2016 Canadian Organ Replacement Register Methodological Notes and Supplementary Information Production of this document is made possible by financial contributions from Health Canada and provincial and territorial governments. The views expressed herein do not necessarily represent the views of Health Canada or any provincial or territorial government. Unless otherwise indicated, this product uses data provided by Canada’s provinces and territories. All rights reserved. The contents of this publication may be reproduced unaltered, in whole or in part and by any means, solely for non-commercial purposes, provided that the Canadian Institute for Health Information is properly and fully acknowledged as the copyright owner. Any reproduction or use of this publication or its contents for any commercial purpose requires the prior written authorization of the Canadian Institute for Health Information. 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ISBN 978-1-77109-532-7 (PDF) Table of contents Section 1: Canadian Organ Replacement Register board of directors ......................................... 4 Section 2: Canadian transplant hospitals, renal programs and independent centres ................... 5 Section 3: Canadian organ procurement organizations ............................................................ 10 Section 4: Glossary and acronyms ............................................................................................ 12 Section 5: Analytical methods ................................................................................................... 17 Section 6: Primary diagnoses captured by CORR ..................................................................... 21 2016 Canadian Organ Replacement Register Methodological Notes and Supplementary Information Section 1: Canadian Organ Replacement Register board of directors CORR board of directors (May 12, 2016) • Dr. Scott Klarenbach, Canadian Society of Nephrology — President • Dr. Jagbir Gill, Canadian Society of Transplantation — Vice President • Dr. Joseph Kim, Canadian Society of Transplantation — Past President • Dr. Louise Moist, Canadian Society of Nephrology • Dr. Joanne Kappel, Canadian Society of Nephrology • Dr. Daniel H. Kim • Dr. Jean-Philippe Lafrance, Quebec Society of Nephrology • Dr. Susan M. Samuel • Dr. Lianne Singer • Dr. Manish M. Sood • Dr. Jean Tchervenkov, Quebec Society of Transplant • Ms. Alison Thomas • Ms. Kim Young, Canadian Blood Services • Ms. Elisabeth Fowler, Kidney Foundation of Canada 4 2016 Canadian Organ Replacement Register Methodological Notes and Supplementary Information Section 2: Canadian transplant hospitals, renal programs and independent centresi Types of transplants performed in 2015 Dialysis programs in 2015 Intestine/ Pancreas/ Home Home Heart/ multi- kidney– Islet HD PD Hospital/facility Kidney Liver Heart lung Lung visceral pancreas cell HD training† PD training Northwest Territories Stanton Territorial n/a n/a n/a n/a n/a n/a n/a n/a X n/a n/a n/a Health Authority* Hay River Health n/a n/a n/a n/a n/a n/a n/a n/a X n/a n/a n/a Authority* British Columbia† Abbotsford Regional n/a n/a n/a n/a n/a n/a n/a n/a X n/a X X B.C. Children’s X n/a n/a n/a n/a n/a n/a n/a X n/a X X Kelowna General n/a n/a n/a n/a n/a n/a n/a n/a X X X X Nanaimo Regional n/a n/a n/a n/a n/a n/a n/a n/a X n/a X X Kootenay-Boundary n/a n/a n/a n/a n/a n/a n/a n/a X X X X Regional Penticton Regional n/a n/a n/a n/a n/a n/a n/a n/a X n/a X X University of n/a n/a n/a n/a n/a n/a n/a n/a X X X X Northern B.C. Royal Columbian n/a n/a n/a n/a n/a n/a n/a n/a X X X X Royal Inland n/a n/a n/a n/a n/a n/a n/a n/a X X X X Royal Jubilee n/a n/a n/a n/a n/a n/a n/a n/a X X X X St. Paul’s X n/a X n/a n/a n/a n/a n/a X X X X Surrey Memorial n/a n/a n/a n/a n/a n/a n/a n/a X n/a n/a n/a Vancouver General X X n/a n/a X n/a X X X n/a X X i. Independent centres provide dialysis to chronic renal failure patients. 5 2016 Canadian Organ Replacement Register Methodological Notes and Supplementary Information Types of transplants performed in 2015 Dialysis programs in 2015 Intestine/ Pancreas/ Home Home Heart/ multi- kidney– Islet HD PD Hospital/facility Kidney Liver Heart lung Lung visceral pancreas cell HD training† PD training Alberta SARP, Foothills Medical X n/a n/a n/a n/a n/a X n/a X X X X NARP, University X X X X X X X X X X X X of Alberta Alberta Children’s X n/a n/a n/a n/a n/a n/a n/a X n/a X X Hospital Saskatchewan Regina General n/a n/a n/a n/a n/a n/a n/a n/a X X X X St. Paul’s X n/a n/a n/a n/a n/a n/a n/a X X X X Manitoba Brandon Regional n/a n/a n/a n/a n/a n/a n/a n/a X n/a n/a n/a Children’s Hospital X n/a n/a n/a n/a n/a n/a n/a X n/a X X of Winnipeg Health Sciences Centre X n/a n/a X X n/a n/a n/a X X n/a n/a Seven Oaks General n/a n/a n/a n/a n/a n/a n/a n/a X X X X St. Boniface General n/a n/a n/a n/a n/a n/a n/a n/a X n/a X X Ontario Bayshore Centre n/a n/a n/a n/a n/a n/a n/a n/a X n/a n/a n/a Dialysis Brockville* Bayshore Centre n/a n/a n/a n/a n/a n/a n/a n/a X n/a n/a n/a Dialysis Stoney Creek* Brantford General* n/a n/a n/a n/a n/a n/a n/a n/a X n/a n/a n/a Children’s Hospital of n/a n/a n/a n/a n/a n/a n/a n/a X n/a X X Eastern Ontario Cornwall Dialysis n/a n/a n/a n/a n/a n/a n/a n/a X n/a n/a n/a Clinic* Credit Valley n/a n/a n/a n/a n/a n/a n/a n/a X X X X Dialysis Management n/a n/a n/a n/a n/a n/a n/a n/a X n/a n/a n/a Clinics Inc. — Pickering* 6 2016 Canadian Organ Replacement Register Methodological Notes and Supplementary Information Types of transplants performed in 2015 Dialysis programs in 2015 Intestine/ Pancreas/ Home Home Heart/ multi- kidney– Islet HD PD Hospital/facility Kidney Liver Heart lung Lung visceral pancreas cell HD training† PD training Dialysis Management n/a n/a n/a n/a n/a n/a n/a n/a X n/a n/a n/a Clinics Inc. — Markham* Dialysis Management n/a n/a n/a n/a n/a n/a n/a n/a X n/a n/a n/a Clinics Inc. — Peterborough* Grand River n/a n/a n/a n/a n/a n/a n/a n/a X X X X Halton Healthcare n/a n/a n/a n/a n/a n/a n/a n/a X n/a n/a n/a Services McMaster Children’s n/a n/a n/a n/a n/a n/a n/a n/a X n/a X X Hospital for X X X n/a X n/a n/a n/a X X X X Sick Children Niagara Health System n/a n/a n/a n/a n/a n/a n/a n/a X X X X Hôtel-Dieu Grace n/a n/a n/a n/a n/a n/a n/a n/a X X X X Humber River Regional n/a n/a n/a n/a n/a n/a n/a n/a X X X X Kingston General X n/a n/a n/a n/a n/a n/a n/a X X X X Lake of the Woods* n/a n/a n/a n/a n/a n/a n/a n/a X n/a n/a n/a Lakeridge Health n/a n/a n/a n/a n/a n/a n/a n/a X X X X LHSC — University X X X n/a n/a n/a X n/a X n/a n/a n/a LHSC — Victoria n/a n/a n/a n/a n/a n/a n/a n/a X X X X North Bay General n/a n/a n/a n/a n/a n/a n/a n/a X n/a X n/a Orillia Soldiers’ n/a n/a n/a n/a n/a n/a n/a n/a X X X X Memorial Ottawa–Carleton n/a n/a n/a n/a n/a n/a n/a n/a X n/a n/a n/a Dialysis Clinic* Ottawa Hospital X n/a n/a n/a n/a n/a n/a n/a X X X X Peterborough n/a n/a n/a n/a n/a n/a n/a n/a X n/a X X Regional Health Renfrew Victoria n/a n/a n/a n/a n/a n/a n/a n/a X n/a X n/a Sault Area Hospitals — n/a n/a n/a n/a n/a n/a n/a n/a X n/a X X Plummer Memorial 7 2016 Canadian Organ Replacement Register Methodological Notes and Supplementary Information Types of transplants performed in 2015 Dialysis programs in 2015 Intestine/ Pancreas/ Home Home Heart/ multi- kidney– Islet HD PD Hospital/facility Kidney Liver Heart lung Lung visceral pancreas cell HD training† PD training Scarborough — n/a n/a n/a n/a n/a n/a n/a n/a X n/a X X General Division Sheppard Centre* n/a n/a n/a n/a n/a n/a n/a n/a X n/a n/a n/a St.