PP12-II/06 I S elect C om m ittee of the H ouse of K eys o n V oluntary Eu t h a n a s ia A ppendices Table of Contents Appendix 1 Curriculum Vitae of J F Helps Appendix 2 List of Abbreviations Appendix 3 House of Keys Select Committee on Voluntary Euthanasia: Oral Evidence Appendix 4 House of Keys Select Committee Notice of Invitation for Written Evidence Appendix 5 Public Written Submissions Appendix 6 Recent Developments in the House of Lords: ADTI Bill 2005 Appendix 7 Comments from IOM Medical Society Survey Appendix 8 Copy of Standard Letter of Receipt Appendix 9 Copy of Postcard from Manx 4 Death with Dignity Campaign Appendix 1 Curriculum Vitae of J F Helps Jennifer Frances Helps ¡[email protected] Date of Birth 02/08/81 Citizenship British (Manx) Educational Details Establishment From To Natural History Museum/Imperial College, London 2003 2004 Brasenose College, University of Oxford 1999 2002 Castle Rushen High School, Isle of Man 1992 1999 Burgoine Middle School, Potton, Nr Sandy, Beds 1990 1992 Wrestling worth Lower School, Nr Sandy, Beds 1986 1990 Examining Body Subject Yr Grade Imperial College, London MSc in Advanced methods 2004 Distinction in taxonomy and biodiversity University of Oxford BA Hons in Biological Sciences 2002 Class I AQA A Level Biology 1999 A OCR A Level Chemistry 1999 A AQA A Level French 1999 A NEAB GCSE Biology 1997 A MEG GCSE Chemistry 1997 A NEAB GCSE French 1997 A NEAB GCSE Art & Design 1997 A NEAB GCSE Physics 1997 B NEAB GCSE Mathematics 1997 B NEAB GCSE Music 1997 B NEAB GCSE Religious Studies 1997 B NEAB GCSE English Language 1997 B NEAB GCSE English Literature 1997 C Work Experience Organisation Address Job Description Dates Greens Ltd Isle of Man Kitchen Assistant Feb 05-June 05 Arragon Properties Isle of Man Seasonal Gardener May 03-Sept 03 Tropical Biology Association Cambridge Student & Fieldwork Oct 02-Dec 02 Friends Provident Isle of Man Receptionist Sept 02 Lloyds Private Banking Isle of Man Audio Typist Aug 02 Duke Video Isle of Man Researcher July 01-Sept 01 Port St Mary Commissioners Isle of Man General Clerical July 00-Sept 00 Awards Open Scholarship and College Prize at Brasenose College, University of Oxford Interests My academic interests have included conservation, biodiversity studies and sustainable development. I was the social secretary of the University of Oxford Biological Society (2001-2002). My non-academic interests include playing the piano, dance (Ballet and Manx), languages (Manx, French, Swahili & sign language), scuba diving and travelling. Academic Resume After my secondary education in the Isle of Man (Castle Rushen High School), I took a place at Oxford University to read Biological Sciences. Whilst at Brasenose College in Oxford I was awarded a College Prize and a Scholarship. I graduated from Oxford with a Class I Honours degree. I then travelled to Madagascar where I undertook a research project concerning the distribution and regeneration of Adansonia rubrostipa (Baobab tree). I am currently in discussion with a colleague to publish the results of our studies on A. rubrostipa in this area together. In 2003 I went to the Natural History Museum, London and studied for a Masters in Advanced Methods in Taxonomy and Biodiversity. In the course of my studies at the NHM I travelled to Belize to conduct research and collect specimens and data for my thesis which was titled "DNA-based identification of larvae: an exploration and development of the methodology of DNA taxonomy". This thesis addressed the development of a relatively new scientific concept and explored the methodology, feasibility and ethics of the procedure. I graduated from the NHM (in conjunction with Imperial College London) with a Master of Science with distinction. After completing my studies I travelled throughout Eastern Africa, and I hope to resume my academic studies in 2006. Appendix 2 List of Abbreviations APM Association for Palliative Medicine ANH Artificial Nutrition and Hydration BMA British Medical Association BME Board of Medical Examiners (Oregon) CCNE National Consultative Ethics Committee for Health and Life Sciences (France) CPS Clinical Predication of Survival DAA Disability Awareness in Action DAD Doctor Assisted Death DHS Department of Human Services (Oregon) DHSS Department of Health and Social Services (Isle of Man) DPP Director of Public Prosecutions DRC Disability Rights Commission DWD Death With Dignity EAPC European Association for Palliative Care ECHR European Convention on Human Rights GMC General Medical Council GP General Practitioner HK House of Keys HL House of Lords IOM Isle of Man LCD Lord Chancellor's Department MHK Member of the House of Keys MND Motor Neurone Disease MP Member of Parliament NCHSPCS National Council for Hospice and Specialist Palliative Care Services NHS National Health Service NMAC Nursing and Midwifery Advisory Council NMC Nursing and Midwifery Council NOP National Opinion Poll ODDA Oregon Death with Dignity Act (Oregon) PAD Patient (Assisted Dying) Bill (UK) PCA Palliative Care Australia POLST Physician Order for Life-Sustaining Treatment (Oregon) RCGP Royal College of General Practitioners RCN Royal College of Nursing ROTI Rights of the Terminally 111 Act (Australia) SAMS Swiss Academy of Medical Sciences (Switzerland) SAPC Swiss Association for Palliative Care (Switzerland) SCEN Support Consultation Euthanasia Network (The Netherlands) TLRAS Termination of Life on Request and Assisted Suicide (Review Procedure) Act (The Netherlands) UK United Kingdom USA United States of America VES Voluntary Euthanasia Society WHO World Health Organisation Appendix 3 House of Keys Select Committee on Voluntary Euthanasia: Oral Evidence KCE, No. 1 2004 HOUSE OF KEYS OFFICIAL REPORT RECORTYS OIKOIL Y CHIARE AS FEED PROCEEDINGS DAALTYN (HANSARD) SELECT COMMITTEE ON VOLUNTARY EUTHANASIA BING ER-LHEH MYCHIONE COYRT - GY - BAAS E MYGHINAGH LESH COARDAILYS Douglas, Wednesday, 5th May 2004 Published by the Office of the Clerk of Tynwald, Legislative Buildings, Bucks Road, Douglas, Isle of Man. O Court of Tynwald, 2004 Printed by The Copy Shop Limited, 48 Bucks Road, Douglas, Isle of Man Price Band E 2KCE SELECT COMMITTEE, WEDNESDAY, 5th MAY 2004 Members Present: Mr Q B Gill MHK (Chairman) Mr D M Anderson MHK Hon. A F Downie MHK Mrs H Hannan MHK Hon. J Rimington MHK Clerks: Mr M Comwell-Kelly, Secretary of the House of Keys Mrs M Cullen, Deputy Clerk of Tynwald Business transacted Page Procedural............................................................................................................................................................................... 3 Evidence of Miss B Critchlow, Director of Nursing Midwifery and Professional Development, Noble’s Hospital.... 3 The Committee adjourned at 11.10 a.m. and resumed at 11.15 ajn. Procedural............................................... ................................................................................................................................ 11 Evidence of the Dr J Garland, Clinical Psychologist, Oxfordshire Mental Healthcare TYust................................... 12 The Committee adjourned at 1236pjn. and resumed its sitting at 2.00 pjn. Procedural..............................................................................................................................................................................23 Evidence of Mr P Cusworth, Research Officer, LIFE UK, accompanied by Mrs Newton............................................23 Procedural.................................................................................................................................................. I......................... 36 Evidence of Mr P G Bryden, Sulby.....................................................................................................................................36 The Committee sat in private. Oral Evidence SELECT COMMITTEE, WEDNESDAY, 5th MAY 2004 3 KCE and Midwifery Advisory Council are the lead nurses in their House of Keys Select Committee own division or section and so that includes Noble’s Hospital, the hospice, the community nursing practice, Ramsey District on Voluntary Euthanasia Cottage Hospital, nurse education on the Island and also the independent sector, and so it is really represented by all the leads in all sectors of nursing on the Isle of Man. The Committee sat in public at J0.05 a.m. in the Millennium Conference Room, The Chairman: How many people would be covered Legislative Buildings, Douglas by those? Miss Critchlow: There are 11 members, I believe. [MR GILL in the Chair] The Chairman: Eleven members on the Council, and how many nurses would you represent on the Island? Procedural Miss Critchlow: There are around 900 qualified nurses, The Chairman (Mr Gill): Moghrey raie. Good morning midwives and health visitors on the Isle of Man. everybody. This is the first public evidence session of the Select The Chairman: But your Committee is representative Committee of the House of Keys on Voluntary Euthanasia. of the whole spectrum? That is the title that the Committee decided between us, but it is not exclusive to issues of voluntary euthanasia; it is about Miss Critchlow: Yes. assisted dying. But I hope that we can take the title of the Committee as indicative, rather than exclusive. The Chairman: Right. Does that include community Just for introduction and by way of recording on Hansard, nurses? if I could ask Miss Critchlow and other people giving evidence if they could speak as clearly as possible to assist