Learning Disability Nursing Practice: Learning Disability Nursing Practice: Origins, perspectives and practice Origins, perspectives and practice Learning Disability Nursing Practice Learning Disability Nursing Practice Origins, perspectives and practice Origins, perspectives and practice Edited by Edited by Mark Jukes Mark Jukes Quay Books Division, MA Healthcare Ltd, St Jude’s Church, Dulwich Road, London Quay Books Division, MA Healthcare Ltd, St Jude’s Church, Dulwich Road, London SE24 0PB SE24 0PB British Library Cataloguing-in-Publication Data British Library Cataloguing-in-Publication Data A catalogue record is available for this book A catalogue record is available for this book ©MA Healthcare Limited 2009 ©MA Healthcare Limited 2009 ISBN-10: 1-85642-385-9; ISBN-13: 978-1-85642-385-4 ISBN-10: 1-85642-385-9; ISBN-13: 978-1-85642-385-4 All rights reserved. No part of this publication may be reproduced, stored in a retrieval All rights reserved. No part of this publication may be reproduced, stored in a retrieval system or transmitted in any form or by any means, electronic, mechanical, photocopying, system or transmitted in any form or by any means, electronic, mechanical, photocopying, recording or otherwise, without prior permission from the publishers recording or otherwise, without prior permission from the publishers Printed by CLE, Huntingdon, Cambridgeshire Printed by CLE, Huntingdon, Cambridgeshire Introduction Introduction Contents Contents Contributors vii Contributors vii Introduction Mark Jukes ix Introduction Mark Jukes ix Section One: Origins Section One: Origins Chapter 1 Mental deficiency Institutions: Have the 1 Chapter 1 Mental deficiency Institutions: Have the 1 obituaries been fair and balanced? obituaries been fair and balanced? Peter Allen Peter Allen Chapter 2 Striving towards ordinariness within a 39 Chapter 2 Striving towards ordinariness within a 39 regulatory system regulatory system Mark Jukes Mark Jukes Chapter 3 Mental deficiency nursing and the GNC: 75 Chapter 3 Mental deficiency nursing and the GNC: 75 A square peg in a round hole A square peg in a round hole Duncan Mitchell Duncan Mitchell Section Tw o: Perspectives Section Tw o: Perspectives Chapter 4 From the workhouse to citizenship: Four 101 Chapter 4 From the workhouse to citizenship: Four 101 ages of learning disability ages of learning disability Tony Gilbert Tony Gilbert Chapter 5 Researching learning disability nursing 155 Chapter 5 Researching learning disability nursing 155 Ruth Northway Ruth Northway Section Three: Practices Section Three: Practices Chapter 6 Community learning disability nursing 185 Chapter 6 Community learning disability nursing 185 Mark Jukes and Simon Jones Mark Jukes and Simon Jones Chapter 7 Health facilitation 213 Chapter 7 Health facilitation 213 Susan Brady Susan Brady Chapter 8 Epilepsy and specialist learning disability practice 243 Chapter 8 Epilepsy and specialist learning disability practice 243 Fiona Rich and Catherine Doherty Fiona Rich and Catherine Doherty Chapter 9 Nursing people with profound and multiple 285 Chapter 9 Nursing people with profound and multiple 285 learning disabilities learning disabilities Colin Griffiths and Carmel Doyle Colin Griffiths and Carmel Doyle Chapter 10 Mental health and learning disability 309 Chapter 10 Mental health and learning disability 309 Dave Ferguson Dave Ferguson LearningContents Disability Nursing Practice LearningContents Disability Nursing Practice Chapter 11 Challenging behaviour:The contribution of 327 Chapter 11 Challenging behaviour:The contribution of 327 nurse specialists nurse specialists Tony Osgood Tony Osgood Chapter 12 Forensic learning disability nursing practice 361 Chapter 12 Forensic learning disability nursing practice 361 Anne Kingdon Anne Kingdon Chapter 13 Autism spectrum conditions 379 Chapter 13 Autism spectrum conditions 379 Jill Aylott Jill Aylott Chapter 14 Development of services for children 399 Chapter 14 Development of services for children 399 Owen Barr Owen Barr Section Four:Further perspectives Section Four:Further perspectives Chapter 15 Challenges for the curriculum in learning 425 Chapter 15 Challenges for the curriculum in learning 425 disability nursing disability nursing Bob Hallawell Bob Hallawell Chapter 16 Inter-professional education 443 Chapter 16 Inter-professional education 443 Martin Bollard Martin Bollard Chapter 17 Continuing practice development in 463 Chapter 17 Continuing practice development in 463 learning disability nursing learning disability nursing Caron Thomas and Penny Pritchard Caron Thomas and Penny Pritchard Index 481 Index 481 i i Introduction Introduction Contributors Contributors Editor Editor Mark Jukes is Reader in Learning Disabilities, Department of Community Mark Jukes is Reader in Learning Disabilities, Department of Community Health and Social Work, Birmingham City University, Edgbaston Health and Social Work, Birmingham City University, Edgbaston Campus, Birmingham, England Campus, Birmingham, England Contributors Contributors Peter Allen is a retired biomedical scientist. Much of his career was spent Peter Allen is a retired biomedical scientist. Much of his career was spent at St Margaret’s Hospital, Walsall. He is a well-known local historian at St Margaret’s Hospital, Walsall. He is a well-known local historian with a particular interest in social history. He can be contacted at 130 with a particular interest in social history. He can be contacted at 130 Dunsheath, Hollinswood, Telford, Shropshire TF3 2DB, England Dunsheath, Hollinswood, Telford, Shropshire TF3 2DB, England Jill Aylott has a PhD in Autism and is Research Lead at the Centre for Jill Aylott has a PhD in Autism and is Research Lead at the Centre for Professional and Organisation Development, Faculty of Health and Professional and Organisation Development, Faculty of Health and Wellbeing, Sheffield Hallam University, Sheffield, England Wellbeing, Sheffield Hallam University, Sheffield, England Owen Barr is Head of School, School of Nursing, University of Ulster, Owen Barr is Head of School, School of Nursing, University of Ulster, Londonderry, Northern Ireland Londonderry, Northern Ireland Susan Brady is Clinical Lead for Health Facilitation and an Advanced Susan Brady is Clinical Lead for Health Facilitation and an Advanced Nurse Practitioner for Learning Disabilities Services in South Nurse Practitioner for Learning Disabilities Services in South Birmingham Primary Care Trust, Birmingham, England Birmingham Primary Care Trust, Birmingham, England Martin Bollard is Senior Lecturer in Learning Disabilities and CiPel Martin Bollard is Senior Lecturer in Learning Disabilities and CiPel Reader, Coventry University, Coventry, England Reader, Coventry University, Coventry, England Catherine Doherty is Epilepsy Specialist Nurse, St. Stephens Centre, Catherine Doherty is Epilepsy Specialist Nurse, St. Stephens Centre, South Birmingham Primary Care Trust, Birmingham, England South Birmingham Primary Care Trust, Birmingham, England Carmel Doyle is Lecturer in Intellectual Disabilities, School of Nursing Carmel Doyle is Lecturer in Intellectual Disabilities, School of Nursing and Midwifery, Trinity College, Dublin, Eire and Midwifery, Trinity College, Dublin, Eire Dave Ferguson is Consultant Nurse (Mental Health in Learning Disability) Dave Ferguson is Consultant Nurse (Mental Health in Learning Disability) and Academic Practitioner, Hampshire Partnership NHS Foundation and Academic Practitioner, Hampshire Partnership NHS Foundation Trust and University of Southampton, Southampton, England Trust and University of Southampton, Southampton, England Tony Gilbert is Deputy Head of School of Social Work and Primary Care, Tony Gilbert is Deputy Head of School of Social Work and Primary Care, Plymouth University, Plymouth, England Plymouth University, Plymouth, England Colin Griffiths is Lecturer in Intellectual Disabilities, School of Nursing Colin Griffiths is Lecturer in Intellectual Disabilities, School of Nursing and Midwifery, Trinity College, Dublin, Eire and Midwifery, Trinity College, Dublin, Eire Bob Hallawell is Academic Lead in Learning Disability, Division of Bob Hallawell is Academic Lead in Learning Disability, Division of Nursing, School of Nursing, Midwifery and Physiotherapy, University Nursing, School of Nursing, Midwifery and Physiotherapy, University of Nottingham, Nottingham, England of Nottingham, Nottingham, England Simon Jones is Deputy Service Manager, Bristol Community Learning Simon Jones is Deputy Service Manager, Bristol Community Learning Difficulty Service, Bristol, England Difficulty Service, Bristol, England Anne Kingdon is Consultant Nurse in Learning Disabilities (Forensic), Anne Kingdon is Consultant Nurse in Learning Disabilities (Forensic), Cheshire and Wirral Partnership NHS Foundation Trust, and Honorary Cheshire and Wirral Partnership NHS Foundation Trust, and Honorary Senior Lecturer, University of Chester, England Senior Lecturer, University of Chester, England ii ii LearningContributoDisabilityrs Nursing Practice LearningContributoDisabilityrs Nursing Practice Duncan Mitchell is Professor of Health and Disability, Manchester Duncan Mitchell is Professor of Health and Disability, Manchester Metropolitan University and Head of Clinical Services, Manchester Metropolitan University and Head of Clinical Services, Manchester Learning Disability Partnership, Manchester, England Learning Disability Partnership, Manchester, England Ruth Northway is Professor of Learning Disability