Rehabilitation Gazette/ 79 hms wonof Mr NadRehebWm Mm aadtheWUl~WdUleStksChawr~tk Nepve-a1Wkkastwur.dnWedupoltr Nahd RPhatdlW MtmThank ya~lWe ate houge m mak. m mrdtor ebvr &-a, M!&m dm& MyChad and patalw1I Marrm, who movad here hnhtemb~ Ohm She ha. take~mnheubwty~k Aus .hlu wk. We lost pcme ltknd. tb year. Twowe& &a-almaalmaal~~llkefaffamIlu
.- - csncsr weharl&with~vhn-hewassb~ eswdlY durn hB years itt warhlm 0 wal Schoal when he and amme& &othued mwr W5mtHewsrawaaeadeamsphgs*lan,haw ~awnh~~,he~3h~wandhbVefl mr+andhewaswwnhboun&hopa(oratl hm7hPohorW.an~"~-W Uns$~wlth~.Uleongr~Ustmv NPnblu,?ofBomW In* whad4ddka"ey ham't tou-d are &-beca~118 Iheme,,? any. fabra on A"@ %9 ShP rtMed 'm,@d t* ," aswars- Evq+htnaskharAwa&ekd Waandshew~~~andBdisaotTkeJwmo)cf Pfl* d nd The m-prp6t Kkh&WmaAaB NVmniav$idwswkw~~shs manirq*tei.atsnnvhl&, ttcostrSBCnwmmda -w ths UmW se* spondm~)mo~tmo~tf k +S with ri&mpy Uwsm~mUmbnuew~llustmue&~ ~ataurplfftnc~.~on~~ dowbcaofU5Ufmn.sutbdMdrrPl~Wr~ am&,a"drEseebeeforsheass~"ko-& and $6 W hrn nenmsabld -m, p&d.x&, w- ~tdh~~~wa*bodhFth~pa hlhona~adallothns Idrtflud-WHh~ihnwihnwupmemeaW~0~ bdo~.ntaSductMkdtheyeyey& payab& +mourme=Umdhbg~~al~alb&mwl~- mReh&ite&o&ablnF fheymemaawbm,fm rem ma&& we em chqw th8 phasa, "- lb Gee is &led by mluntsuii and sum ~mdhkmmtbnSerr*cefortk.Ombl&m by itr mdes and hds "'lniernabonalJovmd of Wwtwng for thank, awWe shall, dcoUfPB. Bur "&"m&maa to w *, but m Mun ho6 thtne MU he whMkom mcbderuW, attadam. ~~housmg~n,and~ Cwse Horn ar w.x& *. rw* mu- LUX,ti- who are blind u php+ "nab to ha& book Sn GIwwOfSCItum%P~W-aperron~ If Uw Mod !h lMva r~rcddCe ill -n unh np '0 ~andapartof~~~m~3~~~~b.a rswlt d wlnal cod bjuq SCII or & Qumdnpka= lmore mtr+ tehoplegld -a pmvh- iw en4 aputdvhosprmnkare&dandwhrsahwdr and arm aa~pwbatlyPPW The IweL ef mjuw to the Wal column ie WratDd by letterp wd nwhFa EmsfM -e. .hz %dbd rr mnUmnns to enamkC56rnranstheu~rny~itttheMef help the Gmne m Wand Vgl may Pend fer the Akh and suth &brae d h. nark, at tk. samnd w copips of the G-xetka hy chsque or PasW Warb WdebrantheIhmmeor~heSl- wdWatfhe~ Ms dD S~55ASMltb~&Hava* Hmk. Yvtebraintbalumbarolbruerbackarea~.thea~ E&%d L75937 ST I) 0705 Swdd pnrp of £1 50 las. of fmeson bsbw UmW d wury horn diabhd indlwdudr and f3 W kwn dl PksoatheGreekwtdkw'&ih8."mtheGrd fer "ads'" the GrPek la "deqb four, ' and kr&.Beeaureofthamzdd quodn the Ld" fcs d feu.' fhw +"P& owb"Ckthkpastypc.hssbe88nabonsanayear'd 8h m a mbhurr of Laan"- and G& end mmplesio is all ~oY6~edthe~n~hngprAwedofGreek The are wmpk& ad the PMW &&-z bsmmd the Pr&tt'r Corn- Mrapke The noun, ao pmdqm quad* and tee 01 bhntof the Hen-. KSD-Wr Jal mmpI& The JIort forms are and "quads" krron~~dfor~~urSt~~Ob hcdhd'tMd~mhehModhtheGreat 4 Rehabilitation Gazette
International Journal of Independent Living for the Disabled
2 Numuon: A rpeciai feature. Diet: A Key to Better Health by Gini Loune High BulW High Nubition Diet for SCI by Edna Brean, WV. Prycho~ logical Bene6k of MS Dieis by Kay Ellen Thunnan 9 Independent Living. A special feature. Independent Living Progmmr. Independent Lik~ierby Book Rwieulr.: Joyc. H Tery Halfner, Richord Snell, Tony Goucher Geow R. Thompson, and Pahick J. Regon. Attendants at Home by Graphics Design..: Ted John A. MrWethy, Nita Weii, and Comie A. Panons RS Llbrulan: MirMe Mamn ,...--..., Deducflons for Anendan* by Shidey Watron. Attendant Proo~eadenlCons~Itthi:Gayin &An Care Piogmmr in Caiifomia and Marsachuretb. at ten^ Hohan and Barbara Pew Lawtan dants at College by Roben A. Ha!!iday and Somh M fM,rroun) Dunham. Attendant Care Manuals. Training Rehab'dib- tion Studvnb in Independent LMng Shills by Jack K Loll.1 ca""aa1: A"". Conn Forder iMwounl Genskour, PhD, and Chorler K. stuan, EdD Conluring DeSnxtioni of Independence by Andreo Coppoeh Hour- Acsounttt: Do* Jon-' iM:&muril ing and Home SeMcer 1979 Supplement Addsen: Dons Biennan* (Ohio), 28 Tho World of Oral Hearing-Impaired Adults by Dr Ronald H, Donrff l!nd!onaI. Marion Wii!iom Buby Sheidon and Kathryne MrGuigan Sheldon Green. and DI.Dunran Holber? 1Coilior nlal. Kern Mahan. MicMe MrGmw*. and 30 You Need Your Head Examlned by Jeonne C. Kip Judv. Ramond . 1OhioI 31 There is No Place Like Your Own Home by Bruce.? Compondmb: S-n Ambrschr Hillom, PhD iOh>o).Nancy Cole* iMmun), Bab Hib' 1OhioI. Jean Shnge' 11ii~na~sI.Nancy 32 Tralning in Computer Plogamming 33 Books by Joyce Kn@n 36 Friends Around the world 41 Travel. Traveling to the Far Ean by Thoma Douir Sim~EightCounrnw in Wheelchair by E. Thomar Sandiiord (Emiandl. Eilesn Van Albefi ,"A"...-, Breurrter Wheelchairs on Mach" Plcchu by Eileen Van Albert Ten niqhk in Hawaii bv Dons Jonee 47 Equipment by Joe Loum Legbag Valve Conhoir. Cover: John d. FkdmW-6 quadl. Chkl Automated Ulinator by PO"! Bemom. Communicationr. oi policy and Opomtionr. Ofice ai CO""~ Dtiving Conhok. Aidr. and Tmining. Lih. Mirceilaneou Health SrMcer. Califamla Drwvhbnont oi Readen' Ideas. Wheelchain Rr Accerrorier. Health Sedm, war m-founder of Berko~ 53 Potpod. U.S. Pododlcal~and Neursleffors ley's center lor hdependenf Liuing. Ph0t.Z Ken Okuno. 62 Photo Pag- I>onatlon per anluLal copy. 64 Middle Aging. Those Parsing Yean by Lory Schneider :, , 11 11.)Vv: .i1,,1..1.. Polio Sulvivorr Asmiation. .,I , ..>.,,3 ,,,<: <:,., ,><..# * prolesaonals, and inrtihltioni. Conm~ Disabled Peoples' Bill of Right. butions are tax~deductible. Available Back lsavur Rehabilitation Garone 4502 Moryiond Auenue St Louis. Misou" W108.U.S.A. Phone: 13141 361~0475 Nutxition: A Special Featwe
Diet: A Key to Better Health
. . an aduli'e chance of making it to or part the average life without charge.) expecianw. The remaining YO perce; are determined by factors over which daton have iihie or no control - indi NUTR~~~ONALREVOLU~~ONT~~United States is in themidst vidual lifrrtvle, sochal condmonr. and physical environ of a nubitionai revolution. Eatinq habi~sre evolvins and
vidual behavior andhabils of living. He stated. "The indi bins and jarr. innabon ls pushing many to 0 vegetarian or vidual must bedling, able. and sure of what he should do semi-wegetanan die and to learn how to eliminate or cut to be health" . . . The keu to better health is orevenfive down on meat and still maintain an adeouate. oroiein. in^ medicine and ndividuai rrlliare:' take thmugh complementmg vegetable. egg. milk. and ''A recent Etudy." Dr Knowles raid. "rhowed that life miik producir proteins. expectancy and health are related to seven simple habis: eating three meair a day at regular bmpr with no snacks GU~DEBOOKS10 NL~TR~I~ON.If you have the light guide^ in between: eating breakfast every day: exerciang two or bwks, you can learnto rave money eat mom -iy Ulree timer a week, rieeoin~revon or ebht horn a niaht: Whether vou want to follow a veaeianan dief or lust cut
. .- who piactlce none of them." Vegetarian Cookery and Numtion by Laurel Robemon. He empharlied that good nuirition is of major impar Carol Rnden. and Bronwen Godfrey. iRantam Bmkr. fance in treating any direme and in maultaining gmd Inc.. 666 Fifih Avenue, New York. Ncw York 10019. health. "Most diets are fads." he said. "And lads are looi- Paperback. 13.951. The first haif ol the book clearly ex^ irhnerr. The outh is that a high~proiein,iow~fal diet which plains the ingrediene of a vegetarian diet and prerpntr an goes easy on salt ir very, very elfective Rut it's so imple 8nteres"g coilecho" of reow The second rechon of the most people can't believe ifr for real.. . Most people don'l book explains nuhition in a delighflully understandable even understand what is meant by a prudent diet It ir low way. The authon, wo cooks and a nurie, cover the prob- in sahlrated fa&. iow in refined carbohydrates, and hlgh in lems ofweighi and of children. The nuhitionai information 2 REIIABLLITATION GNmE is reviewed by Geoige M. Btiggr, of tho Depamn~ntof a mimeographed copy of her entire list of 70 books to Nutritional Science& Uniwnw a1 Califomia. Berkeley. any Gazene readers who rend her a request unfh a self^ The mort techniral book and the one that would most addressed. stamped envelope. Her address is2431 Benja- gladden the heal* of a hined nuhtionist is Dietfira Srnoll min Dnve. Mountain View Califomia 94043. Planet by Franc- Mwre Lawe (Ballantine Book-. 201 E 50th Skeet. Neiu York. New York lW22 Papa,back. $5.951 It has soid more than a million copips. The mort valuable information in the book concemr - protein ielationshilr, and mwt equivalencier. The four for people of all rimer of disabilBer, which is reviewed in basic groups are pins. reeds. milk poducii, and le~ the BookReview action of th~rirrue. Iflncludpsa valuable gumei. The three basiccombinationsare 1. Grains (cereal. collection of easy-topieparerecipes but so many of them one cuninq on We, pasta, or corn, eicl + Legumes (beans. peas, or use canned rouw that if were - way~ down lentilii. 2. Grains + Milk Productl. 3. Seeds ($erame or salt it would be nec-ni to reek out galt~heesaups or sunflower1 + Legumes !beans, peas. or lcntilri. The pro^ work out subrtifuter. tein usabilihi of most of these food combinationsir equal b In addition to thu, excellent bwk by Judith Klinge~ an accupational thempist. there are Wio interesting cookbookr by individuals who manage their homes horn wheelchalrr. Both are well organized and have helphi rug- in Mexico, lentils and tice in India, and rice and say in wtions for caalnng from a wheelchair And both lean China longbefore anyone knew 0f"compIete proteinr- toward fdthat is hetican, old-fashioned, and a bit or "essential amino aods." A companion boak Redper generous with sugar and fa*. If You Con't Stond to Cook for 0 Srnd Planet by Eiien Buchman Ewald (Ballantine by Lorraine Gifford. who is dimbled by multiple rclerons, Books. Paperback. $2.501. is much simpler to foilow and war published in 1973. it costs $6.70 fmm Zandewan the reciaes are more diverse. The c1ossaw and charb are Publishing House, Grand Rapids, Mchigan 49506. The - ~ helpful. author 01 Redper and Cwlnng Hinkjor Brides ond Ofher If you want nuhition facts presented in a clear graphic Handicapped People is Imogene Dickey a quadnplogic. shile. rend for the list of oublicabonr of the Center It was published in 1979 and is ivailable horn tho author at 950 North Camngmn. Buffalo. Wyoming 82834 for $2.50. The 1968, tenth anniverm iuue. of the Rehobflifo60n
.. costs. benefiti, and ti& of additive% ladies and one gentleman &th probkm5 such a. babog, TheNew York Times NorumlFads Cookbook by Jean cumng and chopping, cleaning. faucdng. filling pans with Hewin [Avon Book, The Heam Comomtion, 959 Eighth water gtipplng. handling hot stuff, lapboards mixing, Avenue. New York. New York 1W19 Paperback. $5951 opening cans and jam, peeiing, reaching, removing faodr is a fabulour collection of recipes ham cheh and amateurn horn ookrng water, salving car&, and rholl cuts There ir aU around the caunrm a limited number of the- issues that have slight pnnting Four of the other new cookbookr are also hlll of trea~ errors which are available for a special pnce of $1 to cover rwe5 for the gaunnet and are presented in athdrtiveiy postage and handling illuinated books. From A Monastew mtchen by Elise Bouiding and Brother Victor Antonio Avila (Hamor & BWGGUlDE conrumers Union ha3 compiled a basic and Row. 10 East 3rd Suee-eef New York, New Yark 10022. practical wide h buying food and to isaming nuhition. $6.951. Vegetotian Gourmet Cookery by ~ianHooker Though it war aimed at older people. It in hll of in for ma^ (101 Pmductions. 834 Mission Skeet, San Fmncixo. Cd- tion on bmndr. ptices. and explanations of nuttitian terms lamia 94103. $4.951. The Vegemnan Epicure Book Two that are valuable for everyone who is intarersd in raving by Anna Thomas IKnopf. 201 East 5Oth Street. New York. money by informed buying. Tlued. Eating Right /or L~SS New York 10022 $12.501. Ndumilv Good Wheat Germ it is available for $1.75 hom Canrumeri Union. Mount Cokbook. !Send $1 to Wheat Gem, Cookhook, PO. Vernon. New Yoik 10550. Box 9432-N, St. Paul. Minnerata 551941. Their new books are exciting additions b thore of the NWONAPREVENilVEiOOLOFMEDiClNE When Norman @onerr nu%ition%. Adele Davis. whore bwkr have rold more rhan nine million copier. Take anorher bok at page 45 of the 1976 Rehabililotion Gazette and the list of ten books which were selected by Mrs. Ruth Anne Black ai odds and travels the counmi teilinghow he licked mm by the mort valuable for self-help fa hulth. She will rend changing his iiferjyle. 1979NOLUME Xxll 3 Aware of the cower of the emationr. he decided LO in^ specbum testing program mlny urine and blood sampler to develop specific disease-related prdes for nuhitional deficiencies. etc. They hope to have this promam under way next year" or I ED: Roben G. Dicus has been dsabled by ALS "Lou Gehrig's disease" since 1963. He wrote a iasdnating am- a de on his expetiencer in the 1973 Rehabili~lflonGwen. pages 11-13, in which he stated, "During my years of direct combat with ALS as a patien< Ihave come to know that there k HOPE of rmival from ALS and thatthere is a own illness and must enter into a patientdoctor parher- great deal which the patient and hi family must do to ship . . . Medication, as important as it is. is not enough suMve . . . Why not glue your body "8th ib excellent without what the patient an ruppiy in terms of amtude natural defense system the optimum chance to win?" confidence, the soul, the powerr of the mind . . . The imponant preventive took of medicine are numtion, exer LlNUS PAUWG INSTTRm The Linur Pauling lnrtituie of cire.. and mod mint! and feelm.r." Science and Medicine 12700 Sand Hill Road. Menlo Park. are the California 940251 makes the fallowing dietaw ruqqertions if you intnwed by Couilnr approach and by ~ -- holistic medicine. you will enjoy his new book. Anatomy of for pemnr with borderline health: on Nlness As Perceivedby the Patient: Refledons on Heal& 1. An intake of 1 to 10 gmmr I1000 to 10.0(10 miiliL ing and Regeneroeon. it costs 59.95 and war published in mamil of cwrtailine vitamin C powder oer day (either 1979 by Norton & Co., 500 Fifth Avenue. New York. NY
. - foods. sweet dwe* should not be eaten. and prepared foods with sugar as a conahlent should be avoided. Honey and brown ruqar should be eliminated hom the initiate trvo vew and exciting research projects at diet the Omaha VA Research Center Dr Anthony Barack will 3. Elimination of smoking and avoidance of areas that head the team that unll monitor the abromtion or lack of are heavily contaminated with cigarette, cigBr or p,pe smoke. 4. ingestion of 400 fa 12W "nib oi vitamin E per day. 5. inqestion of 1 or 2 them~eubvitamin table vith minerals per day. 6. Ingestion of a supplement ai B viiaminr. An example is "super 8." and in ihe art of healing has been sadly lacldng and 7 Avoidance of dnnking more than two alcaholic drinks unappreciated." per day. 8. Avoidance of catidme. Caffeine reem to bo harmful to some people. It is contained in cotiee. tea, cola drink. and some other dark colored drink 9. Awareness of fwd alierates. Some oeoole. . seem to be Oak. Caiihmia 91403. IPhone 2139902151/ "The en^ sensitive to sluten or other canrtituents oi certain grclnr. tire area of nubition cr covered with 'booby taps' of They are benefited by eiimrnating we, wheat oao, and quackery and then has some vew reputable peironr in IL barleu ham their diet. Other .woole . aro sensitive to other The problem is how m develop a iruly rcientibc research foods. Fwd allergies should be determined on an in& model of numbon. with vitamins admine&, which are vlduai basls by Dial eliminations of each food. specific for different diseaser; he. MS versus ALS venur Ideallv. the diet of each oenon should be adiuned. to MD. eL. Tho position of ALSSOA is that we do not rup- that penon's biochemical mdividuaiity x, as to provlda port any one dietaw approach for any one direare nor opfimum preen1 and hihlre health. Unfortunately. scien- individual atthis time; but ratherwe leave this choice to the tific techniouer for the determination of ontimum diet are indivldualr and their supeiwing physicians. nd presendy available. However theabove recommends- "We are very interested in this subject and our Clinical tionr may serve to point out some 01 the aaanr that may Advlrory Committee wiil be rubmimng their recommends- be helpful in improving one's health. tions on this subjen . . . I have rpoken with the Adminis- To the above reommendations. Proferar Pauling adds eator of the Linus Pauling Institute who raid that the staff this note. "The vaiue of vitamin C in ronbolling tnfei is planning a special research program to explore nubi- tionr of the urinary rran may be erpeciauy impanant for tion relationshipi to d degeneiative &ass with a broad parapiegicr." 4 Numtlon: A Special Feam
Get-Going Diet High Bulk/High Nutrient Diet for SCI
by Edna Brean, R.N
Do you kten to your body? We were not bom knowing "nnarv uact infechons when the" rat into the bladder bv how to intemrd our body needr hom our sensations It took yean to learn what those rumbler and feelings and gurglings meant and years to develop adequate panems of eating, elurnoation, etc. .,,r",.w I< 8,. n.:,,cy ,, ,,.,.~<',i,,"?A"<,, ,np,+.> 11 your rpinal cord has been injwed. you will have to -q ,",, ,,.un,!.,vo,dy. ,,,I?.: I.,'< ,Ic*,<.ll'...hI~ i
take the time and aouble to learn a whole new set of body ,- ~,".,n.l..,ri ,I I,. 'I I ,,I 1111.,:.?l.n ~..,,i ~iqnair.Because the si~nalrare hard m ~lckup and un~ stays ""ti1 expelled tmm the body through the anus. familiar does "d meanthey are not thin. Learning to The ionger the cantents stay in the large colon, the more "heai' and ""demand them can mahe a meat difference liquid ir removed and the more compad the msbe- in your health and weiibbeing. comes. Hence, constipation !diRculty in eltminationl. im- Learning to "cue" (train) your colon (bowo11 snd to paction (an actual blockage due to hardened contentrl. understand its responwr is not difhcuit It Lahe persistence and hemorrhoids (enlarged w~nsin the redurn and anus and patience. Of all the trainable organr in our body. the due to encesnvely hrd stoalr and skaining or p-r- colon is the mart docile and obedient Even il it has been dunng elmination) can and oiten do occur neglected, misbeated. or overheated, it wiU rerpond with regular and efiicient action if *"en hall a chance. n GoOD BOWEL PROGRAM (BPI A good BP 9 one that gdr reruie within a re-onably bnef time 1% hour should be WJW MESWECMIJN WORK" Ths ccdon'r action is Wave- enough) and produce;- an adequate mount a1 good con^ like, andlr called "peMrtaisir."Therewaves startway back sistency. It is one which work by local stimulation IdigIal in the mouth with the act of entingand swallowing Foad is or a rupposihlyl rather than exhme mesurer such as cheured and mixed dth saliva to SMthe digestive pro,ra Ihong laxatiuor, manual evacuation, or enemas. If is one cers. I" the rromach. it Gets further diwited and mixed that occurs at the rame time of day reliobly without acci- with gashic juicer. Then ;t goes through about 23 feet of denti at odd and awkward times. small !diameter1 intestine where other digestive elvymes and iuicer are mwed with if horn ,he Danciear and live1 . . The valuable matenab are absorbed in usable form at ihl hat their diets are adequate. On questioning, the following stage for enerw, body maintenance, and tisw rep& is elicited: Breakkt jiuce, rwaetmll,cafteeoiteaorrggs. What's lelt is ourhed into the lame intestine. white toast. iam bacon. corn flakes with rusar. coffee
more compact and to&. ~t this miit an eccwca~ ~hmeis nburmg reiiy &my with thCabove diet, it just baiancing act is taking place. with about 2030% of the omirr rame of our numtionai needs and bulk is glaringly contents being benevolent bacteria which work lor us in absent. the digestive procerr. (These "good bacteria, rvhich be- long in tlie intestine. are olten the very ones which cause HIGH BULWHlGH NmlWT Dm Gemng enough bulh~ I479NOLUME MI 5 mhot and mhen. nd how much, that countr. Many spin+ cord injured have digestive hactr which have been mir- 1 treated. and which need the hind of itimulation that the lar and oiten iguored digetiue system. Small, hequent meair with high bulk content pro-ide healthy stimulation to the mucora iiiningl of your digesve tract and keep it working well. Your digestive bcf becomes much more and functioni. emcient and responsive to haining. Because much oi the bulk is meant to be eliminated. it will prduce formed WElGM CONTROL 11 too much weight is a problun, by stools of good amount and consistency. It is non-irritating rubstimting bran far granola, and ilrnlbng roof vegetables and. once your bowel program ir estabiirhed. can make and raisins. Alro. make your yogun "lo~fat." Have you unnece55ay the use of iaratives. stool roilenerr, and rned a"" of the non-dairv creamers? The" 40 we11 with onen. rupporitoner Remember that excmive use of laxatives can be damaging to intertinai tracts, and that minorai oil taken as a laxative can interfere with abwrntion of Vitamin A. be alternated with mall am&% of lhan meat or hater The following "Get%GolngDiet" is designed to meet yet. Brh. daiiv basic nvhltional needs olw bulk. It is derirmed to enect a basic change in bowel tone within about ihiee days. It is cheap and easy to come by It is highly pamble - nnce mart the iood. do nor refrigeration or special preparation they can be kept at hand in small sacb a coune of antibiotin 9uch as tehacydne or peniciiiin. for panodic mack5 throughout tho day. which aragiven tortop infections, becauseume~esthey wipe out some of the "good" bactena in the intertins. "GETGOING DLET" Daily diet to Include: Ywnreplacer there quickly and can help to went Meat Group-Egg. Fish. Shellfish. PeanutBuner. Nub. loose stools or even diarrhea. Beans. Pear Fruit - Raw. Canned. or Dnod, at least three servings COMMON comm Some of the most common com- Juicer-Fmit orvegetable, Raw. Canned. Fresh. Frozen piainD of the reverely dirabied -n reem to be iers- Granola - K cup twice a day than.~~tisf~~toyfunction. Urually the problem is stated Wheat Gem - 1 tablespoon Muice a day. may be somgthing like this: added to cereal Raiwnr - 34 cuo once or twice a dm" I. n tokes fo~ my Eupparitoy fo B= popcorn - as desired that the supporitary is not refngeraior-cold when used Peanut Buner - polyumaturated "am?, idled "old- Store them in the ~hgeratoronly if you buy them in large iarhionedl numberr. They melt at 90 degrees and wer not at the Bread hale Wheat. Rye, efc. No "white" bread. avemqe rwm temwmture. Be rum the rummitani has Yogurt- K cup three times a week Raw Vegetables - MInw"um oi huo hom this En: (These can be washed, cut to rim, and stared in plastic . . containers) Cabbage. Carrats. Cauiiflower Ceieni, C"~ need suppositones any mare! cumber, Green Peppon. J~cama.Lettuce. Peas. Parsley. % My anendant says my renum is empfy ond the lining Saiad Greens. Spinach. Tomato. Zucchini. is dry. The problem here is probably nothing more than Inadequate diet, but it is wire to ruleout porsibio impaction SAMPLE m 8 A.M.: Wheat Germ on Gianoia with first. Raisins and Honev (or Oablleal and Raisins or Raisin 3 I hawn'i hodresuifr1mmmy BPfffddy~.Howmany days? If more rhan one BP has parred without results, check with yaur dactor for a "stool soilenei' or bulk pro- ducer such as Metamucii and then hlm this inadeouate Fruit 3 EM.: Yogun with Fruit Raw V~gerabies.6 PM.: pattern around wiUl the GetGoing Die$. Meat, Salad, Vegetable, Starch. 9 PM.:Granola, Raisins. 4. Resuk are smoll. dry, hod Same as above. Wheat Gem. Honey. Fmit 5. 1 feel blaoted and mu abdomen seems distended. Check with your dactorto Lie out the posribili~of impac~ NAIIIRAL WPROACH. Keep your pomonr small and intererr- tion. and hen hy the GetGoing Dist ins. The impomnt thing is b eat reaiiy nounrhing foods 6. No enerm, Same as above. Don't simply get used to rzguiarly and hequenlly. Scale the por6onr dawn to meet being ilrderr or easily latiwed. !f you have regular check^ your appetite, but sack to the schedule and content it 6 ups and no medk.4 rearm lor th!; tiredneu, consider in- 6 RtHilBlUiATlONGAZmL adequate n~nrtionand wrelimination patterns as con- 10. Con'i lwchjmit. itglues me dionhm. if yourdoctor mbutinq iacton. approves by the same techniques that are ured to inho- z u~~~h~d~l~dbo~lmouementi ond pwr responra duce new fwd-,to an infant. Ty a slice a day of banana, to scheduled BP time? 1- vaur bod" mino to tell vou hat aoille, or omnse to itan Avoid seasonal hits such as
,~~~ -. . . &metimeschangei occurwhen your whedules change dahy diet. school staldng. new job hmer, or the unieniing that comes with Bavel ar vadonr. CHECKWIIE YOURETOR. ~ehrestamng any diet check 8. BP on schedule. but uiokrv muib, diarrhea. etr. This with your doctor and then the watchword is "modera-
contentris not behig passed at all. but some liquid contentr are passed around It. If thir has been going on ioi more than a few days, you might check with your dacbr The high bulk Get-Going Diet should effect a changein a cou~ pie of days. Edno Erean. RN, iuos mgmm supemisor the mjd=nrr 9, ~h~~ .pmwnpb,. You had fine -lb ham 01 pwmms lor d=obfd *den- the Un*"=mliY 01 Coll/omia a dulcolax supporitoy, you.re drmed fa go out Berhele~ond rdurroron heohh maintenonce nuinfion. rei/ core , , , and ylper! a happens to younow fechniq and equlpmoll at the center /or lndqrendenl Li","Z and then. &ably m=m that some of the S~PPO*~ ~CIL). .eerkeiey TMS oriicie fmm her onicre. -ro is left and is continuing to do B thing. What to do to YO,, ~~~hhi~~~~fcore'' war publhhed in FOII 1975 prevent thir ned time? Spreading Nupercainal Oinrment b,, 01 the CIL pub~:mtion. 7hs IndepondenL since 1978 he (about 'A inch on gloved finger] gently in fhe ream after har been teaching tau- on sewn dtrablfih, in the Rehablltlo~ completion of the BP can countemct any ruppo~iloryief~ don Cowling Pwmbsn Fmncko Sts1tp Umbem(tp there.
Psychological Benefits of MS Diets
by Kay Ellen Thurman
Multiple sclerarir 1s a be"dde""g diieare. Not only is the "Apodfmm Uiebdthviany dktmayormoy not be patient confronted with abwlufe unceriainw about how benefilmf lo muihple wlemok Ihorn lound ihd m and when the condition war conhacted or developed. he dfei hasotheraduantqer For meit has beenapmi- daern't have any real arruiance about the caurre of the li"e mum 01 odion and although Iknow bar *. disewe. Ihe iuure is unknown. Fvnher conhrrion arises not o definltiue curefor muftipie wlsiosk Ido knou from the lack of consonrur about effedve bearmen?.All rhot Iom doing something oh", ."d somefhing " expem land patien$, tool agree that the MS patient must thar har the ble33!ng offhe maionlv 01uie,l~in/omd avoid fatigue. eat a good balanced diet but watch fhe dec!orr. I think that the uer, lod of being on o n- - *me, and one to rnhl~hW" muid dhere **Iy, ca1oner - exernre, and keep busy, wor!.Jng if panible. gives you a cemin recunty and fellng 01 hope." On other aspects of hearmenf &ere ii no agreement. in pamculac ewm and laymen have con~ctingviews on Elizabeth Fowlhe, MRCS. LRCP DPH in the effect of nuhition and diet in the long-term keatment Liuing u*lh MuHipie Sclem3ii of MS. 1979lVOLUME mi I A number of diet regimens have been proposed lor the beanng grains would promote bener overall health and alleviation of MS rymptomr. These pngrams loak to the lessen the MS symptoms. No information is available , ireatmen$ not the prevention of the direane: they aim about nudies on this program. to ease the cou- of MS and minimize oreiiminateperiodr Roger MacDougall, an English piaywngM and an MS of relapse (exacerbation1 through an improvement in the patient. combined the low~latand gluten-free dief iegib , body's own machanirm. mens He. like Dr Swankand DL Shatin. urgesa generally DL Rov Swank of the Neurolwv Deoaihent Unlver weli~balanceddlet low in tehnedruoar: he noterthat bread
. *~~-~. and animal fat are consumed (Scandinavia. British Isles. parts steady improvement through very smct adherence to United States), and ierr cvmmon in those a-r (Lati" the program. Although he claims to have manyrubrcribsrr America, Far East, southem Europe1 where less of thore to hi3 programs. no controlled study of its effect has been loods are in the dally diet. He prescriber a good well- made. (My FighlAgoinstMultfpleScler~is.50 pence or $1 balanced diet, but rdrnthe intlke of animal fa* and from R. MacDougall, 25/27 Oxford Sheet, London WIR dairy products. He has obsened patienb for about 30 1RF. England.) years. He concluder that priodi 01 relapse are i-ned. Arbongruppolleraf MacD~~gaI~sprogrgrmr,'J.S.Od. though not eliminated, by foilowing his program. (The vie, who has been uringawheelchairlor over 10 yean. He Multiple Sclerorh Diet Book. By Roy L. Swank, MD and has written a book describing his pragrw while on the Mary~HelenPullen. 1977. $8.95. Doubleday &Company. glutenfree and lowfat program. iOuerwrning Muniple fnc., 501 Franklin Avenue. Garden Ciu, New York Sclemsis. $4.50 from The Roadlunnerr. Ltd . Manticeilo. 11530.1 New Mexlco 879391. Subreauentiv,. . a wries ofstudies war made on the effec- With there diein mind. inauiriffi were rent to a num~ 18 ..i ,.. I 2,. I 8i- .: .ih.m.r<~~31) \ISoa!lc.~~, h. .. I, \l~~,:.~.51,1r~ru' 81 I:.~.'11, 81, . . .q. ' 8, , I,., 4.1,. - I... ri.. .,, c ., I,.. :,
. . The St Louis MS chaoter refened me to DL Simmons' eta" pramamr, looking for long-rangetearment, not any 13",> ?A,,L,> 0,<. ..*A, I., , ,, .Lrdq.." ,r, : CLr, ~.. ouernighiresulb. ?vnifi. I.nr ~8, II n.. , ! ..!.v 1, 2. .,w a? hl5 , 8. None of the dietaiy pragmmr described bnetly above. i'. 11, 1.3, ill,, :$I.pr, cl. r l . I. br (01 q.1,. .' ,. .i..- nutmaonally unbalanced cr poses any risk to a mtiadent's i.. ,r 1.'' ,.,I ., ,".* .,,: !8.'. . p, 2,'7 ,I .,I rr o. :I.* health. None is expenlve or bothersome in the daUy diet To the the psychol@cal benefits of I ,i ' '.I i', .?LL ,,,?I, pl... -' .: I< ",>#r,cvv adjurtmmh. contraly, ...,?.I ,\,-,,,..:<.,~ ..^ r,,. *r*v :r.s p. I .'I "...I doin0 somethins. .ooritive - adiurtins . . one's food intake in
OC. a program to improve health - might be considerable by , . ... n. ,,: . ,>,n..:nr.~ less judgmental about diet therapy. In short the response depends upon whom you ark. As noted above, canboiled studies have been made Kl. .u-<, rn,u',, nqM2c.n only in the low-fat. sunflower seed oil diet proposal. The I , 71."l rr .,, lypical reasons given for the lack of other studlei are: the 5, 0,. 5,. s,L I... .r c .nr.'TI L"">,. ,.,> < <., 3.d ,,.,?,> >.,,>, 3
Independent Living: A Special Feature
Independent Living Programs
Independent iiving is heedam of choice lo live where and staffed by severely disabled individuals. who provide the how one chooses and can afford. It is lrvlns within the mwk of oreicounseiinq andmwmodeir. Itis a rvriern of
vices, virmer, leisure. and fiends. It ir kedamtotake risk dant lists. advoc&, and other sennces;o that the lndiL and heedorn to make m?staker. it is freedom to laam tc vidualr whom it sewer can live within the community in live independently by living independently. ordinan, hourinq. it nerves ~erroniuinh all dirabilities - Independent iiving is not a new concept Severely dl. blind, deaf, wheiichaiiod - of all ayes. abled indviduals haw been livlngindewndenfly formany Clham developing in California and around the coun~ years. The first proyams geared to independent iiving w. Eventualiy, every city and every region of every state were omanired back in the 1950's by the March of Dimes will have some variety of CIL designed along the liner of to save money by ielear~ngpobr using reqirators hm the original but adapted to the local area, such as the hor~italrand rendino them home vnth anendsots and &rSttt Center (or IndmendentL~vinaand New Oo6ons in
Of courre, there unll alwayr be some individuals who do notchme to lh i"deoendemb. who choose ,he securil" The EILmncept is uniq;e because iiwar createdhy andir of a rouhned cocoon. The best way to locate and serve 9 r -' r- I; Wlllbniii .I Beon. PhD. Special &Wont. rr. Jlidr' i iciiil>nrln. iJrpv?u O~ritorCenlrr Ed Robe*, Direnoi Cnl#,on.i>L>rpin. 1,nunl W#lliomion.Director i ,ill'\ O)f,~e for 187depenlient i.,i~#nq.Illl meni o/Rehabil!to~on of lndeperidmt Living TheNdonaiCanlenn~~nbdmrndenlLivinginHolu(onin&~~rnbp~1978, mndd by ikaden 0, the ""iW edtntu' drablad Comm"niiy Joe i."#. there condldahoo o,.omeo,ih~pamo.~nr ,A,l,>Pn.requ.dr. w,,hlhr eurp,, on olDovld Wlllhmran, pan) thereindividuals Is toitan withthe seMce ni"em of aim1 and ofeffecting itate coder that wiil make ~rdin~~ hour^ center for independent living and work with each indlvid ing accerribio. uai on an individual basis. The wont way to rewe these The Brst national independent living promam became individuair ir to start vvlth s special. segngegngted boiidlng. law m Nowrnber 1978. ar a part of PL. 95-602,~ndei Special, segregated buildlngr are expenrive. They sewe Tide VII - Comprehensive Sewices for Independent LTV- too few people They mislead the ~ublicinto thblung that ing. Disabled individuals are an impofiant component of the housing problems of the disabled are solved. They the effectivenerr of the law, which states that "handi~ enuap those who would ofhenvise evolve to Uue indepen capped individuak . . . be rubstantially involved in poliq dentis They have a 55iling, inhibiting. and abrasive efied direction and management" d independent living Must importantly they dclucr rrrmnu that should be lo- and "be employed by such center" cured on the vital problems of Snancing attendant care It ir vital to the success of independent living p~ms 10 HEHABiLWATlON GAZElT that disabled individuals and their organizations become Hi addierr is Rehabilitation SeM- Adm3irha60n. U.S. Da- familiar unth the law, nudy the literature, &if exlrbng ren- oamnrntolHealth. Education. and Welfare. Swmr Bld~..-. Warh~ ters. and work with the designated agency in each state. kgon.DC 20201. start bywnons t0BrnC. Cum. Center ior lndeoendent Liumg. Also at HEW Independent Living for Hondimpped lndivld~ 2539 Teiograph Avenue. ~erkeiev.Cai~fomia 94704 HS is in the uols Souxer of lnlomohon. Free list ol U S unten. Ckadng- pro- ol piepanng guideliner and p~rrperbues.AvaUablo ham house on he Handrapppd. Room 338D.Huben H. Humphrey tho Technical Arriitanre Unlt at the ramp address lor $5. 8s 6% Bidg., Warhingan. DC 20201 1975~partReportoftheStateoftheArt Conference. Centerlor National Spnal Cord lnluy Foundation. Roben J. McHugh. Independent Li"lng Director alProgamming. 369 Eii#otSt.Nnutonut Upper Falls. MA 02164. Tho Foundation has heen 8nvolvrd 8" be davriopmenl Other oublraOonr and individuals h, cnnn*~ ~ fnde&ndendentLiulng By Suwn POumer 1977 Fne, lnrtirute and llrwirion of mdenondeni il-a senncs mar tho orrt ipw lor Research Ulilizatian. 719 Delaware hue. SW Warhinglon. DC ymrr MrHugh rumm;~er thee expenenrPias hi1-s; .ll,Thrae .7n074.. . statewide p-ms and iour i-1 ommuniu program have The BClL Recan BY ~aulconoran and ~mdenrk& F~~ been developed by the Foundahon and are cunently providing 1977. Medical R~habjiibtioninsbat.. TU~~-NZU ~*d$- reMcer. Seven additionai programs ara in the devrlopmensl cal Clnler, Box 1014. 171 Hamron Aue. Borfon. MA 02111. stage. Ail have as their pnmav gml assuring the auailahiliy of Meaing the ~erronoicorn ~eed5of seoerely P~VSI~II~~lc penona1 care arnstance, affordable and arrrvible hauling, rililr .bled Clikns in Muuchusem. By Gerben OeJong. 1977 The mining, and pear counrrbng on a Wdpant-conboUed and Levinson Poiky Initiiute. Brandalr ~nivewy,wallham. MA dliected barii. "?,%a ".-.*A "The development 01th- and other pmgiami has been Sirnib The Need for Penonol Core Senices by Sew& Phyrimlly lirri" term3 ofthe people to herewed, baiicrrwlcer hat need to Dlrobled Citazns of Marsachurem By Gorb~nMong 1977 b. developd hamen encounf~redMihi" the syitom. and ,he ILevlnron addrri. aham.1 $2. arsurance hat paldripanLC haw convo1 of he" own uver I, is. however the differencer, oruniquonerr, a1 each olthe pwam that has asrured their ruccesser Each rommuni* ha. un,qus need5 and rerource, ,hat wnnat be accounted lor by 'pre~pack~ aged' programs I, is, thrrebre. Imptram thatthe communiqat large and ~rpclailvthe ootenfla1 mrr "iirMcer are involved 8" "Thore is no singular answer or model lor Dragram dewlop menf ur for assuring ihe unziom avalahilmy of reMres. There am. however cewin basic onncioler that must be iollawed- 1 Pamrl~ promamr. ISeueml nwpubl&tianr are lliled in ha Housing r.ction of his iirue.1 HEW: Implementation afiiUe W &&acted by BUIBean PhD. Independent Lijestyles Physiotherapist by Sheila Antscherl I have been a C4.5.6. quad since 1970. being rerpiratar learned to breathe longer on my own and vend more dependent ior six yean. For five and a half year. 1 lfved in time scooting around in my elechic wheelchair Ar I am a a chronic care hospital. There I war provided wlth special phyiiothempin by profesian the oppoflunitywar afforded equipment to brush my teeth and manage other activlti- me to take chargeof some of theclass work but Ibagan to oi daily living. My doctor IDr M.G.P. Cameron1 ir a polio get "itchy feet" quad and he war not one to let us vegetate. Gradually. I With the help of my racial worker I baame the first I979NOLUM XXli 11 which was rnodihed with the above conhob and Ibecame a lree spiiit. 1976 nrerented me with a challenge to reduce my respirator dependence and with much encouragement and helo I finally. ilerrt. thmush the ni~ht.breathinq . unaided.. As the end of '76 approached. my doctor ruggerted I think about leavlns har~ilal.Beinq ineimble lor iow- bathroom door I was on a gradual disehwe dunng the fint month. spending rome night2 at the apnmnent and rome at the hospitai. My church and fflends gave me two showen h help equip my new home and in March Iwas officially discharged horn hospital. In Aptii 1977, 1became ciarsifisd staff and qualified far hospital and drug benefik ham my work. As I have an indwelling catheter and use a C.B.I. iContinuour Bladder lnigatian) at night. Icontinued ar an outpatient at the day hospital and found a wonderful family doctor who had two other quads as patienti. 1977-78 proved to be a partiruiarly bad winter making it impossible to get hom the wilment to the caiand vice vena without help My parents and I decided another move was in order and on May 24. 1978 1 moved into my preen, apartment with undergroundparldng and mmp to the building Iam the only dliabled tenant but feel cam- pletely accepted and at ease. My maln meal Iget at work and, with modfled utensils, manage to get my breakfast and supper I shop at the Mali across the road where maceties are packed into my cai Most of myoemnal needs Ican take care olmvreif but I SirhAi>liii?e#lIC I5 bl I csniniirond rrurhoro jliryrothrr .,,:i., ..<,,,..i!c7 1 ,? d,,:.l?,. :,"dc , , I,., A>< aprir ot o cllildrrn's o*ych,olni inallliite Note hriyhl d'ilmrrrls 8.. . n. 7 l h .:.<,.R .l..'.,ro?c~,..~rn, ni.nroni, I which othws me io ibnldll>eihlldren.'' "41 ,,~l,l,a,nl..iuliI,.....r. II,,,b. I,.,. .r. . !. in the living room of my apartment person in a chronic care hospital to receive legal aid and For home and schaol "isits where buildings are inacces- thus was able to oroceed with divorce orocedures imu. . sible, I use my CB radio to contad the local police husband couldn't cope with my diulbiiity). Armed with a who camy me up stain The CB radio keeps me informed linle money in the form of aiimany. i began seelung em^ of road conditionr and can be "red in any emergency olovmenL After much searchino I war oflerd a oart-time situation. . . ani~tancem tiavel ""ti) Igot a pay cheque. with the first in* made accerrihle. Igo out unlh fiends and enjoy good penny Iearned, my Disablement Pension ceased and also music and theatre, reading, sewing [by using my chin to my hospital and drug benefiti. opera% the loot conhall and wihng. My kith m Chhtand My job was a joy to me but I continued as president of my wonderiul parents have spumed me on. By living one the patienti' council until my lob became luiltime. Taxi day at a time Iam compieteiy fulfilled. fares were prohibitive but as I continued to he at the As to mu*. adaotationr. Iconsidrr the mast immrrant to chronic care hospital Ihad no living expenses. be havwg the armrests of my wheelchair at the correct Ihad ddven acarrincetheage of 16and war anxious to height far me to getthe best ilie of my arms without using dnve again. Conventional hand controlr were unsuited to ball beanno- feeden. I have soecial metal roiintr of mv own my dlrabiliw 30 Dad dmigned and made controls I could design lor wtiting. Wing, and erhng. Iaim have mouth^ use. In October 1975, whiie my dad was recoveting from a sticks that fit over my teeth (made by a dentist] uith an stroke, he designed alifl to pull my wheelchair intothe car extenrion that accepts anything horn pen to paint brush. In March 01'76 1became the proudorvnerof a 1976 Pacer The L~shapedlutchen Lcweil ia,d mot tthcounterrpace 12 REHABiUTATlON Grn on two walls. Double sink with lever taps are iacaied in the counter on one waii herea are two eiecrnc wail outlets. At one. Ihave inrtaiied mu elechlc can o~ener.toaster with smaii bro~ier.e~ectnc fry-pan. and blender ~t the other outlet, i have a imuhd pot for boiling water Keniaswere a constant sourceof danger as steam bumt tnreniitiverkin. My dishes are "Carelie ware" and ,he giasser are "Dur aiex" both of which resist breakase. Cupboaids are ar- ranged for conven~ence.Top shelves hold things not in constant use and Irely onvi3itan to get them. For cwhg, Iuse the normal stove but knobs have been removed from the burnen and a long stick fie into the slot and a nall indicates the temperahire. This prevent$ bums For the oven. 1 have long srberfor oven mitfr. While warkng in the kiichen, i attach a hand towel to the side of my chair so I can wash and dry my hands before touching the wheel nmr. A formica-topped tiay neatly over the and it is here that I prepare salads. mix bane,. and use my elecmr hand mixer By using a small handsplint madeoiorthopllast. fastening with ~lcroand wrapped on the palmar aipect with Y wide TemiHofiner "My hodwre - wi,eelrhn##ond onliictai limbs - eiaflc. 1 can use most utensils. If flb acrorr my knuckle createcunos:tp. Iilkespeoiang~nwyeinrnh~~~ii~i~ heiporapie sei* h"rn0rn"S side ondjeei more at eole " With a head filled with memories of neighborhdod piay- Before purchasing utenriir and pats and pans. I make mat-, school invoivemena. and normal hurti and rn~ sure the handles do not become hot or the pot too heavy umphs. I'm now marching a nwstep. I'm an acbvirt for "Corninq ware- with ils eariiy anached handle maker new beliefs and iain a new breed of oeo~le- the dis- casseroles easier to get inand out of the oven. Ratherthan abled, There am '&uer to Gght far and frerhtomomw we want to be in. Thafs exciting I want a part of each mo ment Soeakin~. - out on issuer and remainin4 active is the panern Ienloy. I welcome pubkc speaking engagements. I youneif before purchasing any piece of equipment. Mort love to share my thoughts with an audience. OT depamnenb wiu aliow you b do this but 50metime Mv hardwaie - wheelchair and ariiecial limbs - cre~ you must insist that you be allowed to hy and not be forced to use equipment "they" think is be* for you. Addrerr: 790 Wonderland Road, Awmnent 603, Lon- don. Ontano N6K 1M5. Canada. perience We talk openly about being disabled. We dlscurr the joy of mobility, fancy wheelchdn, and new legslation for the drabled. I love a*. writing, music, and hee time alone jurt to think. independent living, driving. maMage. and other dreams are ail a pa* of my future. My hardware nevrr ActivistiLecturer really said no to homons, toloving people orbeing loved. I drive a boa< go to work, and get involved in community by Teny Haffner aciivltier, Each day is chaliengng. one has to be positive if anything is to be achieved. A ~uccessful&labled penon. hauever. i9 foa ofien thought Iwas born without oaris our rociolu conridon vital to oain~ of as a "saint" or very low on the receiving end. It is hard to be a middle~of~tho~road"crip." There's nothing wrong In loving youiself or once in a while. ego tnppLng. Try nlt. It *. - feels good and you're wocth it only thmugh a belief in one's reif People can be touched Nourishment b the dirabled rrerron can ako be in by the heart The soul and wonder of being a human are what an accmte mirror renecb. A brain, a hean, a smiie. and a future reem to be more than enouqh to find rearam for living and reaching unique laugh ramewhere and Iam budding a repertoire of I97PNOUIME m 13 ice~bieakerr,such as "lm a preny happy feiiow, but lm tired of people cailing me the 'Happy Hmkrr' " Well. that's life. Ilr mine anwy and it means a lot to me. Sha""g my family's story is imponant to me. It rays something for keepsng people. for 1ovlng and motivating them, rather than throwing life away. I am hom a family of eight My father is a commercial sales reprerontative with Indiana & Michigan Elecmc Company. My mother is a proud wife and mother Tom, my twin brother, is a me^ chanical engneer in South Bend Candy is a regstored nune. Tim a law sNdent at Wabarh College, Sandy a nuri1ng student, and steve .in luniar high. i am a mental health technology graduate of Purdue University. Ihave been a board member ofthe local Earter Seal Sanely and United Cerebral Palsy Airociauon. I am president of our local chapter ol the Nstionai Spinal Cord Injury Foundation. I have worked ar an asistan1 program coordinator of summer activities lor young add* with ce~ rebral palsy Presently, i am employed as program coordi- nator of the Allen County Socaety for Cnppled Children and Adults. I am involved in community pubiic relations I Rnhord und Gluna S~irli.' ! u,orhuso comnpiiterj~rosmn~#?~e~s,,d for the agency and Iam creating an arcerr guide to Fort wayno. my iufe work in medirol records I am dsiabled by irmbrai My big desire ir to meet people and to talk to clubs, mrsv My ",re user. cane " conventions, schools, etc. i want to meet children and senior cieenr. I want to erase the fear ionorance, and Columbia did not have any lund of special education, even though the iocai school officials told my parentr that they had to educate me. After my high rchml graduation. my ~ ~ . . folks returned to Columb~awhere they letf it would to want to reach parents of disabled ch'ldren. Iwant to reach be caner for them ta hel~~ me net- back and forth the politicians and architectr. I want disabled cihranr to be University included in ail arpectr oi iuture planning. Istarted to anend the University of Misou6 iong before i still find it exciting to discover new people to corn- the campus war made acceaibie. When i &st applied to vocational rehabilitation for help in geMng my education, they fumed me down fiat (aswe all know, CP's can't soto college or get a lob1 After I had attended for three aemes- terr and received good grader. I again applied ta rehab. This time they agreed to pay the hiition. However when it came to hndlng employmsni hey were no help at all. Like many other disabled. Iwas hoping to get into a Beld where Imight help others with the rame typeraiproblemr. Computer Programmer Becauie of mv dlrabilihi. school officials would not aiiow me to major in special education, vocational rehabiiwon, by Richard Snell or social work. Since they were not abie to offer iugger- tions a5 to an" other area m which I mioh,- have done better. Idecided to majoi in prychology iwar hoping that I am disabled by cereb~alpalsy ["a C.E"l. i am able to with a psychology background Icould still hnd a iob work- walk, have fair use of my hands, though I dUnmd hhip in ing with the disabled. I! not a position in psyiychoiagical cumng food and the like and Ihave a moderately severe research seemed lbko a posibiliv Therefore, Iobfained an My wife vies a cane as the result o! a A.B. and MS. in psychology birth injwy We are both cunently employed -I am a The degree did not lead to a job. Luclaiy, I had taken computer programmer !or the University of Missouti and some stahsha along the wry and one of my advlsers had my wife works in Medical Records at Mid-Mimuti Mentai suggested that I might consider computer progmming. Heaiih center Sa I took revrral courses while warkin= for mu deoree Although I war bom m Columbia. I received made school and high who01 education in Kansas C~tyat R.J. DeLano Schooi for HandicappedChildren. Back in 1941, 14 mutine. I also twk one or two courrer each remehr to Y~llowiton~.the Black Hills. My wife dtiver and on a nice keep active. I did not try for a doctorate in psychology weekend we are seldom home, always gadding about one because lhe drprrment did not think I could handie the place or another internship and I did not like animal prychoiagy l7me not spent in have1 is usually spent for 'The In 1965 1 lound a lob ar a programmer hatnee at the Cause" (as my lvlfe calls it]. Iam a member of the Gover- Univeniw of Mirrauti Medical Center The man I warked noir Committee for the Employment of the Handicapwd. under also had a degree in py~hoiogyand he iwk me Last January I helped organlre an effon to get the CLQ under his wing. After two years my rupeMjar leit and Council to approve accersibie buses for our c,*, a matter shortly afkenvards I was told that the grant money had run that has been agreed to in ptincipie but we have yet to see out and that Iwouid no longer have a job. the resulu On the whole. Columbia is a gwd place fa livs It war back to beating the bushes. However. this time I if you are disabled. gat the bonus of my life. I had taken one bip unfh the Addr-: 3500 Woodland Dnve. Columbia. Mirroun Handuca~~HarkanrClub earlsen and when Mn. &om. 65201. 1'. n. it rn..,:, 1 .- "..! <:: h .,k by Tony Goucher Iwar bom in 1955 inh.Oklahama. !am the vounaer. .. of 'v~dKmrcurntuLvrrr ildl."c.<. >.lh... i*n ,in., I .I :l.lr..r:r% I !> ,ii n;.d rrvhn . n ..I,:.. 'I.. rr , ,a. "..",d wc. ,, a,<<.,rv, I,.,I ...: ., .,*.: L,- I I',,', -, months, this arrangement changed and the job in roaoi- a full-time family again. ogy became a iull-time position. A hiend. a remi~retiredrchaal teacher, war my home- In 1970, after worlang fulltime for about a year and a bound teacher through high school. She came two haun. half. Glotia and I were mamied. Our parens did not be- three days a week. This war a very nice anangement for aeue that we really g,, through with it, but bath ofus, as we cauid change days or times if one of ur they redmed we were retiour, they came amund and now wanted to go mmewhore or do something elre. everything is fine - though it twk a while. Igraduated on the honoi roll, and recelved applause at By the end of the rummeS a position opened up with commencement. I had the nu and a temperature of 102 degrees the day of CommencemenL but Iwar determhed to attend. Iwas the standard aoe of 18 when 1 ~raduated. After graduation, I b~~~ntaking c0"erpondence tmining program that leaches severely disabled people Lo cowrer fmm the local univeLJt*. A goad hiend. who used program. It has been rewarding and even though I could to teach in the unlv~nitvand is now a hioh rchml ruoer not iu~n~~my onginat ofounse~ing disabled it intendent comes to thehouse to give me-the final has been a way of reaching out. nations. I am centeting my education in the burinerr Beid Advancement in computer technology has nwmade it and I am also interested in the cam~uterfield. Iam ceitain possible to enter piwgams on a wp-terlike keyhard that someday I'll earn a degree. that is linked directly to the computer, eliminating the I am in a wheelchair and have rather poor rpeech. My cumbersome cardhandlina and kewunchino. mewriter.. ir set down in a well with the Leu, level with mv (;I< n<4, .l I .a<@ nv. 8, ,ran..r or r.0 I an: a .>*I hand. Iwalk with a walker some for exercise and dro tide ,*.,> h',!"~,i.t< I,,L,. .3, :..,t..,<>, <.\,,,..r.s d't", a threewhoel bike. We live on a farm ro I have an elehic ikc.n s. .'% ,\~c.,raoda ra'.l~in~~I~o~uitiirmji., it wheelchair Iuse outdoon. Iam able to maw our w~aae took six months of hard looking to find a place that could lawn with a nding garden tractor. For ,made the house, be adapted to my needs - few or nostep and space iora I usan ahtit chair which I push around with my iey. walk~lnrhowei I have much trouble feeding myreif and I -not dra We have taken some nice vacations to Myrtle Beach, myself. 1979,WOLUME m11 15 me and liked my work. Then word got aaund and I built up a nice businesr. My wife ,oak an intereet and could run ~ ~~~ , . the machiney as well as myselt work with an air wrench. i'm able m dove a car some out But my parents were old with nobody $0 care for them I here in the wturer and I hated tho ththwhi of them li . . then I iolnd it wasn.t to find work even though Iwor ambitiour and Iwar not iu.ry First. I soid vacuum dean- CETA Specialist en. Then I war a~~~enticed. . as a camenter Iwent to nisht school to leam to read plans and estimating. by George R. Thompson I met my wife, Bngld. at an inrh dance. She comes from Co Kern,. noi far hom the Lakes of Wlmeu We bouaht a lltile house in Needham. It war old and in need of repair I have been worlung for the Cicy of Long Beach ior nuo but I felt Imuld fix it up myself yean now and I like It vey much Istarted as an adminir~ I had my injuy before I ever had an opparmw to trative assistant at a local neiohborhoad center I wrote move into the house. In November 1957. when 1 was proposals Qing to get funds lor dimbled programs for the womng on a new schwl and preparing a Boor far can^ center put out a monthly newslettar and did public rela- crete, the whole section callawd thrwting huge beams of tions. Aiter six months. Iwar kicked up to a good job with lumbe~steel reinforcing mdr. and men to the ground. the ciiy's Human Resources Depamnent in charge of the Iwoke up in a hospital a few days later Ilearned that my CETA Employment Unit We put on job fain for the dy'i spinal card was badly damaged plus a broken hip and a one tholliand CETA .oallicioantr . at the cime af their eioh~ fractured umrt and leg. After rweral months in hospital. I teen~monthtraining penodr. We ahdo public re1atianr work for the depament I have two girl3 helping me out. I bought a "an equipped with a ti* so now I can get around unthaut any help. I" Febnray of ihir year 1 war building companies would need raws and took ground mamed to a girl who ir aim cerebml paltied We rent a and shamened so Iborrowed the money to buy the ma- huohedmom house in Long Bath and we are making if chinem and fixed m. wrtof. mu basement as a workshoo. 1 Whout too much muble. We have a lime help with a few drove around to a few conrmrctian companier with my things but mody we manage onour own. We hope to buy buiinerr car& Some companies would not hire me owing a two-bedroom mobile home m the near future. to my disability. raying that 1, would take too much of thek I am on me brig Beach Comminee for Employment d time to put the workin my car B"ttw0 companies did hire the Handicapped. the California Governois Committee for Employment of Uie Handcapped, and 6sPr=~dedeVs Comminee lor Employment of the Handicap~d. The City of Long Beach is involved in hinng both the phyiically disabled and the developmentdy diabied. Our deoartment inhoduced a new idea that sumrlssed the cilv with its success. We hired eight devoiopmentJly disabled persons to clean the park and public areas. Their work is so much betiei than that of normal worker, that &er thar CETA time is up. they will be gut on the rewlar payroll. I hope my expenencei will help someone elre. Iwould like to hear hom other readerr. Our addrra is 3440 East 6151 Sheet. Long Beach. Califomla 90805 REMILTATION Gm Attendant Care Attendant care theohvrical arristance of another hu ond Emenenes in lndewndent Livina bv Gini Laud.. . Anendant care ir more crucial than housing. Acceslble rionaries, menally reiarded, and other physically disabled. homing without anendant care lr useless to severely dir In he following amciei, readem disc- more facets of abled persons. the attendant ere problem, a problem that d nwer be Attendant care is rigoificantly cheaper than wastefully solved until there is a national care system. expensive custodial care in nurring homer or other The culrent word for "attendant care" is "penonal care inihtuoani. By whatever name, there must be an availabie. Eventually. the obuiaus economy of iunding anendants dignibing national system of qualily care with adequate at home instead of paying for care in inrtihltions will result financial support The National Spinal Cord Injury Foun~ in state and federal Irgirlation of anendant care. But there damn has starled to serve as o coordinating paint for the will be dan~erthat it unil be an ova-omanned svrfem. The ~athedn~.and dissemination of information and recam- hing, haining, paying. and finng of attendan* must re mendations if you would like to be a paifoftheplanning, main the prerogative of the disabled indiddual. would like to share your ideas about whd a personal care And, here will always be the problem of findingthe nght rvrtem rhoull indude and havl it should be deu~lowd. attendant. in the hoenly years of the Toomeyj Gmene and the Rehoblfioflon Gaene, many ingenious rolutionsto the problems of anendant care have been recounted by its dsabled readerr Many more are included m the baak, Housing and Home services for the Disabled. Guidellner How to Hire an Attendant by John A. McWethy The telephonemgagain. "Iread yourad foranatbendant in tho newrpape~" the caller raid. "Will you tell me more about your opening? His call was the hoentith w had received that day in response to a classified ad in the "Little Trib." the bi~ weekly serving our town. Cfarrihedr have proven by all odds the most succmhrl way my wife and I have found to obtain anendank. These atendan*. 15 of them over seven yew were a major factor enabling me to return to my old past as managing editor of the midwest edition of the Wall Street Jaumol. Obtainhng good attendank and keeping them is one oftha most difficultprobiems we have encountered and solved since my mluv At the time of my accident f was dduing to Coiumbia. John MrUcrhy iC5,. ,".,lei n,",,og:~.i ci>ror"f the nl:diiest Mo., to interview student5 for jobs on our news itaft f edillon of tile Woli Street Joumoi has ietlnd m AMnn 'Here. dozed at the wheel and the car edged off the highway, too. ,he clammed ad wo* bijtfor as " turned over and corkscrewed down the median. My spinal 1479iUOLUMEXXII 17 cord was crushed at the fiHh venebrae leaving me. at 59, a not find a student livlna near us and ndanend~mmllece- - near ouadnoleoic.~. , - Nine months in the Rehabilitation Instituteof my office? We figured associating with a newspaper editor Chicago taught me how to live in a wheelchair, ir, wilh and time in the bury newsroom of a large preiti~ 60"s oaoer mioht amad some who awour ad. sticks. eat with handqiintr and the perils of pr~iurerares. d~ ~. . - But the doctors nums and theraolst- didn't 41ve me a Comparing the ad comer next You can phone your formula for obtaining atfendants local paper and the ad raker wU prepare your ad bur u I.. ''I ,Pi. I,..,,.: IC., 3 !c,. far collrge;hlbnt or '"tt~mwith aponrnr, as hospital or&vly 246 8652 Note the hrst lbne is centered and in the paper war two years. Hospaals ray they do well lo keep thr type of in type larger than the body of the ad. The exha cost of employee nx monthr. this line war well repad in the attention it got our ad. We As a newspaper editor, I had some obvious advantages figured the reference to working for a newspaper dtor in using riarrificds. I knew the manager of my paper's might appeal to a number of possible candidates for the clarrified adverhslng depament well. He gladly coached .~~,oh The ward "ideai" ir a auick wau oi lntroducino other me when Idrafled mv iniw ad and aave me 611s on where attractions. Your effortr in dmftlng the ad will be severely diluted if you don't enercsse great care in placing it We called the -. - four iota1 papers serving the area from which we hoped to we deemed the best prorpectr. find just the tight person lo, the job. kchof them told us Here, in detail. r how we go about using ciorsifiedr - where their paper circulates and the cost of the ad. There an approach that could well be used. at least in paR by are adueldrinq. aqencles . that will dace~ vour~ ad but we otheo requiting aftendanb. have been to do it help. Fint we sit do- and make a list of all the factors we Handling replies is the next essential in makjng a clas- think quailly meone for the job. A! we gained expeti- sified work for you. We use o seciewy'r notebook to keep ence our l* changed and grew longer There points add sack of the calls. When a call comer. my wife or lark n up to a of what we think makes an ideal attendant. few fundamental questions aimed at identifying the beher ~~~~ndabiityr at the top OI the list. TKI implies living prospects and eliminating those pmr1y qualified. we put within walkins distance of ur or hamnq an automobile in the same questlonr to each caller They include name, address, age, phone, experience and education. If they annear oood orasneck. we tell them mare about the iob . . in the questioning. Because Ican't take nates rapidly. my traffic to my office hi downtown Chicam we sought a wife maker them on each perron we inteMew We get the careful, skilled dliwr The mte of pay Is another factor We penon we are interviewing to pick up where we leh offin the telephone conversation. We ioak for hl inteietr. find have to ..oau riishflv-. more than the wase. hmitals~ pay~~ aides and orderlies. out about his previoui jobs, learn why he wank the job Next, we made anotherbt oi the amactions of the port- and obrellie carefully his personaiiQ. A diW or sioppy tion We 8g"red we ","Id hlm what might be a dis- person won't do a good job for us, we have found. Ask to advantage into a "plus" point We needed an anendant see his dnver's limnre. In niinoir, speeding and other dnv- about two hours in the morning to get me drerred and ing lnolationr appear on the license Be sure to get refer ready for work and then dnvr me into the city Then Ihad encer: we ark lor three. Then we phone each of them We no need for him until late anemoon when I returned home Ey to act quickly, wthin a weekof the publication of our ad and had to be taken hom our car Into the house. So why to avoid losing promising poaibilitier. IS REHABLITAnON GAZETIF Ireached 65 about a year ago and we retired to Anzana. teli them this at the oubet so we don't get into pmbiems Our needs are not the same as when Iwar working and in later a different part of the country Yet we have found here. 1 hy to go shopping with them (althoughwhen I go. we too. that the classified ad works best for us. spend tw much1 so they can see the brands and types of things i buy. 1 usually go over the change with them so they see that Iam concerned about what is spent and how much I should get back. I tell them that likes things done differently annm no exception. I hy veom 040, and then in the WIII sn& ~aumaiaj reporter 02 to have someone who is familiar with my routine show editor f hoda smoll handm thepapeihdrnrnrmcrvccesrfmm a them around and how to do thine5 for me and around the c!mularcon 0!3s.000 uho, f stoned there m 1937 to I5 m,~l,~n when 1 reined in Onobei 1477 n 65 we haue been happliy mamed42yeoa Ouroldert,~ bankerin ivervYO* ovrdough~ ierlhe rnotheroflhreeandllvingin Kolommaoond ouryounyeri an editor o! US News & Wodd Repon in Washington. Address: Sun 85373 17834 Covntiy Cfub Dnue Crtv, Amono *. geationi about seasonings etc. The burning issue with anendantF is, of courro, money I've been ripped off by an attendant unth whom Ihad no altercation. Many steal. small things and iiiUe by iinie. TheH ranges hom clothes, jeweini. load. pots and pans, small Living with an Attendant knick~knacks,etc. Mast are untidy and iet the food rot in your reinserator Mart sre wa.,efui and will use your Ear by Nita Weil uruaiiy have to leave because of other famiiy commif- I alwavs hy to t-sat an anendant as I would want to be menis. like children, husbands or sometimes even far treated. when you live ar dorely unth someone as with an health remnr. The answer lies in what Mar-achuettr did anendant, you rhould have a few things in common and - Federal rubiididng of the severely disabled who are you should feel free about Lalhin~- to each other employed. We desperately need fhrr program so that the Ihave mmt fuck in advemnng in our Houston Chronicle statatus of attendant wU be elevated from the menial and and the Greensheet papei I've ahhad some goad re- so that salaries will make it a derirable profession Now rnonres horn the Mexican ~aoer.. . El Soi Half or more of you have to pursue every avenue to find help. I've gone the people that w~iand apee to came out to meet you through churches (with no luck1 I've aiten ganen help through woid of mouth and nothing mush through the empioyment agencies The numing nglsfen often have . . "ritte~"who do iuit that. I've onlv had an LVN once hom sometimes advellise in small towns and am now actively working to hire a young iady from Chile. Her distant cousin has been working as an attendant for a hiend d mine for three yean We'U have a lot of red tape and legdl work to go through but perhaps it will be wanh a. In the interview. I iook lor "mi&:' Lann-. forcehi- nesr. siownesr. aftention to what I'm saying, do they really listen. do they ad as if they were infererkd, eh. i can urually teli how intelligent they are by my first contact on . . . . the phone. Iark them about their infeiets, hobbier. what also the dmg thing with students I've had some hairy they like to do with their leisure time. I ash if they ike to episodes with anendants who have had nelvous break- cook and if they ray "no." I ark them il they can cook I downs and I can teu "0" it's no oicnic. ask if they like to retire eady or are they night owli and if my awaking them dumg the night b going to cause pmb- lems (like being unable to go back to sleep). Ifell them if , . . there li a problem, or they misunderstand anything Ihave f found someone eke. If you stay on goad ferns, they are raid, to pieaie come to me directly so we can diauss it pretty agreeable about this. If not, and depending on what together and reach an undeirbnding. Idon't bkepeopio to rerourcer you might have, I wUl romotimor call an oid hold things in and then have them blow up over nothing. i attendant to cmeand pinch-bit ""61 sve found wrmeane IP79WOLUME XXII 19 Or even split it up between attendank undl i find the right ali duties to be pekrmed, induding household and per person. On ieveml occasbnr, the attendant left suddenly sonal cam. and here it's easy to panic. It's always good to keep rome- Although a prospective ahendant may refuse to answer. one as an ace 1" the hole if at sii pm~tble. do not hesitate to ark about any use of dm*, including I now have a Mexican lady who b veiy nice and har mafiiuana and alcohol. If vou hire someone uslns. drusi. . been with me far seven months. In the lktBveorsixyem. be prepared to expect problems, io. returning home rue had people rtay with me hom two wsekr to a year or "stoned (an especiai~ynsky situation far me time I re- more. When Icame to Houston. Ihad an attendant who quire respiratory aid - racking bed or nisi paslave prer~ stayed with me 14% yeam You just don't hnd people like sure - because of palbl. that any more. You're lucky when they rtay skmonthr to a In order not to be responsible lor long disiance phone yeat cailr, it is best to have a pnvate phone and billing in the name of the attendant If an attendant is ieaeng yaur employ under stained nee wd! a DI-r of vbluntpentpe m rhe IM~UU II RR~O~II~ circumstances. make callain you obtain your hourhold Itoilon ond Rereazh 11333 Mounund Auenvo Howon, Temr 77030) She hos been dhbied by mnimlory ploilo rinre 1952 keys Do not assume the keys are in a designated plsce, If and use. chew& ot "i~htond op%umobekd""ng ih. do9 missing, call the police oi have the lock changed on your Her twins. Shelley andBill, uere bom shoitly before the ond of doori immediately, polio. She fiver ubh on aendant in on opamrnl near the Texor It is preferable to assume the role of an employer as Medjmf Cenhr opposed to that oi a good or close mend. Rarely, do such reiahonrhipr endure within the context of employment. Acrume conhol of your own lifeiyle and be reipoponrihle for your decision making. If possible. handle your own checkmg account and financial matters. Da not leave all household duties and penonal care to the attendant unth~ out direction and explanation Adhering to a wheduie In a Community Setting is often helpful and many omes necemy. I1 problems should occur discuss them together ar %on ar possible. by Carole A. Panons Learn to trust and reipepect one another's >n&iduaIity. Address: Carole Ann Panam, 201 South Park SheeL Aot 20. Madiron. Wlroniin 53715. . ~ my parank most of my life. excluding collage yea-, the change to my awn apament in a community settingwar charactenzed by overwhelming feelings of exclfsment. en- thusiasm. amew, and apprehension. The major podon of IRS Deductions for Attendants these feel2,, reapmared thrwgh the monthr as vanour attendant situations arose. by Shirley Watson -. The following letter hmthe Internal Revenue Sedce pitaliration, my attendants maintarned their regular whed- stater tho& decision that my deductions for atdde reMcei ule of assisting me, but at the hospital. are allowable as medical expen-. This was achieved after The following ruggeitianr are bared on expenencer oc~ months of letten and ohone cailr bu both murell and cuming wlth difiennf attendants dunng this lour-month Washinnon's Congwman Don Bonker penod as well as the last three months of interviewing. I deduct wager-for full-time and weekend help. plus Within the context of limited attendant interviewing (as one-hail ofmocener.. red., andutilities. The Bmtvear I filed compared to thore of you who have had many yea- d Ulere ciaimr, I was questioned as fo the amount; however. expenencel, the knowledge I have acquired has been of now when Ifile I staple a copy of the letter to my return exweme benem to me. form. Since doing this. I have had no more problems with During the inta,$ewing pIOCess. i most heipiui my drimr. to utilire 71 comprehenrive questionnaire. and data form. hm: Internal Revenue SeMce. Warhington. Letter Always obtain and check references to prevent fuhlm D.C. 20224. Phone contact Peter J. Frederick Phone problemr such as incompatibility with wnonal and eating number: 12021 9643626.Date: 25 Apd 1975. In reply habits. etc. refor to: T:I:I:l:lTo: Mr. Shirley J. Watson, Route 1, Box TO the prospective anendant be vey, vey explicit about 182. Toledo, Washington 98591. 20 REHABVliATlON Gm "lMt k In reply to your lelten of March 24. and Manh 31. ''Sdlon 1.213~llelfliilii01 the lnmme Tax Rqjuiationr pm- 1975, requertinqa ~Vnyconremingfhe deduducnbIhwolamounti "der, in pact hat Paymonk for nwring mMrns iinrluding 2.a, , . '.,I n.. .:I< nvrrei boardwhere pud byth=BlpawriarzpaymenBfnmed- ;-*, ?>." , .. ,I., ..,n. t.,,"L,. ~,,.,,C,~ :+c 8. +><,'*,, ,<.# o..3nq0 F..-.%.,,.:~* nr , .,., ..nC I I.,.. r-.,..I.... "We concl"de that UIemMCernrovlded bvvour anendantar. , r...,... .,", >, rrr .. < .,I. .,, <.","~<,'.,m,As.c. ,,,". "!,.., .l~"~~~~,"~~...~,.,",,,~.,., ",, , .,,,., , ,.^ ' I, $*,...I 7m-, .,I .o,'",,y r .*u r,,.<,nnrr.,r.~o' A . . :...., v.., . ....,..r>* ,I'.',., m cx . , ,: . I8 . I.. . .,. u1.r \.L , ,,.."',,11, .. ,.\ .. ^. ..<, .I.. I.,. I I, , %.. , r .L *b ... .o.rrr..n.rl.i,r. 11.,. .,.,I. ...,, .,<,".,,% ,>?~, .ll,,:r,,>.,,,:wi.~ .,-., . ', I >I, : *. 1.1 111.1 ,( .-n . .I, . . : n 1 I?.' .: ,' "If you did n4riium a med#calupenr deduchon on your I"? K -< .I. . . ! .," , , Federal income hXreturn lor the expense 4th rmct Lowhich "1" return far her iennce*, you proud. rwm and brnrd for .~V_I. I_IJ ..-. -1 %I,. I. .~,,,.",- :, .. .,#,., your &end.", and paV her a slaw A conridenbi~PONO" 01 ,,, I, I.,,,. , .. '"...'., .LC.= J~,L',,,, <.! ... ?', ... your rialy ii umd for thrr pumme. You ark whether amounk 'I. . 1. .i..., I...... ' I.. I, .,,:. you pay for the olyoura*nda"tared.duaibisarmedl- thir ,"ling, b ihe internal Revenue omre where you file your C" esxpnnrer rcfumr. Sincareiy yon, Kay M Hargen. Chief, Individual "The dedudlbm 01 msdcai svnwris wemod by =don income TaxBranch" 213 ~fth~i~t~~al~wenuecode of 19% Sacam213aUowh* a dedvcnon fh. amount not romp~nratrdfor by insurance or othewim. bu whkh the am~udofths m~empimid dutins tha Shirley Watpon [CS-6 quod dnre 19551 has o maaer'sdegeg in hxable yea;fO.thp medrai rare of the taxpayer h.rpouse, and ~d~umo,~"d is 0 hlqhxhooftmcher she liw in on ownmmr de..nden& excaedr thmo Doaenr of the ~ldlllit~dem income. and "rer hlghschaafrnidentr erdkndonrr. "1 uouid likelo how The im'midfcal care' k de8nudioinclude amounbpaidforihe my own home ba there ore no auaiiabie IOUinhrd homing diagnarir, sure, mitigation, beamon,, or prevention of di~are,or im"sl0r~i"sfe dtrnblni PePSOM." farule puwmof afferbny any rrmcl"ra of the body Attendant Care Programs in California and Massachusetts Not0 bene! The tulo stater with the most effedve and comprehensive attendant care prorovinonr have as the diL recto= of his depaments of nhablltatim indiMduak who are severely &sabled themreiver Edward V. Robeitr. Director. California Depamnent of Rehabilitation, has been a respiratoly polio quad since 1953 when he urar in his early teens. Elmer C Ballels. Cornmissloner of the Masrachuselfs Rehabilitation Commkion. has been a C4- 5 quad ance 1960 when he was in college. usually greater than the person's income. most severely disabled oersonr couid not afford b be emdoved.. . AB 922 removed this disincentive hmthe statutes and opened C~LlFomkAB 922, which war inboducad by Fmnh the door to smployment toi many ~erronrwho previously Vicencia. a Democrat fmm bell no we^ became effeduo could not afford b ~o to work. January 1978. The iegiilation aliows severely disabled To open up availabiiiy of benefits under AB 922 wen individualr who need 20 hours or more per week of home- mare, AB 2890 war introduced by Mr Vicencia. it war makerlchore services. to work and stiU receive sate asis nassed bu the lesisiature and rimed bv Govemar Brown I~~:~,.,, ,,,. r1,.,.~7.,.; .,, P..,, c'. ,,..".,,, ?,., ,,, , , :% r~..,vnh,..cl x, sn.3 vxm.~:..%I'&., 1.r .I,,! ,,<~I,,., rw, 0 ,. s.,~,ce, r., V#$Z'> ?< ,,.~.,I<,, ,,&C.m~ .<,m.. .:<<<.<,,,,I ,<.,, ~:;.W:n . ,%...l,,A~.,,,>rA ,,.P,,.,~s 4 "% "" "> *'I I,, p,, ...<,.'! ',I. >,,,,. ..m:., ,>I ,,.* cur ,,~V>,~,~,,,k."r .,re.s..n,,., , ,, .<,~k~ ,>,>,I1 1.. 10.lce L. Prior to AE 922. a drabled pemnwar considered "eli Sacramento. California 95814. , s- i setE Rehabiltation Commission. The Commonwealth of Mairachurem. StaUer Ofice Building, 20 Providence Sheet. Boston. Mauachusetts 02116. Berkeley's Residence Program by Robert A. Halliday e, --~ * Ten years ago, a group of farsighted diiabled *dents cre~ ated their own program at the Univeniy of California at Berkeley. Thew first studen* converted a unng of the Uni- versity student infirmani into livlng quarten, and ham that bare set up a system of suppmrsrvices whkh they admin- istered themrelve. Aiu~ Mnirarhuielt~KeloOililalion Comnilshni Penonal Care Today, the Physically Disbled Shldentr' Program ?once progrnm phnnen 11 to rl Tmm Folev. PC8 panlnpanl: (PD~p) that rpint and giver disabled peoplethe Jernld Struemi. Serreialy o1Hurn.n Seruicer:John Nelson. PCA ponjpont: Elmer Borreir. Commirsiooer of RehobiPtalion. nec-ry lo take Of Own livesThe mrdence program is now located b one of the university's main studact houring The buildings are com~ plefely accessible, but have not been deigned "just for MSACHUSEm. In 1978 the MarrachusemRehabilitation wheelchairs." Commirrlon implemented a fully rtate~lundedPenond The students In the rhdence prwarn determine their Care Assistance Pmgram for employed severely disabled individual goals and have avafiable to them one of the adults to subsidk a"endant care costs. The program re- most comprehensive ryrtemr oi support sewices in tho ducer the need for a state-funded dependency iuppon counOy A staff member b on duty at aU timer and b pramam and provider an incentive to work. available to help nhldents min attendants in daily routines. Eligible recipients are those eIh a severely physical db- and to advise students in anendant hmg and manage^ ability who require personal care h~rbtanceon a daily menL The staff member also hlmr people a! night helps basis. The services usually consist of famllar eisentiai with meal mys, and performs other necessw daiiy chores everyday activities such as washing, toiieting, dressmy. eat- not normally performed by the student's aWndan6. Most ing, and trandemng to and from bed. impomnt, the ibff helps students devlrp the most work- The disabled indrvldual. must be curcent or formar recib able system for managing d&iy concern in such a way as pient. of relvicer from the Mawchuetts RehabiiLtation to minimk therfudenf's need for attendant sewices wher- Commission. who are cumnfly employed or waiting lob ever possible. At the end of the school year, most *dents placement and who are not cummtiy eligible for personal move ,"to their own apamentr. havlllg dewloped the care asiastant sewices under erimng Tlile m pragrams, skilir necessary to conhol their daily live. which have built-in Snancid disincentives which do not Applications and further information are available hom permit an individual to reek employment the Caord8nator Physically Disabled Students' Residence Padcipant-directedPersonal Care Asnitance IPCAI en^ Program, 103 Spml Hall. Universiy of Caiifomia at ables the severely disabled indivldud to regain conhi of Berkeley, Berkeley. California 94720. hislhrr personal life and maintain fullnme employment. The PCA wnon ir hired and iuoetvired bu the disabled ,,A , , I A r .n,*,.,.r r.:,. , ,, ,,. , . ,. ,,, . , i , , Substiture Atrendant Service ie- ?< 3 > .. temperature. balhing procedure, oral hygiene, bowel evacuation, and wheelchair maintenance. A chapter is de~ voted to firs aid - restoring breathing, conhol of bleed- ing, drug overdore, bums, seirures, smeyency evacua~ tion, etc. There is also a chapter an sex Copier are avaiiable at $5 each horn Rehabilitation SeMce. Southwen state University, Manhail. Minnesota 56758 A similar booklet AItendonr Core Manual, ir available a campur-wide accwibaity dnue. ~hb experience enriched the class. Two evenings were devoted student. who was a DVR counselor. -oained subitanhllv. to student reportr of their experience unth the dirab1.d greater insight into his client's nee& and problcmr. individual with whom they were working on Independent The idea for the oune originated in the inueared in- living needs. This activity, especially, gave the class expe- terest in expanded rehabilitation services reflected h rkence a dynamic and reaiisilc integration of independent recent national legislation and erpec!aiiy that almed at in^ living needs and concrete action required to meet them. dependent living relvicer. The 1973 Rehabilitation Act or Presentations about real people were gven by nurses, its amendmenh, epeciaUy 1978 and PL 9&142 refled workshop supelvison, facility directon, DVR Counselon, thi changing intent. Gini Laurie's HouoingondHomeSer and by students who had dirabilitier. uicesjor the Dirabfed I1977 Hwrr & Row I war an ex- Among the indud"& who became a "class project" tiemely useiul tent it proved to be a muice of uplo~daie waz a 19-year old man who had a C~6lwei Injury to his data wiih creative ideas and discussion material, sncludng back and who was in a horpitd and then a nur5%nghome informaaon on rignpmb, pou-ibie kitchens, attendant-, because of phys8cal problemr, including decubiti and high housing projects, mobile homes, international programs, blood piersure. Two student% one a nu- andthe omera resources for oiearure, and more. full-lime mident in a wheelchair met with him. They found The course pamcipants met eight eueniny, and included him depressed and anmy. with no peen to relate to and pierentatiann by tho co~inrtrucforsand invited speakers. coniiderable reludnce on the staffs part to recognize hlms, and project preentations by the 25 rhidenW. Among his anoer and deorwion as ledtimate. understandable. or the topics covered were architecivral standards and pro^ Icrr?,:".' II* *n~q.,,.. ,r.n ?,.,,..,p,,.,I*.... <.,,,.I, gram accerribiiiiy state and national rehabilitation legs- 1,1,r, r,, ~IA""#!,..#,. ,C,,,,!.j yd, i r I,"!<, ,,eJ<:. lation, iegai impiicahons of la- regard~ngrights oi the r.!,,., 1..11:1 n.,m>c I.. .rnrilm.. rnrk nnl ..d..,.. r handicapped. independent living programs for both the At last repon he had found a relationrhlp wiih a woman developmenially and "on-developmentaUy handcappod. Mend, something he had previouriy been uncemin about lranrpartatian ierourcer and needs. and specific leueir oi expe"encing. criteria and standar& for uldividualr to meet for increased In another proiect a 72~yearoid woman wiih rheum* independence within programs. toid arthritis who war lving done I" a large houre. war The invited rerource permns included the rerearch helped by a student in the ciasr to develop a pian for architect who developed the liiinair State Architecturai increased independence. The plan included insblling a Accer Standards, the executive assistant director of the railing at her backsteps, ieananging cupboard areas in her lllinoir Division of Vocational Rehabatation, the coordina- kitchen for greater access, and assisting in her budgeting. tor of a cknt advocacy program, the director of a uann~ Social actiuitier were arranged through a renior ciblenr tional livlny faciiityior the deveiopmentaily disabled. and a group and plans were initiated for adapting three unused on legal concerns of the rehabilitation counselor rooms in her home for rental income. An accerrible bur was demonsnated to the darr, which More could be raid about the other rrroiects and the learning which occunwhen working in dPpthwith a disab~ led individual regarding his or her specificneedr in order to become independent The -rice of the rehabiiiiaban process, after all, is the individualization of se~vicesand planning to fit one unique indivlduai'r needs in aii pharer of life. At this ooint. the imwrtant thino is that bu includino iiilnois DVR, while ihe other hai iaught rehabilil&on disabled individudn in the learning pro=- the rehabilL counseling for hveive yean and has extensive applied ex itation educational expetience war made more realistic. perience working unih dirabied individuals. applied. and aiiw By sharing their lives in depth these The iint meeting of the cia= required that the students pemns with disabilities were able to change aetuder and ''acquire" a dirabOihi ior the evening and pair up to broaden the perspective of the class members. comoleta several task bu ooim out on camovr or in the return to dass and the events described, tiur method was dearlya ueful tool for insight - even if superficial The rtudenh in the class were either oroferrionair work^ with in the fieid. education, nursing, state agency, or private rehabilitation faclliiy or full-time rludenis in rehabilktahon caunreiing. Their interest and comm~tmantwere exceptionally high and their active participation and ihanng ham their work 24 Confusing Definitions of Independence by Andrea Cappaeri Thore is a tendency in the field of couni~lingdisabled each time I change locations. the ability to move myreif people that womes me and which Iwould iike to dlurs, across a room still does not really hee me from the need to People trained to work lvlth and counsel disabled peopie, have another person amund to help do thir. expend a lot of energy pmising independence and the 1 also had a feeiing, I told heb that I depended upon abilihi of the,, clients to achieve thir goal. The incentive to many machines for my ruMua1 and did not wolcome more become independent is often one of the major categotie, time spent in wow over another machine, such ar an on which a perron'r ruccerr or faiiuie vevaiuated. Despite elecinc chair, breaking down or needing repaim. the almost unanimous consent that independence is a de- I added that, after thinlong over the altematiues. I had iimhle quality people mmreiy anempt to define just what decided that. at least for now. I prefer to derrend mon a they mean by it. perron pushing me mther than an eiectnc chair Bv orofersianalr and non-oioiessiondr &. theword is "Bat don't you want to be independent? the woman Ill'.." 5'.I..." "11, thiouqh a recent emenence in mv awn life. I refer to this atdtude as a hao because li refuses~ ~ last year I (a qu.idnpieg. using a manual wheelchairi to acknowledge my deosxon ar a independenr act. rpent a season worlung one day a week at the Center hr There war no way that I. as the client could have an- Indeliendent Livins, a local center lor disabled citaem. I swered that auertion lairiv or rearonablv spent my time there helping to re! up a community re Sadly, i was not sumcised to sei th~iw. . of rerwnse source file. from bained roclal workers. However. Iwar sulpnred to One day, one of the people Iwar working unth asked hear this amtude corning imm a peer it wornad me to me why Idid not have an elecrnc wheelcha~r, think that disabled people are allomng tho theon- 01 When she asked me this question I rearred that Iwar "proferrionalr" to define who they are. one of the few people who spent heat the center who To me, independence is the freedom to sulvey all of Ule used a manual rather than electnc wheelchair available alternatives in a given situation and then urp thir I answered that. in my pamcular situation, an elecmc collected information to make a conrnaus choice. wheelchair reemed to cause more pmhlemi than provide benefits i value the relative light weight of my manual ~ndmCoomen has been o mimt~n,mao .mod mrr 1954 chair when I want to be lhfted up or downnaim and Ivalue the flexibiliy of it when I want to faldlt up and jump into a mend's car, stonng it in the mnk. Besides these factom. because I use a portble rerpimtor that must he reconnected (plugged in. tumed an. eel I979NOUIME XXII I thought oi accupationai therapists s~ndinghour; 11'2 ?'.I I Ihllh*, rr. $:I.,.".. 'nc oppr, '.<.xr,n teaching and creating equipment ro that a wnon with I" ti... ,invnn, rrrvn3 'ir i 6. n'l i; ,I, n r ,I,.>,,,,# uey limited manual dexterity can brush hs teeth and but <,..,.,."[I. .:. *".~,.>, Housing and Home Services 1979 Supplement -. fh. baak on indrptnd.nt iirnng by one 01 the Gmae's editors Toilet reas Wide ammnent- so*, O'ivnh conburmd nk Gini iawie. The book. Howjnr ondHome Seniirerjor the Dk- Bcneke Corn.. Coiumbw, MS 39701. mbied. Guideliner ond henenre h Indowndent Liwm us pubiished by Hwr& Row in 1977 and ir aw~iabiehm the Shower - automatic el=&< for campon or summer homer. publisher at Hilrnor & Roy Medscai DeparbmeL. 2350 Vi-nia OTiando Entam. 1874 Southwest 16th T~nace,Miami. FL Ave., Hagentown. Mawland 21740 lor $20 The 415~p.s~hoak 33145. Shower h.a& - anti~wlddadrm. Srald~Guard.Revere Rod- urb. 30887 Caner St. Solon, OH 44139. Bullding CodelSt.odardr B~~~~-F~~~~i~ meiaw. volume n. ~arte~pamiwed MI emnr k..432 Park Awe. 5. Neu York. W 10016 Free An lfiusimfed Hondbaok /or Bamer Free Debn Washingon setP RUI- and ~~iationr.~y~obd ~mau.AM. and &,bars Allan. Eaner Seal Sociey, 521 Second Ave, WerL SeaUa. WA 89119. $4. Moinamming Hondim~edfndiuiduob: PO* and Remiion Derlgn Standonis Manual Free ham ths auUlar Dr Silar P Bathmom Fotiiiiie: Acmmmcdming the Physicafip Dbbfedand Singh. Chlet hmmDluaiopmant, Buraau of Land and His- Aged Red& 01 desgn sbdy project by U of MiChlga" indulmd tonr site. iiihar Depr of conselvation. 405 E washington st.. design hldenb. D.X. Meek, Owenr~ComingFlbolgias Cow, Springkid, iL 62700 Flberglar Taxer Tolado. OH 43659. Frre. Design Chah for bath or shaver and nvlng reab. %tied mudon in Medr ra,alag ForcaraiaJ rnd n..rSst dirmbuior wntP AAMEO. DesignfoiA-ib$t* By R.J. Sorenron, an architen in pnwb lnc. 1215 5. Hadam. Foret Pa4 IL 60130. m6ce in Minnrapaiir. 233 dmilumg.. 264 paw. MrGraw-HI co., 1221 Avenue at the Ameticai. New Y0.k NY 10020. Penning id= lor~~ei~q wshmom ~~cihner jor the P~YSI- $19.50. miiy Handicapped. Fr~ebrahure and oialog Bobrick Waih~ rmm EqulpmenL inc. 11611 Hari St. Nvith Hollywood. CA Deign lorlndewndent Liihq TheEnuimnment ondPhy"4imtiy 91605. DhnbiedPeopie. By RaymondLifchaandBarbara Wmrlax. 208 REHABILIT&TION GAZmE .. with &nn6ui~,lheytell the stone in data1101 reupnperan&b&. The Whilney Libmni ol Derisn. One &tar PI-. N- Yd.NY Inde~sndomtLlulo~ Terhniaues 10036. V25. Ad~p~eonrond Techniques /or the hbledH0rnem.k. New HandhwkForDer~:S~ec~lyAdo~kdHoudgVAPamphleledition. By MB. Stnbel. RN. 01R. Kpnny Indtute-AbboC 26-13. AP~1978. Free hom Depl afMteranr Bench. Vaiemns North-hm Hmpital. Publicadow Mhcm X29'1. Chicago Aue Adminirhation. Washington. DC 2M20. at 27th St.. Minn~amIs.MN 55407. How lo C-inletio~lorfheDlmbled. By Jan* Randolph Caw Hourehold Hh*. F1.a baoklef on rtorage and Id prepradon 127~pa8epapolback Amavo guldobaok. Pantheon Bmk, produch %v helphrll Send slfhddre~red#10 envelope to 201 E. 5Cth St. New Yd.NY 1W22 $5.95. Rubhaid. Inc.. Hlnh for the Handicapped-RG, 1147 Akmn Rd. C\haolerOH M691. Ideas for Molang Your Home Ac-ible. Compiled by Bpno Gorse 1Wwwpaperback. Handy wide to raurcer 01 swcial PenonnlCam. $11.50 hom Equpmentlor the D~sabl~d.2 krp~ home equlpmeni Accent Swial Publirabans. Box 7W, Bloom- dourn Dr. Pomlade. Blighton BN4 2BB. England. induder de- ington. 11 61701 $6.50. rim, srooming. toilet ads, Mcanonsnre. The Soum Book /or the Disnbied Edited by G. Hale. Com- Elevator prehennve encyclopedaofe~ulpmenrmethdrnndrerourcerin EIDvotor lor rsimyr, or rdmd on U.S.Canada.andUK285wger. 1Wlinadmdnm~AUagpr, aU diJabiIcti-. and all ph- ofllvlns pmdu=tiu=l~and hap~lvPad- platlo,,,, on complex seinvayr having urnback, *"gt~" PC-. 95 bdkon Awm.. New Ymk. 10016. 59.95 .,<. ~,,ld~. hrilyRmovpd. R~~~~~ iew modi8aflonr G~~. vans Ltd.. 7505-134A SL. Suney BCV3W 783. Canada. ~nglirh-hen, in teaching ind~nd~ntliving rki~lr.me S~c5ai~k kainmgramelong#me 1301 years1 reridrnh of HUD semgaipd ram kcilmesto llw in the rommuniu "Swpre~hyw- cal handica~has not beeniesn ar an inruwrabie bemerand the HUD.r Osee Palw hwlapmam and Rexarrh, uhth funded the rerearch Syracvs by dward Skinfeld, "11 to succeed ir impamnt ivhw sleedng wtenhal tenan*" produced the bll~ngrignificantpubllcationr. Published in April 1979. they are lorrale by iheSupetintendentolDaumenb. U 5. Government Printing Ofice. Warhmgton. DC 2MM 1. Ampu General Elscmc. Appliance Park. Lauirvllle, KY 40225. 1s W- to theBuilt Enoironment: A Re"!ew ofthh LItemhimhi 150 pagrj =hen DerignDepL hasalree lolderofplans. Ih Ran* orbvndy 2. ~ccerrtble~utidlngr 10, people with wolki~qand ~eorhing Dppr wll xnd hee braille knobs. send madeland renal numben Limilotlons. 169 page. 3. Aaerrlble Bvildinsr lor People uirh for any GE or Hotpant equipmsnt. Severe Virvol Impiirmenb. 118 pager. 4 The MmoiedCori of Taped applia"r= mwuak On dl GE and Hewn' pmd"*. Ac-ible B"(,drnm. 153 pagpr, 5, A CosfBenefl Anolysk of $1.25 lram Center for Coniumsr Produck Rpcordingr, ki- Accesslbibly 88 pager, 6, AdaplobieBu,j 38 An d@d Blind of KenNchY Box306. Louirullle. KY 402(11 PmUYinns ,or n Borne,-Free Derjgn na 5 pager. 8. Seleded Bibliomnphy on Bnnie~FreeDerirm MadularHonrea 19 pager. Study otian Of ntegmflng Hondjmpd Ind=pend=nt Living Bungal-. 40 Gay St. Bath. Awn. - England Raoldly mmb1.d on rite PrvvlYon for hair4 had By Ba,ellr.r Columbus Labombtier, Thur repon mi'', and c~uderthat united- modifications for accerribi~iyadd uew iime to the rmt of rental unB and that dliablad peiwns gpnerally S-=Y' prefer lo liw in houiing deign~dfor the nondlrabled but whlrh can accommodate a small of disabled. Choice oICnrr. By RmuyDawron-Shapherd £1 fmm The Documenrr. (Add- abau~.) SpasticsSocleu, 12 ParkCrecent, London WIN 4EQ. England Shldy of a croii-redan of London reridenhal krill6erthal hovsa A Guide Rehmbjlmon Pmmoms, Pquert *LHUD- 481 phyixally diabied. mpauthor, a quad who has -a 15 NVACP32012I from HUD. Washingto% DC 2MiO Fres. yean ar a reridert raw "No on= l~verin reridentiat can wlhout HANDTAP NwHUD pr~gramto 1-te hounng lor he dis- thou life bring made publ~r.phyricdiy. and rrnmondy" she abled in SIXrtater. Funded with S4UO.OW Workhop. lvlll h concluder that some form of rendenha1 carp unll continue as long hdd amund rovnhy to acquaint HUD ofnc&. Idgowmmrnt .r dl-bled people hawe .a 1- choicer about their lllnyle The World of Om1 Hearing-Impaired by William Bixby Sheldon, BSBA and Kathyne McGuigan Sheldon, MFA We can talk! is our opening merrage to you all. We were LIP READWG PROBLEMS Sometimes a few problems crop born wth impaired hearing but. thank- to the valiant up, but iue leam to overcome them. Some pmblems in^ effo* of our teachen and ourpaienh and also to constant clude: mustaches and beards, teethy teeth. mumblers. practice in talking, we are able to communicate not only teachen or ather persons who cannot itd, too much with the hearing-impaired but also with peopie vnth nor distance beiween us and the peaker When you're tailung ma1 hearing. To us, if is n very important achievement to us. you must rpeak more cisarly and more riowly than because we are abie to exchange and share ideas with "0'maliy. it's heipful if you exaggerate your iip moue^ everyone. it is a wondedui education for us to leam horn menh It is imporrible for us to fallow iiltle or no hip moue- ewyone. Even though our speech is no, pedecL we by ment You should face uj whiie talking. You should use hard to make ounelver undentmd. We airo have to rely a body movement, and faciai exprerrionr. Above a1i. you great deal on watching people'iiipr because of our lack of must not have any fear of asking us to repeat if you cannot heari"ng power understand us. member one thing. Never mention "deaf mute- or "deaf and dumb." We abhor these woridr rr much as the blacks I hale the wad, "nigger." No mans ti heairng~maired persons can or cannot hlk, they are not dumb. For exam- ple, some people can play the piano and others cannot 1 play it so, same deaf children can learn how to vllk and 1' read lips and otherr cannot leam. 22; LEARNING TO COMMUNIC&TE We are convinced that there are several facmrr in learning to communicate with heating peopie that may not be fuiiy recognized ar important in the development and mining of a heanngimparred chiid. Itis imponant for the oral heanng~impairedchild to have the understanding and suppoli of his paren& and eveyone : \ ,i involved. it means sa much to a child to have his parenh. - family, and inends keep encoura@nghim to bpread, make friends with hearing peers. and not give up talking. 1 Oral communication is noi far eveyone because it de- pends on the hearingimpaired chiid'r nahlrai abiliw to grasp words and meanings ham otheri mouths. Total 1 communication. which consisti of speech. Ilpreading. i finger spelling, sign ianguage. reading and wnting, is the _ alternative lf leam~ngspeech and ihpreading pouer ether i -___ 1 Im,,, ibi ..,.. ,,,bi,. Kallly mnlli~ilsheldon.'We "#err born tcjlh mimired heunr,~ . Another important taoi to omi communication iwech but we ore able to exchange ond rham ideas tudh eueryone and lipreading, and reading and wntingl is h keep on 28 REHAELKATION MITE reading hook. Reading also helps to expand and improve use voice. However. the hearing pmon ir in a parition to the wnnen and rmken ianauaoe.- - Tmveiino workino. and help canect bad speech hahiti. When a hearing-impaired volunteering also ulden the scope of learning. person arrociafes ulth a hearing penon, he must speak ~eachingspeech and lipreading to heahng2mpahed correctly in order to be understood in the oral world. children is even more difficuit than teaching them sign language. It involver the art of maMng the correct rounds PROBLEMS M HIGH SCHOOL AND COLLEGE We both found and pronouncing the words, and knowing how language is entering high xhool after leaving Cm an awerome chal used. It even invoiw lono-, oeriodr of oracke until the lenoe and a hial Some of the omhlemr~ we~ faced~~ were~~ the~ chiid BnaUy gets the word. sound. and language tight. In armngementr far notetaking and simnq ULI hnf in ciarr. huth, the hearineimpaired rhiid hm a long way to go h catch up with hli hearing peen Bom without language or sneech, he has to ioarn everuthino. -. hv rioht- and feelins- and he hasto work three time, ar hard to catch up. 0°F URLY EWERlENCES. We were baUl bom info families - - and anewardr -. - . KAW-RRTISTRMITEACHER One of the hiahlivhts ofmv cause our families did not believe in heating us differently. We were nor sheltered we both entered the cenhai institute for the Deaf fCDl here in saint Lauir when we - -, . . .. devoted to oral teaching. We feel if important that we whether it be a drawing arpointing, is the Ionpage they iiarted at such an early age since we have never had any undentod uely well. heatina and we had to reiu 100 oercenr on lioreadino for Itaught on lor one ymr af the Pennsylvonio schooifor the Deaf in Philadeiphia. This srhwi, which once taught methods, now pmnim the total communication method. Though Iom fomilior with the language of the orally. signs. Iuse it sponngly: Ifind it mnicuiariy hhel~fii with Whiie Bill's mots mdtamfly had been m saint outs children who are heoring-fmpoiredor with people who for many many years. Kathy's parents had to move ra houe mild or reuere lemming problems. St. LOUIShom a smail town. Coffeydle, Kanrar, so she I hove volunteered wilh cerebmi palsied children af could attend CD. Her father war working for the Missouri Camp Hondicop and. for seuemi yean, Itovght art to Pacific Ra~lroadCompany and he amnged to hanrter to hating children uha hod reading language, nudy, or the headquaan in St Louis. family pmbfems ot o small priuafe schooi in soint Lovir Many of the chiidren a! CID were boarders who came Today, alter eomingaBocheloroIA~f~degree,a cenifiate from many different pans of the Unisd Stat- and &om in teaching, ond o master's degiee in fine om.1 am teach- other counwier. ~hev$lee and ate all their meair at the ing art to heoring~impoiredchiidren at my alma mafer Cenhof institute lor the Deol Ihaue been amue in the Junior League of SL Louis and in ihe Bmk Fair which benefits the nuning scholarnhlps lor Misoun Nuning home every af!ernoon, and we played with heating chiiL Asrotia"o. dien our own age. In addition. we rpent several manthr at various camps for hearing children. Bills parenh encour~ BlLL - BUSMESSMIW AND CMC LEADER. My fomily and aged him to pamcipate in many activities. They aiwayr othem haue encoumged me to be seliieliont, sey-confi- heated him as if he were a hearing penon. For example. they sent him to dancing classes where he had the oppor hlniiy to learn how to dance just ar his older sister did. From our own expenencer. we know how impo*nt it ir and marketing. Iam prejently uilh the Systems and pro^ for heating-impaired children to asooate wilh hearing ommmin~.Demdment . of St. Louis Blue Cras Hosoital children their own age when not in school, because they Services. Inc. can learn from them what they could not learn hom their One of my fauotite adage, is. "Ifyou put your shore or deaf peen. A heating~impairedchiid, for the mo* pan, ts auato. of. hoooiness.. inta the world in which "0" liue "0" not abie h correct the mistakes of another hea"ng-- uiff receiue happines in like memure in relum." Because I impaired child. He tends to be sloppy and may not even om uely adlue on sewml comminees luhi~hseek ways to I979NOLW.E XXU 29 make life easier far ail disabled. i find it necesrory fo have a telehmownte~we cdCONTACT-St. Laub. a non~ do a mot deol of biking with people, both hurnng and orofit oisanuation, a cnsls iine and anrwenno wlvice loi Seruices, lnc, and Conlocf. I am o member of the Mir- nvo~wayhawmiss~on oi mesager hemeen mo tele*. sou" Governor's CommiaeeonEm~iovment. . ofLheHond~ wnters over telephone lines). and a telephone. There are icopped and of the Ad~iuryCouncii of the Moyori of^ about eleven different types of teletypewriters and the /Ice on the Dlrabled. iom president of Meim Roundtable pnces vay from $170 to $900. Today, we have about of Represenlctiue.. mmpared of representcltives fmm 25,000 telehmewnter awnerr in the United State and o~~gonlzalionrunited to imDmue reruices fo the deof Canada and over 200 in St. Louis. community MARRkGE In 1972, we were mamed and we now live in TELWHONING W!7+ A TELWPEWRmR We can communib a 106-year old townhouse which we have been happily renovating. It ir located on historic Lalayette Sauare. Our addra: 1422 Misisippi Avenue, 5; ~ouii:Mi-un 63104. TIY 314~776.5288.Voice. 314-725-3337 You Need Your Head Examined by Jeanne C.Kipe Menra is made up of people who are rupporedly the As my "Cu" said. the meeting. are gndhm. Some are top 28. intellectually, in the world. You're probabiy one purelysocial, buturuallywe haveaspeaher. anythingfrom of them. At least, you are probably a lot smarter than newpaper ieahlre writers to "waterwifcha." then a YOU think you are! For many years I'd wen arncler about question~and-aniwerperid, and then general conversa- Menra but it never dawned on me that i could be a tion and chitchat The talk is not heavily intellectual. but member! neither is it an exchanoe ai recioes. One woman said what Then my a-courin~in~lawcame to Vise told me ~hdd she liked about ~enrawar that no matter what she says joined out in Tulsa and haw wepeat it war. She sdd the rhe knowr rhe wll be understood. meetins were lots of fun: at one, the" had a bellu-dancer The crowd usuallv tuns to about 30 oeaole.. . Thev. vaw. for a speaker! Ahei she returned to Tub, she sent me a from one meeting to the ned. porribly due to the subjed sample copy of the national newsiener and an application oi the rpeakei so Ihave met a hundred or more members blank. lntrisued. Irent it in and took the oreiimlnam reli- bv now. The hastorovidesma member has offered to obtain any car (except Csdillac and Sue 1~.1701 West 3rd ~tr:eet.Brookiyn. New ~wk Llncoin) ior $100 over the dcaleir rmt 11223 for information and an appiication blank. Then there is SiGKT I am our locai modinator of Go ahead and oetvow head examined. Idid. and found this prcgam. The letters stand for Service 01 international it 98% pmof! Guidance and Hospitali~lor Traveieir. andthe meaning is just that. By witing ahead, the baueiing Mensan is put in Jeanne Kt- her been o wl+oquad since 1947 She hm been the caordin stor who giver him a U~~SUCVSS~UIuifh conterr entnerand iromernbeid Wmskfen. inexpmrivriv lestaumms, mote4 ec,, and the dluirron 01 the Notional Contedem Amcialion tvhich rpon~ him a1 the righis he shouldn't miri. and warns him ofthe ,,, ..d d,=bied jndiujduoiSin mnterting H~~ addreu Y tourkt paps. Ahso, in many cares. a local member act 6140 7th A~~~~~Nanh. SL penburn FIO~~~3.7710 as a guide around town, and romebmes wil even be hlr There Is No Place Like Your Own Home by Bruce !? Hillam, PhD i think even/ Amelican dreams of owntog hi or her wn that were half accessible hut the cost 01 remodeling them home. For a ievereiy disabled perran. it is a goal that to fully meet my needs was oubdgeous. makes sense. To have a harrier-hee and acrwibie home Discusiom with family and fiends convinced me that I make3 life much easier and more pie-nt Alter living in should stan hom scratch and design and build my aun several apartmenis and sufleting through namdm=. home. After I made this decision. Itold my realtor to find makeshin ramps, and bathrooms that were almost imp or^ me a level lot That war the easy part rihle to ope with. I mads the dendon that it war hme Before Gini's bmk was published, there naUy wmn't for me to become a homeaumer i evenhlauy wed an any one piace you could look hr idem about building a amount sufficient for a do",,, Dayment, and then i went houre for a disabled person. i started visiting ar many looking for my dream houre in suburbia. rubd~vlsionrar icouid to get an idea of modem tends and MY Bm stop was at the omces of several realton in the deagn. Next i had a inend of mine. who has a se~ice~ area in which I*bed to iive i gave them each a iist of conneded disability get the Veteran's Admi"&hbon feature3 i wanted in my dream hmand the mailmum checkbst, and copies oi some of their approraved houiepianr amount Icouid afford to pay. There were several houses a$ a guide. Flnaiiy, 1 lnr~tedother people who had budt 1979NOLUT.E XXU 31 or remodeled houses to meet the special needs af their In his nexi subdivision he built a house for this family that disabilities war rimilar to the other models. but had been made almost barrier free. There war ariight surcharge for the initailation of ramps. wide doom. bathroom and special lxfurer. but they did not go to all the trouble Idld in my custom home. sznce 8.5 a quad I have to hire aii the mmntenance work The rerult tor them is a comfortable and gracious home. 3. a garage iarge enough and high enough iwlth a nine^ It is me that there is no place &he your om home. foot door1 ro Icould get my Step~Vaninside. and stay dry Think abour it. in inclement weather while using the hydraulic lftio get in or out of the van: 4. the houre must be fireproof; and 5. a 8mce Hilhm. PhD, hos been o C5~6ilvod since 1961 when he Bne patio to eniov our beautiful Caiifomia weather. . . doue into on eddypooiarrhe oge oj 16. He iwiued hisMA ond Armed with this. I came up with a Boor pian for my PhD h molhemotir at the Uniwmiry of Caii/omia ot Riuerride dreamhause. Fomnately, the university where I teach has ond teacher vt Cvl Pob Pn PPPPPP Hm odd?- w 526 Smoketiee a schwl of architecture and Iwar able to find a riudenf Dnue. Lo Veme. Col@mo 91750. who accepted the job of drawing up construction biue- prints for a modest fee. There were revired several times by myself, my parene, and my hiend.. Then I got 5-ral bids hom reputable contractors. (At this point Idiscovered that my high bid was the iowest bid. A3 an exampie the "low" bid did not have an aiiowance for the carpets and Training in Computer noor covenngs the high bid had iwo thourand dohian in the bids for this. Ialso found that the type. and quasty Programming of contactor-supplied hxhires, things iike windows, door handles and locks. iightr, efc. vary. You must be vew specific. With bid and piani in hand Iwent to the bank and got a IN". Consrmction began and Ibecame impatient (About this time an inspector for the bank visited the houre and reported that it was a "handicapped house." and the bank bted to change the terms of the loan. It war panted out that the local NEtation could do a wonderful "pwr cnp- pie" sto~with the bank cart ar Saaoge, so that one bad moment pmdl . Three months afler mnrmBon started. I moved info independent living uaining. and drivers' kainmg. The my new home. Did Imake any mirtaker?Yeier,roms minor program is known as TODCOMP - The T~ainingof the ones, but the house is a huge ruccerr It has improved the Severely Dirabied in Computei Pmgmmming. its new fa quality of my life conriderabiy. I should have done it ciliher are located at the former site of the Environmental sooner. Health SulveiUance Center They indude the computer There are three thinos Iwould iike to mention. Mu houre training building and ten resident cottager. The average cost about ten percent more than a similar haura because enrollment is 20. with about 10 living in the comges. Two of its special features These added cork were mainly in vans h-anrpon commuter shldentr to the facility and into the area of more concrete walks than a standard horn. town for community activitier and shopping. the longer higher garage, and rite preparation. The wider TODCOMP darrer are open to anyone with severe doon. special bathroom, etc. do not add anything to the physical or vlruai disabiiitier. Applicana must have a high cost of a house when vou are buiidina.-. oniv when vou school diploma. Two yeam of milege or experience in the have to remodel. computer field is recommended. Members of minority Secondly, Uncle Sam allows you several tax deductions groups are encouraged to appiy and he project has been for home awnenhio. There aredeniedto the rentex When appmved for vetemn'r benefits I moved into my houre four years ago it war more expen- Oniy those applicants are considered who exhibit .tong sive than my old apartment, but since mortage payments motivation to study and to hold a parition once mined. At don't rise butrents do, it is now cheaper to live in my home the midway point of the pmgram, evidence of motivation than my old apartment At the rame time my houre has is re-evaluated to relei those who will continue on to "re" in market value while I have lived in a. $0 it can be finish the program. The pmgram lasts for 10 monthr of thought of a. a form of savings and invesmient 30-36 hour week. Training r~&onr he*" in August and F>nally,what about the person who says. "Icannot do March. Tuition is $4800 and ~nciudeibooks. . suooiiei... . and what you did?' A hiend of mine went to several iarge computer time. Residential charger are comparable to developem in the area. and made a deal with one of them. those for dormitorier. 32 REHRRRiTATlON GRLETiE Much of the h-dmiis is hrhnal. Studenb learn different Minnesota 55440, initiated a ommam ~aliedHOME- exierienc. lm an office within the UniversiQ or the Wd Centa ASSOCIATION FOR AOmAnONS The Arraciation on Com- Dung the training period, pmpcbve employers are puting Machiney, 1133 Avenue of the Americar. New contacted for placement. Employment, which har been York. NY 10036. hsr organired a committee, the Special excellent. will be increased through a burinelr ado- Interest Group on Computers and the Physically Handi- sory councii consisting of 20 burlnermen lrom around capped. which a planning a quarterly ne~rieiieron the Missouri. developments of adaptlng data pmcessing equipment for For hinher informdon or to bolrow a 12minute slide use by the disabled. $22 per year and tape prerentation of the pro,.ct. contact Ellen A. Schee~Director, Computer Programmer Trining P~oject. 408 Hilt Sueec Columbia. Mirrowi 65201. Phone: 31G 449~0891 NAnONAL ASSOCIRm. TODCOMP is one of 12 projec6 mining swerrly disabled lndlvlduais in computer pro- gramming. Pmjectr are now in operation m Alabama. Cali- fornia. Connecticut, Maiylmd. Marsachusetti, Michigan, Missouri. New York. Ohlo. Pennrylvanii. Texas, and Virginia. Woodrow Wiiron Rehabiiib3tion Center in FiSh~ ewiiie, virgmia. which pioneered computer promdmming for severeiy disabled persons in 1972. held the first meet& ing of an asrociation of Data Prmersbg Rehabililation Prolecis in 1978. The purpose is to faster communicabon among its members and to -1st in the development of rimllarprngramr. For further infomation about the projrojecl nearest to you, contact Mr Lany Lavine. Univeniiy of Cincinnati. College of Business Adminirhabon. Cincinnati, Ohio 45221. Phone: 513~475.5786. HOMEWORK Kenneth L. Anderron. Empioyee AdViray mouthnick prover that m#nin>olphyrrol ah,lr$y tr rryiltred ond Resource. Conuoi Data Corporation. Box 0. Mmneapaiis. that 90% aj the pmgrommer'r mk ir men101vmu#iy Books by Joyce Kniffen ED Lrrtrummer we nreivedri ,mured ierjmm JoyreKn6 we are delighied lo hue J0,Wi concue, rmritiue, and per fen, "Iwax uew *my to hearofthe death oiDonno McGuinn. I reotiue moteus! Jouce iuar uoledldornn ot her hiqh schchoolomdu~ : ":,I SIFI, .n?RS!<8 ,..a? ,... n.,l7.p *, .45c,zc .em- ,,.., ..r >.,.",",. .,,.,,~,."..Ol r...v!", ,.no. Tl begon. !am owintensted in mn,inv,ng the book nuie,us that am such luonhuhile pan ofthe publlmllon " 1979NOLUME loo1 makes some promlnng recommendahanr lor lurure action that needs to be taken. Dr Bowe concluder that the hone far the hrhrre ifer in Emme and I By Sheila Hocken. Thomar Congdon Book. E.P. Don. dvyre Kn~a",new baak "mieue, New York. New Yorh 1977 180 p. Thcr book Is an lnmir- ins Insight into the iife of a young Engi,sh woman who Godls Mavntain mover hom the world of right into blindnerr and hndy By James Ashunn. G.R. Welch Company, Limited. 310 back to the world of right Shella Hocken lost her right by Judson Street. Toronm. Canada. 1978. 103p 153 50pius catarach gradually as a child and at the age of nineteen postage.) In th'ii b"f boak. Dr &hen explorer the prob~ was compieteiy blind. It war at this point that the Emma af lem of human svnenng in the light of various reilgour the titie entered her iife. Emma was the intelligent, loyal be1)ek. His knowledge of his subject is personal ar well as seeing-eye dog who guided the author through nlne yem scholarly DC Ashunn, a medical mvuianaiy at the time. of growth and change. war anacked by polio in 1955 in a medically Ill-equipped Sheila Hacken wnter movingly of her sbuggie to area of India. However, *only a rmau portlon of this book is achieve independence and relicanfidence in a world devoted to his rmiooie-- to overcome the effectr of th~dir- where she war different and expected to be dependent. ease Two~thirdsol the bwk is an autobiography of DL From her hrSt lob to her first apartment to love and mx~ Ashwin hom his coliege dayr to the prerent. The other riage. the reader sharer her though* and feellngi. And third a a .ohlloroohicai . discusiion of rullerino and reiialaur when the posnbiliy of havlng her sight restored arises. the 18th. in pamcuiar. the Ch~anfaith. reader experiences Sheila's own combined fear and hope. Dr AshGn's description of hiswrk In lndiairinlererdng This is a worthwhile book for disabled and "on-disabled and thouohlorovokino-. He ororena a ciear oicture of alike. some of t;e herdships and joy. faced by a misnbnan/ Hv dircursion of the problem of suffering is thovghnui and Like Normal People comparrionale. Of specpal interest 1s his relutalion of the By Robert Meyeis. McGraw-Hill Book Company, 1221 mistaken bellelthat all disabled who have enoush faith on Avenue of tho Atmencar. New York. New Yark lOO2l. 1978. 203 p. 15995 plus postage) Robert Meyerr wnlc. cornparsionately but realistically of the world of two men- tally retarded people, one hir twentynine year old brather Roger and the other the woman Rager manfa. Not ody doer the author desctibe the world these two iive in, but he airo exdorer the histam of the chanqlnq marment 01 -~~- .. Roben ~eyer~.a meiropohran rsn repofer lor The tuniy to iully~~rncip~t~ in the ~if~~fth~~~~~ny he book Washington Pod, received two PulLer Prne nomination. includes two appendices. OrganMonr a1 and lor Di- for a 1977 three-part Mic. of dcler about his brother in abied Peooie and Government Promams for Diabled the Post. In this bmk he concentrater on the effedmental People. retardation had on his entire family, not just on Roger He Handicapping Americo makes two malor poinh. one ir wites movingly of hlparen*' attempb to provide for the that disabled .oeoole . are entitled to the same civil riohh ar fuhlre of a son whom they expected to be dependent lor ail ofher Americanr. The other LF that diabled people are the rest of hlr hfe. Their irmggler to find someone who not handicapped. but that It is our environmentthnt had could advia them on the treabent of thew younger son, 34 REWIIIIAIION Gm someone who would not simply fell them to "warehouse" Mealeme Manual him. are vividly ouuined. Meyen ahdescriber hi5 awn For People with Dlsabltier and the Aging. Compiled by rhuiggles to grow up while being a second father to his Judith Lanneleld Klinger institute of Rehabjlitation Medi- brother cine. Second Editioh: Campbell Soup Company. Box But the bwk is ako the *toy 01 Rogeis dggle to be IMMI 56. Camden. New Jersey 081011978269p. Spik his own person. to overcome the label "retarded " Each ral bound paperback ($3.251 This book ir an abroiute chapter begins with a poem by Roger, now a young mar must for the disabled homemaker it contains hintr hr ried man who ir rm to hifill his potentiai. homemaken with all hmes 01 disabilities indudins thore This book ir a realistic ray 01 hope to disabled people throughout the world. in addition to recordingan interert- ing perrdnal story, RobellMeyen has provided mmevalu- able information about the needs of and the asristance available to Uiare doreiy affected by mental retardation. ~. ~ ~,~ Livlng With Chranlc Neurologic Disease cid pointen lor their preparation. By IS. Cooper MD. W.W.Norton and Company, hc.. Judith Kiinger, OTR, at the insbtufe of Rehabatation 500 Fifth Avenue. New York lW36 1976. 318 ,o. 164951.. ~. Medicine. New York Univerrity Medical Center. compiled This exlremely practical, dourn-to-earth guide, rubtided the results of this study conducted with the suppan af the A Hondbwkfor Padent and Family, could be a red help Campbell Soup Company In her intraducbon. Mr. Kiinger to those runering lrom any lype of chronic disease or states that "the packaging and use of convenience fwdr disability Dr LS. Cooper ar director of the Depah and the desiqn and use of small ar~liancer". . werethe focus men1 of NeuroiogicSulgeryat St Bamabm Horp~tai.New .f the study- York City and professor olneurorurgey at New York Uni~ This rnanuai is well written and well organbed. Each uers~iySchool 01 Medicine, is weil quaiifled and exhemely seaon contains numomur tiiu$tations. The table of con- capable in writing about the subject of chronic neuroioglc disease. Dr Cooper employs a penonai. conversational style in his discussions directed to both patien* and their famMer. Although there is much technical inlorma- ence. and agencies and a list of sources and addresres for tion involved in the donair expianations of various the equipment mentioned. chronic neurologic direare.. the book remains readable and, far the most part, understandable ta the layman who Sex. Society, and the Disabled knows battle about there diseases. in addition to being ure~ By kabel P Robinault. Ph.D., Medid Depa*ent hi to those direclly lnuoiued with these diseases, this hand- Harper and Roy Publishen, Inc. 2350 Vimnia Avenue. book can help educate the uninvolved to a njmpaihetic Hagerdown. Maryland2174U. 1978.273~.($1495 piur awareness of the problems faced by people with chronic portage1 A study of the development of sexuality of the llinsser. disabled. this book is directed to the orofeiiional who . . tions on how to cop. with chrontc Illness. Other chapters Rehabiiitation and Research Center in New York. it ha- dlrcurr specific diagnostic toits that may be used, the the normal development of rexuakty, cancenhating an causes, symptomr and lreabllent of qecific diseases. and maturation and the male and femaie roles. Because of itr same qecial neurmurglcai piacedures DL Cooper also chionoiosical arrangement in discussing rexudiiy m in^ devotes a chapter to the problem of chronic pain. He can- fancy and childhmd, adaiescence, and adulthood. the cludes the bwk with questions fcequenily asked by pa^ book is often repetitiour. It alm becomer rather technical tienb and a list of agencies that can provide assistance. at some point5 as when Roblnault is diwusrlng genetic Also included 1s an index provided for easy access to ipe- counseling. Howevec it contains much valuable inhrmb cific information. tion as weil as exposure to new and enlightened idear lor those counseling and heatingthe disabled, lnduded are a list of 461 references and eighteen appendices including Eources 01 genetic counreiing. sex educason cumcuia re- sources and rwurces foi working with spenflc dirabiiitier. Although armed at the proferiional. this book is ahof interest to the disabled and their parens. Robinauit dis~ cusses the effects of society an and Its atlihldes toward the development of sexuality of the dirabled. She ako drxur- ser the various options for sexual lulfillment, including 35 marriage and parenting, available to both the "normal" MEANT. shuttled by well intontimed famili- hom one and the disabled. The book~lawasreat deal of emohmis doctor to another or smissians alone. many an M5 victim centcater on the ways in which the disabled ara dikerent in the head:. Few rearcherrgot the comiomng news that rather than the ways they are iike all other people. onlya small percentage of MS caser aie really acute and rapidly progressive. whereas mort are rbw and compara~ The huitof Hope tively benign. Brain tumors and other dire wibiiitie By Mitiam Onenberg. Foreword by Donald B. Tower, lurked in the wings as medical authotity-figurer of vanour M.D.. PhD Rawwn. Wade Publishen. Inc. New York. soft( acted as if "MSII were too unthinkable to be ora- , . thereafter Because she war not satisfied meekly to accept missions." and rays it is the location of patches of wierotic the prognosis commonly given in those days - total de- (hardened) tissue in the patient's brat" and spinal cord, pendency and a rh0rten.d liferpan - she focwed her where myelin has disappeared and no longer inrulater the newrpapeng talents on a rearch for bener answers. De~ nerve. that dictate which body functions will be affected: rtibmg her quet m the pursuit of how. she intewiewed "that's why no hvo multiple rc1erorir patien* look dke or MS people old and yourcg, male and female, those still experience tho same symptoms, although they have the holding down their ongina~jobr, those who had dready same dinease." Mr. menberg maker it almost posrible to altered their careen to fit the challenger oi MS. and thore forgive the doctors who have been w reluctant to rendera who could no longer work at all. What she learned. aiumi- firm diagnosis of such a confusing ailment. nater this book Her message should be read by reiativer This book ir the first mmprehentive sfatem.", aboui and doctors and mends of MS victims ar adentively m if it management of wrk, family and communltg activitier. contained All the Secrets of Life - because far an MS and the frequent sametimer hourly changer in MS pa- penon. and those nearby, it doer. tients' physical abilities. coveting evernhing (except of In his Foreword. Di Tower my. bluntly that MS is "a courre. cause and cure. which are snil unknaunl. euey- lifelong disorder whore unpredictable and often chaot thing we "alwayr wanted to know about multiple sderoris naiwe can dirheamn" itr Mc6mr. Sinqiy mort M5 sumo- but were ahaid to ark." it tells how MS people are aban~ * . . missed with the repoit ihat they had "a de-mydnating ing the cause of MS': other advancer. she seems to feel. disease." and not provided any additional infomation. cannot be far behind. Left to Bnundri among medlcai iitemiure that did not Reuieud by Elfie Kum, who pmbabiy hm hod MS for drhne what those words "a de-myeiinating direare" neariy 20 yeon but didn't get a diognosls until 1974 Friends Around the World "I hope some other Gmae readen can help me solve piemental recutity income 1SSll wecked our plans com~ some vey huzhting problems. Imk polio in 1952 at the plefely for now age of 12. It afflicted me hom the neck down I have to "Ireceive some SS ham my father who is a retired daiy sleep in the iron lung at night and use the rocking bod farmer My mother. who taker care of me. also receiver a some time dunng the day. small SS check because Iwar disabled before the age of "I feli in love with a beautiful glri and we were making 18. 1 also get a SSI check and have Medicare and Medkacaid plans to he marled until social secunw iSSi and sup hospital and doctor benefits. 36 REWBILiTATION GMRTE "The SS people tell me that when Iget matried all my 55 benelitr and all my SS wiU be cut except for a small bjt of SSI. Even my mother's SS check will be cut off even though she wiU still be takinq care of me durinq the dau while my girl hiend work. "Family SeMce said they could probably help by miring my income a iitiie. I could ahbe gemng Medicaid, but that is limited to 21 days in the hospital. My girl hiond'r income is not enough. If they would leave my bend& the same os they are. we would probably be able to get along, especially if Ihad medical coverage in case Ihad to run up a big bill. If anyone can help. please wite !o me." Chorler Dlckens, Route I, Box 115, Republic, Mlsoun 65738 "I would like to hear how people overcome speech prob~ iemi who are unable to taik." Jornes A Dunn, 6830 Jerome Street, Spnn&ld, Viqhio 22150. "MOPED'S members are infatuated ar reqardr-. "our fine publlcatlon. which link ur as one, no matter how isolated we remain in this wtde world. . . Indian disabled are a hne lot. full of potential and imagination. but they iack mobiiity aids to go dacor and seek job oppomnitior . . . MOPED yearns far any mobiltb aids - in kind only -to be gilted us for distribution to the oueue who aualih!. . most darved~ iy" S. Viffol Roo, ~ecietory,Mobility Organaaiion for counseling as itr base. VR rervicer would totally ignore Pamplesiesi and Earernely D~mbled.4618 Ammudu Gar- individual needs and difffiiencer . . . dens, India 600 W8. "Evaluation measures and open ku.rion wtU deter- mine a deaz logical, and documented vacatianai objective "I have winen a small book on dancetherapy. . . I need and the services required to reach that goal . . . Only by funds to publish It" Frfedo Ginsbum, 626 Clinton Street. allowing the counselor to understand theclient'$ problems. Apt SE, Brooklyn. New Yolk 11231. abMtier. and desires mil the counselor be able to docu~ ment and jurtiiy the provition ofseMcer to fit each clisnfr pailcular needs. "As a rehabillation ounrelor. Iwould like to readto Jack "Open discursion is a tiuo-way *eat, aimed at as tab^ Martm's piece in the 1977 Gazeue, 'ShohChanged by lishing and clarihg indtvidual goals and values. A coun- Your Staie Vocational Rehabilitation Agency,' by dircus~ selor wtU not didate a career to a client, nor wtii a Ing how VR ciientr can work bener with their agency coun- counreior suppoit a client in an obviously unrealisitc en reion . . . As we all know, the Rehabglktion Ad of 1973 deauor . . . With cooperaon. there should be no need for and the subsequent regulations and amendmmtr were bureaucratic or manipuiativo gamer on either pan. With long overdue and changed the emphartr of rehabiiitation cooperation. the client unli be helped as a person and nd services. Penonr with disabibtier are benei educated as a personage. about their legal nghs than ever before. . . Uoformnateiy, "How onen a client wdi meet wtth the ounselor will and oerhans due to the leolslative achievements there vaty widely and a telephone call may be ar effective ar a personal *it. Personally. I would be saddened if someone thought of seeing me as a 'chore' which had to be per ~ ~ ~~~ formed each week, whether needed or not. . . Cou-ling view the agency only ar a provider of mon~~iltysuppot should not stop once the vacatianal gaal bar been eriab- whether it be tuition, maintenance. b-an-rtation, or lished. but continue throughout the achievement of the physical respiration. Yet. such a perception only maker it goal. more difficult for the counselor to provide these re~ces. "It is the counselm'r iob to develoo a sense of msr "My pent is that client mmpiantr regar&ngVRservices are most often a reruit of the breakdown in, or a fotd absence of. meaninghi counseling relationrhip. The counseling relationship is the client's and the counseioir 63132. most valuable tool. Without it the counreior 1- the ED: Ron is a board member of the St Louis Chapter. needed fledbili~,to deai wtth individual needs. Without National Spinal Cord lnjurg Foundation. 1979WOLUME XXK 37 OnOrronr LC,, 1.)'/'1 I ri:rrcn o (: .. 8n.nrrp71v 1.n c >v,:.r : J#~,I.,re, b .I. .J !.;# ,$, md d#wr,8. u' I.. ~l..y,l!i :, U.3.6 iu. 'I,.xur c>n;cc. Ill,,..r.l,, ,P<,,>I< I. I. r :. I\. ir. .,. I ..r 81 "I've heard from many Gwne readeis since the bnel note in the 1976 issue about my tape club. Fnendrhip's Door I have had& motoi return yet, but the doctin empha- . . . When i started the club. I was homebound and lonely sired the 'heatmen, war a long proces.' The treahlent is and depressed. I've made a lot or inends now- Maxine not a cure. but it is a poritivertep toward one.. andhope Gobe. 2671 Emory Dtiue Eod, Apanment L., Wert Paim lie in lunher resarch. Beach, Fionda 33406. "Smce my return I've been deluged unih mail and phone calls hom all over the world. . . I have been invited "The Bible PorSonr League is a volunteer work that my to speak about thls subject at vanour uniuennes, cluhr, husband started when he was disabled by arthritis Many and organizations. I have talked unth such noted SCI peo~ other drabled ppople would find if exciting and rewarding ple as ex-Governor Wallace of Alabama and jockey Ron and we badlu need more workers. We rend indidduai Turcotte lmde Secretanat to Triple Crow in 19731 . . " , ,.A,C.l,..U.. 8 ib,~>~..,,,,<, J.,.!,>, ,,i,,i. I,.. Kent Waldrep, SpamNeius Sewace, Tam Chmtion uni~ ,. I s l., Famaand we had a nice time. . . Upon returning here. "I read mewhere that people not only mold the Ian 1war called on by Mr Jefcoate hom England who gave me guage they use. but are in Um moided by it . . . I am the klnd mesage hom you. . . Beides my work, 1 am also not handicapped by what makes me diiierenr I am hand enjoying the role of the Red Cross Welfare Film Festival (capped by how otherr view those dtfierences. some member and I shall be presiding the mee6ng on sexual ~eooleare intolerant of anvone or anuthine dHerent trom ~robiemrof the disabled this Sentember in Tokvo. There- handicapr: like archileduial hamen, culhvdl mores that ~itimachiShinjuhXu. Tokyo 162. Japon. - 38 REHABIITATION GAZEiTE 'We had a mawelous time in Japan . . . We visited with this global hrothedristerhood of ours and their meaningful two of your Goeetie readers . . . Mi lshmka came for and interesting iivei . . . Some rad n-: Dr doref Csda lunch one day and spent the afternoon. He had dwen died lart Mq After more than a decade of comerpon- three houn idriver himself1to see ur. He felt there war a dence. Ifinallv had the oooormnifu of meetin- and vi46no ~e and his darling (iemaiei dnverlahhndantfffk us to the ab~edpenon to get a job here. i~hey'uenever heard of hospital where he sees patientr. He took m on a tour - affirmative adon here. There isn't any le@slationon m. ADL. etc. He has a heaw schedule at the rehahilila- discrimination either You see. it iurt doerdt exist and tion center, harpiM, and uniu&iI$ Noncy Hoouer; 399 therefore there isn't any need hr LYaiaction./.' Adolf D. Fox Chapel Rood, Pilisbumh, Pennrylvonio 15238. Ratzko, Profwornlingon 39,lM 05 Stockholm. Sweden. arms are paraiyled and he uses a chertplece most of the "Please rend me your spare rasanes, statues. religious time. iwonder if you would put th& in the Gave Iwould Chnitmar cards and used clothes." Father Paul Cne Sf. like to rumnie him ar my mom and Iare so proud. If is Thoma3 Church, Sosthornkoaa P 0.. Kerala, India. dimcult doing a 1000-piece interlocking purrle with your huo big toes in just a few day%" Mrr. Debarah Kurk for "Thank for all the years of encouragement and ptide I've Louis 5. Dobnqv. 9354 Edgedale Road. Porkuille, mow^ received hmreading your Gmettmett. i ray pnde because lond21234. that's the feeling I get when I read about other members of "I want to comerpond with disabled peoplle mewhem, erpecially in foreign munmer. ~m 34 ~ld.disabled by anhragnmorir. I'd like to start a dub with other people with my drrabiilty in the St. ~ouiiarea. Ihave many many interests and hobbies: painting an fabric and on china. leathercrah ringlng, music (old records and disco), rwim~ I mmg, and bawling. I like lo go to mavier and to go out and dating and to meeting of the Vfctim Misrion~ .. .. _- anes." Jeannie Ledow 25 Linda Couh Fenton. Misoun - 63026. 1 "For over a year i have been pianning to go to Duke Medical Center to be tested for tho new phrenic newe rtimulator DL Narhald has developed there. WeU. Iflnaiiy went last week. And, as everyone warned me. n ' work. (I've been dependent upon rwimfors since Iwas four because of respiratoy polia.1 Naturaliy, I'm &ap~ pointed. especially after waiting so long for the test. But they raid they might someday be able to Mulate the diaphragm muscle diredly. bypaning the phrenic nem; so Itold them to keep me at the top of their volunteer guinea pig list! We ako got to meet the man who maker there r"mulaton. Roger Avery ham New York He's a farcinat- : ing person who has lots 01 idear. He and DLNarhoid hawe several other we* of there gadgek now The most com- ' mon relieves pain. Another helps control the bladder" Susan Ray 2208 Charlotte Court Raleigh, North C~arnIl"0 ! 27607 "I live in a oumose~builtmom connected to a ward at baveuing and Ican wily Qo for tenhouri with a. with the same shell. I can use another "rut which plugs info any main power supply, "The KIFA shell has a detachable hewhich Iregard ar indispensable. A crosspiece grp the shell around the central air vent and huo adjustable legs descend at either side to ride on bodor stetchar Lieel it gives me a very high George Wadr Brlue <:,ty with hi mn,,,ei. y,nndn,olhrr some 0, air intake with minimal pressure from tho shell nm. hk nine brothem andsue ristelJ, and C,"d" Hojjnrr RN "My hiends are allowed to drive and escort me. My tnp out average one per forbight. Ican hag breathe for about two hours. 1 attend concerts, shows, socialr, ac. The lon- comfortable Pmire Gad! It is! I plan to take a course In gat time Ihave spent on the sheU is hveive hours so that accounting now that Iam ableto nf up much longer.. . A. when 1 go anywhere for a rho* holiday I must fake my for belno-. a oamoleoic. .- I have adiusted lo the condition and Itry to keep myreif happy. Ienjoy gemng lctterr! My other tank. Hence there are hvo possibilities open to me: Icould obtain a caravan ihdileri in which to take my tank on hobbies are fishing, iaotball. boxmg. and reading." holidav or Icould hv to use murhell forlonser mriodr, sau Georoe Wade. 10 SonloBorbam Street. BelhCllu Belize . . a week ortwo. ~ent;oi~mim. "My pollable kit is old and dl not last forever 1 may ED: Cindu Hailner roent three months in Belie on a write to the International Red Cross or someScandinavian uc,h.,c~Ji )+J,? + 1 i 6, 13 5 7 n ::#",I i1.r nc, t7v Chamber of Commerce to see if any kit r, lying unused m Tcw ..l.,T..P. .,ISAi~.<8 .t : ..LV >, 6.,, .? Denmark or Noway. lwould be happy to exchange letters ,..A,, . ng,rc(;lv,s., .. !I..., >.rs 7: ..r 1. with other Gaze& readers. Perhaps someone will be sble . ., ,I.<>L,, "5. 4,l , 8,. .,<:, Le -8"' ~CO,?.,. to help me locate a pelfable KIFA kit" DennbAtkin, 'Sun- 1, I . reI ..pa ..I, r 8, rise,' c/oC6 Ward, Lodge MoorHorpital. Sheh?eM, York~ 1.1 uc,i~ ~ I. 8, I. lll,lL..li I" I .-or' *A, I il,.. I+. J I 3 shire S10 4LH. England. (Telephone 3071771 cushion and catheter leg bags Two local 6m3, ROHO Rerearch and Development. Inc. and St Louis Ortomy & Medical Supply. Inc, very landly donated a curhion and six bags and Cindy ananged to have them dePvered. "Iam a nondlsabled rehabilitation counrrlor In Kingsborn Prvchiatnc Center In the summer of 1978 1 r~entone month in the Philippines . . . At the nationally rknsored Vocational Rehabilitation Center m Cebu Ciy the an of therapeutic marrage b taught by Ms. Nelly Bautiita, who ir blind. All of the naineer are alsa blind. Mr. Bautirla raid that people who are shy about disrobing feel more at ease with a blind oemn and that the blind have a hishlv.. develb oped sense of touch . . . A restaurant in hiPark has good. hesh food and polite. efficient semce. It has a bio reoutation - so bio that almost a maion curtomars - Dell",* Alkln. tnglond, "I lrolrld be h,?",,i to r*,-,,"lyi irrrrr. Perhops someone will help me lomie s &,onable IHIFA hi Travel Traveling To The Far East by Thomas Davis I've alwavr wanted to visit the Far Eart Ihave been cor- while. The" reem to be much chewer in the Far East than r.-+c. I> 1. (4 AI!~ <.IT.) rcltd. :nrw lo. .. ..)re. ,~.ihan: :o :.w !',A, v%b: all, - 588 !,.F rz or.#JcJ ., 12, i.scn: I v\#t I .#!\ dublel b\ r,*y .rlrl \I( nr+ P.. .Inan,. I I ,I -xcr .e, I ~n,v$'!q. . n am,.. s mnt :no .i- 18 :.ccc ~3 I *a? i...rn Jbt;neJ'c.r ., lhahlrn I..,..~.IT err .r~nR... 1.8 somewhat concerned with how accessible rranrporiation hrl walk^; or wheelh shower. Uniortumttly. I learned would be. Alter conrulting with Barbam Jacobson of Fly later that this was only one of tworooms in the entire hotel in^ Wheels tauel.Idecidedto make the hlo. 1 planned on deamed like that. v,, 1'.I. i;: : LL 14,; :,.: .,<,,,wg " i~p,:,<%. ,d:,*,, : ,c,,p. best not take all of it if you don't want to be itk. Another vocati~ga~portllniw for the disabled aod pmviding such . . But I ru~Gdthe night to Japan which was about 13 hours All the airlines I haveled on (Allegheny, Pan Am. Jaoan Airlines. Sinqa~ore.. Airliner. and United) were very helpful in getting me and my baggage on and ofi the planer and through customs. 50 1 was very pieared Mth them. Formnately, my Bend mef me at Ncnfa Aimon in Japan. Natita Ailport is lnconvenienfly located 40 milei h r outside of Tokyo and it was nice to have someone to guide 1- me trom Narita to To!qo. And my Bend's ahiiy to weak 1, Japanese was quite useful in many circumstances. Engiirh ' is not cornmonly spoken in Japan. \;5 We took a bus to To+. Thz steps into the bur were -. steep but sovemi feiiowr. who were loading luggage onto the bur, just ahauf camed me up them. According to -96 Barbara Jaobion. these buses have lib for thaae in wheelchair;. The bur took us to Tokyo CiV Terminal. Many of the public toileb here and elsewhere in &!a are - . namuch more than holes in the ~wrwe took a taxi imm r7G.ro r, ,,,,~.I I . ,.Fr.rAyG ,r I ,. r.,., t. L.' ,J8tc. .: , .n nil nni1 *,m. *ha clr.:,ll il,, n,. I, ,*I I "'I o., 0, ~ /,I ,, ,,. , ,. "> rn) .or..<, ,oi,r m,... IN., I+,, ,;.: i.rrm ,P.-1 n wanted to see how well I'd be able to get amund on my own. I hund that 1 war able to get around but that it's definitely not as much fun or ar interestingwhen you don't know anuone in a counhv. uou. are Mritina. The flight into Hong Kong ir breathtaking. It'sa magruii- cent right fmm the air as your plane swwps down into the Kowloon Aimort. I had to dmnd stens hem the olane and takea bur fmmihe plane to theair (erminal. %.'amid sweltering heat in the 90's. The hotel in Hong Kong had no special features for the disabled ulsiton except a grab bar beside the bathtub. Idid some rhmoina.. - and went uo to a mountain top overlooking Hong Kong kiand'r nty lights at night. Ibaveied around by taxi. English is widely spoken since Hong Kong is a British colony. Iflew hom Hong Kong to Singapore on Singapore h- liner. which has a well d-ed reputation for good spr- vice. Sinsaoore's Aimofl is auife similar to Honq Kanri'r &I7 ,\ HL L>fi<>$~,;:,I> ,,,?,-,,, oild Cllorl S8eill Kolng at MI Dnvlri hour* ,,, ,snqopoie ~1; diiabled.' among the retugeei. One war a war veteran who had Iwas met at the airport by my fiends there who am all everything stolen from him on fho sea by Thai plrater. members of the Hand~caps'Wetfax Association (HWAI. lnciuding his woaden leg! Through the effoirs of Choo The hosp~taliVshown me by my fiends and other mem~ Siew Hons. a comminee member of HWA, he war able to hers of HWA war fantastic! I haveled mostly by taxi in get a new one. Singapore. Taxis there were qulte reasonable. My hdel 1 visited the uruai tourist amactloor in singapom inciud~ room at the Holiday Inn had only a grab bar beside the ing the roo. Jumg Bird Park. Science Cmter. Sentma bathtub and no other faultties for a disabled pemn I Island. Mt Faber, and Van Kleef Aquarium plur the Singa- soent an eventful 13 davr in Sinaaoore and SU mention pore Telecammunication~Authority and did a lot of shop- pingand eating out. Ialm viritedseudHWAmembeiiin their homes. Igot a chance to "inurstigate" Singapore's medical care tight3 and oppoMntties for disabled people there. Mr when I had an unscheduled visit to a horpttai. While w&- D'Rose had many fascinating stoner to tell and is working ing down a wet ndewalk. I supped and fell and war on an autobiopphy which I'm sure wiU be interesting knocked unconrcious whon my head rack the pauement readlne Iwas taken to a horpital in an ambulance and found the Iweit on a "night tour" with many of the memberr d medical care to be vey goad I had no seliow injulier, but HWA. We drove around all night in a bur and ulilted a had some aches and pains and a black eye for *he rest of newspaper and Singapore's only dnve~in,heater among the btp. other things. We all got vey &.ad, alro. One of the donan at the hospital exp-d surprise Ivisited the workshop of the Society for Aid to the Pam~ that someone who is disabled would travel ail the way lyzed (SAP]. Thiswar kindly manged by Mr Johnny Ang, ham the States to Singapore. He said that dliabledpeopie another pioneer h the tight3 for the dirabled movement. in the Eart wually have "inuen up" by the hethey wm (ED: see pqler 3839 a1 the 1969 issue of the Gmae.1 my age. Ithink he would have changed his mind had he The workshon.. qea runon.. hom man" burinesres in Sin- met some of my hdrin HWA. They are active, mnhb~ gapore and seems to be doingwell and expanding. Itglves uting memben of minty in Singapore. many disabled people he appormnity to do wefui work The flight horn Singapore to Honolulu war tho longest and team rkiilr which enable them to bdbeta iobi. SAP one of my hip. it took 15 hourr! Honolulu har an aaerri- also publlhes an excellen! maganne called Singapore ble allpon but a slight problem developed there. Quantas P,,',pieslcs Airlines handler the ground operations for Singapore Alr~ Iwar intennewed by Bew Ng, a reporter for Singapore lines in Honolulu and their representative insisted that I Pampiegim, and Colin Fernanda. the editor of Hondi~ had to so UD an ~rcaiatorin the aimort. When Irteadiartiu cp.;' Monthly, about conditions for the dirabled in the USA. A delicious Chinese dinner war held for me bv the committee memben of HWA. Ialro toured a Vietnamese refugee camp which war an you conslder dangerour whon tmveling. There's uruauy an unforgettable expe.ence. Ifound revemt disabled people alternate route. RFHABILTAnON GiVEm It war the same old nay in the hotel mom th-ie war iirhed in many ways. Theisre are numerous pen-pal clubs only a grab bar next to the nib. There should be more around the world. Rehabilitation Gann helped me get in accessible hotel rooms available like the ones in the New touch with many of the people Iknow in Singapore and Ohni Hotel in Tokyo. I spent a $ban time in Hawaii and Japan. So if there's somewhere you've always wanted to mainly rested. i *chimed to Phiiadeiphia via Chicago. go, I'd say ty it1 So despite tho hardships, i found the Wp to be wonh~ while. I found there's no rubrbniie for having ltiendr in a Address: Thomas Davis. 942 Kenwwd Road. Drexel county you are going to visit. Friendshipscan be ertab Hiii. Pennsylvania 19026. Sixty-Eight Countries in Wheelchair by E. Thomas Brewster My wife and ihad the recent pciviiege of meeting Gini and began warkingtogether at language school, and the school Jos. When they learned a iilUftle about us, Gini asked if I grew h-om half adazen studenbD,auerreuenh/8ve~thin would wnte an arhcle for the Gde. two yean. In 1958 1 war iniwed in a divino accident. and am a We~ writ~~~~ hack~~ ~ to~ school~ ~ to isam ail we could about reiatiueiu hmicai C4-5 quadriplegic. except that Ido have norr-cultural mmmunication and lanwase learning. I my inlun, my ahinide war not "why has this happened to ifTexas. me?". but rather. "God, why have you given my iife back Then came an invitation to direct the hanrlation depan~ to me again?" From the beginning I became convinced ment of Campus Cwrade Intemational. In this capacihi that God doer not give us our life the fin1 time without a we received many invitations to work with national itaH rearon - He had given me mine a recond time. Ibecame in their own counhles to help them develop literature convinced that God had arpecific purpose for my life The that would have communicative eifectivones, in their own pursuit of Hir wiU has added not only the dimemion of ianguager. meaningfulness to my iife. but airo has gven the privilege For about four yeair we haveled constantly To all six of many. exmriencer. 1miqht not have had whether I used continents and over sixhi-be counhier. Our have1 from a wheelchair or not. county to caunw war almost always by a* and, invari- After my injun, in 1958 1pnt four months in Hackiqi ably, we found aidne personnel to be vey helpful. Hoi~italin Murkeqon. Mlchiqan. then war baniferred to Through the yoam we have traveled on aimart four hun- cmig ~ehabilitationCenter in~~ntr~r,Colorado Dr John dred different airhe flights Of course we've had some S. Young (who & now the director of the rehabilitation "inconveniences" aiong the way - like an absurd two- center at Goad Samaritan Horoiid in Phoenix. Aliional hour wait in an aipiane at Heathrow &Wortwhile we was then the medical director dl Craig, and my penonai physldan. John Young has been rmly a coloirus in my iife. It never occum to him that a dirabied oenon mieht not be able to lulfill hr dreams. His "can Ao" philos&hy bar mbbed off on vimiaiiy ail patient$ who have been ptivi- leoed- to be under his care. That war aver twentuvem.. am- for me, but he continuer to be a positive innuence in my life Then beean colleoe. i started at the UnlveniN of COIL -, . . - Then to Michigan State for a marterr in counseling psy- choiogy, which i completed in December of 1965. Then to Guadalajara. I war tired of Michigan's cold weather . , .. .,. 1. (>L.> ,:,,,.> rL I L<4,",,,.,,,*r,.,,.,,> ".I. ik,q..~,< ' ''.'.- . .rnn, irr ,",*lo, ,r,; A, ,b:'.rr~ol I ,a.,I,. ,* ulll h . i .~I. . , . A.w I .I 8 4 8.:is \ n.c, I.. , . . ' ' ., , were waimg for Red Crorsill perionnel to depiane me. Let me sign OHwith a note of appreciation to Gini and But, by far the majority of flights have been problem~hee, Joe for their goad work with the RehabifMon Gazede. and airline pemnnel have been exkemeiy helpful. My And, a special word of appreciation to them for this op- wife and Ialmost aiwavi have1 to~erherwhich iureiv re^ oorhmih,. thev've. mven me to sav "it can be done -and it ducer many patentiai hifficultier. i have uruai~yfound it riil hc 1.1 M n t I,.. . preferabie lo rimpiy arrive at the aiport with our tickets to ,wnr .r I' ..I C.4, .I.," 8, l,,, I,. 'r ,,.n,:l c.,,n.: in hand, and not give the airlines advance notice fhali use 11:.>, uu ~ . . tour to Vina del Mqan over-rated Pacific coast resort, and to Valparaiso. the ~rigtnalPacific coast pork Lima is another dm. cirv. me rheeb not only stink of urine, we oken had to noa streams of it on the ~idaualk. fede and through a As in so many South American cities, there are the Gold At the end of the three~hour,66-mile ride, small bw Museums, the archeolaglcal mureumr. only this one met us at the stanon for a shuttle sewice up the Hiram added a room of archeoio@calporno. No exha charge. Bingham road. This war areria of 14sharpligagruns up By the time we reached Lima our money war Rlnning the ride of the mounlain to the hotel. Eveybody out to out so we urnred Quito and Bagota ofi our tour We flew walk up and down and around a path before the 5te home hom Lima, by way of MeMco City, aamving on De~ cembet 11. Our36 days of hotel moms from lux- un/ at $50 a double room at Manaus to $13 at Lima. averaging $26 a night, induding a continental breakfast Except for Venerueb, the voltage is 220. Many of the I~C~~Dhave round instead01 nat hoier. ~ri"~adaptars. Also bring razors, dverr, etc, that may be "red on either 220 or 110. Some hoteir provide h-anrfolmers. We were amazed at how ~IeleleleUy and quKi".y tho hotels removed bathrwm daars that were too narrow lor our whoelchairs Houever I would still adviie taking along a slipcovered folding shower chair Three in our paw spoke Spanish. In Bradl our ear; rather adjusted to Pormguese or we used Spanish and English. No problem. Editor Eileen ~nra guest residence in Guadalajm far men and inwheetchairs. 11 include me&. anen- danf care. and Eileen's knowledge of the amactions 01 iif?en van Aih~"of G,iaddb,aro, I'1u.no. oild ller rolillliillun, Guadalajara. Her address is Eileen Van Alben. Apdo 5- Joyce Sheken, on the boordivvik m HurnoiAir by Doris Jones Ihaveled to Hawaii with my parents and aunt (all retired) and a Qlr1 hiend, who has a bad back due to two dix operations. I am porlpaiio and use a wheelchair I have fairly good amand no use of lower extremities All our have1 arrangements -re mads through the Automoblie Club of Mioun IAAA!. using a IO~nightCus- tom Itineram Tour Packaoe of island Halidav Tour Com~ cub. Dnving back viewed L4D Needle, a volcanic rock . . formatinn. Lower uieumaint accerr8bIe Uooer. . view hm p"ce range. double occupancy. $175 dar rental, mi- many steps. Dinner at a,,port Teminal has one enhance mediate size station wagon. Budget RentL&Car. $249 pius step. Accessible rerhoom. Rerraumnf haelevator but bur gar. $50 per penon. steps d enhance. Fin1 day Amved Pacihc Beach Hotel. Across the stet Sixth day Breakfast. Waikk Surisrisdd. $3. DrovetoHa~ hom beach. Ocean view hom ianai. Fairly spacious room nama Bay, Blowhole, and Sea Life Park Hanama beach with double beds. Efficiency unit with hitchen and utensilr. has lower level parking lot. gmd view. but too much sand Toilet and basin accerribie (no grab ban! Management for rolling. Blowhole has rwmy parkng lot but viewing will remove door if you wish to we bathtub. Dinner a1 areadawn4~5rtepr.SeaLifeParkamudforwheelchaired. surf, next dwr. $3.50. Weil ramped, hee enhance to wheelchaired. all shows and Second day Eady breakfast. $4. Droveto Kodak Hula oxhibi* accesribie. Lunch. NRI shopping EPnteq Sl"a*. Show in Kapiolani Park. Free admission. Show rta* at $262. Good faad Reshwm inaccessibia. Dinner. $12. 10 am., but suggest amMng at 8:30 for a gmd uiw Willowr Rertaumnt. Ramped enhance. Exceilent Wheelchaired enter ahead of line. Back for lunch. $3. Sevenfh day. Breakfast. Tahitian Lanai. $5. Ramped en- Drove to Pamdire Park, 53.25. Only ~ddlyaccesSbie. tiance. Pooiride or thatched hut accessible. Shopped Ala Need help from pusher hner at Pwa Hut. $3.75. Five Moana shopping center Accessible shop3 and escalator block from hotel. All curbs cut alona Kaiakaua Avenue Lunch, Wooiworihr. $2.85. Drove h Ala Maana Park, wheeled to water break point. Dinner. luau at Royal Ha- waiianHotel. $17.50 for dinner and enteitavlment Steps at entiance. Eighth day Breakfast. $3. Drove Lo Punch Bowl, National Crmetely No arb rub at cemetery For closer view of Memotial go to upper parking iot. Drove up Taw Fouh day Breakfast. $4. Drove through center of falur to Round Top lookout. Accaibie. Lunch. $3.50. idand to see p~neappleand sugar cane fields. Weimea Spent aflernoon sunning along beach. Dinner Spashem Falls. $2. Murt hawe pusher to get to and ham falir. Lunch Factow at WdrShoooino .. Center $6.50. Accessible via near lab. Pmud Peacak. $2.35. Ramped. Accessible parking lot to elevator resnoom ino gab bani. ~rovralong coast m ale. MOC~ Ninth day. Breakfast. $4.50. Dmve to Lde for iuii day mon Tempte grounds. Beautiful ocean views fmm car and evenino at the Polunerian Cultural Center Round hi0 Dinner. Surf. $5.50. Evening rhali through intemational if90 m~lei~~dmirrion~$19.50. ~nciudeitour of six south Market Place. Pacific viilager, evening buffet dinner and show Grounds Fifth day. Up vev eariy h oich plane to Island of Maui accerribie~ ~ but need a ourher ar surface van=. Same rert~ for the day. Breakfast at airno*. $1.04. Rented another r~omaccessibte. LU&. m~kbar $1.75. SbtiO. wagon. $4a. $8 per psnon. Drove up volcanic Mt. Tenth day Breakfast. $4. Drove for another view of Haleakala for a cool 10.000 feet view of cmter - no Hanama Bay and Blawhole. Lunch, Stua*. $6 ispiurged charge. Lunch. McDonald's in Kahuiui, $1.35. Accenibie on huge shrimp salad). Drove to Paii Lookout. Accessible. rerh-oom. Drove toold whaling village of Lahaina. No curb Dinner Holiday Inn near hotel. open air ianai with view of M $9 all you can eat Accerriblevia tosecond or on the mainland. Send selfmddr-d, stamped (28~) level. IegalLrile In0 101 envelope to Hawaii Visitors Bureau. 410 Eleventh day. Breakfarf $4. Lunch, Jack-lnThel3ox. North Michigan. Room 1060. Wngley Building, Chicago, 51.84. Dinner Sud. 54. Soent dau oickino uo souvenirs lllinoir 60611. ,. ".~ and packing. ~nivedaiwriat 10 p.m. to tum in car check baggage, obtain boarding pas-. Flight departed at mtd ROTAnY MT€RNATlONAL EXCHANGE in March 1978, 20 dir~ night hom this lovely island. abled people from Sulrey. England. each with a no"- Editoi Dons has oflered h help anyone unth qudons disabled aide, visited Connecticut lor thrth week. In a about Hawaii. Wnte to Dons Jones, 9822 Eartdell, unique exchange program. 20 disabled individuals horn St. Louis. Misou. 63136. Connecticut. with aide, visited England in March The The 1979 Hawaii Viritorr Bureau Member Hotel Guide exchange war rpon~oredby Rotary Wheels, Rotary lntei lirk 258 hotels. apamnenti, condominiumi, cottages. and national. Dlsirict #798 The famiilrr of Rotary members in lodges. It include rater. amenltier, and aaertibilih/ infor England acted as hark. The Rotary Club paid for all ex- mation. Free hnm Hawaii Visitors Bureau officer in Hawati penses except plane fare. EquipmentlReaders' Ideas by Joe Laurie The Rehabfitanan Gazette doer not .,crept ony adue*ing The 9"dS-ds ond devices presented here vpre gleaned by the edilors1mm modem' letters nndothersou-. Theyarep-ntedw jddlor the moderrto pumon their own bymdinqfor bmchumand lam prim. The G-re doer not *pr~mllvendone ony pmdud nor accept ~onwblii,y/orony aDprorimG+eptire led SIDE OF CUAIR BATTERY BOX REMWABLE FCOT RES? Automafed Utinafor I1 In-l!ne Fure Holder - Radjo Shack ALTOMATED WMATOR "A common problem of active X270~1281;K Amp Fvre - Radio Shack Y270-1271 21 Mo- C45 qua&. who ather work or go to vhoal dwing the mentaw contonON~OFFSPSTTW~I~SU~~~ M~C-XII day, is how b emph/theirlegbagr. TO this prub~em.a TS 15~6.31 BoxkK x 2% x 1% - Rodio Shock 6270235. device war required that wodd (A1 be able to dmin in the 4lSoMerierrBullConnedor-R~diiShhhkXM303I SIPaia- most inconspicuous manner: IB) positively (no leaking1 mdDiwanneb-RadioShackY270.026 61 SNnnerSubmhi open and close a drainage system: IC) be conaaive re- olum Stniniess Steel %" 2-Ww NamoiClorai 12 uoi! D.C. Zem sistant; /Dl be operable by a quad. DillerelioiConimi Value-SLinnsrXB2DA 1026. 71 1RGauge "First, the system had to be operated in a normal riMng Stmnded Wim AWG. position, and not be turned on and off by leaning over and 1979NOLLIME MI 47 ELECTRlC LEGBAG VRLVE. The manufachrierclaims that his new eiechic legbag is .aary to mstaii and to operate both elocuically and manually and that it is ddgned fur easy cleaning. it is well hidden under pan&, light 16 02.1, of bras conihuction. and runs OH the 12 volt batten/ of an elechic wheeichrr It mmes complete with runtch. {us-. wire, and wiring diagrams. $17 including tag^. FO~ more information, write David Robinmn, 224 A Siieef, #2, Douis, Callfamio 95616. M.zrl(i.lll\\ I II NU, iUW 1 nl1.r If!.nrrp. .J Tech r.. 1\131 :.#..r)..ab.,. :nr, , F~,.,,oN. , ,! t,3,, .,.qr..,r. I. :-r.rmn; ,llL "d.1 .,,..c .I .*S.Jl(, *a. t,,... "Fdi *' P'I'J. .,.cg *,I. .,I rll pr, . 3 r,.",,,,., CL I,<: I, . \ 1,. .m> .?s.J res,(VG. 1,;-r L. 3, ,,NJ 3c~~~r~r.I ny , I.,.. I ).ILJ'I:. ~nr,r 11 .~#n.d.I in. ~mn.. . .I\.!1-1 ~p..:li.:~!'. ~.~rl~c.~.\.w., ~n:, 6ttmg this description war available from the Sktnner Elec hic value Co. "Next. an inconsoicuous means af drainino. war re^ Communication , . BioMC YDlCE. Designed around a Computaiker Conrulb the legbag. This Is connected each moming and taken aH tants CT~1Speech Sydherlzer, Can be operated lhke each evening. a spelling board. without knowledge of computen. Mork "The drainino is ciore to the mound sot is eaiv. b -OD Dohmke, MCD Consulting, 8306 Selfeck. 600 Nonh 15th outside, nonchalantly watch the birds flying by and, at the Street, Lincoln, Nebrmko 68508. same time, &n the legbag. The eieanc ioggle switch war mounted on the ride of the wheelchar and can be easily CANNON CDMMUNlCATOR. Created in the Netherlands and ooerated bv hookinq a hand or Bnqer over a dartex ten^ developed in Japan for non-onl. mohr-Impairedpem.. Letters or symbols are selected on the keyboaid and printed on a paper display Can be wom on wnrt Tele- $ensoy systems. Inc, 3408 Hill~iewAuenue, Pah Alto, cafijomio 94304. CEREBRAL PMSY AM) COMMUNlCATlON WHAT P-S CAN Even the leg rparmr, which may be violent. have not dir~ Do 121 pages. Jab Development Labomtoy, George connected the legbag rubber tubing from the valve fimng. Washington 0, 420 Ross Hak 23W Eye Stre* NW Exfra iegbag tubing is provided far the distance hom the Washington, DC 2WZ $6. legbag to the valve to accommodate the wasmi. All com- ponents of the ryrtem have proven to be reliabie and no COMMUNICATION RLSOIIRCES FOR MEDEVELOPMENTALLY adverse effect ha. bee., noticed on the wheeichair hahey. DISABLED A GUIDE TO P-S. PN?APRONSIOix&LS AND Fmm experience, it requires hom I'h b 2 minuter to cam- PRUFEsSlONaLIi 2SIwge guide. Job Development Lobo~ pletely empty a dual legbag. mtoy. (See addrerr above.) $6. "From the diamams I'm sure that anvone with a ILtde mechanical and elechica abilib will not have any trauble DUTCH REMOTE CO-OL Pelronic3 of Use. har de~ Installing this system If any additional information is de- sired oleare contact me. Pouf Bemam. 9371 Hazelrtdae Drive. St Louis, Mimu" 63126." 48 MICROPROCESOR~BASEDCOMMLMlCATlON ND. ''Expre Ili the lok The dnver must have one good hrnctiona1leg and can be programmed to use scanning, encoding, and direct fwt for rteenng and enough use ofthe other leg and foot selection. Available with ship pnnter andlor video dispiay. or hand to ooeratethe brake and throMe. Vanousmethads Resembles wheelchair lapboard. Romich, Beery & Bayer are used ta secure the dnver'r foot to the steering arrem- Inc. R.D. 2 Box 191, Shreue, Ohio 44676 bly. Basically, the conhair are custom-made to fir each individual. Presentlv the work must be done at Kinmbumi . .. . . - Italian. Designed fo;cbildr& and adule. C&wwdCom- power brakes. They are adaptable to motor homes. vans, pony 331 South Thhd Sheet. Box 04513. Mluoukee. Wisconsin 53204. "POPSTW TYPEWRrrEWREMmE CONTROL. Relatively manufactures and supplies fwt-opaafed ignition witches. rim~leand inexwnrive Enalirh device mclude Smith knee~operaieddmr openers (both interior and exterior). coknd dechic bwiter and loyitlck controller Reho~ bod" rtabiierr, brake bmrten. b ear selacior controls. fwt bilitadan Produrn. Limited. Pettaugh Lone. Gasbeck, Im- brake and throttle extensions, and other modihcamnr. wich, Sufjolk, England. Comemn Enns Co., 13637 South Madren Auenue, kings^ burg, Colifomio 93631. SWEDEH RESmRCH REPORE. Technical Aids for the Soeechlmmlred An hitemadanalrurveu an research and GERMAN FOOT CONTROLS Dz Emest Maquardt, an oltho~ ~edicsumeon at the Unlvorriw of Heideib~m-. - the catalyst in hedeveiopment of a foot-conhoi system for his thalidomide patienk. The 6m of Brawn. Bovene et Cie Information centre, Fock, S-161 25 Bmmma 1, Sweden. modifier the Volkswagen "Golf' (know in the US, as the "Rabbit") for mler- dtiuerr. Evelything, including radio. TAPERECORDERFORQUADS "Ea~icorder"may be operated warning lighk. and windshield wipers, can be operated by by slight body movement, mauthrtlck, or breath. Battery the foot or knee. The car is steered by a pedal operated by powered, portable. Romich, Beery, & Bayer, Inc. R.D.Z. the left foot and fined to the shoe of the d~iverSteering v Box 191, Shreue, Ohio 44676. accomplished by moving the pedal hnvard or backward. In addition. there is an automatic reat belt system. National TELEPHONE OW.Protttupe of a new digital telephone dirhibutor for the qrtern in the U.S. is DieAMatic, Inc, wnh a slow dialer has been developed by The Techniml 4004 Flfth Rwd, Nonh, Ariimgtan, Vi@ginio 22zm. Aids Deportment, Soskalcheluon Coundl for Cnppled Children and Aduh. 1410 Kilbum Auenue. Saskormn. COMROLS FOR MGHLEYELQUAOS At least four companies Sarkolchewon S7M OJB, Canado. VOICE GENEFLATOR. Bahev~operated. portable. 128 phrases in adult or chiid voicer, including iarelgn lan- brochure are iree but the ryrt~msare not! ability EW & guag-. Activated by hand, toe. or mouthstick. SnTroronics, Dev, Inc, 7131 Hoyuenhurst Auenue, VanNuys, Califor- Inc, 523 South Clemell Street. Bethlehem. Pennsyfuonio nio 91406. TawetInduMer, Inc., 1264 Union Streel, West 18015. Sprindleld, Mmchuretts 01089 Llft Aids o/Term, Inc, 2381 Pemn Coud Fort Worth, Texas 76117 Lehr TELECOMMiMlCAnON NDS FOR DISABLED PERSONS EY THE Produds, Inc., 340 South Pine Street. York Pennsylvania NORDIC COIMTRE Telephone adaptations for various dic 17403. abilitie. 25 pages. Free. ICTA Informotion Centre, Fock, 5-16] 25 Bmmmo, Sweden. BOOSTER SEAT FOR SHORT DRNERS. "We have a setis of sketcher of bwrter seaa we deigned for our son. Donny, who is disabled by oiieogenesis impedecia and who k 3'9". We also have llrtr of name and addrerre. of companies who make hand cont01-o" Mr &Mrs. Dan H. Driving Gardner: 1112 Felton Lane Aubum, Alobama36830 US. FOOT COPrmOLS. Cameron Ennr, who lost the use of WDCONTROLS AM] RSSETNE DEVICES FOR ME PHYSl~ his arms because of polio, developed a system of foot CALLY DISABLED DRIVER Informative. illustrated manual controls which his company has been manufacturing since published by Humon Rerounes Center, Alberuan. Long 1956. Steenng is accomplished by either leg. preferably blond, New York 11507 $3. 1979NOUIME XXII 3um3NDLL\ilI,lwR~ 1"Pqlano 10) EdOlS lama) q!!m almxlw loqor~6Q DO oorle pue 're6 leweu uo ,>au~ap,, qwada 1p"16aql'~anamoq :aqars6 uo uru 01 pau6mp ale lau!S"a anaqi apvw ale rlapow,a!neaq "an1 luaun, 3v )O %em 000s 01 dn qr!urq [I'm pue 9apow hnp Aneaq 01 d" ad64 alqwdiq6g aq, wo,, a6uu n!"" araqJ, ZW9 O'O"UU!W 'I!lOdoa""!~ '3M '%""an,, p,EL WPT '03 S""N~D/""D~"DUO pue mES 'Y!SU"S!,,, >atqox ''03 dai40~woi) alqq!ene am uoleIauaS fiq-puqr 'pazdnua~u! "ago r! lamod araqm mqdu! pun rvam aowa~q aldoad '03 'X3MOd 318U3- hWJN3W37dd"S 110 AJNJ-iHM a1qnop ,a a!Sus 'slapat" omL penb o-E3 e >afia(a~mqlv liq paim2ejnuew pus pau6iaa mmruHUM sxna 10916 0!"0h103 'IUW"8 'Pa OPWUaJ- UOS 6LOE 'PUOWU 'quj rwasiig Ualw,$,l PUP LZZS "!SU"s!M 'aaynom . . -1'W ,%.nuan,, owoqop,O la,+, 1190r ,"I 'O'q, ::q,au ."6!saP mo.4 punore ream "m "06 Q!"" pws n3mm wm\I s,~s~lu?e)nu~w~eln3pmd Q jo lenwddw lo lanoidde re panqsua, aq plno, qqqm qlnral .4ue paqqlqnd lafi lo" req VA aq :pa[!dwm 6uwq ms am SIJQ lo hap^ pue 'hmqeinp 'ilojwo> 'uon~unlaqi lo! uonwnu!wpv suem ,a,, aq nq padolanap Smaq rpmpuqr aqL upn annow o~neue ow! ~mqqaaqmv ar rhvm lanou jo ma& haha SioiWuqeJ *>om am smqi ieqi waas smp 11 swn 803 'ZPZo6 ~lwohjo3'fiaumoo 'fiOiomq6!H!ouadu1lfm3 r09L 'j~l!dso~ .. . EaS!"JV so, oq""oX 'luauircde~(MaraqJ jouoqodn,"0 = il!nq am uone~adou! mu!snqmo daay kl i(q 04 pqma 'YO$!M 6~00'SF~B 'rwefioxd Suru!rrq xanup dn Suq am 'ew~'ajn i(w jo dlaq pun po3 jo a3uS aq qi!~ mu!roq Suneaq pm 6vqmnld aq u! rem I 'mnlu! fiw 10 awn aqilv -?>am3x3 e u! Jffialdupenb e awmq 1 '1~ lo a6e aqi 1- 'MI "I.. la^ ow T~OH804 MI ~IWIXO~ rock, New Jersey 07601, created an adjustable dauice to activate the pedal! with the palm and wist. RESTROOM. FORTMLL. Fiberglass construction. Lalge chemical holding tank. Urinal and one-holer with gab barr Deck. mmp, and handrails dismantle for relocation. Hauling mhavailable. Designed for camp, park, and recreation areas. About $1400 plus height. L & L Monu- foauring Co., 1222 ~orlh~oncher~venue, FW"O, caii- fomia 93727 IWNSFER BOWD '1 have muwular dvsboohu, .,~~~~ and the muscles in my hand5 and amr are going kaput We made my hdnsfer board of plywood. 8' x 28. and reinforced the center underneathwith a thin selp of wood. Covered it in slick plalartic by stapling underneath. Glued rand~aoer / under ends lo keep homrliding . . . NoNsUP TUB ~6F.5 Arthur Heyer iC3-4 quodl, cngjheer ,,it! n>uentur oinri ha ,leu I slue the nowerr for tub bonomi on the edges m my hands won't slip . . . Pinsllc PADDED TOVET 5-T K-Mart has one for under $10. With k my transfer board does not slip OH." Nofolie Pavani 4632 Pennsyivanfo Auenue, La ~ ~ The mmpiny, E.eensionijor l"dependen LETS GETECmCAL Reptins of BuUanr 1-8.Rehobifito~ tion Digest. $3. Canadian Rehabilitation Council for the Disabled. One Yonw Street. Suite 2210, Toronto. Dntano M5E 1E8. Canada. Wheelchairs & Accessories FOOL AD, ONMAW. The "Mwphy," a six-porition bridge anaches to any standard cue. Chatiton Mfg. 3511 high^ ooy D, WeBend, Wimnsin 53095. PIANO PEDALMODIFICATIONSFORPARAS. Apianotuner. Bob hMlC0 BOOTS Baltey~powered, four-wheel platiom to Megee, developed and marketr a fore-arm cone01 model caw Amigo over mush or snowy mound. Amigo, 6693 that is clamped or wrewzd to the hont of a piano. Megee Dine Highooy, Bridgeporl, Mihigon 48722. Piono Pedal Control. 8520 Lonkenhom Blud., #3 Oliue, North Hoffywwd.California 91605. Another piano tuner. AUSTRALWV TRANSPORTABLE CAR SEAT "PA. Bnody, Gerhardus J Wolkoften. 460 Simons Auenue Hacken- 8 CoUard Street, Balfarat. Victoria 3350. Ausbalia. has in^ 1975NOLUME XVn 51 vented and patented a wheeled car seat which detaches The FESPIC Informdon Center fir the Disabled, Japon hom iB base and moves into the space formerly accupied Sun Induwm, Kamesow, Beppu Cny, Jopon. by the parrenger bucket seat. . . There is no lifting. My housekeeper can put me into the car in a iew recondi." MOTORCYCLE SIDEm A Honda '400' automatic can be Erich HG Kreii, I5 Tester Driue, Blockwood. South driven hmwheelchair mounted on sidecar, passenger Ausmih ,5052, Aunmiie. rides on motor~ycle. Tmco Entemfisq Inc, 7701 Hoouer Rood. Volley Center, Kansos 67142 BACKPACK brge canvas pack folds to smail much Vela0 fartenen. Caouaruorb, 31 Regent Street, Cambridge, TABLE WmCIIRRYINGCRSE Faidr m haliand fiti lnio cm. Massachusm 02140. Gonnan Producrs, 189 Lake Snea, Brookiyn. New York 11223. BEC ENGLISH RECLNER Lightweight, eiechic. Biddie Engineering Company Ltd., la? Stourbridge Rood. TRAY FOLD~NG.Ovemll working surface oi 1Q x 48". Halesowen. Wut Mrdionds. England. Creotiue Enterprire, 12413 Soulh Mood* Polar Heightr. fllinoir 60463. rnlcYCiEs on ~~~crncBEES Pedolpouer, Generol Enaine? Co. Elermc Pmductr Diuision. 591 Mantua Bou- leu;ird, &Gll. Neu Jemy 08080. ~nothorbattery-pow BMW. Can be engaged so chair will go loward but not sred nicycle L1 made by Polmer Industries, Box 707 backward on inches. The Cokon Cornpony, Bor IOW, Endicon, New York 13760. Caruthenullle, Mlrrou" 63830. WHEELCHAlR~l. Repo* of a four-day workshop that in- m~olmruL.~w CHAW climbs curbs. travels racb cludes recommendationi for manually propelled chdn. ground, ,ides escalaton, and adju* height. Hand co"~ 1972 Publications Oflce, Rehobifinon EngineenngCen~ trols. Douglas Boil, 88 Rue Sointe Anne. Sainte Anne de tei. Moss Rehobilildon Hospital. 12th Street and Tabor Belleuue. Quebec H7X iL8. Conada. Rwd, Phiiadeiphia. Pennryluonio 19141. $5. WHEELSKI TrL-rki pianarm far wheeichak. Padded Steer- ing wheel. American Perking Equipment. inc., Box 47 Madison Height., Michigan 48071. ELECIXK "MOBILri MACHWE '' Swivel reaf powered reat- miring mechanism. rear axle narrows by ax inches. pneu~ matic 6rs. Matouatoi. 1733 Border Auenue, Tomnce, Cali/ornia 90501 TI -..\,N.i'*n !LI,: m~. DC 20036. Beautiful unes of bookletr at a bawgain once of 25~.~eyond the Sound Bomer (deaf). Countemoint lhrabled twaid nondkabledl. Digmy irnenfally retarded). Fm WheaI#ng lwheeirhdredl. the Inusibis Bottle Id kderal fun* ,"ill haveto be mad=aic=~ rible. 121 A major field suwy of federally omed, iunded. or lewd propelbe5 is being made in seame. 5.3" Franciwa. Dallas. Atlanta, Kansas Cqty Philadel~hCa. NewYork. Chicago. hton.andDenver 131 A" agreement war reiichrd in st Lou= toorwide rah aouino beneath an - .* mas-ible rkyalk to tho ConvPntion 6on of Phyrical Plant Adminimamrr Blind of Mvaihrr and Coll.g=, 11 Durn", Centel The An of Moke-up forthe Vlsuollv Circle, SUle 250. Washington. DC Hond#mpped.24 pager $1.50 hom Archiieduml Banien Remwl. Glude 20036. 54.50. to -urn, hndinri and federal publl Braille D~.m~"t,Ughthoux, 111 East Hond~eaperAccerrib~f~,~Mon"~Ibrihih59th SoeeL New York. NY 10322. cadanr. Free horn D~~.mn."t olHaalh. Tmde Shops. PRwdfor the unlver Education, and WPlfare. Washingon. DC Don Glillarau of Denver has born ao~ 20201. kkfor DHEW Publication No. sy's carpentam, eiectncianr. Free hom (OHDSI 79~22006 Maw Bug~mke.Phyrivll Plant DPM~ msnf. George Washingon Univeoik 2133 1 Soeef W Washington. DC 20006. ~ ~- 504 ond the v(suaiAm and 504 and A Hondbook on Tmdle Signs ond Lorn~ Plonning/or lmpiemen',,~~" of sedion the Per/omlngAlt- 32 paw each. tians cuesfor IheBfindandv~*"o!lyim- 504 ot Colleges and uniwrsda BY Amactive! Uuhl! National Am & the mired. A gujde to 5War it relater tothe Sham" wtler Flee horn m-AUB, blind. Dialogue with he BLnd. 3100 Oak Suite 704, George Warhington Univrr Park Avenue. Benyn, lllinaii 6M2. sb, 1828 LSteer W Washmngon. DC 20036. HorpitobleHentage. By Alice P Ken"% Bantus. Amlvdln.1 Superb rep,, on mvrevrn act- H~b tow Depamnont. Cedar Crnt College. AII~ntom.Pennnlvania 18104. Mureurn and Hondimped Studen&: and Spanish. Guidellnesfor Educm". 163page booklet Free horn Hamld W Snidei Coordinator of Programs for fhe H."di MomsnNm Talmt Management 228 Candlelighterr NoiionnI NNNNI&C capped. Room 3566. Nanonal AV and East 891h Swat. Nrw York. NY 1W28 123 C Street. SE. Washington. DC space M"roum. srnithronian inrtltution. Theahical and inlad ag~nn,rp.&iaidng 20003 For parentr of children and teen- Washington. DC 20560. in fvnhering he amitic cml? of Ule age= with vlnmr In Englmrh and physically disabled. Soankh. The Smithminn's Naaonal AU and Space Mure- has inrtalled a brallr PmducingaPubf~cRefotiomPmgmmIff lnlem~nentcathefehtion wai ruled a reading machine. DlrobiedAd"b. Phil~phy,hchniquer "health rennce- ,a be nrouided by the I," I*, .I., V..,". , a-I,'". I .,,I ,,.,~,l,ll:.~., ,,,, ,., Acc-lblllw, Churshas n:- ,, rlln 21Tm.' b... ICtll, '1... . C. R9l.11 RII~IYIIVI T. <. b<",lll I.." I I I I,.. ,A I.., )',^ ~I," A-Sunday 1979 and A- Sshh ,, , . , , 11,. ;,! .",, IIC) /I *.., ,, .>,. 8" .:,,,,I., Study guider and mstDnd available hom ,,' . .,. , h Harold Wilke. Healing CammunlN RehablUtationR-rh lndtufe on AM 139 Walwarth Avenue. White Pidnr. fudmal. Legal and Lriium B~msm.1828 J~netALSchml.~y~au!~hitr. sfmy of New York 10606. 51 each. L Strapf. W Suite 7M.Washingon. a young grl with rplna bifida. Beamed to 1974NOLUMEXWI 53 ager 8-11. 26 pager $5.79 nomas Y Le Chic. By hlay Lou 5piesr Lja Bee- Labor Depamnenf'i is 202~523- Cro-11 Cammnv 10 Ean 53rd 5t-i son. and other members 01 the Califumi. 9512 lor 503 informahon. Nsw York. NY 10022. Arrociation of the Physically Handi- Ld Me Plou BY D.J. Jellrerpe. R McCon~ capped. Cleativo (dear and t.chnsuer key, S. ~rwro.. 1977. Souvenir Pierr for adapting clother. $6 horn Le Chic of CAPH. 5608 Holiday Unw. Box 22552, Edusanonal & Academic Ltd.. 43 Great Stockton. Calfomla 95207. Ruse11 Sben, Londnn-~ ~ WClR~~- 1PA leg=, Washington. DC 20017 England. 245 pages. Paperback f2.50 SeifHelp Clothinglor Children Who The National Hearing Aid Socley hsa IAbout $6.1 Haue Physical Dlrabiblh. By Eleanor bllblree hoiline la anwer quertionr Boetfke HoRe 1979 rpulxon. Emphasu about heanngaidi, headngla, and help Let's Ploy Garner By KB. Cmk~nnd on encouraoino inderxndence 51.50 -- . in problems ivlth tho purchav 01 hoanng B.J. Falrrhild Mom than 50 gun- tor plus 75C pmtwe. Natiand Easter Seal aids operater Monday through Friday age 5~7. 8~11.and 12~18.$1.25 plus Soriey 2023 Wert Ogden Avenue. 9 am. to4 p.m. 800.521~5247 7% postage. Nabonai Earlei Seal sari- Chicago. lll>ndr 60612. ey, 2023 Wert Ogdrn Avenue. Chi% The Sunbeam Shop, VGRS, 10455 lllinols 60612. cameg. A"."".. CI~uel3"d. Obi0 undeniundrnngstuaeti"~:I~formodod",~, 44103. Cmf iyle dnr~and coordinated National Center M Employment ofihs Porenu By E.B. Caopei Edn. 3% plus sopamhi hrten wth %Micro $17 to $23 Deaf. 25~mfd9e. National ~artersal 5~i- range eY, 2023 weit Onden Avenue. Chscaso. 1978fNo~onoICatholic Diredory o1U.S. Uiinorr 60612. Porroral Workem wYh the Deaf. $150 Ngtional Catholic Office for heDeal. United Stater. The hllavlng publlca80nr Trlnmy Colie~e.Waih>ngton. DC 20017. are auailablr homtheha"ranCoali6on of Ci6leni with Disbllitier. 1200 15th Stsesi. NW Warhington. DC20036. Phone. 202~7R54265.lnduldual mem~ benhip in ACCD k $5 and inrludpr newr1.no~. The editon ol ,he Gmm urge ill readen h,ainandrW"gthcn,he A, ,181 8v,. 1h.x a!&., 5,. I .,w Cm? I'lm 76. A tV.r~.,.>*1.. ~~... ,,I. cause of the drabled through coaltion. By ,I . i" .,n l me. i ._I01 ? 17 ://I Handicap~ingArnenca Frank G. . Bowe. PhD $12.95 Cdnion Bu?Idtng. $5 25. Plonnm E/lediue Aduamcy Pmmom $5 25. SeliliHeIp Gmup an Rehobilthllion. $1.25. . Canada. The Coalition of Provmnciai ~l~bama,~lab~m; 35486 Organl2ationr of he Handicapped ICOPOHI rr an alliance oipioumdol dli~ B"dal gavnr for wh.elch.,md wm abled onrume. nwnutionr acrm drvelopod by designer Michele Plccione Canada National oordinatm oris Jim Office for Clvil nghn has m in at Nhed Angela, lnr., thmugh cl project Derkren. 819215 Gany Sway Winni national 120247229161 and r@and of Drexel Univeniu's laihbn devgn peg, Manitoba. Canada ol6rer lor 504 iniormauon rerearch if"dl0. Silent News, 193 Main Box 307 Clothing Dengns /or the Handiiip&. C~mnrvnltyInvolv~m.nt Unmln Park New Ja~y07035 By Anna Kem.leguan. Charming book! Monthly neurpa~~86 per year Derignr havrrealiyle Gearedtoprofec Communw DeuelopmentBlock Gmnk: riondr and home rwer Ail twes 01 A Monilonng Guide. 50L Citvenr in^ TYlegirlahon m Connecbut 1979 law clolhing and asreaoner hr ill ager and uoiuernent in cornmvnw Deoelopmenl: PA. 156, requires phone rompanier 9 all dlmbilltier. Com~rehenriuer-uca A" 0pporNnw ondaChaQnga $1.50 provide, rerdce, and malniain m center tor Communiy Change. 10W lliU 271 page. 1978. $15. The Univrr- 5 Senate'r numben: 202.224- W~ionrinAvenuo. Washmgton. DC U m sty of Albena Preir. Athabawa Hall. or 20007. 2793 3997. 24~hourreMce Called Room 450. Edmonton. Albena Tffi mevases are given to their state's wna~ 2E8. Canada. tors or stail Denim or mrduray jeaniandjarLelrunth DadiH&ng Impaind e1ainc mwbandr and Mlcm c1rurer. Closed Copdoning1or Teleuirion. Free Men's and women's. All ages. SdfS,a,I brochure on adaptor unt torrlorad~cap~ Manufacturing Cornontion. 167 O'Bnen tioned TJ National Captionlns I~lbe. Hlghuau Cambtidgq Merraihum* Box 570M. Weri End Sation. Washing- 02141. ton. DC 20037. ALSSOA. PO. Box 5951. Shsrman On CampusiOllCompus Degrer Pm~ Oaks, Calilomia 91403 gmms far Panrtm~studen* 120~page paperback Nearly 2muniveoitier and Autobiogmphy ofDying. By Arrhle COIIS~~S inme US. onsirrundermduate Hanlan A taped dlry 01 expenmc.r and gnduate degree prwmilor ihl- wilh AL5 sham inreha that wedneed den* who attend werkandr, eueningr, or to mi to undenland. 1979 193 pa-r. on shortM~rmbad8 5525includingpat Doubleday & Company. Inc. Garden age Pelerson'r Gluder. 228 Alrxandm 90W. Washington. CC ZOOW. Cilv New Vork 11530 Sweet Pnncefon. New Jrrrey 08540 J0b*/0, Hnd!mpped Pam"r A NNN Praceedingr 01The Dinbled Shrdddf Em in Ciuil Rlqhrr Excrllent guide to al~ onAmencan Campurer Seiuiiesondlhe firmativinveaction. reasonabler~ommda~ sate ofthe A* Thit nabona1 confprmc. tion, and oub-each prcgamr 50C Public . . Aff8irr Commifiee. 381 Pa* A-ue wlde information bank hom is member South. Naw Varh NY 10016. rac,eti.r and other rourcr. wornngrogether rhe KEY a JO~I,, Liuing luth SLmk Wdeotape lor dm- fhe Hondlcapped. A" AFL~CfOGuide. abled and their familier loaned lor two Free lmm AFLCIO Human Reourcpi week ire.. Rehablllbtion Rewnrch and heiopment lnatute. 816 16th Stroa. The ScPerrce Edum&n/orHnndjmpped Sfff Tmlning center No. 9. George NW Waihi"*on. DC 20006. Warhmghn Unlvrrslhi Suite 714, 2300 I denk April 1978 conferenre. 19kpage Scree< NW Washington, DC 20037. proceedngi. Nrmonal Snence Teacher. Auoriahan. 1742 Connecticut Awnus, Pagel's Diseaw Foundation. 325 Engle w Washington. CC 20m. Street Tenall%Naw Jemey 07670, re- Candidate who has rurrerrldly emad Stephens College Without Walls, Schml pons that the hormone, wlcitonin, wn her MA degree har beon unable to find now be made rynihenwlly and can be o! Libem1 and Pralesbnal Studier, Box an emolowr. . whowill hire her on arequ~ ~~~~~~ 65215 self-administered. 2083. Columbia Missntm ~~--~~~~-Fros lar barlr as an educator due to hmr dii~ cat.& of guided rtudlpi in 0no.s home abOity IepOepiyi. she has don. romp Stoke: A Guide /or Fnmily rind Friend.. free-lance writing for educa6anal TV By John E. same. m and Manha Tay- IWQED) and would like an opportunity Im McGiawHill BookCo., I221 Awnup 200 Ways to Put Your Tolent to Wok in the Heolfh ReM Free brvchuro hom o ,""a for publirations on a rermlar oi the Amenwr. Nnu Yo*, NV 1W20 bar& For details, contact Mls E. LOU* Paperback. 84.95. National Health Counol. In<. 1740 Broadwy New Yark, NV 10219. Woods. 7601 Wpit Adamr Sheet, Forest Pa4 Wnolr 601.W. Lmp1oymeol Educsdo" Fir* Safety Able to WrC By Bemadelte Fdon. Balong soda ir one of the ktlire extin- Doctoral and mast- pragramr in edu~ Guldeto Engirhwoikp-mmer.ed"- gujrhen hgr-. Bammable liquids. cation of visually and multiply dmbled cation, and rehabilitation. $7 surtars persons. R.I. Harlay 328, .nd elecmral firer. ~sepa box of balung Box Gporgp mail. $9 byar Paporback. Spinallnjuner soda near your $love If a 6re mrups Peabody College forTeachen. Narhvllle. *Ition. 126 Alben Sberf. London throw a hsHd at he centcr of the lire If Tann- 37203 NW1 7NF England. will -.oo "oaof' and axtinqukh the 6ra. Doctoral dwee in rehabilistion. Sou&- CETA Comprehenriue Employmenf and What You Should Know About Smoke ernminoli Un,Whj Oirbondrle. Illino% Training Ad A C16lo"'i Action Gurde Defedoa 8-wqs baoldetluUofvaluable 62901. $1.50. Center far Communiv Change. . . information. 90~Supo8ntmd~nt of 1000 Wisconsin Auanue. NW Wsh~ GuSde to Independent Srudy Thmugh Documen&, US. Government Piinting Comspondencelnrhudion. 1977~1979 OHice. Warhigmn. DC 20402. Book edihon. Lktr 68 school%$2. Ordsr Handicappad humnr. Iwnr are *"at% wheertng ~o Fire Salem Emommnry pm~ Depament. Nanonrl Uniuemiv Exten- able hom US. Small Business AdminY son kcintion. Box 2123. Pnn-ton. redures. Fme brochure. Calilomla Pam~ New Jeney 08540. ~~~dv~t~,~~.-iation.5901 Ean7th SL-SPL Long Beach. CIl#fom#a90822. Guide lo Undewdume OdemoiDemee Pmgmms in the unted Smier. spring 1972 Nationd inrhtute of Education. Dept of Health. Education, and Welfare, Washington. DC 20208. enough to rppay the loan lrom ib eminga The New Fedeml Edumtlon Loluslor Hondjcopped Chj!dren. By Mollle Shav 1978. 67 page. Mayois Omco hr the Handrappod. 250 Bmadivay Raom 1414 Nnu YorC NV 10007. Rehabjlitation Inbrnational, 432 pa* Auenue South, New Yo*. NY 10016. Resource Mo"".f o/Conod,on f"f0rma~ ~~~ lion Semj- lor the Phusiiaffu Dlrabled. coun rulings and agency comp1,ance eC . . . . . he miif icp up hb head. Repon A 406-page d~roctonioflocal,proulnrid. {om. funding, and program. $iiliyorr on disabled Navaior uoth imp1icationr lor and national inlormahan source and all Native Americans. Fre. Sond rslfL 231 organirabonr mmpi1.d by thecana- ad&-d mailing label lo Dewlop- dl*" Rehabilitation Council for thc D*~ mental Dlabilitier OBce. Raam 3070. Consumer Sunnud Klr Cwingl Mlk. abled. One Yong~Stmet. Suite 2110. switzar ~uilding,330 c Sneet SW, Maviand 21117. Toronto. Onlano M5E 1E8. Canada. Wbihin$on. DC 20201. $15. Inititute for InformationStud-, Suite ape< a \ha. ',H",d v>orcinJr. 2088. 400 Nonh Warhington Seeel Seleded U.S. Gowmmenf Publlmtionr I., .In. c,.,l,,,,W .Ib.,, .i'..",rl FaliiChurch. Wwlnia22046 Freecopie Free homsuwtinfendent of Dacumtna. R,,,.. ,. &.',,.,,'" ,., \,I., A,.,,,, ,, of Rrhabo!won En$nee"ng sau,m US. Govrmm~nlP.nOng OHlcr, Wash- 11 : A . , , 1-, " .I. c.* book and New Ll/e Ophonr indepen- ington. DC 2M02 penonrl mtennrwr, data on problem. dent Liuing and YO". Placom~dPrepration pmgram IPPP, and rrcammendaaonr lo. chanyr. Frsm. New fachnique far awalrenmg job intrr- US. Bureauof IndianAffair. 1951 Con- In-Touch NrWor*r, hr.. 322 M48th ort Manual guider group leaden in tmh~ *hition Avenue. NW Washington, DC Sweet. New York. NY 10036. has initi- 20245. ated consumer inlormaaon brmdrarhon nuuer by audio-taw rarrener. Infor- rlmdnrcuit radio. DL Lllly B~ekand mation on pllof rtudlw and pr~m DL Ruth Perlman Kl&anor conduct the horn Bernard Rasenberi vocational and lndurtnal Rehabilitation Semip, ICD. 340 Eat 241h Street, Now Yoh. NY Mainilrearn. Inc. oilen iollhea infoma- 10010 tionto Ill educatori. vrulsDpiavlderr, or companies on compliance unlb the Rehab Ad of 1973.121 diabled an their m.,I'+n ,## 1 vmc.., 8 8, 8 ,,,,.,. , ,."d legal nghb. 131 the general publk on h.r>.Itr'.,,,, 11.,1.1.?",., I.., . :, intesrahon In all phcior aflit4g, employ- hl 5v u ,.n, I.(. 2 . mmt, heallh rare, homing, education. hardcover Public Ahlm PampNeb. 381 Park st. Free ISMCO. Available weekdays. Avenue South. NwYork. NY 10016 The kaiation ai Radlo Reading Ser- 9-5. ESI Call loU~kewRW424-8089. conrrre and informa#"m uew 01 ofm. vices ofier; radl~reading ..-cer on . The TP( number. the meFree, bi~ phlell 50e each. Free lisr hoe rpeciaUy unred FM radio through a monthly n-lenor in The Mainsirmm. Rehab Br?efr Blief reportr of rehab&. membe.rlationr. hrtartaprogiarn. row Requert from Mainseeam, Inc, 1200 tact C. Stanley Patter Minneae Semmr 15th Sneet NW Washington. DC tation rerearch findings. Free horn Roha~ hjlibtion R-rch Insmite, Box J-155 for the Blind. 1745 UniversiN Avenue. 20005. Health Center Univeiiihi of Ronda. S1 Paul, Minneraia 551111. Nanonal Rehabilimtian hionnation Cen~ Gainerviile, Ronda 32610. The Consumerlniodonms Cmf~g.Free fer 4lO7 Eighth Sirear N4lhe Catholic boo!& ik& federal publicationr dwrid univoniw of America. WaShrn"to". UC VA Rehabaitative EngneenngReference value to conrumen. Mast baakleb are 20017. hpcrer hee hlbliographle of Collection. OffireofTechnolw Tranib he. Send requert for cablog b con^ documen* In RSAr-rchcolledon. lls Rehabliit3ti"e Englneenng Research and rumer Information Canhi Puzhlo. Devoioornent SDMCP.Mtemni Adminir~ Colorado 81009. h-atian.'252 Swtnth ~~~n~~.New Yo*. NY 1WOl Thelanprf roUecbon of ill Frso sulde to consumer infomatio" kind in the wodd. t includer 25 yean of 1978Arllcle index to I2Publimtions accumulation offachnlral reporC;, book, of Spedol Inter& lo Dbbfed PPPPPP penodicair, pafen*, ah, and vldeaar- $3.50 Bob W~lliams.2209 Clemuakec Me-.Samemafe"3rmay bebornbod, Blaominmon. IUlnau 61701 o1hem are lree Lo vli 56 REHABLlTATlON GRIrnE ,. Infernational Year of &bled P-nr. 1981 Fourteen ownbationi ol and for Hwkh Thmugh Nuwio": A camp re^ the dlabled haw formeda natiandplan~ Llving iuth the Unknomn and Guidc hensive Guldeforrhe ConcerPoiienl. ning round m develop the unsd stater baoh to Heppinemr. By Lynn R~binro". Academy Bwk651 Markat Stmot Authoii MS expenenrer. $3 rach Room 755. san Frandiro. Cdfomla chairman s Alan A. Rubm. president 01 LpnoPubPohona. Box 734, B- Parmen 01 he Americas lnfmation ato on, nonda 33432 avai~ab~~hornUS. counolformp lntpr One-Hmddednlss national Year of Dlrabled Perronr. 1156 MS Conoda Fro= qunrierly Muitipin 15th Soeei. NW Suite 302. Wirhington. Sclomdr Saclety of Canada. 130 Blaar Single Hunded? Accent Plea. Cheever DC 20005. Sheet W. Toronto. Onrano M5S INS. Pubbhing, Inc . P 0. Box 700. bloom^ Cnnada ~ngton,flllnoir 61701. $3.50. Apiil18-241982,Pueno Pvco 4thCon~ Mu%& Scleros~:The Foe. By srea of the int~mahonalRehabilibfion RecreationlSPON Madicinp Araciation. W"te Herman J. W. Bryan Matthaws. $8 95 Oxfmrd Unl flax. MD. Box 11696. Capana Hoightr venlty PIPI USA. IMK1 PoUln Dtiue. BomerFreeLehureFouljtlerlerndHlerlerm New station. pueno Puco m2. Falrlawn. Jonw 07410. fmprove community Lelrum OppoMni~ tiesfor ~imbled~el~anr BY ~ene Lyons. Recreation Councli for Disabled Leglslatlon in Nova Scoba. 5516 Spring Gardzn Road, Slute 308, Halfax Nova Sob, Free recoidedmmane of dl 1egL.lation Canada. $1.50 each. Mr. Lyom hir an inlroducod in Con- that relater tothe dele on tnhwbng ~creabonin the disabled are available hom Produrnon Aubmn $sueolRehabilrto~!on World Sechon. National Library SeMce for the Blind and Phprally Handicapped, c.m~forme n.=~ L* t cmr *.., Warhinmn. DC 20542 F -,h. rsh <-%.-en I nno, n .,r ll# REHABLKRTION GIVEm 216 Grand Sheet Mamantown. %t for all proferr!onak who deal Uth tho Virginla 26505 disabled. Soda1 Ssedni A conference on sexual and phynial 1979 changer Amount of income hat -"It of disabled people war held in can be eamedwithoutlonngany isnofib Pomplegh. A handbmkof pradcal care July, 1979, by the Un~tedHandicapped warincrearrd. Underage 65, now ableto and adnce. Bv Mlchael A Rwen, who Federation, 1475 WmCauny Rmd B. oam $3480 Age 65-72. now abletopam share his 18 yean of upenence s a 51 Paul. Mjnneiata 55113 $4500. high level quadnplegir ilebdpleglrl. 1978. 165 onaer $6 95 Mrmmark Femofe SmoIW Following Spinal Amount of earning. mquired for a , u~~ ~ ~ ~ Book Semce. 5 Souh Union Sfrapt Codfnjury By Ella F Becker Che-r quaner of coverage: employppiandzlf~ Lawrence. Mnaaihu?em 01843 Publrhing, Inc, Box 700. Bloommgton. amployad wll now .am ans quaner of lllinoir 61701. $10.95. Spbl bound. coveraae for each $2M) ol cowred eam- ings h a year, four quarterr will be 273 page Thr author, a T4, ompiled credited 10, annual eaminu, of $10m)or Ianqhv. . intpMrwi UB aher SCI women, their huban*. and profes5lon- alr Dircurr>onisnduds the lack of infor mstlon from and r-nribiliy of the adjusbnent and foilow-up. National Spi- medical prole&an. nal Cord Injury Data Rrrurch Center hmpikl inruranca dedvdon ii now 1130 EaL McD-ll Road, Suite A~6. A Handbmk on SeruaHy A@rSninol $160~ Phmu, hna85006. $20. US. or Cord injury By J.M. Taggie and MS. forelm Manlay Cralg Hospibl. Family Sews. Spinal cord 1niw D~pamnent3425 South Clark" SCIDigerr Neu pubilcatian. rponmred Sheet. EnolPwaad Colorado 80110.15. Awinri AliOdh, By Tom Heimr, amm. by HEW, and publirhrd by Nctional Spl~ 2?7~pageautobi&phy $13.75. nal Cod lnjuy Dab Reearrh Center Thomar Y crnweu companv 10 East 1130 East MrDowrll Road. SuiteA~6. 53rd SWet New Yark. NY 10022. Phoenix Amonn 85006 Th. dab on Dertgnlng of o BoderFree Home. A -ne/ilrde prerentation of badem en- ountered by SCI in their homermh r.c ammended modihcabonr, Ethel &N, whim them& common age of iniuy RFT HO~~H~I~T~~,spain~~h~bj~~ is 20. ifation Centor 1717 6th Au~nueSouth. Blrminghm, Alabama 35233. SCI women ndedto pad~cipatoin a study to evaluate methods of birth Handbook of Core for Pomplwcr and SmvahtY ondMull 47227~ -- 11 7 phydidy dLhld Ihslla milllon icapped. Libmry of Congrpu. W"ah~ in wheelchain: 3 milllo" uring nut~her, inglon. DC 20542. Mosr Rehabilltation Hw!tll. 12th street and Tabor Rrnd. Philadelphia. can- or walkea1. elderh ampu~~e~. 1978~79hterndonal Diredory of P~nnsylvmia19141 anhtitie, PtC WIth mobdiv ,mpairmenli. Am- G"kTh. "Bible" ofaccesr 12.5 miUion tempomnly injured by guider tocitierin the U S. andaroundths Ramhlinm Tours Inc. Box 13M broken limbs, back l",une, or bums. world lncluder amcle on haw to prepare 2.4 million deaf 11 million heating impjed 1.8 milllon blind 62 mulion vlruclly impured 6.8 million menidliy dlmbled 1.7 million homebound NwHamprhire Avenue. Silver Spring, 2.1 million inrnlviionalired Mayland 209U1. C.I. MobiliVSetx6cer. 250JanalPlua. nnnn1 Norfolk, Vlrginir 23502. Ac- Ndonol Park. A Guide for that explore Btibin's i"l3"d vairwayyi. Gee Intemahonal Travel Awn% HondtcoppedVmRba Lj*"gi ola-iL SeMcer include a hydraulic liH and atten- 640 Sacramento Steer San Fmcixo. bla teaares in more than 3W park .roar. dant care Available h a11 ages. California 94119 $3.50 Consumer Inhrmation Cent*< Kraus Cmauan - Eump 1980, Dspt 102F Pueblo. Colondo 81W9. Rehijhnrijr unsen behinderten 1420 16th Sheet NE. Salem. Oregon Fohmdsre By German Sfate railway^ Q,?"? Bra""'$ Mi"! Motor Hame may be had Booklet llru omanIratiomsat4W German PmeteeTouir. hc. 3600 Whhire unth Doaireat wheelchair IIand door nilway stations that rrprer~nfdirabled Boulemrd. Suite 1516. LmAngel-. openen, hand controls, eb Thp Bra"" pemoni and other tiavel inimmation. Calilomia 90010. Comomtio~1014 South Monticelia A".dable horn Werbeam, der Druorhen Tours for hearing impaired to Eumpe. Wlnamar, Indiana a996 Bunderbahn. Rh.b.""*rre 3. ffiW mlomia. and Hawaa inciud. an 8"t.F Mainr. Fedrial Re~ublicof Germany pmter Mcly Lou Hudson. 74Shid*" Driw. Granite Cltg lllinoll 62MO "dual canno, na-1 alone - b~caureof Rollin' On:A WheelchmiGulde to US. blindn~sror phyilcal disbiliw- Amhak atie By mane H. A",,sler Three to MI1 nowauow atendant t0"avoial hallL rlx~dayr,ghireeing to"" of eight cider: fare An iden60calion urd hom tha Chicago. Honolulu, New Yd,Phil-d.1~ Amencan Foundation 10, he Blind or a phiii. San Diego. San Antonio. San Fran~ letter ham a phynclan s.mf,dng need for ciim. Gmnenl haw1 informaoon. 290 an anendant rr necera". pig-. 1978. $9 95. Dodd. Mead. 79 The Dimbled Trovellefr fnte~".l Madison Av~"".. NwYark, NY 10001. Phmrebaok. Book 1. W& Eumoeon hee numben to call 10, inlormation. Longuager Pakeied. £1. lAb0"i Mtomnr Hourins Bsneha Adof 1978 $2 501. Ian McN~il.Dirabilily Presr. Ltd. raiser maximum guaranv on VA mobile 60 Greenhaye Auenue. Banstead. Sur~ home to llZ5W or 50 percent of the rey, England SM7 214 loan amount, whlch.v~r is 1er. REHABVTTRTION GN- Suck 315. Sh-an Oak, CA91403. wm~ Anhmmym. Assocldon. 10" HnW~ mer St. N Bellmom. NY 11710. dirabled women. Charmi,lol" and i"~ study of himbled women and the men^ ;&hfillypre*.nted byJ ~&beff~'T~~lerbual now - metha&, aids, and lech- and CeCe Week Includes ruoaeshonr "lqYes"~~dby disabled women and pro^ fesianal perronnei in teaching mpe, round sheet. Disabled Mother £2 in U K, £5 ovpr- re-. Oxiord Regtonal H-16 AuthontK BrroMhrough. %~JP"& Imperfect8 2 Foredown Dtivo. Po"rl.de. Brighton F"""drm0". Inc. 140 Euclid Aue , Apt. BN4 288. England 1-B. Harkenradt, NJ 07601. Qmly CRD News. Commlhee for U1. Rlyhb of The Disabled. 2942 W Pica Blvd, Lm Ang~les.CA 90006. Fned"chiAtMoGmupinAmenm,fnc. U.S. Periodicals and Newsletters for the Disabled Box 11116. OaWand. CA 94611. Sprho BpddNews. 229 Sm*e Dr. SummeMllr. SC 29483. Prices indecan o one yeor's suMp0on FID~Periodicals for Thc Disabled on Yoviolun. Dlvirion of Continuing Ed~cath".uniuerri", of &aha. P 0. Box 2967, Unluerrib, AL 35486 Cmrader United Cersbrrl Palsy kuc. $$I Pedodlsals by he Dbablrd The MS Newr!e#er P 0. Box 2215 66 E. 34h St. New York. NY 10016 In The Moinrtream 1200 15th St. NW. W-hingion. DC 2W05 Accent on Liulng P 0. Box 700. Glllum Notional Hmbp. PO Box 878. Road & High Dr. Bloominston. IL Adelanto. CA 92301. Monthly $3 Free U.S. Government Publbadons Clorer Laok National Information A.,. .II., , I I'..,; .,. I.,-. hnll.1 51 ' 3 C110 Center for The Handicapped. Box 1492. II..,!,I.,. 1 I,. 1 '3c,\",, tl , ,, 1, .? " Congmluionons to ih- Gmeltelomli 1 m2-,.. 77 . . 1 John and Charlotte Williomr. WIchlfa. Kana iol~~l.nlnined a 43, says "Three chiulen mme in the POCL~~~." 2 Ron and Mary Pew Fishhlll, Neu, Yak 3 Ench and Gemidme Krn!). Blochd, South Aysrmila 4 Joanne and John Schlelcheis Michoei r-- 5 Nmcs Jock, ond Som Quigiey Sf. LouU 6 Marcia ond Brute Scow. Konm CI" M#SOU" 1, St. Louis Photos The Loune'spawlorEdRobem duting the CEC Conference CECgued: CumhePres1010,pm, m St Loulr /I tor) Ed. MuStorklo/i Saue Dibner and XhmleiSrholorlmmAurImIii Speed Douls. . . -7 ' 1- '. I ; I"/ ' I I - I , I > !? - 1 F ,. - *., I - "r,,,,ht~- iw.liH YoXohomoSor#ol Wefa#cTutlr nier Speed D",illle Gi.odn,,lr. andiheLau"eoropo"~,iorrrdby ,he51 Lo,,. C.ouncil on Wodd Amim and Mi Mamyurn". propie who have been severely disabled since the early Middle Aging 1950's. There are nearly 100 of them in Los Angeies County - about 10% of thw in the nation. They live in their own homes or aWItmenb, mat "re rerptra~ tory equipment and need 24houi care by family and anendank. Those Passing Years He organized them into a lobbying group which 3°C~ by Lany Schneider ceeded in gemng supplement4 attendant care giants and a mecial van horn Lor Anoelei CounW. The van.. eauiooed. .. with a iif is operated by a county-paid driver on weekday5 and serves three areas of L.A. In January 1978. he starfed Polio SuMuorr Foundation. also a non-pmst colparatian. . . in order to raise fund$ irom the private sector of our ability and without much aislrtance hom the "medi- Bath comorations, PSA and PSF have allLpolio boards cal profession." of directon. The Amiation pianr to lobby in sacramento It's now 40 yean since Icontacted polio at 17 and Iwar for pensions for people who have been fotaiiy disabled for formnate in being able to go D, Warm sp.ngs, Georgia. twenty years or more, thus raving hx dollars for vanour Later, whenever I had a pmbiem or question it war the progrogrmr which are presently administered by tho state. place h turn to. I could obtain a complete check-up to The Foundation has set up an emergency fund which unll include special consideration given to the ahereffecb o! be used forasirting the members in home c-r which dl polio. But with the switch in the Marchof Dim- this ir no have the effectof keeping them hee of costly hoqilsi care. longer true. More adeauate wheelchair bansoortation is air0 hein* During the part few yean. I find myself being able to do planned. A minibus capable of eking ten wheeichaig less and ierr and tire far tw easily. This led to my early and ten anendanti will soon be in operation. retirement when I war no longer abie to stand hom my In the future, both organlration. hope to expand to wheelchair by myself and no longer nhie to walk with other California counties and perhaps. eventually. to other crutche5 or get out of bed alone. stater. Since mv last examination over 10 ,vm aaa.-. I have Taxdeductible donations to Polio SuMvon Foundation visited different docton, wherever Ihappened to be living, oi reque5ts for information should he rent to PO Box with only "en/ minor dmenb. To e&h doctor. I ward 3640, Rancho Lor Amigor. Doumey. Calihnb 90242 or rtranQe.r and different individual because he urar totallv un- to the president. M.H. Fid. 8913 La Enhada Avenue. ,arnlllar with polio. They were all mare intereited in learn- Whiltter, California 90605. ing from me than with giving me any wonhwhiie informa tion. Mort of them lmked at me and mid Iwould be a EFFECTS OF MIDDLE AGE. Tho Rehobiiilation Gmife ediL good ad for w1io rhotr. tors asked memhen of PSA to share their expenencer with As far ar i know, there is no longer one center like the the effectr of middle age. Foilawing is a summary of these old Warm Springs Foundation which has answem to polio elfects by some of the "alumni" of Lor Angeie- Coun- aHereffeci3 and a4inq. tV.3 Rancho Lor Arni4a;l rer~trahwcenter Thev have all been quads hecauseof respnato~o~iolor than 25 years: they have all lived with their famiiier mdhave had . . full and useful iivei in their communities: tomwho can easily relate medicd probiemr (perhap "The Good News: 111 Health is hener due ra better heart strain, low himd pr-"re. too much or too limp attendant care. 121 More stamina: have gained back to exercise. etc.1 to nolio nroblems. In this wau n national normal weight 131 More aware of health care and proper directon/ could be cstablirhed rrting therer*perienced dret 141 Enjoy tho itimulation of dohg new interermg and "simpatico" doctom to whom we could relate and turn things: have given up wowng about what is lost and for genuine and honest advice to sare our kanrihan in looking for what's leH. these parring yean. "The Bad News: (11 Much more folgemii: have to unte Addrerr: 811 North Longfellow Avenue. Tucson. An- notes to seif! 121 Neck muscier wearing out. 131 Ache all zona 85711. over from iack of phyncai therapy: forget need for same. 141 Vital capacity is dropping. maybe due to fat over dla- Polio Survivors Association phragm muscier." ED: We hope that more of our middle aging readen will The Polio Swvlvan Association (fint called Totally Dir- share their experience. ihmugh the Rehobifitation abled Helpers Association1 was started in 1975 by Richard Gene's next irrue. Please let us hear ham you ra thd Carman. a nondirabled burin~man,to asi* post-potio what you have learned can he made available to othem. 61 REHABILITSIION GAZETTE