEENS Jennifer Hurst Shelby Imel Michelle Jaarah Brianna Jalalzadeh Jenna Jefferies Janice Hurt W Imgham Kerri Jablonski Jessica Jalbert Karen Jeffers Laminda Hurt Kristee Imlay Tara Jablonski Melannie Jallas Lauren Jeffers Stephanie Hurtz Maret Imrell Lisa Jablunovsky Jamie Jalwan Kelly Jeffrey David Husar Jordan Imsho Randi Jachino Alex James Gwen Jeffries Christina Huseman miriam inesta Cyndi Jachym Chris James Jean Jeffries Laura Husko Kathy Infantolino Kate Jack Janis James Karen Jeffries Kelly Hussey Renecca Ingber Kate Jack Jennifer James Alexis Jellema Crystal Hussmann Shelby Ingerson Michael Jack Katy James Emma Jellis Don Hutchens COlette ingham Ewa Jackiewicz Tammy James Gayle jellum Stacy Hutcheson Tristen Ingle Alysha Jackman Kathy James Suzan Jenkind Jaime Hutchinsom Ann Ingram Katie Jacks Nazirah James Angie Jenkins Tracey Hutchinson Cindy Ingram Alby Jackson Joey Jenkins 109

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Linda Jenkins Maryann Johansen Meghan Johnson brad jones Åsa Joons Maria Jenkins Kristin John melissa Johnson Bronwyn Jones Lori Jordahl Marian Jenkins Nicole John Melody Johnson Catalina Jones Casey Jordan Nancy Jenkins Gemma John Michelle Johnson Chelsea Jones Deena Jordan Todd Jenkins Janice John Nancy Johnson Chris Jones Elizabeth Jordan Avery Jenkins Martha John’s Nicole Johnson Chrissy Jones Katy Jordan Rebecca Jenks Brenda Johns Pat Johnson Cyrys Jones Kayla Jordan Andrea Jennings Nancy Johns Patricia Johnson Dona Jones Laura Jordan Josh Jennings Stephanie Johnsen Pinal Johnson Edna Jones Stephanie Jordan Shandel Jennings Janine Johnsey Rachel Johnson Elizabeth Jones Kate Jordan Steiner Suzanne Jennings Aimee Johnson Racquel Johnson Erin Jones Gabriel Jorge Debbie Jennings Aja Johnson Ravin Johnson Gregg Jones Chris Jorgensen Karen Jenniskens Aleks Johnson Sarah Johnson Hannah Jones Taylor Joseck Alena Jensen Alisha Johnson Sherri Johnson Jacqulyn Jones Alaina Joseph Brittney Jensen Amanda Johnson Suzanne Johnson Jamie Jones Frank Joseph Carol Jensen Amy Johnson Suzanne Johnson Jeffrey Jones Jenna Joseph Erica Jensen Angela Johnson Tammy Johnson Jennifer Jones Jessy Joseph Kira Jensen Bailey Johnson Tammy Johnson Jessica Jones Makayla Joseph lance jensen Carmel Johnson Tara Johnson Jessica Jones Mandi Joseph Linda Jensen Carol Johnson Taylor Johnson Jessica Jones Matt Joseph Mary Jensen Catherine Johnson Terrell Johnson Jordan Jones Nichole Joseph Monica Jensen Cheyenne Johnson Terri Johnson Karen Jones Adriana Joseph Robert Jensen Christine Johnson Wendy Johnson Katelyn Jones Barb Josey Rose Jensen Dana Johnson Wendy Johnson Katie Jones Sanja Josipovic Tammy Jensen Deborah Johnson Alicia Johnson Katie Jones Benedict Joson Amy Jensen Diane Johnson Amanda Johnson Kayla Jones Ashley Joy Hope Jenzer Dina Johnson Amy Johnson Khalilah Jones Julia Joyce Martin Jeppsson Elena Johnson Ashlea Johnson Kirsty Jones Lisa Joyce Amber Jerdon Elizabeth Johnson Ashley Johnson Kristi Jones Patricia Joyce Michelle Jerkovic Emilee Johnson Brandi Johnson Krysta Jones Jessica Joyce Susan Jernigan Emily Johnson Bret Johnson Lauren Jones Asuma Jreige Katarina Jesenko Frances Johnson Brittany Johnson Linda Jones Angela Jreigr Kris Jessee Gabrielle Johnson Christy Johnson Lisa Jones Aguilar Juan José Jane Jessen Geary Johnson Corey Johnson Margaret Jones perla juarez Abby Jessome George Johnson Eli Johnson Marlee Jones Jessica Juart Elizabeth Jessome Gloria Johnson Guy Johnson Mary Jones P Jubi Judy Jessome Grant Johnson Jennifer Johnson Megan Jones SARA JUDD Kyla Jessome Hannah Johnson Matt Johnson Megan Jones Andrea Judd Lisa Jessome Heidi Johnson Michele Johnson Megan Jones Malia Judge Lorraine Jessome Hilary Johnson Nancy Johnson Meghan Jones Jen Judson Vincent Jessome Holly Johnson Natalie Johnson Molly Jones Terri Judy Linda Jestin Holly Johnson Paula Johnson Natalie Jones Kari Juengel Allyson Jesus James Johnson Veronica Johnson Nic Jones Shawna Juett John Jesus Jared Johnson Victoria Johnson Nicole Jones Stephanie Julian Skyler Jesz Jasmine Johnson Ceri Johnston Parish Jones Marlon Juman Lorraine Jeter Jean Johnson Gail Johnston Patricia Jones Lisa Jump Breana Jeter-Davis Jennifer Johnson Lisa Johnston Patty Jones Kelly Junco Darsha Jethava Jessica Johnson Marianne Johnston Rachel Jones sara june Janalyn Jett Jessica Johnson Shana Johnston Samantha Jones Michelle Juniel Katie Jett Jessica Johnson Edel Johnston Samantha Jones Vicki Junk David Jetton Jill Johnson Josephine Johnston Sarah Jones Marta Junker Andrea Jewell Jodi Johnson Scott Johnston Sylina Jones Kelly Junkmann Brittany Jewell Julianne Johnson Therese Johnston Tabatha Jones Viviane Junqueira Esme Jewell Julie Johnson Kathy Johnstone Taylor Jones Leah Jupe Amy Jewell Julie Johnson Marion Johnstone Tom Jones Alma Jurado Emily Jil Kara Johnson Sophia Johnykutty Tom Jones Martha Jurado de Jessica Jilg Kelly Johnson Christine Joiner Tonya Jones Romero Kimberly Jillson Ken johnson Peyton Joiner Tyler Jones Patty Jurczak Ana Jimenez Kristen Johnson Natalie Jolin Veronica Jones Jeremiah Jurkiewicz Gina Jimenez Kyle Johnson Katie Jolly Vicki Jones Denise Jury Tae Jindra Lindsey Johnson Pam Jolly Yvonne Jones Melissa Jusianiec Jared Jirak Lisa Johnson Alex Jones Diann Jones Shelley Justice Steven Jirik Lori Johnson Alison Jones Jayne Jones Virginia Justice Stephanie Joachim Lynn Johnson Alyssa Jones Jessica Jones Anna Justo Cheri Johannes Martha Johnson Amber Jones Keith Jones Tatiana Justo Clint Johannes Mary Johnson Amy Jones Leon Jones Samantha Jweid Cody Johannes Matthew Johnson Andrea Jones Lindsey Jones Bhagyashri K Lina Johannesson McKenzie Johnson Annette Jones Rusty Jones Denise K Elizabeth Johansen Meagan Johnson Ashley Jones Jeremy Jones-Trapp Derrick K Lisa Johansen Megan Johnson Barbara Jones Anna Jonsson Emily K 110

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Jas K Allison Kane Gautama Kavuri Josh Kelley Allison Kennedy Jen K Jamie Kane Amy Kawabata Kristin Kelley Amanda Kennedy Kim K Jeremy Kane Robert Kawahara Scott Kelley Cindy Kennedy Nancy K Kerianne Kane Ediele Kawano Shelley Kelley Franklin Kennedy Shanr K Lucia Kane Charlote Kawleski Heidi Kelley Jen Kennedy Aqui K Dapps Michelle Kane Andee Kay Edward Kelliher Jessica Kennedy Stine Kähler Sarah Kane Lissa Kay Paula Kelliher Karen Kennedy Makana O Kalani tina kane Arielle Kayabaga Victoria Kellogg Kathleen Kennedy Kaaikala-Caban Kate Kane-Leach Kat Kaye Nicole Kellum Kathy Kennedy Beatrice Kabamba Sarah Kane-Lewis Debra Kaylor Angela Kelly Kimberly Kennedy Nadette Kabamba Lisa Kanehiro Alyssa Kayser Angie Kelly Michelle Kennedy Kyle Kabe N Kaney Chris Kaz Ann Kelly Natalie Kennedy Louise Kabe Chris Kangas Alexander Kazanas Ashlyn Kelly Rachel Kennedy Kelly Kabe Christine Kangas Danielle Kazemi Brenda Kelly Sarah Kennedy Patrick Kabeya Nicholas Kangas Katelin Keacher Debbie Kelly Stephanie Kennedy Keith Kabilian Todd Kangas Christine Keahi Endr Kelly Susan Kennedy Linda Kabilian Gina Kangas CHAD KEAHI Erin Kelly Timicka Kennedy Amy Kabilian Kortney Kangas Karmen Kealohi Erin Kelly Frank Kennedy jr Naomie Kabongo Crystal Kanhai Wendy Keanini Georgia Kelly Brent Kennell Letysia Kabundi Michele Kania Charlotte Kearney Jack Kelly Alexandra Kenney Constance Kafara Joann Kania Mary Kearney Jackie Kelly Nancy Kenney Beth Kagan Christian Kaniki Amy Kearns Jean Kelly Sandy Kenney Olivia Kagan Maris Kankas Vivianna Keaton Karen Kelly Laurel Kenny Laura Kahaialii Guylaine Kankolongo Angela Keavney Kelly Kelly Sarah Kenny Rosie Kahan cynthia kanner Dana Keck Kristen Kelly Sandra Kenoff Debbie Kahle Pam Kap Jennifer Keck Kyle Kelly Hollie Kensrick Melissa Kahler Joann Kapelos Amanda Keckeis Lucy Kelly Juliet Kent Elizabeth Kahn Michelle Kaplan Kristen Kee Marjorie Kelly Katherine Kent Karen Kahnke Jolie Kaplan Scott Keefe Mary Kelly Kimberly Kent Eva Kain Amber Kaplinger Angela Keegan Mary Sue Kelly Mal Kent Amanda Kaiser Barbara Kappelmann Bridget Keegan Maura Kelly Miranda Kent Jessica Kaiser Jeanne Kapuya Claire Keegan Melissa Kelly Nicola Kent Nancy Kaiser Kelly Karaban- Karen Keehn Michel Kelly Sara Kent Tiffany Kaiser Iannone Jean-Marie Keeley Nadine Kelly Raymond Keogh Caitlin Kajer Anthony Karamas Mary Keeley Renee Kelly Elaine Keough Cindy Kakalow Nikkita Karas Richard Edward Samantha Kelly Molly Kephart Jamie Kakellos Naomi Kardel Keeley Bonnie Keeley Shawn Kelly Rhonda Kepley Amanda Kalal Pratima Karki Annamarie Keen Shawn Kelly Dawn Kerkman Kathy Kalar Christian Karl Rachel Keen Sonya Kelly Vicki Kerley Dennis Kalasek Paul Karlberg Lechon Keenan Tom Kelly Beth Kern Julie Kalasek Monica Karlsson Cassie Keene Jacquie Kelly-Gallello Bonnie Kern Amy Kalasunas Lauren Karner Chala Keeney Michelle Kelm Brenda Kern Daniel Kaley Milann Karnes Krista Keepers Chance Kelosky Britney Kern Emily Kalina Sarah Karnes Megan Keeton Chelsea Kelosky Elizabeth Kern Nancy Kalinda Connie Karpinski Darlene Kegel Kathryn Kelsch Julie Kern Barbara Kalinowski Cathy Karpowicz Deidra Kegg Bevery Kelsey Steve Kern Emily Kalinowski Maureen Karugia Rick Kehl Megan Kelso Lisa Kernan Anne Kalkowski Leah Karvelis Lacey Kehler Linda Kelter Rafaella Kerner Elizabeth Kall Miranda Kasecky Kaitlyn Kehoe Melissa Kelting Bethany Kerns Lisa Kalmanash Christopher Kaski Michelle Keibler Danielle Keltner Erin Kerns Juliana Kalmar Catherine Kasler Gennifer Keiser Sue Kemalian Laura Kerns Appoline Kalonji Wilma Kasnic Kim Keith Brenda Kemmler Tom Kerns Scott Kalski Melinda Kassing Jen Kel TIM KEMMLER Barbara kerr D Kalter Curt Kates T kel Bernice Kemmler Cherie Kerr Jurga Kalvaityte Yana Katsevich Lynda Kellam Kemmler Kevin Kerr Shane Kam Taya Katsiris Vaness Kellas Denise Kemmy Lee Ann Kerr Djenie Kambaji michael katsiris Priscilla Kelleher Angie Kemner Smanda Kerr Adaire Kamen Barbara Katzer Stacey Kelleher Erin Kemp Tanya Kerr Jayne Kamerath Alexandria Kaufman Lauri Keller Amanda Kempa Patrick Kerrigan Alessandra Elizabeth Kaufman Megan Keller Ralph Kempa Krystal Kersch Kamimura Yano Tova Kaufman P k Keller Doreen Kempa Karen and Danny Laura Kaminski Linda Kaufman Tori Keller Judy Kempee Kersey David Kamm Lawrence Chasity Keller Karen Kempert Evan Kershaw Sue Kammann Kauhaahaa Kayla Keller Carol Kempfert Greg Kershaw Michelle Kammerman Torrie Kaul Amanda Kellett Jo Kempton Gemma Kesby Rebecca Kamps Lauren Kaupp Christine Kellett Brett Kendall Hannah Kesby Gobihan Japanjot Kaur Cheryl Kelley Joleen Kendall Stephanie Keschinger Kanagasingam Hope Kaut Chrissy Kelley LINDA KENDRICK Deana Kesler Martina Kancijan Christine Kautt Jennifer Kelley Meghan Kendrick Chris Kessel Sharen Kander Amy Kavanaugh Jennifer Kelley Lindsey Kenneally Amy Kessler 111

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Cadence Kessler Janet Kimmel Cynthia Klabo Heather Knight Peg Kopec Caroline Kessler Andrea Kincaid Molly Klabunde Samantha Knight Maida Kopet MATT KESSLER Katey Kincaid Angie Klack Stephanie Knight Leah Kopetski Emily Kester Melissa Kindel Alaena Klages Terry Knight Jessica Kopp Leslie Ket Julie Kinder Cheryl Klages Susie Knippling Brian Koppel Lesley Ket Barbara King Tip Klamberg Gwen Knipstein Joseph Kopta Andrea Ketcham Barry King Ellen Klapper Catherine Knoblauch Jonathon Kopy Liz Kettelle Belinda King Edward Klarman Marisa Knoblauch Anita Koranda Susan Kettle Bonnie King Lois Klatt Tanya Knochel Kaci Korkis Kasey Ketzler Cath King Ann Klaus Shonda Knop MEGAN KORMOS Alicia Kewin Deborah King Kate Klaus Ryan Knoper Steven Kornetsky Brendan Kewin Deirdre King Rick Klaus Angela Knorr Stephanie Korpal Jennifer Keyo Jacquie King Anita Klein Julie Knorr Barb Korpi Dan Keys Jason King Brooke Klein Susan Knoth Deanna Korte Kelly Keys Jenna King Dirk Klein Kathleen Knott Katie Korver Gale Kezios Jenna King Kristy Klein Lynette Knowles Megan Kosaka Shar Khademi Jessica King Rachel Klein-Palmer Carolyn Knox Amanda Kosanda Deama Khader Justin King Miranda Kleine Dara Knox Lauren Kosasa Anushah Khan Karen King Rebekah Kleinsasser April Knudson Kelsi Kosch Farheen Khan Katherine King Acacia Kleinsorge Casey Knudson Amy Kosinski Raul Khan Kathleen King Christina Kleinsorge Marianne Knuts Deborah Kosiw Helen Khan Kim King Christine Klemens Kareen Knutson Jennie Koss Amir Khazaee Mark King Stephanie KLEMM Jennifer Ko Marisa Kossoy Farida Khoshaba Melissa King Courtney Klempel Michelle Koba Callie Kostelich Audrey Khuner Molly King Amanda Klickner Emily Koca Ann Kotch Sara Ki Nicola King Edie Klickner Marisa Kocak David Kotes Sandy Ki sella Pam King Deb Kliman Mary Koch Vasikaran Christina Kicak Tannis King Chris Klimek Mateja Kock Kothandapani Patti Kichman Vicki King Betty Kline Amanda Kocun Aurelia Kotlarewski Jala Kidd Vicky King Jaclyn Kline Anna Koe Mickey Kotlarz Sherrie Kidley Danielle King Katharine Kline Charles Koegler Matt Kotowski Craig Kiecker Jessica Kingery robert kline Jennifer Koehler Chelsea Koubsky Jenny Kiefer marie-Ange Kingwaya ROBERT KLINE Lindsay Koehler Alison Kounlabout Jean Kieffer Kelly Kinkel Sharon Kline Adriana Koehn Nicole Kovacek Aayliah Kiener Nicole Kinkelaar Stefani Klinedinst Tanya Koelzer Melanie Kovach Amy Kiernan Rayna Kinoshita Kyra Kliner Deveonna Koenig Sergey Kovalev Emma Kiernan Cassandra Kinsella Kendall Klineschmidt Hillary Koenig Emee Kovesdi Orla Kiernan David Kinsey Peggy Kling Rachael Koenig Jennifer KOWAL Kara Kiessling Dianne Kinsey Elise Klingh Jean Koerten mike Kowaleski Stacy Kifer Kaity Kinter Maria Klingh Susan Koetters Monika Kowalska Debbie Kiger Kelcey Kinzel Lisa Klink Kelly Kohatsu Angela Kowalski Julie Kijowski Abbie Kipp Sheryl Klinkhammer Tyler Kohl Shannon Kowalski Cindy Kilbane Cari Kirby Brittany Klinzing Nancy Kohler Amarlee Kox Kasey Kildall Debbie Kirby Marcus Klock Richard Kohler CADE KOYAMA Angie Kildau Melissa Kirby Anna Kloeppel Tammy Kohler Rose Koyama Susan Kilduff Sherida Kirby Kim Klomhaus Christy Koil Cathy Koyama Meggie Kile Lisa Kirk Heather Klopman Spring Koja Darran Koyama Christy Kiley Megan Kirk Catherine Kloss Eva Kokosinska Patrick Kozak Meaghan Kilian Sheila Kirk Kameron Klosterman Gina Kokosma Stacey Kozar Brielle Killeen Marla Kirk Linda Klotz Sue Kolasinski Lisa Kozarec Jamie Killeen Lindsay Kirkby Shaye Klotz Lesley Kolaya Sharon Kozatek Tom Killham Amy Kirkegaard Stephani Klovensky Nora Kolniak Stephanie Kozikowski Molly Killilea Beverly Kirker Kate Kluegel Anna Kolterman Randy Kozina Alyssa Killoren Ashley Kirkland Jennelle Klun Nancy Kolton Mary Kozlowski Nell Killoy Kristen Kirkland Katie Klusas Philipp Kolzenburg Brenda Kozuh Brie Kilmer Ann Kirkpatrick Cheri Klussendorf Valentina Kominek Brittany Kraft Jennifer Kim Amy Kirksey Becky Kmetz Stephanie Kominsky Eric Kraft Jo Kim Kristina Kirsch Janice Kmiec Fortuna Konan Lori Kraft Nawon Kim Elyse Kirschner Brenda Knaack Karolanne Konefal Jada Krahenbuhl Steven Kim Jill Kirshner April Knapp David Konell Elizabeth Krakauer Sunny Kim Jeannette Kirwan Sarah Knapp Diane Konopka Amy Kram Susan Kim Kathy Kirwin Anisha Knatcal Alison Konrad Breanna Kramer Amanda Kim Caroline Kishton Cheryl Kneisley Regine Konstantinou Charlene Kramer Yannick Kimasi Lynette Kiss Stephanie Knepley Sophia Kontoes Jennifer Kramer Clarrissa Kimberly Jeff Kissel Margaret Knepper Scott Konzelman Lois Kramer Jonathan Kimble Jenn Kistler Leah Knickerbocker Janel Kooienga Marleen Kramer Jade Kimbrough Patricia Kistler Sarah Knierim Kelsi Kooke Sharon Kramer Ann Kimmel Scott Kitchen Jillian Kniffen Andrea Koons Marcia Kranc Becky Kimmel Michele Kitney Allison Knight Jolinda Koontz Kelly Kraning Kari Kimmel Louise Klövenäs Chris Knight Tessa Kop Rebecca Krape 112

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Androulla Krasa Kristine Kuether Thiago Lacerda McKenzie Lambert Amy Langdon Kyriakos Krasas Kristina Kuhn Carrijo Michelle Lambert Dawn Langdon Kathryn Krase Martha Kuhn Chris Lackett Michelle Lambert Emily Lange Alan Krasniff Paul Kuhn Kimberly Lackey Paula Lambert Stacey Lange Maryjo Krasnoff Wendy Kuhn Kimberly Lackey Wendy Lambert Susan Lange Nancy Krasnosky Robert Kukahiko Karin LaClair Josh Lambert Erin Lange Dorothy Krasnow Frances Kukkonen Hillary LaClair Kari Lambert Mike Langenright Patti Krasny Annie Kulbeth Jackie Lacroix Kelly Lambert Tami Langenright Jennifer Krasuin Caroline Kulinski Molly Lacy Mary Lambert Krystal Langford Grace Kratovil Jaclyn Kulkarni Kimberly Lada Julika Lamberth Michael Langford Bridget Krause Brandie Kulp Susan Lada Catherine Lambino Anita Langin Dottie Krause Mary Kulsik Becky Ladd Heidi Lambley Natalie Langkopf Marie Krause Charlene Rebecca Ladnier Jamie Lambo Claudette Langlais Mary Ann Krause Kulukulualani Stanley Ladnier Janon Lamborn Carrie Langley Paige Krause Ashnil Kumar Krystal Ladnier Joyce Lamica Hillary Langley Shelby Krause Viji Kumar Anna Lael Donna Lammert Janet Langley Julie Krause Rachel Kunert Sydney Lael Erin Lammert Myra Langley Denise Kravitz Ashley Kunes Lori LaFave Lisa Lammert John Langman Anya Krawcheck Emily Kunkel David Laferla Shaun Lammert Helene Langman Kim Kray K Kunkel Mary Alice Laferla Yolande Lamothe Erin Langston Florence Kreacic Rebecca Kunkel Sarah Laferla Michelle Lamoureux Jesse Langston Amy Kreamer Melissa Kunkle Darryl Laferte Barbara Lampron Laura Langstraat Kristin Krebs Hali Kuntz Lindsey Lafferty Jeannette Lampron Corey Lanham amy krecklow Diane Kunzler Ghyslaine Lafontaine Jenn Lampron Tonya Lanham Vicki Kreider Marlene Kupau CRAIG LAFOREST Isabel Lana Ui Lani Justin Kreidt Jamie Kuras Dara Laforest Brian Lancaster Nicole Lankford Hanna Kreiner Cynthia Kurleto Bree LaFortune Trina Lancaster Tesia Lankford Gemma Krekelaar Jordan Kurta Marilyn LaFountaine Jessica Lancaster Justin Lanman Jessica Krementz Mariah Kurtenbach Julianne Lafrenz Tammy Lancaster Cecília Lannes Peter Krenzer Andrew Kurz Dianne Lagbas Maria Fernanda Maria Lanni Kyra Kress Sue Kurz Stephanie Lageman Lancellotti Craig Lanning Rhonda Kress Nicole Kusi Todd Lagerlof Gwyn Landen Analeise Lanning Amanda Kretschmer Fanny Kusombi Elizabeth lagerstedt Carol Landers Shana Lanning Arthur Kretschmer Joan Kustak Margaret Lagerstedt Laira Landes Julie Lanoff Lauren Krieger Laura Kustes Liz Lagerwerf Al Landicho Keith Lanser Grace Kriho Ashley Hanna Lagger Ariana Landicho Tina Lansgard Jessica Krikorian Kutschenreuter Shareesa Lahashmi Ricardo Landinez Jane Lantz Nino Krilova Lilja Michelle Kuykendall Ryan Lahetta Sherri Landmark Kristen Lanz Vinay Krishnani Elise Kuypers Christie Lai Claudia Landon Allison Lanza Abbey Krivak Shanna Kuzdzal Eric Lai Debbie Landreth Amy Lanza Enid Kroenlein Anna Kvamme Fiona Lai Alishia Landrum Crystina Lao Terri Kroll Nancy Kwan Kelly Lai Abby Landry Kevin Lao Fernandez Mark Kronenberger Robert Kyles Rebeca Lai Ashley Landry Carole Lapee Ashley Krook Mikaela Kynett Ariel Laidlaw Leigh Landry Jessica Lapensee Carolyn Kropf Allie L William Laimit Logan Landry Anna Lapera Kylene Krotzer Dulce L Nancy Laing Driver Megan Landry Nathalie Lapierre Nicolette Kroupa Jennifer L Amy Lair Patti Landry Hector Laplante Cindy Krueger Liz L Carrie Laird Sharon Landry Jana Laplante Cassandra Krug Monica L Raven Lais Julia Landry Jane LaPointe Ruth Krug Sofia L Linda Laitner Abby Lane Emily Lappin Dawn Kruk Angela Kelly Lake Eileen Lane Laura Lapslet Lauren Krum L’Hommedieu Kate Lakin Holly Lane Katherine Lapso Lisa Krusinski Fernando López Pamela Lakits Hope Lane Evelyn Lara Beata Kruszewska Cheryl La Rue Kimberly Lalli Jenifer Lane Veronica Lara Nickie Kruszynski sheryl labar Stephanie Lalli Nancy Lane William Lara Dave Kruyt Pierre Labarge Chelsea Lallier Rebecca Lane Kylie LARDI Anthony Krzyzak Jenny Labarge Margaret Lally RenaTa Lane Kathleen Larese Jen Ksobiech Mary Labarron Jena LaLone Stephanie Lane Heather Large U’i Kua’ana Lisa Labbate Janice Lam Denise LaNelle Lea Larinaga Phyllis Kubelka Amanda Labbe Jaques Lamac Summet Laney Cathy Lariviere Barbara Kubiak Mark Labenski Miguel Laman Aaron Lang gwen lark Kim Kucharczyk Gabrielle Labolito Julie LaManna Cindy Lang Jerre Lark Laura Kucharik Rebecca LaBow Pauline LaMarsh Deb Lang SUSAN LARKINS Debra Kuchna Sasha Laboy Katelyn LaMartina Frank Lang Denise LaRocca Connie Kucksdorf Brent Labram Kendra Lamb James Lang Deborah LaRocque Michael Kuder Carole Labram Natalie Lamb Lisa Lang Rebecca Larossi Jacqueline Kuehn Casey Labrum Alex Lambert Megan Lang Trudy Larrew Cathy Kuehni Anael Lacap Julie Lambert Rebekka Lang Annisa Larsen Melissa Kuehnle Kathy LaCasse Lilly Lambert Sarah Lang Brady Larsen Jay Kuether Dione Lacerda Linnea Lambert Stephanie Lang Erica Larsen 113

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Leslie Larsen Alicia Lawson Amy Lee Amy Lehrer Alexis Lester Richard Larsen Cynthia Lawson Becky Lee Robin Leibold Mary Lestrange Sean Larsen Janna Lawson Beverly Lee Diane Leifheit Vicky LeTellier Olivia Larsen Maddy Lawson Billie Lee Geoffrey Leigh Lauren Letizia Tammy Larsen Patricia Lawson Brenton Lee Ida Leightman Rachel Letizia Amy Larson DEBORAH Lawton CarolynSue Lee Stephen Leightman John Letsinger Chris Larson Abbie Lawyer Cassy Lee michael leighton Katie Letsinger Elliot Larson Brittany Laxton Chad Lee Robyn Leighton Melissa Letson Jane Larson Latanya Layden Christine Lee Shawn Leighton Corinne Lettini Kristen Larson Anne Layendecker- Christy Lee Alicia Lein Connie Leubecker Rachel Larson Barclay Claire Lee Tracy Leinbach Kelly Leuthauser Sarah Larson Sara Layne Darlene Lee Lydia Leingang Katie Levane Sarah Larson Amber Layne Davia Lee Bethany Leinweber Heather LeVeck Teresa Larson Brandie Layne Ellen Lee Anne Leist Julie Levengood Therese Larsson Erin Layte Elley Lee Kathy Leist Kimberly Levengood Barbara Larue Jacki Lazenby Emma Lee Jocelyn Leithead Penny Levens Liz Lashchuk Stacy Lazzara Eri Lee Alex Lemanski Elaina Levers David Lasher Angie Le Erin Lee Casey Lemay Ale Levi Erin Lasher Constance Le Erryn Lee Stephanie Lemay Jill Levin Vicki Lasher Rebekah Le Magny Evan Lee Carrie Lemcke Shelley Levin Johnny Lasiter Paloma León James Lee Peg Lemcke Heidi Levine Sandra Lasiter García-Milla Jazmine Lee Nicole Lemme Ira Levine Amanda Lasky Jacklyn Leach Jhett Lee James Lemmons Mary Kay Levine Cheryl Lasser Joe Leahy Julie Lee Gene Lemoine Beverly Levis Michele Lassiter Kathy Leahy Karen Lee Lynda Lemon Kara Levis Loraine Laswell Mary Leahy Katelyn Lee MELANIE LEMONA Terry LeVois Thomas Latchford THOMAS LEAHY Katie lee Amy Lemonis Aileen Levy Stacey Latimer Sara Leahy Kayla Lee Katlyn Lenard erica Levy Catherine Latshaw Suzanne Leake Kim Lee Sknia Lenci Kristina Levy Barbara Latza Courtney Leal Laura Lee Ger Lenehan Alison Lewis Danielle Lau Gen Leal Lisa Lee Kimberly Leniz Amy Lewis Jake Lau Karissa Leaman Lori Lee Joanne Lenkel Angela Lewis Rebecca Lau Mary Leamons Maebh Lee Kendall Lensch April Lewis Megan Laudenbach Cecilia A Lear Megan Lee Suzanne Lent Candise Lewis Amy Lauer Douglas Lear Micayla Lee Angel Lentz Eileen Lewis Lindsey Lauer Tina Learmonth Nahyon Lee Christopher Lentz Erica Lewis Vicki Lauffer Cyndie Leary Penny Lee Samantha Lenzen Hannah Lewis Jaclyn Laughlin Dan Leary Penny Lee Terri Lenzen Kim Lewis Cathy Laura Marlyne Leary Rosetta Lee Carol Leo Linda Lewis Joy Laurent Don Leary Sr Sharon Lee Simone Leo Lori Lewis Melissa Lauria Renea Leatham Sindi Lee Victoria Leocadio Lori Lewis Cindy Lauricia Dawn Leatherman STACEY LEE Christine Leonard Lucinda Lewis Maria Lauron-castro Erin Leatherman Susan Lee Heather Leonard Lynette Lewis Jess Laursen Toral Leathers Susana Lee Jennifer Leonard Maegan Lewis Marcie Lause Tina Leavitt Teresa Lee Madelyn Leonard Maggie Lewis Emily Lauterbach Debi LeBlanc Tina Lee Robert Leonard Marie Lewis Kate Laux E LeBlanc Morgan Lee Sarah Leonard Mark Lewis Judith LaVack Laura LeBlanc Tristin Lee-Costin Sophie Leonard Maxwell Lewis Stephanie LaValley Wendy LeBlanc- Mittie Lees Blake Leonard Nita Lewis Caroline Lavender Arbuckle Lydia Lefchuck Susan Leonard Rob Lewis Denise Laverty moreland leboeuf Evey Lefco Lila Leonardi Stephanie Lewis Alice Lavin Lea Lecaj Beth LeFebvre Chad Leoncello Susan Lewis Meg Lavin Kelly LeClere Leslie LeFebvre Diane Leone Tanyce Lewis Nancy Lavoie kimberly lecnar Mary LeFevre Kelly Leopard Danielle Lewis Marlene Law Sunny Lecnar Sarah Lefevre Sam Lepa Kristy Lewis Megan Law Magean LeCompte Joan Leffler Pamela Lepcio Tina Lewis Jamie Lawlis Brianna LeConti Lauren Lefvourt Marcy Lepley Cynthia Lewus Anne Lawlor Joshua LeCoq Annette Legacy Alex Leporatti Jordynn Ley Ann Lawnedd Amanda Ledbetter Paul Legault Kim Lercara Chris Leydecker Robert Lawrason Glen Ledbetter Mariana Leggett Stacy Lerner Stehanie Leydecker Tiffany Lawrason Jan Ledbetter Erin LeGrand Bethany LeRoy Sarah Leyland Ashleigh Lawrence Pamela Ledbetter Francisco Javier Elaine Les Melissa Leymon Cindy Lawrence Theresa Ledbetter Leguizamo Benjamin Lesin Juan Leyva Cindy Lawrence Rose Leddy Angela Lehman Nicole Leslie Nancy Leyva John Lawrence Christina Ledesma Holly Lehman Syd Leslie Olivia Lezina Kristina Lawrence Tanya Ledet Kathleen Lehman Rita Lesniak Chester Li Melissa Lawrence Bruce Ledoux Olivia Lehman Kelsey Lessard wenting li Robbie Lawrence Sara Leduc Rosemary Lehman Katie Lessmeier Yuting Liao Megan Laws Lisa Ledwin Amy Lehmann Erryn Lester Christopher Libbey Dolores Lawsin Agnes Lee Tanya Lehmann Jess Lester Jackie Libby 114

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Robbie Libby Katy Lineker Jennifer Lobo Nina Long Amanda Lovelady Jennica Liberatore Helen Ling Tracy Lobo B Long Katrina Lovelady Jill Liberatore Leslie Lingle Linda Locascio Norma Long Melanie Lovelady Albert Libersat Chris Link Linda Lochamy Patrick Long Susan Loveland Cheryl Libersat John Linn Mia Lock Curt Longanecker Ashley Lovell Michelle Libersat Melissa Linn Natasha Lockhart Lou Ann Longanecker Karen Lovett Julie Libonate Diane Linnehan ShAn Lockhart Bruna Aparecida James Lowder Elisangela Libracao Sabrina LINNEHAN Tronecia Lockhart Longato Luiz Katelyn Lowder Grace Licciardi Michele Linsky Mims Leslie Longbotham Camille Lowe Barbara Lichtenstein Leah Lintan Joya Locklair Torrey Longnecker Deanna Lowe Maria Lichtle James Linthicum Carol Lockwood Kerry Longo Donna Lowe Kristine Lickstein Patricia A Liotta Nicole Lockwood- Mark Longo Lori Lowe Ashley Liebel Rina Liou Womack Robert Longo Mary Lowe Angie Liehr Jenna Lipich Rachel Locnikar Angie Longoria Miriam Lowe Debbie Lies Laura Lipkin Emily Lococo Sam Longvall John Lower Aaron Lifford Marie Liples Mike Loconte William Longworth Lisa Lower Chelsea Light Paula Lipnos Janice Locquiao Jenny Lonnblad Crystal Lowery Lisa Light Katherine Lipowski Janice Locquiao Kauilani Lonzaga Stacie Lowery Sarena Light Joan Lipp Ciacci Miranda Lookabaugh Melissa Lowstetter Angela Lile Stephanie Lipp Constance Locraft Liz Loos Bobby Loyd Lisa Lile Kimberly Lippencott Chari Lodge Lisa Loov Nicole Lozanski Meri Lile Daniel Lippert Sufia Lodhi Kristin Lopeman Zach Lre Natalie Lile Julie Lippert Rose Lodrigues Janis Loper Charity Lu Shane Lile Sandy Liprando Jim Loe Andrei Lopes Christine Lu Leslie Lile Miki Lips Pamela Loebner Eduardo Lopes Felicia Lu Rich Lile Mia Lipsky kinball Brenda Loeffler Célia Lopes de Sandy Lu Cecilia Lillie Angie Lirette Brittany Loeffler Souza Yingdau Lu Amanda Lillis Bakutis Lisa Andrea Loewen Araceli Lopez Aurélie Luabeya Anthony Lim Rachel Lisk Joleen Loewen Daniel Lopez Beverly Luberty Gisele Lima Lynne List Bruce Lofthus Jackie Lopez Jamee Lubkemann Izabela Lima Brittany Lister Cynthia Lofthus Janie Lopez Ashley Lubus Stacey Lima Susan Listermann Allison Loftin Kiersten Lopez Andrea Lucas Luiz Henrique Lima Meghan Listman Michael Lofton Marc Lopez Any Lucas Guedes Jan Litteral Lisa Loftus Norma Lopez Diane Lucas Luciana Lima Leigh Littiken Joe Logan Sonia Lopez Gabrielle Lucas Nascimento Amy Little Katrina Logan Tina Lopez John Lucas Rachel Limmex Julie Little Kelsey Logan Alicia Lopez Sara Lucas Lisa Lin Melissa Little Lynn Logan Christina Lopez Natalie Lucas PEDRO LINARES Shawn Little Amanda Logan Luciane Lorenset Pedro Lucas Yessica Linares Sydney Little Amy Logan Megan Lorenson Rachel Lucas Carolyn Linchuk Tammy Little Jeff Logan Trina Lorentz Abogail Lucchesi Michelle Lincoln Tonya Little Sarah Logsdon Lisa Lorme Cervo Lucia Amanda Lind Selena Little Mary Lohnes Anna Los MICHELLE Sofia Lindau Dale Littlefield Rachel Lohrey Kimberly Losada LUCIANO Mina Lindberg Cole Littleton Maggie Loiselle Brandy Losch Jonathan Lucier Alicis Linde Larry Liu Ani Loizzo Linda Loser Kate Lucier Margareta Linde Melinda Liu Cindy lol nch Catherine Lott Alexandria Lucio JayDee Lindeen Theresa Liu Grace Lola Haley Lott Daniel Luckett Victor Lindgren Todd Livesay Ella Lollar Lauren Lott David Luckey Jen Lindine Judy Livgren Dede Lollis Sarah Lott Keith Lucy Kelly Lindine Cynthia Livingston Carol Lombardi Angela Lottinger Rena Ludden Linda Lindine David Livingston Lorraine Lombardi Virginia Lottinger Kailee Luddy Melissa Lindine Duncan Livingston Victoria Lombardi Kelly Lotz Lynn Ludecke Cora Lindner Rachel Livingston Cassandra Jason Lou Danielle Ludolff Elizabeth Lindow Rosina Livoti Lombardo Jessica Loughin Steve Ludolff Robin Lindquist Jacqui Liwag Jennifer Lonchar Teresa Louks Abby Ludwig patricia Lindridge- Mónica Lizarazo Deirdre Londergan Jade Loup Sandra Ludwig Ingber Melissa Llamzon Kim London Tiffany Louque Mackenzi Luebbert Beau Lindsey Rene Llewellyn Martha London Ana Lourenço Brooke Luedtke Mckenna Lindsey Gabby Llopiz Robin London Tina Lourens Whitney Luethge Michelle Lindsey Jp Llort Rachel London- Cindy Love Karen Luetkenhaus Brittany Lindsley Carolyn Lloyd Nyhus Darrah Love Angela Luff Johan Lindstedt Debbie Lloyd Mary Lonero Gigi Love Danica Luistro Deb Lindstrom Katie Lloyd Brenda Loney Janelle Love Araceli Lujan leigh lindstrom Leah Lloyd Amy Long Kathryn Love Nicole Lukach THORIN Mrriah Lloyd Caroline Long Kayden Love Justine Luke LINDSTROM Sarah Lloyd-byasee Ginny Long Tawna Love Lindsay Luke Elisabeth Lindstrom Elizabeth Lloyd- Kassie Long Makenzie Love Whitney Lukenbill Paul Lineburg young Kirbi Long Robert Love Laura Luketa Julia Lineker Lola Lobetti Long Long Shana Loveday Rose Luketa 115

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Avanna Lukusa Suzanne Lyons Christina Machado Jennifer Madewell Lori Maire Eliel Lukusa Valerie Lyons Amy Macharia Emma Madgin Andrea Maitra Jessica Lulic Lisa Lyons Juliana Machi Cindy Madgy Jenna Majernik Janie Lumpkin Jennifer Lyp Natalia Maciel Jeffrey Madgy Nina Majerus Rebecca Lumsdon John Lyp Kyrie MacIntyre Anne Madigan Molly Majewski Caitlin Luna Marcy Lyp Larry & Tricia Lisa Madigan Sofia Majid-Swanton Jane Luna Hannah Lytle MacIntyre Tiffany Madison Pati Majkut Janelle Luna Meagan Lytton Terrie MacIntyre Dean Madonia Jennifer Majorana Lyndsie Luna Allyse M Laurel MacIntyre- Jennifer Madore April Makar Marie Lunam Amber M Howard Beth Madren Arlette Makcen Kristin Lund Ashley M Audrey Mack Amanda Madsen Becky Makela Marjanne Lunde Darcy M Stephanie Mack H Madsen Munira Makhija Annie Lundgren Darryl M Jayna Mackai heather madsen Tory Mako Housha Lundin Holli M Claire Mackay Sarah Madsen Kathleen Makowski Paula Lundin Julie M Hilary Mackay Molly Madsen Becca Mal Steve Lundin Julie M Mindy Mackay eilene maez Daryl Casey Erin Lundin Koty M Douglas Mackay Heather Magan Malabanan Matthew Lundon Laurie M Hannah Mackay Shawn Magbanua Carlos Malagón Vic Lundrigan Lindsay M Stuart Mackay Rhonda Magee Maria Paula Elizabeth Lunger Lynn M Michelle MacKenzie Stacey Magee Malagón Amaya Carolina Lunkes Mart M Beth MacKenzie Monica Mageland Matthew Malay Karen Lurie Nina M Dana Mackey Kristal Maggard Jessica Malcew Jacqueline Lusamba Pat M Esabia Mackey Sandra Maggard Melissa Malchow Sarah Luschei Stefanie M Mary Mackie Nell Maggio Olivia Maldonado Sara Lusher Kevin M'Pindou Michelle Mackie Michelle Maggs Sean Malick Niki Lusk Kelsea M’Pindou David MacKinnon William Maggs Geraldine Malino Elizabeth Lussier Gineth Méndez Noreen MacKinnon Lisa Magliano Michele Malis Tara Lussier Marcos Müller Ashley Kelse Magliano Alan Malkowski Heather Luther Sophia Müller Mackinnon_ashley@ Pat Magliano Michael Malkowski Tessa Luther Steffen Müller hotmail.com Lisa Magliente Tara Malkowski Tracie Luther elisabeth ma Donna Macklin Maureen Magnay Veronica Malkowski Elizabeth Lutow Cho Maat Leah MacKrell Jeanette Magness Beverly Mallon Abbey Lutz Lovella Mabalot Lydya Macksabo Katie Magni Mary Beth Mallon Ashley Lutz Dianne Maberry Stuart MacLean Elsie Magnus Blaire Malloy Rachel Lutz Jenny Mabert Chelsey Maclennan Jessica Magnuson Cynthia Malloy Rebecca Lutz Nick Mac Melissa MacLennan Melissa Magnuson Gerry Malloy Mel LUTZ Sarah Mac Alicia MacLeod Ollie-faye Magnussen Jillian Malmberg Henry Luwag Becca Mac Anna MacLeod Nerissa Magsisi Lance Malmberg James Luxton Paul Mac Donald Lisa MacLeod Carole Maguire Lia Malon Isabela Luz nicole macadam Ryan Macleod Martin Maguire Annie Malone Janice Ly Allison Macaione William MacLeod Sheila Magyar Karen Malone eugene lyall Dan Macalinao Patricia MacMillan LeAnne Mahaffey Siobhan Malone Mary Lyddane Angela MacAlpine Annie Macnee Rachel Mahaffy Emily Malone Chris Lydick Jennifer MacAskill Lynzee MacNeil Peggy Mahar Carolyn Maloney Casey Lyles Janine Macatrão Michael Macneil Sarah Maharjan Noesa Malonga Cheryl Lynch Shannon MacAulay Allison Macomber Paula Maharrey Jennifer Malouf Claire Lynch Judith Maccarone Melanie Macphee Pamela Mahas Lynnette Mambwe Donna Lynch Lori Maccarrone Fiona Macpherson Gay Maher Hillary Mamis Emma Lynch Lisa Maccaux Chris Macri Gina Maher Lauren Mammucari Jennifer Lynch Amber MacDiarmid Sarah MacRuairi Joan Maher Blessanca Manalang Kathleen Lynch Amy MacDonald Lilibeth Macusi Melissa Maher Floresca Manansala Kelli Lynch Heather Macdonald Kathy Macuspie William Maher Beatriz Manasé Lea Lynch Jennifer MacDonald Val MacWilliam Gayatri Mahil Cathy Mancill Lin Lynch Kirsty MacDonald Aimee Madden katie mahler Teri Mancino Lindaay Lynch Maryanne MacDonald Anne Madden Sue Mahler Katy Manck Marcia Lynch matthew macdonald Brendan Madden Wissam Mahmoud Jane Mancu Noel Lynch Nicole MacDonald Martina Madden Krista Mahns Danielle Mancuso Quentin Lynch Patricia MacDonald Rebbecca Madden Ruth Mahoney Sarah Mancuso Rachael Lynch Steven MacDonald Shannon Madden Tracey Mahoney Kristen Manderachi Sara Lynch Daniel MacDonald Taeghan Madden Andy Mahoney Lea Mandle Brenda Lynd Stephanie Yvonne Madden Lori Mahoney Kimberly Mandry Carey Lynn MacDonald Laura Madden Rebecca Mahoney Kathy Maness Danette Lynn Maryanne Jayne Madder Nohealani Mahuna Sarah Manetti Melody Lynn Macdougall Melissa Maddox Sam Maiden Jennifer Mangalino Rebecca Lynn Zoe Macefield Morgan Maddox Erin Maiello Courtney Mangham Diana Lynne Janis MacGillivray Randi Maddux Felicia Maiello Renata Mangione Katie Lynne Alison MacGregor Rebecca Maddy Brendan Maiello Lori Mangum Cherie Lyons Jeff MacGregor Mark Maddy Valerie Maier Ashley Mangus Mackenzie Lyons Trish MacGregor Ness Madeiros Kathryn Mains Amber Manino Renee Lyons Alexandra Machado Jen Madere Rochelle Maiorana Dani Maniquiz 116

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Trisha Manis Nicole Marie Stacy Marshall Kamby Martinez Josh Massey Shannon Mankovich Brit Marie Kolton Marshburn Kayla Martinez Karolyn Massey Maria Manku Angela Marin Catherine Marsicek Kelly Martinez Timera Massey TJ Manku Natalia Marin Kristine Marsico Lorenzo Martinez Ericka Massie niko manlapaz Steve Marinan Marybeth Marston Mauricio Martinez Ginene Massie Autumn Mann Ana Marinho Elena Martínez Nestor Martinez Raymond Massie Edward Mann Alyssa Marino Jacqueline Rogério Martinez Kristen Mast Geraldine Mann Holly Marino Martínez Shelley Martinez Kayla Masterman Harrison Mann Lesa Marino Sarah Martínez Valerie Martinez Sylvia Masters Jennifer Mann Noelle Marino Carol Martel Dominique Martinez Amelia Masters Shane Mann Kim Marion Madison Martel Jen Martinez Krista Mastersin Julie Mann Samantha Marion Nicole Martel Kadee Martinez Samantha Masterson Juliana Manna Karly Marion Janelle Martel Kasandra Martinez Lorna Masterson Rebecca Manney yusingco marites Isadora Amanda Shauna Martinez Margaret Masterson Stephanie Manni Staci Market Martelo Sherisse Martinez Phil Mastman Jenn Manning Colton Markey Mariana Martelozo Nicol Martinez- pamela mastro Katie Manning Gráinne Markey Alane Martens Wilson Christina Mastroianni Matthew Manning Katie Markey Milena Martho April Martini Kristine Mastropolo Suzanne Manning Tina Markey Tash Martig Zoe Martiniak Pat Mastropolo Dara Manno Hannah Markgraf Alesa Martin Mary Martino Sara Masucci Tiago Mano Vicki Markham Andrea Martin Andrea Martins Sonísia Masuda Patricia Manolis Lori Markman Angela Martin Denise Martins Elia Matacchiero Chelsea Manriquez Constance Markou Ann Martin David Martins Anastasia Matarirano Amber Manry Laura Markovic Bob Martin Jefferson Martins Steven Mates Jessica Mansell Caterina Markovic Brittany Martin Mariana Martins Aïda Mateu Alicia Mansfield H Markow Caroline Martin Mario Martone Scott Matheny Shagufta Mansoor Mary Markowski Catriona Martin Sandra Martz Collette Mather Melyssa Mantell Susan Marks Cortani Martin Robert Maruca Julie Mather-Johns Brooke Manthei Emily Marks Danielle Martin Ann Marugaki Amy Matherne Paola Mantovani Judith Markus Dara Martin Gregory Marullo Jamey Matherne Renan Mantovani Phyllis Markworth David Martin Christine Marullo Nathan Matherne Vera Mantovani Debbie Markzon Diana Martin Sally Marvin Theresa Matherne Michael Manuche Rick Marlatt Erin Martin Doreen Marwuez Abby Matherne Shannon Manuche Kate Marley Gemma Martin Shana Marx Heidi Mathers Laura Manuel Suzanne Marley Gillian Martin Gettle Mary Charmaine Matheson Rodolfo Manuel Heather Marlier Gina Martin Liza Marzilli Cindy Matheson Amy Manuele Marie Marmaduke Heather Martin Yolanda Masa Tom Mathew Patsy Manzanares Maribel Marmolejos Heidi Martin Amanda Mascarenas Christy Mathews Viridiana Manzanilla Joe Maro Jam Martin Pol Masip Jennifer Mathews Mindi Mapes PASCALE Jennifer Martin Amy Maskal Kat Mathews Chelsea Maple MARONEY Jennifer Martin Brandi Masker Ami Mathews Samuel Maquinalez Mari Marquard Jennifer Martin Jaime Maskil Vicki MATHEWS SJ March Cate Marques Jennine Martin Adriana Mason Lorna Mathias MaryBeth Marchand Lyvia Marques Jessica Martin Amanda Mason Birdie Mathis Nancy Marchelle Maria Marques Kara Martin Ann Mason megan mathison Steph Marchesani Raquel Marquez Kasey Martin Cara Mason Carl Mathre Rosemary Marchese Stacy Marquez Lucia Martin Cory Mason Maria Matiello Heather Marchiafava Giselle Marquez Pamela Martin Debra Mason Sophie Matla Alden Marchman Sue Marquis Rita Martin Heidi Mason Petra Matsson Beth Marchman Jenny Marr Ruthie Martin Judith Mason Silvia Matsuda Kristina Marchman Cheyla Marrero Susan Martin Kaitlin Mason Pattie Matsushige Joe Marciano Valerie Marrero Tawnie Martin Lauren Mason Anita Matta Lauren Marciano Megan Marrier Bethany Martin Lorna Mason Ginny Mattero Jaime Marco Britney Marroni Judith Martin Marie Mason Catherine Matteson Sam Marconi Carla Marset Lacey Martin Mitzie Mason Catherine Matteson Brenda Marcotte Carrie Marsh Megan Martin Rose Mason Tricia Matteson Sue Marcoux Jennifer Marsh Melanie Martin Sarah Mason Julie Matthes Cathy Marcy Lisha Marsh Emily Martineau Shar'ron Mason Cathy Matthews Heather Marenda- Maureen Marsh Holly Martineau Siobhan Mason Donnie Matthews Miller Bailey Marshall Victoria Martiner Melissa Mason Erin Matthews Miranda Mares Christine Marshall Buffy Martines Cora Masongsong Harriette Matthews Joanne Maresca Diane Marshall Alyssa Martinez Melanie Masongsong Jennifer Matthews Steven Margalit Fred Marshall Aphinya Martinez Andrew Massari Jennifer Matthews Julie Margolis Gabby Marshall Carmen Martinez Donn Massari Pam Matthews Lisa Marguez Kathy Marshall Dasani Martinez Andrea Massaro Patricia Matthews Manuela Marianera Mary Marshall Diego Martinez Danielle Massaro PATRICIA Matthews Amy Mariani Meg Marshall Elena Martinez Sarah Masse Rebecca Matthews Kim Mariano Patricia Marshall Jamie Martinez Stacey Masse Sherry Matthews Clarissa Marie Sara Marshall Javiera Martinez Cathleen Massey Tammy Matthews donna marie Stephanie Marshall Joselyn Martinez Heather Massey Cindy Matthews 117

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Emma Matthews Roxane Mbikay Gary McClintock Megan McDonald Andi McGreevy Megan Matthews Tara Mc Alise McClung Megan McDonald Allie McGregor Solveig Matthews- Anna Mc Cabe Kim Mcclung Sally Mcdonald Darrell McGregor Swindler Robert Mc Conn Lindsey McClure Andrew McDonald TJ McGregor Concetta Mattioni Mark Mc Govern Melissa Mcclure Daniel Mcdonald Anna McGriff Mark Mattis Monica Mc Keever Candice Mcclure Danielle McDonald Ashleigh McGriff Amy Mattison Janet McAdam Debra McClure Marjorie McDonald Lori McGrogan Allie Mattlage Robin McAdams Cara McCoach Gayle McDonnell Shea McGuane Shawn Mattox Jenn McAeavey Denise Mccollum Kristen McDonnell Susan McGuffin Kristin Matts Tina Mcaleer Karie McCollum Nicolette McDonnell Ann McGuire Jennifer Matyas Alycia McAllister Jessie McCombs Noeline McDonnell Joanna Mcguire Dalene Matzinger Heather McAllister Melissa McCombs Caroline McDonough Liz Mcguire Kayla Maubert-Hyde Kathleen McAllister Polly McCombs Jane McDonough Megan McGuire Katharine Maul Katie McAllister Rhonda McCombs Jill McDougald Maria McHale Joanna Maunders Lisa McAlpin Jane McConnell Cindy McDowell Jim Mchargue Marianne Maurer Bethany McAndrew Kally McConnell Duby McDowell Vivian McHugh Nicholas Maurer Kerilyn McAndrews Kathryn McConnell Dolores McDuffie Andrew McIlroy Steven Maurstad Janice McAran Molly McConnell Joseph Mcduffie Tracy McInally Manuella Anne McArdle Sam McConnell Paul Mceachron Julia McInerney Mavromichalis Laura McArthur Shannon McConnell Vanessa Mceachron Leona McInerney Judith Mawaka Joni McAuliffe KAREN Mccormack Angie McEldowney Lisa McInerney Dale Maxson Aurora McBee maryann mccormack Candace McElligott Paula McInerney Bernie Maxwell April Mcbrayer Terry Mccormack Doreen McElroy Steve McInerney Katie Maxwell Jennifer McBride Patricia McCormack Stacie McElroy Cici McInerney Stephanie Maxwell Kelly McBride Holly Mccormick Niamh McEntee Ray Mcinerney Celine Maxwell Christi McBroom Tara McCormick Amy McEwen Keri McInnis Kerry Maxwell Bernie McCabe Joanne McCoubrey Claire McFadden Nicole McInnis Melissa Maxwell Conal McCabe Kelsey McCoy Holly McFall Amber McIntyre Bettye May Emma McCabe Lavonne McCoy Paula McFarlin Ashley Mcintyre Claudia May Ron McCabe Michelle McCoy Laurie Mcfaul Heather McIntyre Deb May Brona Mccabe Rachel Mccoy Fiona McFaul Jill Mcintyre Liz May Deirdre Mccaffrey Sue McCoy Kim Mcfetridge Karen McIntyre Mary May Tara McCaffrey Meri McCoy- Tammi McGahan Lisa McIntyre Sondra May Jon McCahill Thompson Derek McGahern Edel Mcintyre LeAnne Mayapis Cindy McCain Penny McCracken Sean McGahern Jillyn McIntyre Jeff Mayberry Jo McCall Evelyn McCrackin Una McGahern Patricia McIsaac Lesley Mayberry Morgan McCall Chelsea McCrary Caroline McGahern Heather McKane Mary Mayberry Shea McCall Jessica McCraw carli mcgarrah Tanya McKay Tiffany Mayberry Luke McCamey Sarah McCreary Deirdte Mcgauran Tata McKay Linda Maybin Elizabeth McCann Tracy McCrory Ann McGeary Leanna McKee Susan Maybon Frances M McCann Chelsea McCubbin Jeanne McGee Shelley Mckee Christoph Mayer Jacqui McCann Bill McCubbins Meagan Mcgee Ashlea McKee Kerry Mayer Sarah McCann Jana Mcculloch Nikayla Mcgee Gerald McKeehan Stephanie Mayes Shelsie McCann Jennifer McCullough Shelley McGee Amie McKeel Britt Mayhew Naomi McCants Megan McCullum Kailyn Mcgehee Ashely McKeever Tracy Mayhew Ver McCardle Meagan McCurdy Sarah McGehee Heather McKelvey Jonah Maynard Carmen McCarthy Patty McCurdy Sarah McGhee Mike Mckenna Rebecca Maynard Catherine Mccarthy Stephanie McCurdy Michael McGibney Melissa McKenzie Tyler Maynard Colleen McCarthy Deb McCutchen Kathy McGill Heather McKenzie Lynn Maynard Erin McCarthy Joni McDaniel Rosanna McGill Laura McKenzie Erin Mayne Megan McCarthy Sherry McDaniel Amanda McGinnis Melanie McKeown Delores Mayo Rachel McCarthy Bryan McDermand Amparo McGinnis Kathleen Mckibbin Kathleen Mayo Stacey McCarthy Chelsea McDermand Pamela McGinnis Kerri Mckin Katie Mayo Rachel Mccarthy Jonene McDermid Rhonda McGinnis Jennifer McKinley Lisa Mayo Finley McCartin Anne McDermott Kelly McGinty Michelle McKinley Mira Mayo Susan McCarville Christine McDermott Michelle McGlin Susan McKinley Abi Mayrena Megan McCauley Kris Mcdermott Justine McGlone Christine Mckinney Lynn Mays Janine McCausland Mike McDermott Shelly McGlothlin Christine Mckinney Michelle Mays Casey McClain Rhonda McDermott Ji McGlothlin Jennifer McKinney Michelle Mazara Diane McClain Jenn McDermott Aisling McGovern Kim McKinney Jennifer Kelli McClain Megan McDermott Amy McGovern Michelle McKinney Mazgajewski Kelsey McClain Natasha Mcdermott Jason McGowan Farrah McKinney Whitney Mazingo Stephanie McClain Amanda McDiffett Peggy Mcgowan Courtney Mckinnon Michelle Mazur Renai McClanahan SUsan McDoanld Debra McGrath Kelly McKinnon Patti Mazurkiewicz Eric McClanahan Billy McDonald DeAnn McGraw Laura McKinnon debbie mazzeo Jessica McClellan Brooke McDonald Donna McGraw Michelle McKinnon Erin Mazzolla Chelsea McClelland Dannie McDonald Larry McGraw Emma McLafferty Gina Mazzotta Jennifer McClerklin Jennifer McDonald Mark McGraw Mark McLafferty Jo Mazzotta Patricia McClimon Landon McDonald Michelle McGraw Sean McLafferty Kristen Mazzotta Erin McClintock Megan McDonald Sarah McGray Beth McLamb 118

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Mary McLamb Abbey McNutt Irene Meleleu Jenna Mercer Sargon Michael Megan McLane Kelley McPartlin Manuel Melendez Amy Mercer John Michael Catherine McLaren Jodi McPherson Maria Melendez Rachel Mercer Lawrence Michaels Libbuy McLaren Phillip Mcpherson Lori Melius Emelie Merchant Lisa Michaels Esther McLaren- Karen McQuate Mary Ann Melkonian Jacqueline Mercorelli Ashlynn Michehl Noble Alexa McQueen Michelle Mellado Symone Mercuri Igor Michelsen Molly McLarnon Michele McQueen Micaela Mellencamp Shelly Meredith Maria Michelsen Debbie McLauchlin Sarah McQueen Fred Mello Staci Merillo Kristyna Michenkova Brenda Mclaughlin Cathrina McSeain Guilherme Mello Jeremy Merkel Christine Michon Julie McLaughlin Kate McShane Tatiana mello Melissa Merrick Gala Mickley Kelsie McLaughlin Theresa McShane Rebeca Melman Ashley Merrill Carrie Middleton Krista McLaughlin Joanne Mctaggart Ana Melo Judith Merritt Kindrea Middleton Lori McLaughlin Dana McTavish Soraia Melo Kaitlyn Merry Jenifer Midili Sarah McLaughlin JOHN MCVAN Nancy Melquist Kelly Mershon Julie Mielke Sharon McLaughlin Nicole Mcvay Paul Melquist Tracy Merwede Emily Mielke Mary McLaughlin John McWalter Brooke Melrose Melissa Merz Yoshimitsu Mifune Michele McLaughlin LaNae Meacham Luke Melrose Christin Mes Gina Miguel Ashle McLean JoAnn Meade Ellen Melton Nichola Meserve Alyssa Mihalik Catherine McLean Kait Meade Emily Melton Julie Mesloh Rebecca Mihopoulos Edel Mclean Kathy Meade Jeanne Melton Nichole Mesnard- Rosemary Mijal Margaret McLean JEFF MEADOWS Lisa Melton Hoaglin Tara Mikkelsen Mary McLean Heather Meadows Jenna Melvi Laura Messenger Marianna Mikler Mary Beth McLean Vicki Meanwell Elsy Mena Dina Messina Christina Mikulski Michael McLean Hillary Meariman Rob Mencunas Marcela Messina Jenelle Milam Staci McLean Stephanie Mease Alexandra Nancy Messina David Milazzo Theresa McLean Megan Meays Mendelsohn John Messinger Donna Milazzo Tim McLean C Mechlin Mary Mendenhall Melody Messinger Hannah Mild Jae McLean Debbie Medeiros Sandra Mendenhall Jessica Messinger Kate Miles Abby McLeay Kylee Medeiros Carol Michels Anne Marie Messmer Lauren Miles Melissa Mcleish Rachael Medhurst Mendes Enily Messner Anita Miles Christopher McLellan Deborah Medico Fernando Mendez Kim Mestre Nicole Milesky Caitlin McLeod Ariel Medina Jamie Mendez Olivia Meta Georgianne Miley Kathy McLeod Chris Medina Val Mendez Despina Metakos Angela Milio Anne McLeod John Medina Megan Mendick Janet Metcalf Molly Millage Freya McLuckie Liz Medina Bryan Mendiola Tracy Metivier Denise Millar Robin McMahan Norma Medina Laura Mendiola Janine Metro Marissa Millard Amy Mcmahon Kaileigh Medley garcia Cheri Metts Kim Millen Jamie McMahon Fayth Medlock Blezie Mendoza Stephanie Metz Abby Miller Katie McMahon Melissa Medroso Carol Mendoza Heather Metzger Alidon Miller Catherine McMahon Melanie Medza GLEN Mendoza Melanie Metzinger Amanda Miller Laura McManus Siri Mee Jasmine Mendoza don metzler Amanda Miller Emma McMinn Sarah Meehan Lupita Mendoza Kailey Meusel Ami Miller kenlea mcmorris Hannah Meeks Mayra Mendoza Michelle Mewhinney- Amy Miller Rebecca McMullin Iliana Meeks Ramon Carlo Angel Amy Miller Valerie McMurtry Krystina Meens Mendoza LIZ MEWTON Amy Miller Gail McNair Sarah Mehegan Ruth Mendoza Brooke Meyer Angela Miller tori mcnally Nicole Mehelich Cathy Mendoza Carolyn Meyer Angela Miller Kelly McNamara Becky Mehl Kristen Mendoza Julie Meyer Angie Miller Krystina McNamara Lauren Mehran Saber Mendoza Katie Meyer Anna Miller Melissa McNamara Milan Mehta Sonia Mendoza Linda Meyer Ashley Miller Robin McNamara Monica Mehta Amanda Menefee Paula Meyer Barbara Miller Connie McNamara Crystal Mei Mariane Meneghetti Suzanne Meyer Bridgette Miller Kelly McNamara Katelyn Meier Ana Menendez Tammy Meyer Buronika Miller Sue Mcnamara Trista Meier Amanda Menne Vicki Meyer Cassidy Miller Ronald McNamee Cheri Meijer Sharon Mennella Melissa Meyer Dan Miller Ann McNeeley Catherine Julie Meno Mariah Meyerkorth Dan Miller Amy McNeely Meisenhelder Mariella Mensah Brooke Meyers David Miller Marissa McNeely Kathryn Meiser Megan Menster CHERYL MEYERS Dawn Miller Ryan McNeely Mary Lu Meixell Sarah Mentzer Christy Meyers Deana Miller Pamela McNeely Maria Mejía Brittany Meoska Julie Meyers Debbie Miller Crain Mary Mejia Ashley Mera Novia Meyers Diane Miller Carolyn Mcneil Megan Mejia GARY Mercadante Terra Meyers Dustin Miller Michael McNeil Raquel Mejia Maryellen Valerie Meyers Edna Miller Teresa McNellage Linda Mejia Mercadante Amanda Meyers Elaine Miller Nikki Mcnew Keith Melanson Laura Mercadante Jennifer Meyers Emily Miller Madison McNichols Jade Melberg Alessandra Mercado Ana mezquita Emily Miller Heather McNulty Mrs C Melberg Nerissa Mercado Carolyn Micciche Emily Miller Lynda McNulty Amy Melcher Owen Mercandante Bonnie Michael Greg Miller Stephnie McNulty Nancy Mele Jennifer Mercede Josie Michael Heather Miller Jennifer McNulty Tom Melegh Caroline Mercer Sarah Michael Heather Miller 119

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Heather Miller Bonnie Mills Olivia Mitchell Kevin Mongan Debra Moore J Miller Brenda Mills Pamela Mitchell Kami Mongar Diana Moore Jacqueline Miller Elizabeth Mills Rita Mitchell Marilyn Monhollen Dominica Moore Jamie Miller Erin Mills Shivaun Mitchell Janet Monico Elisheba Moore Jill Miller Kayla Mills Somer Mitchell Sheila Monroe Erin Moore JOSEPH MILLER Pamela Mills Trish Mitchell Alexsia Monroe Jane Moore Karen Miller robby mills Christina Mitchell Danielle Monroe Jennifer Moore Karen Miller Stacey Mills Herman Mitchell Deborah Monroe Jennifer Moore Katie Miller Vicki Mills Kelly Mitchell P Monroe Jill Moore Kayla Miller Yvonne Mills Kerry Mitchell Renae Monroe Joyce Moore Kristen Miller Jessica Millsap Kim Mitchell Ashlee Monroe-Brusa Katheryn Moore LaDonna Miller Winnie Milner Kory Mitchell Elysa Monserrate Kenny Moore Laila Miller Donna milnes Scott Mitchell Danielle Montagliano Kia Moore Libby Miller Rebekah Milstead Trish Mitchell Jen Montalvo Kristina Moore Linda Miller Melanie Milti Carolyn Mitton Lucie Montana Leah Moore Linda Miller Kathleen Miltner Scott Mitton Alisha Montano Leila Moore Louise Miller Tricia Milto Sydney Mitton Jordan montano Lisa Moore Magda Miller Emily Mimms Martha Mix Clarice Monteiro Lisa Moore Marilyn Miller Stephany Mimms Nikki Miyamoto Donna Monteiro Macy Moore Meghan Miller Jo-Anne Mina Lynn Mizzell Kim Monteiro Marcus Moore Melissa Miller Crystal Minaker David Mleczewski Jennifer Monteith Melissa Moore Mike Miller Martha Mincey Kenneth Mleczewski Isabel Montero Melissa Moore Nate Miller Pamela Mindell Roberta Mleczewski Tiffany Montero Nichol Moore Nicole Miller Maxine Minerva Steven Mleczewski Sandy Montes de oca Pam Moore Pam Miller Maria Miney Sylvia Mlynarska Rachel Montet Raymond Moore Patricia Miller J J Miney April Moates Joan Montgomeey Shannon Moore Paul Miller Sally Mingke Brandi Moberly Bridget Montgomery Stephanie Moore Phyllis Miller Linda Minich Amberly Mobley Carlee Montgomery Suzanne Moore Sharon Miller Stephanie Minnich Teresa Mobley Christine Montgomery Teresa Moore Sharon Miller Colleen Minnihan Mona Moccia Jess Montgomery Angelique Moore Shayla Miller Elena Minnow BONNIE MOCK Todd Montgomery Debbie Moore Shayne Miller Kathleen Minor Amy Mockoski Katie Montgomery Karen Moore Sommer Miller Felicia Minton Faith Moddrell Paula Montgomery Allegra Moored Stacey Miller Yolanda Minton Margarett Modena Missy Montgonery Jody Moorhead Stacey Miller Ellen Minturn Lisa Modesto Samantha Montigny Michelle Moos Stacie Miller Nichole Mintus Maria Modestou Helen Montijo Susanne Morado Stephanie Miller Amanda Minyard Jody Moen Sarah Montminy Gilza Moraes Suzanne Miller Sierra Minyard Kim Moen Chelsea Montoya Karoline Morais Terra Miller Thiago Miró Jenny Moffat Megan Montoya Benjamin Morales Vicki Miller Luisina Mirabal Elizabeth Moffett Destiny Montoya lori morales William Miller Juli Mirabile Archee Moffitt Allison Montross Selena Morales David Miller Louise Mirales Rebecc Mogensen Julie Montz Isabel Morales Jill Miller Luis R Miranda Sarah Mogus Karyn Moody Heather Morally Katy Miller Carolina Miranda Nicole Mohacey Meloney Moody Alison Moran kristen miller Casie Mire Maureen Moher Susan Moody Jackie Moran Marissa Miller Delilah Mireles Dianne Mohr Kendra Mooers Rich Moran Michael Miller Susan Mireles Juan Mojica Dori Moomey Laura moranduzzo Shae Miller Alex Miscevic George Mokdsi Alissa Moon Daniel Morano Shelly Miller Mia Mischuk-O'Brien Dana Mol Carol Moon Cynthia Morantine Emilee Millet Jennifer Mishler Gabrielle Molenkamp Christine Moon Sylvia Moras Sonya Millet Ivanka Misilo Bernat Molero Gretchen Moon Docampo Morate Charis Millete-Toader Katria Misilo Michelle Molesky Jackie Moon Katie Morawski Candi Milliard Roksolana Misilo Kylee Moline Kelsey Moon Sarah-Jane More Larry Millican Kim Misira Kristen Molinelli Tabitha Moon Cayla Moreau Laura Millies Nicole Miskiewicz Meghan Molitor Dorothy Mooney Tamara Morehead Nicole Millies Laura Mitchekk Amanda Moller Sara Mooney Eloisa Moreira Jill Milliet Amanda Mitchell Julie Molloy Addison Moore S Morel Jaci Milligan Betsy Mitchell Ivett Molnar Amanda Moore Mindy Moreland Melodee Milligan Christine Mitchell Peggy Molnar Amanda Moore Sherry Moreland Patricia Milligan Consuelo Mitchell Steven Molnar Angelisa Moore Cynthia Morelli Robert Milligan David Mitchell Randi Molofsky Anna Moore Gia Morelli Linda Millinger Dawn Mitchell Tina Monachino Audrey Moore Annali Moreno Howard Millington Gigi Mitchell Anne Monaco Bobbi Moore Laura Moreno Sylvia Millington John Mitchell Jackie Monaco Brian Moore Carolina Moreno Brian Million Judy Mitchell Julie Monaco Cailin Moore Sarah Morey Laura Millison Linda Mitchell Fionnuala Monahan Carol Moore Angela Morgan Todd Millison M Mitchell Sally Moncrief Carrie Moore Ashley Morgan Carla Millner Mark Mitchell Alison Mondrach Chris Moore Bryan Morgan Crystal Millner Marquita Mitchell Alicia Mondragon Claudia Moore Carole Morgan Alison Mills Michel Mitchell Dave Mongada Deana Moore Carolyn Morgan 120

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Carrie Morgan Kaity Morrow Bethany Mrugalski Karen Munnelly Carrie Myers Devon Morgan Amy Morse Alba Muñoz mike munning Cecelia Myers Erin Morgan JoAnn Morse Begoña Muñoz Kelly Munno Cheryl Myers Evan Morgan Michelle Morse Maria Muccio Erika Munoz Denise Myers Katie Morgan Quinn Morse Phil Muck Felix Munoz Emily Myers Lacey Morgan Sydney Mortenson Stephanie Muckel Maria Munoz Katie Myers Matthew Morgan Sheri Mortola Elizabeth RAFAEL MUNOZ Lindsay Myers Rebecca Morgan Denise Morton Muehlenthaler Chris Munroe Melissa Myers Robert Morgan Diane morton Elizabeth Mueller Barb Munz Melissa Myers Robin Morgan Dorothy Morton Jackie Mueller Verne Murakami Susan Myers Sherry Morgan Elizabeth Morton Julia Mueller Deborah Muraoka Valerie Myers Stephanie Morgan Gary Morton Katie Mueller Logan Murcer-Drakes Bill Myers Tay Morgan Jessica Morton Kim Mueller Molly Murchie Kati Myers Allyson Morgan Kim Morton Leah Mueller Courtney Murchison Kim Myers Angie Morgan Lisa Morton Linda Mueller C Murdie Ilana Myerson Elena Morgan Marissa Morton Linda Mueller Sergio Murillo Amanda Myette Gina Morgan Stan Morton Nathan Mueller Lauren Murner Mary Mykityshyn Kelly Morgan Elaine Morton Leah Muench Anna Murphy Roisin Myles Meredith Morgan Richard Mosca Kelly Muesenfechter Barbara Murphy Leanne Mynett Sarah Morgan Dianne Moschetta Dixie Mueting Chad Murphy Pilar Myrick Autumn Morin Pearily Mose Joe Mugabo Elizabeth Murphy Laura Myron Katherine Morin Erica Moseley Peggy Mugaby Jimmy Murphy Brenda N Jessica Morinitti Kathleen Moseley Francine Mugge Jo Murphy Meagan N Yusuke Morita Janet Moser Jane Muggeo Kathleen Murphy Rob N Kayla Morral Salomé Moshfegh- Sheila Muglia Kimberly murphy Laura Na Senga Morran shieh Emily Muhlberg Kori Murphy Nikki Nabi Helene Morrell Liz Mosley Joann Muhleman Linda Murphy Patti Naccarato Kate Morrical Jozette mosmythe Katherine Muhs LORI MURPHY Renee Nacol Rethea Morrid Celina Mosquera Regi Muich SHANNON MURPHY Shari Nacson Bernie Morrin DanieLLa Mosquera Justine Mujinga- Shannon Murphy Alysia Naesgaard Carlyn Morris Anne Moss Beya Tammy Murphy Diane Nafziger Cindy Morris Lauren Moss Solange Mukendi Vivian Murphy Judy Nafziger Danielle Morris Jazmine Mossey Nora Mukimba Angela Murphy Lowell Nafziger Elizabeth Morris Charlene Mossey Michelle Mule Bambi Murphy Ceia Nagao Erin Morris Brittanie Mostad Helene Mulholland Christina Murphy Brook Nagel J. Morris Kim Moster Anna Mulhollem Michael Murphy Savannah Nagel Jeanne Morris Christina Mosur Pamela Mullally Ann Murray Danielle Nagle Jill Morris Adrienne Moten Arlene Mullaney Anne Murray Mylene Naguit Joni Morris Kara Mothes Laura Mullaney Ben Murray Joe Nagy Kcy Morris Stacey Moton Amy Mullen Cassie Murray Alice Naik Kyle Morris Kayla Motroni Meaghan Mullen Cindy Murray Laureen Naik Lauren Morris Elizabeth Mott Missy Muller Kayla Murray Jaycy Nail Linda Morris Rachelle Mott Phyllis Muller Kelly Murray Jaycylyn Nail Liz Morris Renda Mott Debbie Mullett Laura Murray Lila Najim Lynnette Morris Izabelle Motta Diane Mullett Martha Murray CiCi Nakano Makena Morris Katelyn Motter Patricia Mullett Melinda Murray Cheryl Nakata Melodie Morris Gwennaelle Stephanie Mullett Tyler Murray Lindsey Nakayama Norah Morris Moubouyi Noel Mulligan Bernadette Murray susan nalley Pam Morris Kindra Moudry Patricia Mulligan Dawn Murray Cathy Nance Pat Morris Makena Moudry Angela Mulligan Eileen Murray Kerri Nanula Peter Morris Emma Moul Kieran Mulligan Kevin Murray Michelle Naparalla Rebecca Morris Gretchen Moulder Christina Mullins Raymond Murray Kelly Napiorkowski Rebecca Morris Hannah Moulis Elise Mullins Janetta Murrie Julie Napolitano Sandra Morris Sandra Moulton Phyllis Mullins Chantelle Mury Erin Nappi Stacey Morris Jessica Moura Rachel Mullis Stephanie Murzyn Kay Naq Tasha Morris Karen Mourglea Nicole Mulvaney Samantha Muse Mackenzie Naramore Pam Morris Leigh Mournighan Brandon Mulvey Andy Muske JoAnn Nardolillo Caitlyn Morrison Victoeia Mousenga Donna Mulvey Christy Musolf Sarah Narduche CARA MORRISON Carly Mouton William Mulvey BRENDA MUSTA Susan Narring Deborah MORRISON Panayiota Mouzoura Ronald Mulvey Abbey Mustard Thamyris Nascimento Elizabeth Morrison Sonia Movarrei Brendon Mulvihill Kaitlyn Muth Rafael Nascimento Kim Morrison Ashley Mowatt Deirdre Mulvihill Tracey Mutter Moraes Lynne Morrison McKenzie Mowry Nellie Mulvihill Kelly Muzzy Elena Nasereddin Marisa Morrison Shayla Moye Danielle Mundondo Emma Mvdermott Christiane Nash Michelle Morrison Allison Moyer Annette Mundstock Jessica Myer Julie Nash Shaun Morrison Michelle Moyle Kirsti Mundy Ashley Myers Kendall Nash Tanya Morrison Kristian Moyna Nicole Mundy Audri Myers Amir Nasim Brit Morrison Michele Moyna MARIANA MUNIZ Brooke Myers Diane Naso Jennifer Morrissey Timothy Mozingo Robyn Munk Carla Myers Liz Nassef Emma Morrow Diane Mozol Julie Munko Carol Myers Cristina Nassif 121

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Fran Natale Q Nelson Thuy Nguyen Cassie Nixon mikayla noto Kristen Natale Rebecca Nelson Hong Nguyen Jovan Nixon Natalie Noto Meredith Nations Renee Nelson Sara Nguyen Patience Nkamba Ann Notrelevant Erica Natoli Sara Nelson Charles Nicastro Elisabeth Nliss Georgina Nott Kimberly Natrella Sarah Nelson Chris Nicastro No No Lucy Nottingham Julia Nattkemper Sarah Nelson Chris Nicastro No No Kristen Novacek Kathleen Naudi Stacy Nelson Monica Nicastro No comment No marina novaes Andrew Naughton Tonya Nelson Charles Nicastro comment Amanda Novak Maureen Naughton Traci Nelson Brenda Nichol Kelly Nobay Anna Novak MaryAnn Naughton Leah Nelson Amy Nicholas Cindi Noble Julie Novak Amanda Nault Margaret Nelson Clara Nicholas Jennifer Noble Nicole Novick Perla Navarrete Mary Nelson Jenny Nicholas Lacy Noble Jacqueline Novinger Dani Navarro Jan Neltner Lawrence Nicholas Susan Noble Anna Novotny Glaucia Navarro Teresa Neri Gemma Nicholls Jamie Noblit Jessica Novotny maliah navarro serika nerida Christy Nichols Malia Nobriga Andria Nowak Cindy Nave Jen Nes Kathleen Nichols Alexis Noceda Bart Nowak Margaret Navolio Denise Ness Serrah Nichols Catherine Nock Jessie Nowak Margaret Navolio Ben Nestor Amy Nichols Abigail Noel Megan Nowak Stephen Navolio Danielle Nestor Julie Nichols Rushmie Nofsinger Matthew Nowicki Judy Navoni Antonio Neto Mary Nichols Joyce Nogan Esperante Nsenga Donna Navyac Kara Nettnin Alice Nicholson Juan Carlo Nogoy Theresa Nuckols Antia Naya Kayla Neu Beth Nicholson Stephane Nogueira Elisa Nugent Christopher Naylor T Neu Jeff Nicholson mary nohelty Lauren Nuke Mollie Naylor Megan Neugent Jennifer Nicholson Amanda Nolan Lana Null Scott Naylor Lori Neuhauser Nick Nicholson Gillian Nolan Sheena Nunan Ruth Nazarian Marica Neuhauser Rebecca Nicholson Janice Nolan Viviane Nunes Katherine Neal Lindsay Neuman Sabrina Nicholson Molly Nolan Monica Nunes Kim Neal Mark Neuman Katie Nicholson Patricia Nolan luciana Nunes Silva Margaret Neal Bobbi Nevala Amy Nickel Samantha Nolan Mariela Nunez Dan Neale Eduardo Nevares Anna Nickel Andrea Nolasco Sandy Nunez Shanna Nealy Michelle Neveling Lucy Nickell Ashley Nolen Kim Nunley Jill Neas Shannon Nevels Sarah Nickerson Maggie Nolfi Julia Nunn Amanda Nebbia Lonnie / Kay Neves Samantha Nickerson Jennifer Noll Jordan Nus Shawna Nebel Pamela Neveu Mary Jane Nicklies Maria Nolli James Nutter Ann Necessary Tia Nevil Chris Nicodemi Maggie Noojin Ijeoma Nwahiri Precy Nechtman Jamie Neville Molly Nicol Cathy Noonan Kakulingo Nyakairu Eric Ned Kristine Newberg Terry Nicol Liz Noonan Peggy Nye Claudia Needham J Newbigging Deena Nicol-Blifford Karen Noone Marianne Nyland Dawn Needham Jessica Newcomb Kelsey Nicolai Coreen Nootchtai Gina Nylund-Ditto Kindra Needham Jill Newconb Pedro Nicolau Marissa Norbert Jane Nystuen Virginia Neely Richard Newell Carina Nicolav Debbi Nord lydia nzembela Nina Neen Susan Newell Billie Nicolay Ronnie Nordberg Amanda O Kerry Neenan Susan Newhouse Miranda Nicole Tommi Nordenger Beth O Bonnie Neese Janice Newland Sofia Nicot Erin Nordman Kathy O Shelby Neff Aimee Newman Andrea Nied Alison Nordquist Lydia O Keana Negrete Cheryl Newman Renee Nielly Janet Nordrum Waylon O Alessandra Negri Georgia Newman Jill Nielsen Lisa Nordstrom Anne O Brien Kathrine Negron Sarah Newman Julie Nielsen Lori Nordyke Siobhan O Carroll Migdalia Negron Jessica Newman Cyndi Nielsen Christy Norman Shaton O donnell Kristine Neiberger Racheal Newman Vonae Nielson Maureen Norman Siobhan O hara Diane Neises Clarissa Newnham Diana Niemas Simone Norman Mairead O Reilly Josh Neldon Andrew Newport Tiffany Niemczyk Jasmine Normoyle Ruth O Reilly J Nels Jessica Newshutz Joyce Nierodzinski Stacy Norrell Tricia O Reilly Hilary Nelsen Britt Newton Kristen Niess Jessica Norris Aine O Reilly Phyllis Nelsen Brooke Newton Shannon Nieto Kirsta Norris Caroline O Reilly Ana Nelson Donna Newton Susannah Nietz Wli Norsworthy Claire O reilly Anna Nelson Wendy Ney Christian Nigmann Pam Northey Kate O Reilly Bodhi Nelson Jennifer Ng Abigail Nikolevski Claire Norton Margaret O Reilly Brea Nelson Margaret Ng Kelly Niles Dan Norton Erin O'Brien Brooke Nelson Stephanie Ng Han Nill David Norton Helen O'Brien caren nelson Jean Ngan Megan Nimmo Garrett Norton Mary E O'Brien Hilary Nelson Sarah Ngo Elioenai Nimtz Tom Norton Mary O'Donnell Holly Nelson Martine Ngoma bud nishino Ashley Norville Paul O'Donnell Jon Nelson Angelina Ngoy Leigh nissley Valerie Norville Mindy O'Donnell Joy Nelson Abigail Nguyen Jason Niu Michele Nosko Shea O'Donovan Julie Nelson Andrew Nguyen Brittany Nixon Kyler Not Afraid Genya O'Gara Kim Nelson Christina Nguyen Emily Nixon Samantha Not Shawn O'Hara Linda Nelson Jennifer Nguyen Heather Nixon comfortable sharing Michelle O'Malley Mallory Nelson Kim Nguyen Kellie Nixon Kris Notch Laura O'Nan Paul Nelson Scarlett Nguyen Maria Nixon Alice Nothacker Shawn O'Neal 122

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Gavin O'Neil Pam OCana Ann Oliver Brian Opalinski Javorka Ostir Natalie O'Neil Phoebe OCarrigan Jennifer Oliver Kelly Opferman Jenica Ostler Bre O'Neill Susana Occhi Jennifer Oliver Patricia Oplotnik Josh Ostler Dawn O'Neill Terra Ochsner Joni Oliver Daniel Oppenheim Amy Ostrawski Patrick O'Neill Jillian OConnor Kelly Oliver Shawnee Opunui Marsha Ostroff Bernie O'Reilly Regina OConnor Nicole Oliver Cameron Oquinn MaryBeth Ostrom Carol O'Reilly Therese Oconnor Olga Oliver Ada Oraedu Danielle Ostronic Declan O'Reilly Amanda Oconnor Megan Oliver Brandi Orand Nancy Ostrowski Hannah O'Toole Ciara OConnor Melussa Oliver Scott Orazine Sean Ostruszka Anna O’Berry Åsa Odö Sydney Oliver Elizabeth Orciuch Ana Osuna Erin O’Boyle Irene ODell Tori Oliver Sue Orciuch Hector Osuna Angela O’Brien Samantha Odey Vicky Oliver Emily Orcutt Nicki Oswald Jennifer O’Brien Amy Odglen Kirsty Olivier Maridel Ordona- Deborah Oswalt Patrick O’Brien Joshua Odom Susan Olivo Rehmet John Oswalt Stephen O’Bryan Stefani Odom-Wertz Kelissia Ollivierre Celene OReilly Anita Otchere Leigh O’Bryan Sheila Odoni Aspen Olmstead Diane OReilly Alba Otero Steffenie Betsy ODonnell Domenica Olsen Ricky Orias Dominic Otero O’Connell Cookie Odonnell Donna Olsen Dean Orlando Julie Otero Janis O’Connor Katie ODonnell Elise Olsen Jordyn Orlando Samantha Otero Jennianne Ryan ODonnell Eric Olsen Dawn Orlando Judy Ott O’Connor Tom ODonnell Michelle Olsen Debbie Orlando Mike Ott Lisa O’Connor Audra ODonovan Susan Olsen Lauren Orlando Olivia Ott Ger O’Connor Jill Odonovan Betty Olson Melinda Orlando Wade Ott Audriana O’Dell Kelly Odonovan Brittany Olson Katie Orme Patricia Ottaiano Amy O’Donnell Mary Oduro Fiona Olson Sarah Ormins Brent Otte Caitlin O’Donnell Noemí Oeding Jamie Olson Amy Ormsby Tiffany Ottinger Marion O’Driscoll Sarah Oehling Janice Olson Val Ormston Amy Otto Cheri O’Gara Sandra Oehrig Katie Olson Kelly Orndorff DOlores Ouimet Christy O’Hara Holly Oelkers Kaylyn Olson Ashley Oros Colleen Ounan Corinne O’Hare Kristin Oenner L Olson Jelic Orosco Anna Ousley Courtney Catherine Oestmann Raina Olson Annie ORourke Renee Outlaw O’Loughlin Friend Of a PWS Roxanne Olson Casey Orr Nancy Outler Garreth O’Mahony Family Ryder Olson Claudia Orr Lindsey Outz Debbie O’Neal Danyell Ogden Tammy Olson Julieanne Orr Shilo Ovadia Jennifer O’Neal Karen Ogden Vicki Olson Jeanette Orrantia Hope Overbay Kelly O’Neal Shay Ogden Emily Olson Angie Orren Rhonda Overbeeke Brenda O’Neil Ella Ogden Jessica Olson Amt Orso Lisa Overby Chelsea O’Neil Lyssa Ogilbee Lyle Olson Antoinette Ortega Amy Overholtzer Megan O’neil Jami Ogle Axel Olsson Dario Ortega Ashley Overman Meghan O’Neil Fabiola Oglesbee Emma Olsson Aizelle Ortiz Boyd Overman Tara O’Neil Donna Ogunsemore Margareta Olsson Ashley Ortiz Sara Overwater Dale O’Reilly sophia oh Isac Olsson Caliope Ortiz Debbie Owen Lindsey O’Reilly Christine Ohaire Barbara Olwill Felipe Ortiz Katelynn Owen Saoirse O’Reilly Dorothea OHara Stephanie Ombac Israel Ortiz Kathy Owen Ella O’Reilly Stephen Ohara Amy Omer Mayra Ortiz Travis Owen Leo O’Reilly Amy OHarrow Lauren Ommanney Charles Ortiz Amy Owens Noelle O’Reilly Dani Ohlman Anon Omous Dana Ortolano George Owens Ryanne O’Sullivan Mindy Ohlmiller Jaime Oncale Ann Orton Jamie Owens Rebecca Oag Sara Oien Marissa ONeal Haven Orton Kathy Owens Jennifer Oak Ali Okeefe Ben Oneil Natalie Orwig Kelsey Owens Janey Oakes Kris Okeefe Deb Oneil Jennifer osborn Luke Owens Meghan Oakes Tuulia Okser Richard ONeil Sue Osborn Susan Owens Wanda Oakley Sebastian Okser Louise ONeill Ali Osborne Taylor Owens Julie Oakman Breeaynna Olberding David Oner Angie Osborne Tiffany Owens Patty Oates JoAnne Oldaker Dana Ong Anne Osborne Patricia Owens Heather Oatis Melinda Oldham Mike Ong Claire Osborne Kathryn Ozog Jennifer OBanion Heather Oley Ann Michelle Derrick Osborne Ashley P Gretchen OBarr Allison Oliel Ongerth Tom Osborne Carrie P Cate Obarski Karin Olinger Wendy Onh Amber Osborne Emily P Thomas Obarski Kenna Oliva Julliet Onimi Joanna Osbourne Kate P Sabine Oberbach Daniela Oliveira Jessica Onken Roger Oshima Nicole P Erin Oberdorf Heverton Oliveira JR Onken Markus Oskarsson Sara P Norri Oberlander Janine Oliveira Traci Onken Jennifer Osmundson Alejandra Pérez Jessalyn Obert Jenny Oliveira Patricia Onorato Jessica Osorio Balthazar Pérez Jaimee Obie Klaus Oliveira Linda Onorato Tina Oster Martinez Filho Eleomeda Obrien Natalia Oliveira Katherine Onspaugh Alisha Ostermair Sara Pérez Nichole Obrien Paola Oliveira Amy Onyango Carol Osterman Sánchez Heather OBrien Aline Oliveira Jill Onyett Helen Osterman Clyde Pabro Sara Obrien Kimberly Oliveira Tatiana Bryan Ostermiller Brittany Pace Shelley Obrien Adriana Oliver Onyschtschuk Elizabeth Ostinett Lisa Pace 123

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Emily Rogers LINDSEY ROMERO Karla Rosengren Kathy Rozalewycz Carole Russell Janyce Rogers Steve Romero Paul Rosengren Jsyne Rozanski Kim Russell Joanne Rogers Teresa Romero Joanna Rosenthal Jordan Rozell Lindsay Russell Judy Rogers Toni Romero Ryan Rosenthal Julie Rozeveld Maria Russell Julia Rogers Oscar Romero Mary Rosenthal Jen Roznowski Melanie Russell Julie Rogers Susan Romero Sara Roser Lacey Rubick Rachael Russell Karryn Rogers Sandra Romero Ellory Roske Carla Rubin Rebecca Russell Kenny Rogers Reyes Anna Rosploch Kim Rubin Sandrs Russell Kim Rogers Abigail Romfo Ava Ross Judith Rubin Anne Russell Kristin Rogers Jayden Romfo Cassondra Ross Janet Rubino Cheryl Russell Malik Rogers Megan Romick Donald Ross Maria Rubio Tamara Russell Maria Rogers Aryn Romney F Ross Olivia Rubio Amy Russo Meredith Rogers Kelly Ronca Fern Ross Rizza Rubio Florence Russo Stephen Rogers Emily Rondinelli Holly Ross Sharon Ruble Melissa Russo Theresa Rogers Brittany Ronzani Jessica Ross Rachael Rucienski Nicole Russo Tiffany Rogers Andy Rook Julie Ross Candy Rucker Cristina Russom Bradley Rogers Kaye Rook Kelli Ross Gloria Rucker Edie Rustemeyer Karryn Rogers Megan Rook Lisa Ross Corrine Rucks Jen Rustemeyer Sally Rogers Cheryl Rooke Lisa Ross Cindy Rud Brenda Ruth Venessa Rogers Hilary Rookyard Savannah Ross Francesca Ruddy Megan Rutherford Nicole Rogers-Norton Caroline Rooney Will Ross Kim Rude Sandra Rutherford Pamela Roggendorf Darragh Rooney Linda Ross Lorie Rude Tricia Rutherford Jennifer Roggenkamp Holly Roos Susan Rossi Maxine Rudoff Betty Rutledge Cathy Rohan Helen Root susan rossi Christina Ruffino Maddox Rutledge Gabe Rohde Krissy Root Yohana Rossil Nichole Ruffino Debra Ryals Kirsten Rohde Louis Rooth Katie Rossman Josie Ruffner Alli Ryan Leslie Rohr Shauna Rop Emily Rosso Arielle Ruggiero Amanda Ryan R M Rohrback Lisa Roper Wilbert Rossy Lea Ruggiero Amy Ryan Marion Rohrdanz Raven Roper Hailey Rotenberry Debbie Ruhland Anthony Ryan Alexandria Rojas Tris Anne Ropiak Amanda Roth April Ruiz Christina Ryan Rayna Rokicki Sydney Ropp Lauren Roth Chris Ruiz Debbie Ryan Tracy Roland Dawn Roppel Lorri Roth Cintya Ruiz Elizabeth Ryan Mikai Roldan Tess Roppel Madelyn Roth Gwen Ruiz Erin Ryan Annette Rolfes Rachel Roraback Liz Rothberg Tracy Ruiz Gail Ryan Paula Rolison Adina Rosa Melissa Rothberg Yashira Ruiz Heather Ryan Jaime Roll Renata Rosa Yvonne Rothenberg Sarah Ruiz Jaime Ryan Katie Rollason Sydney Rosa Richard Rothermel Sarah Rukaj Judy Ryan Fred Rollins Danielle Rosa Kristen Rothman Medelis Rullan Kat Ryan Kendric Rollins Elizabeth Rosado Caitlin Rothschadl Carolyn Rumbarger Kim Ryan Leslie Rollins Leyshka Rosado Candace Roudebush Tricia Rump Lindsay Ryan Sarah Rollins Carole Rosales Trish Rougie Lauren Runde Maggie Ryan Sujey Rolon William Rosales Donna Rounsville Amy Runge Melissa Ryan Catherine Rom Sara Rosario Eliza Rountree Karen Runkle Nancy Ryan Sophia Romagnolo Sarah Rosario Danielle Rourke Tamara Runkle Paul Ryan Jennifer Roman Carla Rosario Lane Roush Troy Runkle Yvette Ryan Rachel Romanek Sirethia Rosario- Michelle Roush Bradley Runkle Anna Ryan Daniela Romanholi LaPlume Duane Roussel Dwayne Runkle Joanne Ryan Gonçalves T Roscoe Maggie Routhier Patty Runkle Stefanie Ryder Jane Romaniuk Brooke Rose Paulo Rovina Shauna Runnion- Stephanie Ryder Amber Romano Cheryl Rose Denise Rovina Bareford Deborah Rydman Bridgit Romano Chris Rose Kate Rowan Melanie Runyan Kerri Rygiel Christina Romano Elizabeth Rose Miranda Rowan Carolyn Runyon Alyssa Rymph Marissa Romano Faye Rose Diana Rowe Lori Runyon Timothy RYSZ Megan Romano Gail Rose Sandra Rowe Suzy Rupp Linda Rzepka Molly Romano Karen Rose Betsy Rowen Wilma Rupprecht Betty Rzewnicki Kristy Romanowski Lisa Rose Amanda Rowland Jay RUPRECHT Amber S lisa romanowski Love Rose Fran Rowland Laura Ruprecht Donna S Michelle MJ Rose Jana Rowland Joan Rusch Eric S Romanowski Pete Rose John Rowland Jamie Ruscheinski Hannah S Emily Romans Sarah Rose Brigid Rowlings Jeff Rush Jamie S Jacqueline Rombach William Rose Jane Rowsell Jonathan Rush Kayla S Jakob Rombach Andrea Rose Jordan Roy Krista Rush Meredith S Tobias Rombach Rick Rosell K Roy Lynda Rush Nick S Alison Romeo Teresa Roselli Mauri Roy Staci Rush Rachel S Brian Romeo Marcie Rosen Nicole Roy Barbara Rush Shelby S Brittney Romeo Nataly Rosen Trisha Roy Christina Rush Trisha S Jamie Romeo Heidi Rosen Mariah Roy Jessica Rushing Anna-lena Särs AngelA Romero Kristina Rosenberg Sarah Royce Mary Rushing Alberto Sánchez Arlene Romero Nancy Rosenberger Adam Royster Annabel Rushton Maite Sánchez heidi romero Mara Rosenbloom Roxana Royster Adam Russ Noelia Sánchez 129

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José Pablo Jenny Salvas Linda Sandman Tami Sasala Abbey Scerbo Sánchez lopez Andrea Salvatore Marciana Sandor Joy Sateren Karly Schaa Anneli Söderström Maria Salvatore Anna Sandoval Sarah Sather Ashley Schaad Terri Sabatini Michael Salvatore DeAnna Sandoval Joanne Sato Jaeland Schaaf Colleen Sabatino Jen Salvatore Marina Sandoval Tomoko Sato Jeff Schadl T Sabatino Tom Salzman Karen Sandoval Juliana Sato Julie Schadt Michelle Sabatura Kim Samaniego Capera Alyssa Satriano Cherlyn Schaefer Barbara Sabi Lawrence Samartin Marina Sandrini Donn Satrom Karen Schaefer Alyssa Sabin Lucille Samartin Thaisa Sandrini Betsy Satsfield Shannon Schaeffe Robyn Sabiston Cynthia Sambro wilson sandrini Jyotikumar Satta Katie Schaeffer Vincent fritz Rizmina Sameer Johanny Sanes Saket Satta Ariane Schafer Sablayan Bisher Samman Pam Sanfilippo Jon Saturay BIANCA SCHAFER Darnice Sabo Rita Sammons Jennifer Sanjurjo Jonathan Saturnino Donny Schafer patricia Sabo Linda Sammons Jennifer Sankot Bonnie Satz Emily Schafer Mary Sacco Jessica Sampaio Deborah Sansom Haley Sauce Jenna Schafer Tony Sacco Laura Samperi Erik Sansom Liz Sauer Jessica schafer Marie Sach Christina Sample Catalina Santacruz Wendy Sauer Michele Schaffer Marisa Sachs Sarah Sample Mario Santacruz Katherine Saul Elina Schaffino Annette Sackett Emily Sampson German Santacruz Liz Saulnier Emily Schaffner Carolina Sadalla Madonna Sampson Hidalgo Callie Saumweber Chrissie Jennie Sadley Ly San Sonyia Santana Judy Saunders Scharfenstein Rose Sadley Joyce San Antonio Yesenia Santana Kylie Saunders Brett Scharlow Irma Saenvoravong Julianne San Antonio Pat Santanello Liz Saunders Jenna Schatz Julie Saeva Jada San Antonio Patricia Santarosa Natalie Saunders Lori Scheele Abby Saey Mercado Christa Santella Nichole Saunders Sandi Scheer jennifer safe Remedios San Juan Chesca Santiano Sarah Saunders Patti Scheibel Rebekah Saffert Aquino Liz Santilli Cassie Saunders Ashley Scheinoha Boris Safir Roanne Sanborn Angela Santinelli Samantha Sauro Stephanie Schellberg Amber Sage Stephanie Sanborn Blanca Santistevan Lisa Sausville Sara Scheller Katey Sager Darryl Sanceda Vicki Santo Jodi Sautter Lindsay Schellhardt Amy Sagi Kathleen Sances Paulo Santoa Susan Sautter Sharon Schellin Sarah Saguto Aimee Sanchez Sarah Santora Erika Sauve Julia Schelter Carolina Sahlqvist Belen Sanchez Alexandre Santos Austin Savage Diana Scheman Karenjit Sahota Courtney Sanchez Ana Santos Pamela Savage Virginia Schembri Barb Sahs Diaz Sanchez Fernando Santos Marc Savare Gina Schenk Michelle Sailas Holly Sanchez Gloria Santos Paul Savary Rachel Schenk Krysta Sailer Jeannette Sanchez Juliana Santos Julie Savill Donna Schenkel Stacy Sailer JULIAN SANCHEZ Kate Santos Alex Saville Tara Schermerhorn June Sains Silvia Sanchez Marisa Santos Lisa Saville Kristin Scheve Kaz Saito Yami Sanchez Marjorie Megale Yve Saville Michaela Schiano Mark Salacup Eileen SANCHEZ Santos Margaret Savino Rachel Schiavi Annette Salad-Miller Gina Sanchez Milagros Santos Samantha 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Salerno Jeff Sanders Mira Saradzic Jennifer Scaggs Roslyn Schindler Juliet Saletta Jenny Sanders Marissa Sarao Benjamin Scalzo Jennifer Schindlet Tiago Salies Jessica Sanders Czar Sarcia Christopher Scalzo Alma Schipperges Libda Salley Kristyn Sanders K Sardano Heather Scalzo Elias Schipperges Sarah Salling Leeann Sanders Martel Sardina Ivannia Scalzo Jannis Schipperges Billie Salmond Stevie Sanders Whitney Sardina John Scalzo Thomas Schipperges Toni Salmons Storie Sanders Sami Saribay John Scalzo III Vincent Schipperges Marina Salomon Katherine Sanders Alyssa Sarkis Erika Scanel Tina Schiro Lionel Salonga Samantha Sanders Katie Sarkis Bridget Scanlan Emma Schlabach Ed Salt Sarah Sanders Cassandra Sarling Alice Scannell Mike Schlachter Dustin Salter Jason Sanderson Brendan Sarsfield Michelle Scannicchio Lucy Schlattman Crystal Saltrelli Mary Sanderson Jenny Sartain Kristen Scaringella Diana Schlegel Richard Saltrelli Elisabeth Sandgren Jody Sartin Laura Scarlata Bridgette Schlicker 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Vincent Scileppi Anmol Sekhon Levi Seymour Karla Schmidt Kyle Schroeder Antoinette Scott Regina Sekyra Brianne Seymour Sara Schmidt Lori Schroeder Barbara Scott Felicia Selan Rebecca Shadburne Mindy Schmidtgal Dan Schroers Cathy Scott Kimberly Selby David Shadduck Marra Schmierer Kari Schroeter Doreen Scott Megan Selby Kim Shade Lynsey Schmit Lindsay Schrunk Elisabeth Scott Myrna Selcher Bethany Shaffer Vince Schmit Denise Schuerenberg Erin Scott james self helen Shaffer Sarah Schmitt Kevin Schuette Jackie Scott Jen Selfridge Jessica Shaffer Todd Schmitt Sherri Schuette Jacqueline Scott Rebecca Sellars Natalie Shaffer Andrea Schmitz Caitlin Schuetze julie scott Herbert Sellers Sheila Shaffer Ashley Schmitz Doris Schuetze Rich Scott Jamee Sellier Tina Shaffer Madeline Schmitz Ken Schuetze Richard Scott Bryan Sellitti Aneka Shah-Levy Julieann Schmitz Stefanie Schug Stephen Scott Donna Sellstrom Danielle Shalaty Aubrey Schmoll Jennifer Schuh Yvonne Scott Austin Selph Cassandra Shambo 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Scroggins Frank Senese MIKE SHANNON Michelle Schneider Kara Schumacher Kelsey Scrupps Jody Senese Nikki Shannon Wayne Schneider Brittni Schumacher Annette Scully Lorene Senese Misty Shannon Elizabeth Schnell Kate Schumacher Madeleine Seabold Amy Seng Hayley Shanteau Donna Schnepp Erin Schuman Mary Seale Claire Seng Brad Shapiro Patricia Schnepp Tessa Schuman Peg Sealy Kate Senger Kathy B Shapiro Kelley Schnettgoecke Rosie Schuman Sara Beth Searcy Janice Senit Lori Shapiro Mary Schock Jessica Schumann Mindy Searfoss Janice Senit Jessica Sharbaugh Colleen Schoeck Jayne Schumm Kayla Searle Amanda Senn Marilyn Shardlow Jan Schoen Yvonne’s Alan Searles Kayla Senn Karen Sharkey Mary Kate Schuster Nancy Searles Lauren Senno Hugo Sharman Schoenbeck Cindy Schuster James Sears Elizabeth Senoron Marline Sharman Susan Schoenberger Kerri Schutte Josh Sears Jennifer Sensing Nathalie Sharman Trisha Schoenberger Alesha Schutz Rene Sears Sandy Seppala Angela Sharp Holly Schoenecker Erica Schutz Walter Sears Alejandra Sepulveda Bailey Sharp Caitlin Schoenow Allison Schwab Lauren Secko Karthik Sequeira Kat Sharp Keri Schoenthaler Shannon Schwab Brittany Sedotal silvia Sequerra Kerrie Sharp Amanda Scholl Hannah Sara Seed Helen Serafine Clover Sharpe Theresa Scholl Schwanekamp Staci Seed Madison Sergeant Rosanne Sharpe Victoria Scholl Allegra Schwartz Victoria Seelen Sarah Sergesketter Rylee Sharpton Melony Scholte Anna Schwartz Corinn Seeliger Alice Serpas Gemma Sharvell Alyssa Schoneweis Cara Schwartz John Seely Cathy Serpas Joanna Sharvell Natalie Schoof Enid Schwartz Linda Seely Heidi Serpas Patricia Shattuck Paige Schoolcraft Lauren Schwartz Ashley Seeman Nancy Serpas Amanda Shaw Erin Schorr Liora Schwartz Peter Seemann Anna Servideo Anna Shaw Sarah Schorr Felicia Schwartz Lori Seeney Heather Sessa Chrissy Shaw Jeffrey Schott Kathleen Schwartz Sandra Seeney Linda Seto Drew Shaw Janelle Schrader Katie Schwartz tori seeser Lisa Seube Gary Shaw Dawn Schramm Kelly Schwartz Melissa 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Lindsey Shaw Sarah Sherwood Kelsey Sickmeyer Kate Simon BRIAN SIWY Nikkki Shaw Mary Shevlin Laura Sidler Kerry Simon Karen Siwy Pat Shaw Rosalyn Shew Jaime Siebert Nick Simon Veronica Siwy Phyllis Shaw Kelly Shewmaker Carole Sieck Nicole Simon Daniel Sjölander Julie Shawn Stacey Shibao Chelsea Siegfried Rachel Simon Danielle Sjealy Jami Shay Alireza Shieh Kate Sielig-Dampier Sharon Simon Andreas Skön Jason Shay Juliana Shields Laurie Sierra Elise Simonian Shawna Skaris Katie Shay Kimberly Shields Craig Sievertsen Barbara Simons Kara Skarka Em She Laura Shields Debbie Sigai Elaine Simonsen Melody Skelly Erik Shea Mary Ann Shields Megan Sigillito Jill Simplot Julie Skelton Moira Shea Sue Shields Lexi Sigle Amy Simpson Allison Skelton Pat Sheadel Karen Shiffman Sarah Sigman Annette Simpson Harold Skelton Vonnie Sheadel Megan Shillow Emily Sikes Brendi Simpson Linda Skidmore Diane Sheahan Kosuke Shimizu Jenna Sikes Carla Simpson Marcie Skidmore Kayla Sheahan Sarah Shimko Jennifer Sikkema Charlene Simpson Ciara Skiles Olivia Shear Soyoung Shin shelby silberman Debbie Simpson Annette Skinner Ali Shearman Christi Shinn Glennan Silcox Elaine Simpson C. Skinner Christine Shebroe S Shinska Caroline Siler Hillary Simpson Jenna Skinner Felicia Sheehan Margaret Shipman Maya Siler Kari Simpson Robin Skinner Natalie Sheehan Donna Shipp Gabby Siligrini Kari Simpson Shaighn Skinner Maureen Sheehy Danielle Shirey Amanda Silko Kiahna Simpson Tracey Skinner Brooke Sheerans Marlene Shirey Joanne Silko Lindsey Simpson Dena Skinner Shawn Sheffield Penny Shirey Susanne Sillgren- Melissa Simpson Michelle Sklar Karen Sheffield V Shirey väisänen Amy Simpson Beth Sklarz Susan Sheflin Alli Shirley Melanie Silliker Carmel Simpson Molly Sklarz Jill Shefte Ashton Shirley Kelly Silliman Fiona Simpson Jen Skorinko Whitney Shehan Glenna Shirley Sarah Sills Leanne Simpson Andi Skowronek Megan Sheik Fran Shirley Alejandro Silva Rachel Sims Brendan Skowronski Sharon Shelbourn Pharris Shirley Aline Silva Shawnna Sims Heidi Skreczko Be ky Sheldon Deanne Shish Bianca Silva Cheyenne Sims Pam Skrove David Sheldon Madeline Shively Cibele Silva Christopher Sinclair Mary Skubisz Keri Sheldon Casey Shockey Cinthia Silva Gerald Sinclair Nancy Skudlarek Randy Sheldon Cortney Shockley Cleiton Silva Mary Sinclair Frida Skyman Sara Sheldon rebecca shoemaker Graziela Silva Shannon Sinclair Jennifer Slabinski Sara Shellhammer Tara Shoemaker Jesh Silva Leslie Sinclair Lara Slack Stacy Shelman Angela Shogren Kawailani Silva Michelle Sinclair Laura Slack Jessica Shelton Amanda Shore Kristin Silva Stacy Sinclaire Jeff Slade Trish Shelton Sara Shore Lourdes Silva Victoria Sindermann Teareny Slaight Diane Shelton Sandra Shorley María Silva BRAHNA SINGER Candy Slane Paul Shenkin Tracy Shorley Maria Silva Brittany Singer Lisa Slaney Barbara Shenton Courtney Short Maria Elisa Silva Gurveer Singh Lisa Slarks Chris Shepard Jacob Short Mary Silva Rachel Singh Kim Slate Julie Shepard Katen Short Oscar Silva Danielle Singh Melissa Slater Taylor Shepherd Lisa Short Priscila Silva Tyler Singleton Ursula Slater Lucy Shepherd Melanie Short Erika Silva Fara Sininsky Robin Slattery Melissa Shepherd Sara Short Ivonne Silva Alvarez Patricia Sinkhorn Stefani Slattery Jenn Sheppard Stu Short Maria Silveira Sherry Sinn Laura Slaven Will Sheppard David Shotwell Raquel Silveira Rose Sinyard Erin Slavin Drew Sherer Sarah Shotwell Alessandra Silveira Rachel Siochi Katelyn Slawson Lara Sherer Paula Shoultz Brad Silver Lisa Sionni Becky Slayton Eddie Sheridan Paula Shoup Jennifer Silver Amanda Sipin Dorina Sleep Jane Sheridan Rachael Shovlin Ericka Silverio Maria Júlia Siqueira Molly Slep Mairead Sheridan Lindsay Showalter Sherry Silvern Madison Sirois Sarah Slep Cathal Sheridan Vicki Shrader Noel Silvia Nancy Sirois Brenda Slezak Kara Sheridan Heather Shriver Tony Silvia Amelia Siroky Chris Sloan Olivia Sheridan Michelle Shropshire Aimee Simard Donna Siroky Donna Sloan Paula Sheridan Amie Shroyer Mara Simas Kathy Siroky Hayleu Sloan Sinead Sheridan Gayle Shufeldt Sarah Simchik Wendi Siroky Theresa Sloan Madyson Sheriff Rita Shukla Kim Simmers Amber Sisco Colette Sloan Alexa Sherman Julie Shuler-Misra Carmel Simmons Susan Sisk Sharon Slogenhop DeziRae Sherman Cheryl Shullick Jamie Simmons Diana Sisson Deanna Sloka Fry Katie Sherman Paul Shullick Kelly Simmons Kelly Sisson Abigail Sloot Olivia Sherman Sherry Shuman Laura Simmons Mark Sisson Libby Sloot Ralph Sherman Tracy Shumard Claire Simmons Cheri Sites Kendra Slover Tammy Sherman Wanda Shungu Kerry Simmons Xolani Sithole Laurie Slubowski Molly Sherman Corey Shusterman Andrea Simokonis Elliot Sitron Mark Slyder Debbie Sherrick Nancy Shusterman Christi Simon Connie Sitterley Brittany Small Kristen Sherron Haley Shutt Dijon Simon Ron Sitterley Gillian Small Brenda Sherwood Jamey Sibley Jon Simon Michael Siu Jessica Small elizabeth sherwood Nicole Siciliano Julie Simon Brett Siwy Kandi Small 132

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mike small Eve Smith Sharon Smith John Snatchers Rick Somerville Richard Smalley Hallie Smith Sharon Smith Stephanie Snell Gena Sommer Sean Smalley Heather Smith Shawn Smith Nancy Snelson Anca Sommerville Rhoda Smallidge Jaci Smith Shelly Smith Ashley Snider Piper Sonen Julie Smallwood Jack Smith Sheridan Smith Diane Snider Heidi Sonen Matt Smart Jane Smith Siobhan Smith Tina Sniegowski Megan Songer Stefanie Smart Janelle Smith Stacy Smith Angela Snodgrass Cherelle Songy Wendy Smedley Jannell Smith Stephanie Smith Robin Snoom Maile Soon Tamra Smelser Jasmine Smith Stephanie Smith Genevive Snopko Leslie Sooriash Laura Smeltzer Jennifer Smith Susan Smith Hope Snow Joanna Sopel Rebecca Smetak Jennifer Smith Susan Smith Vicki Snow Becky Soppe Sophia Smethurst Jennifer Smith Suzanne Smith Amy Snyder Jessica Sorcic Joy Smiegocki Jessie Smith Taryn Smith Carol Snyder Mark Sorency Karin Smigelski Jill Smith Teresa Smith Carole Snyder Kristina Sorency’s Cynthia Smigielski Jill Smith Therese Smith Chesney Snyder Kayla Sorensen Allison Smikey Joanne Smith Todd Smith Danielle Snyder Kathryn Sorensen Shelby Smiley Joe Smith Tom Smith Denise Snyder LAURA Sorensen Jessica Smitb John Smith Tony Smith Diana Snyder Margie Soriano Abigail Smith John Smith Tori Smith Heather Snyder Melinda Sorm Agnes Smith Julie Smith Tracy Smith jennifer snyder Connie Sorman Alexander Smith Kate Smith TressA Smith Jess Snyder Laura Sosis Alexandrea Smith Kathy Smith Vickie Smith JoLaine Snyder Jacob Soter Alwx Smith Katie Smith Victoria Smith Judith Snyder Emily Sotiriou amanda smith Kim Smith Wendy Smith Pat Snyder Natasha Soto Amber Smith Kristine Smith Whitney Smith Rhonda Snyder Patrisia Soto Ami Smith Larry Smith Whitney Smith Sarah Snyder Pia Soto Andrea Smith Lauren Smith William Smith Whitney Snyder Marta Sotp Angela Smith Laurie Smith Yvette Smith Ana So Kathy Souchet- Angie Smith Leiloni Smith Alexis Smith Pj So Downey April Smith Linda Smith Amber Smith Kristen So Kelsie Soudelier April Smith Lisa Smith Amber Smith Aline Soares Shelly Souder Ashley Smith Lisa Smith Barbara Smith Debora Soares Cathy Soukas Avril Smith Liza Smith Connie Smith Hilqueslei Soares Natalie Sourjohn Beth Allen Smith Lyn Smith Debbie J. Smith Margarida Soares Heidi Sourwine Breeda Smith Lynn Smith Faith Smith Raphael Soares ANA PAULA SOUSA Breege Smith Mackenzie Smith Jan Smith Altair Sobczak Junior Jennifer Sousa Briana Smith Maggie Smith Juli Smith Karen Sobel Rosie Sousa Burgundy Smith Mandy Smith Kerri Smith April Sobieralski Laura Sousa wagner Candace Smith Mary Smith Laura Smith Marilyn Sobieski Libby Souter Candice Smith Mary Smith Lisa Smith Betty Sobkowicz Susan South Caroline Smith Mary Smith Liz Smith Melissa Sodaro Angie Souther Carolyn Smith Mel Smith Marlo Smith Todd Soderberg Annie Southerland Carrie Smith Melissa Smith Matthew Smith Katherine Soderberg Cathy Southerland Cassie Smith Melissa Smith Patty Smith Eric SoderbergJr Susan Southern CeCe Smith Melissa Smith Rebecca Smith Susan Soear Sharon Southwick Charlotte Smith Mia Smith Victoria Smith Mel Soehl Lynda Souverain Charlotte Smith Michael Smith Wendy Smith Katie Soence Adcley Souza Christine Smith Michael Smith Christina Smith Dell Ann Soencer Jenn Souza Ciara Smith Michaela Smith Kelly Smith- Deanne Soetenga José Souza Courtney Smith Mirren Smith Armstrong Estelle Soger Maite Souza Crystal Smith Neil Smith Ashleigh Smithson Johnnie Soileau Pauline Sowa Daniel Smith Niamh Smith Andrea Smitj Talya Sokoll Lindsey Sowden Dave Smith Nicholas Smith Anna Smitj Daniela Sokolnicki Jennifer Soy David Smith Nicholle Smith Marie Smitj Chad Sokoloff Melissa Soybel Deborah Smith Nicole Smith Danny Smits Holly Sokoloff Marie Soza Debra Smith Nora Smith Helen Smits Jason Sokoloff Whitney Spah Denice Smith Orla Smith Katherine Smits Dee Ann Sokolowski Julie Spahn Diane Smith Paige Smith Kathryn Smits Rafaela Solano Kayla Spahr Donna Smith Patricia Smith Julie Smoak Kimberly Soliman Pat Spain Ed Smith Paula Smith Linda Smolak Diego Solis Chris Spanier Edie Smith Peggy Smith Vince Smolczynski Janelle Solis Kas Spanier Elaine Smith Perry Smith Trish Smurro Jenny Sollecito Angel Spanish Elise Smith PHOEBE SMITH Megan Smyser Nick Solomon Ruth Spanos Elizabeth Smith Rebecca Smith Holly Smyth Louise Solpietro Marissa Sparacino Elizabeth Smith Robert Smith Jo Smyth Tracy Solt Lori Sparacio Elizabeth Smith Sandra Smith Yvonne Smyth Catherine Somal Devin Sparkman Emily Smith Sandy Smith Krista Snader Paula Somerfield Bethany Sparks Erin Smith Sara SMITH Krista Snapp Katlynne Somers Lynn Sparks Erin Smith Sarah Smith Jennifer Snare Bud Somerville Darlene Sparling Erin Smith Sarah Smith Kevin Snare Sue Somerville Nicole Sparrow 133

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Katherine Sparrow Marija Sreckovic Erilisse Stansbury Maria Steinacker Robert Stewart SCOTT SPATNY Pucar Kris Stanton Dani Steinberg Shannan Stewart Megan Spayde Christy Srey Jody Staples Julie Steinbruegge Sheri Stewart Jalynn Speaks Ileen Sroka Amber Stapleton Marvina Steiner Stephanie Stewart JoAnn Speaks Karyssa Sroka Debbie Stapleton Kristen Steiner Tom Stewart Michelle Spear Michael Sroka Annika Stapleton Jennie Steldt Colin Stewart Samantha Spear Jason Sroka Elaine Stark Megan Stellato Jenny Stgermain Kendyl Spearing Bruce St Clair Kim Stark Joshua Stemen Noreen Stibbs Angela Spearman Patricia St Clair Brit starke Gail Stender Ronnie Sticker Caroline Spears Gladys St Cyr Tammie Starkjohann Jonna Stenis Melissa Stidham Leigh Spears Danie St Germain Jan Starling Allyson Stepanek Pat Stigge Miranda Specht Nancy St Hilaire Cindy Starnes Grant Stephen Heather Stiles Camille Speck Veronique St-Onge Kellie Starr Chad Allon Stephens Tina Stiles Elizabeth Spector Kelsey St. Amant Meredith Starr Courtney Stephens Carol Still Todd Speece Penny St. Amour Pamela Starr Delite Stephens Tonya Stillians Crystal Speights Anthony St. George Rick Stasi JANICE STEPHENS Charity Stillings Susan Spell Angela St. Laurent Jane Stasik Kelly Stephens Jessica Stillman Megan Speller jackie St. Romain Sara Staszak Patrick Stephens Lesley Stillwell Kailey Spence Nina Sta Ana Wendy Staten Robert Stephens Sariah Stillwell Aubrey Spencer Rebecca Stacey Jackie Staton Sarah Stephens Eileen Stiltenpole Ellen Spencer karoli Stachowiak Rita Staton SarH Stephens Ronald Stiltenpole jenn spencer Brooke Stachyra Kristin Stauffer wesley stephens Steven Stimmel Lurhe Spencer Nikki Stack Megan Stauffer Emily Stephens Molly Stimpson Marisa Spencer Amy Stadler Ricke Stauffer Jaymee Stephens Ashlee Stites Susan Spencer Joy Stadtmiller Christina Stauffer Nicky Stephens Randy Stith Yve Spengler Leah Stadtmueller Kim Stavenow Cindy Stephenson Amelia Stock Stacey Speraw Karen Stadtmueller Nathan Stawiecki connie stephenson Nardina Stock Renee Speziale Michael Stadtmueller Lisa Steadman Mandy Stepowoy Emily Stocking Amie Spezzano Melissa Staffier- Laurie Stear Laurie Stepper Evelynne Stockman Dana Spicer Johnson Marcie Stears Camille Stern Alisha Stockstill Desiree Spicer Becky Stafford Kaitlyn Steben Jill Stern Jessica Stockton Jackie Spicher Erin Stafford Dixie Stechschulte Marisa Stern Tasha Stockwell Laurie Spickard Rachel Stafford Jen Steck Patti Stern Shania Stoddard Kristle Spicuzza Regina Stafford Jan Steckkine Ramona Stern Caitlin Stoermer Ann Spies Stephanie Stafford Kelly Steckler Trenton Stern Dee Ann Stoesz Toni Spieth Dena Stafford Melinda Stedman Wendy Stern Signey Stoesz Seth Spiewak Carol Staggs Evelyn Stedman Eugenie Sternberger David Stofflet Andreas Spiik Sharen Staggs JASON STEEDMAN Claire SternUSA Staci Stofko Caroline Spiik Jackie Stahl Nicole Steel Eileen Stettner Elizabeth Stokes Magdalyn Spike Lauren Stahl Amanda Steele Shannon Stettner Jennifer Stokes Scott Spiller Henriette Stahle Christine Steele Linda Steube Jennifer Stokes Shelley Spina Mauri Staker Laura Steele Amy Stevens Mary Stokes Beatriz Spinaci Michela Staker Sandra Steele Beth Stevens Victoria Stokes Margaret Spinelli Sue Ellen Stalder Sandy Steele Claudia Stevens Karen Stokley L√∫cia Spinelli Donna Stambaugh Sarah Steele Desiree Stevens Tracey Stoll Tracie Spinler Patty stamnos Talea Steele Holly Stevens Danica Stoll Kristie Spinrad Caroline Stamp Linda Steele Jackie Stevens Kristi Stoller Erin Spitz Heather Stanberry Anne Steelman Kim Stevens Troy Stoller Christi Splawn Sarah Stanbridge Bev Steelman Krista Stevens Adrien Stoloff Dtacy Spodick Macey Standil Vicky Steen kristen stevens Alyssa Stoltz Sarah Spong Shari Standil Zach Steen Leia Stevens Eric Stolzmann Elizabeth Spoon Elizabeth Stanek Marla Steenbock Margi Stevens Amy Stone Stephanie Sprague Polya Stanev Laura Steenburgh Melissa Stevens Ashley Stone Dollie Sprague Amy Stanford Vicki Stees Rebekah Stevens Catherine Stone Marla Spraker Dawn Stanford Sheldon Steeves Cherie Stevens Diane Stone Janet Spratley Sylvia Stanford Murilo Stefani Shirley Stevens Emily Stone Judy Spratt Joan Stanford Phyllis Stefankiewicz Kathy StevensWelsh Jessica Stone April Spreng Kiana Stanford Heather Steffen Laurie Stewaet Kathy Stone Ayako Spring Kim Stango Dana Steffensmeier April Steward lindsay stone Mary Ann Spring Maja Stanisic Dave Stegall Cassandra Stewart Samantha Stone Audrey Spring Andjela Stankovic Sarah Joy Stegeman Daniel Stewart Walter Stone Beverly Springer Bonnie Stanley Sabrina Stehly Dawn Stewart Billie Stone Liz Springer Christine Stanley Cory Steighner Deborah Stewart Sarah Stoneburner Shanna Sprinkle E. 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Linda Stovall Angela Stuth Karen Surdi Laura Phyllis Talley Courtney Strachan Joy Stutz Kristine Sure SWEETAPPLE Jason Tallinger Jessikas Strader Bev Stutzman Grace Surey Amy Sweetland Nicole Tallinger Kierra Strader Emma Stutzman Gwyneth Surey Jeane Swemba Audrey Tamashiro- Cathy Straka Karl Stutzman Elaine Surface- Laurie Swensen Kamii Allie Strand Leah Stutzman Russell Xan Swenson Erin Tamati Mike Strand Twyla Stutzman Ayaz Surka Linda Swensson Adrianne Tamayo Jacquelin Strang Deena Su LynnDee Surphin Sandra Swerts Tiffany Tambe Jeanne Strange Sara Suarez Allison Susdorf Latrell Swetnam Taylor Tamez Janell Stratton Carmelo Suarez Amy Susong Jane Swiatek Abby Tan Lonna Strauch Paula Suart Capriste Marlo Sutherland Jaymie Swift Carem Tan Rebecca Strauchon Kathryn Sucheski Patricia Sutherland Jessica Swift Edward Tan Shelby Strauser Gina Sudano Tima Sutherland Kaitlyn Swindle Hazel Christine Tan Julua Strauss Darlene Suddeth Cindi Suthetland Pat Swindler jayce tan Grace Strausser David Sue Michael Sutich Pat Swindon Josefito Tan Emily Straw Todd Suedkamp Michele Sutter Bayley Swinford Maria Rosario Tan Sarah Strawford Tensie Suengas ELLEN SUTTLE Susan Swirple Rachel Tan Joan Strawhacker Laura Sugarwala Heather Suttle Jen Swofford Marvin Tan-Caytas Kari Strawser Charles Sugnet Barbara Sutton Cathy Swope Jacqueline Tanaka Nistelle Streck Ashlyn Sullivan David Sutton Karla Sy Tammie Tanaka Marcos Street Bailey Sullivan Jeff Sutton Teri Sydenstricker Lisa Tang Nicole Street Beth Sullivan Jonee Sutton Amanda Sykes Pam Tanghal Hannah Streetman Dava Lynn Sullivan Meredith Sutton Rhonda Sylve Elizabeth Tanglis Leslie Streight ERIN SULLIVAN susan sutton Courtney Sylvest Patricia Tangusso Gloria Streit Garnet Sullivan Suzanne Sutton Colleen Sylvester sherly tanidjaya Katrina Stremler heather sullivan Tammy Sutton Kate Symenow Courtney Tanksley Sharai Strichartz Jennifer Sullivan Sharon Sutton Susan Symonds Jim Tann Dawn Stricker Julie Sullivan Suzette Sutton Billie Symons Denise Tanner Kathy Stricker Kari Sullivan Taylor Sutton Catherine Symons Katie Tanner Carlee Strickland Kate Sullivan Verity Sutton Barrow Jill Synosky Tammy Tanner Megan Strickland Kathleen Sullivan Jennifer Suzuki Jill Szafranski Abby Tanner Melissa Strickland Katie Sullivan Rebecka Svärdsén Maria Szczawinska Connie Tanner- Brenda Strickland Liz Sullivan Joseph Svarovsky Cara Szczepanik Buchanan Iola Stringer Mary Kay Sullivan Angela Svedberg Carolyn Szeliga Ginw Tanzola Abbi Stringfellow Maureen Sullivan David Svedberg Esther Szeto Elizabeth Tapia Kurt Stritar Mollie Sullivan Dee Svedberg Bobbi Szmansky Maria Tapia Meghan Stritar Patrick Sullivan Francesca Svedberg Angela Szrajer paola tapia Karen Stroble Tiffany Sullivan Debra Svedberg Crystal Szudzik Leslsy Tapley Kristen Strohm John Sullivan Judith Svegel Candice Szymanski Sinead Tapp Jack Strome Robin Sullivan Simon Svennberg Anna Szymura Catherine Tapper Jillian Strong SUZY SULLO John Svigelj Janet T Roseena Taqi FRED STROOCK Greg Sum Allyson Svigelj Julie T Pamela Tarbox Patricia Strother Tamara Sum Katie Svobod Krista T Charlene Jennifer Stroud Samantha Sum Arica Svobosa Leah T Tarmahomed Chuck Stroup Amanda Summers Maggi Swamy Lindsey T Jason Tarn Eric Stroup B Summers Kara Swanborough Estella Tabet Joye Tarnowski Vickie Strubberg Heather Summers Catherine Swaney Corinne Tabor Michele Tarras Susan Strydio Jessica Summers Aimee Swank Fran Tabor Katie Tarter Kim Strzempka Maja Summers Dan Swanner Holly Tabor Allie Tasche Janice Stshl Susan Summers Blake Swanson Laura Tackett Lydia Tash KATHRYN STUART Teresa Summers Brenda Swanson Aliza Tafoya Larisa Tashlitsky Marlene Stuart Harriet Dan Swanson Nicholas Tafoya Bruna Tassini Tracy Stuart Summerscales Kylie Swanson Debra Tagg Janice Tassone S Stubbs Michelle Summerson Michele Swanson Michelle Tagg Madison Tassone Anne Stubert Joe Summervile Tracy Swanson Julie Tagliaferri Suz Tat Emily Stuck Jamie Sumner Sharon Swanton Ron Taglieri Petra Tatai Nancy Stuck Valerie Sumner Molly Sward Roxy Taglioli Chaloupka Randy Stuck Judy Sumrall Jackie Swartwoudt Jessica Tague Aubrey Tate Addison Stuckey Diane Sumutka Stephanie Soudie Kisha Tate Cathy Stucki Jessica Sun Swartzbaugh Tahmassebipour Breanne Taub Amanda Stucky Linda Sundberg Christine Swedberg Jennifer Taite Jessica Tauber Bernice Studley Pernilla Sundberg Caroline Sweeney Marcia Takagui Bonnie Taucher Paul Studley Möller Edee Sweeney Jill Taketa Kaylee Taucher Julie Stump Austin Sunderman Katie Sweeney Angela Talarzyk Katharine Taufa Ronsa Stump Marc Sundook Orla Sweeney Andrea Talavera Andrea Taugher Laura Stumpf Alan Sundquist Sabrina Sweeney Rayne Talbot Crystal Taulbee Marka Stumpo Brian Sunwall Susan Sweeney Ellen Talbot Olsi Taullaj Gwen Sturge Carol Suprys Kady Sweeney Heather Talboy Christy Tautfest Peggy Sturn Nicole Suranofsky Tania Sweeney Falan Talcott Jack Tavares Kristen Sturt Molli Surdell Jamie Sweet Dawn Talley Olga Tavares 135

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Sami Tavares Wayne Templet STACY Dominique Thompson Patti Tiernan Jose Roberto Leah Templeton THIBODEAUX Elizabeth Thompson Aileen Tierney Tavares Junior Ann Templeton Bart Thibodeaux Frank Thompson Amy Tierney Gabrielle Taverne Deb Templeton Megan Thiele Giselle Thompson michael tierney Corinne Tayler Kristin Temsic Lauren Thies Ja kie Thompson Niall Tierney Angela Taylor Luciana Tenório de Tricia Thigpen Jacqueline Thompson Pa Tierney aria Taylor Oliveira Piovesan Felicia Thimas Jayne Thompson Steve Tierney Casey Taylor Karen Tendler Sheryl Thimson Jessica Thompson Kathleen Tiffany Christopher Taylor Jill Tengan Kendra Thinker JILL THOMPSON Billie Tilden Courtney Taylor Laura Tennant Jacqueline Thivierge Joan Thompson Charmyse Till Dee Taylor Christine Tenney Despo Thoma Joshua Thompson Rebecca Tilleh emily taylor Mary Tennis Allan Thomas Joy Thompson Melissa Tilleman Emma Taylor Rita Teodoro ANDREW THOMAS Katelyn Thompson Alynna Tilley Gloria Taylor Alexandre Teotonio Ann Thomas 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Terri Tomlinson Brenda Tracey Nancy Trucks Shannon Turner Mari Urrea Megan Tommasello Johnny Tracia Varshana Trudgian Stacey Turner Iñaki Urricelqui Jenn Tompkins Amanda Tracy Toni Truetken Tiffany Turner Guillermo Usán Karen Tompkins Mel Tracy Sarah Truitt Ali Turner Annah Usabyimana Julie Tonas Rachel Tracy Deborah Trujillo Christy Turner Diana Usher Morgan Tone Samantha Tracy John Trujillo Emma Turner Kelly Usset Lindsey Tonge Ashley Tracy Michael Trujillo Lauren Turner Roxana Usturoi Molly Tongelidis Toni Trahan Nicole Trujillo Stephanie Turner Aline Uwera Angie Tonies Susan Traiforos Patricia Trujillo Teresa Turner Cheylah Uyeda Brett Tonkin Jennifer Traigle Francine Trujillo Tessa Turnipseed Jaiana Uyeda Lauren Tonsi Amy Trail Lori Trujillo Stephanie Turpin Alex V Roberta Tonti Colleen Train Stephanie Trull Mikaela Turton Bella V Dariane Tooley Jody Trainor Bru Trusby Simon Turton Erin V Laura Toone Brenda Trammell Claire Truskowski Connie Turvey Stephanie V Sarag Toone Frank Tramonte Heather Trutt Lindsey Turyna Leslie v Sarah Toov Christina Tran Tami Truxal Marilyn Tusa ruth V.U>S>A Margaret Topagian Nathan Tran Christina Tryon Ellie Tuson Angelika Vögel Mallory Topalli Paulina Tran Amy Tsai Jennifer Tustin Lynda Vaadi Colette Topfer Carla Trant Shu-Ping Tseng Michael Tustin Maribel Vacas Josh Toporowski Bethany Trautman Josephine Tshibola Gloria Tutner Amanda Vacc Susan Topping Mary Trautner Anne-Marie Tshika Jamie Tuttle Kimberly Vaccaro Deborah Torbert Graziela Travain Nick Tshilenge Jessica Tuttle Cam Vacek Sarah Tore Marta Travers Sandra Tsiotinas Lori Tuttle Cindy Vacek Carolyn Torello Erika Travinski Lea Tsoubanos Sarah Tuttle Sophie Vadelorge Heather Torello Lynn Travis-Stancioff Josephine Tsuei Jennifer Twait Karen Vagg Holly Torgersen Maryanne Travy Linda Tsukamoto Nelly Twort David Vai Barbara Torgerson Kristi Tredway Sheryle Tua-Moy Angel Tyler Lida Vail Melinda Torgerson Mirn Tredway Grady Tubbs Stacy Tyler Samantha Vaissade Paula Torrealba Mandi Tregle Rossana Beth Tyndall Elizabeth Valcich Angel Torrens Amanda Tregre Tubongbanau Susan Tyner Diana Valdez Aline Torres Claudia Trejos Sara Tuchscher Christy tyre Magdalena Valdez Corina Torres Matt Trem Jennifer Tuck Loretta Tyre Jave Valdez2 Helder Torres Megan Treml Stephanie Tuck Sara Tyree Kara Valech Ivonne Torres Robert Tremmel Darlene Tucker Sherri Tzemos Linda Valek Maria Torres Roberta Tremmel Erin Tucker Charis Tziortzis Alexia Valencia Maria Torres Trina Trenbeath Judy Tucker Margaret U Mitchell Valentine Mercedes Torres David Trenouth Lucas Tucker Venus Uayan Theo Valentine Mindy Torres Lindsay Trent Patrick Tucker Lori Ubel Nicole Valentine Oscar Torres Linda Trepasso Stacie Tucker Lorraine Uberig Gail Valentino Sandra Torres Melissa Tresco Stacy Tucker Stacy Udell Guillermo Valenzuela Valerie Torres Kerry Tresidder Tina Tucker Console Ufitinema Jenica Valenzuela Viviani Torres Erica Trethart Vivien Tucker Patricia Uhl Domenique Elizabeth Torres Robert Trewhella Sara Tulevu Randon Uke Valenzuela Shanna Torreso Jan Trezise Ciara Tully Amy Uliano Marcia Valera Traci Torrey Elise Tribbett Lizzie Tully Mary Ulmo Criselda Valerio Nicole Torrez Joan Tribout Orla Tully Jennifer Ulrich Paula Valle Victoria Tortorici Terri Trice Deborah Tumis Jean Um Lyndsey Vallejos Laurie Tosic Mauricio Trigueirinho Kari Tumis Lori Umali Nicole Valliere Brieann Toste Jeanne Trillhaase Robbin Tungett CJ Umbrino Albin Valsinger Amy Tostrup Donna Trimmel April Tungpalan Jihan Umpa Christel Valsinger Kara Totaro Kate Trimmer Hillary Turcotte Elizabeth Unaeze Per Valsinger Gail Toth Madel Trinidad Julie Turek Sue Unavailable Robert Valsinger Lindsey Toth Kimberly Triplett BRIAN TURK Erica Undem Arianna Valvano Stephanie Toth Farrah Triplett Amie Turkette Chelsea Underwood Chad Van Stefano Totis Emily Tritz Brandy Turley Martin Underwood Kristi Van Allen Jennifer Touchette Nadine Trobman Adam Turnbull Melanie Underwood Anna Van Asselt Bonnie Touchton amanda trogus Chris Turnbull Lauren Unrath Helen Van Boxtel Katharine Touchton- Susan Trombley Hope Turnbull Kaylee Unruh Chad Van Buskirk Leonard Holly Tronstad Carly Turnbull taytom updyke Daniel Van Engel Ellie Tow Samantha Trooien Anne Turner Susan Upham Lynne Van Engel Ashley Tow e Grace Trosclair Collette Turner Christy Upton Nicole Van Erp Robert Towells Marissa Trost Crystal Turner Alison Urban Tina Van Gorder Michelle Tower Mary Trostel Debbie Turner Lisa Urban Lauren Van Haaren Jackie Towle Monica Trotter Gabby Turner Brittani Urbano Eileen Van Hoek Judy Townsend Nancy Trotter Gemma Turner Alice Urbiztondo Dylan Van Hook Susan Townsend Becca Troup Jennifer Turner gary urena Brenda Van Horn Michael Toy Emma TROUSDALE John Turner Maddie Urhahn Neal Van Houten Rebcca Toy Jaimie Trouskie Kelly Turner Olivia Urich Alex Van Loh Alexandra Toyens Sharon Troutman Melanie Turner Elayne Urnovitz Jane Van Loh Leela Tozer Sabrina Troxler Natalie Turner CINDY urrea Cayla Van Loo 137

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Nick Van Loo Melissa Vargo Angelica Louise Janet Villiers Stacey Vroman Heidi Van Tracey Varker Vergel de Dios Ronaldo Villon Holly Vroom Middlesworth Heather Varns Tara Vergel De Dios Amy Vincent David Vu Sienna Van Neer Heidi Varns Susan Verginis Erica Vincent Dina Vu Jennifer Van Riper Ariel Varoz sabrina vergnault Hayley Vincent Donna Vu Margo Van Kathy Varsalona Diane Verner Joel Vincent Amber Vydrzal Voltenberg Laura Vasaturo Landa Vernon Julie Vincent Alison W Stephanie Van Lisa Vasaturo Jamie Verrigni Michele Vincent Bree W Winkle Guadalupe Vasiliadis Jennifer Verville Randy Vincent Chelsea W Christine VanAckeren Charkel Vasquez John Vespa Debra Vingi Heather W Elizabeth Vanasse Natalie Vasquez Philippa Vessey ava vinson Jessica W Stephanie Vanatta PATRICIA Joan Vettraino Kenya Vinson Lynn W Chelsea VanBuskirk VASQUEZ kathleen vezina Claire Vinter Rebecca W Amber Vance Courtney Vaughan Cassie Vezina Helen Vintiner Sara W Karen Vance Karen Vaughan Yago Viñes Carolanne Viola Stephanie W MARY VANCE Kerry Vaughan Leon Vial Maryann Viola Sue W Ariuna Vanchikova Raegan Vaughan Shannon Vial Cathy Virtue Sydney Wachendorf Emily Vancil Michelle Vaughan Martine Viau Daniel Virtue Melanie Wachs Kim VanCleave Amelia Vaughn Lindsey Vice Maryanne Viscomi Jennifer Wade Julie Vandaveer Kelly Vaughn Jennifer Vicente Frances Visconti Kristen Wade Kathy VandeKieft Nicole Vaughn Sandra Vick Jessica Vishy R. Wade Kent Vandeloecht Cassidy Vaughn Greg Vick Jill Visty Jenny Wade Anne VandeMoortel Yvonne Vaught Diane Vickers Cervo Vitória susan wadell Gary Vandemoortel Gail Vavruska- Kaylun Victor Mark Vitagliano Catherine Jacob Vandemoortel Marcum Victoria Victor Beatriz Vital Waeltermann Darci Vanden Heuvel Leticia Vaz Marion Vidal Heather Marie Vitale Jane Waggoner Samantha Christine Vazquez Julia Vidani CRISTIANO Mollie Wagman Vandenberk Eric Vazquez Stephanie Vied VITORINO Anne Wagner Jodi VandenHeuvel Mariana Vazquez Francine Viegas Lara Vitter Emily Wagner Sarah Vandenthillart Johna Vazquez Orlandi Jose Vivas Julie Wagner Maggie Vander Eems Giselle Vea-Bambao André Vieira Jessica Viveiros Peggy Wagner Laura Vander Ploeg Christi Veach Anna Vieira Abbie Vlcek Heather Wagner Barb Vanderhoof Susan Vealey Maira Vieira Gina Vodola Heather Wagner Corianne Vanderkolk Marla Veatch Elaine Vieira da Motta Cathy Voelker John Wagner Jennifer Vanderlinde Elizabeth Vech Ianice Viel Lorraine Voelker Virginia Wagner Megan Vanderlinde Brisia Vega Nickolas Viel Brie Voelp George Wagnon Rebecca Enrique Vega LOURDES VIENTOS Betina Voelzke Karenn Wagoner VanderLouw Victoria Vega Brianna Viereck Catharina Voelzke Lauren Wagoner Ashley VanderMeer Meghan Veiga Connie Viereck Jackie Vogdes Kathy Wagonfield Karla Vanderneut Diego Velásquez Davin Viernes Cheryl Vogel Lucy wahl Robin VanDerVleuten Erica Velarde Marcia Vierra Jeannie Vogel Richard Wahl Chee Vang Julia Velasco Courtney Viers Jon Vogel Brooke Waisbord Sylvia VanHees Luis Velasco Susan Viesti Lauren Vogel fran waite Sarah VanHeirseele Cassie Velazquez Laura Vieu Mary Vogler Kristi Waite Nancy VanHoose Sasha Velazquez R Vieux Cora Vogt James Waitzman Nina VanHooser Yanai Velazquez Alyssa Vigil Niki Volante Lauren Wakelin Meagan VanHorn Luz Velez Christina Vigil Sam Volfson Sarah Walazek Suzann VanHouten Sefora Velez Velez Lori Vikesland Obler Roza Volfson Hope Walburn Shyanna Vanmeter Rebecca Vella Julie Vilas T Volk Samantha Walby Angela VanMoorsel anne venci Mayara Vilela Britnay Volkmann Stephi Walcoff Ks Vann Belinda Venci Amanda Villa Susan Vollmar Joshua Walden Tricia Vanneer Carmichael Venci Chandler Villa Beth Vollmershausen Nikki Walden Elizabeth Vanner Carolyn Venci Tekiri Villa Nancy Volpe Erica Waldron Abbie VanNoy Erika Venci Dora Villalobos Denise von Held Janelle Waldron Debbie Vanover Greg Venci Dona Villani Joan Von Lehr Leah Waldron Megan VanSant Margaret Venci Damien Villanueva Mary Jo Vona Susannah Waldrop Shannon Ulysses Venci Dayton Villanueva Wayne Vonder Heide Aira Walker VanStraten-Sundlass Venevib Venci James Villanueva Suzanne VonDruska Amy Walker Katie VanTassell Cecile Venci Marilyn Villanueva Catherine Anthony Walker Rebecca Vanwyke KARI VENETIS Chantel Villanueva VonSeggern Assumpta Walker Megan Vanzanten Eugene Ventura Colette Villanueva To Voogt Brittany Walker Michele Varano Nataly Ventura Kiara Villanueva Lisa Vorrasi Cat Walker Nadine Varano Paula Ventura Anna Villar Sandra Vose Christine Walker Jacqueline Vardla Sheena Ventura Gel Villar Marelise Voss Claire Walker Carrie Vardy Venson Ventura Jeanne Villareale Julianne Vossler Connie Walker Kala Varellas Bruna Verçosa Ana Villazana Mark Vossler Daje Walker Pamela Varga Martin Rae Verano Alfredo Villegas Brian Voth Darlene Walker Samantha Varga Rebecca Vereen Iris Villegas Erika Voth Donna Walker Carla Vargas-Frank Maria Vergé Kassie Villereal Julie Vought Judi Walker Karen Vargo Mandy Vergeer Gwendolyn Villery Jaime Vraninin Kelsey Walker 138

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Kerri Walker Nellie Walthers Katie Wasson Valerie Webre Tracey Welsh Kim Walker Britney Walton Kristen Wassung Amber Webster Suzy Welter Krista Walker Kimslee Walton Ginger Waters Brandy Webster Jennifer Welzenbach Morgan Walker Mamdy Walton Jill Waters Dave Webster Frank Wende Nicki Walker Mary Ellen Walton Natalie Waters Heather Webster Heather Wende Nicole Walker Richard Walton Rebecca Waters Kate Webster Sharon Wende Rachel Walker Kristi Walton Tammy Wathen Lauralee Webster Tessa Wende Sophy Walker Mia Walton Joni Watke Robin Webster Erin Wendholt Suzanne Walker Jean Waltrop Anita Watkins SandrA Webster TIFFANY WENDT Teresa Walker Rebecca Waltz Jamie Watkins Simone Webster Katie Wenger Heather Walker Crystal Walvoord Kaitlyn Watkins Stefanie Webster Marc Wenger Laurie Walker Rachel Walz Angie Watson Tom Webster Meisha Wengler Vicky Walker-Love Morghan Wamboldt Carol Watson Maya Wechsler Christine Wenham Ashley Wall Cheryl Wanamaker Corinne Watson Terri Wechsler Sara Wenkheimer Ashley Wall Naomi Wands Devin Watson Megan Weck Kate Wenturine Ben Wall Emily Wang Kiara Watson Michael Weck Cheryl wentworth Jon Wall Rebecca Wang Maryann Watson Sue Weddle Sam Wentzel Krista Wall Mary Wanjohi Natasha Watson Andrea Wedemeier Eileen Wentzell Melissa Wall Aly Ward Paula Watson Jason Weeks Jasmine Werdien Trisha Wall Amy Ward Rebecca Watson Lindsey Weeks Mariana Werneck Tayra Wallé Ann-Marie Ward Ryan Watson Lorri Weeks Deborah Werner Angela Wallace Anne Ward Debi Watson Shelly Weeks Mark Werner Deborah Wallace Diana Ward Katy Watt Jessica Weems Aleah Werner ella wallace Emily Ward Michelle Watt Mason Weems Jennelle Werner Kari Wallace Patricia Ward Kitt Wattenphul Colette Weese Eliza Wertenberger Linda Wallace Sarah Ward Johanna Watters Laura Wehrley Abby Wertner Morya Wallace Tammy Ward Brittney Watts Kristy Weidhuner Corey Wertz Chantelle Wallace Taylor Ward Crystal Watts Kelli Weidman James Wertz Holly Wallace Wesley Ward Debbye Watts Jami Weidmann Taylor Werven Shariese Wallace L Ward Jamie Watts Andrea Weigenant Jennifer Wescott Stefanie Wallace Mary Ward Jess Watts Robin Weihing Theresa Wesley Deshae Waller Clara Warde Jessica Watts Melissa Weil Tamakia Wesley Gayle Waller Amy Ware Karleen Watts Amanda Weimer Debbie Wessel Heather Wallis Angela Ware Lay Watts Leah Weimer Annelies Wesselius Peg Wallo Jamie Ware Stephanie Watts Madison Weinberg Karin Wesström Jordan Wallum Mary Ware Chris Waugh Krystina Weinburgh Abigail West Abbey Walsh Jill Warley C Wauke Michael Weindel Amy West Andrea Walsh Mindy Warman Kim Wawrzynski Dana Weine Annabelle West Ann Walsh Judith Warmbrodt Helen Way Angela Weinhardt Charlotte West Annie Walsh Louise Warne Meghan Way Tara Weintritt David West April Walsh Debbie Warner Amy Wayne Eloise Weir Heather West Brianna Walsh Linda Warner Virginia Wayne Kristen Weir Kate West Denise Walsh martha warner Mae-lyn Weathers Josh Weirich Katherine West Gail Walsh Trisha Warner Amy Weaver Annemarie Weisbeck Lynda West Hannah Walsh Stacey Warner Ashley Weaver Scott Weisenberg Matt West Ian Walsh Jerri Warnock Dianne Weaver Jaclyn Weiss Megan West Isabel Walsh Leslie Warpula Laurel Weaver Jane Weiss Merri West Joan Walsh Blair Warren Shatera Weaver Terry Weiss Nancy West Katie Walsh Cathryn Warren Macy Weaver julie weiswasser Pat West Kerri Walsh Heather Warren Jerri Webb Laura Weitzel Reandra West Niall Walsh Kim Warren Joni Webb Krisren Welborn Vânia West peggy walsh Leslie Warren Joni Webb Aubrey Welborn Tammy Westaaay Rachel Walsh Lou Warren judi webb Alayna Welch Melanie Westberry Roddy Walsh Marty Warren Mandy Webb Elizabeth Welch Pamela Westbrooks Sall Walsh Megan Warren Marilyn Webb Erika Welch Sarah Westby Theresa Walsh Thesia Warren Michelle Webb Janna Welch Angela Westcott Margaret Walsh William Warren Natalie Webb Kathy Welch Max Westenskow Ellen Walter Ally Warren Whitney Webb Miranda Welch James Wester Teresa Walter Anne Warren Andrea Weber Lori Weldon Courtney Westerdahl Cindy walters Kim Warren Ashley Weber Gregg Welin Ashley Westerfield Danyal Walters Daphney Warrington Cara Weber Rachel Welin Jamie Westfall Dickie Walters Jaclyn Washburn Emily Weber Caitlin Wells Jennifer Westgate james walters Jennifer Washburn Fabian Weber Hannah Wells Kate Westlund Joyce Walters Susan Washburn Katie Weber Kirstin Wells Kelly Weston Kara Walters Susan Washburn Lauren Weber Rachel Wells Allison Wetz Morgan Walters Tamara Washburn Martina Weber Jeanne Wellwood Mary Wetzel Patty Walters Whitney Washburn Sara Weber Taylor Welsch Larry Wetzel Kathryn Walterscheid Denise Washington Stephanie Weber Anabel Welsh Robin Wetzrl Tony Walther Stacey Washington Yasmine Weber Paula Welsh Erin Wever Sherry Walthers Jessica Waslaski Becky Weber Stacey Welsh Carol Weyandt 139

COMMUNITY SIGNATURES Friends, Family and Other Supporters of Individuals with PWS

Tyleen Weyant Mary Whitehead Justin Wilder Leslie Williams Cate Wilson Sami Weyant Samantha Zena Wilderman Lori Williams Christine Wilson Anne Weyler Whitehead Kristy Wildgen Mallory Williams Cynthia Wilson Michelle Wh Alysha Whiteley Jarrod Wildman Marissa Williams Dani Wilson Jennifer Whaley Christine Whiteman Julia Wildt Mary Nell Williams DAWN WILSON Jonathon Whaley Rebecca Whitenburg Brenda Wiley Maty Williams Donna Wilson Nathan Whaley Nicole Whitesell Cherie Wiley Michelle Williams Hannah Wilson Amy Wharton Lauren Whiteside Claire Wiley Morwenna Williams Hannah Wilson Clare Wharton Stacie Whiteside Valery Wiley Patricia Williams Honey Wilson Laura Wharton Laura Whitfield Gail Wiley Thompson Patricia Williams Jaclyn Wilson Charlotte Wheaton Floyd Whiting Hallie Wilfert Roy Williams James Wilson Jessica Wheaton Angie Whitley Elizabeth Sally Williams James Wilson Camille Wheeler Brian Whitley Wilganowski Sarah Williams James Wilson Cathy Wheeler Elizabeth Whitley rena wilhelm sherry williams Jeffrey Wilson Christine Wheeler John Whitley Stephanie Wilhelm Stroma Williams Jennifer Wilson Janel Wheeler Jessica Whitlock Michelle Wilhelm Sue Williams Kate Wilson Kathy Wheeler Emily Whitmar Lauren Wilhelms Susan Williams Kate Wilson Lacey Wheeler Aleida Whitney Courtney Wilk Susan Williams Kate Wilson Raelynn Wheeler Amber Whitney Molly Wilke susan williams Katie Wilson Susan Wheeler Chris Whitney Tayler Wilkens Tara Williams Kim Wilson Apeil Wheeler-Andolfi Chelsea Whitt Keely Wilkerson Tiffany Williams Kimberly Wilson Ashleigh Whelan Lisa Whitt Sasha Wilkerson Victoria Williams Lisa Wilson Sinead Whelan Heather Whittaker Tonya Wilkerson Angell Williams Lisa Wilson Roshelle Wherritt Laura Whittaker Nicky Wilkes B Williams marian wilson Mandy Whetsell Cynthia Whitten Jessica Wilkie Brenda Williams Marion Wilson Carol Whetten Kristin Whitten Amber Wilkins Elizabeth Williams Matt Wilson Sarah Whipkey megan whittier Justin Wilkins Gail Williams Maureen Wilson Briana Whitcher Carrie Whitus Kelly Wilkins Holly Williams Meghan Wilson Ali White Alison Whyte Michele Wilkins Jamie Williams Milca Wilson Andrea White Vincent Whyte Sami-Jo Wilkins Jessica Williams Senora Wilson Andrew White Ania Wi≈õniewska Antonise Wilkinson Karin Williams Shanna Wilson Ann White Thomas Wible Betsy Wilkinson Kristin Williams Sheena Wilson Ashley White Alisha Wichman Jane Wilkinson Kristy Williams Stacey Wilson Benjamin White Andrea Wickings Joseph Wilkinson Leah Williams Susan Wilson Carla White Dawne Wickkiser Melissa Wilkinson Linda Williams Sydney Wilson Cheryl White Marleen Wicks Samantha Wilkinson Linds Williams Sydney Wilson Constance White Brittany Widener Sarah Wilkinson Monica Williams Tim Wilson dorothy white Heather Widger Tasha Wilkinson RaeAnn Williams Tom Wilson Doug White Filippa Widing Kimberly Wilks Sarah Williams Cheryl Wilson Elba White Jennie Widlund Caitlin Will Sonya Williams Erika Wilson Emma White Henrik Widlund Terri Willars Tabatha Williams Jada Wilson Guy & Christa White Margaret Widrig Sean Willeford Tamara Williams Liz Wilson Hanna White Sara Wiebold Nicole Willey Treddie Williams Lorraine Wilson Janet White Bryn Wied Abigail Williams Bethany Williamson Meagan Wilson Jeffrey White Haley Wiedenhoeft Allison Williams Cayla Williamson Marilyn Wilt Jenness White Jessica Wiegand Amanda Williams Elizabeth Williamson Maira Wilton Jennifer White Loti Wiegand ANNA WILLIAMS Genny Williamson Danielle Wiltrout Jo White Barbara Wieher B Williams George Williamson Molly Wilwol Jodi White Carolina Wieland Brian williams Angela Williamson Donna Wimberly Jodie White Andrea Wiele Brittany Williams Regina Williamson Elizabeth Wimer Kami White Chelsea Wiersema Cara Williams Linda Willingham Rebecca Wimmer Karina White Leslye Wiesbrock Casey Williams Breanne Willis Joette Winder Katelyn White Luke Wiesbrock Charlott Williams Gaye Willis Sue Winder Kathryn White Meghan Wiesbrock Chelsey Williams Jessica Willis Deborah Windover Kayla White Evette Wigginton Cindy Williams Karyn Willis Michaela Windsor kerry white Laura Wiggs Colleen Williams Kim Willis Katie Wingert Larry White Chris Wigington Cynthia Williams Louise Willis Katie Wingler Lindsay White Whitney Wigren Danielle Williams Megan Willis Margaret Wingold Lindsey White John Wike Ellisha Williams Molly Willman Christina Wininger Maria white Stephanie Wiker Emilia Williams Barbara Willner Jeremy Winkler Melissa White Mary Alice Wiland Emily Williams Heather Willsey Megan Winkler Moira White Alexis Wilbers Heather Williams Randy Willson Danielle Winn Nancy White Dominique Wilcox Jeff Williams Heather Wilnechenko Bobby Winschel Natalie White Lexi Wilcox Jenna Williams Sabrina Wilsey- Debi Winschel Phyllis White Melissa Wilcox Jessica Williams Botelho Elesha Winschel Roger White Sherry Wilcoxen Karen Williams Alyson Wilson Erin Winschel Sharon White Theresa Wilcoxen Kelly Williams Amber Wilson Kim Winschel Amber White Kay Wildasin Kenitra Williams Ann Wilson Avery Winslett Patricia White Caitlin Wilde Kyra Williams Breanna Wilson Alexis Winslow Kristi Whited Laura Wildenborg Laura Williams Candy Wilson C Winstead 140

COMMUNITY SIGNATURES Friends, Family and Other Supporters of Individuals with PWS

Stephany Winston Nicole Woltmann Raymond Worrall Gisele Aparecida Samson Younan Alyssa Winter Britton Womack Amber Worth Xavier Ribeiro Maureen Younan Casey Winter Sors Won Sam Wottle Moraes Somer Younan Lisa Winter Teri Wonderlich Colette Wotton G Y Melanie Younce Michele Winter Beeza Wong Katja Wowryk Fran Yablonsky Alexis Young Catherine Winter Katie Wong Estelle Wraight Rachel Yaggy Amy Young Andrea Winterer Mary Wong Aideen Wray Cheryl Yake Anna Young Colton Winterland Melissa Woo Janice Wray Yvette Yakibonge Carolyn Young John Winters Mimi Woo Shanna Wray Nashina Yakub Crystal Young Nick Winters Ashley Wood Cheryl Wriggt Laura Yamartino Cyndi Young Tara Winters Carol Wood Allyson Wright Brenda Yamkowy J Young Katie Wintersteen Cassy Wood Angela Wright Carrie Yana-White james Young Amanda Wints David Wood Austin Wright Lisa Yance Joan Young Becky Wirt Ginny Wood Cayse Wright Meg Yancey Karen Young Alissa Wirth Hattie Wood Crystal Wright Sarah Yandell Karen Young Emily Wirth Janice Wood Elaine Wright Lillyanne Yanez Katie Young Sydney Wirth Jenny Wood Emily Wright Chris Yang Laura Young Sierra Wirth Karla Wood Heather Wright Thomas Yang Marais Young Meghan And Josh Kate Wood Kaitlin Wright Mary Kay Yanik Rachel Young Wisell Kimberly Wood Kam Wright Jessica Yanke Rheanne Young Marilyn WISER Krysta Wood Kara Wright M Yankee Robert Young Heather Wishin Liz Wood Kat Wright James Yap Sara Young Tricia Wiski Taryn Wood Katelin Wright Joanne Yap Shae Young Tiffany Wisner Christy Woodard KATHERINE Wright Destiny Yarbro Tammy Young Ashleigh Wisniewski Elisabeth Woodard Mackenzie Wright Isabelle Yardley Teresa Young Anne Wissman Heather Woodard Megan Wright Andrea Yarid Tony Young Timothy Wissman Michele Woodard Michelle Wright Steve Yaros Uschi Young Caitlin Witcomb Sharon Woodard Natali Wright Erin Yarpe Jessica Young George Witcomb Ben Woodcock Paula Wright Christine Yarris Louise Young Harriett Withrow Cherie Woodhouse Phoenicia Wright Amy Yassine Martina Young Jaclyn Withrow Arianna Woodley Rebecca Wright Ginny Yasutake Maxtonie Young Kadie Withrow Shannen Woodrey Stephanie Wright Destiny Yates Chandra Young- Sandra Withrow Sarah Woodruff Sydney Wright Savannah Yauss Boyle Brittany Witkowski Dawn Woodrum Tanya Wright Jamie Yax Lois Youngworth Erin Witman Christopher Woods Tata Wright Chiami Yazaki Kyla Yount Tami Wittenauer Coltan Woods Timothy Wright Anselm Yazaki Danielle Yousif Trina Wittenzellner Heather Woods Angeline Wright Mabruka Yazidi Rose Youstea Lori Wittmer Jeanne Woods Cassie Wright Jeff Yeagee Landon Yowell Julie Witty Jodie Woods Jake Wright Marjory Yeager Taylor Yoxheimer Nicki-Lynn Witzke Josh Woods Linda Wright Kelly Years Kelli Yselonia Rochelle Wizmur Kenneth Woods Patti Wright sky yeatts L Yu Kim Wladkowski Kristen Woods Mel Wrinkle Jackie Yeazell Annemarie Yule Olivia Wodarski Lisa Woods Jennifer Wroblewski Teresa Yeh Dan Yule Dawn Woebkenberg Melissa Woods Heidi Wruble Lara Yehia Laura Yule Melissa Woertz Michael Woods Keri Wuenstel Sherry Yeisley Christy Yurko Amanda Wohlfeil Nikki Woods Emily Wuinn Caitlin Yelton Jamie Z Christine Wojnar Sandy Woods Tonnie Wulff Sheree Yeretzian Kristen Z Patryk Wojtaszek Thomas Woods Julie Wurtele Robin Yerkes Laura Zachar Emma Wolbrueck Tiffany WOODS Jennifer Wurth Tya Yermola Elinore Zacny Belinda Wolchuk Brea Woodson Suzi Wurzbach Alexis Yerton Karen Zadina Matthew Wolcott Steven Woodson Caitlin Wyatt Becky Yeshnowski Julie Zaehler Michael Wolcott Andrea Woodward Cindy Wyatt Melissa Yeshnowski Peter Zafiropoulos Amber Woldruff Christie Woodward Gemma Wyatt Lauren Yesue Maryann Zagami Erica Wolf Jenni Woodward Emma Wyatt Maria Yiasoumi Valerie Zagami Nancy Wolf Jody Woodward Rhonda Wyckoff Claire Yiasoumi Michelle Zagursky Roberta Wolf Kay Woodward Michele Wyczawski Kristy Yillik Maria Zaha Casey Wolfe Emily Woolcott Misty Wyen Zeynep Yilmaz Barbara Zahara Chris Wolfe Jenny Wooldridge Lydia Wyld Rich Ying Cella Zahara Kelli Wolfe Tayla Wooldridge Julia Wylie Katie Ylinen James Zaharevich Nikki Wolfe Heidi Woolever Shelby wyllie Becca Yocham Martha Zaharevich Jan Wolff Amy Woolever Bob Wyman Barbara Yocham Gail Zaharoolis Marissa Wolfgang Laura Worden Brenda Wynn Dana Yockey Nancy Zaitchik Mary Wolfgram Jim Workman Charleigh Wynn Irina Yoder Corrine Zajac- Katie Wolford Tiffany Workman Kristeb Wynn Megan Yoder Clarkson Christine Wolfrom Tasha Worl Nicole Wynn Paula Yoder Ophelie Zalcmanis- Pamela Wolfrom Brook Worley Laura Wyrsch Patara Yongvanich Lai Miriam Wolk Jessica Worley Lisa Wysocki Christie York valerie zalman Gloria Wolok Janelle Wormuth Caio Xavier Jana Yospe Dawn Zamarripa Aleksandra Wolska Debra Worrall Gabriel Xavier Alexandra Youlten Pamela Zambrotta Elizabeth Wolters Natalie Worrall Leonardo Xavier Kathy Younan Theresa Zambrotta 141

COMMUNITY SIGNATURES Friends, Family and Other Supporters of Individuals with PWS

Lin Zamora Esperanza Zarate Kimberly Zellmer Deirdra Zielinski Michele Zinser Sandra Zamora Kristina Zarbos Kris Zenaro Darren Zielinski Amanda Zirlott Suzanne Zamora Mary Zaremski Judith Zenge Alexis Zielke Jennifer Zirlott Maria Luzia Bella Zaritsky Timothy Zenor-Davis Jane Ziemianski Lisa Zisa Zanardelli Valerie Zarneski Cesar Zepeda Barbara Ziliak Lauren Zissu Juliana Zancheta Anne Zbijowski Shawnie Zepf Danielle Zimbaro Jason Zitek Amber Zander Amanda Zborowski Lindsay Zepp Erin Zimmer Kathy Zobeck Brenda Zander Lisa Zed Casey Zeringue Gabrielle Zimmer Deborah Zollmann Deb Zander Petra Zegwaard Jena Zeringue Bob Zimmer Debi Zombotti Selene Zander Paige Zehnacker Deborah Zerr Cate Zimmerman Denise Zonder Thiago Zandonadi Michelle Zehr Karen Zess Donna Zimmerman Cindy Zonts Brenda Zangas Ashley Zehr Vicki Zettler Elizabeth Zimmerman Felice Zoota-Lucero Jenna Zanger Laila Zeid Cathy Zevac Noelle Zimmerman Ivonbr Zorrilla Andriana Zani Erica Zeiger Daniel Zhang ROBERTA Phyllis Zuck Marianna Zani Ilise Zeiger Vanessa Zheng ZIMMERMAN Stephanie Zuelke Evelyn Zanini Beth Zeigler Pam Zhong Wendy Zimmerman Jennifer Zufelt Christino Lisa Zeiter Monica Zhovklyy Cynthia Zimmerman Jennifer Zulauf Cris Zannoni Mary Zeitter Kelly Zidron Carla Zimmermann Lois Zulauf Demetra Zannoupa Sil Zel Kely Ziebach Dede Zimmermann Suzanne Zulauf JoAnn Zapata Cara Zelaya Allison Ziegler Rebecca Zinger Susan Zulick-Check Jackie Zapien Dee Zelevansky Melissa Ziegler Tara Zinger Leah Zvanovec Pamela Zapotosky Cheryl Zell Tanya Ziegler Karl Zinser Terri Zvirgzdins Savannah Zaragoza Katie Zeller Mark Ziegler Megan Zinser Lisa Zwack

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