CANCER: PAEDIATRIC AND YOUNG ADULT November 2010

This bulletin is produced every two months and relates to both cancer and the young adult and paediatric oncology, and should be of interest to staff working in this area. Topics covered include symptom management, screening/pathology/staging, psychological and survivorship issues. .

Many of the following articles are available online via the NHS Scotland eLibrary. Please use the links where provided and your ATHENS password. A complete list of available online journals and registration for ATHENS can be found at http://www.knowledge.scot.nhs.uk/home.aspx

If the article you require is not available via the NHS Scotland e-Library and you would like to request a print copy, please submit your request online at www.gglss.scot.nhs.uk

This bulletin contains a selection of material gathered from a search of the evidence base, and is not intended to be comprehensive. Professional judgment should be exercised when appraising the material. The Library takes no responsibility for the wording, content and accuracy of the information supplied, which has been extracted in good faith from reputable sources. NHSGGC is not responsible for the content of external internet sites.

Contents: Communication and Decision Making ………………………………………………………………2 Prognosis, Risk Factors and Incidence ……………………………………………………………..2 Psychological Issues ………………………………………………………………………………….3 Screening/Pathology/Staging/Biomarkers ………………………………………………………….4 Survivorship Issues and Quality of Life ……………………………………………………………..4 Symptom Management ……………………………………………………………………………….5 Therapies ……………………………………………………………………………………………….6 Working with Paediatric and Young Adult Patients ………………………………………………..7

Compiled by: Alison McEwan Assistant Librarian Level 0, Education Suite, Beatson West of Scotland Cancer Centre, 1053, Great Western Road, Glasgow G12 0YN 0141 3017283, [email protected]

Cancer: Paediatric and Young Adult, November 2010 Alison McEwan, Assistant Librarian, NHSGGC Library Network 1 Communication and Decision Making

Chappuy, H. & Baruchel, A. (2010). Parental comprehension and satisfaction in informed consent in paediatric clinical trials: a prospective study on childhood leukaemia. Archives of Disease in Childhood. 95(10): 800-804.

Manicat-Emo, a. (2010). Truth-telling and an adolescent diagnosed with a malignant brain tumour: who are we protecting? Canadian Journal of Neuroscience Nursing. 32(3):36-40.

Prognosis, Risk Factors and Incidence

Arkader, A. (2010). Pediatric extremity soft-tissue sarcomas: from diagnosis to surgical treatment. Current Orthopaedic Practice. 21(5):508-517.

Brewster, D.H. (2010). Risk of skin cancer after neonatal phototherapy: retrospective cohort study. Archives of Disease in Childhood. 95(10): 826-831.

Brewer, N. (2010). Longitudinal Predictors of Human Papillomavirus Vaccine Initiation Among Adolescent Girls in a High-Risk Geographic Area. Sexually Transmitted Diseases. Published ahead of print.

Carr, S. (2010). Oseltamivir-resistant Influenza A and B Viruses Pre- and Postantiviral Therapy in Children and Young Adults With Cancer. Pediatric Infectious Disease Journal. Published ahead of print.

Chow, E.J. (2010). Childhood cancer in relation to parental race and ethnicity: a 5-State pooled analysis. Cancer. 116(12): 3045-3053.

Collins, L. (2010). Nutritional Status at Diagnosis in Children With Cancer I. An Assessment by Dietary Recall-Compared With Body Mass Index and Body Composition Measured by Dual Energy X-ray Absorptiometry. Journal of Pediatric Hematology/Oncology. 32(8):e299- e303.

Cypel, T. (2010). Predisposing Factors and Outcomes of Malignant Skin Tumors in Children. Plastic & Reconstructive Surgery. 126(2):508-514.

D’Angelo. P. (2010). Breast metastases in children and adolescents with rhabdomyosarcoma: Experience of the Italian Soft Tissue Sarcoma Committee. Pediatric Blood & Cancer. 55(7):1306-9.

Kaminagakura, E. (2010). Case-control study on prognostic factors in oral squamous cell carcinoma in young patients. Head and Neck. 32(11): 1460-1466.

Karosas, A.O. (2010). Ewing's sarcoma. American Journal of Health-System Pharmacy. 67(19):1599-605.

Kayton, M.L. (2010). Primary lung adenocarcinomas in children and adolescents treated for pediatric malignancies. Journal of Thoracic Oncology: Official Publication of the International Association for the Study of Lung Cancer. 5(11):1764-71.

Cancer: Paediatric and Young Adult, November 2010 Alison McEwan, Assistant Librarian, NHSGGC Library Network 2 Kheifets, L. (2010). Pooled analysis of recent studies on magnetic fields and childhood leukaemia. British Journal of Cancer. 103(7): 1128-1135.

Koshy, J. (2010). Breast Cancer Incidence in Adolescent Males Undergoing Subcutaneous Mastectomy for Gynecomastia: Is Pathologic Examination Justified? A Retrospective and Literature Review. Plastic & Reconstructive Surgery. Published ahead of print.

Machens, A. (2010). Papillary thyroid cancer in children and adolescents does not differ in growth pattern and metastatic behavior. Journal of Pediatrics. 157(4):648-52, 2010 Oct.

Paradela, S. (2010). Prognostic factors for melanoma in children and adolescents: a clinicopathologic, single-center study of 137 Patients. Cancer. 116(18):4334-44, 2010.

Phillips, B. (2010). Systematic review and meta-analysis of the discriminatory performance of risk prediction rules in febrile neutropaenic episodes in children and young people. European Journal of Cancer. 46(16):2950-64.

Poynter, J.N. (2010). Trends in incidence and survival of pediatric and adolescent patients with germ cell tumors in the United States, 1975 to 2006. Cancer. 116(20):4882-91.

Ramandeep, S. (2010). Cancer at ages 15-29 years: the contrasting incidence in India and England. Pediatric Blood and Cancer. Published ahead of print.

Revel-Vilk, S. (2010). Risk factors for central venous catheter thrombotic complications in children and adolescents with cancer. Cancer. 116(17):4197-205.

Rosychuk, R.J. (2010). Childhood cancer trends in a western Canadian province: A population-based 22 year retrospective study. Pediatric Blood and Cancer. 55(7): 1348-1355.

Rube, C.E. & Fricke, A. (2010). DNA repair alterations in children with pediatric malignancies: novel opportunities to identify patients at risk for high-grade toxicities. International Journal of Radiation Oncology Biology Physics. 78(2): 359-369.

Schellong, G. (2010). Late valvular and other cardiac diseases after different doses of mediastinal radiotherapy for Hodgkin disease in children and adolescents: Report from the longitudinal GPOH follow-up project of the German-Austrian DAL-HD studies. Pediatric Blood & Cancer. 55(6):1145-52.

Zhang, J. (2010). Ameloblastoma in children and adolescents. British Journal of Oral & Maxillofacial Surgery. 48(7):549-54, 2010 Oct.

Psychological Issues

Anderzen-Carlsson, A. (2010). Parental handling of fear in children with cancer: caring in the best interests of the child. Journal of Pediatric Nursing. 25(5): 317-326.

Angstrom-Brannstrom, C. (2010). Parents’ experiences of what comforts them when their child is suffering from cancer. Pediatric Oncology Nursing. 27(5): 266-275.

Ashford, J. (2010). Attention and working memory abilities in children treated for acute lymphoblastic leukaemia. Cancer. 116(19): 4638-4645.

Cancer: Paediatric and Young Adult, November 2010 Alison McEwan, Assistant Librarian, NHSGGC Library Network 3 Fletcher, P.C. (2010). How do I cope? Factors affecting mothers’ abilities to cope with pediatric cancer. Pediatric Oncology Nursing. 27(5): 285-298.

Kiernan, G. (2010). Psychosocial Issues and Care in Pediatric Oncology: Medical and Nursing Professionals' Perceptions. Cancer Nursing. 33(5):E12-E20.

Pearson, H. (2010). Managing the emotional aspects of end of life care for children and young people: Nurses face many challenges when providing care to families during this difficult journey. Paediatric Nursing. 22(7): 31-35.

Screening/Pathology/Staging/Biomarkers

Broniscer, A. & Baker, J.N. (2010). Prospective collection of tissue samples at autopsy in children with diffuse intrinsic pontine glioma. Cancer. 116(19): 4632-4637.

Engelen, V. (2010). Development and implementation of a patient reported outcome intervention (QLIC-ON PROfile) in clinical paediatric oncology practice. Patient Education and Counseling. 81(2): 235-244.

Kurashima, A.Y. (2010). A palliative prognostic score for terminally ill children and adolescents with cancer. Pediatric Blood & Cancer. 55(6):1167-71.

Raval, M.V. (2010). Use of sentinel lymph node biopsy for melanoma in children and adolescents. Journal of Surgical Oncology. 102(6):634-9.

Spradlin, K. (2010). Skin Cancer: Knowledge, Behaviors, and Attitudes of College Students. Southern Medical Journal. Published ahead of print.

Survivorship Issues and Quality of Life

Amigoni, M. (2010). Low anthracyclines doses-induced cardiotoxicity in acute lymphoblastic leukemia long-term female survivors. Pediatric Blood and Cancer. 55(7): 1343-1347

Barrera, M. (2010). Sexual function in adolescent and young adult survivors of lower extremity bone tumors. Pediatric Blood & Cancer. 55(7):1370-6.

Chong, A.L. (2010). A cross Canada survey of sperm banking practices in pediatric oncology centers. Pediatric Blood & Cancer. 55(7):1356-61.

Einarsson EJ. (2010). Long term hearing degeneration after platinum-based chemotherapy in childhood. International Journal of Audiology. 49(10):765-71.

Fioredda, F. & Moser, A. (2010). Natural course of HCV infection in childhood cancer survivors. Supportive Care in Cancer. 18(11): 1413-1420.

Ginsberg, J.P. (2010). Long-term survivors of childhood Ewing Sarcoma: report from the Childhood Cancer Survivor Study. Journal of the National Cancer Institute. 102(16): 1272-1283.

Haddy, R.I. (2010). Lifetime follow-up care after childhood cancer. Journal of the American Board of Family Medicine: JABFM. 23(5):647-54.

Cancer: Paediatric and Young Adult, November 2010 Alison McEwan, Assistant Librarian, NHSGGC Library Network 4 Hudson, M.M. (2010). Reproductive Outcomes for Survivors of Childhood Cancer. Obstetrics & Gynecology. 116(5):1171-1183.

Loi, K. (2010). Attitudes toward fertility preservation in female cancer patients. Journal of Reproductive Medicine. 55(9-10):411-6.

Ness, K.K. (2010). Physical performance limitations among adult survivors of childhood brain tumors. Cancer. 116(12): 3034-3044.

Paxton, R.J. (2010). Associations between leisure-time physical activity and health-related quality of life among adolescent and adult survivors of childhood cancers. Psycho-Oncology. 19(9):997-1003.

Penn, A. (2010). Child-related determinants of health-related quality of life in children with brain tumours 1 year after diagnosis. Pediatric Blood and Cancer. 55(7): 1377-1385.

Schulte, F. (2010). Social competence in childhood brain tumor survivors: a comprehensive review. Supportive Care in Cancer. 18(12):1499-513.

Speyer, E. (2010). Effect of adapted physical activity sessions in the hospital on health- related quality of life for children with cancer: a cross-over randomized trial. Pediatric Blood & Cancer. 55(6):1160-6.

Tylavsky, F.A. (2010). Nutritional intake of long-term survivors of childhood acute lymphoblastic leukemia: Evidence for bone health interventional opportunities. Pediatric Blood and Cancer. 55(7): 1362-1369.

Van Dijk, I.W.E.M. (2010). Evaluation of late adverse events in long-term Wilms’ Tumor survivors. International Journal of Radiation Oncology Biology Physics. 78(2): 370-378.

Symptom Management

Baggott, C. & Dodd, M. (2010). Changes in children’s reports of symptom occurrence and severity during a course of myelosuppressive chemotherapy. Journal of Pediatric Oncology Nursing. 27(6): 307-315.

Elmantaser, M. & Stewart, G. (2010). Skeletal morbidity in children receiving chemotherapy for acute lymphoblastic leukaemia. Archives of Disease in Childhood. 95(10): 805-809.

Ladas, E.J. (2010). The safety of acupuncture in children and adolescents with cancer therapy-related thrombocytopenia. Supportive Care in Cancer. 18(11):1487-90.

Landier, W. (2010). Use of complementary and alternative medical interventions for the management of procedure-related pain, anxiety, and distress in pediatric oncology: an integrative review. Journal of Pediatric Nursing. 25(6):566-79.

Linder, L. (2010). Analysis of the UCSF Symptom Management Theory: implications for pediatric oncology nursing. Journal of Pediatric Oncology Nursing. 27(6): 316-324.

Phillips, R.S. (2010). Antiemetic medication for prevention and treatment of chemotherapy induced nausea and vomiting in childhood. Cochrane Database of Systematic Reviews. 9:CD007786, 2010.

Cancer: Paediatric and Young Adult, November 2010 Alison McEwan, Assistant Librarian, NHSGGC Library Network 5 Phipps, S. (2010). Complementary therapies for children undergoing stem cell transplantation: report of a Multi-site Trial. Cancer. 116(16): 3924-3933.

Pillai, A.K. (2010). Anti-emetic effect of ginger powder versus placebo as an add-on therapy in children and young adults receiving high emetogenic chemotherapy. Pediatric Blood & Cancer. Early view online only in advance of print.

Thygeson, M.V. & Hooke, M.C. (2010). Peaceful play yoga: serenity and balance for children with cancer and their parents. Pediatric Oncology Nursing. 27(5): 276-284.

Ullrich, C.K. (2010). Fatigue in children with cancer at the end of life. Journal of Pain and Symptom Management. 40(4): 483-494.

Walker, A.J. & Johnson, K.P. (2010). Sleep quality and sleep hygiene behaviors of adolescents during chemotherapy. Journal of Clinical Sleep Medicine. 6(5):439-44, 2010.

Yeh, C.H. (2010 ). A Pilot Study to Examine the Feasibility and Effects of a Home-Based Aerobic Program on Reducing Fatigue in Children With Acute Lymphoblastic Leukemia. Cancer Nursing. Published ahead of print.

Yilmaz, H.B. & Tas, F. (2010). Health professionals’ estimation of cancer-related fatigue in children. Journal of Pediatric Oncology Nursing. 27(6): 330-337.

Yoo, H. (2010). Validation of the pediatric functional assessment of cancer therapy questionnaire (version 2.0) in brain tumor survivors aged 13 years and older. Journal of Pain & Symptom Management. 40(4):559-65.

Therapies

Ahmed, B.A. (2010). Cumulative effective doses from radiologic procedures for pediatric oncology patients. Pediatrics. 126(4): e851-e858.

Croog, V.J. (2010). Whole neuraxis irradiation to address central nervous system relapse in high-risk neuroblastoma. International Journal of Radiation Oncology Biology Physics. 78(3): 849-855.

Gesundheit, B. (2010). The Role of Angiogenesis in the Transformation of Plexiform Neurofibroma into Malignant Peripheral Nerve Sheath Tumors in Children With Neurofibromatosis Type 1. Journal of Pediatric Hematology/Oncology. 32(7):548-553.

London, W.B. (2010). Phase II Randomized comparison of Topotecan plus Cyclophosphamide versus Topotecan alone in children with recurrent or refractory neuroblastoma: a Children’s Oncology Group Study. Journal of Clinical Oncology. 28(24): 3808-3815.

Menda, Y. (2010). Phase I Trial of 90Y-DOTATOC Therapy in Children and Young Adults with Refractory Solid Tumors That Express Somatostatin Receptors. Nuclear Medicine. 51(10):1524-31.

Pawelczak, M. (2010). Outcomes of Children and Adolescents with Well-Differentiated Thyroid Carcinoma and Pulmonary Metastases Following 131I Treatment: A Systematic Review. Thyroid. 20(10):1095-101.

Cancer: Paediatric and Young Adult, November 2010 Alison McEwan, Assistant Librarian, NHSGGC Library Network 6 Rubie, H. (2010). Phase I study of topotecan in combination with temozolomide (TOTEM) in relapsed or refractory paediatric solid tumours. European Journal of Cancer. 46(15): 2763- 2770.

Ruggiero, A. (2010). Phase I study of temozolomide combined with oral etoposide in children with recurrent or progressive medulloblastoma. European Journal of Cancer. 46(16): 2943-2949.

Shaffer, R. & Vollans, E. (2010). A radiotherapy planning study of RapidArc, intensity modulated radiotherapy, three-dimensional conformal radiotherapy, and parallel opposed beams in the treatment of pediatric retroperitoneal tumors. Pediatric Blood and Cancer. Early online in advance of print.

Schellong, G. (2010). Late valvular and other cardiac diseases after different doses of mediastinal radiotherapy for Hodgkin Disease in children and adolescents: Report from the longitudinal GPOH follow-up project of the German-Austrian DAL-HD studies. Pediatric Blood and Cancer. Early online in advance of print.

Selo, N. (2010). Acute toxicity profile of radiotherapy in 690 children and adolescents: RISK data. Radiotherapy and Oncology. 97(1): 119-126.

Szathmari, A. (2010). Correlation between pre- or postoperative MRI findings and cerebellar sequelae in patients with medulloblastomas. Pediatric Blood and Cancer. 55(7): 1310-1316.

Widemann, B.C. (2010). Phase 1 trial and pharmacokinetic study of the farnesyl transferase inhibitor tipifarnib in children and adolescents with refractory leukemias: a report from the children’s oncology group. Pediatric Blood and Cancer. Early online in advance of print.

Zevallos, J.P. (2010). Modern multimodality therapy for pediatric nonorbital paramenigeal sarcomas. Head and Neck. 32(11): 1501-1506.

Working with Paediatric and Young Adult Patients

Casillas, J. (2010). Transitioning childhood cancer survivors to adult-centered healthcare: insights from parents, adolescent, and young adult survivors. Psycho-Oncology. 19(9):982- 90.

Da Silva, F. (2010). Impact of Childhood Cancer on Parents' Relationships: An Integrative Review. Journal of Nursing Scholarship. 42(3):250-261, September 2010.

Delgado, E. (2010). Availability of palliative care services for children with cancer in economically diverse regions of the world. European Journal of Cancer. 46(12): 2260-2266.

Foster, T.L. (2010). Pediatric Palliative Care in Childhood Cancer Nursing: From Diagnosis to Cure or End of Life. Seminars in Oncology Nursing. 26(4): 205-221

Gibson, F. (2010 ). Children and young people's experiences of cancer care: a qualitative research study using participatory methods. International Journal of Nursing Studies. 47(11):1397-407.

Gibson, F. (2010). Utilization of the Medical Research Council Evaluation Framework in the Development of Technology for Symptom Management: The ASyMS(C)-YG Study. Cancer Nursing. 33(5):343-352.

Cancer: Paediatric and Young Adult, November 2010 Alison McEwan, Assistant Librarian, NHSGGC Library Network 7 Haddy, R.I. (2010). Lifetime Follow-up Care After Childhood Cancer. Journal of the American Board of Family Medicine: JABFM. 23(5):647-54.

Norbeg, A.L. (2010). Parents of Children Surviving a Brain Tumor: Burnout and the Perceived Disease-related Influence on Everyday Life. Journal of Pediatric Hematology/Oncology. 32(7):e285-e289.

Wicks, L. (2010). The adolescent cancer experience: loss of control and benefit finding. European Journal of Cancer Care. 19(6):778-85.

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Sources used for this bulletin:

Jornals scanned:

Annals of Oncology Cancer European Journal of Oncology Nursing Journal of Clinical Oncology Neuro-Oncology Pediatric Blood and Cancer Psycho-Oncology Seminars in Oncology Supportive Care in Cancer

Journal alerts:

Archives of Diseases in Childhood Archives of Pediatrics and Adolescent Medicine Clinical Journal of Oncology Nursing Current Problems in Pediatric and Adolescent Health Care Journal of Adolescence Journal of Adolescent Health Journal of Cancer Nursing Journal of Pediatric and Adolescent Gynecology Journal of Pediatric Health Care Journal of Pediatric Hematology/Oncology Journal of Pediatric Nursing Journal of Pediatric Oncology Nursing Paediatric Nursing Pediatrics Paedatrics and Child Health Pediatrics and Neonatology Seminars in Oncology Nursing

Alerting services:

Zetoc alert OvidSP Auto Alerts – MEDLINE and CINAHL

Cancer: Paediatric and Young Adult, November 2010 Alison McEwan, Assistant Librarian, NHSGGC Library Network 8

Cancer: Paediatric and Young Adult, November 2010 Alison McEwan, Assistant Librarian, NHSGGC Library Network 9