Conference Memories My NSA Experience My Friends Why I Was Going to Chicago

SEPTEMBER | OCTOBER 2005

119 W. 40th Street, 14th Floor, New York, NY 10018 • 800.937.8888 (WeStutter) • 212.944.4050 • email: [email protected] • www.WeStutter.org

Conference Memories My NSA Experience my friends why I was going to Chicago. feeling and comfort you get from everyone Three days. That’s all it When I returned home from the conference, in the NSA. The feeling makes you feel took for me to realize I proudly showed my friends the orange okay about stuttering, and as far as I am three important things and purple “Be Heard” bracelets that I had concerned there is nothing like it in the about stuttering: 1) It’s purchased at the conference and told them world. If you attended the conference okay to stutter. 2) I’m everything about it. I was no longer afraid this year in Chicago, you know what I truly not alone. I’m not to admit that I stutter. am talking about. I will see you in Long the only one who stutters. 3) I should never Since attending the conference, I no Beach! ✏ Tony Romano let my stuttering stop me from doing the longer care if people laugh at me for things I want to do in life. stuttering. I have come to accept the Rekindling Old Friendships My journey began on Thursday morn- fact that I do stutter. And there is I never thought I’d say this several times ing when Mom and I checked into the absolutely nothing wrong with that! in my life, but stuttering has truly been Westin. Not knowing what to expect, I was ✏ Kelly McLendon a blessing to me. Not only do I get to very nervous. This was my first conference. know NSA members, attend awesome The first session I went to was the teen Wow! conferences, and have a great support icebreaker. After I introduced myself Wow, what a great system, stuttering paved a path to my to the group, I no longer felt nervous. conference! I have loving husband, Andy, and now a beautiful By lunchtime I was having a blast at the been going to the NSA daughter, Ava. conference, and I was very glad that I conferences for the last All three of us were lucky enough to came. For me, the first timers gathering three years and I have attend, at least one day of the Chicago was one of the best parts of the conference. to say that this one was convention. My wonderful in-laws babysat I really liked how Russ Hicks had everyone by far the best yet! The connections I Ava as Andy and I rekindled old friendships, introduce themselves to two people they made and the people I met have left an met new people, and had a great time! didn’t already know. It made me leave everlasting impression. I have stuttered all Andy and I pray that Ava won’t stutter, my comfort zone for a few minutes, my life and to know I now have such a although the odds are pretty high she and I really liked it. I’m normally not an huge second family makes me feel at ease will, since we both do. We shall cross that outgoing person, but I soon found myself when I return from the conference and bridge when we get to it. But, I do get talking almost non-stop to the people I go back to my everyday life. comfort in knowing that if she does, had introduced myself to. The workshops, awards luncheon, she has parents who understand and an This conference has had such a big keynote speakers, and the banquet were organization like the National Stuttering impact on my life. I left the conference amazing. I was dreading the end of the Association to support her. with a completely new attitude about my conference, but I knew it had to come. Thanks to all of you—you give me stuttering. It took those few days for me It indeed arrived too soon! strength when times get rough. We hope to realize that stuttering isn’t something Keeping in touch, E-mailing and talking to make to Long Beach next year and see I should hide. It’s also not something to the people I have met definitely helps a all of you again. ✏ Stacey Fitzenrider I should be embarrassed about. I didn’t tell lot, but when you really look at it, it’s the (with Andy and Ava) continued on page 15

First Timers ...... 2 Volunteer Request...... 7 Chairmen Insight ...... 12 Research Q&A...... 3 Photo Spread ...... 8 Bob Spradley Receives Award ...... 13 Much Ado about Something...... 4 A Day to Remember ...... 10 A Garden of Positive Thoughts ...... 14 Keynote Speaker John Melendez ...... 4 Discussing Stuttering with Others ...... 10 Chapter News...... 14 Our Voice ...... 5 How My Golf Game Developed a Stammer . . 11 Odds & Ends ...... 16 Chicago 2005 Honors...... 6 The Motivational Lyrics of Frankie Jones. . . . 11 Reconnecting with an Old Friend ...... 7 After Slaying the Monster ...... 12 www.WeStutter.org First Timers My First Full Conference I was certain the Upon returning to work this past week, I attended my first NSA conference in answer was “no” The conference it was very difficult to be present. My Baltimore 2004 but was only there for part and that I would was the most mind is still at the Chicago conference. of the time. I had arrived on the Friday regret taking three I will never forget the faces of people I morning and left Saturday afternoon before days away from my accepting, met and the faces of people who I saw the banquet. At the time, I really didn’t family (who had encouraging, and heard but didn’t meet. I hope to see know what I missed. Then came Chicago! put together a long all of them again. This year I arrived on Wednesday and list of fun things to comforting, After living for years in isolation and stayed until Sunday, and wow, what an do in my absence). and truly bitterness, I am dismayed to hear myself amazing five days in my life. I met so many But since I had saying that stuttering is a “beautiful mys- wonderful people, heard so many stories, shared so already paid my tery.” Thank you to all you fellow people many stories; it truly was a feeling that registration fee event I have who stutter and to those who care on our I am not alone with my stutter. And and my airfare, I ever attended. behalf. Thank you for sharing your hope, with a crowd of more than 600 people, thought I should at wisdom, and humor! ✏ Hannah Russell that “alone” feeling seemed to disappear least give it a try. even further. Past attendees were right. The confer- A Freeing Feeling I spoke during an open mic held in a ence was the most accepting, encouraging, Upon arriving at the conference I had general session, meaning I had to speak in comforting, and truly wonderful event no idea what to expect. I found myself front of all who attended the conference. I have ever attended. For the first time, already anticipating what kind of speaking I didn’t realize how many people were there I felt free to say whatever I wanted to say situations I would be faced with and until I got up on stage, at which point I instead of just what I thought I could say setting up worst-case scenarios of what became truly nervous and emotional. Last fluently. I even felt comfortable going up to could happen with my speech. I was year, my wife was the only person who strangers and introducing myself. Everyone feeling a lot of anxiety of the unknown. knew I was at the conference. This year, I met completely understood my struggles. Within five minutes of walking into the everyone knew why I was in Chicago! I also learned a few things. First, public conference these feelings melted away. I almost broke down in tears as these speaking and Toastmasters are possible for I immediately felt accepted and was over- words were spoken, as I truly felt I was stutterers. They can even be fun. Second, whelmed by the kindness shown to each accepting my stutter like never before. it really is okay to stutter. I am ashamed and every one of us. I knew this was going I came home Sunday physically and to admit that before the conference I felt to be quite a weekend. emotionally drained, and it was the greatest uncomfortable listening to someone else The first timers meeting changed feeling. I felt such a connection with the stutter. But during the conference, that my attitude about being open about my people at the conference, a common bond feeling disintegrated. I realized that speech (thanks to an inspiring talk by not found anywhere else. Only here could disfluency is nothing to be embarrassed Russ Hicks). I realized that if there was I speak without being judged and heard for or uneasy about. And as a result, I am one place I could feel totally comfortable what I said and not how I said it. I became finally starting to be more comfortable and leave all my fear, anxiety, and doubt proud to be known as a person who stut- listening to myself stutter. behind, it was here. I realized that I could ters. A friend of mine recently asked if And last, but most important, I learned introduce myself to others and express my I would ever be cured of my stutter. I that I am truly not alone. Reading about opinions in more than just a phrase. By replied, without hesitation, “I hope not.” other stutterers’ experiences in LETTING the end of the weekend you couldn’t shut ✏ Vikesh Anand GO, in books, and online is not nearly me up! For the first time in my life I as real or powerful as actually watching completely concentrated on what I was hundreds of other people battle the same saying instead of how I was saying it, First Impression struggles you do. and that was such a freeing feeling. About a week before this year’s conference Thank you so much to everyone who Everyday I am inspired and motivated I started getting cold feet. Would it really be was a part of this year’s conference. You have by the people in the NSA. Words alone as amazing as past attendees always say it is? given me the confidence and courage to be cannot express what a life-changing I had been a member of a stuttering me. I am looking forward to vacationing experience this has been for me. I realized E-mail group for five years and the NSA with my stuttering family again next year that these people are not sacrificing who for almost three years, so I knew there in Long Beach, CA. ✏ Sophie Sacca they are because of their stuttering, so were other people out there like me. I had why should I? ✏ Molly Grochowski even met a few stutterers in person and Still in Chicago corresponded with many more online. I write this one week after returning from Would attending workshops with a load the Chicago conference. As a first timer, of stutterers really be that different? at this point, all I can say is, “Wow!” www.WeStutter.org

2 NATIONAL STUTTERING ASSOCIATION RESEARCHQ&A

Medication Study A clinical trial for this same investi- pants will benefit from the study Clinicians who treat stuttering have gational medication was conducted treatment, participants will receive, searched for better and better treat- previously for a different condition. at no charge, the following benefits: ments for this disorder that we share These participants noted a reduction • Physical examinations with 1% of the population. In recent in their stuttering while receiving • Clinical laboratory testing years, an expanding body of research pagoclone, and when they stopped • Stuttering assessments suggests that stuttering has a neurologic taking the study medication, their • Study treatment component that may be amenable to stuttering returned to pre-study levels. pharmacologic treatment. This new The EXPRESS study will continue Q: Who is sponsoring EXPRESS? research provides hope that medications the necessary testing to determine A: In July, Indevus Pharmaceuticals may someday become an option in whether pagoclone is effective among announced the initiation of this Phase II stuttering treatment perhaps in part a larger group of people who stutter. trial, which will enroll 120 adults. If you as augmentation strategies to speech attended NSA’s annual conference this therapy. While no medication or speech Q: If I participate, what will I be year, you may have met an EXPRESS therapy will likely ever be proven to be a asked to do? representative who provided informa- “cure,” hope for better stuttering treat- A: Participants who successfully com- tion about the study and answered ments is now on the horizon. Pagoclone, plete the screening procedures will be attendees’ questions. a medication developed by Indevus asked to take the investigational med- Pharmaceuticals, is now being studied ication or a placebo (inactive substance) Q: How do I know if I might be for the treatment of stuttering in adults. for 8 weeks. At the end of the 8-week eligible to participate in EXPRESS? This agent acts in a novel manner by treatment period, you may choose to selectively blocking a chemical receptor A: You may be eligible to participate in participate in an extension of the study in the brain (GABA-A) that may then this study if you: in which all subjects will receive the assist in decreasing stuttering. Although • Are between 18 and 65 years of age investigational medication for approxi- no specific claims can be made regarding • Developed stuttering prior to age mately 12 months. the efficacy of this medication in stutter- 8 years ing, this study will provide many answers • Meet all other eligibility criteria Q: How might I benefit from as to its potential usefulness. participating in EXPRESS? For more information and to find out Q: What is EXPRESS? A: All study subjects will be monitored if you are eligible to participate in the by a medical research team. Although EXPRESS trial, please call 866-289-1359 A: EXPRESS, which stands for no promises can be made that partici- or E-mail [email protected]. EXamining Pagoclone for peRsistent dEvelopmental Stuttering Study, is a clinical research study that will evaluate the safety and effectiveness Exciting Initiative: NSA Kids of pagoclone, an investigational We are all proud that the NSA continues to be internationally renowned for medication to treat symptoms of its adult programs and chapters. No other stuttering organization offers the Persistent Developmental Stuttering resources and support of the NSA, and we plan on continuing, expanding, (PDS). The diagnosis of PDS applies and improving these important programs for adults who stutter. to adults who started stuttering prior In addition to the adult programs, the NSA has also developed dozens to age 8 and who have not outgrown of very important programs specifically designed for children and teens their stuttering. who stutter, and their families. In recognition of all the NSA does to support children and teens, the NSA has developed a new initiative called NSA Kids. Q: Why is this clinical research NSA Kids was launched at the Chicago conference with a beautiful new study being conducted? logo and brochure and focuses on the needs of kids and teens who stutter A: While there are various approaches and their families. to treating persistent developmental It is comprised of many programs such as Youth Days, CARE Groups, Teens stuttering—including behavior modifica- Who Stutter (TWST) chapters, Internet Yahoo groups, newsletters, and many tion, speech therapy, and biofeedback more. We are very excited about the many more programs we are develop- devices—there is no cure for stuttering. ing to help kids and teens who stutter, and their families. Although psychotherapy can help peo- If you would like a copy of the brochure or to find out how you can offer ple cope with PDS, it is more properly your support in this exciting new initiative, please contact the NSA office. considered to be a neurological disorder. Send an E-mail to [email protected] or call 800-We-Stutter (800-937-8888). www.WeStutter.org

THE COUNTRY’S LARGEST SELF-HELP GROUP FOR PEOPLE WHO STUTTER 3 Much Ado Keynote Speaker John Melendez about Something BY LOU MADONNA BY ALAN BADMINGTON John Melendez spoke something that you sometimes do. You’re I was one of eight final- to us at the General a person—don’t let stuttering run your life. ists who competed in the Session of the NSA Don’t let it interfere with your dreams. recent UK Association conference on Saturday Take the power out of it. Don’t let it define of Speakers Clubs (ASC) morning. His address you. Laugh at it. Let people know that you national speech contest was engaging, earthy, have a stuttering problem right up front. held in Leicestershire, candid, and authentic, Don’t let it hold you back. There is no England. The ASC has and in relatively good taste considering such thing as ‘can’t.’” its origins in Toastmasters International. that he was telling us much of his life story, John shared with us the story of a I qualified for the UK finals as champion referring to his career in music and the young man with a severe stutter who of the South West District, having earlier media, including the Howard Stern Show came to him. The man was going on a won my club and area competitions in this and The Tonight Show with Jay Leno. job interview, and he asked John, “What progressive event. I spoke to an audience of John shared that his stuttering started should I do when I go on this job inter- 300 for between 6–8 minutes, using the when he was in the second grade, and there view to be successful and make a good above title as my subject. was a great deal of trauma in his life caused impression?” John told him to take a Marks were awarded for poise, confi- by his alcoholic father, who also stutters. notebook and a pen with him to the inter- dence, personality, volume, fluency, clear John has had treatment with Martin view to use to write in case he had to, to enunciation, pace, modulation, pausing, Schwartz and his passive air flow therapy express himself. Years later, John met this eye contact, and rapport with the audience. for his stuttering and went to a psycholo- man again, and the man spoke with great Account was also taken of the manner of gist to deal with issues relating to his fluency. He is Conroy Arnold, the chief speech construction, choice of vocabulary, dysfunctional family situation. chef at the Borgata Casino in Atlantic City. word pictures, and overall impact. John told us that throughout his youth, He thanked John for suggesting that he Contestants were aware that severe penalties he was teased and picked on, both for use the notebook and pen at that job would be imposed for exceeding the stuttering and for being Puerto Rican. He interview. It was a back up, a crutch, maximum time limit by a mere second. endured nicknames such as “Stutterface,” that gave him the confidence to get by. Although I did not win the national “Skip,” and “M-C Stammer.” When he was John is down to earth and a cool guy. title, I was thrilled to receive a trophy and hired to work on the Howard Stern Show He gave us ample evidence of that in the certificate. It was a wonderful experience because he stuttered and began to go by question and answer session following his to compete against the best speakers in the the moniker of “Stuttering John,” he began speech. He has compassion and has not country. I learned a great deal. Although to stutter less because this was instant and lost “the common touch.” When I saw competition rules do not make allowances automatic advertising of his disfluency, him with the stage manager of The for anyone with speaking difficulties, this which took the psychological pressure off Tonight Show at an outdoor sidewalk table is in complete contrast to club meetings, him. He now had nothing to hide. in front of the Westin Hotel after his talk, where people who stutter are made most John strongly advocates advertising I approached him and complimented welcome and given every encouragement. your stuttering because of his experience him on a great speech. I asked him for his I also undertake a program of talks to with that nickname. He finds that when autograph. He was very kind and gracious community organizations in an attempt he increases the volume of his voice he and took a moment to accommodate my to create greater public awareness about becomes much more fluent. You will notice request for his signature. stuttering. In 2004, I traveled to Australia that when he does his announcing on The I often tell people in my chapter to where I was a keynote speaker at the World Tonight Show, he is practically shouting “ACE” their speech. That is, to speak in Congress for People Who Stutter. It gave out what he has to say. He will substitute a manner that is Authentic, Comfortable, me a great thrill to win the Oratory words if he has to, and he advises using and Effective for them. I’ll say this…John Competition at that international event. whatever “crutches” you need to get by. Melendez is a great guy, and he “ACED” I always feared speaking in front of John confides with us that beer helps his speech! groups. Since joining the ASC, I have him become more fluent—it takes the derived immense benefit and now feel edge off things! In addition to increasing Lou Madonna lives in Media, PA, and is totally at ease in such situations. I’ve also the volume of his voice, he finds that the employed in the engineering design business. been able to transfer the additional confi- use of accents and playing characters great- He has been a member of the NSA for almost dence to other speaking environments. ly enhances his fluency. For example, John 19 years and has led the Philadelphia I thoroughly recommend membership provides the voices for eight characters in Chapter since 2001. His story about his to such an organization to anyone. the Sci-Fi Channel’s mature-rated animated earlier years and coming to terms with his comedy program, “Tripping The Rift.” stuttering and other significant issues in Alan Badmington is a former police officer John’s philosophy regarding stuttering his life, A Quest For Wholeness, can be found and lifelong stutterer from Wales, UK. is: “Stuttering is not who you are, it’s just in the book, “To Say What Is Ours.” www.WeStutter.org

4 NATIONAL STUTTERING ASSOCIATION “I came into OURVOICE the NSA just expecting to One of the Best Yet be difficult. For me, these weeks were to help out meet a few This past conference in Chicago was my filled with uncertainty and a even children, teens, people and sixth and one of the best yet. Meeting loneliness. About two weeks into and even adults so many new people and seeing all the school I had lunch with a few acquain- who stutter. The then leave, first timers, and it was amazing to see tances from home that were attending best thing about but I left the endless smiles on their faces. This the same college as I. Surprisingly, being a veteran year I’m on the Teen Advisory Council I found out that they too were feeling of the conferences with a whole with three other amazing people, these unexpected emotions. Where is the chance to new outlook Michel Liben, Stephanie Nicolai, and was the college experience we had help out the first Brad Sara, and the council is led by two heard about? timers and to on life and of the most amazing people, Debbie It was just around the corner. So make sure they a new sense Nicolai and Marybeth Allen as well as now, when people ask me about going have a great time of hope.” some backstage work by Nina Reardon. away to college, I say the same things and come back One of the best parts of the confer- that everyone said to me: nothing next year. ence for me was winning the Youth of but glowing reports. These conferences not only give the Year award. Stephanie presented it Still, I wanted to relay my experience. stuttering children, teens, and adults to me and gave the best introduction, Hopefully for those whose first few a chance to talk to others and have and I will remember it forever. This days start a little rough, they are not fun, but they also offer emotional conference was the busiest one yet for caught as off guard as I was. And also, support. It’s so weird to walk through me, but I enjoyed every second of it, since you are most likely a person who life feeling like the only person who spending time with the kids and teens, stutters, here are a few tips on getting stutters; you think you’re an outcast speaking to the parents, listening through the first few days at school and you don’t belong. Then you hear to their stories and answering their while stuttering excellently. about this conference for people who questions. It means a lot when you 1) Do not hide your stuttering. This stutter, and for once in your life you know that you have helped someone is especially true inside your dorm. don’t feel alone, but you’re afraid to or have touched their hearts. These people are going to see you meet so many new people and actually As I look back, I can’t believe how every day – there is no way you’re stutter in front of them. That’s how far I have come and how much my life going to hide it forever. Let them I felt before I went to my first NSA is changed because of the NSA. When know early on. conference, which was in Anaheim, CA. I came to my first conference I had no 2) Speak in class. Professors like When the conference finally started, idea what to expect or who I’d meet. students who talk and don’t like I felt all my fears melt away when After a day I couldn’t believe it— any excuse. Plus, people will never I began to talk to and meet people. I could stutter all I want and no one shut up and listen better than during When we left Anaheim, I couldn’t would ever ridicule me. I met so many a really bad block. wait for the next conference. amazing people who I am still very 3) Take advantage of the disability I came into the NSA expecting to friendly with and have changed my services at your school. Usually they meet a few people and then leave, but life forever. ✏ Alex Rosenbaum can get your some really helpful I left with a whole new outlook on life things like early registration. Your and a new sense of hope. It warms my College Advice non-stuttering friends will be jealous. heart to have the same effect on other When I was preparing to leave for 4) Be yourself. Not just when it comes people’s lives and to see them do the college, I talked to anyone who would to your stuttering, but in general. same thing to others. The NSA is like a talk with me about their own experi- Forget about the importance of chain--it starts out with a few people ence. I was both nervous and excited first impressions. The important helping out others, then those people about the new time in my life, and I thing is to make a real impression. help out even more people, and it goes felt that talking to people would give ✏ Michael Liben down the chain. I am proud to be a me some insight into this transitional member of this chain and to help out period. I heard many descriptions of The NSA Chain wherever and whenever I am needed, people’s encounters with going off to The conference in Chicago was my and I only have one thing left to say, school, and the words that would flood fourth conference and by far the “See you in Long Beach!” ✏ Sean Hare most conversations were ones such as greatest one yet. I love going to the “amazing,” “exciting,” and “freedom.” conferences not only because I get to Online Discussion for Teens What is not shown in movies and talk and hang out with other people Teens who stutter enjoy the friendship very rarely spoken about by people is around my age who stutter, but also and support of fellow stutterers just as that the first few weeks of school can because it gives me a sense of pride continued on page 6 www.WeStutter.org

THE COUNTRY’S LARGEST SELF-HELP GROUP FOR PEOPLE WHO STUTTER 5 Chicago 2005 Honors BY JOSEPH DIAZ

This year’s conference, Our Special Youth Recognition was of SLPs and students on the subject the NSA’s 22nd annual awarded to Alex Rosenbaum. He showed of stuttering. gathering, was held at great poise as he accepted the award and Last, we presented the 2005 Member the Westin Michigan thanked everyone for this honor. Alex is of the Year Award to Jim McClure. The Avenue Hotel in 17 years old and lives with his family in NSA board officially titled him “Media beautiful downtown Hollywood, FL. He will soon be entering Relations Chair of the NSA.” Chicago and was his junior year in high school. He serves He is a past member of the NSA board dedicated to the kids and teens in the on the NSA’s Teen Advisory Council. of directors and a long time member of the NSA as an appropriate kick-off for the Rich Schwerdt was again the recipient NSA. He founded the Chicago/Wooddale new NSA Kids Program. This new initia- of the Regional Coordinator of the Year chapter. In 2003 we dedicated the tive integrates all of the services in the Award! Rich co-leads the Tallahassee, Nashville conference to him. He maintains NSA, which provide help and support FL, chapter and manages the southeast/ relations with the media, especially every to kids and teens who stutter, from age mid-Atlantic region of the NSA, and he year at our annual conference, just because three on up, as well as their families. worked consistently during the past year he wants to and feels the need to do so. This year, Marty Jezer was honored to stay in contact with his other chapter We hope to maintain the excitement, by induction into the NSA Hall of Fame. leaders. He’s been able to increase the enthusiasm, and momentum that we Marty, a person who stuttered, was a long number of chapters in his region and has generated in Chicago throughout the time member of the NSA who passed even managed to revive chapters that coming year until we meet again, from away in June. The plaque acknowledging were in decline. June 28–July 1, 2006, at our 23rd Annual his outstanding accomplishments and Our 2005 Chapter of the Year Award Conference in Long Beach, CA. contributions read: “In recognition of his was bestowed upon Madison, WI! Under commitment to bring dignity and hope the leadership of Gloria Klumb, Jason Joseph Diaz, chair of the awards luncheon, to persons who stutter around the world. Pearson, and Bob Lee, Madison is active has lived in Dallas all his life. He has With quiet wisdom he led by example, with new members, is grooming and worked in multiple jobs at Texas Utilities challenging the stuttering community to identifying new leadership, and is further over the course of 25 years. Has been active be all that we can be.” The plaque was extending its relationship with SLPs and in Toastmasters for nine years and is a presented at the Friday General Session youth. It is one of the few chapters that Distinguished Toastmaster. He can be to Marty’s nephew, who lives in the has a contingent of active teenagers. reached at [email protected]. Chicago area and accepted it on his behalf. Our Speech-Language Pathologist of A Marty Jezer Memorial Scholarship Fund the Year Award went to none other than was established by the NSA board of direc- Nina Reardon. Nina has been a long time OUR VOICE continued tors, which will provide funds to allow Chicago area SLP, who recently moved people who are financially unable to attend to Texas. She has served on the board of adults do. The limited number of NSA NSA conferences to do so, thereby sharing directors for seven years, where she was the teen members in a given local area the hope, encouragement, inspiration, chair of Family Programs. Nina is a deeply makes the exchange of this fellowship and other benefits that can be gained from caring, devoted, committed, and all around more difficult. NSA-Teens allows youths attending our annual conference. super member of the NSA. over 13 years of age who stutter to The awards luncheon was held on This year we presented the first award have similar discussions with other teens Friday, with 110 people in attendance. for a new category, Volunteer of the they can relate to without ever leaving It was a time to recognize those who Year. This award went to our foremost their homes. devote their time, love, passion, and above jack-of-all-trades who breaks his back It is difficult to maintain long distance all, leadership. for the organization and keeps the NSA friendships when we only have one The luncheon began with the Chapter purring along…Russ Hicks! He leads opportunity a year to see each other, Leader of the Year Award, presented the first timers gathering at every annual if that. Visiting each other is not always to Lou Madonna, who is a long time conference, and he’s our NSA Web site feasible when we are spread through- NSA member and has been leading the master and Stutt-L E-mail list master. out the country, but the information Philadelphia chapter since 2001. Lou has On the NSA Web site, everything from highway brings us together allowing succeeded in re-energizing and revitalizing the What’s New section to the General us to uphold our friendships through the chapter and enhancing its relationship Information more than likely is something our “virtual chapter.” The group was with the regional speech-language patholo- that Russ has had a hand in producing established to establish and maintain gist (SLP) community by communicating or setting up. relationships with teens who may have a caring, inclusive and dynamic vision for He is a national regional workshop not yet attended a conference. the chapter that emphasizes informing and presenter and is very active in Toastmasters. To learn more about NSA-Teens, visit empowering every member. He donates many hours to the education groups.yahoo.com/group/NSA-Teens. www.WeStutter.org

6 NATIONAL STUTTERING ASSOCIATION Reconnecting with an Old Friend BY BERNIE WEINER

In April I had the great experience of our lives since that time, as you can imag- my stuttering. Would I be able to talk reconnecting with a long lost friend from ine. Dann and I met for dinner and a about all the things that have gone on in Shady Trails Speech Improvement Camp, couple of drinks and talked about our my life? Would I be able to talk about which I attended way back in the summers lives since we left camp. He has led a very how in the last 10 years I have found peace of 1965 and 1966. My friend, Dann eventful life, becoming a very successful with my stuttering through being involved Balesky, found me by doing a search on vice president of a worldwide advertising with the National Stuttering Association the Internet. His search led him to the agency called McCann Erickson. His stut- and my great support group in Royal Oak, Shady Trails Web site, where some of the tering is now pretty much under control, MI? Well, talking about that part of my life campers have posted. Many of us have but he still uses some of the techniques came very easy. And, I’m going to try my written about our fond memories of that he learned at that camp. For those of you best to get my friend involved in the NSA. camp and the part it played in our stutter- who know me, I’m a very open person Unfortunately, Dann is getting ready to ing therapy many years ago. Dann told about my stuttering and still struggle retire at the ripe old age of 55 and move me that he just had the urge one day sometimes to keep it under control. But to northern MI, which is about a four-hour to type in “Shady Trails” and see what the more that Dann and I talked about drive from my house. But this time we have happens. Like my long lost friend told our lives in the past 40 years, the more promised to keep in touch by E-mail and me, he believes that everything happens comfortable it became. My fluency was by phone. for a purpose. It turns out that Dann lives the best it has been in months. Dann and works only a little ways away from joked that if he had contacted me a few Bernie Weiner has been a member of the NSA my house in Troy, MI. Like many former years ago, I would have been using fluency for the past 11 years. He has been a member campers, we had gone our separate ways controls all the time by now (smile). of the Royal Oak, MI, NSA chapter since and lost touch. A lot of thoughts went through my head 1995 and is a two time co-chapter leader of What is so amazing is that Dann and before I left my house to meet up with my the year. Bernie works at General Dynamics I have not seen each other in almost 40 best buddy from camp. I must admit, that Land Systems as an engineering records and years. A lot of things have gone on in for some reason, I was very nervous about release specialist. Volunteer Request BY CATHY OLISH

The NSA is a non-profit organization, Projects Needing Assistance If you are interested, please E-mail and all the work that is done within Help at state conventions, American me at [email protected] or contact the NSA is from people who volunteer Speech-Language-Hearing Association the NSA office at [email protected] their free time to help others. As NSA (ASHA) conventions, etc.; help with or 800-WeStutter (800-937-8888). volunteer coordinator, I am responsible NSA newsletters and publications I would like to acknowledge those for finding volunteers and working (putting together a series of “best of” who have assisted the NSA on various with them to help those who need issues); Youth/Family Days; Adult/Teen projects this past year: Annie Bradbury, assistance with projects, tasks, special Mentor Program (anyone out there Joseph Diaz, Leslie Furmansky, Maria events, and anything else that comes with experience in mentor programs?); Garza, Zan Green, Ronnie Johnson, up during the year. I coordinate surveys; welcome folder for new Sonya Kunkle, Brad Madsen, Joe Mirly, between the volunteers and those who families and new members; creation Lee Reeves, Bob Rochefort, Vicki need assistance (mostly board members of flyers and pamphlets; researching Schutter, Anthony Romano, Junior and the NSA office) to ensure the tasks/ Internet and Web sites for NSA info Tereva, Tracey Wallace, Bernie Weiner, projects are completed as required. and links; many more. and Bonnie Weiss. Thank you all for I always wanted to do more but For those who attended an NSA a your time and a job well done! never knew what I could do. So, I start- conference this year for the first time, Cathy Olish is from Michigan. She ed to find things to do. That was the you probably left there with so much has been an active member of the best thing I could do for myself because excitement and energy and a new- Royal Oak NSA Chapter for six years, as I help others, I help myself. We have found feeling of empowerment that is co-chapter leader of the Royal lots of talent within the NSA and could you don’t know what to do with. Oak Teen Support Group (TWIST), use your experience and skills. Many of To keep that energy and excitement editor and publisher of the chapter’s you say you want to help but don’t going and stay connected, help us. bi-monthly newsletter, the chapter’s know what to do…well, it is my job to Not only will you be helping others, Web site developer, assistant editor of find you something to do. Don’t worry, but you will be helping yourself along LETTING GO, and was recipient of NSA’s there is plenty! the way. Member of the Year award in 2004. www.WeStutter.org

THE COUNTRY’S LARGEST SELF-HELP GROUP FOR PEOPLE WHO STUTTER 7 Were you one of the mo attended this year’s NSA These people were! We Beach, CA, next year! ore than 600 people who A conference in Chicago? hope to see you in Long A Day to Discussing Stuttering with Others Remember BY MARIA GARZA BY BOB ROCHEFORT Ever been in a situation It’s evoked a sense of compassion A few months ago, a speech-language where you have to talk and understanding within me that pathologist (SLP) called and asked if I about your stuttering? I don’t think I’d have unless I had this knew anyone who could come to the In a situation where you challenge. I think it has made me a school of a client of hers. As the only either want to share strong, motivated person. member of our chapter who works part your story or you know • The fact that after thinking of all time, I volunteered to go. I assured her your listener wants to the disabilities I could have had, this that I had some experience in talking to know more? On rare occasion people will one isn’t so bad – I can’t speak for all groups but have never talked to a fifth just come out and ask. For the most part, stutterers, but I can speak for myself. grade class. though, people wait for the stutterer to • The fact that I am not ashamed of The SLP, Gail Hachenburg, set it “bring it up.” Unfortunately, when it is not my stutter – I didn’t ask for this up with the principal and the classroom addressed and not understood, the listener impediment; I was given it. As a result, teacher to schedule the talk for May 23. forms opinions that may or may not be true. I must deal with it the best I can. I met the parents of the child who stut- It’s strange; I’ve noticed there’s actually We only have one shot at life, and ters before going to the class, and the a look people give me that lets me know I’m not going to watch it pass me by. mother said she knew me. This surprised they want to learn more. I can’t deny that Life is too much of a gift to do that. me as I did not recognize her or her sometimes I ignore their look, but I’m husband, but she said we met at a Family happy to say that’s not my norm. It all There are of course other things I Day that the Boston NSA chapters had depends on the situation and the person. mention related to my personal and sponsored three years ago. I met Nick, To me, talking about my stuttering is professional choices in life, but the state- the son, and we all walked into the extremely personal and not something ments I listed here are among my favorite classroom together. I just openly discuss with anyone. As with and most important messages. With that The SLP spoke first, then Nick all of us, my pain runs deep and my com- said, I’d like to leave everyone reading interviewed me by asking me questions passion for those with a more severe stutter this article with one challenge: about my stuttering. I then talked about than my own runs even deeper. The next time you get that look, get that stuttering in general and how it had As I get older, I find myself wanting to question, or are just overwhelmed to share affected me when I was young. When I educate the “fluent” people of the world. I your story, please do. We as stutterers have so asked the class if they knew other people want to help them understand our struggle, much to offer this world. Yes, stuttering does who stuttered, six of them did, this sur- and understand what strong, intelligent, affect the way we are heard, but that doesn’t prised me. I did not meet my first person and motivated people we really are despite mean we don’t have the right to be heard. who stuttered (PWS) until I was 15. this disability. So when I sense that look, Whether it’s sharing your story with a family We had everyone in the room try get that question or am just overwhelmed member, a close friend or a perfect stranger, be voluntary stuttering and then asked them with the feeling to share my story, I will. rest assured that you have a whole lot of people to try it outside the classroom. Their When I do though, there are a few things behind you that are supporting you. The only questions were terrific: Does stuttering I make sure to always mention: way to change the perception of stutterers is come from our genes? How did I react • The fact that I’ve dealt with this to educate the masses, one person at a time. to Porky Pig? Do I think he’s funny? impediment my entire life – it isn’t Our fluent friends and family members I talked about famous people who going away, it is a life-long challenge are also welcome to take the challenge. are PWS. I read Alan Badmington’s that I am prepare to face head on. The next time a person makes a joke about poem about “Everyone’s Different.” • The fact that my speech impediment stuttering or looks strangely at your friend I then talked about teasing and went is only a speech impediment – my mind or family member who stutters, take the into the iceberg example of what you is just as sharp as the next person, it just time to educate them. Please know that I see and what you don’t see when a may take me a bit longer to verbalize am not saying everyone who reads this has person stutters. what’s going on in my head. to take this challenge; it isn’t easy at all and This was a wonderful experience for • The fact that I am not afraid of my doesn’t have the same impact on everyone. Nick and me. future, not afraid to push myself to If you feel motivated to do it though, please that next level – yes, it has been a do. The more we can share with and sup- Bob, 70 years old, is a retired quality challenge, but who hasn’t faced some port one another, the stronger we will be. manager. He is a husband of 47 years, kind of challenge in their life? father of two, and grandfather of three. • The fact that I hated my stutter as a child Maria Garza is the co-leader of the Michigan Bob has been a member of the NSA for 15 and wished it would go away – but today, Royal Oak–Beaumont Hospital Adult Support years, and Chicago was his ninth conference as much pain as it has caused and still Group. She has been employed at Ford Motor in a row. He has been the Boston chapter causes, it also brings joy to my life. I feel Company for more than eight years where she co-leader for two years and leader for three. I have been blessed with this challenge. works as a human resources associate.

10 NATIONAL STUTTERING ASSOCIATION THE COUNTRY’S LARGESTSELF-HELP GROUP FORPEOPLEWHO STUTTER BY HELENVYNER How MyGolfGameDevelopedaStammer who stuttered hadresurfaced inanotherarea. characteristics Ihaddisplayed asaperson that seemedunrelated tospeech–all the –achallenge entirely challenge(golf) new myself andmyspeech,whenfacedwiththis hexagon* inrelation tohow Ifeltabout Although Ihadsuccessfullychangedmy any speakingsituationbegantoerode. confidence withwhichIwasabletogointo speech wasn’t assmoothithadbeen. The –butonoccasions,my signs ofastruggle there were nomajorblocks,outward come, hadre-emerged. Not dramatically– worked sohard andsosuccessfullytoover- strange happened. I couldimagine.Atthispoint,something than was muchmoredifficult and frustrating pro andfoundtomysurprisethatthegame race, orgender. for allthosewhostutter–regardless ofage, he’sanother hip-hopmusicartist; avoice in themusicworld.Frankie Jones isn’t just know thatwe asstutterers now have avoice your head.If not,you maybe interested to rhymes ofFrankie Jones maystillringin ence over thelastcoupleyears, thelyrical He talksofthe received asaresult of thisimpediment. we’ve overcome, andtheblessingswe’ve of theobstacleswe’ve faced,thechallenges entitled “RightfullySpoken.” He speaks If you’ve attendedan BY MARIAGARZA The MotivationalLyrics ofFrankie Jones come theirown obstaclesandreach their his giftistohelpotherscontinue toover- believes hisstutteringisagiftofGod – discusses hisreligious beliefsandhow he he hopesinfluencedtheirlives. He touched himdeeplyandtheways inwhich How atgolfbecamevery Iperformed I begantoanalyze whatwashappening. My stammer(stutter),whichIhad He tellsourstoriesinhisfirst-ever NSA much recovered. Then considered myselfpretty McGuire Program, I going through the Three years orsoafter I tookupgolf. kids andteenswho’ve I bookedlessonswitha NSA annual confer- CD blocks insteadofspeechblocks!! I developed a“golf stammer”! Ihadgolf In Iheldback.Asaconsequence, short, expression. Ididn’t give myselfafree rein. afraid of“failure,” Ididn’t allow myselffree not hittingabadshot.Because Iwasso Iplacedallmyemphasison performance. bad round ofgolf. Iconcentratedsolelyon andbeatmyselfupwhenIplayed a angry myself whenIstammered, soIwould get exactly thesameway. wrestled witharound stammering.Ifelt Ihad the samefeelingsofimperfection I couldn’t acceptthat.Iwasovercome with I I couldn’t although acceptthat.Likewise, toothers,emotionally was ofnoimport round the golfcourse. of mewhentheysawhackingmyway I now worriedwhatotherswouldthink would thinkofmewhenIstammered, golf course.Just like Iworriedwhatothers I now didn’t wanttoshow myselfuponthe to show myselfupwhenIstammered, tome.Justimportant likeIdidn’t want purchase atwww.WeStutter.org underthe we allhave agifttoshare withtheworld. reinforces thefact thatwe are allspecial,and each ofustokeepstriving day. He he captures theessenceofwhatmotivates ment, andregret, butinthesamebreath captures thefeelingsofshame,embarrass- of whowe are aspeoplewithastutter. He heart Lives.” Bothsongsspeaktothe very powerful songentitled“Days ofOur He camebackin2004withyet another self-written song“Man intheMirror.” call “joyful pain” totheaudiencewithhis in 2003andbrought tearsof what I’d lyrics willbeabletodothesame. and hopesthatanyone listeningtothe fears andpain.Instead heopenlyaddresses the factthatheisstillovercoming hisown own dreams anddesires. He doesn’t hide knew Now that Irealize whatwasgoingon, Just andberate asIwouldgetangry mystammer Although rationallyIknew “Rightfully Spoken” isavailable for Frankie attendedhisfirstconference no onecared how Iplayed golf, behavior. To makepermanentchanges,allthe intentions, physiologicalresponses,andphysical of thehexagonareemotions,perceptions,beliefs, StutteringHexagon.Thesixpoints stuttering—the * ThisreferstoJohnHarrison’s holisticmodelof Now I know differently. between thegameofgolfandmyspeech. have thoughtthere wasanycorrelation perceive, feel,andbelieve. Iwouldnever a reflection ofmyentire self:how Ithink, harder is tograsp–thatmyperformance of thehexagon,butreality wasmuch my hexagonthatisonceagainwell balanced. my speechthatisbacktowhere itwas,it’s to where itwas.Althoughofcourse,isn’t aboutjustyet! anything toworry my game.Idon’t think Tiger Woods has have improvedsolely onperformance, fun onthegolfcourse,notconcentrating My golfhasimproved. Lettinggoandhaving two thingshave happened.First…hallelujah! Helen Vyner lives inLondon, points ofthesystemhavetobeaddressed. now golf. things, music,drama, current affairs,and now itsadministrator. She enjoys amongother the McGuire Program inJune 2000andis in this CD NSA her dreams. mined tonotletitstopherfrom pursuing ways tochallengeherself,asshe is deter- accept herspeechandcontinuously seeks through 8thgrade. She to haslearned speechtherapyformal from kindergarten a humanresources associate.Maria received more thaneightyears where sheworks as employed atFord Motor Companyfor Adult Support Group. She hasbeen Michigan Royal Oak–Beaumont Hospital Maria Garza istheco-leaderof knows someonewhodoesshouldinvest personal level. Anyone whostuttersor I alsoidentifywiththelyricsatavery thesongs,but who wrote andperforms the best.Not onlydoIknow theartist I knew thetheory.I knew theconcept Iknew The secondthingisthatmyspeechback s Iown, Iconsiderthistobeoneof Store sectionofthesite.Of allthe CD . You won’t bedisappointed! UK . She joined 11 www.WeStutter.org After Slaying the Monster BY MATTHEW RICHARDSON

If there’s something you really want to do Making small positive changes has a • A feeling of success, fulfillment, and but think you can’t because of stuttering, massive benefit on effect. Rather than say- accomplishment I can show you how to make it happen. ing, “I’ll wait till I’ve stopped stammering • The confidence to accept new challenges Think of something you really want to and then join the Karate club” I joined the • Happiness do. Anything. You know there are potential- Karate club. This helped improve my disci- • Richer in character and monetary terms! ly great rewards, but you’re just not sure if pline and character, and thus I was better you could cope with the initial risks. You equipped to address my stammering! Just look at the fantastic rewards out just need that final push to take action! During my workshop at a conference I there waiting for you! Can you imagine Whenever I feel this way, I use my asked people to think about what they real- those feelings of happiness, satisfaction, “Risks versus Rewards” chart. This is a ly wanted to do. The answers included and confidence? Also note that the specific tool for getting over the initial fear things like “start my own business,” “move feeling of discomfort (risks) are only of stammering (stuttering) in a new ven- into management,” and “join a public temporary. Yet the rewards are long term ture, and one I find very useful. speaking club.” Here are just some of the improvements to the quality of your I’ve found that two of the most rewards they came back with. life! Look at the rewards. Now look at common risks are: 1) Stammering in front the risks. of somebody and 2) A slight feeling of Risks A final question – Are you prepared to discomfort at first. • Possible stuttering risk a little bit of stammering and a little For example: You might be putting • Slight discomfort at first bit of temporary discomfort for all those off going for that job interview because fantastic rewards? you don’t want to stammer in front of Rewards your interviewers. You would feel slightly • Freedom of expression George is 28 years old and lives in Hull, UK. uncomfortable at first. • The control of my own destiny He is currently working as freelance writer But just imagine if you decided to go • Massive self-confidence and training in counseling. George has been for it. Perhaps you stammer at the inter- • High self-esteem a member of the British Stammering view. But you get the job! • Confidence to expand my comfort zones Association for the past four years. What will be the rewards of going for it? What are the benefits of your new life? How will you have changed have a person? What new exciting rewards will be a part of your life? CHAIRMENINSIGHT About a year ago I really wanted to start BY NSA CO-CHAIRMEN MICHAEL MCDUFFIE AND JOSEPH DIAZ martial arts. But at first I was afraid of going to the club in case I stammered in New NSA Spokesperson successful conferences ever with front of the instructor! (Getting physically The National Stuttering Association is more than 600 people in attendance. hurt was actually way down on the list!) pleased to present Lee Reeves as The positive momentum continues. But I went for it, and let me tell you – national spokesperson for the organi- Moreover, we look forward to contin- the rewards were immense. Here’s how zation. Lee has been a long-time mem- uing our mission of bringing hope, my individual chart would have looked. ber of the NSA and a former chairman dignity, education, support, and of the board of the NSA. In addition, empowerment to the children, teens, Risks he was inducted into the NSA Hall of adults, families, and speech-language • Possible stuttering Fame in 2003. His constant devotion to pathologists who are such integral • Slight discomfort at first the stuttering community has been part of the organization we proudly well supported by his everpresent pas- call the NSA. Rewards sion and enthusiasm. He has exhibited • New friends a lifelong commitment to improving • A life changing experience the lives of people who stutter. • A feeling of confidence and assurance We also offer our sincere apprecia- • I have courage to pursue new challenges! tion for the efforts of Annie Bradberry, • I am physically and mentally stronger the past spokesperson for the NSA. than at any other time in my life She worked to increase the exposure • I am learning about Eastern/oriental of the NSA and to brighten the world culture and spirituality! for people who stutter. • A tremendous sense of peace, happiness, The recent NSA annual conference and fulfillment in Chicago was one of our most www.WeStutter.org

12 NATIONAL STUTTERING ASSOCIATION Bob Spradley Receives Award BY DIANE COLLINS, M.A., CCC-SLP

Robert “Bob” Spradley has been voted on the students wrote a third article. Without Bob, this Adult Consumer of the Year for 2005 by who went. These Bob has connection would never have been made. the California Speech-Language-Hearing students did not been such Bob, who has been a stutterer all of Association (CSHA). He was acknowledged realize that there are his life, has received speech therapy over an advocate at the CSHA Convention Association many others like the years. He was a client of Vivian Dinner at the Westin Hotel in Santa Clara them who stutter. for people Sheehan’s, and he has been a long time on the evening of April 17, 2005. Bob has Bob worked with who stutter, member of Gail Wilson Lew’s Stuttering been a member of the NSA for the last 13 the teenagers during Support Groups. He has also worked years and currently resides in Upland, CA. that workshop. and he has closely with Annie Bradberry and the Bob is receiving the Consumer of the Bob facilitates provided a National Stuttering Association. His Year Award because of all he has done to the teen groups struggles to improve his speech and accept help himself and others. The following at each workshop tremendous his stuttering, along with all of his efforts story tells why Bob is so special. held by Gail as amount of to help others, truly earns Bob the title One day, about four years ago, one well as at the ones of CSHA Consumer of the Year for 2005. public of my fellow employees came to me and sponsored by CSHA Congratulations! said that she had an adult neighbor District 10. The awareness. (Bob) who stuttered and who wanted to students have Diane Collins has been a speech-language speak to me. Little did I know that this developed a very pathologist for 30 years and is the California was going to be the beginning of a very high regard for Bob. He has been a major Speech-Language-Hearing Director for nice relationship that was going to have force behind building their self-esteem. District 10, which covers San Bernardino, an impact on so many people, and in After attending the first workshop, my Riverside, and Inyo Counties in CA. She particular on my students. students asked if we could attend future has been a very active member of the NSA When I told my colleague that it was workshops. They also wanted to bring for four years. fine for Bob to call, he came right over to other family members who stuttered. Upland High School, and he asked if I They wanted to bring relatives and friends knew of the fluency workshops that Gail to promote awareness of stuttering. We did Helping Katrina Wilson Lew conducted at Pasadena City attend other workshops and the National Survivors College. I told him I did and that I had Stuttering Association conference held in tried to get my high school students to Anaheim, CA, about three years ago. Once Many of our members live in the attend. The problem was that the activity again, Bob interacted with the students area devastated by Katrina and was on a Saturday, and many parents and took pictures of them throughout the have been drastically affected by either worked weekends or they had convention. After the convention, Bob the hurricane. If you live in the other commitments, and the kids could made copies of his pictures to give to all affected areas, please know that not get to the workshops. the students who attended. To this day, our hearts and prayers go out to students who graduated still stay in touch you and your family. Also know Helping Children and call to ask if more disfluency work- that the NSA is extending to you Bob told me that he had gone to the shops are being held. They always make free membership for 3 years as a Inland Valley Daily Bulletin and surround- sure to ask if Bob will be there, and he is. small gesture to help ease your ing schools to advertise these workshops Bob has been such an advocate for financial burden. because they had been of such value to people who stutter, and he has provided him, and he really wanted my students to a tremendous amount of public awareness. attend. Because of the hardships he had Through his contact with Diane Sholley, Save the Date! endured as a stutterer, he wanted to help a reporter with the Inland Valley Daily 2006 NSA Conference others who stuttered. He wanted them to Bulletin, his story has been told. Also, realize that “stuttering is a challenge, not prior to the first workshop attended by Next year's conference will be held a disability.” the Upland High School students, Diane in Long Beach, CA, June 28-July 1, I told Bob that I would see what I could Sholley came to the high school to inter- 2006, at the Westin Long Beach. do about getting the students to one of view the students about their thoughts on As for this year's conference in the workshops. After speaking with my site stuttering. Then, she interviewed them Chicago, for Long Beach we have principal and the parents of my students again after the workshop. She wrote a secured the same great hotel rate who had disfluencies, I received permission newspaper article on the before and after of $129 per night single/double/ to take five students to a workshop, and of this event, and it was a real eye opener. triple/quad. Information will be Bob graciously paid their registration fees. Diane also sat in on a CSHA One-Day sent out in February. This workshop had a tremendous impact Workshop for Students Who Stutter, then www.WeStutter.org

THE COUNTRY’S LARGEST SELF-HELP GROUP FOR PEOPLE WHO STUTTER 13 CHAPTERNEWS FROM BONNIE WEISS

A Garden of Bangor, ME recently. They had a new person join Positive Thoughts The June meeting of the Eastern Maine them so each person there introduced BY GEORGIANA AVRAM chapter took place in Ross Manor. First, themselves and told about their past they talked about letting go of the pain experiences with therapy and the NSA. No, I am not being of the past and embracing the potential Three of their members attended the sarcastic. And I am not for the future. Second, they discussed convention. They had their July meet- taking stuttering jokingly, outcomes of approaching strangers ing at the Taj Mahal Indian Restaurant although I’m not being that they’ve heard stuttering in public in Houston. too serious either. and informing them that you yourself Stuttering can be funny. stutter and that there is a local support Mobile, AL But stuttering is usually group. The third topic was to share The Mobile chapter leader, Billy embarrassing, especially for those who stutter. information about famous people who McLean, brainstormed some worth- Imagine if someone came up to you stutter. Marybeth Allen spoke of Alan while goals about stuttering at their and said, “You stutter! Wow, that is cool. Rabinowitz’s moving story as a person July meeting. They came up with some Can you teach me how to do it?” And you who stutters. Hannah shared informa- goals about stuttering. They listed actually felt good about your stuttering. tion about the writer W. Somerset several things about their own stutter- It made you feel cool. Then stuttering Maugham. In the near future, the ing: 1) their goals about stuttering, would be great, right? group may attempt to meet in Belfast, 2) positive things about stuttering, Usually a fluent person will not make any hoping to bring together several NSA 3) negative things that might prevent such statement but instead may make only members who live in that area. or make it difficult for them to reach a certain facial expression that in the mind their goals, 4) items on the “negative” of a stutterer triggers feelings of shame. Beaumont, TX list that they could do something We people who stutter imagine some of the Four people attended the 2nd meeting about, and 5) brainstormed what they worst things that a person can say or think. of the Beaumont chapter including could do about fear/anxiety. Billy called That is the way the human mind works, a senior professor of the Chemistry this activity a “force filed analysis.” and it takes effort to change it. Imagine Department at Lamar University. if every day you inserted a positive thought Members of the group shared their Seattle, WA about your stuttering among the millions “journeys” as people who stutter and Joe Mirly and Elaine Saitta led a good of thoughts that come up in your mind. how they each coped with their stutter- meeting in Seattle. They talked about Just one. Everyday. One thought breeds ing. They also discussed ways to get the the “stuttering tax” – based on one more thoughts, and soon you’ll have a word out so that they can expand their of the workshops at the Chicago garden of vibrant, positive thoughts. membership. Everyone promised to take conference given by the Nashville, TN, For example, start with saying to yourself, responsibility for getting the word out chapter. Joe writes that this is a great “Stuttering is okay. I allow myself to stutter.” about their new chapter! topic that leads to some good conver- Then move to even deeper thoughts such as, sations and insights. He suggests that “I love my stuttering. I am free to stutter all Buffalo, NY other chapters consider using this I want!” Something miraculous can happen. Members of the Buffalo chapter met topic as well. Just as other people who stutter, I have at Erie Basin Marina, which is located way too many thoughts of shame about in Buffalo on the shores of Lake Erie on Tallahassee, FL my stuttering. And when the positive Saturday, July 30. Those who attended Rich Schwerdt and Faron Boggs thoughts about stuttering creep in, my life the Chicago conference shared their co-lead this chapter, which meets once is much better. Just like anything in life, thoughts and memories while the a month. Rich says the group is very your attitude about it, whatever “it” may members ate hotdogs! After getting small, and he is having the other be, is what really matters. ice cream cones (the biggest in Buffalo!) members help recruit additional Today, celebrate your uniqueness. The they walked along the path to see the members. They do advertise in the fact that you stutter is part of who you are. beautiful flower gardens, the boats and Tallahassee Democrat newspaper. Be proud of who you are, and think one yachts parked there, and the Naval and Rich says the meetings are pretty happy thought a day about your stuttering. Serviceman’s Park. Chapter members typical as each member recaps his stayed to watch the beautiful sunset speech since their last meeting and Georgiana is 22 years old. She graduated across the lake. then chooses a topic of discussion. from the University of Maryland and has Note: Rich is also the regional been living in New York. She was born in Houston-Southwest, TX coordinator taking care of the needs Romania and has been living in the United Vicki Schutter reports that their small of 20 chapters across the southeast States with her family for eight years. (but earnest) chapter met at her house and mid-Atlantic states. www.WeStutter.org

14 NATIONAL STUTTERING ASSOCIATION CONFERENCE MEMORIES continued

Self Acceptance memory for me was to see one of our And that is the point of the NSA annual I absolutely love being with people who group’s teens at the convention. Phillip conference – freedom. A speaker at one of stutter. Being a stutterer was my whole life. and his parents were only able to come for the workshops suggested that we as PWS It ruled me, it affected everything I did, a very short time. But in that time it was have not done a good job in educating the it hurt me, it made me feel ashamed, great to see him with that convention public about stuttering. She suggested that embarrassed, made me a big time people smile. I went to lunch with them, and when we get home from the conference pleaser (except towards myself), and I hearing Phillip talk in a crowded restaurant we talk to our families, our friends, and didn’t want to accept it for anything in was fantastic! His parents also informed our coworkers, and that by doing so, we the world. I was in denial. me that Phillip asked if they could go would earn our own freedom, one step at a Now, after accepting myself as a stutter- again next year. ✏ Gloria Klumb time. And so I will make a down payment er and for who I really am, I can say now on mine. ✏ David Levitan my life is so complete and fulfilled. I know Talking without Fear now that I am worthwhile and a strong As a person who stutters (PWS), the confer- Family Magic person. I love the friends I made through ence is more than an opportunity to see I can’t tell you how much the NSA and truly love being with people old friends and make new ones. It is more you all mean to me. It who stutter. Thank you all for accepting than the chance to take risks, talk, and seems that I think of you me for who I am. have fun. It is more than that because it all more than any other Thanks for all the good laughs and is the one time during the year that we people in my life. When the great time. I love you all in a special can talk and be absolutely certain that no I need to talk, it is one of way…Can't wait till next year…I miss matter what we say, or how we say it, or you I turn to…when I need advice, a hug, you all already. ✏ Bob Koste however long it takes, or to whom we are or just an ear…one of you is always there. speaking–that the other person will not When I need to laugh, share, or just need a ’Til Next Year laugh, will not look bewildered, will not friend…you again. Even when I am feeling Today is Sunday, July 17, and I am sitting lose interest, will not walk away, will not alone, you are all there with me. in the Weston Hotel lobby. I am filled patronize, will not do anything other than We truly are a family, and there isn’t with both happiness and sadness. Part listen. It is the one time when we can talk anything I wouldn’t do for any of you. of me is sad because I am now ready to without fear. I am reminded of you every time I look check out of the hotel and just waiting The conference gives PWS a chance to at my NSA bracelet and in every word I for the time that the train will leave. open up with each other and talk about speak. I smile knowing how lucky I am I know it will be another year till I see what they go through every day. I heard to have so many great people in my life all my friends again. a story from a young man who bought who are there for me, care about me, and The days of the conference were filled size 10 shoes because the word “eleven” accept me for who I am and all I bring with laughter and lots of visiting with old was too difficult to say. I heard from a to this family. friends and making new friends. The best woman who refers to her brother as her Not a day goes by where I am not in place to continue with those friendships mother’s son to avoid the word “brother.” touch with at least one person from my was right in the hotel lobby. To those of Another person told me how when NSA family—I wouldn’t have it any you who thought Erin and I had our someone asked for his age, he would other way. We carry each other through names on those lobby chairs well, we did! answer “I'll be 53 next May,” even though good times and bad, in both our speech Those early morning nonscheduled May was 10 months away – “fifty-two” and other aspects of our life. There is “workshops” with who ever went by were was too hard for him to say, and he did this instant connection that just happens the greatest. Just being in the lobby we not want to bother with it. between people who stutter, and it saw so many people we would have not The irony for many PWS is that when doesn’t matter what background we seen. We were also able to form some they come out of the stuttering closet come from, how old we are, how many new friendships. I also learned some Erin’s and talk freely about their disorder they conferences we have been to, what we magic tricks. Always exciting to learn become more fluent. “Stuttering John” do for a living, etc. It just happens. something fun. Melendez, a keynote speaker at the NSA It amazes me how fast people connect We also had so many great workshops conference, made an interesting point – in the short time we are together. I would to attend. One that sticks in my mind when Howard Stern referred to him as call this pure “magic.” is Brad’s and Elaine’s “Advertise Your Stuttering John, he did not have to hide Thank you all for being the best part Stuttering.” At the time it was something anymore. Everyone knew he stuttered, of my life. And remember, you are never I did not think was funny, but now I and they were expecting it from him. alone. I am here…and so is the rest of

can laugh about it. Another very special For John, it was freedom. your NSA family. ✏ Cathy Olish www.WeStutter.org

THE COUNTRY’S LARGEST SELF-HELP GROUP FOR PEOPLE WHO STUTTER 15 Editor Sonya Kunkle, [email protected] ODDS&ENDS Art Director Janet Lenzer COMPILED BY CATHY OLISH Assistant Editors Cathy Olish Special Fund Honors Marty for all of his dedication and effort on Bonnie Weiss The NSA board of directors established behalf of those who stutter. Phone a memorial fund in memory of Marty Also this year, J. Scott Yaruss was 212-944-4050 Jezer, who passed away in June. selected to receive the ASHA Fellows 800 (WeStutter) 937-8888 Marty was a long time member of the Award, which is one of their highest Fax NSA and very active in the stuttering accolades and is retained for life. 212-944-8244 community. Marty, a person who Scott has joined the “giants” in his E-mail stuttered, like so many found solace field. Of course, we have always [email protected] in the comfort an NSA conference can known how blessed the NSA has been Home Page provide. Making sure others experi- to have these two helping to guide www.WeStutter.org ence the same support as Marty, this our organization to becoming all it LETTING GO is a forum for views and fund will provide financial support to can be so that we ourselves can reach information about stuttering. The opinions help people to attend NSA conferences and grow as people who stutter. expressed are those of the individual con- as the memory of Marty continues and With that, I send much congratulatory tributors and not necessarily the opinion of the National Stuttering Association. The NSA provides hope to others. recognition and noise to Lee and Scott. accepts no responsibility for the accuracy of ✏ Terry Davis any opinion or information provided by any NSA Service Award contributor, nor do we endorse or reject any therapeutic strategies, programs, or devices The NSA has once again been honored Note from Nobby mentioned in these pages. by having two of our own receive What a great experience attending ©2005 National Stuttering Association. 2005 American Speech-Language your convention in Chicago. To see the All rights reserved. Hearing Association (ASHA) awards. parents there to learn more for their As many of you recall, the NSA own self-education and to help their received the Distinguished Service child grow and get the self-confidence Award in 2002. This award is given in needed to live with a stutter. discussed his lifelong struggle with recognition of significant contributions You do not have to be fluent to be stuttering and some of the things by a non-member or non-member successful. If you have the drive and he’s doing to overcome his fears of organization or corporation. desire, the “demon” can be conquered. stuttering. You can listen to the inter- Last year, Michael Sugarman, ✏ Nobby Lewandowski, NSA 2005 view on the Weekend America Web co-founder of our conference keynote speaker site at www.weekendamerica.org. organization, very Rob is a humor writer. He writes deservedly was “Weekend America” a regular humor column, which honored with this Rob Bloom, an NSA member from is available on his Web site. You award. This year Philadelphia, was recently interviewed can read his humor work as well Lee Reeves has been on the nationally syndicated radio as articles about stuttering at selected in recognition program “Weekend America.” Rob www.robbloom.com.

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