‘KEEPING THE PEACE’: MULTIPLE PERSPECTIVES ON DECISION-MAKING FOLLOWING ACUTE STROKE IN CHINA: A CONSTRUCTIVIST GROUNDED THEORY STUDY Submitted for the degree of Doctor of Philosophy (Ph.D.) Faculty of Medicine School of Nursing and Midwifery University of Sheffield Yue Wang June 2013 Volume 2 References Abegunde, D. O., Mathers, C. D., Adam, T., Ortegon, M. and Strong, K. (2007) The burden and costs of chronic diseases in low-income and middle-income countries. Lancet, 370, 1929–1938. Alaszewski, H., King, A., Alaszewski, A. and Potter, J. (2008) Communicating information to stroke survivors: a pilot study [online]. Kent, Centre for Health Services Studies, University of Kent. Available from: http://www.kent.ac.uk/chss/researchcentre/docs/communicating_information.pdf [Accessed 30th December 2009] Almborg, A. H., Ulander, K., Thulin, A. and Berg, S. (2008) Patients’ perceptions of their participation in discharge planning after acute stroke. Journal of Clinical Nursing, 18, 199-209. American Nurses Association. (2010) Standards of professional nursing practice [online]. Washington, DC, American Nurses Association. Available from: http://library.brcn.edu/upload/docs/BRCN/Library/ANA/eBk_SL%20Nursing%20S cope%20%20Standards%202e%202010.pdf [Accessed 1st January 2013]. Andersson, A. and Hansebo, G. (2009) Elderly peoples’ experience of nursing care after a stroke: from a gender perspective. Journal of Advanced Nursing, 65(10), 2038–2045. Andrews, T. and Nathaniel, A. K. (2009) Awareness of dying revisited. Journal of Nursing Care Quality, 24(3), 189–193. Annells, M. (1996) Grounded theory method: philosophical perspectives, paradigm of inquiry, and postmodernism. Qualitative Health Research, 6(3), 379-393. Arora, N. K. and McHorney, C. A. (2000) Patient preferences for medical decision making: who really wants to participate? Medical Care, 38(3), 335-341. Bartlett, D. and Payne, S. (1997) Grounded theory – its basis, rationale and procedures. In: G, McKenzie, J, Powell and R, Usher (eds) Understanding social research: perspectives on methodology and practice. London, Falmer. pp. 173-195. 241 Becker, Howard S. (1986) Doing things together. Evanston, Northwestern University Press. Belcher, V. N., Fried, T. R., Agostini, J. A. and Tinetti, M. E. (2006) Views of older adults on patient participation in medication-related decision making. Journal of General Internal Medicine, 21, 298–303. Benner, Patricia, Tanner, Christine A. and Chesla, Catherine A. (1996) Expertise in nursing practice: caring, clinical judgement and ethics. New York, Springer. Benoliel, J. (1984) Advancing nursing science: qualitative approaches. Western Journal of Nursing Research, 6(3), 1-8. Benoliel, J. (1996) Grounded theory and nursing knowledge. Qualitative Health Research, 6(3), 406-428. Benson, J. and Britten, N. (1996) Respecting the autonomy of cancer patients when talking with their families: qualitative analysis of semi-structured interviews with patients. British Medical Journal, 313, 729–731. Berg, Bruce L. (2007) Qualitative research methods for the social sciences. 6th edition. Boston, Pearson/Allyn & Bacon. Berger, J. T. (1998) Culture and ethnicity in clinical care. Archives of Internal Medicine, 158, 2085–2090. Biley, F. C. (1992) Some determinants that effect patient participation in decision- making about nursing care. Journal of Advanced Nursing, 17, 414-421. Bishop, D. (1980) Behavior and disability: challenges for assessment and management. In: D, S, Bishop (ed) Behavioral problems and disabled. Baltimore, Williams & Wilkins Co. pp. 1-16. Blackhall, L. J., Murphy, S. T., Frank, G., Michel, V. and Azen, S. (1995) Ethnicity and attitudes toward patient autonomy. Journal of the American Medical Association, 274, 820–825. Blanck, A. W. and Marshall, C. (2011) Patient education materials from the 242 layperson's perspective: the importance of readability. Journal for Nurses in Staff Development, 27(2), E8-E10. Bogardus, Jr. S. T., Bradley, E. H., Williams, C. S., Maciejewski, P. K., Doorn, C. V. and Inouye, S. K. (2001) Goals for the care of frail older adults: do caregivers and clinicians agree? The American Journal of Medicine, 110, 97-102. Bogdan, Robert C. and Biklen, Sari K. (1982) Qualitative research for education: an introduction to theories and methods. Boston, Allyn and Bacon. Bosworth, H. B., Stechuchak, K. M., Grambow, S. C. and Oddone, E. Z. (2004) Patient risk perceptions for carotid endarterectomy: which patients are strongly averse to surgery? Journal of Vascular Surgery, 40(1), 86-91. Bowman, K. W. and Singer, P. A. (2001) Chinese seniors’ perspectives on end-of- life decisions. Social Science & Medicine, 53, 455-464. Brereton, L. and Nolan, M. (2002) ‘Seeking’: a key activity for new family carers of stroke survivors. Journal of Clinical Nursing, 11, 22-31. Brereton, L. and Nolan, M. (2003) Seeking partnerships between family and professional carers: stroke as a case in point. In: M, Nolan, U, Lundh, G, Grant and J, Keady (eds) Partnerships in family care: understanding the caregiving career. Maidenhead, Open University Press. pp. 50-68. Brown, J., Nolan, M. and Davies, S. (2001) Who’s the expert?: redefining lay and professional relationships. In: M, Nolan, S, Davies and G, Grant (eds) Working with Older People and Their Families: Key Issues in Policy and Practice. Buckingham, Open University Press. pp 19-32. Brown, P. H. and Theoharides, C. (2009) Health-seeking behaviour and hospital choice in China’s new cooperative medical system. Health Economics, 18, S47–S64. Brown Wilson, C. and Clissett, P. (2011) Involving older people in research: practical considerations when using the authenticity criteria in constructivist inquiry. Journal of Advanced Nursing, 67(3), 677–686. Brummel-Smith, K. (1994) Management of poststroke patient. Hospital Practice 243 (Office Edition), 30(2), 43-46, 49-52, 111-113. Carlander, I., Ternestedt, B., Sahlberg-Blom, E., Hellström, I. and Sandberg, J. (2011) Being me and being us in a family living close to death at home. Qualitative Health Research, 21(5), 683–695. Casey, D. (2006) Choosing an appropriate method of data collection. Nurse Researcher, 13(3), 75-92. Chang, K. C., Tseng, M. C. and Tan, T. Y. (2004) Prehospital delay after acute stroke in Kaohsiung Taiwan. Stroke, 35, 700-704. Chang, S. J., Lee, K. J., Kim, I. S. and Lee, W. H. (2008) Older Korean people’s desire to participate in health care decision making. Nursing Ethics, 15(1), 73-86. Chang, Y. P. and Schneider, J. K. (2010) Decision-making process of nursing home placement among Chinese family caregivers. Perspectives in Psychiatric Care, 46(2), 108-118. Charles, C., Gafni, A. and Whelan, T. (1997) Shared decision-making in the medical encounter: what does it mean? (or it takes at least two to tango). Social Science and Medicine, 44(5), 681-692. Charles, C., Whelan, T. and Gafni, A. (1999a) What do we mean by partnership in making decisions about treatment? BMJ, 319, 780–782. Charles, C., Gafni, A. and Whelan, T. (1999b) Decision making in the physician- patient encounter: revisiting the shared treatment decision making model. Social Science & Medicine, 49, 651-661. Charmaz, K. (2000) Grounded theory: objectivist and constructivist methods. In: N, K, Denzin and Y, S, Lincoln (eds) Handbook of qualitative research. 2nd edition. Thousand Oaks, SAGE. pp. 509–535. Charmaz, Kathy (2006) Constructing grounded theory: a practical guide through qualitative analysis. London, Sage Publications Ltd. Charmaz, K. and Mitchell, R. G. (2001) An invitation to grounded theory in 244 ethnography. In: P, Atkinson, A, Coffey, S, Delamonte, J, Lofland and L, H, Lofland (eds) Handbook of ethnography. London, Sage. pp. 160-174. Chen, G. M. (2002) The impact of harmony on Chinese conflict management. In: G, M, Chen and R, Ma (eds) Chinese conflict management and resolution. Westport, Greenwood Publishing. pp. 3-19. Chen, G. M. and Starosta, W. J. (1997) Chinese conflict management and resolution: overview and implications. Intercultural Communication Studies, 7, 1-16. Chen, H. H. (1987) Integrating ancient and modern medicine in Chinese hospitals: the interaction among technology, traditional Chinese medicine, and health care. International Journal of Technology Assessment in Health Care, 3, 265-274. Chen, K. J. and Xu, H. (2003) The integration of traditional Chinese medicine and Western medicine. European Review, 11(2), 225–235. Chen, T. (2004) Pricing private health insurance products in China [online]. Available from: http://www.actuaries.org/IAAHS/Colloquia/Dresden/Tao%20paper.pdf [Accessed 16th January 2011] Chen, X. Y. and Fan, R. P. (2010) The family and harmonious medical decision making: cherishing an appropriate Confucian moral balance. Journal of Medicine and Philosophy, 35, 573–586. Chenitz, W. C. (1986) Getting started: the research proposal for a grounded theory study. In: W, C, Chenitz and J, M, Swanson (eds) From practice to grounded theory. Menlo Park, Addison-Wesley. pp. 39-47. Chinese Medical Association’s Neuropathy Branch for Cerebrovascular Disease Study Group (2010) Chinese guideline for diagnosis and management of acute ischemic stroke. Chinese Journal of Neurology, 43, 146–153. Christensen, J. M. and Anderson, J. D. (1989) Spouse adjustment to stroke: aphasic versus nonaphasic partners. Journal of communication disorders, 22, 225-231. 245 City Express. (2010) Tianjin: one of the top cities of ageing population [online]. Tianjin, City Express, Tuesday August 17 2010, p.1. Available from: http://www.chinadaily.com.cn/dfpd/tianjin/2010-08-17/content_718018.html