Introduction Edited by: Anna Janowicz, Piotr Krakowiak, Alicja Stolarczyk In Solidarity Hospice-Palliative Care in Poland In Solidarity Hospice-Palliative Care in Poland www.hospicefoundation.eu Edited by: Anna Janowicz, Piotr Krakowiak, Alicja Stolarczyk In Solidarity Hospice-Palliative Care in Poland Gdańsk 2015 Original Polish title: Solidarni. Opieka paliatywno-hospicyjna w Polsce Copyright © 2015 Fundacja Hospicyjna Contents English Edition Reviewers: Prof. Józef Binnebesel, Faculty of Educational Sciences, UMK, Torun Preface Prof. Ewa Jassem, MD PhD, Department of Pulmonology and Allergology, Anna Janowicz, Piotr Krakowiak, Alicja Stolarczyk 11 Medical University of Gdansk Forewords Production coordinators: Anna Janowicz, Alicja Stolarczyk Archbishop Tadeusz Gocłowski 14 Izabela Kaptacz, National Consultant in Palliative Care Nursing 17 Cover design: Jacek Rembowski Wiesława Pokropska, National Consultant for Palliative Medicine 18 Typesetting: Jacek Rembowski Part 1. THEN AND NOW 21 Photos: Andrzej Brzóska, Szymon Brzóska, Arkadiusz Wegner as well as from the authors’ and hospices’ collections. Introduction: Piotr Krakowiak 22 Historical outline of end-of-life care in Europe and in Poland 26 Translation: Art of Translation/Babel www.artoftranslation.pl Antiquity – from incomprehensible death to the supernatural value of suffering 26 The Middle Ages – from family care to community support and taming death 27 The Renaissance – from epidemic and growing fear of death to “savage” death 28 Copyright for English Edition © 2015 Fundacja Hospicyjna The Enlightenment – from death perceived as a failure to dying as a social taboo 30 Permission is granted to copy and distribute this publication as long as reference is made to the original publication and or the authors and Fundacja Hospicyjna is notifi ed. This book The Present – from denial of death to rediscovery of “mysterium mortis” 31 can be downloaded free of charge from www.hospicefoundation.eu in a variety of formats. Emergence of the contemporary hospice movement in Poland 32 Origins of the global, contemporary hospice movement 32 Progenitors, initiators and makers of the contemporary hospice movement in Poland 33 Fundacja Hospicyjna Origins and development of palliative care in Poland 40 Polish National Organisation Register KRS 0000 201 002 Origins of palliative medicine in Poland 40 80-208 Gdańsk, ul. Chodowieckiego 10, Poland. Development of children’s palliative care in Poland 41 Phone/fax: (+48) 58 345 90 60 Co-operation between the social movement and medical specializations: www.hospicefoundation.eu hospice-palliative care 42 Integration of social and medical activities in the world 42 Actions for the integration of hospice-palliative care in Poland 42 Gdańsk 2015 Special role and forms of voluntary service in hospice-palliative care in Poland 46 Edition I Voluntary service in team palliative and hospice care in 21st century Poland 46 Voluntary service directly supporting patients and their families 48 ISBN 978-83-940626-3-7 Voluntary service engaged in social education and hospice charity campaigns 53 Innovative forms of voluntary service 57 The book was printed with the support of Via Medica. Involvement of voluntary service in the activities of the hospice movement www.viamedica.pl in Poland and Europe 60 IN SOLIDARITY. HOSPICE-PALLIATIVE CARE IN POLAND 5 New challenges 63 Part 3. THE HISTORY OF HOSPICE-PALLIATIVE CARE CENTRES 177 Transferring the good practices of hospice voluntary service into healthcare Introduction: Anna Janowicz 178 facilities and other areas of home and long-term care 63 Kraków. Patients’ Friends’ Society – St. Lazarus’s Hospice 180 Establishing a system of support for informal carers 66 Gdańsk. Father Eugeniusz Dutkiewicz SAC Hospice 186 Part 2. PERSONAL REFLECTIONS 69 Poznań. St. Jan Kanty Hospice 194 Introduction: Alicja Stolarczyk 70 Poznań. Hospicjum Palium 196 Father Eugeniusz Dutkiewicz SAC, Gdańsk – Our Hands Are the Hospice Viaticum 72 Płock. St. Urszula Ledóchowska Hospice 200 Romana Antonowicz, Katowice – Availability and Selflessness 76 Kielce. St. Francis of Assisi Catholic Home Hospice for Children and Adults 202 Halina Bortnowska, Kraków – Hospice Movement 78 Gliwice. Non-Public Health Care Facility – Divine Mercy Hospice 205 Sister Nikodema (Teresa Czarnul), Gdańsk – As a Team We Can Meet the Challenge 80 Lublin. Patients’ Friends’ Society – The Good Samaritan’s Hospice 208 Krystyna de Walden-Gałuszko, Gdańsk – It Happened in Gdańsk 82 Warszawa. St. Christopher’s Oncological Hospice Foundation 211 Father Władysław Duda, Warszawa – Redefinition of Wishes 88 Bydgoszcz. Blessed Father Jerzy Popiełuszko Hospice at the Saint Polish Anna Głowacka, Poznań – A Handful of Memories and Thoughts 92 Martyr Brothers Parish 214 Andrzej Gryncewicz, Gdańsk – To See a Human Being with Greater Insight 94 Katowice. Cordis Hospice Social Society 216 Jolanta Iwanowska, Białystok – A Different World 98 Radom. St. Joseph’s Home Hospice Care Team 219 Father Jan Kaczkowski, Puck – Christian Reply 101 Włocławek. NZOZ (Non-Public Health Care Centre) Home Care Team of the Polish Association for Palliative Care, Włocławek Branch 220 Anna Kaptacz, Częstochowa – Why Hospice? 102 Wejherowo. Patients’ Friends’ Society – St. Juda Tadeusz Hospice 222 Father Piotr Krakowiak SAC, Gdańsk – Keeping the Hospice Spirit Alive 104 Bielsko-Biała. St. Kamil’s Hospice 224 Wojciech Leppert, Poznań – A Doctor’s Reflections after 20 Years of Work at an Academic Palliative Medicine Centre 117 Łomża. Patients’ Friends’ Society – Hospice of the Holy Spirit 226 Father Wacław Leśnikowski, Nysa – Some Thoughts about the Present Situation Chojnice. Hospice Friends’ Society 229 of the Polish Hospice Movement 123 Lublin. St. John of Dukla Oncology Center of the Lublin Region (COZL) 232 Sister Lidia Lupa, Tarnów, Kraków – I Keep Trying to Surpass Myself 126 Częstochowa. Hospice Care Association in the Częstochowa Region 235 Aleksandra Modlińska, Gdańsk – The Beginnings Were Crazy 129 Koszalin. St. Maximilian Kolbe’s Hospice 239 Anna Orońska, Wrocław – History of the Hospice Movement in Wrocław 132 Jastrzębie-Zdrój. Father Eugeniusz Dutkiewicz Association at St. Catherine’s Parish 243 Janina Mirończuk, Toruń – The Light 136 Tychy. St. Calixte I Hospice Social Society 245 Joanna Muszkowska-Penson, Gdańsk – Ad Fontes 138 Bydgoszcz. Non-Public Health Care Unit (NZOZ) Sue Ryder Home 247 Father Stanisław Puchała, Katowice – Home Hospice in Katowice 144 Ciechanów. Specialist Provincial Hospital in Ciechanów, Palliative Sister Michaela Rak, Wilno – Love, Gratitude, Memory 147 and Hospice Ward, Home Hospice 250 Elżbieta Ruta, Łódź – It Is More of a Mission than a Job to Me 150 Nysa. St. Arnold Janssen’s Hospice, Auxilium Association 251 Elżbieta Skowrońska, Gdańsk – Serving Patients as a Team 152 Świdnica. Patients’ Friends’ Society “Hospice” 253 Jolanta Stokłosa, Kraków – I Trust 159 Wałbrzych. NZOZ (Non-Public Health Care Centre) Hospice and Palliative Outpatient Clinic 254 Ewa Śmigielska-Stolarczyk, Gdańsk – London Inspirations 161 Warszawa. Warsaw Children’s Hospice Foundation 256 Zbigniew Żylicz, Basel – Memories of the Origins of the Hospice Movement in Poland and Europe 169 Gorzów Wielkopolski. St. Kamil’s Hospice 259 Wołomin. Divine Providence Hospice of Orionist Fathers 262 6 Introduction IN SOLIDARITY. HOSPICE-PALLIATIVE CARE IN POLAND 7 Chorzów. Hospice and Palliative Care Association “The Hospice” 266 Dąbrowa Górnicza/Katowice. NZOZ (Non-Public Healthcare Facility) Sosnowiec. St. Thomas the Apostle Hospice 271 Alicja Kluczna Medical and Nursing Team 337 Jaworzno. St. Brother Albert Homo-Homini Hospice 274 Gołdap. Independent Public Nursing and Care Facility 338 Mrągowo. St. Adalbert’s Home Hospice 276 Lubartów. Prelate Andrzej Tokarzewski Community Hospice Care Facility 339 Tarnowskie Góry. Queen of Peace Hospice Association 279 Dębica. John Paul II Home Hospice in Dębica, John Paul II Home Hospice Association 342 Cieszyn. Patients’ Friends’ Association St. Luke the Evangelist Hospice 283 Otwock. “Empathy” Home Hospice of the Palliative Society 345 Poznań. Wielkopolskie Association of Palliative Care Volunteers “Home Hospice” 285 Szczecin/Koszalin. West Pomeranian Children’s and Adults’ Hospice Foundation 347 Warszawa. NZOZ (Non-Public Health Care Center) Home Hospice Centre of the Marian Fathers’ Congregation 289 Licheń. NZOZ (Non-Public Healthcare Facility) Licheń and Blessed Stanisław Papczyński Hospice Branch 349 Bartoszyce. Non-Public Palliative Medicine Facility 290 Bolesławiec. NZOZ (Non-Public Healthcare Facility) Curatum, Home Hospice 351 Łódź. Palliative Medicine Ward and Palliative Medicine Outpatient Clinic at St. John the Divine’s Hospital of the Knights Hospitallers 292 Warszawa. “Promyczek” Children’s Home Hospice Foundation 352 Pabianice. Hospice Care Association in the Pabianice District 293 Darłowo. Caritas Hospice and Nursing Home of Bishop Czesław Domin 353 Czechowice-Dziedzice. Salus Non-Public Healthcare Facility 294 Nowa Wola. Prophet Elijah’s Hospice, Podlaskie Oncological Hospice Foundation 354 Katowice. Archdiocesan Hospice Home of the Blessed John Paul II 295 Opole. Palliative Care Center “Betania” 356 Siedlce. Independent Public Health Care Unit 297 Part 4. SUPPORTING ORGANISATIONS 359 Błonie n. Warszawa. Healthcare Center Caritas of the Warsaw Archdiocese, Introduction: Anna Janowicz 360 Healthcare Unit Caritas of the Warsaw Archdiocese – Home Hospice 299 Polish Hospice Movement Forum (OFRH) 362 Warszawa. Caritas Healthcare Center of the Warsaw